Reimagine Well Learn Guide: Palliative Care: A Holistic Approach to Life-Limiting Disease
By Deborah Todd, Adele Sender and Roger Holzberg
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About this ebook
The Pediatric, Adolescent, and Young Adult Palliative Care Learn Guide is designed to help support children and their families – with a comprehensive and holistic approach to care – as they travel through the challenges of their journey.
This is an interactive guide that serves to provide support, education, and resources within all aspects of palliative care, to empower patients and their caregivers.
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Book preview
Reimagine Well Learn Guide - Deborah Todd
Reimagine Well Learn Guide:
Pediatric, Adolescent and Young Adult
Palliative Care
A Holistic Approach to Life-Limiting Disease
Deborah Todd
Roger Holzberg
Adele Sender
Neither palliative care nor comfort care is abandoning care. Its actually bringing more care to a patient or to a family.
- Nancy Iverson, MD
The Pediatric, Adolescent, and Young Adult Palliative Care Learn Guide is designed to help support children and their families – with a comprehensive and holistic approach to care – as they travel through the challenges of their journey.
This is an interactive guide that serves to provide support, education, and resources within all aspects of palliative care, to empower patients and their caregivers.
-Team Reimagine Well
Copyright 2019 © Reimagine Well
All Rights Reserved
ISBN: 978-0-9992364-7-5
Our Expert
Palliative Care
Family Life
Home Care
Pain Management
Child Life
End of Life
Bereavement
A Message From Reimagine Well
Learn Guide Authors
As you use this Palliative Care Guide to educate yourself you may want to create your online patient or caregiver Support Community, which can be accessed at www.reimaginewellcommunity.com/reimaginewell.
Meet Dr. Iverson
My name is Nancy Iverson. I’m a pediatrician and I particularly have worked with pediatric palliative care and in-home pediatric hospice.
Nancy Iverson, M.D.
The San Francisco Bay area has served as Doctor Iverson’s home for more than 20 years. In that time she has been on staff at organizations that include UCSF, CPMC, and Kaiser. She helped develop the pediatric palliative care programs at UCSF, assisting the educational team as a subject matter expert.
I also do a bereavement support group for parents who are anticipating the loss of a child or have experienced the death of a child.
Dr. Iverson is considered a national expert and a pioneer in children’s palliative care. Living With Loss – a support group for parents and families of children with life-threatening illnesses – is a program Dr. Iverson developed as a board member and advisory committee member to Support for Families of Children with Disabilities. She has developed similar programs as an advisor and educator at The Institute for Health and Healing at CPMC, and Comfort for Kids (an in-home pediatric palliative care and hospice organization located in the San Francisco area).
"Having your child diagnosed with a potentially life-limiting illness is devastating for parents... your whole world is turned upside down, and what I would like to remind parents, even though it feels like there are decisions you’re going to have