PRESS RELEASE Embargoed: 6am GMT, Wednesday, 1st October 2014 Contact: Dee OSullivan Email: dee@patient-view.com Telephone: +32-(0)2-538-7581 Mobile: +32-(0)495-893-925 http://www.myhealthapps.net Launch of the first-ever toolkit to help people understand and use health apps PatientView Ltd 2014 Author: Tony Newbold Editors: Clive Nead, Dee OSullivan, Alexandra Wyke Designer: Mark Ansell From the publisher of myhealthapps.net and the European Directory of Health Apps A clear, concise, simple manual to help patients and the public make the best choices and decisions about health apps, Health Appsa Toolkit to Help You, is available in print and online. Launched today, Wednesday, 1st October 2014, at the European Health Forum Gastein 2014, and circulated to the Forums 650 delegates (who come from all over Europe and beyond, and who represent the key stakeholders of the European health policy community). Why this Toolkit? Health apps have been heralded as an important technical advance with the potential to support patient self-care, and to help patients manage their medical conditions. In addition, health apps promote the maintenance (and improvement) of health through the monitoring of personal wellbeing, and by encouraging the implementation of positive, healthy, lifestyle changes. So why is the take-up of health apps by patients and carers still lagging? In a soon-to-be-published study 1 , PatientView reveals that the public are confused by the sheer number of health apps available (100,000), and are not sure that a particular health 1 What do patients and carers want from health apps? A July-October 2014 global survey of over 1,000 patients, conducted by PatientView in collaboration with Health 2.0, with the input of relevant healthcare stakeholders (policy-makers, suppliers of apps and mobile services, and healthcare professionals). Survey results to be released Monday, 10th November 2014, at the 2014 Health 2.0 conference in London. 2 | P a g e o f 3 HEALTHAPPSA TOOLKIT TO HELP YOU app will help them. Members of the public may also not trust health apps, because they do not know who makes the apps, or whether their health data would be secure on an app. About Health Appsa Toolkit to Help You Health Appsa Toolkit to Help You takes a comprehensive approach to helping people find and use tried-and-tested health apps. It walks the reader through each step of a journey towards getting started with health apps. The Toolkit identifies the main pitfalls with health apps, and educates on how to overcome these problems. Every one of the five main sections of the Toolkit is in its own dedicated colour (the colour coding further eases navigation through this simple manual). Future editions of the Toolkit are plannedto take account of regulatory changes and other developments in the fast-moving health-app scene. WHY Page 10 Why use health apps; how they can help Why making an informed choice is important, and what to look for WHERE Page 18 Where to find health apps How to search for them Where to download health apps WHAT Page 28 What do you need to know about a health app? What do you need a health app to do? What should you watch out for? HOW Page 44 How to download a health app How to update a health app How to build the app into day-to-day health routines RESOURCES Page 58 Useful links Troubleshooting What to do when things go wrong Download the online flip book: URL LINK: http://www.blastphotography.co.uk/patientview.html Acknowledgements The Toolkit was developed by PatientView (publisher of myhealthapps.net), in consultation with patient groups, healthcare professionals, app developers, regulators, and with the pharma, medtech, and mobile- technology industries. We at PatientView are grateful for their feedback. We would also like to thank all the partners of myhealthapps.net (the European Connected Health Alliance; the European Health Forum Gastein; GSK; Health 2.0; Janssen; NHS England; Novo Nordisk; and Telefonica) for their support in the development and dissemination of myhealthapps.net and the Toolkit. In addition, we are grateful to the following The myhealthapps Toolkit is a good initiative to empower citizens. It is the type of health- literacy project that the European Commission encourages. Robert Madelin, Director General, DG CONNECT, European Commission 3 | P a g e o f 3 HEALTHAPPSA TOOLKIT TO HELP YOU individuals and organisations for their insightful comments and contributions: the European Pharmaceutical Students Association (EPSA); David Grainger of the Medicines and Healthcare Products Regulatory Agency (MHRA); Andy Jones of AstraZeneca; Tony Kane of Tony Kane Consulting; Charles Lowe of the Royal Society of Medicine (RSM), and also of the Digital Health and Care Alliance (DHACA); Jocelyn Parkes of the Royal Pharmaceutical Society (RPS); and Dr Mike Short, CBE, of Telefonica. We would also like to thank the European Commission for its encouragement for myhealthapps.net. Finally, we would like to thank all the app developers whose apps are featured on the myhealthapps.net website, and whose icons are being used for illustrative purposes in the Toolkit. Other upcoming PatientView initiatives Workshop: Health AppsMeeting Patients Unmet Needs, Wednesday, 12th November 2014, London A collaborative workshop to connect patient and carer groups, health policymakers, healthcare professionals, telecoms and mobile experts, and pharma and medical-device experts with health-app developers. Co-hosted by PatientView, Health 2.0, and TICBioMed, the workshop aims to define and design 5 new, important health apps. 4 of the new health apps will be in response to the needs of patients living with one of 4 health or medical issues: cancer; diabetes; disability; mental health. The 5th health app will be on the subject of wellness and self-care. The health needs discussed in the workshop will include those identified by the July-October 2014 PatientView/Health 2.0 global survey of well over 1,000 patients with long-term conditions (and their carers). A White Paper on the results of the 12th November workshop will be published shortly after the event. For further information on the 12th November workshop: http://bit.ly/MHAEVENT To go on the mailing list to receive a free copy of the forthcoming White Paper upon publication, email your contact details to: report@patient-view.com About PatientView and myhealthapps.net PatientView was founded in 2000 out of a belief that the views of patients should be considered in every important healthcare decision (whether a new healthcare product, or a government change to a healthcare system). A UK-based research, publishing and consultancy group, PatientView has the capacity to reach out to 120,000 patient groups worldwide, covering over 1,000 medical specialties. PatientView launched the myhealthapps.net website in November 2013 to provide an independent portal for health apps reviewed and recommended by patient groups and by empowered patients and consumers. PatientView gratefully acknowledges, and would like to thank, the many patient groups from around the world that have contributed reviews of health and wellbeing apps to myhealthapps.net. A full list of current reviewers can be found on http://www.myhealthapps.net/reviewers PatientView Ltd, One Fleet Place, London EC4M 7WS, UK End of press release