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✧ Barbara’s Story ✧ help his son, but he’s worried about having
him tested. Barbara spends a lot of time talking
Barbara works for the Parent Training and with this dad. She reassures him about the
Information Center (PTI) in her state. She is also testing, explaining that it will help the school
the parent of a 17-year-old daughter who has learn if his son has any special needs. If so,
multiple disabilities. Barbara loves to help other then the school will be able to provide his son
parents. She understands what they are going with the services that can help him succeed. She
through. Everyday she gives many families who explains the special education process and his
have children with disabilities help, hope, and a child’s rights. She also tells him about the PTI’s
lot of information. upcoming workshops and the ones that might
be especially helpful to him. With the informa-
On this day, Barbara’s first call is from a new
tion that she gives, he is better informed and
parent who thinks her eight-month-old son may
feels more confident about having his child
need early intervention services. Barbara gives
evaluated.
her the number for the early intervention office
in her area. She sends her information about These are just some of the calls Barbara
early intervention services and about the PTI, encounters every day. Parents call the PTI want-
too. She also gives her information on a local ing to know about disability information,
parent support group. educational options, school services, respite
services, assistive technology, sources for fund-
The next call is from a social worker at a
ing, behavior plans, transition planning—just
local elementary school. She wants to know if
about anything and everything they might need
someone at the PTI can help a parent who only
to know to help their child who has a disability.
speaks Spanish. Barbara gives her the name of
one of the Spanish-speaking staff members and
What is a Parent Training and
information on how to contact her.
Information Center?
Then, Barbara places a call to a parent
she talked to last week. Barbara needed to A Parent Training and Information
do some research to get all the informa- Center—or PTI—is a terrific informa-
tion this mom needed. Now that she’s tion resource for parents of children
gathered the information, she’s ready with disabilities. Every state has at
to share it with her. Barbara also has least one PTI. Each one has a
written information she can send different name. For example, one
her. of the PTIs in California is named
Matrix Parent Network and
Another call comes from a Resource Center. The PTI in New
dad who is really worried. His Hampshire is called the Parent
son is repeating 2nd grade and Information Center. Whatever the
has been getting help after actual name, each is commonly
school. Even so, the boy is known as a PTI. Some states also
struggling in class. The school have Community Parent Re-
wants to evaluate him for a source Centers, or CPRCs. CPRCs
disability. Dad wants to know do the same work as the PTIs,
what this means. He wants to but they focus on reaching
underserved parents of children with disabili- ✦ participate in school reform
ties, who live in specific areas of the state, efforts on a local and/or
including low-income parents, parents of statewide basis if you so
children with limited English proficiency, and choose.
parents with disabilities. PTIs and CPRCs are
funded through our nation’s special education Some Centers may also:
law, the Individuals with Disabilities Education ✦ provide information to
Act (IDEA). As you can probably guess from teachers and other
their name, their purpose is to provide parents professionals who work
with information and training about: with children with disabilities;
✦ disabilities; ✦ help your child understand his or her rights
✦ parent and children’s rights under the IDEA upon reaching the age of majority; and
and other relevant laws; and ✦ help you participate in developing your
✦ resources in the community, state, and state’s improvement plan.
nation.
How do Parent Centers help parents?
Parent Centers know about the needs of
children and families. They understand school Parent Centers mainly help parents by
policies and practices. Through their experience providing information on the phone. You have
with the education of children with disabilities, a question, the PTI/CPRC tries to answer it.
the needs of families and schools, Parent They may refer you to other helpful organiza-
Centers make valuable contributions on a local tions in your community or offer practical
and statewide basis in support of schools to advice.
improve services and outcomes for students
Centers are run by well-trained and knowl-
with disabilities.
edgeable staff. Most have children with disabili-
When would I call my Parent Center? ties themselves. Some may speak more than
one language. They answer the phone prepared
You might call your PTI or CPRC when you to hear your concerns and issues. Most PTIs
have a disability-related, early intervention, have one main office with a toll-free telephone
special education, or transition question. The number, so that parents can call free of charge
Parent Center can help you: from anywhere in the state. Many PTIs also
have other offices around the state.
✦ understand your child’s disability and
special needs; Parent Centers put major effort into con-
ducting workshops, conferences, and seminars
✦ learn about the IDEA and what it means for
for parents. In these training sessions, parents
your child;
can learn about IDEA, the special education
✦ learn about the options, programs, services, process, recommended practices, and
and resources available to help your much, much more. Often, Parent
child and family; Center staff serve on different local
and state level advisory councils,
✦ learn how to talk effectively to the boards, or work groups that are
people who work with your child; designed to improve results for
students with disabilities and
✦ actively participate in making deci-
enhance home-school-community
sions about the services your child
partnerships. Some Centers also
receives;
extend their training and information
✦ work effectively with your child’s school to services to professionals who work with
develop your child's educational program; children with disabilities and their families.
✦ understand the benefits of mediation for Centers also use snail mail, e-mail, faxes,
resolving disagreements with your child’s and Web sites to share their information. Many
school; and Centers publish newsletters and other written
✦ Collaborating with Your Child’s School To find your Parent Center, look at the
NICHCY State Resource Sheet for your state
✦ How to Advocate for Your Child (available on our Web site or by contacting us
✦ What Do You Do When Home-School directly). You’ll find the PTIs and CPRCs listed
Communication Breaks Down? there (under “Organizations Especially for
Parents”) as well as other information resources
Many Parent Centers have lending libraries. such as disability-specific organizations and
If yours does, they may loan you a book or a state agencies serving children with disabilities.
video. They may also suggest specific organiza-
tions or specialists working in the area of your Also, the Technical Assistance ALLIANCE for
daughter’s disability. Parent Centers is the national coordinating
project for all PTIs and CPRCs throughout the
The PTI/CPRC may offer to review your U.S. and territories. You can find your state’s
child’s school records with you. Together, you parent center on the ALLIANCE Web site.
can see if anything is unclear or appears to be
missing. If it seems that more information on NICHCY: www.nichcy.org
your child is needed, the Center will give you 1.800.695.0285
some ideas on how to talk with the school The ALLIANCE:
about gathering this information. www.taalliance.org/Centers/PTIs.htm
1.888.248.0822
Special thanks to Project Officers, Dr. Peggy Cvach and Donna Fluke, at the Office of Special Education Programs, for
their advice in preparing this publication. Heartfelt appreciation also goes to the following individuals for sharing their
parent center expertise: Paula Goldberg and Sue Folger, Co-Directors of the ALLIANCE; Nora Thompson, Matrix, CA;
Renee Whaley, Family Network on Disabilities, FL; Janet Jacoby, MPACT, MO; Agnes Johnson, Project Empower,
MS; Dena Hook, OCECD, OH; Sharon Bishop, Oklahoma Parent Center, OK; and Mary Eaddy, PRO-Parents, SC.
Thanks for all your hard work and longstanding commitment to parents and children!