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DIRFloortime in

Assessing and Treating


Selective Mutism

Joleen R. Fernald, MS CCC-SLP, PhD(c)


www.JoleenFernald.com
JFernaldSLP@comcast.net

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What Is Selective Mutism?

Selective Mutism is the inability to


communicate in select social
settings despite being able to
verbally communicate in others

For example, a child who speaks


freely at home with his/her family,
but verbally is completely shut
down every day at school
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Diagnostic criteria for 313.23
Selective Mutism

oConsistent failure to speak in specific social


situations (in which there is an expectation for
speaking, e.g., at school) despite speaking in
other situations).
oThe disturbance interferes with educational or
occupational achievement or with social
communication.
o The duration of the disturbance is at least 1
month (not limited to the first month of school)

DSM-IV TR, 2000


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Diagnostic criteria for 313.23
Selective Mutism

oThe failure to speak is not due to a lack of


knowledge of, or comfort with, the spoken
language required in the social situation.

oThe disturbance is not better accounted for by a


Communication Disorder (e.g., Stuttering) and
does not occur exclusively during the course of a
Pervasive Development Disorder, Schizophrenia,
or other Psychotic Disorder.
DSM-IV TR, 2000
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Shyness vs. Selective Mutism
Shyness Selective Mutism
Slow warm up Warm-up time MUCH
period longer than expected
Can often respond Cannot respond at all
with a nod or small -may appear frozen
smile Dual personality
Same demeanor restrained at school
everywhere quiet and talkative at home
and reserved

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What causes
Selective Mutism?
inhibited temperaments
decreased threshold of
excitability in the amygdala
Genetic predisposition to anxiety
NO evidence that the cause of
Selective Mutism is related to
abuse, neglect or trauma

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Behavioral
Conceptualization of SM
Scary situation

Increased
likelihood of Avoidance
avoidance

Reinforcement Decreased
of behavior anxiety
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Prevalence

4-7 year-olds .03-.72% England (1975, 1979)

7-8 year-olds 2% Finland (1998)

7-15 year-olds .18% Sweden (1997)

5-8 year-olds .71% California (2002)

1.5-2.6 / 1 female / male Garcia et al


(2004)
Bergman et al., (2002)

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Most children with SM
have more than 1
diagnosis

Speech SM
and (Anxiety)
Language

Social
Sensory
Phobia or
Dysfunction
Anx NOS

Specific
Enuresis
phobias

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SM Connections
Given Selective Mutisms
relationship to anxiety, most
consider these co-morbid disorders
to be psychiatric in nature including
depression, panic disorders,
dissociative disorders, obsessive-
compulsive behavior, and
Aspergers disorder
Sharp et al., 2006

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SM and
Autism Spectrum Disorders
Kopp and Gillberg (1997) found
that 7.4 percent of children with
Selective Mutism also met criteria
for Aspergers disorder.
More recently, Stein et. al. (2010)
found a partially shared etiology
between Autism Spectrum
Disorders and Selective Mutism.

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DIR/Floortime

developmental and interdisciplinary


framework that helps clinicians,
parents and educators conduct a
comprehensive assessment and
develop an intervention program
tailored to the unique challenges
and strengths of children
(Greenspan & Wieder, 2006)
http://www.icdl.com/DIRFloortime.shtml
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D Developmental
I Individual Differences
R Relationship-based

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D (Developmental)

describes the developmental


milestones that every child must
master for healthy emotional and
intellectual growth

http://www.icdl.com/DIRFloortime.shtml

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Symbolic
Emotional
Thinking
(30-48 months)

Representation of
Affect and Ideas
(18-30 months)

Complex Communication
(9-18 months)

Two-way Circles of Communication


(4-9 months)

Engagement
(2-6 months)

Shared Attention and Regulation


(0-3 months)
I (Individual Differences)

describes the unique biologically-


based ways each child takes in,
regulates, responds to, and
comprehends sensations such as
sound, touch, and the planning and
sequencing of actions and ideas.

http://www.icdl.com/DIRFloortime.shtml

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SM and Individual
Differences
Receptive language processing
Expressive language
Sensory reactivity
Motor planning
Visual spatial processing
Bio-medical differences

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SM and
Speech-Language Disorders
Cleator and Hand (2001) estimate
that 80% of children with SM also
have speech and language
disorders
Steinhausen et al., (1996) suggest
that about 38% have pre-morbid
speech and language problems.

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These findings are consistent with
theories that children with SM
avoid speaking out of fear of being
teased for mispronouncing a word
(Krysanski, 2003).
McInnes et al. (2004) suggests
that children with Selective Mutism
have shorter, linguistically simpler
narratives with less detail than
children with social phobia.

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Children with SM may also have
normal receptive language and
cognitive skills, but they show
subtle expressive language deficits
not attributable to social anxiety
(McInnes et al., 2004).
Kristensen (2000) showed children
with SM may show developmental
delay as often as they show anxiety
disorders (68.5% for co-morbid
developmental delay compared to
74.1% for co-morbid anxiety).
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Percentage of 33 Children with SM who Exhibited
S/L Disorders
(Total > 100% because some children had more than
one area of disability)

Fluency
27%
Articulation
42%
Receptive and
Expressive
Language
Expressive
12%
Language
27%

Klein, E, (2010) Selective Mutism Research Institute, Jenkintown,PA


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Thanks to Sherri Cawn, MA CCC-SLP
Occupational Therapy
Focus on sensory processing
Sensory Modulation
ability to take in sensory stimuli from the
environment and then filter out ambient stimuli ->
just right arousal, alertness, and attention to the
salient stimuli
Sensory Regulation
strategies one uses to assist in maintaining
attention
Sensory Discrimination
involves the perception of information from a
singular sensory system as well as multi-sensory
perception
Praxis (Motor Planning)
Focus on responses to sensory stimulation
- Tactile, Vestibular, Proprioceptive
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Self Portrait
6/07

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Self Portrait
10/07

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R (Relationship-based)

describes the learning relationships


with caregivers, educators,
therapists, peers, and others who
tailor their affect based interactions
to the childs individual differences
and developmental capacities to
enable progress in mastering the
essential foundations
http://www.icdl.com/DIRFloortime.shtml
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"In order to develop normally, a child
requires progressively more
complex joint activity with one or
more adults who have an irrational
emotional relationship with the
child. Somebodys got to be crazy
about that kid. Thats number one.
First, last and always.
Urie Bronfenbrenner,
Developmental Psychologist

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EVALUATION AND
ASSESSMENT

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Parents may not be aware of the
childs mutism or difficulty away
from the childs comfort zone
Professionals may incorrectly view
behavior as simple shyness
Professionals may incorrectly
attribute mutism to family
dysfunction or oppositional
behavior in the child
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Team Approach
Parent Psychiatrist
Classroom Teacher Speech/Language
School Psychologist/ Pathologist
Guidance Counselor Occupational
School Therapist
Administration Mental Health
Pediatrician/Family Treating
Practitioner Professional
(Clinical
Psychologist,
LICSW, Play
Therapist)
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Often Misdiagnosed

difficulty initiating and


may be slow to respond even when it
comes to nonverbal communication.
may lead to falsely low test scores and
misinterpretation of the child's cognitive
abilities

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School-based SLP
As delineated in the ASHA Scope of
Practice in Speech-Language
Pathology and federal regulations,
SLPs work with students exhibiting the
full range of communication disorders,
including those involving language,
articulation (speech sound disorders),
fluency, voice/resonance, and
swallowing. Myriad etiologies may be
involved.
American Speech-Language-Hearing Association. (2010). Roles and
Responsibilities of Speech-Language Pathologists in Schools
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Statement]. Page 37
The speech and language evaluation
(for a child with suspected SM) seeks
information on:
expressive language ability (e.g., parents
may have to help lead a structured
storytelling or bring from home, a
videotape with child talking if he or she
does not do so with the SLP)
language comprehension (e.g.,
standardized tests and informal
observations)
verbal and non-verbal communication /
pragmatics
www.asha.org/public/speech/disorders/SelectiveMutism.htm
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SLP Assessments
CLINCIAL OBSERVATIONS
Pragmatic Profile of the CELF-4
(Criterion Referenced)
Selective Mutism Questionnaire (Norm
referenced), Bergman et al (2008)
Social Communication Anxiety
Inventory-2
Social Skills Rating System (Pearson)
(Norm referenced)
Social Skills Improvement System
(SSIS) Rating Scales (Norm referenced),
linked to target
Free goals
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The Intentionality Model

Bloom and Tinker, 2001


Name of Child:____________________________ Completed by:_________________________ Date:________

Selective Mutism Questionnaire* (SMQ)


(to be filled out by parents)

Please consider your childs behavior and activities of the past month and rate how frequently each
statement is true for your child.

AT SCHOOL
3
Always
2
Often
1
Seldom
0
Never
To determine Stages
1. When appropriate, my child talks to most peers at school. X
2. When appropriate, my child talks to selected peers
(his/her friends) at school.
3. When called on by his or her teacher, my child answers.
X
X
of Communication
4. When appropriate, my child asks his or her teacher
questions.
5. When appropriate, my child speaks to most teachers or
X

X
Comfort, check
staff at school.
6. When appropriate, my child speaks in groups or in front
of the class.
How much does not talking interfere with school for your
X visually to see where
child? (please circle) Not at all Slightly Moderately Extremely
the majority of the
WITH FAMILY

Always Often Seldom Never


Xs are located.
7. While at home, my child speaks comfortably with the
X
other family members who live there.
8. When appropriate, my child talks to family members
X
while in unfamiliar places.
9. When appropriate, my child talks to family members that
dont live with him/her (e.g. grandparent, cousin).
10. When appropriate, my child talks on the phone to his/her
X
X
School = Stage 0
parents and siblings.
11. When appropriate, my child speaks with family friends.
12. My child speaks to at least one babysitter.
How much does not talking interfere with family
X
X Home = Stage 2
Relationships? (please circle) Not at all Slightly Moderately Extremely
Other = Stage 0
IN SOCIAL SITUATIONS (OUTSIDE OF SCHOOL)

Always Often Seldom Never


13. When appropriate, my child speaks with other children
X
who s/he doesnt know.
14. When appropriate, my child speaks with family friends
X
who s/he doesnt know.
15. When appropriate, my child speaks with his or her doctor
X
and/or dentist.
16. When appropriate, my child speaks to store clerks and/or
X
waiters.
17. When appropriate, my child talks when in clubs, teams or
X
organized activities outside of school.
How much does not talking interfere in social situations
for your child? (please circle) Not at all Slightly Moderately Extremely
Josh on the swing

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"Children who are unable to
communicate effectively through
language or to use language as a
basis for further learning are
handicapped socially, educationally
and, as a consequence,
emotionally.

Byers-Brown & Edwards, 1989


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Family Intervention

Psycho-education (what is SM, etiology,


prognosis)
What might the parent be doing or not
doing that is inhibiting social
communication (enabling)?
Is there pressure placed upon the child to
speak?
Does the parent need assistance
managing the childs anxious behaviors?
Does the parent require support in
managing other problem behaviors (sleep
disturbances, toileting issues etc.)?

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A habit cannot be tossed
out of the window. It must
be coaxed down the stairs
a step at a time
Mark Twain

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Treatment: Key Points

SM is about a fear of the


expectation to speak
Dont force the child to speak
No negative reinforcement for being
mute
Focus on positive reinforcement

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Treatment: Key Points

Know your client young children may


benefit from a more play-based
approach, older children or adolescents
may benefit from a cognitive behavioral
approach
Know your setting do you have access
to toys, equipment for the child to
engage without expectation to speak
Focus on engaging non-verbally, then
bridging to verbal communication

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SLP Treatment Hierarchy
Get the child to engage
Get the child to communicate (gestural or
with AAC)
Get the child to make noise (clapping or
stomping)
Get the child to say sounds, syllables,
words, phrases, sentences
Get the child to converse with key worker
Expand narratives with key worker while
broadening other communication
partners
Vary social problem solving and social
pragmatic opportunities
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Goals and Objectives
Longterm goal examples:
Child will progress from Stage 0
through Stage 2, with multiple
conversation partners in a variety of
settings
Child will progress from Stage 1
through Stage 3, with multiple
conversation partners in a variety of
settings
Child will verbally convey wants and
needs to adults and peers
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Goals and Objectives
Short term objectives (Stage 0 - Stage 1):
Child will use gestures intentionally, in
order to communicate
Child will take turns with the key
worker

(Stage 1 Stage 2):


Child will make voiceless sounds
intentionally
Child will make animal sounds during
play

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Goals and Objectives
Short term objectives (Stage 2 - Stage 3):
Child will speak at normal volume when
alone, and allow the key worker to enter the
room while still speaking
Say single words at normal volume in the
key workers presence

Remember to consider responding &


initiating throughout the therapy process
Generalization to more people in more settings
should also be incorporated in goals

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Treatment for Stage 0 - 1
Improve engagement and social comfort
Use a small environment
1:1 ratio
Not a lot of stimuli or distractions
Consider rolling a ball back and forth
Taking turns with pushing a truck back
and forth
Taking turns playing a game (board
games)

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Treatment for Stage 0 - 1
Puzzles
Arts and crafts
Stamping and stencils
Eye Spy books
Playground equipment (sliding
down the slide or swinging on the
swing set)
Guessing games to practice
nodding or shaking the head (Hide
something in the room Is it in the
drawer?)
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Treatment for Stage 0 - 1
Matching musical instruments (take
turns making a sound behind a
screen child/ key worker holds up
the matching instrument)
Miming to make requests (animal puzzle
may be used child/ key worker
acts out the animal to request it)
Simon Says
(www.speakingofspeech.com/materials
_exchange.html)

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Treatment for Stage 1 - 2
Sounds that dont involve the body
(instruments)
Body sounds that dont involve
talking (clapping, snapping,
tapping)
Oral motor noises (blowing,
whistling, tongue clicking,
popping cheeks)
Voiceless sounds (/s/ for snake, /sh/
for sleeping baby, tongue click for
horseFreegallop)
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Treatment for Stage 1 - 2
Environmental noises (phone
ringing, vroom vroom for car)
Animal noises (moo, baa, woof)
Laughter
Clockwatcher
Handover/takeover
Interview game (yes, no, writing
responses, asking questions)

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Treatment for Stage 2 - 3
Hangman
Battleship
Interview (favorites)
Augmentative Communication
(AAC) Go Talk, talking photo
albums, recordable pens, iPad
Verbal intermediary (puppets,
peers)

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Tools to Transition from
Stage 2 - 3
Using childs feelings as a GUIDE, use person or
object who child can speak to:
Whisper close up (toilet paper roll)
Whisper at fist length away
whisper at half arm length away (paper towel
roll)
Whisper at full arm length away
Whisper across table (wrapping paper roll)
Look in direction of person
Dr. Elisa Shipon-Blum

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Tools to Transition from
Stage 2 - 3
Use Sounds
This is great for kids who are speech
phobic or who are already using sounds
in play like animal sounds or audible
laughing
Begin making tapping noises, finger
snapping noises.
2 snaps/taps=YES & 1 snap/tap=NO
Mouth Popping SOUND
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2 pops=Yes & 1 Pop=No
Tools to Transition from
Stage 2 - 3
When child/teen able to make Pop sound, let
them know they made a P sound (Ritual Sound
Approach)
Child CROSSES OFF letters of the alphabet
AB C D E FGH I JKL
MNOPQRSTUVW
XYZ
H sound = DEEP BREATH in/OUT

Dr. Elisa Shipon-Blum


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Tools to Transition from
Stage 2 - 3
Use P sound and SHAPE into other
sounds. i.e., B sound
Then,bbbbbbbbb=BYE
hhhh=Hi,
As work thru sounds of letters,
ssssssssssss=YES
nnnnnnnnn=No.
Put beginning and ending sounds
together.
Y+S = YES and N+o =No
Dr. Elisa Shipon-Blum
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Importance of Early
Intervention
Minimize negative impact on the child

Prevent situation from becoming worse

Prevent mutism from becoming engrained

Prevent repeated ineffective attempts to


elicit speech

Minimize emotional and physical strain


caused to parents and teachers

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When you smile at me,
I learn that I am lovable
When you understand me,
you help me to understand the
world

- Hatkoff, 2007

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References
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Bergman. "The Development and Psychometric
Properties of the Selective Mutism Questionnaire." J
Clin Child Adolesc Psychol. 37.2 (2008): 456-64.
Bergman, R. L, Piacentini, J., & McCracken, J. T.
Prevalence and description of selective mutism in a
school-sased sample. Journal of the American
Academy of Child & Adolescent Psychiatry - August
2002. Vol. 41, Issue 8, Pages 938-946.
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Cleator, H., and L. Hand. "SM: How a Successful Speech
and Language Assessment Really Is Possible.
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