Project Technical Assistant, FP5 QoL Background the rising number of older people either healthy or suffering from different age-related illnesses and requiring long-term care - will increase the pressure on the public sector (forecast for the increase of public expenditure on health care for the period 2000-2050 is 0.7-2.3 GDP points) the increase in the number of smaller and more unstable family structures (and the rising employment rate of women) could undermine the family networks of solidarity and make the provision of care within families more difficult to continue consequently the care for older persons is not only a matter for the conventional health system, but also for the social sector Helsinki 14-15/9/2006 Dora Groo 2 Trends in elder care introducing a focus on prevention will help to reduce the use of intensive and costly care any developments in the services for healthy old people and in acute or long-term health care for older persons will require more and better skilled human resources even older people are better informed and they expect higher quality and efficiency from social and health care systems social and health care consumers feel that they need to be considered as fully-fledged partners and players and they expect greater transparency on the performance and quality of care services
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How can research contribute to the improvement of elder care?
Networking of related efforts
Integration of social and health care Promotion and support of family care Improvement of care by patient involvement Supporting the autonomy of older people, prevention of disability Special cases: minorities, marginalization
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CARMEN Care and Management of Services for Older People in Europe Network
a cross-national comparison of methods for integrated care
(40 organizations from 11 countries) was performed European Research and Policy Agendas were developed and sent to Ministries of Health, EU officials, MEPs a Policy Framework was developed for the integrated care of older people www.ehma.org the project contributed to WHOs glossary of terms for community health care and services for older persons a Resource Book was compiled for managers on integrated care for older people; during 2005, this resource book (200 pages) was downloaded 17,141 times.
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PROCARE Providing Integrated Health and Social Care for Older Persons in Europe Aim: defining the new concept of an integrated health and social care for older persons in need of care by comparing and evaluating different modes of care delivery by identifying structural, organisational, economic and social-cultural factors and actors that constitute an integrated and sustainable care system with enhanced outcomes for all actors involved. Findings: development of long-term care systems is only at the beginning: governance, investment and innovation decisions, organisational development, training and new job-profiles are needed integration of health and social care is to be put on the social policy agenda in all countries www.euro.centre.org /procare
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Helsinki 14-15/9/2006 Dora Groo 7 The project studied the balance between family care and service systems and its relation to older peoples quality of life; variations in family norms and transfers (intergenerational solidarity) across age cohorts; how individuals and families cope when there i a risk of dependency. Findings: family help is higher in countries with lower service level; the preferred model for elder care is a combination of family and welfare state responsibility; greater weight must be placed on building, protecting and maintaining individual resources; policy should support a redefinition of the role of family in care provision. Helsinki 14-15/9/2006 http://oasis.haifa.ac.il/ Dora Groo 8 IMPROVE Improving general practice care for older people in Europe Aim: develop and test methods to increase older patients involvement in general practice care in Europe Results: four instruments to involve older patients were tested in a pilot study and appeared to be well accepted by GPs and patients a consultation leaflet was developed aiming to enhance appropriate utilization of general practice among older adults GPs thought that involvement of older persons was positive, as it would support the responsibility of the patient patients were positive about being involved, but most thought that responsibility for medical decision should remain with the GP http://oase.uci.ru.nl/~improve/ Conclusion: improving involvement of older patients in general practice may need more time as it requires a change of culture. Helsinki 14-15/9/2006 Dora Groo 9 MEC Minority elder care The project aimed to investigate quality and effectiveness of health social care services to minority ethnic (ME) elders, draw attention to their needs and improve provision of services for this group. Statistically significant research evidence was produced on the circumstances and opinions of 25 different ethnic groups across Europe in UK, F, NL, D, E, FIN, HU, BA, CR and CH Main findings: - family is important to ME elders; they desire to remain independent - general health reported is poor or very poor; there is premature ageing among some groups - in spite of poor health reported, services are under used - the needs of ME elders are only partly met due to cultural, organisational and societal reasons The MEC research is a wake up call for policymakers in all EU institutions, Stephen Hughes, MEP UK Helsinki 14-15/9/2006 Dora Groo 10