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    Wheelies In Heaven ? Forever Loving Paul
    Wheelies In Heaven ? Forever Loving Paul
    Wheelies In Heaven ? Forever Loving Paul
    Ebook125 pages2 hours

    Wheelies In Heaven ? Forever Loving Paul

    By Lisa Stocks

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    About this ebook

    This book will take you on a journey through the life of a mother and her children. Though it is not a typical motherhood story. One of her children was born with a birth defect through what was called a genetic mutation. There was no history of this birth defect on either side of the family. Paul was born with Duchenne Muscular Dystrophy and the mother and kids had to learn how to live, cope and love in a whole new way. You will laugh and you will cry as you read of this familys' ups and downs. All families have their moments but it makes it even harder when there is a loved one with a terminal illness that just popped into their life with no warning. The author started to write the book as a therapy for herself because she missed her son so much and to keep the memory of her son alive and in the process of writing she thought maybe her book might help others who have loved ones with the same illness or with cancer or whatever others might be going through so she hopes that her book might help the families grieve or cope or smile or cry knowing that they are not alone. It also is a good book to show kids that no matter what if they put their heart into it they can do whatever they want to do. On another note if your children think they have it bad then they should read this book to realize how good they have it. Things could be worse....

    LanguageEnglish
    PublisherLisa Stocks
    Release dateMay 27, 2015
    ISBN9781310766992
    Wheelies In Heaven ? Forever Loving Paul
    Author

    Lisa Stocks

    I am a mother of four. I have a daughter who is 25, a stepson who is 20, a son who is 15 and a son who is 12. We live in southwest Florida. I have a wonderful husband, John. We enjoy fishing, camping and have recently taken up paddle boarding. We also enjoy cooking great meals together. I was born in Buffalo, New York and moved to southwest Florida in 1978 after the blizzard of 1977 and my parents figured that they were done with snow! I have done everything there is to do in restaurants from dish washing to managing. Living with a child with Duchenne Muscular Dystrophy really makes you realize how good the rest of the population has it and when asked many times throughout my motherhood "how do you do it?" my only response was when you love someone as much as you love your child you don't think about it, you just do it. Having a child with a terminal illness you have to learn how to cope and love in ways that you never knew existed. It is because of this tremendous love that I decided to write my book. I wanted the memory of my son to live on, I wanted his inspiration on everyone he came in contact with to help others. I want to help others that are in the same situation that we were cope with it the best possible and if that only means helping them to realize that they are not alone and there is help out there for them and there are others going through the exact same situation then my wishes for my book have been fulfilled.

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      Book preview

      Wheelies In Heaven ? Forever Loving Paul - Lisa Stocks

      DOING WHEELIES IN HEAVEN?

      FOREVER LOVING PAUL

      written and edited by

      Lisa Stocks

      Copyright 2015 by Lisa Stocks

      Smashwords Edition

      All rights reserved. This ebook is licensed for your personal enjoyment only. This ebook may not be re-sold or given away to other people. If you would like to share this book with another person, please purchase an additional copy for each recipient. If you are reading this book and did not purchase it, or it was not purchased for your use only, then please return to smashwords.com and purchase your own copy. Thank you for respecting the hard work of this author.

      TABLE OF CONTENTS

      1

      2

      3 Paul Edward

      4 The Podiatrist

      5

      6

      7

      8

      9

      10

      11

      12 The Living Will

      13

      14

      15

      16

      17

      18

      19

      20

      21

      22 The Worlds Leading Lethal Childhood Genetic DIsease

      23 How can YOU help?

      24

      About the Author

      DEDICATION

      I am dedicating this book to my daughter, Leah Marie, a.k.a. Leah Bee. When I told her that I was dedicating the book to her, her response was, but it was supposed to be about Paul. To this day she still puts her brothers first and everyone for that matter, I guess she took after me because not long ago my husband told me that that is what he loves most about me, I am very proud to have her as a daughter and to be able to recognize her for everything she has done and continues to do. She is very active with Kids Needs in Sarasota county, she is a very talented artist, she is good in school and she reaches for the sky when it comes to her dreams. She is the ONE and ONLY person who was there for her brother, Paul, one hundred percent of the time. Even as a young child she was always there for Paul. She was his best friend, his sister and his primary caregiver at her fathers' house. She not only took care of him without complaining too much but took care of the household chores also. When she was with me and I asked her for help she never once complained. She did the things that needed to be done because she loved her brother so much. Instead of hanging out with friends, going on dates, going to the movies, attending school events, doing things her peers were doing, she was taking care of Paul. During his senior year she went with Paul to Grad Night so he could go even though she did not go to her own Grad Night the year before. She went to all of his senior high school events with him when he would need someone there so he would be able to attend. She did not let him miss an event that he wanted to attend due to not having someone there to assist him. She was always there for him and living to give him the best life he could live. I am proud of her and I know that Paul is watching over her. I also know Paul loved her so very much. I pulled out his baby book to look for pictures for the hard copy of this book and as I was reading what I had written I noticed that I wrote that Paul smiled at Leah a lot when he was an infant. Another entry from when he was five months old was you love it when your sister comes up to you, in the entry for seven months I wrote, you are a slap happy baby, you have a smile for everyone, you are still not crawling but you chase Leah everywhere in your walker. So as I look back there was a very strong bond between Leah and Paul from the time he was born. He did not start crawling until he was eleven months old. I thought he was just a very spoiled baby but little did I know what was headed our way as I penned those milestones in his baby book.

      CHAPTER 1

      On February 18, 1987 I was not feeling very well. My boyfriend, Ed, who I was living with, rushed me to the hospital nearest to our house. After some routine questions and tests we were told that I was four months pregnant and I was in premature labor. This hospital did not do anything besides the basics for children let alone deliveries but I was in full fledged labor and there was no time for me to be transported to another hospital. The staff did what they could do with what they had for this situation. 
After hours of having to push the baby down the birth canal because it had not dropped on its own, I gave birth to a baby boy. To the amazement of everybody involved he survived on his own with no oxygen for about an hour. I knew in my heart that he was not going to make it. My only request was to be able to hold my baby before he died. To this day I do not know what the reasons were, maybe they were trying to save him, but Edward was not brought to me until after he had left us. I will never know why they did not just let me hold him for the little bit of time that he was with us. At the age of twenty one I held my first child, dead child, for two hours. I did not want to let him go. It seemed like it was not very long after they brought him to me that they needed answers to some very difficult questions. What is his name? Where are you going to have him buried? I remember thinking why do they need his name when he is not even alive anymore? They explained that because he was born alive, not a miscarriage, by law he had to be named. We did not even know I was pregnant. We didn't have a name. We were still in shock over finding out I was pregnant and then losing our first child all within a matter of hours. I know there were policies and procedures that needed to be followed but my goodness, there was no bedside manner involved in this trip to the hospital. We quickly decided on Edward Joseph. Where he was going to be buried was a much tougher question to answer. We were young and had no clue about burying somebody especially our baby nor did we have the money to do this. Realizing our dilemma, one of the staff members made a suggestion that he be buried at the foot of a grave of someone else that was going to be buried soon. We had no other options. There would be no funeral, no true closure. We left the hospital that day with our whole life turned upside down and without a baby in our arms. I don't know what happened to his frail little body after we left. I don't know if he was just incinerated or if he was actually buried at the foot of someone else's grave. I have a few pictures of him and his hospital bracelet. If he was buried, I don’t know where. I can't visit his grave with flowers. I know he is not THERE, he is in my heart, but it gets to me sometimes, not knowing anything about what happened to him. This was only the beginning of my motherly adventures. You are probably thinking, her child is dead, how can there be more? You need to read on....

      CHAPTER 2

      I was pregnant again but this time I knew it and was receiving prenatal care. Everything seemed to be going well and I was due on Valentine's Day of 1990, which was almost three years to the day that Edward had been born. Ed and I had my childhood dog, Mork. He was a Miniature Schnauzer and was very protective and spoiled. He was thirteen years old and was getting up there in age for a dog. It seemed like every time Ed went away for reserve duty with the Marine Corps Mork would have seizures. His eyes would roll back in his head and he would swallow his tongue. One day Ed came home and we discussed putting Mork to sleep. I just could not bear watching him have these seizures anymore. I would have to stick my finger down his throat when he would swallow his tongue and it seemed to help keep him from gagging and it would bring him out of his seizure. I am not a vet and I did not know what I was doing but in a panic I did it and it seemed to get him back to normal. We agreed to putting him down. The next day when Ed got home from work, he called Mork and Mork came running to the truck thinking he was going for a ride. He was like a normal healthy dog, running and happy. I thought for sure Ed would back down and come home with my cute little dog of thirteen years in his arms, but he didn't. I was very upset but I knew it needed to be done. I missed him so much but I think it was a blessing in disguise that we had to put him sleep because he was very very spoiled. He would jump up into the rocking chair every night at eight o'clock to be rocked. I wasn't sure how he would react if I was rocking the baby. Ed asked our veterinarian if he should get me another Schnauzer and she suggested that he get me a dog that was totally opposite so he came home with a Golden Retriever that we named Major. 
As time went on, Ed thought he might want to breed Golden Retrievers so needless to say that is how we got Sheena. If we were going to breed the dogs Ed decided that we would need a pen to separate the mother and puppies from the father when they were born so when I was about six or seven months pregnant he decided we needed a pen. To avoid an argument I decided to help him with stretching the fence for the pen. Little did I know what a toll it took on my pregnant body. Needless to say, a

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