Beruflich Dokumente
Kultur Dokumente
People have the legal right to make their own decisions about things such as what
medical treatment to accept or where to live, as long as they have the capacity to do
so. This applies to people with dementia too. &s dementia progresses, however, it
can get harder for people to make their own decisions.
The law says that it must always be assumed that someone can make their own
decisions, until it is shown that they no longer have capacity to do so. Ahere
decisions are made for people who lack capacity, such decisions must be in the
persons Jbest interests.
Ahen working out Jbest interests it is important to take into account both the past
and present wishes and feelings of the person with dementia, even though they may
be /uite different.
1d#an!e de!iion
People who can still make their own decisions sometimes write Jadvance decisions
,also called Jadvance directives or Jliving wills- to say what kind of care or treatment
they want in the future when they are no longer able to decide for themselves.
&dvance decisions to refuse treatment are legally binding, as long as they have been
properly made.
(ome people see advance decisions as a good way of making sure their wishes are
followed in the future. %thers believe that we can never Jsecond?guess what we will
want in the future, and that an advance decision may lead to bad care.
Wel"are attorne6
People who are still able to make their own decisions may choose someone they
trust to make decisions for them in the future. The person chosen is known as a
Jwelfare attorney. The welfare attorney must always act in the best interests of the
person with dementia when making decisions.
Aelfare attorneys have many advantages over advance decisions, as they have up?
to?date information about the decision to be made. 4owever, there are concerns that
some people may find it too e>pensive or complicated to nominate a welfare
attorney.
http0))www.nuffieldbioethics.org)sites)default)files)files)dementiaDresourceDmakingDdecisionsDbackgro
und.pdf
Page 1* of !
&n ethical framework for dementia
=thical decisions can be approached in ! stages0
1. .dentify the facts ,e.g. Ahat is the real problemC 4ow much distress is it
causingC Ahat are the real alternativesC-
. &pply ethical values,e.g. well?being, avoidance of harm, freedom to make own
decisions-,to the facts identified
!. "ompare the situation with other similar situations to find relevant similarities
or differences
"ase (tudy e>ample0 "onsider a :8?year?old man, 7r P, living with his daughter.
Ahen his daughter is cooking, 7r P fre/uently Ioins her in the kitchen and gets in the
way of the cooking. 7r Ps daughter is tempted to lock the kitchen door whilst she is
cooking to prevent 7r P from entering, but she is not certain whether this is the right
thing to do.
1. .dentify the relevant facts
The degree of danger and distress to 7r P when the kitchen door is locked.
The length of time he remains distressed after the cooking is finished.
The danger if 7r P is in the kitchen.
The effect on his daughter of his being in the kitchen during cooking and the
e>tent to which this interferes with the cooking.
Ahat 7r P might have thought about this situation had he considered it before
the onset of dementia.
Ahat he is currently able to do.
. &pply ethical values to the facts
&t first it might seem that 7r Ps right to choose would favour allowing him into
the kitchen, since locking the door restricts his freedom and his behaviour
suggests that he wants to be in the same room as his daughter.
4owever, 7r Ps previous wishes, at a time when he would have understood
all the relevant issues, might have favoured enabling his daughter to get on
with the cooking unimpeded.
'actors affecting 7r Ps well?being, such as avoiding harm ,for e>ample
burning himself on the hot stove-, also need careful consideration.
'inally, the interests of 7r Ps daughter must also be considered.
Page 19 of !
!. "ompare with similar situations
'or e>ample, 7r Ps daughter might already have had to make a decision
about whether or not to leave her father in the house alone whilst she goes
shopping.
4er deliberation and the decision she made in that situation may be highly
relevant to the issue of whether to lock the kitchen door.
& health professional such as a community nurse might be able to help the
daughter by comparing her situation with that of other families, advising on
what has worked elsewhere, and perhaps also by identifying a solution which
may remove the problem altogether.
"arers of people with dementia need more support and advice to tackle the difficult
ethical dilemmas that they face. The @uffield Lioethics "ouncil has published a
report which sets out an ethical approach to dealing with these dilemmas.
9ind o$t %ore
http0))www.nuffieldbioethics.org)dementia
Page 1< of !
"ase (tudy0 1avid is :*years old and has had dementia for * years. 1avid has
always been very active and independent, and enIoys going for walks or going
shopping by himself. & few times in recent months 1avid has become confused
while on trips to the town centre. 4e has returned home very late several times, and
once his wife 7argaret had to search for him, finding him in a confused and
distressed state. 7argaret is worried about 1avid going out by himself, and is
considering stopping him leaving the house on his own
Mse the ethical framework described previously. Aork through the ! stages and
describe what can be considered to try and support 1avid and 7argaret, now that
his ability to go out alone safely is fluctuating ,7inimum 198 words-
Page 1: of !
!
Person?centred care has been a guiding principle for good care practice for many
years. .t was included as one of eight key standards in the 18?year government
programme, the @ational (ervice 'ramework for %lder People ,881-. .n this general
sense, person?centred care means treating people as individuals with dignity and
respect, and enabling people to make choices about their care based on their needs,
preferences, interests and life history.
Person?centred care has been a particularly important concept in dementia care.
&ccording to Lrooker ,88<-, who has written on this topic e>tensively, person?
centred care with people with dementia means0
valuing people with dementia and those who care for them
treating people as individuals
looking at the world from the perspective of the person with dementia
a positive social environment in which the person living with dementia can
e>perience relative wellbeing.
To find out more, look at the following resources0
&lBheimers (ociety ,886- Ahat standards of care can people e>pect from a care homeC 'actsheet.
$ondon0 &lBheimers (ociety.
Lrooker, 1. ,88<- Person?centred dementia care0 making services better. $ondon0 Nessica Kingsley
Publishers.
1epartment of 4ealth ,881- @ational (ervice 'ramework for older people. $ondon0 1epartment of
4ealth.
Relationship?centred care is another important approach with a growing evidence
base for its effectiveness. .t emphasises seeing the care home as a community,
where /uality of life for everyone in the community O staff, family, friends and
individuals O is valued. =veryone receiving care needs to have a sense of security,
sense of continuity, sense of belonging, sense of purpose, sense of achievement
and sense of significance ,called the J(i> (enses 'ramework, developed by
Professor 7ike @olan and colleagues at the Mniversity of (heffield-. @urturing these
Jsenses for individuals, their families and staff is a vital part of improving care
practice.
The individualHs needs should always be at the centre of the decision making
process.
Mnintended or passive restraint ? where staff fail to provide necessary care ? is
far more likely when staff are overloaded and not readily available for
individuals. .n these situations, it is the needs of staff that are guiding actions.
.n other situations, relatives may have strong views that influence the decision
making process. They must be heard and involved, but remember, the prime
responsibility of the staff is to the individual. .t is the individualHs needs which
should guide actions.
!
http0))www.scie.org.uk)publications)elearning)restraint)restraint8)inde>.asp
Page 16 of !
Le open and positive.
Ahen difficult situations develop ? perhaps an individual is doing something that is
hard to respond to, such as repeatedly striking staff ? it can be tempting for staff to
think Hthis individual canHt stay hereH.
The most important thing is to try to be open and positive about the potential you and
your staff team have to improve the situation.
(o often, with reflection and teamwork, staff can work together to develop an action
plan to respond differently and ensure the placement continues smoothly. (taff
benefit from this approach too in many ways.
You are not alone
You may find yourself alone with an individual when a difficult situation arises, but in
a care home another staff member should be nearby and able to help. &lways call on
team support in these urgent situations. 4aving another person witness the event
could be vital too. .n the community you may have support from a loved one who
lives with the individual.
To make plans about using restraint in the longer?term, remember that good decision
making involves consulting with all relevant parties, including the individual, family
members, friends, the manager, other involved professionals ,say a ;P-, and, in
some particularly difficult cases, the inspection services.
Aorking with people with dementia can be very rewarding. Lut situations can arise
that are difficult for the person with dementia or those supporting them O or both
parties.
&earning 2$t!o%e 3,3 De!ribe how to en$re an indi#id$al with de%entia;
!arer and other "eel able to !o%.lain witho$t "ear o" retrib$tion
The "are Puality "ommissions =ssential (tandards of Puality and (afety %utcome
1: state0
Ahat should people who use services e>perienceC
People who use services or others acting on their behalf0
&re sure that their comments and complaints are listened to and acted on effectively.
Know that they will not be discriminated against for making a complaint.
This is because providers who comply with the regulations will0
4ave systems in place to deal with comments and complaints, including providing
people who use services with information about that system.
(upport people who use services or others acting on their behalf to make comments
and complaints.
"onsider fully, respond appropriately and resolve, where possible, any comments
and complaints.
&lways remember, clients are your customers and as such have the right to e>pect a
certain standard of service from you and your organisation.
Page 15 of !
*
Aorkers have to work within constraints imposed by their employers. 4owever,
within these constraints there are choices. 1epending on the choices you make
individuals will feel you are on their side, indifferent or wanting to control them by
abusing the power you have over them. You can contribute towards their feelings of
well?being or their hopelessness and powerlessness.
Ahen people feel empowered they are more confident to say when things are not
right for them. This includes their carers and anyone else involved in decision
making for the individual who has dementia.
@ot every care provider will live up to every aspect of person?centred care all the
time. (taff may adopt a patronising or degrading attitude, and in some services,
people with dementia may even be vulnerable to physical or psychological abuse or
general neglect.
.n these situations, the person with dementia may not be willing or able to complain ?
either because it is difficult for them to Hmake a fussH or because they are afraid of
being victimised.
Relatives or friends of the person with dementia may have general or specific
concerns about the level of care provided. &ny care provider that is doing its best to
provide good /uality care has nothing to fear from a complaint. .nstead, it should see
it as a positive opportunity to improve.
& good complaints process will not only investigate what happened on a particular
occasion but will also identify weaknesses in the overall processes of care and make
sure that the same situations or mistakes do not keep occurring
*
=>tracted from http0))www.workingtogetherforrecovery.co.uk
Page 8 of !
"ase (tudy0 You support Nohn who has dementia. 4e lives in a care home where
they have many group social activities and encourage everyone to Ioin in. Nohn gets
very an>ious in groups of people and his behaviour shows that he does not want to
be in situations like this. Nohns wife mentioned this when he was admitted but has
noticed when she visits he is often sat in a group and looking very an>ious. (he has
told you that she is worried about this but does not want to cause trouble as
everyone seems very caring.
=>plain how you would support her to raise her concern formally in line with your
workplace policy and procedures and how you would reassure her it was %K to do
so. ,7inimum 188 words-
Page 1 of !
&earning 2$t!o%e 4,1 /ow to %aintain .ri#a!6 and dignit6 when .ro#iding
.eronal $..ort "or inti%ate !are to an indi#id$al with de%entia
5
<hough it may be undesirable to cut across the informality of care relationships by
making unnecessary rules or regulations, intimate care is clearly one site where
things can go wrong. There is a narrow margin of error. The usual social rules and
inhibitions have already been broken and it is not always easy to arrive at new ones
which are appropriate to the particular conte>t within which you are caring or being
cared for. 7oreover, receiving or giving care arouses strong feelings which people
rarely put into words.
.magine that you need help to go to the toilet. You have dementia. Arite down three
things which your helper could do to ease any embarrassment or discomfort you
might feel, and three things which would make the whole situation even worse. Think
about who could be helping you in this situation, their gender, their relationship to
you, their manner, what they say, their facial e>pression, and so on. ,7inimum 88
words-
9
http0))openlearn.open.ac.uk)mod)oucontent)view.phpCidF!568!EsectionF<
Page of !
%nce complete please make sure that your details are on the front of the workbook
and then return it to your assessor0
%>care
%>fordshire $earning and (kills (ervice
Mnipart 4ouse
;arsington Road
"owley
%Q* ;P
Page ! of !