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In Control’s Quarterly Newspaper > www.in-control.org.

uk > issue 10 > Big Event 2010


In issue The ‘F’ word: Editorial: How to spot a Goodbye and

10 flaws in the
system > p.3
Beyond social
care> p.4
good provider
> p.6
thanks, Jo
> p.9

BT CONVENTION CENTRE LIVERPOOL 2010


Events
Guide
Exhibitor pages 
p.12 – p.15
Full Programme and Exhibitor profiles inside
Our sponsors p.11

Genie out of the bottle


Workshop pages 
p.20 – p.24

Social care debate – politicians miss the point Film and


It isn’t often that social care makes headlines. But recently, photos at the
politicians have been getting very heated about the future of social Big event
care. Accusations have been made, meetings boycotted, cross-
party agreement forgotten. Unfortunately, all this energy has been
expended while barking up the wrong tree. When the politicians and
media talk about social care, they restrict the debate to the important
but very narrow question of how will we pay for care for older people? The Big event video crew,
John Hewett and Carl
In Control has been highlighting It’s no good simply debating Poll, may ask you for an
since 2003. But the questions whether there should be a death interview. You don’t have to
asked and answers given by the tax. Take just one example of oblige. But you may fancy
political parties are limited by a a wider perspective: transition seeing yourself on the
lack of real understanding of the from childhood to adulthood. For In Control website and we’d
benefits of people having choice disabled youngsters and their be very grateful.
and control. families this period is often a
time of great worry and pressure. The Big event photographer,
Not about a death tax Jo Pearson, will be taking
But, In Control has evidence that shots around the event. If
The future of social care must be having a Personal Budget that is you don’t want to appear
about all of us through the whole preserved through this process is in photos on the In Control
Let’s be clear: we need a national of our lives – and all aspects of a straightforward and cost- website or in a publication,
debate about the funding of our lives: from infancy to old age; effective way of making life better please tell Jo ‘no photos’.
social care. Politicians have, it when we are learning, at work, and less stressful for everyone
seems, finally woken up to some at leisure; our health, family, – the young person, their family
of the very tough challenges that friendships and community. and professionals. Cont. P2

1
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Publishing information
In Control NOW! is a newspaper produced
by In Control, a not-for-profit organisation
and registered charity working for social
change.
Registered office:
Carillon House, Chapel Lane, Wythall,  
West Midlands, B47 6JX

Subscribe
Subscribing to In Control NOW! is free.
For an electronic copy please email:
admin@in-control.org.uk
or visit: www.in-control.org.uk/news
In Control NOW! is published by
In Control Publications, PO Box 45377,
London SE14 5JU
Distributed by In Control NOW!  
Carillon House, Chapel Lane,  
Wythall, West Midlands, B47 6JX

Production
Editor: Carl Poll
carl.poll@in-control.org.uk
Design: Henry Iles
henry.iles@in-control.org.uk
Print: Quotemeprint
www.quotemeprint.com

In this issue
Genie out of the bottle . ........................................ 1-2
The ‘F’ word . ............................................................................ 3
Editorial: Beyond social care /  
Get the report! ................................................................ 4
Unleash creativity, save money of where we live, who we are and what 5 minutes with Abnormally
we contribute. Having relationships and Funny People ..................................................................... 5
We have learned that by enabling people feeling good about ourselves make us Spotting a good provider ......................................... 6
to take real control of their money, their healthier and reduces our need for social Welcome Czech! / Thanks Jo! . ............................. 7
support and their lives as citizens, we can care.
KEYNOTE SPEAKER pages .................................... 8-9
save the taxpayer money. Giving people
Harrow: the future is orange /  
control unleashes their creativity – a This debate is a genie that is out of its Making it happen . .................................................... 10
resource that has never been used by the bottle. The politicians can’t push it back
Big event sponsor pages ........................................ 11
traditional social care system. In Control’s in by distracting us with squabbles over
Map 2. Ground floor Exhibitor plan ........... 12
research clearly suggests that the more funding options. The Big Event is proof that
Exhibitor list / Exhibitor profiles .......... 13-15
people have Personal Budgets, the more we are all members of a social movement
Products and Programmes/  
money the country will save. of engaged citizens and families who
Partnership is productive . ................................ 16
demand change. We have many allies in
Personal Budget user in TV ad campaign /
local authorities, in provider organisations
Reducing need Free USB memory stick! . .................................... 17
and in our wider communities.
Report - Your Support, Your Way /
This is not just an issue of social care.
Safeguarding and Risk event /  
It’s about people making use of the Over the past six or seven years we have
Inspiring exhibition ................................................ 18
same community resources as everyone developed Self-Directed Support as the
Numbers rise steadily /  
else – schools, shops, buses, swimming means to take control of our lives, and we
New factsheets ............................................................ 19
pools, libraries, clubs. It’s about growing should see the so-called funding crisis as
the Big event programme ........................... 20-23
friendships and relationships within our the opportunity we need to ensure the
Map 1. First floor: workshops . .......................... 24
communities so that we can be proud politicians listen to what we have to say.

2
The ‘F’ word
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

A lot of effort has gone into personalisation. You’d expect big


improvements in the lives of people who need support. But
you’d be disappointed. Too little has changed. Often the effort
has simply gone into attaching new words to old behaviours
says Julie Stansfield, In Control CEO.
Why? We can find some answers in Russel is that you?’ In Control and Putting People by keeping the purpose – better lives and
Ackoff’s Management f-LAWS. We need to First have created guidance that uses a new stronger communities – right up front.
pay attention to three f-LAWS if we want real vocabulary. But, often, the same old practice
change: 1) leadership 2) a sense of urgency is dressed up with the new words. Real Answers to the following questions can tell
3) action to change the whole (rather than change can’t happen unless we are deeply us how much those in positions of authority
tinkering with parts). dissatisfied with the way things are. You want real change:
can’t stop smoking unless you’re really fed
f-LAW 1: Leadership is based up with being a smoker. And we can’t expect  How much do we invest in
people who apply for services to drive the discovering the leadership stars in our
on talent and talent can’t be change. area?
taught.  What do we invest in supporting
They come to services as a last resort and those stars to increase their
Significant change can’t happen without at a time of crisis. They will generally accept knowledge and skills and develop
inspired, hard-working, risk-taking dysfunctional services because they don’t their ability to influence real change?
leadership. All the leadership programmes in know there could be a better option. Making  How many of the people paid to
the world can’t make leaders out of people the public aware of the damage done by the take responsibility for planning and
who lack talent or don’t care. This doesn’t existing system needs courageous leaders implementing change have direct
mean that leadership is scarce – as long as who have the guts to work urgently for experience of receiving services?
we include but look beyond people with something better.  How much time do managers spend
manager titles: people who use services, in people’s front rooms, listening to
families, community and business people, f-LAW 3: You rarely improve those who use the services?
and the stars in service organisations.  How many change managers have
But too often authorities don’t invest in
an organisation as a whole by mentors who use services?
developing citizen leaders. Instead, they improving the performance  How clearly and publicly do those
advertise for project managers. Passion for
real change in people’s lives isn’t necessarily
of one or more of its parts. in authority acknowledge that the
current system can’t work?
a requirement in job ads. We often hear managers say ‘We haven’t  Do they present a vision of how the
got to the co-production part yet. We are whole system can better serve the
f-LAW 2: The only thing still working on the Resource Allocation whole community?
System’. This piecemeal approach can’t work.
more difficult than starting If bureaucratic processes define how change Answers will get better as a social movement
something new is stopping can happen, then things will get stuck – of ordinary citizens grows and demands
something old. people may get an allocation but have no one
to work with to design support that really fits.
change. The energy to build this movement
will come from those who believe the
Recently, a woman rang the In Control advice current system is unacceptable.
line and said: ‘My social worker told me I am Leaders create a vision of how each part
being put into the personalisation service, fits the whole. They motivate the change More information: www.f-laws.com

3
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Beyond social care children’s services, the NHS and


those involved in community
development.

In Control’s new report says the future


Editorial  is bright – if citizens take the lead
The report recognises that
we are now all members of a
citizen-led movement for social
change. In Control is part of the
These are worrying times – a other spheres of life – not just young people in care, disabled leadership of this movement,
bleak economic outlook means adult social care. children living at home with through its sponsorship and
public spending is set to fall families; adults with long-term stewardship of programmes
significantly. There is a bright This realisation fits with our health conditions; learners at like Partners in Policymaking, a
light in the gloom though: more everyday experience: the boxes college; people seeking work; grassroots network of disabled
than 30,000 people in England government uses to categorise us ex-offenders, homeless people, people, their families and
have a Personal Budget. Most – health and social care; older and those with drug and alcohol friends. Our work is changing:
are adults who use social care younger adult; physically disabled problems and many more we need to get better at listening
services. and mental health user – are not groups. to and amplifying the voices and
how we think of ourselves. In legitimate demands of ordinary
Since 2003, In Control has reality, we all have the same The Report on In Control’s Third people; we need to become
mostly worked with local basic needs. We each have our Phase (2008-2009) describes more effective in helping public
authority adult social care individual strengths, weaknesses how In Control has come to bodies translate these demands
departments and service and preferences. We all need this important conclusion, into action; and we need to
providers. We have learned a to be needed. So, it should particularly through our become more adept at building
lot in that time. One of the most come as no surprise that Self- work with 20 leading Total alliances between all who share
exciting realisations is that Self- Directed Support as a means to Transformation local authorities In Control’s beliefs. The work of
Directed Support and Personal choice and control applies to and our early experiences In Control’s next phase will seek
Budgets are just as powerful in the whole of life: children and with a new set of allies: in to do all of these things.

Get the report!


E
pHAse 2008-2 009
Cont rol’s tHirD
A report on in

E A report on in
Cont rol’s tHirD
pHAse 2008-2 009
Local Authorities
Individual
Responses
Family Carers 69
5
Finance situation 5
67
for
Standard of living the person you care
Relationship with 5
71
Dignity in support
significant other
Relationship with 5
69
Feeling safe
l over your life 74
Control over support
Choice and contro 5
the planning
Taking part in commun
ity Equal partner in 5
68
well
on caring and remain 70
Quality of life Support to carry 5

A report on In Control’s Third Phase


Being with people
you want
Quality of life 72
5
ing 70
Health and wellbe
Health 90% 100%
80%
30% 40% 50% 60% 70% 5
take paid work
0% 10% 20%
Capacity to under 70
Same Worse 5
Improved
life

A report o
Leisure and social idgesh ire, Hertfordshire
,
Cambr
ated findings ey, North Lanarkshire,
ction levels: aggreg Data from : Barnsl
EVAL Fig. 05: Satisfa Worcestershire.

Evaluation and learning 2008-2009 More than two-th


irds of people using
personal Budgets
reported that the
overall quality of life
control they
(68%) had improved
since
n EVAL Fig. 06: Numbe
r of carer responses by domain

in Control
rt (66%) and their
had over their suppo
al Budget.
they took up a person a more Leisure & social
life

’s
with people they wanted to (58%), taking
more ke paid work
spending more time were supported with Capacity to underta
A majority reported , feeling that they t. g
local community (58%) up a personal Budge Health and Wellbein
active role in their (51%) since they took Quality of life

Third Phas
feeling in better health
dignity (55%), and half

Andrew Tyson, Rita Brewis, Nic Crosby, Chris Hatton, Julie


than well
(52%), more on caring and remain
Support to carry
(58%) and standard of living the planning
feeling safe Equal partner in
in the domains of a personal Budget.

e
over your life
after they took up Choice and control
reported no change took up a Sig other
got worse after they Relationship with
that their life had for
than 10% reported Relationship with
the person you care
in all domains, less

Evaluation
Finance Situation 90% 100%

Stansfield, Caroline Tomlinson, John Waters, Alicia Wood


personal Budget. 60% 70% 80%
30% 40% 50%
0% 10% 20%

an
learning 20 d
Same worse
Improved

Family Carers us whether their lives


had
local authorities told t for ction levels: family carers
family carers in five of a personal Budge EVAL Fig. 07: Satisfa
Between 68 and 74 since the introduction

Contents:
08-2009
of an
same or worsened had become more
improved, stayed the carers reported they
of the carers’ lives. rs (77%) of family al Budget.
their relative in ten
domains More than three quarte e had taken up a person
ng since their relativ
equal partner in planni of life (63%), the
in their quality
These domains are: improvements l over
carers also reported , their choice and contro
A majority of family remain well (62%) and
situation carry on caring and e situation (55%),
◆◆ their finance support they got to ing (57%), their financ
e
with their relativ their health and wellbe
◆◆ their relationship other
their lives (57%), (54%).
with a significant a significant other
◆◆ their relationship their relationship with change in
l over their own life ed either improvement or no
◆◆ choice and contro report leisure
the planning proces
s ers of family carers no change); and their
equal partne r in Around equal numb (48% improved; 46%
◆◆ feeling like an well their relationship
with their relative
and remain change).
◆◆ support to carry
on caring improved; 44% no
and social life (49% (60%).
life undertake paid work
◆◆ their quality of in their capacity to

 Getting ready for Self-Directed Support


ed no change
wellbeing Most family carers
report
◆◆ their health and
work
to undertake paid
◆◆ their capacity 141
social life.
Evaluation
◆◆ their leisure and

 Basic tools for change 140 Evaluation

 Changes in the commissioning and provision of support


 Looking ahead
 The impact of Personal Budgets 2005-2009

‘The work described in this report and the social movement


which is growing around it are beginning to form a tide Buy the report from In Control Support Centre:
which will not be turned back.’ Tel. 01564 821 650. Email: admin@in-control.org.uk
Post: In Control Support Centre, Carillon House,  
Chapel Lane, Wythall, West Midlands, B47 6JX
Richard Jones, Executive Director of Adult and Community Services, Lancashire
County Council Or download it FREE from: www.in-control.org.uk

4
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

5 minutes with...
What are Abnormally Funny People
about?
We’re a group of gifted, very funny disabled
comedians with a token non-disabled

Abnormally Funny People


comedian.
Who’s in the current line-up?
For the Big Event we have Paul Betney,
Steve Best, Liz Carr, Laurence Clark, Steve
Does the comedy troupe, Abnormally Funny Day and a performing goldfish called Rusty.

People, really feature a performing goldfish Who’s the funniest?


Me, no me... no me, no me... Me.
called Rusty? Find out here... A typical week for Abnormally Funny
People?
Monday to Sunday.
High point?
Steve Day: 6’ foot 1”. Also selling out at the
Edinburgh Festival and performing at the
Labour Party conference where Tanyalee
Davis from Abnormally Funny People
pinched David Blunkett’s bottom.
Scariest moment?
David Blunkett on the rampage after being
pinched. Also Liz Carr nearly dying (not on
stage, but for real) before one of our gigs in
Edinburgh.
What’s in store for the future?
Michael J Fox. Also, we are in talks with
BBC2 about a sitcom idea. We hope to go
on tour to Australia in 2011. And, of course,
we will be bringing world peace through a
Facebook group.
The secret of your success?
Drinking ginger tea in the morning.
Knowing how to fill out the lengthy Arts
Council Grants Form. Remembering that
being funny is more important than being
preachy.

www.abnormallyfunnypeople.com.

Catch Abnormally Funny People’s act at the


Big event. They will perform several times during the
day in the Comedy Club. AND don’t miss Moveable
Feast – favourites at the 2009 Big Event – performing
at 12.00, 1.00 and 3.00 on the Pagoda Stage.

5
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

How to spot a Peter: ‘If you don’t know


‘Hi, I’m Pete. I
live in Norris
Green. I’ve lived in the same
where you’re going…’

good provider
house for 13 years. Before that, So how do you spot a great
I lived in Rampton Hospital for provider? Is it possible to identify
38 years. I’ve always dreamed those likely to get it right and
of flying so a few years ago I those who are just part of an
headed to Dublin for a day out. industry? There are things you

Serviceland may sound suspect,


It was great – not least because I can do. Try and spend time with
could enjoy a proper pint at the the organisation, maybe visit

but there are some great support


Guinness brewery. (An occasional one or two of the people they
drink would be one of my other support. Ask tough questions

providers out there, says


interests!) After that, it was – about their recruitment and
off to Majorca. Holland next. training of staff, about how they

Richard Williams
When I’m at home, I’m involved listen to people, about what the
in all sorts. I go caravanning, organisation does to keep good
go to my local boxing club, and staff, about what they’d do in all
grow my own vegetables on the sorts of situations. Demand real
allotment. Summer evenings, we answers and don’t be fobbed off
have BBQ’s down the allotment with woolly ones.
with some of my friends. I reach
retirement in April and life is Serviceland may well
good.’ include some really terrible
organisations. But there are also
Two great people who have great some stunningly good ones,
things happening in their lives. including many small, highly
Both stories from serviceland, responsive organisations that
that mysterious and much- provide great support. Mark
criticised place inhabited by paid Twain wrote ‘If you don’t know
staff. I’m sure some serviceland where you are going, any road
stories are shockingly bad and will take you there.’ Does the
some providers may not care two provider know where it wants
hoots about people they support. to go? If it’s on a journey to
somewhere you want to go,
But we should not assume that maybe you’ve found some great
any model or type of support is support.
all good or all bad. I’m intensely
proud of the support our Richard Williams is Chief Executive of
Edel: ‘Give me a pub and a karaoke machine’ dedicated and passionate staff Options for Supported Living and Co-
provide day in, day out. Staff founder of DELI

Edel: ‘How was your


Christmas? Mine
was brilliant. Some of my family
Val on holiday in France. We’re
friends now). My cooking skills
are improving and I’m learning
work really hard because they
are driven by the idea of people
living their lives to the full.
More information:
www.optionsforsupportedliving.org
live in Dublin, so I flew there to new recipes. I also have a job a
spend time with them. We had few hours a week. I get a proper
a ball together. I flew to Dublin rate of pay. I’ve learned to use the
by myself – a bit different from bus by myself and I go to work
when I spent Christmas in the without support.
children’s home. But most things
are pretty different from my There’s also the gym –
years in the home. sometimes I’m keen, sometimes
not so. But give me a pub and a
I have my own house now – a karaoke machine and I’m happy.
cosy terrace in Liverpool. I’ve lived My support used to be 24/7, but
there since I left the home. I have it’s much less now – three sleep-
my own staff team. ins a week and three or four
hours by myself each day. It’s
What do I do? For one thing, great to have my independence
I make jewellery with Val to and not have people around me
sell at country markets. (I met all the time.’ Peter at the local boxing club

6
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Welcome Czech Republic! Thanks Jo!


In January, In Control and a Czech Jo Williams, Chair of
organisation sealed a partnership to promote In Control’s Board of Trustees
personalisation in the Czech Republic. Quip since 2003, is stepping down.
– The Association for Change in the Czech Jo Williams will
Republic – has been awarded funding by the retire from her
position as Chair
European Social Fund to identify and promote of In Control at the
best practice in social care across Europe and has chosen to end of March 2010.
She is stepping
focus on personalisation in England.  down to take up
the challenging
In Control England will provide ongoing ‘In Control is a community of learning. position of
support to Quip, beginning with a study We don't always know the solution to Acting Chair for
tour to showcase progress being made in difficult problems but we do know that, if the Care Quality
England. we work together, listen to each other and Commission.
share our learning openly, we can make
Milena Johnová, Quip’s Director, said:   a big difference. I'm delighted to have an Julie Stansfield, In Control’s CEO, says:
‘We are delighted to be able to partner with opportunity to share the work we have all
In Control on this exciting project. Things done with Milena and her colleagues.’ ‘We want to pay special tribute to Jo. She has
are very different here in the Czech Republic been with In Control from the very beginning
and I know our Government will be keenly Quip was founded in 2003 to support the in 2003 and has been instrumental in getting
interested in the work in England. So much development of good practice in social the organisation to where it is today. Jo
has been achieved there.’ services, promote education and raise has been tremendously supportive of both
awareness of the rights of social service In Control and shop4support. We have been
John Waters, who leads the partnership users, especially those with learning very fortunate to have benefited from her
for In Control, is optimistic about the difficulties and complex needs. expertise over the years. We are sorry to see
opportunities presented by this new her leave but wish her every success in the
arrangement:   www.kvalitavpraxi.cz future and in her new role.’

Jo Williams has spent more than 30 years


in local government. She began her career

International Hub
as a social worker at in Shropshire. She
then worked in a variety of operational and
managerial roles, including a ten-year stint
In Control's International Hub meets twice a year to share best practice   as a director of social services before joining
and ideas on personalisation. Members include Australia, Scotland, Wales, Mencap as CEO in 2003. In 2005, she was
Northern Ireland, USA, Japan, Finland and the Czech Republic. named the most influential person in social
care by Community Care magazine and, in
2007, was awarded a D.B.E in the Queen’s
The Big event: a busy day, but make sure you New Year Honours list.

leave time to visit the 101 exhibitors Commenting on her resignation, Jo said:

Exhibitors are waiting to tell you about ‘I have thoroughly enjoyed being part
what they do (and give you free pens and of such a passionate and forward-thinking
sweets) in the exhibitor hall. They are some organisation and I am immensely proud of
of the most interesting and progressive self- what has been achieved in such a short time.
advocacy organisations, support providers, There are so many wonderful examples of
consultants, trainers, software producers, how people’s lives have been transformed as
equipment makers, emarket producers, a result of In Control’s work, and this is the
theatre groups, and quilt makers(!) in the true measure of its success.’
country.
In Control is now seeking a new Chair to take up post
For the complete listing see pages: 12-15 from April 2010.

7
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

KEYNOTE SPEAKER KEYNOTE SPEAKER


Personal Budgets: Decide to make it
cheaper, better, happen
happier! In an era of ‘desperate uncertainty’,
Mark Pollock suggests how we can cope
In public policy, it doesn’t get better than
Six marathons
that, says Philip Collins of Demos
in a week
of the budget puts the individual Amongst other sporting
in charge. achievements, Mark has
completed six marathons
in one week in China’s Gobi
The idea will spread Desert, taken part in the coldest
marathon in the world at the
There are some common North Pole, and raced over
criticisms of Personal Budgets: 1,000 kilometres to the South
‘Chaos will ensue.’ ‘ Collective Pole in 2008 – a world first.
services will be destroyed.’ ‘The
least capable will lose out.’ It is Mark helps people to redefine
important that the regulations what is possible. He believes
around Personal Budgets, that the key to success lies
as with any policy, are clear in taking control of your own
and help us to avoid obvious life.
Personal Budgets are the in-thing distortions and abuses. But When Mark Pollock lost his
for politicians of all persuasions – the idea that people need to sight in 1998 at the age of 22, By drawing on his experience
at least in theory. All three major be told what is good for them he thought his life was over. He of desperate lows and massive
parties have Personal Budgets is deeply patronising. With the was a student at Trinity College highs, Mark inspires and
in their social care policies. right advice and help, the vast Dublin, an international rower motivates business, sports and
There is good reason for their majority of us can take greater and about to take up a career as public audiences throughout the
enthusiasm. The task for public control of our lives. an investment banker in London. world. As a motivational speaker,
services after the financial crisis In the depths of despair, Mark his message is one of ‘deciding
is to do more with less. All the Personal Budgets will be a bigger contemplated giving up. to avoid excuses, and deciding to
evidence suggests that, by letting challenge to public services make it happen’.
people buy services themselves, than we think. As the idea The story of how he overcame
they are likely to spend less, get spreads, it will change all the the odds to rebuild his life Mark Pollock is a keynote speaker at
better outcomes, and be happier funding flows. It will alter the and exceed his wildest the Big Event.
about it, too. relationship between citizen expectations now inspires
and provider. Organisations that people the world over. www.markpollock.com
The case for Personal Budgets offer services have to be become
is yet stronger than that. Even more responsive to citizens. It
if Personal Budgets cost the will not be easy and there will be
same as traditional provision concerted opposition. But, in the
and achieved similar outcomes, end, the idea will spread. Cheaper,
they would still be a good idea. better, happier – in public policy,
That’s because they embody it doesn’t get better than that.
individual power and control.
They recognise that people know Philip Collins is Chairperson of the
what is good for them and have Demos Board of Trustees and a keynote
the knowledge and the right to speaker at the Big Event.
run their own lives. Of course, we
all need expert help but control www.demos.co.uk

8
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

KEYNOTE SPEAKER KEYNOTE SPEAKER


It’s not just about Better law for older
Personal Budgets and disabled people
Local networks and community capacity can People should not have to look at more than
solve the conundrum of rising expectations 38 Acts of Parliament to work out what the
and spending constraints, says Matthew Taylor system is, says Frances Patterson QC
emphasis on social capacity.  introducing a single and
The key question is: how can explicit duty to assess
public services tap what former individuals’ needs
Number Ten advisor, David  a duty on local authorities to
Halpern, calls ‘our willingness to provide community services
act responsibly, to trust, to care for all those eligible
for others, to volunteer and be  the introduction of a single
philanthropic’. duty to assess the needs of
any carer
Understanding social  a statutory duty on local
authorities to investigate
For at least the next five years,
networks: crucial when they suspect that
the public sector will have to try Crucial to enhancing community In February, the Law Commission, vulnerable adults are being
to meet growing demands with capacity is understanding social which advises the Government abused or neglected.
fixed or shrinking budgets. If this networks. Strong networks give on law reform, proposed the
is not to be a depressing and people opportunities and help most radical shake-up of adult The Law Commission’s review
socially divisive process of year- them to be resilient in the face of social care law for more than 60 does not look at the funding
on-year service cuts, we urgently misfortune. But disadvantaged years. Overhauling the outdated of adult social care or what
need new ways of doing things. communities often suffer from laws that govern the care services should be provided and
weak networks, with few hubs, provided to older and disabled is independent of the current
In Control has driven one of the few connections and few bridges people will save unnecessary red Government proposals about
most powerful public service to the outside world. An RSA tape, delays, litigation and public the funding of care for older
innovations of recent times. The project in Lewisham and Bristol money. people. The Commission is
idea of moving from spending is mapping networks and developing recommendations
for to spending by people is one exploring how communities can The law governs how individu- for reform to ensure that
of a number of developments we better develop them. als’ needs are assessed, who disabled people, older people,
are likely to see among forward is eligible to receive help and carers, and professionals
thinking public authorities. Spending constraints offer an what services are provided. But working in the field can be clear
This is not just about Personal opportunity to be bold and the rules are spread across 38 about users’ and carers’ rights to
Budgets; at the collective level, innovative. The big unanswered separate Acts of Parliament and services. It aims to bring clarity
there are also ideas about question is whether, given most services are still delivered to the system of social care.
communities running their own public anxiety about service under an Act of 1948. There is
assets and employees running cuts, Whitehall will resist the also a mass of policy guidance. A consultation on the proposals
services as mutuals or co- temptation to increase central This can cause confusion, delay closes on 1 July 2010. In Control
operatives. prescription. Increasing local and inconsistency. has been working closely
discretion is essential if agencies with the Law Commission
Another theme of reform will are to have the scope to turn The Law Commission suggests and is making a substantial
be behaviour change: seeking challenge into opportunity. a single, clear and modern contribution to the consultation.
not just to meet needs but to statute to replace the current
enable and encourage people to Matthew Taylor is Chief Executive of the legal framework. Provisional Frances Patterson QC is the Law
be more self-sufficient and pro- Royal Society for the encouragement of proposals include: Commissioner leading the project and is
social. And, as our capabilities Arts, Manufactures and Commerce and a keynote speaker at the Big Event.
are largely expressed through a keynote speaker at the Big Event.  establishing a core set of
our interaction with other overarching principles to To take part in the consultation:
people, I expect to see a greater www.thersa.org guide social care decisions www.lawcom.gov.uk

9
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Harrow: the Making it


happen in
future is orange Croydon
shop4support is critical to achieving Harrow’s
personalisation targets, says Paul Najsarek New citizen
leadership course
In Harrow we’re encourages the creation of social capital. In Control is working with Croydon
passionate about Within the website there will be a social Council to run Making it happen, a
Self-Directed Support networking area called My Life as well as new citizen leadership course. The
and we’re proud Community Catalogue pages that will allow programme will help people to gain
to be recognised people to access information about free and the knowledge and skills to plan better
as a champion of community-based services in Harrow, as well futures for vulnerable people and their
personalisation in as information and advice. families in the London Borough.
London. So it makes
sense that we were the first local authority As for safeguarding, the website will be The course consists of five two-day
to use shop4support. We set ourselves a self-regulating. Users can rate services and sessions covering topics such as:
challenging target: products and we’re working
to ensure that the facts about with shop4support to  Why things are the way they are.

shop4support
majority of people have develop an accreditation Understanding and relating to
a Personal Budget by system for providers. One systems.
April 2011. To achieve of the most important  Creating the right support.
this target we needed shop4support: factors in the development  Making change happen locally and
help – the traditional  the only working eMarketplace of shop4support for us has nationally.
system just could not  majority-owned by In Control been the relationship with  Listening, learning, planning and
support personalisation  a social enterprise: any profits the team. The enthusiasm creating together.
on this scale, long-term. will be re-invested for developing something
That’s why we needed  co-owned by E-procurement that truly gives people Making it Happen is a free course with
shop4support. specialist, Valueworks, which choice and control over 25 places available to people who as a
has invested £2.5 million their support is inspiring result of a disability, illness, dependence
Putting people at the  has taken three years to and it has been fantastic to on drugs or alcohol or older age, need to
heart of change is develop. work with people who fully support to live the lives they want. It is
something In Control understand the sector and also open to families, carers and other
is very good at, so are motivated by bringing supporters.
when they collaborated with Valueworks to positive change (not commercial gain).
develop the social enterprise, shop4support, In Control and Croydon Council are
they were, I believe, onto a winner. Although it’s still early days, we’ve made looking for participants who:
significant progress since we first met the
More than an shop4support team in March 2009. I’m
excited that the Community Catalogue
 are keen to be part of a strong
community network
e-marketplace pages are now live. Our second phase of
development will bring Personal Budget
 want to be champions in Croydon
 are passionate about people’s right to
shop4support has the needs of individuals holders and providers online. be included
at its core and it brings service users and  are committed to action! Working
the market together in a cost effective way This is a pioneering partnership and I am with other people to make life better
that would be difficult to achieve without delighted that Harrow is at the forefront of for people who are vulnerable
the right technology. It also allows local this development. Exciting times are ahead.
authorities to help shape and develop The course runs from May to September
the marketplace. We can easily analyse Paul Najsarek is Corporate Director of Adults and 2010.
service users’ needs so we can match these Housing at Harrow Council
with the provider offer. But shop4support More information:
is much more than an e-marketplace. It More information: www.shop4support.com/harrow helen.bothamley@in.control.org.uk

10
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

SPONSORS OF THE BIG EVENT 2010


Alternative Futures Group
‘A world where people control their lives’

Alternative Futures Group is a charitable Since 1992, Alternative Futures Group has
company providing care and support to built a good reputation for quality and price
people with mental health problems or in learning disabilities and mental health
learning disabilities in the North West. services and has seen significant growth.
Personalisation is the foundation and driver The Organisation currently supports 786
for all Alternative Futures services. Our Vision service users in a range of services, but
– ‘a world where people control their lives’ – principally supported living.
is the fundamental ethos for those who use
our services and for our staff. www.alternativefuturesgroup.org.uk Sean: in control at last and living life to the full

Careworks
‘An unrivalled understanding of systems
to deliver Self-Directed Support’
sector is commissioned and manages care
delivery. Until now, this sector has not
embraced computerised care management
systems in delivering social services. Self-
directed care makes the effective use of IT an We have a proven track record in providing
imperative. highly effective social care management
systems to local authorities and we are the
CareDirector enables voluntary organisations only software vendor to offer a social care
to meet these challenges and efficiently solution based on world-leading customer
deliver services under the self-directed management technology from Microsoft.
model. Built on Microsoft Dynamics CRM, We have an unrivalled understanding of the
CareDirector provides an off-the-shelf systems needed to support the effective
The move towards self-directed and solution that is flexible, easy to use and fully delivery of Self-Directed Support.
personalised care means a fundamental shift integrated with existing back-office functions
is required in the way that the voluntary such as fundraising, marketing and invoicing. www.careworks.co.uk

11
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Map 2. Level 1 – Exhibition Hall floor plan



LOADING
Cityside Riverside BAY ONLY

Level 3 63 64 65 66 67 68 69 70 71 72
Workshops
Ground floor Ground floor

Level 1 - Exhibition Hall

food
stall
Key 73 74 75 76 77 78 79 80
Lift 81 82 83 84 85 86 87 88
Escalator 96
102  
Male/Female Toilets Decoda  in 
Disabled Toilets
the infl atable  97
gym 89 90 91 92 93 94 95
98

99
2 Pagoda Stage
Market stalls
1 2 3 4 4 4 22 23 24 25 26 27 28
 MAIN  A B C
ENTRANCE
100
5 6 A7 B7 8 9 10 29 30 31 32
pagoda
stage 101
11 12 13 14 15 16 17 33 34 35 36
 Escalator up to next floor

2 Pagoda Stage
18 19 20 21 37 38 39 40 41 42

 MAIN 
ENTRANCE

43 44 45 46 47 48
food
49 50 51 52 53 54 55 stall

ENTRANCE TO ENTRANCE TO
56 57 58 59 COMMUNITY CAFÉ 60 61 62 COMEDY WORKSHOP
 

4 Community Cafe 3 Comedy Club

the Big event 2010


is sponsored by:

12
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

AT-A-GLANCE EXHIBITOR LIST


1. shop4support Pick ‘n’ Mix
2. National Centre for Independent
51. The Oaklea Trust Group
52. Department of Health
Exhibitor profiles
Living (NCIL) 53. Thera Trust
3. Lancashire Centre for 1. shop4support Pick ‘n’ Mix 6. Spokes CIC 13. Care UK
54. Opportunity Links
Independent Living shop4support is an online marketplace Spokes helps young people with moderate Care UK is a national company. Our aim is to
55. Dimensions and Helen Sanderson for health and social support that creates learning or physical disabilities enter the enable people to live fulfilling lives whatever
4a. Timebanks UK
Associates better value for citizens by offering a choice workplace by ‘hands-on’ training in a their health or care needs.
4b. North West Training and of focused services and by helping them to business environment. They deserve the >>01244 313204
Development Team 56. The Signalong Group
control their support, their money and their opportunity like everyone else! >>Lorraine.kingham@careuk.com
4c. Active Assistance 57. Creative Support lives. >>01562 861154 >>www.careuk.com
5 . Self direct 58. Disability and Carers Service >>01942 826 788 >>info@spokes-uk.org
>>info@shop4support.com >>www.spokes-uk.org
6. Spokes CIC 59. Caring with Confidence
>>www.shop4support.com
14. Advocacy Partners
7a. Breakthrough UK Ltd 60. JCM Seating Solutions Ltd Advocacy Partners promotes Rights, Voices
7b. Postural Care CIC
7a. Breakthrough UK Ltd and Choices for deaf, disabled and older
61. JCM Seating Solutions Ltd 2. National Centre for Breakthrough UK Ltd is a successful social people. We provide independent advocacy
8. Eileen’s Quilts 62. Connect in the North Independent Living (NCIL) enterprise providing employment support, to enable people facing the greatest
9. Wicked Fish 63. Social Care Institute for NCIL is a national organisation working training, and consultancy to employers/ disadvantage and discrimination to have
10. Age Concern Cheshire Excellence to promote independent living for providers on disability issues, and is now control over their lives.
disabled people and to support centres for developing work on Independent Living. >>0208 330 6644
11. Jane Lewis Health & Social Care 64. Care UK
independent living across the country. >>0161 273 5412 >>info@advocacypartners.org
12. Wales Alliance for Citizen 65. Reserved >>0207 587 1663 >>z.cattan@breakthrough-uk.co.uk >>www.advocacypartners.org
Directed Support >>www.breakthrough-uk.com
66. Royal Mencap Society >>office@nci.org.uk
13. Care UK
67. Staffordshire County Council >>www.ncil.org.uk 15. Speaking Up
14. Advocacy Partners 7b. Postural Care CIC
68. HomeCareDirect Speaking Up enables people to use their
15. Speaking Up 3. Lancashire Centre for Postural Care CIC provides and develops voice, supports them to take action and to
16. Inclusion Distribution 69. Happy Associates accredited training and support for change their lives for the better.
Independent Living
17. Inclusion Distribution 70. Somerset Care individuals and their families about how to >>01223 555800
A dynamic user-led organisation providing protect body shape.
18. Natural Breaks Merseyside 71. Nugent Care >>info@speakingup.org
Self-Directed Support, advice and peer
>>01827 304938 >>www.speakingup.org
19. Step by Step Living Network 72. Special Needs Care Limited support to disabled people across Lancashire,
>>Info@posturalcareskills.com
empowering individuals to live independent
20. Margaret Respite 73. The Stroke Association >>www.posturalcareskills.com
lives and challenge social exclusion. 16. Inclusion Distribution
21. Community Integrated Care (CIC 74. Open Objects Limited >>01772 250 300 We offer a broad range of books, DVDs
Group) 75. London Borough of Barnet >>Sue.wilkinson@lcil.info 8. Eileen’s Quilts and posters around a central principle of
22. Expert Patients Programme >>www.lcil.info We are a few friends who belong to a local inclusion. Contact us for a bookshop service
76. BeMyCareBroker.com
Community Interest Company quilting group, Hutton Priory Patchers, and at your event.
77. Voice Social Marketing also The Quilters Guild of the British Isles.
23. Our Futures 4a. Timebanks UK Most of our group are retired women.
>>01625 269243
24. Embrace Wigan and Leigh 78. BILD >>sales@inclusiononline.co.uk
Ash-worth Time Bank encourages rural
79. National Mental Health >>01772423943 >>www.inclusiononline.co.uk
25. Imagine Mental Health people to share their time and skills
>>Eileen@cuerden333.fsnet.co.uk
Development Unit with older members of the community.
26. Options for Supported Living
80. Moving On With Life and
Membership is free and services cover 14 17. Inclusion Distribution
27. Disabled Parents Network  Cheshire villages. 9. Wicked Fish As above.
28. The Liberation Partnership Learning (MOWLL) >>01829 751398 Wicked Fish is an ensemble theatre company
(Essex) Community Interest 81. you2choose.com >>ash-worthtime@hotmail.co.uk based in Liverpool. All the performers in
Company 82. Alternative Futures Group – >>www.ash-worthtimebank.org.uk Wicked Fish have learning difficulties and 18. Natural Breaks
29. Odd Socks Sponsor of the Big Event
we work with other professional artists and Merseyside
theatre workers.
30. Partners in Policymaking 83. CareMatch (Staffordshire Social 4b. North West Training and Natural Breaks supports people to take
>>0151 709 4343 control of their lives - at home, in social and
31. Partners in Policymaking Care Workforce Partnership) Development Team >>info@wickedfish.org.uk leisure settings, through education and at
32. St Helens Council, Adult Social 84. KeyRing Living Support Networks >>01254 306 850 >>www.wickedfish.org.uk work by promoting opportunities for positive
Care & Health – Personalisation >>info@nwtdt.com relationships and experiences, resulting in
85. Midland Mencap >>www.nwtdt.com fulfilling lifestyles.
Team
86. Instream Partnership
10. Age Concern Cheshire
33. Changingtogether >>0151 207 9120
>>01606 881660
34. Mencap Liverpool 87. Lifeways Community Care Limited 4c. Active Assistance >>www.ageconcerncheshire.org.uk
>>lisa@naturalbreaks.co.uk
Active Assistance provide 24-hour >>www.naturalbreaks.co.uk
35. Voice UK 88. MacIntyre
personalised support and care to adults
36. Penderels Trust 89. Together
and children with long term neurological 11. Jane Lewis Health & 19. Step by Step Living
37. Cool 2 Care 90. My Way conditions. Our clients self-direct their Social Care Network
38. All Together Now! 91. DSInsight support. Jane Lewis Social Care provides quality
>>0151 430 2740
39. Rockspur >>01732 779353 support staff to a variety of care settings. We
92. Careworks – Sponsor of the Big >>believe@livingnetwork.org.uk
>>clients@activeassistance.com are registered with CQC to provide care for
40. Potens Event >>www.activeassistance.com adults and children. >>www.livingnetwork.org.uk
41. Independent Disabled Peoples 93. The Regard Partnership >>01244 404080
Forum 94. Tunstall 5 . Self direct >>maxine@janelewis.co.uk 20. Margaret Respite
42. The IN Group (The Independent >>www.Janelewis.co.uk >>01928 576880
95. The Really Useful Learning Self direct is a national social enterprise that
Network) works with disabled people, older people >>margaretrespite@googlemail.com
Company
43. In Control and professionals to change and develop the 12. Wales Alliance for Citizen
96. shop4support
44. MySafeHome social and health market-place Directed Support
97. Advance >>07814 574 307
45. CDSM Interactive Solutions Ltd Wales Alliance for Citizen Directed Support is
98. Brothers of Charity Services >>info@selfdirect.org a newly formed alliance of organisations and
46. Richmond Fellowship >>www.selfdirect.org
99. In Control and Me individuals who are interested in developing
47. Self Unlimited citizen-directed support in Wales.
48. Voyage 100. United Response
>>01792 646640
49. Paradigm / iplanit 101. The SLC Group >>debbie.chegwen@communitylives.co.uk
50. Choices Housing Association Ltd 102. Decoda – in the inflatable gym >>www.wacds.org.uk

13
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

21. Community Integrated 29. Odd Socks Enterprise 38. All Together Now! 46. Richmond Fellowship 54. Opportunity Links
Care (CIC Group) A micro business developed by Joe Tomlinson All Together NOW! is the North West’s Richmond Fellowship is a specialist provider Opportunity Links supports government to
CIC is a national social care charity supporting and friends to encourage reuse of goods. unique, award-winning charity, publishers of of mental health services, offering housing, deliver quality information to citizens through
thousands of people with diverse care and The company collects anything from clothes a print and online magazine targeting people care, employment and community support provision of IT, consultancy, and new media.
support needs to live independent lives. to electrical goods. It organises wardrobe who are affected by disability. services to 6,000 people across England. >>01223 566522
amnesty sales and sells Fairtrade goods made >>0151 230 0307 >>0207 697 3300 >>enquiries@opp-links.org.uk
>>0151 420 3637
from recycled materials. >>news@alltogethernow.org.uk >>info@richmondfellowshop.org.uk >>www.opportunitylinks.co.uk
>>contact-us@c-i-c.co.uk
>>www.c-i-c.co.uk >>01257 252288 >>www.alltogethernow.org >>www.richmondfellowship.org.uk
>>joe.tomlinson@hotmail.co.uk
55. Dimensions and Helen
22. Expert Patients 39. Rockspur 47. Self Unlimited Sanderson Associates
30. Partners in Policymaking A member-controlled, community-based Self Unlimited (RCN 250058) offers wide-
Programme Community Partners in Policymaking runs community- facility that has become independent from ranging services to people with learning
Dimensions is a specialist not-for-profit
Interest Company (EPP CIC) provider of support for people with learning
based training courses that help disabled a traditional style of day service. Members disabilities to enable them to live life their disabilities and autism. We support more
EPP CIC is a social enterprise which runs free people and their families to become leaders, are acknowledged as being part of the way as independently as possible. than 2,300 people.
self-management courses for people living giving them confidence and strategies to community in their own right. >>0116 279 3225 >>Message line: 0800 884 0820
with, or affected by, any long-term health work in partnership with service providers. >>01902 844925 >>info@selfunlimited.co.uk >>info@dimensions-uk.org
condition(s). >>0156 482 1650 >>therockspurhouse@yahoo.co.uk >>www.selfunlimited.co.uk >>www.dimensions-uk.org
>>0800 988 5530 >>admin@in-control.org.uk
>>anne.higgins@eppcic.co.uk >>www.partnersinpolicymaking.co.uk 40. Potens
>>www.expertpatients.co.uk
48. Voyage 56. The Signalong Group
Potens provides a range of services for adults Voyage is an established national provider
31. Partners in Policymaking with learning disabilities and mental health of a wide range of high quality options to
Signalong empowers children and adults
23. Our Futures with impaired communication to understand
As above needs throughout Merseyside and Northern support people with learning disabilities, and express their needs, choices and
Our Futures is a model of support for families England, North Wales and Northern Ireland. autism or acquired brain injuries. desires by providing vocabulary for life and
with a disabled relative. It promotes planning >>0151 651 1716 >>01543 437037
for the future and supports disabled people
32. St Helens Council, Adult learning. Signalong provides resources and 
>>info.potens@potensial.co.uk >>referrals@voyagecare.com training in visual communication.
to be full citizens. Social Care & Health – >>www.potensial.co.uk >>www.voyagecare.com >>0845 450 8423
>>01942 513053 Personalisation Team >>mkennard@signalong.org.uk
>>www.in-control.org.uk 41. Independent Disabled
>>futures@embracewiganandleigh.org.uk
St Helens Council’s Personalisation Team 49. Paradigm / iplanit >>www.signalong.org.uk
is implementing the personalisation
agenda, known locally as My Life, My
People’s Forum Paradigm is the leading consultancy, training
IDPF champions the rights of disabled and development agency in the field of 57. Creative Support
24. Embrace Wigan and Leigh Choice, supporting people to achieve choice,
people to be heard and have a voice, while disability. iplanit is the first comprehensive IT Creative Support is a not-for-profit provider of
independence and control.
Making lives better for children, adults and providing peer support, information, advice solution that takes Person-Centred Planning personalised services – supporting people to
older people with disabilities. >>01744 676974 to a different level.
>>angiewaugh@sthelens.gov.uk and advocacy. enjoy their lives and reach their full potential.
>>0194 2513053 >>0151 6505529 >>0151 647 1055 >>0161 236 0829
>>www.sthelens.gov.uk/mylifemychoice
>>crm@embracewiganandleigh.org.uk >>chairman@idpf.org.uk >>admin@paradigm-uk.org >>alannah.Gale@creativesupport.co.uk
>>www.embracewiganandleigh.org.uk >>www.idpf.org.uk >>www.paradigm-uk.org >>www.creativesupport.co.uk
33. Changingtogether
25. Imagine Mental Health We are an innovative organisation, making
42. The IN Group (The 50. Choices Housing 58. Disability and Carers
change possible through unique and
>>0151 709 2366
creative consultation, training and project Independent Network) Association Limited Service
>>imagine@imaginementalhealth.org.uk development in social care, advocacy, Choices Housing Association is a non-
Positive about Personalisation – we’re a local The Disability and Carers Service supports
>>www.imaginementalhealth.org.uk education and community involvement. profit making RSL providing housing care
service-user led organisation from West disabled people and carers by delivering
>>07914 792190 London, wholly managed and run for and by and support to vulnerable people in the and administering the following benefits:
26. Options for Supported >>office@changingtogether.org.uk service users and carers, across all user sectors.  Staffordshire area. Disability Living Allowance, Attendance
Living >>www.changingtogether.org.uk >>00 44 (0) 77 96 246 400 >>01782 254000 Allowance and Carers Allowance.
>>info@the-in-group.org >>jharding@choiceshousing.co.uk >>08457 123 456
Options provides innovative and flexible
>>www.choiceshousing.co.uk
support to people with learning disabilities 34. Mencap Liverpool >>www.the-in-group.org >>dcpu.customer-services@dwp.gsi.gov.uk
with a range of support needs. We are a >>www.dwp.gov.uk
>>0151 298 3191
registered charity and therefore every penny >>contact@mencapliverpool.org.uk 43. In Control 51. The Oaklea Trust Group
is spent on providing great support. >>www.mencapliverpool.org.uk In Control Partnerships is a social enterprise The Oaklea vision is that every citizen has a 59. Caring with Confidence
>>0151 236 0855 that works in partnership with citizens, positive contribution to make to society and Caring with Confidence provides learning and
>>welcome@optionsforsupportedliving.org government, charities and commercial the right to control their own lives. development opportunities for unpaid carers
>>www.options-empowers.org
35. Voice UK companies to help create a new welfare >>01539 735025 in England, accessible through local group
A national charity supporting people with system in which everyone is in control of >>enquiries@oakleatrust.co.uk sessions, self-study workbooks and online.
learning disabilities and other vulnerable
27. Disabled Parents Network people who have experienced crime or abuse.
their lives as full citizens. >>www.oakleatrust.co.uk >>0800 849 2349
A national peer support network providing >>01564 821650 >>cwc.info@caringwithconfidence.net
We also support their families, carers and
information and advice to disabled people professional workers.
>>info@in-control.org.uk 52. Department of Health >>www.caringwithconfidence.net
who are, or wish to become, parents, and >>www.in-control.org.uk The Department of Health exists to improve
>>01332 291042
their allies. >>voice@voiceuk.org.uk the health and wellbeing of people in 60. JCM Seating Solutions Ltd
>>0300 3300 639 >>www.voiceuk.org.uk 44. MySafeHome England, giving them choice and control over JCM are specialised equipment manufactur-
>> information@disabledparentsnetwork.org.uk MySafeHome is the UK’s leading provider their care and support. ers providing systems which enable 24-hour
>>www.disabledparentsnetwork.org.uk of help and support for disabled people Personal health budgets: postural care management for individuals of
36. Penderels Trust who want to buy their own home. We help >>personalhealthbudgets@dh.gsi.gov.uk all ages and varying degrees of disability.
An innovative, user-led charity providing
28. The Liberation independent living support to recipients
hundreds of buyers do just that. Personalisation in social care: >>01733 405830
Partnership (Essex) >>08000 121 333 >>freya.elbaz@dh.gsi.gov.uk >>enquiries@jcmseating.co.uk
of community care funding. We empower
>>enquiries@mysafehome.info >>www.dh.gov.uk >>www.jcmseating.co.uk
Community Interest individuals to live their lives independently
>>www.mysafehome.info >>www.personalhealthbudgets.org.uk
with choice and control.
Company >>024 76511611
>>www.personalisation.org.uk 61. JCM Seating Solutions Ltd
The Liberation Partnership is a user-led >>zkapadia@penderelstrust.org.uk 45. CDSM Interactive >>www.nhs.uk/CarersDirect
As above
training department providing training on all >>lcurzon@penderelstrust.org.uk Solutions Ltd
aspects of the Personalisation of services.
>>www.penderelstrust.org.uk 53. Thera
>>01245 392142
People & Places is a safe, secure online
Thera is an organisation directly controlled by
62. Connect in the North
Community Portal. It’s much more than a
>>enquiries@liberationpartnership.org.uk Connect in the North is a Centre for Inclusive
>>www.liberationpartnership.org.uk 37. Cool 2 Care social networking site. It provides a place for people with a learning disability, supporting
Living led by people with learning difficulties.
people to record and plan their lives. people in their own home, at work and in
>>0845-123-5484 their local community. We work for change across the north of England.
>>info@cool2care.co.uk >>01792 463865
>>030 303 1280 or 01476 562777 >>0113 270 3233
>>http://www.cool2care.co.uk/ >>debbie.marshall@cdsm.co.uk
>>info@thera.co.uk >>info@citn.org.uk
>>www.cdsm.co.uk/products/pandp/
>>www.thera.co.uk >>www.citn.org.uk

14
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

63. Social Care Institute for 72. Special Needs Care 80. Moving On With Life and 87. Lifeways Community Care 95. The Really Useful
Excellence Limited Learning (MOWLL) Limited Learning Company
The Social Care Institute for Excellence (SCIE) An established provider offering a wide range MOWLL seeks, invests, achieves and Lifeways Community Care is one of the Working with people to help local authorities
supports the transformation of social care of professional services including supported celebrates. We support adults and young UK’s leading providers of specialist services and providers change what they do: co-
by identifying and transferring knowledge living, personal budgets, advice on welfare, people with learning disabilities to realise for people with diverse and often complex producing inclusive workforce development
about good practice. employment and housing law and the their life goals through person-focused needs, including those with individual strategies, training social workers, and sup-
>>0207 089 6840 Mental Capacity Act 2005. planning. budgets. porting provider development.
>>laura.boyd@scie.org.uk >>01244 784 343 >>0151 794 2991 >>0208 877 1338 >>07810 852296
>>www.scie.org.uk >>office@specialneedscare.co.uk >>baserres@liv.ac.uk >>info@lifeways.co.uk >>alex@reallyusefullearning.co.uk
>>www.specialneedscare.co.uk >>www.mowll.net >>www.lifeways.co.uk >>joolz@reallyusefullearning.co.uk
64. Care UK >>www.reallyusefullearning.co.uk
Care UK learning disability services division is 73. The Stroke Association 81. you2choose.com 88. MacIntyre
a national provider of high quality supported The Stroke Association is the only UK wide you2choose.com is an innovative online MacIntyre is a national charity providing 96. shop4support
living and domiciliary care services for adults charity solely concerned with combating UK healthcare directory allowing people to personalised learning and support solutions shop4support is an online marketplace for
with learning disabilities. stroke in people of all ages. search, reserve, book and pay for care and to children, young people and adults with health and social support that creates better
>>01538 306582 >>0303 30 33 100 support requirements 24/7 in real-time. learning disabilities and autism. value for citizens by offering a choice of focused
>>angela.halfpenny@careuk.com >>info@stroke.org.uk >>01733 311 599 >>01908 230100 services and by helping them to control their
>>www.careuk.com >>naomi.gwynne@you2choose.com >>customer.solutions@macintyrecharity.org support, their money and their lives.
74. Open Objects Limited >>www.you2choose.com >>www.macintyrecharity.org >>01942 826 788
65. Staffplan >>info@shop4support.com
Open Objects will be demonstrating the >>www.shop4support.com
>>020 877 28773 Adult Social Care Hub – an online universal 82. Alternative Futures 89. Together
>>marketing@staffplan.co.uk information solution for the signposting of Group – Sponsor of the Big Together is a national charity working
care services for adults. alongside people with mental health 97. Advance
>>www.staffplan.co.uk Event problems so they can lead fulfilling and
>>01223 422200 Advance provides flexible housing and
Alternative Futures Group is a charitable independent lives. support for people with learning disabilities
66. Royal Mencap Society >>karine@openobjects.com
company, founded in 1992 to provide support or mental health problems so they can live
>>www.openobjects.com >>020 7780 7300
Mencap works with and for people with to people with learning disabilities or mental their lives the way they want.
>>contact-us@together-uk.org
learning disabilities and their families to health problems in the north west.
75. London Borough of >>www.together-uk.org >>01993 772885
support them to live their lives with freedom, >>0151 489 5501 >>info@advanceuk.org
independence and choice. Barnet >>email@alternativefuturesgroup.org.uk >>www.advanceuk.org
>>01733 2466756 The London Borough of Barnet will be >>www.alternativefuturesgroup.org.uk 90. My Way
>>steve.mcilvenny@mencap.org.uk showcasing Social Care Connect, their newly Direct Payments made easy with My Way.
98. Brothers of Charity
>>www.mencap.org.uk implemented Adult Social Care Directory. 83. CareMatch (Staffordshire You choose the person to provide the care
and we employ them on your behalf. Services
>>0208 359 4346 Social Care Workforce
67. Staffordshire County >>ed.gowan@barnet.gov.uk
Partnership)
>>0845 3871107 The Brothers of Charity Services provide a
>>www.socialcareconnect.barnet.gov.uk >>office@myway.org.uk wide range of enabling support services,
Council CareMatch is a not-for-profit recruitment >>www.myway.org.uk promoting inclusion and positively assisting
Staffordshire, like other authorities, is service (including a jobs website) that those we support to achieve their potential.
responsible for delivering the personalisation 76. BeMyCareBroker.com supports employers seeking care staff and
agenda. BeMyCareBroker.com is an online directory specialises in the recruitment of PAs.
91. DSInsight >>0800 111 4350
>>info@brothersofcharity.org.uk
>>01785 276084 that allows service users to research and >>01782 552106 DSInsight is a suite of software applications
>>www.brothersofcharity.org.uk
>>phil.knowles@staffordshire.gov.uk purchase their care requirements. focusing on outcomes by recording and
>>shirley.way@stoke.gov.uk
>>www.staffordshire.gov.uk >>0121 585 0776 managing information such as PCPs, goals
>>www.carematch.org.uk
>>enquiries@bemycarebroker.com and assessments and allows the information 99. In Control and Me
>>www.bemycarebroker.com to be shared by people, their care workers, In Control and Me has developed free,
68. HomeCareDirect 84. KeyRing Living Support family and friends. downloadable fact sheets on Self-Directed
HomeCareDirect acts as carers’ legal
77. Voice Social Marketing Networks >>01364 654222 Support. We train advice-giving organisations
employer for clients, to help people take >>adriane.gillies@dsinsight.co.uk to use these resources and promote Self-
KeyRing Living Support Networks is a
control of their support at home funded via Voice work to improve marketing >>www.dsinsight.co.uk Directed Support.
national charity that supports vulnerable
the Council and PCT. communications in the social health care >>07984 111315
adults to live independently, through our
>>0845 061 9000 sector. We work with local authorities
>>info@homecare-direct.co.uk and providers by offering training and
unique ‘Network’ model. 92. Careworks – Sponsor of >>nigel.joseph@mencap.org.uk
>>020 7324 0750 >>www.in-control.org.uk/icandme
>>www.homecare-direct.co.uk consultancy. the Big Event
>>enquiries@keyring.org
>>01772 601853 CareWorks is a specialist provider of social
>>catherine@voicemarketing.org.uk
>>www.keyring.org
care software for personalisation and 100. United Response
69. Happy Associates Self-Directed Support. We have 14 years United Response is a top 100 national charity
>>www.voicemarketing.org.uk
Happy Associates is a training and 85. Midland Mencap experience and 71 local authority customers. which tailors it’s support to match the needs
development organisation that works to and wishes of each individual.
78. BILD Midland Mencap is a West Midlands-based >>02890 327 329
create new systems for Self-Directed Support >>0208 246 5200
organisation providing housing, care and >>dbordas@careworks.ie
through connection, exploration, learning, We want a society where people with support services to people with a learning >>www.careworks.co.uk >>info@unitedresponse.org.uk
creation and sharing. learning disabilities are equal citizens, with disability and their family carers. >>www.unitedresponse.org.uk
>>0845 272 2372 the right support to live their lives as they
want to. >>0121 442 2944 93. The Regard Partnership
>>happy@happyassociates.co.uk
>>www.happyassociates.co.uk >>01562 723010
>>info@midlandmencap.org.uk
The Regard Partnership supports people with 101. The SLC Group
>>www.midlandmencap.org.uk The SLC Group provides specialist community
>>enquiries@bild.org.uk learning disabilities, mental health needs
>>www.bild.org.uk or Acquired Brain Injury in residential and care and support services for people with
70. Somerset Care 86. Instream Partnership supported living services across the UK. learning disabilities, physical disabilities,
>>01823 448150 mental health needs and autism.
79. National Mental Health Support Brokers – established 2003. >>0800 840 0313
>>enquiries@somersetcare.co.uk >>01257 246 400
Assisting with Support Plans, management >>info@regard.co.uk
>>www.somersetcare.co.uk Development Unit of individual budgets, recruitment of and >>www.regard.co.uk >>Lyndsay.milne@theslcgroup.co.uk
The National Mental Health Development retaining Personal Assistants, budgeting and >>www.theslcgroup.co.uk
71. Nugent Care Unit is funded by the Department of Health payroll. Working across the North West
94. Tunstall
and the NHS to provide national support
>>0151 261 2000
for implementing mental health policy and
>>0161 654 8485 OR 0161 770 1242
>>01977 661234 102. Decoda – inflatable gym
>>info@nugentcare.org >>office@instream.org.uk
advises on best practice to improve mental >>enquiries@tunstall.co.uk Decoda uses and designs technologies
>>www.nugentcare.org >>www.instream.org.uk to engage people with complex needs.
health services. >>www.tunstall.co.uk
>>0207 972 4803 Regional winners of the 2009 NHS award for
innovation in technology for social care.
>>ask@nmhdu.org.uk
>>www.nmhdu.org.uk >>01424 439192
>>enquiries@decoda.org
>>www.decoda.org

15
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

In Control Products and


Programmes 2010 In Control
Membership booklet
Building Self-Directed Support together  Helping people to

In Control has worked closely with local authorities and other


get choice and control  Making citizenship happen

This booklet explains how

organisations since 2003. We have listened carefully to what they say


individual people and
organisations can benefit from
In Control Membership.

about the challenges they face and have responded by developing


It tells you about the three
kinds of In Control Membership
and a whole variety of In
Control programmes.

a suite of products and programmes that will help adult social care,
Join this vibrant network of
committed individuals and
organisations.

children’s, health and provider members to overcome obstacles.

You can find brief details of communities that welcome the coordinate work with up to five A range of bespoke workshops to
products and programmes below. presence and contribution of local authorities per region to support providers, commissioners
For more information, visit   people who need support. generate robust local market and organisations to develop
www.in-control.org.uk/membership, intelligence that will inform the market and prepare for the
speak to our Support Centre Real Jobs: Deliv- strategic commissioning and personalisation agenda is also
on 01564 821650, or your local ered jointly by market-shaping. available.
Real Jobs
Lead: Andrew Tyson | Contact: Tel: 01564 821650 | admin@in-control.org.uk

The Real Jobs Programme is a new product The programme


to be delivered jointly by In Control and
The programme will assist people irrespective

regional lead. In Control and


the Foundation for People with Learning
of the “social care group” or the services that
Disabilities/The Mental Health Foundation. individuals have used in the past. Work in each
The programme will work with Local Authorities Authority will be based upon a piece of in-depth
to enable Personal Budget holders to get and diagnosis and strategic planning, which will
keep a real job. It will also help Local Authorities enable Authorities to assess readiness and analyse
to build capacity to commission new services local issues, develop an inter-agency strategy,

Partnership
that are person-centred and that are based on determine priorities and put in place the basis
international evidence of best practice. for a personalised employment service. We will
then offer a tailored programme, focusing on

the Foundation Pass-it-On Support


It is well suited to Authorities seeking to: customised employment, family-led jobs, self-
employment and advice and signposting.
> Personalise health and social care services
> Modernise day services The programme has engaged national experts,
Anne O’Bryan and Keith Bates to take lead roles in
> Re-commission sheltered workshops and
delivery. We expect the programme to commence
supported employment schemes
early in 2010.
> Meet Public Sector Agreement (PSA16) targets
for sustainable employment.
Price (excluding VAT)

Citizen Leader- for People with Planning: based


A real job For the diagnosis and strategic planning phase:
£7,000. Pass it on Support Planning
A real job is where someone is employed by a
company or organisation, or is self-employed. The For the tailored programme: price to be agreed.
Lead: Caroline Tomlinson | Contact: Tel: 01564 821650 | admin@in-control.org.uk

is productive
person is paid, that is to say they do not give their
Please contact us for further information on this
labour for free.
programme.
A real job: This is a two-day course aimed at The outcomes
individuals, families and people supporting
This course takes individuals and families on a

ship: This suite of


> Helps the person to meet their life-goals and

Learning Dis- on In Control’s


families at a local level. The ‘kick-start’
Citizen leadership aspirations
> Is valued by managers and colleagues.
course works with up to 25 families and
journey that creates real support plans. We use a
wide range of learning approaches that encourage
mobilises local people to use their Personal participants to think in creative ways about what
> Gives the person a chance to progress, if they Budget to create the life they want. good support looks like.
Lead: Lynne Elwell | Contact: Tel: 01564 821650 | admin@in-control.org.uk wish to The course has a proven track record in
> Has similar hours and times at work as other The course closely examines quality of life and
Worcestershire, Newcastle, Cheshire and
employees at the company or in similar jobs focuses on the question ‘What is it that people are
Australia.
We have clear evidence that, when an All Together Better > Gives employment rights and the other being supported to do all day?’ We then consider
investment is made in citizen leadership, benefits accorded to colleagues and others in The course is delivered by individuals and families how a good quality of life, once established, is

courses is built abilities/Mental 7 steps to Self-


Self-Directed Support happens much This Programme is designed for family carers and with real life experience. It includes: sustained even when the family is no longer there.
similar jobs.
more quickly. Below are a range of courses anyone working within the system to participate
on a learning journey together. The course is > Understanding self-directed support and its Throughout the course participants are
designed to meet local need. The list isn’t encouraged to help each other so that peer
designed to build mutual collaboration to enable history
exhaustive but gives an idea of citizen support mechanisms develop. In most cases
more people to have choice and control over their > Real stories
leadership courses we have delivered on a More information: www.in-control.org.uk/membership course participants have developed their plan by
lives. > The policy context
local, regional and national basis. the end of the second day. Continuing support
Price (excluding VAT) > What we’ve learned so far to action the plan has ensured very significant
> Active discussion outcomes for people.
Partners in Policymaking FREE to In Control Members. DH Expert Carers

on the success of Health Foundation, this flexible Directed Support,


funded. > Questions and answers. This training model is built on the concept of
A course for 40 carers, parents and people with The course focuses on In Control’s seven steps to self-efficacy: we encourage participants to have
additional support needs. Sixteen days training Self-Directed Support: confidence in their vision and the possibilities
and support, national speakers and network. Partners in Personalisation open to them.

In Control’s partnership
Courses can be run locally, regionally and 1. My money – finding out how much
This Programme is being run regionally for
nationally. 2. Making my plan Price (excluding VAT)
individuals and families interested in making
3. Getting my plan agreed
Price (excluding VAT) Self-Directed Support happen for them. The course £1,000 for two days and ongoing mentoring for
will run over 10 sessions and can be clustered or 4. Organising my money the peer group until members’ plans are actioned.
£3,000 per place.
spread out. 5. Organising my support

Partners in Policy- programme is designed for local this programme


Full cost for all places: £85,000. The course is community-based so you need to
FREE to Public Members. Price (excluding VAT) 6. Living life
find the venue and supply refreshments.
7. Seeing how it worked.
£500 per place. (Places are subsidised by DH

Sharing Knowledge

with ordinary people and


Section 64 funding.) A small group of individuals and families learn and
work together so that, at the end of the two-day
A Short programme of training and work with session, their plans are ready. We then ask that
30 people from one area developing skills and Local, national, bespoke some of the participants pass on their experience,
practice in self-advocacy for family members and
people with additional support needs.
courses offer peer support to the next group of people
wanting to make their plans. Our experience

making. Courses authorities that want to enable helps families


Courses take place throughout the year across shows that investment in the ‘kick start’ group
Price (excluding VAT) the regions. They can be organised on a local or ensures that peer support continues to flourish.
£1,500 per place. FREE to Public Members. national basis. We can also design bespoke courses

organisations has led the


to suit your requirements. Some of our courses
are subsidised so there may be places available in
Plan or be planned for certain areas at no cost. Please contact us for more
More information: www.in-control.org.uk/membership

A short programme for young people and their information.


families over five days enabling them to plan for
the future.

are designed people with personal budgets to and individuals to create real
Price (excluding VAT)
£500 per place.

way in the development


More information: www.in-control.org.uk/membership

to meet local needs and help get and keep a real job. support plans and use their of Self-Directed Support.
families, carers and people with Personal Budgets to create the Many important In Control
additional support needs to lead Commissioning for lives they want, resulting in local publications have been
transformation in their areas. Personalisation: peer support groups ready to
Commissioning for Personalisation

produced in partnership.
Lead: Andrew Tyson | Contact: Tel: 01564 821650 | admin@in-control.org.uk

The Commissioning for Personalisation The programme will use action-learning principles
Programme is a product developed and and comprise a mix of presentations, discussions

Delivered jointly pass-it-on to other families and


delivered jointly by In Control and the and small-group exercises.
Office for Public Management (OPM). The
Features of the programme:
Programme staff will be Clive Miller and
Ayesha Janjua from OPM and Andrew Tyson > A two-day, pre-set programme module, followed
from In Control. by two, one-day follow up modules to address
an agenda identified by the participants

The Programme > Up to 20 participants per module. It is suitable


for Assistant Director level staff, Strategic
The Programme will work with local authorities

See, for example, ground-


Commissioners, Personalisation Leads and

Our Futures by In Control individuals in their areas.


and their partners to enable them to deliver provider Business Directors
against key policy imperatives in: Putting People
> Each participating authority will determine the
First and the Transforming Adult Social Care Local
range of sectors from which its participants
Authority Circulars; the seven outcomes in the
are drawn. We assume that leadership will be
Social Care White Paper; Opportunity Age; the
provided by Adult Social Care, and that the key
Independent Living Strategy; and World Class
policy imperative is Putting People First
Commissioning.
> Local authorities will be prompted to consider
In particular, the Programme will enhance representation from the following important

breaking reports from work


councils’ capacity to evidence progress against the

(formerly Plan
stakeholders: Children and Family Services;

and the Office


Our Futures (formerly PLAN UK) Government’s five implementation milestones for
progress in personalisation recently announced.
the NHS (particularly Primary Care Trusts);
Housing and Supporting People; arts, sports
and leisure; library and information services;
The Programme will draw on latest research and
Lead: Jane Ahern | Contact: Tel: 01564 821650 | admin@in-control.org.uk commercial retailers; community and economic
evidence from practice to develop new models.
development; employment and welfare benefits
It will do this by: (including DWP); further education; police and
community safety; community development;
Our Futures is based on PLAN Canada. It > Is able to negotiate and advocate so that
> Building a platform to bring together local street scene; transport. Corporate, financial
was set up to address two major concerns: disabled relatives have the support they need

with partners in children’s


people, commissioners and providers across all and procurement staff will also be important

UK): A 12-month for Public Development


‘What happens when I am gone?’; and ‘How without being disadvantaged, socially isolated
local services and sectors participants
can I support my relative to have a really or dependent on statutory sector decisions for
every aspect of their lives > Explicitly focusing on working with children and > Dates of programme delivery will be agreed
good life?’ adults to ensure whole-life benefits with local authorities – normally the
> Works together to support those they care for
> Working to devise locally appropriate ‘technical’ programme will be completed within six
Our Futures is a family-led project that supports to be full citizens through social enterprise and
commissioning solutions months.
families involved in caring to: circles of support.
> Providing a model of support for commissioners
> Have maximum independence and control in The Our Futures Programme: and others in ways that attend to the Price (excluding VAT)
their lives organisational and cultural dimensions of deep £7,200. Venue, catering, equipment, materials

and health services.


> Supports the group to become established

programme Management, of user-led


> Have peace of mind about the care and rights of system change.
Development of user-led organisations
reproduction and administrative costs will be
their relative > Helps recruit paid community connectors/circle
borne by the local authority.
> Support their relative to be a full citizen with facilitators
friends outside of the family. > Delivers a connector training programme
> Provides training for families (including family Lead: Caroline Tomlinson | Contact: Tel: 01564 821650 | admin@in-control.org.uk
More information: www.in-control.org.uk/membership
The Programme leadership skills and legal workshops)
> Supports families to complete Future Plans
The two-year Our Futures Programme provides This course is aimed at individuals and The course will consider how the user-led
(using a toolkit developed by Our Futures)
expert support and a toolkit to establish a families who want to develop their own organisations can deliver:
> Provides a national network of groups.

organisations: This
sustainable, self-sufficient Our Futures group.

providing expert this programme enables local


user-led organisation in their community. > Information and advice; advocacy and peer
Families come together (usually at an introduction Over the last twenty years PLAN Canada and the support
Philia Project have found that: The course helps a local group to develop that:
event) and commit to each other to develop the > Support in using direct payments and personal
group. > Works from the perspective of a social model of budgets
> Families who have taken part in family
leadership training are much better at disability > Support to recruit and employ personal
The group commits to:
communicating with statutory services, > Promotes independent living assistants
> Be there for disabled relatives ‘as much as is especially when they disagree with the agency’s > Promotes human and other legal rights > Help with self-assessment and support
needed and no more than is necessary’ views > Is shaped and driven by local people and is planning

support and a authorities and their partners course is aimed


> Learning family leadership skills so they can > When families make sound long-term plans based on peer support > Disability equality training
confidently advocate for their relative (practical and legal) for their disabled relative, > Includes all local disabled people, carers and > Support for the implementation of the
> Making robust plans for the future that person is much less likely to need care others who use support (either directly or from Disability Equality Duty by local, public sector
triggered by crisis organisations)
> Supporting the development of an independent organisations.
circle of support for the person they care for. > People are healthier, happier and less service- > Is non-discriminatory
dependent when they have lots of people in The course consists of five one-day sessions and
This package of commitments leads to a group > Recognises that carers have their own needs will involve several groups in a region to maximise
their lives who care for them
that: and requirements. learning. We recommend teams of up to five
> The model consistently involves members of the
> Ensures that the people needing care and community in long term volunteering. people from a local area.
The course will cover how the user-led

toolkit to establish to re-focus commissioning at individuals and


support never only have paid people in their organisation can develop so that it: The course is supplemented by a mentoring
lives Price (excluding VAT) > Is legally constituted
scheme until the user-led organisation is
> Has robust legal and practical plans for the established as well as two on-site visits.
A one-off payment of £25,000. > Supports people to exercise choice and control
future
> Is accountable to local people and has at least Venues will be found using local knowledge to
More information: www.in-control.org.uk/membership 75 per cent of voting management board ensure they are accessible and provide a good
members drawn from the local community learning environment for the whole group.
> Has a clear management structure and a The training will be delivered by a team of skilled
sustainable financial plan people who have experience in developing and

a sustainable family-focused to support personalisation. families who want


> Recognises diversity and employs people who sustaining user-led organisations.
reflect the community
> Supports local people to design, deliver and Price (excluding VAT)
monitor its services
Approximately £5,000 for a team of five people,
> Is able to work with commissioners to improve plus a contribution to venue costs (this will vary
commissioning and procurement. according to location).

group that addresses two major It emphasises mainstream to develop their


More information: www.in-control.org.uk/membership

concerns: ‘What happens when services to deliver against own user-led organisations in
I am gone ?’ and ‘How can I key policy imperatives and their community.
support my relative to have a evidence progress against
really good life?’ Core elements the Government’s five Conversion of In-house Services:
include building circles of implementation milestones for Working with In Control, the
support and future-planning. progress in personalisation. Housing and Support Partner-
ship has developed a range of
Stronger Market practical tools and strategies to
Communities: Intelligence: help local authorities and other
Bespoke Site Support Market Intelligence Project

Get the Children’s paper:


Lead: Regional leads | Contact: Tel: 01564 821650 | admin@in-control.org.uk Lead: Jamie Bartlett | Contact: Tel: 01564 821650 | admin@in-control.org.uk

Personalisation and Self-Directed Support Additional bespoke Demos (the leading think tank), In Control Month 4: Report. Based on this work, Demos, In
are at varying stages of development across and the University of Lancaster are Control and the Centre for Disability Research will
support days

This programme Working jointly organisations to plan and man-


the country. For the last two years, collaborating on a major piece of market write a report examining:
In Control has worked with 20 local intelligence work that will generate in-
Lead: Regional leads > Data breakdown and explanations
authorities on a Total Transformation depth data on how demand for social

www.in-control.org.uk/Children
> Key market projections
programme. Tel: 01564 821650 care services will change with the
> Prospective demand for service types across
Because the situation of each Statutory and
implementation of Personal Budgets, and
admin@in-control.org.uk different user groups and shortages or
Organisational Member is unique, In Control has explore how social care providers and local
oversupply in local social care markets
responded to requests for more individual, flexible Additional single days from In Control Team authorities must respond. The project uses
> What areas local authorities and providers
support by designing a programme that can meet Members or associates. Services offered include methodology from a recent, successful
should be looking to develop and invest in.
project with five local authorities.

focuses on with Demos age change and refocus in-house


the specific needs of each organisation. facilitation, mediation and reports – all tailored
to the needs of the individual area. Months 5-6: local authority/provider workshop.
This programme can be as little or as large as you
want it to be and can be based on your budget Price (excluding VAT) The Project Demos and In Control will host a one-day
workshop for key stakeholders in each local
and on the particular support you need. Groups of five local authorities in a region will authority to share findings and construct a
£500 per day.
Match your support to your budget: tell us your participate to: meaningful direction for local authority/provider
budget and what outcomes you want to achieve partnership. We will focus on:
> Develop a clear understanding of what people
and In Control can design bespoke support – in understand about the new agenda and the > Working out resource allocation processes with
just the same way that an individual might create barriers to coordinating their own support providers

developing and Lancaster services to cater to the changing


their support plan.
> Generate robust local market intelligence which > Pooled budgets and resource allocation
You may want to specify certain people who you can inform strategic commissioning and market > The appropriate costing of services

Get the Health paper:


want to be involved – it’s your plan and you are in shaping
> How to strategically commission to allow
control. > Work with people who use support services and maximum control and choice for people using
with providers of services to plan for the future services
Together, we can develop an individualised
including the financial and structural impact.
support plan, designed with your organisation at > How to remain open and accountable
the centre. The plan will include detailed costs, > The role of local area agreements.
how we will deliver the content and how we will Schedule

stronger, University, market in the new world of Self-


evaluate the outcomes that have been achieved. These phases will be designed in collaboration
Months 1-3: Survey data. Demos will carry out with each local authority to ensure that their
market research across five local authority areas specific challenges are prioritised. Findings
Price (excluding VAT)

www.in-control.org.uk/health
using postal questionnaires. These will provide in- from the work will be shared openly and made
Varies depending on requirements. depth, local market intelligence to identify trends, available nationally in order to build a large and
threats, fears and opportunities. The sample size robust database of potential spending patterns.
in each local authority is 70-100 people who use
services.
Price (excluding VAT)
Month 3: Follow-up focus group. Demos and In
£30,000 based on the involvement of five local

more inclusive In Control will Directed Support.


Control will host a focus group of people who use
authorities. Cost can be adjusted according to the
services in each local authority area to refine and
number of participating local authorities.
test the findings, in collaboration with user-led
organisations.

More information: www.in-control.org.uk/membership More information: www.in-control.org.uk/membership

16
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Personal Budget user in TV


advertising campaign

Joseph and his PAs – Laura Taylor (left) features in the TV ad

Joseph Tomlinson and his Personal Assistant Laura Taylor, one of Joe’s PAs, says ‘I’ve known Over 1.5 million people are employed across
feature in a new TV advertising campaign Joe since I was eleven. We used to go to primary the adult social care sector in England, and
that aims to show how a career in social school together. I volunteered with him to do his as many as 200,000 jobs in the sector are
care can be rewarding. Joe was featured in Bronze Duke of Edinburgh when I was fifteen. expected to be advertised in the coming year,
the last issue of In Control NOW! (‘Who will When I was sixteen, Caroline asked if I wanted to based on existing trends. The campaign aims
know Joe’s story?’). In additional footage on work with Joe. I always go home happy knowing to encourage the next generation of social
the associated website, Joe is seen out in the Joe’s happy from what we’ve done during the care workers.
countryside, in the gym and gathering used day. I don’t think I’d get the same satisfaction
clothing for his charity enterprise, Odd Socks working in a shop. I see myself doing this job for More information: www.socialcarecareers.co.uk
(which has a stand at the Big Event). a long time because we have a good bond.’ www.youtube.com/watch?v=4y8ixOk_hR8

Get your free memory stick!


Fill out a short questionnaire and get your free 2 GB memory stick loaded with useful In Control
material. Questionnaires and memory sticks are available by the Registration Desk.
What’s on the stick? Policymaking � Providers � Real Jobs About your memory stick
� Research and Evaluation � Safeguarding
Below is a list of categories you � Self-Directed Support Easy-read In Control has tried to make sure the flash
will find on the memory stick. � Shop4Support � theBulletin drive works well, doesn’t contain any viruses,
Most of the files are in won’t damage your computer or lose the
PDF format. Using material on the information you store on it. We have no
You will reason to think it can harm your computer
need
memory stick or any files you have put on it. But In Control
the free If you are someone who directs your own cannot take responsibility for anything that
Adobe support, or you’re thinking about it, you can goes wrong when you use this flash drive.
Reader to use everything on the memory stick. The
view these files. same goes for your supporters – for example, If you have any problems using the memory
If you don’t have it on family members, friends, brokers, community stick, please contact In Control.
your computer you can download it from members.
www.adobe.com/reader Email: admin@in-control.org.uk.
Anyone else, for example, someone who Telephone: 0156 482 1650
� A report on In Control’s Third Phase works for a local authority or a training or In Control, Carillon House,
� Children � Community � Critical path consultancy organisation, should check the Chapel Lane, Wythall, B47 6JX.
� Fact sheets � Samples from the DVD conditions of use on:
� Health � In Control NOW! � Law � For more material from the Big event
Membership � Older people � Partners in www.in-control.org.uk/usingincontrolmaterials www.bigevent2010links

17
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Get the latest local Positive approaches to


evaluation report Your Safeguarding and Risk
Support, Your Way London, 29 June 2010
The story of Self-Directed Support in the An in-depth exploration of the issues
London Borough of Richmond upon Thames around safeguarding
Speakers include: Topics include:
This is a report on the findings from
an independent evaluation by the  Jeff Jerome, National Director  the legal framework
Richmond Users Independent Living for Social Care Transformation  Mental Capacity Act
Scheme.  Sarah Carr, Social Care  research on elder abuse
Institute for Excellence  risk management tools
Based on the experiences of 19  Michael Mandelstam, legal  the balance between
Personal Budget holders, the consultant in health and social empowerment and
evaluation reports significant care abandonment.
improvements in quality of life and  Cumbria Council
support.  Drama with AFTA Thought. A series of practical guides on
safeguarding and risk management
The report is free to download from: Download the booking form: are now available at
www.in-control.org.uk/evaluationreports www.in-control.org.uk/safeguardingevent www.in-control.org.uk/safeguarding

Inspiring exhibition in Wokingham


A photographic exhibition about Self-Directed Support in Wokingham
draws hundreds of visitors
Nine of the 453 Personal Budget budget to attend Reading-based
users in Wokingham decided to charity, Thrive. Dean has a keen
portray their experiences in a interest in gardening and he is
series of photographs. The photo developing his skills on his visits
subjects wanted to highlight to Thrive. His mum, Tracy, says
their achievements and offer ‘Because Dean has a Personal
current and future social care Budget, he can choose what
customers real examples of to do during the day. He really
what’s possible when you have a enjoys attending Thrive.’
Personal Budget.
Another photo subject, Holly
Czapp (pictured right), has a
severe learning disability and
suffers from epilepsy. She lives in
an isolated area of Wokingham
and needs socially stimulating
activities to keep her involved sites around the Borough. Wokingham officers say that the
in the community. Holly uses Many visitors were so moved number of Personal Budgets in
her Personal Budget to pay for by the stories that they wrote the Borough is set to double in
lessons at a local riding school. comments and congratulations the coming year.
as they left. Local care staff
One of the photo subjects, Dean After a run at the Council’s and health professionals have More information:
Bradlaw (pictured above), has a civic offices (till 12 March), also been impressed by the Fi Shailes tel. 0118 974 6777
learning disability and uses his the exhibition is now touring exhibition. putting-people-first@wokingham.gov.uk

18
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Numbers rise steadily New fact


sheets
The last issue of In Control NOW! reported that 25,000
people held Personal Budgets in November 2009. By January,
the number had risen to 30,000 – a 20% increase
27 fact sheets are now
All social care groups are have reported making  be able to spend the available on the In Control
making use of Personal Personal Budgets to money in ways and at
Budgets. There has been an children. times that make sense to website
increase in the number of you
older people taking Personal Local authorities are at  know what outcomes There are 15 recent additions to In Control’s
Budgets – up from 45% different stages in offer- must be achieved with fact sheet list – straightforward, to-the-point
to 53% of the total. Slight ing Personal Budgets. The the money. information sheets for people wanting to
increases are also reported vast majority (92%) of local find out about or manage Personal Budgets.
for people with physical authorities reported hav- For more detail about
disabilities and those with ing made Personal Budgets statistics and evaluation,
fact sheet 1 fact sheet 2 fact sheet 3

Self-Directed Support Self-Directed Support Self-Directed Support

mental health problems. available to fewer than see A Report on In Control’s An introduction to
Self-Directed Support
Where do I start? Money: finding out how
much you will get

1000 people. Slightly less Third Phase – Evaluation


This fact sheet tells you how you can get
started with Self-Directed Support.
This fact sheet tells you what This fact sheet tells you about self-
Self-Directed Support is and how it assessment and resource allocation. You
To get more help It gives links to other fact sheets To get more help To get more help
works. It gives links to other fact start by filling out a form – often called a
contact In Control. and resources with more detailed contact In Control. contact In Control.

The proportion of people than a third (31%) reported and learning 2008-2009,
sheets and resources. Tel: 01564 821 650 Tel: 01564 821 650 ‘self-assessment form’. Tel: 01564 821 650
information.
Email In Control Email In Control Email In Control
help@in-control.org.uk help@in-control.org.uk help@in-control.org.uk

with learning disabilities that they had made Per- available for sale or free to
Find more fact sheets at: Find more fact sheets at: Find more fact sheets at:
www.in-control.org.uk/ www.in-control.org.uk/ www.in-control.org.uk/
factsheets factsheets factsheets

in relation to the total has sonal Budgets available to download from  


declined slightly – from 23% more than 200 people.
This fact sheet was This fact sheet was This fact sheet was
produced by In Control produced by In Control produced by In Control
and Mencap as part of and Mencap as part of and Mencap as part of

www.in-control.org.uk
In control and me, a lottery funded project. In control and me, a lottery funded project. In control and me, a lottery funded project.
www.in-control.org.uk/incontrolandme www.in-control.org.uk/incontrolandme www.in-control.org.uk/incontrolandme

Page 1 of 5 Page 1 of 6 Page 1 of 7

to 16%. (In 2006, at the end fact sheet 4 fact sheet 5 fact sheet 6

Manchester
Self-Directed Support Self-Directed Support Self-Directed Support
of In Control’s pilot work This data is supplied by in Control What if disagree with How to make a support Support brokers

with six local authorities,


the resource allocation? plan
Members who have visited www. When you’ve done your self-assessment
form and the local authority has given
You are ready to write your support plan
when your local authority has given
Some people can plan and organise their
own support without any help. Others
want help from ‘support brokers’.

only 60 people held Personal The City of Manchester


you an ‘indicative’ budget (an amount To get more help you an idea of how much your Personal To get more help To get more help

in-control.org.uk/reportnumbers
contact In Control. contact In Control. This factsheet tells you about what contact In Control.
that may still change), you make a Budget is.
Tel: 01564 821 650 Tel: 01564 821 650 support brokerage is and who you might Tel: 01564 821 650
support plan. Email In Control Email In Control Email In Control
choose as a support broker.
help@in-control.org.uk This fact sheet tells you how to make a help@in-control.org.uk help@in-control.org.uk

This fact sheet tells you what you can

Budgets and all of these has reported the highest


support plan and what you need to put
do if you don’t think you agree with the in it.
amount in your resource allocation. Find more fact sheets at: Find more fact sheets at: Find more fact sheets at:
www.in-control.org.uk/ www.in-control.org.uk/ www.in-control.org.uk/
factsheets factsheets factsheets

were people with learning To be counted as someone number of allocations –


disabilities.) with a Personal Budget, 4943. This figure represents
This fact sheet was This fact sheet was This fact sheet was
produced by In Control produced by In Control produced by In Control
and Mencap as part of and Mencap as part of and Mencap as part of
In control and me, a lottery funded project. In control and me, a lottery funded project. In control and me, a lottery funded project.
www.in-control.org.uk/incontrolandme www.in-control.org.uk/incontrolandme www.in-control.org.uk/incontrolandme

you need to: 20 % of the national total.


Page 1 of 4 Page 1 of 11 Page 1 of 5

fact sheet 7 fact sheet 8 fact sheet 9

15 Local authorities reported 65% of those reported to Self-Directed Support Self-Directed Support Self-Directed Support

making Personal Budgets  know how much money have a Personal Budget Getting your plan agreed
Your local authority needs to see and
agree to your support plan before they
Organising the money
There are several ways that you can take
and manage the money you get for your
Organising support
There are different ways you can organise
your support. You can organise it all

available to family carers, you can have for your are living in just ten local
can decide what your final budget is. support. yourself, organise part of it and get
To get more help To get more help someone else to do the rest. If you don’t To get more help
This fact sheet tells you how to get contact In Control. This fact sheet tells about ways you contact In Control. want to organise it at all, you can get contact In Control.
your support plan agreed by your local Tel: 01564 821 650 can organise the money you have as an Tel: 01564 821 650 someone else to do everything. Tel: 01564 821 650
Email In Control Email In Control Email In Control

and eight local authorities support authority areas.


authority. help@in-control.org.uk Individual or Personal Budget. help@in-control.org.uk help@in-control.org.uk
This fact sheet tells you about the various
options.

Find more fact sheets at: Find more fact sheets at: Find more fact sheets at:
www.in-control.org.uk/ www.in-control.org.uk/ www.in-control.org.uk/
factsheets factsheets factsheets

Take-up of Personal Budgets since 2006 Image from the How to be in control DVD.
This fact sheet was
produced by In Control
and Mencap as part of
In control and me, a lottery funded project.
www.in-control.org.uk/incontrolandme
This fact sheet was
produced by In Control
and Mencap as part of
In control and me, a lottery funded project.
www.in-control.org.uk/incontrolandme
This fact sheet was
produced by In Control
and Mencap as part of
In control and me, a lottery funded project.
www.in-control.org.uk/incontrolandme

Page 1 of 5 Page 1 of 7 Page 1 of 8

35000 fact sheet 10 fact sheet 11 fact sheet 12

Self-Directed Support Self-Directed Support Self-Directed Support

Thinking outside the box Living the life you want Seeing how it’s worked
– using your Personal (review)
30000 Budget in a creative way
The whole point of Self-Directed Support
is that people can be in charge of their
support so they can live the life they
You should meet with your care manager
or social worker about once a year to see
This fact sheet offers ideas about To get more help choose. To get more help To get more help
how things are going. But you can ask for
different ways of getting support. contact In Control. contact In Control. contact In Control.
Tel: 01564 821 650 Tel: 01564 821 650 a meeting any time. Tel: 01564 821 650
You don’t have to get support from a This factsheet tells you about ways that
Email In Control Email In Control Email In Control
professional organisation. There are lots you can make the most of your Personal
help@in-control.org.uk help@in-control.org.uk Your care manager or social worker needs help@in-control.org.uk
of others ways of arranging support. Budget so you can live your life your way.
to know how your plan is working. Also,
you can help other people organise their

25000 Find more fact sheets at: Find more fact sheets at: support by telling them what worked and Find more fact sheets at:
www.in-control.org.uk/ www.in-control.org.uk/ didn’t work for you. www.in-control.org.uk/
factsheets factsheets factsheets
PHOTO: CHARLOTTE MORSE

20000
This fact sheet was This fact sheet was This fact sheet was
produced by In Control produced by In Control produced by In Control
and Mencap as part of and Mencap as part of and Mencap as part of
In control and me, a lottery funded project. In control and me, a lottery funded project. In control and me, a lottery funded project.
www.in-control.org.uk/incontrolandme www.in-control.org.uk/incontrolandme www.in-control.org.uk/incontrolandme

Page 1 of 6 Page 1 of 5 Page 1 of 6

15000 The new fact sheets cover practical issues


such as opening a bank account and finding
10000 a job. One deals with the sometimes puzzling
differences between Personal Budgets,
5000 Individual Budgets and Direct Payments.

0 The fact sheets were produced for the In Control


and Me information project.
June 2006
July 2006
Aug 2006
Sept 2006
Oct 2006
Nov 2006
Dec 2006
Jan 2007
Feb 2007
Mar 2007
Apr 2007
May 2007
Jun 2007
July 2007
Aug 2007
Sept 2007
Oct 2007
Nov 2007
Dec 2007
Jan 2008
Feb 2008
Mar 2008
Apr 2008
May 2008
Jun 2008
July 2008
Aug 2008
Sept 2008
Oct 2008
Nov 2008
Dec 2008
Jan 2009
Feb 2009
Mar 2009
Apr 2009
May 2009
Jun 2009
July 2009
Aug 2009
Sept 2009
Oct 2009
Nov 2009
Dec 2009
Jan 2010

www.in.control.org.uk/factsheets

For information about in Control and Me visit:


In January 2010, over 30,000 people had Personal Budgets (across 75 local authority areas)
www.in-control.org.uk/icandme

19
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

the Big event


1 - Auditoriumi
2 – Pagoda Stage (lower ground floor)

programme
3 – Comedy Club (lower ground floor)
4 – Community Cafe (lower ground floor)
5 – Children (1st Floor)
6 – Partners in Policymaking (1st Floor)
16th March 2010 BT Convention Centre, Liverpool 7 – Provider Room (1st Floor)
8 – Health (1st Floor)
These pages have a summary list of speakers and workshops 9 – Research and Evaluation (1st Floor)
listed by time. Keynote speeches are in the Auditorium. 10 –Adult Social Care (1st Floor)
Entertainment is in Zones 2 and 3. The Community Cafe is in 11 – Real Jobs (1st Floor)
Zone 4. Seminars and workshops are in Zones 5 to 14. Rooms 12 – Support Planning (1st Floor)
are colour-coded. Look for the colour you want on banners and 13 – Safeguarding (1st Floor)

posters outside the rooms. 1 – Auditorium (1st Floor) 14 – Making it Real (1st Floor)

10 am | Zone 11 - Real Jobs


9 AM Sessions throughout the day will give an insight into how you
can engage people in your local communities and encourage
citizen leadership. Citizen leadership is fundamental to Who’s in control? - Lorraine Gradwell, Breakthrough UK
9.30 am | Zone 2 - Pagoda Stage making change happen in local communities. But how do we A consideration of potential barriers to handing over control
get people involved, engaged and wanting to make change and discussion on how to tackle them.

10 am | Zone 12 - Support Planning


Welcome and official opening. Julie Stansfield, CEO, happen? Are we not placing more of a burden on individuals
In Control, will open the Big event and families in this new world of personalisation?

10 am | Zone 7 - Provider Room Support planning made easy - Lynne Elwell and Julie

10 AM Personalisation and excellence in advocacy - Sondra


Butterworth, PAST Project
Woods, Merseyside Partners
Planning the future for a family member who needs support
is scary. Having someone to help you plan makes it easier.  In

10 am | Zone 1 - Auditorium
This interactive workshop will provide information about the support planning room, you will be able to talk to
the PAST project, and will encourage delegates to discuss parents and relatives who have successfully planned with
their experiences. The aim of the workshop is to help and for their children. They will give you the tips and strat-
Welcome and the launch of In Control’s Phase 3 Report egies needed to begin support planning.
delegates to learn how to develop better ways of working
10:30 am | Zone 2 - Pagoda Stage and engaging with people who have learning disabilities
10 am | Zone 13 - Safeguarding
from a variety of Black and Minority Ethnic communities.

10 am | Zone 8 - Health
Heartlift The Mental Capacity Act - Yogi Amin and Mathieu
Heartlift empower people to live and and love life through Culverhouse, Irwin Mitchell Solicitors
sport. They will demonstrate  wrestling and boxing. Citizens commissioning for health: practical possibilities A legal update on the Mental Capacity Act’s Deprivation
10 am - 4 pm | Zone 3 - Comedy Club - Jo Fitzgerald and Tom McClean of Liberty Safeguards: deprivation of liberty granted by the
A chance to explore  some of the key issues around Self- Court of Protection.

10 am | Zone 14 - Making it Real


Abnormally Funny People Directed Support in Health, with people who have direct
A group of gifted comedians. All but one of them is disabled. experience. The workshop will consider lots of questions and
(A ‘token’ able-bodied person is always required for equality present some ideas.  Some of the questions are, what does it My life, my budget - Carla Spain, Speaking Up
purposes.) Relax, laugh, be ready to be taken down paths of mean to commission for ourselves? What kind of things do Personal Budgets are all about people choosing how they
comedy pleasure (and maybe a little discomfort). we need to consider? What have other people done? How want to live and what they want to do in a safe and healthy
10 am | Zone 4 - Community Cafe
do we make sure that shift in power and control is real? The way. However, Personal Budgets can be very confusing for
workshop will invite participants to contribute to a strategy many of us, especially for people with learning difficulties
Taboo subjects: Sex and relationships - Jo-Jo to take forward this important development. that they are intended to support. The workshop introduces
10 am | Zone 9 - Research and Evaluation
Jo-Jo will talk through some of those subjects seen as a new board game called My Life, My Budget. It brings the
taboo, like sex and relationships. Join this session for a fun focus back to enabling people with learning difficulties by
and practical, easy-to-understand way of learning to keep Approaches to evaluation: how do we know we’re ensuring they understand the basics of a Personal Budget.
healthy, safe and well. The workshop will give you a chance to see and play the
making a difference to people’s lives? - Barnsley Council, game. Suitable for professionals and service users alike!
10 am | Zone 5 - Children North Lanarkshire Council, Wendy Lowder and Professor
Chris Hatton
Hope, creativity and co-operation: a single agenda? - Nic
Crosby, In Control. The Children’s zone is sponsored by
An overview of evidence to date presented by Chris Hatton.
The workshop will include case studies from Barnsley
11 AM
Action for Children Council and North Lanarkshire Council with detail about
This workshop brings together all the work of the Children’s how they evaluated their progress. 11 am | Zone 1 - Auditorium
10 am | Zone 10 - Adult Social Care
Programme and begins to draw out a single basis for
supporting children and young people. The workshop Politics, policy and change - Matthew Taylor, RSA
outlines how children’s services could evolve over the With public service policy set to feature heavily in the
Developing sustainable user-led organisations - Dr Pam
coming years and how Individual Budgets and Self-Directed General Election campaign, Matthew Taylor will explore
Thomas and Dr Laurence Clark, Breakthrough UK policy trends emerging from innovative practice and the
Support are a key driver and ingredient.
Local authorities have been set the milestone of having at ideas offered by the political parties. As the role of the state
10 - 3 pm | Zone 6 - Partners in Policymaking least one user-led organisation directly contributing to the seems set to move from service provider to decision maker
transformation to Personal Budgets by December 2010. and strategic enabler in the coming years, he will consider
Getting people involved in citizen leadership - Lynne Drawing on Breakthrough’s previous work, this seminar the potential for getting the change right, the dilemmas
Elwell and Partners in Policymaking graduates focuses on practical solutions towards meeting this target. along the way, and what’s at stake in getting it wrong.

20
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

11 am - 4 pm | Zone 3 - Comedy Club 11 am | Zone 11 - Real Jobs


Abnormally Funny People My life in pictures - Rachel Lambert and Jo Pearson
1 PM
1 pm | Zone 1 - Auditorium
More detail: see 10 am, Zone 3. Jo and Rachel will talk about their work as professional
photographers. They also describe some of the challenges
11 am | Zone 4 - Community Cafe they have overcome.
Personal Budgets: a vehicle for individual power and
Our Futures - Suzanne Grimshaw and Jane Ahern, 11 am | Zone 12 - Support Planning control - Philip Collins, Demos
In Control Reviews, reviews, reviews - Helen Sanderson Associates Philip Collins will discuss the inherent value of Personal
We have the biggest population in the western world of Outcome-focused reviews were designed by disabled Budgets as a vehicle for individual power and control. Far
people who need support and are likely to outlive their people, families and local authorities as a way of reflecting greater than a purchasing and planning tool for health and
parents and carers. This session will consider the work of on the outcomes agreed in the support plan. This workshop care. Personal Budgets represent a shift of trust and respon-
Our Futures, which has helped people create sustainable will introduce you to preparation for the review, the process sibility from state recipients to active citizens. He will also
futures for loved ones – for the time when parents and of the review, and how information from outcome-focused discuss some of the practical questions of implementation
carers are no longer around. reviews can be used to inform strategic commissioning as we move from theory to practice.
11 am | Zone 5 - Children
and provider development (a process known as ‘Working
Together for Change’). 1 pm | Zone 2 - Pagoda Stage
Stories from the frontline: young people and families 11 am | Zone 13 - Safeguarding Moveable Feast theatre
- Alison Cathles, Lead Commissioner Disabled Children, Life in the fast lane - Andy and Tina Hopley, Cumbria Moveable Feast is an internationally renowned inclusive
Gloucestershire County Council. The Children’s zone is A positive personal story about Andy’s  experience of drama and training organisation.

1 pm - 4 pm | Zone 3 - Comedy Club


sponsored by Action for Children. learning about trust. This workshop demonstrates how we
This workshop will share stories and lessons learned from all need the opportunity to learn through making our own
nearly three years of work introducing Individual Budgets mistakes. Abnormally Funny People
and Self-Directed Support to disabled children and their
11 am | Zone 14 - Making it Real More detail: see 10 am, Zone 3.
families. Gloucestershire is one of a very small number of
children’s services which is beginning to explore the appli- Choice to control - Jamie Hanson, Happy Associates 1 pm | Zone 4 - Community Cafe
cation of this way of working across their whole service for The Choice to Control model promotes an approach that
disabled children and young people. insists person-led risk assessment is a vital part of the Connect with people, discuss how to make a real

11 am | Zone 6 - Partners in Policymaking


support-planning process and can shape the way services difference in your community
are provided. Join us for tea and connect! Connecting with people and
Getting people involved in citizen leadership - Lynne having something to contribute that is of value to others
Elwell and Partners in Policymaking graduates
More detail: see 10 am, Zone 6. 12 PM is what makes life worth living. This session will stimulate,
enthuse and encourage a conversation about how everyone
can make a difference to their communities in big and small
11 am | Zone 7 - Provider Room
12 pm | Zone 1 - Auditorium
ways. Be prepared to get connected!

Money makes MY world go round: how individual 1 pm | Zone 5 - Children


Proposals for the reform of adult social care law - Frances
service funds can help people get a real life - Frances Patterson, Law Commission Safeguarding and Signs of Safety: introducing a solutions-
Brown, Inclusion Glasgow and Gina Hagan, Support for In February 2010, the Law Commission published detailed based approach to child protection - John Wheeler,
Ordinary Living provisional proposals for the reform of adult social care law. Signs of Safety and Gateshead Children’s Services. The
This workshop will offer the experience of Inclusion This presentation will set out the main proposals in relation
to principles, assessments, the provision of services and Children’s zone is sponsored by Action for Children
Glasgow over the last 14 years. Inclusion Glasgow has
safeguarding adults, as well as providing an overview on This workshop introduces the Signs of Safety approach
pioneered the use of individual service funds in Scotland.
how the proposed new legal framework would operate as a to Child Protection. John speaks both as a trainer in this
Participants will also learn how SOL has made considerable
whole. approach and in his capacity as an experienced practi-
changes from block to individualised funding. Both organi-
12 pm | Zone 2 - Pagoda Stage
sations have been providing individualised creative support tioner in Gateshead Children’s Services. Signs of Safety is a
services for many years and are members of Altrum and solutions-focused approach to child protection which shares
In Control Scotland. Moveable Feast theatre many elements with Self-Directed Support. In Control’s
Children’s Programme is exploring these similarities with
11 am | Zone 8 - Health
Moveable Feast is an internationally renowned inclusive
drama and training organisation. John and his colleagues.

Personal Health Budgets for children and young people - 12.30 pm | Zone 2 - Pagoda Stage 1 pm | Zone 6 - Partners in Policymaking
Pippa Murray, IBK Initiatives and family members Is Elvis in the building? Getting people involved in citizen leadership - Lynne
In this workshop you will hear stories from families across Join us for some singalong classics.
the country with experience of a Personal Health Budget. Elwell and Partners in Policymaking graduates
12 pm - 4 pm | Zone 3 - Comedy Club
11 am | Zone 9 - Research and Evaluation
More detail: see 10 am, Zone 6.

Abnormally Funny People 1 pm | Zone 7 - Provider Room


Personalisation and homelessness - Howard Sinclair, More detail: see 10 am, Zone 3.
This time it’s personal - Ben Harrison, United Response
12 pm | Zone 6 - Partners in Policymaking
Broadway
A fascinating case study exploring how personalised This workshop will set out the journey being taken by
budgets have been used in the City of London to reach a large charitable support provider in its efforts to put
Getting people involved in citizen leadership - Lynne
entrenched rough sleepers and support them to find new co-production into practice and become a more person-
Elwell and Partners in Policymaking graduates centred organisation. It will focus on ‘what we have tried,
lives off the street.
More detail: see 10 am, Zone 6. what we have learned, what we are planning next, ongoing
11am | Zone 10 - Adult Social Care challenges and barriers to change’.
Developing IT systems to support personalised services -
FOOD & DRINK 1 pm | Zone 8 - Health
Joe Cunningham, CareWorks
Support planning in Health including mental health - Jo
The move towards Self-Directed Support means a funda- See page 23
mental shift is required in the way that the voluntary sector Harvey, Julia Winter and Bob Marshall
is commissioned and manages care delivery. This makes the A chance to hear about what has been tried and learned in
effective use of IT an imperative if voluntary organisations support planning in health:examples of planning tools that
want to improve, adapt and compete. In this workshop, are being piloted by PCTs in their pilot projects; how the
care providers will learn how customer relationship work is being linked to other Department of Health projects
management technology can help them embrace the to promote a more cohesive approach to personalised
personalisation agenda and efficiently deliver services under planning in health. Participants are invited to share their
the self-directed model. ideas and learning.

21
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

1 pm | Zone 9 - Research and Evaluation 2 pm | Zone 5 - Children 2 pm | Zone 14 - Making it Real


Living with risk - perception of risk and learning Supporting children with complex health needs - Pippa Micro care and support services - supporting enterprise,
disability: learning from recent research and developing Murray, IBK Initiatives. The Children’s zone is sponsored creating choice - Helen Allen and Wendi Bennett, NAAPS
positive practice in risk enablement - Sam Smith, by Action for Children. Explore the challenges of personalisation from the
C-Change for Inclusion Pippa Murray, a key contributor to the work of the Children’s perspective of the provider (including providers who have
Programme, shares stories and experiences in developing support needs and who may use services themselves).
C-Change for Inclusion is an innovative organisation which
Personal Health Budgets for children with complex support Inform people about two NAAPS projects in Oldham that
supports adults with learning difficulties to live their desired
needs. advise and support providers of very small (micro) care
lifestyle and to be valued members of the community.
and support services to help them to overcome these
1 pm | Zone 10 - Adult Social Care 2 pm | Zone 6 - Partners in Policymaking challenges. Discuss with participants how engaging with
and supporting providers can result in real market choice
Achieving cultural change - Jenny Pitts, Shropshire Getting people involved in citizen leadership - Lynne and diversity for people who use services.
County Council Elwell and Partners in Policymaking graduates
More detail: see 10 am, Zone 6.
Changing the culture in services is one of the hardest things
to get right as we move to a more personalised way of deliv-
ering social care. In Shropshire, a training approach with a
2 pm | Zone 7 - Provider Room 3 PM
difference has been used and, in this session, representa- The time is now for innovation - Cath Titherington, Voice 3 pm | Zone 1 - Auditorium
tives from Shropshire and PeopleDeliverProjects describe Marketing
the approach and give a taste of a way of motivating people Putting People First one year on - Jeff Jerome, National
Personalisation poses many challenges to both providers
to communicate that will instil real change. and local authorities. This workshop looks at the critical
Director for Social Care Transformation
1 pm | Zone 12 - Support Planning marketing issues to be addressed and the importance of Jeff will discuss Putting People First as we approach the final
innovation and creativity as well as collaborative working. year.
The provider pathway - Tracey Bush, Alternative Futures Innovative services demand innovative commissioning. The
workshop  will also consider target audiences, tools and
3 pm | Zone 2 - Pagoda Stage
The workshop will cover: working with service users to
key messages and identify some quick wins as well as the Moveable Feast theatre
enable them to have an Individual Service Fund (ISF); the
importance of a well thought out strategy. The workshop Moveable Feast is an internationally renowned inclusive
choice, creativity and flexibility that goes with an ISF; and
will also launch the Innovation and Accelerator programme. drama and training organisation.
the lessons learnt from a provider perspective.
2 pm | Zone 8 - Health 3:30 pm | Zone 2 - Pagoda Stage
1 pm | Zone 13 - Safeguarding
All our lives together: participatory budgeting for Personalisation: do I have a choice? - AFTA Thought
Person-centred risk management - Lorraine Erwin, Helen
health in communities - Andrea Jones and Dave This workshop will use drama and discussion to approach
Sanderson Associates the issues faced by frontline staff, managers, care profes-
Shields
A look at person-centred approaches and tools to managing sionals and clients. The workshop will inspire and shape
Participatory budgeting involves local people in deciding
risk in a positive way. new conversations about how to bring positive change to
how best to make use of local public money to benefit their
1 pm | Zone 14 - Making it Real own community. This workshop will explore the following people’s lives.
questions: participatory budgeting what is it? How might 3 pm | Zone 3 - Comedy Club
Are your leaders in the know? - Debra Dunning, Thera it work with personalised budgets? What are Personal
Trust Budgets and where did they start? What’s happening Abnormally Funny People
around the country and how might Personal Budgets help More detail: see 10 am, Zone 3.
How do we ensure that people with a learning disability
3 pm | Zone 4 - Community Cafe
us exercise more choice and get better services? There will
are leading our organisations. A chance to share our experi-
also be a Case Study from Southampton.
ences and learn together.
2 pm | Zone 9 - Research and Evaluation Connect with people, discuss how to make a real
difference in your community
2 PM Market intelligence - Claudia Wood, Demos
Findings from the Demos Personal Budget Intelligence
Join us for afternoon tea and connect!
More detail: see 1 pm, Zone 4.
3 pm | Zone 5 - Children
Programme, exploring care-user spending patterns and the
2 pm | Zone 1 - Auditorium potential impact on local markets.

Avoid excuses and make it happen - Mark Pollock, 2 pm | Zone 10 - Adult Social Care Making best use of what we have! – Paul Connolly
with Halton Borough Council, Barnardos and Action for
adventure athlete and author Commissioning and personalisation - Clive Miller, Office Children. Sponsored by Action for Children.
When Mark Pollock lost his sight in 1998 at the age of 22, he for Public Management
thought his life was over. The story of how he overcame the This workshop draws together important learning from
This session will consider how we can progress market the work of a number of children’s members. This work
odds to rebuild his life and exceed his wildest expectations development for personalisation and will share examples
now inspires people the world over. Mark is able to help highlights the important part played by voluntary sector
from a number of local authorities. and community resources in developing Individual Budgets
individuals and organisations to redefine what is possible,
2 pm | Zone 11 - Real Jobs
to reach their potential and to inspire team motivation. His and Self-Directed Support for children and young people.
This workshop presents work done with Action for Children
message of ‘decide to avoid excuses and instead decide to
What a real job means to me - Deborah Parker and others.
make it happen’ is particularly relevant in today’s uncertain
economic environment. Deborah will talk to Karen about what having a job means 3 pm | Zone 6 - Partners in Policymaking
2 pm | Zone 2 - Pagoda Stage
to her and about some of the things she has achieved.

2 pm | Zone 12 - Support Planning


Getting people involved in citizen leadership - Lynne
Taking more control and making choices for young people Elwell and Partners in Policymaking graduates
Support planning made easy - Lynne Elwell and Julie More detail: see 10 am, Zone 6.
in transition - Together We Can performance group
Together We Can Performance group is made up of 11 Woods, Merseyside Partners 3 pm | Zone 7 - Provider Room
young people from Shropshire. They will discuss current Planning the future for a family member who needs support
is scary. Having someone to help you plan makes it easier.  In Putting the personalisation jigsaw together: becoming
issues relating to taking more control and making choices
for young people in transition. the support planning room, you will be able to talk to a truly service user-focused and customer-led provider -
parents and relatives who have successfully planned with
2 pm - 4 pm | Zone 3 - Comedy Club
Angela Newton and Elina Stamou, Together
and for their children. They will give you the tips and strat- This interactive workshop will demonstrate how Together’s
egies needed to begin support planning. approach to service-user involvement and service-user
2 pm | Zone 13 - Safeguarding
Abnormally Funny People
leadership is enabling people with mental health issues
More detail: see 10 am, Zone 3. to lead and influence personalisation at a strategic  and
2 pm | Zone 4 - Community Cafe The tensions for providers in balancing person-centred personal level.

Connect with people, discuss how to make a real


working and a commissioner’s expectations - Shonagh 3 pm | Zone 8 - Health
Methven, United Response
difference in your community What does a person-centered approach to risk management
Peer support - Graeme Ellis, Personal Budget holder and
Join us for afternoon tea and connect! More detail: see 1 pm, look like? This session looks at how it can make a difference Kate Burgess, Lancashire County Council Self-Directed
Zone 4. to a person’s life, and what to do when things go wrong. Support

22
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Graeme’s personal story: how Personal Budgets changed


my life. Graeme gives a perspective on Personal Budgets as
someone who has a physical disability.search and Evaluation
4 PM local authorities and brokers with the means for the
efficient exchange of needs and services – locally, regionally
and nationally.

3 pm | Zone 9 - Research and Evaluation 4 pm | Zone 1 - Auditorium 4 pm | Zone 11 - Real Jobs


Extra care housing for older people and people with Question Time - with an expert panel hosted by David Parenthood: challenges and solutions - Terri Balon,
mental health issues - Neil Tryner, Midland Heart Guest, North West BBC Disabled Parents Network
An overview of how Midland Heart, a housing association Members of the panel will include: Being a parent is the most challenging job in the world.
with care and support services to 700 customers is  Martin Routledge – Department of Health This workshop will consider the challenges and potential
approaching the delivery of personalised care and support  Elaine Cotterill – Family member solutions, such as personalisation, that families with
services. disabled parents face.
 Jeff Jerome – National Director for Social Care
3pm | Zone 10 - Adult Social Care Transformation 4 pm | Zone 12 - Support Planning
 Julie Stansfield – CEO of In Control
Get IT right - procuring an IT system for a local authority  Laurance Clarke – Comedian
Support planning made easy - Lynne Elwell and Julie
to support personalisation - Margaret Guest and Brett  Mark Pollock – International motivational speaker
Woods, Merseyside Partners
Adshead from West Sussex County Council  Richard Jones – Executive Director of Lancashire County Planning the future for a family member who needs support
This workshop will focus on the process followed by West is scary. Having someone to help you plan makes it easier.  In
Council
Sussex County Council to select an IT system to support the the support planning room, you will be able to talk to
 Tim Spencer Lane – Law Commission. parents and relatives who have successfully planned with
personalisation model for adults’ social care.  The workshop
presenters will share how they developed their require- 4 pm | Zone 5 - Children and for their children. They will give you the tips and strat-
ments, the procurement approach they followed and the egies needed to begin support planning.

4 pm | Zone 13 - Safeguarding
steps they took to ensure they could be confident of getting Time Banking in rural Cheshire - everybody has a skill!
the right system from the right provider. They will share the Susan Ross-Turner, Ash-worth Time Bank. The Children’s
learning gained throughout the process and describe the zone is sponsored by Action for Children Positive risk taking - Linda Mason and Cheryl Page,
work they are doing to put the system in place.
This is an interactive workshop demonstrating that Cumbria County Council
3 pm | Zone 11 - Real Jobs everybody has a skill they can share. Cumbria County Council will offer an insight into their
4 pm | Zone 6 - Partners in Policymaking
policy journey through positive risk-taking in learning
Family leadership, self-employment, social enterprises disability services as a way of ensuring person-centred plans
and more - Andrew Tyson, In Control and Keith Bates, Citizen leadership and being in control - Thomas actually make a positive impact on people’s lives.

4 pm | Zone 14 - Making it Real


Foundation for People with Learning Disabilties Mcdougall, Monica Hunter and Pru Davis, Changing Lives
The workshop will introduce In Control’s Real Jobs User and Carer forum, Scotland
programme and describe how this will support local author- From know-what to know-how - Andy Smith,
ities to help people get people a real job. Citizen leadership happens when citizens have power,
influence and responsibility to make decisions. People Diversity Matters
3 pm | Zone 12 - Support Planning who use services and their families have most to gain In Control Scotland’s leadership and change programme
from In Control, and most to lose. So how do we make sure for provider organisations is well into its second
Creativity in support planning: opening up possibilities - In Control is a movement not led by professionals, but by successful  year. This workshop explores how the
Kate Fulton, Paradigm these citizens? How do citizens develop their leadership programme works in Scotland and examines some of the
A Support Plan needs to show how a person intends to use skills? And what part should professionals play? thinking behind it:  organisational agility, right relationship

4 pm | Zone 7 - Provider Room


their Personal Budget.  True.  But a Support Plan should be and internal coherence.
so much more. The time spent developing a plan is a great
opportunity to reflect both on what you want to keep and How a national provider has changed its processes
to open up a whole new range of opportunities. Creativity
and imagination is the key! This workshop will encourage
people to think creatively about the process of developing a
Support Plan to open up possibilities for themselves or the
to promote Self-Directed Support - Anna O’Mahoney,
MacIntyre
This workshop offers  the opportunity to find out about
BIG EVENT FOOD
people they support. MacIntyre’s approach to personalisation and how a national There are two food venues – both in the
3 pm | Zone 13 - Safeguarding
support provider organisation has amended its systems and
processes to promote Self-Directed Support and the use of Exhibitor Hall (Hall 2): one to the left of
Personalised safeguarding - Dan Blake, Action for Elder
Personal Budgets. the main entrance and the other by the
Abuse 4 pm | Zone 8 - Health entrance to the Comedy Club.
This workshop will examine how current approaches to Self- Improving services for people with autistic spectrum
Directed Support can contribute to safeguarding of adults There is a good selection of hot and cold food
as well as exploring the potential risk factors. conditions and their family carers - Hugh Constant, Social
and drinks. There are several vegetarian hot
3 pm | Zone 14 - Making it Real
Care Institute for Excellence
SCIE has produced two new publications about adult dishes.
services: Access to care and support for adults with Autistic
Home ownership for people with a disability: 2010 and
Spectrum Conditions (ASC) and At a glance: Personalisation Here is a taste of what’s on offer:
beyond - David Abbey, My Safe Home briefing for people with Autistic Spectrum Conditions and
This workshop will consider the impact of home ownership their family carers. The  workshop will be based on these >> Pete’s lamb or vegetable scouse, pickled
and, more importantly, what councils and housing providers publications. The aim is to give an overview of the  barriers beetroot and crusty bread.
now need to be doing in order to give even more people that are currently preventing people with ASC and their
the opportunities they deserve (in turn meeting both the carers to access good quality care. The workshop looks
>> Szechwan noodles and stir-fried
Government’s personalisation agenda and the needs of forward to a future in which more personalised services vegetables with slow-cooked pork or
their local community). David will  be joined by a homebuyer should ensure better outcomes for this group.
tofu.
4 pm | Zone 9 - Research and Evaluation
who will share their story of how home ownership has
changed their life forever. >> Penne and arrabiata sause with
Each one, teach one - Dene Donaldson and Pauline homemade meatballs or roast
Toilets Toilets
Doyle, North West Training Development Team mediterranean vegetables.
Stairs down to
The workshop will consider methods that families can use
See the back
auditorium
to remain in control when using support services. >> All the hot dishes above are £5.95.

page for a map 1 4 pm | Zone 10 - Adult Social Care >> Sandwiches on flavoured breads or
wraps – £3.50.
of workshop
14
Using technology to change the market, in practice - Jeff
12
6
5
Dandridge, shop4support >> Nicoise, chicken or couscous salads –
rooms 8
9
13 10 The opportunities offered by new technologies could £4.00.
transform the way people get information and purchase
>> Hot and cold drinks – £2.00.
11 Lifts to 7
support. shop4support is a unique web-based technology
ground
floor

platform supplying individual consumers, service providers, >> Fresh fruit – 80p each.

23
In Control Newspaper > www.in-control.org.uk > issue 10 > Big event 2010 issue

Map 1. Level 3 – Workshops


1 Auditorium 6 Partners in Policymaking 11 Real Jobs
2 Pagoda Stage (see Exhibitor Map 2) 7 Children’s room 12 Support Planning
3 Comedy Club (see Exhibitor Map 2) 8 Health 13 Safeguarding
4 Community Cafe (see Exhibitor Map 2) 9 Provider room 14 Making it real
5 Research and Evaluation room 10 Adult Social Care
Cityside Riverside

Level 3
Workshops
Ground floor Ground floor

Toilets Toilets Level 1 - Exhibition Hall

Stairs down to Key


auditorium Lift
Escalator
Stairs
Male/Female Toilets
Disabled Toilets

1
14
12 5
6
8
13 10
9
11 Lifts to 7
ground
floor

the Big event 2010


is sponsored by:

24

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