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Through the generous support of individuals and corporations, these crucial programs received funding and will be provided

to patients and their families at the Johns Hopkins Childrens Center.

Funding 2013-2014
Crisis Clothing Closet

Special Project

This program provides children with new clothing in the event that the patients clothes were destroyed or lost during a trauma. If available at all, donated clothing is often the wrong size or in poor condition. This program alleviates the stress of retrieving or purchasing appropriate clothing, and decreases the likelihood of a childs discharge delay. Many children are placed in foster care after visiting the Emergency Department (ED). If they are placed, the ED will send them out with a backpack filled with essential items including: a change of clothes and underwear, a toy, writing and coloring materials, something to read or a puzzle, and hygiene items. These occasionally are used by a child in crisis i.e. homeless, house fire victims, and car crash victims.

Backpacks for Foster Kids

This project allows for the professional design, illustration, and layout of the coloring book The Emergency Room Doesnt Have to be Scary, which will serve as a waiting room based intervention to provide children and families with the tools to navigate the emotionally and physically demanding experience of the Emergency Department. This coloring book will also communicate concrete information about common procedures, figures, and processes upon a highly anxious patient population. The Pediatric Specialty Clinics see many different patients with various medical conditions. At times, these patients lack appropriate medical resources that keep them medically stable and out of the hospital. These items include pill boxes, thermometers, medication charts, alert ID tags, etc. This grant will work with the treatment teams in the out-patient clinics to improve transition initiatives for patients once they leave the hospital.

The Emergency Room Doesnt Have to be Scary

Pediatric Specialty Clinics Medical Resources

The PICU will implement high-fidelity continuous data capture, integration, and analysis from multiple physiological monitors and therapeutic medical devices at the bedside of the sickest PICU patients with the goal to improve surveillance for clinical deterioration, compliance with clinical guidelines and prevention of adverse events.

Implementation of Medical Device Integration in the Pediatric Intensive Care Unit (PICU)

This project involves therapeutic hypothermia, a time sensitive treatment used to prevent brain damage after initial injury prior to or during the birthing process. Often, the mothers are not able to see their infants until a few days after birth due to the treatment, and many have difficulty understanding what is happening to their baby. The parents of these newborns will receive one parking voucher per day while their infant is being treated. Three iPads with information on the process will brief the parents, share success stories from previous patient families, and provide digital scrapbook/collage software to allow parents to achieve normalcy during the treatment of their newborn. Additionally, a cool kid blanket will be given to each infant, which includes a reminder card for follow-up visits. Echocardiography is an important tool for diagnosis and therapy in the cardiac Pediatric Intensive Care Unit (PICU), where care needs to be prompt and definitive in the critical hours following major heart surgery. Development of a bedside echocardiography program will greatly aid the care of our PICU patients and ultimately train other programs to become the premier location for such training. Collected data and patient ultrasounds from this program allow for research and future grant funding. This program provides parking coupons for families who come to the clinic on the wrong day, had to wait to be seen, or who are getting admitted and know they will remain in the hospital for several hours. This small gesture is much appreciated by patient families. Pediatric Oncology patients, ages 6 and under, will be given a vest to wear that secures their central line and helps prevent central line contamination in an effort to decrease the risk for a CLABSI (central line associated blood stream infection).

Cool Kids - Therapeutic Hypothermia Treatment

Expanding Use of Ultrasound for Cardiac Care in the Cardiac PICU

You Park...We Pay

Central Line Vests to Prevent CLABSIs

Motor Stereotypies: A Web-based Educational Outreach Initiative for Children

Primary Motor Stereotypies are rhythmic, repetitive, fixed, predictable, purposeful, but purposeless movements that occur in children who are otherwise developing normally. The primary goal for the Motor Stereotypy Clinics Pediatric Web Initiative is to engage children (and parents and teachers) that have been diagnosed with Primary Motor Stereotypy. The website is an animated, interactive design that seeks to reach out to children in a fun and inviting manner, so that they can learn about the fundamentals for living with the disorder, enabling them to manage their condition in the present and future. Reach Out and Read is a literacy program in the Harriet Lane Clinic designed to prepare young children to be successful in school by partnering with health care providers. Books are given out at checkups and families are encouraged to promote literacy and read together.

Reach Out and Read

When the mother of a child is an adolescent herself, the risk of injury is heightened for young children. This initiative provides a specific set of educational experiences and services to teenage mothers who are followed in a special program to provide injury prevention education and child passenger safety services. Families of newborns seeking care in the Harriet Lane Clinic often lack critical supplies. The basic needs we encounter most frequently are for emergency infant formula, safe sleeping environments, diapers and wipes, and basic health supplies like thermometers and medication syringes. Funds will be used to provide these basic supplies.

Injury Prevention Education and Services for New Mothers

Emergency Supplies for Infants in the Harriet Lane Clinic

Video Interviews of Kids, by Kids, to Make Surgery Less Scary

This project creates a fun, informational video for children, starring children, to be distributed to families before the day of surgery. This will be an effective tool to help prevent anxiety in kids with planned surgeries.

The emergency room is a stressful place for children and their families and one of the most frequent reasons for a visit includes breathing difficulties. To remedy, children often receive nebulized medication through a mask. With special project funding, the Emergency Department ordered fifteen cases of animal-themed neb masks to alleviate stress and anxiety. This project will provide spiritual support resources to patients and families who come from a wide diversity of cultural settings and faith backgrounds. Funds will be used to purchase interfaith resources such as books for children and adults, pamphlets, prayer rugs, prayer cards, rosaries, baptism certificates, worry stones, and holy scriptures from different faiths.

Fancy Face Masks

Patient and Family Spiritual Support

Supporting School Success at the Childrens Medical Practice

This project distributes free school supplies to patients in grades 1 to 12 at the Childrens Medical Practice prior to the beginning of the school year. Newly immigrated children in limited resource families who arrive mid-school year will also receive free supplies. This project also creates school success kits to assist families with schoolwork, small replenishment school supplies, and an item to promote physical activities.

Adolescents in the Harriet Lane Clinic (HLC) often manage their health care with minimal adult support. Funding will allow for the development of a HealthText for Teens appointment reminder and health-messaging program for adolescents in the HLC (and their parents as indicated) using a low-cost,HIPAA compliant, web-based format currently being used in other health settings within the institution.

HealthText for Teens

This project establishes an educational program for patients being treated for adolescent idiopathic scoliosis by purchasing 2,000 scoliosis handbooks to distribute to patients who are being counseled about scoliosis treatment, surgical and non-surgical intervention. This initiative allows for the expansion of mindfulness-based practices in the curriculum of the Adolescent Intensive Outpatient Program (AIOP) at Johns Hopkins Bayview. The expanse of this curriculum into a Mind-Body Institute includes the implementation of Learning to Breathe groups and the development of new Dialectical Behavior Therapy modules for use by occupational therapists in the AIOP.

Scoliosis Treatment Patient Education Program

Adolescent Intensive Outpatient Program

Kidney Health Super Powers

The Kidney Health Super Powers package is for new kidney transplant patients and those who have been identified as having difficulty with adherence to a medication regimen. This package includes valuable tools to assist with the overwhelming hurdles of medications after a transplant. Included: watches with alarms, pillboxes, hand sanitizers, calendars, and a stuffed kidney for post operative comfort.

The goal of this program is to provide meaningful educational activities to patients and families during their wait period in the Pediatric Specialty Clinic waiting room prior to their clinical visit. There will be interactive components for children of all developmental stages as well as injury prevention activities geared around the national awareness months (i.e. August is Grill and Fire Safety awareness month). Feedback will be collected from parents to shape the future direction of the program.

Time Flies When Youre Having Fun and Learning New Things

Intensivist-driven ultrasound (US) in the pediatric ICU is an important emerging modality for patient management. Development of a hands-on program for US combined with practical experiences on models coupled with peer review of patient images would facilitate incorporating US into PICU practice at the Childrens Center. J-Tip is a needle-free injection system that uses pressurized gas to propel medication through the skin. It has the capacity to single handedly eliminate the trauma associated with needle sticks and positively influence the way that children cope with stress and anxiety. Now considered the standard of care in the pediatric healthcare industry, J-Tip will transform our approach to IV starts, lumbar punctures, and injections as well as move the Childrens Center to the next echelon of quality emotional care. Funding will help strategic planning, research, and implementation of the system.

Establishing A Program in Intensivist-Driven Bedside Ultrasound in the Pediatric Intensive Care Unit (PICU)

J-Tip: Reducing Pain for our Pediatric Patients

Roll Out - Preventing Head Injuries Through Bike Helmet Distribution, Proper Fitting & Patient/Family Centered Education
An estimated 66 per 100,000 U.S. children use the emergency department services for bicycle-related injuries annually. This program will equip pediatric ED nurses and injury prevention teams to review questionnaires on bike safety while teaching proper helmet fittings. Any patients whose responses indicate need of a helmet will be given a helmet along with a helmet fitting that reviews the five steps of the National Highway Traffic Safety Administrations (NHTSA) official proper fit test. Patients will also be provided with bicycle handle bar reflectors to minimize night time riding risks. Nurses will show patients a short bike safety video developed by NHTSA. As a supplement, appropriate activities will convey bike safety messages such as crosswords, and coloring pages.

Diabetes Education Technology Program

The Diabetes Education Technology Program will purchase four Apple iPads for use in the Pediatric Diabetes Clinic. This will create an easy and fun way to help families learn about diabetes. Educational forms on the iPad will include appropriate apps such as Calorie King, Go Meals, Kids carb counting, Glucose Buddy and pump training.

Surfing the Clouds

Funds for Surfing the Clouds will purchase tablets for patients to help pass the time while in the infusion room. Infusion times range from one hour to eight hours, depending on medication. These tablets offer a wide variety of things to do in a small package including surfing the internet, games, movies, email, and preloaded apps.

Subcutaneous Hydration
Although placement of an intravenous catheter (IV) is a common procedure, successful placement of an IV is not guaranteed and frequently requires multiple needle sticks and people to place an IV. Funds will be used to design a quality improvement study to assess the utility of the placement of a subcutaneous catheter (needle placed in the area just below skin instead of in the vein) for hydration in pediatric patients. This provides better hydration and less painful IV sticks. On behalf of the Johns Hopkins Childrens Center and Childrens Miracle Network Hospitals THANK YOU! Thank you for your support of our misssion to help improve the lives of sick and injured kids!