National Update

Learning Disability Board

The name has changed to Learning
Disability Board
A first draft of a work plan was shared
Karen has been given the role of cochair
Amanda Wadsworth from the
Department for Work and Pensions
came and is looking to take forward the
employment work
Green paper: Forums to focus
campaigning efforts of self-advocacy

Transforming Care Board

Alistair Burt the Minister chairs this
meeting
Scott Watkin has just got the role of cochair
Stronger family and self-advocate board
membership
Remit for Forum reps: Leadership,
Intelligence, Challenge
NHS Fast Track Programme in six areas
and Care and Treatment Reviews
business as usual

Ministerial Roundtable
Over 400 people responded to the consultation.
The 4 key points are

1.We need more services in the community

2.People with learning disabilities and families
should be better involved in discussions.
3.Joint commissioning between health and social
care. (working together)
4.Increasing transparency and accountability.
Making sure we can all see everything
organisations are doing and we can challenge if
things are not going well.

Ministerial Roundtable

Community

Accessible

Valuing
People

Bureaucracy

Money

Groups talked
about the
responses and
talked about
changes needed,
how we could
make them, what
difference they
would make for
people and
barriers.

EXPO
MANCHESTER 2nd
SEPTEMBER

Karen Flood First Step

KAREN FLOOD
CRAIG HART &
VICKI RAPHAEL
ATTENDED
Karen Flood First Step

Jane Cummings from NHS

England held a panel discussion
with members from the National
Forum for People with Learning
Disabilities & the National Valuing
Family Forum in Manchester.
Karen Flood First Step

JANE WANTED TO KNOW:

How could the NHS make things
better for people with learning
disabilities.
How could they communicate
and become more involved in
making things better.
Karen Flood First Step

THE MAIN POINTS FROM THE

PANEL DISCUSSION WHERE
Talk to the person with the
learning disability and not their
families.
Better communication.
Karen Flood First Step

 Have a buddy system in place

this is someone to help people
with learning disabilities feel
relaxed and comfortable when
they attend the hospital or go to
there doctors/ dentists for an
appointment.
Karen Flood First Step

 Treat people with learning

disabilities with respect.
Listen to us.
Give us time to explain what is
wrong with us.
Don't use jargon word.
Booklets to explain things, like
what the NHS is and what it does.
Karen Flood First Step

MOST IMPORTANLY
Listen to us.
Let us the people with
learning disabilities help train your staff.
Karen Flood First Step

Any
Questions
?
Karen Flood First Step

Politics First
Do you remember at the last forum
we said we had the chance to do
an interview for Politics First?
We met with the editor and our
interview went into their
September edition
It went to all MPs and members of
the House of Lords

Breaking News
Employment crisis

Building the right support the plan to

move people from hospitals to home
Service model says what good
services should look like