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INTRODUCTION
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6. Ensure that rent supplement and Housing Assistance Payment caps are in line with the
private rental market so that people on rent supplement/HAP have a realistic chance of
securing housing in the private rental market
7. The Department of Environment, Community and Local Government and the Department
of Health should jointly provide a dedicated funding stream for tenancy sustainment
support to at least 180 individuals with a mental health difficulty transitioning from HSE
supported accommodation
8. The Department of Education should provide funding to support the implementation of
the national guidelines on mental health promotion and well-being for both primary and
post primary schools
o
Funding could be used to provide basic training for all primary and post primary
school teachers so that they can identify children/adolescents at risk of
developing a mental health difficulty and promote the mental health and wellbeing of children in line with the whole school approach
there were 63 partially complete community CAMHS teams in place. A Vision for Change
recommends 77 teams.1
The reduction in staff as well as difficulties in multidisciplinary staff recruitment has continued to
negatively impact on provision of the type of service model envisaged in A Vision for Change that
includes community based multi-disciplinary support, home-based treatment and 24/7 crisis
support. This lack of service development is reflected in the modest reduction in the re-admission
rate to psychiatric units from 72% in 2006 to 67% in 2013.2
Mental Health Reform has also heard anecdotal reports of lengthy waiting times for these
multidisciplinary supports due to staff shortages. In Mental Health Reforms public meetings, 2015,
people with experience of accessing mental health services cited waiting lists as a huge problem.
One person explained that you could be waiting two years to see a psychologist. Another
individual spoke about the length of time that elapses between referrals. Its not quick enough.
The Childrens Mental Health Coalition has cited Irish research to report that overall, services remain
substantially under-resourced and families find it difficult to access community CAMHS in Ireland
due to a lack of information, restrictive referral criteria and pathways, lengthy waiting periods and a
lack of out of hours/crisis service.3 A lack of community-based supports has also been cited.
Rehabilitation and recovery services remain relatively under-developed, with mixed performance
against A Vision for Change recommendations. In a review of the Galway/ Roscommon community
mental health services published by the HSE in 2014, the review group commented that, ..
progress has been slow in many parts of the country, with many mental health services having either
no community rehabilitation and recovery teams or only token services.4 It is important that
investment is allocated to the development of rehabilitation and recovery teams across the country,
in addition to homebased and assertive outreach teams.
With regard to innovation, Mental Health Reform has previously welcomed the HSEs commitment
to instil the recovery ethos in all mental health services. Such organisational change requires
resources to support capacity-building of staff, service users and family members/supporters. It is
important to sustain the momentum from the Advancing Recovery in Ireland projects by continuing
to invest in organisational change in 2016.
Daly, A. & Walsh, D. (2014) Activities of Irish Psychiatric Units and Hospitals 2013, Dublin: Health Research
Board, p.50.
3
Childrens Mental Health Coalition (2015) Meeting the Mental Health Support Needs of Children and Adolescents: A
Childrens Mental Health Coalition View, Dublin: Mental Health Reform.
4
HSE (2014) Final Report of the Expert Review Group on Community Mental Health Services in Galway/Roscommon,
Appendix P
Following on from the recovery model, one of the strongest messages to come out of the
consultation that fed into A Vision for Change was that people with poor mental health want
alternatives to medication, including access to counselling and psychotherapy. This view was
reiterated in the Independent Monitoring Groups consultation meetings held in 2012 as well as by
the HSE 5and in Mental Health Reforms consultation meetings conducted in 2011. Despite an
acknowledgement at national level of an over reliance on medication and a lack of alternative
therapies there is evidence that such practices still exist.
In 2014, Mental Health Reform carried out an online survey seeking the views of people with
experience of mental health difficulties. One of the key findings from the survey was the over use of
medication in mental health care. Participants of the survey described that services are:
too quick to prescribe anti-depressantswhich are not always necessary... and extremely
difficult to stop taking.
I have found to be left on medications which weren't suitable for far too long.
[services] have huge focus on medication and no information or support on exercise, diet,
meditation or self-accessed online CBT courses.
The Kilkenny Consumer Panel has also cited concerns about the overuse of medication and the lack
of choice of treatments for people with mental health difficulties. 6
An analysis carried out by Brendan Kennelly has found that 204 million was spent in Ireland on
medications for mental health disorders in 2010 under the GMS scheme, the Drug Payment scheme
and the Long Term Illness scheme. 7
Investment needs to be allocated to the development of alternative therapies in the delivery of
mental health care, and particularly, in access to talking therapies for people being treated within
mental health services.
A Vision for Change includes a dedicated chapter on special categories of mental health service
provision. The Expert Group recommended the development of mental health services for people
who need supports not typically provided by generic mental health services. People with intellectual
disability, co-occurring substance misuse difficulties, or who are homeless all have higher risk of
5
Health Service Executive Primary Care and Mental Health Group (2012) Advancing the Shared Care Approach between
Primary Care & Specialist Mental Health Services: A Guidance Paper, Naas: Office of the Assistant National Director Mental
Health, HSE, p.11.
6
Mental Health Reform (2015) A Vision for Change Nine Years On: A Coalition Assessment of Progress, Dublin: Mental
Health Reform, p. 6.
7
(See Kennelly, B (2014) The economics of mental health care in Ireland, in Mental Health in Ireland: Policy, practice and
law edited by A. Higgins and S. McDaid).
developing mental health difficulties than the general population. Yet these services have received
the least development since 2006 compared to other areas of the mental health service.
A Vision for change recommends that mental health services for people with intellectual disability
should be provided by mental health and intellectual disability (MHID) teams across the country.
Despite, a recommendation of 300 posts for adult MHID in a Vision for Change, there are 12.95 adult
MHID posts under the auspices of or funded by the HSE. An additional 150 MHID posts/ 15 CAMHS
MHID teams were recommended for child and adolescent mental health services. There are
currently only 4.9 MHID CAMHS consultants in post under the auspices of or funded by the HSE.8
Despite the high prevalence of mental health difficulties among people who are homeless,
community mental health teams for people who are homeless continue to be understaffed. The
total staff complement of these teams is only 13.84 WTEs. 9 10 In a study carried out in 2013 among
599 people experiencing homelessness in Dublin and Limerick, 58% said they had been diagnosed by
a doctor with at least one mental health condition, including anxiety, depression, schizophrenia or
psychosis.11 The Dublin Simon Community published a Health Snapshot in 2014 which identified
that 11% of a representative sample of people using Dublin Simon services has a diagnosis of
schizophrenia. Among the individuals surveyed a further 11% of individuals had a diagnosis of
psychosis. The high prevalence of schizophrenia and psychosis among people who are homeless
indicates the need for specialist mental health services in this area.
Specialist community teams designated to address complex, severe substance abuse and mental
disorder have not been developed. The available data indicates that there are seven general
community mental health teams providing an addiction service with a staff complement of 20.4
WTEs.12 In some parts of the country, addiction services are not provided by the mental health
service. According to the HRB activities report on Irish psychiatric units and hospitals, 2,360
individuals were admitted with a primary diagnosis of alcohol or other drug disorder to an inpatient
unit in 2013, representing 12.8% of all admissions.13
There has been some innovative development in the forensic mental health services, including the
introduction of a diversion system into mental health services at remand stage. However, regional,
community-based forensic mental health services remain underdeveloped and there are still no
specialist forensic mental health services for children and adolescents or people with mental health
and intellectual disability. Feedback from the Irish Association of Social Workers is that local CMHTs
are reluctant to take back patients or accept individuals who have become involved with the criminal
8
10
11
OReilly, F., Barror, S., Hannigan, A., Scriver, S., Ruane, L., MacFarlane, A. and OCarroll, A. (2015)
Homelessness: An Unhealthy State. Health status, risk behaviours and service utilisation among homeless
people in two Irish cities. Dublin: The Partnership for Health Equity.
12
13
justice system. Forensic, community based services need to be developed for people with mental
health difficulties as a matter of priority.
In terms of crisis supports, more than nine years after the publication of A Vision for Change, mental
health services are still not uniformly providing the basic model of care that includes 24/7 crisis
intervention, home-based and assertive outreach treatment, with crisis houses, as the norm in all
areas. The HSE reports that 9 of 17 mental health areas have weekend cover in place for existing
mental health service users across the entire catchment area and the remaining 8 have this partially
in place. Ireland continues to have a high rate of suicide, while this gap in crisis services is allowed to
persist. Given that people who use mental health services are at higher risk of suicide than the
general population, ensuring accessible 24/7 crisis intervention supports for this group could have a
significant impact on the number of suicides.
Out of hours is a very difficult time and A&E was a horrible experience. Im bipolar and Ive
had to go to A&E at times when Ive been on a high and it has taken 8 hours, 10 hours and
even 11 hours to be seen. I did actually think after the last time that if I had slit my wrists I
wouldve been seen quickly because I had a physical injury.
Feedback at MHR Public Meeting 2015
though attitudes towards people with a diagnosis of schizophrenia still lag behind. 14 Attitudes
towards people with severe mental health difficulties do not appear to have improved, leading to
their continued social exclusion and hindering their recovery. Attitudinal and behavioural change is a
slow, long-term process that requires sustained support.
2. Recommendation: Continue to fund a national stigma/discrimination reduction campaign
14
See Change (2012) Irish attitudes towards mental health available at http://www.seechange.ie/wpcontent/
themes/seechange/images/stories/pdf/See_Change_Research_2012_Irish_attitudes_towards_mentl_health_
problems.pdf.
15
Information taken from the Increasing Access to Psychological Therapies service in the UK NHS.
See HSE Mental Health Division Operational Plan 2014, p.21.
17
Carr, A. (2007) The Effectiveness of Psychotherapy: A Review of Research prepared for the Irish Council of
Psychotherapy, Dublin: Irish Council of Psychotherapy
16
18
3. Recommendation: Continue to extend the Counselling in Primary Care service to meet the
counselling needs of low to middle-income people with mild to moderate mental health
difficulties and increase the ceiling on the number of sessions to 20
FREE GP CARE/ MEDICAL CARDS FOR PEOPLE REQUIRING LONG-TERM MENTAL HEALTH
TREATMENT
Access to free healthcare is an important issue for individuals with long-term mental health
difficulties who may require long-term treatment for both their physical and mental health. In the
context of Government policy that supports people being deinstitutionalised and living in the
community, lack of a medical card can undermine an individuals ability to access mainstream
primary care and continue their treatment. People who have been receiving mental health
treatment free of charge from mental health services may hesitate to be discharged to their GP if
they think their costs will increase.
Irish research has found that those with low incomes but without a medical card are less likely to
visit a GP. The costs of a GP visit, plus the ongoing costs of multiple prescriptions for psychotropic
medication could deter someone from taking medication that helps to maintain their mental health.
A sudden stoppage of medication due to financial concerns, without adequate preparation or
medical support, could easily result in an individual having a relapse and requiring hospitalisation
which is much more expensive than providing ongoing health services. Lack of security about the
medical card is also known to be a deterrent to individuals with disabilities who might otherwise
take up work.
Mental Health Reform has heard from members of its Grassroots Forum, made up of people with
self-experience, family supporters and family members that the possible loss of a medical card is a
barrier to people with mental health difficulties taking up employment.
One member said that having a medical card and being able to work were like gold. If I had to give
one up I would give up working to keep my medical card. When you are able to keep up work with a
mental health difficulty, you feel part of the real world. At the same time, you shouldnt live in fear
of losing your medical card.
Another member said that forgetting to renew ones medical card was a significant trap for people,
especially older people. The process to reapply for a medical card once it had expired was lengthy
and could put vulnerable people at risk of losing their card.
Mental Health Reform considers that it will be important to provide people with long-term mental
health conditions the security of a medical card, including free prescriptions, in order to help prevent
relapse and support their ability to live in the community.
Insert information from Gateway here. This will not be available until the week beginning 15 th June.
The prescription charge is 2.50 for each item that is dispensed to you under the medical card
scheme, up to a maximum of 25 per month per person or family. (Citizens Information Board)
4. Recommendation: Extend free primary care to all people who require long-term mental health
treatment and abolish the prescription levy for this group
10
Rent supplement caps are too low for people to source appropriate accommodation
Delayed discharges from hospital or supported accommodation one social worker
describes that people often remain in hospital far longer than necessary in some mental
health services because they cannot access appropriate accommodation. The duration of
hospital stay has extended to over a year in some cases
Individuals living in unsuitable accommodation are unable to secure alternative
accommodation under the rent supplement cap, therefore, worsening their mental health
Existing rent allowance tenants are being asked to leave their current accommodation and
properties are being re-let for higher rents
The rent supplement cap has resulted in older people becoming homeless, seeking nursing
home accommodation rather than rent-supplement accommodation, despite the fact that
many are well functioning, or require only minimal supports
People are leaving their own communities where they have social supports, in order to
source accommodation in other areas where the rental market is slightly cheaper
11
People already in accommodation are waiting for their leases to expire and then entering
homeless services due to rent increases
Overall, the social workers consulted agreed that rent supplement caps are out of line with market
rates. Rental tenants are competing for limited housing stock and rent allowance tenants are at a
greater disadvantage in competing for remaining properties due to the rent supplement caps.
However, the difficulties in securing rental accommodation go beyond the rent supplement caps. In
situations where rent supplements are increased to market value, landlords appear unwilling to
accept rent allowance. This ultimately is having a detrimental effect on peoples mental health,
including individuals with pre-existing mental health difficulties. One social worker states People tell me they are suicidal, they tell me they self-harm, that they feel like bad parents, like
failures because they cant provide a safe and secure home for their family. They tell me they are
being made [to] feel inadequate and shamed by landlords and estate agencies when they say they
are on rent allowance.
6. Recommendation: Ensure that Rent Supplement/Housing Assistance Payment caps are in line
with the private rental market to ensure that people on Rent Supplement/Housing Assistance
Payment have a realistic chance of securing housing in the private rental market
DEPARTMENT OF ENVIRONMENT
An on-going difficulty in preventing homelessness and promoting deinstitutionalisation is the lack of
a dedicated funding stream to provide medium and long-term tenancy sustainment support to
individuals with long-term mental health difficulties. The Implementation Framework for the
National Housing Strategy for People with Disabilities recognises that the HSE will be required to
continue to provide health and personal social services for people transitioning from mental health
service accommodation. 22
The interim protocol agreed as part of the Housing Strategy for People with Disabilities states with
regard to people transitioning from institutional settings that:
10.5. The appropriate supports from the HSE/Service Provider must be put in place for the
individual and any services already being provided by the state should be assessed and continued if
appropriate. A protocol will be put in place between the Housing Authority and the HSE/Service
Provider to ensure that the appropriate supports are maintained for the individual.23
22
Department of Environment, Community and Local Government (2012) National Housing Strategy for People
with a Disability 2011-2016: National Implementation Framework, p.11.
23
Department of Environment, Community and Local Government (2013) Protocol for the Provision of Housing
Support to People with Disabilities (draft).
12
However, there is currently no dedicated funding stream within either the HSEs or the Department
of Environment, Community and Local Governments budgets for tenancy sustainment support. The
HSEs guidance paper Addressing the Housing Needs of People using Mental Health Services
illustrates a range of housing and housing support models currently in operation which emphasise
and underpin the requirement for tenancy sustainment support for those transitioning from mental
health service accommodation.
It is important that a dedicated funding stream for tenancy sustainment support is provided so that
the Governments policy of deinstitutionalisation is not hindered by a gap in housing support in the
community.
In 2016, it is reasonable to expect that each of the nine Community Healthcare Organisation would
support 20 individuals currently in HSE supported accommodation into appropriate independent
living or other social housing in the community, with financial support for these individuals to
maintain their housing to come from both the Department of the Environment, Community and
Local Government and the Department of Health.
7. Recommendation: The Department of Environment, Community and Local Government and the
Department of Health should jointly provide a dedicated funding stream for tenancy sustainment
support to at least 180 individuals with a mental health difficulty transitioning from HSE supported
accommodation during 2016.
DEPARTMENT OF EDUCATION
In January 2013, the National Guidelines on Promoting Positive Mental Health and Suicide
Prevention in Post-Primary Schools were published.24 These were followed by the publication of the
National Guidelines on Promoting Positive Mental Health and Suicide Prevention in Primary Schools
in January 2015.25 While the publication of these guidelines is a welcome first step, training and
support for teachers is needed in order to implement a whole school approach.
24
Department of Education and Skills (2013) Well- being in Post Primary Schools: Guidelines for Mental Health Promotion
and Suicide Prevention, Dublin: Department of Education and Skills.
25
Department of Education and Skills (2015) Well- being in Primary Schools: Guidelines for Mental Health Promotion,
Dublin: Department of Education and Skills.
13
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