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GOSH/ICH Child Health Portal
2001 to 2003
Great Ormond Street Hospital for Children i Great Ormond Street Hospital for Children
Institute of Child Health MHSTru Institute of Child Health HHS Tnjft
Great Ormond Street Hospital for Children Great Ormond Street Hospital for Children
\ Institute of Chili! Health Institute of Child I htilth NHS Tru
Health Professionals Research Clinical Services GOSH International Press Office Campaigns I • .mjra.»<rr.Ti^^T^r^»ntin.irnnmTnrn.Ti
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Health Professionals (Search the site t-bi>j Research jSearch the site CEE3
Service* Resources Institute of Child Health
Nursing and Family Directorate Search here to explore our services, make a Ifcrary About us Together, the Hospital and the tnstilule of Child
CNnicaf Services referral, attend a course or conference, and NetH Academic Units Health offer a rich source of knowledge on child
Recruitment connect with our researchers. Famrfy Factsheets Reset" eh Themes health. Explore our research themes, link with
Centre tor Evidence-Based Research Review 2001
Ch*JHea»h Courses colleagues or conduct a search.
Clinical
Children's Pain Assessment Conference Services
Patient and family
Hospital Waiting Times Publications Recruitment
factsheets Research Review 200-1
Roundabout
Download our many The Research Review is iam-
Institute of Child Health • • RSI) Office
factsheets to distribute to I packed with stones about our
Academic unts families Annual Report R&D eUtetin
Learning Events Chrite at Oovernance Report Learning Events research and achievements. R
Educational Opportunities Check out our library, NHS Local Information
MM selected by the BMJ as an Database
International pi excellent source of NHS Information Authority ICH heads genetics
& Private paedialttc resources wwwjihs.uk knowledge park ICH dean David
Patients Department o( Heath
LONDON Latchman is to lead £3 million
Referring an Inter national or IDEAS London IDEAS Park Read mote
Stacey-Jane Panther had
Private Patient surgery at GOSH to correct
Email: the effects of Perthe* Clinical improvement
3rivate.fifQ@gosh nhs ,uk Ellie (above) from Chingford,
disease, which interrupts A six-month review has East London suffers from a
the blood supply to the head started to produce a new rare neonatal disorder, PHHl, Cancer gene breakthrough
of the femur (thigh-bone) action plan tor GOSH. R«S ICH scientists have identified five
which has puzzfed doctors
and make* hip movement mon, . and scientists for years. genes that are expressed n
painful. Read more about Read more about Ellie in this embryo and cancer eels. Read
Holly and others m this year's Research Review.
year's Anau&f rtport
About Ui
Contact Us Welcome to the new joint website ol Great Omiond Street
Sle Map Children's Hospital and the Institute at Child Health
CM intrsnel
Staff Direclones s (or
families scfdi trKejyit
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mote
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• Find out what it's realty like
Cinicol Services irsalment of epilepsy
in hospital. ut health and hospital.
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Referrals • Share your view on the • Find out about your body
A UK first: child cur MMR GOSH says- world. and your health.
Research by gene therapy A is test ana safest o
child hasbesn cured fot our children" S* • Problems? Take a ' What do kids really think of
Research Themes Jack i', as born with a cy*1
a fatal genetic eondrtic more look at ihe problem page burgers and chips?
Academic Units on ha brain which caused
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Oppcfturtftw therapy at GOSH Rea \veafcenftd the teft tide c 1 n matter to you. what you can do to stop it.
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donations you make to Great Ormcrid Street Hospital Children's Chanty have a
Lopping up the NHS' funding. To find out n >ital work of the hospital,
visit www.gosh.nlt&.uk.
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Coming to GOSH A / of child complaints
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n your ChW is Admitted About the site We are unable to answer queries or offer advice about specific patients and/or their
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conditions through this website. At the same time, we recognize that visitors to our
Health information Centre A / of i hilil ciimpSiiinls website may require information about particular paediatric health issues Please check
Hospital Waiting 7«nes out our family factsheets for information on tests, procedures, operations, and various
Acne paediatric conditions You can also read our archive of Dr Jane Colims'Times column,
Kids and Teens DDDQDDE1 dispensing jargon-free advice on a wide range of paediatric topics.
OOSHTots
OT Up to 85 per cent of 1 2 to 25 year otds suffer from spots Boys and girls are
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OOSHKidS equally affected They usually appear at puberty and reach their peak at 17-21 If QDDDBDD | Choose a subject
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Hospital Scnooi
untreated, persistent spots or acne, can cause scarring but prompt treatment DDDDD Vour
Radio Gosh minimises this Acne is caused by over-production of oil from the sebaceous name
glands in the skin mainly on the face, chest and back in response to normal Your
levels of sex hormones Oil blocks the ducts to the surface of the skin allowing
Getting Help
Bereavement Services waste cells to accumulate under the skin's surface forming a plug Bactena
Chaplaincy also play a part Teenage girls often report a flare-up before menstruation
Child Death Helpline Some find stress and certain foods, especially fast food and chocolate, make
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acne worse although there is no scientific evidence for this Some cosmetics
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provoke spots especially those containing oils, fatty acids and waxes Acne is
family F*ctsheet» not infectious or contagious
Tests and Procedures Symptoms: Oily skin with red lumps, yellow spots, blackheads and whiteheads
Operations
Hinesses and Diseases Teenagers with black skin often find that spots make their skin darker and this
Drugs pigmentation can last for months
Great Ormond Street Hospital for Children Great Ormond Street Hospital for Children
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Information for families Genetics and inheritance Information for families The Activities Centre
[searchthesite CS3
Please use the indexes Please use the indexes Download PDF of 'The Activities Centre' tactsheet
below to find the factsheet below to find the tactsheet
Contents
you need. # you need
What are genes? What is the Activities Centre?
HOW can genetic disorders be inherited? Where is the Activities Centre?
Is it always possible to make a genetic diagnosis'1 Who can use the Actrvities Centre7
How can genetic abnormalities be detected? Who runs trie Activities Centre?
Contac! information What is there to do in the Activities Centre^1
What happens when I bring my child to the Aetivies Centre7
Background
Or search the full Or search the full When is the Acttwities Centre open?
alphabetical index alphabetical index Special needs therapy session
BDDEIOOE1
Many immunodeficiency disorders are the result of defects in an individual's
genetic makeup These are mistakes which occur in genes and are passed from nummnun vouih Group
Junior youth group
generation to generation Sometimes a genetic mistake (mutation) can occur for QDDDOISID The Den
QOQDQDD the first time in an infant or child when no-one else In the famiry has had the DDQDBDD
problem, but in other situations there may Be family members who have suffered This page tells you about the Activities Centre at Great Ormond Street Hospital.
QDDOH from the same or similar problems. There are several ways in which mutations
DDDDD
can be inherited - these are explained below In an increasing number of What is the Activities Centre?
immunodeficiency disorders the precise mistake in the relevant gene can now lie
identified in the laboratory, and this means that accurate counselling can be it's a place where inpattents at Great Ormond Street Hospital can get away from trie
offered lo the family, and screening tests can be offered in pregnancy if requested medical environmenl of their ward for a wtiiie and have some fun ifs bright and
colourful, full of things to do and gives children attne hospital an opportunity to meet
What are genes? other people their own age
Great Ormond Street Hospital for Children Great Orrnond Street Hospital for Children
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1. May ,'ni,
Hew appeal raises f.i.S million
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ominfl to GOSH
-low to Get Here Use this page as a gateway to our many you need
Getting ready for admission
(Uteri your Chrtd is Aclmflerl support services, or try exploring our many fact
nternabonai and Private Talking to your child
sheets on medical procedures, ailments and
Mrii diseases We have a lively range of support
Packing for your child
•tealth Intoi martion Cw^re For yourself
Hospital Watmg Tirrws services for children and teens, including our
D/rect4647 Electrical appliances
odio station (Radio Gosh) and children's
lids MM) Teens NHS Direct online health
Telephones
school imvMyimiiMjm^™
3OSHTots encyclopedia
3T Getting ready for admission
Or search the full
SOSHKids
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Or Jane Collins column alphabetical index
online Popular Times
tal School
column dispenses jargon- QDOQODD
free advice.
A-Z of Chtlc* Concerts
DDnDDCDD r e a s e is may e cu or ose wo ave oer c r e n a ome.
niq Hei(3
Articles DDQDDDD
9ef eavement Services DQDDB As a parent you are welcome to be with your child in the hospital at all limes (and at
no charge). We will always provide somewhere for one parent to stay although we
:rwptaincy Large at c hive developed
:hild Death Helpline by our medical and cannot guarantee that this will be at your child's bedside.
"amlly Advocaies research teams. Rvnl
Social Work mof«
Holly WTwte undciwrfrt
A list of local hotels is also available from the family services department If needed.
piiinKeMfiit wurqeryat GOSH Joint website put* thi*
«TWVf act sheets
•itlcr a bi *IH sc*n Khowcd
ests and Procedures child fit st Check out our
slip hnrt oiov moy«
new Teens and Tots Talking to your child
Get Invoh/etl | Hilon nation | Reseat ch | FAQs | Links | Heln
| About Us
Map of UK Screening Labs
Welcome to the UK Newborn Screening Programme Centre
I Get Involved
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We hope vou will find this website informative and a convenient way of receiving information on the
Information
collaborative wotk that we have planned to assure quality in newborn screening sen/ices throughout
the UK We welcome yout involvement whether as a professional, parent or interested member of
the public and vou can find out how to do this in the 'Gel involved' pages.
Through this site we will introduce you to our team and the purpose of our work in 'AiiQutjjj'. You will
also be able to access Information about our work and its context within the 'information'..iiafl6.§-*
useful glossary and key to some of the abbreviations used is also available here for your use.
A clickable
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• Find out what it's really like • Reid lots of real stones
in hospttal, about health and hospital.
• Share your view on the • Find oui about your body
world. and your health.
• Problems? Take a • I'/hflt do kids resliy think of
look at the problem page. burgers and chips?
• The news and stories thai • Being bullied? Find out
what you can do to stop it.
• Looking 4 answers? Try • Check out our wizard Harry
the health and hospital Potter section.
messageboards. • Take a look our run stories
• Get the latest celeb (joss about your favourite stars.
from Sneak magazine, • Read children's real stories
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