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2012

Data Demand
and Use:
An Introduction to
Concepts
and Tools
Tara Nutley
Elizabeth Snyder
Nicole Judice
MS-12-54

Data Demand and Use:


An Introduction to Concepts
and Tools

MEASUREEvaluation

MEASURE Evaluation is funded by the U.S. Agency for International Development (USAID) through Cooperative
Agreement GHA-A-00-08-00003-00 and is implemented by the Carolina Population Center at the University of
North Carolina at Chapel Hill, in partnership with ICF International, John Snow, Inc., Management Sciences for
Health, Palladium, and Tulane University. The views expressed in this publication do not necessarily reflect the
views of USAID or the United States government. MS-12-54 (March 2012, Revised December 2015)

Acknowledgments
ThecoursewascreatedandreviewedbyMEASUREEvaluationstaffmembersandconsultants,
especiallyTaraNutley,NicoleJudice,ElizabethSnyder,TeresaHarrisonMelissaDunn,Samson
Bamidele,KarenForeit,JasonSmith,SivanGoobich,KatharineMcFadden,andAditiKrishna.ITsupport
wasprovidedbyEdVanDuinen.TomSwaseyprovidedvaluabledesignandlayoutsupport,andNash
Herndoneditedthecourse.

Notes
This publication follows an interactive version of the course found in MEASURE Evaluation's online
trainingresource,availableat:http://www.cpc.unc.edu/measure/training/onlinecourses.

Underlined,boldfacedwordsinthismanualdenotetermsdefinedintheGlossaryofTerms(page86).

DataDemandandUse:AnIntroductiontoConceptsandTools

TABLEOFCONTENTS
IntroductiontoDataDemandandUse.............................................................................................................6
DeterminantsofDataUse...............................................................................................................................18
KeyElementsofDecisionMaking...................................................................................................................29
InformationFlowandFeedback......................................................................................................................46
FrameworkforLinkingDatawithAction.........................................................................................................67
FINALEXAM.....................................................................................................................................................80
GLOSSARY........................................................................................................................................................86

DataDemandandUse:AnIntroductiontoConceptsandTools

DataDemandandUse:AnIntroductiontoConcepts
andTools

PURPOSE
Significanthumanandfinancialresourceshavebeeninvestedworldwideinthecollectionof
population,facility,andcommunitybaseddata.However,thisinformationoftenisnotusedbykey
stakeholderstoeffectivelyinformpolicyandprogrammaticdecisionmaking.Asaresult,manyhealth
programsfailtofullylinkevidencetodecisionsandsufferfromadecreasedabilitytorespondtothe
priorityneedsofthepopulationstheyserve.Manypossiblefactorsundermineevidencebased
decisionmaking.Somerelatetohowinformationflowstodecisionmakers,andhowtheymaketheir
decisions;otherstothecontextinwhichinformationiscollectedanddecisionsaremade;andyet
otherstotheorganizationalinfrastructureandtechnicalcapacityofthosethatgenerateandusedata.

Thiscourseaimstoprovidetheconceptualbasisfordatainformeddecisionmakingwithinan
organizationorprogram,oratthenational,state,ordistrictlevelsofgovernment.Alsoincludedinthe
courseareintroductionstoseveraltoolscreatedbyMEASUREEvaluationtofacilitatetheuseofdatain
decisionmaking.

OBJECTIVES
Thespecificlearningobjectiveofthecourseistoimprovetheunderstandingof:
theroleofdataindecisionmaking
thecontextofdecisionmaking
thedeterminantsofdatause
theimportanceofdatasharingandfeedback

TIME
Thiscoursetakesapproximatelythreehourstocomplete.Itfollowsaninteractiveversionfoundonthe
MEASUREEvaluationWebsiteat:https://www.cpc.unc.edu/measure/training/onlinecourses

DataDemandandUse:AnIntroductiontoConceptsandTools

AUDIENCE
Thiscourseisappropriateforhealthprofessionals,policymakers,andotherkeyhealthdecisionmakers
whoareinthepositiontousedatatoinformthedesign,implementation,monitoring,and
improvementofhealthprograms,andwellashealthprofessionalswhoacquireandanalyzehealth
dataandpreparethemfordistributiontoaudiencesofusers.Theseincludemonitoringandevaluation
specialists,dataclerks,orresearchers.Priortotakingthiscourse,itisadvisedtocompletetheM&E
FundamentalsCourseavailableontheMEASUREEvaluationWebsiteat:
https://www.cpc.unc.edu/measure/training/onlinecourses.

DataDemandandUse:AnIntroductiontoConceptsandTools

IntroductiontoDataDemandandUse

OBJECTIVES AND
OVERVIEW

OBJECTIVES

understand the importance of improving datainformed decision


making
understand the role of monitoring and evaluation (M&E) data in
decisionmaking

OVERVIEW

theroleofdataindecisionmaking
challengestousingdataindecisionmaking
thepurposesofM&E
examplesofdatause

Theneedforqualityhealthcareservicesisapparenttoallofus.

There is evidence to suggest that the global HIV epidemic is stabilizing,


althoughatanunacceptablyhighrate.Therewereanestimated33million
peoplelivingwithHIVatthecloseof2008,themajorityofwhomeither
needorwillsoonneedtreatment.

Approximately 1.7 million people died from tuberculosis (TB) in 2009.


Moreover,manynewcasesareresistanttomajorTBtherapeuticdrugs.

Eachyear,malariacausesnearly1milliondeaths,mostlyamongchildren
under5yearsofage,andanadditional190millionto325millionclinical
casesthatneedtobeaddressedbythehealthsystem.

InmuchofsubSaharanAfrica,thetransitionfromhightolowtotalfertility
rates(TFR)hasstalled.Intwothirdsofcountriesintheregion,therewas
nomeaningfulchangeintheTFRduringtheintervalbetweenthetwomost
recentDemographicandHealthSurveys.

Inmanycountries,youngpeoplethosebelowtheageof20accountfor
thelargestproportionofthepopulation.Inthenextfewyears,wewillsee

DataDemandandUse:AnIntroductiontoConceptsandTools

WHY IMPROVE
EVIDENCE-BASED
DECISION
MAKING?

largernumbersofpeopleneedinghealthservicesasthiscohortages.In
the face of this demand, many countries are experiencing inadequate
numbers and poor distribution of qualified health workers and an
inadequatehumanresourcessystemtosupportthem.

Itisextremelyimportantforgovernmentstomakethebestuseoftheir
limitedresourceswithinthiscontextofahighdiseaseburden,agrowing
population, and insufficient health services. There is an urgent need to
developtargetedstrategies,policies,andinterventionsthatarebasedon
qualitydata.

The importance of evidencebased decision making is expressed by a


nationallevel policymaker in Nigeria who participated in a data use
assessmentconductedbyMEASUREEvaluation.Theassessmentinvolved
interviews with a range of professionals at the national, regional, and
facilitylevels.

without information, things are done arbitrarily and one becomes


unsureofwhetherapolicyorprogramwillfailorsucceed.Ifweallowour
policiestobeguidedbyempiricalfactsanddata,therewillbeanoticeable
changeintheimpactofwhatwedo.

WHY ADDRESS
DATA DEMAND
AND USE?

Intodaysenvironment,manyhealthprofessionalshavebecome
overwhelmedwithcollectingandusingdatarelatedtoservicesthey
deliver.Insomecontexts,datarequirementsfromgovernmentand

DataDemandandUse:AnIntroductiontoConceptsandTools

donorshavegrownexponentially,tothepointwheresomeprovidersand
implementingpartnershavepagesandpagesofformstofillindaily.
Rarelyaredatausedtomonitorprogramsandmakedecisionsbeyond
individualpatientcare.Thisisahugelostopportunitybecausedataare
criticaltotheprogramimprovementanddecisionmakingprocess.

EVIDENCE-BASED
DECISIONMAKING
PROCESS

KnowledgeRecap
Selectthebestoptionfromthechoiceslistedbelow.

Question:Whyisitimportanttoinformdecisionswithdata?
a)Decisionsbasedonevidenceleadtobetterhealthoutcomes
b)Toimproveprograms
c)Tomakethebestuseoflimitedresources
d)Todeveloptargetedstrategies,policies,andinterventions
e)Alloftheabove
f)Noneoftheabove

Answersareonpage17.

Inordertounderstandthefactorsthatinhibitorencourageevidence
baseddecisionmaking,weneedtoreviewtheentireprocessthatleads
toevidencedbaseddecisionsandeventuallytoimprovedhealth
outcomes.Therearemanyothercontributingfactorsthataffectdata
use.

DataDemandandUse:AnIntroductiontoConceptsandTools


Theframeworkpresentedhereillustratestheentirecycleofevidence
baseddecisionmaking.Thisapproachillustratestheideal.Whenthereis
ademandfordata,thenecessaryresourcesareinvestedtocollectthat
data.Oncethedataarecollected,theywillbeanalyzedandsynthesized
intoaformatthatmakesthedataavailablefordecisionmaking.Once
available,thedatacanbeusedtoinformhealthprogramsandsystems.
Youwillnotethatinadditiontodatacollectionandthereforeavailability,
therearealsotheconsiderationsof:

securingthetechnicalandhumancapacitytomanageandanalyze
thedata
ensuringthattheinformationisavailableandinaformatthatis
easilyunderstoodbytherelevantstakeholders
fosteringtheinterpretationoftheinformationanditsultimate
usetoimprovepoliciesandprograms.

Thecyclesupportstheassumptionthatthemorepositiveexperiencesa
decisionmakerhasinusinginformationtosupportadecision,the
strongerthecommitmentwillbetoimprovingdatacollectionsystems
andcontinuingtousetheinformationgenerated.Theframeworkwillbe
discussedinmoredetailinUnit2.

Isthisidealframeworkofevidencebaseddecisionmakingwhatweare
experiencinginourownworkenvironments?Mostofuswouldagree
thatitisnot.

DISSATISFACTION
WITH LEVEL OF
SCIENTIFIC
EVIDENCE USED
IN POLICY
DECISIONS

DataDemandandUse:AnIntroductiontoConceptsandTools

A 2008 international survey conducted by the Overseas Development


Institute found that there is a high level of dissatisfaction among policy
makers,programimplementers,andresearcherswiththedegreetowhich
policydecisionsareinformedbyresearchevidence(Jonesetal.,2008)*.

Specifically, we see that 42% of policy makers, 60% intermediary


organizations,and54%ofresearchersstatedthattheyweredissatisfied
thattheirpolicymakingwasbeingbasedonevidence.Whyisthis?Why
are our decision makers not using data and evidence to inform their
decisions?

*Jones,&H.JonesandC.Welsh(2008)PoliticalScience?Strengthening
SciencePolicy Dialogue in Developing Countries. Working Paper 294.
London,UK:ODI.

KnowledgeRecap
Question:Selecttheactionbelowthatisastepinthedatauseprocess
butbyitselfisnotdatainformeddecisionmaking:

a)Usingdatatoallocatescarceresourcesamongseveraldifferent
programareas
b)Usingdatatodeterminewhythefertilitytransitionhasslowedinyour
country
c)Usingdatatodeterminewhichpopulationsarecontributinghighrates
ofHIVinyourcountry
d)Usingdatatocompleteareporttoadonor
f)Noneoftheabove

Answersareonpage17.

DataDemandandUse:AnIntroductiontoConceptsandTools

10

Eveninthefaceofimprovementsinsystemstocollectquality
information,thereisoftenadisconnectbetweendecisionmakingand
availabledata.Muchofthedatacollectedarenotusedaseffectivelyas
theycouldbe.

CHALLENGES

Therearemanypossiblereasonsforthisdisconnect.Someofthemost
commonbarriersthatthwartafunctioningcycleofevidencebased
decisionmakingincludethefollowing:
Littleornocommunicationmaytakeplaceamongdatausers
(policymakers,serviceprogrammanagers)anddataproducers
(researchers,M&Eexperts).Asaresult,datacollectioneffortsdont
addressthekeyinformationneedsofthedatausers.
Thereislittlecapacitytocollect,analyze,andinterpretdata.Skillsare
lackingforensuringthatthedatabeingcollectedareofgoodquality.The
toolsandskillsneededtoanalyzeandthenapplytheanalysisto
programmaticneedsalsoareweakinmanycontexts.
Thereisntacultureofdatause.
Thevalueofdatainimprovingtheprovisionofservicesisnotfully
recognized,anditisthereforenotprioritized.Asaresult,datafrequently
arenotusedbeyondpopulatingareporttoadonororfillingoutaform.

THE RESPONSE

Whatcanwedotoaddressthesechallengesandimproveevidencebased
decisionmaking?
DataDemandandUse:AnIntroductiontoConceptsandTools

11

WecancommittoutilizingdatathatresultfromM&Esystemsinthe
decisionmakingprocess.Thesedatacaninformthedesignofnew
programsandinterventions,planning,andmanagingprogramsand
facilitiesthat,intheend,contributetobetterhealthoutcomes.

MONITORING
AND EVALUATION

M&Esystemsunderpintheevidencebaseddecisionmakingprocess.The
dataallowustotrackprogressinthedeliveryofhealthservicesand
evaluatetheoutcomeandimpactoftheseservicesonthehealthstatus
ofourcommunities.

TherearemanydatasourcesthatcontributetotheM&Esystem.
Commondatasourcesinclude:

DATA SOURCES

Routinehealthinformationsystems(RHIS)RHIScapturedata
ontheservicesyouprovideinyourclinicalsettings.Duringthis
module,mostofourdiscussionswillrelyonservicedeliverydata
asadatasource.
CensusAcensusisacountingofpeopleinaspecificgeographic
area.Youareprobablyfamiliarwithyournationalcensusthat
enumeratesthenumbersofpeopleinyourcountry.Thisisalsoan
importantdatasourceinthehealthfieldbecauseitallowsusto
calculatethenumbersofpeopleinneedofspecificservices.
Surveys,evaluations,researchstudiesThesedatasources
captureinformationonspecifictopicsandpopulations.Theyhelp

DataDemandandUse:AnIntroductiontoConceptsandTools

12

usanswerspecificquestionsandfrequentlygiveusinformation
thatcanhelpustoimproveourprograms.
SurveillanceThistrackstheprevalenceofspecificdiseasesina
targetpopulationovertime.Prevalencereferstothetotal
numberofcasesofadiseaseinagivenpopulationataspecific
time.Thesedatahelpustoestimatetheburdenofspecific
diseases.
ManagementsystemsThereareothersourcesofdatathatwe
dontoftenconsider,suchasmanagementsystemsdata.For
example,budgetinformationcanhelpustrackourexpenditures
andilluminatewhatspecificprogramelementscost.Human
resourcesinformationcanhelpustoensurethatourhealth
facilitiesareappropriatelystaffed.

Whatarethepurposesofmonitoringandevaluation?
M&Eisanessentialprocessinprovidingeffectiveandefficientservices
andensuringthatprogramsarerelevantandsuccessful.Forexample,it
helpsustomakeinformeddecisionsaboutappropriatestaffingandthe
needforotherresources.

PURPOSES OF
MONITORING
AND EVALUATION

M&Ehelpsustomonitorourprogramsandknowwhetherthese
programsaremeetingtheirstatedgoalsandobjectives.M&Ehelpsusto
evaluatewhetherourprogramsarehavingtheirdesiredimpact.Ifwe
wanttoknowhowaprogramisperforming,wemightassessitagainst
targetsthathavebeensetforspecificindicatorsbytheprogramor
fundingagencyorgovernment.Forinstance,wemightassessifa
breastfeedingprogramisreachingitsgoalsinprovidingcounselingto
pregnantwomenduringantenatalcare(ANC)bythepercentageof
childrenundersixmonthswhoareexclusivelybreastfed.
M&Ehelpsustogeneratenewknowledgeaboutunderserved
populationsortheneedfornewservicesaroundanemerginghealth
issue.Wecanalsodiscoverfactorsthatinfluencehealthoutcomes,as
wellasotherimportantinformation.Theuseofmonitoringand
evaluationdataallowsproviderstomakeevidencebaseddecisionsto
designandmanagehealthprograms,whichresultsinbetterhealth
outcomes.

DataDemandandUse:AnIntroductiontoConceptsandTools

13

However,forM&Etohavethisdesiredimpact,M&Edataand
informationmustbesharedandusedstrategicallybyprograms,service
deliveryorganizations,policymakers,andotherstakeholders.

KnowledgeRecap

Question:Thepurposesofmonitoringandevaluationinclude:

a)Trackprogramprogress
b)Guidepolicymakers
c)Informdecisions
d)Assessprogramimpact
e)Alloftheabove

Answersareonpage17.

OftentimespeopleseeM&Easpolicingorasaprocessmeanttocriticize
andunderminetheirwork.Inothersituations,anM&Eunitisonly
establishedforthepurposeofreporting.

M&E SUPPORTS
DECISION
MAKING

Policymakers,programmanagers,andM&Especialistscanbepartnersin
progressdesigningnewprograms,makingimprovementstoplansand
programs,policymakingand,atthefacilitylevel,identifyinggapsand
opportunities.
StrongdecisionmakingandmanagementrelyonhighqualityM&Eor
strategicinformation.Withoutinformation,itisdifficulttomakean
effectiveandsuccessfuldecisionormanageshiftsinaprogram.
Finally,dataqualityislinkedtodatause.Asincreasedattentionisbeing
paidtodataquality,especiallyatthepointofdatacollection,thehealth
facilitylevel,itisimportanttoknowthatdataqualitynaturallyimproves
asindividualsandorganizationsunderstandhowusefuldataand
informationcanbe.
WecanuseM&Einformationto

DataDemandandUse:AnIntroductiontoConceptsandTools

14

informpoliciesandplans
raiseadditionalresources
strengthenprogramsandimproveresults
ensureaccountabilityandreporting
improvequalityofservicesprovided
contributetogloballessonslearned

KnowledgeRecap

Question:Avoluntarycounselingandtesting(VCT)clinicusesitsmonthly
reportstodeterminewhethertheyaremeetingthegoalofenrolling10
newclientseverymonth.TrueorFalse:Themonthlyreportsinthiscase
arebeingusedtoinformthecliniciftheirprogramissucceedingmeeting
itsobjectives.

a)True
b)False

Answersareonpage17.

Nowletslookatsomeexamplesofhowdatawereusedatdifferent
levelsofthehealthsystemtoimproveprograms.TheCtedIvoire
MinistryofHealth(MOH)andMEASUREEvaluationworkedtogetherto
improvedatacollectionandanalysis,informationavailability,and
informationuseconcerningHIV/AIDS.Asaresult,from2006to2008,the
numberofpeopletestedforHIVincreasedby77%,andthenumberof
peoplecounseledincreasedby72%.

VOLUNTARY
COUNSELING
AND TESTING IN
COTE DIVOIRE

MEASUREEvaluationandtheMOHbeganworkingtogetherin2004to
improvetheHIV/AIDSRHIS.Evaluatorsdecidedtofocusonbuilding
priorityHIVindicators,developingHIVdatacollectiontools,andadding
HIV/AIDSinformationtoexistingRHISdatareportingforms.
Oncedeveloped,theseHIVdatacollectiontoolsandrevisedRHISdata
collectionformsimproveddatacollectiononHIVservicesatthefacility
level.Withmoreeffectiveandreliablesystemsinplace,MEASURE
EvaluationandtheMOHbegancollectingdataonpreventionofmother

DataDemandandUse:AnIntroductiontoConceptsandTools

15

tochildtransmission(PMTCT),voluntarycounselingandtesting,and
careandtreatment.
Resultsfromthedatacollectioneffortwerecompiledina2005national
reportdistributedtotheMOHandkeypartners,includingtheWorld
HealthOrganization,theU.S.PresidentsEmergencyPlanforAIDSRelief
(PEPFAR)andPEPFARimplementingpartners,andtheGlobalFundto
FightAIDS,TuberculosisMalaria.ThereportfoundthatCtedIvoire
neededmajorimprovementsinservicedelivery,andthatVCTservices
wereoftenunavailableorinadequatelydistributed.
Inresponsetothereport,thenationalHIVcareandtreatmentprogram
createdandlaunchedstrategiestoimproveVCTcoverage.In2008,the
MOHconductedanotherroundofanalysis,toseeifthesestrategieshad
successfullyimprovedVCTcoverage.Thesynthesisofthesedatafound
majorimprovements:all18healthregionswereofferingVCT.Moreover,
from2005to2008,thetotalnumberofpeoplecounseledperyear
increasedfrom127,044to218,684,andthetotalnumberofpeople
testedperyearincreasedfrom111,147to197,428.

Nowletslookatanotherexample.InNigeria,MEASUREEvaluationhas
workedwiththeNigeriangovernment,internationalorganizations,and
otherimplementingpartnersinthedevelopmentofanewroutine
informationsystemforHIV/AIDScalledtheNigerianNationalRoutine
InformationManagementSystem,orNNRIMS.

USING NNRIMS
DATA TO INFORM
RESOURCE
ALLOCATION

Statesandlocalgovernmentshavebeentrainedinthesystem,and
regularlyprepareandreviewquarterlyreports.InNasarawaStateinthe
Domalocalgovernmentauthority(LGA),theLGAchairmannotedthat
only53peopleinDomaLGAtestedHIVpositiveinthefirstquarterof
2006.Thechairmanwasalarmedandalsoconcernedthattestingwasnot
yetwidespreadintheLGA.Asaresult,thechairmanprocured480HIV
testkitstobedistributedtofourlocalhealthfacilities,enablingmore
peopletobetestedforHIVinDoma.

Decisionsbasedonevidenceleadtobetterhealthoutcomes.

DataDemandandUse:AnIntroductiontoConceptsandTools

KEY MESSAGES

16

WeallhavearoleinM&Epartnersinprogress.
Highqualityinformationisneededfordecisionmakingatpolicy,
planning,andprogramlevels.

KNOWLEDGE
RECAP:
ANSWERS

ThepurposeofM&Eisnotjusttoproducemoreinformationbuttoinformaction.

Thecorrectanswersareasfollows:

Question:Whyisitimportanttoinformdecisionswithdata?
CorrectAnswer:e)Alloftheabove.

Question:Selecttheactionbelowthatisastepinthedatause
processbutbyitselfisnotdatainformeddecisionmaking:

CorrectAnswer:d)Whileusingdataforreportingisanimportant
stepinthedatauseprocess,itdoesnotguaranteethatthedata
willbeusedfordecisionmaking.Regulardataandreportreview
meetingshelptoensurethedataisusedindecisionmaking.

Question:Thepurposesofmonitoringandevaluationinclude:

CorrectAnswer:e)Alloftheabove.

Question:Avoluntarycounselingandtestingclinicusesits
monthlyreportstodeterminewhethertheyaremeetingthegoal
ofenrolling10newclientseverymonth.TrueorFalse:The
monthlyreportsinthiscasearebeingusedtoinformtheclinicif
theirprogramissucceedingmeetingitsobjectives.

CorrectAnswer:a)ThepurposeofthisM&Einformation(monthly
clinicreports)istodetermineifaprogramisontrackincarryingout
plannedactivities.

DataDemandandUse:AnIntroductiontoConceptsandTools

17

DeterminantsofDataUse

OBJECTIVES AND
OVERVIEW

Objectives

explainthedatauseconceptualframework
highlightthedeterminantsofdatause
listpotentialbarrierstodatause

Overview

theroleofdataindecisionmaking
challengestousingdataindecisionmaking
thepurposesofM&E
examplesofdatause

DATA DEMAND
AND USE

Inthelastunit,webrieflydiscussedthedatademandanduseconceptual
framework.Thisframeworkdepictsthecycleofdatademand,collection,
availability,anduseinherenttomonitoringandevaluation.The
overarchingprincipleoftheframeworkisthatevidencebaseddecision
makingwillpromotetheachievementofimprovedhealthoutcomes.This
graphicpresentstheMEASUREEvaluationdatademandanduse
conceptualframeworkasacyclefromdemandtoutilization(which

DataDemandandUse:AnIntroductiontoConceptsandTools

18

directlyaffectsdemand);embeddedinthecycleisthedecisionmaking
process.
LetsstartatthebottomofthecirclediagramDatademandinvolves
stakeholdersactivelyandopenlyrequestingquality,healthrelateddata
andinformation.Datademandcouldincludemanagerialorpolicy
directivestocollectspecificdata,neworincreasedresourceallocation
fordatacollectionandanalysis(e.g.,budgetlineitems,establishingor
strengtheningstatisticalunitsinsideministriesorprograms,modifying
jobdescriptions),andrequestsforspecialanalyses.
Thenextboxattheleftsideofthediagramdatacollectionrepresents
theresponsetothedemandfordata.Informationissoughttoinformthe
datagap.Thiscouldbetheinitiationofanewresearchstudyorthe
requestforaspecialanalysisofexistingroutinehealthinformation.
Thenextboxatthetopofthediagramshowstheavailabilityofthenewly
collecteddata.Heredataaretransformedintoaformatthatcanbeeasily
understoodbytheuseranddisseminatedtotheenduser.Itisimportant
thatthedecisionmakerunderstandstheinformationneededtoinform
thedecision.
Last,theboxattherightsideofthediagramutilizationrepresentsthe
useofinformationinthedecisionmakingprocess.Adecisionmakermay
usedatatoinformthedevelopmentofastrategicplan,makeprogram
changes,orinitiateanewpolicy.

DataDemandandUse:AnIntroductiontoConceptsandTools

19


KnowledgeRecap

Question1:Arequestforareviewofpastfinancialdatainorderto
determinetheamountofanewprogrambudgetrequestisanexample
of:

a)Datademand
b)Datacollection
c)Dataavailability
d)Datautilization

Question2:Thefindingsofacountrywidebehavioralhealthsurveywere
publishedandaspecialmeetingwasheldwithpolicymakerstoinform
themofthefindings.Inaddition,thedatasetwasmadeavailableonline
withspecificfeaturesthatallowuserstoautomaticallygenerategraphs
andchartsfortheirindicatorsofinterest.Theseactivitiesrepresent:

a)Datademand
b)Datacollection
c)Dataavailability
d)Datautilization

DataDemandandUse:AnIntroductiontoConceptsandTools

20

WHAT
DETERMINES DATA
DEMAND AND
USE?

Asweareallwellaware,thedatademandandusecycledoesnotalwaysfunctionaswehaveoutlined.
Therearemanyfactorsthataffectdatause.Letsconsiderwhythishappens.

Hereyouseethethreemaindeterminantsofdatause.Wedefinedeterminantasadeterminingor
causalelementorfactordirectlylinkedtodatause.Thethreedeterminantshighlightedare
organizational,technical,andbehavioral.
Organizationaldeterminantsthesedeterminantsrelatetotheorganizationalcontextthat
supportsdatacollection,availability,anduse,suchastheidentifiedproceduresandtheroles
andresponsibilitiesofthosethatcollect,analyze,disseminate,andusedata.
Technicaldeterminantsrefertothetechnicalaspectsofdatacollectionprocessesandtools,
suchasthedatacollectionprocesses,methods,forms,andM&Estaffskills.
Behavioraldeterminantsrefertothebehaviorofindividualswhoproduceandusedata.This
wouldcovertheirattitudes,values,andmotivation.

Allthreeoftheseareasaffectdatauseindecisionmaking.Letstakeamoreindepthlookateachof
thesedeterminants.

DataDemandandUse:AnIntroductiontoConceptsandTools

21

Organizationaldeterminantscanincludesuchconstraintsas:

inadequatehumanandfinancialresourcestoimplementM&E
systems
unclearjobrolesandresponsibilities
insufficientmanagementprocedurestosupportM&Eanddata
use
inadequaciesintheflowofinformationinanorganization
infrastructurelimitations,includingpoortelecommunicationsor
computerinfrastructure.

ORGANIZATIONAL
DETERMINANTS

Thedeterminantsofdatausefrequentlycontributetothe
underutilizationofdata.Forexample,letsdiscusssomeexamplesof
whatwemeanbythecategoriesofdeterminantsofdatause.

TECHNICAL
DETERMINANTS

Dataoftenareunderutilizedbecause:

theremaybealackoftechnicalskillsindataanalysisorcomputer
literacy
theremaybealackofcomputers
thedesignofthedatasystemmayposeconstraintstousingthe
data
thedefinitionofindicatorsmaynotbeappropriateforuseormay
bemoreresponsivetoreportingneedsthantheneedsof
programs
theremaybealackofdataqualityassuranceprotocols,whichcan
resultindatathatstakeholdersdonottrust.

Datacanalsobeunderutilizedbecauseofindividualbehaviors.For
instance,theattitudeofdecisionmakerswillplayabigrolein
determiningifdataandinformationareused.Ifdecisionmakershaveno
interestinusingdata,theywillmakedecisionsbasedonotherfactors.
Also,staffmotivationtocollectqualitydata,analyzethedata,anduse
themmaybelow.

BEHAVIORAL
DETERMINANTS

DataDemandandUse:AnIntroductiontoConceptsandTools

22

WHAT DETERMINES
DATA DEMAND
AND USE?

Inadditiontoorganizational,technical,andbehavioraldeterminants,we
alsoneedtorememberthatthepolitical,cultural,andsocialcontextsare
additionalfactorsthataffectthedemandforanduseofinformation,
becausedecisionmaking,sharingofinformation,datacollection,and
reportingalloccurwithinthesecontexts.Inaddition,sometimes
decisionsmaybemadebecausethedecisionmakerfeelsinhisorher
gutthatitistherightthingtodo.
Itisimportanttoassessalloftheseareaswhendevelopingastrategyto
improvedatause.Ideally,afullassessmentofaroutinehealth
informationsystemwouldbeconductedtoidentifystrengthsand
weaknessesintheseareas,suchasthePerformanceofRoutine
InformationSystem(PRISM)assessmentprocessdevelopedbyMEASURE
Evaluation.However,amoreconcise,rapidassessmentcanalsobe
helpful.
FormoreinformationaboutPRISM,pleasesee:
https://www.cpc.unc.edu/measure/tools/monitoringevaluation
systems/prism.

DataDemandandUse:AnIntroductiontoConceptsandTools

23


KnowledgeRecap

Question:AlackofsupportforM&Ewithinanorganizationisa/an
______________barriertodataandinformationuse.

a)Individualorbehavioral
b)Technical
c)Organizational
d)Noneoftheabove

Answersareonpage28.

Letsreviewarapidassessmenttoolthatcanbeusedtoidentifybarriers
todatause.
TheAssessmentofDataUseConstraintsprocessisatooldevelopedby
MEASUREEvaluationfortherapidassessmentofconstraintstodatause.
ItisbasedonthePRISMframeworkandassistsusersinimproving
understandingofthedemandfordataandtheconstraintsondatause.
Specifically,itidentifiesexisting:

ASSESSMENT OF
DATA USE
CONSTRAINTS

barriersandconstraintsondatause
bestpracticesindatause,sothesepracticescanbeapplied
elsewhere

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24

Theassessmentisconductedbyinterviewingkeyinformantsatvarious
levelsofthehealthsystem.Theassessmentalsocanbeusedtoexamine
processeswithinafacilityororganizationandincorporatedintohealth
informationandorganizationalcapacitybuildingassessmentsatthe
nationalandsubnationallevels.
TheAssessmentofDataUseConstraintsinterviewguideisorganizedby
thethreedeterminantsofdatausediscussedpreviously.

Above,youseeanexamplefromtheAssessmentofDataUseConstraints
tool.Asyoucansee,thesequestionsareintendedtoidentifytechnical
constraints.Thereareadditionalsectionsofthetoolwithquestions
aboutindividual/behavioralandorganizationalconstraints.Therearetwo
versionsoftheassessmenttoolthataccommodatethedifferentneedsof
userswhenassessingbarrierstodatause.Thefirstinterviewingguide,
Version1:NationalandSubnational,aimstoprovideabroadviewof
constraintsatthenationalandsubnationallevelsbycollecting
informationfromdecisionmakersontheircurrentuseofdataandon

DataDemandandUse:AnIntroductiontoConceptsandTools

25

theirperceptionsoftheconstraintstodatauseforevidencebased
decisionmaking.Thesecondinterviewingguideisintendedtobeused
amongstaffworkingatthehealthfacilitylevel.Version2:Facilityaimsto
provideanunderstandingofconstraintstobothgeneratingandusing
dataatlowerlevelsofthehealthsystem,suchashealthfacilities,
thereforeseparateinterviewingguidesfordatausers(program
managers,clinicalstaff)anddataproducers(dataclerksandmanagers,
M&Estaff)havebeendeveloped.Version2;Facilityalsoprovidesmore
focusonindividualandorganizationalconstraintsthanVersion1:
NationalandSubnational.Inadditiontotheinterviewingguides,an
actionplanmatrixisprovidedtohelpparticipantswiththeprocessof
identifyinginterventionstoaddressthebarriersandconstraintsthatare
identifiedintheassessment.

TheAssessmentofDataUseConstraintstoolscanbeusedformally
whereasampleofkeyinformantsisidentifiedtorespondtothe
questionsoritcanbeusedinformallytoguideadiscussionaround
barrierstodatause.Ineithercontext,theassessmentusersalways
shoulddiscusshowtheyintendtoovercomethebarriersidentified.Data
usewillnotimproveinyoursettingsunlessaplanisoutlinedtoaddress
eachbarrieridentified.Formoreinformationaboutthistool,pleasevisit:
http://www.cpc.unc.edu/measure/tools/datademanduse/data
demandandusestrategiesandtools.html.

Byassessingandaddressingthebarrierstoevidencebaseddecision
making,youwillbuildasolidfoundationfordecisionmaking.As
mentionedearlier,therearemultiplefactorsthatcaninhibitevidence
baseddecisionmaking.Byremovingthesebarriers,youcanfacilitatethe
efficientfunctioningofthedecisionmakingcontext.

Determinantsofdatausearetechnical,behavioral,andorganizational

KEY MESSAGES

Decisionmakingoccurswithinpolitical,cultural,andsocialcontexts

DataDemandandUse:AnIntroductiontoConceptsandTools

26

TheAssessmentofDataUseConstraintstoolcanhelptoclarifythe
barriersinyourorganization

DataDemandandUse:AnIntroductiontoConceptsandTools

27


Thecorrectanswersareasfollows:

Question:Arequestforareviewofpastfinancialdatainorderto

determinetheamountofanewprogrambudgetrequestisan
exampleof:

CorrectAnswer:a)Datademand

Question:Thefindingsofacountrywidebehavioralhealthsurvey
werepublishedandaspecialmeetingwasheldwithpolicymakers

toinformthemofthefindings.Inaddition,thedatasetwasmade
availableonlinewithspecificfeaturesthatallowusersto

automaticallygenerategraphsandchartsfortheirindicatorsof

interest.Theseactivitiesrepresent:
CorrectAnswer:c)Dataavailability.

Question:AlackofsupportforM&Ewithinanorganizationisa/an

____________barriertodataandinformationuse.
CorrectAnswer:c)System/organizationaldeterminantsrepresent

thebroadercontextthatsupportsdatacollection,availabilityand
use.Thiscanincludeorganizationalfactorssuchastheclarityof

rolesofthosewhonotonlyproducebutuseinformation,support
fromorganizationalleadershipfortheneed,useandfundingof

informationsystems,humanandfinancialresources,andtheflow
ofinformationthroughouttheorganization.

KNOWLEDGE
RECAP ANSWERS

DataDemandandUse:AnIntroductiontoConceptsandTools

28

KeyElementsofDecisionMaking

Objectives
explainthekeyelementsofdecisionmaking
definetheconceptofstakeholders
explaintheimportanceofinvolvingstakeholdersthroughoutthe
datauseindecisionmakingcycle
introducetheStakeholderEngagementTool

Overview
theroleofdataindecisionmaking
challengestousingdataindecisionmaking
thepurposesofM&E
examplesofdatause
keyelementsofdecisionmaking(stakeholders,questions,data)

OBJECTIVES AND
OVERVIEW

KEY ELEMENTS OF
DECISION
MAKING

Above,youseeagraphicdepictingthekeyelementsofdecisionmaking.
Tomakeadecision,threeelementsarecritical:
data
questions
theinvolvementofstakeholders

ThepointofthisgraphicistoshowthatALLTHREEelementsareequally
important.Withoutallofthesecomponents,youwillfailtomakean
evidencebaseddecision.

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29

ELEMENTS OF
DECISION
MAKING: WHAT IS
A STAKEHOLDER?

Letsfirstdiscussstakeholdersrolesinthecontextofdecisionmaking.
Astakeholderisanyonewhohasastakeorinterestinthedecisions
beingmade.Weoftenthinkofgovernmentagencies,policymakers,
fundingagencies,andevenimplementersorprovidersasstakeholders.
However,weoftendonotthinkofthebeneficiariesofhealthprograms
asstakeholders,andyettheyare.Thepeoplethatourprogramsand
servicesstrivetoservemakedecisionsaboutseekingservicesand
continuingtoseekcare.Itisvitaltoconsiderabroadvarietyof
stakeholderswhendesigningandimplementinganyprogramorservice.
Aswebegintotalkaboutstakeholdersinthedatauseprocess,itis
importanttothinkaboutdatausersanddataproducers.Datausersare
typicallyconsideredtobetheconsumersofhealthinformation:They
manageprograms,makepoliciesanddecidehowresourcesareallocated.
DataproducersaretheM&Eprofessionalsortheresearchers.We
typicallythinkonlyofdatausersasourstakeholdersbut,asyoucansee
fromthelistbelow,stakeholdersincludemorethanprogrammanagers,
policymakersanddataproducers.Examplesinclude:

governmentagencies
beneficiaries
policymakers
fundingagencies
providers/implementers
civilsociety
researchers
M&Especialists

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30

nongovernmentalorganizations
professionalassociations
religiousleaders
journalists/media
privatesector/business

KnowledgeRecap

Question:Whyisitimportanttoengagestakeholdersinthedecision
makingprocesses?

a)Differentstakeholdershavevariedperspectives
b)Tobuildconsensus
c)Differentstakeholdershavedifferentinformationneeds
d)Alloftheabove

Answersareonpage41.

First,letsconsidersomefundamentaldifferencesbetweendata
producers(e.g.,researchers,M&Especialists)anddatausers(e.g.,
decisionmakers).

DATA PRODUCERS
VS. DATA USERS

Generallyspeaking,dataproducersareeducatedtobeobjective,
analytical,anddetailoriented.
Decisionmakersneedtoberesponsive,actionoriented,decisive.

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31

Thesefrequentlyopposingapproachescontributetothebreakdownin
thedecisionmakingcycle.Forexample,dataproducersmaythinkthat
decisionmakers:

valuepoliticalconsiderationsoverevidence
areunpreparedtomeasureorevaluatetheconsequencesoftheir
decisions

DecisionmakersordatausersperceivethathealthresearchersandM&E
specialists:

lackresponsivenesstohealthpriorities
favornumbersandjargonovertransparentcommunication
preferwrittenreportstofacetofaceconversation

Thesedifferences,perceivedorreal,ofteninhibitmeaningfulinteraction
betweenthetwogroups.Whendatausersanddataproducersdont
worktogether,informationdoesntreachdecisionmakerswhenthey
needit;andinformationneedsarenotcommunicatedtodataproducers
astheydesigntheirdatacollectionefforts.

Itisimportanttorecognizethatdifferentstakeholderswillaffectthe
evidencebaseddecisionmakingprocessindifferentways.Different
stakeholders:
viewactivitiesfromdifferentperspectives
havedifferentdegreesofunderstanding
need/wantdifferentinformation
needinformationatdifferentlevelsofcomplexity
havedifferentintensitiesofinterest
havedifferentrolesinthedecisionmakingprocess

Byensuringavariedgroupofstakeholdersinthedatauseprocess,you
cantailordatacollectionanduseeffortstothespecificneedsofthe
stakeholders,thusincreasingtherelevanceofthedatauseactivityto
localneeds.Ownershipofdataisbuiltsothatwhenevidencebased
decisionsaremade,thenecessarybuyinexiststomovethedecision

DataDemandandUse:AnIntroductiontoConceptsandTools

IMPORTANCE OF
KNOWING YOUR
STAKEHOLDERS

RESULTS OF
INVOLVING
STAKEHOLDERS IN
DATA USE
PROCESS

32

forward.Stakeholderinvolvementstrengthenstheinformationcycleand
highlightsthevalueofdatatoprogramimprovement.
Whenstakeholdersunderstandthedatatheyareusing,itincreasesthe
relevanceandownershipofthedata,aswellastheappropriate
dissemination,whichinturnincreasestheuseofdata.

Nowthatwehavediscussedtheimportanceofinvolvingstakeholders,
letsdiscusshowtoensureappropriatestakeholderinvolvementinthe
datauseactivity.

STAKEHOLDER
ENGAGEMENT
TOOL

MEASUREEvaluationhasdevelopedtheStakeholderEngagementTool,
whichissimilarinnaturetotoolsdevelopedbyotherorganizationsthe
StakeholderAnalysisandEngagementtool.TheStakeholderEngagement
ToolconsistsofaStakeholderAnalysisMatrixandaStakeholder
EngagementPlan,whichcanbeusedtosystematicallyandformally
assessallofourstakeholders.Thematrixandplanhelpclarifywhohasan
interestintheactivity;whatthatinterestis;whocanhelptheactivity,
andhow;whocanhurtit;andhowthisinformationcanbeleveragedto
ensuresuccess.Thematrixhelpsidentifyandprioritizenecessary
stakeholders,whiletheengagementplanhelpscreateaplantoinvolve
theidentifiedstakeholders.

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33

STAKEHOLDER
ANALYSIS MATRIX

Letsfirstlookatthematrix.Thistoolhelpstoidentifyindividualsand
groupsthatarestakeholdersinanM&Eordatauseactivity,eitheras
contributors,influencers,orbeneficiaries.
Thetoolprovidesastructuredwaytodefinetherolesthatstakeholders
playintheactivityandassesstheresourcestheycouldbringtobear.
Italsoprovidesaframeworkforassessingtheinterests,knowledge,
positions,alliances,resources,power,andimportanceofvarious
stakeholders.Whowillresisttheinitiative?Whowillsupportit?Whatare
theirreasons?
Thetoolhelpstoassesswhichstakeholderstoincludeintheprocessby
determiningtherelativepriorityofstakeholders.Whichstakeholders
havethehighestpriority?Whocandothemostinsupportofthe
activity?

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34

HOW TO INVOLVE
STAKEHOLDERS

Nowthatwevetalkedaboutwhoyourstakeholdersare,itisimportant
tothinkabouthowtoengagetheminyouractivity.Remembertoplanto
engagestakeholdersthroughouttheactivity,notjustatthebeginningor
end.Ontheprogramsideateitherthenationalorsubnationallevels,one
canengageusersandproducersinmanyways.Examplesinclude
opportunitiesatquarterlymeetings,eitherforinterpretationofprogram
orRHISdata.
InM&Esystemimprovement,theinvolvementisusuallyatthenational
levelbutstillinvolvesbothusersandproducers.Oftenopportunities
centeraroundnationalindicatorsordatasystems.
Herewevelistedafewideas,butcanyouthinkofothers?
Onceyouanalyzeeachofthestakeholders,itishelpfultocreatea
stakeholderengagementplantoensurethatstakeholdersareinvolved
throughouttheactivity.
Thefirstcolumnliststhestakeholder,whilethesecondliststhepotential
roleofthatstakeholder.Thethirdcolumnshowshowyouplantoinvolve
thestakeholder,andthefinalcolumnlistswhoisresponsibleforensuring
involvement.FormoreinformationabouttheStakeholderEngagement
Toolpleasevisit:http://www.cpc.unc.edu/measure/tools/datademand
use/datademandandusestrategiesandtools.html.

DataDemandandUse:AnIntroductiontoConceptsandTools

35


Nowletsreturntotheelementsofdecisionmakinganddiscuss
questions.Decisionsinthehealthsectorcanbegroupedintofourgeneral
types,andeachareahasprogrammaticquestionswhichshouldbe
answeredpriortodecisionmaking.Thedecisionspertainto:

programdesignandevaluation
programmanagementandimprovement
strategicplanning
advocacyandpolicydevelopment

ELEMENTS OF
DECISION
MAKING:
DECISION/
QUESTION AREAS

Decisionsrelatedtoprogramdesignandevaluationcouldinclude:

selectingkeymessagesforpreventioncampaigns
identifyingandchoosingnewstrategiestoincreasetheimpactof
specificservices
determiningifnewprogramapproachesareneededtoensure
thathealthimpactobjectivesaremet

Correspondingquestionsmightincludethefollowing:

PROGRAM
DESIGN AND
EVALUATION

Whichthreepreventablehealthissuesaremostcommonin
districtX?
Whatdoesrecentresearchsayaboutthelatestandmost
effectivehealthservicesforthehealthareasaddressedinclinicA?

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36

Arethecurrenthealthprogramsinacommunitymeetingthe
communitieshealthneeds?

Examplesofdecisionsthatarerelevanttoprogrammanagementcould
include:

decidingifaprogramismeetingitsobjectivesforexample,
trainingthestatednumberofproviders
decidingwhattodotoincreasethecoverageofprogramservices

Correspondingquestionsmightincludethefollowing:

PROGRAM
MANAGEMENT
AND
IMPROVEMENT

Hastheprogrammetitsstatedtargets?
Aretheservicesavailablemeetingtheneedsofthecommunity,
andaretheprogramsequippedtodosoinatimelymanner?

Examplesofdecisionmakinginstrategicplanningcouldinclude:

identifyinggeographicareasofhighestneed
determininghumanresourceallocation
determiningwhichpopulationgroupstotargettogetthegreatest
declinesinadiseaseprevalence

Correspondingquestionsmightincludethefollowing:

STRATEGIC
PLANNING

WhichdistrictintheprovincehasthehighestincidenceofHIV?
Indistrictx,whatisthenursetopatientratio?
Whichthreesubpopulationswereresponsibleforthegreatest
numberofnewHIVcaseslastyear?

Decisionsaroundadvocacyandpolicyformulationcouldinclude:

identifyingfocusareasorpopulationsfornewpolicies
determiningifaspecificpopulationisunderserved

ADVOCACY AND
POLICY
DEVELOPMENT

Correspondingquestionsmightincludethefollowing:
DataDemandandUse:AnIntroductiontoConceptsandTools

37

Aretherelawsinplacewhichmakeserviceprovisionmore
difficult?
Doallsubpopulationshaveequalaccesstoservices?

ELEMENTS OF
DECISION
MAKING: DATA

Nowletsdiscussthelastelementinthecontextofdecisionmaking
data.Asyouknow,therearemanysourcesofdataandinformationthat
wecanuseindecisionmaking,fromthenationalleveltothefacilitylevel,
andevenasconsumersorbeneficiariesofhealthservices.Wehavelisted
someofthemorecommonsources.Theyinclude:

census
vitaleventsdata
surveillancedata
householdsurveys
RHIS
financialandmanagementinformation
modeling,estimates,andprojections
healthresearch

Allrelevantdatasourcesshouldbeconsideredwhenmakingevidence
baseddecisions.Itisimportanttopromotetheexistenceofavailable
datasourcestopotentialusersandoutlinethetypesofinformation
containedineachsource.

DataDemandandUse:AnIntroductiontoConceptsandTools

38

KnowledgeRecap

Question:Inthecontextofdecisionmaking,whichofthefollowing
elementsiscriticalfordatainformeddecisionmakingtooccur?

a)Data
b)Questions
c)Stakeholders
d)Politicalaffiliation
e)b&d
f)a,b&c

Answersareonpage41.

Insummary,wecanstrengthenthedecisionmakingprocessby:

involvingnewdatausecounterpartsandstakeholders(weneed
toinvolvepotentialusersofthedatafromtheoutsettoensure
thattheinformationweareproducingcanbeused)
understandingtheservicedeliveryrealitiesonthegroundsoasto
understandthedecisionsbeingmaderoutinelyandhowtheycan
beinfluencedbyevidencebasedinformation(byunderstanding
theintendedaudiencesandwhatinformationisimportantto
themandtheirprogramstheinformationthatiscollectedwillbe
moreuseful)

DataDemandandUse:AnIntroductiontoConceptsandTools

STRENGTHENING
THE DECISIONMAKING
PROCESS

39

highlightingthevalueofinformationtoprogramimprovementso
thatdatausersseethevalueofdataanddemandit,whichwill
alsohelptoimprovethequalityofdata

TheStakeholderEngagementToolcanhelptoclarifythebarriersinyour
organization.

KEY MESSAGES

Everydecisionismadeinthecontextofavailabledataandstakeholders.
Criticallyassessingandinvolvingstakeholderswillfacilitateevidence
baseddecisionmaking.

Inearly2009,theNationalAIDSControlCommissionofRwanda(CNLS)
andpartnersconductedseveralanalyticreviewsandexercisestoform
theevidencebaseforthedevelopmentofRwandasNationalStrategic
Plan20092012.Insupportofthis,amodesoftransmission(MOT)HIV
incidencemodelingexercisewasconductedinanefforttoestimatethe
distributionofnewHIVinfectionsinRwandaacrossdifferentHIVrisk
groups.Accordingtothemodel,threegroupsemergedastheprimary
contributorstoHIVincidence:HIVserodiscordantcouples,femalesex
workers,andmenwhohavesexwithmen(MSM).Detaileddemographic,
epidemiologic,andbehavioraldatawererequiredforeachpotentialrisk
groupinthecountrytoinformthemodel.Aslocaldatawerenot
availableforallriskgroups,theexerciseusedregionaldatafromsub
SaharanAfricaforsomeriskgroups.Assuch,whentheresultswere
presentedatthenationallevel,manywereskepticaloftheirrelevance,
andsomedecisionmakersquestionedtheexistenceofMSMinRwanda.

CASE STUDY: TEST


YOUR
KNOWLEDGE

Astherewerenodataabouttheexistence,practices,orHIVrisksamong
MSMinRwandatosupportthemodelresults,itwasclearthat,ifthe
strategicplanwastobebasedonevidence,concretedatawereneeded.
Inresponse,theCNLScommissionedastudytodescribetheMSM

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40

populationinKigali,thecapitalofRwanda,toexplorethenatureof
sexual/riskactivityintheMSMpopulation,establishmensopinions
regardingpotentialHIVpreventionactivities,andexplorethefeasibility
ofamorecomprehensivebiobehavioralsurveillancestudyofMSM
nationally.Thestudywasdesignedtoinformbothprogramsandpolicy.

Becauseofthestakeholderinvolvementintheresearchprocess,the
studyresultswereimmediatelytrustedandunderstoodbythekeydata
users.Datafromthestudywereusedinseveralkeyways.Afterahigh
leveldisseminationmeetinginDecember2009,MSMwereidentifiedasa
prioritygroupinthenationalHIVplan.Thisplacementinthestrategic
planatthenationallevelnotonlyvalidatedtheexistenceofMSM,italso
recognizedthemasaprioritygroupinneedofHIVrelatedservices.Asa
result,acostedplanwasdevelopedandusedtosecuresupportfromthe
GlobalFundtoFightAIDS,TuberculosisandMalariaforMSM
programminginRwanda.TheU.S.CentersforDiseaseControland
Prevention(CDC)alsousedthedatatosupportabudgetallocationto
twoorganizationsonetoprovidehealthservices,preventativecare,
andsupporttoMSMinRwanda,andtheothertoreachMSMthrough
communityoutreachandbehaviorchangecommunication.Inaddition,
theU.S.AgencyforInternationalDevelopmentdecidedtofundafollow
upqualitativestudyonHIVriskbehaviorsamongthisgroupandexplore
issuesofacceptabilityofHIVpreventionservices.

Thestudyalsoplayedakeyroleinanhistoricpolicydecision.In2007,the
governmentbegantheprocessofrevisingthecountryspenalcode,
whichwasoriginallydraftedinthe1960s.Theoriginalcode,while
outlawingsamesexmarriage,didnotspecificallymentionhomosexuality.
Proposedrevisionstothecodewould,however,criminalizesamesex
behaviorandthosethatencourageorinciteit,aswellasmandatefines
orimprisonmentforthoseconvictedofpracticinghomosexuality.

CivilsocietygroupsinRwandaworkedtofighttherevisionsandin2009
draftedapositionpaperopposingthem.Thepaperwassubmittedtothe

DataDemandandUse:AnIntroductiontoConceptsandTools

41

presidentandparliament.ThestudyconductedbyCNLSwastheonly
evidenceofMSMexistenceinRwandaandwasusedasthesupporting
evidenceforthepositionpaper.Throughthiswidespreadadvocacy,the
positionpapercirculatedtoalllevelsofgovernment.Asof2011,abillto
decriminalizehomosexualityinRwandahadpassedthreelevelsof
governmentandwasawaitingsignatureintolaw.

DataDemandandUse:AnIntroductiontoConceptsandTools

42


CaseStudyQuestions
Question1
ThecommitmenttobasingthedevelopmentoftheNationalStrategicPlanondatademonstrated:
a) Datademand
b) Datautilization
c) Dataavailability
d) Datacollection
Question2
Theprimarystakeholdersinthiscasestudyinclude:CNLS,CDC,USAID,MSMandpolicymakers.Theinvolvementofvariedand
diversifiedstakeholdergroupscontributedto:
a) Theidentificationofprogrammaticquestionsandthecorrespondingdatasourcesthatwouldinformthestrategicprioritiesin
thenationalstrategicplan
b) ThedevelopmentofanewresearchcenterintheNationalSchoolofPublicHealth
c) ThehighownershipanduseofMSMthestudyfindings
d) Regionalunitstooverseetheimplementationofnationalpolicies
e) AandC
Question3
Pleaseidentifythedataproducerfromthebelowlist:
a) CNLS
b) CDC
c) USAID
d) MSM
e) Policymakers
f) Alloftheabove
g) Noneoftheabove
Question4
Whattypesofdatawereusedtomakethedecisions?
a) Censusdata
b) RegionaldataonMSMpopulations
c) DHSdata
d) RwandaspecificMSMdata
e) B&D
f) Alloftheabove
Question5
PleaseidentifytheactionsthatweretakenbasedontheresultsoftheMSMdatacollectionactivity:
a) HIVpreventionservicestargetingMSMweredeveloped
b) AcompletebodyofknowledgewascreatedaboutMSMinRwanda
c) AfollowupstudywascommissionedtodeterminethehighriskHIVgroupsinRwanda
d) MSMactivitywasdecriminalized
e) A&D
f) C&D
Question6
ChoosetheTWOstatementsbelowthataretrueaboutthedatainformeddecisionmakingprocessthatsupportedthe
developmentoftheNSPinRwanda:1)DatausersanddataproducersworkedtogethertocreateadatainformedNSP2)The
NSPdatauseprocesstookplaceduringasinglemeeting;3)RecommendationsintheNSP(specificallypreventionprogramsfor
MSM)werefundedbydonorsandimplemented;4)ThefindingsofCNLSstudyonMSMwerequestionedbecauselocal
ownershipoftheMSMdatawasnotbuilt.
a) Statements1&2aretrue
b) Statements2&4aretrue
c) Statements3&4aretrue
d) Statements1&3aretrue

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43

Thecorrectanswersareasfollows:

Question1
ThecommitmenttobasingthedevelopmentoftheNationalStrategicPlanondatademonstrated:

Thecorrectansweris"a".TheMOHinRwandawantedtoensurethattheir5yearHIVprogramwas
targetedthecorrecttargetgroups.Todothistheyneededdataonwhichpopulationsweregeneratingthe

mostnewHIVinfections.

Question2

Theprimarystakeholdersinthiscasestudyinclude:CNLS,CDC,USAID,MSMandpolicymakers.The

involvementofvariedanddiversifiedstakeholdergroupscontributedto

Thecorrectansweris"e".Theinvolvementofdatausersanddataproducersfromdifferentorganizations

allowedtheprioritydataneedstobeidentified.Bytargetingwhatinformationdecisionmakersneededto
informtheirprogramsthenewlycollecteddatawashighlyrelevanttotheupcomingdecisionmaking

process.Therelevanceofthedataandtrustinthedatacollectionprocessultimatestrengthenedthe

ownershipofthefindingsandcontributedtotheextensiveuseoftheMSMstudyresults.

Question3

Pleaseidentifythedataproducerfromthebelowlist:
Thecorrectanswerisa)CNLS.


Question4

Whattypesofdatawereusedtomakethedecisions?

Correctanswer:e)B&D

Question5
PleaseidentifytheactionsthatweretakenbasedontheresultsoftheMSMdatacollectionactivity:
Thecorrectansweris"e."HIVpreventionservicestargetingMSMweredeveloped&MSMactivitywas
Decriminalization.

Question6
ChoosetheTWOstatementsbelowthataretrueaboutthedatainformeddecisionmakingprocessthat
supportedthedevelopmentoftheNSPinRwanda.1)Datausersanddataproducersworkedtogetherto
createadatainformedNSP2)TheNSPdatauseprocesstookplaceduringasinglemeeting3)
RecommendationsintheNSP(specificallypreventionprogramsforMSM)werefundedbydonorsand
implemented.4)ThefindingsofCNLSstudyonMSMwerequestionedbecauselocalownershipofthe
MSMdatawasnotbuilt.

Thecorrectansweris"d."InclusionofdataintheNSPwasalongandmultiphasedprocess.Datawere
gatheredfortheanalyticreviewsincludingtheMOT.Oncetheseanalyseswereconductedmeetingswere
heldtodiscussanddebatethefindings.MeetingstoagreeonandplantheMSMstudywerealsorequired
aswellasweredatadisseminationandinterpretationmeetings.Onceallthedatawereavailable,many
discussionsensuedtoplanactivitiesbasedonthedataandtoprepareacostedplanforHIVprogramming.
AsoutlinedintheMEASUREEvaluationdatademandanduseconceptualframework,datauseispartofa
cycle.Thecycleisaffectedbythedemand,collectionandavailabilityofdata.Inthisexample,notonlydid
datauseresultfromaprocess,itwasacceptedbecausethroughouttheprocesslocalownershipofthe
datawasencouraged.

DataDemandandUse:AnIntroductiontoConceptsandTools

CASE
STUDY
ANSWERS

44

Thecorrectanswersareasfollows:

Question:Whyisitimportanttoengagestakeholdersinthe
decisionmakingprocesses?

KNOWLEDGE
RECAP ANSWERS

CorrectAnswer:d)Byunderstandingthedecisionsyour
stakeholdersaremakingandtheirinformationneedsyoucantailor
datacollection.Throughthis,informationismorerelevantto
variousstakeholders.Differentstakeholdersmayhavedifferent
prioritiesandinformationneeds,andbymakinginformationmore
relevanttotheirneedsitismorelikelythattheywilluseittoinform
theirdecisions.

Question:Inthecontextofdecisionmaking,whichofthe
followingelementsiscriticalfordatainformeddecisionmakingto
occur?

CorrectAnswer:f)Data,questionsandstakeholdersarethethree
criticalelementsfordatainformeddecisionmaking.

DataDemandandUse:AnIntroductiontoConceptsandTools

45

InformationFlowandFeedback

Objectives

identifyopportunitiesforimprovingdataproductionanduse

understandtheimportanceoffeedbackinprogramimprovement
andmanagement

identifyopportunitiesforimprovingfeedbackmechanisms

identifypointswhereanalysisanddatacouldsupport
programmaticdecisionmaking

listpotentialbarrierstoprovidingfeedback

considerhowtoimprovefeedbackmechanismsinparticipants
ownwork

OBJECTIVES AND
OVERVIEW

Overview

informationflow

informationusemap

guidetoexpandinguseofinformation

definefeedback

examplesoffeedback

possiblewaysofprovidingfeedback

DataDemandandUse:AnIntroductiontoConceptsandTools

46

OBJECTIVES AND
OVERVIEW

Earlier,wediscussedthedatademandanduseconceptualframework,
whichdepictsthecycleofdatademand,collection,availability,anduse
inherenttomonitoringandevaluation.Theoverarchingprincipleofthe
frameworkisthatevidencebaseddecisionmakingwillpromotethe
achievementofimprovedhealthoutcomes.TheMEASUREEvaluation
datademandanduseconceptualframeworkisacyclefromdemandto
utilization(whichdirectlyaffectsdemand);embeddedinthecycleisthe
decisionmakingprocess.
Inthisunit,wewillfocusondataavailability,indicatedatthetopofthe
diagram.Heredataaresynthesizedandtransformedintoaformatthat
canbeunderstoodeasilyandthenaredisseminatedtousers.Fordata
informeddecisionmakingtooccur,thedecisionmakermustunderstand
theinformationthatisneededtoinformthedecision.Thetoolsand
strategieshighlightedinthissectioncanhelptosynthesizeandtransform
dataintoinformation,communicatethatinformationtodifferent
audiences,andalignavailableinformationwithdecisions.

WearealwaysgivingpatientformsanddatatoourM&Eunit,whothen
givesdatatodonorsandthegovernment.IamtheheaddoctorandI
neverhavethechancetolookthroughthedatabeforetheygoup.We
justkeepgivingdataupandup,andweneverhearbackaboutit

PURPOSE OF
UNDERSTANDING
DATA FLOW

Headofantiretroviraltherapyfacility,Nigeria

DataDemandandUse:AnIntroductiontoConceptsandTools

47


Thesituationdescribedaboveiswhathappenswheninformationisnot
shared.Unfortunately,thisiscommontomanyfacilities,programs,and
countries.
Thesimpleprocessofgraphicallychartinginformationflow,usingsuch
formatsasaninformationusemap,helpsparticipantsbetterunderstand
theirroleinthegreaterhealthinformationsystemandtheimportance
ofcollectingdatainthefirstplace.Whenpeoplecanseethevalueof
data,theybecomemorecommittedtoconsistent,sustainable,high
qualitydatacollectionandregularanalysisofthosedata.
Chartingtheflowofdataandinformationwillallowustoidentify
opportunitiesforimprovingdatacollectionandanalysis,increase
availability,andensuredatause.Wecangraphicallyrepresenttheflow
ofdataandinformationatanylevel.

INFORMATION
FLOW

Whendiscussingtheimportanceofcommunicatingandsharing
information,itishelpfultolookatinformationflow.ExistingM&E
systemstypicallyfocusondatacollectionandreportingtohigherlevels
whilelittleattentionispaidtohowthedatacanbeusedlocallyfor
programimprovements.Asaresult,therearemanymissedopportunities
forfeedbackmechanismsandtheidentificationofspecificwaysinwhich
thedatacanbeanalyzedandusedtoinformprogrammonitoringand
decisionmaking.
DataDemandandUse:AnIntroductiontoConceptsandTools

48

Whydodataandinformationoftennotflowastheyshould?Typical
scenariosincludingthefollowing:
Localdataarenotbeingusedlocally.Often,dataaretalliedand
reportedupthelevels,butrarelyareanalyzedandusedtosupportmid
coursecorrectionsatthelevelatwhichtheyweregenerated.Service
providersandprogrammanagersoftenstruggletomeettheneedsof
theirclientsaswellastheoftentimeintensivereportingduties.Inmany
situations,datacouldbeusedtoinvestigatetrendsovertime,compare
differentareas,setprioritiesandgoalsforfutureyears,compare
progressagainstdefinedgoals,andadvocateforfundingorpolicies.

REASONS TO
ASSESS
INFORMATION
FLOW

Higherlevelinformationdoesnotreturnbacktothelocallevel.
Considertheexampleofafamilyplanningclinicatwhichdatareveala
decliningtrendinuseoforalcontraception.Theprovidersknewthat
womencomplainedaboutthesideeffects,buttheydidnotknowhow
muchtheoverallcontraceptionrateswerebeingaffected.Thedistrict
andregionalofficersknewcontraceptionratesweredecliningbutdidnot
knowwhy.Therewasaneedtobringtheseinformationsourcesand
stakeholderstogether.
Localdataarenotassessedinbroadcontext.Forexample,indistrictX,
10%ofthepopulationintheregionisexpectedtoreceiveaserviceand
onedistrictisonlyreaching2%.Obviously,thereisalargeservice
coveragegapinthisdistrictbutdecisionmakersatthefacilitiesandthe
districtofficedonotnecessarilyknowthisbecausetheymaynotbe
awareofhowtheirservicedeliveryratescomparetoregionalobjectives.
Thereislittleincentivetoproducehighqualitydata.Peopleinvolvedin
localleveldatacollectioneffortsoftendonotseethepurposein
collectingthedata.Theyhaveadifficulttimeappreciatingtheirrolein
thelargercontextofthehealthinformationchainand,asaresult,spend
lessenergyincollectingthedataorpayingattentiontodetails.
Sincethereissuchalargeamountofmoneyandeffortbeingdevotedto
collectingdataandreportinginhealthinformationsystems,itonlymakes
sensetomaximizetheimpactofthosedataforrealworldbenefits.
Providersandprogrammanagersalikeneedtoolstohelppinpointthe
blockagesininformationfeedbackandtofindopportunitiesfordatause.
Thisiswhereaninformationusemapissovaluable.
DataDemandandUse:AnIntroductiontoConceptsandTools

49

KnowledgeRecap

Question:Pleaseselectallofthepossiblereasonstoassessinformation
flow:1)Staffturnoverratesarehigh;2)Localdataarenotbeingused
locally;3)Higherlevelinformationdoesnotreturnbacktothelocallevel;
4)Localdataarenotassessedinbroadcontext;5)Fundinghasbeencut
forprogramactivities

a)1,2&5
b)2,3&4
c)4&5
d)2,3&5

Answersareonpages5859.

Aninformationusemapisaflowchartthatcandiagnoseandimprove
problemswithinformationflow.Theframeworkthatallowstheuserto:

INFORMATION
USE MAPPING

createaschematicrepresentationoftheexistingstateofahealth
informationsystemorsubsystem
identifygapsanddeficienciesinthatinformationflowquickly
throughvisualrepresentation
identifyopportunitiesfornewfeedbackmechanismstoshare
highlevelanalysisandreportswithlowerlevelsofthe
informationhierarchy

DataDemandandUse:AnIntroductiontoConceptsandTools

50

identifypointsintheprocessatwhichadditionalanalysisanduse
ofdatacouldleadtoimprovedprograms
prioritizerecommendationsandformulateanactionplanto
implementthem

Aninformationusemapcanbedevelopedandappliedatthe
international,regional,national,orlocallevel.Themapcanbean
ongoingguidelinetoassessprogresstowardtheexpectedfuturevision.
ThemapcanalsobecomeastandardpartofanM&Esystemrevisited
andrevisedatregularintervals,orwheneveranewsurveyorspecial
studyisbeingdesigned.Formoreinformationoninformationusemaps
pleasevisittheDataDemandandUseToolKitpage.

INVESTIGATING
INFORMATION
FLOW IN
DOMINICA

LetslookatanexampleofhowmappinginformationflowinDominica
improveddataflowand,ultimately,betteruseofdata.
InDominica,localhealthcentersandhospitalssentdataonthenumber
ofpeopletheytestedforHIV/AIDS,whilelabssenttestresults.A
statisticianaggregatedthedataandsentaquarterlyreporttothe
DominicaMinistryofHealth,whichinturnsentaquarterlyreporttothe
CaribbeanEpidemiologyCenter(CAREC)andanannualreporttothe
primeminister.

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51

Thetroublewasthatlocalfacilitiesnevergotthesereports.Managersin
localfacilitiesdidntknowhowtheircenterscomparedtootherfacilities
ortonationaltrendsandgoals.Weretheyontrackwiththeirprograms
ornot?
Theseinformationgapsquicklybecameapparentwhendatacollection,
analysis,anduseprocesseswerevisualizedinaninformationusemap.
Datawerebeingreportedbutnotused.Reportsdidnotgetbacktothe
providersofsourcedata.Themappingexerciseidentifiedwaystoshare
insightsdowntheline,whichwouldleadtomidcourseimprovementsin
pretestcounselingandgreateracceptanceofHIV/AIDStesting.

INFORMATION
FLOW
IMPROVED IN
DOMINICA

TheaboveInformationFlowMapshowstheimprovementsinthe
informationflowsystem.

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52

IMPORTANCE
OF FEEDBACK

Theflowchartaboveshowshowdatacaneffectivelyflowfromthe
servicedeliveryleveltothehigherlevelsresponsibleforthesupervision
ofprograms,i.e.,uptheinformationhierarchytothedistrictand,
eventually,nationallevels.Youseeintheboxontheleftthatdataare
collectedatthefacilitylevelforaspecificprogramarea.Thenthesedata
passtohigherlevels(boxontheright)foraggregationandusein
reportingand,itishoped,decisionmaking.
Sharingdatathroughfeedback(asrepresentedbythepinkarrow)isan
essentialpartoftheinformationflowprocess.Feedbackensuresthat
thosewhocollectedthedatabenefitfromthecollectionasmuchas
thoserequestingthedata.Also,informationneedstobesharedregularly
andinatimelymannersothatacultureofinformationuseis
supported.Thesharingorfeedbackofinformationneedstobedone
uptheinformationhierarchy(fromthefacilitytothedistricttothe
provincetothenationallevel)butalsowithinafacilityandbetween
districtandprovince.Finally,itneedstobeshareddowntheinformation
hierarchyfromthenationalleveltotheprovincetothedistrictand
facility.Reportsproducedbythehigherlevelsshouldbesharedtolower
levelstoensurethattheyarefamiliarwithhowotherserviceproviders
areperforming.Inaddition,thehigherlevelcanprovideguidanceand
advicetofacilitiesonanindividuallevelbasedonthedatatheyreceive.
Feedbackisanessentialpartofthedataproduceranddatauser
relationship.Withoutfeedback,neitherisabletofulfilltheirrolefully.
Thesharingofdatafromthedatacollectorstothedatausersandthen
backagainalsohelpstopaveapathbetweendatacollectorsandusersat
alllevelsofthehealthsystem.
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53

Whendatacollectorsunderstandandseedatasusefulness,theyare
morelikelytoappreciateandvaluethedata.Thiscantranslateinto
higherqualitydatacollectionandthecollectionofappropriateanduseful
data.Feedbackisalsoanimportantelementofthemanagementand
supervisionsystem.Effectivecommunicationhelpstoensurethat
informationisavailableandtheuseofinformationforplanningand
programmaticimprovement.Last,staffseeingtheirdataandtracking
theirprogresscanfunctionasanincentivetocontinuestrivingto
improveservicedelivery.

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54

KnowledgeRecap

Question:Nationalmodelsindicatethatfordiarrhealdiseaseamong
childrentodecreasecampaignsthatpromotehandwashingwithsoapare
critical.Inresponsetothisinformation,theMOHimplementededucation
campaignsin3regionsinthecountryandsetatargettodecrease
diarrhealincidenceby25%.Allbutoneregionreducedtheincidenceof
diarrhealdiseasetothedesiredlevel.Inthelaggingregionitwas
discoveredthatseveraldistrictswereonlyreceiving3ofthe
recommended8educationcampaigns.Obviously,therewasalarge
campaigncoveragegapinthesedistrictsbutthedistrictofficeswerenot
awarethattherewasaproblem.Theyhadnotbeentoldhowtheir
diarrhealdiseaseratescomparetonationalobjectives.Howcanthis
situationbeaddressed?

a)FacilitiesshouldhirestafftoM&Estafftofollowpolicyandresearch
trends
b)Nationaltargetsshouldbeadjusted
c)Nationaltargetsshouldbecommunicatedtoalldistrictofficesthrough
routineinformationchannels
d)Thereisnothingtoaddress.Thisgapinservicecoverageistobe
expectedfromtimetotime.
e)Progresstowardmeetingnationaltargetsshouldbesharedwithin
districtsandregions.
f)B&E
g)C&E

Answersareonpages5859.

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55

Otherexamplesoffeedbackinclude:

sharinginformationwithinafacilityororganization
sharingaggregatedserviceprovisiondatafromfacilitieswithina
districtorbetweenprovinces
meetingsbetweenfacilityandsupervisingagencytoreviewand
discussdataandinformation
meetingsbetweendonorsandnongovernmentalorganizationsto
reviewdataandinformationanddiscusschallengesand
opportunities

EXAMPLES OF
FEEDBACK

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56

KnowledgeRecap

Question:Aninternationaldonoragencydevelopedanationalpoverty
reductionplanthatinvolvedhundredsofpeopleincommunityfocus
groups.Thisactivitysparkedcommunityinterestinandexcitementabout
thepotentialoftheproject.Unfortunately,therewasnofeedbackto
informthefocusgroupparticipantsaboutwhattheprojecthad
discovered.Thislackoffeedbackcreatedfrustrationamongthe
community,whichmaydiscouragefutureparticipationinresearch
activities.Thisisanissueof:

a)Sharinghealthfacilitydata
b)Goodcommunication
c)Gooddatacollection
d)Poorinformationfeedback

Answersareonpages6566.

Successfulfeedbackcontributestowhatisknownastheinformation
culture.Wheninformationbecomesavailable,itismorelikelytobeused.
Wheninformationissharedandused,it:

becomesanintegralpartofdecisionmakingprocesses,including
planning,problemsolving,choosingalternatives,andgivingor
receivingfeedback

DataDemandandUse:AnIntroductiontoConceptsandTools

WORKING
TOWARD A
CULTURE OF
INFORMATION
USE

57

empowerspeopletoaskquestions,seekimprovement,learn,and
improvethequalityofprograms.

KnowledgeRecap

Question:Pleaseidentifyreasonstoprovidefeedbackfromthenational
levelbackdowntotheprovinces,districtsandfacilitiesfromtheoptions
below:
a)Promotesacultureofinformationuse
b)Sodonorsdon'tstopfundingtheprogram
c)Sodistrictsandregionsunderstandhowtheireffortsarecontributing
tonationaltargets
d)Feedbackisanessentialpartofthedatauser/producerrelationship
e)Promotesdataquality
f)A,C,D&E
g)A,C&D

Answersareonpages6566.

Feedbackcanbepresentedinmanydifferentways,suchasnarratives
(summaries,bulleteditems,graphs,andcharts),inpersondiscussion
(oneonone,staffmeetings,districtmeetings),speechestostaff,and
supervisionvisits.

VARIETY OF
FEEDBACK
FORMATS

Letstakeacloserlookatnarratives.Mostcountries/programs/facilities
haveatypeofnarrativethroughwhichtosharedata.

NARRATIVE
FEEDBACK

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58


Hereyouseeasimplepencilandpaperformusedbycommunitybased
programsandprimaryhealthclinicsduringregularsupervisionvisits.The
formdoesnotrequireasignificantlevelofliteracyormath,oran
understandingofhowtointerpretgraphs.Theformcontainsabar
representingtheaveragemonthlyperformanceofthemiddle80%of
communitydistributorsduringthepreviousyear.Asupervisormarksthe
distributorscurrentperformancewithanX,enablinghimorhertosee
howthiscomparestootherdistributorsintheprogramandstimulating
discussionofhowtoimproveperformance.Wherethisformhasbeen
used,ithasbeenreceivedpositivelybydistributorsandsupervisorsalike
andhassignificantlyincreasedtheamountoftimespentdiscussing
programissues.

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59

SURVEILLANCE
REPORT

HereyouseeanHIVquarterlysurveillancereportfromthegovernment
ofHaiti.ItreportsonthenumberofHIVcasesbyestablishment,month,
age,andothercategories.Whatisinterestingaboutthisreportisthatit
providesfiguresandgraphics,andisnicelyorganizedsothatthereaderis
notoverwhelmedwithinformation.

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60

FACILITY
REPORT

Thisexamplefromafacilityreportsonantiretroviraltherapy(ART)
servicesdeliveredforaspecificquarter.Thissimplechartisuniquein
thatitshowshowtheindicatorwascalculatedbygivingthenumerator
anddenominatortoshowthepercentageofthepopulationserved.
Providerscanthenusethisinformationbycomparingittotheirtargets
foreachservicearea.
Thissummaryprovidesaneasywaytodiscussfacilityperformance
aroundestablishedperformanceindicators.

Intheservicedeliverysetting,youmaybecalledupontoworkwith
othersinthefacilitytodevelopafeedbackmechanism.Inthiscase,there
areissuestoconsiderthatwillimprovetheusefulnessofthemechanism.
Theyincludethefollowing:

DEVELOPING A
FEEDBACK
MECHANISM

Considerthedatabeingshared.Whatisthebestwayto
summarizeandpresentthem?

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61

Considerwhoorwhichstakeholderswillbenefitfromthe
informationbeingshared.Isityourfellowproviders,facility
management,districtleadership?Therecipientsofthe
informationwillaffecthowyoupackageit.
Whatisthebestformatforyourinformation?Willyourfeedback
bewrittenorverbal?Willitbeaformalorinformalfeedback
system?
Considertheforuminwhichthefeedbackwillbepresented.Will
itbepresentedatfacilitymeetings,atdistricthealthmanagement
teammeetings?
Howoftenwillthefeedbackbeprovided(e.g.,weekly,monthly,
quarterly)?
Considerhowtheinformationwillmovetothenextlevel.For
example,programmanagersalwaysshouldreviewdatabefore
sendingdatauptothenextlevel.
Documenttheprocessforimplementingandmaintainingthe
feedbackmechanismsothatitwillbestandardizedandshared
withothers.

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62

KnowledgeRecap

Question:ConsidertheexampleofaVCTprogram,wheredatarevealan
increaseinthetimebetweentestingandfollowup,andadeclining
numberofclientsreceivingresults.Facilitymanagersknewthatthere
wereproblemswithproviderperformancearoundcounselingandtesting,
andthattherehadbeensomedelaysinthelab,buttheydidnotknow
howmuchtheoverallfollowuprateswerebeingaffected.Thedistrict
andregionalofficersknewfollowupratesweredeclining,butdidnot
knowwhy.Whatsolution(s)couldsolvethisseriousproblem?Please
selectallthatapply.

a)Bringstakeholdersfromclinicsandregionalofficestogethertodiscuss
theissues
b)Holddistrict/regionalstaffresponsiblefordecliningrates
c)ProvidefeedbacktoclinicsabouttheirVCTratesascomparedtoother
clinicsinthedistrict
d)Firetheclinicstaff
e)Retrainstaffoncounselingskills
f)A&C
g)A,C&E

Answersareonpages6566.

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63

Whilesharinginformationandprovidingfeedbackiscriticaltoa
providersjob,therearebarriersthatmayinhibittheabilitytodoso.
Thesebarriersinclude:

HierarchyAllprovidersreporttoafacilitymanager,adoctor,or
aprogrammanager.Providingfeedbackonclinicperformance
traditionallyisseenasaclinicmanagersjob.Othersmayfeelthat
theyaresteppingoutofplaceiftheytakeonthisresponsibility.
Whileitistruethattraditionallyitisamanagersresponsibilityto
providefeedback,otherhealthprofessionalscanfacilitatethis
process.Byregularlymonitoring,analyzing,interpreting,and
presentingdata,themanagersaccesstonecessaryinformationis
heightened.Throughdiscussionwithclinicsupervisors,ashared
responsibilitycanbeestablished.
Insomesettings,staffarededicatedtodatacaptureanddata
compilationforreportingpurposes.Inthiscase,datausersor
providerscanworkwithdataofficerstoclarifyindicators,answer
dataqueries,suggestspecificanalysesthattheproviderneedsfor
monitoringservicedelivery,interpretfindings,andcommunicate
data.
Insomesettings,theremayberestrictionsonsharingconfidential
information,requiringapprovaltodistributedataoutsideofthe
facility.Inthesecases,asolutioncanbediscussedwithclinic
management.
Last,alackofknowledgeofwhatinformationstakeholdersneed
canlimitfeedbackefforts.Discussionswithcolleagues,managers,
andthecommunitycanfacilitatethis.

POTENTIAL
BARRIERS TO
PROVIDING
FEEDBACK

Actualflowofdataandinformationcanrevealbarriersto
improvingdataqualityanduse.
Informationusemapscanhighlightinterventionpoints.
Sharinginformationwithin,between,up,anddownthehealth
system/project/organizationisessentialtoeffectivedatause.
Addressbarrierstofeedback.

DataDemandandUse:AnIntroductiontoConceptsandTools

KEY MESSAGES

64

Create a formal feedback mechanism.


Thecorrectanswersareasfollows:
Feedback should be timely, regular, constructive, descriptive,

helpful, and collaborative.


Question:Pleaseselectallofthepossiblereasonstoassessinformation
flow:1)Staffturnoverratesarehigh;2)Localdataarenotbeingused
locally;3)Higherlevelinformationdoesnotreturnbacktothelocallevel;
4)Localdataarenotassessedinbroadcontext;5)Fundinghasbeencut
forprogramactivities.

CorrectAnswer:b)Localdataarenotbeingusedlocally,higherlevel
informationdoesnotreturnbacktothelocallevel,andlocaldataarenot
assessedinbroadcontext

Question:Nationalmodelsindicatethatfordiarrhealdiseaseamong
childrentodecreasecampaignsthatpromotehandwashingwithsoap
arecritical.Inresponsetothisinformation,theMOHimplemented
educationcampaignsin3regionsinthecountryandsetatargetto
decreasediarrhealincidenceby25%.Allbutoneregionreducedthe
incidenceofdiarrhealdiseasetothedesiredlevel.Inthelaggingregion
itwasdiscoveredthatseveraldistrictswereonlyreceiving3ofthe
recommended8educationcampaigns.Obviously,therewasalarge
campaigncoveragegapinthesedistrictsbutthedistrictofficeswere
notawarethattherewasaproblem.Theyhadnotbeentoldhowtheir
diarrhealdiseaseratescomparetonationalobjectives.Howcanthis
situationbeaddressed?

CorrectAnswer:g)Nationaltargetsshouldbecommunicatedtoall
districtofficesthroughroutineinformationchannelsandprogresstoward
meetingnationaltargetsshouldbesharedwithindistrictsandregions.
Sharingnationaltargetswithprovincesanddistrictsiscriticalforhealth
servicesattheselevelstoappropriatelyplanandresourcetheir
programs.Moreover,itishelpfulforfacilitieswithinadistrictoraregion
tosharetheirperformancetowardtargets.Thistypeoffeedbackfosters
understandingofperformancerelativetoneighboringfacilitatesand
encouragesdiscussionsaboutsuccessfulprogrammaticapproaches.

KNOWLEDGE
RECAP
ANSWERS

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65

Question:Aninternationaldonoragencydevelopedanationalpoverty
reductionplanthatinvolvedhundredsofpeopleincommunityfocus
groups.Thisactivitysparkedcommunityinterestinandexcitementabout
thepotentialoftheproject.Unfortunately,therewasnofeedbackto
informthefocusgroupparticipantsaboutwhattheprojecthad
discovered.Thislackoffeedbackcreatedfrustrationamongthe
community,whichmaydiscouragefutureparticipationinresearch
activities.Thisisanissueof:

CorrectAnswer:d)Returninginformationbacktothosethatassistedinthe
collectionofthosedataisimportanttobuildanunderstandingofhowdata
canimprovehealthservices.Whenthisunderstandingisstrongthedata
collectionsystemsfunctionbetteranddataisofbetter.

Question:Pleaseidentifyreasonstoprovidefeedbackfromthenational
levelbackdowntotheprovinces,districtsandfacilitiesfromtheoptions
below:

CorrectAnswer:f)Feedbackfromthenationallevelbackdowntothe
provinces,districtsandfacilitiespromotesacultureofinformationuse,
allowsdistrictsandregionstounderstandhowtheireffortsare
contributingtonationaltargets,strengthensthedatauser/producer
relationship,andpromotesdataquality.

Question:ConsidertheexampleofaVCTprogram,wheredatarevealan
increaseinthetimebetweentestingandfollowup,andadeclining
numberofclientsreceivingresults.Facilitymanagersknewthatthere
wereproblemswithproviderperformancearoundcounselingand
testing,andthattherehadbeensomedelaysinthelab,buttheydidnot
knowhowmuchtheoverallfollowuprateswerebeingaffected.The
districtandregionalofficersknewfollowupratesweredeclining,butdid
notknowwhy.Whatsolution(s)couldsolvethisseriousproblem?Please
selectallthatapply.

CorrectAnswer:f)Actionshouldonlybetakenafterthetwogroupsdiscuss
thepotentialreasonsforthedecliningfollowuprates.Priortothat,any
actionwouldonlybebasedongutlevelreaction,ratherthandata
interpretation.

DataDemandandUse:AnIntroductiontoConceptsandTools

66

FrameworkforLinkingDatawithAction

Objectives

identifyprioritydecisionsandprogrammaticquestions

linkdecisions/questionswithpotentialdatasources

understandhowtocreateatimeboundplanforusingdatain
decisionmaking

OBJECTIVES AND
OVERVIEW

UnitOverview

decisionsandquestions

FrameworkforLinkingDatawithAction

Inthepreviousunits,wediscussedmanyoftheconceptsandtoolsthat
canimprovethedecisionmakingcontextinyoursetting.Wetalked
about:

BUILDING DATA
USE INTO YOUR
WORK

identifyingandengagingstakeholderstoparticipateinthe
decisionmakingprocess
identifyingandovercomingbarrierstodatause
mappingandimprovinginformationflowandfeedback

Nowletsdiscussthepracticalaspectofusingdatainyourwork.Howcan
youmanagetobuildregulardatauseintoyourwork?Howdoyouensure
thatdatausebecomespartandparcelofyourdaytodayduties?The
answeristoPLANforit.
MEASUREEvaluationhasdevelopedasimpletoolthatassistsusersin
identifyingdecisionsandprogrammaticquestionsfacedindaytoday
work.Thesemaybedecisionsandquestionsaround:

programmonitoring,planning,andimprovement
advocacyneeds
programmanagementoroperationsissues
strategicplanning

DataDemandandUse:AnIntroductiontoConceptsandTools

67

CalledFrameworkforLinkingDatawithAction,thistoolhelpsyoutolink
thedecisionsandquestionswithdataandtocreateatimeboundplan
fordecisionmaking.Itisalsocriticaltoinvolveothersinyourwork
becausethebestdecisionsaremadewithstakeholderinvolvement.You
needtounderstand:

decisionsothersmake
informationtheyneed
thebestwaytopresentthatinformation

ELEMENTS OF THE
FRAMEWORK

Theframeworkassistsyouinidentifying:

decisionmakersandstakeholderswithpotentialinterestinyour
data
decisions/actionsthatastakeholdermakes(possibleusesofdata)
questionstowhichthestakeholderrequiresanswers
whenthedecisionwillbemade
indicatorsordataofinterest(torespondtostakeholderneed)
sourcesofdata
howdatawillbepresented(analyses,graphs,formats)

FRAMEWORK FOR
LINKING DATA
WITH ACTION

HereisthetemplatefortheFrameworkforLinkingDatawithAction.The
frameworkisamanagementtoolacombinationofatemplateand
processthatservesthreekeypurposes:

Theframeworkcreatesatimeboundplanforevidencebased
decisionmakingbysettingdatesbywhichdatashouldbe

DataDemandandUse:AnIntroductiontoConceptsandTools

68

reviewedinrelationtokeyprogrammaticquestionsand
upcomingdecisions.
Itencouragesgreateruseofexistinginformationbyidentifying
existingdataresourcesandlinkingthatinformationwiththe
programmaticquestionsthatneedanswerstosupportevidence
baseddecisionmaking.
Itprovidesyouwithanevidencebaseddecisionmakingrecord
sothatyoucanmonitortheuseofinformationindecision
making,providingatimelineforconductinganalysesandmaking
decisions.

Formoreinformationaboutthetool,pleasevisit:
http://www.cpc.unc.edu/measure/tools/datademanduse/data
demandandusestrategiesandtools.html.
KnowledgeRecap

Question:TheFrameworkforLinkingDatawithAction:

a)Createsamapofinformationflowwithinanorganization
b)Createsatimeboundplanfordatainformeddecisionmaking
c)Monitorstheuseofinformationindecisionmaking
d)Encouragesgreateruseofexistinginformation
e)B,C&D
f)Alloftheabove
g)Noneoftheabove

Answersareonpage79.

DataDemandandUse:AnIntroductiontoConceptsandTools

69

Letsclarifywhatwemeanbydecisions.Decisionsarechoicesthatlead
toaction.Alldecisionsareinformedbyquestions.Allquestionsshouldbe
basedondata.

WHAT ARE
DECISIONS?

Forexample,everydayyouneedtomakeadecisionaboutwhattowear
outsideofthehouse.Tomakethisdecision,youmayaskyourselfsome
ofthefollowingquestions:

Whatisthetemperature?
Isitraining?
WhateventsdoIhaveplannedfortheday?

Toanswerthesequestions,youmayconsultthethermometer,the
weatherreport,oryourdailycalendar.
Theseareexamplesofdecisionsthatmaybemadeatdifferentlevelsof
thehealthcaresystem:

DECISIONS

allocatingresourcesacrossstates/districts/facilities
revisingprogramsfororphansandothervulnerablechildren(OVC)
toemphasizechildadoptionandfostering
developingandinstitutingworkplacepoliciesonHIV/AIDS
hiringandallocatingstafftofacilities

Insomecontexts,adecisioncannotbeidentifiedbeforeakey
programmaticorpolicyquestionisanswered.Ordecisionmakersmay
haveaquestionabouttheirprogramforwhichtheyneedatimely
answer.Itistheanswertothisquestionthatmayprovidetheevidence
thatsomekindofactionneedstobetaken,eithertoimproveorrealign
services.Inthesecases,wefocusonidentifyingprogrammatic
questions,asopposedtodecisions.

DECISIONS OR
QUESTIONS

Examplesofprogrammaticquestionsincludethefollowing:

WhatpercentageofHIV+pregnantwomenincarearedelivering
inhealthfacilities?
WhatpercentageofclientsstartingARTarelosttofollowup?
Arethenumberoffamilyplanningclientsdecreasing?

DataDemandandUse:AnIntroductiontoConceptsandTools

PROGRAMMATIC
QUESTIONS

70

WhatpercentageofpregnantpatientswhoareHIV+arereceiving
ART?

DataDemandandUse:AnIntroductiontoConceptsandTools

71

KnowledgeRecap

Question1:ProgrammanagerswithinagovernmentfundedARTprogram
askedfacilitymanagersandotherstakeholderstomeettodiscusshow
theycanensurethatpatientsdonotdefaultastheprogramscalesup
servicesand,howtheycanimprovetrackingofdefaultingclientsover
time.Programmanagers,serviceproviders,supportgroupleaders,and
M&E;specialistsmettoidentifyquestionsthatwhenansweredwould
informthestrengtheningoftheirARTprograms.Whichofthefollowing
questionsisleastrelevanttoimprovingARTprograms?

a)Whatpercentageofclientsisaliveandontreatmentatthree,six,and
twelvemonthsafterinitiatingART?
b)AreweseeinganincreaseinCD4countsasclientsareontreatment
forlongerperiodsoftime?
c)Areclientsreceivingadequatecounselingandsupporttomaintain
adherencetoART?
d)Howmanyprovidersreceivedthenationalguidelinesonthenewstaff
vacationpolicy?

Question2:Programmanagerssupportingtwoclinicsareinterestedin
applyingforadditionalfundingfromadonororganizationtostrengthen
theclinics'capacitytomeettheneedsofyouthintheircatchmentareas.
First,theprogrammanagerswanttounderstandtheextenttowhichthe
clinicserviceswerealreadymeetingtheneedsofyouthintheirdistricts.
Theprogrammanagers,clinicaladvisors,andmonitoringandevaluation
(M&E)specialistsmettoidentifyquestionsthatcouldhelpthemimprove
servicesforyouth.Whichofthebelowquestionsistheleastrelevant?

a)Whatpercentageofeachclinic'sclienteleisyouthaged1524years?
b)Whatistheclinic'sperformanceagainstthetargetforthenumberof
youthaged1524yearsservedbytheclinic?
c)Howmuchmoneyisneededtoincreaseprogrammingforpregnant
women?
d)Isthenumberofyouthservedattheclinicincreasingeachmonth?

Answersareonpage79.

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72

Onceyouhaveidentifiedyourprogrammaticquestionsordecisions,itis
timetoidentifythedatasourcesandspecificindicatorsnecessaryto
calculateananswertoyourprogrammaticandpolicyquestions.For
example,ifyourprogrammaticquestionis:Arewemeetingtheneedsof
pregnantwomeninDistrictXforPMTCTservices?Yourdatasourcesmay
include:

LINKING
DECISIONS AND
QUESTIONS WITH
DATA

RHISinformationonthenumberofwomencounseled,tested,
informedoftheirtestresult,positiveandreceivingtreatment,
infantsreceivingtreatment,andfollowupofinfectedinfants
censusdatafordistrictXtocalculatetheestimatednumberof
pregnantwomen
surveydataonHIVprevalencetocalculatetheestimatednumber
ofHIV+women

Insomeinstances,youwillrealizethataneededdatasourcedoesnot
exist.Inthiscase,youhaveidentifiedadatagapthatcanbefilledwith
proxydata(ifappropriateandavailable)ornewresearchwillneedtobe
conducted.

Fortheidentifiedanalysestotakeplaceanddecisionstobemade,
specificindividualsneedtobenamedtooverseetheprocess.Thetypes
ofstakeholdersthatyoumayimplicateinaspecificdecisionmaking
processcouldincludeaprogrammanager,afacilityhead,aprovider,the
directorofanNGOorcommunityorganization.Thispersonshouldhave
theultimateauthoritytomakethedecisionandoverseethe
implementationofactivities.

IDENTIFYING
STAKEHOLDERS,
TIMELINES, AND
COMMUNICATION
CHANNELS

Linkingthedecisionmakingprocesstoatimelinealsofacilitatesthe
process.Itpresentsaconcrete,actionablescheduleofactivitiesto
addresspolicyandprogrammaticquestions,toresolveadatagap,orto
integratedataintodecisionmakingprocesses.Thespecificdatefor
conductingtheanalysisthatwillinformdecisionsshouldbeidentified,as
wellasadatebywhichthedecisionneedstobemade.
Oncethetimelineisidentified,thespecificcommunicationchannelsthat
willbeusedtocommunicatetheresultsoftheanalysisorresulting

DataDemandandUse:AnIntroductiontoConceptsandTools

73

decisionsshouldbespecified.Thecommunicationchannelshouldbethe
mostappropriatewaytoconveyyourmessagestotheprimarydecision
makerandotherstakeholders.Stakeholdergroupsvarybytheir
informationuse,familiaritywithM&Eterminology,andpreferencesfor
receivinginformation,resultingintheneedtotailorfindingsand
recommendationsfordifferentaudiences.Somecommunication
methodsandformatsmaybeeffectivewithmultiplestakeholdergroups.
Makingtheresultsofyouranalysesandrecommendationsavailable,
accessible,relevant,oruseful,todecisionmakersincreasestheir
applicabilityforimprovinghealthsystems.Identifyingyour
communicationchanneltoreachdifferentsegmentsofstakeholdersis
essentialtoincreasingstakeholdersresearchuptake.
TheFrameworkforLinkingDatawithActionisnotaonetimeexercise
tiedtoonespecificcalendardateordecisionpoint.Whentheframework
isintegratedintodailyandannualworkplans,itservesasaworkingtool
thatfacilitatesevidencebaseddecisionmaking.Forbestresults,thetool
shouldberegularlyreferenced,monitored,andupdated.Whenused
regularly,theframeworkalsoprovidesatimelineformonitoringprogress
inthedecisionmakingprocess,andasystematicwayofidentifyingdata
usebyprogrammanagers,donors,andconsultants.

Buildingdatauseintoyourworktakesplanninganddedicatedtime.

KEY MESSAGES

Datashouldbelinkedtospecificdecisionssoastofacilitateuse.
Relevantstakeholdersshouldbeinvolvedineachstepoftheprocess.
TheFrameworkforLinkingDatawithActioncanbeusedtocreatean
actionableplanforusingdataindecisionmaking.

TheAIDSReliefProjectbeganinRwandainJanuary2004andby
September2008wasassisting12servicesites(localpartnertreatment
facilitiesorLPTF)toprovideantiretroviraltherapyandhadtested
103,685individualsforHIV,enrolledmorethan7,840peopleincare,and
started3,852clientsonART.EachLPTFprovidesservicesatahealth
facility(eitherahospitalorhealthcenter)andsupportscommunity
DataDemandandUse:AnIntroductiontoConceptsandTools

CASE STUDYTEST
YOUR KNOWLEDGE
CASE STUDY:
AIDSRELIEF
RWANDA
74

outreach.AIDSReliefutilizesasystemknownasIQCharttocollectpatient
datanecessaryforitsARTprograms.IQChartisanelectronicpatient
managementandmonitoringsystemthatallowsservicesitestocollect,
store,andanalyzepatientleveldata.
InMay2008,anIQChartreportshowedthatalargenumberofclients
weremissingtheirscheduledappointmentsforantiretroviral(ARV)drug
pickup.Thecentralofficediscussedthefindingswitheachsitesclinical
team.Theinitialreactionfromtheclinicalteamswasthatthenumberof
missedappointmentswasinflated;theydidnotbelievethatsomany
patientshadmissedtheirARVappointments.Theclinicalteams
requestedaninvestigationtodetermineifthiswasadataqualityissueor
ifsomanypatientswereinfactmissingappointments.AIDSReliefhada
multifacetedproblemtosolve.Ifthequalityofdatawaspoor,the
organizationneededtoreinvestintrainingservicesitestaffindata
collectiontechniques;ifthedataqualitywassufficient,itneededto
addressthefactthatmanypeopleweremissingtheirappointments.
Usingpatientdataalreadycollectedandstored,theofficegenerateda
listofnamesandaddressesofeverypatientmarkedasmorethan20
daysoverdueforanARVpickup.Thelistsweregiventocliniciansand
communitycoordinatorsforindividualfollowupandverificationatboth
thefacilityandthepatientshome.Itwasdeterminedthatpatient
recordswereindeedcorrect.Thisresolvedtheissueofdataqualityof
existingmedicalrecords.
Asaresult,AIDSReliefRwandainstitutednewprocedurestostrengthen
supportservicestoARVpatients.Eachcommunityvolunteerwas
assignedeightARTclientsthatthevolunteerwasexpectedtovisit
weekly.Newformsweredesignedforthevolunteerstoreportontheir
clients,andmonthlymeetingswerescheduledwiththecommunity
coordinatorstoshareanddiscusstheinformationcollectedandtheir
experiencesinsupportingclients.
WithimprovedincreasedavailabilityofdataonARVclientprogress,it
waspossibletoprovideahigherstandardofcare.Everysitenow
monitorsweeklyARVpickup,CD4testing,andcaresupport.With
improveddataavailableattheservicesites,cliniciansnowusethe
reportstoidentifyproblematicpatients.Communityvolunteersthen

DataDemandandUse:AnIntroductiontoConceptsandTools

75

followupwiththesepatientstoensurethattheycontinuewiththedrug
regimen.Asaresultoftheseprogramimprovements,thequalityoflifeof
programbeneficiarieshasimproved.Thenumberofpatientslostto
followuphasdroppedsignificantly.Anecdotalreportssuggestthat
communityvolunteershavebecomemorevisibleintheircommunities,
whichhasencouragedotherpeoplelivingwithHIVtojointheprogram
andseekHIVrelatedservices.

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76

CaseStudyQuestions

Question1
Inthiscasestudy,whatpromptedtheinvestigationintoclientswhomissedARTappointments?
a)ArequestfromthenationalMOHthatallARTdatabereviewed
b)ReviewanddiscussionoftheIQChartreport
c)DrugstocksindicatedthattheARTsuppliesweretoohigh
d)Clinicalteamsverballyreportedthattheywereseeinglessclients

Question2
Whentheclinicalteamswereinformedthatthedatarevealedthatclientsweremissingappointmentstheir
initialreactionwasthatthenumberofpatientswasinflated;theydidnotbelievethatsomanypatientshad
missedtheirARVappointments.Todeterminethereasonsbehindthisfindingtheteamfirstcheckedthe
qualityofthedatabeforetheymadeanyprogrammaticdecisions.Thisactionrepresentsanunderstandingof:
a)The3determinantsofdatademandanduse:technical,organizationalandbehavioral
b)Stakeholderanalysis
c)ThegovernmentprocessforARTprocurement
d)Noneoftheabove

Question3
Inthecasestudyitstatesthat,"Asaresult,AIDSRelief/Rwandainstitutednewprocedurestostrengthen
supportservicestoARVpatients.EachcommunityvolunteerwasassignedeightARTclientswhomhe/she
wasexpectedtovisitweekly.Newformsweredesignedforthevolunteerstoreportontheirclients,and
monthlymeetingswerescheduledwiththecommunitycoordinatorstoshareanddiscusstheinformation
collectedandtheirexperiencesinsupportingclients."
a)Stakeholderengagement
b)Stakeholderanalysis
c)Evidencebaseddecisionmaking
d)Improvedinformationflow

Question4
Thenewdatacollectionformsthatwereimplementedtodocumenttheweeklyvisitsfromtheprogram
coordinatorsresultedinincreasedavailabilityofdataonARVclientprogress.AIDSReliefalsoconvened
regularmeetingswithcoordinatorstodiscussthefindingstomakedecisionsonclientcare.Theseactivities
areanexampleof:
a)Barrierstodatause
b)Thecycleofevidencebaseddecisionmaking
c)NationalM&Epolicy
d)Applicationofthestakeholderengagementtool

Answersareonthenextpage(78).

DataDemandandUse:AnIntroductiontoConceptsandTools

77

CaseStudyAnswers

Question1
Inthiscasestudy,whatpromptedtheinvestigationintoclientswhomissedARTappointments?
Thecorrectansweris"b."AIDSReliefhadastrongM&Esysteminplaceaswellasacommitmenttoregular
reviewofmonthlytrendsinthedata.Itwasthroughtheregularreviewanddiscussionofdatathatthedrop
inclientcontactswasnoted.Usingdatatomonitorprogramactivitiesisakeystepindatause.

Question2
Whentheclinicalteamswereinformedthatthedatarevealedthatclientsweremissingappointmentstheir
initialreactionwasthatthenumberofpatientswasinflated;theydidnotbelievethatsomanypatients
hadmissedtheirARVappointments.Todeterminethereasonsbehindthisfindingtheteamfirstchecked
thequalityofthedatabeforetheymadeanyprogrammaticdecisions.Thisactionrepresentsan
understandingof:
Thecorrectansweris"a."Thesystemsthatareinplacetoensurethequalityofdataareakeytechnical
determinantofdatause.Theclinicalteamknewthatdataqualityhadbeenanissueinthepastandwere
doingtheirduediligencetofirstensurethatthedatareflectedthetruesituationintheprogrambefore
embarkingonacostlyintervention.

Question3
Inthecasestudyitstatesthat,"Asaresult,AIDSRelief/Rwandainstitutednewprocedurestostrengthen
supportservicestoARVpatients.EachcommunityvolunteerwasassignedeightARTclientswhomhe/she
wasexpectedtovisitweekly.Newformsweredesignedforthevolunteerstoreportontheirclients,and
monthlymeetingswerescheduledwiththecommunitycoordinatorstoshareanddiscusstheinformation
collectedandtheirexperiencesinsupportingclients."Thisisanexampleof:
Thecorrectanswerisc.Evidencebaseddecisionmaking.

Question4
Thenewdatacollectionformsthatwereimplementedtodocumenttheweeklyvisitsfromtheprogram
coordinatorsresultedinincreasedavailabilityofdataonARVclientprogress.AIDSReliefalsoconvened
regularmeetingswithcoordinatorstodiscussthefindingstomakedecisionsonclientcare.Theseactivities
areanexampleof:
Thecorrectansweris"b."Thecycleofevidencebaseddecisionrepresentshowdatacollection,availability,
useanddemandareinterlinked.Whenthereisademandfordatathenecessaryresourcesareinvestedto
collectthatdata.Oncethedataarecollected,theywillbeanalyzedandsynthesizedintoaformatthatmakes
thedataavailablefordecisionmaking.Oncetheyareavailable,thedatacanbeusedtoinformhealth
programs.TheAIDSReliefstoryillustratesthatpositiveexperiencesusinginformationtosupportadecision
resultsinastrongercommitmenttoimprovingdatacollectionsystemsandcontinuingtousetheinformation
theygenerate.

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78


Thecorrectanswersareasfollows:

Question:TheFrameworkforLinkingDatawithAction:

CorrectAnswer:e)TheFrameworkforLinkingDatawithActioncreatesa
timeboundplanfordatainformeddecisionmaking,helpsmonitorthe

useofinformationindecisionmaking,andencouragesgreateruseof

existinginformation.

Question1:ProgrammanagerswithinagovernmentfundedART

programaskedfacilitymanagersandotherstakeholderstomeetto

discusshowtheycanensurethatpatientsdonotdefaultasthe
programscalesupservicesand,howtheycanimprovetrackingof

defaultingclientsovertime.Programmanagers,serviceproviders,

supportgroupleaders,andM&E;specialistsmettoidentifyquestions

thatwhenansweredwouldinformthestrengtheningoftheirART

programs.Whichofthefollowingquestionsisleastrelevantto

improvingARTprograms?

CorrectAnswer:d)TheFrameworkforLinkingDatawithActioncreatesa
timeboundplanfordatainformeddecisionmaking,helpsmonitorthe

useofinformationindecisionmaking,andencouragesgreateruseof

existinginformation

Question2:Programmanagerssupportingtwoclinicsareinterestedin

applyingforadditionalfundingfromadonororganizationtostrengthen

theclinics'capacitytomeettheneedsofyouthintheircatchment
areas.First,theprogrammanagerswanttounderstandtheextentto
whichtheclinicserviceswerealreadymeetingtheneedsofyouthin

theirdistricts.Theprogrammanagers,clinicaladvisors,andmonitoring

andevaluation(M&E)specialistsmettoidentifyquestionsthatcould

helpthemimproveservicesforyouth.Whichofthebelowquestionsis

theleastrelevant

CorrectAnswer:c)Whilebudgetingconcernsareimportantinimproving
servicesforpregnantwomen,thedecisionmakersfirstobjectiveisto
determinehowthetwoclinicsarecurrentlymeetingtheneedsofyouth.

Oncethisisdeterminedandtheservicesthatneedtobeaddedor

improvedareidentified,thendecisionscanbemadeaboutwhereto

investadditionalresources.Also,theneedsofpregnantwomenare

relevanttowomenolderthan24.Ifthedecisionmakerswanttofocuson

servicesforyouth,theywillneedtolookspecificallyatprenatalservices

forwomen1524.

DataDemandandUse:AnIntroductiontoConceptsandTools

KNOWLEDGE
RECAP ANSWERS

79

FINALEXAM

Congratulationsyouhavenearlycompletedthiscourse!
Thefinalexamwilltestyourunderstandingofthematerialpresented.
AnswerthefollowingquestionstoseehowmuchyouknowaboutData
DemandandUse.Gotopages8485toseetheanswers.

1. Datademandanduse:
a)functionsasareinforcingcycle
b)involvesonlyoneperson
c)reliesonthecollectionandavailabilityofdata
d)happensnaturallyinalldecisionmakingprocesses
e)a&c
f)b&c

2.Basedoninformationfromahealthfacilityassessmentsurvey,a
ministryofhealthfoundthatthenumberofemergencyobstetriccare
facilitiesabletoprovideemergencyobstetriccarewaslowerthanthe
recommendedstandard.Thegovernmentusedthisinformationtoincrease
thecapacityoffacilitiestoprovideemergencyobstetricservices.Trueor
False:Inthiscase,thepurposeofinformationfromthehealthfacility
assessmentsurveywasusedtomakeaninformeddecisionabout
expandingthetypeofservicesofferedathealthcarefacilities.
a)true
b)false

3.Pleaseselectthecomponentsofthedatauseconceptualframework
fromthefollowingchoices:Collection,Supervision,Demand,Utilization,
FundingandAvailability.
a)supervision,demand,fundingandavailability
b)supervision,demand,utilizationandavailability
c)collection,utilization,fundingandavailability
d)collection,demand,utilizationandavailability

DataDemandandUse:AnIntroductiontoConceptsandTools

80

4. Alackofdataqualityassuranceprotocolsisa/an______________

barriertodataandinformationuse.
a)individualorbehavioral
b)technical
c)organizationalorsystemic
d)noneoftheabove

5.Alowlevelofstaffmotivationisa/an______________barriertodata
andinformationuse.
a)behavioral
b)technical
c)organizational
d)noneoftheabove

6.Datausersareindividualsororganizationswho:
a)makedecisions
b)provideservicesormanageprograms
c)developpoliciesorplans
d)alloftheabove

Chartforquestion7:

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81

7.Theabovechartisanexampleofa/an__________feedbackform.
a)narrative
b)inpersondiscussion
c)supervisionvisitform
d)facilityreport

Chartforquestion8:

8.Theabovechartisanexampleofa/an__________feedbackform.
a)narrative
b)inpersondiscussion
c)supervisionvisitchecklist
d)facilityreport

9.Pleasechoosetheissue/issuesthatis/arepotentialbarrierstoproviding
feedback.
a)lackofcommunicationaboutdataneeds
b)strictorganizationalhierarchy
c)narrowrolesandresponsibilities
d)confidentiality
e)alloftheabove

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82

10.Agovernmentisdevelopingitsannualhealthplanandbudget,andhas
includedabroadrangeofstakeholdersintheplanningprocess.Thereisa
needformoreinformationaboutthehealthstatusofkeypopulationsand
healthprogramsbeingimplementedbythegovernmentaswellasother
donorfundednongovernmentalorganizations.Thesedatahavebeen
collectedbyhealthsurveysandsurveillancesystemsbuthavenotbeen
synthesizedinoneaccessibleformatforusebyprogramplanners.Thisis
anissueof:
a)informationavailability
b)informationflow
c)dataproducererror
d)feedback
e)a,b&d
f)noneoftheabove

11.Achoicebetweentwoormorealternativesis:
a)information
b)astakeholder
c)adecision

12.Whyisitimportanttoconsiderhowyouwillcommunicatedatavia
feedbackmechanisms?
a)differentstakeholdershavedifferentdegreesofunderstandingabout
thetopicbeingcommunicated
b)differentstakeholdersneed/wantdifferentinformation
c)differentstakeholdersneedinformationatdifferentlevelsofcomplexity
d)differentstakeholdershavedifferentintensitiesofinterestinthetopic
beingcommunicated
e)alloftheabove

DataDemandandUse:AnIntroductiontoConceptsandTools

83

FinalExamAnswers
1.Datademandanduse:
e)a&c

2.Basedoninformationfromahealthfacilityassessmentsurvey,a
ministryofhealthfoundthatthenumberofemergencyobstetriccare
facilitiesabletoprovideemergencyobstetriccarewaslowerthanthe
recommendedstandard.Thegovernmentusedthisinformationto
increasethecapacityoffacilitiestoprovideemergencyobstetricservices.
TrueorFalse:Inthiscase,thepurposeofinformationfromthehealth
facilityassessmentsurveywasusedtomakeaninformeddecisionabout
expandingthetypeofservicesofferedathealthcarefacilities..
a)True

3.Pleaseselectthecomponentsofthedatauseconceptualframework
fromthefollowingchoices:Collection,Supervision,Demand,Utilization,
FundingandAvailability.
d)collection,demand,utilizationandavailability

4.Alackofdataqualityassuranceprotocolsisa/an______________
barriertodataandinformationuse.
b)technical

5.Alowlevelofstaffmotivationisa/an______________barriertodata
andinformationuse.
a)behavioral

6.Datausersareindividualsororganizationswho:
d)alloftheabove

7.Theabovechartisanexampleofa/an__________feedbackform.
a)narrative

8.Theabovechartisanexampleofa/an__________feedbackform.

d)facilityreport

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84

9.Pleasechoosetheissue/issuesthatis/arepotentialbarriersto
providingfeedback.
e)alloftheabove

10.Agovernmentisdevelopingitsannualhealthplanandbudget,and
hasincludedabroadrangeofstakeholdersintheplanningprocess.There
isaneedformoreinformationaboutthehealthstatusofkeypopulations
andhealthprogramsbeingimplementedbythegovernmentaswellas
otherdonorfundednongovernmentalorganizations.Thesedatahave
beencollectedbyhealthsurveysandsurveillancesystemsbuthavenot
beensynthesizedinoneaccessibleformatforusebyprogramplanners.
Thisisanissueof:
e)informationavailability,flow,andfeedback

11.Achoicebetweentwoormorealternativesis:
c)adecision

12.Whyisitimportanttoconsiderhowyouwillcommunicatedatavia
feedbackmechanisms?
e)alloftheabove

DataDemandandUse:AnIntroductiontoConceptsandTools

85

GLOSSARY

Aggregation:Acollectionofdatacombinedforaspecifictypeofanalysis.

Analysis:Turningrawdataintoinformationtoassistinunderstandingaphenomenon.

ART:Antiretroviraltherapy;strategiesformedicinaltreatmentofinfectionsbyretrovirus,suchasHIV.

Behavioraldeterminants:Determiningfactorstiedtothebehaviorofindividualswhoproduceanduse
data.Thiswouldcovertheirattitudes,values,andmotivation.

Causalelement:Anelementorfactordirectlyresponsiblefororaspecificoutcome.

Cultureofdatause:Whenasystemororganization,andtheindividualsthatarepartofthe
system/organization,routinelypracticetheuseofdataindecisionmaking

Data:Referstoraw,unprocessednumbers,measurements,ortext.

Datademandanduse:Asystematicapproachthatappliesbestpracticesandappropriatetoolswith
thegoalofincreasingdemandforqualityhealthrelateddataandensuringthattheresulting
informationisusedinanevidencebaseddecisionmakingprocess.

Dataproducers:Individualsororganizationswhoconductresearch;collectprimarydatainthecourse
ofprovidingaspecificserviceordeliveringaprogramintervention;orcompile,analyze,interpret,or
communicatedataandinformation.Adatauserandadataproducermaybethesameindividual.

Datausers:Individualsororganizationsthatusedatatomakedecisions,developpoliciesandplans,
formulateadvocacymessages,provideservices,ormanageprograms.Adatauserandadataproducer
maybethesameindividual.

Decision:Achoicethatleadstoaction(orpurposefulinaction),ideallyinformedbyquestionsand
basedondata.

Denominator:Thepartofafractionthatisbelowtheline(thedivisorofthenumerator).

Determinants:Adeterminingorcausalelementorfactordirectlylinkedtodatause.

Evidencebaseddecisionmaking:Inthiscourse,evidencebaseddecisionmakingreferstousingdata
orinformationtoinformadecision.

Evaluation:Anactivity(suchasastudy)thatattributesprogramoutcomestotheircauses.

DataDemandandUse:AnIntroductiontoConceptsandTools

86

Feedbackmechanisms:Asysteminwhichinformationaboutreportsandperformanceissentbackto
theoriginaldatacollectorsorproducerswithinaroutinehealthinformationsysteminordertogive
comments,advice,correction,orencouragementtotheoriginalcollectorsorprogrammanagers

Impact:Apositiveornegative,primaryorsecondarylongtermeffectproducedbyaprogram
intervention,directlyorindirectly,intendedorunintended.

Indicator:Aquantitativeorqualitativefactororvariablethatprovidesasimpleandreliablemeansto
measureachievement,toreflectthechangesconnectedtoaprojectintervention,ortohelpassessthe
performanceofthoseofinteresttotheintervention.

Information:Referstoprocesseddata,orcombineddatapresentedinaspecificcontext.

Informationflow:Thepaththatinformationtravelsthroughanorganization,program,government,or
system.

Interpretation:Theprocessbywhichfindingsofananalysisareunderstoodwithinthecontextofa
program.

M&Esystems:Theprocessbywhichdataarecollected,analyzed,andcommunicatedtoprovide
informationtopolicymakersandotherstakeholdersforuseinmakingdecisions,diagnosingproblems
orconcerns,andansweringprogrammaticquestions.

Monitor:Totrackchangesinprogramperformanceovertimetoknowwhethertheprogramisbeing
truetoitsstatedgoalsandobjectives;continuedanalysisandinterpretationofkeyindicators.

Numerator:Thepartofafractionthatisabovethelineandsignifiesthenumbertobedividedbythe
denominator.

Organizationaldeterminants:Determiningfactorstiedtotheorganizationalcontextthatsupportdata
collection,availability,anduse,suchastheidentifiedproceduresandtherolesandresponsibilitiesof
thosewhocollect,analyze,disseminate,andusedata.

Outcome:Thelikelyorachievedshorttermandmediumtermeffectsofaprograminterventions
outputs.

Percentage:Expressesafractionofatotalonthebasisofthetotalbeingdividedinto100parts(e.g.,
50%representshalfofthetotal).

PMTCT:PreventionofmothertochildtransmissionofHIVtypicallyinvolvespProgramsintendedto
preventinfectionofHIVfromanHIV+mothertoherchildduringpregnancy,labor,delivery,or
breastfeeding.

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87

PRISM:PerformanceofRoutineInformationSystemManagement,aconceptualframework
developedbyMEASUREEvaluationtoevaluateroutinehealthinformationsystems(RHIS).More
informationcanbefoundat:http://www.cpc.unc.edu/measure/publications/ms0934

Proxydata:Indirectmeasuresofaprogramtarget.

Routinehealthinformationsystems:Systemsthattrackandutilizedatathatarecollectedona
continuousbasis,suchaspatientregisters.

Stakeholder:Anyonewhohasastakeorinterestinyourprogram.Thiscanincludegovernment
agencies,policymakers,fundingagencies,andevenimplementersorproviders.Inaddition,the
beneficiariesofhealthprogramsarestakeholders.

Target:Aprogramgoalorindicatorgoal.

Technicaldeterminants:Determiningfactorstiedtothetechnicalaspectsofdatacollectionprocesses
andtools,suchasthedatacollectionprocesses,methods,andforms.

Vitalevents:Arecordofbirthsanddeathsamongapopulation.

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88

MEASURE Evaluation
University of North Carolina at Chapel Hill
400 Meadowmont Village Circle, 3rd Floor
Chapel Hill NC 27517 USA
P: +1 919-445-9350
F: +1 919-445-9353
E: measure@unc.edu
www.measureevaluation.org
eCourse available for download:
http://www.measureevaluation.org/resources/
publications/ms-12-54

MEASURE Evaluation is funded by the U.S. Agency for


International Development (USAID) through Cooperative Agreement
GHA-A-00-08-00003-00 and is implemented by the Carolina Population
Center at the University of North Carolina at Chapel Hill, in partnership
with ICF International, John Snow, Inc., Management Sciences for
Health, Palladium, and Tulane University. The views expressed in this
publication do not necessarily reflect the views of USAID or the United
States government. MS-12-54

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