Families for HoPE Child Database Information Sheet Please complete as much as you feel comfortable sharing.

We do not give this information to anyone, nor is our database visible to the public. Please fill out and return to info@FamiliesforHoPE.org. Childs Full Name: Gender: Degree of Severity: Date of Childs Birth: When Diagnosed? Pre-natal/ Post-natal age: Primary Contact Info: Name: Relationship to child: E-mail Address: Cell Phone: Street Address: City, State, Zip: Daytime Phone Number: Evening Phone Number: Facebook Name: Date of Childs Death: Scans seen by Carter Centers? Y N Primary Language Spoken in Home: Primary Hospitals: Secondary Contact Info: Name: Relationship to child: E-mail Address: Cell Phone: Street Address: City, State, Zip: Daytime Phone Number: Evening Phone Number: Facebook Name:

Siblings names/ages: Childs or Familys Website/blog: Would you like us to publish your site on our website or blog? Y N Would you be willing to support other families through parent-to-parent contact? Y N Would you be willing to volunteer for Families for HoPE? Y N Please list any specific areas of interest: Please briefly note any further information about your child you are comfortable sharing, such as: Hearing Impairment: profound bilaterally; or Feeding Type: oral, soft purees only. (We gather this information to better match our families in parent-to-parent support, and to inform you of studies in which you might be interested in participating.)
Diagnosed Chromosome/Genetic Abnormality: Sleeping Issues: Neurological Issues: Endocrine Issues: Cranial Deformities: Facial Clefts: Vision Impairment: Hearing Impairment: Dental Issues: Feeding Type: Digestive System Disorders: Hepatic Disorders: Renal/Urinary Issues: Movement issues: Neuromuscular Issues: Orthopedic/Musculoskeletal: Therapies performed: Cardiac/Circulatory Issues: Pulmonary/Respiratory Issues: Hematologic/Immunologic Issues: Allergies: Other Secondary Conditions or Issues not listed: