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Agent Orartge Legacy

Children of Vietnam Veterans

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contact us at

agen toran gelegacy@g mai l.com

Founded in 20t7 by Sharon L, Perry & Danielle K. Perry Reyes

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Hello my name is Danielle Perry Reyes, lam the daughter of a Vetnam Veteran. llly father died June 3, 2005 at the young age of Fifty Six (56); after a long battle with illnesses caused by Agent Orange. I am a Founder of Agent Orange Legacy, my Co-founder Sharon L. Perry is also my mother. I have been sick all of my life. At the age of thirty one (31) I have twenty eight different illnesses. Everyday is a struggle.

Agent Orange Legacy is committed to fighting for the support, services and rights of the Arnerican Children of Vietnam Veterans. Since 20AT we have been gathering health information from our members who are children of Vietnam veterans exposed to Agent Orange. 92% of our members report they have birth defects and/or suffer from autoimrnune or rare disease, mental

Our research leads us to believe that the children suffer from birth defects, chronic and severe autoimmune and rare diseases. The children of Vietnam veterans exposed to agent orange are at risk for developing diabetes, heart disease and many different forms of cancer as are other Americans. We believe that the Children of Metnam veterans experience a much higher rate of risk than the average American for developing these diseases and are at a greater

risk for developing them at a younger age than is normally expected. Although we don't have the proof we suspect as much since we see a high incidence of diabetes, heart disease, and cancers in the health information provided by our members who are children of Vietnam

veterans. We currently have a list of four hundred and ninty-seven (497) illnesses reported by

our members.

We need a Center of Excellence for the Çhildren of Metnam Veterans and future

generations! Ïhe center can serve as a facility where the children of Metnam veterans can get the medical help that we so desperately need, and at the same time conduct the scientific studies that need to be done. Vietnam Veterans of America is currently working on legislation to build a Center of Excellence for the children of Vietnam veterans. We support their work wholeheartedly!!

When lwas 10 years old lwas admitted to the hospital. The doctor told my parents that lwas "failing to thrive". lhad severe and debilitating muscle spasms allover my

body and was wheelchair bound. I had to learn to walk again at 10 years old. There were no

answers, no help and nobody listened. tMy mother told me that our nightmare started long before the day I was admitted to the hospital. lwas sick from my father's exposure to Agent Orange before he started to show any s¡mptoms.

"This is the struggle of a lifetime. I for one, will fight until nry very last breath has

left ny bodyand my heart no longer beats". Danielle K. Re¡æs, Founder of Agent Orange Legacy

The children of our Vietnam veterans, who answered the call of duty, live with health problems and birth defects without answers to their questions. We struggle without appropriate medical intervention, without the services and support we, as the sick and disabled children of Vietnam Veterans, deserve.

Many of the adult children of Vietnam veterans have suffered needlessly. Many more have multiple mental and physical health problems. Something must be done. We do not want our children to suffer as we have.

Why do something now?

1. There has been more research conducted shedding new light on old questions.

2. Technology has provided us with information that was just not available prior to this

time.

3. The children of Vietnam veterans have grown up and we now have children of our own.

4. The health of the adult children of Metnam veterans continues to decline.

5. The next generation have inherited birth defects as well. A lot has happened over the

years.

There have been advances in

1. Accessibility in technology as well as medical information.

2. Ease of communication.

3. The deaths of Vietnam veterans exposed to Agent Orange.

4. lnter-generational veteran - child/grandchild issues.

6. There has been advancement and awareness of other Agent Orange victims worldwide. For us, the children of Vietnam veterans, this is our legacy.

We have learned that some of our members have also been exposed to other toxic substances. This makes the matter of improving the lives of the adult children and grandchildren and great grandchildren of Vietnam veterans a daunting task. Some of the adult children have been born or lived on military bases such as Camp Lejune where military families have been exposed to toxic chemicals; for instance contaminated drinking water at Camp Lejeune.

There are many children and grandchildren of Vietnam veterans who have served in the Gulf, lraq and Æghanistan theaters of war and have multiple exposures to toxic chemicals that are considered mutagenic and teratogenic. War is expensive; the cost of waging war and its aftermath are just now being realized by so many.

Agent Orange/Dioxin is known as an endocrine disruptor. lt can be naturally occurring in the environment as well as a man made synthetic chemical. The endocrine system deals with most of our bodily functions. lt is a very vital system. Without it our bodies would function very

poorly.

Children of Metnam veterans sufferfrom autoimmune diseases. The kinds of symptoms we suffer from make our lives extremely complicated. We have no answers or help from our doctors because autoimmune disease can not be detected by routine blood tests.

The American Autoimmune Related Diseases Association (AARDA) reports that there is "untold suffering" of persons with autoimmune diseases due to misdiagnosis or delayed diagnosis which may result in damage to vital organs.

We have found that there are children of Vietnam veterans who have been diagnosed with rare diseases. One of the problems that we face is many doctors do not recognise rare disease or their symptoms because so few people have rare diseases.

Many of the children of Metnam veterans and their families want to have genetic DNA testing done but we cannot afford it. We understand that these tests can screen for mutated genes and mutated genes can be linked to chemical exposure. This would help us to find out what is happening to our bodies so we could, for example, slow the progression of disease. lMaybe if I knew what disease I've had most of my life I wouldn't have just been diagnosed with gastroparesis. lf lknew what lwas dealing with lcould have made changes that could have improved the quality of my life.

There are very few studies about the effects of Agent Orangeldioxin on the children of

Metnam veterans. To date there have been more studies done on the effects of the Vietnam War on the families of Vietnam veterans and their children than the effects of Agent Orangeldioxin.

Again I say there needs to be a "Center of Excellence" a place for the children of Vietnam veteran as well as the following generations to go receive the proper medical intervention support

and services that we deserue, the help we so desperately need. We have or are watching our parents die due to the efiects of exposure to Agent Orange/dioxin. We are sick and some of us

are dying or already dead. We need help, we have been left out in the cold alone, to suffer without any help. without the proper medical intervention support and services that we deserve

as the children of Vetnam veterans. Please help us now, before it is too late.

Thank you for giving me this opportunity to speak on behalf of Agent Orange Legacy and the children of Vetnam veterans. We are the second generation Agent Orange victims and

Dioxin survivors.

List of illnesses reported by our members

Abnormal PAPs Acid Reflux Acne lssues (Undefined, Cystic) Addiction

Addison's Disease

Adrenal Gland Tumors Alcoholism Allergies (Antibiotic/Others) Alopecia Amblyopia Amenorrhoea Amputation Ancephaly Anemia Anger lssues Angiodema Ankylogossia Ankylosing Spondylitis Anorexia Antiphospholipid Syndrom e Anxiety Aolpecia Areata Aphasia Appendicitis (Cancerous/Undefined)

Arachnoid Cyst

Arnold Chiari Malforrnation * See Chiari below

Arthritis Arthritis (Juvenile) Arterial Vienous lt¿lalform ation (AW) Aspergers Asthma Ataxia

Atrial Fibullation

Attention Deficit Disorder (ADD) Attention Deficit Hyperactivity Disorder (AD HD)

Autism (ASD)

Autoimmune Disorders Autonomic Nervous System Ðysfunction Back & Disc Problems Bacterial lnfections Balance Problem

Bell's Palsy

Berger's Disease (Kidney Disease)

Bicornate Uterus

Bicuspid Aorta Heart Valve Bilateral Baker's Cysts Bipartide Patellas Bipolar Disorder Bladder lss ues lnfections/Overactive Bleeding lssues Blindness Blood lssues (Undefined) Blood in Urine (Undefìned) Blood Vessel lssues Boils

Bone Cancer

Bone Spurs/Problems (Undefined) Bones Missing at Birth Bowel Deformity/lssues

Brain lssues (Water on the Brain, etc.)

Brain Stem (Small)

Brain Les ions Aneuris m/Tumors/Surgery

Breathing Problems (Undefined)

Breast Cancer Broncitis/Bronchial Spasm s

Bursitis Calcium Def,ciency

Camptodactyly

Cancer (Undefined)

Cardiac Ahhrythmia Cardiac Deformity

Cardo Sarcoma

CarpalTunnel

Caudal Regression Cava Perthes Celiac Disease Cellulitis lnfections Central Nervous System Disorder Cerebal Palsy

Cerebellum lssues (Undefi ned)

Cerebra Anuersysrn

CervicalCancer

Cervical Dys plas ia/lncom petency

Chairi lValformation (Assoc.w/ Spina Bifida)

Chloracne

Chrom osom e Abnorm alities

Chronic Fatique and lmmune Deficiency Syndrome (CFIDS) Chronic lnflammatory Demyelinating Polyneuropathy (CIDP)

Chem ical Sens itivities

Chloracne

Chronic Obstructive Pulmonary Disease (COPD)

Cleft Palate, Lips Club Foot (Talipes Equinovarus) Cognitive lssues Cold/Flu (Chronic) Cold Hands/Feet Collapsed Vertebre Colon lssues Compromised lmmune System Congenital Heart Blockage Congenital Adrenal Hypoplasia Congenial Scoliosis Connective Tissue Disorder

Conversion Disorder

Constipation/Cram ping

Costrocondritis

Cranial Synthesis

Crohn's Disease

Crossed Eyes (Newborn)

Cryoglobulinemia

Cushing's Syndrome

Cystic Fibrosis

Cysts Debilitating muscle spasms

Deep Venous Thrombosis (DVT) Deformed Sinuses

D eform ed Arm s/Legs/Fi n gers/Toes lFeet

Deformity of ChesUBreast DeformiÇ of the Face/Head/Neck

Deform ity of Shoulders/Àrfu scles

Degenerative Disc/Bone Disease

Degenerative Ligament Tiss ue Degenerative Joint Disease Dehydration

DentalProblems

Depression

Dermetitis

Developmental Delay Deviated Septum Dextrocardia Diabetes Type I Diabetes Type ll Diagonal Earlobe Crease Diarrhea Digestive lssues Disc Desiccation

Ðissociative Disorder

Diverticulitis Dizzy Spells Double Hernia @ Birth Double Ureater Double Uterus/Cervix Ðouble Uvula

Drug Abuse

Duane Syndrome

Dwarfism

Dysautonomia Dysphaxia Dyslexia Dysthymia (AKA Chronic Depression) Ear lnfectionslProblem s/Surgeriesff ubes Ectopic Pregnancy

Eczema

Elevated Heart Rate Emotional Problems Endocrine Disorders Endomertil Cancer Endom etrial Hyçerplasia Endometriosis Epilepsy

Excessive Sweating

Exotropia Eye Problems (Undefined) Facet Joint Syndrome

FacialAplasia

FamilialTremor

Fatigue (Chronic, Syndrom e) Felty's Syndrome

Fever (Undefìned)

Fibrocystic Breast Disease

Fibromyalgia Follicular Lymphoma/Large B Cell Lymphoma Food Allergies Foot Deform ity/lssues/Burning Fragile X Syndrome Focal Segmental Glomerulosclerosis (FSGS) Fused Digits Fused Veterbrae/Disc

Gall Bladder DiseaseiStones/Removal

Ganglian Cysts Gastritis (Acid Reflux) Gastrointestinal Problem s Gastroesophageal Reflux Disease (GERD) Gastroparesis Gene Mutations (4G4G) Gerd Glaucoma Glioblastoma Gluten lntolerance Goiter Goldenhar Syndrome Gout

Grave's Disease

Growth Hormone Deficiency (GHD)

Growths/Lumps on Skull

Hair Loss Hashimoto's Head Sores Headaches Hearing Loss/Deafness Heart Attack

Heart Disease

Heart Failure

Heart DefecUMurm ur/Newborn

Heart Problem s/Surgery (Undefi ned)

Heat lntolerance Hemangioma Hereditary Hemorrhagic Telangiectasia (HHT) Hernia Herniated Discs High Blood Pressure High Cholesterol High Pulse Rate

Hip Deform itylPain/S urgery/Undefined

Hip Dysplasia (Congential) Hip Pain (Undefined) Hip Replacement

Hives

Histiocytosis Hodgekin's Lymphoma Horm one lss ues/Replacem ent Hydradenitis S upprativa Hydrocephalus Hylan Membrane Hymen lssues (Partially lntact)

Hypercoag uaguli bility

Hyperhomocysteinomia Hyperinsulimia Hyperlipidemia Hyperm obility lss ues/Su rgeries Hypertension Hyperthyroidism Hypoplastic Heart Hypoplaisa - Entire Right Slde Hypoglycemia Hypospadias

Hypothyroid/Hypothyroid

Hysterectomy ldiopathic lntercranial Hypertension (llH) ldiopathic Thrombocytopenic Purpura (lTP) Platelet Disorder lmperforate Anus lmmune System lssues (Undefined & MG lnfusions) lnfertility

lnsulin Resistance

lnterstitial Cystitis (lC) lnsomnia lntracranial Cyst lron Deficiency lrritable Bowel Syndrome (lBS)

lschemic Heart Disease

"Jaw Deformity/Surgery "

Joint & Muscle ProblemsiPain

Joint Hypermobility Syndrom e

Keratosis Pilaris Kid ney lss ues/lnfections/Cysts Kidney Disease/Surgery

is m

Kidney Stones Kienbock's Disease Knee Problems/Dysplas ialPain/Surgery Knee Replacement

LateralMycrotia

Learning Disaþilities Lethargy Leukemia Liver Disease (Fatty/Undefined) Liver lnfl amation/Other Liver Lesions

Long QT Syndrome (LOTS)

Loss of Skin Pigment Loss of Strength in Limbs Low Blood Count (Red)

Low Blood Pressure

Low Estrogen Low Potassium Lum barization (Extra Veftebrae) Lung Deformity (3rd Lung) Lung Disease/Nodules/Tum ors/Clots Lupus Lupus of the Skin Lyhocytic Thyroiditis

Lym phatic ïum ors/Lym phangiom a

Lym phoblastic Leukem ia

Lymphoma Macrodactyly Marfan Syndrome h/elanorna Memory Loss Memory Retention Problems Menopause lssues (Early) Menare's Disease

MenstrualCycle lssues

Mental Health lssues [t/enorrhagia Metabolic Syndromes Methicillin Staphylococcus Resistant Aureus (MSRA)

Methylenetetrahyd rofolate Reductas e ( MTHF R)

Microtia Migraine Headaches Miscarriages

Missing Digits Missing Limbs/Body Parts Mittelschmerz

MitralValve Prolapse

Mixed Connective Tissue Disease (MCTD) Motor Developm ent (Slow@childhood)

Mullerian Aplasia

Multiple Sclerosis Muscle Spasms/Pain/Numbness (Undefined)

Musco-Skeletal Problems Muscular Dystrophy (MS)

llyasthenia Gravis

fvlyelodys plastic Syndrom e

Mycrobaterium Gordonia

Nasal Cancer

Nasal Polyps Nausea/Vomiting Neck Pain/Problems

Neuralgia

Neurocardiogenic Neurological Problem (Undefined) Neuropathy Neutropenia Nevus Sebacious Night Blindness Night Terrors Non-Hodgekin's Lym phom a Nosebleeds Numbness in Hands & Feet Numbness in Body/Limbs Nystagmus Obesity

Obsess ive Compuls ive Disorder (OCD)

O ppos itional Defiant Disorder

Orthostatic Hypotension

Osteoarthritis

Osteochrondritis

Osteogenesis lm perfecta

Osteopenia

Osteoporosis

Otosclerosis

Ovarian Cancer

Ovarian Cysts/Other

Pain (Undefined) Palate Problems Pancreatitis Pancytopenia Panic D isorder/Attacks Paralysis Parasthesias Paricarditis Pars Plaintis Pectus Excavatum Pelvic Reconstruction/lss ues Peptic Ulchers Peripheral Nervous System Disorder Peripheral Nueropathy Periventricular Leukom alacia (PVL) Personality Disorder Pityriasis

Pituitary lssuesffumors

Pierre Robin Sequence Planar Spaciatis Pneumonia Childhood / Recurring Poland Syndrome Poliosis

Polycystic Ovary Syndrome (PCOS/PCOD)

Polycythemia Vera Polymyositis Porphyria

Post Tramatic Stress Disorder (PTSD) Postural Orthostatic Tachycardia Syndrome (POTS) Potassium lssues Preclamsia

Prim itive Neuro-Ectoderm al Tumor (PNET) Pregnancy Com plications (Undefined) Pregnancy, Partial lVblar

Premature Births Premature l/enopause

Premature Ovarian Failure (POF)

Premenstrual Dysphoric Disorder (PMDD)

Prim itive Neuro-Ectodermal Tumor Prolactinemia Prolapsed Cervix Prostate Problems/Enlarged

Psoriasis

Psoriatic arthritis

Psoriatic Rheumatoid Arthritis

Psuedotumor Cerbri

Psuedo-Obstruction (lntestinal, Neurological) Ptosis

Pulmonary Edema

Pulm onary Fibrosis/Other (Undefined)

Pulmonary Embolism

Pulmonary Restriction Pyloric Stenosis Rashes (Undefined) Rashes (Newborn)

Raynaud's Disease

Reflex Sympathetic Dystrophy Syndrome Renal Failure Reproductive Problems (Fem ale) Res piratory lnfections/D istress Restless Leg Syndrome Retroverted Uterus Rheumatoid Arthritis

Rheumatic Fever

Refl ex Sym pathetic Dystrophy RS D/C RPS

Rosacea

SacralAgenesis

Sacral Luburalization Salpingitis lsthmica Nodosa (SlN)

Sarcoidosis

Schizophrenia

Scladerma

Scoliosis

Seizures

Seizures, Petit tVal

Sensitivity to Medications

Severe Chronic Neutropenia Schizophrenia

Short Term Memory Problems Sinus lnfections/Problems Sjogrens

Skin Cancer

Skin Lesions Skin Problem s/Deform ity Sleep Apnea, Disorders Social Problems

Spastic Colon

Speech Problems

Spina Bifida

Spina Bifida Occulta

Spinal Cord Diseaseffumors

Spinal Deformities Spinal Deterioration Spi nal S u rgeries/Pain/Undefined

Splenetic Cysts

Spondyloarthropy

Spondylolithesis

Spondylolytis

Strabismus

Steatohepatitis

Stom ach PainsiProblems

Strange Growths

Strep Throat

Stress

Stroke Subglottal Stenosis

Suicidal Tencencies

Supraventricular Tachycardia (SVT) Swelling (Undefined)

Swollen Glands

Syndactyly

Syringomyelia

Tachycardia

Temporal Arteritis

Temporomandibular Joint Disorder (TMJ)

Tendinitis Testicle Deformity

Thoracic Outlet Syndrome (TOS)

Throat ïumors

Thyroid Cancer (Hoshimotos)

Thyroid lssues & Cysts (Hyperthyroidism)

Thrombophilia

Torticollis

Tonsillitisffonsillectomy

Tourtettes

Tracheo-Esophageal Fistula

Tremorsfficks

Triple X Syndrome Truncus Arteriosis

Tuburculosis (TB) Tumors Twitches

Ulcers, Stomach, l\ilouth, Nose Ulcerative Colitus Urinary Tract lnfections/lssues Uterine Cancer

Uterine Fibroids/Cysts/Other

[Jterine Leiomyosarcoma Uticaria VACTERL Association Vasculitis Vascular Headaches

VaginalBleeding

Vaginosis Vertebrae, ExtralMissing Vertigo Vitiligo \Ísion Problerns Vomiting

Weight Loss

Wolff-Parkinson-W h ite Syndrom e Deaths - Children Deaths - Grandchildren