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Use of the ICF in Dysphagia Management

Travis T. Threats, Ph.D.1

ABSTRACT

The evaluation and intervention of persons with dysphagia repre-


sents a significant percentage of speech-language pathologists caseloads
in medical settings. Because of its overtly medical nature, there has been
considerable focus dealing with the direct physical health aspects of
dysphagia management. This article argues that the use of the World
Health Organizations International Classification of Functioning, Disabil-
ity and Health (ICF) by clinicians can expand and greatly enhance the
outcomes for persons with dysphagia. The different components of the ICF
are discussed in relation to dysphagia assessment and management. The
article concludes by noting that speech-language pathologists can use
the ICF framework beneficially to justify and strengthen their role in the
management of dysphagia.

KEYWORDS: ICF, dysphagia, outcomes

Learning Outcomes: As a result of this activity, the reader will be able to (1) demonstrate an understanding of
dysphagia as a potential social disability, (2) demonstrate an understanding of how dysphagia can be assessed and
treated via the components of the ICF, and (3) demonstrate an understanding of how viewing dysphagia through
the ICF framework can enhance dysphagia management.

T he exact prevalence and incidence of centage, in some cases the majority, of the
dysphagia is not known but it is estimated that caseload for speech-language pathologists who
prevalence may be as high as 22% in those older work in medical settings. Speech-language
than 50 years of age;  10 million individuals in pathologists work with persons with difficulties
the United States are evaluated each year for in the oral and pharyngeal stage of the swallow,
swallowing difficulties.1 Dysphagia assessment which includes from entry of food into the
and intervention accounts for a significant per- mouth until the time food enters the esophagus.

1
Associate Professor and Chair, Department of Commu- Disability and Health (ICF) in Clinical Practice; Guest
nication Sciences and Disorders, Saint Louis University, Editors, Estella P.-M. Ma, Ph.D., Linda Worrall, Ph.D.,
St. Louis, Missouri. and Travis T. Threats, Ph.D.
Address for correspondence and reprint requests: Travis Semin Speech Lang 2007;28:323333. Copyright #
T. Threats, Ph.D., Department of Communication Sciences 2007 by Thieme Medical Publishers, Inc., 333 Seventh
and Disorders, Saint Louis University, 3750 Lindell Blvd., Avenue, New York, NY 10001, USA. Tel: +1(212) 5844662.
St. Louis, MO 63108 (e-mail: threatst@slu. edu). DOI 10.1055/s-2007-986529. ISSN 0734-0478.
The International Classification of Functioning,

323
324 SEMINARS IN SPEECH AND LANGUAGE/VOLUME 28, NUMBER 4 2007

Of all the disorders speech-language path- actual feasting occurs, is characteristic of most
ologists evaluate and treat, dysphagia is the rites of passage. . ..Often saying We eat to-
most medical in a traditional sense of a medical gether is saying, We trust each other, even
disorder being one that could potentially result if we are not members of the same tribe or
in death. Dysphagia can result in aspiration kin. This is as true for the Nyakyusa of
pneumonia, malnutrition, dehydration, de- Tanzania as for teenagers in a U.S. high
creased functioning of the pulmonary system, school cafeteria. The meanings we attach to
and inability to take medications orally. De- eating and drinking, and swallowing are con-
creased saliva production can also increase the nected to our most cherished activities and
likelihood of oral bacteria developing in the oral remind us of the intangibles of human ex-
cavity and spreading to the rest of the body. istencetrust dependence, social worth, and
The World Health Organization (WHO) loveand, therefore, become integral to how
defines health as the complete physical, men- we see ourselves as individuals and in relation
tal, and social well-being and not merely the to others (p. 102103).
absence of disease or infirmity.2 In the case of
dysphagia, which can cause disease or infirmity, It is striking how the above quote also
it might appear that this expanded definition of describes human communication. It is also
health is not necessary. However, when dys- true that communication and swallowing occur
phagia is examined broadly, it is clearly not only together, a characteristic rarely discussed in the
a chronic disability but also one that has po- dysphagia literature despite the crucial impli-
tential activity/participation limitations and cations for dysphagia management of persons
psychosocial consequences, some of which are in their natural environments. This quote
similar to having a communication disorder. should inform those in the field how limiting
Viewing dysphagia through the lens of it is to view dysphagia in purely technical rather
WHOs International Classification of Func- than more than humanistic terms.
tioning, Disability and Health (ICF)3 can thus Dysphagia is described in this article using
expand speech-language pathologists view the components of the ICF: Body Structures,
and approach to dysphagia assessment and Body Functions, Activities and Participation,
intervention. Environmental Factors, and Personal Factors.
Unlike communication disorders such as All ICF codes have qualifiers that indicate the
aphasia, the literature on dysphagia rarely dis- severity of the limitation or restriction. These
cusses dysphagia in terms of life effects, con- universal qualifiers attached to the ICF codes
centrating mainly on direct health effects. range from 0 (no problem or within normal
DeRenzo4 states the following: limits) to 4 (complete or profound problem).
The relationships among these different com-
Although there are no universal food ponents of the ICF are discussed, an example
customs or dietary laws, every society, from using the ICF to describe dysphagia is de-
preliterate to technologic, develops eating and scribed, and a rationale for why speech-lan-
drinking customs and attaches symbolic value guage pathologists should adopt the ICF
to certain foods and ways of consuming spe- framework in their work with this population
cific nutrients. These customs dictate what is discussed.
may and may not be consumed, at what times,
and in what places. Most often, these customs
have little to do with nutritive factors but are, ICF BODY STRUCTURE AND BODY
instead, designed to delineate and solidify FUNCTION COMPONENTS AND
social relationships. Religious and secular cer- DYSPHAGIA
emonies are replete with ritualistic eating and The Body Structures and Body Functions codes
drinking behaviors symbolizing life and mer- that directly describe aspects of swallowing are
riment. The gaiety of the bacchanal continues presented in Tables 1 and 2, respectively. In
to symbolize life and vitality to this day. The addition, the Body Functions codes that de-
provision of food and drink, whether or not scribe behaviors that may influence food and
USE OF THEICFIN DYSPHAGIA MANAGEMENT/THREATS 325

Table 1 Body Structures Codes: Swallowing Table 3 Body Functions Codes: Influences on
Eating/Drinking Behaviors
s320 Structure of mouth s330 Structure of pharynx
Teeth s3300 Nasal pharynx b110 Consciousness b140 Attention functions
Gums s3301 Oral pharynx functions
s3202 Structure s340 Structure of larynx b117 Intellectual b144 Memory functions
of palate functions
s3203 Tongue s3400 Vocal folds b1301 Motivation b147 Psychomotor
s3204 Structure of lips s398 Structures involved functions
in voice and speech, b1302 Appetite b156 Perceptual
other specified functions
s3208 Structure of s399 Structures involved b1303 Craving b1644 Insight
mouth, other specified in voice and speech, b1670 Reception of b1646 Problem-solving
unspecified language
s3209 Structure of b2102 Quality of vision b 255 Smell function
mouth, unspecified b250 Taste function
s510 Structure of
salivary glands
s520 Structure of describes the extent that the movement, speed,
esophagus and efficiency of the movement deviate from
the norm. In addition, there are several Body
Functions codes that have a significant impact
liquid intake are presented in Table 3. The Body on whether a person will be a successful in
Structures items cover parts of the neurological eating and drinking. The oral stages of the
system, and structures needed to carry out the swallow are voluntary and thus require cogni-
physical act of taking food into the mouth, tive input to complete successfully. The phar-
appropriately handling it, and getting it into yngeal stage of the swallow is initiated by
the stomach, such as teeth, tongue, the jaw, and specific oral manipulations of the food by the
the larynx. These Body Structures codes can be tongue. Thus both the oral and pharyngeal
modified via use of the qualifiers to specify how stages of the swallow require cognitive input
the structure deviates from the norm (e.g., to function optimally. As a result, ICF Body
deviating position, partial absence) and whether Functions codes dealing with motivation, ap-
the abnormalities are unilateral or bilateral. petite, taste, attention, insight, and memory
The Body Functions codes that directly functions are included in Table 3. These be-
describe the swallowing process including spe- haviors need to be assessed to address compre-
cific movements such as Biting (b5101), as well hensively the swallowing difficulties of those
as more global codes such as Pharyngeal swal- with dysphagia because they contribute to risk
lowing (b51051). The qualifier for these codes factors for aspiration (food going into the
lungs) and choking.

Table 2 Body Functions Codes: Swallowing


ACTIVITIES AND PARTICIPATION
b510 Ingestion Functions b5101 Swallowing
AND DYSPHAGIA
b5100 Sucking b51050 Oral swallowing
The Activities and Participation codes dealing
b5101 Biting b51051 Pharyngeal
directly with the intake of food and liquid are
swallowing
listed in Table 4 and Activities and Participa-
b5102 Chewing b51052 Esophageal
tion codes related to eating and drinking be-
swallowing
haviors are listed in Table 5. As stated
bB5103 Manipulation b51058 Swallowing,
previously by DeRenzo,4 eating is a social
of food in mouth other specified
behavior and thus the evaluation of the severity
b5104 Salivation b51059 Swallowing,
of the swallow should also include the effects of
unspecified
dysphagia on these activities. In the Activities
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Table 4 Activities and Participation Codes: them. In a typical clinical noninstrumental


Swallowing evaluation of the swallow, clinicians announce
d550 Eating Carrying out the coordinated tasks to the clients that they are there to observe
and actions of eating food that them eat to evaluate their swallowing. The
has been served, bringing it to the clients are told to eat while the clinicians closely
mouth and consuming it in a observe the activity and also often palpate the
culturally acceptable ways, cutting throat for signs of pharyngeal dysphagia. This
or breaking foods into pieces, evaluation makes the act of eating very sterile
opening bottles and cans, and and clinical as opposed to the more normal
using eating implements, having congenial manner of eating with other individ-
meals, feasting or dining uals. After this evaluation, the clinicians write
d560 Drinking Taking hold of a drink, bringing it to up the observations in the most objective lan-
the mouth, and consuming the guage possible. The clients know that not only
drink in culturally acceptable ways, are they being evaluated, but also that the
mixing, stirring, and pouring liquids clinical judgment will influence what types of
for drinking, opening bottles and diets will be recommended. There is no talking
cans, drinking through a straw or during the evaluation and clients often are not
drinking running water such as eating food they particularly enjoy, especially if
from a tap or a spring; feeding they are being evaluated in a medical setting.
from the breast. Contrast this clinical, sterile scene with eating
at a wedding. At a wedding, there is talking
(often over noise) eating and drinking, and the
and Participation component, there are four drink may well contain alcohol. The persons are
potential qualifiers. The first and fourth quali- happy to be there and the food and drink are a
fiers relate to the behavior in persons real lives means to celebrate. The behaviors represented
and are the performance qualifiers. The second by the Body Functions codes that contribute to
and third qualifiers refer to behavior directly successful eating and drinking can be markedly
observed in the clinical setting and are the different in the persons natural environments,
capacity qualifiers, with the former being how especially the cognitive behaviors such as atten-
a person does without clinical assistance, such tion. Considering that dysphagia has direct
as in an assessment, and the latter how a person health consequences, overall eating behavior
does with clinical assistance, such as cueing that is different from that observed in the clinic
from the clinician. The first performance quali- must be addressed in intervention.
fier describes how persons function in their In the evaluation of eating and drinking
actual lives and the fourth performance qualifier codes of the Activities and Participation com-
describes how persons would function if they ponent of the ICF, it is important to note how
had no assistance from the environment. broadly these codes are written. They include
The four qualifiers of the Activities and getting the food from the plate to the successful
Participation component are critical areas for swallow, as well as other behaviors such as
speech-language pathologists to systematically appropriately using utensils and opening bottles.
evaluate and examine the relationships among This type of evaluation necessitates an interdis-
ciplinary approach. No one member of a single
Table 5 Activities and Participation Codes:
profession may be able to adequately rate these
Related to Eating/Drinking codes on his or her own; the two principal
professions are speech-language pathology and
d630 Preparing meals
occupational therapy. This interdependence
d850 Remunerative employment
may actually be best for patients in that adequate
d9100 Informal associations
overall eating and drinking behavior is the goal
d9191 Ceremonies
for all patients. Awareness and appreciation
d920 Recreation and leisure
of all aspects of eating, including Body Func-
d9300 Organized religion
tions (e.g., biting and sustained attention),
USE OF THEICFIN DYSPHAGIA MANAGEMENT/THREATS 327

Activities and Participation (e.g., successfully priate food consistency is available, to other
eating the food to the mouth), Environmental effects such as the support and attitudes of
Factors (e.g., lighting in room, pleasantness of family members. For example, Attitudes of
eating partners), and Personal Factors (e.g., food health professionals is a code in the ICF and
preferences) need to be realized by all members may affect whether a given patient is even
of the interdisciplinary team, regardless their deemed appropriate for dysphagia intervention,
discipline specific goals for the patient. If the such as with frail elderly patients.
individual spills half of the food getting it from Attitudes and support of all persons in the
the plate to the mouth, or spills half of the food clients environments are influenced by culture.
from the mouth while chewing, the result is still One of the signatures of any culture is what
increased chance of malnutrition. In addition, if foods are consumed and how they are con-
the individual has trouble with one or both sumed. The effect may be that two people
activities, the clients ability to eat appropriately with technically the same severity of dysphagia
in social settings is severely compromised. Such may function very differently because of their
a person might avoid eating with others with the culture. For example, in cultures that favor large
consequence that they end up eating very little at consumption of meats, a person with difficulty
all. In addition, important ritualistic eating with mastication of dry foods may have more
could be affected, such as that associated with trouble eating socially than in a person with the
religious ceremonies (e.g., a devout Roman same dysphagia symptomatology in a culture
Catholic person being unable to take Holy that eats mostly rice and soft vegetables.
Communion). Personal factors are those characteristics of
the person that are not related or due to the
health condition. They include demographic
ENVIRONMENTAL FACTORS AND information, such as age and race, as well as
PERSONAL FACTORS IN personality traits, such as coping styles and
DYSPHAGIA motivation. Given that eating and drinking
The Environmental Factors component of the are behaviors, they are subject to wide individ-
ICF is needed to understand fully the impact of ual variations in food and liquid preferences as
dysphagia on persons. The Environmental Fac- well as eating styles. Some people are fast eaters
tors codes most related to swallowing are listed and others premorbidly ate slowly; some people
in Table 6. Unlike the other qualifiers in the eat a lot, whereas others eat relatively little. In
ICF, environmental factors can be evaluated as liquid preferences, there are those who drink
either facilitators or barriers. As seen in Table 6, coffee all day and those who only drink water.
environmental factors include immediate facil- In terms of personality, some people react
itators or barriers, such as whether the appro- to challenge with despair, whereas others ap-
proach all challenges pragmatically and sys-
tematically. When persons have dysphagia,
Table 6 Environmental Factors Codes:
Swallowing these preferences and personality traits influ-
ence everything from their reaction to having
e1100 Food
dysphagia to how willing they are to follow
e115 Products and technology for personal use in
dysphagia precautions.
daily living
When dysphagia recommendations go
e240 Light
against a persons personal and/or environmen-
e250 Sound
tal factors, there are ethical issues because of the
e310 Immediate family
direct health aspect of swallowing. Two of the
e320 Friends
tenets of health care ethics are autonomy and
e340 Personal care providers and personal assistants
beneficence.5 Autonomy refers to persons right
e410 Individual attitudes of immediate family
to make their own health care decisions, even if
members
they contradict those of health care professio-
e450 Individual attitudes of health professionals
nals. Beneficence refers to making sure that
e580 Health services, systems and policies
maximum benefit is provided to those persons
328 SEMINARS IN SPEECH AND LANGUAGE/VOLUME 28, NUMBER 4 2007

given intervention. In its annex discussing the ical examination itself, the Body Functions
ethical use of the ICF, the ICF states that the codes dealing with the oral stage of the swallow
ICF codes should be assigned with full knowl- can be evaluated, as well as some indications of
edge of the persons whose behavior is being the pharyngeal-stage swallow. Depending upon
evaluated, with the person having the right to how the clinical assessment is done, the capacity
object. The ICF emphasizes the autonomy qualifiers of the Activities and Participation
aspect of health care ethics. In the use of the items regarding overall eating and drinking
ICF, there are several ethical dilemmas that behavior could be evaluated. However, if the
could occur in dysphagia management. For person is fed the food by the clinician, then
example, if a person has a cognitive-communi- eating style cannot be evaluated. Another lim-
cative disorder along with dysphagia, the itation is that in the medical setting, persons
speech-language pathologists might be likely often are not given the usual foods and drinks
to attribute his or her refusal to follow dyspha- they consume. More detailed background ques-
gia recommendations to decreased insight and tions of the person and/or their significant
thus an impairment rating would be warranted others about eating and drinking behaviors
on that ICF Body Functions code. If a person could help fill in the gaps of possible relevant
has the right to know what his or her ICF Activities and Participation areas as well as
code rating is, then there could be conflict important Personal and Environmental Factors.
between the clinician and the patient over a The two primary instrumental evalua-
decreased insight code being used to justify tions for dysphagia are the flexible fiberoptic
violating individual autonomy regarding food examination of swallowing (fiberoptic endo-
preferences. scopic evaluation of swallowing [FEES]) and
the videofluoroscopic modified barium swallow
evaluation. Both of these evaluations assess
DYSPHAGIA ASSESSMENT Body Structures and Body Functions compo-
The American Speech-Language-Hearing As- nents of the swallow. Given that they evaluate
sociation (ASHA) Preferred Practice Patterns the swallow in a decidedly artificial environment
for the Professional of Speech-language Path- with a usually limited rate and amount of food
ology6 states that dysphagia evaluation should presented, the interpretations from these two
follow the ICF framework, including normal evaluations must be tempered with information
and abnormal parameters of structures and that evaluates other components of the ICF
functions affecting swallowing; effects of swal- framework. In fact, basing dysphagia evaluation
lowing impairments on the individuals activ- and management only on these instrumental
ities (capacity and performance in everyday evaluations may lead to recommendations
contexts) and participation; contextual factors with limited relevance or practicality for a
that serve as barriers to or facilitators of given patient.
successful swallowing and participation for
individuals with swallowing impairments.
Activities and Participation Assessment
of Dysphagia
Body Structures and Body Functions Sonies7 defines functional eating (in parallel
Assessment of Dysphagia with a definition used for functional commu-
Dysphagia assessment typically involves both a nication) as the ability to eat a meal effectively
clinical assessment and one or more instrumen- and independently in a given environment so as
tal assessments. The clinical assessment in- to sustain adequate nutrition for a healthy life
cludes the case history and medical style (p. 263). Assessment of eating at drinking
background, which could capture key body at the Activities and Participation level is
structures (e.g., cranial nerve or cerebral lobe not completed as regularly as Body Structures
damage) and personal factors (e.g., age, occu- and Body Functions testing because there are
pation, family), as well as the specific medical fewer agreed upon measures for Activities and
etiology of the possible dysphagia. In the clin- Participation.
USE OF THEICFIN DYSPHAGIA MANAGEMENT/THREATS 329

There are several measures that look being stuck in throat, difficulty chewing, and
broadly at eating proficiency. One measure drooling (b51051, b5102, b5103). Examples of
that has been used by speech-language pathol- Activities and Participation behaviors on this
ogists to evaluate overall eating and drinking assessment measure include the following lim-
behaviors is the ASHA National Outcomes itations or restrictions secondary to the dyspha-
Measurement System for Swallowing.8 This is gia: (1) not going out to eat, (2) restrictions on
a seven-level scale that ranges from Individual social life, (3) changes in work or leisure, (4)
is not able to swallow anything safely by avoidance of social gatherings such as holidays,
mouth. Compensatory strategies are effec- (5) suspected role changes in family, (6) no
tively used when needed to The individuals longer enjoying or desiring to eat, and (7) taking
ability to eat independently is not limited longer to complete meals.
by swallow function7 (p. 35). Other global
assessments of eating and swallowing in-
clude Wisconsin Speech-Language-Hearing Environmental and Personal Factors
Associations Functional Outcome Assess- Assessment in Dysphagia
ment Measurement of Swallowing,9 and the As with other areas of the field, the systematic
Australian Therapy Outcome Measures Swal- assessment of environmental and personal fac-
lowing Scale.10 tors related to dysphagia is lacking. The
Although these measures evaluate overall SWAL-QOL includes no direct questions
eating proficiency, they still link the overall about Environmental Factors but does have a
eating behavior with the actual physical capa- more Personal Factors questions on it than the
bilities of the swallowing mechanism. For ex- typical dysphagia assessment, including ethnic-
ample, they do not directly consider cognitive ity/race, years of schooling, and marital status.
characteristics of the person or the eating envi- The same authors produced the SWAL-
ronment other than some measures that broadly CARE,14 which looks at the one environmental
address the independence of eating. These factor of how the clinician interacts with the
measures are appropriate for the measurement client. Most of the questions are factual ones
of codes for Activities and Participation codes dealing with how specific information is pre-
of Eating (d550) and Drinking (d560) but not sented, but there are also questions that may tap
for the possible social limitations of having into the attitudes of the clinician, including
dysphagia. Sonies7 notes that these measures whether the client believes that the clinician
tend to be developed for specific facilities or puts the clients needs first, and if the client has
organizations and are thus not well standar- confidence in the clinician (e355 and e450).
dized. The effects of the environment on patients
One measure that is both well standardized with dementia and dysphagia have been inves-
and also includes broader aspects of the Activ- tigated.15,16 Changes in lighting (e240) or level
ities and Participation restrictions and restric- of sound in room (e250) as well as the level of
tions secondary to dysphagia is the SWAL- support from family (e310 and 315), personal
QOL tool.1213 This measure, which also looks care providers (e340), and health professionals
at quality of life issues, is appropriate for looking (e360) can make the difference between living
at the performance qualifier of the Activities and successfully with dysphagia and dire physical
Participation component in that it examines and social consequences.
real-life functioning of persons with dysphagia The relationship between Environmental
via the patients perspectives. As a result, it looks Factors and Personal Factors with dementia
beyond the specifics of the swallow to how being and dysphagia has been described by Brush
limited in swallowing effects ones ability to et al17 in discussion of a fictional (yet typical)
function in society. The SWAL-QOL includes woman admitted to a nursing home; a combi-
questions regarding both Body Functions and nation of environmental and personal factors
Activities and Participation behaviors. Exam- contributed to poor eating and drinking behav-
ples of Body Functions skills on the SWAL- iors. Environmental factors discussed were the
QOL include patient reports of coughing, food lighting and seating arrangements of the dining
330 SEMINARS IN SPEECH AND LANGUAGE/VOLUME 28, NUMBER 4 2007

room, as well as mislabeled food, which reduced assessment can be used to focus dysphagia
her ability to enjoy mealtimes. A personal factor treatment (p. 274).7
alluded to is that the resident previously liked
spicy foods and now must eat bland nursing
home food. These factors alone might contrib- CASE EXAMPLE
ute to poor eating, but with such patients there Dr. D, a 67-year-old man, has a new stroke that
is often at minimum an underlying oral-stage has caused a mild to moderate oral-stage dys-
dysphagia. The combination of having more phagia secondary to an infarct in his motor
mechanical difficulty with chewing and manip- cortex of his left frontal lobe. Last year, he
ulation of the bolus and eating under less than had two mild strokes, which affected his left
desirable circumstances may have a negative prefrontal lobe and his left temporal lobe,
synergistic effect on nutrition and hydration. resulting in a mild cognitive communicative
Even when the importance of Environ- disorder characterized by impairment of higher
mental and Personal Factors components is level abstract thinking and problem solving,
acknowledged, there are still no agreed upon and difficulty making new verbal memories.
standards to assess them. This may be due to The clinician evaluated Dr. D as an out-
the belief that the person with dysphagia is the patient 2 weeks after he was discharged from
identified patient and thus all attention should the hospital. A clinical evaluation of him in the
be on trying to fix the patient. The environ- clinic room with food from the hospital cafe-
ment does not have a possible life-threatening teria demonstrated that he had some coughing
illness, so it is not evaluated for possible during meals, although he denied he was hav-
intervention. In the traditional medical model, ing any difficulty eating. He also complained
only the person with the disease need be about the modified diet he has received, telling
treated. the clinician that he still eats steaks despite the
difficulty and length of time it takes him, that
he still has coffee, and that before his stroke he
Intervention Using the ICF Framework would drink 6 cups of coffee a day. His
Given the preponderance of Body Functions case history indicates he has been married for
and Body Structures assessments of dysphagia, 30 years and is a retired biology professor who
it is not surprising that most dysphagia therapy makes a comfortable living with income from a
focuses on these aspects of the disorder. In fact, product he patented and is still a top-selling
these aspects must be worked on to ensure biology textbook. His favorite activity is eating
decreased risk of aspiration and adequate nu- out with his wife at different restaurants and
trition and hydration. This approach, although going to baseball games with his two brothers. A
it is essential, is not sufficient to intervene videofluoroscopic modified barium swallow
globally with persons with dysphagia. As re- evaluation revealed moderately decreased mas-
search with the SWAL-QOL has shown, dys- tication skills, mild difficulty forming and ma-
phagia has far-reaching consequences. nipulating the bolus, and premature spillage of
The development of assessment tools ex- food and liquids into the pharynx. He had no
amining Activities and Participation and En- pharyngeal residue after the swallow. In one
vironmental and Personal Factors of persons instance, there was an estimated 5% aspiration
with dysphagia will lead to better intervention of liquids before the onset of the pharyngeal
for this population. Sonies states . . .it is swallow, which was accompanied by coughing.
suggested that the swallowing problem be In this case, the relevant Body Structures
viewed in relationship to how dysphagia af- impairment would be the damage to his cere-
fects the emotional stability, happiness, social- bral lobes, with a qualifier indicating that this
ization, and friendships, and satisfaction with damage occurred on the left side. These body
life of the person with the impairment. Once structure abnormalities could be indicated us-
we have an indication of which measures are ing the ICF without necessarily knowing the
most influential for patient functioning and cause or etiology. The primary new Body
well-being, the most critical elements of an Functions impairments would be impaired
USE OF THEICFIN DYSPHAGIA MANAGEMENT/THREATS 331

chewing (b5102), oral manipulation of food that will allow him to eat smaller meals with-
and control of bolus (b5103). Body Functions out risking malnutrition. Eating smaller meals
impairments secondary to his previous stroke might lessen the effect of seeming to take
include higher abstract thinking (b1640), longer to finish meals than his eating com-
problem solving (1646), development of panions.
long-term memories (b1441), and insight Regarding coffee drinking, if Dr. D can
into difficulties (b1644). A potential Activities learn to keep his head down and take small sips,
and Participation limitation includes recrea- he may be able to continue this behavior. Since
tion and leisure activity (d920). Relevant en- he has demonstrated that he coughs when
vironmental factors would be the support and liquids are in the airway or being aspirated, the
attitudes of his spouse and relatives toward his patient can practice his drinking of coffee using
modification of his diet (e310, e410). Relevant the different strategies with the clinician in the
personal factors would include his previous therapy room. To get across the possible neg-
occupation, high socioeconomic level status, ative effects of aspirating liquids such as coffee,
and his family situation. The key to full assess- the clinician could use his personal factor of
ment and planning for invention for Dr. D is his biology background by showing Dr. D his
not just to realize all of the components of the modified barium swallow, and have a discussion
ICF, but also to look at their interaction with about the acidity level of coffee and possible
each other. damage to his lungs. Considering his cognitive
Intervention should address Dr. Ds Body communication disorder, the clinician would
Functions impairments of chewing and control need to structure the instruction, supplemented
of the bolus. The modification of his diet to by support from Dr. Ds family, to decrease his
mechanical soft should be maintained to com- rate if he wishes to continue drinking coffee,
pensate for his reduced oral-stage abilities. For and explain that the amount of coffee he drinks
control of the bolus, he could practice eating with may need to be decreased.
his chin tucked in and head slightly titled down- The ability to follow any swallowing pre-
ward. He will also need to control the rate and cautions will be greatly decreased by drinking
amount of food (and especially drink) that he alcoholic beverages, especially in the midst of
consumes. Given that Dr. D has limited insight watching a baseball game. Given that it can be
into his swallowing disorder, the speech- hot during baseball games, the clinician could
language pathologist should provide instruction suggest to Dr. D and his spouse that he bring
and guidance to his wife and brothers not only chilled water to the games and also food from
about the nature of his swallowing disorder but home. It would be especially helpful if the
strategies to increase the likelihood of his suc- brothers could also drink water at the games,
cessful eating. at least at the games they attend with him.
Although he has swallowing and cognitive Although it is possible for him to aspirate with
Body Functions impairments, Dr. Ds Activ- water, the negative effects would be less than
ities and Participation needs still must be those associated with aspiration of alcoholic
addressed. This area of functioning needs to beverages.
be addressed not only to improve quality of Even with these precautions, Dr. D would
life; it may also increase the likelihood that he need to be monitored closely for signs of
will be compliant with his dysphagia precau- aspiration pneumonia, malnutrition, and dehy-
tions. For eating out, his wife could seek out dration. Although allowances are made for him
restaurants that serve items he both likes and to be able to continue to participate in the social
can eat safely. Eating steaks may prove to be so aspects of eating, it must be remembered that
tiring that he does not consume enough of the being ill and requiring hospitalization are
rest of his food. Any steak that he eats should threats to Activities and Participation behaviors
be moist and preferably a thin cut. Given that themselves. If Dr. D can maintain his health
his oral-stage dysphagia will slow his rate of while following the above-described program,
eating of all solids, the physician should pre- then the ultimate goals of dysphagia therapy
scribe that he drink nutritionally dense liquids would have been realized.
332 SEMINARS IN SPEECH AND LANGUAGE/VOLUME 28, NUMBER 4 2007

BENEFITS OF USING THE ICF needed to demonstrate the efficacy of dyspha-


FRAMEWORK FOR DYSPHAGIA gia treatment, and clinical facilities need to
MANAGEMENT keep adequate outcome data to demonstrate
As mentioned, dysphagia is among the more that dysphagia invention produces these global
overtly medical disorders that speech-language outcomes.
pathologists treat. It would also appear to be a Although dysphagia is a medical condition,
disorder that the profession should have min- the incidence can still be underestimated in
imal difficulty in justifying evaluation and treat- health data systems because it is a symptom
ment. However, it is one thing to say that and not the disease etiology itself. Thus, a
dysphagia is a potentially serious disorder person who has had a stroke would have codes
that should be treated, and quite another to for the stroke and other conditions in his or her
say that speech-language pathologists are an chart, such as hypertension and diabetes. Dys-
essential participant in the management team. phagia may not be under this system. In addi-
The most important issue regarding our role tion, even if dysphagia is listed, it will not be in
is to demonstrate via documentation the effec- the level of detail contained in the ICF, which
tiveness and efficiency of intervention, includ- separates oral and pharyngeal dysphagia as
ing transdisciplinary assessment and outcomes. separate codes, and even classifies specific func-
There is a growing demand for health care tional limitations such as reduced ability to bite
professionals to provide relevant clinical out- into food. As a result, more fine-tuned outcome
comes for the clients. Ultimately, dysphagia data cannot currently be collected on the effi-
assessment and its subsequent intervention cacy and effectiveness of dysphagia therapy. For
must accomplish the four goals of (1) adequate example, does moderately impaired ability to
nutrition and hydration, (2) decreased risk of manipulate food in the mouth better predict
aspiration related illness, (3) decreased choking risk of poor maintenance of nutrition than
risk, and (4) decreased risk of psychosocial moderately reduced ability to produce saliva-
effects such as social isolation or depression in tion? What is the relationship between various
persons with dysphagia. The first three are cognitive and communication impairments and
superficially straightforward medical goals, but success in dysphagia intervention? Thus the
they can only be achieved if clients are able ICF can be used to guide interdisciplinary
perform the Activities and Participation global efficacy and effectiveness studies of dysphagia
behaviors of eating and drinking with success. management. In addition, examination of dys-
There may be a greater risk of noncompliance phagia in this complex manner may justify the
with dysphagia recommendations if the Activ- argument of why a trained speech-language
ities and Participation aspects of dysphagia are pathologists needs to work with persons with
not factored into the assessment and interven- dysphagia, as opposed to the creation of a
tion. For example, to maintain adequate nutri- dysphagia therapist, who would be trained
tion, one must be able to see the food, get the narrowly only to look at the physical aspects
food to ones mouth, orally manipulate the of the swallow.
food including mastication, send the food to
the esophagus, and keep food in the stomach.
Thus, the entire act of eating requires cooper- CONCLUSION
ation of several professionals: outcome meas- With a broader view toward dysphagia assess-
ures should consider how each profession ment by following the ICF framework, clients
contributes toward these global goals. For with dysphagia can be provided with interven-
there to be decreased risk of social isolation tion that best honors the health care ethical
or psychological reactions to having dysphagia, tenets of both autonomy and beneficence. Like
the intake of adequate nutrition has to occur language, eating and drinking behaviors are
within the social contexts of eating and drink- central to what it means to be human and a
ing behaviors. Decreased views of ones eating social animal. In addition, like communication,
and overall competence, by itself, can limit the swallowing and eating/drinking behaviors need
amount of food a client eats. Research is to be viewed as complex and not simply as a
USE OF THEICFIN DYSPHAGIA MANAGEMENT/THREATS 333

Body Functions impairment (e.g., the amount Functional Approach. New York: Thieme; 2000:
of delay of the onset of the pharyngeal swallow). 262275
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(NOMS): Adult Training Manual. Rockville Pike,
ized. Whether speech-language pathologists MD: ASHA; 2003
continue to work with persons with dysphagia 9. Wisconsin Speech-Language and Hearing Associ-
(and get reimbursed for the activity) depends on ation. FOAMS: Functional Outcome Measure of
whether these outcomes can be achieved. Swallowing Ability. Madison, WI: Wisconsin
Speech-Language-Hearing Association; 1996
10. Skeat J, Perry A. Outcome measurement in
dysphagia: not so hard to swallow. Dysphagia
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