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Abstract
Background: Brief family intervention may have a positive impact on family caregivers for patients with mental
disorders. We assessed the effectiveness of a group psycho-educational program on family caregivers for patients
with schizophrenia and mood disorders.
Methods: This randomized controlled trial was performed on 100 caregivers for patients with mental disorders
attending the Isfahan Behavioral Sciences Research Center (IBSRC), in Isfahan, Iran. One hundred family caregivers of
patients with schizophrenia (n = 50) and mood disorders (n = 50) were selected and assigned randomly to either a
psycho-educational group intervention or routine care in each diagnosis category. The caregivers were followed for
3 months. Caregiver burden was assessed using the Zarit Burden Interview
Results: The mean scores of the Zarit caregiver burden decreased significantly for the group that participated in
the psycho-educational program, while scores in the control group did not change significantly.
Conclusions: This group intervention program was effective to reduce the caregiver burden for both categories of
mental disorders in the Iranian population. This group intervention program may improve the quality of life of
patients and caregivers by improving the standards of care giving.
Trial registration: RCT registration number: IRCT138804272200N
Keywords: Mental disorders, Caregivers, Education, Iran
2012 Navidian et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative
Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and
reproduction in any medium, provided the original work is properly cited.
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caregiver burdens provides better professional mental Sciences Research Center, in Isfahan, Iran. This study
health outcomes for patients with mental disorders and was done on a sample of family caregivers of patients
their caregivers. with schizophrenia (n = 50) and mood disorders (n = 50).
Although numerous studies have been performed over In each group, 25 caregivers were assigned randomly to
the past three decades, more studies need to enhance either a psycho-educational group intervention or rou-
the development and evaluation of effective family inter- tine care.
vention strategies. Psychiatric services for patients with In our study, a caregiver is defined as a member of the
severe mental illnesses and their families also need to be family who has the most frequent contact with the pa-
improved [16,17]. Group education programs have been tient, financially supports the patient, has participated in
widely recommended as a valuable strategy to deliver the patient's treatment, is older than 15 years, and has
support and information to family caregivers [5]. good communicational skills. Family caregiver burden
Several other studies have also demonstrated the effi- was assessed using the Zarit Burden Interview (ZBI) at
cacy of family psycho-educational interventions in redu- baseline, at the end of the intervention period, and three
cing of relapses, re-hospitalization [18-20] and family months after the intervention. The results were com-
burden [21-23]. The psycho-educational intervention is pared between each group.
a set of systematic interventions based on supportive
and cognitive behavior therapy approaches with em-
Ethical considerations
phases on patients and family needs. The intervention is
Ethical approval was given by the study hospitals ethics
focused on increasing patient and family knowledge
committee and the hospitals research governance
about mental disorders, adjusting to mental illness, and
recommendations were followed. Written informed con-
communicating and facilitating problem solving skills
sent for participation in the study was obtained from
[24].
family caregivers. An information leaflet about the study
Iranian families are characterized by their intimate
was distributed to family caregivers of patients with
interpersonal relationships and many interactions among
mental disorders.
family members. Therefore, illness in one family mem-
This research was approved by the Ethics Committee
ber results in a substantial burden for the whole family.
of Isfahan Medical Sciences and was registered in the
In addition, Iranian families report a low level of formal
Iranian Registry of Clinical Trials (IRCT) with a refer-
support services as compared with their Western peers
ence number of IRCT138804272200N1.
[25]. Currently, there are no community mental health
centers which specifically follow up on patients in Iran.
The patients mainly are referred to psychiatrists, psychi- Instruments
atric centers, or primary healthcare centers that do not Data were collected using the ZBI questionnaire. The
clearly address the specific needs of each family. More- ZBI is a widely used 22-item assessment tool for
over, since mental illness is considered as a taboo in measuring the caregiver's perceived burden in provid-
Iranian cultural settings, and many families are not ing family care. The questionnaire was translated, and
aware of the needs and illness of their family members, modified according to Iranian cultural standards. Its
they experience a great amount of burden. Also, neither reliability was calculated using the test-retest method
the patients nor their families receive routine non (r =0.94).
pharmaceutical treatments such as family interventions. The psychometric properties of the ZBI include an ac-
Finally, there are not trained professionals to perform ceptable inter-item reliability and convergent validity,
such interventions in Iran. indicated by a Cronbach's alpha of 0.79 and a correlation
Considering the lack of routine long term psychoedu- coefficient of 0.71 between the caregiver's global evalu-
cational programs for patients and their families based ation and ZBI scores (Scott, Roberto, Hutton, & Slack,
on their specific needs, we investigated the efficacy of 1985). A test-retest reliability of 0.71 and internal
family psycho-education in reducing family caregiver consistency (Cronbach's alpha = 0.91) have also been
burden. reported (2628).
This questionnaire asks family caregivers questions
Methods about physical, psychological, economic, and communi-
Design cation problems that cause stress and strain for care-
In a randomized controlled trial (RCT), we evaluated the givers. The items are answered on a five-point scale
effectiveness of a weekly, 4-session psycho-educational ranging from 0 (never) to 4 (always). Scores were calcu-
group intervention for caregivers of patients with mental lated by summing up the total chosen statement which
disorders over a period of three months compared with ranges from 0 to 88, that higher scores implying greater
routine care (control group) in the Isfahan Behavioral perceived caregiver burden.
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score decreased considerably from 57.28 at baseline to have shown that women and girls were usually the main
32.12 after intervention and still remained low three caregivers at home with most women being under
months after intervention. The mean scores at time 0 60 years of age. The primary caregivers for the elderly
(baseline) and time 2 (three month post-intervention) are usually their daughters or wives [27,28].
indicated that the experimental group improved steadily Burden is one of the most commonly used measures
in the family caregivers burden of mood disorders to evaluate the effect of intervention. The results of our
(P < 0.001). study confirmed the hypothesis that psycho-educational
family intervention has a significant effect on reducing
Discussion the family caregiver burden when provided in a routine
Most caregivers in our study were women who also were manner [32] for caregivers of family members with
housewives. In Iranian households, girls or women are schizophrenia and mood disorders. A prospective study
responsible for taking care of children, patients, elderly, on the relationship between burden and coping in care-
and disabled people in the family as a part of their daily givers for patients with schizophrenia and mood disor-
household chores [13]. Studies in western countries also ders [33] showed that these caregivers face similar levels
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Table 2 Clinical and socio-demographic data of the Magliano and colleagues (2006) reported that 40% of
patients and their caregivers their patients and 45% of their relatives had a signifi-
Demographic and clinical features Percentage Percentage cant improvement in their social interactions during
of patients of caregivers the intervention period. Other RCTs that were per-
Sex Male 58 30 formed on Chinese [35] and Indian [36] family care-
Female 42 70 givers for patients with mental disorders confirmed that
Age < 20 years 13 2 scores significantly improved after structured psycho-
21-35 years 48 28 educational interventions compared with routine out-
36 years 39 70 patient care.
Marital status Married 65 92 We have demonstrated that intervention specifically
developed for caregivers for patients with schizophrenia
Single 35 8
and mood disorder in Iran positively can influence bur-
Educational No studies/illiterate 3 0
background den. Compared with previous studies in which interven-
Primary education 48 58
tion was designed and performed for only a specific
Higher education 49 42 group of family caregivers [14,34-36], the intervention
or more
used in our study was designed to be effective for care
Occupational Housekeeper 30 56
status givers for patients with schizophrenia and mood disor-
Employee 11 13
ders, who comprise considerable numbers of the hos-
Unemployed 30 6 pital inpatients in Iranian psychiatric wards.
Business & similar 24 19
jobs
Limitations of this study
Other 5 6 The current study has some limitations. Each family car-
Diagnosis Schizophrenia 50 - egiver's personal experience and perception of care
Mood disorders 50 - could have differed considerably in the experimental and
control groups because of personal, familial, and eco-
nomical differences. The sample size was relatively small,
of burden and use similar types of coping methods to so larger studies are needed to confirm these results.
deal with it. Another psycho-educational group interven- The improvements in the family caregivers burden were
tion for relatives of patients with bipolar disorders confirmed for a relatively short follow-up period of three
showed that the relative's insight about the disease months, compared to other studies with a follow-up
improved and their burden reduced after one year of duration of one year [37]. Therefore, further studies are
follow-up [34]. needed to confirm the long-term effects of this family
Table 3 Family caregiver burden at Time 0 (baseline), time 1 (post-intervention) and time 3(three months
post-intervention)
Variables Experimental group Control group P value
(n=25) (n=25)
Mean SD Mean SD
FCB Score for Schizophrenia
Time 0 57.28 10.60 57.40 11.59 > 0.05
Time 1 32.12 8.52 47.08 10.33 0.001*
Time 2 35.80 7.48 44.52 8.28 0.003*
Effect of time 14.10 0.01*
Effect of treatment 11.32 0.002*
Interaction of time and treatment 20.68 0.001*
FCB Score for Mood disorders
Time 0 52.48 9.02 49.04 11.07 > 0.05
Time 1 25.44 6.81 55.76 11.77 0.0001*
Time 2 29.44 7.29 52.88 10.50 0.0001*
Effect of time 48.07 0.001*
Effect of treatment 71.99 0.001*
Interaction of time and treatment 61.23 0.001*
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psycho-educational intervention. Also more studies are Received: 6 March 2012 Accepted: 13 July 2012
recommended to apply different psycho-educational Published: 1 August 2012
doi:10.1186/1756-0500-5-399
Cite this article as: Navidian et al.: The effectiveness of a group psycho-
educational program on family caregiver burden of patients with
mental disorders. BMC Research Notes 2012 5:399.