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Care.
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MEDICALCARE
Volume31, Number9, pp SS38-SS49,Supplement
? 1993, J. B. LippincottCompany
It was hypothesized that ADHC would have a positive effect on the health of
patients and their care givers and result in greater satisfaction with care than
customary care. Measurement of health outcomes for patients included assessment of overall, psychological, and social health, and survival. Care giver assessment concentrated on psychosocial health. Findings indicated no difference
in health outcomes between patients assigned to ADHC or their care givers and
their counterparts assigned to customary care. Further analysis of subgroups
found that there were 3 subgroups of patients for whom those assigned to
ADHC had better outcomes (as indicated by lower Sickness Impact Profile
scores) than those assigned to customary care. These subgroups included those
who were 1) not married, 2) most satisfied with their social support network,
and 3) not hospitalized at the time of enrollment in the study. Patients and their
care givers assigned to ADHC were more satisfied with their care than those in
nursing homes, but not more satisfied than those in hospital-based home care.
Care givers reported significantly greater satisfaction with patient care in
ADHC than did care givers of patients receiving care in nursing homes or
ambulatory care clinics.
of more intensive medical and auxiliary services such as closer supervision of drug therapy and more frequent physical therapy.
Consequently, they were expected to have
higher levels of physical and psychosocial
functioning and greater satisfaction with
care compared with those who did not receive such services. Care givers were expected to benefit directly through respite
care and indirectly through improved functioning of the patients for whom they pro-
SS38
vided care. They also were expected to report higher levels of satisfaction with the patient's care.
Methods
Assessment of Bias
Comparison of the groups on all primary
variables available at baseline showed no significant differences, thereby indicating the
randomization was successful. Differences
in attrition, using the Cox proportional hazards model,1 were not significant.2
Procedures for Missing Data
Item mean substitution was used when no
more than 20% of the items were missing
from the Sickness Impact Profile (SIP), Psychological Distress Scale, Satisfaction with
Care Scales, or Caregiver Burden Scale.2
Zero substitution (maximum impairment)
was used for Mini-Mental State Exam items
when no more than 1 item was missing.
Proxy SIPs were collected from care givers
and from long-term care staff if a patient
was in a nursing home at the time of data
collection in addition to patient-generated
data. When no patient-generated responses
were available or when more than 20% of
the patient-generated items were missing,
proxy responses were substituted for the entire scale. Care giver data were substituted
unless no care giver was available, in which
case long-term care staff data were substituted. Although the data provided by patients and proxies may differ, especially in
the psychosocial domain,3 substitution of
proxy data was considered a better alternative than deletion of the case. Proxy responses were not considered valid substitutes for affective or cognitive data, therefore no proxy data were collected for the
Mini-Mental State Exam, Psychological Distress Scale, or Satisfaction With Care Scales.
Satisfaction With Care. The patient satisfaction with care scales were potentially
collected at 3 times: 6 and 12 months, if the
patient had been in a specific care environment for 30 days or more (i.e., ADHC, nursing home, or home care); and at discharge
from ADHC. A substitution scheme was implemented to ensure that only the most recent value entered into the analysis and that
only 1 value was entered for each respondent. For the patients in VA-ADHC, the following scheme was used: 1) discharge interviews were selected first; 2) if there was no
discharge interview, the 12-month satisfaction scores were entered, 3) if there was no
12-month score, the 6-month score was entered.
For the customary care group, the same
substitution scheme was used, first for nursing home, then for hospital-based home
care. Selection on care environment was necessary because the customary care group
may have responded to multiple questionnaires based on their situation at the time of
the interview. A similar substitution scheme
that included postbereavement was implemented for the care giver data.
Group Comparisons
Mean health outcomes for the VA-ADHC
and customary care groups were compared
at 6 and 12 months using analysis of covariance with the baseline value of the independent variable as the covariate. Satisfaction
scores were compared using a t-test of independent means. The conventional level of
0.05 (two-tailed test) was used to denote statistical significance. The actual probability
values are shown in the tables for all values
of 0.10 or less. Survival curves were constructed using the Kaplan-Meier method
and tested for significance using the Cox
proportional hazard model.
An analysis of 6-month outcomes for only
those respondents who completed the study
(i.e., for whom 12-month scores were available) was also conducted for the health outcome data, allowing a comparison of 6- and
12-month scores that was unbiased by dropouts during the last 6 months of participaSS39
ROTHMAN ET AL.
MEDICALCARE
tion. The results of these analyses are presented when they differ from the analysis of
all people who completed the 6-month interview.
Six primary outcome variables as well as a
number of subscales were analyzed in this
portion of the study, thus increasing the
probability of making a type 1 error. To decrease the likelihood of making such an
error, we examined the pattern of findings
for other similar outcomes and whether the
finding occurred at both 6 and 12 months, as
well as the P value for each individual outcome.
Subgroup Analyses
The study research questions include a determination of whether ADHC outcomes
differ across sites and among patients with
different characteristics. A limited number
of subgroup variables (n = 24 variables)
based on the results of other studies of community-based long-term care alternatives4
were selected before data analysis. Subgroups were defined in an identical manner
for the ADHC and customary care groups
and formed using baseline variables that
could not have been affected by the treatment. Data were analyzed by analysis of covariance in which condition (VA-ADHC
versus customary care) and the subgrouping
variables were considered independent variables. Those subgroupings that yielded a significant treatment-by-subgroup interaction
were further examined using t-tests within
each level of the subgroup (levels for each
subgroup are defined below).
Seven types of subgroups were considered: 1) patients with specified characteristics at study intake, 2) patients at the 4 VAADHC sites, 3) patients who entered the
study during the first or second half of the
enrollment period, 4) patients who were
likely to be high utilizers of VA-ADHC, 5)
patients who were at higher risk of going to
a nursing home, 6) patients who were at risk
of using greater amounts of ambulatory
SS40
ROTHMAN ET AL.
MEDICALCARE
Sickness
ImpactProfile
VA-ADHC
367
Six Months
Twelve Months
Customary
Customary
Customary
Care
Care
VA-ADHC
VA-ADHC
Care
362
310
296
251
259
Physical
Mean
SD
31.7
18.8
33.8
18.4
30.2
21.6
32.6
21.8
29.0
18.6
32.1
18.8
Psychosocial
Mean
SD
34.7
21.3
35.7
21.7
34.3
21.6
35.3
21.8
34.1
22.2
34.5
20.6
Total
Mean
SD
33.3
16.9
35.0
16.5
32.3
17.2
34.1
17.0
31.8
17.3
33.2
16.4
-5.1 to 3.3
Confidenceinterval
-4.8 to 5.8
SS42
Vol. 31, No. 9, Supplement EFFECTS OF ADULT DAY HEALTH CARE ON HEALTH AND SATISFACTION
PROP ,QRTION
2-
lf.Di
0.9
2
0.8
0.7
0.6
0.5
0.4
0.3
0.2
0.1
0
0
VA-ADHC
7
6
MONTH
CUSTOMARY CARE
10
11
12
CONTRACT ADHC
FIG. 1. Comparison of survival of VA-ADHC, Customary Care, and Contract ADHC groups.
ROTHMAN ET AL.
MEDICALCARE
TABLE2.
Baseline
Scale
VA-ADHC
12 Months
Customary
Customary
Customary
Care
Care
VA-ADHC
Care
VA-ADHC
OverallHealthPerception
n
Mean
SD
380
3.9
1.2
371
3.9
1.2
315
3.7
1.2
Confidenceinterval
311
3.7
1.1
275
3.6
1.2
273
3.6
1.2
-.3 to .1
-.3 to .1
PsychologicalDistress
Anxiety
Depression
Control
Total
294
n
Mean 29.5
SD
10.7
Mean 14.4
5.9
SD
Mean 22.2
8.0
SD
Mean
SD
66.2
22.6
271
28.1
10.5
14.0
6.0
21.3
8.4
223
27.7
10.4
13.1
6.0
21.0
8.2
210
28.5
10.4
13.7
6.0
20.6
7.9
157
27.9
10.8
13.7
6.1
21.1
8.7
125
28.7
10.9
13.7
6.3
20.7
8.9
63.4
23.0
62.0
22.2
62.9
22.2
62.8
23.2
63.3
24.1
Confidenceinterval
Mini-mentalStateExam
n
329
Mean 23.8
SD
4.7
-5.1 to 1.0
305
23.3
5.2
Confidenceinterval
250
23.8
4.9
229
23.7
5.1
-.8 to 1.0
-4.8 to 5.8
193
23.7
5.3
175
24.3
5.0
-4.8 to 5.8
SS44
Vol. 31, No. 9, Supplement EFFECTS OF ADULT DAY HEALTH CARE ON HEALTH AND SATISFACTION
3.
TABLE
Comparison of Meana SIP Scores at 6 and 12 Months Between VA-ADHC and Customary
Care By Initial Marital Status
VA-ADHC
Customary
Care
Adjusted
MeanDifference
pb
Not Married
6 Months
Physical'
Psychosocial
Total
n
24.7
26.7
26.0
127
28.9
31.6
30.7
116
-2.5
-3.9
-3.2
NS
0.06
0.04
12 Months
Physical
Psychosocial
Total
n
22.9
25.5
25.3
108
27.9
32.7
30.8
108
-4.0
-6.0
-4.7
0.05
0.01
0.01
Married
6 Months
Physical
Psychosocial
Total
n
34.0
39.7
36.8
175
34.9
37.7
36.2
181
.2
.8
.8
NS
NS
NS
12 Months
Physical
Psychosocial
Total
n
33.4
40.3
36.7
154
34.5
36.3
35.2
172
-.2
2.6
1.3
NS
NS
NS
a Multile
criminant analysis) failed to significantly discriminate between the ADHC and customary care groups.
Satisfaction With Care. Satisfaction
with care was measured by an instrument
developed for the ADHC study.2 It was designed to elicit the respondent's opinion regarding the presence of specific aspects of a
care environment that are generally considered indicators of high-quality care.
The respondents in customary care received their care in either a nursing home,
ambulatory care clinic, or home care (although in some cases they reported receiving no care from any source). The satisfaction questionnaire was not applicable to respondents in the ambulatory care clinic;
thus, patients receiving this type of care are
not included in the analysis.2
The findings for patient satisfaction with
care shown in Table 6 indicate that the VAADHC group was significantly more satisfied than customary care patients in nursing
homes, but not more satisfied than patients
in home care. Overall, patients assigned to
ADHC were more satisfied with their care
than those assigned to customary care.
These differences remained even after controlling for level of illness (total SIP score at
baseline).
Care Giver Health Outcomes. Almost
three-fourths (71%) of the patients in the
VA-ADHC study reported having care
givers. Of this number, 76% were spouses,
11% were adult children, and 3% were siblings. The remaining care givers consisted of
parents, long-term care staff, and others.
Care giver ages ranged from 20 to 100, with
a mean age of 62.5 years (standard deviation
[SD], 12.9). Spouse care givers were slightly
SS45
ROTHMAN ET AL.
TABLE4.
MEDICALCARE
Comparison of Meana SIP Scores at 6 and 12 Months Between VA-ADHC and Customary
Care by Initial Patient Satisfaction with Social Support
Very satisfied
6 Months
Physical'
Psychosocial
Total
VA-ADHC
Customary
Care
26.7
28.5
28.2
32.3
31.6
32.4
151
12 Months
Physical
Psychosocial
Total
23.4
27.9
26.0
131
Adjusted
Mean Difference
pb
-2.9
-4.2
-3.5
0.08
0.03d
0.02
-5.2
-3.1
-4.2
0.005
NS
0.01
143
31.6
21.1
31.7
127
Verydissatisfiedto
moderatelysatisfied
6 Months
Physical
Psychosocial
Total
n
31.0
36.3
33.7
35
27.5
37.4
32.9
69
1.4
-0.8
0.4
NS
NS
NS
12 Months
Physical
Psychosocial
Total
n
33.7
37.1
35.7
70
27.8
38.4
33.3
68
3.3
-1.0
1.9
0.06
NS
NS
a Multile
regression used to compare means after controlling for the baseline value of the dependent variable.
P values are based on adjusted mean differences.
cA high score represents greater dysfunction. Scores range from 0 to 100.
d Thedifferencebetween
are deleted.
SS46
Vol. 31, No. 9, Supplement EFFECTS OF ADULT DAY HEALTH CARE ON HEALTH AND SATISFACTION
5.
TABLE
Comparison of Meana SIP Scores at 6 and 12 Months Between VA-ADHC and Customary
Care by Patient's Hospital Status at Enrollment
Adjusted
MeanDifference
VA-ADHC
Customary
Care
Not in hospital
6 Months
Physical'
Psychosocial
Total
n
30.4
34.9
29.8
117
37.7
37.3
34.8
96
-2.5
-3.0
-3.7
0.00
12 Months
Physical
Psychosocial
Total
n
29.8
35.5
32.4
96
39.8
38.0
38.0
74
-5.7
-1.4
-3.2
0.01
NS
0.10
In the hospital
6 Months
Physical
Psychosocial
Total
n
29.9
33.8
32.0
185
30.3
34.7
32.7
203
0.5
-0.6
0.0
NS
NS
NS
12 Months
Physical
Psychosocial
Total
n
28.9
33.4
31.8
164
28.8
33.7
31.6
181
-0.2
-1.1
-0.3
NS
NS
NS
Pb
0.04d
0.01
TABLE6.
VA-ADHC
Care
Environment Mean SD n
CustomaryCare
Mean SD n
VA-ADHCvs.
Nursing
Home
32.9 6.0 199 25.3 8.0 27 0.01
VA-ADHCvs.
Home Care 32.9 6.0 199 32.8 5.3 25 NS
a
T-testsused to comparemeans.
bA high scorerepresentsgreatersatisfaction.Scores
rangefrom 8 to 40.
Discussion
There were no significant differences between the VA-ADHC and customary care
groups on any of the patient or care giver
health outcome variables. This indicates
that, overall, the ADHC program did not significantly improve or even slow the mean
rate of decline in any measured domain of
patient health relative to the customary care
SS47
ROTHMAN ET AL.
7.
TABLE
MEDICALCARE
Comparisona of Meanb Caregiver Psychological Distressc and Burdendat Six and Twelve
Months Between VA-ADHC and Customary Care
Baseline
VA-ADHC
Scale
Psychological Distress
264
Twelve Months
Six Months
Customary
Care
255
VA-ADHC
Customary
Care
216
203
VA-ADHC
Customary
Care
169
180
Physical
Mean
SD
29.5
9.9
29.8
9.9
29.1
9.2
28.9
9.7
28.9
9.7
28.8
10.1
Depression
Mean
SD
14.8
5.2
14.8
5.7
14.5
5.1
14.6
5.7
14.3
5.6
14.9
5.6
Control
Mean
SD
19.8
7.1
19.7
7.4
19.9
6.9
20.0
7.9
19.2
7.4
19.7
8.7
Total
Mean
SD
64.1
20.8
64.3
20.9
63.5
19.8
63.6
22.5
62.4
22.7
63.4
23.9
Caregiver Burden
-2.4 to 1.8
-2.3 to 1.3
Confidence interval
n
262
255
214
202
169
180
Subjective
Mean
SD
12.4
4.3
12.4
4.4
12.5
4.3
12.8
4.4
12.9
4.4
13.1
4.7
Objective
Mean
SD
18.8
6.2
18.9
6.2
21.1
6.4
21.2
6.5
20.8
6.7
21.0
6.9
Total
Mean
SD
33.9
9.3
34.0
9.5
33.6
9.3
34.1
9.3
33.7
9.8
34.0
9.8
-4.5 to .9
Confidence interval
a
-4.5 to 1.5
Multile regression used to compare means after controlling for the baseline value of the dependent variable.
A high score indicates greater burden. Total scores range from 12 to 60.
group. Significant differences were observed, however, for 3 subgroups of patients. Patients who, at study enrollment,
were not married, were most satisfied with
their social support network, or were in hospital had significantly more positive outcomes (lower SIP scores) when assigned to
ADHC than those assigned to customary
care, after controlling for baseline health
status. Examination of the characteristics of
these patient groups, however, did not show
any consistent patterns that might explain
these findings.
The results of the subgroup analyses must
be taken as tentative for 2 reasons. First, because of the large number of subgroup analy-
SS48
Vol. 31, No. 9, Supplement EFFECTS OF ADULT DAY HEALTH CARE ON HEALTH AND SATISFACTION
Mean SD
Customary Care
n
Mean SD
35.6
4.0 178
28.5
7.9 33 0.00
VA-ADHC vs.
Home Careb 35.6
4.0 178
34.3
6.5 36
NS
ADHC versus customary care; thus, the VAADHC programs were not effective in reducing the care giver's psychological distress
or burden.
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SS49