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Summer Issue 2012

Asian MS Newsletter ASIAN MS ANNUAL MEETING 2012


***************************************************************** If you have any questions about how Asian MS is structured or run then please do not hesitate to contact us. If you have any ideas about future projects, you need support or you have heard about an event where Asian MSs presence could be useful then do let us know! ***************************************************************** The Asian MS Annual Meeting 2012 took place on Saturday 19th May in Maidenhead. It was the first time that the Annual Meeting was being held outside of London and was largely thanks to the kind donation of the use of The Royal Borough of Windsor and Maidenhead Town Halls Desborough Suite by The Worshipful Mayor of the Royal Borough of Windsor and Maidenhead Councillor Asghar Majeed. The event was very successful, attended by around 60 people over 4-5 hours. The day started with official business, with the voting in of the new committee. We welcomed two new committee members Trishna became an official part of the committee as Newsletter Editor, while Samir has come on board as a Committee Member. Three committee members stepped down Abul, Anisha and Bhupinder, however, were sure they will continue to play an active part in Asian MS.
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There were several talks during the day. Trishna gave a presentation entitled What is MS?, which was well-received by attendees, particularly those who had no or little knowledge about the condition. Anisha spoke about volunteering for Asian MS and why the support group is needed. Angela Outerbridge from the Chilterns MS Therapy Centre gave a wonderful talk about the benefits of physiotherapy and exercise for people with MS, while Susan Allison from the MS Society spoke about the role of carers and Carers Week. No Asian MS event would be complete without food and we were lucky to be able to enjoy kind donations from the local Sikh temple, The Handmade Cake Company and Saher Usmanis mum, who made sure that there were lots of delicious things to eat. Members of the Hindu Society of Maidenhead gave up their time to help serve the food, which was also very much appreciated. A raffle on the day managed to raise 130 so thank you to everyone who donated prizes and bought tickets!

Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

MEET THE NEW COMMITTEE!

VINNIE Chair

SHIV Treasurer

SANJAY Founder/Committee Member

TRISHNA Newsletter Editor

MUKESH Fundraising Officer

VICKY Minutes Secretary

SAMIR Committee Member

RANI Publicity & Support Officer

ILA Committee Member

In addition to those people/organisations that have already been mentioned, wed also like to express our sincere thanks and gratitude to: Key Circle Pharmacy, Pencarrie UKL, Stiga Table Tennis Company, John Lewis, Waitrose Maidenhead, Amber Zone, Brenda Stores, BTS, Yonex, The Pincushion, Thames Valley Sports, St Marks Florist, Gordon Stores, Londis, The Book Company, Saher Usmani, and The Kochhar family.
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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

A message from the Editor


Wow. What a jam-packed few months. Theres been lots going on in the world of MS, and Asian MS has had maximum involvement. April saw the holding of the MS Societys biggest conference for MSers in Europe. MS Life took place in Manchester over an entire weekend. Asian MS not only had an information stand there but also gave a presentation outlining our work during the National Support Groups workshop. We welcomed many new members as a result of our presence and our stand was extremely popular (helped by the offering of some Indian sweets I think!). MS Awareness Week was in early-May, with people being encouraged to Get Active in their fight-back against MS. If you have any stories about how you took part then please let us know and we can feature you in the next newsletter. Asian MS also held their Annual Meeting for the first time outside London. You can find out more on p.1 & 2. Ramadan is upon us and the MS Society has a factsheet available about MS and fasting: http://www.mssociety.org.uk/msresources/fasting-and-ms

We rely on volunteers and there is always more work than there are hands to get it done! If youd like to get involved please let us know. Specifically, were currently looking for a Membership Secretary and a Website Editor. More details are in this newsletter and an email will be going out soon too. Enjoy this edition and please pass it on to anyone who you think may be interested in our work. -Trishna x

CONTENTS -Asian MS Annual Meeting & Meet The New Committee.p.1-2 -A message from the Editor.p.3 -Asian MS News (including MS Life).p.4 -A chance to get involved..p.5-7 -Looking for people for MS Films; Trishnas Top Tips.p.8 -Dates for your Diary; The Priority Services Register.p.9 -Holidays & MS; Recipes from Lubna.p.10-11 -General information and literature.p.12 -Latest research and MS in the News.p.13 -Fundraising for Asian MS.p.14 -Useful information and contacts.p.15
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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

Deadline for the Autumn Edition of the newsletter is 7th September 2012. Please send your stories, links, photos and news to

asianms@mssociety.org.uk

Asian MS at MS Life

ASIAN MS NEWS

Asian MS was present at MS Life in Manchester over the weekend of 14-15 April 2012. Not only did we have an information stand, we also did a presentation as part of The MS Societys Shining Star Award is an annual scheme to the National Support Groups workshop on the second recognise outstanding contribution day of the event.

RAM BECOMES A SHINING STAR!

by volunteers that work with or on behalf of people affected by MS.

We signed up a significant number of new members and many people visiting the stand remarked how welcoming and friendly Asian MS is! The National Support Groups workshop gave us a chance to explain to attendees why Asian MS is needed and how they can get involved. Committee members Shiv, Anisha and Trishna (pictured) all gave short presentations and Rani tweeted and updated the Asian MS Facebook page throughout the workshop. The weekend was filled with talks and workshops dealing with all aspects of MS, from research to lifestyle issues to mental and physical wellbeing. For those of you who were unable to make it, there are some videos available on the MS Societys You Tube channel and Facebook page.
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Dr. Sreeram Ramagopalan was nominated for a Shining Star Award by Asian MS and this was presented to him during our Annual Meeting. Dr. Ram (as he is known!) works in MS research, mainly in Vitamin D and epidemiology. He regularly gives up his own time to speak at events, such as MS information days and is always willing to go that extra mile to make sure people have information available to them. Hes made research accessible and easy to understand. He has also been very active in promoting and helping MS charities, including Asian MS. Well done Ram!!

Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

A CHANCE TO GET INVOLVED A NEW CLINICAL TRIAL FOR CAMPATH


The purpose of this trial is to try and prevent side effects of alemtuzumab - a drug which has been tested in clinical trials as an MS treatment. Although alemtuzumab is an effective treatment for MS, it has side effects, in particular 1 in 3 patients develops a new autoimmune disease, most commonly affecting the thyroid gland. The trial organisers believe that the risk of developing autoimmune disease after treatment with alemtuzumab can be cut by using a drug called Kepivance (also known as Palifermin), which has been shown to effectively do this in animals. This study is testing whether or not Kepivance will boost thymus function in humans.

The study aims to test the safety of the drug in humans and to evaluate the effects of ATX-MS1467 on the underlying causes of MS. ATX-MS-1467 has undergone tests in laboratory models and no significant problems were seen. The drug has also been tested in a previous clinical trial in six people with SPMS. During that study, the people reported minimal side effects. There are various eligibility criteria in order to be considered for this study and recruitment will only continue whilst there are places available. For more information please go to: http://www.mssociety.org.uk/sites/default/files/D ocuments/Research/Apitope%20study.pdf

To be eligible, you must have relapsing-remitting MS, be within ten years of your first MS symptoms, The MS Register is a be able to walk without aids and have had at least ground-breaking study 2 clinical episodes of MS in the previous 2 years. designed to increase our These relapses may have occurred whilst on understanding of living with disease-modifying therapy. MS in the UK. You can take part by completing a series of simple online questionnaires. For further information and to view a Patient

THE MS REGISTER Have you signed up yet?

Information Sheet, please go to : If you are over the age of 18 and living in the UK, http://www.colescambridge.org.uk/trial%20part with a confirmed diagnosis of MS made by a icipation.htm consultant neurologist, you are eligible to take part in this study. There are also a small number of pilot sites that are collecting clinical information: Royal Victoria ATX-MS-1467 is a new investigational drug being Hospital, Belfast; Western General Hospital, tested as a possible treatment for relapsing forms Edinburgh; St. Marys Hospital, London; Queens of MS. Investigational drug means it has not been Medical Centre, Nottingham; and Morriston approved for general use by government health Hospital, Swansea. authorities, however, it can be tested in research http://www.ukmsregister.org studies.

APITOPE STUDY

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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

A CHANCE TO GET INVOLVED MS SOCIETY TISSUE BANK


This is an MS Society-supported initiative to enable people with and without MS to donate their spinal cord and brain for MS Research. Samples are processed and stored to help understand the causes of MS and the development of effective treatments. The Tissue Bank is the biggest MS-specific brain donor initiative operating in Europe. For more information contact: MS Society Tissue Bank, Wolfson Neuroscience Laboratories, Imperial College London, Tel: 020 7594 9734 or see http://live.mssociety.org.uk/ms-research/getinvolved-research/ms-tissue-bank

RELAPSE SUPPORT SCHEME


This scheme was initially a pilot run in East Sussex. The aim was to help individuals to plan ahead for the daily activities they would need to do if/when they had a relapse. While its understood that medical symptoms cannot be predicted, what can be envisaged is that certain daily activities will still need to be done e.g. walking the dog, going to work, getting meals cooked, getting the children to school. The project aims to help individuals to think about exactly how such activities would be managed if they had a relapse, including where they would look to for help and how much, if anything, they would need to pay for this help. The pilot has now been extended to more local branches and Asian MS has been asked to take part as one of the MS Societys national support groups. We will be looking for a set number of members with Relapsing Remitting MS to participate and an email will go out soon. In the meantime, if youre interested please get in touch with us at: asianms@mssociety.org.uk and put Relapse Support Scheme in the subject box.

MS SOCIETY RESEARCH NETWORK


The Research Network helps the MS Society make sure that the research it funds reflects the needs and interests of people with MS. It also helps it to ensure research is being communicated in a way thats accessible to everyone in the MS community. There are different ways of getting involved: reviewing research applications, meeting researchers, taking part in a research panel or steering group, and/or improving the way research information is communicated The Research Network is open to anyone interested in research that has experience of living with MS or caring for someone with MS. It doesn't matter where you live or how much research experience you have. All training is provided. For more information please visit: http://www.mssociety.org.uk/msresearch/get-involved-research/researchnetwork/whats-involved

FEEDBACK NEEDED!
Asian MS would like to receive your feedback about our quarterly newsletter. Please go to the following link to complete the survey: http://www.surveymonkey.com/s/88 HDQL6

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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

A CHANCE TO GET INVOLVED EXERCISE AND PHYSICAL ACTIVITY STUDY

FIGHTING BACK AGAINST MS!

The MS Society has produced some videos designed to spark interest and encourage people to The Centre for Research in Rehabilitation at Brunel University would like to invite you to participate in think what it might be like this study as part of a PhD project. The research will to live with MS. You can be led by Andrea Stennett, Physiotherapist, under watch them at: the supervision of Professor Lorraine DeSouza and www.msfightback.org.uk, and share them Dr. Meriel Norris. with your own networks to spread the word You must be 18 years or older, have a diagnosis of and encourage people you know to join the MS and be living within the community. They will be Fightback against MS.
using a technique known as the Delphi Method to explore your views of exercise and physical activity. You do not have to be physically active to take part in this study. Your involvement would require you to complete three rounds of questionnaires, with a gap of up to two months between each round. If you are interested in this research, please contact Andrea Stennett for a research pack. Please note that requesting a research pack does not oblige you to participate in the study. Contact details: Andrea Stennett, Tel: 01895268729, email: andrea.stennett@brunel.ac.uk

KEEP YOUR EYE OUT! The MS Society maintains a list of research studies and clinical trials that are currently recruiting participants. If you are interested please go to: http://www.mssociety.or g.uk/ms-research/getinvolved-in-research

Funding opportunity for people with MS


National charity the MS Research and Relief Fund offers grant funding for items including equipment, aids, adaptations, holidays and respite care. The fund can be used either to complement grants awarded by the MS Society where a shortfall in funding exists, or as a single funding opportunity. The registered charity will consider applications for grants for individuals and for groups. For more information contact the charitys Grants Manager, Dave Farham on 01670 505829 or d.farham@msresearchandrelief.org or visit www.msresearchandrelief.org; or contact Julie Gilson, MS Society Grants Manager at 020 8438 0950 or jgilson@mssociety.org.uk
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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

Your Asian MS Newsletter Editor has been moonlighting (!) and has also been making regular contributions to the Shift.ms MINNOW FILMS is looking for magazine. Her latest article looks at the people willing to share their life various perks that MSers are able to access story living with MS. (depending on disability levels). It includes Were you diagnosed 3 -12 years information on cheaper rail fares, the Priority ago? Services Register of energy suppliers (also see Have you had to make some tough p.9 of this newsletter), free cinema/concert decisions over the years? tickets for carers/helpers, radar keys, Blue Would you like to inspire others Badges and bus passes. For more information with your story? go to: http://shift.ms/2012/06/trishnas-topThey are currently developing a short tips-perks-you-should-know/#commentdocumentary film project about people 8871 living with MS. They are particularly keen on finding people who are articulate about their current and past experiences, as they want the films to be reflective. FUNDRAISING FOR ASIAN MS If you are open and insightful, with a If you are interested in positive outlook on life they would like fundraising for Asian MS, please to hear from you. Their goal is to tell the contact our fundraising officer, stories of engaging men and women Mukesh Jethwa on whose lives have taken different turns but asianms@mssociety.org.uk nevertheless made them the people they are today. We rely on donations to keep going so if you know of someone wanting to raise money for charity, why not suggest that they fundraise for Asian MS? There are further details in this newsletter about how to make a donation and what the money is needed for.

WANT TO GET INVOLVED WITH MS FILMS?

Trishnas Top Tips

Please contact Salma on salma@minnowfilms.co.uk Or call 020 7078 8166 for more information.

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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

DATES FOR YOUR DIARY


MS SOCIETY AGM
This years AGM will take place on 15th September 2012 at the Marriott Hotel Regents Park, Swiss Cottage, London. MS Society members who are eligible to vote (fully paid-up on 16th June 2012) will receive full voting information on or around 2nd August and will be able to vote online, by post or in person. The AGM will be shown on: www.mssociety.org.uk.

Utility companies and vulnerable people


By law, each utility company in the UK must provide a range of free services to certain customers who are on their Priority Services Register. A Priority Services Register is a list of people who are:

-Of pensionable age-Chronically sick-Blind or partially sighted-Deaf or partially deaf-Have mental health problems-Disabled in any other way-

ASIAN MS NEEDS YOUR HELP!


As we expand, Asian MS is in desperate need of more volunteers to help us to continue offering our support and services. Communication with our membership is of utmost importance to us and we are currently looking to appoint a Membership Secretary and a Website Editor. The Membership Secretary would be mainly responsible for dealing with correspondence and membership issues (such as maintaining the membership database). The Website Editor would be in charge of updating the Asian MS website, particularly uploading e-editions of the Newsletter and Asian MS news. Please contact asianms@mssociety.org.uk if you are interested in either post and would like further information. Emails should be addressed to Vinnie Kochhar.

If you know someone who is likely to be vulnerable in the event of an electrical power cut (remember that most of the self-injection MS medications need to be kept refrigerated), an outage of gas supply or the water supply being cut off, encourage them to register with either their utility suppliers (the company that sends their bill) or the companies which transport the gas or distribute the electricity to their home and their local water company. You can find out more on the Consumer Focus website at: www.consumerfocus.org.uk/getadvice/energy/households/help-for-vulnerableconsumers If someone has trouble paying their utility bills, they should also contact the billing company or provider of the utility which have Trusts to help those in hardship.

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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

PLANNING YOUR HOLIDAYS


Having MS shouldnt stop you from taking a holiday or visiting that place youve always wanted to go to. It may take a bit more planning but everything is possible! With summer upon us and the UK weather being as unpredictable as ever, here are some top tips for those of you who are planning a summer break. Language The MS Society has wallet-sized cards in various languages that tell people you have MS and that you may need assistance. This can be useful if, for example, you have bladder/bowel problems and need the toilet urgently. For more information please go to: http://www.mssociety.org.uk/msresources/ms-assistance-card

Medication Make sure you pack enough Insurance Make sure you take out travel medication, plus some extra just in case. If insurance. You will need to declare your MS youre on one of the disease modifying to the insurance provider some companies drugs that need to be kept under 25oC then will cover it, while others will exclude it from make sure you have the correct travelling the policy. It may be worth shopping around bags and ice bricks/cool packs. You will also and the MS Society provides some need to remember to arrange for information about the topic. Please see the refrigeration at your destination, if youre travelling to a website for more information. hot country. You will Accessibility If you require facilities that are need to get a letter from your wheelchair accessible or MS nurse to show to airport you arent able to security/customs, as most MS manage lots of stairs, medication needs to travel with you in your then forward planning is hand luggage. Dont forget this, as you could a must to ensure that be otherwise stopped from taking your your holiday is as stressdrugs with you. Its also a good idea to let free as possible. There are many websites the airline know beforehand that youll be available that offer information about travelling with medication, as they can often accessible travel and can recommend make a note on your reservation. If youre accommodation. Just type accessible travel on hospital-based infusions then you will into an online search engine! need to arrange with your MS care team when would be the best time to travel, so that you dont miss out on a dose.
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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

Heat Many people with MS find their symptoms worsen in heat. So if youre travelling to a hot country, ensure that you drink cool drinks, wear loose and cool clothing, and put on a hat. If necessary, do indoor things during the hottest part of the day and make the most of the mornings and evenings outdoors, when the heat is less intense. Cool sprays and fans can also be a good idea, as is taking a cool shower before and after any activity that involves becoming hot. Staying healthy Being ill can worsen your MS symptoms and you dont want your holiday ruined because youre feeling under the weather. Ensure you pack a first aid kit that contains essentials such as painkillers, insect repellant (if necessary), rehydration powders/tablets in case of diarrhoea, antiseptic and alcohol gel etc. Double check which vaccinations you may need and remember to mention that you have MS, as some live vaccines (particularly if youre visiting tropical destinations such as Africa) are unsuitable for people with MS or who are on immunosuppressant therapy. Also remember to be sensible when it comes to eating and drinking, particularly if youre travelling to a country where safe drinking water may be an issue. Finally, if youre looking for inspiration to go and book that flight, this article is well worth a read! http://www.bbc.co.uk/news/health17786085
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Recipes from Lubna


Mushroom Pulao 1 lb/450 g/2 cups Basmati Rice 225g/8oz Mushrooms 6 oz/175g onions, peeled and finely chopped 2 tbsp vegetable oil 2 large black cardamoms 0.028g/1oz butter 1"/2.5cm cinnamon stick 1 bay leaf 4 cups water tsp black cumin seeds 10 black peppercorns 2 cloves Salt to taste -Wash the rice in several changes of water and drain. Soak the rice in bowl of water for 10 minutes. -Wipe the mushrooms with moist kitchen towel. Cut mushrooms into slices. -Heat vegetable oil in saucepan over a medium flame and fry onions until they turn a light golden colour. Add the whole spices and fry them for 1 minute whilst stirring. Add the mushrooms and butter and continue to fry for 2 more minutes. -Add rice and fry with the onions, spices and mushrooms to coat the rice with the oil and butter. To avoid the rice sticking to the saucepan, pour in 4 cups of water and salt to taste immediately and bring to the boil, cover with the lid. -Turn down the heat to low and use a diffuser where possible, continue to cook for 10 minutes. Lift the lid and stir the rice, replace lid for 5 more minutes, check if the rice has cooked, turn off the heat.

Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

General Information
Information New Information Booklets Available The MS Society has a range of publications Employment and Support Allowance containing information and advice for carers and (ESA) (MS Essentials 29) families: Disease modifying drugs (MS Caring for someone with MS: a handbook for Essentials 06) family and friends Sex, intimacy and relationships (MS MS in your life a guide for young carers Essentials 12) MS Carers: The mans guide to caring for Swallowing difficulties (MS someone with Multiple Sclerosis Essentials 24) You can order these from the Information team Note: The MS Essentials factsheet for by calling 020 8438 0799 or from the online shop Critical Illness insurance (September 2009) has been withdrawn. For information on on the MS Society website. this topic please go to www.moneyadviceservice.org.uk Financial assistance There are two grant funds specifically for carers For a list of all the MS Societys key Young Carers Fund publications showing the latest editions Carers Opportunities Fund. and revisions visit the website: There is also support for carers through the www.mssociety.org.uk/msShort Breaks and Activities Fund. Carers can resources/key-publications or call 0300 apply to this for funding towards short breaks 1000 801. and holidays. Find out more from the Grants Team on 020 To contact the MS Society Information 8438 0700 or grants@mssociety.org.uk or visit Team: Email infoteam@mssociety.org.uk the grants pages on the website. If you live in Scotland, please call 0131 335 4050 or call 020 8438 0799 (weekdays 9am4pm) or email grantsscotland@mssociety.org.uk *********************************** Emotional support The MS Helpline is available to give free and If you would like a copy of the MS confidential advice and support to anyone Societys latest MS booklet, which has affected by MS from 9am-9pm, Monday- Friday. been translated into 12 languages It is also open for a trial period on Saturdays including Urdu, Hindi, Punjabi, from 10am-1pm until 20th October. The helpline Bengali, Gujerati and Farsi, please number is freephone 0808 800 8000. Please contact Saher Usmani on 0208 438 0856 specify if you would like to speak with someone or susmani@mssociety.org.uk from Asian MS and you will be directed to one of our support officers. ***********************************

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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

LATEST RESEARCH & MS IN THE NEWS


Trending: When a celebrity's illness is a warning sign for everyone http://www.independent.co.uk/life-style/health-andfamilies/health-news/trending-when-a-celebritys-illness-isa-warning-sign-for-everyone7858851.html?origin=internalSearch I, too have MS, Jack. It may be incurable but it was the making of me http://www.dailymail.co.uk/health/article-2161360/JackOsbournes-MS-I-MS-Jack-It-incurable-makingme.html#ixzz1yiYgmTXq Multiple sclerosis patients at lower risk of cancer http://www.onlinenews.com.pk/details.php?newsid=19575 6&catname=Health Sunshine and vitamin D: why cloudy skies are bad for our health http://www.guardian.co.uk/society/2012/may/05/vitamin-ddeficiency-sunlight-health?newsfeed=true MS Across Europe - Ever wondered how MS maps out across Europe? Active ingredient of cannabis has no effect on the progression of multiple sclerosis http://medicalxpress.com/news/2012 -06-ingredient-cannabis-effectmultiple-sclerosis.html Tevas Higher-Dose Copaxone Cut MS Relapses in Trial http://www.businessweek.com/news/ 2012-06-14/teva-s-higher-dosecopaxone-cut-ms-relapses-in-trial In vitro fertilization linked to multiple sclerosis relapse http://medicalxpress.com/news/2012 -06-vitro-fertilization-linked-multiplesclerosis.html

http://multiple-sclerosis-research.blogspot.co.uk/2012/06/research-sclersosis-ms-and-als-are-not.html)
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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

FUNDRAISING FOR ASIAN MS


Where do the funds go? Asian MS is funded purely by donations, which are used for various purposes. They include grants for individuals to help them attend MSrelated events, contributions to research projects, and administration costs. The Myelin Repair Project One research initiative that has recently received a 1,000 donation from Asian MS is the Cambridge Centre for Myelin Repair, which is being supported by the MS Society. The first stage of the research programme saw the identification of a drug that could potentially repair myelin, which is damaged in people with MS. The project is now moving into a second stage where researchers will undertake pre-clinical research, with the aim of ultimately translating lab findings into a clinical trial.

Asian MS are proud to announce that they now have the facilities to allow people to make donations to them in an easier and quicker way.

Donations by credit card via the internet site justgiving.com:


www.justgiving.com/AsianMS

How to make donations by text message :


Send a text message to 70070 Remember to include the subject of the text: as AMSS89 and send it with the amount you wish to donate up to a maximum of 10 If you wish to donate 10 your message would read AMSS89 10 If you wish to donate 5 your message would read AMSS89 5 and so on. You may donate with any number from 1-5, and the money will go directly to the MS Society, which will transfer the cash generated to Asian MS.

You can also raise funds every time you shop through EasyFundraising:
http://www.easyfundraising.org.uk/causes/asianms

We thank you kindly in advance for your support


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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

Useful Information
General and Membership Enquiries: asianms@mssociety.org.uk Website: http://www.mssociety.org.uk/ms-support/support-groups/asian-ms Facebook: http://www.facebook.com/AsiansWithMS Twitter: http://twitter.com/AsianswithMS Saher Usmani, MS Society Support Groups Officer (please contact for hard copies of this newsletter and MS information booklets in different languages): 0208 438 0856 or susmani@mssociety.org.uk
Asian MS is a national support group for Asians with MS, their carers, friends and family. We seek to increase awareness and dispel ignorance of MS in the Asian community, as well as put fun and dignity into the lives of Asians with MS and their carers. We also raise money for people affected by MS within the Asian community. We produce online and printed information in various languages and offer an interpreting service. Vinnie Kochhar Chair Shiv - Treasurer Trishna Newsletter Editor Mukesh - Fundraising Officer Rani - Publicity Officer/Support Officer

MS Society Website: http://www.mssociety.org.uk MS Society Helpline: 0808 800 8000 Asian MS JustGiving: www.justgiving.com/AsianMS MS Register: www.ukmsregister.org MS Trust (charity that provides information about MS): http://www.mstrust.org.uk/ MS Therapy Centres: http://www.msntc.org.uk/ Shift.ms (an online community for younger MSers): http://www.shift.ms/index.php MS Research Blog (run by Barts & The London Neuroimmunology Group): http://multiple-sclerosis-research.blogspot.com

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Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

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