What Your Doctor Won’t Tell You About Polycystic Kidney Disease (PKD)—But You Really Should Know
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About this ebook
You or someone you care about has been diagnosed with Polycystic Kidney Disease. What now?
Well, if PKD is your road and you must travel it, here is a travel guide by an experienced traveler, with notes on what to do, what to eat and what sights not to miss. All roads have potholes and PKD is no different. So, if you’re buckled up, let’s see how many of them we can help you miss.
D. W. St.John
Here is where a writer is supposed to tell you all about the exciting things he's done. How he's wrestled crocodiles in Tanzania, bounced drunks in an Amsterdam brothel, smuggled guns to Cuba and sat in as drummer for the Who in Tokyo. Well, I've never done any of that, but hey, nobody's perfect.My life is much like yours. I'm just another soul shoe horned into a meat puppet biding my time until I return to the one.These stories are just dreams I lived. If I've done my job even passably well, then you may live them, too.
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Book preview
What Your Doctor Won’t Tell You About Polycystic Kidney Disease (PKD)—But You Really Should Know - D. W. St.John
What Your Doctor Won’t Tell You About PKD*
*But You Need to Know
Copyright 2012 by PKD Man
Smashwords Edition
~ For Jenn ~
Disclaimer
The advice in is book is the opinion of the author. The author is not a licensed physician. He merely played one with a girl at daycare when he was six—it was her idea, by the way (at least that was my story and I see no reason to change it now). He holds no advanced degrees in medicine or anything else. He intends purchasing a PhD from an online diploma mill, but has yet to get around to it. His sole qualification to write about PKD/PLD it is having experienced it, which in this culture is no qualification whatsoever. Nothing in this book should be interpreted as medical advice or advice to forego, refuse or ignore the medical advice of a licensed physician or specialist—bla bla bla.
Contents
Foreword
Introduction
Coming to Terms with PKD
The Facts
What to Expect
Endurance
Clothing
Bending
Pain
Stretching and Exercise
Nausea
Community
Working
Sitting
Sleep
Urination
Constipation
Breathing
Bathing
Eating
Sex
Beware List
Deciding on Treatment Options
Memento Mori
Planning
To Do
Last Words
Foreword
This may or may not be a book for you. If you are looking for help picking a doctor, or information on the latest treatments, research papers, experimental results and new treatments for Polycystic Kidney Disease (PKD), I’ll refer to you a great book on that side of things.
This isn’t that kind of book. This is more of a travel guide by an experienced traveler, with notes on what to do and not do, what to eat and what sights not to miss. Just think of Polycystic Kidney Disease as your Route 66 and you’ll get the idea. All roads have potholes and PKD is no different. So, if you’re buckled up, let’s see how many of them we can help you miss.
Introduction
PKD: Three letters that monkey wrench your life…
When did you find out you had it?
Remember the day?
Of course you do. You’ll never forget it.
I learned I had PKD and PLD when I was sent