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Headway and sort of what, and if you can, what your health issue is.
I come to Headway cause... I thought I might just be able to get to walk again and
the other groups are.....handy its ..... its interesting learning about what we are
doing in the Heritage Project.
The Heritage Project yeah?
Thats good, interesting and of course the animated group is, dont forget, look on
Youtube
The Heritage Project?
No the animation group.
The animation group ok.
We have got a project coming up, were filming it,we call it I am not going to say what
its about but its very good.
Ok Ill look it up then that sounds really good.
It is, believe me!...I forgotten where I am.
So what was it you said you come to Headway because you want to be able to walk
again and you also sort of enjoy the classes you do here.
Yeh
Cause I heard you didnt want to miss your Animation Project.
No I didnt.
Eh, em they all moved away fairly, they were quite young and I was there to look
after, my Dad...
Look after him?
Yeh, he would be going... my mum died quite a while ago and he brought me up and
he became ill em... quite a while after, which left me to look after him.
So you sort of helped out with your Dad then? So what was wrong with your Dad?
Em, he had cancer.
Oh ok. Is it hard to talk about?
Sometimes yeh.
No its ok if you want to talk about it you can but if not we can.... leave it.
Leave it please.
No thats absolutely fine. So did you go to school in Cambridge?
Yeh.
Where did you go?
Netherhall.
Netherhall, oh thats not far. Did you enjoy it or..?
Sort of.
Sort of? Up and down? Did you, how was school?
Mmm I preferred college.
Im sorry I dont.
So when did you have your first child?
The oldest is 18, I think yeah. I cant really remember numbers.
No Im 18 so it would have been around 97, 96 yeah? So can you tell me a bit about
your children?
They are four terrors!
Four terrors!
Adam and Connor - boys and Fran or Frances and Saffron Saffy - girls.
Oh so youve got two of each then.
Perfect planning!
And now they are nightmares?
Yes and no, theyre alright.
So the oldest is 18 you said, so they are quite young then.
Yeah.
How old is the youngest?
12.
Oh so theyre quite close in age then.
Yeah.
So do you have a husband?
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Yeah.
Yeah, so living at home with your children...didafter you had your stroke, how
would that have affected on your children?
Quite a big thing cause they saw me have it in front of them.
Ok, carry on.
Theres one Ive written about getting on the bus youd be surprised about the
amount of people who sit on my arm.
Oh really?
Theres only one place I can go and the amount of people particularly on a morning
when its busy will sit there, not any more they get the elbow! Cause its my personal
space, go away, how would they like it if somebody got up close and personal to
them, its not on.
So you write about these experiences in the blog?
Yes.
Do you have any other experiences to talk about?
Oh lots. Ive written about the concert I went to, about the Strawberry Fayre, erm,
about the Open Day here, I cant remember what else, oh the Animation Group.
Which is good.
The Animation Group, can you tell these stories? If you can...
Yeah erm we making astop go animationin animation with a story, a very good
story and weve written the script and we do the voices and cant say what its about
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but its a very good, in fact we are sending a copy of it when its finished, to the
Prime Minister.
Good, good on you. So em about the blog again, so you said you write stories of
your experiences and things like that so you said one experience was the Strawberry
Fayre and sort of people, is it people getting in your personal space?
Yes.
So could you tell that story?
Well its just mainly on the bus, people sit there and they think... the Strawberry
Fayre was very good, I enjoyed it a lot, it was a bit bumpy but I enjoyed it cause
people treated me as normal, whatever that means. I am normal, it may be my legs
that have gone but this hasnt but believe me this hasnt. I think the only thing that I
said was wrong was thenot enough disabled toilets.
Not enough of them? So, on this blog that you write for Headway you are sort of
focussing on peoples attitudes towards disabilities and how that needs to change
really.
Yeah it does.
So thats really interesting so you sound like you are a very active member of
Headway.
Yeah, you should see people on the bus because they all look at me and you see
them, she shouldnt be on here, she shouldnt be in that, I know but I have to, I live
with it, why cant they?
How do you feel your life has changed since you had the stroke?
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A great deal because I used to work in a primary school, which has flights of stairs, I
couldnt do that now. And the playground used to be a big.... big em... mountain or
something, something, what do you call it, in the playground, the kids used to, I used
to hold their hands and run up it and run down the other side that was lovely... a hill,
thats it.
How long did you work in the primary school?
10 years.
So youve been sort of based in Arbury for the last sort of how long?
16-14 years.
So before working in the primary school where did you work?
I didnt, I was too busy having babies.
Bringing them up?
Yeah all of them.
Were you there when they were there, how was that?
I thought it was good but they, the others, the headmaster didnt like it.
Really?
I shouldnt say because its being recorded but I am going to say it - he was a
bastard, he was! He was the sort to phone me up when I was lying in hospital not
knowing whether I would live or die, Are you coming back to work? Are you coming
back to work?
And he had no sort of regard for?
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No he hadnt.
So after your stroke, obviously you said its changed your life a lot.
Yeah.
But in terms of sort of aside from what you did before sort of in the way its changed
how, whats been sort of new in your life?
This horrible contraption, I cant do what I used to which sometimes upsets me, I
cant go and play football with the boys or the kids, cant walk my children to school
and now they are too old but thats besides the point, I cant walk with them to
school, I cant do my job, em, we have a lot of animals at home, I cant go round and
feed them, I find it too hard.
But youve got youve also got opportunities at Headway and things like that.
Im not complaining.
No no, no
Im moving in other directions but I miss my old life. I miss horses. [sighs] yeh.
What animals have you got at home?
Animals, cat, guinea pigs, gerbils, rats, tame rats that is.... rabbits em... I think thats
it. And I want a dog, I am desperate for a dog. I had a dog and she died a week
before I had this. Its as if she knew. She was a nutcase she really was. But I need....
I need another dog. Security, Im in a wheelchair I feel vulnerable but I .... I want to
be left alone at home I want my family to go out and enjoy themselves and Im a big
girl I can be left alone but it would be nice to have a dog, very nice.
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Yes it has, of course half way through this year I had to go and break my hip. And it
hurts believe me it bloody hurts! So, oh Im so tired ??? I just thought learning to
walk again, I wonder whats next, I think Ive broken everything well it feels like it.
You still seem very optimistic and positive though.
Yeh I think whats the point in, Im not going to sit here and wait to die its not on. I
have got things to do places to go, and if it means ?? then so be it. I walked outside
yesterday.
So you will prove them wrong.
Yes I will, I will prove them wrong believe me.
So you mentioned earlier, you were sort of angry about treatment.
Yeh
If we could touch on that if you are happy to if it doesnt... its just part... I mean you
said you are quite upset with some of it. You dont have to name anyone or... say
anything but I mean what that sort of after. Immediately after the stroke.
After yeh, the hospital were, the hospital care was very good. [someone sneezes]
Bless you. The em the physios, even the Ops the doctors in hospital were wonderful.
But when I came out... it was ..... I cant think of a polite word for it. It was hell.
Because the people that were supposed to come and see me, didnt. I was sitting at
home for 3 weeks without any therapy at all. Which didnt help.
So in a way you were sort of left.
Yes.
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Which is unacceptable.
Yes considering I had therapy physio, speech therapy every day in hospital I liked,
they ... I liked it, every day in hospital having physio and speech therapy and the
OTs, the OTs yes thats another story but I was making progress and then I come
out and was left for 3 weeks before ........[sighing] before the Stroke Association saw
me and I had one visit from a speech therapist and she thought I was good enough
and she never came anymore. I needed more. The physio walked for me which is
wrong. I am the one who wants to walk not her.
So then coming to Headway obviously made a massive difference in the way you
were treated and how you felt about that.
I was treated as an individual in my own right and they all of them, they are all nutty
as we are. But they are all, normal is not... they are all the same as us they have all
got the same humour and they will talk to each and every one of us. Not oh you want
this... they ask what we want, what I want and they listen.
Then they are putting you first always which is really important obviously. So this sort
of seems like your treatment from coming out of hospital is that sort of reflected in
your what sounds like your blogging, so when you are saying, trying to raise
awareness on how you know we are all equal no matter what really which is really
important obviously and its brilliant.
We have covered quite a bit is there anything youd like to talk about that we
havent spoken about?
I dont think so.
What have you got planned for the rest of the day?
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I dont know. I would have done Jeff but hes not here so ?? singing
Singing?
Singing or Scrabble.
Scrabble.
I wouldnt mind singing if it was decent music, not that its bad but its not my type of
music, I prefer rock music.
Rock music? Whats your favourite band?
WTC: [sighs]
Or one of?
I like The Darkness.
The Darkness! Wow Ive never heard of them
Really?
No, have you?
Yeh.
Really, I never have.
Yeh good band.
I feel really out of touch!
And I am seeing them in December.
Wow.
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Corn Exchange.
Do you go out to music quite a bit?
Yeh. It makes it, sorry, it makes a difference. The first concert I went to was about 6
months, 6 months after I had been released from prison, it felt like prison! No they
were wonderful in hospital, little angels. Now they were a band we followed before I
had my children. And for them to perform in a concert just for me, well it seemed like
it so I went to see them and they said what the hell are you doing in that? And I told
them but it was great. Now they have broken up. But I try to go out quite often, The
Portland Arms.
Yep.
And I can get in with my wheelchair its wheelchair.
The gig rooms accessible.
Yes.
The Portland Arms do really good gigs dont they?
I was there last night actually!
Who did you see?
I didnt actually go for a band but they did have a band on I spent a couple of
drinks with a friend of mine but yeh. How do you find... have you been to the
Corn Exchange before since youve been using the chair.
Yeh.
How is that in terms of accessibility?
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Ok. But I dont like it... the first time was for em.... whats there name? ?? I saw them
and I hadnt booked upstairs I was downstairs and I could see fuck all it was ohh and
the band I particularly wanted to see Father Son were on first, so when they played I
got put up in the balcony so I could see it. Its ok I suppose but the ? is better
because you can reach down and touch.
And people kind of stand up and get in the way basically dont they.
Yeh.
Yeh.
But I went to Young Guns in em July August that was good but very, there was a lot
of people in The Portland it was a bit scary but Young Guns, who cares.
They are jacket.
Is that the logo, I was looking at thats really cool. A peace logo isnt it?
On,
And whats that a peace logo on the front. I really like that design. Yeh so oh thats so
smart.
I was lucky being given this my husband decided I had earned it because thats the, I
think this was about 40 or something.
Is there anything else you would like to add?
I dont think so.
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