Sie sind auf Seite 1von 320

D

Dailiness Semantically, the term daily diary methodol-


ogy implies a once-per-day assessment
Everyday Life Experience approach. Often, however, the term is used in a
wider sense to include methods assessing
individuals at multiple times per day (also called
experience sampling; Hektner, Schmidt, &
Daily Diary Csikszentmihalyi, 2007). Moreover, the term
daily diary methodology implies the use
Experience Sampling of some kind of diary (paper and pencil or
electronic) and is thereby constrained to
self-report data. In recent years, however,
the scope of intensive repeated measurements in
Daily Diary Methodology naturalistic settings has broadened to include also
nonself-reported aspects of everyday experience,
Tanja Lischetzke such as psychophysiological status, physical
Department of Psychology, University of activity, and auditory environment. The more
Koblenz-Landau, Landau, Germany general terms ecological momentary assess-
ment and ambulatory assessment capture
both types of data, self-report and nonself-report
Synonyms (Mehl & Conner, 2012).
In this entry, I will use the term daily diary
Ambulatory addessment with daily diaries; methodology to refer to repeatedly measured
Ecological momentary assessment; Experience self-reported data, including both once-per-day
sampling assessments and designs with more frequent
assessments. For a recent overview of methods
assessing nonself-reported data in daily life, the
Definition reader is referred to Mehl and Conner (2012).

Daily diary methodology is a set of assessment


methods that allow researchers to study individ- Description
uals experiences, behavior, and circumstances in
natural settings, in or close to real time, and on Rationales for Daily Diary Methodology
repeated measurement occasions over a defined Since the middle to late 1990s, there has been
period (ranging from a few days to months). a drastic increase in research studies using daily

A.C. Michalos (ed.), Encyclopedia of Quality of Life and Well-Being Research,


DOI 10.1007/978-94-007-0753-5, # Springer Science+Business Media Dordrecht 2014
D 1414 Daily Diary Methodology

diary methodology (Gunthert & Wenze, 2012). Similarly, when individuals are asked how they
Recent technological developments (e.g., personal usually feel during a particular activity or how
digital assistants, smartphones, Internet-based they feel in general, they lack experiential cues,
questionnaires) have made it easier to collect and hence, these global reports are based on
intensive longitudinal data. Furthermore, advances semantic knowledge. Retrospective and global
in statistical models and more widespread exper- reports that are based on semantic knowledge
tise to analyze these data have contributed to the are prone to biases such as gender stereotypes,
increased popularity of daily diary methods. cultural stereotypes, or personality-related beliefs
An important conceptual rationale for the use (see Robinson & Clore, 2002, for a review). By
of daily diary methodology is that it allows assessing experiences and behavior in or close to
researchers to study individuals experiences real time, daily diary methodology minimizes
and behavior within their natural contexts, these cognitive biases. Researchers applying
thereby enhancing the ecological validity of close-to-real-time assessment that relies on epi-
the conclusions that are drawn from the results. sodic memory have to keep in mind, however,
Ecological validity refers to the degree to which that other systematic biases can occur. When
the study conditions are representative for the real- individuals are asked to summarize their experi-
world conditions under which the phenomenon or ence over a specific time interval (e.g., overall,
process of interest occurs, so that study results can how bad was the colonoscopy you just had?), the
be generalized to other settings. It is important to summarized rating may be unduly influenced by
note, however, that by using daily diary methods, the most recent and the most intense moments of
ecological validity is not guaranteed. Studying the experience (Kahneman, 1999). Thus, daily
very unusual settings (e.g., individuals on a high diary methods are not inherently better than
mountain hike) may decrease generalizability, and other self-report methods (global, retrospective).
intrusive assessment methods (e.g., momentary Instead, each method captures a specific aspect
assessments at 10 min intervals) may alter the (experiencing self vs. remembering self;
natural situation (Reis, 2012). Conner & Lehman, 2012). Retrospective reports
Daily diary methods are the method of choice of affective experience, for example, might be
when the research question aims at capturing a better predictor of future behavioral choices
representations of momentary experience (using than aggregated momentary reports of actual
real-time assessment) or episodic memory of affective experience (Wirtz, Kruger, Scollon, &
experiences (using close-to-real-time assess- Diener, 2003).
ment). When the research question aims at cap- By using daily diary methodology, researchers
turing generalized beliefs (semantic memory), can adequately address research questions on
global or retrospective self-reports should be within-persons processes that is, processes
selected (Conner, Barrett, Bliss-Moreau, Lebo, that unfold within individuals over time. These
& Kaschub, 2003). Research has demonstrated processes include:
that global and retrospective reports on affective Intraindividual variability around a mean level
experiences and behaviors only poorly converge (e.g., variability in momentary mood)
with aggregated momentary reports on the same Intraindividual change over time (e.g.,
construct (Schwarz, 2012). Shortly after an treatment progress)
affective experience or a behavior, individuals Intraindividual concurrent covariation of vari-
can access episodic memories to reconstruct ables (e.g., the relation between momentary
what they felt or did. When the time interval activities and flow experience)
between the momentary experience and the Intraindividual lagged covariation of variables
moment of recall becomes larger, episodic (e.g., momentary affective states predicting
memories are no longer accessible, and individ- subsequent binge-eating episodes)
uals shift to semantic memory that is, general- Collecting intensive longitudinal data in
ized beliefs (Robinson & Clore, 2002). a sample of individuals allows researchers to
Daily Diary Methodology 1415 D
test whether the majority of (or all) individuals In event-based sampling, participants
can be characterized by the same within-persons themselves initiate their reports when a
process or whether individuals differ in the predefined event, experience, or behavior
within-persons process. Cross-sectional studies occurs (e.g., interpersonal conflict, nicotine
are not able to capture and analyze within- cravings, physical activity).
persons processes adequately because associa- In time-based sampling, participants provide
tions between variables on the between-persons self-reports either at set times (fixed time-based
level might be completely different from associ- sampling/interval-contingent sampling) or
ations between variables on the within-persons when prompted by a signal that is delivered D
level. As an instructive example, consider at unpredictable times (variable time-based
the relationship between typing speed and the sampling/signal-contingent sampling).
percentage of typos made (Hamaker, 2012): If the phenomenon of interest occurs relatively
A cross-sectional study might find that individ- rarely, event-based sampling should be selected
uals who type faster make fewer mistakes to make sure that the experience or the behavior is
which corresponds to a negative relationship on captured. For momentary experiences that are
the interindividual (between-persons) level. An ongoing (e.g., mood, self-esteem), time sampling
intensive longitudinal study, however, might well is the appropriate sampling method. Variable
find that at moments when individuals type faster, time-based sampling (e.g., at random occasions
they make more mistakes which corresponds to during the day) allows generalizing across the
a positive relationship on the intraindividual population of occasions during wake time, and
(within-persons) level. This illustrates the it avoids expectancy effects that may occur with
necessity to assess individuals repeatedly when fixed schedules where participants know the
we want to make inferences about within-persons timing of the reports. Fixed time sampling (e.g.,
processes. three measurement occasions per day, at 12 P.M.,
When the research question refers to 16 P.M., and 20 P.M.) can be used for both
microlevel within-person processes that is, momentary reports (capturing momentary
processes that unfold within relatively short experience and behavior) and interval reports
time periods (within weeks or within days) (capturing experiences and behaviors since the
daily diary methods are the appropriate method. previous report). Because the latter format relies
Macrolevel within-person processes that is, on episodic memory, it is most suitable for
processes that unfold over longer time spans constructs that are less susceptible to memory
(e.g., life events and their long-term impact, biases (e.g., checklists of concrete events or
personality development across adulthood) are behaviors). Fixed once-per-day assessments
better captured by traditional longitudinal typically involve retrospective ratings of behav-
methods with assessments taken across months iors and situations that happened during the day.
or years (Conner & Lehman, 2012). Such a daily format is optimal for studying
In conclusion, daily diary studies are ideally phenomena that are moderately frequent that
suited to complement other research methods is, behaviors that do not occur many times per day
(e.g., laboratory experiments, large-sample ques- but several times over the course of the
tionnaire studies) in multimethod research pro- entire assessment period (e.g., family conflict,
grams (Scollon, Kim-Prieto, & Diener, 2003). headaches). Detailed comparisons of sampling
schemes can be found in Conner et al. (2003),
Design Issues Conner and Lehman (2012), and Hektner
Sampling Strategy et al. (2007). Special issues relating to fixed
The specific sampling strategy that is, the daily assessment schemes are discussed by
frequency and timing of measurement occasions Gunthert and Wenze (2012), special issues relat-
is mainly determined by characteristics of the ing to event-based sampling by Moskowitz and
variables of interest: Sadikaj (2012).
D 1416 Daily Diary Methodology

The duration of the sampling period varies from extra effort to recruit participants, keep them
study to study and typically ranges from a few days motivated to complete the study, and ensure that
to weeks. Studies using event-based sampling of they comply with the study protocol. Complex
infrequent events (e.g., risky sex) sometimes last incentive systems have been developed, including
several months. In general, the time it takes to money, research credits (for university students),
complete a single report, the frequency of reports lotteries, and smaller gifts that are tailored to the
per day, and the duration of the study have to be study population and are distributed during
balanced to avoid that the study becomes overly the course of the data collection period (e.g.,
burdensome to participants. a movie voucher for adolescents or a bouquet of
flowers for older adults). Moreover, a good
Technology Platform working relationship between research assistant
The earliest daily diary studies (e.g., and participant can enhance compliance (Conner
Csikszentmihalyi & Larson, 1987) used paper- et al., 2003; Hektner et al., 2007). This might be
and-pencil questionnaires, combined with devices achieved by treating participants as experts of
(e.g., pagers, watches) that prompted participants the information the researcher is interested
to complete the questionnaires at randomly in (their subjective experience) or by contacting
selected times. Paper-and-pencil diaries continue participants in an empathic way during the
to be in use today, but they are more and more sampling period.
replaced by computerized methods, which allow For other practical issues related to the
time and date stamping of the entries and are implementation of a daily diary study such as
generally more flexible (e.g., branching of items, pilot testing, documentation material, and data
randomized presentation of items, measuring preparation, the reader is referred to Conner
response latencies). For once-per-day assess- et al. (2003) and Hektner et al. (2007).
ments, Internet-based questionnaires and interac-
tive voice response (IVR) methods (through Data Analytic Strategies
mobile phones) are typically used (Gunthert & Daily diary methods yield nested data: Measure-
Wenze, 2012). Studies using more frequent ment occasions (Level 1) are nested in persons
time-based sampling typically rely on handheld (Level 2). This nested structure has to be taken
devices such as personal digital assistants, into account when analyzing the data. Multilevel
smartphones, or tablet computers that are installed modeling is probably the method that is most
with specialized software and handed out to often used to analyze daily diary data. Multilevel
participants for the duration of the study. In some modeling allows researchers to analyze within-
cases (e.g., when the questionnaire includes only persons processes and individual differences in
very few and short items), a lower-cost alternative within-persons processes. Table 1 provides
might be to use texting that is, SMS an overview of three types of within-persons
(short messaging service) texts that are sent to processes, typical research questions that can be
participants mobile phones who then reply using addressed, and the specific multilevel model that
their numeric keypad (Conner & Lehman, 2012). can be applied to answer these questions. To
The decision about which platform to use should estimate pure within-persons relationships, it
be based on the available budget, specific design is necessary to group mean center continuous
needs (e.g., sampling scheme, necessary ancillary Level-1 (momentary) predictor variables that
information such as response latencies), and char- is, to center on each persons mean (Enders &
acteristics of the targeted population (e.g., comfort Tofighi, 2007). To make the coefficients
with technology, Internet access). more easily interpretable, continuous Level-2
(person-level) predictor variables should be
Implementation grand-mean centered that is, centered on the
Because daily diary studies are very labor inten- mean across all individuals. Categorical Level-1
sive for participants, researchers have to spend and Level-2 predictor variables have to be coded
Daily Diary Methodology, Table 1 Three types of within-persons processes, research questions, and appropriate multilevel model
Parameter that is
Within-persons Fixed part of multilevel Random part of tested for
process Research question Example model multilevel model significance
1. Intraindividual 1.1 What is the average What is the average intraindividual relation X as Level-1 predictor Residuals of Fixed effect of X
concurrent intraindividual relation between between momentary extraverted behavior intercepts on Y
covariation of momentary X and concurrent Y? and concurrent pleasant mood?
variables 1.2 Do individuals differ in the Do individuals differ in the intraindividual X as Level-1 predictor Residuals of Variance of
Daily Diary Methodology

intraindividual relation between relation between momentary extraverted intercepts, residuals residuals of slopes
momentary X and concurrent Y? behavior and concurrent pleasant mood? of slopes (random effect)
1.3 Does person variable Z predict Do dispositionally introverted individuals X as Level-1 predictor Residuals of Fixed effect of Z on
individual differences in the show a stronger intraindividual relation and Z as Level-2 intercepts, residuals the varying slopes of
intraindividual relation between between momentary extraverted behavior predictor of varying of slopes (if X (cross-level
momentary X and concurrent Y? and concurrent pleasant mood? intercepts and slopes necessary) interaction)
2. Intraindividual 2.1 What is the average What is the average intraindividual relation Lagged X as Level-1 Residuals of Fixed effect of
lagged intraindividual relation between between lagged physical activity and predictor intercepts lagged X on Y
covariation of lagged momentary X and subsequent momentary energetic mood?
variables subsequent Y?
2.2 Do individuals differ in the Do individuals differ in the intraindividual Lagged X as Level-1 Residuals of Variance of
intraindividual relation between relation between lagged physical activity predictor intercepts, residuals residuals of slopes
lagged momentary X and and subsequent momentary energetic of slopes (random effect)
subsequent Y? mood?
2.3 Does person variable Z predict Do older adults show a stronger Lagged X as Level-1 Residuals of Fixed effect of Z on
individual differences in the intraindividual relation between lagged predictor and Z as Level- intercepts, residuals the varying slopes of
intraindividual relation between physical activity and subsequent 2 predictor of varying of slopes (if lagged X (cross-
lagged momentary X and momentary energetic mood than younger intercepts and slopes necessary) level interaction)
subsequent Y? adults?
3. Intraindividual 3.1 What is the average (linear) What is the average (linear) intraindividual Time as Level-1 Residuals of Fixed effect of time
change over time intraindividual change in Y over change in perceived stress after starting predictor intercepts on Y
time? a new job?
3.2 Do individuals differ in the Do individuals differ in the (linear) Time as Level-1 Residuals of Variance of
(linear) intraindividual change in Y intraindividual change in perceived stress predictor intercepts, residuals residuals of slopes
over time? after starting a new job? of slopes (random effect)
3.3 Does person variable Z predict Do individuals high in self-esteem show Time as Level-1 Residuals of Fixed effect of Z on
1417

individual differences in the (linear) a stronger decline in perceived stress than predictor and Z as Level- intercepts, residuals the varying slopes of
intraindividual change in Y over individuals low in self-esteem? 2 predictor of varying of slopes (if time (cross-level
time? intercepts and slopes necessary) interaction)
D

D
D 1418 Daily Diary Methodology

using a coding scheme such as dummy coding, Crayen, C., Eid, M., Lischetzke, T., Courvoisier, D. S., &
effect coding, or contrast coding. If intraindividual Vermunt, J. K. (2012). Exploring dynamics in mood
regulationMixture latent Markov modeling of
change over time is analyzed using multilevel ambulatory assessment data. Psychosomatic Medicine,
models, time becomes a Level-1 predictor vari- 74, 366376.
able. In these multilevel growth curve models, it is Csikszentmihalyi, M., & Larson, R. (1987). Validity and
crucial to code time in such a way that the value of reliability of the experience-sampling method. The
Journal of Nervous and Mental Disease, 175,
zero is a meaningful value (e.g., the starting point, 526536.
the midpoint, or the end point of the time series). Ebner-Priemer, U. W., & Trull, T. J. (2012). Investigating
For general introductions to multilevel modeling, temporal instability in psychological variables:
the reader is referred to Hox (2010) and Snijders Understanding the real world as time dependent.
In M. R. Mehl & T. S. Conner (Eds.), Handbook of
and Bosker (2012). Bolger, Davis, and Rafaeli research methods for studying daily life (pp. 423439).
(2003) and Nezlek (e.g., 2012) discuss applica- New York: Guilford.
tions of multilevel models to daily diary data. For Eid, M., Courvoisier, D., & Lischetzke, T. (2012). Struc-
models analyzing within-persons change over tural equation modeling of ambulatory assessment
data. In M. R. Mehl & T. S. Conner (Eds.), Handbook
time (growth curve models), see Singer and of research methods for studying daily life
Willett (2003). (pp. 384406). New York: Guilford.
Although multilevel modeling is a very Enders, C. K., & Tofighi, D. (2007). Centering predictor
versatile tool to analyze daily diary data, specific variables in cross-sectional multilevel models: A new
look at an old issue. Psychological Methods, 12,
types of research questions require other methods. 121138.
For example, to model individual differences in Gunthert, K. C., & Wenze, S. J. (2012). Daily diary
intraindividual variability, alternative statistical methods. In M. R. Mehl & T. S. Conner (Eds.), Hand-
approaches are necessary. Specific variability book of research methods for studying daily life
(pp. 144159). New York: Guilford.
coefficients can be calculated from the intensive Hamaker, E. L. (2012). Why researchers should think
longitudinal data (e.g., mean squared successive within-person: A paradigmatic rationale. In M. R.
difference; Ebner-Priemer, & Trull, 2012) or can Mehl & T. S. Conner (Eds.), Handbook of research
be derived from structural equation models for methods for studying daily life (pp. 4361). New York:
Guilford.
daily diary data (Eid, Courvoisier, & Lischetzke, Hektner, J. M., Schmidt, J. A., & Csikszentmihalyi, M.
2012). When fluctuation patterns of categorical (2007). Experience sampling method: Measuring
(discrete) states over time and individual the quality of everyday life. Thousand Oaks, CA: Sage.
differences in these patterns are of interest to Hox, J. J. (2010). Multilevel analysis: Techniques and
applications (2nd ed.). New York: Routledge.
researchers, mixture (latent) Markov models for Kahneman, D. (1999). Objective happiness. In D. Kahne-
daily diary data (Crayen, Eid, Lischetzke, man, E. Diener, & N. Schwarz (Eds.), Well-being:
Courvoisier, & Vermunt, 2012) are an appropriate The foundations of hedonic psychology (pp. 325).
approach. New York: Russell Sage.
Mehl, M. R., & Conner, T. S. (Eds.). (2012). Handbook of
research methods for studying daily life. New York:
Guilford.
Moskowitz, D. S., & Sadikaj, G. (2012). Event-contingent
References recording. In M. R. Mehl & T. S. Conner (Eds.),
Handbook of research methods for studying daily life
Bolger, N., Davis, A., & Rafaeli, E. (2003). Diary (pp. 160175). New York: Guilford.
methods: Capturing life as it is lived. Annual Review Nezlek, J. B. (2012). Multilevel modeling analyses
of Psychology, 54, 579616. of diary-style data. In M. R. Mehl & T. S.
Conner, T., Barrett, L. F., Bliss-Moreau, E., Lebo, K., & Conner (Eds.), Handbook of research methods
Kaschub, C. (2003). A practical guide to experience- for studying daily life (pp. 357383). New York:
sampling procedures. Journal of Happiness Studies, 4, Guilford.
5378. Reis, H. T. (2012). Why researchers should think
Conner, T. S., & Lehman, B. J. (2012). Getting started: real-world: A conceptual rationale. In M. R. Mehl
Launching a study in daily life. In M. R. Mehl & T. S. & T. S. Conner (Eds.), Handbook of research
Conner (Eds.), Handbook of research methods for methods for studying daily life (pp. 321). New York:
studying daily life (pp. 89107). New York: Guilford. Guilford.
Dance and the Quality of Life 1419 D
Robinson, M. D., & Clore, G. L. (2002). Belief and feel- Definition
ing: Evidence for an accessibility model of emotional
self-report. Psychological Bulletin, 128, 934960.
Schwarz, N. (2012). Why researchers should think Dance is nonverbal behavior that conveys
real-time: A cognitive rationale. In M. R. Mehl & a heightened, aesthetic sense of body, rhythm,
T. S. Conner (Eds.), Handbook of research methods and space. Human dance may hold individual,
for studying daily life (pp. 2242). New York: Guilford. social, cultural, and/or spiritual meanings for
Scollon, C. N., Kim-Prieto, C., & Diener, E. (2003).
Experience sampling: Promises and pitfalls, strengths both participants and observers. In its longevity
and weaknesses. Journal of Happiness Studies, 4, 534. and multiplicity of forms and functions, dance
Singer, J. D., & Willett, J. B. (2003). Applied longitudinal eludes definition. D
data analysis. Modeling change and event occurrence.
New York: Oxford University Press.
Snijders, T., & Bosker, R. (2012). Multilevel analysis: An
introduction to basic and advanced multilevel model-
ing (2nd ed.). London: Sage. Description
Wirtz, D., Kruger, J., Scollon, C. N., & Diener, E. (2003).
What to do on spring break? The role of predicted, on-
line, and remembered experience in future choice. Introduction
Psychological Science, 14, 520524. Grounded in rhythms of body, time, and space,
nonverbal, and inherently aesthetic, dance
has inspired a wide-ranging discourse around
Daily Hassles origins, functions, and meanings. The literature
of dance, as produced by artists, philosophers,
Negative Affect and Daily Stressors in Older anthropologists, historians, educators, and cogni-
Adults tive neuroscientists, among others, does not
cohere around an accepted definition, although
scholars have offered cross-cultural perspectives
(Hanna, 2006; Kealiinohomoku, 1970, 1980;
Daily Hassles Scale Williams, 2004) and existential descriptions
(Bond & Stinson, 2000/2001; Fraleigh, 2004;
Hassles and Uplifts Scale Sheets-Johnstone, 2009).
In the 1970s, Kealiinohomoku uncovered
an amazing divergence of opinions in the
literature, a condition that holds in the present.
Dance She recounts:
We are able to read that the origin of dance was in
Arts and Quality of Life play and. . .not in play, that it was for magical and
religious purposes, and. . .not for those things; that
it was for courtship and. . .not for courtship; that it
was the first form of communication and that com-
munication did not enter into dance until it became
Dance and the Quality of Life an art. In addition we can read that it was serious
and purposeful and at the same time. . .an out-
Karen E. Bond growth of exuberance. . .totally spontaneous, and
originated in the spirit of fun. Moreover, we can
Temple University, Philadelphia, PA, USA read that it was only a group activity for tribal
solidarity and that it was strictly for the
pleasure and self-expression of the one dancing.
Synonyms (1970, p. 33)
This entry offers a sketch of the complex
Aesthetic embodiment; Creative movement; discourse surrounding the elusive phenomenon
Dance/movement therapy (DMT); Laban Move- of dance, anchored by an overarching interest in
ment Analysis (LMA); Rhythmic movement dance and quality of life.
D 1420 Dance and the Quality of Life

What Is Dance? European Middle Ages (Williams, 2004) and


The beginnings of dance, an ancient mode the madness of Giselle (McCarren, 1998), the
of human behavior, are unclear; since Darwin tragic heroine of one of the best-known romantic
theorists have claimed that dance may be under- ballets of the nineteenth century. McCarren
stood as part of human biological evolution. (1998) suggests that dance has been connected
From this perspective, dance has survival value to the history of madness throughout the
and is intrinsic to quality of life. In The Art of Christian era, hovering in the background of
Dancing, British psychologist and Darwinian interpretations that idealized dance as perfect,
Havelock Ellis (1923, p. 43) wrote that dance is ordered expression manifested through individ-
the supreme manifestation of physical and ual and social control of the primarily female
spiritual life, including sexuality, which is body.
far older than Homo sapiens as illustrated in Such conceptions of dance may be implicated
courtship dances of insects and birds. Quiroga in its persistent exclusion from the Western
Murcia and Kreutz (2012, p. 125) acknowledge system of the fine arts, which can be traced back
sexual selection as a possible survival value of to Plato and Aristotle and was canonized
human dance, evidenced in mate quality with Hegels nineteenth-century writings on
features such as health, virility, sensitivity, aesthetics (Copeland & Cohen, 1983). Christian-
aerobic fitness, coordination and creativity. itys valorization of spirit over body, Cartesian
Ellis (1923) proposed that dance unites erotic, mind-body dualism, and the categorization of
religious, and aesthetic functions, and dance dance as a feminine (and therefore trivial) art
writers have continued to comment on the have been noted as deterrents to the progress of
integrative nature of dance. Phenomenologist dance as a field of professional practice and
Sondra Fraleigh (2004, p. 2) suggests that scholarship (Copeland & Cohen, 1983; Dils &
to value dance at all is to value the human, the Albright, 2000). Nevertheless, considering the
beautiful, and the playful among the erotic pulse longevity of dance and its multipurpose presence
of life. Anthropologist Ellen Dissanayake across human societies, it is difficult to under-
(2000) highlights a broad range of integrative stand why dance has been overlooked as an area
qualities, proposing that humans were designed of serious research and educational curriculum,
as a species with a predisposition for dancing relative to other arts.
and other aesthetic behaviors that satisfy needs Building on Elliss brief but theoretically
for identity, belonging, meaning, and personal sound evolutionary account of dance, Maxine
competence. She weaves a connection between Sheets-Johnstone (2009) identifies evolutionary
art and love that arises in a dance-like duet continuities that locate the roots of dance in
composed of emotionally meaningful rhythms early rhythmic play of prehominids. Increases in
and modes that are jointly created and sustained spontaneity and ability to play have been noted as
by mothers and their infants in ritualized, evolved quality of life outcomes of dance therapy research
interactions (Dissanayake, 2000, p. xi). (Quiroga Murcia & Kreutz, 2012); Sheets-
As a nonverbal mode of expression with an Johnstone (2009, p. 322) names possible kinetic
inherent connection to sexuality and other markers for dance such as running, falling,
psychobiological rhythms (Hanna, 2006), jumping, and ballistic movement. Creating
dance has suffered negative valuations that may a bridge to cultural evolution, she suggests that
continue to undermine it as a vehicle of meaning through tactile-kinesthetic invariants that any
that deserves to be taken seriously by philoso- member of a species or group could potentially
phers and by society at large. Dance has been perform, humans create dances of distinct
theorized as a response to the overaccumulation cultures (p. 324). In addition to theorizing the
of sex hormones, as a cathartic device for release beginning of dance as culture, phenomenologist
of surplus energy, and as pathological expression, Sheets-Johnstone (p. 80) describes the
as exemplified in the dancing mania of the paradigmatic dance experience:
Dance and the Quality of Life 1421 D
. . .a solo dance in which no story is being told and Whether or not dance can be traced to prehom-
in which movement stands for nothing but itself. inid ancestors, its emergence as a specialized
. . . I am moving for the pure joy of
movement. . .there is, in effect, a union of myself theatrical art is a recent development in human
and the dance . . . a density of now. cultural evolution. Kealiinohomoku (1980, p. 42)
noted, It seems evident that only some dance is
Anthropologists and cultural theorists have art, and only some dancers are artists, and if art is
countered evolutionary and phenomenological part of the dance equation then probably three
theories of dance, asserting that dance is solely quarters of the worlds dances are going to be
an advent of human culture. Drid Williams eliminated from serious study. Contemporary D
(2004, p. 52) reflects, For some reason as yet therapists and health workers differentiate
incomprehensible to me, authors of theories of between dance as an art form and dance in
the dance seem compelled to look upon dancing the service of promoting health and change
as a link between humanity and beasts. For (Chaiklin & Wengrower, 2009).
Williams, any attempt to establish an original In the competitive world of professional
locus for dance or to identify stages of human training and performance, dance can be an
social evolution beginning with primitive unhealthy practice. Fraleigh (2004, p. 19) notes,
dance amounts to unsupported theorizing. In Dance practices can offer a chance for engage-
contrast to Sheets-Johnstones (2009) notion of ment and self-knowledge or can punish and deny
a paradigmatic, acultural solo, anthropologist the body. Gere (2004, p. 9) observes that much
Judith Lynne Hanna (2006, p. 34) distinguishes contemporary criticism by leading critics seems
dance from the spontaneous kinetic expression to focus on defining what is acceptably dance and
of children and other animals, noting, dance what is not, an arguably stressful atmosphere for
always reflects a cultural heritage. artists seeking the promise of dances profound
The complex intellectual climate of postmod- autonomy and originality (Louppe, 2010, p. 9).
ernism has strongly influenced dance scholarship; Further, he perceives an essential commonality
notably the critical discourses of post-structuralism of activism and dance and juxtaposes this with
and postcolonialism have destabilized the high art- the abject, or outsider, masculinity embedded in
low art distinction of Western aesthetics, with its the presentation of contemporary dance
socioeconomic power hierarchies of race, gender, (Gere, 2004, pp. 78). Quiroga Murcia and
ethnicity, age, ability, and class. Theresa Buckland Kreutz (2012) note that most research into the
(2006, p. 14), for example, critiques evolutionist health benefits of dance has been carried out
perspectives that position popular or vernacular with amateurs in recreational and clinical
dance at a lower level of cultural value than ballet settings, while professional dancers have been
and modern dance. Some scholars note, however, studied primarily in relation to health risks
that theorizing dance in terms of social, historical, such as repetitive strain injury, body image
and cultural contingencies has its own set of prob- problems, and emotional disturbance, illustrated
lems. Fraleigh (2004, p. 11) notes, many dance stereotypically in the 2010 award-winning
scholars are now choosing to stage their research in feature film, Black Swan.
a sociopolitical sphere, conceiving the body as
a cultural construction a mask, in effect, cau- Dance for Health, Healing, and Quality of Life
tioning, behind the mask of culture lies our intrin- One dimension missing from Kealiinohomokus
sic connection to nature that we forget at our peril. (1970) earlier-cited series of originative
Asserting dances profound originality and auton- (or not) functions of dance all related to quality
omy, French dance analyst Laurence Louppe of life is that of health and healing. The
(2010, p. 9) urges that dance not be hijacked by contemporary field of dance/movement therapy
dominant discourses of history and culture that (DMT) posits that humans have always danced
consider dance as a simple reflection of broader for these purposes. Quiroga Murcia and Kreutz
issues of the period. (2012) state, One of the most fundamental
D 1422 Dance and the Quality of Life

functions of dancing along human history is behavior in terms of body, effort (an energy
its potential to influence peoples health. category), space, and relationship, has been used
Chaiklin notes, Dance is naturally therapeutic widely in DMT (Chaiklin & Wengrower, 2009;
(Chaiklin & Wengrower, 2009, p. 5); Goodill Goodill, 2005). LMA has been critiqued in recent
(2005, p. 25) informs that quality of life is an years for lack of cross-cultural validation in a
overarching goal of medical DMT. Systematic field that originated with early modern dance
inquiry into the relationship between dance, developments in Central Europe, England,
health, and quality of life is a recent development, and the United States (Chang, 2009); Hanna
and dance remains underrepresented in the (2006, p. 49) critiques ethnocentricity in general,
literature, relative to other arts. noting that dancing in a therapy session in which
The notion of dance as an integrative phenom- the therapist disregards cultural values creates
enon, introduced above, is a premise of dance/ stress.
movement therapy (Chaiklin & Wengrower, Due to its multisensory, integrative nature, it is
2009). The American Dance Therapy Association difficult to discuss the impact of dance on quality
(ADTA, 2009) defines dance/movement therapy of life in atomistic terms. Regarding the inherent
as a process that promotes the emotional, cogni- physicality of dance, it is logical to suggest that
tive, physical and social integration of the individ- dancing, like any form of exercise, can enhance
ual, also stating that there is empirical support for aerobic fitness, coordination, strength, and flexi-
the premise that body, mind, and spirit are bility. However, composed of movements that
interconnected. Quiroga Murcia and Kreutz convey a heightened, aesthetic sense of body,
(2012) describe dance as an integral activity rhythm, and space, and often performed in relation
with major components of musical stimulation, to music, dance involves more than ordinary
body movement, and social context. Hanna motor activities (Hanna, 2006, p. 30). Health
(2006, p. 32) notes, Dance serves a wide spec- benefits of dance (both specific dance styles and
trum of purposes, often several simultaneously. improvisational or creative dance) have
Therapeutic and educational conceptions of been reported for individuals with Parkinsons
dance as a holistic, integrative modality are disease, traumatic brain injury, fibromyalgia,
grounded in early twentieth-century modern breast cancer, cardiac disease, eating disorders,
dances emphasis on self-expression, exemplified dementia, and developmental disabilities
in the work of Isadora Duncan and Rudolph (Chaiklin & Wengrower, 2009; Goodill, 2005;
Laban, both of whom viewed dance as natural Quiroga Murcia & Kreutz, 2012).
expression deeply connected to health and Quiroga Murcia and Kreutz (2012, p. 128) sug-
spirituality (Copeland & Cohen, 1983; Dils & gest that a powerful motivation for dancing
Albright, 2000). Particularly, Laban was critical appears to be the need to express oneself
of Germanys burgeoning industrial society with through rhythmic play and exploration of ones
its mechanical rhythms and repetitive work condi- bodily powers and physical environment. Sheets-
tions. He believed that dance could restore quality Johnstone (2009, p. 321) highlights rhythm as
of life, developing a form of mass movement a given of animate life that comes to the fore in
participation, the movement choir, to foster dance, since dance is movement from beginning
expression of self in community (Maletic, 1987). to end. Dancing releases endorphins, with
Laban theorized that human movement is the associated feelings of physical well-being (Goodill,
observable manifestation of emotional, mental, 2005; Hanna, 2006). Hanna (2006, p. 32) suggests,
social, and spiritual processes, underpinning a The physical exercise of dance may be an end in
key assumption of DMT that expansion of move- itself, the purpose being the pleasure of doing.
ment function and expression reflects growth in Dance is widely associated with the
other aspects of being (ADTA, 2009). Laban amelioration of stress (Chaiklin & Wengrower,
Movement Analysis (LMA), a multidimensional 2009; Goodill, 2005; Hanna, 2006; Quiroga
system for observation and recording of movement Murcia & Kreutz, 2012). In a monograph devoted
Dance and the Quality of Life 1423 D
to the topic of dance, health, and stress, Hanna share rhythmic dance. Quiroga Murcia and
(2006, p. 38) calls dance a stress vaccine. She Kreutz (2012, p. 128) observe that dance is
notes (2006, p. 55), Throughout time people a profoundly social experience, which in
have danced to cope with stress, the relatively a supportive setting can give feelings of identifi-
new umbrella term for concepts like conflict, cation and togetherness, possibly more so than
frustration, trauma, anomie, alienation, anx- in other activity settings. Hanna (2006) cites
iety, and depression. Claiming that dance is an a plethora of social-cultural functions of dance
effective medium for preventing, escaping, and from promotion of communal cooperation and
dissipating stress, she also notes dances poten- solidarity, to religious and spiritual expression, D
tial to transform both performer and observer to preparation for work and war, noting the inte-
(p. 30). Louppe (2010) concurs that the gaze of gral connection between dance and ritual across
the dance observer is a multisensory, whole body human societies. She suggests that in communal
process that can create change in the viewer. settings, a spirit of elation may arise that is con-
Most empirical research on dance and quality tagious for both dancers and viewers. Further, the
of life appears to focus on emotional, mental/ presence of social support in dance settings can
cognitive, and social domains in recreation and lower stress, including the support of touching
clinical settings. The field of DMT emphasizes and being touched. Bond (2008) noted the emer-
psychotherapeutic applications of dance (ADTA, gence of aesthetic community in a group of
2009); Goodill (2005) informs that medical DMT young nonverbal children with deafblindness.
often focuses on goals such as emotional well- Contemporary researchers and writers across
being and optimism, citing research in which the range of dance contexts concur that dances
participants credit DMT with reducing passivity value rests in part on its ability to express the
in life. Reported emotional benefits of dance/ ineffable (Bond & Stinson, 2000/2001; Chaiklin
movement therapy include improvement in & Wengrower, 2009; Dissanayake, 2000; Hanna,
self-esteem, vitality, mood, and coping strat- 2006; Louppe, 2010; Sheets-Johnstone, 2009b);
egies, and reduction of depression and anxiety. Hanna (2006, p. 34) notes, Dance can often
A range of populations, including survivors of express what words cannot. Chaiklin elaborates
trauma and sexual abuse, prisoners, the aged, and that creativity in dance is a search for structures
children in educational settings, have reported that to express what is difficult to state (Chaiklin &
dancing creates an increased sense of freedom Wengrower, 2009, p. 5). Dance can also be
(Bond & Stinson, 2000/2001; Chaiklin & conceptualized as a nonverbal language,
Wengrower, 2009; Goodill, 2005; Quiroga Murcia providing a bridge to communication for people
& Kreutz, 2012). For Louppe (2010), bodily rhyth- from different social and cultural backgrounds,
mic states of breath, time, and space make dance an increasingly important function in the global
the art of extreme freedom (135), an ontological society of the twenty-first century.
value cited in phenomenological literature (Bond
& Stinson, 2000/2001; Fraleigh, 2004; Sheets- Conclusion
Johnstone, 2009). Dance may enhance cognitive While the association between dance and quality
processes including perception, attention, concen- of life can probably be traced to prehistory,
tration, memory, time and spatial representation, perhaps to prehominid ancestors, systematic
creativity, meaningfulness, and sense of self- research is a recent phenomenon. Considering
control (Bond, 2008; Goodill, 2005; Hanna, the apparent longevity of dance and its ubiquitous
2006; Quiroga Murcia & Kreutz, 2012). presence in human societies, it is difficult
The influence of positive social experiences to understand why dance continues to be margin-
on general health and well-being is well alized as an area of serious scholarship relative to
documented. Chaiklin and Wengrower (2009) other arts. Literature suggests a developing
note that people naturally seek community interest in understanding connections between
by creating or traveling to public areas to dance, health, and quality of life.
D 1424 Dance/Movement Therapy (DMT)

Cross-References Kealiinohomoku, J. W. (1980). The non-art of dance: An


essay. Journal for the Anthropological Study of
Human Movement, 1(1), 3644.
Exotic Dance and the Quality of Life Louppe, L. (2010). Poetics of contemporary dance. Alton,
Index of Arts as Community Builders UK: Dance Books.
Index of Arts as Self-Developing Activities Maletic, V. (1987). Body, space, expression: The devel-
Index of Arts as Spirit-Building opment of Rudolf Labans movement and dance con-
cepts. Berlin, Germany: Mouton de Gruyter.
McCarren, F. (1998). Dance pathologies: Performance,
poetics, medicine. Stanford, CA: Stanford University
References Press.
Quiroga Murcia, C., & Kreutz, G. (2012). Dance and
American Dance Therapy Association. (2009). Retrieved health: Exploring interactions and implications. In
October 15, 2012, from www.adta.org R. A. R. Macdonald, G. Kreutz, & L. Mitchell (Eds.),
Bond, K. (2008). The human nature of dance: Music, health, and wellbeing (pp. 125133). Oxford,
Towards a theory of aesthetic community. In UK: Oxford University Press.
S. Malloch & C. Trevarthan (Eds.), Communicative Sheets-Johnstone, M. (2009). The corporeal turn: An inter-
musicality: Exploring the basis of human companion- disciplinary reader. Exeter, UK: Imprint Academic.
ship (pp. 401422). Oxford, UK: Oxford University Williams, D. (2004). Anthropology and the dance: Ten
Press. lectures (2nd ed.). Champaign, IL: University of
Bond, K. E., & Stinson, S. W. (2000/2001). I feel like Im Illinois Press.
going to take off!: Young peoples experiences of the
superordinary in dance. Dance Research Journal,
32(2), 5287.
Buckland, T. (2006). Dancing from past to present:
Dance/Movement Therapy (DMT)
Nation, culture, identities. Madison, WI: University
of Wisconsin Press. Dance and the Quality of Life
Chaiklin, S., & Wengrower, H. (Eds.). (2009). The art and
science of dance/movement therapy: Life is dance.
New York: Routledge.
Chang, M. (2009). Cultural consciousness and the global
context of dance/movement therapy. In S. Chaiklin & Dancing
H. Wengrower (Eds.), The art and science of dance/
movement therapy: Life is dance (pp. 299316). New
Arts in British Columbia, Canada
York: Routledge.
Copeland, R., & Cohen, M. (1983). What is dance? Read-
ings in theory and criticism. New York: Oxford
University Press.
Dils, A., & Albright, A.C. (2000). Moving history/Danc- Dartmouth COOP Charts
ing cultures. Middletown, CN: Wesleyan University
Press. Megan Davidson
Dissanayake, E. (2000). Art and intimacy. Seattle, WA:
University of Washington Press. School of Physiotherapy, La Trobe University,
Ellis, H. (1923). The art of dancing. The dance of life Bundoora, VIC, Australia
(pp. 3465). Boston: Houghton Mifflin.
Fraleigh, S. H. (2004). Dancing identity: Metaphysics in
motion. Pittsburgh, PA: University of Pittsburgh Press.
Gere, D. (2004). How to make dances in an epidemic: Synonyms
Tracking choreography in the age of AIDS. Madison,
WI: University of Wisconsin Press. Dartmouth cooperative functional assessment
Goodill, S. W. (2005). An introduction to medical dance/ charts
movement therapy: Health care in motion. London:
Jessica Kingsley.
Hanna, J. L. (2006). Dancing for health: Conquering and
preventing stress. Lanham, MD: AltaMira Press. Definition
Kealiinohomoku, J. W. (1970). An anthropologist looks at
ballet as a form of ethnic dance. In M. Van Tuyl (Ed.),
Impulse: Annual of contemporary dance (pp. 2433). There are nine Dartmouth COOP charts, one
San Francisco: Impulse. for each of Physical Fitness, Feelings, Daily
Dartmouth COOP Charts 1425 D
Activities, Social Activities, Pain, Social Sup- Validity
port, Overall Health, Quality of Life, and Change The charts were designed from a review of the
in Health (health transition). literature and existing instruments, health mea-
surement experts, and opinions of clinicians
(Nelson et al., 1990). The final charts were
Description administered to three samples for validity testing,
including a large sample of patients participating
The Dartmouth COOP charts were developed in the Medical Outcome Study who completed
for use in clinical settings for the purposes of both the RAND scales (now the SF-36) and the D
screening and monitoring physical, mental, and Dartmouth COOP charts. Correlations between
social function (Nelson, Landgraf, Hays, scales measuring the same or similar construct
Wasson, & Kirk, 1990). There are nine charts, (e.g., physical functioning) were moderate
one for each of Physical Fitness, Feelings, Daily (0.600.69), while there were generally lower
Activities, Social Activities, Pain, Social Sup- correlations between scales measuring unrelated
port, Overall Health, Quality of Life, and Change (or less related) constructs.
in Health (health transition). The charts ask Moderate correlations between Dartmouth
the person to rate themselves, with reference to COOP Charts and similar scales on the SF-36,
the past 4 weeks, on a 5-level response scale that Chronic Respiratory Questionnaire, and the
combines pictures and descriptors. The score for Hospital Anxiety and Depression Scale were
each chart ranges from one to five, with a higher also reported in a sample of people with chronic
score indicating worse functioning. The charts obstructive pulmonary disease (COPD) (Eaton,
can be self-administered or administered by Young, Fergusson, Garrett, & Kolbe, 2005).
interviewer. In a large (n > 3,000) survey by Jenkinson,
The charts can be purchased at www. Mayou, Day, Garratt, and Juszczak (2002),
dartmouthcoopproject.org/coopcharts.html females on average scored higher (worse) than
males, and scores increased with age for all
Other Versions domains except Feelings, for which older people
The COOP/WONCA adaptation has six charts: had a lower (better) score. People with a chronic
Physical Fitness, Feelings, Daily Activities, Social illness had significantly worse scores on all items
Activities, Overall Health, and Change in except the Feelings chart, compared to those who
Health (Landgraf and Nelson 1992; van Weel, did not report a chronic illness.
1993). The reference timeframe is 2 weeks Other evidence for extreme or known-groups
(Van Weel, Konig-Zahn, Touw-Otten, van Duijn, validity has been reported (McHorney, Ware,
& Meyboom-de Jong, 1995). The COOP/ Rogers, Raczek, & Lu, 1992).
WONCA charts are available in English, Chinese, The COOP Charts and the SF-36 had similar
Danish, Dutch, Finish, French, German, Hebrew, responsiveness in people with chronic low back
Italian, Japanese, Korean, Norwegian, Portuguese, pain (Bronfort & Bouter, 1999) and people
Spanish (also in Gallego, Castilian, and Catalan), undergoing laparoscopic surgery (Jenkinson,
Slovak, Swedish, and Urdu (Van Weel Lawrence, McWhinnie, & Gordon, 1995).
et al., 1995). The COOP/WONCA Feelings chart has
An adaptation of the charts has been reported a strong correlation with the Geriatric Depression
for use with American Indian people with Scale and may therefore be a useful screening
diabetes (Gilliland et al., 1998). This version tool for depression in elderly outpatients (Doetch,
also uses a 2-week recall period. Alger, Glasser, & Levenstein, 1994).
The charts have been administered without the
illustrations, and the two versions appear to be Reliability
equivalent (Kempen, van Sonderen, & Sanderman, Each of the COOP charts uses a single item
1997; Larson, Hays, & Nelson, 1992). to evaluate an aspect of health. Single-item
D 1426 Dartmouth Cooperative Functional Assessment Charts

indicators are usually less reliable than multi- Gilliland, S. S., Willmer, A. J., McClaman, R., Davis, S. M.,
item instruments. Reliability is generally Hickey, M. E., Perez, G. E., et al. (1998). Adaptation of
the Dartmouth COOP Charts for use among American
sacrificed for brevity. Notwithstanding this, the Indian people with diabetes. Diabetes Care, 21(5),
test-retest reliability (ICC) for the charts for a 1-h 770776.
retest period has been reported as ranging from Jenkinson, C., Lawrence, K., McWhinnie, D., & Gordon, J.
0.73 to 0.98, and for 2-weeks the range was (1995). Sensitivity to change of health status measures
in a randomized controlled trial: Comparison of the
0.420.88 (Nelson et al., 1990). Weaker reliabil- COOP charts and the SF-36. Quality of Life Research,
ity coefficients have been reported over a longer, 4, 4752.
2-month retest period (ICC range 0.170.61) in Jenkinson, C., Mayou, R., Day, A., Garratt, A., &
a small group of people with COPD (Eaton et al., Juszczak, E. (2002). Evaluation of the Dartmouth
COOP Charts in a large-scale community survey
2005). Test-retest reliability of the five non- in the United Kingdom. Journal of Public Health
transitional COOP/WONCA charts in a sample Medicine, 24(2), 106111.
of 40 patients attending GP clinics over 23 days Kempen, G. I. J. M., van Sonderen, E., & Sanderman, R.
was r 0.740.86 (Bentsen, Natvig, & Winnem, (1997). Measuring health status with the Dartmouth
COOP charts in low-functioning elderly. Do the Illus-
1999), and in a sample of 30 people with stroke trations affect the outcomes? Quality of Life Research,
was rho 0.380.69 (Lennon, Carey, Creed, 6, 323328.
Durcan, & Blake, 2011). Landgraf, J. M., & Nelson, E. C. (1992). Summary of the
Inter-rater reliability between administration WONCA/COOP International Health Assessment
Field Trial. The Dartmouth COOP Primary Care Net-
by a nurse and physician in a primary care setting work. Australian Family Physician, 21(3), 255269.
(ICC) ranged from 0.50 to 0.98. Larson, C. O., Hays, R. D., & Nelson, E. C. (1992). Do the
pictures influence scores on the Dartmouth COOP
Charts? Quality of Life Research, 1, 247249.
Lennon, O. C., Carey, A., Creed, A., Durcan, S., & Blake,
Cross-References C. (2011). Reliability and validity of COOP/WONCA
functional health status charts for stroke patients in
Chronic Obstructive Pulmonary Disease primary care. Journal of Stroke and Cerebrovascular
(COPD) Diseases, 20(5), 465473.
McHorney, C. A., Ware, J. E., Rogers, W., & Raczek, A. E.
Hospital Anxiety and Depression Scale (1992). The validity and relative precision of MOS
(HADS) Short-, and Long-Form Health Status Scales and
SF-36 Dartmouth COOP charts. Medical Care, 30(5),
MS253MS265.
Nelson, E. C., Landgraf, J. M., Hays, R. D., Wasson, J. H.,
& Kirk, J. W. (1990). The functional status of patients.
References How can it be measured in physicians offices? Med-
ical Care, 28(12), 11111123.
Bentsen, B. G., Natvig, B., & Winnem, M. (1999). Ques- Van Weel, C. (1993). Functional status in primary care:
tions you didnt ask? COOP/WONDA Charts in COOP/WONCA charts. Disability & Rehabilitation,
clinical work and research. Family Practice, 16(2), 15(2), 96102.
190195. Van Weel, C., Konig-Zahn, C., Touw-Otten, F., van Duijn,
Bronfort, G., & Bouter, L. M. (1999). Responsiveness of N. P., & Meyboom-de Jong, B. (1995). Measuring
general health status in chronic low back pain: functional health status with the COOP/WONCA
A comparison of the COOP Charts and the SF-36. charts. A manual. Groningen, The Netherlands:
Pain, 83, 201209. World Organization of Family Doctors (WONCA).
Doetch, T. M., Alger, B. H., Glasser, M., & Levenstein, J.
(1994). Detecting depression in elderly outpatients:
Findings from depression symptom scales and the
Dartmouth COOP charts. Family Medicine, 26(8),
519523.
Eaton, T., Young, P., Fergusson, W., Garrett, J. E., & Dartmouth Cooperative Functional
Kolbe, J. (2005). The Dartmouth COOP Charts: Assessment Charts
A simple, reliable, valid and responsive quality of
life tool for chronic obstructive pulmonary disease.
Quality of Life Research, 14, 575585. Dartmouth COOP Charts
DASH Disabilities of the Shoulder, Arm and Hand Questionnaire (30-Item Full Length Version) 1427 D
passive activities (group B), plus total
Dartmouth Pain Questionnaire number of items selected in groups D and F,
minus the number of items selected in groups
Megan Davidson E and G, minus the number of medications
School of Physiotherapy, La Trobe University, taken.
Bundoora, VIC, Australia The total score is the ratio of presumed
negative scores to the presumed positive scores.
Corson and Schneider (1984) reported the
Definition test-retest reliability of the DPQ on 50 normal D
subjects, and 28 persons with low back
The Dartmouth Pain Questionnaire is an adjunct pain. Test-retest correlation coefficients in the
to the McGill Pain Questionnaire. normal group were <0.50 for all components
except the number of words (part 2). The total
ratio score correlation was 0.353. For the low
Description back pain patients, the test-retest reliability
was 0.711 for the total ratio score. There were
The Dartmouth Pain Questionnaire (Corson & significant differences between the low back pain
Schneider, 1984) was proposed as an adjunct and normal groups at both first and second tests
to the McGill Pain Questionnaire (MPQ). indicating some evidence of known-groups
It consists of five parts. Parts 1 and 2 are the validity.
MPQ body map (where is your pain) and the 20 No further psychometric testing of the DPQ
groups of pain descriptors. The Present Pain has appeared, the article by Corson and Schneider
Index of the MPQ is not included. Part 3 is (1984) is rarely cited, and the DPQ appears not
a seven-item self-perception scale, in which to be in current use for research or clinical
the respondent is asked to compare how they purposes.
feel now to how they felt before they had the
pain. For the seven items (tense or anxious, able
to concentrate, satisfied with myself, in control, References
depressed, irritable, fatigued), they rate them-
selves much worse, slightly worse, same, Corson, J. A., & Schneider, M. J. (1984). The Dartmouth
Pain Questionnaire: An adjunct to the McGill Pain
slightly better, or much better. Part 4 is a pain
Questionnaire. Pain, 19, 5969.
diary (pain intensity rated hourly for 24 h) rated
on a 010 scale, and part 5 asks the person to
estimate the amount of time over the last 24 h
spent doing 12 activities (grouped as B and C)
and to select any of 13 activities which you did
DAS
at least one time in the last 24 h (grouped as D,
E, F, and G).
Detroit Area Studies (DAS)
Part 1 is not scored.
Part 2 is scored by counting one point for each
of the 20 categories chosen (possible score
020).
Part 3 is scored from 1 to 5 (possible score DASH Disabilities of the Shoulder,
735). Arm and Hand Questionnaire
Part 4 is scored by the highest pain rating (30-Item Full Length Version)
(possible score 010).
Part 5 is the total hours for the active activities Disabilities of the Arm, Shoulder and Hand
(groups A and C), minus the total hours for the Questionnaire (DASH)
D 1428 Data Analysis

produced to answer a specific question this is


Data Analysis the setting in which formal inference procedures
such as confidence intervals and significance
Bruno D. Zumbo testing are best justified unusual features in
Department of ECPS & Department of Statistics, the data may lead us to reconsider the analysis
Institute of Applied Mathematics, University of we had planned. Careful data analysis therefore
British Columbia, Vancouver, BC, Canada precedes formal inference in good statistical
practice. In other situations, we do not have
specific questions in mind and want to allow
Synonyms the data to suggest conclusions (or working
hypotheses) that we can seek to confirm by
Data display; Data visualization; Exploratory further study. We then speak of exploratory data
data analysis analysis with the analogy of an explorer entering
unknown lands.

Definition Inference from Data


This is where probability theory comes into play.
The Science of Data There are at least three modes of inference:
Statistics is the science of gaining information frequentist, likelihood, and Bayesian. The
from data. The science of data is divided most widely used mechanism for inference
into three broad areas: producing data, analyzing in quality of life research is a sampling distri-
data, and inference from data. bution i.e., a probability distribution of a
statistic. Assumptions are a fundamental issue
Producing Data that will arise again and again for us in the area
This area involves survey design, measurement of inference. When statistics is usually taught, it
theory, survey sampling, probability sampling, almost exclusively focuses on inference but data
randomizing comparative experiments (i.e., stud- analysis highlights that there is a lot more in the
ies with randomization and comparison), quasi- statistical toolkit than just inference.
experiments and other such field studies. In the next section, several fundamental
notions and methods of data analysis will be
Analyzing Data reviewed with an eye toward showcasing the
Data analysis provides tools and strategies for spirit of the field of data analysis. Behrens
extracting information from data, not only as and Smith (1996); Wainer and Velleman
preliminary to formal inference but also in (2001); Tufte (1983) provide excellent recent
settings where formal inference is not justifiable overviews of modern data analysis highlighting
or of interest. Data analysis is also used to both the practice and the philosophical founda-
investigate whether formal inference can be legit- tions of the field. The foundational paper in
imately used. One can examine data analysis the field is most certainly Tukey (1962) John
tools such as boxplots, scatter diagrams and W. Tukey figures prominently in the field of data
other visualization devices, and least-squares analysis.
model fitting. The essence of data analysis is to
let the data speak, to look for patterns and then for
meaningful deviations from those patterns Description
without first considering whether the data
are representative of some larger universe The goal of data analysis is to gain information
of scores i.e., a population. Inspection of from data. The first step is to display the data
data through visualization often uncovers very graphical to establish the overall pattern and
unexpected and fascinating features. If data are spot unusual observations.
Data Analysis 1429 D
Some Common Graphical Representations Histograms are sometimes also called
Three commonly found graphical representations. frequency distributions or frequency
(a) Stemplots (also called stem-and-leaf plots) histograms. Figure 2 is an example frequency
offer a quick way to picture the shape of a histogram. Again, one looks for shape, pattern,
distribution while including the actual central tendency, and deviations or gaps.
numbers in the graph. (c) Boxplots
For example, Table 1 lists the ages of To understand boxplots, one must first be
hockey players in an Old-Timers league familiar with quartiles and the interquartile
and Fig. 1 displays the resulting draft and range (IQR). The spread or variability of D
final stemplots. a distribution can be indicated by giving sev-
From any data display, including stem and eral percentiles. The pth percentile of the dis-
leaf plots, a common feature of data analysis tribution is the value such that p percent of the
is to look for: scores fall at or below it. Therefore, the
The median median is simply the 50th percentile.
Symmetry The most commonly used percentiles, other
Gaps or outliers (look for a pattern and than the median, are the quartiles. The first
then deviations from that pattern). quartile, Q1, is the 25th percentile and the
(b) Histograms third quartile, Q3, is the 75th percentile Q2
Stemplots are very useful but they are awk- is, of course, the median.
ward with large numbers of data. Histograms, To get an even better sense of the quar-
on the other hand, do not have these limita- tiles, first locate the median in a list of num-
tions. A histogram breaks the range of values bers. The first quartile is the median of the
into intervals and displays only the count observations below the median. The Q3 is the
(or percentage) of the observations that fall median of the scores above Q2. IQR Q3Q1
into each interval. where IQR gives the range of the middle half
of the data.
Data Analysis, Table 1 Example data, ages of hockey
Because Q1, the Mdn (i.e., Q2), and Q3
players contain no information about the tails of the
distribution, a fuller summary is needed. This
54, 59, 35, 41, 46, 27, 33, 42, 39
fuller summary comes from the 5-number
summary: minimum, Q1, Mdn, Q3, maxi-
mum. The 5-number summary then leads to
DRAFT FINAL a boxplot, Fig. 3 is an example boxplot.
Data Analysis, 2 7 2 7 As one can see from even these modest and
Fig. 1 Draft and final 3 539 3 359 fundamental displays of data, the objectives
stemplots for the example 4 162 4 126
5 49 5 49
of data analysis are to: (a) suggest possible
data

Example
250
200
frequency

150
100
50

Data Analysis, 0
Fig. 2 Example frequency 1 2 3 4 5 6 7 8 9 10
histogram score
D 1430 Data Analysis, Spatial

Tukey, J. W. (1962). The future of data analysis. Annals of


90 outlier
Mathematical Statistics, 33, 167, 812.
80 Maximum value or Wainer, H., & Velleman, P. F. (2001). Statistical graphics:
70 Q3 + (1.5 x IQR) Mapping the pathways of science. Annual Review of
Psychology, 52, 305335.
60
50
40
Q3
30 Data Analysis, Spatial
20 Mdn
Q1
10 Spatial Analysis
Minimum value or
Q1 (1.5 x IQR)

Data Analysis, Fig. 3 An annotated example boxplot


Data Collection Methods

hypotheses about the causal mechanisms (the Kate Orkin


causes) of the observed variation in the vari- International Development, University of
able and some plausible rival explanations, (b) Oxford, Oxford, UK
aid in assessing the assumptions on which
further statistical inferences will be based,
and (c) suggest appropriate statistical tools Synonyms
such as nonparametric methods, smoothing,
or generalized linear models. Of course, the Data collection mode; Data collection strategy
foundation of data analysis includes consider-
ation of the fact that one study, one analysis,
should also provide statistical information to Definition
guide the development of the next survey or
experiment. Data collection methods are systematic tech-
niques through which information is gathered.
There are five main data collection methods in
social science: surveys, interviews, observations,
Cross-References experiments, and accessing archival data
(Vogt, 2010).
Bivariate Analysis
Exploratory Factor Analysis
Missing Data Description
Multivariate Statistical Analysis
Parametric Analysis Data collection methods can be broadly grouped
Univariate Tests into those which generate qualitative and quanti-
tative data. Qualitative data convey meaningful
information in a form other than numbers
References (Dey, 1993: 13). Qualitative data can be generated
by examining any human actions and artifacts
Behrens, J. T., & Smith, M. L. (1996). Data and data which have meaning, including observations of
analysis. In D. Berliner & R. Calfee (Eds.), The hand- behavior, text, and conversations. Qualitative
book of educational psychology (pp. 945989). New
researchers emphasize that data ought to be rich,
York: MacMillan.
Tufte, E. R. (1983). The visual display of quantitative nuanced and detailed to produce rounded
information. Cheshire, CT: Graphics Press. and contextual understandings of how people
Data Collection Methods 1431 D
experience, interpret and produce the social be used on numerical data where the values of
world (Mason, 2002: 3). The qualitative research variables are comparable across respondents.
process tends to be inductive: researchers avoid In interviewer-administered questionnaires,
prior hypotheses and definitions of concepts and the respondent is asked questions face-to-face
allow these to develop from contact with the social or over the telephone. In self-administered
world they are studying (Glaser & Strauss, 1967). questionnaires, the respondent answers a paper
Data collection is thus usually unstructured and or electronic questionnaire. In experiments,
non-standardized. respondents undergo standardized treatments,
Researchers can gather information through and each respondent is observed using the same D
observation or through interviewing respondents. protocol.
Researchers using observational techniques The conclusions of qualitative research can
become involved in life in the study site to also be generalized, but generalization does not
varying extents. Ethnographers participate use statistical techniques. Some qualitative
. . .overtly or covertly in peoples daily lives researchers emphasize the value in understanding
for an extended period of time. . .collecting one highly particular instance and argue that gen-
whatever data are available to throw light eralization should be limited to inferential gener-
on. . .the focus of research (Hammersley & alization (Lincoln & Guba, 1985), which occurs
Atkinson, 1995: 1). Photography, video, and in an intuitive rather than a law-like fashion. But
mapping, in contrast, involve less participation researchers from the analytical induction (Ragin,
in community life. 1992; Yin, 2003) or grounded theory (Glaser &
In interview-based research, interaction with Strauss, 1967; Layder, 1993; Strauss & Corbin,
participants is more formal and limited. Unstruc- 1998) traditions argue that theoretical proposi-
tured interviews focus on issues raised by the tions can be drawn from qualitative findings.
respondent(s) within a broad focus on particular Researchers can use more than one data col-
research themes. In semi-structured interviews, lection method in a study (Brannen, 1992). In
all respondents are asked the same open-ended mixed methods research (Plano Clark &
questions to obtain patterns of similarity and Creswell, 2007), also called multi-strategy or
variations that can characterize the study sample mixed methodology research (Bryman, 2004),
of individuals (Schensul, 2008: 2). the researcher mixes or combines quantitative
Interviews can involve one or more respon- and qualitative research methods, approaches,
dents. Both individual and group interviews can concepts or language into a single study
use elicitation techniques, where interviewees (Johnson & Onwuegbuzie, 2004: 24).
respond to photographs, drawings, or other mate-
rial. Respondents may also participate in activi-
ties such as drawing, writing, body mapping, or Cross-References
role-play.
Quantitative data collection, in contrast, is Qualitative Methods
highly structured and standardized. The process Sample Survey
through which data is collected must be repli- Survey Administration
cated in the same way for each respondent Survey Research
(Iversen, 2003). This is because quantitative
research aims primarily to draw generalizations
about a whole population by collecting data on References
a sample of the population. If the sample has been
correctly selected using probability theory, con- Brannen, J. (1992). c. Aldershot: Avebury.
Bryman, A. (2004). Social research methods. Oxford:
clusions about the sample can be generalized to
Oxford University Press.
the population via statistical inference (Moser & Dey, I. (1993). Qualitative data analysis: A user-friendly
Kalton, 1985). But statistical inference can only guide. London: Routledge.
D 1432 Data Collection Mode

Glaser, B. G., & Strauss, A. L. (1967). The discovery of


grounded theory: Strategies for qualitative research. Data Envelopment Analysis
Chicago: Aldine de Gruyter.
Hammersley, M., & Atkinson, P. (1995). Ethnography:
Principles in practice. London/New York: Routledge. Peng Zhou
Iversen, G. R. (2003). Quantitative research, Encyclope- College of Economics and Management, Nanjing
dia of social science research methods. http://www. University of Aeronautics and Astronautics,
sage-ereference.com/view/socialscience/n787.xml,
Accessed 11 Aug 2011. Nanjing, China
Johnson, R. B., & Onwuegbuzie, A. J. (2004). Mixed
methods research: A research paradigm whose time
has come. Educational Researcher, 33(7), 2004. Synonyms
Layder, D. (1993). New strategies in social research: An
introduction and guide. Cambridge: Polity Press.
Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Frontier analysis techniques
Beverly Hills: Sage.
Mason, J. (2002). Qualitative researching (2nd ed.).
London: Sage.
Moser, C., & Kalton, G. (1985). Survey methods in social Definition
investigation. Dartmouth: Ashgate.
Plano Clark, V. L., & Creswell, J. W. (2007). The mixed Data envelopment analysis is a mathematical
methods reader. New York: Sage. programming technique for evaluating the rela-
Ragin, C. C. (1992). Cases of what is a case?. In C. C.
Ragin & H. S. Becker (Eds.), What is a case? Explor- tive efficiency of a set of comparable entities
ing the foundations of social enquiry (pp. 119). Cam- called decision-making units (DMUs).
bridge: Cambridge University Press.
Schensul, J. J. (2008). Methodology. The Sage encyclo-
pedia of qualitative research methods. http://www.
sage-ereference.com/view/research/n267.xml. Description
Accessed 11 Aug 2011.
Strauss, A. L., & Corbin, J. (1998). Basics of qualitative Data envelopment analysis (DEA) is a well-
research: Grounded theory procedures and tech- established methodology for evaluating the relative
niques. Thousand Oaks, CA: Sage.
Vogt, P. W. (2010). Data collection. Los Angeles/Califor- efficiencies of a set of comparable entities by solv-
nia/London: Sage. ing a series of mathematical programming models
Yin, R. K. (2003). Case study research: Design and (Charnes, Cooper, & Rhodes, 1978). These enti-
methods. Thousand Oaks, CA: Sage. ISBN Third edn. ties, often called decision-making units (DMUs),
have the same multiple inputs and outputs. Com-
pared to its parametric frontier counterpart for effi-
ciency evaluation, DEA does not require any prior
Data Collection Mode assumptions on the underlying functional relation-
ships between inputs and outputs. That is to say, it
Data Collection Methods is a nonparametric technique. In addition, DEA is
also a frontier analysis technique that constructs
the best practice frontiers from the empirical
observations, based on which the efficiency score
Data Collection Strategy of all the DMUs can be evaluated.
The earliest DEA models, developed by
Data Collection Methods Charnes et al. (1978) and quoted as CCR models,
assume that the underlying production technology
exhibits constant return to scale. Since then, more
and more researchers have been attracted into this
Data Display exciting field and made numerous theoretical
and methodological DEA developments (Cooper,
Data Analysis Seiford, & Tone, 2006).
Data Envelopment Analysis 1433 D
Since the seminal work by Charnes et al. (1978), be freely disposable. However, when there are
DEA has also been widely used for the perfor- undesirable outputs, the free disposability
mance comparisons of different types of DMUs. assumption of outputs may not be suitable since
Along with the growing concern about energy and the reduction of undesirable outputs would not be
environmental issues, DEA has also gained much free. Some researchers such as Seiford and Zhu
popularity in energy and environmental studies (2002) suggest to transform undesirable outputs
(Zhou, Ang, & Poh, 2008a). It is well known that into new variables similar to desirable outputs so
energy consumption plays a significant role in that the traditional DEA models can be used.
improving peoples quality of life. For instance, However, the more popular practice in applica- D
with the increase of per capita income, people in tion is to use the environmental DEA technology
developing countries tend to buy cars and drive developed by Fare, Grosskopf, Lovell and
cars frequently, which helps to improve their Pasurka (1989), which assumes the weak dispos-
quality of life. However, this improvement ability and null-jointness of desirable and unde-
will inevitably lead to an increase in energy sirable outputs. It implies that the proportional
consumption that may cause the deterioration of reduction of desirable and undesirable outputs is
environmental performance and finally result in possible, and the only way to eliminate all the
a decline of peoples quality of life. A useful undesirable outputs is to end the production of
strategy to mitigate this issue is to improve energy desirable outputs. According to the survey study
efficiency, which may reduce energy consumption by Zhou et al. (2008a, 2008b), there exist quite
on the assumption of not affecting peoples quality a few number of studies that construct EPI using
of life. In this regard, energy efficiency and envi- the concept of environmental DEA technology.
ronmental performance measurement, where DEA This should be attributed to the growing world-
technique has been widely employed, is closely wide concern on environmental issues and sus-
related to the field of quality of life research. tainable development and the ability of DEA in
The measurement of energy efficiency can be constructing composite indicators. Although
done at different levels while measuring econ- some earlier studies contribute to the develop-
omy-wide energy efficiency seems to be the ment of EPI for measuring firm-level environ-
most challengeable. Ang (2006) provides an mental performance, more and more studies
excellent introduction to various economy-wide have been devoted to measure environmental
energy efficiency indicators (EEIs), among which performance at macro level. For instance, Zhou,
the index decomposition analysis (IDA) based Ang and Poh (2006) develop a slacks-based EPI
EEIs have been widely adopted by different that considers the slacks in inputs and desirable
countries/organizations to track their economy- outputs. Later, Zhou, Poh and Ang (2007b) pro-
wide energy efficiency trends. The study by Zhou pose a non-radial DEA approach to constructing
et al. (2008a) highlights the usefulness and pop- EPI, which allows to incorporate the preference
ularity of DEA in benchmarking energy effi- information of decision makers. More recently,
ciency at various levels. Zhou and Ang (2008) Zhou, Ang and Han (2010a) develop a total factor
further propose several DEA models with unde- carbon emission performance index for measur-
sirable outputs for measuring economy-wide ing the dynamic changes of different countries in
energy efficiency performance. their CO2 emission performance.
In environmental performance measurement, In addition to energy efficiency and environ-
DEA has received even more attention. A popular mental performance measurement, DEA has also
practice is to first incorporate pollutants or unde- been directly used for constructing composite
sirable outputs into DEA and then develop an indicators (CIs) relevant to the various aspects
environmental performance index (EPI) based of quality of life. For instance, Murias, de Miguel
on the resulting DEA model. But how to model and Rodriguez (2008) apply DEA to assess the
undesirable outputs in DEA? In traditional DEA economic well-being of different provinces
models, all the inputs and outputs are assumed to and the quality of different universities in Spain.
D 1434 Data Envelopment Analysis (DEA)

Zhou, Ang and Poh (2007a) develop an additive Seiford, L. M., & Zhu, J. (2002). Modeling undesirable
linear programming approach to constructing CIs factors in efficiency evaluation. European Journal of
Operational Research, 142, 1620.
by combining the ideas of DEA and multi- Zhou, P., & Ang, B. W. (2008). Linear programming
attribute decision-making. A novelty of this models for measuring economy-wide energy effi-
approach is that it uses two sets of weights, ciency performance. Energy Policy, 36, 29012906.
namely, the most and the least favorable ones, Zhou, P., & Ang, B. W. (2009). Comparing MCDA aggre-
gation methods in constructing composite indicators
in CI construction. Later, Zhou et al. (2010b) using the Shannon-Spearman measure. Social Indica-
extend the approach and propose a multiplicative tors Research, 94, 8396.
optimization approach to constructing CIs, since Zhou, P., Ang, B. W., & Han, J. Y. (2010a). Total factor
Zhou and Ang (2009) find that geometric carbon emission performance: A Malmquist index
analysis. Energy Economics, 32, 194201.
aggregation may lead to minimum information Zhou, P., Ang, B. W., & Zhou, D. Q. (2010b). Weighting
loss in CI construction among several alternative and aggregation in composite indicator construction:
aggregation methods. A multiplicative optimization approach. Social
In summary, DEA has received increasing Indicators Research, 96, 169181.
Zhou, P., Ang, B. W., & Poh, K. L. (2006). Slacks-based
attention in constructing various types of CIs such efficiency measures for modeling environmental
as EEI and EPI. Compared to other data weighting performance. Ecological Economics, 60, 111118.
and aggregation methods, DEA has a number of Zhou, P., Ang, B. W., & Poh, K. L. (2007).
strengths in CI construction. First, it is built upon A mathematical programming approach to
constructing composite indicators. Ecological
the theory of production efficiency and has solid Economics, 62, 291297.
theoretical foundation. Second, it determines the Zhou, P., Ang, B. W., & Poh, K. L. (2008a). A survey of
weights for sub-indicators in an objective manner data envelopment analysis in energy and environmen-
and therefore avoids the conflicts of different tal studies. European Journal of Operational
Research, 189, 118.
experts in determining the weighs. Despite of its Zhou, P., Ang, B. W., & Poh, K. L. (2008b). Measuring
limitations, researchers have made substantial environmental performance under different environ-
efforts in advancing DEA by overcoming its mental DEA technologies. Energy Economics, 30,
limitations. Further research may be conducted to 114.
Zhou, P., Poh, K. L., & Ang, B. W. (2007). A non-radial
incorporate the desirable features of other data DEA approach to measuring environmental perfor-
weighting and aggregation techniques into DEA mance. European Journal of Operational Research,
to improve the quality of DEA-based CIs. 178, 19.

References Data Envelopment Analysis (DEA)


Ang, B. W. (2006). Monitoring changes in economy-wide
energy efficiency: From energy-GDP ratio to compos- Spanish Geography and the Quality of Life
ite efficiency index. Energy Policy, 34, 574582.
Charnes, A., Cooper, W. W., & Rhodes, E. (1978). Mea-
suring the efficiency of decision making units. Euro-
pean Journal of Operational Research, 2, 429444.
Cooper, W. W., Seiford, L. M., & Tone, T. (2006). Intro- Data Liberation Initiative (DLI)
duction to data envelopment analysis and its uses:
With DEA-solver software and references. New Wendy Watkins and Ernie Boyko
York: Springer. Data Centre, Carleton University Library,
Fare, R., Grosskopf, S., Lovell, C. A. K., & Pasurka, C.
(1989). Multilateral productivity comparisons when Ottawa, ON, Canada
some outputs are undesirable: A nonparametric approach.
The Review of Economics and Statistics, 71, 9098.
Murias, P., de Miguel, J. C., & Rodriguez, D. (2008). Synonyms
A composite indicator for university quality assess-
ment: The case of Spanish higher education system.
Social Indicators Research, 89, 129146. Data portal; Data repository
Data Liberation Initiative (DLI) 1435 D
Definition The Data Liberation Initiative was launched in
1996 as a partnership between Statistics Canada
The Canadian Data Liberation Initiative and Canadas post-secondary educational institu-
The Canadian Data Liberation Initiative (DLI) is a tions. This initiative leveled the playing field for
unique, cost-effective partnership between Statis- all institutions by providing affordable access to
tics Canada and Canadian post-secondary institu- all of Statistics Canada publically available data
tions. Participating institutions pay an annual products. A fixed annual fee was paid by institu-
subscription fee that allows their faculty and stu- tions who joined by signing a license agreement
dents unlimited access to virtually all of Statistics and designating a point of contact that would D
Canadas public use microdata files (PUMFs), liaise with Statistics Canada and provide service
databases, and geographic files for academic teach- to students and researchers. Neither the fee
ing and research. The aim of the project was to nor the license agreement has changed since the
provide faculty and students with Canadian data project was established (Watkins, 1994).
and information resources to foster statistical liter-
acy and numeracy and to provide researchers and Content
students with the tools to analyze Canadian society. While the initial focus for the initiative was pub-
lic use microdata files, this has grown to include
virtually all of Statistics Canadas public files
Description including PUMFs, geography files, census
tables, the Canadian Socio-Economic Informa-
Background tion Management System (CANSIM), a large
During the 1980s, successive budget cuts at time-series database, and a series of specialized
Statistics Canada led to increased prices for databases.
Statistics Canadas products, among them, public
use microdata files. Initially, the pricing of these The DLI Team
products was regarded as minimal by Statistics The DLI team is made up of the DLI unit housed
Canada, but in reality, most of these files were, in at Statistics Canada and representatives known as
fact, too expensive for the academic community. DLI contacts at each of the subscribing
To make matters worse, during the late 1980s, institutions.
Statistics Canada increased these prices exponen-
tially with the effect of putting them out of reach The DLI Unit
financially to all but the few very well-funded A separate unit was established within Statistics
institutions or those individuals with close ties Canada to be the focal point for the project. Their
to the data producers in the agency. Researchers job is to acquire data files and documentation
and students were left in the lurch, either using from the producing divisions, vet them and
United States (US) data or giving up on quantita- make corrections where necessary, load them
tive analysis altogether. onto a file server, and provide support to users
A 1992 paper by Professor Paul Bernard using an electronic mailing list and a web site.
(Bernard, 1992) from the Universite de Montreal It was quickly discovered that the unit also
inspired a remedy to the situation in the form of needed to enhance the labels and the usability of
a paper Liberating the Data: A Proposal for the files. More recently, the unit has been creating
a Joint Venture between Statistics Canada and metadata (see Metadata in the Social Sciences)
Canadian Universities (Watkins, 1992). This for the files using the Data Documentation
was championed by the Social Science Initiative (DDI) standard. The unit actively
Federation of Canada (SSFC) and a group of promotes the initiative within and outside
supporters, affectionately known as the Data Statistics Canada and participates in regional
Liberation Army, who worked to make the and national training sessions for DLI contacts
proposal a reality. each year.
D 1436 Data Liberation Initiative (DLI)

DLI Contacts region as a sort of 3-day boot camp for neophyte


Each participating institution designates a Data Librarians. The Survival Manual provides
contact point for the project. Their tasks are to a comprehensive reference tool to all contacts
facilitate access to the data files, promote the regardless of prior experience with the project
project with students and researchers, and seek and undergoes frequent updates to ensure the
answers from Statistics Canada for questions content is current.
posed by their users. Having DLI contacts and
the DLI unit as the main contact points serves to Project Partnerships
ensure that questions are properly answered and The DLI team has partnered with several institu-
Statistics Canadas data producing divisions are tions to share the workload of creating DDI meta-
not overwhelmed by questions from thousands of data for PUMFs. One of those projects is Ontario
students. The contacts also play a role within the Data Documentation, Extraction Service and
universities, answering questions by students and Infrastructure (http://odesi.ca) where DLI hold-
faculty about Statistics Canadas products and ings may be searched across files at the variable
programs. level. While the data in odesi are only available to
Ontario universities, the metadata are searchable
Service and Support by anyone, facilitating finding that perfect DLI
DLI List: DLIs Electronic Mailing List survey.
With tens of thousands of users across the country
in 75 institutions, communication is an important Research Data Centres
function. To ensure that everyone is informed on The Canadian Research Data Centres Network
issues touching hundreds of surveys, the DLI unit grew directly out of DLI when it was realized
operates the DLI list where DLI contacts can post that there was no similar mechanism in place that
enquiries and answers can be posted by the DLI would allow researchers to analyze longitudinal
unit or by other knowledgeable persons. The list files.
is completely open to all; followers of Statistics
Canada often find it the best place to keep up to Governance
date with the agency. The project is guided by an External Advisory
Committee consisting of two members from each
Training of four regions of Canada representing large and
Training is an integral part of the Data Liberation small post-secondary institutions. A library
Initiative. Regional training is held annually, administrator and members from Statistics
while national training is held every 4 years Canadas authoring and analysis divisions also
when the International Association for Social sit on the committee. This committee typically
Science Information Service and Technology meets twice a year to set broad policy and chart
(IASSIST) meets in Canada. the direction of the project.

Training Repository Benefits


The DLI Training Repository houses over 300 Data Liberation has proved beneficial not only to
presentations and workshops that have been its partners but also to the Canadian population as
presented over the many years of the project. well. Some of these benefits were recognized at
It is an invaluable teaching and learning resource the beginning and led to the development of
(Boyko, Hamilton, Humphrey and Watkins, the proposal. Others have been unintended con-
2006). sequences (Boyko, Watkins, fall/automne 1996).
All have been positive. Having an academic
Survival Manual partnership is important for Statistics Canadas
The Data Liberation Survival Manual grew out of credibility. Data Liberation has added value and
the 1997 Workshops DLI Bible given in each quality control to Statistics Canadas extensive
Data Presentation 1437 D
collection of PUMFs through the adoption of the
DDI standard for its metadata. For the academics, Data Portal
the number of trained analysts graduating
from Canadian post-secondary institutions has Data Liberation Initiative (DLI)
increased dramatically. As a result, students
with strong quantitative skills are finding jobs
in government and business, even in a tight
employment market (Boyko, Watkins, 2011). Data Presentation
D
1 2
Filomena Maggino and Marco Trapani
1
Dipartimento di Statistica, Informatica,
Cross-References Applicazioni G. Parenti (DiSIA), Universita
degli Studi di Firenze, Firenze, Italy
Canadian Research Data Centre Network 2
University of Florence, Florence, Italy
Data Liberation Initiative (DLI)
Metadata in the Social Sciences
Definition

References Many international institutions, like World Bank


and UNESCO (Patel et al., 2003) and Eurostat
Bernard, P. (1992). Data and knowledge: Statistics (2000a, b), have identified different attributes to
Canada and the research community. Society/Societe,
p. 22.
be considered in evaluating quality of statistics,
Boyko, E., & Watkins, W. (2011). The Canadian data liber- such as methodological soundness, integrity,
ation initiative: An idea worth considering?. Interna- serviceability, and accessibility.
tional Household Survey Network (IHSN) working At the same time, less attention is paid to
paper no. 006. http://www.ihsn.org/home/index.php?
qactivities/working-papers
presentation and communication of statistics,
Boyko, E., Hamilton, E., Humphrey, C., & Watkins, W. which represent important aspects of the statisti-
(2006). Lifting ourselves by our bootstraps: Develop- cal activities and should be considered an integral
ing a national peer-to-peer training program for data part of data production and dissemination.
librarians in Canada. Paper presented at the Interna-
tional Federation of Library Associations (IFLA), Ber-
The need to deal with this issue is significantly
lin. 2006. http://library.acadiau.ca/DLI2006/training/ increasing especially in the perspective of the role
berlinFINAL.pdf the statistics have in ICT societies. Presentation
Boyko, E., & Watkins, W. (fall/automne 1996). Data and communication of quality of life data are
Liberation and Academic Freedom. In Government
Information in Canada/Information gouvernementale
not easy tasks to be carried on since they
au Canada (Vol. 3, number/numero 2). http://library2. cannot be accomplished through improvising
usask.ca/gic/v3n2/watkins2/watkins2.html and approximating methods and instruments.
Humphrey, C., & Watkins, W. (2006). Introducing They require a combined and joint knowledge
Data into Canadian Academic Libraries: The
Straw that didnt break the camels back.
and expertise of statistical methodology, cognitive
Paper presented at the International Conference on science, and communication.
Teaching Statistics (ICOTS7), Salvadore, Brazil,
2006. http://www.stat.auckland.ac.nz/iase/publica-
tions/17/1A3_WATK.pdf
Watkins, W. (1992). Liberating the Data: Aj Proposal for a
Description
Joint Venture between Statistics Canada and Canadian
Universities (unpublished) Characteristics of the Process
Watkins, W. (fall/automne 1994). The data liberation ini- Generally, assessing statistical activity in quality
tiative: A new cooperative model. In Government
Information in Canada/Information gouvernementale
of life research (but not only) pays great attention
au Canada (Vol. 1, number/numero 2). http://library2. to many aspects referring to mainly data collection,
usask.ca/gic/v1n2/watkins/watkins.html production, data analysis, modeling, and so on.
D 1438 Data Presentation

With reference to this, many international institu- MF is role of media


tions, like World Bank and UNESCO (Patel et al., RS is relevance of the statistical information
2003) and Eurostat (2000a, b), have identified dif- TS is trust in official statistics
ferent attributes to be considered in evaluating NL is users numeracy
quality of statistics, such as methodological sound- QIP is quality and incisiveness of presentation
ness, integrity, serviceability, and accessibility. This assumes a particular relevance if we con-
At the same time, less attention is paid to the sider (Giovannini, 2008) that 45 % of Europeans
process of presenting and communicating data, have no faith in official statistics and that at the
which represent important aspects and should be same time 69 % of them believe in the necessity
considered an integral part of data production and to know data concerning economics trends.
dissemination. Data cannot be presented in an aseptic and
The need to deal with this issue is significantly impartial way by leaving honor and onus of data
increasing especially in the perspective of role interpretation to the audience. At the same time,
that quality of life data play in ICT societies and interpretation could be represented by different
in policy decision processes. and equally correct perspectives (the bottle is
Data presentation and communication cannot half-empty or the bottle is half-full), which
be accomplished through improvising and approx- could be completed by additional information,
imating methods and instruments. It requires a e.g., in dynamic terms (the bottle is getting filled
combined and joint knowledge and expertise of up or the bottle is getting empty).
statistical methodology, cognitive science, and Whatever approach/statement will be assigned
communication. to presentations, the message will be nonetheless
transmitted and interpreted by the audience in
Data Presentation and Communication: Integral one of the possible ways (glass of water which
Component of the Statistical Work in QoL can be half-empty or half-full). The audience
Research Field rarely will grasp only the pure numerical aspect
Presenting data represents an important aspect of by leaving out of consideration any evaluation.
statistical activities and should be considered not Since it is quite impossible to present data and
just at the end of them but constantly from the results objectively, impartially, and neutrally, a
beginning. step-by-step model should be defined by the
Poor attention is paid to the statistical results following sequential elements (Table 1).
presentation aspect, maybe because of efforts
dedicated to the previous stage of the activities Components of the Process
(data collection and production, defining research As known, elements composing any communica-
model, data analysis, modeling, and so on). tion process are: (i) transmitter, (ii) receiver, (iii)
Nevertheless, communication is not just an channel, (iv) (transmitters/receivers) code, (v)
appendix of the core business focused on data message, (vi) context, (vii) feedback, (viii) noise.
production, but a key function that can determine They are interrelated, as represented in Fig. 1.
the success or the failure of an official data Let us examine them with reference to
provider (Giovannini, 2008). statistical data communication.
A formula has been used in order to define the (i) Transmitter is typically the statistician.
value added of official statistics (VAS) (derived The transmitters role changes according to
from Giovannini, 2008): the channel.
(ii) Audience (the receiver). In communicating
VAS f N; QSA; MFM RSM TSM NL; QIP statistics, we could refer to receivers in terms
of audience. In general, receivers of statis-
where tical communication can be represented by
N is size of the audience (a) experts, (b) politicians and policy makers,
QSA is statistical information produced (b) statistical data users, (c) not specialized
Data Presentation 1439 D
Data Presentation, Table 1 From data to presentation

DATA PRODUCTION objective observation aseptic data

DATA ANALYSIS, RESULTS AND


data transformed in information
INTERPRETATION

PRESENTATION information message

T
R R
A E
N C
S E
M I
I V
T E
T R
E
R S

S C
O
C D
O E
D
E

Data Presentation, Fig. 1 Elements composing the communications process

users. Another well-known definition (Vale, addition functionality and flexibility in


2008) distinguishes between tourists, har- the way they can view and download data
vesters, and miners: Miners: They are expert users, typically
Tourists: They are novice or infrequent small in number, but using large volumes
users, and typically the majority of indi- of data on a regular basis, often for
vidual users. They are looking for basic detailed research or analysis. They want
data either out of curiosity, or to inform high levels of functionality and flexibil-
personal decisions. They want to be able ity, and are willing to invest some time to
to find and view data quickly and easily, learn how to use a data interface.
they prefer low levels of complexity and (iii) Channel. The channel represents the trans-
need only limited functionality missive mean through which the message
Harvesters: They are intermediate and reaches the receiver. In communicating sta-
fairly frequent users, who are looking tistics, we can identify the auditory channel
for data to inform basic research or eco- (listening, referring to oral explanation),
nomic decisions. They will accept the visual channel (looking, referring
increased complexity if it results in to explicative written presentation),
D 1440 Data Presentation

and when applicable kinetic channel The way statistics are reported (outline)
(doing, referring to practical exercises). The tools used in order to transmit statistics
(iv) Context. It refers to the situation or occasion (tools)
in which the communication is accomplished. The way in which statistics are dressed
With reference to communicating statistics, (cloths)
we can identify different contexts, like Code could represent a double barrier, at the
seminars, conferences, meetings, press moment of transmission (when the message is
conferences, books, booklets, and so on. codified by the transmitter) and at the moment of
Each context has its own setting (papers, reception (the message is decoded by the receiver).
tables, etc.). For example, with reference to Consequently, in our perspective, we should be
seminars, setting concerns rooms, tables, sure that the right code is utilized. The right
and so on. Evaluating the outline, the tools, code is one that minimizes misunderstandings and
and the cloths with reference to the context maximizes correct understandings of the message.
should take into account if the context
allows for feedbacks. Components of the Process
(v) Topic and (vi) data (message). In commu- Fundamental Aspects
nicating statistics, the message is represented Presenting any topic represents an educational
by statistics (data, comments to data, and activity in itself, which should be accomplished
so on). correctly and possibly in an amusing way in order
Other components are: to get better convincing and persuasive results
Noise, represented by whatever element (moving to a wanted and expected direction).
disturbing the communication process. Noises The data presentation process involves three
could be identified in each of the previous fundamental aspects (or pillars), related to (i)
elements. For example, lack of adequate light- content, (ii) appeal, and (iii) persuasion.
ing could represent a decisive noise in They reflect the own base of classic rhetoric,
a seminar context. The goal is to reduce or according to the principles of teaching (docere),
eliminate its presence and effect. entertaining (delectare), and moving (movere).
Message, represented by statistics results, Consequently, the three aspects refer to three
data, comments to data, and so on. philosophical-scientific disciplines, ethics, aes-
Code refers to the whole technological appa- thetics, and rhetoric, as summarized in the Table 2.
ratus allowing communication. The apparatus The three related disciplines could represent
has its grammatical, syntactical, and stylist the foundation of a theory of presentation.
rules that, in statistical communication, refer to: They do not present absolute and immutable

Data Presentation, Table 2 Toward a theory of presentation

Communicating statistics Corresponding Dimensions


Bipolar constitutive elements
aspects goals discipline of change
fair unfair
right wrong
legal illegal Fairness changes
using correct and accurate
Content Ethics honest dishonest through time and
contents
impartial partial space
good bad
moral immoral
allowing the message to be beautiful ugly Beauty changes
Appeal easily reached by the Aesthetics pleasant unpleasant with reference to
audience. agreeable disagreeable social canons
preferable not preferable
using instruments of convenient inconvenient
Preferable changes
Persuasion persuasion (theory of Rhetoric best worst
across individuals
argumentation) wise unwise
adequate inadequate
Data Presentation 1441 D
references but suffer subjectivity and mutability 5. Neurolinguistic programming, referring to a
of social and human reality. pragmatic approach (born during the 1970s)
useful also in defining the ability in persuasive
Background Competences and Required Abilities communication. It defines a series of different
The abilities required in order to assess techniques representing a useful tool kit for
(preparing and performing) an effective data pre- the communicator.
sentation can be referred to the following fields: 6. Graphics and design
1. Rhetoric (theory of argumentation), which 7. Ergonomics, which is interrelated with the
represents the ability to find the possible mean physiology. In data presentation ambit, it is D
of persuasion and regard with reference to each important in emphasising the environment
individual (Aristotele, 1996). According to in which the presentation is set and the
Aristotle, the orator/speaker can use three elements composing the space (tables, chairs
levers in order to strengthen his/her ability to comfort, light source, space arrangement,
be convincing: logos, pathos and ethos. presence of windows and curtains, position
2. Eloquence (public speaking), which concerns of speakers table, of screen, availability of
the ability to use one of the most particular water, and so on)
instruments of human beings: the voice; 8. Project Management
its complexity allowed us to develop a 9. Physiology
culture through communication, sharing, and
transmission of knowledge. A clever orator Codes in Statistical Data Communication
should be able to keep audiences attention Telling Statistics: The Outline Outline refers
by using the voice in a well-prepared studied to the process of telling statistics. Outlining
way (intonations, pauses, volume, and so on). a presentation is always a planning task, requiring
3. Psychology of persuasion, a branch of a particular attention to details. Like any project,
psychology which studies the process aimed it is organized in stages, which can be distin-
at convincing one or more individuals with guished in (a) inventio (invention); (b) dispositio
reference to a particular hypothesis. Among (layout); (c) elocutio (expression); (d) actio
its applications, we can find politics. With (presentation performance).
reference to data presentation context, the inter- The outlining process does not represent a
est is related to the technical aspects, useful and linear progression but can be accomplished
efficacious in preparing a presentation, like: through a cyclic process, allowing previous
Using short and synthetic sentences, steps to be run through again in order to check,
Avoiding too long reasoning, complex improve, correct, integrate, and review before
structures (subordinate sentences), exces- reaching the action stage.
sive references, double negations, Figure 2 illustrates the five steps which it can
Finding a slogan, a meaningful short be brought back to:
sentence (three/four words) to be often
repeated (when it makes sense) in order to Inventio (Invention) The Latin term inventio
transmit the gist of the message. (from the verb invenire, to find) concerns
4. Gestalt psychology, a branch of psychology looking for the more convincing aspects of the
which studies subjective perception of images. issues in question. This stage is deeply affected
The conclusions and principles reached by this by the (individual) ethic dimension.
discipline are particularly useful in data The identified topics should be able to point
presentation. Among them we can point out out the relevant, positive, or pleasant aspects by
the following: the whole is more than the sum overshadowing and leaving out others considered
of its parts. Details which can be considered irrelevant, negative, or unpleasant. In this
meaningless can produce a dissonant or not perspective, the presentation should produce
persuasive situation. evidences supporting the selected topics.
D 1442 Data Presentation

Data Presentation,
Fig. 2 Telling statistics:
the outline

Evidences can be: (ii) Locus of quality (something is more


Technical, to be found by turning to rhetoric important because of its uniqueness,
techniques irreplaceability, or fragility)
Extra-technical, shown by facts, shared rules, (iii) Locus of order/sequence (preceding events
indisputable standards, scientific confirmations, are more important than the subsequent
valuable and prestigious citations supporting ones, the causes than the effects, the ends
and strengthening the presented story than the means)
In order to organize the topics to be presented, (iv) Locus of existent (concrete and real thing is
it is possible to refer to the well-known 5 W: more important than probable things; line of
Who ! the subject of the telling low-risk falls within this argumentation)
What ! the fact (v) Locus of essence (higher values are
When ! the time location assigned to subjects representing typologies
Where ! the field location or functions)
Why ! the causes (vi) Locus of person (preferring individual
We can add also the followings: in which values, like merit or autonomy)
way and by which means (which, in statistical Further, different techniques exist in order to
terms, means allow some analytical explanation) support getting good ideas, like brainstorming,
In order to identify the arguing model, the chiasmus, or association of words.
following items can be considered:
1. What is to be demonstrated, consistently with Dispositio (Layout) This stage allows the previ-
the message? ously identified topics to be arranged in a logical
2. Which are the evidences in favor, to be order, appropriate to the presented topics and the
sustained and reinforced? obtained results. The presentation sequence can
3. Which are the evidences against, to be dis- follow one of the basic criteria illustrated in
mantled and refuted? Table 3.
The treatise of argumentation provides with The argumentation plot could be seen as
six loci to be considered in telling stories a woof in which each element represents a yarn.
(Ellero, 1997): The ideas concatenation metaphoric figure
(i) Locus of quantity (something is more impor- asserts that argumentations validity depends on
tant than another because of quantitative the weaker yarn.
reasons, e.g., many peoples benefit is prefer- However, organizing the argumentation into
able to few peoples benefit) a logical tissue should take into account that the
Data Presentation 1443 D
Data Presentation, Table 3 Criteria for presentations sequence
Criterion Description Positive aspects Negative aspects
Rising/growing From weaker topics to more convincing ones Audience recalls The first impression could
the favorable topics not be favorable
Decreasing/ From more convincing topics to the weaker It draws audiences Audience could remember
declining ones attention the weaker arguments
Nestorian/homeric The more convincing topics are presented at It is the most It is difficult to be
the beginning and at the end; the less valid effective organized
ones are left at the centre (from the IV book
the Iliad: Nestor puts the weaker troops at the
D
centre of the array)

Time Progression
Deductive approach Inductive approach Problems approach
approach
Premise Case / specific situation Once upon a time... Meaningful questions

General principles Reflection Why something changed Why is important to talk about...

Developing arguments Concepts Yesterday... Today... Solutions (and concepts)

Pratical consequences/examples Consequences / other cases Tomorrow Conclusions and consequences

Advantages - From point of view Top-down approach


disadvanteges approach approach
Premise Reflections Concepts Consequences
Subject
General Reflections Concepts Consequences

Particular Reflections Concepts Consequences


Subject
Specific Reflections Concepts Consequences

Detail Reflections Concepts Consequences

Micro Reflections Concepts Consequences

Data Presentation, Fig. 3 Different layout approaches

organized combination of several yarns allows main layout approaches by listing their positive
a woof to be obtained which is more resistant and negative features.
than their mere sum (Perelman, 2005). Mixed approaches can be adopted, especially
In Fig. 3, different layout approaches are when presentations concern extensive and com-
presented. plex subjects. This can allow the boredom-effect
Obviously, each of the layout approaches has risk to be avoided, even if a mixed approach
pros and cons and is more or less suited to dif- could appear confused in its logic.
ferent situations and audiences. The choice
should take into account expected objectives, Elocutio (Expression) While inventio allows
kinds of argument, audiences, and, last but not arguments to be argued and dispositio allows
least, presenters preferences. Table 4 shows the them to be arranged, elocutio allows each piece
D 1444 Data Presentation

Data Presentation, Table 4 Layout approaches: positive and negative features

Transmitting definitions
Investigating thoroughly (for Starting parts could turn out to be
experts) incomprehensible
Giving information in short time Boredom
Transmitting sense of presenters Language and approach could turn out
competence to be too much theoretical

Explaining complex concepts Trivializing


Novice audience It may take long time
Too much analytical
Presenting cycle phenomena
Not calibrated and suited to all kinds of
Presenting projects
audience
Enlarging views It may take long time
Involving intersectorially Partiality
Analysing deeply It may lack a general view
Analysing in detail
Enlarging views Trivializing
Catching hidden Too much analytical
advantage/disadvantage It may take long time

Showing efficacies It may fail in reaching all the arguments


Convincing and persuading It is not appreciated by theorists
Showing in a easy way It is difficult to be planed
It could turn out to be too much easy
Training novice and students or too much difficult
Presenting complex arguments It may take long time
and subjects It makes difficult to reach the core of
the matter

Data Presentation, Table 5 Rhetoric figures: classification

Definition
thinking change in words or propositions invention and imaginative shape
meaning (or tropes) change in words meaning
Figures of

diction change in words shape


elocution choice of the most suitable or convenient words
construction change in words order inside a sentence
rhythm phonic effects

of the presentation to be prepared by selecting account that rhetoric is integral part of language
words and constructing sentences. This task is in which almost all is metaphor (Lakoff &
strictly related to rhetoric. A classical rhetoric Johnson, 1980), it seems quite impossible to
figures classification (found already in Quintilian) reduce language to an aseptic form, without
is illustrated in Table 5. a reference code.
This classical classification has been consid- The language adopted in presenting and com-
ered unsatisfying and arbitrary and many other municating data should be:
classifications have been defined. Among them, Appropriate to the audience
the following seems to be in our opinion more Consistent with the message to be transmitted
useful, suitable, and appropriate in telling statis- Besides, in telling statistics, special attention
tics: (a) image figures, (b) repetition figures, and should be paid to wording (choice of proper
(c) technical figures. words to be used), languages (use of specialist
Even if rhetoric figures should be used with terminologies), and tongues (use of languages in
care (cum grano salis), we should take into international contexts).
Data Presentation 1445 D
Wording Choosing the proper words to be This means that, as Niels Keiding Past-
used is not a trivial task. A general (and only President of the International Statistical
apparently foregone) recommendation could Institute wrote in view of the 56th ISI Con-
be that to use words that has to be ference (held in Lisbon, Portugal August
Clear and understandable words: Choos- 2007), the vast majority of people are
ing over-blown and mannered words risks handicapped in communicating in an interna-
to produce errors in communication and tional context through a language other than
interpretation their mother tongue. The consequences could
Correct in terms of syntax, grammar but be that not-native-English-speaking people D
also (in case of in-person presentation) can lose many delicate nuances of their native
in terms of language inflection (accents, language in both scientific and informal
pronunciation, folk says) communication.
Knowing audiences cultural background could At the same time, the standard English language
be helpful in order to check the best wording is not exactly the language that native-
approach. English-speaking people use in their home
One of the most important choices to be made countries. The consequences should be mini-
concerns the title of the presentation: Except mizing the problem that both kinds of people
for the cases in which rules and procedures could face.
exist, the title should be prepared according A general recommendation could be that to
to an explicative idea. Sometimes it could present and communicate data in an interna-
be shaped like a slogan to be used again tional context by recognizing that many in the
along the presentation. audience (sometimes, the majority) are not
perfectly skilled in the language used by the
Languages Generally, an individual with a good presenters. The sentences should be clear
cultural level possesses from 7,000 to 8,000 and at same extent simple. Further, if
words and is able to manage at least one special- oral, the presentation should be well supported
ist lexicon. So, in arranging a presentation, the by the written presentation on the screen.
composition of the audience should be carefully
considered. The communicators approach Actio (Execution) It concerns the way in which
should avoid too many specialist terms but also the telling, in terms of (i) introduction, (ii) devel-
to be too much simple in the lexicon. opment, (iii) comments, (iv) time/space use, (v)
A special attention should be paid to use of abbre- ending, and (vi) feedback (questions and answers
viations, acronyms, and short forms, which stage) are managed.
should be clearly explained at the first use
of them. Depicting Statistics: The Tools Tools refer
to all available instruments aimed at depicting
Tongues: Communication in International data, by constructing and using graphs, tables,
Contexts Modern English is considered the first and pictographic supports.
global lingua franca and is the dominant Graphical representations are useful and
international language in communications, advantageous instruments in order to better com-
science, business, aviation, entertainment, municate statistics. Graphical representations
radio, and diplomacy. On the other side, may have a double function, presenting and
according to Wikipedia, people speaking describing results and allowing a quick and syn-
English as native language are around 6 % of thetic interpretation of the observed phenomenon
world population. This should be taken into and its trends.
particular account since the great part of the In this perspective, statistical graphics should
international statistical communication uses be considered as a good combination of text,
English as standard language. tables, and charts (Statistics Canada, 2003).
D 1446 Data Presentation

Data Presentation,
Fig. 4 Difficulties in
communicating through
figures: two examples

The evolution of statistical graphics has found whose extremities are respectively image is
a great boost thanks to three main factors: worth one thousand words, image requires
(i) Invention of new techniques suitable to one thousand words to be understood. The goal
complex data structures is to make sure and preserve graphs capacity to
(ii) New research results concerning human autonomously communicate the message.
psycho-physiological perception suggesting
correct strategies aimed at presenting quan- Dressing Statistics: The Clothes Clothes
titative information refer to the process of dressing statistics. In fact,
(iii) Availability of computer (software and communicating statistics should be supported
hardware) instruments allowing complex also by other elements:
graphical applications to be managed Text arrangement related the disposition of the
Even if a clear limit between advantages and text on the used mean (e.g., slide or page).
disadvantage in using graphs does not exist, gen- Characters and fonts: The choice of the
eral guidelines can be identified helping in deter- character font should be consistent with the
mining the best strategies in depicting statistical spirit and character of the presentation.
information. The pictures illustrated in Fig. 4 are Colors, which use should take into account
typical examples of graphs unable to communi- their perception, their possible cultural mean-
cate the message without their proper caption. ings, and the used means. Particular attention
In this perspective, we could image each graph should be paid in using colors in graphs where
to be classified along a hypothetical continuum they represent a further code element.
Data Quality 1447 D
Other graphical aspects and effect. In this
perspective, the use of photos and clipart Data Quality
could be functional to give the audience
time to come up for air. This would Ralph L. Piedmont
allow the audience to reflect and digest. This Pastoral Counseling Department, Loyola
is especially the case if the photo or clipart is University Maryland, Columbia, MD, USA
humorous (Kosslyn, 2006, 2007).
Definition
D
Cross-References Data quality refers to a set of characteristics that
statistical data should have in order to properly
Data Analysis measure specific phenomena.
Data Quality

References Description

Aristotele. (1996). Retorica (trad.it. a cura di Dorati M.). An important mnemonic in research is GIGO,
Milano: Oscar Mondadori.
which stands for garbage in, garbage out. This
Ellero, M. P. (1997). Introduzione alla retorica. Milano:
Sansoni Editore. device serves to remind researchers that the quality
Eurostat. (2000a). Definition of quality in Statistics of any statistical analyses is based on the quality of
Eurostat Working Group on Assessment of Quality in information that is obtained. Valid, substantive
Statistics, Eurostat/A4/Quality/00/General/Definition,
data leads to rich analyses capable of informing
Luxembourg, April 45.
Eurostat. (2000b). Standard Quality Report, Eurostat theory and practice. Poor quality data, no matter
Working Group on Assessment of Quality in Statistics, how much it may be transformed or manipulated
Eurostat/A4/Quality/00/General/Standard Report, or what type of analysis is used, will lead inevita-
Luxembourg, April 45.
bly to faulty conclusions and tenuous results
Giovannini, E. (2008). The role of communication in
transforming statistics into knowledge, OECD. Paper (ONS, 2007; Rossi & Gilmartin, 1980). Data
to be presented at conference innovative approaches to possessing high quality come from sources that
turning statistics into knowledge, Stockholm, May are reliable and valid for the sample with whom
2627 2008.
they are employed. The use of multiple observa-
Kosslyn, S. M. (2006). Graph design for the eye and mind.
New York: Oxford University Press. tions and/or multiple indicators from different
Kosslyn, S. M. (2007). Clear and to the point. Oxford: information sources (e.g., self vs. observer ratings)
Oxford University Press. adds to the utility and value of information. From
Lakoff, G., & Johnson, M. (1980). Metaphors we live by.
a technical perspective, quality data is that which is
Chicago: University of Chicago Press.
Patel, S., Hiraga, M., Wang, L. (World Bank), Drew, D., & consistent with the assumptions underlying the
Lynd, D. (UNESCO). (2003). A framework for statistical analyses to which they are being
assessing the quality of education statistics. World subjected. In terms of parametric statistics, this
Bank Development Data Group and UNESCO
would include data that is normally distributed
Institute for Statistics.
Perelman, C. (2005). Teoria e pratica dellargo- (both on the univariate and multivariate levels),
mentazione (a cura di G. Fornari Luvara). Soveria does not possess excessive numbers of outliers,
Mannelli: Rubettino. contains a minimum number of missing cases, and
Statistics Canada (2003) Statistics Canada Quality
does not evidence any type of systematic distor-
Guidelines, Fourth Edition, Statistics Canada, Ottawa,
Catalogue No 12-539-XIE. tions (e.g., nonlinearity, correlated errors). All data
Vale, S. (2008, July 78). Accessibility and clarity: The needs to be screened for these issues prior to being
most neglected dimensions of quality? Paper presented analyzed statistically. The identification of any
at Conference on Data Quality for International
problems can be addressed either by deleting prob-
Organizations, Rome, Italy, nella Session 3: Dissemi-
nation platforms to make data more accessible and lematic cases or through transformations of the
interpretable. UNECE. score distributions.
D 1448 Data Reduction

Cross-References
Databases
Categorical Data Analysis
Data Analysis Inter-university Consortium for Political and
Data Collection Methods Social Research
Data Envelopment Analysis
Impact of Missing Data on Health-Related
Quality of Life Estimation
Longitudinal Data Analysis Databook of Happiness
Missing Data
Offense Definitions Impact on Criminal Ruut Veenhoven
Justice Data Quality Erasmus Happiness Economics Research
Organisation, Erasmus University Rotterdam,
Potchefstroom, The Netherlands
References Optentia Research Group, NorthWest
University, Potchefstroom, South Africa
ONS (Office for National Statistics). (2007). Guidelines
for measuring statistical quality. London: National
Statistical Publication.
Rossi, R., & Gilmartin, K. (1980). The handbook of social Synonyms
indicators: Sources, characteristics and analysis. New
York: Garland STPM Press. Database of happiness; Happiness findings
archive

Data Reduction
Definition
Simple Component Analysis
The Databook of Happiness is a reference work
that was published in 1984 by Ruut Veenhoven
together with Conditions of Happiness, in
Data Repositories
which he reviewed the then available research
findings on subjective enjoyment of life. It
Canadian Research Data Centre Network
formed the basis of the present World Database
of Happiness.

Data Repository
Description
Data Liberation Initiative (DLI)
Aim
A complete overview of research findings on
subjective enjoyment of life from 1911 to 1975
Data Visualization is presented in the Databook of Happiness, which
was published in 1984 (Veenhoven 1984b). This
Data Analysis
databook limits to facts. Contrary to common
literature reviews, it does not consider interpreta-
tions of these research findings. The book served
Database of Happiness as the basis for a synthetic study reported in the
book Conditions of Happiness that appeared
Databook of Happiness simultaneously in 1984 (Veenhoven 1984a).
Dating Couples Sexual Desire Discrepancies 1449 D
Scope
The databook limits to findings obtained using Dating Couples Sexual Desire
indicators that fit the concept of happiness as the Discrepancies
overall appreciation of ones life as a whole.
The results of 245 empirical studies are reported. Brian Willoughby
Together these produced 3,621 separate findings, Brigham Young University, Provo, UT, USA
distributional findings on how happy people
are in particular populations and correlational
findings about things that go together with Synonyms D
differences in happiness.
Healthy intimacy
Technique
Findings are described in a standardized way,
with details about measurement, sampling, and Definition
statistical analysis. The findings are then sorted
on subject and within subjects by time and nation. Sexual desire discrepancies can refer to discrep-
The collection can also be searched using ancies found on sexuality constructs at either the
a fine-grained subject index. Page-precise refer- couple or individual level. Sometimes, these dis-
ences are used to guide users to further details in crepancies refer to couple level differences in the
the original research reports. desired frequency of sexual activity, and some-
times, they refer to the individual difference
Later Development between an individuals desired frequency of sex-
In the early 1990s an update version of ual activity and the actual sexual frequency rate
this Databook of Happiness was produced as a within a relationship. Both of these types of sex-
five-volume book series that covered the research ual desire discrepancies (at the couple and indi-
literature up to 1990. In the late 1990s, the vidual level) have been shown to influence
collection was digitalized and made freely sexual satisfaction specifically and relational
available on the internet as the World Database quality and well-being more generally.
of Happiness (Veenhoven 2012).

Description
Cross-References
While the frequency of sexual activity within
World Database of Happiness a relationship and the expressed sexual desire
between romantic partners are both important
aspects of healthy sexuality, relationship
References researchers have sought to understand not only
how overall frequency rates and desire levels
Veenhoven, R. (1984a). Conditions of happiness.
Dordrecht/Boston/Lancaster: D. Reidel Publishing. impact relationship well-being but also how
ISBN. Still available at Springer Press. these constructs work together to create a more
Veenhoven, R. (1984b). Databook of happiness: holistic picture of the sexual playing field for
A complementary reference work to Conditions of
each couple. The interplay between sexual fre-
happiness by the same author. Dordrecht/Boston/
Lancaster: D. Reidel Publishing. Digital version avail- quency and sexual desire is of interest to sexual-
able at: http://www2.eur.nl/fsw/research/veenhoven/ ity scholars because it offers an opportunity to
Pub1980s/1984b.htm understand how two crucial aspects of healthy
Veenhoven, R. (2012). World database of happiness:
dating intimacy may corelate and influence each
Archive of research findings on subjective enjoyment
of life. Netherlands: Erasmus University Rotterdam. other in ways that impact couple dynamics. One
Available at http://worlddatabaseofhappiness.eur.nl way sexuality and relationship scholars have
D 1450 Dating Couples Sexual Desire Discrepancies

sought to understand this complexity has been to intimacy in the relationship help provide an impor-
explore sexual desire discrepancies at either the tant foundation for any romantic relationship.
couple or individual level. While greater sexual Among the aspects of sexuality that comprise
frequency rates (Delamater, Hyde, & Fong, 2008; the intimate behavior between dating partners,
Liu, 2003; Nicolosi, Moreira, Villa, & Glasser, actual sexual activity rates within romantic part-
2004; Simms & Byers, 2009) and more sexual nerships and sexual desire levels for both partners
desire (Brezsnyak & Whisman, 2004; have consistently been viewed as fundamental to
Dennerstein, Hayes, Sand, & Lehert, 2009) are sexual and relational satisfaction. Indeed, it is not
generally related to positive relationship out- surprising that the frequency of sexual activity and
comes among dating couples, research has also the desire to engage in sexual activity have been
found that discrepancies between couples on their among the most studied aspects of dating sexual-
desired or actual sexual frequency (Davies, Katz, ity. Generally speaking, research has suggested
& Jackson, 1999; Simms & Byers, 2009) have that increased sexual frequency has a positive
a potentially negative effect on relationship well- effect on relationship outcomes (Delamater et al.,
being. Additionally, individual discrepancies in 2008; Liu, 2003). Increased desire to engage in
ones desired rate of sexual frequency and the sexual activity has also been linked to better rela-
actual sexual frequency within a relationship tionship outcomes for most couples (Dennerstein
have been shown to be detrimental to relational et al., 2009). These two aspects of sexuality work
quality in certain circumstances (Willoughby & in tandem as sexual activity often, although not
Vitas, 2012). always, will be preceded by the desire to engage in
such activity from one or both partners. In this
Discussion way, sexual desire acts as the motivator for many
Sexuality and intimacy are healthy and normal individuals to engage in actual sexual activity with
parts of romantic relationships at any point in the their partner. Additionally, a low level of sexual
life course. As the prevalence and acceptance desire by one or both partners is typically viewed
of premarital sex has increased over the last 50 as a symptom of relationship distress among both
years in most industrialized nations (Wells & dating and married couples (Davies et al., 1999;
Twenge, 2005), scholars are becoming increas- Gehring, 2003).
ingly interested in how sexuality influences the Recently, scholars have focused on how
quality and trajectories of dating couples. While discrepancies across either sexual frequency or
some scholars have sought to explore what the sexual desire may additionally affect the quality
short- and long-term consequences may be of of relationships at both the couple and individual
premarital sexuality for both individuals and cou- level. It comes as no surprise that when couples
ples, other scholars have sought to understand have differing expectations regarding the
how sexuality within a dating context influences appropriate amount of physical intimacy in their
couple processes and relationship well-being. relationship, their perception of relational quality
Much of this research has found parallels may decrease. In terms of descriptively
between sexuality within dating and married documenting these types of discrepancies, Simms
partnerships. In many ways, sexual health is very and Byers (2009) found among a sample of over
similar and operates across similar pathways for 200 undergraduates that women tend to
both dating and married couples. For example, overestimate the desired sexual frequency levels
within both types of relationships, sexual of their male partners. Simms and Byers also
frequency, expressions of sexual desire, and sexual found some evidence that higher levels of
satisfaction all play important roles in the perceived similarity across partners on levels of
development and well-being of the relationship. sexual desire were associated with higher reported
While dating relationships may be more transitory sexual satisfaction. Often, this type of discrepancy
and less stable than more long-term relationships, is the result of either one partner having unrealistic
intimate behaviors and ones satisfaction with the expectations regarding the frequency of sexual
Dating Couples Sexual Desire Discrepancies 1451 D
activity or one partner suffering from low levels of Using a sample of over 8,000 dating couples,
sexual desire to engage in intimate behavior with Willoughby and Vitas explored the link between
their partner. Regardless of the source, this type of SDD and relationship outcomes and found that
couple level sexual desire discrepancy has been higher SDD was associated with more relation-
shown in previous research to be associated with ship satisfaction but less relationship stability.
negative couple outcomes (Davies et al., 1999; This suggested that when individuals desired to
Simms & Byers, 2009). Specifically, Davies have more sexual activity than they were actually
et al. (1999) found among a small sample of dating engaging in with their partner, relationship
couples that when individuals in a dating relation- satisfaction was elevated but the stability of the D
ship perceived a discrepancy between the partners relationship suffered. Given that higher relation-
in their level of sexual desire, lower sexual ship stability and greater relationship satisfaction
satisfaction was reported which had a negative are typically viewed as underlying aspects of
impact on overall relationship quality. The healthy dating relationships, these initial results
scholarship in this area clearly shows that healthy only provided a partial picture of how SDD was
couples are able to create some perceived degree influencing relationship outcomes. These seemly
of consensus regarding their desired levels of contradictory results were further explained by
sexual activity and sexual desire. the presence of important moderation effects.
Other scholars have sought to understand how The association between SDD and relationship
sexual frequency and sexual desire operate in outcomes was found to be moderated by both
tandem at the individual level to help foster relationship length and gender. Willoughby and
positive effects on relationships. This has led Vitas found that although higher SDD was
some scholars to study individual sexual desire associated with higher reports of relationship
discrepancies (SDD) among dating couples. This satisfaction generally, these results were stronger
type of discrepancy is defined as the difference for those in relationships early in the dating pro-
between ones desired sexual frequency and the cess and for females. Conversely, higher SDD
actual sexual frequency in the relationship. This was associated with less stability in relationships
individual SDD is in contrast to couple level where the couple had been together for several
sexual desire discrepancies which have tradition- years. Taken together, Willoughby & Vitas
ally been defined as the differences in desired suggested that higher individual sexual desire
frequency of sexual activity across both partners discrepancies may have a positive effect on
in a romantic couple. Higher levels of SDD dating relationships early in the dating process
would indicate an individual that desired to but may eventually undermine long-term dating
have more sexual activity than they are currently success. It was posited that perhaps high SDD in
having. Negative levels of SDD would indicate early dating relationship, particularly for females,
individuals who are engaging in sexual activity at serves as a motivating factor to the relationship.
rates that are more frequent than they would Sexual desire has long been viewed as a motiva-
desire. SDD levels of zero would indicate an tor for actual sexual behavior, and high levels of
individual who is engaging in the level of sexual SDD may encourage individuals to place more
activity that they desire. With this definition, it is time and other resources into a relationship in the
important to keep in mind that SDD is a parallel hope of increasing the frequency of or initiating
but unique aspect of dating sexuality and does not the act of sexual intercourse within a relationship.
speak to the overall rate of sexual activity within Those individuals who delay wanted sexual
the partnership. An individual engaging in sexual activity early in a dating relationship may see an
activity with their partner every day may have the increase in relationship well-being. These find-
same SDD level as an individual abstaining from ings are related to other empirical studies which
sexual activity with ones partner. have suggested that the delay of sexuality within
Willoughby and Vitas (2012) were among the a dating context is potentially healthy for some
first to study this unique type of discrepancy. couples (Willoughby, Busby, & Carroll, 2012).
D 1452 Dating Relationships

These results regarding individual SDD have also Santtila, P., Wager, I., Witting, K., Harlaar, N., Jern, P.,
been found in other areas of the world as well Johansson, A., et al. (2008). Discrepancies between
sexual desire and sexual activity: Gender differences
(Santtila et al., 2008). and associations with relationship satisfaction. Journal
In summary, while both sexual frequency and of Sex & Marital Therapy, 34, 3144.
sexual desire are important markers of healthy Simms, D. C., & Byers, E. S. (2009). Interpersonal per-
intimacy with dating partnerships, discrepancies ceptions of desired frequency of sexual behaviours.
The Canadian Journal of Human Sexuality, 18, 1525.
across both sexual frequency and sexual desire Wells, B. E., & Twenge, J. M. (2005). Changes in young
at the couple and individual level have proved peoples sexual behavior and attitudes, 19431999:
to be crucial elements of underlying sexual and A cross-temporal meta-analysis. Review of General
relational health and well-being for dating Psychology, 9(3), 249261.
Willoughby, B. J., & Vitas, J. (2012). Sexual desire dis-
couples. crepancy: The effect of individual differences in
desired and actual sexual frequency on dating couples.
Archives of Sexual Behavior, 41, 477486.
Cross-References Willoughby, B. J., Busby, D. M., & Carroll, J. S. (2012).
Differing relationship outcomes when sex happens
before, on, or after first dates. Journal of Sex Research.
Relational Contributions to Optimal Sexual http://www.tandfonline.com/doi/full/10.1080/002244
Experiences 99.2012.714012.
Relationship Contingency and Sexual
Satisfaction
Womens Sexual Satisfaction Predictors
Dating Relationships

References Rhiannon A. Kroeger


Population Research Center, The University of
Brezsnyak, M., & Whisman, M. A. (2004). Sexual desire Texas at Austin, Austin, TX, USA
and relationship functioning: The effects of marital
satisfaction and power. Journal of Sex & Marital Ther-
apy, 30, 199217.
Busby, D. M., Carroll, J. S., & Willoughby, B. J. (2010). Synonyms
Compatibility or restraint? The effects of sexual timing
on marriage relationships. Journal of Family Psychol- Couples dating; Romantic unions
ogy, 24, 766774.
Davies, S., Katz, J., & Jackson, J. L. (1999). Sexual desire
discrepancies: Effects on sexual and relationship sat-
isfaction in heterosexual dating couples. Archives of Definition
Sexual Behavior, 28, 553567.
Delamater, J., Hyde, J. S., & Fong, M. (2008). Sexual
satisfaction in the seventh decade of life. Journal of Casual or serious relationships in which the
Sex & Marital Therapy, 34, 439454. individuals involved are attracted to one another
Dennerstein, L., Hayes, R., Sand, M., & Lehert, P. (2009). sexually and/or romantically and interact with
Attitudes toward and frequency of partner interactions one another socially but are not living with one
among women reporting decreased sexual desire. The
Journal of Sexual Medicine, 6, 16681673. another or married to one another.
Gehring, D. (2003). Couple therapy for low sexual desire:
A systemic approach. Journal of Sex & Marital
Therapy, 29, 2538. Description
Liu, C. (2003). Does quality of marital sex decline
with duration? Archives of Sexual Behavior, 32,
5560. Many scholars view involvement in romantic rela-
Nicolosi, A., Moreira, E. D., Villa, M., & Glasser, D. B. tionships as essential for individual development
(2004). A population study of the association between and well-being (Reis, Collins, & Berscheid, 2000).
sexual function, sexual satisfaction and depressive
symptoms in men. Journal of Affective Disorders, 82, In this way, dating relationships can be seen as
235243. important for quality of life. For individuals living
Dating Relationships 1453 D
in the United States, dating relationships are individuals in more committed romantic
becoming increasingly relevant for quality of life. relationships have higher subjective well-being
Delays in timing to first marriage and increases in than their counterparts in less-serious unions
union dissolution translate to a greater proportion (Kamp Dush & Amato, 2005) and report higher
of the life course spent in dating relationships relationship quality than those in casual
(Sassler, 2010). unions (note some find this is due to selection)
Existing scholarly research suggests that one (Paik, 2010). Indeed, research finds that high
way in which dating relationships impact quality relationship quality contributes to individual
of life is through their impact on individual happiness above and beyond personal character- D
mental health. Research generally illustrates that istics (Demir, 2008). When relationship quality is
among non-married and non-cohabiting low, it can have consequences for individual
individuals, those in dating relationships report well-being. For example, one study finds that
higher psychological well-being compared to when one partner devalues the other, the
their single counterparts. For example, Kamp devalued partner is susceptible to increases in
Dush and Amato find that those in steady dating depressive symptoms (Maestas Little et al.,
relationships have higher subjective well-being 2008). Perceived peer support/approval is also
than do those in casual dating relationships an important moderator of the relationship
and that both committed and casual daters between dating unions and mental health. Specif-
have higher subjective well-being than ically, Blair and Holmberg find that in order for
individuals who date non-regularly (Kamp Dush the relationship to have psychological benefits for
& Amato, 2005). Further, Braithwaite, Delevi, the partners involved, the partners must perceive
and Fincham find that individuals in college that their relationship is supported by those in
who are in committed dating relationships their social networks (Blair & Holmberg, 2008).
report fewer mental health problems than their Recent empirical work supports this, finding
single counterparts (Braithwaite, Delevi, & that non-Black individuals in relationships
Fincham, 2010). with Blacks report more depressive symptoms
As is the case with marital and cohabiting and less relationship satisfaction than do
relationships, the social support that dating their counterparts with non-Black partners.
relationships provide for individuals serves as The authors contend that this pattern exists
one reason for the positive impact of dating because Black-non-Black relationships often
relationships on mental health (Umberson, attract lower levels of social support and
1987). Additionally, like marital and cohabiting higher levels of stigma compared to relationships
relationships, dating relationships provide between two non-Black partners (Kroeger &
individuals with social control that deters Williams, 2011).
unhealthy behaviors. For example, individuals
in college who are in committed dating Acknowledgement The author acknowledges support
relationships engage in less risky sexual by an F32 NICHD Ruth L. Kirschstein National Research
Service Award (F32 HD072616), as well as an NICHD
behavior than do their single counterparts
center grant to the Population Research Center at The
(Braithwaite et al., 2010). University of Texas at Austin (R24 HD042849).
The extent to which dating relationships
provide individuals with psychological benefits
depends on various factors. Three important and
interrelated moderators of the relationship Cross-References
between dating relationships and psychological
well-being are (1) the level of commitment in the Psychological Well-being
relationship, (2) the quality of the relationship, Relationship Quality
and (3) perceived peer support/approval of the Social Networks
relationship. Concerning level of commitment, Social Support
D 1454 Dating Violence

References Definition

Blair, K. L., & Holmberg, D. (2008). Perceived social Relationships are the core of society. Youth learn
network support and well-being in same-sex versus
how to interact with others from numerous sources
mixed-sex romantic relationships. Journal of Social
and Personal Relationships, 25(5), 769791. such as family, friends, television, and the
Braithwaite, S. R., Delevi, R., & Fincham, F. D. (2010). Internet. In their teens, dating relationships are
Romantic relationships and the physical and mental particularly important in creating a foundation
health of college students. Personal Relationships, 17,
for later long-term intimate partnerships, whether
112.
Demir, M. (2008). Sweetheart, you really make me happy: heterosexual or homosexual. Dating or spend-
Romantic relationship quality and personality as ing time with a person of romantic interest may
predictors of happiness among emerging adults. begin as early as age 11or 12. While adults also
Journal of Happiness Studies, 9, 257277.
date, when considering dating violence, the major
Kamp Dush, C. M., & Amato, P. R. (2005). Consequences
of relationship status and quality for subjective concern is teenagers and young adults to about the
well-being. Journal of Social and Personal Relation- age of 25. This large time span includes diverse
ships, 22, 607627. developmental stages and physical changes, with
Kroeger, R. A., & Williams, K. (2011). Consequences of
the potential for considerable health and mental
black exceptionalism? Interracial unions with blacks,
depressive symptoms, and relationship satisfaction. health effects if youth are impacted by abuse
The Sociological Quarterly, 52(3): 400420. (Wekerle & Tanaka, 2010).
Maestas Little, K., Amidon, A., Baum, E. S., Chrisman, J. G.,
Durham, J. A., Rooney, S. B., et al. (2008). Partner
devaluation is associated with depression symptoms
among depression-vulnerable women with low self- Description
esteem. Journal of Social and Clinical Psychology,
27(6), 621640. What does dating violence look like? A wide
Paik, A. (2010). Hookups, dating, and relationship
range of acts can occur in dating relationships
quality: Does the type of sexual involvement matter?
Social Science Research, 39, 739753. beyond the physical or sexual violence that we
Reis, H. T., Collins, W. A., & Berscheid, E. (2000). usually consider as abusive. In a study conducted
The relationship context of human behavior and by Lavoie, Robitaille, and Hebert (2000), these
development. Psychological Bulletin, 126, 844872.
included death threats, psychological abuse,
Sassler, S. (2010). Partnering across the life course: Sex,
relationships, and mate selection. Journal of Marriage denigration and insults, jealousy, excessive
and Family, 72, 557575. control, indifference, threats of separation and
Umberson, D. (1987). Family status and health behaviors: reprisals, damaging reputations, and harassment
Social control as a dimension of social integration.
after separation. Although both young men and
Journal of Health and Social Behavior, 28, 306319.
women may act abusively, the abuse of young
women by men is more pervasive and usually
more severe.
Dating Violence Physical abuse includes shoving, slapping,
choking, punching, kicking, biting, burning, hair
Leslie Tutty pulling, using a weapon, threatening someone
University of Calgary, Faculty of Social Work, with a weapon, or forcibly confining someone
Calgary, AB, Canada (Kelly, 2008). These attacks cause both
emotional and physical harm. Typically, young
men use physical force to assert control, while
Synonyms young women use it to protect themselves and to
retaliate or because they fear that their partner is
Abuse in romantic relationships; Coercive about to assault them. Some women live in terror
control in dating; Coercion, sexual; Intimate of such attacks. In contrast, young men rarely fear
partner violence; Partner sexual assault; Psycho- assaults from young women, generally consider-
logical abuse in dating ing womens use of force to be innocuous.
Dating Violence 1455 D
Sexual harassment, or unwanted sexual atten- How common is violence in dating relation-
tion, is a common experience for students at the ships? A number of studies in both the United
start of high school: reported by 44.1 % of girls and States and Canada have attempted to assess the
42.4 % of boys in a recent study with 1,734 grade 9 extent to which youth have been victimized by
students (Chiodo, Wolfe, Crooks, Hughes, & Jaffe, dating partners. These results are consistent across
2009). Further, these same researchers reported the various studies as exemplified by the following
that, several years later, harassed students were recent studies. Marquart, Nannini, Edwards, Stan-
significantly more likely than non-harassed stu- ley, and Wayman (2007) conducted a large US
dents to report other forms of victimization (dating national study of over 20,000 rural youth, with D
and peer violence) and to report emotional distress, about 16 % reporting dating violence victimiza-
substance abuse, and violent delinquency perpetra- tion, with young women being about 3.5 times
tion. McMaster, Connolly, Pepler, and Craig (2002) more likely to have been pushed, hit, or threatened.
reported similar proportions in students from Canadians Price and colleagues (2000) studied
middle schools (grades 68): boys were victimized dating violence in approximately 1,700 English-
42 % and perpetrated 36 %; girls were victims 38 % and French-speaking New Brunswick youth
and were perpetrators 21 % of the time. (1120 years old). They reported significant differ-
Sexual assault includes unwanted sexual ences between the percentages of adolescent girls
touching, forcing, or pressuring a partner to con- and boys experiencing psychological and/or phys-
sent to sexual activity, rape, and attempted rape ical abuse, 22 % and 12 %, respectively, and sexual
and attempting or having intercourse with abuse, 19 % and 4 %, respectively. Overall, 29 %
a person who is under the influence of alcohol of adolescent girls and 13 % of boys in the sample
or drugs, including the so-called date rape drugs reported some abuse in their dating relationships.
that are administered with the purpose of render- What is the impact of dating violence? Several
ing a victim vulnerable to rape (Abbey, 2002). studies have documented the possible effects of
Similar to sexual and physical abuse, emo- the victims of dating violence as ranging from
tional abuse varies in its intensity and its conse- depression to anxiety, suicidal ideation, and poor
quences. It includes behavior such as insulting or educational outcomes (Banyard & Cross, 2008;
swearing at a partner, belittling them, threatening Wekerle & Tanaka, 2010), especially for girls,
or terrorizing them, destroying their property or who tend to suffer more serious forms of abuse.
possessions, isolating them from friends and Why does dating violence happen? Not all
relatives, and treating them with irrational pos- youth has the same vulnerability to being abused
sessiveness or extreme jealousy (Kelly, 2008). by a dating partner. The interconnections
Emotional abuse originates in the aggressors between dating violence; a trauma history; often
desire to control the other persons behavior. linked to child maltreatment; and the related
Undermining their partners self-confidence adolescent issues of using substances, sexuality,
limits their ability to act independently. Society and delinquency have been highlighted in recent
too often downplays the effects of emotional studies. Wolfe, Scott, Wekerle, and Pittman
abuse because there is no visible harm. As (2001) confirmed that female students with
a result, communities offer little support to deal a maltreatment history had much higher emo-
with emotional abuse by either men or women. tional distress than girls without such a history;
Notably however, these forms of abuse often boys were much more likely to report both
co-occur (Sears & Byers, 2010). The act of phys- depression and trauma symptoms and to be at
ically or sexually abusing a partner carries with it greater risk to use threats or physical violence
explicit emotional abuse: the notion that the against their dating partners. Similarly, Wolfe,
abuser has the power to carry out these acts with Wekerle, Scott, Straatman, and Grasley (2004)
few repercussions. Sexual violence is often an reported that trauma-related symptoms were
aspect of physical violence (Smith, White, & significantly predictive of dating violence for
Holland, 2003). both boys and girls.
D 1456 Dating Violence

OKeefes 1997 US research identified some prevention efforts for youth are the most common
reasons why adolescent girls and boys behave form of dating violence prevention. Most provide
violently to their dates. The primary reason information in the hope of informing or changing
reported by both men and women was a way of attitudes with respect to problem behaviors,
showing anger, although females were signifi- preventing bullying being an obvious example.
cantly more likely to declare this than males. Others teach about positive (prosocial) skills
Self-defense was the second most frequently such a good communication or problem-solving
given reason for young women, whereas for skills so that relationship problems such as dating
young men it was gaining control of their part- violence do not develop in the first place.
ner. Other factors included an increased likeli- Another rationale for offering healthy relation-
hood of violence when one or both had been ship programs is to encourage youth to disclose
drinking alcohol. Having been exposed to domes- and seek assistance if they have been abused by a
tic violence within the family was a significant boyfriend or girlfriend. Few researchers have
predictor of inflicting dating violence for males, examined adolescents willingness to seek help
but not females. Conflict in the relationship and related to dating violence. Rather, the literature
the seriousness of the relationship were signifi- on dating violence and help-seeking more often
cant factors that young women associated with focuses on adolescents unwillingness to seek help
the initiation of dating violence. or, if they do seek help, to whom do they turn?
Sears, Byers, Whelan, Saint-Pierre, and The Ashley and Foshee (2005) reported that 60 %
Dating Violence Research Team (2006) conducted of the adolescents did not seek help with dating
separate gender focus groups with high school violence victimization.
students in New Brunswick to understand their Do violence prevention programs work? Ting
views of physical and psychological abuse in dat- (2009) conducted meta-analyses on the effective-
ing relationships. The genders tended to view the ness of 13 healthy relationship programs from
behaviors differently and reported less physical but 1990 to 2007, concluding that, overall the
more emotional abuse. For example, they tended to program participants improved their knowledge
see physical abuse and emotional abuse as abusive and attitudes towards dating violence (p. 328).
only in specific circumstances, such as when jeal- Whitaker et al. (2006) reviewed 11 evaluations of
ousy was paired with a threat of physical harm. primary prevention programs that address partner
Boys defined behaviors as abusive by its negative violence. Only three evaluations were judged as
intent, girls by its negative impact. These gender having high-quality research designs and methods:
differences have implications for how to engage Foshee et al. (2005) for Safe Dates; Wolfe et al.
boys and girls with prevention programming. (2003) for the Youth Relationship Project for high-
In summary, dating violence happens all too risk youth, developed by the authors of the Fourth
frequently to North American youth, with severe R; and Pacifici, Stoolmiller and Nelson (2001),
consequences to those directly affected. Educat- which primarily focused on sexual coercion.
ing youth and young adults so that they can avoid Each reported that the program had positively
abusive partners or leave the relationships early is impacted the students knowledge. Nine of the 11
the main goal of dating violence prevention studies found at least one positive effect related to
programs. the program; however, most of these were with
respect to knowledge and attitudes, begging the
Preventing Dating Violence questions of whether these lead to behavioral
Healthy relationship or dating violence programs changes. Both Safe Dates and the Youth Relation-
are one strategy to protect and prevent young ship Project reported improvements in behavior
adults from being abused by partners. Commonly over extended follow-up periods.
offered in middle and high schools, such programs Crooks, Wolfe, Hughes, Jaffe, and Chiodo
vary from one-time presentations to in-depth cur- (2008) conducted research on a program entitled
ricula (Tutty et al., 2005). School-based violence the Fourth R with over 1,500 grade 9 students in
Dating Violence 1457 D
10 intervention and 10 control schools using a Crooks, C. V., Wolfe, D. A., Hughes, R., Jaffe, P. J., &
cluster randomized controlled (RCT) design. Rel- Chiodo, D. (2008). Development, evaluation and
national implementation of a school-based program
ative to controls, the Fourth R students learned the to reduce violence and related risk behaviors: Lessons
materials and had significant gains in knowledge from the Fourth R project. Institute for the Prevention
and attitudes pertaining to violence, substance of Crime Review, 2, 109135.
use, and sexual health. Foshee, V. A., Bauman, K. E., Ennett, S. T.,
Suchindran, C., Benefield, T., & Fletcher Linder, G.
Wolfe and colleagues (2009) published (2005). Assessing the effects of the dating violence
another article on the same cluster randomized prevention program Safe Dates using random
trial with 2.5-year follow-up to the Fourth R, coefficient regression modeling. Prevention Science, D
presenting data from 1722 14- to 15-year-old 6(3), 245258.
Kelly, K. (2008). Violence in dating relationships. An
students from 20 public schools (52.8 % girls). overview paper. Ottawa. ON: National Clearinghouse
The program was more effective for boys and of Family Violence. On-line at: http://www.phac-aspc.
reduced PDV (physical dating violence) and gc.ca/ncfv-cnivf/pdfs/fem-2006-dat_e.pdf
increased condom use 2.5 years later at a low Lavoie, F., Robitaille, L., & Hebert, M. (2000). Teen
dating relationships and aggression: An exploratory
per-student cost (p. 692). study. Violence Against Women, 6(1), 636.
To conclude, if prevention programs are effec- Marquart, B. S., Nannini, D. K., Edwards, R. W.,
tive in helping youth identify abusive situations and Stanley, L. R., & Wayman, J. C. (2007). Prevalence
either avoid them or ask for assistance, the long- of dating violence and victimization: Regional and
gender differences. Adolescence, 42, 645657.
term health and behavioral consequences of abuse McMaster, L. E., Connolly, J., Pepler, D., & Craig, W. M.
could be drastically reduced. At present, healthy (2002). Peer to peer sexual harassment in early adoles-
relationship programs are not offered to the cence: A developmental perspective. Development
majority of students in schools or postsecondary and Psychopathology, 14, 91105.
OKeefe, M. (1997). Predictors of dating violence among
institutions. A relatively modest initiative in such high school students. Journal of Interpersonal
programming could safeguard the next generation. Violence, 12(4), 546568.
Pacifici, C., Stoolmiller, M., & Nelson, C. (2001).
Evaluating a prevention program for teenagers on
sexual coercion: A differential effectiveness approach.
Cross-References Journal of Consulting and Clinical Psychology, 69(3),
552559.
Child Maltreatment: Physical Abuse Price, E. L., Byers, E. S., Sears, H. A., Whelar, J., & Saint-
Domestic Violence Pierre, M. (2000). Dating violence amongst new
Brunswick adolescents: A summary of two studies.
Violence Against Women Fredericton, NB: Muriel McQueen Ferqusson Centre
for Family Violence Research. Online at: www.unb.
ca/web/frederictor/arts/centres/mmfc/-resources/pdfs/
References adodating-e.pdf
Sears, H. A., & Byers, E. S. (2010). Adolescent girls and
Abbey, A. (2002). Alcohol-related sexual assault: boys experiences of psychologically, physically,
A common problem among college students. Journal and sexually aggressive behaviors in their dating rela-
of Studies in Alcohol, Supplement no. 14, 118128. tionships: Co-occurrence and emotional reaction.
Ashley, O. S., & Foshee, V. A. (2005). Adolescent Journal of Aggression, Maltreatment & Trauma, 19,
help-seeking for dating violence: Prevalence, 517539.
sociodemographic correlates, and sources of help. Sears, H. A., Byers, E. S., Whelan, J. J., Saint-Pierre, M.,
Journal of Adolescent Health, 36, 2531. & The Dating Violence Research Team. (2006). If it
Banyard, V. L., & Cross, C. (2008). Consequences of teen hurts you, then its not a joke: Adolescents ideas
dating violence: Understanding intervening variables about girls and boys use and experience of abusive
in ecological context. Violence Against Women, 14(9), behavior in dating relationships. Journal of Interper-
9981013. sonal Violence, 21(9), 11911207.
Chiodo, D., Wolfe, D. A., Crooks, C., Hughes, R., & Smith, P. H., White, J. W., & Holland, L. J. (2003).
Jaffe, P. (2009). Impact of sexual harassment victimi- A longitudinal perspective on dating violence
zation by peers on subsequent adolescent victimization among adolescent and college-age women. Journal
and adjustment: A longitudinal study. Journal of Ado- of American Public Health Association, 93,
lescent Health, 45, 246252. 11041109.
D 1458 Day Centers

Ting, S. R. (2009). Meta-analysis on dating violence pre- Definition


vention among middle and high schools. Journal of
School Violence, 8, 328337.
Tutty, L., & Bradshaw, C., Thurston, W. E., Barlow, A., A community-based nonmedical intervention,
Marshall, P., Tunstall, L., Dewar, M. E., Toy-Pries, D., based on participation in activity and social
Thomlinson, D., Este, D., Meadows, L., interaction.
Josephson, W., Dobko, S., Proulx, J., Perrault, S.,
McDonald, M., & Nixon, K. (2005). School based
violence prevention programs: Preventing violence
against children and Youth (Revised Ed.). Calgary: Description
AB: RESOLVE Alberta. Online at www.ucalgary.ca/
resolve/violenceprevention/ Research indicates that day center attendance
Wekerle, C., & Tanaka, M. (2010). Adolescent dating
violence research and violence prevention: An oppor- may affect quality of life by mainly two
tunity to support health outcomes. Journal of Aggres- pathways: the social interaction taking place and
sion, Maltreatment & Trauma, 19, 681698. the activities in which the attendees may engage
Whitaker, D. J., Morrison, S., Lindquist, C., Hawkins, (Tjornstrand, Bejerholm, & Eklund, 2011). Day
S. R., ONeil, J. A., Nesius, A. M., et al. (2006).
A critical review of interventions for the primary pre- centers differ in nature depending on their target
vention of perpetration of partner violence. Aggression population. This presentation is focused on the
and Violence Behavior, 11, 151166. adult population and addresses people with
Wolfe, D. A., Crooks, C., Jaffe, P., Chiodo, D., Hughes, psychiatric disabilities, those with intellectual
D., Ellis, W., Stitt, L., & Donner, L. (2009). A school-
based program to prevent adolescent dating violence: disabilities, and the elderly.
A cluster randomized trial. Archives of Pediatric Ado- Regarding people with psychiatric disabilities,
lescent Medicine, 163(8), 692699. day center participation tends to improve
Wolfe, D. A., Scott, K., Wekerle, C., & Pittman, A. their quality of life (Rebeiro, Day, Semeniuk,
(2001). Child maltreatment: Risk of adjustment prob-
lems and dating violence in adolescence. Journal of OBrien, & Wilson, 2001). Ongoing, unpublished
the American Academy of Child and Adolescent research shows that level of engagement in day
Psychiatry, 40(3), 282289. center activities accounts for 1625 % of the
Wolfe, D. A., Wekerle, C., Scott, K., Straatman, A., & variation in quality of life. The more engagement,
Grasley, C. (2004). Predicting abuse in adolescent
dating relationships over 1 year: The role of child in terms of showing interest, feeling involved,
maltreatment and trauma. Journal of Abnormal and taking on responsibility, the better
Psychology, 113(3), 406415. perceived quality of life. However, findings are
Wolfe, D. A., Wekerle, C., Scott, K., Straatman, A., inconclusive, and previous research has not
Grasley, C., & Reitzel-Jaffe, D. (2003). Dating vio-
lence prevention with at-risk youth: A controlled out- identified a relationship between day center
come evaluation. Journal of Consulting and Clinical attendance and general quality of life. A more
Psychology, 71(2), 279291. detailed analysis indicated that the day center
attendees scored higher than the non-attendees
on the quality of life domains of satisfaction
with work and satisfaction with economy
Day Centers (Eklund, 2009).
Day centers have also shown to improve
Mona Eklund the quality of life for people with intellectual
Department of Health Sciences, Lund University, disabilities, compared to a campus-based pro-
Lund, Sweden gram (Hartnett et al., 2008). The participants
found new social roles, hobbies, and work
opportunities, which contributed to the increase
Synonyms in quality of life. The research in the area is very
scarce, however.
Activity day centers; Day structuring programs; With respect to elderly people, it has
Day-care centers; Occupation-based mental been shown that day centers serve as an
health programs important meeting place for persons who would
De Morton Mobility Index 1459 D
otherwise be isolated in their homes because of Sviden, G. A., Tham, K., & Borell, L. (2004). Elderly
physical limitations. Compared to a rehabilitation participants of social and rehabilitative day centres.
Scandinavian Journal of Caring Sciences,
center, a social day center facilitated psychoso- 18, 402409.
cial well-being more (Sviden, Tham, & Tjornstrand, C., Bejerholm, U., & Eklund, M. (2011).
Borell, 2004). Participation in day centers for people with psychiatric
Research on day centers is very scarce. disabilities characteristics of the occupations
performed. Scandinavian Journal of Occupational
The most investigated target group seems to be Therapy, 18, 234253.
people with psychiatric disabilities, although
a review concluded that basically nothing is D
known about how effective day centers are
for well-being in that group (Catty, Burns,
Comas, & Poole, 2007). Extremely little is Day Structuring Programs
known about how day center participation
affects the quality of life among people with Day Centers
intellectual disabilities and among the elderly.
That type of research needs to be addressed
in the near future. The effect of day center
participation on the attendees quality of life Day-Care Centers
may be seen as a most significant indicator of
the quality of day centers. Until a more solid Day Centers
knowledge base is obtained, the role of day
centers in promoting quality of life must be
considered unclear.
Daylight
Cross-References Light and Quality of Life

Activities of Daily Living


Disability
Leisure Time
DCA

Discrete Choice Analysis


References

Catty, J., Burns, T., Comas, A., & Poole, Z. (2007). Day
centers for severe mental illness. Cochrane Database
of Systematic Reviews, 2007(1). Art. No.: CD001710. De Morton Mobility Index
doi:10.1002/14651858.CD001710.pub2.
Eklund, M. (2009). Work status, daily activities and
quality of life among people with severe mental Megan Davidson
illness. Quality of Life Research, 18, 163170. School of Physiotherapy, La Trobe University,
Hartnett, E., Gallagher, P., Kiernan, G., Poulsen, C., Bundoora, VIC, Australia
Gilligan, E., & Reynolds, M. (2008). Day service
programmes for people with a severe intellectual dis-
ability and quality of life: Parent and staff perspec-
tives. Journal of Intellectual Disabilities, 12, 153172. Definition
Rebeiro, K. L., Day, D. G., Semeniuk, B., OBrien, M. C.,
& Wilson, B. (2001). Northern initiative for social
action: An occupation-based mental health program.
The de Morton Mobility Index (DEMMI) is a
American Journal of Occupational Therapy, 15-item, clinician-administered measure of
55, 493500. function in older adults.
D 1460 De Morton Mobility Index

Description and with the 6-m Walk Test, Step Test, timed
up and go test, 6-min Walk Test, and modified
The de Morton Mobility Index (DEMMI) is a clinical test of sensory organization and balance
15-item clinician-rated performance-based mea- (de Morton & Lane, 2010). Another study shows
sure of mobility in older adults. A large initial strong correlation with a modified Barthel Index
item pool was generated from existing instru- but no correlation with Charlson Comorbidity
ments, focus groups with clinicians, and patient Index (de Morton, Brusco, Wood, Lawler, &
interviews. Item reduction was achieved on prac- Taylor, 2011). DEMMI scores have been shown
tical grounds and by Rasch analysis to identify a to be significantly higher in people being
unidimensional set of items (de Morton, discharged home from acute or subacute care
Davidson, & Keating, 2008). The 15-items are compared to those being discharged to
administered sequentially from easiest to hardest, a rehabilitation or residential care setting (De
from bed (3 items), chair (3 items), static balance Morton et al., 2010; de Morton & Lane, 2010).
(4 items), walking (2 items), and dynamic In a subacute setting, patients walking indepen-
balance (3 items) activities. The total score ranges dently or with a walking stick had significantly
from 0 to 100 where 0 indicates very poor mobil- higher DEMMI scores than patients using other
ity and 100 is independent mobility. The DEMMI walking aids or who were non-ambulant (de
can be administered with minimal equipment by Morton & Lane, 2010). In a transitional care
any trained healthcare professional. The DEMMI setting, there was a significant difference in
and supporting materials can be located at the scores for patients assessed as high level versus
instrument website www.demmi.org.au/demmi/ low level residential care (de Morton et al., 2011).
web/home.html. A Dutch translation is available The minimum clinically important difference
(Jans et al., 2011). has been reported as 10 points in an acute setting
(de Morton et al., 2008, 2010), 8.4 points in a
Reliability and Measurement Error subacute (rehabilitation) setting (de Morton &
An inter-rater reliability coefficient of r 0.94 Lane, 2010), 1012 (de Morton et al., 2011) in a
(95%CI 0.86 to 0.98) has been reported in an transitional care setting, and 7 points in a healthy,
acute medical inpatient population (de Morton community-dwelling sample (Davenport & de
et al., 2008) and r 0.87 (95%CI 0.76 to 0.94) Morton, 2011).
in a subacute setting (de Morton & Lane, 2010).
The minimum detectable change (90 % Head-to-Head Comparisons with Other
confidence) has been reported as 9.51 points Scales
(de Morton et al., 2008), 12.7 points (de Morton The DEMMI has been reported to have similar
& Lane, 2010), and 13 points (Davenport & responsiveness to the HABAM but is more
de Morton, 2011) in an acute, subacute, and responsive than the Barthel Index (de Morton
community setting, respectively. For the Dutch et al., 2010, 2011). The DEMMI has fewer floor
translation, the inter-rater reliability was or ceiling effects than the HABAM or the Barthel
ICC 0.85 (95%CI 0.71, 0.93), and MDC90 7 Index (de Morton et al., 2010).
points.
Strengths
Validity and Minimum Clinically Important The DEMMI Scale has interval properties.
Difference It is practical to administer across the
DEMMI scores are moderately to strongly corre- continuum of care.
lated with scores on the Barthel Index and the Minimum training is required.
Hierarchical Assessment of Balance and
Mobility (HABAM) (de Morton, Davidson & Limitations
Keating, 2010); with the Lower Extremity Func- Very demanding physical activities are not
tional Scale (Davenport & de Morton, 2011); represented.
Dead-End Jobs 1461 D
References wage increments (Bihagen & Ohls, 2007). There
are several possible reasons for assuming that
Davenport, S. J., & de Morton, N. A. (2011). Clinimetric occupations in themselves differ in career chances
properties of the de Morton Mobility Index in healthy,
and therefore that career chances are not only
community-dwelling older adults. Archives of Physi-
cal Medicine and Rehabilitation, 92, 5158. determined by the efforts and characteristics of
De Morton, N. A., & Lane, K. (2010). Validity and reli- individuals, e.g., human capital, but also by the
ability of the de Morton Mobility Index in the subacute occupation individuals are found in. Bihagen and
hospital setting in a geriatric evaluation and manage-
Ohls (2007) suggest and describe a way of
ment population. Journal of Rehabilitation Medicine, D
42, 956961. constructing measures of the career chances of
De Morton, N. A., Brusco, N. K., Wood, L., Lawler, K., & occupations from data on the typical wage incre-
Taylor, N. F. (2011). The de Morton Morton Mobility ments of individuals in different occupations
Index (DEMMI) provides a valid method for measur-
based on the International Standard Classification
ing and monitoring the mobility of patients making the
transition from hospital to the community: An obser- of Occupations (ISCO-88). Measures related to
vational study. career chances of occupations can be used for
De Morton, N. A., Davidson, M., & Keating, J. L. (2008). a number of purposes, e.g., to study health and
The de Morton Mobility Index (DEMMI): An essential
quality of life (QOL) outcomes. There is a vast
health index for an ageing world. Health & Quality of
Life Outcomes, 6, 63. doi:10.1186/1477-7525-6-63. literature on socioeconomic status (SES) and
De Morton, N. A., Davidson, M., & Keating, J. L. (2010). health/QOL (cf., Elo, 2009; Graham, 2007), but
Validity, responsiveness and the minimal clinically we do not find any on dead-end jobs and health/
important difference for the de Morton Mobility
QOL. Bihagen and Ohls (2007) used measures of
Index (DEMMI) in an older acute medical population.
BMC Geriatrics, 10, 72. DEJ for shedding light on the question of whether
Jans, M. P., Slootweg, V. C., Boot, C. R., de Morton, womens career chances in Sweden are due to an
N. A., van der Sluis, G., & van Meeteren, N. L. overrepresentation of women in occupations that
(2011). Reproducibility and validity of the Dutch
generally lack career chances. Their results indi-
translation of the de Morton Mobility Index
(DEMMI) used by physiotherapists in older patients cate that such an overrepresentation is one factor
with knee or hip osteoarthritis. Archives of Physical for womens lacking career chances in Sweden.
Medicine and Rehabilitation, 92, 18981905. Related terms for dead-end jobs that have been
used in sociological and economical writings are
secondary labor market (Doeringer & Piore,
1971), labor contract (Erikson & Goldthorpe,
Dead-End Jobs 1992), or plainly bad jobs (Kalleberg, Reskin,
& Hudson, 2000). These terms are partly related
Erik Bihagen and Marita Ohls to occupations career chances but refer to more
Swedish Institute for Social Research, Stockholm than the career chances of an occupation. The
University, Stockholm, Sweden perhaps closest concept is labor contract which is
part of Erikson and Goldthorpe (1992), definition
of social classes. Some occupations (in combina-
Synonyms tion with employment status variables), in larger
aggregates as social classes, are characterized by
Bad jobs; Labor contracts; Secondary labor a labor contract, where the lack of career ladders is
market an important feature. The largest difference
concerns the derivation of the measures where
DEJ may be derived empirically directly from
Definition the indicators of career chances in occupations
while the Erikson and Goldthorpe class schema
A dead-end job (DEJ) can be seen as an occupa- is claimed to be derived in a more theoretical
tion that does not offer career opportunities: there fashion or/and by indicators of employment
are no career ladders and few opportunities for relationships (Rose & Harrison, 2010).
D 1462 Dead-End Jobs

Description additional historical explanation, it has been


suggested that occupations with a larger relative
This description of the concept dead-end job inflow of women than men are devalued
(DEJ) aims to (1) describe why career chances (England, 1992), which may even concern
vary between occupations, i.e., the theoretical career opportunities. These three basic explana-
background of the concept; (2) show how tions for the emergence of a career job are not
DEJ can be measured; (3) describe some necessarily as disparate as they may appear here,
empirical findings related to gender segregation e.g., jobs with long-term rewards may be created
in the Swedish labor market; and (4) suggest in order to keep replacement costs low, but
some future empirical studies of relevance the advantages may continue to exist even after
for DEJ. the rational base for them has disappeared as
a consequence of union activities (cf., Doeringer
Theoretical Background & Piore, 1971).
Although DEJ, as it is defined by Bihagen and Turning the argument around, these theories
Ohls (2007), says nothing about why occupations suggest that an occupation would tend to be orga-
differ in career chances, there are several previ- nized as a DEJ when it is characterized by a low
ous theoretical ideas why employees within sim- level of acquisition of specific human capital,
ilar occupations typically have similar long-term associated with an easily measured output, and
advantages and disadvantages at the job level, lacks a history of exclusionary practices, or other
i.e., as employees within work organizations. historical circumstances that serve to enhance
First, occupations differ in the level of specific career opportunities. Occupations with such char-
human capital required for performing the work acteristics would tend to offer only a low degree
tasks within the occupation. Specific human of future rewards in terms of additional pay with
capital is attained through work experience and time spent in the job and possibilities to advance
on-the-job training. Hence, the potential replace- in a hierarchy of positions. The list of reasons for
ment cost for the employer, i.e., the cost of an occupation to be a DEJ should be seen as
replacing one employee with another employee, preliminary: more theoretical ideas may develop
is higher the more the occupation is associated in the future, and more research is warranted
with acquisition of specific human capital. concerning the relative importance of such
As a way to lower these costs, employers offer reasons.
long-term advantages, e.g., career opportunities,
for their employees (Doeringer & Piore, 1971; The Measurement of Dead-End Jobs (DEJ)
Goldthorpe, 2000). Second, occupations differ At the operational level, a DEJ in Bihagen and
in the degree to which work tasks can or cannot Ohls (2007) was defined as an occupation with
be easily monitored, i.e., in the degree to which a generally low level of wage growth for
the outcome of work can be easily measured in employees staying with the same employer over
terms of quantity and quality. The employer time. More specifically, the average wage growth
would tend to offer long-term benefits to for occupations was estimated irrespective of
employees within occupations characterized by whether the employees changed occupations as
monitoring problems as a way to create incen- long as they stayed with the same employer.
tives to perform well (Goldthorpe, 2000). Third, Ultimately DEJs should be defined as occupa-
occupations have a history, e.g., in the sense that tions that generally lack career opportunities in
incumbents of occupations have organized them- terms of wage increments and promotion
selves into unions and other associations (Grusky chances. It was argued that wage increments
& Sorensen, 1998; Tilly, 1998; Weeden, 2002). and promotion chances are highly associated as
Such activities may strengthen formalized they probably have common causes and that
career ladders and other long-term advantages a promotion generally results in a wage incre-
linked to certain occupations. Finally, as an ment. Bihagen and Ohls (2007) discussed some
Dead-End Jobs 1463 D
problems related to the use of occupational tran- The results of Bihagen and Ohls (2007) confirm
sition data for this purpose: (1) many promotions this picture: women in Sweden are more often
take place within broad categories of occupations than men allocated to occupations at lower hier-
as measured by occupational classifications. archical levels with few career opportunities, and
(2) Occupational transitions have a clear such occupations are in the Swedish case often
ceiling above which no further upward transitions found in the public sector, e.g., in occupations
are possible (cf., Srensen & Tuma, 1981). such as occupations relating to personal care.
According to Bihagen and Ohls (2007), This is in line with the conclusion of Baxter and
wage data captures both promotions and other Wright (2000), who argue that the focus of D
wage increments in an easier way than what research on gender differences in career opportu-
would be the case with the use of occupational nities should be shifted to lower hierarchical levels
transition data. (cf., Bihagen & Ohls, 2006). According to Baxter
Bihagen and Ohls (2007) argued for internal and Wright (2000; p. 290), most research within
wage growth to be the best indicator of career this field is preoccupied with the glass-ceiling
chances of occupations (and the lack of such). hypothesis, resulting in a situation in which most
The reason for restricting the interest to wage attention is paid to the top of hierarchies.
growth within firms was that being in an occupa- Nonetheless, it is worth stressing that more
tion within a firm and not experiencing any research is needed in order to compare the
considerable wage growth was seen as a more explanatory strength of this structural account of
clear-cut indicator of holding a dead-end job career chances with more traditional ones focus-
than having an occupation within a firm and ing on, e.g., human capital, motherhood penal-
then changing employer but keeping roughly the ties, or discrimination. Moreover, the DEJ
same wage. hypothesis says nothing about why women tend
Measuring career chances of occupations with to end up in such occupations.
the use of data for individuals who also shift
occupation may be seen as peculiar. However, it Future Relevant Research Areas
was argued that career ladders sometimes include A measure of occupations career chances, as
occupational shifts. Thus, restricting the analyses a continuous variable or as a categorical, could
to respondents within the same occupation be of use for several purposes, not the least for
over time would have underestimated the studying gender segregation in the labor market.
career opportunities of occupational positions An avenue for future research is to study associ-
that are typically held for a short period of ations in between career chances of occupations
time and left for higher positions (Bihagen & and quality of life indicators: how bad is it to end
Ohls, 2007). up in a dead-end job? However, more research is
warranted to validate the measure and also to
Dead-End Jobs and Gender Segregation in study how stable such measures are across time
the Swedish Labor Market and countries. There are a number of stratification
It has been suggested that gender differences in measures available for researchers, and each of
career prospects are mainly due to the concentra- them attempts to measure different aspects of
tion of women in dead-end jobs (Granqvist & socioeconomic differentiation. Future research
Persson, 1998; Groot & Maassen van den Brink, would perhaps gain from more comparisons
1996). The DEJ hypothesis, i.e., that womens between those. Although the DEJ measure
fewer career opportunities are due to their over- attempts to only cover low career chances, we
representation in DEJs, would be supported to the do not know how it is associated with general
extent that, first, within-firm career chances are income levels of occupations or general skill
similar for men and women who start in the requirements of occupations, which are
same occupation and, second, that women more both important aspects of social stratification
often than men are found in such occupations. (Tahlin, 2006).
D 1464 Death

References
Death
Baxter, J., & Wright, E. O. (2000). The glass ceiling hypoth-
esis. A comparative study of the United States, Sweden,
Bereavement
and Australia. Gender and Society, 14, 275294.
Bihagen, E., & Ohls, M. (2006). The glass ceiling where
is it? Womens and mens career prospects in the
private vs. the public sector in Sweden 19792000.
The Sociological Review, 54(1), 2047. Death and Dying
Bihagen, E., & Ohls, M. (2007). Are women over-
represented in dead-end jobs? A Swedish study using Bereavement
empirically derived measures of dead-end jobs. Social
Indicators Research, 84(2), 159177.
Doeringer, P. B., & Piore, M. J. (1971). Internal labor
markets and manpower analysis. Lexington, MA:
Heath Lexington Books. Death Penalty Opinion
Elo, I. T. (2009). Social class differentials in health and
mortality: Patterns and explanations in comparative Attitudes Toward the Death Penalty
perspective. Annual Review of Sociology, 35, 553572.
England, P. (1992). Comparable worth. Theories and
evidence. New York: Aldine de Gruyter.
Erikson, R., & Goldthorpe, J. H. (1992). The constant flux:
A study of class mobility in industrial societies. Death Rate
Oxford: Clarendon.
Goldthorpe, J. H. (2000). On sociology. numbers, narra- Panagiotis Liargovas
tives, and the integration of research and theory.
Department of Economics, University of
Oxford: University Press.
Graham, H. (2007). Unequal lives: Health and socio- Peloponnese, Tripolis, Greece
economic inequalities. Buckingham: Open University
Press.
Granqvist, L., & Persson, H. (1998). Career mobility in
the private service sector- Are women trapped in
Synonyms
bad jobs?, EC/DGV OECD/DEELSA-seminar
paper. Luxembourg: Office for Official Publications Mortality rate
of the European Communities.
Groot, W., & Maassen van den Brink, H. (1996). Glass
ceilings or dead ends: Job promotion of men and
women compared. Economic Letters, 53, 221226. Definition
Grusky, D. B., & Srensen, J. B. (1998). Can class analysis
be salvaged? The American Journal of Sociology, Death rate is a statistical measure of the change
103(5), 11871234.
in the number of people living in specific area.
Kalleberg, A. L., Reskin, B. F., & Hudson, K. (2000). Bad
jobs in America: Standard and nonstandard employ- Higher death rates result in a decrease in popula-
ment relations and job quality in the United States. tion resulting from deaths in a country, city, or
American Sociological Review, 65, 256278. region. Quality of life is usually negatively
Rose, D., & Harrison, E. (Eds.). (2010). Social class in
related to death rates.
Europe: An introduction to the European socio-
economic classification. Abingdon(Oxon): Routledge.
Srensen, A. B., & Tuma, B. T. (1981). Labor market
structures and job mobility. Research in Social Strat- Description
ification and Mobility, 1, 6794.
Tahlin, M. (2006). Class clues. European Sociological
Death rate is generally determined by the
Review, 23(5), 557572.
Tilly, C. (1998). Durable inequality. Berkeley, CA/ number of deaths occurring during a given period
London: University of California Press. (usually 1 year) per 1,000 persons, also known as
Weeden, K. A. (2002). Why do some occupations pay mortality rate; thus, a death rate of 7.5 in
more than others? Social closure and earning inequal-
a population of 1,000,000 would mean 7,500
ity in the United States. The American Journal of
Sociology, 108, 55101. deaths per year in the entire population or 0.75 %
Debt 1465 D
out of the total. Death rate should not be confused Mortality Rates
with the rate which refers to the number of indi- Public Health
viduals in poor health during a given time period Quality of Life
or the number of newly appearing cases of a
disease per unit of time (Koch, 2008). A disease-
specific death rate covers deaths due to only one References
disease and is often reported on the basis of
100,000 persons. The population base may be Koch, G. (2008). Basic allied health statistics and analysis
defined by age, gender, or other characteristics.
(3rd ed.). New York: Delmar-Gengage Learning. D
Saunders, J. (1988). Basic demographic measures:
The risk of death for both sexes is high immedi- A practical guide for users. Boston: University of
ately after birth, diminishing during childhood, America.
and reaching a minimum at 1113 years of age.
The risk then rises again, until at late ages it sur-
passes that of the first year of life. Generally, the
risk of death at any given age is less for females Debate of Ideas
than for males, except during the childbearing
years. Together with the birth rate, infant mortal- Public Opinion
ity, and life-span, the death rate gives information
about the populations health. The death rate
depends on socioeconomic conditions and on the
degree to which science and public health have Debt
developed. As recently as the early twentieth cen-
tury, the principal causes of death throughout the Christian Suter
world were infectious diseases. The major cause of Institut de Sociologie, Universite de Neuchatel,
death in the economically developed countries Neuchatel, Switzerland
since the mid-twentieth century has been
noninfectious diseases. In the developing coun-
tries, the determining factors continue to be infec- Synonyms
tious and parasitic diseases. The death rate, while
only a rough indicator of the mortality situation in Financial obligations; Indebtedness; Liabilities
a country, accurately indicates the current mortal-
ity impact on population growth. The importance
of the future course of death rate in the aging Definition
society of the western world is very high.
In contrast to the past, now death rate decline is a Debt refers to the financial obligations of indi-
powerful cause of population aging (Saunders, viduals, households, companies, governments,
1988). Death rate is significantly affected by age or other institutions that are borrowed from,
distribution, and most developed countries will and owed to, one or several creditors or lenders.
eventually show a rise in the overall death rate, in Debt liabilities require the payment of interest,
spite of continued decline in mortality at all ages, and/or the amortization of principal, by the
as declining fertility results in an aging population. debtor to the creditor.

Cross-References Description

Developing Countries There are various forms of debt. They are


Health usually distinguished by one of the following
Mortality criteria: type of debtor, type of creditor, maturity
D 1466 Debt

composition of the debt, currency composition country and issued in the domestic capital mar-
of the debt, and the type of debt instruments. ket are considered as domestic debt. In contrast,
1. Type of debtor: Debts may be incurred by debt denominated in a foreign currency and
individuals, households, companies, as well issued in a foreign capital market is known as
as governments (at the federal, state, or local foreign debt.
level) and public institutions. Therefore, 5. Type of debt instruments: There is a wide vari-
private debt, owed by individuals, households ety of debt instruments. Their relevance varies
(personal debt), and companies (corporate among debtor and creditor types but also over
debt), has to be distinguished from public time, across countries, and between socioeco-
debt, owed by the government and public nomic groups. Thus, regarding individual and
institutions of a country. household debt, the most important financial
2. Type of creditor: Regarding the type of instruments are home mortgages, that is,
creditor, private creditors, official creditors, secured loans for purchasing real estate prop-
and multilateral financial institutions are usu- erty, and consumer credits. The latter consists
ally distinguished. The most important credi- of installment loans for financing the purchase
tors are private lenders, notably banks and of durable consumer goods (cars, household
financial institutions, but also companies equipment, hobby/sport equipment), educa-
outside the banking sector. Other private cred- tional loans, credit card debt, etc. Individual
itors are individuals and households. Official debt furthermore includes tax debts and other
creditors are public institutions, mainly central outstanding bills. Debt instruments for private
and local governments and central banks. Mul- business include bank loans (including short-
tilateral financial institutions, finally, refer to term cash loans or lines of credit), trade credits
the lending of supranational institutions, nota- (i.e., delayed payments for purchased goods),
bly global institutions like the International commercial mortgages, and corporate bonds
Monetary Fund (IMF), the World Bank, and (long-term, tradable debt instruments issued
the Bank for International Settlements, but by a company). Corporate debt has to be
also to regional organizations, like the Euro- distinguished from equity funding and direct
pean Central Bank or the Regional Develop- investment which imply direct ownership and
ment Banks. Another important distinction management control over a given company and
refers to domestic and foreign creditors. Debt are, therefore, not regarded as debt instruments.
held by foreign investors, that is, by nonresi- Regarding public debt, the most important
dents, is usually denominated in foreign instruments include federal or municipal
currency and issued in foreign capital markets; bonds, bank credits, private and official export
this is known as external debt. Domestic debt, credits, bilateral and multilateral development
on the contrary, refers to debt held by residents assistance, and short- and medium-term
of a country. stabilization loans (like IMF credits).
3. Maturity composition: Debt instruments are In classical economic theory, the desire or
usually classified either as short-term or long- necessity to incur debts is often related to the
term obligations. Short-term debt refers to finan- mismatch between desired consumption, invest-
cial obligations that have a maturity (original or ment, or output, on the one hand, and available
remaining) of 1 year or less. Debt instruments income, revenues, capital, or savings on the other
with a maturity (original or remaining) of more hand (Barnes & Young, 2003). Thus, regarding
than 1 year are usually defined as long-term individual and household debt, life cycle theories,
debt; they also include medium-term debt for instance, argue that income in the earlier stages
instruments with a maturity of usually 15 years. of households or adults lives is still low but tend
4. Currency composition: Debt may be incurred in to increase substantially during professional life,
domestic or foreign currency. Debt instruments particularly for social groups with high education
denominated in the domestic currency of a levels and long professional careers, resulting in
Debt 1467 D
a consequent curvilinear lifetime earnings profile. service payments (e.g., for the coming year),
Individuals and households thus tend to borrow that is, when a shortage of liquid assets makes it
money when their income is still low in order to impossible to meet the immediate payments due.
smooth their consumption profile. Similarly, Liquidity problems typically arise as a result of
regarding corporate and public debtors, it is argued unexpected drops in income and revenues.
that borrowing allows them to close the gaps Liquidity problems are often (but not always)
between planned investments/expenditures and related to solvency problems, that is, the long-
actual revenues/available resources. term incapacity to service debt. The most impor-
Debt plays an increasing role in the financing of tant solvency indicators relate outstanding debt D
investment and consumption of individuals, stocks or flows of debt service payments to
households, companies, as well as governments income, revenues, and assets. These include the
and public institutions (Carruthers & Kim, 2011). ratio of debt to income; the ratio of debt service
This rising indebtedness is attributed to various payments to income (for individual and house-
factors: at the level of individuals and households, hold debt); the ratio of debt to financial assets or
increasing house prices, financial innovations equity (for corporate debt); the ratio of debt to
(increasing the accessibility of credit to house- GDP, fiscal revenue, or exports; and the ratio
holds), increasing college costs (in the case of of debt service payments (total debt service or
educational debt), changing attitudes towards interest payments only) to exports, public, or
credit, rising income inequality ( social inequal- fiscal revenues (for public debt; ratio of federal
ities, income distribution), and slow growth of debt to GDP, ratio of personal household debt to
low wages as well as demographic shifts have been GDP, ratio of total country debt to GDP). Indica-
mentioned (Barba & Pivetti, 2009; Chien & tors of liquidity problems include the ratio of
Devaney, 2001; Dynan & Kohn, 2007; Ritzer, reserves to short-term debt or to the prospective
1995). Regarding public debt, liquidity of capi- interest payments, the ratio of interest (or debt
tal markets, economic cycles, and fluctuations in service) payments to cash flow (for corporate
public revenues (taxes, export earnings) and debt), but also indicators of the maturity struc-
expenditures, but also political factors, like ture, like the ratio of short-term debt to total debt.
wars and nation-building processes, played an How is debt related to quality of life, individ-
important role (Suter, 2012). ual and societal well-being, and happiness?
Many individuals, households, companies, and Although there is a large body of literature on
countries struggle under the weight of excessive the relationship between economic resources
debt burdens. Not surprisingly, debt problems, (notably income and wealth) and well-being
insolvencies, bankruptcies, and default have (relative income), only little research has exam-
grown considerably over the past few decades, at ined the association between indebtedness and
the level not only of individuals, households, well-being, both on the micro-level (individuals
and companies but also of state and federal and households) and macro-level (regions,
governments (Sullivan, Warren, & Westbrook, municipalities, states, nations). Most studies
2006 and McCloud & Dwyer, 2011 for consumer dealing with the topic of debt and well-being
bankruptcy; Suter, 1992, 2012 for sovereign assume negative impacts, particularly as regards
debt crises). excessive indebtedness, financial troubles and
Several widely used debt ratios and debt economic stress, and insolvency (Dean, Car-
burden measures, based on both flow and stock roll, & Yang, 2007; Jacoby, 2002). The empirical
indicators, have been developed to assess evidence, however, is mixed, depending on the
the sustainability and the risks of debt, as well dimension of well-being/ quality of life, the
as the creditworthiness of debtors. These mea- debt variables included, and the debtors
sures notably refer to liquidity and solvency prob- resources and characteristics. Thus, at the level
lems. Liquidity problems concern the debtors of individuals and households, Drentea and
short-term inability to meet scheduled debt Lavrakas (2000) found negative effects of both
D 1468 Debt

the ratio of debt to income and an overall debt Cross-References


stress index (but not of credit card default) on
physical and self-reported health, whereas Bankruptcy
Dwyer, McCloud, and Hodson (2011) demon- Comparative Analysis
strated that credit card debt increases mastery Federal Debt to GDP, Ratio of
and self-esteem among young adults. Simi- Income Distribution
larly, at country level (i.e., with aggregated data Personal Household Debt to GDP, Ratio of
at the national level), some studies report nonsig- Public Debt
nificant relationships between (public) debt and Social Inequalities
quality of life, whereas others found negative
impacts (for more details cf. public debt).
More recent studies suggest interaction effects
at both the individual and national level. Thus,
References
Dew (2008) demonstrates that level of debt and Barba, A., & Pivetti, M. (2009). Rising household debt:
changes in consumer debts negatively impact Its causes and macroeconomic implications A long-
on marital satisfaction through relational period analysis. Cambridge Journal of Economics, 33,
mechanisms (loss of time together, conflict over 113137.
Barnes, S., & Young, G. (2003). The rise in US
finances). Similarly, the cross-national study of household debt: Assessing its causes and
Shandra, Nobles, London, and Williamson sustainability London: Bank of England (Working
(2004) shows that the deleterious effects of debt Paper Series, 206).
crises on social development and health are Carruthers, B. G., & Kim, J.-C. (2011). The sociology of
finance. Annual Review of Sociology, 37, 239259.
mediated by democracy, that is, countries Chien, Y., & Devaney, S. A. (2001). The effects of credit
with a low level of democracy are affected attitude and socioeconomic factors on credit card and
particularly badly. installment debt. Journal of Consumer Affairs, 35,
This demonstrates that the causal mechanisms 162178.
Dean, L. R., Carroll, J. S., & Yang, C. (2007). Material-
which link borrowing, debt, debt increases, or ism, perceived financial problems, and marital
insolvency to subjective well-being and happi- satisfaction. Family and Consumer Sciences Research
ness are not yet fully understood. Three areas Journal, 35, 260281.
would particularly merit further research. Firstly, Dew, J. (2008). Debt change and marital satisfaction
change in recently married couples. Family Relations,
more comprehensive and more differentiated 57(1), 6071.
research on the impact of debt on well-being is Drentea, P., & Lavrakas, P. J. (2000). Over the limit: The
needed, differentiating between the various types association among health, race, and debt. Social
of debt and between the different dimensions Science & Medicine, 50, 517529.
Dwyer, R. E., McCloud, L., & Hodson, R. (2011). Youth
of well-being, and paying more attention to inter- debt, mastery, and self-esteem: Class-stratified effects
action and contextual effects (including social of indebtedness on self-concept. Social Science
class, occupational and life course transitions, Research, 40, 727741.
relational resources, government policies, legal Dynan, K. E., & Kohn, D. L. (2007). The rise in U.S.
household indebtedness: Causes and conse-
system and practice). Secondly, more compar- quences (Finance and Economics Discussion
ative analysis and cross-national research is Series, 200737). Washington, DC: Federal Reserve
needed, particularly as regards individual and Board.
household indebtedness. Thirdly, the long-term Jacoby, M. (2002). Does indebtedness influence health?
A preliminary inquiry. The Journal of Law, Medicine
consequences of debt for well-being and quality & Ethics, 30, 560571.
of life of individuals and countries are still McCloud, L., & Dwyer, R. E. (2011). The fragile
unknown. On the individual level, this concerns, American: Hardship and financial troubles in
for instance, the long-term consequences of child, the 21st century. The Sociological Quarterly, 52,
1335.
youth, and student indebtedness; on the national Ritzer, G. (1995). Expressing America: A critique of the
level, the long-term relationship between debt global credit card society. Thousand Oaks, CA: Pine
and development trajectories. Forge.
Decision Latitude 1469 D
Shandra, J. M., Nobles, J., London, B., & Williamson, the extremes relative to the clustering and suggest
J. B. (2004). Dependency, democracy, and infant that there is greater variation than is really the
mortality. Social Science & Medicine, 59, 321333.
Sullivan, T. A., Warren, E., & Westbrook, J. L. (2006). case in all but a small number of observations
Less stigma or more financial distress: An empirical (such as the freak months in London when
analysis of the extraordinary increase in bankruptcy there is no rainfall).
filings. Stanford Law Review, 59, 213256. To avoid this problem, analysts use a number
Suter, C. (1992). Debt cycles in the world-economy:
Foreign loans, financial crises, and debt settlements, of measures of variation that focus on the
18201990. Boulder, CO: Westview. central part of the distribution. One common
Suter, C. (2012). Debt crises in the modern world-system. measure is the inter-quartile range, which shows D
In S. Babones & C. Chase-Dunn (Eds.), Routledge the difference between the lower and the upper
handbook of world-systems analysis (pp. 215223).
London/New York: Routledge. quartile of a distribution. Thus, if the median
annual rainfall for London is 580 mm, the lower
quartile is 540 mm, and the upper quartile
610 mm, then the inter-quartile range is
70 mm in half of all years, the annual rainfall
Debt Sustainability of Federal will fall within that range.
Governments The decile range looks at a wider scatter of
values. The observations are placed in order
Federal Debt to GDP, Ratio of from the largest to the smallest and the frequency
distribution is divided into ten equal parts i.e., if
there are 100 observations, ten of them fall within
each decile. The lowest decile is the first i.e.,
10 % of the observations have a smaller value
Decile Range and 90 % have a larger value; the upper decile
is the ninth 90 % of the observations have a
Ron Johnston smaller value and 10 % have a larger one. (Where
School of Geographical Sciences, University of the number of observations is not divisibly by
Bristol, Bristol, UK ten, then the location of each decile has to be
estimated. If there are 95 observations, for
example, the lowest decile lies half-way between
Definition the ninth and the tenth observation.) Thus, if the
lowest and upper deciles for Londons annual
The decile range is one of a large number rainfall are 510 and 650, respectively, then the
of ways of identifying the variation in a set of inter-decile range is 140 mm; in 80 % of all years,
observations on an interval or ratio measurement the amount of rain London receives will fall
scale; it is one of the general family of quantiles within that range.
which divide a distribution into n equal segments;
where n 2, the division is at the median; where
n 4, the division is into quartiles; where n 10, References
the division is into deciles, etc.
For any set of numbers, the range is the Rogerson, P. A. (2010). Statistical methods for
difference between the largest and the smallest geography: A students guide (3rd ed.). London: Sage.
value. However, whereas many such distribu-
tions have a small number of extreme values,
most of them cluster relatively close to the
median. By using the entire range as an Decision Latitude
indicator of the variation about the average
value, therefore, an analyst may overemphasize Task Discretion
D 1470 Decision Making

Description
Decision Making
Treatment decisional preferences have been
Thomas Hyphantis extensively studied in cancer patients, especially
Department of Psychiatry, University of in breast cancer, since treatment of this type of
Ioannina, Ioannina, Greece cancer involves difficult choices between medi-
cally justified treatment alternatives. It is well
established, for example, that both mastectomy
Synonyms and breast-conserving surgery with radiation
result in equivalent survival rates in early stages
Active, shared, or passive participation; of breast cancer (Veronesi et al., 2002), and
Decisional preferences; Decision-making women offered a choice of surgical treatment
preferences; Medical decision making; Patient were shown to have better psychological
participation; Patients role in medical treatment; well-being (Ashcroft, Leinster, & Slade, 1986;
Patient-physician collaboration; Treatment Fallowfield, Hall, & Maguire, 1994) and quality
choice of life (Hack, Degner, Watson, & Sinha, 2006).
Breast cancer patients preferences for
participation in treatment decisions vary among
Definition various countries worldwide and are influenced
by cultural, legal, religious, financial, and other
The patients participation in medical decision factors. In a Canadian study, 44 % of breast cancer
making has attracted much attention in recent patients preferred to share decisions with their
years, and patients autonomy has been increas- physicians (Degner et al., 1997a). Shared decision
ingly emphasized. In the decision-making making was also preferred by 64 % of patients in a
process, the patients role may range from US study (Keating, Guadagnoli, Landrum, Borbas,
an active role, that is, patients decide themselves & Weeks, 2002). Although studies from European
about treatment, through a sharing role, to countries reported lower rates of active and shared
a passive role, in which they delegate responsi- decision preferences, still only a small minority
bility of the decision to their physicians (Strull & (1017.3 %) wanted to delegate full responsibility
Charles, 1984; Degner & Sloan, 1992). The for the decision to doctors (Beaver et al., 1996;
traditional paternalistic approach has been exten- Wallberg et al., 2000). A recent study of women
sively challenged, and shared decision making is with breast cancer in Greece, however, showed that
increasingly considered as an ideal model of the vast majority of Greek women with breast
physician-patient interaction. In shared decision cancer wanted to play a passive role in treatment
making, providers and patients exchange infor- decision making (71.1 %), with many wanting to
mation, both express treatment preferences, and delegate responsibility for the decision completely
after joint deliberation they may reach a mutually to their physician (45.3 %) (Almyroudi, Degner,
accepted decision (Charles, Gafni, & Whelan, Paika, Pavlidis, & Hyphantis, 2011). By compari-
1997). The role the patients would like to assume son, in the Canadian study the proportion of breast
in the decision-making process is yet to be cancer patients who preferred a passive role was
clarified, but it seems that seeking information 34 % (Degner et al., 1997a). Although the relevant
and being involved in decision making enhance percentages reported in Europe are higher, with
the coping processes, which in turn promote the patients preferring a passive role being 24 % in
adjustment to the disease, at a time when patients the Netherlands (Jansen, Otten, & Stiggelbout,
experience significant levels of psychological 2006) and France (Protiere et al., 2000), 52 % in
distress. the UK (Beaver et al., 1996), and 66 % in Sweden
Decision Making 1471 D
(Wallberg et al., 2000), the rates in Greece remain of life at 12-week post-consultation (Hack et al.,
the highest reported, indicating the impact of 2010), and that women who indicated at baseline
the dominating paternalistic model of the doctor- that they were actively involved in choosing their
patient relationship in the Greek medical encounter surgical treatment had significantly higher physi-
(Almyroudi et al., 2011). It is important to note that cal and social functioning and significantly less
in this study, both passive role choice and less fatigue than women who assumed a passive role
information desired were associated with less (Hack et al., 2006). It has been also showed that
frequently seeking screening services such as active involvement and shared decision making
mammography and Pap test pre-diagnostically benefit cancer patients in general (Gattellari, D
(Almyroudi et al.), indicating that patient Butow, & Tattersall, 2001), while meeting the
education and abandonment of the traditional individuals preferences had also positive effects
paternalistic approach could play a significant on outcomes such as increased patient satisfaction,
part in cancer prevention. In this respect, despite reduced decisional conflict, and improved compli-
the higher proportions of shared and active ance with treatment in several medical illnesses
decisional preferences reported in most other (Anderson et al., 1995; Shepherd, Tattersall, &
countries, studies have shown that breast cancer Butow, 2007). Therefore, it has been suggested
patients often fail to achieve their preferred level of that health-care providers should make progress
involvement (Bruera, Willey, Palmer, & Rosales, toward a more patient-centered care, providing the
2001; Wallberg et al., 2000), as doctors underesti- patients with the appropriate information and the
mate patients preference for participating in choices available for their treatment, but always
treatment decision making (Bruera et al., 2001). being sensitive in detecting signs of psychological
A resent meta-analysis of studies using the distress or discontent (Almyroudi et al., 2011).
Control Preferences Scale in patients with
various types of cancer (Singh et al., 2010)
showed that the roles that cancer patients Measurements
preferred in treatment decision making were
26 % active, 49 % collaborative, and 25 % pas- Singh et al. (2010) have recently published a
sive, while the roles that patients reported actu- comprehensive meta-analysis of studies using
ally experiencing were 30 % active, 34 % the most widely used instrument for reliably
collaborative, and 36 % passive. More women assessing patients treatment decision prefer-
than men reported assuming a passive role, and ences, the Control Preferences Scale (Degner,
older patients preferred and were more likely Sloan, & Venkatesh, 1997b; Hack, Degner, &
than younger patients to assume a passive role Dyck, 1994). The Control Preferences Scale
(Singh et al.). The authors concluded that about has been developed by Hack and colleagues
half of the studied patients with cancer stated that (Hack et al., 1994) in an effort to develop a reli-
they preferred to have a collaborative relationship able and easy-to-administer instrument to mea-
with physicians but, although most patients had sure the degree of control a patient desires over
the decision-making role they preferred, about his or her medical decisions wherein patients
40 % experienced discordance, highlighting the were asked to rank five different roles in order
need for incorporation of individualized patient of preference. The development of the scale was
communication styles into treatment plans. This based on the unfolding theory by Coombs (1964).
need is further supported by evidences suggesting The Control Preferences Scale asks patients two
that women who received chemotherapy and questions about how much decision-making
reported having played a more passive role in control they would like to have and how much
treatment decision making had significantly decision-making control patients perceived that
greater distress and lower cancer-specific quality they actually experienced. There are five response
D 1472 Decision Making

Decision Making,
Fig. 1 The Control
Preferences Scales Card
A active role (Published
after the kind permission of
Prof. L. Degner and Prof.
T. Hack. English version
available from Prof. T. Hack
at: THack@sbrc.ca; Greek
version available from Prof.
T. Hyphantis at:
tyfantis@cc.uoi.gr)
I PREFER TO MAKE THE FINAL SELECTION
ABOUT WHICH TREATMENT I WILL RECEIVE.

Decision Making, I PREFER TO MAKE THE FINAL SELECTION


Fig. 2 The Control OF MY TREATMENT AFTER SERIOUSLY
Preferences Scales Card
B active collaboration CONSIDERING MY DOCTORS OPINION.
role (Published after the
kind permission of Prof.
L. Degner and Prof.
T. Hack. English version
available from Prof.
T. Hack at: THack@sbrc.
ca; Greek version available
from Prof. T. Hyphantis at:
tyfantis@cc.uoi.gr)

categories with associated stick figure drawings from the patient being the primary decision
for each of the following five control options: maker (A), through shared decision making (C),
active role (Fig. 1), active collaboration (Fig. 2), to the patient being the passive recipient of the
shared decision preferences (Fig. 3), passive col- physicians decisions (E) (Degner et al., 1997)
laboration (Fig. 4), and passive role (Fig. 5). (Fig. 6).
The responses can be further collapsed into The Control Preferences Scale has been
three categories with preferred roles ranging applied in several studies worldwide, and studies
Decision Making 1473 D
Decision Making,
Fig. 3 The Control
Preferences Scales Card
C shared decision making
(Published after the kind
permission of Prof.
I PREFER THAT MY DOCTOR AND I
L. Degner and Prof.
T. Hack. English version SHARE RESPONSIBILITY FOR DECIDING
available from Prof.
WHICH TREATMENT IS BEST FOR ME.
T. Hack at: THack@sbrc.
ca; Greek version available D
from Prof. T. Hyphantis at:
tyfantis@cc.uoi.gr)

I PREFER THAT MY DOCTOR MAKES THE


Decision Making, FINAL DECISION ABOUT WHICH TREATMENT
Fig. 4 The Control
Preferences Scales Card WILL BE USED, BUT SERIOUSLY CONSIDERS
D passive collaboration MY OPINION.
(Published after the kind
permission of Prof.
L. Degner and Prof.
T. Hack. English version
available from Prof.
T. Hack at: THack@sbrc.
ca; Greek version available
from Prof. T. Hyphantis at:
tyfantis@cc.uoi.gr)

have shown that it is a brief and valid measure of information needs is the Cassileths Information
the patients treatment decision preferences Styles Questionnaire (Cassileth et al., 1980),
(Degner et al., 1997a, 1997b) with good psycho- which assesses patients general and specific
metric properties in diverse samples (Adams, information preferences. It consists of three parts.
Drake, & Wolford, 2007). Part one measures the amount of information
Since participation in treatment decisions details desired by patients on a five-point Likert
presupposes that the patient has been provided scale. Part two assesses the desire for specific types
with accurate information about the treatment of information concerning disease, treatment
options, their potential benefits, and side effects, options, and psychosocial needs, on a three-point
an assessment of patients information needs Likert scale. Finally, in part three, patients are
usually accompanies the assessment of patients asked to choose a statement that best describes
treatment decisional preferences. The most their general attitude toward information regarding
widely used tool for the assessment of patients their illness.
D 1474 Decision Making

Decision Making,
Fig. 5 The Control
Preferences Scales Card
E passive role (Published
after the kind permission of
Prof. L. Degner and Prof.
T. Hack. English version
available from Prof.
T. Hack at: THack@sbrc.
ca; Greek version available
from Prof. T. Hyphantis at:
tyfantis@cc.uoi.gr) I PREFER TO LEAVE ALL DECISIONS
REGARDING MY TREATMENT TO MY
DOCTOR.

Collaborative Role

C. I Prefer That My Doctor and I


Share Responsibility for Deciding
Which Treatment Is Best for Me

Active Role Passive Role

B. I prefer to Make the Final Decision About D. I Prefer That My Doctor Make the Final
My Treatment After Seriously Considering Decision About Which Treatment Will Be
My Doctors Opinion. Used but Seriously Consider My Opinion.

A. I Prefer to Make the Decision About E. I Prefer to Leave All Decisions Regarding
Which Treatment I Will Receive. Treatment to My Doctor.

Decision Making, Fig. 6 The Control Preferences Scale (Degner et al., 1997b)

Cross-References Breast Cancer Patients, Surgery, and Quality of


Life
Active Coping Care Needs, Supportive
Adaptation Character Strengths
Attitude Measurement Choice
Decision Making 1475 D
Health Determinants Degner, L. F., & Sloan, J. A. (1992). Decision making
Human Rights during serious illness: What role do patients really
want to play? Journal of Clinical Epidemiology,
Locus of Control 45, 941950.
Mastectomy Degner, L. F., Kristjanson, L. J., Bowman, D., Sloan, J. A.,
Medical Care, Satisfaction with Carriere, K. C., O Neil, J., et al. (1997a). Information
Moral Theories needs and decisional preferences in women with breast
cancer. Journal of the American Medical Association,
Need Fulfillment 277(18), 14851492.
Need Theory Degner, L. F., Sloan, J., & Venkatesh, P. (1997b). The
Oncology control preferences scale. The Canadian Journal of D
Patient-Physician Communication Nursing Research, 29, 2143.
Fallowfield, L. J., Hall, A., & Maguire, P. (1994). Psycho-
Perceived Freedom logical effects of being offered choice of surgery for
Preference Satisfaction Theories breast cancer. BMJ, 309, 448.
Preference-Based Measures of Health-Related Gattellari, M., Butow, P. N., & Tattersall, M. H. N. (2001).
Quality of Life Sharing decisions in cancer care. Social Science &
Medicine, 52, 18651878.
Psychological Adjustment to Illness Scale Hack, T. F., Degner, L. F., & Dyck, D. G. (1994).
(PAIS) Relationship between preferences for decisional con-
trol and illness information among women with breast
cancer: A quantitative and qualitative analysis. Social
Science & Medicine, 39(2), 279289.
References Hack, T. F., Degner, L. F., Watson, P., & Sinha, L. (2006).
Do patients benefit from participating in medical
Adams, J. R., Drake, R. E., & Wolford, G. L. (2007). decision making? Longitudinal follow-up of women
Shared decision-making preferences of people with with breast cancer. Psycho-Oncology, 15, 919.
severe mental illness. Psychiatric Services, 58(9), Hack, T. F., Pickles, T., Ruether, J. D., Weir, L., Bultz,
12191221. B. D., Mackey, J., et al. (2010). Predictors of distress
Almyroudi, A., Degner, L. F., Paika, V., Pavlidis, N., & and quality of life in patients undergoing cancer
Hyphantis, T. (2011). Decision making preferences therapy: Impact of treatment type and decisional role.
and information needs among Greek breast cancer Psycho-Oncology, 19(6), 606616.
patients. Psycho-Oncology, 20(8), 871879. Jansen, S. J. T., Otten, W., & Stiggelbout, A. M. (2006).
Anderson, R., Funnell, M., Butler, P., Arnold, M., Factors affecting patients perceptions of choice
Fitzgerald, J., & Feste, C. (1995). Patient empower- regarding adjuvant chemotherapy for breast cancer.
ment: Results of a randomized controlled trial. Breast Cancer Research and Treatment, 99, 3545.
Diabetes Care, 18, 943949. Keating, N. L., Guadagnoli, E., Landrum, M. B., Borbas,
Ashcroft, J. J., Leinster, S. J., & Slade, P. D. (1986). C., & Weeks, J. C. (2002). Treatment decision making
Mastectomy vs breast conservation: Psychological in early-stage breast cancer: Should surgeons match
effects of patient choice of treatment. In M. Watson patients desired level of involvement? Journal of
& S. Greer (Eds.), Psychological issues in malignant Clinical Oncology, 20(6), 14731479.
disease. Oxford: Pergamon Press. Protiere, C., Viens, P., Genre, D., Cowen, D., Camerlo, D.,
Beaver, K., Luker, K. A., Owens, R. G., Leinster, S. J., Gravis, G., et al. (2000). Patient participation in med-
Degner, L. F., & Sloan, J. A. (1996). Treatment deci- ical decision-making: A French study in adjuvant
sion making in women newly diagnosed with breast radio-chemotherapy for early breast cancer. Annals of
cancer. Cancer Nursing, 19(1), 819. Oncology, 2, 3945.
Bruera, E., Willey, J. S., Palmer, J. L., & Rosales, M. Shepherd, H. L., Tattersall, M. H. N., & Butow, P. N.
(2001). Treatment decisions for breast carcinoma: (2007). The context influences doctors support of
Patient preferences and physician perceptions. Cancer, shared decision making in cancer care. British Journal
94(7), 20762080. of Cancer, 97, 613.
Cassileth, B. R., Zupkis, R. V., Sutton-Smith, K., & Singh, J. A., Sloan, J. A., Atherton, P. J., Smith, T., Hack,
March, V. (1980). Information and participation pref- T. F., Huschka, M. M., et al. (2010). Preferred roles in
erences among cancer patients. Annals of Internal treatment decision making among patients with
Medicine, 92, 832836. cancer: A pooled analysis of studies using the Control
Charles, C., Gafni, A., & Whelan, T. (1997). Shared Preferences Scale. The American Journal of Managed
decision making in the medical encounter: What does Care, 16(9), 688696.
it mean? (Or it takes at least two to tango). Social Strull, W. M., & Charles, B. (1984). Do patients want
Science & Medicine, 44(5), 681692. to participate in medical decisions? Journal of the
Coombs, C. H. (1964). A theory of data. New York: Wiley. American Medical Association, 252(21), 22902294.
D 1476 Decisional Preferences

Veronesi, U., Cascinelli, N., Mariani, L., Greco, M.,


Saccozzi, R., Luini, A., et al. (2002). Twenty-year Defensible Space and Crime
follow-up of a randomized study comparing breast-
conserving surgery with radical mastectomy for early
breast cancer. The New England Journal of Medicine, Impact of Housing Design on Crime
347(16), 12271232.
Wallberg, B., Michelson, H., Nystedt, M., Bolund, C.,
Degner, L. F., & Wilking, N. (2000). Information
needs and preferences for participation in treatment
decisions among Swedish breast cancer patients. Acta
Oncologica, 39, 467476. Defining Urban Areas, Quality of Life

Vicente Royuela, Javier Romani and Jordi


Surinach
AQR-IREA Research Group, University of
Decisional Preferences
Barcelona, Barcelona, Spain
Decision Making
Synonyms

Territorial grouping using quality of life criteria;


Decision-Making Preferences Territorialization

Decision Making

Definition

A multicriteria methodology to define the territo-


Decomposition rialization of the region of Catalonia (Spain) is
presented. We adopt the classification of human
Top-Down QOL Models
needs proposed by Maslow (1975), which can be
used to implement a multidimensional measure-
ment of quality of life. We adopt simulta-
neously several criteria and techniques of
Decorative Arts grouping the territory: administrative areas,
commuting-based algorithms, and gravitational
Arts and Quality of Life techniques. These points help us build a system
of multicriteria urban areas consistent with the
overall use of time by individuals.

Decreasing Returns to Scale Description


Diminishing Returns
Introduction
We adopt the Maslow (1975) theory of human
needs in order to build a system of multicriteria
urban areas consistent with the overall use of time
Deductive Logic of individuals, coherent with the idea of quality of
life, which is the main force in the decision of
Validity, Logical localization of individuals. As an alternative to
Defining Urban Areas, Quality of Life 1477 D
traditional, single-criterion territorializations, we Some authors have criticized this classification,
combine different criteria and complementary but theres an almost general consensus in the
grouping techniques. idea of quality of life being a multidimensional
New territorial trends concerning to the local concept (Doyal & Gough, 1994; Heller, 1978;
environment cause the effects of local policy to go Wish, 1986). We need to study all its facettes in
beyond the municipality area and face the rigidity order to reach a full definition of quality of life.
of the administrative demarcations: officially, Thus, our framework has to deal with information
at the Spanish level, the local units are the munic- related to the normal activities of individuals.
ipalities (NUTS-V level in the European Union Another problem is the existence of nonline- D
territorial classification) and the provinces arities in the provision of services along the
(NUTS-III). We consider the need for the territory. For example, one big infrastructure as
existence of an intermediate territorial unit. Ideally a big hospital or a university can give service to a
speaking, this territorial unit should consist large territory, whereas a primary school covers a
of a group of neighboring municipalities, with narrower space. The final chosen criteria are
important ties of union, such as flows of people, the following ones: labor, education, health,
goods, services, and information between them. shopping, and leisure.
Our grouping methodology cannot be
restricted to the economic flows but also to all Data Base Description
the daily activities of the individuals, which The analysis focuses on the region of Catalonia
means multidimensionality of criteria. (NUTS II). Catalonia is divided into four
To define urban systems based on a provinces (NUTS III), Barcelona the most
multidimensional strategy, we have followed populated one, with 76 % of the regions inhab-
several steps: itants: 4,628,277 in 1996. Catalonia has 946
1. Election and specification of the criteria upon municipalities (NUTS-V), which are our basic
which the urban systems will be designed. unit of measurement.
2. Compilation of the necessary data for this On this territory we collected data related to
territorialization. the formerly selected areas:
3. Selection of particular methodologies related Labor: Data related to labor commuting comes
to each of the considered dimensions. Several from 2001 Census. They let us know the
complementary grouping methodologies were territorial distribution of workers and their
used in order to achieve flexibility and robust- travel-to-work habits.
ness in our results. Education: The 2001 Census data related to
4. Elaboration of the final territorialization: the education offer the amount of daily travelers
final results for each single variable are from homes to their place of study. Adminis-
presented in a double scale of systems and trative adscriptions of primary schools to sec-
subsystems. This final phase considers simul- ondary schools are also used.
taneously all the dimensions and levels. Health services: These data consider the
administrative ascriptions of health areas.
Criteria in the Definition of the Urban There are three levels, with different amounts
Systems of health services. We also collected the amount
In order to define the basic criteria for the con- of services located in every municipality.
struction of the urban systems of Catalonia, the Shopping: We have collected data of the number
concept of human needs must be introduced. of retail shops in all municipalities, and their
Maslow (1975) sees five different kinds of commercial space, measured in squared meters.
needs: physiological needs, health and security, Leisure: Cultural and sport facilities. We have
ownership and love, need to being loved, collected data about libraries, disaggregated
and self-fulfillment. Once we have fulfilled the by their typology, to build a weighted library
most basic needs, we are ready for other needs. index using the relative importance of libraries.
D 1478 Defining Urban Areas, Quality of Life

We also considered museums, art galleries, which are capable of automatically aggregating
theaters, cinemas, and auditoriums. Using the municipalities into local labor markets
information about the number of visitors and (Casado-Daz & Coombes, 2004 is a good
spectators of all cultural facilities, we have survey). Palacio (1998), Casado-Diaz (2000),
calculated the weights of an overall cultural Castaner, Vicente, and Boix (2000), Royuela
facilities index: museums 25 %, cinemas and Vargas (2009), or Roman, Surinach, and
70 %, and theaters 5 %. Finally, we also used Arts (2006) have implemented these algorithms
information about sports facilities. Using the for different Spanish regions. These algorithms
number of federative licenses in Spain for have been adapted and used successfully in dif-
every sport, we weighted all different sport ferent countries and regions, like the United
facilities, getting a final index of sport facili- Kingdom, the Netherlands, Italy (ISTAT, 1997,
ties. In order to compute a final index of 2002), or Denmark (Andersen, 2002). Roca-
culture, leisure, and sport, we used the Cladera and Moix (2005) stress the importance
Time Use Survey 20022003 in Spain to of the interaction between areas.
weight the amount of time that people We have adapted Roman et al. (2006)
devote to practice sport or to assist to cultural methodology, similar in some aspects to the
activities. These final weights were Libraries, MIRABELLE algorithm used in France
12 %; Cultural facilities, 45 %; and Sport (Casado-Daz & Coombes, 2004; INSEE,
facilities, 43 %. 1998a, 1998b). We consider this algorithm an
We also used 5-year cohort population improvement over previous methodologies, due
pyramids, from the 2001 Census, and travel to its nonhierarchical nature, and it has been used
time between municipalities. for both labor and study commuting flows. Its
main characteristics are as follows:
Brief Description of the Chosen First, we consider flows (i j) from each
Methodologies municipality to the rest: each municipality i
Different methodologies, depending on the type is clustered with the municipality j that
of information available, have been used: receives the largest commuting flow from i,
commuting-based algorithms, gravitational and but only if this flow is larger than 10 % of
electrical equilibrium forces, multidimensional all the employed workers living in i. This
scaling and clustering methods, and administra- procedure is repeated, thus aggregating
tive criteria. municipalities until all flows larger than
10 % have been used.
Commuting-Based Algorithms Municipalities which have not been grouped
Commuting-based algorithms are used for in the first step are aggregated to the
commuting flow data, like workers or students system (group of municipalities, as defined
commuting flows. This methodology has been above) to whom they send the largest
widely used in many countries for small commuting flow.
area definition purposes. The most used method The urban systems (aggregations of municipali-
is the local labor markets, first proposed ties) obtained are revised: the objective is to
by Fox and Kumar (1965) and based in the find any municipality that might have been
use of daily commuting flows. Smaller munici- clustered into a group because of a large
palities are aggregated to larger ones, where commuting flow to a single municipality of
an important fraction of the residents in this group, but, when aggregate flows are
smaller municipalities commute daily. Authors, considered, shows a higher attachment to
like Coombes, Green, and Openshaw (1986), a different group.
Smart (1974) Van Der Laan (1998), or Pacinelli The resulting urban systems are constrained to
(1998), have developed this idea into algorithms, fulfill the following criteria:
Defining Urban Areas, Quality of Life 1479 D
Defining Urban Areas, Quality of Life, and demand of the different services (retail, cul-
Table 1 Number of territorial aggregations. Labor and tural, leisure, and sports services). We define the
studies
following forces:
Municipalities Subsystems Systems
Labor commuting 946 84 62 
GFSSij Si  Sj dij b ;
Study commuting 946 153 73 
GFDDij Di  Dj dij b ;

EFij difi  difj dij b
D
Self-containment: External inflows and Being
outflows are minimized. The number of i, j Municipalities
workers who both live and work in the Sj Quantity of service supplied in municipality j
urban system should be as high as possible. Dj Demand of the service at municipality j
Size (population): A lower (30,000) and a difij SiDj Difference between supply at
higher (200,000) population limit is consid- municipality i and demand at municipality j
ered desiderable. Anyway, this condition is dij Distance between municipality i and
not too strict, and these figures have been municipality j
scaled down for the education systems. GFSSij Gravitational force supply-supply
Subdivision of larger systems: Following between municipality i and municipality j
the same criteria used to create the urban GFDDij Gravitational force demand-demand
systems, the larger ones can be divided into between municipality i and municipality j
subsystems. EFij Electric force between municipality i and
Coincidence between urban systems and municipality j. difi and difj must have opposite
administrative boundaries: In some cases, signs
municipalities are assigned to an urban These expressions reflect the intensity of the
system which mostly belongs to a attraction force between municipalities i and j.
provincia (NUTS-III) different from the The greater this force, the larger the flows
municipalitys. In such cases, a trade-off between both municipalities. Each force can be
rule is developed to ensure that each used to identify a different type of aggregation
municipality is kept in the provincia it (Costa, Navarro, & Rovira, 1996). The best
belongs unless ties with municipalities aggregations of municipalities are found using
from other provincias are strong. a combination of both electrical and gravitational
This methodology ascribes each municipality forces:
into a higher-order territorial division (urban  
systems and urban subsystems (see Table 1)). Fij GFSSij EFij =2

Gravitational and Electrical Forces Models and Fij is the arithmetical mean of the electrical
Multivariate Scaling and Clustering Methods and gravitational forces. Costa et al. (1996) used
These techniques have been used when the only a quadratic potence (b 2), while we use a cubic
information available was the offer and demand potence (b 3), which allows us to impose
of services (commercial, cultural, leisure, and a larger importance to the proximity of retail,
sports). The objective is to identify the influence cultural, and leisure services. This is consistent
areas of some municipalities, which play an with the Catalan retail market structure (a strong
attraction role. The role of a municipality weight of small shopping premises). A second
depends on the different attraction forces. We reason for using this potence (b 3) is that no
will consider gravitational and electrical forces. contiguity conditions have been added in the
These magnitudes are calculated from the supply clustering methods used in the next steps.
D 1480 Defining Urban Areas, Quality of Life

Defining Urban Areas, Quality of Life, Table 2 Number of territorial aggregations as a function of cut distance:
commerce and culture
Second Third Fourth
Number of First aggregation aggregation aggregation aggregation
municipalities (dist1 0.0049) (dist2 0.0153) (dist3 0.0365) (dist4 0.3885)
Commerce: retail shops 946 261 181 139 40
Commerce: retail area 946 162 101 69 24
Leisure and culture 946 158 104 77 48
Cut distances have no direct economic meaning

Defining Urban Areas, Quality of Life, There are no definite criteria to decide the num-
Table 3 Number of territorial aggregations: commerce ber of systems (aggregations of municipalities).
and culture
We can define a function of the number of
Municipalities Subsystems Systems aggregations and the cut distance (Table 2).
Commerce: retail 946 160 79 The municipality with the largest supply of
shops
shopping, culture, and leisure services is consid-
Commerce: retail 946 123 62
area
ered head municipality. We have a complete list of
Leisure and 946 166 75 groups of municipalities (with their corresponding
culture head) for each aggregation level. This will be
useful later to solve any existing conflict among
the aggregation criteria.
Lastly, in order to have a tool for comparing
Defining Urban Areas, Quality of Life, the results using different criteria, a restriction
Table 4 Number of territorial aggregations from admin- to the aggregation process has been added:
istrative criteria: school and health facilities the importance of the resulting groups of munic-
Municipalities Subsystems Systems ipalities must be proportional to the number
School 946 740 220 of municipalities included. The results are
Health 946 188 46 shown in Table 3.
This method ensures the homogeneity of systems
and subsystems without the previous restriction of
municipalities being adjacent. On the other side, the
Demand forces are proxied by the use of this criterion assumes a certain error margin:
municipalitys population. In order to calculate Costa et al. (1996) obtain a 75 % success using
electrical forces, the supply measures of retail gravitational and electrical forces when comparing
services (number of retail shops and total retail with known commuting ascriptions.
area) and the Culture and Leisure offering
indexes have been rescaled so that their sum Administrative Criteria as a Proxy of the Political
equals the municipal population. and Social Context
Once the magnitude of attraction forces This methodology has been used when other
between each pair of municipalities is calculated, data were unavailable, or as a complement for
multidimensional scaling and clustering previous territorializations. We have analyzed
methods (as in Royuela and Duque 2013) can be all legal and administrative ascriptions to
used to aggregate municipalities into systems and higher-order urban systems. We have also
subsystems. We have opted for a hierarchical analyzed the supply of education and health
cluster aggregation. The distance between services for each municipality in order to
each pair of elements (i ! j) is the inverse of choose the head of each system or subsystem
the force Fij. (Table 4).
Defining Urban Areas, Quality of Life 1481 D
Defining Urban Areas, Quality of Life, Table 5 Use of The previous criteria are related to the
time of individuals (Catalonia, 20022003) individuals regular activities: people work and
Average daily study daily. They shop and assist to leisure
% of time for Average and cultural activities several times a week,
individuals individuals daily time
who perform who perform for all
and many people visit a health center at least
Activities the activity the activity individuals once a month. Thus, our final aggregations of
0 Self-care 100.00 11:29 11:29 municipalities must be a weighted average of
1 Work 38.90 7:57 3:05 the previous territorializations, as each one
2 Education 13.00 5:26 0:42 of them reflects a single activity performed at D
3 Home and 82.20 3:38 2:59 regular intervals. The weights should depend on
family the importance that each of these activities has
4 Voluntary 8.60 2:11 0:11 for an average person.
work and
meetings
We have consulted the Time Use Survey,
5 Social life 56.60 1:56 1:05 20022003, by the Spanish Statistics Institute
and leisure (INE). Table 5 shows the main results for
6 Sports and 35.70 2:00 0:43 Catalonia.
open-air Work is the most important of all activities
activities
that might imply trips, education, sports, and
7 Hobbies 16.20 1:42 0:16
and games
hobbies, home and family taking a secondary
8 Media 86.50 2:33 2:12
role. Shopping is included in home and family
9 Trips and 84.90 1:30 1:16 activities, while health care is included in
other self-care. Our final ponderation for time use is
nonspecified the one displayed in Table 6.
Once the weight of each criterion is decided,
the ascription of each municipality is analyzed.
All aggregations must have a head municipality
with a minimum level of economic and social
Defining Urban Areas, Quality of Life,
services. This task is performed at two levels
Table 6 Weights of the different commuting criteria
(urban systems and urban subsystems).
Criteria Weights
If a municipality (i) is tied by all criteria to a
Work 45.0 %
head municipality (j), this adscription is consid-
Education 13.8 %
ered final. If there are contradictions between
Shopping 13.8 %
criteria, the decision depends on the weights.
Health 13.8 %
Flow criteria (commuting or educational) are
Culture and leisure 13.8 %
considered more reliable than the ones based in
gravitational and electrical forces. As previous
studies (Costa et al., 1996) have obtained a
Ponderation of the Previous Criteria and Final 25 % of error chance with these criteria, their
Territorialization weights have been lowered in the same
The previous steps have led us to find unidimen- proportion.
sional aggregations of municipalities (each one of Thus, the following steps have been taken in
them defined using one criterion, or a few, closely order to decide the definitive ascriptions:
related criteria). We need a methodology to com- 1. Analyze each municipalitys capability as a
bine them into one, multidimensional territorial- potential head of a subsystem or a system
ization, which encompasses all criteria. Rules to when all criteria are taken into account
solve disagreements between criteria must also be (Table 4). A minimum size of three munici-
developed. palities or 2,000 residents for subsystems has
D 1482 Defining Urban Areas, Quality of Life

been imposed. We have followed the same several options, the municipality is tied to
restrictions for labor or study commuting the head to whom it shows more ascriptions.
data (Sect. 4.1), although these limits have In case of a draw between two heads,
been relaxed, proximity being more important commuting criteria have been used, as they
for aspects like education or shopping than for are considered error-free, while gravity and
working. We have obtained 123 subsystems, electric forces have an error margin of
which can be aggregated into 64 overall about 25 %. If the destination municipality
systems (Table 7). of the main labor commuting flow was
2. Calculate the ascriptions of each municipality to not a head, study commuting flows have been
systems and subsystems according to all criteria. used instead.
3. Analyze if all these ascriptions belonged to Our results show a higher number of groups
a municipality considered an overall head, as (64) than the administrative division in comarcas
defined in 1. (41). Map 1 shows overall systems for Catalonia,
4. Ascribe each municipality to its head of while Maps 28 show adscriptions to all the
subsystem or overall system. If a municipality individual criteria considered.
is tied to the same head for all criteria, the
ascription is straightforward. If there are
Conclusions
Defining Urban Areas, Quality of Life,
Table 7 Number of territorial aggregations considering
We have analyzed the main reasons for daily
a pool of different criteria
travel of Catalan population. Although the
Municipalities Subsystems Systems main reason for daily travel is commuting, it
Overall criterion 946 123 64 represents only 45 % of the total daily travel

Defining Urban Areas,


Quality of Life,
Map 1 Final multicriteria
(64 systems)
Defining Urban Areas, Quality of Life 1483 D
Defining Urban Areas,
Quality of Life,
Map 2 Labor commuting
(62 systems)

Defining Urban Areas,


Quality of Life,
Map 3 Study commuting
(73 systems)
D 1484 Defining Urban Areas, Quality of Life

Defining Urban Areas,


Quality of Life,
Map 4 High school
administrative adscriptions
(220 systems)

Defining Urban Areas,


Quality of Life,
Map 5 Retail shopping:
shops (79 systems)
Defining Urban Areas, Quality of Life 1485 D
Defining Urban Areas,
Quality of Life,
Map 6 Retail shopping:
shopping area (62 systems)

Defining Urban Areas,


Quality of Life,
Map 7 Health
administrative adscriptions
(46 systems)
D 1486 Defining Urban Areas, Quality of Life

Defining Urban Areas,


Quality of Life,
Map 8 Leisure and culture
(75 systems)

time of an average Catalan worker. Other daily Cross-References


displacements include shopping, studying,
leisure, and health. When designing territoriali- Time Trade-Off
zation algorithms, these travels have to be Urban Areas
considered.
The availability of data is not the same for all
these types of displacements: accurate travel data
exist for work and school commutes, but not References
for shopping, leisure or health displacements.
Thus, different methodologies have been Andersen, A. K. (2002). Are commuting areas relevant for
used depending on the data available. We have the delimitation of administrative regions in Denmark?
Regional Studies, 36(8), 833844.
used algorithms based on commuting flows Casado-Daz, J. M. (2000). Local labour market areas
(when known), electrical and gravitational in Spain: A case study. Regional Studies, 34(9),
forces when we only had information about 843856.
supply and demand of basic services, and we Casado-Daz, J.M. & Coombes, M.G. (2004). Delineation
of Local Labour Market Areas (LLMAs). NECTAR
included administrative information to complete Cluster 4 Workshop, Alicante, Spain.
our data. A common methodology is needed Castaner, M., Vicente, J., & Boix, G. (Coor.). (2000). Areas
to bring together all these single-criterion territo- urbanas y movilidad laboral en Espana. Girona: Servei
rializations. We have opted for an aggregation de Publicacions, Universitat de Girona. http://iei.ua.
es:9673/commuting/Libroareasurbanas.html.
based in Maslows (1975) classification of Coombes, M. G., Green, A. E., & Openshaw, S. (1986).
human needs and the use of time associated An efficient algorythm to generate official statistical
to them. reporting areas: The case of the 1984 travel-to-work
Defining Well-Being: Local Versus Public Policy Definitions 1487 D
areas revision in Britain. Journal of the Operational Smart, M. W. (1974). Labour market areas:
Research Society, 37, 943953. Uses and definition. Progress in Planning, 2(4),
Costa, A., Navarro, S., & Rovira, C. (1996). El ajuste 238253.
de la movilidad laboral obligada mediante Van Der Laan, L. (1998). Changing urban systems: An
modelos de atraccion. El caso del Censo de Poblacion empirical analysis at two spatial levels. Regional
1991 de Cataluna. Pamplona, Spain: XXII Reunion Studies, 32, 235247.
de Estudios Regionales. Wish, N. D. (1986). Are we really measuring the quality of
Doyal, L., & Gough, I. (1994). Teora de las necesidades life? Well-being has subjective dimensions, as well as
humanas. Madrid, Spain: Icaria/FUHEM. objective ones. American Journal of Economics
Fox, K. A., & Kumar T. K. (1965). The functional and Sociology, 45(1), 9399.
economic area: Delineation and implications D
for economic analysis and policy. Papers and
proceedings of the Regional Science Association, 15,
5785.
Heller, A. (1978). Las teoras de las necesidades en Marx.
Madrid, Spain: Pennsula. Defining Well-Being: Local Versus
INSEE. (1998a). Les decoupages du territoire. INSEE Public Policy Definitions
Methodes nums. 77, 77 and 78. Paris.
INSEE. (1998b). Les zonages : Enjeaux et methodes.
INSEE Methodes num. 83, Paris.
Francisco Zorondo-Rodrguez1, Aili Pyhala1 and
ISTAT. (1997). I sistemi locali del lavoro. Rome: Author. Victoria Reyes-Garca2
1
ISTAT. (2002). Metodologia utilizzata per lestime Institute of Environmental Science and
sulloccupazione residente e le persone in cerca di Technology, Autonomous University of
occupazione nei sistemi locali di lavoro per gli anni
19982000. Rome: Author.
Barcelona, Barcelona, Spain
2
Maslow, A. H. (1975). Motivacion y personalidad. ICREA and Institute of Environmental Science
Barcelona, Spain: Sagitario. and Technology, Autonomous University of
Pacinelli, A. (1998). Sullautocontenimento del Barcelona, Barcelona, Spain
lavoro nei sistemi locali del lavoro dellItalia
peninsulare. Unanalisi esplorativa dei SLL
dellItalia peninsulare. Economia e Lavoro, 32(2),
7390. Synonyms
Palacio, G. (dir.). (1998). Cohesio, centralitat i cohesio
iterativa a Catalunya: 198119861991avanc 1996.
Barcelona, Spain: Departament dObres Publiques,
Local indicators; Local means of well-being;
Generalitat de Catalunya. Local satisfiers
Roca-Cladera, J., & Moix, M. (2005). The interaction
value: Its scope and limits as an instrument for
delimiting urban systems. Regional Studies, 39(3),
357373.
Definition
Roman, J. Surinach, J., & Arts, M. (2006). Mobilitat
laboral obligada i sistemes urbans a la provincia de Measures of well-being aim to estimate and
Barcelona, 19912001. In: Informe territorial de la improve well-being levels among people. For
provncia de Barcelona (pp. 191220). Barcelona,
Spain: Cambra Oficial de Comerc, Industria i
that, well-being measurement tools should
Navegacio de Barcelona. Available at: http://www. balance the views of local community members
cambrabcn.org/c/document_library/get_file?uuid=acf and their definitions of well-being with the indi-
514c5-353c-46f5-a53f-3f82492cced4&groupId=153 cators used by government and development
3402.
Royuela, V. & Duque, J.C. (2013). HouSI: Heuristic
organizations. The balance between both
for delimitation of housing submarkets and price approaches would contribute to the adequate
homogeneous areas. Computers, Environment and measurement of well-being at the local
Urban Systems, 37(1), 5969. level. The study emphasizes the need for local
Royuela, V. & Vargas, M. A. (2009). Defining housing
market areas using commuting and migration
communities to become more involved in the
algorithms: Catalonia (Spain) as a case study. Urban process of evaluation and improvement of their
Studies, 46(11), 23812398. own well-being.
D 1488 Defining Well-Being: Local Versus Public Policy Definitions

Description which also represents the main approach to con-


ceptualize well-being adopted by local authorities.
Introduction. The involvement of local commu- According to HDR, Kodagu ranks fourth out of the
nity members and their views into the making of 27 districts of Karnataka in the ranking of HDI.
public policies of well-being has become a Kodagu has one of the highest levels of literacy,
keystone in the design of local well-being income, child immunization, school attendance
measurement tools (Swain & Hollar, 2003). In rate, and education infrastructure in Karnataka
this sense, the definition and evaluation of (Government of Karnataka, 2006). Nevertheless,
well-being depend on the social, economic, and the HDR recognizes that much remains to be done,
environmental attributes of each community mainly in terms of infant mortality, access to basic
(Sirgy, 2011). Nevertheless, a valid tool to facilities, gender and class inequalities, and rural-
measure well-being guided by well-established urban disparities.
theories would encourage and strengthen Methodology. We visited the study site
comparisons across studies and partnerships between November 2008 and April 2009. We
across agencies. The challenge then for an interviewed a total of 114 individuals from dif-
accurate well-being measurement tool lies in ferent settlements in Kodagu using a free-listing
achieving a balanced match between bottom-up technique to capture the local concept of
and top-down approaches. well-being. This technique is based on cultural
A well-balanced dialogue between top-down consensus theory and allows us to capture the
and bottom-up well-being approaches would agreement among people in a particular domain
strengthen both the sensibility and the ability of of knowledge, in this case, indicators (material
well-being-related public policies to predict and nonmaterial) of well-being. Free listings also
future outcomes (Hagerty et al., 2001). In partic- capture the relative saliency of each elicited
ular, this balance would allow for an environment element within the sample of individuals
in which people can develop their full potential (Puri, 2011). We asked individuals the following:
and lead productive, creative lives in accordance Think about the important things in your life.
with their needs and interests, as emphasized by Can you list all the important things you can think
the United Nations Development Programme of? We prompted respondents to list as many
(UNDP) in their definition of human develop- elements as they could conceive. We then asked
ment. Nowadays, UNDPs definition of human respondents to explain why they considered each
development is accepted worldwide, and its element important. Previously, we had tested
Human Development Index (HDI) is one of a set of questions, and we chose the question
the tools most widely used by policy makers described above because it was the phrasing that
around the world. people understood best. We then compared the
Here, we analyze the correspondence between list of elements elicited by people against the
this standard well-being measurement tool, the indicators used by the HDR. The correspondence
Human Development Index (HDI), and the was based on similarities (and dissimilarities) of
local concept of well-being. Specifically, we the underlying concept behind each elicited
assess whether the elements defined by local element and each HDRs indicator.
people as the most important to fulfill their Results. The individuals interviewed listed
well-being, hereafter referred to as local elements corresponding to 40 local means impor-
means, match with indicators adopted by the tant to fulfill their well-being. Our results show
HDI. We use cross-sectional data from a case similarities and dissimilarities between local
study in Kodagu district (state of Karnataka, means listed and HDR indicators. Similarities
India). were found in aspects of health, nutrition,
Study Site. The main tool to measure well- formal education, economy, and household
being in Kodagu is the Human Development security. On the other hand, people also
Report (HDR) (Government of Karnataka, 2006), elicited elements which are not included in the
Definitional Framework for the Concept of Well-Being 1489 D
HDR indicators, including items related to References
economic security, social and familiar relation-
ships, environment, agriculture, communication Government of Karnataka. (2006). Human development
report in Karnataka 2005. Bangalore, India:
and transport, spirituality, and governance. We
Planning and Statistics Department, Government of
also found that gender development, child labor, Karnataka.
and some indicators of health and education were Hagerty, M. R., Cummins, R. A., Ferriss, A. L., Land, K.,
included in the latest HDR for the area but were Michalos, A. C., Peterson, M., et al. (2001). Quality
of life indexes for national policy: Review and
not listed by any of the respondents.
agenda for research. Social Indicators Research, D
Discussion and Conclusions. A good match 55, 196.
between local means considered important for Puri, R. K. (2011). Documenting local environmental
local people and official indicators of well-being knowledge and change. In H. Newing, C. Eagle,
R. K. Puri, & C. W. Watson (Eds.), Conducting
would allow for a much more realistic estimation
research in conservation: A social science perspective
and assessment of well-being at a local level. (pp. 146169). New York: Routledge.
Our study shows a mismatch between local Sirgy, M. (2011). Theoretical perspectives guiding QOL
means and regional government indicators used indicator projects. Social Indicators Research, 103,
122.
to assess well-being. This finding suggests that
Swain, D., & Hollar, D. (2003). Measuring progress:
public policies on well-being in Kodagu neglect Community indicators and the quality of life. Interna-
the well-balanced dialogue between top-down tional Journal of Public Administration, 26, 789814.
and bottom-up approaches as a strategy to get
meaningful measurement tools. In order to assist
such a process, our study provides a set of ele-
ments that could be used as plausible local indi- Definitional Framework for the
cators of well-being. The combination of both Concept of Well-Being
top-down and bottom-up approaches could also
promote a healthy debate between citizens and Shlomit Levy
local authorities, fostering good governance. A. Harman Institute of Contemporary Jewry,
Studies like this one play an important role in The Hebrew University of Jerusalem,
emphasizing the need for local communities to Jerusalem, Israel
become more involved in the process of evalua-
tion and improvement of their own well-being.
We suggest that the local efforts on well-being Definition
should focus on getting a more complete list
of local means as well as maintain periodic The literature refers to the notion of well-being in
and long-term assessments on local means and a variety of ways, such as a state characterized by
well-being levels. We suggest that future happiness, health (physical and mental),
research should focus on understanding how and prosperity; a good satisfactory condition of
local means related to well-being evolve and existence; a persons good; and societys good. It
assessing their suitability for use as indicators of follows, then, that the concept of well-being
well-being. is multivariate as are most behavioral terms
and its study requires a definitional framework
to facilitate a view of this multivariate
Cross-References complexity. Such a definitional framework is
made possible by adopting the facet theory
Aboriginal Community Well-Being Index approach that suggests looking at the concept of
Community Capacity Building well-being as a multivariate one and views
Community Indicators and Public Interest each of the previous attempts at a definition as
Community QOL Measures emphasizing a specific aspect of the multifaceted
Human Well-Being in India concept.
D 1490 Definitional Framework for the Concept of Well-Being

Definitional Framework An item belongs to the universe of well-being items if and only if its
for the Concept of
cognitive
Well-Being, level
Fig. 1 Faceted definition domain asks for a affective assessment of
treatment
of Well-Being instrumental
of the state of social group (g) in some life area (1), and the range is
very satisfactory
ordered from to according to the
very unsatisfactory
normative criterion of the respondent for that area of life
(Levy and Guttman, 1975, p.364).

Description social well-being. For the purpose of theory


construction and research design, it has been
Defining Well-Being as a Multivariate found useful to define concepts through the uni-
Concept verse of items with which the theory is concerned
The concept of well-being is broad, as reflected (Guttman, 1982). This requires specifying facets
in the variety of ways it is defined (see above). for the domain (question part) and the range
Most of the definitions coincide with Kurt (possible answers) of the items. Accordingly, the
Lewins seminal life-space theory, according universe of well-being items was formally defined
to which people perceive an objectively defined in terms of facets as follows Fig. 1:
environment in a psychologically subjective This definition specifies the psychological
form. For example, Diener (2000) conceptualizes response in terms of several facets that classify
subjective well-being (SWB) as composed of three the content of the observations on well-being.
components: (1) life satisfaction as a whole and One facet specifies the subject whose well-being
with domains; (2) positive affect, experiencing is being studied: an individual or any social
many pleasant emotions and moods; (3) experienc- group. Morrison, Tay and Diener (2011) indicate
ing relatively low levels of negative moods. the lack of well-being studies that examine
Similar conceptualizations concerning this psy- the interrelations between personal and national
chological and complex response with respect to satisfaction, whether in overall terms or for
well-being can be found in many publications in specific life domains that are important for the
the field (to mention but a few: Campbell, 1976, understanding of societal well-being (they found
Michalos, 1991). The term well-being is thus only two major studies that examined this issue).
multivariate, and its study requires a definitional The subjects satisfaction (see also Veenhoven,
framework to facilitate a view of this multivariate 2000) concerns a situation (or treatment thereof)
complexity. Accordingly, a definition of the in a variety of life domains (e.g., family, health,
concept of well-being must refer to its multivariate economy, and religion) that are assessed in
nature on the one hand (for this matter, see also different modalities i.e., cognitive, affective,
Diener, & Fujita, 1995, Kim-Prieto, Diener, and instrumental (see also discussion in Andrews,
Tamir, Scollon, & Diener, 2005, Veenhoven, 1974, Andrews & McKennell, 1980, Andrews
2000) and to the commonality that holds its & Withey, 1976, Bradburn, 1969, Campbell,
various aspects together on the other. Most 1976, Kim-Prieto et al., 2005, Ostrom, 1969,
attempts at a definition of well-being relate mainly Wilkening, 1982).
to its common meaning in the sense of life satis- The facet approach allows to view each of the
faction (Abrams, 1973, Andrews, 1974, Diener, previous attempts at a definition as emphasizing a
1994, Hall, 1973, Veenhoven, 1991) or to the specific aspect of the multifaceted concept. How-
realization of peoples universal highest-order ever, something must hold all these aspects
goals (i.e., substantive needs) of physical and together, and this commonality is sought in
Definitional Framework for the Concept of Well-Being 1491 D
Definitional Framework An item belongs to the universe of attitude items if and only if its
for the Concept of
cognitive
Well-Being,
Fig. 2 Guttmans faceted domain asks about behavior in a affective modality toward an
definition of Attitude instrumental

very positive
object, and its range is ordered from to towards that
very negative
object (Guttman, in Gratch 1973, 1982: Levy 1985). D

terms of a common range namely, extent of implied in the faceted definition of well-being is to
satisfaction. There are two conditions for a be understood as normative. Indeed, this under-
universe of items to have a common range: standing appears in the literature. For example,
(1) the range of each item in the universe must Shin and Johnson (1978) have defined well-being
be ordered and (2) the ranges must have a as a global assessment of a persons quality of
uniform meaning of their orders regardless of life according to his own chosen criteria (p. 478).
their actual phrasing. The problem of meaning Though norms may vary from respondent
is semantic (substantive) and is related to the to respondent, it can be assumed that respondents
general framework of the research, while phras- of a certain society have essentially similar
ing is a technical problem. well-being norms on the life areas studied.
The suggested satisfaction range for
well-being items is clearly related to the concept Well-Being Is Attitudinal
of relative deprivation introduced by The above definition implies that the universe of
Samuel A. Stouffer in the morale research for well-being items is a subuniverse of attitudinal
the American Army in World War II (Stouffer, items. This proposition is supported by Guttmans
Suchman, DeVinney, Star, & Williams, 1949, definition of the universe of attitudinal items that
pp. 125130). According to this hypothesis, reads as follows (Guttman, 1973); Fig. 2:
satisfaction with ones situation depends not so The well-being items are classified according
much on an objective assessment of that situation to the modality facet. Furthermore, the
but on the discrepancy between this situation and well-being range of very satisfactory to very
ones expectations. For example, in the economic unsatisfactory is a special case of the attitudinal
area, objective income cannot by itself indicate range of very positive to very negative. Thus,
the level of economic well-being, though it is each well-being item has its domain, and its range
certainly related to it. A better indicator would conforms to those necessary and sufficient
be a subjective assessment of satisfaction with for attitudinal items (Levy, & Guttman, 1975,
the objective situation such as sufficiency of p. 369). This concept of well-being as an attitude
income. Here the respondent is implicitly asked is also stated by different authors such as
to assess his expectations from a given situation Andrews and Mckennel (1980, p. 127), who
(income). This coincides with Michaloss mul- claim that measures of perceived (subjective)
tiple discrepancies theory (MDT) regarding the well-being . . . are fundamentally measures of
discrepancy between what one has and what one attitudes. Similarly, Veenhoven (1991, p. 2)
wants (1991). Such an item shows how it is possi- suggests in his discussion on the concept of
ble to study personal economic well-being without happiness that we can speak of happiness as an
even knowing what the actual income is (of attitude towards ones life. However, these
course, for policy making much more information authors do not offer any systematic examination
is needed). Furthermore, the concept of the range of their proposition, as suggested by Levy and
from very satisfactory to very unsatisfactory Guttman (1975).
D 1492 Definitional Framework for the Concept of Well-Being

Conclusions Campbell, A. (1976). Subjective measures of wellbeing.


American Psychologist, 31, 117124.
Diener, E. (1994). Assessing subjective wellbeing:
The use of the facet approach in constructing Progress and opportunities. Social Indicators
the definitional framework for the concept of Research, 31, 103157.
well-being enables to view each of the previous Diener, E. (2000). Subjective wellbeing. American
attempts at a definition, as emphasizing a specific Psychologist, 55, 3443.
Diener, E., & Fujita, F. (1995). Resources, personal striv-
aspect of this multivariate concept. This defini- ings, and subjective wellbeing. Journal of Personality
tional framework places emphasis mainly on the and Social Psychology, 68, 275286.
universe of items with which the theory is Guttman, L. (1973). The history of the institute. In
concerned, thus serving as a systematic guide H. Gratch (Ed.), Twenty-five years of social research
in Israel (pp. 1138). Jerusalem: Jerusalem Academic
for item construction. Press.
Scientific definitions can never be correct or Guttman, L. (1982). What is not what in theory construc-
incorrect; rather, they can be reliable (or clear). tion. In R. M. Hauser, D. Mechanic, & A. Haller
Hypotheses are classified as correct or incorrect. (Eds.), Social structure and behavior (pp. 331348).
New York: Academic Press.
Scientific definitions are not fruitful by them- Hall, J. (1973). Measuring the quality of life using sample
selves but only in partnership with other surveys. In G. J. Stober & D. Schumacher (Eds.),
concepts. The issue is whether they fit into some Technology assessment and quality of life
partnership that leads to some forms of empirical (pp. 93101). Amsterdam: Elsevier.
Kim-Prieto, C., Diener, E., Tamir, M., Scollon, C., &
lawfulness. Indeed, this is the case regarding the Diener, M. (2005). Integrating the diverse definitions
above definitional framework for well-being of happiness: A time-sequential framework of subjec-
(Levy, 1990, Levy and Sabbagh 2008) and tive wellbeing. Journal of Happiness Studies, 6,
other disciplines (see the entry Facet Theory 261300.
Levy, S. (1985). Lawful roles of facets in social theories.
in this encyclopedia). The faceted definitional In D. Canter (Ed.), Facet theory: Approaches to social
framework helps ensure clarity and reliability research (pp. 5996). New York: Springer.
and also facilitates formulation of empirical law- Levy, S. (1990). The mapping sentence in cumulative
fulness. Furthermore, it helps ensure continuities theory construction: Wellbeing as an example. In
J. J. Hox & J. de Jong-Gierveld (Eds.), Operationa-
in research. lization and research strategy (pp. 155177).
Amsterdam: Swets & Zeitlinger.
Levy, S., & Guttman, L. (1975). On the multivariate
Cross-References structure of wellbeing. Social Indicators Research, 2,
361388.
Levy, S., & Sabbagh, C. (2008). The wellbeing of the
Facet Theory selfs personality: A structural analysis. Social Indica-
Faceted Definitions tors Research, 89(3), 473485.
Structure of Well-being: A Facet Approach Michalos, A. C. (1991). Global report on student
wellbeing, volume 1: Life satisfaction and happiness.
New York: Springer.
Morrison, M., Tay, L., & Diener, E. (2011). Subjective
References wellbeing and national satisfaction: Findings from
a worldwide survey. Psychological Science, 22(2),
Abrams, M. (1973). Subjective social indicators. Social 166171.
Trend (HMSO), 4, 3549. Ostrom, T. M. (1969). The relationship between the affec-
Andrews, F. M. (1974). Social indicators of perceived life tive, behavioral, and cognitive components of attitude.
quality. Social Indicators Research, 1, 279299. Journal of Experimental Social Psychology, 5, 1230.
Andrews, F. M., & McKennell, A. C. (1980). Measures of Shin, D., & Johnson, D. (1978). Avowed happiness as an
self-reported wellbeing: Their effective, cognitive and overall assessment of the quality of life. Social Indi-
other components. Social Indicators Research, 8, cators Research, 5(1), 475492.
127155. Stouffer, S. A., Suchman, E. A., DeVinney, L. C.,
Andrews, F. M., & Withey, S. B. (1976). Social indicators Star, S. A., & Williams, R. M., Jr. (1949). The Amer-
of perceived wellbeing. New York: Plenum Press. ican soldier: Adjustment during army life. Studies in
Bradburn, N. M. (1969). The structure of psychological social psychology in world war II. Princeton, NJ:
wellbeing. Chicago: Aldine. Princeton University Press.
Deinstitutionalisation Process of Arduin, Quality of Life as Leading Principle 1493 D
Veenhoven, R. (1991). Is happiness relative? Social Indi- First established in 1969, Arduin was organized,
cators Research, 24, 134. under the name Vijvervreugd, as a residential
Veenhoven, R. (2000). The four qualities of life: Ordering
concepts and measures of good life. Journal of Happi- care institution, day nursery, and a day care center
ness Studies, 1, 139. serving persons with intellectual disabilities. In
Wilkening, E. A. (1982). Subjective indicators and quality 1994, when the organization came under new
of life. In R. M. Hauser, D. Mechanic, & A. Haller management, there was clearly insufficient qual-
(Eds.), Social structure and behavior (pp. 429441).
New York: Academic Press. ity of care in several respects. A course of action
was drawn up. The essential and consequent atti-
tude in this process was that a person with an D
intellectual disability should be enabled to decide
Definitions of Measurement himself how to give meaning and completion
Properties to his life. This made necessary a completely
different way of organizing as common in the
COSMIN: Consensus-Based Standards for the care for people with intellectual disabilities in
Selection of Health Status Measurement the Netherlands until then, namely, the individual
Instruments person as the smallest organizational unit,
including the splitting up of home living
and care. Especially the emancipation and
self-determination of people with intellectual
Deinstitutionalisation Process of disabilities were the most important starting
Arduin, Quality of Life as Leading point for quality of life (van Loon & Van Hove,
Principle 2001). Within Arduin, inclusion, emancipation,
and self-determination are from then on consid-
Jos van Loon ered to be fundamental to secure the best possible
Department of Special Education, University of quality of life for people with intellectual disabil-
Ghent, Gent, Belgium ities. The new Arduin became an independent,
Arduin Foundation, Middelburg, refocused organization. The action plan that
The Netherlands was developed to bring about the necessary
changes was based on a quality of life focus
and the supports paradigm. Specifically, as a con-
Synonyms sequence of adopting a quality of life perspective,
Arduin was transformed from an institution to
Dismantling institutional care a new community-based organization, focusing
on supporting each individual who, in the first
place, himself or herself determines what he or
Definition she needs. Vijvervreugd, the institution in the
town of Middelburg, was closed. The separation
The deinstitutionalization of an institute for between the three life spheres-accommodation,
people with intellectual disabilities, guided by work/daily activities, and leisure is fundamen-
the quality of life framework by Schalock and tally important in the process of deinstitutionali-
Verdugo (2002). zation and promotion of quality of life.
At present, Arduin serves about 720 persons:
516 for 24 h a day (living and work/daily activi-
Description ties), 21 who get support in their homes, 24 short
stay (weekends and holidays), and 159 who come
Introduction to Arduin for (support in) work/daily activities.
Arduin is a Dutch organization providing People live in over 150 normal houses in the
services for people with intellectual disabilities. community, spread over a wide region, work
D 1494 Deinstitutionalisation Process of Arduin, Quality of Life as Leading Principle

full time in a great variety of businesses or day when buying a car). There are no problems,
centers, and are supported by support workers only challenges. Regarding the focus on QOL,
according to their needs. An important motto in there is no yes BUT,. . ..
forming this organization was common what
can, special what has to. System of Supports Important for the embed-
ding of improving quality of life in an organiza-
Quality of Life as Leading Principle in the tion is consumer involvement (Schalock,
Deinstitutionalization Process of Arduin Gardner, & Bradley, 2007): an essential
A Clear Focus and Creativity in Pursuing organizational strategy involves incorporating
This A focus on quality of life and on the consumers in meaningful roles. As the essential
support paradigm was continuous during the question here is, to what degree consumers are
program changes. The concept of quality of life involved in the development and implementation
was operationally defined and implemented of their ISPs, Arduin developed an individualized
through the eight core domains on quality supports system (Fig. 1), that is, person-centered
of life found in the international quality of (i.e., based on the persons interests, preferences,
life literature (Schalock & Verdugo, 2002). needs, and natural support network), responsive
From a large action research project, we con- (i.e., based on a dialog between the person and
cluded that from these eight domains inclusion, those involved in the supports plan), flexible
self-determination and personal development across the life span, proactive (i.e., equalizing
were especially influential in the shift from opportunities with fellow citizens, empowers
total care as organized within the traditional the person, generating effective social inclusion,
institutional care to support (van Loon & Van and increasing social/community participation),
Hove, 2001). and data based (i.e., based on the pattern and
The individual is encouraged to develop intensity of support needs and evaluated in
from a position of dependence to one of terms of facilitating personal outcomes)
self-determination. There is a clear focus on (van Loon, Claes, Vandevelde, Van Hove, &
long-term person-referenced outcomes. It was Schalock, 2010).
essential in the process of change that the impli- At first a structured interview is held emphat-
cations of the focus on quality of life (QOL) were ically with the person, his/her parents, or relatives
carried through consistently in all of the resolu- on the persons desired life experiences and
tions made. Every decision, at the organizational goals, using the same areas of supports as in the
level as well as at the level of the individual Supports Intensity Scale (SIS; Thompson et al.,
client, had to contribute to the personal outcomes 2004). This is component 1. In this interview the
of the clients. This from right to left thinking person is asked on each domain of the SIS, sec-
(Schalock, 2001) was accentuated in the decision tions 1, 2, and 3, what the present situation is;
to dismantle the institution, in choosing a what he thinks of the present situation; and what
coaching style of management directed toward his ideal situation would be. This is written in an
autonomy and self-direction, in abolishing a lot electronical format on the web-based program.
of bureaucracy, as well as in the development of a Then the SIS (component 2) is (electronically)
person-centered support system, a housing administrated again emphatically with the per-
bureau and a vacancy bank for clients, etc. In son, his/her parents, or relatives. The data from
this consequential policy of focusing on QOL components 1 (the interview on the persons
and supports, sometimes a lot of creative thinking desired life experiences and goals) and 2
is necessary. For example, because of the (the SIS) are then automatically, by the computer
expanding costs of transport, Arduin once started program, combined into an application, which
its own taxi company to reduce the costs of gives an overview of the goals of a person and
buying cars (taxi company has lower taxes the supports he/she needs to achieve these goals,
Deinstitutionalisation Process of Arduin, Quality of Life as Leading Principle 1495 D

Component 1 Component 2
Wishes, personal aspirations and goals Determining Support Needs:
structured interview with the client Interview with Supports Intensity Scale

Component 3: Developing an Individual Supports plan D


a. The client with his personal assistant synthesize the wishes and goals with the support needs
and come to an idea for an individual support plan: how do I want to be supported?
b. This idea is discussed with the support workers (and the psychologist).
c. Together they decide on a ISP in which the personal assistant writes down which support the
person wants so he can fully participate in the community.

Component 4
Implementation
Those involved in the support of the person: the
natural network and the professional support workers

Component 5 : Monitoring
To what extent are goals Does the person get the support
and wishes realised? he / she needs?
Dialogue with the client

Component 6 : Evaluation of the Individual Support Plan


Measuring QOL by measuring Personal Outcomes with the Personal Outcomes Scale (POS)

Deinstitutionalisation Process of Arduin, Quality of Life as Leading Principle, Fig. 1 Design of


a person-centered supports system

within a QOL framework. On this base the supports and subsequently in the individual sup-
individual supports plan is written by the personal ports plan. All elements of this supports system
assistant, in dialogue with the client and the are made electronically in web-based applica-
support workers (component 3), and then tions. This alignment between SIS, individual
implemented by support staff and the natural supports plan, and quality of life creates an excel-
network of the person (component 4). The out- lent opportunity to support people methodically
comes of the supports are monitored on the same in improving their quality of life: measuring qual-
elements (component 5) and evaluated by mea- ity of life gets a place in a support methodology,
suring personal outcomes by interviewing the with the aim to continuously improve the quality
person and a professional (with two different of life of people.
subscales) with the Personal Outcomes Scale
(van Loon et al., 2008) (component 6). The Quality Management: Evidence Based and
results of this evaluation can/will result in an Focusing on QOL In Arduin the choice was
adjustment of goals, perspectives, and needs of made to focus in the quality management on
D 1496 Deinstitutionalisation Process of Arduin, Quality of Life as Leading Principle

PROFIEL PERSOONLIJKE UITKOMSTENSCHAAL (POS) RUWE SCORE


ORGANISATIE
ONAFHANKELIJKHEID SOCIALE PARTICIPATIE WELBEVINDEN
TOTAALSCORE
pers. ontw. zelfbepaling pers. rel. soc. incl. rechten emotioneel materieel lichamelijk

18 144
1414 1414 14
1212 1313 12 1313 13 101 98
11
98

max zelf object zelf object zelf object zelf object zelf object zelf object zelf object zelf object max zelf object
Aantal clinten met POS: 400

Deinstitutionalisation Process of Arduin, Quality of Life as Leading Principle, Fig. 2 Example of a Personal
Outcomes Scale Profile with raw scores for the organization

quality of life instead of quality of care: what is domains) and relationships that are important
necessary in the organization to enhance personal to all persons; (b) a persons quality of life is
outcomes. In a quality of care, perspectives of enhanced by empowering persons to participate
staff and facility are usually more influential in decisions that affect their lives; (c) quality
than perspectives of the clients. The kinds of of life is enhanced by the acceptance and
results that are of importance in a quality of care full integration of persons into their local
system are often conceived in an easy-to-reach- communities; and (d) a persons quality of life
and-measure way. This means that value-based is enhanced through the provision of individual-
evaluation is less popular. Although every ser- ized supports (Brown & Brown, 2003;
vice pretends to know what it is aiming at, the Schalock et al., 2000; Schalock & Verdugo,
quality of care system gives no guarantee that 2002; Schalock, Verdugo, Bonham, Fantova, &
existing knowledge about good predictors for van Loon, 2008).
quality of life, such as social inclusion, This means that indicators for good quality of
self-determination, and personal development, an organization are (evidence-based) outcome-
is implemented (van Loon & Van Hove, 2001). based indicators, linked to the quality of life of
Thus, one frequently finds an emphasis on the clients. Inputs and processes (enablers in
impairment, categorization, homogenous group- the European Foundation on Quality Manage-
ing, health and safety, and control (De Waele ment (EFQM)-Model on Quality Management,
et al., 2005). The main concern for quality 2011) as well as personal outcomes and program
of care strategies is typically the process or organization outputs (results in the
(Maes et al., 2000). This focus on the process EFQM-Model on Quality Management) should
allows organizations to invest a lot of time and be related to QOL. In this respect the data on the
energy in their own (management) structures interviews with the Personal Outcomes Scale
and arrangements, always being on the way. can generate organization and location profiles
Sometimes this process approach inhibits that can be used as (one of the) important key
decisiveness and in some cases even covers the performance results (Fig. 2).
abandonment of principles.
Basic to an organizations commitment to
a quality of life and individualized supports
delivery model are the fundamental beliefs that Cross-References
(a) the quality of life of people with disabilities is
composed of those same factors (i.e., core Intellectual Disability
Dementia and Purpose in Life Models 1497 D
References
Deliberative Democracy
Brown, I., & Brown, R. I. (2003). Quality of life and
disability: An approach for community practitioners.
Community Participation
London: Jessica Kingsley.
De Waele, I., van Loon, J., Van Hove, G., &
Schalock, R. L. (2005). Quality of Life versus Quality
of Care: Implications for People and Programs. Jour-
nal of Policy and Practice in Intellectual Disabilities, Delight(s)
2 (3/4), 229239. D
European Foundation on Quality management. (2011). Pleasure(s)
EFQM-Excellence Model Retrieved May 27, 2011,
from http://www.efqm.org/en/.
Maes, B., Geeraert, L., & Van den Bruel, B. (2000).
Development a model for quality evaluation in resi- Delinquency
dential care for people with intellectual disability.
Journal of Intellectual Disability Research, 44,
544553. Deviance
Schalock, R. L. (2001). Outcomes-based evaluation
(2nd ed.). New York: Kluwer Academic/Plenum.
Schalock, R., Brown, R. T., Cummins, R., Mattikka, L.,
Felce, D., & Brown, I. (2000). Conceptualization, Demand for Approval Scale
measurement and application of the concept of
quality of life: A consensus document symposium.
Journal of Intellectual Disability Research, 44, Need for Approval Measures
452452.
Schalock, R. L., Gardner, G. F., & Bradley, V. J. (2007).
Quality of life for people with intellectual and
other developmental disabilities: Applications across Demand for Education
individuals, organizations, communities, and systems.
Washington, DC: American Association on Intellec- Human Capital Models
tual and Developmental Disabilities.
Schalock, R., & Verdugo, M. A. (2002). Handbook on
quality of life for human service practitioners. Washing-
ton, DC: American Association on Mental Retardation.
Schalock, R. L., Verdugo, M. A., Bonham, G. S., Demand-Control-Social Support
Fantova, F., & van Loon, J. (2008). Enhancing Model of Work Stress
personal outcomes: Organizational strategies,
guidelines, and examples. Journal of Policy and
Occupational Stress in a Multicultural
Practice in Intellectual Disabilities, 5(4), 276285.
Thompson, J. R., Bryant, B. R., Campbell, E. M., Workplace
Craig, E. M., Hughes, C. M., Rotholz, D. A., et al.
(2004). Supports intensity scale. Washington, D.C:
American Association on Mental Retardation.
van Loon, J., & Van Hove, G. (2001). Emancipation and Demands on the Government Index
self-determination of people with learning disabilities
and down-sizing institutional care. Disability &
Society, 16, 233254. Public Attitudes Toward the State in
van Loon, J., Van Hove, G., Schalock, R., & Asia-Pacific Region
Claes, C. (2008). Persoonlijke Ondersteuning-
suitkomsten Schaal. Schaal voor de beoordeling
van de individuele kwaliteit van bestaan. Antwerpen-
Apeldoorn: Garant. Dementia and Purpose in Life
van Loon, J., Claes, C., Vandevelde, S., Van Hove, G., &
Schalock, R. L. (2010). Assessing individual support
Models
needs to enhance personal outcomes. Exceptionality,
18, 110. Dementia and Self-Reported Purpose in Life
D 1498 Dementia and Self-Reported Purpose in Life

In the last century, scholars have elaborated on


Dementia and Self-Reported Aristotles discussion by highlighting the impor-
Purpose in Life tance of purpose in life for well-being. For exam-
ple, Jahoda (1958) noted that having a purpose
Wingyun Mak1, Silvia Sorensen2 and would facilitate the setting and reaching of goals
Cameron J. Camp3 and ultimately promote good mental health.
1
Department of Psychology, CUNY Lehman, Yalom (1980) categorized meaninglessness as
Bronx, NY, USA one of the main concerns of the human condition.
2
Department of Psychiatry, University of Frankl (1959), a psychiatrist and also a Holocaust
Rochester School of Medicine and Dentistry, survivor, advocated for the pursuit of purposeful
Rochester, NY, USA living regardless of lifes circumstances. During
3
Center for Applied Research in Dementia, his time in a concentration camp, he observed that
Solon, OH, USA even the simplest tasks could provide people with
a sense of purpose and, in turn, a reason to
continue living. He, among others, concluded
Synonyms that lacking purpose in life might lead to
psychopathology including depression and
Adaptation-coping model; Dementia and anxiety or, in extreme situations, death (Allport,
purpose in life models; Meaning of life 1961; Boyle, Barnes, Buchman, & Benette, 2009;
in dementia; Perceived purpose in dementia; Frankl, 1959; Yalom, 1980).
Person-environment model; Progressively The growing focus on personhood in
lowered stress threshold model dementia research (e.g., Bender & Cheston,
1997; Kitwood, 1997; Logsdon et al., 2002) has
highlighted the importance of having meaning
Definition in life for a person with dementia (PWD). Having
purpose is an important determinant of well-being
A person with dementias reason(s) for living that in mild-to-moderate (Beard, Knauss, & Moyer,
can result from meaningful activity participation 2009; Droes et al., 2006) as well as moderate-to-
and/or function to motivate and organize goals, severe (Clare, Rowlands, Surr, & Downs, 2008)
behaviors, and/or emotions. dementia but is often lacking in everyday life
(Clare et al., 2008; Cohen-Mansfield, Marx, &
Werner, 1992). Purpose in life is achieved
Description through the medium of activity involving the
self and/or others (Phinney, Chaudray, &
The notion of purpose in life stems from OConnor, 2007). Activities may range from the
Aristotles philosophical discussion of living abstract, such as imagining something or thinking
well, or eudaimonia, which entails utilizing about someone, to the more tangible, such as
ones full potential to achieve the highest good reading, cooking, or visiting a friend.
(Aristotle, 350 B.C./1947). He argues that An individuals personality and interests, as
the ultimate telos, or purpose, for humans is to well as the social roles he or she acquires across
achieve eudaimonia, though there is also purpose time (Christensen, 1999; Havighurst, 1973), guide
on a smaller scale behind the pursuit of every the choice of activities that convey purpose. As
activity (e.g., writing things down in a calendar dementia severity worsens, the individual
to avoid forgetting about them). Having becomes more dependent on external resources
purpose in life is important because it shapes (e.g., people, environmental adaptations) and less
ones perception of the self and the world, and able to draw upon internal resources like new
motivation for activity (see McKnight & strategies to initiate activities (Nygard, 2004).
Kashdan, 2009). Simultaneously, the number of social roles
Dementia and Self-Reported Purpose in Life 1499 D
may diminish in late life (Moen, Erickson, & Intergenerational volunteerism has also been
Dempster-McClain, 2000) and with the progres- an effective way to promote purposeful living in
sion of dementia (Phinney, 2002). Taken together, people with dementia. In a randomized control
engaging in meaningful activity and achieving trial, George and Singer (2011) found that
a sense of purpose in life may become more reading and singing with kindergartners and
challenging in dementia. relaying past experiences to sixth graders made
the PWDs feel that as mentors they were con-
Discussion tributing something valuable to a receptive
Determining activities that will help a PWD audience. Additionally, the participants found it D
develop a sense of purpose is a challenging was refreshing to befriend young people who
endeavor. Research in this area offers empirically interacted with them with little regard to their
based activities or guiding themes that may dementia diagnosis. Camp and his colleagues
facilitate activity program development. Though (e.g., Camp & Lee, 2011) have achieved similar
this area of research is still in its formative stages, results with PWDs mentoring preschool children,
activities shown to promote a sense of purpose in using Montessori-based activities/lessons. While
dementia seem to share a common theme of sense of purpose was not directly measured,
social interaction and connection (Ettema et al., PWDs frequently commented on the meaningful-
2005). People affected by dementia repeatedly ness of this type of interaction. The success and
describe losing the ability to reach out to others positive effects of this type of programming
(Holst & Hallberg, 2003). Whether this loss have been replicated by other researchers
is due to cognitive impairment or lack of oppor- as well (Gigliotti, Morris, Smock, Jarrott, &
tunity likely depends on the individual and his or Graham, 2005)
her particular circumstances, but the fact that One of the reasons for the success of
PWD are able to connect with others when intergenerational volunteerism is that it provides
given the opportunity and proper assistance PWDs with new social roles that serve as
implicates more than just cognitive loss. a scaffolding for engaging in meaningful tasks.
Engaging in altruistic deeds, even in the Other activities that provide new social roles
absence of direct social contact, may promote function similarly. For example, Camp and
a feeling of usefulness in people with dementia. colleagues have identified small group activities
Mak (2011) designed a protocol in which people like Memory Bingo or reading discussion groups
with mild-to-moderate dementia made greeting that can be led by people with dementia. Memory
cards for soldiers overseas and sick children. Bingo is a group activity that involves cued
Participants created designs on the cards and recall from long-term memory (Camp, 1999).
some wrote messages of encouragement. After Memory Bingo involves presenting the
completing the card activity, they reported an first part of a well-known phrase or association
elevated sense of purpose. Although they did (e.g., A stitch in time saves . . .; Romeo
not directly interact with the card recipients, and . . .). If the word that finishes the phrase or
they felt a sense of accomplishment for having association is on a card in front of a PWD taking
helped someone in need. People with dementia part in the activity, the card is turned over or
often report feeling useless (Droes et al., 2006), covered or put in a box. When all answers have
and opportunities in which they are able to reach been discovered, the game is won. The reading
out to others can be beneficial. Even engaging activity involves having PWDs in a group, with
in simple tasks like sorting playing cards each person taking a turn reading a page of the
from local casinos to send to soldiers overseas story aloud while the other participants follow
or nurturing an injured baby bird back to along. At the end of each story are questions or
health (Camp, Zeisel, & Antenucci, 2011) can information items for discussion. Skrajner et al.
be positive experiences for older adults (2012) found that people with mild to moderate
with dementia. dementia could lead activity groups and engage
D 1500 Dementia and Self-Reported Purpose in Life

people with more severe dementia performing (Lawton & Simon, 1968). Consequently the
these types of structured activities. These reading match between the persons capabilities and his
groups resulted in more active engagement or her environment is crucial for achieving
and observed pleasure. Leaders or group well-being, including a sense of purpose in life.
facilitators felt a sense of self-efficacy and pride Lawtons person-environment model (Lawton &
in leading their groups, and some members of the Nahemow, 1973) states that in order to achieve
reading group also reported a greater sense of positive affect, adaptive behavior, and maximal
social belongingness as a result of participating. performance potential, there must be a balance
Given that people with dementia often complain between ones abilities, termed competence,
that they are of no use to anyone, providing them and ones environmental demands, termed
opportunities in which they can help others is press. In the case of dementia, declining cog-
highly meaningful. nitive abilities lower ones competence, and
unless appropriate environmental changes are
Importance of Individualization made, the person-environment balance might
There are a variety of activities that will enhance fall outside of the adaptive range, leading to
a sense of purpose in life in dementia, but what negative affect or maladaptive behaviors.
determines their effectiveness may depend on Gitlin et al. (2009) employed this person-
whether the activity fits the individuals interests environment approach in their in-home activity
and abilities. People with dementia have intervention for people with dementia. Their
reported that being able to continue their daily protocol included cognitive and motor testing,
lives in effort to preserve the continuity between clinical interview, in-home observation, environ-
past and present selves (i.e., before and after mental assessment, and caregiver involvement
developing dementia) is adaptive (Beard et al., and training to systematically determine an
2009). Even taking part in daily chores around activity program that would be most suitable for
the home can be meaningful as it cultivates the PWD. People with greater functional ability
a sense of normalcy and familiarity in spite of were given more complex tasks, whereas those
the effects of the disease (Phinney et al., 2007). with diminished functional ability were given
Additionally, engaging in activities that empha- tasks that were productive but less complicated
size the roles with which they have identified (e.g., towel folding). Environments were altered
most may be beneficial. In a group of people to facilitate activity participation for each
with severe dementia (MMSE: 10.5), Cohen- individual. After 4 months, the attention to indi-
Mansfield et al. (2006)) found that careful vidual interests, abilities, and environment
assessment of interests and favored roles, resulted in affective gains and reduction in
followed by prescription of appropriate activi- behavioral problems. Camp et al. (2010)
ties, resulted in positive gains in affect and have reviewed methods of assessing persons with
engagement as well as fewer instances of agita- moderate to advanced dementia using activities as
tion. Consistent with these and other findings a means of assessing remaining strengths and com-
(Gitlin et al., 2009; Phinney et al., 2007), we petencies. Together with assessments of personal
suggest the assessment of individual preferences histories and interests, such information can direct
and interests is essential for determining an selection of appropriate activities for PWD,
effective activity intervention. including those in more advanced stages. Other
Identifying activities that are consistent with models that also emphasize the balance between
the individuals interests and favored social roles environment and individual include Hall and
must also be placed in the context of the persons Buckwalters (1987) progressively lowered stress
abilities and environment. People with dementia threshold model, which is set in the context of
become increasingly vulnerable to changes in care provision, and Droes and colleagues
their environment and less capable of accessing adaptation-coping model (Finnema, Droes,
internal resources to cope with difficulties Ribbe, & van Tilburg, 2000).
Dementia and Self-Reported Purpose in Life 1501 D
Research Needs In part due to the measurement issues listed
Learning how to promote purpose in life in above, we currently lack the data to provide
dementia is a promising area of research for a comprehensive understanding of purpose in
investigators interested in promoting well-being life in dementia and how it relates to well-being
or quality of life in dementia. Currently there as cognitive impairment worsens. It will be
are three main areas that require more inquiry. important to have a large aggregate of compara-
First, the quality of measurement of purpose in ble data in order to develop individualized
life could be improved. To our knowledge there person-level or environment-level interventions
are no validated scales measuring purpose in that optimize the person with dementias poten- D
life for dementia-specific populations, though tial for purposeful living.
some scales tangentially address this construct
(e.g., Quality of Life-Alzheimers Disease scale, Concluding Remarks
Logsdon, Gibbons, McCurry, & Teri, 2002). Though we are still in the formative stages of
Ryffs (1989) Psychological Well-Being Purpose understanding purpose in life in dementia
in Life subscale, which is non-dementia-specific, and translating that knowledge into effective
has been used successfully with older adults with interventions, the growing amount of research
mild-to-moderate dementia (Mak, 2011), though done in this area suggests continued progress.
there are no established norms yet. Without The work conducted thus far emphasizes the
proper measurement tools, individual study critical need to provide meaning to the lives
results remain tentative. Refining and unifying of PWDs, as well as how much more we need
the definitions of purpose in life and well-being to learn about this area. However, the return on
in dementia is absolutely essential. the time and energy invested in this enterprise
Second, what we know about purpose in life in will be tremendous, both in terms of reducing
dementia is generally limited to people who are not challenging behaviors in PWDs and also improv-
in the late stages of dementia. The measurement of ing quality of life for them and those who
purpose depends on the self-reporting abilities of provide their care. Perhaps the most important
the person with dementia, which narrows the pool consideration to make in regards to people with
of assessable participants to those with mild-to- dementia is to remember that they are more than
moderate dementia severity (Logsdon et al., dementia (Beard et al., 2009, p. 234). The
2002) and reduces the generalizability of a desire for continuity in everyday life is not
research study. We need a better understanding much different from people without dementia.
of purpose in life in later stages of dementia, how In addition to considering interests, preferred
to measure it accurately when language capabili- social roles, abilities, and environments, applying
ties are compromised, and when the use of a proxy this type of perspective into program develop-
respondent is appropriate. For example, people ment for people with dementia may provide
with severe dementia who are more engaged useful guidance for successful interventions.
seem to exhibit more positive and less maladaptive
behaviors (e.g., Cohen-Mansfield et al., 2006), but
it is unclear whether this is reflective of greater
purpose in life, per se. It is also unknown whether References
using a family proxy report is a better alternative to
Allport, G. (1961). Pattern and growth in personality.
a third-party observational approach. Perhaps an New York: Holt, Rinehart and Winston.
overarching question is whether the components of Aristotle (350 B.C./1947). Nichomachean ethics. (W. D.
well-being change with the progression of demen- Ross, Trans.). In R. McKeon (Ed.), Introduction to
tia, and if so, (1) how do they change and (2) are Aristotle. New York: Modern Library.
Beard, R. L., Knauss, J., & Moyer, D. (2009). Managing
they distinguishable.
disability and enjoying life: How we reframe dementia
Lastly, purpose in life must be included in through personal narratives. Journal of Aging Studies,
the broader study of well-being in dementia. 23, 227235.
D 1502 Dementia and Self-Reported Purpose in Life

Bender, M. P., & Cheston, R. (1997). Inhabitants of a lost George, D. R., & Singer, M. E. (2011). Intergenerational
kingdom: A model of the subjective experiences of volunteering and quality of life for persons with mild
dementia. Ageing and Society, 17, 517532. to moderate dementia: Results from a 5-month
Boyle, P. A., Barnes, L. L., Buchman, A. S., & Bennett, intervention study in the United States. The American
D. A. (2009). Purpose in life is associated with mor- Journal of Geriatric Psychiatry, 19, 392396.
tality among community-dwelling older persons. doi:10.1097/JGP.0b013e3181f17f20.
Psychosomatic Medicine, 71, 574579. doi:10.1097/ Gigliotti, C., Morris, M., Smock, S., Jarrott, S. E., &
PSY.0b013e3181a5a7c0. Graham, B. (2005). An intergenerational summer pro-
Camp, C. J. (1999). Memory interventions for normal and gram involving persons with dementia and preschool
pathological older adults. In R. Schulz, M. P. Lawton, children. Educational Gerontology, 31, 425441.
& G. Maddox (Eds.), Annual review of gerontology Gitlin, L. N., Winter, L., Earland, T. V., Herge, E. A.,
and geriatrics (Vol. 18, pp. 155189). New York: Chernett, N. L., Piersol, C. V., & Burke, J. P. (2009).
Springer. The tailored activity program to reduce
Camp, C. J., & Lee, M. M. (2011). Montessori-based behavioral symptoms in individuals with dementia:
activities as a trans-generational interface for persons Feasibility, acceptability, and replication potential.
with dementia and preschool children. Journal of The Gerontologist, 49, 428439. doi:10.1093/geront/
Intergenerational Relationships, 9, 366373. gnp087.
Camp, C. J., Skrajner, M. J., Lee, M. M., & Judge, K. S. Hall, G., & Buckwalter, K. (1987). Progressively lowered
(2010). Cognitive assessment in late stage dementia. In stress threshold: A conceptual model for care of adults
P. A. Lichtenberg (Ed.), Handbook of assessment in with Alzheimers disease. Archives of Psychiatric
clinical gerontology (2nd ed., pp. 523547). Nursing, 1, 399406.
New York: Wiley. Havighurst, R. J. (1973). Social roles, work, leisure,
Camp, C. J., Zeisel, J., & Antenucci, V. (2011). and education. In C. Eisdorfer & M. P. Lawton (Eds.),
Implementing the Im Still Here Approach: The psychology of adult development and aging
Montessori methods for engaging persons with demen- (pp. 598616). Washington, DC: American Psycholog-
tia. In P. E. Hartman-Stein & A. La Rue (Eds.), ical Association.
Enhancing cognitive fitness in adults (pp. 401417). Holst, G., & Hallberg, I. R. (2003). Exploring the meaning
New York: Springer. of everyday life, for those suffering from dementia.
Clare, L., Rowlands, J., Bruce, E., Surr, C., & Downs, M. American Journal of Alzheimers Disease and Other
(2008). The experience of living with dementia in Dementias, 18, 359365.
residential care: An interpretative phenomenological Jahoda, M. (1958). Current concepts of positive mental
analysis. The Gerontologist, 48, 711720. health. New York: Basic Books.
Cohen-Mansfield, J., Marx, M. S., & Werner, P. (1992). Kitwood, T. (1997). The experience of dementia.
Observational data on time use and behavior problems Aging & Mental Health, 1, 1322. doi:10.1080/
in the nursing home. Journal of Applied Gerontology, 13607869757344.
11, 111121. doi:10.1177/073346489201100109. Lawton, M. P., & Nahemow, L. (1973). Ecology and the
Cohen-Mansfield, J., Parpura-Gill, A., & Gohander, H. aging process. In C. L. Eisdorfer & M. P. Lawton
(2006). Utilization of self-identity roles for designing (Eds.), Psychology of adult development and aging
interventions for persons with dementia. Journals of (pp. 619674). Washington, DC: American Psycho-
Gerontology Psychological Sciences, 61, P202P212. logical Association.
Droes, R.-M., Boelens-Van Der Knoop, E. C. C., Bos, J., Lawton, M. P., & Simon, B. (1968). The ecology of social
Meihuizen, L., Ettema, T. P., Gerritsen, D. L., et al. relationships in housing for the elderly. Gerontologist,
(2006). Quality of life in dementia in perspective: 8, 108115.
An explorative study of variations in opinions among Logsdon, R., Gibbons, L., Mccurry, S., & Teri, L. (2002).
people with dementia and their professional Assessing quality of life in older adults with cognitive
caregivers, and in literature. Dementia, 5, 533559. impairment. Psychosomatic Medicine, 64, 510519.
doi:10.1177/1471301206069929. Mak, W. (2011). Self-reported goal pursuit and purpose in
Ettema, T. P., Droes, R.-M., de Lange, J., Ooms, M. E., life among people with dementia. Journals of
Mellenbergh, G. J., & Ribbe, M. W. (2005). The Gerontology Psychological Sciences, 66B, 177184.
concept of quality of life in dementia in the different doi:101093/geronb/gbq092.
stages of the disease. International Psychogeriatrics, McKnight, P. E., & Kashdan, T. B. (2009). Purpose in life
17, 353370. doi:10.1017/S1041610205002073. as a system that creates and sustains health and
Finnema, E., Droes, R.-M., Ribbe, M., & van Tilburg, W. well-being: An integrative, testable theory. Review of
(2000). A review of psychosocial models in General Psychology, 13, 242251. doi:10.1037/
psychogeriatrics: Implications for care and research. a0017152.
Alzheimer Disease and Associated Disorders, Moen, P., Erickson, M. A., & Dempster-McClain, D.
14, 6880. (2000). Social role identities among older adults in
Frankl, V. (1959). Mans search for meaning. London: a continuing care retirement community. Research on
Hodder and Stoughton. Aging, 22, 559579.
Dementia Quality of Life Instrument 1503 D
Nygard, L. (2004). Responses of persons with dementia to the perceived quality of life of persons with mild
challenges in daily activities: A synthesis of findings or moderate levels of dementia (as, e.g., indexed
from empirical studies. The American Journal of
Occupational Therapy, 58, 435445. doi:10.5014/ by the mini-mental state examination (MMSE),
ajot.58.4.435. Folstein, Folstein, and McHugh (1975): MMSE
Phinney, A. (2002). Living with the symptoms of > 13 in the original study; some applications
Alzheimers disease. In P. B. Harris (Ed.), The person include patients with an MMSE > 10).
with Alzheimers disease: Pathways to understanding
the experience (pp. 4974). Baltimore: The Johns The construction of the instrument was based
Hopkins University Press. on a conceptual framework of quality of life in
Phinney, A., Chaudhury, H., & OConnor, D. L. (2007). dementia; this was assisted by different focus D
Doing as much as I can do: The meaning of activity for groups (caregivers, health-care providers, per-
people with dementia. Aging & Mental Health,
11, 384393. doi:10.1080/13607860601086470. sons with dementia). Several pilot studies were
Ryff, C. D. (1989). Happiness is everything, or is it? conducted to decide about methodological
Explorations on the meaning of well-being. Journal aspects like formatting, item construction, and
of Personality and Social Psychology, 57, 10691081. administration procedures in order to appropri-
doi:10.1037/0022-3514.57.6.1069.
Skrajner, M. M., Haberman, J. L., Camp, C. J., Tusick, M., ately regard and respect the specific needs of
Frentiu, C., & Gorzelle, G. (2012). Training nursing dementia populations.
home residents to serve as group activity leaders: The final version of the instrument comprises
Lessons learned and preliminary results from the 29 items, distributed on 5 scales of 311 items.
RAP project. Dementia, 11, 263274.
Yalom, I. D. (1980). Existential psychotherapy. The interview is introduced as some questions
New York: Basic Books. about your life. The items are presented with the
corresponding response scales printed on a card to
be placed in front of the interviewed person. The
scales Self-Esteem (feel confident, satisfied with,
Dementia Quality of Life Instrument accomplish something, make own decisions),
Positive Affect/Humor (humor, feeling of happi-
Katharina Schmidt ness, contentment, hopefulness), Negative Affect
Department of Psychological Assessment and (worry, frustration, depression, anxiety, sadness,
Differential and Personality Psychology, loneliness, fear, irritability, nervousness, embar-
Freie Universitat Berlin, Berlin, Germany rassment, anger), and Feelings of Belonging (feel-
ing lovable, liked, useful) are to be rated
for frequency, with the categories (1) never,
Synonyms (2) seldom, (3) sometimes, (4) often, and
(5) very often. The scale Sense of Aesthetics has
DQoL to be rated concerning the extent to which the
respondent has enjoyed several experiences (e.g.,
listening to sounds of nature, looking at colorful
Definition things), with the categories (1) not at all,
(2) a little, (3) somewhat, (4) mostly, and (5) very.
DQoL is a 29-item instrument to be used as an The authors suggest adding a last item to rate
interview with patients suffering from dementia overall quality of life, like Overall, how would
in order to assess their perceived quality of life in you rate your quality of life? (Brod et al., 1999b,
several domains. p. 34), with a 5-point Likert scale as response set:
(1) bad, (2) fair, (3) good, (4) very good, and
(5) excellent. This item has not been explored in
Description the pilot studies of the authors. However, Mador,
Clark, Crotty, and Hecker (2002) used this item
Brod, Stewart, Sands, and Walton (1999b) devel- as a self-report as well as a proxy measure
oped DQoL as a patient-administered measure of (caregivers) and found an intercorrelation of
D 1504 Dementia Quality of Life Instrument

0.32 (p < .05; n 122) which is comparable to Belonging being the less consistent scale (0.53)
intercorrelations of self- and proxy measures of and the other scales showing a consistency
well-being and quality of life (for demented between 0.84 and 0.94 and a mean of 0.81 (Chiu
persons and their caregivers: e.g., Logsdon, et al., 2010). The Spanish, Japanese, Norwegian,
Gibbons, McCurry, & Teri, 2002; Novella et al., and UK versions yielded comparable results
2001; Ready, Ott, & Grace, 2004; Selai, Trimble, (Lucas-Carrasco, Gomez-Benito et al., 2011a;
Rossor, & Harvey, 2001). In other studies, an Karim et al., 2008; Suzuki et al., 2005; Torvik
overall score is computed (e.g., Chiu et al., 2010). et al., 2010).
DQoL has been used in about a dozen studies to
evaluate interventions (e.g., evaluation of occupa- Test-Retest
tional therapy, Graff et al., 2006). Translations are Test-retest reliability was measured in different
available in Chinese (Chiu, Shyu, Liang, & Huang, ways:
2008, 2010), Dutch (Bosboom & Jonkers, 2001, as (a) The correlations of three single items that had
cited in Graff et al., 2006), Finnish (Cahill et al., been repeated directly after the first interview
2004), German (e.g., Hornung, 2008), Japanese range from 0.54 (frequency of having felt
(Suzuki, Uchida, Kanamori, & Ooshiro, 2005), content) to 0.75 (extent of pleasure from lis-
Lithuanian (Cahill et al., 2004), Norwegian (Cahill tening to music).
et al., 2004; Torvik, Kaasa, Kirkevold, & Rusten, (b) Two-week test-retest coefficients of the scales
2010), and Spanish (Lucas-Carrasco, Gomez- for a subsample of patients (n 18) reached
Benito, Rejas, & Brod, 2011a). There is also from 0.64 (Negative Affect) to 0.90 (Positive
a UK version (Karim, Ramanna, Petit, Doward, Affect), with a mean of 0.74 and a median of
& Burns, 2008). 0.72. In the Spanish, Japanese, and UK
studies, results turned out to be comparable
(Lucas-Carrasco, Gomez-Benito et al., 2011a;
Reliability Karim et al., 2008; Suzuki et al., 2005).
(c) Adler and Resnick (2010) realized a 4-month
Data for reliability reported here stem when not as well as a 12-month follow-up that revealed
mentioned otherwise from a study with demen- test-retest correlations of 0.60 and 0.64,
tia patients (N 95), with an MMSE > 13, respectively.
reported by Brod et al. (1999b). A subsample (d) Carpenter, Kissel, and Lee (2007) examined
(n 18) was tested twice with an interval of elderly couples. One-week stability for all
2 weeks. DQoL items together and differentiated by
cognitive impairment turned out to be 0.56
Internal Consistency (Standardized Alpha) (demented subjects) to 0.68 (healthy
The range of standardized alpha for the scales subjects) on average; the difference was not
was between 0.67 (Feelings of Belonging) and significant.
0.89 (Negative Affect); the mean was 0.79, the Reliability coefficients did not differ across
median 0.80. Ready et al. (2004) reported com- the observed levels of dementia (13 > MMSE
parable parameters for their sample of healthy < 17 vs. MMSE >17; Brod et al., 1999b).
elderlies and patients with MCI and mild demen-
tia (N 79). Adler and Resnick (2010) examined
N 386 mildly or moderately demented nursing Validity
home residents. In their study, alpha coefficients
were slightly lower between 0.53 (Feelings of Content and Face Validity
Belonging) and 0.84 (Negative Affect); the Based on the results of three focus groups of
mean was 0.67, the median 0.65. experts (people with dementia, caregivers, health-
Results for the Chinese version were found to care professionals), a disease-specific model of
be comparable with the original study, Feelings of quality of life in dementia was conceptualized
Dementia Quality of Life Instrument 1505 D
and subsequently mapped by the five scales of Negative Affect, Positive Affect) to good
DQoL (Brod, Stewart, & Sands, 1999a); the word- (Feelings of Belonging, Self-Esteem) fit. Rasch
ing of the items was evaluated in several pilot analyses underscored that the response patterns
studies. However, whereas aesthetics as an ill- for every scale turned out to be appropriate.
ness-specific domain are represented in the final Convergent Validity. Convergent validity may
instrument, items measuring social interaction be examined in different ways. For DQoL, there
could not be included, because they did not fit are results with respect to (a) different sources
the required psychometric criteria. Thus, DQoL is of the information (self/proxy), (b) different mea-
limited to the five dimensions mentioned. Brod sures of quality of life (same concept, different D
et al. (1999b) suggest to measure data concerning instruments), and (c) several related concepts like
social interaction via proxy instruments. depression and anxiety that should be inversely
related to quality of life.
Construct Validity Agreement of proxy measures of quality of life
Interscale Correlations. Brod et al. (1999b) with self-reports of the patients is especially
reported moderately to high positive values for important when interviewing cognitively impaired
the interscale correlations of Positive Affect, persons, given the doubts that have been expressed
Feelings of Belonging, and Self-Esteem (0.63, concerning the veridicality of evaluations of
0.67, and 0.57, respectively). For (absence of) demented persons. Studies comparing DQoL as
Negative Affect and Sense of Aesthetics, a low a self-report measure with a proxy measure
intercorrelation was observed (0.09), and both (adaptation of the instrument to proxy perspective)
scales were weakly correlated with the three showed a heterogeneous pattern of correlations.
other scales (0.180.38). In the UK study by For example, Ready et al. (2004) interviewed
Karim et al. (2008), interscale correlations were patients with MCI and mild Alzheimers disease
comparable. In a study in Taiwan, a similar struc- as well as healthy controls and their proxies. They
ture was observed for the Chinese version, though did not find a concordant pattern of relationships
intercorrelations with Negative Affect were between self- and proxy reports in all three groups;
somewhat higher (Chiu et al., 2008). however, their subsample sizes were rather small
Adler and Resnick (2010) calculated a step- (23 < n < 30).
wise regression of the overall quality of life rating Selwood, Thorgrimsen, and Orrell (2005) real-
on the subscales of DQoL. Whereas Self-Esteem, ized a study with three different measures of
Positive, and Negative Affect explained together quality of life in demented persons at two time
about 30 % of the observed variance, Feelings of points (data from t1 are reported in Thorgrimsen
Belonging and Sense of Aesthetics did not con- et al., 2003). They reported moderate to high
tribute to predict the overall quality of life rating. intercorrelations of DQoL with both Quality of
Factor Structure. In order to verify the factor Life-Alzheimers Disease Scale (QoL-AD;
structure of the DQoL, Ready, Ott, and Grace Logsdon, Gibbons, McCurry, & Teri, 1999)
(2007) interviewed 67 patients with dementia (t1 0.69/t2 0.85) and EuroQoL-5 Domain (EQ-5D;
and mild cognitive impairment (MCI); their EuroQoL Group, 1990, cited after Selwood,
exploratory analyses revealed a three-factor solu- Thorgrimsen, & Orrell, 2005) (t2 0.63). The Span-
tion representing Positive and Negative Affect as ish version was moderately correlated with the
well as Aesthetics. The items of the Feelings of scale of psychological quality of life measured by
Belonging and Self-Esteem did not show up as the World Health Organization Quality of Life
distinct factors in these analyses. Their results for instrument (WHOQOL-BREF; Lucas-Carrasco,
a corresponding caregiver report were similar. Laidlaw, & Power, 2011b).
Adler and Resnick (2010) report the results of A third aspect of convergent validity concerns
confirmatory factor analyses (CFA) for each correlations to instruments measuring related
subscale of the DQoL and Rasch analyses. In constructs, such as depression that should be cor-
sum, CFAs showed fair (Sense for Aesthetics, related to emotional aspects of quality of life in
D 1506 Dementia Quality of Life Instrument

contrast to cognitive and social aspects. In order evaluation of (significant) others (family, profes-
to determine the relation of the DQoL Scales with sional caregiver, observers). Given that there is
a field-tested indicator for depression, Brod et al. no golden standard to evaluate dementia-
(1999b) calculated the correlations of DQoL with specific quality of life, the DQoL as a self-report
the results of the Geriatric Depression Scale measure adds the precious perspective of the
(GDS; Yesavage, Brink, & Rose, 1983); the Pos- patient him- or herself.
itive and Negative Affect Scales of the DQoL were
strongly correlated with the GDS score (0.61 and
0.64, respectively). Self-Esteem and Feelings of
Belonging were weakly to moderately correlated. References
Results of the Spanish versions of both instru-
ments are comparable (Lucas-Carrasco et al., Adler, E., & Resnick, B. (2010). Reliability and validity of
2011a). Similarly, Selwood et al. (2005) found the dementia quality of life measure in nursing home
residents. Western Journal of Nursing Research,
a strong relationship between the overall score of 32(5), 686704.
DQoL and the Cornell Scale for Depression in Alexopoulous, G. S., Abrams, R. C., Young, R. C., &
Dementia (CSDD; Alexopoulous et al., 1988, Shamoian, C. A. (1988). Cornell scale for depression
cited after Selwood et al., 2005) as well as for the in dementia. Biological Psychiatry, 23, 271248.
Bosboom, P., & Jonkers, K. (2001). Dutch version of the
Rating for Anxiety in Dementia (RAID; Shankar Dqol. Amsterdam: VU University.
et al., 1999, cited after Selwood et al., 2005). Brod, M., Stewart, A. L., & Sands, L. (1999a). Conceptu-
Discriminant Validity. Cognitive function as alization of quality of life in dementia. Journal of
screened by the MMSE did not correlate with Mental Health and Aging, 5(1), 719.
Brod, M., Stewart, A. L., Sands, L., & Walton, P. (1999b).
DQoL in several studies (Lucas-Carrasco et al., Conceptualization and measurement of quality of life
2011a; Selwood et al., 2005) as has been found in dementia: The Dementia Quality of Life Instrument
for other measures of quality of life as well. (DQoL). The Gerontologist, 39(1), 2535.
Others found mean differences between subsam- Cahill, S., Begley, E., Topo, P., Saarikalle, K.,
Macijauskiene, J., Budraitiene, A., et al. (2004). I
ples depending from their cognitive status know where this is going and I know it wont go
(e.g., Chiu et al., 2008). back: Hearing the individuals voice in dementia
There was no relation found between functional quality of life assessments. Dementia: The Interna-
status, assessed by the Barthel Index (Mahoney & tional Journal of Social Research and Practice, 3(3),
313330. doi:10.1177/1471301204045163.
Barthel, 1965), and quality of life measured by Carpenter, B. D., Kissel, E. C., & Lee, M. M. (2007).
DQoL (Lucas-Carrasco et al., 2011a). Preferences and life evaluations of older adults with
and without dementia: Reliability, stability, and proxy
knowledge. Psychology and Aging, 22(3), 650655.
doi:10.1037/0882-7974.22.3.650.
Discussion Chiu, Y., Chiu, Y., Hsu, W., Lee, S., Chen, S., & Kao,
H. (2010). Developing a Chinese quality of life
In spite of doubts whether patients suffering from in dementia instrument for patients with
dementia are able to give meaningful information early-to-moderate dementia: An exploratory test of
validity. Journal of Clinical Nursing, 19(1516),
on their quality of life, it can be shown that this is 21742184.
possible for a selected set of domains as Chiu, Y., Shyu, Y., Liang, J., & Huang, H. (2008). Mea-
done when constructing the DQoL (at least for sure of quality of life for Taiwanese persons with early
persons with mild or moderate levels of demen- to moderate dementia and related factors. Interna-
tional Journal of Geriatric Psychiatry, 23(6),
tia). The fact that evidence for reliability and 580585.
factor structure could be shown across various EuroQoL Group. (1990). EuroQoL: a new facility for the
cultures underscores the utility of this instrument, measurement of health related quality of life. Health
not only to evaluate the quality of life for Policy, 16, 199208.
Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975).
practical reasons, but also for cross-cultural Mini-Mental State (a practical method for grading the
research. However, it should not be ignored that state of patients for the clinician). Journal of Psychi-
evidence from self-report is different from atric Research, 12, 189198.
Dementia, Effect of Physical Exercise on ADL Performance 1507 D
Graff, M. L., Vernooij-Dassen, M. M., Zajec, J., Olde- Life Assessment Schedule (QOLAS). Neuropsycho-
Rikkert, M. M., Hoefnagels, W. L., & Dekker, J. logical Rehabilitation, 11(34), 219243.
(2006). How can occupational therapy improve the doi:10.1080/09602010042000033.
daily performance and communication of an older Selwood, A., Thorgrimsen, L., & Orrell, M. (2005). Quality of
patient with dementia and his primary caregiver? life in dementiaA one-year follow-up study. Interna-
Dementia: The International Journal of Social tional Journal of Geriatric Psychiatry, 20(3), 232237.
Research and Practice, 5(4), 503532. Shankar, K. K., Walker, M., Frost. D., & Orrell, M.
Hornung, J. (2008). Lebensqualit at von Demenzpatienten (1999). The development of a valid and reliable scale
und deren Angehorigen [Quality of life of patients with for rating anxiety in dementia (RAID). Aging Mental
dementia and their relatives]. Dissertation, Universitat Health, 3, 3949.
Hamburg. Retrieved August 30, 2011, http://d-nb.info/ Suzuki, M., Uchida, A., Kanamori, M. & Ooshiro, H. D
989410153/34 (2005). [Development of the Dementia Quality of
Karim, S. S., Ramanna, G. G., Petit, T. T., Doward, L. L., Life Instrument Japanese version]. Nihon Ronen
& Burns, A. A. (2008). Development of the Dementia Ihakkai Zasshi, 42(4), 423431.
Quality of Life Questionnaire (D-QOL): UK version. Thorgrimsen, L. L., Selwood, A. A., Spector, A. A.,
Aging & Mental Health, 12(1), 144148. doi:10.1080/ Royan, L. L., de Madariaga Lopez, M. M., Woods,
13607860701616341. R. T., et al. (2003). Whose quality of life is it anyway?
Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, The validity and reliability of the Quality of
L. (1999). Quality of life in Alzheimers disease: Life-Alzheimers Disease (QoL-AD) Scale. Alzheimer
Patient and caregiver reports. Journal of Mental Disease and Associated Disorders, 17(4), 201208.
Health and Aging, 5(1), 2132. doi:10.1097/00002093-200310000-00002.
Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, Torvik, K., Kaasa, S., Kirkevold, ., & Rusten, T.
L. (2002). Assessing quality of life in older adults with (2010). Pain and quality of life among residents of
cognitive impairment. Psychosomatic Medicine, Norwegian nursing homes. Pain Management Nurs-
64(3), 510519. ing, 11(1), 3544.
Lucas-Carrasco, R., Gomez-Benito, J., Rejas, J., & Brod, Yesavage, J., Brink, T., & Rose, T. (1983). Development
M. (2011a). The Spanish version of the dementia qual- and validation of a geriatric depression scale:
ity of life questionnaire: A validation study. Aging & A preliminary report. Journal of Psychiatry Research,
Mental Health, 15(4), 482489. 17, 3749.
Lucas-Carrasco, R., Laidlaw, K., & Power, M. J. (2011b).
Suitability of the WHOQOL-BREF and WHOQOL-
OLD for Spanish older adults. Aging & Mental Health,
15(5), 595604.
Mador, J., Clark, M., Crotty, M., & Hecker, J. (2002). Dementia, Effect of Physical Exercise
Utility weighted measures of quality of life in on ADL Performance
Alzheimer disease. Alzheimer Disease and Associated
Disorders, 16(3), 202.
Mahoney, F. I., & Barthel, D. W. (1965). Functional Elisabeth Burge1, Armin von Gunten2 and
evaluation: The Barthel Index. Maryland State Medi- Nicolas Kuhne3
cal Journal, 14, 6165. 1
University of Applied Sciences Western
Novella, J. L., Jochum, C. C., Jolly, D. D., Morrone, I. I.,
Switzerland, Geneva, Switzerland
Ankri, J. J., Bureau, F. F., et al. (2001). Agreement 2
between patients and proxies reports of quality of life University Hospital Lausanne,
in Alzheimers disease. Quality of Life Research: An Lausanne, Switzerland
International Journal of Quality of Life Aspects of 3
Occupational Therapy Department,
Treatment, Care & Rehabilitation, 10(5), 443452.
University of Applied Sciences Western
doi:10.1023/A:1012522013817.
Ready, R. E., Ott, B. R., & Grace, J. (2004). Patient versus Switzerland, Lausanne, Switzerland
informant perspectives of quality of life in mild cog-
nitive impairment and Alzheimers disease. Interna-
tional Journal of Geriatric Psychiatry, 19(3),
256265. doi:10.1002/gps.1075.
Definition
Ready, R. E., Ott, B. R., & Grace, J. (2007). Factor
structure of patient and caregiver ratings on the Physical exercise is supposed to delay deterio-
Dementia Quality of Life instrument. Aging, Neuro- ration of the ability to perform basic activities
psychology, and Cognition, 14(2), 144154.
of daily living (ADL) among people with moder-
Selai, C. E., Trimble, M. R., Rossor, M. N., & Harvey,
R. J. (2001). Assessing quality of life in dementia: ate to severe dementia and thereby improve their
Preliminary psychometric testing of the Quality of quality of life (QOL).
D 1508 Dementia, Effect of Physical Exercise on ADL Performance

Description neighborhood, or dancing, dance and the qual-


ity of life. Different physical activity programs
Dementia currently affects 36 million people are documented (Rolland et al., 2007; Santana-
worldwide. Dementia is characterized by a Sosa et al., 2008). Most of them include strength
decline of cognitive functions such as memory, and balance exercises, gait training, and endur-
language, recognition, reasoning, and judgment. ance. There is no practice guideline available
It frequently leads to behavioral dysfunction defining content and application modalities for
usually labeled as behavioral and psychological physical exercise for people with moderate to
symptoms of dementia (BPSD). The risk of severe dementia (Yu & Kolanowski, 2009). The
developing dementia increases with age; thus, presence of many different disabilities among
the number of people with dementia will increase this fragile population could explain the absence
worldwide over the coming decades along with of practice guidelines (Taylor et al., 2004).
the aging population. Dementia can be assessed However, it remains unclear which parameters
with specific instruments, such as variety of neu- (modality, frequency, duration of the sessions,
ropsychological tests, the Functional Assessment individual vs. group activities) are the most
Staging of Alzheimers Disease, or the Clinical effective (Burge et al., 2011).
Dementia Rating Scale. Dementia represents an Occupation is central to the care of people with
important part of the eldercare, Care, elder. dementia. Physical activity programs should bring
Activities of daily living (ADL) comprise immediate benefits to participants in maintaining
basic activities like feeding, toileting, grooming, identity, providing a sense of usefulness and enjoy-
maintaining continence, putting on clothes, ment, pleasure, engagement, meaning, and hap-
bathing, as well as walking and transferring piness (Egan et al., 2006). When physical activity
(such as moving from bed to wheelchair). is proposed, caregivers consider maintenance of
Moderate to severe dementia impacts peoples functional independence as the most important
ability to perform ADL due to both cognitive goal (Harmer & Orrell, 2008), while other compo-
and neuropsychiatric impairments. Loss of ADL nents, like meaningfulness and immediate plea-
performance increases the need of support by sure, seem more important to the participants. In
others and leads to important direct and indirect order to be motivating and fully beneficial, physi-
health-care costs (Kang et al., 2007), care- cal activity programs should therefore promote
giver burden (Luppa et al., 2012), as well as physical well-being and simultaneously respond
premature nursing home placement (Steeman to other human needs such as psychological and
et al., 1997). Exercise aiming at improving endur- social needs. There is a growing body of evidence
ance has a positive influence on the cardiovascu- that music in advanced stages of dementia can
lar system of aging people (Heyn et al., 2008), help to improve participation and performance of
and regular practice of physical activity can patients involved in physical activity programs
delay loss of muscle strength in the elderly. (Clair & OKonski, 2006; Hulme et al., 2010).
Important parameters promoting ADL perfor- Thus, physical exercise in groups accompanied
mance among elderly people are moderate exer- by music could more easily respond to the
cise intensity (Paterson & Warburton, 2010) and expectations of demented patients and increase
regularity of the training (Rolland et al., 2007). their adherence to a physical activity program
Moderate physical exercise can therefore than individual exercise performed without music.
preserve ability to perform ADL in people with Generic ADL scales like the Barthel Index,
dementia. the Katz Activities of Daily Living Scale, or the
Daily activity is important for both physical Functional Independence Measure (FIM) are
and mental health. Physical abilities like strength, most frequently used for the assessment of ADL
endurance, balance, and mobility are required performance. Dementia-specific assessments are
for many non-sedentary activities as different also available, such as the disability assessment
as gardening, going for a walk around the for dementia (DAD) (Gelinas et al., 1999).
Dementia, Effect of Physical Exercise on ADL Performance 1509 D
Although they are clinically relevant measure- Exercise
ment methods, their sensitivity to change is weak Functional Independence Measure
(Littbrand et al., 2009), especially for moderate to Gardening
severe stages. The choice of a standardized tool to Health-Care Costs
assess ADL performance is difficult. Dementia- Human Needs
specific ADL scales have been developed, but Katz Activities of Daily Living Scale
no recommendations are available (Desai et al., Measurement Methods
2004). The Changes in Advanced Dementia Scale Music
is an interesting specific ADL assessment tool. Its Physical Activity D
psychometric qualities are adequate (McCracken Physical Well-Being
et al., 1993) and it includes a mobility item. Pleasure
Pleasure, Engagement, Meaning,
Discussion and Happiness
Several studies (Kwak et al., 2008; Steinberg
et al., 2009; Stevens & Killeen, 2006) showed
that physical activity programs significantly
References
improved ADL performance in people with mod-
erate to severe dementia. Rolland et al. (2007) Burge, E., Kuhne, N., Berchtold, A., Maupetit, C., & von
observed a small but clinically meaningful delay Gunten, A. (2011). Impact of physical activity on
of ADL performance loss in the group who activity of daily living in moderate to severe dementia:
followed a physical activity program during A critical review. European Review of Aging and
Physical Activity, 9, 2739.
12 weeks. Though encouraging, the positive Clair, A. A., & OKonski, M. (2006). The effect of rhyth-
effects of physical exercise on ADL performance mic auditory stimulation (RAS) on gait characteristics
warrant further investigation in order to deter- of cadence, velocity, and stride length in persons with
mine the most effective modalities. A patients late stage dementia. Journal of Music Therapy, 43(2),
154163.
low ADL dependency reduces caregiver burden Desai, A. K., Grossberg, G. T., Grossberg, G. T., & Sheth,
as well as costs related to care and influences D. N. (2004). Activities of daily living in patients
positively the quality of life of both patient and with dementia: Clinical relevance, methods of
caregiver. It is possible that the positive effect of assessment and effects of treatment. CNS Drugs,
18(13), 853875.
exercise on quality of life is not only due to Egan, M., Hobson, S., & Fearing, V. (2006). Dementia and
improved ADL performance. Physical exercise occupation: A review of the literature. Canadian Jour-
(regular walking training) may act on cognition nal of Occupational Therapy, 73(3), 132140.
(Winchester et al., 2012) and improve mood Gelinas, I., Gauthier, L., McIntyre, M., & Gauthier, S.
(1999). Development of a functional measure for per-
among people with moderate to severe dementia sons with Alzheimers disease: The disability assess-
(Thune-Boyle et al., 2012); however, these ment for dementia. American Journal of Occupational
effects need further investigation. Therapy, 53(5), 471481.
Harmer, B. J., & Orrell, M. (2008). What is meaningful
activity for people with dementia living in care homes?
A comparison of the views of older people with
Cross-References dementia, staff and family carers. Aging & Mental
Health, 12(5), 548558.
Activities of Daily Living Heyn, P. C., Johnson, K. E., & Kramer, A. F. (2008).
Endurance and strength training outcomes on cogni-
Aging Population tively impaired and cognitively intact older adults:
Barthel Index A meta-analysis. The Journal of Nutrition, Health &
Behavioral Dysfunction Aging, 12(6), 401409.
Caregiver, Burden Hulme, C., Wright, J., Crocker, T., Oluboyede, Y., &
House, A. (2010). Non-pharmacological approaches
Clinical Dementia Rating Scale for dementia that informal carers might try or access:
Dance and the Quality of Life A systematic review. International Journal of Geriat-
Disability ric Psychiatry, 25(7), 756763.
D 1510 Democracy

Kang, I. O., Lee, S. Y., Kim, S. Y., & Park, C. Y. (2007). Thune-Boyle, I., Iliffe, S., Cerga-Pashoja, A., Lowery, D.,
Economic cost of dementia patients according to the & Warner, J. (2012). The effect of exercise on behav-
limitation of the activities of daily living in Korea. ioral and psychological symptoms of dementia:
International Journal of Geriatric Psychiatry, 22(7), Towards a research agenda. International
675681. Psychogeriatrics, 24(7), 10461057.
Kwak, Y. S., Um, S. Y., Son, T. G., & Kim, D. J. (2008). Winchester, J., Dick, M., Gillen, D., Reed, B., Miller, B.,
Effect of regular exercise on senile dementia patients. Tinklenberg, J. et al. (2012). Walking stabilizes cog-
International Journal of Sports Medicine, 29(6), nitive functioning in Alzheimers disease (AD) across
471474. one year. Archives of Gerontology and Geriatrics,
Littbrand, H., Lundin-Olsson, L., Son, T. G., & Kim, D. J. 56(1), 96103.
(2009). The effect of a high-intensity functional exer- Yu, F., & Kolanowski, A. (2009). Facilitating aerobic
cise program on activities of daily living: exercise training in older adults with Alzheimers
A randomized controlled trial in residential care facil- disease. Geriatric Nursing, 30(4), 250259.
ities. Journal of American Geriatrics Society, 57(10),
17411749.
Luppa, M., Riedel-Heller, S., Stein, J., Leicht, H., Konig,
H., van den Bussche, H. et al. (2012). Predictors
of institutionalisation in incident dementia Results Democracy
of the German study on ageing, cognition and
dementia in primary care patients (AgeCoDe Study). Community Participation
Dementia and Geriatric Cognitive Disorders, 33(4), Democracy and Quality of Life
282288.
McCracken, A., Gilster, S., Connerton, E., Canfield, H., &
Painter-Romanello, M. (1993). Developing a tool to
measure functional changes in advanced dementia.
Nursing connections, 6(2), 5566. Democracy and Bureaucracy
Paterson, D. H., & Warburton, D. E. (2010). Physical
activity and functional limitations in older adults:
A systematic review related to Canadas physical Ali Farazmand
activity guidelines. International Journal of Behav- Florida Atlantic University, Boca Raton,
ioral Nutrition and Physical Activity, 7, 38. FL, USA
Rolland, Y., Pillard, F., Klapouszczak, A., Reynish, E.,
Thomas, D., Andrieu, S., et al. (2007). Exercise
program for nursing home residents with Alzheimers
disease: A 1-year randomized, controlled trial. Journal Synonyms
of American Geriatrics Society, 55(2), 158165.
Santana-Sosa, E., Barriopedro, M. I., Lopez-Mojares, L. M.,
Perez, M., & Lucia, A. (2008). Exercise training is Bureaucratic politics; Democratic politics; Gov-
beneficial for Alzheimers patients. International ernance; Government; Group politics; Partisan
Journal of Sports Medicine, 29(10), 845850. politics; Policy politics; Program; Public admin-
Steeman, E., Abraham, I. L., & Godderis, J. (1997). Risk istration; Representative bureaucracy; System
profiles for institutionalization in a cohort of elderly
people with dementia or depression. Archives of Psy- maintenance
chiatric Nursing, 11(6), 295303.
Steinberg, M., Leoutsakos, J. M., Podewils, L. J., &
Lyketsos, C. G. (2009). Evaluation of a home-based Description
exercise program in the treatment of Alzheimers dis-
ease: The maximizing independence in dementia
(MIND) study. International Journal of Geriatric Psy- Introduction
chiatry, 24(7), 680685. Bureaucracy has proven to be one of the oldest,
Stevens, J., & Killeen, M. (2006). A randomised con- most resilient, and most enduring institutions
trolled trial testing the impact of exercise on cognitive
symptoms and disability of residents with dementia. in history. As the most powerful instrument
Contemporary Nurse, 21(1), 3240. of government and governance, it has survived
Taylor, A. H., Cable, N. T., Faulkner, G., Hillsdon, M., millennia of political and social changes, revolu-
Narici, M., & Van Der Bij, A. K. (2004). Physical tions, and upheavals from the dawn of civilizations
activity and older adults: A review of health benefits
and the effectiveness of interventions. Journal of to the present. Political masters have come and
Sports Sciences, 22(8), 703725. gone, but none has been able to do away with
Democracy and Bureaucracy 1511 D
bureaucracy. In contrast, democracy does not red tape, delay, corruption, and stifling processes
have a long history, except for some sporadic in getting things done. It has also gained a nega-
practices in primitive forms and scale in ancient tive reputation for being a repressive instrument of
Greece, as fantasized in the West. What do bureau- domination, control, and class rule in the hands of
cracy and democracy really mean? Are they com- ruling elites. But bureaucracy and bureaucratiza-
patible or contradictory? What do bureaucratic tion have also been historically recognized for
and democratic politics mean? And by the same providing institutional processes through which
token, what does bureaucratization and democra- benefits to large mass society can be provided for
tization mean? What perspectives can possibly various reasons. This has been shown by historical D
explain these two institutional phenomena, partic- evidence (Antonio, 1979; Eisenstadt, 1963, 1993;
ularly in the age of globalization? What effect Etzioni, 1983; Farazmand, 2009b, c, 2010) or stan-
does bureaucracy have on the quality of citizens dardization and efficient administration of colonial
lives? This short entry addresses these important territories by modern empires (Farazmand, 2009b;
questions. A full version of this entry is found in Subramaniam, 1998).
Farazmand, 2010. Two perspectives explain the meanings of
bureaucracy. One is the Weberian ideal-type
Visiting the Empire concept of bureaucracy as the most efficient
Perspectives on Bureaucracy and Bureaucratic type of organization based on formal, merit, and
Theory rational characteristics. In reality, an ideal-type
Borrowing Herbert Simons metaphor on bureaucracy rarely exists approximation or a
decision making (Simon, 1979), we visit the combination of merit and patronage is what really
colonies of the empire of bureaucracy in search operates. Exceptions aside, some societies are
for its eminent limestones. We discover a whole better organized along Weberian lines, while
density of population that comprise perspectives, others still dwell in early colonies.
studies, and practices that can hardly be missed Webers coinage of bureaucracy also offers
by anyone on the planet where human species a comparative approach if not methodology of
live even the most free and wildest animals studying modern organization and administra-
cannot escape it. While the population of studies tion. Many inhabitants of the bureaucratic
and perspectives as well as writers and speakers colonies have missed this key feature of Webers
spread all over the social sciences, the density idealization managing large-scale organizations
seems to be focused in sociology, economics, and societies. Why? Has there been a shortage of
political science, public administration, and orga- inhabitants interested in such studies? Hardly so,
nization theory oh yes, history and civilization and the answer seems to be more of preoccupation
too. The inhabitants include liberals, conserva- with other features of bureaucracy for obtaining
tives, advocates, opponents, and neutral observers political control, organizational efficiency, and
from all disciplines and walks of life, classical, managerial effectiveness in administration. This
neoclassical, institutionalists, and revolutionaries. colony of comparative studies is underpopulated
Visiting the colonies makes one wonder how the and is in need of scholarly works, particularly in
empire started, who the pioneers were, who mas- the age of globalization of corporate capitalism
tered the beast, who perfected it, and why has it and of global empire building.
become so hated as well as loved. Volumes of The second meaning of bureaucracy refers to
books and articles may not be enough to answer any large organization or institution organized
these questions, much less this short synoptic with structure, process, and normative values,
entry. We begin visiting this empire without sur- rules, and regulations as well as a mix of merit
veying its many colonies a task beyond this and patronage and record systems. Waldo (1948,
limited space. 1992), Eisenstadt (1963), and others, including
Bureaucracy has gained a pejorative reputa- this writer (Farazmand, 2009b, 2010), are known
tion over time and has often been associated with for espousing this view. A handful of historical
D 1512 Democracy and Bureaucracy

bureaucratic empires, such as the ancient world- that ideal bureaucracy rarely exists or operates
state Achaemenid Empire of Persia, Imperial and has a tendency to overtower society
Rome, the British Empire in India, the Prussian/ (1984) and that bureaucracy is a powerful instru-
German and French empires both at home and in ment of power of the first order in the hands of
colonies, as well as the American bureaucracy, those who control it whether a monarch, an
resemble a high degree of professionalization elected president, or autocratic dictator (Weber,
close to Weberian bureaucratic model. The 1947, 1984), as it was in the imperial Rome
former Soviet Union bureaucracy huge on a (Antonio, 1979) or the last stage of the Persian
world scale was claimed to be meritorious and Empire (Eisenstadt, 1963; Farazmand, 2009c).
professionalized, but studies are needed to reveal Several perspectives may explain bureaucratic
details worthy of scholarly research consideration. politics in a broader sense. It means internal
Such studies need to be conducted free from organizational politics of bureaucracy by those
ideological and political biases. Bureaucracy in key positions favoring particular policies, pro-
has survived 8000 years of political and social grams, and or ideas. It also means playing with
changes and upheavals in the Near/Middle East, bureaucratic rules to slow down or expedite cer-
particularly early Iran and Persia, Egypt, India, tain ideas and programs through policy imple-
Assyria, and Babylon (Farazmand, 2001, 2009c, mentation. The psychological impacts of
2010; Frye, 1975; Olmstead, 1948). As a concept bureaucracy on individual citizens and or
or organization, bureaucracy is the most powerful employees working are enormous and
institution of governance and administration in documented by psychologists and anthropolo-
both government and business enterprise. It is gists (see Merton, 1940, 1957; Parsons, 1951;
an organizational system no one can escape Hummel, 1976), with huge implications for
(Marx, 1967; Weber, 1947). quality of life and environment.
The role of bureaucracy in society, therefore, is
Bureaucratic Politics and Democratic Theory manifested through policy implementation, role
In another study, Farazmand has (Farazmand, clarification, class rule, regulatory function,
1989) identified several types of politics: group development, destruction, and political system
politics, partisan politics, program and policy maintenance or enhancement (Farazmand, 1989a).
politics, and bureaucratic politics. While each of Neoconservative and neoclassical economic theo-
these political types serves particular interests rists of the public choice theory circles (i.e.,
or purposes, bureaucratic politics serves as a Downs, 1967; Niskanen, 1971; Wilson, 1989)
key instrument in accomplishing or achieving have written a lot on the antidemocratic side of
the goals of all other politics. It is the bureaucracy, while others have done equal critique
bureaucracy both civilian and military that of the beast that stifles quality of life and represses
is the institutional arm or machinery of govern- humanity and environment. They prescribe pri-
ment, one that carries out policies and programs vatization and corporatization to maximize citi-
and accomplishes political goals. This raises the zens self-interest individualism. These critics
central questions of who the bureaucracy serves, rarely speak of military bureaucracy. Bureaucracy
who controls it, and how this works as a process. is a powerful instrument of system maintenance,
These are fundamental questions that social and all bureaucracies perform this function; it
scientists, revolutionary leaders, and administra- becomes a powerful instrument of class rule by
tors have tackled for millennia. those who rule society, whether a capitalist ruling
Can bureaucracy be neutral? Perspectives class (ala Karl Marx, 1967, and Lenin, 1971;
abound, but the majority agrees that whoever con- Mosca, 1939), a few rich oligarchs and ruling
trols the institutions of government also controls power elite (Mills, 1956; Parenti, 1988, 2010),
and uses the bureaucracy as an instrument of power or any person whether a dictator, a monarch, an
and rule including class rule. Highly influenced elected president, or a council (Weber, 1947, 1967,
by Karl Marx (1967), Max Weber (1947) agreed 1968, 1984).
Democracy and Bureaucracy 1513 D
While most developing countries experienced an opposite view sees bureaucracy politically
direct colonial rule of Western empires, with the involved at all levels with all social and norma-
exception of Iran or Persia and Turkey (former tive values and rejects the neutrality doctrine in
Ottoman), which were empires themselves governance and administration. Dwight Waldo
right into the twentieth century, and Thailand. and Robert Dahl made this point since the late
Post-World War II political independence has 1940s, a view I also concur with (Farazmand,
meant little but a continuation of bureaucratic and 2010). The third view on bureaucracy is espoused
economic rule by remote control and through a by Marx, Lenin, and revolutionary leaders
new class of comprador bourgeoisie to borrow and sees it a dangerously powerful obstacle to D
from Lenin (Lenin, 1971). The new class of revolutionary change. It must be changed or
military and civilian bureaucratic elites are the replaced, but two different viewpoints have
actual agents of the neocolonial rule, agents emerged within this revolutionary perspective:
acting in harmony with the interests of foreign one for abolishing the bureaucracy of the old
imperialism (see Farazmand, 1989b; Kelly, regime immediately, while the other arguing in
2007). Escaping the global empires grip is not favor of its gradual change and replacement.
easy, as most developing nations need foreign aid Lenin (1971) prevailed in the great debate right
often coming from the West, but none comes after the Bolshevik Socialist Revolution of
without conditions that bind them with neocolo- Russia in 1917 (Lenin, 1971). Similar patterns
nial grip over their lives and governance systems developed after the Iranian Revolution of
(Amsden, 2007). 19781979 (Farazmand, 1989b) I support this
The third perspective on bureaucratic politics view of bureaucracy as well.
is explained by bureaucratism, a process and
phenomenon that involves use and abuse of Democracy and Democratic Politics
power and authority by bureaucrats in positions Like the colonies of bureaucracy, the colony of
of power for personal and political purposes. democracy has also been inhabited by many from
Creating a dynamic that can also be purely for all disciplines that include idealists, realists,
personal gain (see Farazmand, 1989a). The fourth conservatives, liberals, democrats, and revolu-
explanation of bureaucratic politics is summed up tionaries, both secular and religious. The empire
in the bureaucratization process and phenome- has many colonies, and all contend superior qual-
non, an issue beyond the scope of this short entry; ities, and none seems to acknowledge diversity as
bureaucratization is both political to curtail a quality for coexistence. So, the colonies
decentralization and autonomous power centers grow, and the search for absolute truth continues
or structures such as feudal lords in favor of in a march through the age of rapid globalization
more concentrated power structures by kings, in which the more dominant colonies claim
elected presidents, or other officials. It is also ownership, control, and monopoly of ideas,
a social or class leveling practice to break the ideals, and features of the empire.
class hierarchy and spread access to government From the dawn of human civilizations, rulers,
and its privileges of society among common philosophers, and thinkers have tried to create
citizens. Historical evidence shows this to ideal societies. Ancient Greek philosopher
be the case in ancient Persia and Rome and Plato conceived an ideal state in his Republic;
contemporary United States. the Persian philosopher of the tenth century
Finally, bureaucracy and change or revolution Farabi, also known as the Second Teacher in
is another huge topic that requires separate treat- history after Aristotle, developed the ideal city
ment (see, e.g., Farazmand, 2009c, especially state in his book, Madineh Fazele; and Western
Chapters 3235). Three theoretical perspectives philosophers like Locke, Hobbs, Rousseau,
inform this relationship: One is the neutrality Montesquieu, Bentham, Mill, and the American
of bureaucracy, Wilsons view, or at least one Founding Fathers also proposed forms or models
attributed to him (Wilson, 1887); the second as of government. The latter tried to prescribe
D 1514 Democracy and Bureaucracy

institutions and systems of government to pro- Finally, there are also exclusionary-, racially,
mote equality, rule of law, liberty, collective or religious-based political systems that are
mechanism, separation of powers, constitutional officially known as democracies but actually
rule, and other forms of citizen participation in practice exclusion of people based on religion,
government and administration. So did the race and ethnicity, culture, or color they even
revolutionary leaders of the Russian Bolshevik practice apartheid systems.
Revolution by visioning a classless society Theories of democracy also abound: group
under communism. Similarly, the postrevo- theory, pluralist theory, populist theory, elite
lutionary Iran tries to create an ideal society theory, market theory, and socialist theory.
based on social and economic justice and through Using a continuum on democratic theories, three
a mix of presidential and parliamentary systems perspectives emerge: On the far right, conserva-
of government, direct popular election, and tives are found under various names (US Repub-
Islamic sanctions. All strove to create an ideal licans, British Conservative Party), on the far left
society and governance. Yet, neither ideal soci- are socialists and revolutionaries (Cuba, USSR,
ety nor true democracy has emerged anywhere as Maos China), and in the middle is a spectrum of
a political system in the world as of yet. so-called names and tendencies (Democrats or
Democracy is an illusory term in need of liberals in the USA or Europe), all with values in
extensive definitions, explanations, and interpre- Western political culture composed of individual-
tations, a task beyond the space limitation of this ism, property, liberty, and equality, with the
short entry. First, all democratic theories imply, exclusion in practice of certain people of color,
explicitly or implicitly, a number of characteris- gender, race, etc., as history has shown in Europe,
tics common to all democratic systems of United States, and Australia, some as late as the
societies such as the role of the constitution, 1960s Native Americans and Blacks as well as
rule of law, respect for minority rights, elections women in the United States the latter gained
and other forms of representation, citizen partic- voting rights early in the twentieth century.
ipation in political activities, accountability, and The dynamics of democracy are further
responsiveness; most of these characteristics explained by the variations in forms of political
rarely exist in any democracy, but a degree of systems and degrees of citizen participation in the
their presence or practice may be found in various political process. Generally speaking, the three
societies or political systems. Second, variations types of democratic political systems which use
among democracies abound, as political cultures election as a rule are the parliamentary system
and traditions play key intervening variables. (e.g., Germany, India), the presidential system
Third, pure or ideal democracy does not exist, (e.g., US system), and the mixed parliamentary
or is at best rare. Fourth, the larger the society and strong presidential system (e.g., France, Iran).
and more complex its sociocultural and political Socialist systems may also have elections, both
orientations are, the more complex and less directly and indirectly through representation, but
democratic that democracy tends to become. direct democracy is rare and possible only in small
Fifth, the more technologically advanced, the population-based towns or villages, hence the
less democratic and more bureaucratic the case for representative democracies, in which
society tends to become, as specialized knowl- citizens have to rely on elected representatives
edge and technical expertise are not comprehen- who tend to logroll through give-and-take strat-
sible to average citizens. Finally, there are egies with opposing colleagues in order to get
officially known democracies that have no con- things done, and this adds more complexity to
stitutions and practice undemocratic activities, the politics of democracy.
and their people are treated as subjects of The politics of democracy are explained by
monarchs or queens, not citizens, hence several perspectives. One on the far right com-
a contradiction in democratic theory in practice plains against bureaucracy and big government;
because subjects can determine their destiny. another perspective sees democracy deficient as a
Democracy and Bureaucracy 1515 D
form of government. Plato considered democracy century has experienced massive reforms in
deficient and based on the rule of the mob, with governments and administrative systems, all
human sentiment playing a key role in determin- toward privatization and outsourcing of govern-
ing who should rule, subject to manipulation by ment functions. The major trends have been
money and personality power. To Plato, democ- market reform, market-based governance,
racy means plutocracy or rule by the rich. market-based administration, strategic and
Contemporary critics of democracy also point systemic privatization, and results-oriented reor-
out the power of money and wealth, not formal ganization. The buzz word has been new to
elections or official names, to rule; they consider describe New Governance, New Public Manage- D
plutocracy as the norm of governance in bour- ment, and all the rest. How new are these new
geoisie democracy, with a few rich who dominate ideas? Just like the colonies of bureaucracy and
the vast majority of the powerless (Parenti, democracy, the colony of reconciling bureau-
1988, 2010). The third view comes from the cracy and democracy or bureaucracy-
left, the socialists and revolutionary progressives democracy relationship is also heavily popu-
who see democracy in capitalism a rhetorical lated with diverse inhabitants, from left to right
cover for class exploitation and repression of the and from all disciplines.
vast majority of people by the few super rich Proponents of these new market-based
capitalist class. This group of critics also notes reforms claim bureaucracy as a threat to democ-
contradictions between what the Western democ- racy (Mosher, 1968; Niskanen, 1971) and offer
racies claim through rhetorical slogans and what reinventing government through privatization
they actually practice in other nations around the and outsourcing of public sector functions
world ignoring human rights and violating dem- (Osborne & Gaebler, 1992). Opponents defend
ocratic values in favor of national economic or bureaucracy as better and more efficient when
business interests. This perspective criticizes taking social and opportunity costs into account
industrial democracies for practicing neocolonial in the calculus of efficiency (Farazmand, 2009b;
and imperialist ideas, invading rich developing Goodsell, 2004; Meier, 1993). They are critical of
nations for political and economic reasons and the corporate globalization of the world with loss
dominating the world by forming an oligarchic of public accountability, abuse, and exploitation
hegemony (Agnew, 2005; Kelly, 2007; Parenti, of human lives. They see the trend benefiting
1988, 2010). corporate globalizers and threatening
democracy and democratic rights of citizens
Reconciling Bureaucracy and Democracy? (Farazmand, 1999; Korten, 2001; Waldo, 1992;
Implications for Quality of Life Woods, 2006).
Can bureaucracy and democracy be reconciled? To these critics, it is a hypocrisy to speak of
Are they mutually exclusive institutions of democracy without a competent and yet account-
modern governance? Bureaucracy stands for able and truly representative bureaucracy,
continuity, order, efficiency, standardization, because the two are interdependent and one in
and rationalization of government administra- need of the other. This was the view of Dwight
tion. It stands for fairness through universal Waldo, and this is the view of this author (Waldo,
application of rules and regulation, and as such 1947, 1992; Farazmand, 2009a, 2010). In this line
bureaucracy is compatible with and serves of interdependence, some authors have gone even
the interests and goals of democracy. Democracy further by calling bureaucracy as the fourth
stands for election, representation, responsive- branch of government (Meier & Bohthe,
ness, expediency, accountability, and citizen 2007). History has shown that bureaucracy
participation in the democratic process of persists, and those who claimed to abolish it
government. Yet democracy has been less have actually enlarged and empowered it. To
efficient, often eclipsed by corruption and abolish it, one would have to abolish/dismantle
other problems. The world of the last quarter the US Department of Defense and the Pentagon
D 1516 Democracy and Bureaucracy

which is the worlds largest bureaucracy, and the well-being quality of life. Such an imbalance is
same must be done in all other governments and dangerous to democracy and human rights with
that is beyond comprehension. The political serious consequences for sound governance,
dilemma of democracy and bureaucracy has democracy, public administration, and human life
always confronted politicians and scholars and environment. The policy of excessive bureau-
with major choices to make dismantling cratization, militarization, and bureaucratic dom-
bureaucracy means chaos and disorder, and dis- ination was detrimental to the ancient Persian and
mantling democracy means rule by bureaucratic Roman Empires and contributed to their eventual
officialdom. A balance must be maintained downfall (Antonio, 1979; Cook, 1983; Eisenstadt,
between the two, as there is no other alternative. 1963, 1993); it is equally detrimental and danger-
As noted earlier, not all democracies are good or ous to contemporary empires and political sys-
effective, especially in the age of corporate glob- tems, whether democratic or authoritarian. Let us
alization in which corporate economic interests learn from history and its laws (Kennedy, 1989).
dominate democratic rights globally.
As I have argued elsewhere (see Farazmand,
2002), both the policy of sweeping privatization Cross-References
and blind application of the new public manage-
ment (NPM) are strategic instruments used to Aristotle
achieve the twin goals of corporate globalization Citizen Participation
of the world. The first transfers public sector func- Corruption
tions and resources to the corporate sector, driving Decision Making
more millions of average people in a race to the Democracy
bottom, while the second (NPM) changes the Development
culture and basic assumptions of public service Equality
and public interests served by sound public Liberty
administration systems with strong bureaucracies. Plato
More privatization means more dismantlement Quality of Life
of democracy and its institutional systems
(Farazmand, 2002; Suleiman, 2003). Bureaucracy
can also be democratized by increasing citizen References
participation, community-based administrative
practices, and other mechanisms, such as repre- Agnew, J. (2005). Hegemony: The new shape of global
sentative bureaucracy (Farazmand, 2010; power. Philadelphia: Temple University Press.
Amsden, A. (2007). Escape from empire. Cambridge,
Krislov, 1974; Rosenbloom & Kennard, 1977). MA: MIT Press.
Are democracy and bureaucracy reconcilable? Antonio, R. J. (1979). The contradiction of domination
Yes they are. Are there contradictions in the rela- and production in bureaucracy: The contribution of
tionship between the two phenomena? Yes there organizational efficiency to the decline of the Roman
empire. American Sociological Review, 44, (Decem-
are, but they can be either minimized or aggra- ber), 895912.
vated depending on the public policies pursued. Caplan, B. (2007). The myth of the rational voter: Why
Extreme choices will result in imbalances and democracies choose bad policies. Princeton, NJ:
imbalance means accentuating contradictions. Princeton University Press.
Cook, J. M. (1983). The Persian empire. New York:
The current global stress on the political role of Schoken Books.
bureaucracies including the private mercenary Downs, A. (1967). Inside bureaucracy. Boston: Little,
and corporate bureaucracies for establishing Brown.
domination, control, and hegemony is at the Eisenstadt, S. N. (1963, 1993). The political systems of
empires: A study of bureaucratic societies. Glencoe:
expense of creating social and economic opportu- The Free Press.
nities for the masses of people in search of Etzioni-Halevey, E. (1983). Bureaucracy and democracy: A
employment, decent living standards, and future political dilemma. London: Routledge and Kegan Paul.
Democracy and Bureaucracy 1517 D
Farazmand, A. (1989a). The state, bureaucracy, and Meier, K., & Bohthe, J. (2007). Politics and the bureau-
revolution. New York: Praeger. cracy: Policy making in the fourth branch of govern-
Farazmand, A. (1989b). Crisis in the U.S. Administrative ment (5th ed.). Belmont, CA: Thompson/Wadsworth.
state. Administration and Society, 21(2), 179199. Merton, R. (1940, 1957). Bureaucratic structure and per-
Farazmand, A. (1999). Globalization and public adminis- sonality. In R. Merton (Ed.), Social theory and social
tration. Public Administration Review, 59(6), 509522. structure (pp. 195206). Glencoe, IL: Free Press.
Farazmand, A. (2001). Privatization or reform: Interna- Mills, C. W. (1956). The power elite. New York: Oxford
tional case studies. Westport, CT: Praeger. University Press.
Farazmand, A. (2002). Privatization and globalization: A Mosca, G. (1939). The ruling class. New York: MacGraw-
critical analysis with implications for public manage- Hill.
ment education and training. International Review of Mosher, F. (1968). Democracy and the public service. D
Administrative Sciences, 68(3), 355371. New York: Oxford University Press.
Farazmand, A. (2004). Sound governance: Policy and Niskanen, W. (1971). Bureaucracy and Representative
administrative innovations. Wetport, CT: Praeger. Government. Chicago: Adline & Atherton.
Farazmand, A. (2009a). Building administrative capacity Olmstead, A. T. (1948). History of the Persian empire:
for the age of rapid globalization: A modest prescrip- The achaemenid period. Chicago: University of
tion for survival in the 21st century. Public Adminis- Chicago Press.
tration Review, 69(6), 10071020. Osborne, D., & Gaebler, T. (1992). Reinventing govern-
Farazmand, A. (2009b). Bureaucracy, administration, and ment: How the entrepreneurial spirit is transforming
politics: An introduction. In A. Farazmand (Ed.), the public sector. Reading, PA: Addison-Wesley.
Bureaucracy and administration (pp. 118). Boca Parenti, M. (1988, 2010). Democracy for the Few.
Raton, FL: Taylor and Francis. New York: St. Martins Press.
Farazmand, A. (2009c). Bureaucracy and public adminis- Parsons, T. (1951). The social systems. New York: Free
tration of the World State Achaemenid Persian Press.
Empire. In A. Farazmand (Ed.), Bureaucracy and Pharr, S., & Putnam, R. D. (2000). Disaffected democra-
administration. Boca Raton, FL: Taylor and Francis. cies: Whats troubling the trilateral countries?
Farazmand, A. (2010). Bureaucracy and democracy: Princeton, NJ: Princeton University Press.
A theoretical analysis. Public Organization Review, Peters, G. (2001). The future of governing (2nd ed.). Law-
10(3), 245258. rence, KS: University of Kansas Press.
Frye, R. (1975). The golden age of Persia. New York: Riggs, F. (2009). Bureaucracy: A profound puzzle for
Harper and Row. presidentialism. In A. Farazmand (Ed.), Bureaucracy
Goodsell, C. (1985). The case for bureaucracy. Chatham, and administration (pp. 155203). Boca Raton, FL:
NJ: Chatham House. Taylor & and Francis.
Goodsell, C. T. (2004). The case for bureaucracy (4th ed.). Rosenbloom, D., & Kennard, D. (1977). Bureaucratic
Washington, DC: CQ Press. representation and bureaucratic behavior: An explor-
Hummel, R. (1976). The bureaucratic experience. New atory analysis. Midwest Review of Public Administra-
York: St. Martins Press. tion, 11, 342.
Kelly, K. (2007). New views on north-south relations of Schumpeter, J. (1950). Capitalism, socialism, and democ-
imperialism. In A. Farazmand & J. Pinkowski (Eds.), racy. New York: Harper & Row.
Handbook of globalization, governance, and public Simon, H. (1979). Rational decision making in business
administration (pp 759797). Boca Raton, FL: Taylor organizations. The American Economic Review, 69(4),
& Francis. 493513.
Kennedy, P. (1989). The rise and fall of the great powers. Suleiman, E. N. (2003). Dismantling the democratic state.
New York: Vintage Books. Princeton, NJ: Princeton University Press.
Kingsley, J. D. (1944). Representative bureaucracy. Waldo, D. (1947). The administrative state. New York:
Yellow Spring, OH: Antioch Press. Holmes and Meier.
Korten, D. (2001). When corporations rule the world Waldo, D. (1948). The administrative state. New York:
(2nd ed.). Westport, CT: Kumarian P. Ronald.
Krislov, S. (1974). The representative bureaucracy. Waldo, D. (1992). The enterprise of public administration.
Englewood Cliffs, NJ: Prentice-Hall. Novato: Chandler and Sharp.
Lenin, I. I. (1971). State and revolution. New York: Weber, M. (1947). The theory of social and economic
International Publishers. organizations. (A. M. Parsons & T. Parsons, Trans.).
Marx, K. (1966). The civil war in France. Peking: Foreign New York: Free Press.
Languages Press. Weber, M. (1967, 1968). Economy and society (3 Vol-
Marx, K. (1951, 1967). Selected works. Moscow: Progress umes). New York: Bedminster Press.
Books. Weber, M. (1984). Bureaucracy. In F. Fischer & C.
Meier, K. (1993). Representative bureaucracy: Sirianni (Eds.), Critical studies in organization and
A theoretical and empirical exposition. Research in bureaucracy (pp 2439). Philadelphia: Temple Uni-
Public Administration, 2, 135. versity Press.
D 1518 Democracy and Development in Mexico and Chile

Wilson, J. Q. (1989). Bureaucracy. New York: Basic Books. through the 1980s and 1990s, produced neither
Wilson, W. (1887). The study of administration. Political equitable prosperity nor widespread poverty
Science Quarterly, 2(2), 197220.
Woods, N. (2006). The globalizers: The IMF, The World reduction in Latin America. The increased inter-
Bank, and Their Borrowers. Ithaca, NY: Cornell Uni- est in the responsiveness of governments to citi-
versity Press. zens demands (Diamond & Morlino, 2005: xi;
Rueschemeyer, 2004: 76) has been paralleled by
the vociferous opposition of civil society organi-
Democracy and Development in zations to neoliberal policies because of their
Mexico and Chile harmful impact on living standards (Avritzer,
2002; Stahler-Sholk, et al., 2007). Poverty and
Judith Teichman inequality, preoccupations for civil society
Political Science, University of Toronto Munk groups for some time, are now among the major
School, Toronto, ON, Canada concerns of development experts and scholars
alike. Conditional cash transfer programs, the
allocation of small sums of money to the female
Synonyms heads of households in exchange for such condi-
tions as keeping children in school and regular
Alternative development in Mexico and Chile; visits to health clinics, have become the most
Civil society in Mexico and Chile; Equitable well-known antipoverty strategy in Latin Amer-
prosperity in Mexico and Chile; Neo-liberal ica and in many other parts of the world.
development in Mexico and Chile; Rights-based In both Mexico and Chile, competing visions
development; Technocratic knowledge of democracy and development, which I refer to
as the neoliberal and community develop-
ment perspectives, emerged during the formula-
Definition tion and implementation of conditional cash
transfer programs between 2000 and 2008. Top-
Since the late 1980s, two competing visions of level policymakers in both countries came to
democracy have emerged in Mexico and Chile. recognize that while the market, through eco-
One is concerned with political participation on nomic growth, was still the best mechanism to
the part of the poor and their advocates and has as reduce poverty, targeted programs, most notably
its objective that of achieving improved social conditional cash transfer programs, were neces-
well-being. The other, which focuses on the for- sary to secure the incorporation of the poorest
mal processes of liberal democracy (such as elec- citizens into the market. It is through this incor-
tions), takes the position that elected leaders and poration, according to this viewpoint, that pov-
their technocratic advisors are best able to formu- erty reduction would occur over the long term.
late effective social policies. While the former These competing visions as ideal types are
perspective sees the local community and state outlined below, that is, as pure types against
as having an important development role (defined which we can measure the competing perspec-
as improvement in the lives of the poor), the latter tives found in Mexico and Chile.
takes the position that the market must play the
predominant role in development (defined as eco- The Neoliberal and Community Development
nomic growth). Visions as Ideal Types
The neoliberal vision takes the position that the act
of governing must be confined to elites, who,
Description unlike the public, are not driven by irrational
influences and have a clear sense of reality
Neoliberal policy prescriptions (trade liberaliza- (Schumpeter 1950, 250, 261). According to this
tion, privatization, and deregulation), adopted perspective, therefore, citizen participation occurs
Democracy and Development in Mexico and Chile 1519 D
largely at election time. Policy design and levels, but is multidimensional and shaped by
monitoring are the exclusive purview of elected local contexts. The state, according to this per-
political leaders and high-level government spective, if truly participatory, is a key ingredient
bureaucrats the former, because they are in improved social welfare. Finally, community
accountable at election time, and the latter, welfare is especially important in the achieve-
because they have the training to develop policy ment of social improvements. The individual
properly although government may consult citi- and the family are inseparable from the commu-
zens it considers highly qualified. This type of nity; indeed, to be successful, social programs
democracy, so the argument goes, is conducive must take all of these factors into account. D
to stable economic growth, a feature necessary
for the achievement of prosperity over the long Competing Visions of Democracy and
term. Since the market is the most efficient alloca- Development in Chile
tor of resources, the policy process is obliged to Chile has a history of sharp political polarization.
exclude groups whose demands are likely to inter- Hence, the presence of opposing views on
fere with market mechanisms because they bring democracy and development in that country is
about an unnecessary expansion in state activities not surprising. Following a period of military
and state expenditure. In addition, a strong concern rule (19731989) that witnessed a precipitous
for macroeconomic stability drives the search for drop in living standards and a rise in inequality,
cost effective ways to address social problems. the civilian government that came to power in
Technocratic (quantitative) knowledge predomi- 1990 promised growth with equity. However,
nates in the development and assessment of poli- the new civilian government was not open to
cies and in the ability of citizens to access social citizen participation in the development of public
programs. Hence, the neoliberal viewpoint does policy and was particularly resistant to participa-
not see state support of social programs as benefits tion in areas such as health policy, where civil
bestowed as a right of citizenship. Furthermore, society groups were demanding an end to private
the state provides social support to individuals and health care and the strengthening of the states
to families, (not to communities) because of the commitment to equitable and accessible health
neoliberal belief that a focus on individuals and care for all citizens. Officials of the Finance Min-
families provides for the most efficient use of state istry were the most resistant to civil society con-
resources. sultation. It was only in those policy areas that
The community development approach shares would have no appreciable impact on important
important similarities with a variety of critical aspects of the neoliberal model (such as changes
development perspectives, including alternative in the countrys divorce laws or legislation
development, rights-based development, and against family violence) where citizen input was
feminist critiques of mainstream development possible. Poor and indigenous women, on the
(Friedmann, 1992; Molyneux & Lazar, 2003; other hand, appear to have been particularly
Pieterse, 2001). It defines democracy in terms of excluded from policy input (Paley, 2001;
citizen participation and policy outcomes Richards, 2006). However, more openness to
that improve peoples social well-being. Hence, civil society participation in social policy
participation in policy design and monitoring appeared to be on the horizon with the election
must occur on the part of both organizations that of Michelle Bachelet as president in 2006, but
work for the poor and the citizens of poor com- failed to materialize.
munities. The poor (not the market), therefore, The Chilean governments opposition to civil
are central agents in their own development, and society participation in policy stemmed from the
the use of local knowledge (the knowledge of the fact that a high level of militant mobilization had
people living in poor communities) is an essential precipitated the 1973 military coup and from the
component of development. Therefore, poverty is belief that popular mobilization had been instru-
not a technical matter, measurable by income mental in the generation of unsustainable pressures
D 1520 Democracy and Development in Mexico and Chile

on public expenditures, which, in turn, had led to citizens of poor communities were, in their view, in
the severe economic deterioration of the mid- the best position to know who in the community
1970s. Members of political leadership had was in greatest need of support. In the words of one
a high level of technocratic training, with most poverty organization leader: If you do not involve
having degrees and graduate degrees, often in eco- the local population and become aware of local
nomics, from US universities. conditions your program will fail.
Initiated in 2002, the program Chile Solidario
aimed to alleviate extreme poverty through pro- Competing Visions of Democracy and
viding small cash transfers to the countrys Development in Mexico
poorest 225,000 families in exchange for a vari- Like Chile, Mexico saw the rise to power of
ety of commitments involving, among other a highly trained technocratic leadership in the
things, school attendance and health checkups. late 1980s (Centeno, 1999, 141). However, that
Although poverty had declined in Chile from rise to power occurred within the context of an
38 % of the population in 1990 to 20 % by authoritarian regime where fraudulent elections
2000, extreme poverty declined more slowly, and other methods of political control were prev-
settling at 5.6 % between 1996 and 2000 alent. However, by the year 2000, Mexico had
(ECLAC Economic Commission for Latin Amer- made the transition to electoral democracy with
ica & the Caribbean, 2006, 300). Technocrats in the election of Vicente Foxs Alliance for
the Finance Ministry and the Social Planning Change. Fox was elected president of Mexico
Ministry were the driving forces behind the new with strong support from a wide array of civil
program. They were concerned about the slow society organizations, a development that seemed
decline in extreme poverty as well as with the to augur well for civil society involvement in the
increasing level of government social expendi- new democratically elected regime. Despite the
tures and with the need to avoid welfare policies appointment of a number of civil society leaders
that would encourage welfare dependency. The to important positions within the state, however,
highly technocratic nature of the program was the opportunity for civil society organizations
reflected in the criteria used to select beneficiaries with social policy concerns to influence policy
(income level as ascertained through a highly declined as the administration wore on.
detailed survey) and the governments exclusive Mexico faced more intractable challenges
consultation of highly qualified individuals with than did Chile in the area of poverty reduction:
professional expertise in poverty issues. There The proportion of the population living in poverty
was an explicit rejection of the consultation of stood at 53 % in 1996, and although the figure
poverty organizations and of the poor in local declined thereafter, it was still high at 41 % in
communities where the new program was to be 2000 (ECLAC 2006, 300). As in the Chilean
implemented. In fact, government officials case, those organizations making demands that
strongly resisted World Bank pressure for civil challenged the neoliberal predisposition to main-
society consultation on the new program. tain a limited role for the state found the greatest
The civil society organizations that advocated difficulty in obtaining policy access and impact.
on behalf of the poor were all critical of the new Hence, calls for the establishment of universal
program. The viewpoints expressed by their lead- programs in health and education and programs
erships coincided closely with the community to provide more employment all measures that
development perspective in all respects. In addi- entailed an increase in the role of the state and
tion, all but one of the four organizations engaged a lack of faith in the market to improve social
in intense criticism of the countrys neoliberal (free well-being were rejected by the new govern-
market) model. Of particular importance is the fact ment. As in the Chilean case, the government
that Chilean civil society leaders believed that became strongly resistant to the notion of civil
policymakers must allow the perceptions of poor society consultation, even rejecting agreements
citizens to shape program development because the that it had reached with various civil society
Democracy and Development in Mexico and Chile 1521 D
organizations on such issues as human rights, which identified strongly with the political left,
gender rights, and labor rights. In the opinion of saw civil society participation in the conditional
government officials, the leaders of most civil cash transfer program and a just social outcome as
society organizations lacked the professional inseparable goals. Leadership attitudes, however,
training and capabilities to participate in the for- diverged sharply on what societal groups were to
mulation of government policies. be considered part of civil society with two of
Mexicos conditional cash transfer program, the four supporting, and two opposing, the idea of
known originally as Progresa, was introduced the business sector as being part of civil society.
under authoritarian rule during the Institutional Overwhelmingly, the leaders of Mexicos poverty D
Revolutionary Party (PRI) presidency of Ernesto organizations demonstrated little faith in the abil-
Zedillo in 1997. It was renamed Oportunidades by ity of market to lift people out of poverty and
President Fox and expanded thereafter. Like the called for an expanded role for the state, going
Chilean program, it arose out of concern for the well beyond the provisions provided in
fiscal difficulties faced by the state in Mexico, Oportunidades. All called for greater attention to
difficulties that were particularly pressing given community development, with the two organiza-
the severe economic crisis that Mexico faced in tions linked to the political left demanding support
1995, and due to a sharp rise in poverty that had for cooperative economic activities. Three of the
occurred with the economic crisis. The program four were critical of the programs failure to incor-
was also initiated by technocratic policymakers porate the participation and knowledge of the poor
who, like their Chilean counterparts, advocated and, as in Chile, demanded that the poor be
the use of quantitative criteria in the selection of involved in the selection of the program beneficia-
who, among the poor, should be entitled to the ries in their respective communities.
benefits of the program. Given the much higher Meanwhile, Mexican government officials
incidence of poverty in Mexico, the use of such stood firm in their rejection of civil society
a highly targeted and technocratically driven pro- involvement in the program. They rejected the
gram was subjected to widespread criticism. idea that the use of local knowledge of poor
Critics maintained that large numbers of poor communities could improve the outcomes of the
people were being excluded from benefits simply program. Policymaking and implementation in
because their poverty was judged slightly less dire their view had to be the exclusive purview of
than those receiving support. politicians and of highly trained bureaucrats
There was greater attitudinal variation among because neither civil society leaders nor the
the Mexican civil society organizations leaders poor were capable of seeing the bigger picture.
advocating for the poor than in the Chilean case. As in the case of Chile, the government rejected
There were also sharp political divisions involv- civil society participation in the program, even
ing support for left, center, and right parties. when outside financial support for such consulta-
Nevertheless, the history of the Mexican organi- tion (from the World Bank) was forthcoming.
zations, which involved an ongoing struggle
against the PRIs authoritarian hostility to civil
society, created a certain similarity of viewpoint Conclusions
among civil society leaders which extended to
their position on the efficacy of the countrys Civil society organizations in Mexico and Chile
conditional cash transfer program. have been strong advocates for the poor in their
The attitudes expressed by the leaders of all countries. They have identified what is probably
poverty organizations reflected important aspects the most daunting challenge to social well-being
of the community development perspective. All, arising out of the market reforms of the late
except one organization, favored citizen participa- twentieth century in Latin America: that of
tion in the formulation and implementation of the ensuring equitable prosperity. Struggles over
policy. However, two of the four organizations, conditional cash transfer programs, between
D 1522 Democracy and Islam in the Middle East

their technocratic proponents and their civil soci- Klesner, J. L. (2001). Legacies of authoritarianism: Polit-
ety critics, have at their core distinct understand- ical attitudes in Chile and Mexico. In R. A. Camp
(Ed.), Citizen views of democracy in Latin America
ings of the meaning of democracy and the (pp. 118138). Pittsburgh, PA: University of Pitts-
requirements for development. The struggle burgh Press.
between these differing visions suggests the Molyneux, M., & Lazar, S. (2003). Doing the right thing.
presence of deeply divided political cultures and Rights-based development in Latin American NGOs.
London: ITDG Publishers.
confirms survey data that identifies a sharp Paley, J. (2001). Marketing democracy: Power and social
split between those citizens who define movements in post-dictatorship Chile. Berkeley:
democracy as liberty and others who define University of California Press.
democracy as substantive policy outcomes in Pieterse, J. N. (2001). Development theory. Deconstruc-
tions/reconstructions. London: Sage.
terms of social improvements (Klesner, 2001, Richards, P. (2006). The politics of difference and
123). The civil society leaders discussed here Womens rights: Lessons from pobladoras and mapu-
are driven by a concern to improve the lives che women in Chile. Social Politics, International
of the poor and do not believe that is possible Studies in Gender, State and Society, 13, 129.
Rueschemeyer, D. (2004). Addressing inequality. Journal
without a different form of democracy one that of Democracy, 15(4), 7690.
is more deeply participative than is currently the Schumpter, J. A. (1950). Capitalism, socialism and devel-
case and a more activist state. This perspective opment. New York: Harper and Brothers.
clashes with the neoliberal technocratic Stahler-Sholk, R., Vanden, H. E., & Keuker, G. D. (2007).
Introduction: Globalizing resistance, the politics of
viewpoint. new social movements in Latin America. Latin
American Perspectives, 34(2), 1516.

Cross-References

Aristotle Democracy and Islam in the


Chile, Quality of Life Middle East
Community Development
Democracy Michael Kalin
Inequality Yale University, New Haven, CT, USA
Mexico, Quality of Life
Poverty
Social Policy Synonyms
Social Well-Being
Church and state; Democratization and Islam;
Islamism and democracy; Political Islam;
References Religion and politics in the middle east; Religious
fundamentalism
Avritzer, L. (2002). Democracy and the public space in
Latin America. Princeton, NJ: Princeton University
Press.
Centeno, M. A. (1999). Democracy within reason. Definition
Technocratic revolution in Mexico (2nd ed.).
University Park: The Pennsylvania University Press. By most measures, countries with majority Muslim
Diamond, L., & Morlino, L. (2005). Introduction. In L.
populations remain less democratic than countries
Diamond & L. Morlino (Eds.), Assessing the quality of
democracy (pp. ixiviii). Baltimore: The Johns Hop- in which Muslims are the minority. This observa-
kins University Press. tion has fueled a contentious debate on whether
ECLAC (Economic Commission for Latin America and Islam is compatible with liberal democracy.
the Caribbean). (2006). Social panorama of Latin
Although the revolutionary protest movements
America. New York: ECLAC.
Friedmann, J. (1992). Empowerment: The politics of alter- known as the Arab Spring that began in 2010
native development. Cambridge/Oxford: Blackwell. have been seen by some to mark the beginning of
Democracy and Islam in the Middle East 1523 D
a fourth wave of democratization, prospects for Spring that began in 2010 have been considered
long-term democratic consolidation in the region by some observers to mark the advent of
remain unclear. Evidence about the supposed a fourth wave of democratization, whether recent
irreconcilability of Islam with democratic aspira- experiments with electoral politics mark the
tions is generally offered by reference to the auto- advent of a genuine democratic political culture
cratic practice of Islamist states, to the writings in the Middle East remains uncertain.
of Islamist political thinkers who openly reject Accounting for the relative absence of
democracy, and to arguments that Islamic culture democratic governance in the Middle East where
lacks a tolerance of political pluralism that is an Islam has been the dominant religion in recent D
essential hallmark of Western liberalism. Oppo- history as well as the inverse correlation between
nents of this view argue against the premise that Muslim demographics and democratic freedoms
Islam contains a timeless set of uncontested prin- in broader empirical research has fueled polemics
ciples that are incapable of change. Moreover, about the influence of Islam on politics. Does
comparison with the historical evolution of Chris- Islam hinder democracy and, if so, how?
tian religious parties in electoral politics in Europe Islam is the second largest religion in the
suggests that ideology, particularly in its theologi- world and has existed since Muhammad received
cal dimension, is a poor predictor for political the Quran fourteen centuries ago. In the
behavior. While electoral incentives are almost received tradition, Muhammad unified his reli-
certain to exert a powerful effect on how Islamist gious community, the ummah, into a single polity
parties evolve in the Middle East, it remains an that stretched across Arabia (Eickelman &
open question how well the historical experience of Piscatori, 1996). After his death in 632 CE, tem-
Christian political parties in Europe will predict the poral political authority passed to his successors
future of political Islam and the viability of democ- but the sayings (hadith) or acts (sunnah) ascribed
racy in the region. to Muhammad were considered authoritative
guides for religious matters. Along with the
Quran, these sources formed the basis for deriv-
Description ing Islamic law (shariah). Shariah deals with
personal matters, such as proper diet and hygiene,
Empirical measures of democracy, such as but also addresses topics such as crime, inheri-
the Polity IV and Freedom House indices, suggest tance, and taxation that fall under the purview of
that countries in the Middle East have long had secular law in most countries today.
lower levels of political freedom compared Given the view that Muhammad was both
with the rest of the world (Rowley & Smith, a religious and political leader, the appropriate
2009). Historically, representative democracy domains for political leaders who succeeded
emerged in the North Atlantic, Western Europe, him as well as the appropriate domains to which
and gradually over much of Latin America, religious law should apply have remained open to
Asia, and Africa over the last two centuries in interpretation. Those who subscribe to the belief
three successive waves of democratization that Islam is as much a political ideology as
(Huntington, 1991; Przeworski, 1991). For a religion (Esposito, 1994) are called Islamists
much of this time, however, democratic govern- or proponents of political Islam and assert the
ment in the Arab countries of the Middle East, as obligation of Muslims to manage their political
well as Iran and to a lesser extent Turkey, has affairs according to some interpretation of
been absent. Instead, political power has been the Islamic law. However, while traditional Islamic
preserve of a narrow elite, neither subject to thought has placed great emphasis on concepts
external legal restraint such as a constitution nor like justice, leadership succession, the obligation
to regularized mechanisms of popular control of rulers to consult with their subjects, and the
such as contested elections. Although the rev- need to follow shariah, scholars point to a variety
olutionary protest movements known as the Arab of positions towards politics that each developed
D 1524 Democracy and Islam in the Middle East

with scriptural grounding: a quietist tradition brutally repressed. Social scientists influenced by
that advocates withdrawal under skepticism that Marx, Weber, and Durkheim considered Islam to
mortals could establish an authentic Islamic be like religious traditions in general: premodern
government along the lines of that which vestiges of tradition that people clung to out of
Muhammad instituted among his followers, ignorance. With the Middle East undergoing
a status quo tradition that advocates coopera- socioeconomic processes like industrialization,
tion with political rulers, and a third politically urbanization, and bureaucratic rationalization,
activist or revolutionary tradition challeng- many observers believed that religious attach-
ing authority (Lewis, 1996). These differing ments would simply fade away in favor of
interpretive readings have animated Islamic cul- a more secular outlook. This did not happen.
ture throughout its development, and diverse Instead, Islam has exerted an important influence
political movements have emerged at various on political life in the region, confounding expec-
times and places raising the banner of Islam to tations of a gradual secularization. In part, specific
lend legitimacy to their causes. historical events delegitimized secular ideologies:
Nevertheless, growing Western geopolitical defeat of the secular Arab nationalist states in the
dominance of the Middle East over the course of 1967 Six-Day War against Israel, the overthrow
the nineteenth and twentieth century was per- of the Pahlavi regime in Iran and its replacement
ceived with alarm and shifted attention to the with a revolutionary Islamic Republic in 1979,
regions perceived inability to resist Western influ- and the end of communism as a viable alternative
ence. These motivations spurred a variety of dif- ideology to capitalism. Each of these undermined
ferent thinkers such as Jamal ad-Din al-Afghani, the legitimacy of alternative political identities in
Muhammad Abduh, and others who became asso- the region and broadened the appeal of Islamist
ciated with the current of modern Islamic thought revival movements to those dissatisfied with the
identified with much contemporary political status quo. In turn, status quo regimes have
activism (Roy, 1994). Sayyid Qutb, for example, responded by superficially appropriating Islamic
believed that the most harmful impact of Western symbols of authority while using the prospect
imperialism was that it restricted the jurisdiction of of electoral victories by political Islamists as
Islam over worldly life by restricting religion justification for further repression, often with the
merely to a spiritual domain (March, 2010). acquiescence of their Western allies.
Indeed, for much of the twentieth century, Islamic State repression pushed some members of
thinkers were excluded from politics and the the Muslim Brotherhood, such as Ayman
abolition of the Ottoman caliphate in 1924 seemed al-Zawahiri to become associated with violent
to many observers to mark the end of the Islamic forms of Islamic militancy, and paved the way
state in history (Feldman, 2008). Although the for the emergence of groups like al-Qaida. Such
Muslim Brotherhood movement was founded organizations have sought to take advantage of
by Hassan al-Banna in Egypt in 1928 with the ungoverned spaces in the Afghan-Pakistani bor-
aim of establishing a new pan-Islamic political der region, North Africa, Yemen, and elsewhere
order across the Middle East, the successor states to launch insurgent military campaigns to over-
that emerged across the region were led by leaders throw ruling governments and impose their
who organized politics along secular nationalist vision of a restored Islamic caliphate by force.
lines and harshly repressed political Islamists. But the political Islam that competes in electoral
Well into the 1970s, many observers believed politics in Egypt and elsewhere in the Middle
that the connection between Islam and politics East had rejected this approach and tended to
was weak and unlikely to be a major factor in adopt a conciliatory attitude towards existing
the political life of the Middle East. This was not political regimes. Although they capitalized on
merely because Islamic thought contained several the opportunities made possible by the 2010
contending positions regarding political engage- Arab Spring movement, Islamist parties affiliated
ment and that active political Islamists were often with the Muslim Brotherhood movement were not
Democracy and Islam in the Middle East 1525 D
responsible for instigating the protests. Still, they of the Islamic tradition that contains within it
have shown an impressive ability to sustain popu- conceptual cognates to liberal democracy, such
lar mobilization once the street demonstrations as shura (consultation), ijtihad (independent
have waned. It is commonly believed that if Mus- reasoning), and ijma (consensus), that can be
lim-majority countries were to hold free and fair used to justify democratic practices within the
elections, Islamist parties will routinely dominate Islamic vernacular (Lewis, 1996). In short,
such contests. Within the Middle East, notable contending religious concepts drawn from Islamic
victories have included the Islamic Salvation political thought can be read both as support for
Front in Algeria (1991), the Justice and Develop- and against democratic politics. D
ment Party in Turkey (2002 and 2007), the Islamic An alternative view holds that the relationship
Resistance Movement (Hamas) in the Palestinian between Islam and democracy in the Middle East
territories (2006), the Justice and Development cannot be answered with reference to intellectual
Party in Morocco (2011), the Renaissance history alone but through empirical comparison of
Party in Tunisia (2011), and the Freedom and how religious movements more generally engage
Justice Party in Egypt (20112012). with the electoral process and how their ideologies
Islamic parties have been highly successful in evolve according to the strategic incentives of
contesting elections, but critics continue to capturing votes. Comparison with the historical
question their commitment to democracy. Many evolution of Christian democratic parties in
fear that once political Islamists take power, they Europe over the course of the nineteenth century
will seek to establish a religious dictatorship. Such suggests that ideology, particularly in its
arguments take various forms. Evidence about the theological dimension, can be a flawed predictor
incompatibility of Islam with democratic aspira- of political action (Kalyvas, 1996). Some scholars
tions is sometimes offered by reference to the have suggested that instead of seeking to imple-
historical experience of consciously Islamist ment sharia, Islamist political parties competing
states, such as Iran. After the 1979 revolution, in elections across the Middle East are increas-
Khomeini brought into being an authoritarian the- ingly focused on more ordinary and pragmatic
ocracy that guarded power within the hands of goals. Balancing a set of often conflicting
a supreme leader and only permitted candidates demands by constituents with the imperatives of
committed to clerical government to run in elec- forming a stable governing coalition suggests
tions (Momen, 1985). Evidence is also offered by to some analysts that the political platforms of
reference to the words of many influential modern Islamist parties in Turkey, Egypt, and elsewhere
Islamist thinkers such as Qutb, who rejected are likely to evolve in such a way that integrates
democracy, or Yusuf al-Qaradawi, who has writ- Islamic cultural values into a broader centrist
ten that the value of democracy resides solely in platform that appeals to a broad cross section of
enabling the conditions for sharia to be applied by voters (Nasr, 2005). While not without empirical
religious authorities. Such arguments are some- support, such accounts ironically harken back to
times taken to indicate that Islamic thought more an earlier generation of social scientists who
generally is structurally inimical to compromise stressed that the power of religion is largely inci-
and lacks a commitment to the foundational planks dental and ultimately destined to be supplanted by
of liberal democracy: a notion of popular rational calculations, in this case, those governing
sovereignty, the legitimacy of majority rule, the rules of electoral competition. Future research
a separation of religion from the public sphere is needed to tease out the viability of the compar-
that prevents the disenfranchisement of those ison of political Islam to the political fortunes of
outside the community of the faithful, and Christian democratic parties, particularly given
a commitment to political pluralism, win or lose. the ideological and institutional differences
On the other hand, opponents note the premise that between the two (Bellin, 2008).
Islam is somehow static, monolithic, and incapa- To sum up, the empirical correlation between
ble of change is flawed and point to other elements Muslim populations and a lack of democratic
D 1526 Democracy and Quality of Life

governance has caused a wide-ranging Feldman, N. (2008). Fall and rise of the Islamic state.
debate about Islams compatibility with the Princeton: Princeton University Press.
Huntington, S. (1991). The third wave: Democratization
principles and practices of liberal democracy. in the late twentieth century. Norman: University of
Currently, prospects for genuine democracy in Oklahoma Press.
the Middle East remain uncertain, and evidence Kalyvas, S. N. (1996). The rise of Christian democracy in
about whether Islam is compatible with demo- Europe. Ithaca/London: Cornell University Press.
Lewis, B. (1996). Islam and liberal democracy:
cratic aspirations is ambivalent and largely A historical overview. Journal of Democracy, 7(2),
anecdotal. Those who believe Islam is not demo- 5263.
cratic provide evidence drawn from the auto- March, A. (2010). Taking people as they are: Islam as
cratic practice of Islamist states, the words of a realistic utopia in the political theory of sayyid
qutb. American Political Science Review, 104,
Islamist political thinkers who reject democracy, 189207.
and arguments that Islamic culture lacks the Momen, M. (1985). Introduction to Shii Islam.
essential elements of Western liberalism. Oppo- New Haven: Yale University Press.
nents of this view note the flawed premise that Nasr, V. (2005). The Rise of Muslim Democracy..
Journal of Democracy, 16, 2.
Islam is timeless and immutable and have com- Przeworski, A. (1991). Democracy and the market:
pared Islamic political parties with the historical Political and economic reforms in eastern Europe
evolution of other religious parties in electoral and Latin America. Cambridge: Cambridge University
politics to suggest that ideology, particularly in Press.
Rowley, C. K., & Smith, N. (2009). Islams
its theological dimension, may be a flawed democracy paradox: Muslims claim to like
predictor of political action (Kalyvas, 1996). democracy, so why do they have so little? Public
While electoral incentives are almost certain to Choice, 139(34), 273299.
exert a powerful effect on the evolution of mass Roy, O. (1994). The failure of political Islam. Cambridge:
Harvard University Press.
Islamist political parties in the Middle East, it
remains unclear how well the experience of
Christian democratic parties in Europe predicts
the future development of political Islam in
the region.
Democracy and Quality of Life

Nisha Mukherjee Bellinger1 and Doh C. Shin2


Cross-References 1
Department of Government, Stephen F. Austin
State University, Nacogdoches, TX, USA
Aristotle 2
Center for Democracy, University of California-
Civil Society
Irvine, Irvine, CA, USA
Collective Action
Collective Identity
Epicurus
Synonyms
Measuring National Identity
Plato
Democracy, Quality of life
Religiosity and Support for Democracy

References Definition

Bellin, E. (2008). Faith in politics: New trends in the study Democracy, at the most basic level, is character-
of religion and politics. World Politics, 60, 31547.
Eickelman, D. F., & Piscatori, J. (1996). Muslim politics.
ized as a political regime that has free and fair
Princeton: Princeton University Press. elections, which provides an opportunity for
Esposito, J. L. (1994). Political islam: Beyond the green the citizens to hold the elected representatives
menace. Current History, 93, 1924. accountable for their actions.
Democracy and Quality of Life 1527 D
Description This process may include voting in elections or
on referendums, competing in elections, among
Democracy and Quality of Life others, where citizens can play an influential role
Does democracy enhance quality of life? This is in determining political outcomes.
an important question that academicians have However, the hypothesized link between
been concerned with for a long time, and consid- democracy and quality of life has been chal-
erable research has been carried out on the lenged by studies, where the relationship between
subject. Quality of life has been conceptualized the two is not robust in a cross section of
in both subjective and objective ways. The sub- countries (Inglehart & Klingemann, 2000) or in D
jective approach is primarily concerned with single-country analyses, which show that in spite
indicators such as levels of happiness, life satis- of the prevalence of a democratic system, citizens
faction, or achievement (Bjrnskov, Dreher, & express dissatisfaction and unhappiness with
Fischer, 2010; Dorn, Fischer, Kirchgassner, & their quality of life (Park & Shin, 2005; Shin &
Sousa-Poza, 2007; Frey & Stutzer, 2000a; Rutkowski, 2003; Sing, 2009). A plausible
Shin & Rutkowski, 2003) while the objective explanation for this may be that forces of democ-
approach looks at indicators like infant mortality, ratization and globalization in fact urge people to
life expectancy, or literacy levels (Moon & compare themselves with those under different
Dixon, 1985; Przeworski, Alvarez, Cheibub, circumstances, thereby lowering their perception
& Limongi, 2000; Ross, 2006; Shin, 1989; of well-being (Park & Shin, 2005).
Zweifel & Navia, 2000). However, scholars These discrepancies in findings may be attrib-
often use different terms instead of quality of utable to a number of factors. Theoretically, the
life like well-being, human welfare, and human hypothesized relationship between democracy
development, among others. This essay reviews and quality of life is more applicable to regimes
and analyzes the literature on how democracy with institutional elements of direct democracy.
influences subjective and objective quality of However, not all democracies possess these
life, identifies avenues of future research, and elements, and this could account for the lack of
conducts preliminary analyses that examines consensus in the literature. Empirically, the
differences in subjective and objective quality studies discussed above differ both, in sample
of life indicators among a variety of regime types. size, and in the time frame used for conducting
The existing literature argues that democra- the analyses, which could also account for the
cies may enhance subjective quality of life for divergent findings.
two primary reasons. First, democratic regimes, Alternatively, perhaps the relationship
particularly those that practice direct democracy, between the two is more complicated, such that
produce outcomes that are closer to the prefer- an intervening factor mediates the relationship
ences of its citizens (Frey & Stutzer, 2000a, between democracy and quality of life. More
2000b). Since citizens can influence the political recent studies, like Bjrnskov et al. (2010), Dorn
process by participation via institutions of direct et al. (2007), show that democracy enhances qual-
democracy like referendums, the outcomes ity of life among a subsample of richer countries,
reflect their interests, and this enhances subjec- implying that democracy improves subjective
tive well-being. well-being once the basic necessities of life have
Second, democracies permit citizens to partic- been met.
ipate in the decision-making process, and this The literature on democracy and objective
creates a procedural utility, which enhances quality of life also highlights alternative theoret-
subjective well-being since citizens have the ical mechanisms through which democracy
opportunity to be involved in the democratic enhances objective well-being. One of the theo-
political process (Frey & Stutzer, 2005). The ries suggests that democracies spend more on
emphasis here is on the utility derived from par- public services and thereby enhances quality of
ticipation irrespective of the outcome produced. life either because the electoral process makes
D 1528 Democracy and Quality of Life

democracies more competitive and participatory have been accounted for, his findings indicate
in nature (Shin, 1989), or more accountable to the that there are no significant differences between
needs of citizens (Deacon, 2003), or that it con- regime type and quality of life.
strains democratic leaders from extracting rents Thus, the literature indicates that there is little
from society (Lake & Baum, 2001). Alterna- consensus about whether democracies enhance
tively, Bueno de Mesquita, Smith, Siverson, and subjective or objective quality of life. Even
Morrow (2005) argue that democracies provide though there are strong theoretical reasons to
larger public goods instead of private goods expect democratic regimes to enhance quality of
because democratic regimes have a larger support life, the empirical evidence does not always find
base to appease as compared to non-democracies. support for the beneficial impact of democracy.
Greater provision of public goods benefits The lack of agreement among scholars is indica-
the entire society and thereby enhances quality tive of room for greater research on the subject.
of life. Many argue that democracies are not
Yet another theoretical mechanism is pro- a homogeneous category because there are vari-
posed by Sen (1999), whose theory on democracy ations within democracies as well (Diamond,
and famines can also be applied to ways in which 2002; Merkel & Croissant, 2004; ODonnell,
democracies may enhance quality of life. Sen 1994; Zakaria, 1997). An alternative way of pro-
argues that democracies permit greater freedom ceeding with this line of research is to analyze if
of press as compared to non-democracies, which there are significant differences in quality of life
makes democratic leaders better informed about among a variety of regime types.
immediate problems that need to be addressed. This entry provides preliminary analyses that
Moreover, a free press also puts pressure on examine differences in subjective and objective
democratic governments to take any necessary quality of life indicators among different regime
action to prevent calamities that may adversely types of a sample of 143 countries for the year
affect the well-being of its citizens. 2010. Subjective quality of life is measured by
Alternatively, the relationship between the using survey data that assesses levels of life sat-
two may be nonlinear as proposed by Emizet isfaction among people. The measure ranges
(2000), who argues that democracies may from 0 to 10, where higher values indicate higher
enhance quality of life initially, but any steps to levels of life satisfaction, and the data are drawn
consolidate a given democracy may lead to from the Happy Planet Index (New Economics
greater conflicting demands made by society, Foundation, 2010). Life satisfaction is one of the
which could thereby result in a stalemate and components of the Happy Planet Index (HPI), and
hamper decision-making, and thus adversely the HPI draws data on life satisfaction from the
affecting its quality of life. World Values Survey and the Gallop World Poll.
Even though the bulk of the empirical evi- The other components of the index are life
dence indicates that democracies enhance quality expectancy and ecological footprint. Objective
of life (Lake & Baum, 2001; Mesquita et al., quality of life is measured by the human
2005; Moon & Dixon, 1985; Przeworski et al., development index ([United Nations Develop-
2000; Shin, 1989; Zweifel & Navia, 2000), some ment Programme] UNDP, 2010), which is a
studies fail to find a significant relationship composite index consisting of life expectancy,
between the two (Williamson, 1987; Weede, educational attainment, and income. The index
1993). The most compelling critique of the rela- ranges from 0 to 1, where higher values indicate
tionship between democracy and well-being higher levels of human development.
comes from Ross (2006) who questions this Differences in regime type are measured by
hypothesized link between the two on account using data from the Economic Intelligence Unit
of methodological shortcomings and selection ([Economic Intelligence Unit] EIU, 2010) that
bias of previous analyses. Once these drawbacks uses five categories (electoral process and
Democracy and Quality of Life 1529 D
Democracy and Quality of Life, Table 1 Regime type However, as mentioned previously, these are
and life satisfaction preliminary analyses, and a more intensive and
Regime type Life satisfaction systematic study is required in future research.
Full democracies 7.54 Not only will this enhance our understanding of
Flawed democracies 6.13 the relationship between different regimes and
Hybrid regimes 5.22 well-being, but it will also provide greater insight
Authoritarian regimes 5.18 into the ways one can enhance the quality of life
http://www.happyplanetindex.org/data/ people lead, which is an important end in itself
(Sen, 1999). D

Democracy and Quality of Life, Table 2 Regime type


and human development index
Regime type Human development index Cross-References
Full democracies .86
Flawed democracies .68 Democracy
Hybrid regimes .54 Happiness
Authoritarian regimes .52 Human Development
http://hdr.undp.org/en/statistics/hdi/ Life Expectancy
Life Satisfaction
Quality of Life
pluralism, civil liberties, the functioning of
government, political participation, and political
culture) to form a democracy index. Based on
the index, the countries are classified into
References
four regime types: full democracies, flawed Bjrnskov, C., Dreher, A., & Fischer, J. A. V. (2010).
democracies, hybrid regimes, and authoritarian Formal institutions and subjective well-being:
regimes, where full democracies are the most Revisiting the cross-country evidence. European
democratic in nature, followed by flawed democ- Journal of Political Economy, 26, 419430.
Deacon, R. T. (2003). Dictatorship, democracy, and the
racies, hybrid regimes, and finally authoritarian provision of public goods. Data retrieved from: http://
regimes. Table 1 provides the average levels of www.econ.ucsb.edu/papers/wp20-03.pdf.
life satisfaction among different regime types. Diamond, L. (2002). Thinking about hybrid regimes.
The table shows that full democracies have the Journal of Democracy, 13(2), 2134.
Dorn, D., Fischer, J. A. V., Kirchgassner, G., & Sousa-
highest levels of life satisfaction, followed by Poza, A. (2007). Is it culture or democracy? The
flawed democracies, hybrid regimes, and lastly impact of democracy and culture on happiness. Social
authoritarian regimes. Table 2 shows the average Indicators Research, 82, 505526.
of UNDPs human development index scores for Economic Intelligence Unit. (2010). Democracy index
2010: Democracy in retreat. Data retrieved from
each of the four different regime types. This table http://www.eiu.com/.
also shows that democracies have the highest Emizet, K. N. F. (2000). The relationship between the
levels of human development, followed by liberal ethos and quality of life: A comparative analy-
flawed democracies, hybrid regimes, and finally sis of pooled time-series data from 1970 to 1994.
Comparative Political Studies, 33(8), 10491078.
authoritarian regimes. Frey, B. S., & Stutzer, A. (2000a). Happiness, economy,
Both Tables 1 and 2 indicate a clear pattern, and institutions. The Economic Journal, 110(466),
showing that more democratic regime types have 918938.
higher levels of subjective and objective quality Frey, B. S., & Stutzer, A. (2000b). Happiness prospers in
democracy. Journal of Happiness Studies, 1, 79102.
of life. This provides some support for the theo- Frey, B. S., & Stutzer, A. (2005). Beyond outcomes:
retical explanations that emphasize the beneficial Measuring procedural utility. Oxford Economic
impact of democratic regimes on quality of life. Papers, 57, 90111.
D 1530 Democracy and Quality of Life in Asian Societies

Inglehart, R., & Klingemann, H.-D. (2000). Genes,


culture, democracy, and happiness. In E. Diener & Democracy and Quality of Life in
E. M. Suh (Eds.), Culture and subjective well-being.
Cambridge, MA/London: MIT Press. Asian Societies
Lake, D. A., & Baum, M. (2001). The invisible hand of
democracies: Political control and the provision of Katsunori Seki1 and Shinya Sasaoka2
public services. Comparative Political Studies, 34(6), 1
Department of Political Science, Texas A&M
587621.
Merkel, W., & Croissant, A. (2004). Conclusion: Good University, College Station, TX, USA
2
and defective democracies. Democratization, 11(5), Hiroshima Shudo University, Hiroshima, Japan
199213.
Mesquita, B. D., Smith, B. A., Siverson, R. M., & Morrow,
J. D. (2005). The logic of political survival. Cam-
bridge, MA: MIT Press. Synonyms
Moon, B. E., & Dixon, W. J. (1985). Politics, the state, and
basic human needs: A cross-national study. American Regime types in Asia
Journal of Political Science, 29(4), 661694.
New Economics Foundation. (2010). The happy planet
index 2.0: Why good lives dont have to cost the
earth. Data retrieved from http://www.happypla- Description
netindex.org/data/.
ODonnell, G. (1994). Delegative democracy. Journal of
Democracy, 5(1), 5569. Political Regimes in Asia
Park, C.-M., & Shin, D. C. (2005). Perceptions of life Political regimes in post-World War II Asia are
quality among the Korean mass public: Unraveling diverse and categorized into four groups: First,
their dynamics and standards. Social Indicators Japan and India have maintained democratic rule
Research, 70(3), 257286.
Przeworski, A., Alvarez, M. E., Cheibub, J. A., & since the transitions to democracy. In contrast,
Limongi, F. (2000). Democracy and development: China, Vietnam, Laos, Singapore, and Central
Political institutions and well-being in the Asian states have consistently been nondemocratic
world, 19501990. New York: Cambridge University regimes. Third, so-called third-wave democra-
Press.
Ross, M. (2006). Is democracy good for the poor? cies (Huntington, 1991) such as South Korea,
American Journal of Political Science, 50(4), 860874. Taiwan, Indonesia, the Philippines, and Mongolia
Sen, A. (1999). Development as freedom. New York: are the group of nations that experienced
Alfred A.Knopf. democratic transition after 1970s. Lastly,
Shin, D. C. (1989). Political democracy and the quality of
citizens lives: A cross-national study. Journal of Thailand, Malaysia, Nepal, Bangladesh, and
Developing Societies, 5(1), 3041. Myanmar follow a back-and-forth path between
Shin, D. C., & Rutkowski, C. P. (2003). Subjective quality democracies and nondemocracies.
of Korean life in 1981 and 2001. Social Indicators Note that, however, both democratic and
Research, 62, 509534.
Sing, M. (2009). The quality of life in Hong Kong. Social nondemocratic regimes in Asia have pursued
Indicators Research, 92, 295335. well-being of the people. On the one hand,
United Nations Development Programme. (2010). Human leaders in nondemocratic regimes Lee Kuan
development index 2010. Data retrieved from http:// Yew (Singapore), Park Chung-hee (South
hdr.undp.org/en/statistics/data/.
Weede, E. (1993). The impact of democracy or repres- Korea), and Suharto (Indonesia) promised to
siveness on the quality of life, income distribution, and improve macroeconomic conditions, develop the
economic growth rates. International Sociology, 8, infrastructures, increase the household income,
177195. and enhance the individual livelihoods. On
Williamson, J. B. (1987). Social security and physical
quality of life in developing nations: A cross-national the other hand, democratic and industrialized
analysis. Social Indicators Research, 19, 205227. countries have also provided their electorate
Zakaria, F. (1997). The rise of illiberal democracies. with both basic human needs and material wealth.
Foreign Affairs, 76(6), 2243. Which type of regime is then likely to achieve
Zweifel, T. D., & Navia, P. (2000). Democracy, dictator-
ship and infant mortality. Journal of Democracy, higher quality of life? Since the different types
11(2), 99114. of political regime have attempted to improve
Democracy and Quality of Life in Asian Societies 1531 D
quality of life in Asia, Asia is an interesting have attempted to see the relationship at
region to investigate the relationship between the individual level while taking account of the
regime types and quality of life. country-level variation in regime types.

Democracy and Quality of Life Democracy and Quality of Life in


The relationship between democracy and quality Asian Societies
of life is one of the biggest issues in the studies of Hypotheses
quality of life. The nature of the political regime In Sasaoka and Seki (2011), we try to fill the gap
might matter because it conditions political rights in the literature by applying hierarchical models D
and civil liberties that citizens enjoy. Rights and and examining impacts of the cross-national var-
liberties can affect ones prospects for life, life iation in political regime and the individual-level
satisfaction, subjective happiness thus variation in assessment of political regime on
quality of life because citizens can be frustrated individual-level perception of quality of life.
when they find themselves constrained with The survey data used in this study are collected
respect to their rights and liberties. Democratic by the Asia Barometer project and include 39
political rights and civil liberties might also mat- surveys conducted in 20 Asian countries from
ter because they are necessary for access to the 2003 to 2008. Building upon past studies, we
political sphere so that citizens can express their hypothesize the relationship between democracy
demands to reform policies and to enhance public and quality of life as follows:
welfare. Thus, regime types, particularly democ- Hypothesis 1a: The more satisfied the citizens
racy, would be one of the most important factors are with the state of political rights they enjoy,
that lead to the development of quality of life. the happier they are.
With respect to the relationship between Hypothesis 1b: The more satisfied the citizens
democracy and quality of life, empirical evidence are with the state of civil liberties they enjoy,
found in prior studies has been mixed. On the one the happier they are.
hand, some studies suggest that democracies Hypothesis 2: The citizens feel happier in
improve quality of life (Dorn, Fischer, democracy than nondemocracy.
Kirchgassner, & Sousa-Poza, 2007; Frey &
Al-Roumi, 1999; London & Williams, 1990; Data and Measurement
Moon & Dixon, 1985; Owen, Videras, & Our dependent variable is general happiness.
Willemsen, 2008). On the other hand, the other This is measured by a question item asking how
studies contend that democracies have no effect happy a respondent feels. It is a five-point scale
on quality of life (Inglehart & Klingemann, 2000; ordinal variable whose response categories range
Veenhoven, 2000). In sum, there have been little from 1 (very happy) to 5 (very unhappy).
scholarly consensus about the relationship Main independent variables include a dichot-
between democracy and quality of life. In omous measure of regime type (i.e., democracies
cross-national settings, prior research has exam- or nondemocracies), individual satisfaction with
ined country-level association between democ- political rights, and satisfaction with civil liberty.
racy and quality of life. Explanatory variables The regime type variable is obtained by operatio-
are either democracy scores (i.e., Polity IV nalizing the Polity IV score. Following the schol-
index and Freedom House score) or aggregated arly convention in political science (Epstein,
public opinion data about individual satisfaction Bates, Goldstone, Kristensen, & OHalloran,
with democracy, while explained variables 2006, p. 555), we treat a country as democratic
are either objective measures of quality of life if its Polity IV score is more than seven.
(i.e., Basic Human Needs index and Physical Perception of democracy is another key
Quality of Life index) or aggregated public explanatory variable in our analysis. It is mea-
opinion data about individual happiness and life sured by satisfaction with political rights and
satisfaction. That is, few studies on this topic satisfaction with civil liberties. Political rights
D 1532 Democracy and Quality of Life in Asian Societies

Democracy and Quality


of Life in Asian Societies,
Fig. 1 The mean level of
happiness in Asian
Societies

are one component of democracy. The extent to TLI 0.973, and RMSEA 0.109. All factor
which the citizens are satisfied with the state of loadings in this model are positive and statistically
political rights they enjoy is measured through significant. Resulting two continuous latent var-
the following three questions: satisfaction with iables exhibit high correlation (the correlation
the right to vote, the right to participate in any coefficient is 0.917); thus, our empirical model
kind of organization, and the right to gather and does not include both variables simultaneously
demonstrate. For each item, the response ranges because it would cause multicollinearity. In other
from 1 (very satisfied) to 4 (very dissatisfied). words, we include either satisfaction with political
Civil liberties are also considered another aspect rights or satisfaction with civil liberties in our
of democracy. A citizens satisfaction with the analysis controlling for other factors which pre-
state of civil liberties in his/her country is grasped sumably affect quality of life.
by three question items: satisfaction with the Following past research, we introduce
right to be informed about the government, individual-level control variables such as
freedom of speech, and the right to criticize satisfaction with government performance,
the government. Response category is the same assessment of standard of living, gender, age,
with those measuring satisfaction with political education level, and religiosity (Fails and Pierce,
rights. 2010; Inglehart & Klingemann, 2000; Inoguchi,
Satisfaction with political rights and satisfac- Mikami, & Fujii, 2007; Owen et al., 2008). Coun-
tion with civil liberties are supposedly similar try-level controls are GDP per capita (natural log)
concepts, but our confirmatory factor analyses and the level of urbanization. Figure 1 (Sasaoka
show that the two-factor model is better fitted and Seki 2011, p.349) shows the relationship
to the data than the one-factor model. Fit between regime types and aggregated level of
indices of the two-factor model are CFI 0.969, happiness in Asian societies.
Democracy and Quality of Life in Asian Societies 1533 D
Findings Our study yields the following conclusions.
We estimate the statistical association between First, as we expect, individual-level satisfaction
democracy and quality of life by applying hierar- with political rights and civil liberties is a strong
chical ordinal logistic regression with random explanatory factor of ones happiness. That is, not
intercepts. We do not assume random slopes only socioeconomic status of an individual but
in our statistical model because we have no also ones evaluation about politics plays an
theoretical ground supposing that regime types important role to increase ones happiness.
condition the impacts of individual-level Second, the country-level regime types do not
attributes on quality of life. show a statistically significant effect on the D
We find that the individual-level satisfaction level of happiness at least in the context of
with political rights and civil liberties improve Asian societies. This finding remains unaffected
perceived happiness. In contrast, we do not even when we exclude individual-level satisfac-
find causal effect of regime types on general tion with political rights and civil liberties. The
happiness although the sign of the coefficient is evidence suggests that regime types play a minor
positive (p- value is 0.302). role in increasing ones happiness. The more
As for control variables, greater satisfaction important factor, we find, is the extent to which
with government performance and standard of they enjoy political rights and civil liberties in
living increase happiness. Men are generally their countries.
less happy than women. Older people feel less
happy than the younger. Higher education Discussion
increases happiness. Catholic, Muslim, and Bud- It would not be surprising to find that the causal
dhist are happier than others although we are not effect of the level of perceived satisfaction with
able to discuss the substantive meaning of the political regime on ones happiness is positive
impact of religious affiliation on happiness. The and statistically significant, while the effect of
country-level economic development shows a the regime type per se is not. The dichotomous
positive sign, but it is not statistically significant measure of regime type democracy and
at the conventional significance level (p-value is nondemocracy might not capture the actual
0.170). Similarly, the coefficient of urbanization function of different regime types, especially the
is negative and is not statistically significant extent to which a regime is democratic among
(p-value is 0.371). democracies and a regime is repressive among
Since it is possible that the causal effect of nondemocracies. Therefore, we can infer that cit-
regime types disappears once we take account izens in Asian societies are more concerned about
of satisfaction with political rights and civil how their government functions rather than an
liberties, we estimate a model which excludes important but a rough distinction between democ-
satisfaction with political rights. Even with racy and nondemocracy when expressing their
this specification, we do not find any causal effect feeling of happiness. Even if a political regime
of regime types on the feeling of happiness is classified as democratic, we have seen democ-
although the p-value improves from 0.302 to racies in which, for example, electoral account-
0.155. Also, in order to test if our findings ability does not function as expected and elections
are driven by using the dichotomous measure yield patronage politics and are often associated
of regime type, we estimate a model which sub- with corruption of elected officials. Those factors
stitutes the Polity IV score for the dichotomous might affect the level of happiness among indi-
measure of regime type. The finding does not viduals. Hence, it would be reasonable to argue
change, and the level of democracy does not that citizens happiness is a function of their eval-
explain the variation in happiness (p-value is uation of political regime including their satisfac-
0.114 with a positive coefficient), at least tion with political rights and civil liberties and
among Asian countries. that the regime type itself plays a marginal role.
D 1534 Democracy, Faith in

Cross-References
Democracy, Faith in
China, Quality of Life
Communist Regimes, Quality of Life in Doh C. Shin1 and Nicholas Spina2
Quality of Life Questionnaire 1
Center for Democracy, University of California-
Quality of Life Self-assessment Irvine, Irvine, CA, USA
Quality of Life, Conceptualization 2
Department of Politics and European Studies,
Survey Research American University in Bulgaria, Blagoevgrad,
Bulgaria

References Definition

Dorn, D., Fischer, J. A. V., Kirchgassner, G., & Faith in democracy suggests a positive and
Sousa-Poza, A. (2007). Is it culture or democracy?
The impact of democracy and culture on happiness.
accurate opinion of the democratic political
Social Indicators Research, 82(3), 505526. system.
Epstein, D. L., Bates, R., Goldstone, J., Kristensen, I.,
& OHalloran, S. (2006). Democratic transitions.
American Journal of Political Science, 50(3),
551569. Description
Fails, M. D., & Pierce, H. N. (2010). Changing mass
attitudes and democratic deepening. Political
Over the past three decades, democracy has made
Research Quarterly, 63(1), 174187.
Frey, R. S., & Al-Roumi, A. (1999). Political remarkable progress. The birth of over 90 new
democracy and the physical quality of life: The democracies throughout the globe has prompted
cross-national evidence. Social Indicators Research, public opinion research on democratization in a
47(1), 7397.
wide variety of cultures and contexts (Heath,
Huntington, S. P. (1991). The third wave: Democratiza-
tion in the late twentieth century. Norman: University Fisher, & Smith, 2005; Mattes, 2007; Norris,
of Oklahoma Press. 2004). The Gallup International Voice of the Peo-
Inglehart, R., & Klingemann, H.-D. (2000). Genes, ple Project (2007), the Pew Global Attitudes Pro-
culture, democracy, and happiness. In E. Diener &
ject (2003) Attitudes Project, UNDP on
E. Suh (Eds.), Culture and subjective well-being
(pp. 165183). Cambridge, MA: MIT Press. Democracy and Citizenship, the World Values
Inoguchi, T., Mikami, S., & Fujii, S. (2007). Social capital Survey, and many other regional barometers and
in East Asia: Comparative political culture in confu- national surveys have monitored citizen orienta-
cian societies. Japanese Journal of Political Science,
tions toward democracy. The results from all of
8(3), 409426.
London, B., & Williams, B. A. (1990). National politics, these surveys show that democracy has achieved
international dependency, and basic needs provision: overwhelming mass approval throughout the world
A cross-national analysis. Social Forces, 69(2), and has become virtually the only political model
565584.
with global appeal (Inglehart, 2003; Shin, 2007).
Moon, B. E., & Dixon, W. J. (1985). Politics, the state, and
basic human needs: A cross-national study. American The last two waves of the World Values Sur-
Journal of Political Science, 29(4), 661694. veys, for example, find that a clear majority of the
Owen, A. L., Videras, J., & Willemsen, C. (2008). population in virtually every society endorses a
Democracy, participation, and life satisfaction. Social
democratic political system (Inglehart & Welzel,
Science Quarterly, 89(4), 9871005.
Sasaoka, S., & Seki, K. (2011). Democracy and quality of 2005). The 2005 Voice of the People Surveys,
life in Asian societies. Japanese Journal of Political conducted in 65 countries by Gallup International
Science, 12(3), 343357. between May and July 2005, also report that eight
Veenhoven, R. (2000). Freedom and happiness. In
out of ten global citizens believe that in spite of its
E. Diener & E. Suh (Eds.), Culture and subjective
well-being (pp. 257288). Cambridge, MA: MIT limitations, democracy is the best form of govern-
Press. ment, almost 10 % more than in 2004. According
Democracy, Faith in 1535 D
to a 2010 survey by the Pew Research Centers once-communist West), South Asia, the Middle
Global Attitudes Project, more than 60 % of East, East Asia, Latin America, and Africa.
Egyptians, Jordanians, and Lebanese report The WVS asked questions designed to esti-
democracy as preferable to other forms of mate how well ordinary people understand
government. Even in the Islamic Middle East, democracy and the specifics of their understand-
Confucian East Asia, and the former Soviet ing. We analyze three topics that tap fundamental
Union, surveys find large majorities favorably characteristics of democracy (electoral represen-
oriented to democracy (Chu, Diamond, Nathan, tation, freedom, and equality) and two ques-
& Shin, 2008; Rose, Mishler & Haerpfer, 1998; tions that tap characteristics of democratic D
Pew Research Center, 2003; Linz & Stepan, alternatives (religious control and military inter-
1996; Tessler, 2002). Undoubtedly, democracy vention). We first identify the percentage of citi-
attracts an ever-increasing number of the worlds zens who are unable to conceptualize electoral
citizens. representation, protection of liberties, gender
Despite this trend, questions remain as to how equality, the separation of church and state, or
well these citizens understand democracy. Just a civilian-controlled military as characteristics of
because a survey respondent reports a favorable democracy on the WVS survey. We label these
attitude toward democracy does not mean that the respondents as unsure about democracy.
respondent understands or supports fundamental Next, we assess whether citizens hold demo-
aspects of democracy. Previous research has cratic opinions about each topic by calculating
failed to take this possible schism into account. the percentage who incorrectly identified popular
Instead, most research on mass support for elections, protection of liberty, or gender equality
democracy has been concerned predominantly as an unessential property of democracy (scored
with measuring and comparing the shifting quan- below the midpoint of the ten-point scale, 5.5)
tities of avowed public support for democracy and those who incorrectly identified the interven-
across and within regions (Dalton, Shin, & Jou, tion of religious and military authorities as one of
2007). As a result, very little is known about the its essential properties (scored above the mid-
quality and authenticity of democratic support. It point of the scale). We label these respondents
is, therefore, premature to endorse the increas- as misinformed about democracy.
ingly popular claim that democracy is becoming With these two measurements, unsure and
a universal value (Sen, 1999). misinformed, we ascertain distinct patterns of
This essay identifies and compares the quality understanding about democracy among mass
of popular support for democracy across various publics. We then conceptualize avowed demo-
cultural regions to determine the extent to which cratic supporters as either poorly informed or
democracy is truly understood and appreciated well informed by considering the accuracy of
among global citizenries. How informed are con- their democratic opinions along each dimension.
temporary publics about democracy? Do
informed supporters of democracy constitute Unsure About Democracy
majorities in all regions of the world so that one How capable are citizens in identifying what is
can justifiably conclude democracy is a universal essential or unessential in a democracy, a system
value? Or is democracy only a regional value? To of government they are widely known to prefer to
address these questions, we analyze the latest, any of its alternatives? Table 1 reports the region
fifth wave of the World Values Survey (WVS), percentages of those unable to identify each of
which were conducted in 56 countries during the the five democratic dimensions in our analysis. It
20052007 period. The analysis divides the also presents the region percentages of those
world into seven cultural zones: Western coun- unsure of any of the five dimensions.
tries with the oldest democracies (hereafter Of the five dimensions reported in Table 1,
the long-democratic West), Western countries the mass public is the least sure about the role
with former communist regimes (hereafter the of religious authorities and the military in the
D 1536 Democracy, Faith in

Democracy, Faith in, Table 1 Percentages of respondents unable to answer each and all of the five dimensions
Religious Popular Military take- Protecting Gender
Cultural zones authorities elections over liberty equality Unsure
(All zones) 9.1 % 4.3 % 8.6 % 6.9 % 3.6 % 14.4 %
Dem. West 4.6 2.4 4.6 3.9 1.8 8.4
Ex. Com. 12.4 5.5 13.5 8.1 5.3 20.0
West
South Asia 5.1 2.1 4.6 2.4 1.4 8.0
Middle East 9.3 6.2 9.6 8.3 4.8 14.9
East Asia 22.4 9.9 18.4 14.9 6.9 28.5
Latin America 8.7 3.9 6.7 7.3 3.3 13.1
Africa 7.8 3.6 7.3 7.4 3.8 14.8
Source: 20052007 World Values Survey

political process. Nearly one in ten (9 %) people for its rapid socioeconomic modernization during
in all seven cultural zones did not know whether the past three decades, stands out from the rest of
religious or military intervention is essential or the world is a question that invites further research.
unessential in a democracy. The lowest unsure
responses occur with support for popular elec- Misinformed About Democracy
tions and gender equality. Only 1 out of 25 people How accurately is the public informed about
(4 %) were unable to identify these two important democracy? Do they have a correct interpretation
dimensions of democracy. Surprisingly, nearly of what a democracy requires? To address this
twice as many (7 %) could not determine whether question, we calculate the percentages of those
protection of liberty is essential for democracy. who incorrectly rated each dimension as essential
When all five dimensions are considered together, or unessential to a democracy. Table 2 reports the
nearly one out of three (32 %) people in the world percentage of the misinformed (i.e., those who
today remain unsure about either one or more of incorrectly interpret the extent to which each
the five dimensions in our analysis. democratic dimension is required). Of the five
Another notable feature of Table 1 is the high dimensions, the role of the military is the most
level at which people in East Asia are unsure about misunderstood, with 33 % incorrectly believing
democracys properties compared to their peers in a military take-over of government is conducive
other regions. When presented with the choice to to democracy. It is followed by incorrect assump-
limit the role of religious interpretation of laws, tions about the intervention of religious authori-
more than one out of five (22 %) failed to consider ties (29 %), the protection of liberty (17 %),
it as part of a democracy. Nearly as many (19 %) gender equality (11 %), and popular elections
failed to choose a civilian-controlled military as (11 %). When all five dimensions are considered
a democratic characteristic. More surprising is that together, a substantial majority (62 %) are
as many as one out of seven (15 %) East Asians misinformed about at least one of the five dimen-
failed to consider the protection of liberty as essen- sions considered. In all, fewer than two out of five
tial to democracy. The results constitute evidence people in the world (36 %) hold an informed,
that East Asians are the least informed of respon- democratic opinion of all five dimensions.
dents in the seven regions, with 29 % unsure of any Our study shows that those who are the most
of the dimensions of democracy. The other regions misinformed about democracy are in South Asia,
are only marginally better: Eastern Europe (20 %), the Middle East, and Africa. As many as half the
the Middle East (15 %), sub-Saharan Africa people in these Islamic-influenced regions failed
(15 %), Latin America (13 %), the West (8 %), to correctly identify the democratic principle of
and South Asia (8 %). Why East Asia, well known separating church and state and incorrectly
Democracy, Faith in 1537 D
Democracy, Faith in, Table 2 Percentages of respondents unable to answer each and all of the dimensions accurately
Religious Popular Military Protecting Gender All five
Cultural zones authorities elections take-over liberty equality questions
(All zones) 29.4 % 11.0 % 32.3 % 16.7 % 11.3 % 62.4 %
Dem. West 16.7 8.7 22.3 13.4 6.4 45.1
Ex. Com. West 23.6 8.6 30.8 11.3 8.0 55.1
South Asia 47.1 18.2 44.8 24.2 20.8 85.1
Middle East 54.1 13.5 45.6 17.3 23.9 83.3
East Asia 18.3 9.0 26.8 12.6 7.6 57.1 D
Latin America 27.4 12.2 33.4 20.3 10.1 66.8
Africa 44.0 13.3 41.2 23.9 15.4 78.8
Source: 20052007 World Values Survey

viewed religious authorities as key players in become the worlds most preferred political sys-
democratic politics. These three regions are also tem without considering whether citizens appre-
the most mistaken about the role of the military ciate or understand its characteristics (Booth &
and gender equality. More than two out of five Seligson, 2008; Bratton, Mattes, & Gyimah-
people in these three areas incorrectly identified Boadi, 2004; Chu et al., 2008; Rose, Mishler, &
military political intervention as essential to Haerpfer, 1998).
democracy. More than one out of seven respon-
dents refused to endorse gender equality as an Patterns of Democratic Conceptions
essential characteristic of democracy. In all, nearly All in all, how well do contemporary publics
four out of five or more people in South Asia, the understand democracy as a system of govern-
Middle East, and Africa are misinformed about at ment? To address this question, we construct
least one of the five dimensions considered. These four distinct patterns of understanding democ-
three regions are followed by Latin America racy. They are the misinformed, the uninformed,
(67 %), East Asia (57 %), Eastern Europe the ignorant, and the well informed. The
(55 %), and the West (45 %). The fully democra- misinformed are those who could identify all
tized West is the only cultural zone where less than five dimensions but misunderstand at least one
a majority is misinformed about what constitutes democratic dimension as unessential and/or
democracy. In the other six regions, majorities essential. The uninformed are those who could
remain misinformed. not identify all five dimensions but do not have
In regard to popular elections, however, peo- mistaken views of those they do identify. The
ple in South Asia are the most misinformed. ignorant are those who are both unsure and
Eighteen percent of people in this region did not misinformed. The well informed are those who
identify popular elections as an essential demo- are neither unsure nor misinformed about democ-
cratic dimension. And regarding the protection of racy. For analytical simplicity, we also combine
liberty, people in South Asia (24 %) were the the ignorant, the uninformed, and the
most misinformed, followed by Latin America misinformed into a broader group labeled the
(20 %), sub-Saharan Africa (24 %), and the Mid- poorly informed.
dle East (17 %). Equally notable is that as many Table 3 reports how global citizenries are dis-
as one in eight (13 %) people in the democratized tributed across these four groups. Those in the
West failed to recognize the protection of liberty misinformed group are the most numerous, with
as essential to democracy. a majority of 51 %. They are followed by the well
As these empirical results suggest, the prob- informed with 34 %, the ignorant with 11 %, and
lem of democratic misconceptions is ubiquitous. the uninformed with 3.5 %. When the ignorant,
These findings have not been addressed in previ- the uninformed, and the misinformed are grouped
ous studies, which maintain that democracy has together as the poorly informed, they constitute
D 1538 Democracy, Faith in

Democracy, Faith in, Four patterns


Table 3 Patterns of
Cultural zones Fully informed Misinformed Somewhat informed Confused
democratic conceptions
(All zones) 34.1 % 51.4 % 3.5 % 11.0 %
Dem. West 52.8 38.8 2.1 6.4
Ex. Com. West 37.9 42.0 6.9 13.1
South Asia 12.6 79.4 2.3 5.7
Middle East 15.1 70.0 1.6 13.3
East Asia 35.8 35.7 7.0 21.5
Latin America 30.8 56.1 2.4 10.8
Africa 18.7 66.5 2.5 12.3
Source: 20052007 World Values Survey

Democracy, Faith in, Table 4 Percentages of the In four regions South Asia, the Middle East,
poorly and well informed among avowed democrats Latin America, and sub-Saharan Africa the
Cultural zones Poorly informed Well informed misinformed constitute a majority of the popula-
(All zones) 62.3 % 37.7 % tion and an overwhelming majority of the poorly
Dem. West 42.5 57.5 informed population. In the other three zones,
Ex. Com. West 55.7 44.3 they form minorities of about two-fifths or less.
South Asia 86.8 13.2 East Asia stands out from all other regions as the
Middle East 83.8 16.2 only one where more than one out of five (22 %)
East Asia 56.3 43.7 citizens is democratically ignorant. Yet this
Latin America 65.9 34.1 region is similar to all other regions, including
Africa 79.8 20.2 the democratized West, in that the problem of
Source: 20052007 World Values Survey being misinformed is far more prevalent than
that of being either uninformed or ignorant.

a two-thirds majority (66 %) of global citizenries. The Authenticity of Avowed Support for
Within the world, those who are well informed Democracy
about democracy, that is, fully capable of accu- According to the survey-based studies cited ear-
rately understanding and identifying its essential lier, democracy has become the most favored sys-
and unessential properties, constitute a small tem of government by large majorities in all
minority. They are outnumbered by the poorly regions of the world. Indeed, our analysis of the
informed at a two to one margin. latest wave of the WVS confirms these findings.
Is the prevalence of poorly informed citizens When asked to rate democracy on a four-point
a global phenomenon or is it confined to certain scale ranging from very good to very bad,
cultural zones? Table 3 separates the four patterns more than nine out of ten (92 %) rated it favorably.
of understanding by the seven regions. Only in the Such high prodemocratic ratings exist in all
democratized West are the well informed regions, ranging from 86 % in Eastern Europe to
a majority and the poorly informed a minority. In 94 % in South Asia and the Middle East. Democ-
all other regions, however, they constitute major- racy has undoubtedly become the universally
ities ranging from less than two-thirds in Eastern favored system of government throughout the
Europe (62 %) and East Asia (64 %) to more than entire globe.
four-fifths in South Asia (87 %), the Middle East In view of our analysis presented above, how-
(85 %), and sub-Saharan Africa (81 %). In Latin ever, many of these avowed democrats cannot be
America, the region with the second longest branded as well-informed supporters of democ-
period of democratic political experience, more racy. Table 4 shows the percentages of those who
than two-thirds (69 %) of its citizens remain report to favor democracy that are poorly or well
poorly informed about democracy. informed about democracy. Poorly informed
Democracy, Faith in 1539 D
Democracy, Faith in, Avowed democrats
Table 5 A variety of
Cultural zones Genuine democrats Superficial democrats Nondemocrats
democrats and
nondemocrats (All zones) 34.5 % 57.1 % 8.5 %
Dem. West 53.5 39.5 7.0
Ex. Com. West 38.2 48.1 13.7
South Asia 12.4 81.7 5.9
Middle East 15.2 78.9 5.9
East Asia 38.7 49.9 11.4
Latin America 32.1 60.2 8.8 D
Africa 18.8 74.2 7.0
Source: 20052007 World Values Survey

avowed democrats constitute majorities in all from three-quarters to over four-fifths of citizens
regions except the democratized West. They are are superficial supporters of democracy, that is,
most numerous in South Asia (87 %), followed by those who support democracy but do not fully
the Middle East (84 %), Africa (80 %), understand its characteristics. In Latin America,
Latin America (66 %), East Asia (56 %), and this group constitutes 60 % of the population.
Eastern Europe (56 %). Only the democratized Only in the West, Eastern Europe, and East Asia
West has a majority of well-informed democratic do superficial democratic supporters constitute
supporters (58 %). When all seven zones minorities. In Eastern Europe and East Asia,
are considered together, more than three out however, these are extremely slim minorities.
of five (62 %) avowed democrats are either Even in the West, two out of five (40 %) people
unsure, misinformed, or both, about essential are superficial supporters. When all seven zones
democratic characteristics. In other words, most are considered together, genuine democrats con-
people who say they support democracy do not stitute a minority of about one-third (35 %) of
accurately understand its meaning. Considering global citizenries, while superficial democrats
their limited substantive knowledge about constitute a majority of nearly three-fifths (57 %).
democracy, poorly informed democratic sup- These data reveal a significant worldwide gap
porters cannot be expected to properly exercise between citizens who view democracy favorably
democracy in practice. It is therefore reasonable and those who substantively understand and sup-
to conclude that, for the most of the world, port it. This gap can be considered an indicator of
democratic support in practice is highly superfi- the further need for authentic understanding
cial and fragile. about democracy in the minds of mass citizenries.
Based on this inference, we divide avowed In terms of percentage points, a gap of 50 % or
democratic supporters into two categories: the more exists in every cultural zone outside the
genuine and the superficial. While the former democratized West. Even after more than three
are fully informed about the essence of democ- decades of extensive efforts to promote democ-
racy as a system of government, the latter are racy throughout the developing world, only lim-
either misinformed and/or unsure about its essen- ited progress has been made in engendering truly
tial characteristics. democratic cultures.
For each of the seven regions, Table 5 reports
the percentages of these two categories of demo- Concluding Remarks
crats. In four of seven regions, superficial sup- Previous studies make it clear that democracy
porters constitute a substantial or large majority is the system most favored by a large majority
of their respective adult population. In South of people in every geographic and cultural
Asia, the Middle East, and sub-Saharan Africa, region in the world. Undoubtedly, democracy
D 1540 Democracy, Faith in

has become the universally favored system of References


government. Nevertheless, the essentials of
a fully democratic system are not understood or Blokker, P. (2009). Multiple democracies in Europe:
Political culture in new member states. London:
endorsed by a majority of citizens. Only in the
Rouledge.
consolidated democracies of the West do major- Booth, J., & Seligson, M. (2008). The legitimacy puzzle in
ities of citizens truly understand and appreciate Latin America: Political support and democracy in
democratic virtues. At present, although democ- eight Latin American countries. New York: Cam-
bridge University Press.
racy is favored throughout the entire globe, an
Bratton, M., Mattes, R., & Gyimah-Boadi, E.
accurate understanding of its characteristics (2004). Public opinion, democracy, and market
remains a regional phenomenon, not a universal reform in Africa. Cambridge: Cambridge University
phenomenon. Press.
Chu, Y.-h., Diamond, L., Nathan, A., & Shin, D. C. (Eds.).
Accordingly, we argue that democracy as
(2008). How East Asians view democracy. New York:
a system of government, in which the masses Columbia University Press.
participate freely and equally in the political pro- Dalton, R., Shin, D. C., & Jou, W. (2007). Understanding
cess, is far from emerging as a universally valued democracy: Data from unlikely places. Journal of
Democracy, 18(4), 142156.
system, contrary to what Nobel Laureate
Gallup-International. (2007). Voice of the people 2007.
Amartya Sen (1999) claims. Such universality www.umich.icpsr.edu. Accessed 23 July 2010.
requires a majority of the mass public to uncon- Heath, A., Fisher, S., & Smith, S. (2005). The globaliza-
ditionally endorse and comprehend the essential tion of public opinion research. Annual Review of
Political Science, 8, 297331.
properties of democracy. In this regard, we cau-
Inglehart, R. (2003). How solid is mass support for democ-
tion against treating survey respondents who racy-and how can we measure it? PS: Political Science
claim to support democracy as genuine demo- & Politics, 36(1), 5157.
crats, as is often implied in democratization Inglehart, R., & Welzel, C. (2005). Modernization, cul-
tural change and democracy. New York: Cambridge
research.
University Press.
For much of the world, democracy represents Linz, J., & Stepan, A. (1996). Problems of democratic
little more than an appealing political symbol that transition and consolidation. Baltimore: Johns Hop-
still retains authoritarian practices. Until a great kins University Press.
Mattes, R. (2007). Public opinion research in emerging
many superficial democrats are transformed into
democracies: Are processes different? Afrobarometer
genuine democrats, it is premature to endorse the Working Paper No. 67.
increasingly popular claim that democracy is Millet, R., Holmes, J., & Perez, O. (Eds.). (2008). Latin
emerging as a universal value. Our analysis indi- American democracy. London: Routledge.
Norris, P. (2004). From the civic culture to the
cates the extent to which democracy has failed to
afrobarometer. Paper presented at the annual meeting
take root in the minds of citizens and reveals that, of the American Political Science Association,
even after decades of extensive efforts to promote Chicago.
the global expansion of democracy, progress has Pew Research Center. (2003). Views of a changing world
2003. Retrieved July 23, 2010, from http://people-
been very slow in developing authentic demo-
press.org/reports/display.php3?ReportID185
cratic political cultures outside Western nations Rose, R. (2009). Understanding post-communist transfor-
(Blokker, 2009; Millet, Holmes, & Perez, 2008; mation: A bottom approach. London: Routledge.
Rose, 2009; Shin, 2007). Our contrarian perspec- Rose, R., Mishler, W., & Haerpfer, C. (1998). Democracy
and its alternatives. Baltimore: Johns Hopkins Univer-
tive on mass political orientations suggests that
sity Press.
democratization must be considered, at best, Sen, A. (1999). Democracy as a universal value. Journal
a work in progress. of Democracy, 10(3), 317.
Shin, D. C. (2007). Democratization: Perspectives from
global citizenry. In R. Dalton & H.-D. Klingemann
(Eds.), The Oxford handbook of political behavior.
Cross-References New York: Oxford University Press.
Tessler, M. (2002). Islam and democracy in the Middle
Public Opinion East. Comparative Politics, 34(3), 337354.
Democracy, Satisfaction with 1541 D
indicator of support for incumbent authorities
Democracy, Satisfaction with (Dalton, 1999; Merkl, 1988); as an indicator of
a system support (Anderson & Guillory, 1997;
Graciela Tonon Fuchs, 1993; Fuchs, Guidorossi, & Svensson,
Universidad Nacional de Lomas de Zamora, 1995; Klingemann, 1999; Weil, 1989); as a sum-
Camino de Cintura, Argentina mary indicator (Clarke, Dutt, & Kornberg, 1993),
Universidad de Palermo, Argentina Universidad or as an acceptable ambiguity (Kaase, 1988) and
Nacional de La Matanza, San Justo, Argentina unacceptable ambiguity (Norris, 1999). This
study by Canache et al., developed in 18 nations, D
intends to provide a straightforward assessment
Synonyms in SWD trying to define what the item measures.
The conclusion was that SWD reveals a lack of
Satisfaction with how democracy works agreement in what it measures because multiple
interpretations are possible regarding individuals,
time, or space. For example, as individual levels
Definition mean different things, it depends on the level of
knowledge about politics people have.
The term satisfaction with democracy (SWD) In a research study developed in 1993, in
emerges in relation to the discrepancy between which the unit of analysis was the individuals,
how democracy should work and the way it Clarke, Dutt and Kornberg found that SWD is
actually works (Wagner et al., 2006). It is correlated with support for the political commu-
a concept that although it has been widely used, nity, with the regime and incumbent authorities,
it has always suffered, at the same time, and with the thought that SWD provides a useful
from considerable criticism because the various overall summary measure of satisfaction with the
ways in which it has been used make it difficult existing democratic political system (Clarke,
to identify relationships between theoretical Dutt, & Kornberg, 1993, 1003).
constructs and to identify relationships among Fuchs (1993, p. 242) conducted a research
variables. Authors like Clarke, Dutt, and study on the validity of SWD and concluded
Kornberg (1993) said that the term can be used that it constitutes a successful validation of
as a summary indicator. the indicator as a measuring instrument for
a generalized attitude toward the political system
on the legitimacy dimension. Linde and Ekman
Description (2003, p. 401) claimed that satisfaction with the
way democracy works is not an indicator of
It appears as an item in the Euro barometer for the system legitimacy per se; rather it is one indicator
first time in 1976 as a four-point scale with of support for the performance of a democratic
the question: are you very satisfied, fairly regime.
satisfied, not very satisfied, or not at all satisfied Wagner et al. (2006, p. 8) used SWD to know
with the way democracy works in our country?. how democracy actually works in practice, but
The results obtained in relation to the percentage they recognized that although it is problematic
of respondents who reported that they were to assess the level of legitimacy of democracy
very satisfied or fairly satisfied with democ- using SWD, this indicator is used in the major
racy in a countrys election year allowed cross-national public opinion surveys to general-
the construction of the indicator called citizen ize the support for the democratic system.
satisfaction(Ezrow & Georgios, 19762003). It is necessary to distinguish the concepts
Canache, Jeffery and Seligson (2001) distin- of democratic legitimacy that is defined as
guished among different views of SWD: as an the support for the principles of democracy
D 1542 Democracy, Satisfaction with

(Wagner et al., 2006); system support that con- statistically significant influence on happiness
cerns attitudes regarding the particular variant of (Wagner et al., 2006, p. 22). This introduced the
democracy that exists within ones country question about what is more important for regime
(Canache et al., 2001, p. 6); and support for support: SWD or happiness.
democracy as a form of government that concerns Finally, the research studies developed till
democracy at an abstract level (Canache et al., now showed that different authors had different
2001, p. 6). opinions about the theoretical implications and
SWD does not try to capture whether people consistency of SWD as a significant measure of
support the principles of democracy but rather how satisfied people are with democracy in the
how they judge it to work in practice in their country where they live.
concrete experience (Wagner et al., 2006, p. 8).
Anderson and Guillory (1997, p. 70) said that
Cross-References
SWD does not refer to democracy as a set of
norms, but it refers to the functioning of
Community Indicators
democracy.
Confidence in Government
Norris (1999) argued against SWD on two
Democracy
levels, saying that it may mean different things
Happiness
to different persons and that the item is intrinsi-
Indicators, Quality of Life
cally value laden. In his study about the support
Life Satisfaction, Concept of
for democracy, he considered five elements:
political community, support for democracy as
a form of government, regime performance or References
satisfaction with the way democracy actually
functions, regime institutions, and political Anderson, C. J., & Guillory, C. A. (1997). Political institu-
actors. The variable regime performance or sat- tions and satisfaction with democracy: A cross-national
analysis of consensus and majoritarian systems.
isfaction with the way democracy actually func-
American Political Science Review, 91, 6681.
tions addresses the issue of what citizens think Canache, D., Jeffery, M., & Seligson, M. (2001). Meaning
about the way democracy works in practice. and measurement in cross-national research on satis-
There can be important differences between faction with democracy. Public Opinion Quarterly, 65,
506528.
support for democracy as a principle and a view
Clarke, H. D., Dutt, N., & Kornberg, A. (1993). The
of a real-existing democracy. political economy of attitudes toward polity and soci-
Considering the relation between SWD and ety in Western European democracies. Journal of
happiness, one should notice the study of Graham Politics, 55, 9981021.
Dalton, R. J. (1999). Political Support in advanced indus-
and Pettinato, Stefano (2000) in which the
trial democracies. In P. Norris (Ed.), Critical citizens.
authors explored the demographic determinants Global support for democratic government
of happiness in 17 countries of Latin America (pp. 5777). Oxford, UK: Oxford University Press.
as well as the effects of macroeconomic trends Ezrow, L., & Georgios, X. Citizen satisfaction
with democracy and parties policy offerings:
and attitudes about the market on happiness, find-
A cross-national analysis of twelve European party
ing that SWD was correlated with higher levels of systems, 19762003. Forthcoming, Comparative
happiness. Political Studies. http://privatewww.essex.ac.uk/
In 2006, Wagner et al. developed a research ezrow/publications/Ezrow_Xezonakis_Citizen%20Sat-
isfaction%20with%20Democracy%20and%20Parties%
study in which one of the hypotheses was 27%20Policy%20Offerings.pdf.
that more happiness is associated with higher Fuchs, D. (1993). Trends of political support. In D. Berg-
levels of SWD. They began with the assumption Schlosser & R. Rytlewski (Eds.), Political cultural in
that happiness is an important determinant of Germany. New York: St. Martins.
Fuchs, D., Guidorossi, G., & Svensson, P. (1995). Support
SWD. The preliminary analysis using VARs
for the democratic system. In H.-D. Klingemann &
suggested that while happiness has a positive D. Fuchs (Eds.), Citizens and the state (pp. 323353).
influence on SWD, SWD has virtually no Oxford, UK: Oxford University Press.
Democratic Attitudes Measures: Cross-National Equivalences 1543 D
Graham, C., & Pettinato, S. (2000). Happiness, markets, across different contexts. In this case, we focus on
and democracy: Latin America in comparative per- measuring public attitudes toward democracy
spective. Center on Social and Economic Dynamics
(Working Paper No. 13 August). across countries. As democracy is considered to
Kaase, M. (1988). Political alienation and protest. In be an important factor in assuring peoples
M. Dogan (Ed.), Comparing pluralist democracies: quality of life, examining the validity of a cross-
Strains in legitimacy. Boulder, CO: Westview. national comparison of attitudes toward democ-
Klingemann, H.-D. (1999). Mapping political support in
the 1990s: A global analysis. In P. Norris (Ed.), racy is important for more accurate assessment
Critical citizens. Global support for democratic of peoples perceptions of democracy from a
government (pp. 3156). Oxford, UK: Oxford comparative perspective. D
University Press.
Linde, J., & Ekman, J. (2003). Satisfaction with democ-
racy: A note on a frequently used indicator in compar-
ative politics. European Journal of Political Research, Description
42, 391408.
Merkl, P. (1988). Comparing legitimacy and values Scholars of democracy have long assumed that a
among advanced democratic countries. In M. Dogan
(Ed.), Comparing pluralist democracies. Westview: democratic systems stability depends upon its
Boulder, CO. legitimacy and therefore also upon the extent
Norris, P. (1999). Introduction: The growth of critical to which the public subscribes to democratic atti-
citizens? In P. Norris (Ed.), Critical citizens. Global tudes. Consequently, a wide range of literature
support for democratic government. Oxford, UK:
Oxford University Press. has been devoted to measuring mass public
Wagner, A., & Schneider, F. (2006). Satisfaction with attitudes toward democracy in different countries.
democracy and the enviroment in Western Europe. The proliferation of cross-national research
A Panel Analysis. IZA DP N 1929. surveys like the New Democracies Barometer,
Weil, F. (1989). The sources and structure of legitimation
in Western democracies: A consolidated model the LatinoBarometer, the AfroBarometer, and
tested with time-series data in six countries since the World Values Survey has extended scholarly
World War II. American Sociological Review, 54, abilities to explore democratic attitudes (Heath,
682706. Fisher, & Smith, 2005; Shin, 2007), and several
scales such as the democracy as an ideal form
of government scale (Klingemann, 1999) or the
realistic measures of democracy scale (Mishler
& Rose, 2001) have been constructed. The
Democratic Attitudes Measures: importance of measuring attitudes toward
Cross-National Equivalences democracy across countries has created extensive
discussion in the literature concerning the mea-
Gal Ariely1 and Eldad Davidov2 surement of such attitudes and their employment
1
Ben-Gurion University of the Negev, in various studies (e.g., Canache, Mondak, &
Beer-Sheva, Israel Seligson, 2001; Linde & Ekman, 2003; Mishler
2
Institute of Sociology, University of Zurich, & Rose, 2001; Schedler & Sarsfield, 2007).
Zurich, Switzerland However, the ongoing discussion in the literature
regarding the operationalization of attitudes
toward democracy has not paid sufficient
Definition attention to the challenges of cross-country and
cross-cultural comparisons.
Cross-national measurement equivalence (invari- The challenges in cross-country comparisons
ance) implies that the observation and study of of measures that are based on peoples responses
some phenomenon across various countries yields in a survey stem from the fact that such
measures of the same attributes. Cross-national responses are affected by the dissimilar cultural
measurement equivalence is a necessary condi- and political contexts that might lead to different
tion to allow meaningful comparison of measures understanding of the questions in the survey or
D 1544 Democratic Attitudes Measures: Cross-National Equivalences

to different response patterns. The comparability the 36 countries in the sample, and the compara-
of cross-national surveys is also challenged bility of the scale across all countries was exam-
by various methodological problems like ined. Figure 1a and b illustrates the measurement
translation and differences in survey practice models.
that affect sampling and coverage (Curtice, Confirmatory factor analysis (CFA) and
2007). This challenge increases as one expands multiple group CFAs were used to assess
the number of countries that are included in the these measurement models (for an overview of
survey. several methods to conduct the test, see Davidov,
Ariely and Davidov (2011) offer an extensive Schmidt, & Billiet, 2011). CFA provides
examination of cross-national equivalences for estimates of the relations between observed
two democratic attitude measures in 36 countries indicators and the hypothesized latent construct
that were included in the World Value Survey (factor) and provides fit indices that report
2000 (WVS) (http://www.worldvaluessurvey. whether the hypothesized structure of associa-
org). To date, the WVS is the only academic tions between a latent construct and its proposed
(nearly) global public opinion survey that covers indicators fits the data. Multiple group CFA
over 80 % of the world population (Norris, 2009). provides information on whether parameters in
The WVS 2000 covered established democracies the CFA are comparable across countries.
like the USA and Canada as well as new The test indicated that the four items in each
democracies in Eastern Europe, Africa, and scale did not measure the same construct across
Latin America. Two scales were examined by all countries. In other words, the four items
Ariely and Davidov (2011). The Democracy- underlying each scale did not display the same
Autocracy Preference (DAP) scale was based on configuration of loadings in each country. Even
the question I am going to describe various types after modification of the scales, Ariely and
of political systems and ask what you think about Davidov (2011) concluded that the scale
each as a way of governing this country. For each, comparability was rather limited. The DAP was
would you say it is a very good, fairly good, valid across only 27 countries and the DPE
fairly bad, or a very bad way of governing this scale across 35 countries. Furthermore, the
country?: (1) Having a strong leader who does not level of comparability of the DAP scale did
have to bother with parliament and elections; not allow comparison of the scale means across
(2) Having experts, not governments, make the 27 countries, and only the correlates
decisions according to what they think is (unstandardized regression coefficients, covari-
best for the country; (3) Having the army rule; ances) between this scale and other theoretical
(4) Having a democratic political system. The constructs of interest may be compared across
Democratic Performance Evaluation scale (DPE) countries. However, after dropping the question
was based on the question I am going to read off Democracy is better than any other form of
some things that people sometimes say about a government, it was possible to compare the
democratic political system. Could you please DPE scale means across 35 countries. Iran
tell me if you agree strongly, agree, disagree, or was the only country where also this scale did
disagree strongly, after I read each one of them?: not work properly to measure attitudes toward
(1) In democracy, the economic system runs democracy and compare them with other
badly; (2) Democracies are indecisive and have countries.
too much quibbling; (3) Democracies arent good
at maintaining order; (4) Democracy may have Discussion
problems but its better than any other form of Establishing measurement equivalence (invari-
government. ance) is not a goal in itself. Nonetheless, without
The scale comparability was examined by establishing equivalence, it is more difficult to con-
constructing a measurement model in each of duct meaningful comparisons of attitudes toward
Democratic Attitudes Measures: Cross-National Equivalences 1545 D
a
Having a strong leader (v 164) e1
1

Having experts (V165) e2


D.A.P

Having the army rule (V166) e3

Having a democratic political system (V167) e4


D
Note: V167 is a reversed indicator. V164 is a reference indicator. Source: Data are taken from the WVS 2000,
N=51,067. Source: Ariely and Davidov (2011).

b In democracy, the economic system runs badly (V169) e1


1

Democracies are indecisive and have too much quibbling (V170) e2


D.P.E

Democracies arent good at maintaining order (V171) e3

Democracy may have problems but is better (V172) e4

Note: V172 is a reversed indicator. V169 is a reference indicator. Source: Data are taken from the WVS 2000,
N=51,067. Source: Ariely and Davidov (2011).

Democratic Attitudes Measures: Cross-National (b) The Democratic Performance Evaluation scale
Equivalences, Fig. 1 (a) Confirmatory factor analysis (Source: Ariely and Davidov (2011))
model of Democracy-Autocracy Preference (DAP) scale.

democracy based on accessible cross-national sur- References


vey data. The results of Ariely and Davidov
(2011) can be considered as a call for researchers Ariely, G., & Davidov, E. (2011). Can we rate public
support for democracy in a comparable way? Cross-
to look more closely at the ways democratic atti-
national equivalence of democratic attitudes in the
tudes are being measured and compared across World Value Survey. Social Indicators Research,
different contexts. While cross-national survey 104(2), 271286.
projects like the WVS are an important Canache, D., Mondak, J. J., & Seligson, M. A. (2001).
Meaning and measurement in cross-national research
source for analyzing mass attitudes toward
on satisfaction with democracy. Public Opinion
democracy, overlooking the issue of measure- Quarterly, 65(4), 506528.
ment problems in general and measurement Curtice, J. (2007). Comparative opinion surveys. In J. R.
equivalence in particular might cast doubt on Dalton & H. Klingemann (Eds.), Oxford handbook
of political behavior (pp. 898909). Oxford: Oxford
theoretical implications that are based on invalid
University Press.
measurement. Davidov, E., Schmidt, P., & Billiet, J. (Eds.). (2011).
Cross-cultural analysis: Methods and applications.
New York: Taylor and Francis.
Heath, A., Fisher, S., & Smith, S. (2005). The globaliza-
Cross-References tion of public opinion research. Annual Review of
Political Science, 8, 297333.
Klingemann, H. (1999). Mapping political support in the
Confirmatory Factor Analysis (CFA)
1990s: A global analysis. In P. Norris (Ed.), Critical
Democracy citizens: Global support for democratic governance
Survey Research (pp. 151189). Oxford: Oxford University Press.
D 1546 Democratic Politics

Linde, J., & Ekman, J. (2003). Satisfaction with democ- ethics in Greek thought. If a system of natural-
racy: A note on a frequently used indicator in compar- istic ethics is understood as one in which all
ative politics. European Journal of Political Research,
42(3), 391408. ethical terms or moral values are definable in
Mishler, W., & Rose, R. (2001). Political support for nonethical terms or nonmoral values, it is
incomplete democracies: Realist vs. idealist theories unlikely that any fifth century BCE philosopher
and measures. International Political Science Review, would have had the philosophic or scientific
22(4), 303320.
Norris, P. (2009). The globalization of comparative public conceptual resources required to produce such a
opinion research. In N. Robinson & T. Landman (Eds.), system. However, it is fair to say that if anyone
Handbook of comparative politics (pp. 522539). could have produced such a system, Democritus
London: Sage. of Abdera (c.460c.370 BCE) would have done it
Schedler, A., & Sarsfield, R. (2007). Democrats with
adjectives: Linking direct and indirect measures of and that the system he did produce was a brilliant
democratic support. European Journal of Political attempt to provide a scientific foundation for
Research, 46(5), 637659. claims about the best sort of life and the best
Shin, D. C. (2007). Democratization: Perspectives from sort of person.
global citizenries. In J. R. Dalton & H. Klingemann
(Eds.), The Oxford handbook of political behavior The ultimate material building blocks of
(pp. 259282). Oxford: Oxford University Press. Democritus universe were atoms, which were
too small to be observed by human senses but
were theoretically imagined to exist in an unlimited
Democratic Politics void; to be unlimited in number, shape, and size;
and to be constantly in motion. The shapes were
Democracy and Bureaucracy imagined to be rough or smooth, concave or con-
vex, hooked, or otherwise irregularly constructed.
As they moved, they would collide, and parts of
some would fit nicely together with others, while
Democratic Quality of Government still others simply became randomly and unstably
entangled. Besides this random churning and clus-
Good Governance and Happiness in Nations tering of the atoms, a primitive gravitational prin-
ciple was supposed to operate such that atoms were
attracted to others like themselves. The result of all
this unobservable atomic activity in the limitless
Democratization and Islam void was the formation of relatively well-formed,
perceptible compounds, i.e., the world as observed
Democracy and Islam in the Middle East by human senses, including all living things.
Human beings were thought to be unique clus-
ters of compounds consisting of body and soul
Democritus atoms which were equally material, although
soul atoms were uniformly spherical like those
Alex C. Michalos constituting fire. The shape and smoothness of the
University of Northern British Columbia, atoms clustered together to form soul-compounds
Prince George, BC, Canada were supposed to account for the latters capacity
(residence) Brandon, MB, Canada to initiate change and movement in itself and its
body-compound. While the two compounds were
supposed to be thoroughly integrated, the body
Birth, Education, Work History, and was occasionally described as the instrument or
Main Contributions tent of the soul, and the soul was clearly
regarded as the responsible agent. Since souls
According to Vlastos (1946, p.62), Democritean and bodies were essentially thoroughly integrated
ethics. . .[was]. . .the first rigorously naturalistic compounds, the death of a human being implied
Democritus 1547 D
the dispersion of the atoms constituting those were influenced by external physical and social
compounds. Therefore, there were no immortal conditions as well as by individuals internal
souls in Democritus universe. There were, how- conditions. For example, it was believed that
ever, daemons (i.e., daimones), as indicated in excessively hot and cold winds, or violent
the fragment The soul is the dwelling-place of organic motion is injurious to health in general
the daemon, which Vlastos (1945, p.582) and mental health in particular (Vlastos, 1945,
interpreted as in the soul you will find the only p.583). According to Democritus theory, good
daemon there is to find. Since such beings were health was a function of a kind of dynamic
not supposed to be immortal, their existence equilibrium or harmonious balance among the D
could have been granted by an atomist, provided internal atoms of an individual and the external
that the supremacy of natural laws and/or atoms of his or her environment. Excessively hot
mechanisms were unchallenged. winds disorganized the routine movement of
Human sensation of all kinds was reduced to bodily atoms. Cooler winds and physical rest con-
the sense of touch insofar as seeing, hearing, and tributed to a tight, stable condition of the bodily
so on were supposed to be the result of the atoms atoms, while excessively cold winds produced
of observed objects impacting those of sensory a kind of atomic paralysis. A soul unbalanced by
organ-compounds, which in turn impacted too much heat or too much cold would go out of
the atoms of soul-compounds. Important as its mind (Vlastos, 1945, p.585). In short, all
sense perception was to ones knowledge of the observable mental and physical disorders could
world, it was notoriously unreliable. A fragment be explained by unobservable disordered and dis-
attributed to Democritus by Sextus Empiricus cordant atomic activity, while observable human
asserted that we in fact understand nothing well-being could be explained by unobservable
exactly [or exact], but what changes according orderly and harmonious atomic activity. These
to the disposition both of the body and of the views were consistent with the views of Anaxag-
things that enter it and offer resistance to it oras of Clazomenae (c.500-428BCE) expressed
(McKirahan, 1994, p.334). Two fragments in a fragment claiming that appearances provide
provided by McKirahan (1994, p.335) reveal a clue to the nature of reality and with the
that our hard-headed empiricist, materialist atom- Pythagorian view of the importance of harmony.
ist had a significantly rationalist commitment to Clearly, a good life implied by these principles
his theoretical speculations. would be a life free of excesses, guided by intel-
ligent self-control, which were aspects of a good
There are two kinds of judgment, one legitimate life later warmly endorsed by Socrates, Plato,
and the other bastard. All the following belong to
the bastard: sight, hearing, smell, taste, touch. The Aristotle, and Epicurus. A fragment attrib-
other is legitimate and is separated from this. When uted to Democritus by Diogenes Laertius asserted
the bastard one is unable to see or hear or smell or that the goal of life is cheerfulness, which is not
taste or grasp by touch any further in the direction the same as pleasure. . .but the state in which the
of smallness, but < we need to go still further >
toward what is fine, <then the legitimate one soul continues calmly and stably, disturbed by no
enables us to carry on > . . .By convention [or, fear or superstition or any other emotion
custom], sweet; by convention, bitter; by conven- (McKirahan, 1994, p.339). Another fragment
tion, hot; by convention, cold; by convention, asserted that
color; but in reality, atoms and void.
cheerfulness arises in people through moderation
By implication and direct assertion, Democri- of enjoyment and due proportion in life. Deficien-
tus metaphysics and epistemology provide a cies and excesses tend to change suddenly and give
plausible foundation for his views of the good rise to large movements in the soul. Souls which
life and the best sort of person to be. It was undergo motions involving large intervals are nei-
ther steady nor cheerful. (McKirahan, 1994, p.338)
generally assumed by the medical scientists of
his time that mental functioning was partly Some commentators have interpreted Democ-
a function of bodily functioning and that both ritus notion of cheerfulness as tranquility,
D 1548 Democritus

unperturbedness, calm, or undismay, but was sustainably harmonious, while in the latter,
Vlastos (1945, p.583) thought that the state of the experienced pleasures fell short of cheerfulness
soul intended to be captured by cheerfulness and were the products of atomic activity that was
was not a passive state but...a dynamic quality, not sustainably harmonious. The real paradise
able to withstand external shock without losing that one aimed for had equally important
its inner balance. He also claimed that fifth observable and unobservable aspects.
century BCE writers commonly assumed that Democritus said that teaching re-forms
pleasure was necessary for a good life. More a man, and by re-forming, makes his nature,
precisely, Democritus seems to have provided a and Vlastos (1946, p.55) commented that the
relatively more rigorous scientific account of at concept of nature as itself the product of teaching
least some of the common sense of his time. In and custom is not unique in Democritus. It is the
Vlastos words, the philosopher found common property of the age. This common
notion implied that individuals were partly
. . .a hygienic view of pleasure ready to hand. He
does not have to enunciate either the doctrine that
responsible for their own lives and that
pleasure is the normal concomitant of well-being with proper training and individual initiative
and pain of the reverse; nor of the corollary that, one could increase ones self-sufficiency and
therefore, the quest for pleasure should be assimi- decrease ones vulnerability to chance mishaps.
lated to the discipline of the measure. This latter
was also implicit in the theory and practice of Democritus recommended hard work partly in
contemporary medicine. To live for pleasure is the interests of obtaining these latter two goods,
the medical term for the haphazard, unregulated but also to obtain the pleasure of achievement.
life, the negation of medical regimen. The doctor He was opposed to drunkenness, anger, and all
would have to advise in the very words of
Democritus. . .accept no pleasure, unless it agrees
kinds of self-indulgence. One of his fragments
with you. The word. . .used here is the key concept says that one must not respect others any more
of Hippocratean regimen: it denotes what is in than oneself, and not do evil if no one will know
harmony with nature and is thus essential in pre- about it any more than if all men will. But respect
serving and restoring health. It is interesting to see
that. . .nearly all the normative terms of
yourself most of all, and let this be established as
Democritean ethics. . .are also used by the medical a law for your soul, so that you will do nothing
writers to express the conduciveness of any process unseemly (Kahn, 1998, p.36). Dedicated scien-
or act (whether of the body itself, or of its natural tist and philosopher that he was, he also valued
environment, or of the physician) to the state of
health. (Vlastos, 1945, p.587) wisdom of the most practical sort. Wisdom is
the understanding of what is possible within the
As explained in Michalos (2004), there is limits of what is necessary. It is, therefore, in the
significant and sometimes troublesome overlap first place a shrewd, sharp-eyed knowledge of
in the World Health Organizations robust defi- affairs which can direct most things in life
nition of health as complete physical, mental (Vlastos, 1946, p.61).
and social well-being and the idea of a good Finally, it must be recorded that Democritus
quality of life or a good life, all things considered. was the first philosopher to recommend down-
The confounded notion of health-related ward comparisons as part of a strategy for
quality of life and the research tradition based attaining happiness. In a fragment quoted by
on that notion suffer severely from the overlaps. Kahn (1998, pp.3435), he said,
It is at once extremely interesting and distressing
. . .one should keep ones mind on what is possible
to discover the age of this particular set of and be satisfied with what is present and available,
problems. taking little heed of people who are envied and
Democritus and his contemporaries had the admired and not fixing ones attention upon them,
necessary conceptual tools to distinguish real but observe the lives of those who suffer and notice
what they endure, so that what you presently have
paradise from a fools paradise. In the former, will appear great and enviable and you will no
cheerfulness included pleasures, and these longer suffer evil in your soul by desiring more
were the products of atomic activity that than you have...[One should] compare ones life
Demographics 1549 D
to those who are less fortunate and count oneself
happy by considering what they suffer and how Demographics
much better your own life is. If you hold fast to
this frame of mind, you will live more cheerfully
and drive not a few plagues from your life: envy Patricia Lucero
and jealousy and ill-will. Study Group on Population and Territory,
Department of Geography, The University of
Insofar as he believed that this strategy was
Mar del Plata, Mar del Plata, Argentina
based in some aspect of human nature, Democritus
should also be regarded as the founder of D
downward comparison theory as elucidated, for
example, in Wills (1981). Since this theory is a
Synonyms
species of the more generic social comparison
Demography
theory (Merton & Kitt, 1950), Democritus may
be considered the founder of the latter as well.
Definition

Cross-References The main object of demography according to


Wrong (1971) is to determine the number and
Hedonism distribution of individuals in a given area, the
Multiple Discrepancies Theory study of changes of its volume and its distribution
Quality of Life, Two-Variable Theory during a given period of time, and the main fac-
Social Indicators tors that cause such changes. In the following
document, I briefly consider the convergence
between demographic research and the degree
References in which we allocate the welfare state of the
population, in the context of the individual and
Annas, J. (1993). The morality of happiness. Oxford: everyday framework of life, and in the respect for
Oxford University Press. human rights.
Aristotle (1999). Nicomachean ethics. In T. Irwin (Ed. &
Trans.), (2nd ed.,). Indianapolis: Hackett Pub. Co.
Dover, K. J. (1974). Greek popular morality in the time of
Plato and Aristotle. Indianapolis, IN: Hackett Description
Publishing.
Kahn, C. H. (1998). Pre-platonic ethics. In S. Everson The human being is the indivisible element that is
(Ed.), Companions to ancient thought: 4, Ethics. Cam-
bridge: Cambridge University Press.
the essence of the demographic phenomena.
McKirahan, R. D. (1994). Philosophy before Socrates: An When it is said that he is born, lives some time,
introduction with texts and commentary. Indianapolis, in the course of which he reproduces, he
IN: Hackett Publishing. develops, and finally he dies, the essence of the
Merton, R. K., & Kitt, A. S. (1950). Contributions to the
theory of reference group behavior. In R. K. Merton &
object of analysis of the demography has been
P. F. Lazarsfeld (Eds.), Continuities in social research defined.
(pp. 40105). New York: The Free Press. This demographic man transforms his situ-
Michalos, A. C. (2004). Social indicators research and ation in short periods of time: adds 1 year on each
health-related quality of life research. Social Indica-
tors Research, 65(1), 2772.
anniversary, looks to acquire knowledge and
Vlastos, G. (1945). Ethics and physics in Democritus: Part sociability, changes his marital and civil status,
one. Philosophical Review, 54, 578592. brings up and transmits values and living
Vlastos, G. (1946). Ethics and physics in Democritus: Part conditions to their offspring, produces goods
two. Philosophical Review, 55, 5364.
Wills, T. A. (1981). Downward comparison principles in
and services through social and domestic work,
social psychology. Psychological Bulletin, 90, changes his place of residence, or moves in their
245271. everyday territory.
D 1550 Demographics

However, in the grouping of individuals who life cycle; pay attention to international migra-
constitute a population with some social signifi- tion, in the context of the countries where income
cance, that is to say, share a territory recognized grows and countries where misery grows; and
by political, economic, urban or rural settlement inquire about the links between demography
forms, etc., and that are sufficiently large as and human rights.
a body for analysis, demographic changes are For Heran (2007) the demography opens its
carried out in the medium and long-term, due to eyes and raises two major aspects to its research:
the inertia which characterizes the combination macro-demography which works from above and
between the components of the structure (in par- from a distance and the micro-demography which
ticular sex and age) and the dynamic variables asks people and restores the essence of their paths
(particularly natality and mortality). of life.
The worlds population is estimated at 7 We need to think and plan a world for a few
billion in 2011. The United Nations (2004) pro- million more inhabitants. I wonder together with
jects a growth in its moderate version that would Lassonde (1997) what quality of life will there be
take it to 9 billion people in 2050. On a similar then? These reflections seek to find the point
average hypothesis, that amount would remain of convergence between demographic research
until 2300. Nevertheless, the ups and downs or and well-being for all the inhabitants of planet
the breakup of the general downward trend of Earth.
fertility would have a maximum perspective of
36.4 billion earthlings in 2300.
On the problem of the population growth, one Cross-References
of its most recognizable forerunners, Malthus
(1951), outlined as its main object to examine Death Rate
the effects of a great cause that has so far Density, Urban
prevented the evolution of humanity into happi- Distributive Justice
ness: the steady trend of life to increase, through Economic and Social Indicators
breeding, beyond what survival resources allow. Economic Well-Being
On the other hand, the geographical distribu- Fertility Plans/Intentions
tion of the population will continue to strengthen Fertility Rate
present gaps today: every ten inhabitants of our Migration, an Overview
global village, only one is found in the regions of Mobility
greater relative development, while nine other cit- Mortality Rates
izens are living in countries where human needs Net Reproduction Rate
augment. Moreover, within these two major sets of
territories, social polarization is very intense. The
thoughts of George (1969) warned about the most References
inevitable of the sources of inequality among men,
George, P. (1969). Geografa Urbana. Ariel Editorial.
which is the place of birth, being a country or Barcelona, Espana.
a social class of membership. Heran, F. (2007). El porvenir de la poblacion mundial:
Vallin (2002) proposes the creation of knowl- perspectivas demograficas, perspectivas eticas. En:
edge for these contemporary challenges: new Estudios Demograficos y Urbanos. Vol. 21, Numero
1(61), Pags.161187.
theories to understand, explain, and predict the Lassonde, L. (1997). Los desafos de la Demografa. Que
future; meet the economic, social, and political calidad de vida habra en el siglo XXI? Mexico:
consequences of population growth among the Universidad Nacional Autonoma de Mexico Fondo
poor social strata; clarify the underlying factors de Cultura Economica.
Malthus, T. (1951). Ensayo sobre el principio de la
of population aging, its extension and impact on poblacion. Fondo de Cultura Economica. Primera
societies; consider the withdrawal of fertility, its Edicion en ingles, 1798. Mexico: Primera Edicion en
relations with the changes in the family and the espanol.
Denmark, Quality of Life 1551 D
Naciones Unidas. (2004). World population to 2300. extensive welfare states in the world and also
New York: Department of Economic and Social Affairs, a relatively high level of taxes and duties at the
Population Division. (On line: WorldPop2300final,pdf).
United Nations. (2004). www.un.org/esa/population/ same time can be among the countries that are
publications/.../WorldPop2300final.pdf often portrayed as the happiest nation in
Vallin, J. (2002): Alocucion en la sesion de clausura de la the world. This is relatively consistent across
Conferencia General de Poblacion de la UIECP. En: analysis using data from World Database on
Notas de Poblacion N 74. Chile: EPAL-CELADE.
Pags.1926. Happiness and European Social Survey, but also
Wrong, D. (1971). La Poblacion. Buenos Aires: Editorial studies taking their departure in certain social
Paidos. indicators often depict Denmark in the top D
with regard to well-being and social cohesion.
Denmark is at the same time one of the countries
with the highest degree of equality and a low
Demography degree of wage differentiation (Scharpf, 2000).
An obvious problem related to studies of
Demographics happiness is how the causal relation is, for exam-
ple, is it due to, marriage that we become happier
or tend happier people to have a better chance to
get a partner?
Denial Happiness and well-being can have relative as
well as absolute elements and are also influenced
Deprivation by the adaptation to the level of goods and
services already received. Furthermore, there
might be an impact derived from the fact that
we have expectation of more also in the future.
Denmark, Quality of Life Despite these aspects which also have an impact
on the citizens in Denmark, it seems that this has
Bent Greve not been strong enough to have a negative impact
Department of Society and Globalisation, on the level of happiness nor on Denmarks
Roskilde University, Roskilde, Denmark position as one of the happiest nations in the
world. This do not have as implication that,
for example, there is no pressure on the welfare
Definition state as the expectation seems to be that there
is a continuous wish for more goods and services
Denmark is a Nordic welfare state often from the welfare state. Theoretical understanding
characterized by a universal welfare state with a of happiness will albeit not be the focus of this
high level of equality, including gender equality, entry.
and a high level of taxation and public sector
expenditure, full employment, and access to the Some Empirical Elements for Denmark
labor market for most people. Denmark is also In the following will be described happiness
often portrayed as one of the happiest societies in in Denmark based upon certain parameters,
the world. especially building upon data from the European
Social Survey. Parameters chosen are those often
used when trying to describe and analyze
Description happiness in the literature. The presentation
below is mainly based upon the analysis in
Introduction Greve (2010b) and Greve (2010a).
The core issue to be discussed here is why it can The chosen parameters follow the often used
be possible that Denmark with one of the most parameters when wanting to describe and analyze
D 1552 Denmark, Quality of Life

what factors might have an impact on happiness, increase a healthy life-style, including using
cf. for an overview especially based upon the nudging as understood by Thaler and Sunstein
World Database on Happiness (Veenhoven, (2008), can thus have a double function. Better
2011). The presentation will further be related health can improve the quality of life and the
to the welfare state and the degree of equality average life expectancy and presumably also in
as this also seems to have an impact. Data used the longer run reduces the pressure on welfare
for the analysis are mainly coming from the state spending in the area of health care.
European Social Survey. Increase in the level of education will also
The relation between age and happiness is improve the level of happiness; again, the specific
often described as a U-curve, for example, causal relation is not clear. However, it seems
happy in the young years, less so in the middle, reasonable that people with higher level of
and again in the old age, which also reflect education often have a higher income, can partic-
different ways of being able to interpret the actual ipate in decision making in society, and are also
and lived life. However, age does not seem to less frequent unemployed. This especially due to
have a central role with regard to happiness in that being unemployed can have a negative
Denmark as it has in other countries, albeit impact on the level of happiness, especially if
a slight relation can be found. This slight relation the level of economic security is low. This can
follows the u-shaped pattern. thus be one reason for that a relatively generous
Religious affiliations also to a lesser degree welfare state also helps in promoting peoples
than in other countries have an impact, for happiness by that they are at least guaranteed
example, religious people in Denmark are no some minimum decent type of life-style and
more happier than nonreligious persons. standard.
This can reflect that Denmark normally is not The impact on happiness of security do not
perceived as a very religious country and that only relate to economic security but also security
religion plays a more limited role in everyday in the broader sense, such as the ability to walk
life in Denmark. outside ones home also in the evening and not
In another area where Denmark deviates is being afraid. This shows a clear example of that,
with regard to the case for being married/not for example, more police on the street from
married, although married people are happier. a happiness viewpoint can be important, whereas
Family relations thus on the one hand do not this might not be the case from an economic
seem to make any strong difference. However, perspective as more police on the street not nec-
a problem for the analysis being that many of essarily reduces the crime rate.
those who are single is elderly women who still Those not born in Denmark are less
perceive that throughout their life they have had happy than those born in Denmark. This being
a good life despite having lost their relative. They an indication of that integration of migrants and
are thus presumably more able than a young presumably also descendants has not been
single person to consider the impact of their successful, and this also emphasizes that social
whole life situation and development. inclusion is an important aspect in relation to
In Denmark, as in many other countries, there be happy. The impact of social inclusion,
is a relation between aspects such as perceived for example, being part of the wider society,
health, level of education, and having social con- is also underlined by that having social
tacts. These elements seem all to add to the contacts increases the likelihood of being
degree of happiness. The same is the case for a happy person.
income, as also at least to a certain level is the
case when comparing countries (Easterlin, 2001), What Are the Drivers for Happiness?
cf. also the Easterlin paradox. So having a good Why is it so that a welfare state as Denmark is
health will improve the level of happiness and happier than other countries? One argument
improve the situation for the family. Ways to being that the welfare state with its emphasis on
Denmark, Quality of Life 1553 D
social cohesion, options for social inclusion, and in the Danish welfare state. Denmark is further
a high degree of equality makes more people a country with a long tradition for finding solu-
happy than in other countries. Some, cf., for tions and consensus not only on the labor market
example, Veenhoven (2011), are arguing that but also in the wider society. The implication is
this is not the case. However, based upon data, that most people find that decisions taken are
among other, from European Social Survey, it based upon and taken care of not only the major-
can be argued that the welfare state has a central ity but also the minority.
role (Greve, 2010b). This can be due to that the It might thus further also have an impact that
welfare state in Denmark does ensure a decent Denmark is a relatively coherent society often D
life-style, and fewer than in other countries is depicted by foreigners for its coziness (hygge)
living below the poverty line, and many of those as central for Danes life-style. The combination
below the EU line could in fact relatively easily of a cohesive society where only few people say
be raised above as they are close to the line. that they are often feeling being alone or without
For example, as slight increase in the support to any friends or relatives to talk with has a positive
old-age persons who have an income below the impact on the level of happiness. In recent years,
line could for a small amount be raised above discussion related to the position of immigrants in
the line. Denmark might have a negative impact, cf. also
The Danish welfare state has further have had as shown above that migrants are less happy than
an ambition of a high degree of equality not only ethnic Danes.
in relation to be on the labor market but also with Still, it is often discussed whether the state in
regard to that both men and women should be itself can make decisions with an impact on the
equal, including in their access to the labor level of happiness. The answer seems to be that
market and be able to combine work and family this is possible, although the cause and effect will
life. The Nordic welfare states, including the not always be clear. A society, at least in Europe,
Danish, have also had a clear focus on policies might be ensuring an equal, stable democracy
to reduce the level of unemployment, and there is with a high level of employment, and security
in general, with variations over the years, a low could have a positive impact on the level of
level of unemployment in Denmark compared to happiness. This can also, as argued above, be
other countries. Given that being unemployed the case if the society by individual paternalism
have a negative impact on the degree of happi- nudges people to a healthier life-style. This can
ness, this also helps in explaining why Denmark be done, for example, by making access to
is a happy nation. healthy diets more easy and by making an active
Furthermore, it also has an impact that life-style easier.
Denmark is one of the richest countries in the Policies that ensure stability and high degree
world given that a higher income is related of both economic and personal security and
to a higher level of happiness, albeit when further support and increase the likelihood of
first having reached a high level of income a cohesive society will thus increase the possibil-
will only more limited have an impact. The ity that Denmark will continue to be one of the
implication being that having a high level of happiest societies in the world. The Danish
income also has an impact on Danes being welfare state seems thus continuously be the
a happy nation. story of the bumblebee that can fly.
Danes do also have a high level of trust to each
other and also trust in the political administrative
system. For example, there is no fear of that some Cross-References
might be treated better than others, but that the
administration and political decision making Easterlin Paradox
is fair and equitable, this naturally without all Happiness
being in agreement of the policies and practices Utility
D 1554 Density, Urban

References systems, physical infrastructure and urban form,


social factors, and economic factors (Church-
Easterlin, R. A. (2001). Income and happiness. Towards man, 1999, p. 398). As such, urban density is a
a unified theory. Economic Journal, 111, 465484.
major preoccupation of urban planning. Modern
Greve, B. (Ed.). (2010a). Happiness and social policy in
Europe. Cheltenham: Edward Elgar. zoning systems developed in the early
Greve, B. (2010b). Et lykkeligt land? Hvad skal der til og twentieth century were partly intended to limit
kan velfrdssamfundet bidrage? Kbenhavn: Nyt fra congestion, the shadowing of streets, and other
Samfundsvidenskaberne.
adverse effects of very dense buildings and to
Scharpf, F. W. (2000). The viability of advance welfare
states in the international economy: Vulnerabilities promote lower-density, healthier residential
and options. Journal of European Public Policy, 7(3), environments that provided light and air in new
346368. suburban areas (Fischler, 1998). More recently,
Thaler, R. H., & Sunstein, C. R. (2008). Nudge. Improving
zoning has been critiqued for promoting
decisions about health, wealth and happiness.
New Haven/London: Yale University Press. suburban sprawl (Levine, 2006), a low-density
Veenhoven, R. (2011). World database on happiness. style of urban growth that is expensive to service
Example of a focused Findings Archive. RatSWD, with roads and other urban infrastructure and does
Working Paper no. 169.
not support transit use (Ewing, 2008). Therefore,
many urban regions have developed Smart
Growth policies that have increasing densities as
Density, Urban a central goal in order to reduce land consumption
and improve urban sustainability (Ingram,
Paul Hess Carbonnel, Hong, & Flint, 2009).
Department of Geography and Planning,
University of Toronto, Toronto, ON, Canada Measurement Issues
Urban density is calculated as a measure of
population or urban development divided by a
Synonyms measure of land area. Population per square kilo-
meter, dwelling units per hectare, and the total
Population intensity; Urban compactness; Urban floor space contained in a building divided by the
concentration area of the building parcel (known as a floor area
ratio or floor space index) are common measures
of density, although many others are also in use.
Definition Area calculations may include all land, giving
a measure of gross density, or some categories
Urban density is a concept used in city planning, of land such as undeveloped land may be
urban studies, and related fields to describe the excluded, giving a net measure. The combination
intensity of people, jobs, housing units, total floor of what is measured and the scale of the area
area of buildings, or some other measure of human across which measurement takes place depends
occupation, activity, and development across on policy or research goals.
a defined unit of area. In general terms, urban The density of cities varies tremendously, both
density describes the degree of concentration or within their territories and in comparison to each
compactness of people or development in a city. other. For example, using rough figures for the
gross population density for built-up areas,
Mumbai has a density of almost 40,000 people
Description per square kilometer, while Atlanta has only 600
(Bertaud & Richardson, 2004). Such compari-
The density of cities is relevant to a broad range sons are difficult to make and interpret, however,
of issues related to the quality of urban life as there are many complications to measuring
including environmental quality, transportation density.
Density, Urban 1555 D
One issue is that a static measure is used to measurement will be. Even definitions of what
capture a dynamic phenomenon. Population constitutes gross density vary from place to place.
density, for example, is typically measured at
peoples place of residence, even though people Research, Policy, and Quality of Life
are mobile and population densities vary through- Despite these complexities, urban density is
out a city over time as people move around for widely seen as an important measure of the struc-
work or for other purposes. Likewise, relation- ture and character of cities. Modern models of
ships between different density measures are not urban density were developed in the 1960s
stable, making conversions difficult. A measure describing the rate at which population densities D
of dwelling units per acre, for example, cannot be decline from a city center as a measure of a citys
translated into a population density without also internal structure and suburbanization (Smith,
knowing household size, but these relationships 1997). Originally based on gravity functions,
change from place to place and over time. these models have been complicated over time to
A second set of issues has to do with how area describe non-monotonic density gradients (Hess,
boundaries are defined for calculating densities. Sorensen, & Parizeau, 2007). Such research on
If boundaries are changed, moving a patch of density gradients is not typically oriented toward
high-density development from one zone to policy development (McDonald, 1989).
another, the measured density of each will In contrast, much research on urban density is
change, even though the underlying data is the closely linked to questions of policy and concerns
same (Openshaw & Taylor, 1981). At the metro- over living conditions. Early twentieth-century
politan scale, edge effects come in to play reformers worried that crowding and the lack of
because different boundary definitions capture privacy associated with high-density develop-
different amounts of undeveloped land, thereby ment negatively affected moral development and
affecting measured densities. family life (Dennis, 1994). These concerns con-
Similarly, because density measures are an tinued into the 1960s and 1970s when researchers
average, they obscure important internal varia- examined the social and psychological impacts
tion. For example, some urban regions may of density including perceptions of crowding
have very dense centers, with densities dropping (Fischer, Baldassare, & Ofshe, 1975). In the
rapidly toward the periphery of the area (known 1980s and 1990s, researchers turned to ecological
as a steep density gradient), while others have a issues, with rising concerns over the impacts of
more even distribution. These differences are low-density development (Churchman, 1999).
important to how cities function and how people In the 1990s, for example, urban planners
experience urban environments. Using the US sought to understand whether urban form could
census data, for example, the Los Angeles urban- be used to reduce automobile use, fuel consump-
ized area has a higher population density than tion, and air pollution. Density was a key variable
does the New York urbanized area, even though in these studies, most of which showed modest
centralized New York is usually thought of as declines in automobile use with increases in den-
very dense compared to decentralized Los sity (Badoe & Miller, 2000). This work has con-
Angeles. tinued in the 2000s with a public health focus. In
Finally, there is little consistency in what English-speaking countries particularly, low
categories of use are included or excluded in net levels of physical activity and rapidly rising
measures of density. Forsyth (2003), for example, rates of obesity have led to renewed efforts to
identifies at least six ways of defining net understand relationships between the form of cit-
residential density. Some net measures only ies and behavior. One focus of this work is to
include land in residential use, others include encourage active travel, particularly walking,
local park and school sites, and some add the to build more physical activity in to peoples
area of local streets. Generally, the more land daily travel routines. Density, along with network
that is netted out, the higher the resulting density connectivity and mixed land use, is seen as a key to
D 1556 Density, Urban

bringing activities closer together, reducing travel are sought out by many people (Davis, Nelson, &
distances, and encouraging walking (Handy, Dueker, 1994), and development associated with
Boarnet, Ewing, & Killingsworth, 2002). increasing density is often associated with local
These efforts to understand the behavioral traffic congestion and can threaten or directly
impacts of urban density are complicated by destroy the character of existing places. It is,
many methodological issues. It is difficult, for therefore, often opposed by existing residents.
example, to separate the direct effects of density Likewise, for those that prefer suburban and
from other characteristics of urban environments rural settings, dense urban environments are
that are important to behavioral choices. Very often associated with crowding, noise, dirt,
high-density places, for example, also tend to pollution, crime, and other types of social
have good sidewalk systems, high levels insecurity (Robin et al., 2007).
of transit service, limited parking, and challenging For other demographic groups, however,
conditions for driving. Without the right synthesis urban neighborhoods with densities that support
of multiple factors, behavioral change is unlikely. a variety of services, stores, and an active street
Studies have also identified self-selection, as life are considered desirable, and some cities in
a significant issue, whereby some people seek to North America and Europe are experiencing
live in neighborhoods that support their moderate increases in their central city
preexisting preferences for walking, using transit, populations (Haase et al., 2010). Such
or driving (Schwanen & Mokhtarian, 2005). Such reurbanization is also connected to inner-city
complexities of real urban places are difficult to gentrification, with the displacement of lower
statistically disentangle, and research efforts are income populations, often by new professionals
not conclusive. seeking out and upgrading older residential areas
Still, many current policy initiatives assume (Slater, Curran, & Lees, 2004). These changes are
that increasing urban densities will help achieve linked to structural economic reorganization and
multiple planning goals including reducing demographic change such as declining birthrates
energy consumption by reducing auto use and and smaller households. Changing urban density
through the use of compact, efficient building and its relationship to quality of life is, therefore,
types; preserving agricultural land, open space, closely connected to fundamental social and eco-
and ecologically important areas; and increasing nomic change.
the liveability of cities by creating walkable,
vibrant communities (Churchman, 1999). Urban
growth boundaries, urban greenbelts, density and
References
infill targets, and transit investment to stimulate
concentrated development are all examples of Anthony, J. (2004). Do state growth management regula-
policy tools intended to increase urban densities. tions reduce sprawl? Urban Affairs Review, 39(3),
The effectiveness of these efforts is mixed 376397.
(Anthony, 2004; Ingram et al., 2009). Some juris- Badoe, D. A., & Miller, E. J. (2000). Transportation-land-
use interaction: empirical findings in North America,
dictions such as Portland, Oregon, and Vancou- and their implications for modeling. Transportation
ver, British Columbia, are well known for their Research Part D: Transport and Environment, 5(4),
Smart Growth regimes, but the density of most 235263.
urban regions in North America and Western Bertaud, A., & Richardson, H. W. (2004). Transit and
density: Atlanta, the United States and Western
Europe has been stable or declining over time Europe. In H. W. Richardson & C. Bae (Eds.), Urban
(Sokoo, 2007; Schneider & Woodcock, 2008). sprawl in Western Europe and the United States.
Smart Growth goals can also be contentious Aldershot/Hants/Burlington, VT: Ashgate.
(Bourne, 1996; Gordon & Richardson, 1997; Bourne, L. (1996). Reurbanization, uneven urban devel-
opment, and the debate on new urban forms. Urban
Neuman, 2005). Low-density, auto-based subur- Geography, 17(8), 690713.
ban and exurban residential environments with Churchman, A. (1999). Disentangling the concept of den-
ample open spaces are considered desirable and sity. Journal of Planning Literature, 13(4), 389411.
Dental Indicators, Health and Food Diversity in Spain 1557 D
Davis, J. S., Nelson A. C., & Dueker, K. J. (1994). Robin, M., Matheau-Police, A., & Couty, C. (2007).
The new burbs: The exurbs and their implications for Development of a scale of perceived environmental
planning policy. Journal of the American Planning annoyances in urban settings. Journal of Environmen-
Association, 60(1), 4559. tal Psychology, 27(1), 5568.
Dennis, R. (1994). Interpreting the apartment Schneider, A., & Woodcock, C. E. (2008). Compact, dis-
house: Modernity and metropolitanism in persed, fragmented, extensive? A comparison of urban
Toronto, 19001930. Journal of Historical Geogra- growth in twenty-five global cities using remotely
phy, 20(3). sensed data, pattern metrics and census information.
Ewing, R. (2008). Characteristics, causes, and effects of Urban Studies, 45(3), 659692.
sprawl: A literature review. In J. M. Marzluff (Ed.), Schwanen, T., & Mokhtarian, P. L. (2005). What affects
Urban ecology: An international perspective on the commute mode choice: Neighborhood physical struc- D
interaction between humans and nature. New York: ture or preferences toward neighborhoods? Journal of
Springer. Transport Geography, 13, 8399.
Fischer, C. S., Baldassare, M., & Ofshe, R. J. (1975). Slater, T., Curran, W., & Lees, L. (2004). Gentrification
Crowding studies and urban life: A critical review. research: New directions and critical scholarship.
Journal of the American Planning Association, 41(6), Environment and Planning A, 36, 11411150.
406418. Smith, B. E. (1997). A review of monocentric urban density
Fischler, R. (1998). The metropolitan dimension of early analysis. Journal of Planning Literature, 12(2), 115135.
zoning: Revisiting the 1916 New York City ordinance. Sukkoo, K. (2007). Changes in the nature of urban spatial
Journal of the American Planning Association, 64(2), structure in the United States, 18902000. Journal of
170188. Regional Science, 47(2), 273287.
Forsyth, A. (2003). Measuring density: Working defini-
tions for residential density and building intensity.
Minneapolis, MN: Design Center for American
Urban Landscape.
Gordon, P., & Richardson, H. (1997). Are compact cities
a desirable planning goal. Journal of the American Dental Indicators, Health and Food
Planning Association, 63(1), 95106. Diversity in Spain
Haase, A., Kabisch, S., Steinfuhrer, A., Bouzarovski, S.,
Hall, R., & Ogden, P. (2010). Emergent spaces of Belen Lopez1, Eva Garcia-Vazquez2 and
reurbanisation: Exploring the demographic dimension
of inner-city residential change in a European setting. Eduardo Dopico3
1
Population, Space and Place, 16, 443463. Department of Biology of Organisms and
Handy, S. L., Boarnet, M. G., Ewing, R., & Systems, University of Oviedo, Oviedo, Spain
Killingsworth, R. E. (2002). How the built environ- 2
Department of Functional Biology, University
ment affects physical activity: Views from urban plan-
ning. American Journal of Preventive Medicine, 23(2), of Oviedo, Oviedo, Spain
3
6473. Department of Education Sciences, University
Hess, P., Sorensen, A., & Parizeau, K. (2007). Urban density of Oviedo, Oviedo, Asturias, Spain
in the greater golden horseshoe. Toronto: Cities Centre,
University of Toronto, Research Paper. http://www.
citiescentre.utoronto.ca/publications/Research_Papers.
htm. Accessed June 2011. Definition
Ingram, G. K., Carbonnel, A., Hong, Y., & Flint, A.
(2009). Smart growth policies: An evaluation of pro- The type and frequency of pathological conditions
grams and outcomes. Cambridge, MA: Lincoln
Institute of Land Policy. of teeth were compared between the Medieval
Levine, J. (2006). Zoned out: Regulation, markets, and Age (eleventh to fifteenth centuries) and the Mod-
choices in transportation and metropolitan land-use. ern era (sixteenth to eighteenth centuries), analyz-
Washington, DC: Resources for the Future. ing skeletal remains from ancient cemeteries of
McDonald, J. (1989). Econometric studies of urban
population density: A survey. Journal of Urban north Iberia (Spain). The aim of the investigation
Economics, 26, 361385. was to assess the health impact of the introduction
Neuman, M. (2005). The compact city fallacy. Journal of of new food resources into the Spanish diet in
Planning Education and Research, 25(1), 1126. the early Modern Age. The results suggest a
Openshaw, S., & Taylor, P. (1981). The modifiable areal
unit problem. In N. Wrigley & R. Bennett (Eds.), positive influence of increased diversity of nutri-
Quantitative geography: A British view (pp. 6069). tional resources, mainly due to intercontinental
London: Routledge and Kegan Paul. (America-Europe) trade.
D 1558 Dental Indicators, Health and Food Diversity in Spain

Description Our hypothesis was that in the Iberian Penin-


sula, where diet changes were strongly influenced
Introduction by intercontinental trade with America, the nutri-
Dental remains are a valuable source of informa- tional status would have been improved according
tion about health and nutritional status of to higher diversity of food resources. We expected
ancient populations (Armelagos, Van Gerven, a decreased prevalence of enamel hypoplasia,
Martin, & Huss-Ashmore, 1984; Larsen et al., a marker of population nutrition status. We have
2002). They are also useful to evaluate how also recorded other pathologies to illustrate
changes in life conditions in prehistoric and possible changes associated with habits and
historical transitions have affected the inhabitants hygiene in seven necropoles between the eleventh
of a particular territory. and the eighteenth centuries.
The transition from Middle (Medieval) to Mod- More details of this study can be found in
ern Age was an important key point for human Lopez, Garca-Vazquez, and Dopico (2011).
populations, especially in countries as Spain which
suffered important sociopolitical and economical Necropoles
changes between these two periods. The Modern The dental material analyzed in this study was
Age started in Spain with the Catholic Monarchs obtained from four Middle Age (eleventh to early
(late fifteenth and early sixteenth centuries) fifteenth) and three Modern Age late (fifteenth
following two crucial events: the reunification of to eighteenth) centuries ancient cemeteries,
the Spanish territory under one single crown with located in the north of the Iberian Peninsula
the conquest of South Iberian Emirate of Granada (Fig. 1, Table 1), a region characterized by a
in 1492 and the travels of Columbus to America continental temperate climate. They were rural
(the first was also in 1492). From the point of view cemeteries of small dispersed settlements or
of nutrition, the transition from the Medieval to the small villages (Table 1).
Modern Age was accentuated in the Iberian Pen-
insula due to the introduction of new food Human Samples
resources, like potatoes, maize, tomatoes, peppers, We have focused our study in individuals of at
and different varieties of beans, tea, cocoa, coffee, least 20 years of age at death because their sex
and other plants from the American continent. determination is very reliable. Skeletal remains
Introductions began in the sixteenth century (e.g., of individuals under 20 years, of problematic sex
potatoes arrived to Spain to 1550) and became assignment (Cardoso & Saunders, 2008), were
increasingly popular. In fact, American legumes, not considered for this study. The individuals
potatoes, and corn have been recognized as the considered were classified as adults (under
main food resources that enabled European demo- 40 years) or mature (40 years and older).
graphic expansion in the seventeenth century. The biological sex determination for all
There is not much published information individuals aged over 20 years was based on
about the health of rural communities, the vast morphological features of the pelvis and skull
majority of the Spanish population at that time, (Buikstra & Ubelaker, 1994). Age at death was
but it can be supposed that increased diet diver- determined based on the main macroscopic
sity was associated with significant changes in changes of the pelvis.
nutritional status at population level in Iberia
after the sixteenth century. Here we employ den- Results
tal indicators for assessing the effects of the diet Dental Wear
changes occurred in Iberia after the transition Dental wear is the gradual and regular loss of
from the Middle to the Modern Age on nutritional tooth substance as a result of natural mastication
and dental health. Some are indicators of presence of hard aliments in the diet, chemical
nutritional status, and others are a consequence abrasion, and others (Pindborg, 1970). The meth-
of habits. odology most widely employed for measuring
50 Km

LEN Guardo
San Miguel de Escaiada
Saldana

PALENCIA
ZAMORA
Santo Tom
Dental Indicators, Health and Food Diversity in Spain

o Monasterio BURGOS
ur San Benito
de Prado
Do el Real
VALLADOLID
Muriel de zapardiel

SORIA
SALAMANCA
SEGOVIA

VILA

Madrid

Dental Indicators, Health and Food Diversity in Spain, Fig. 1 Location of the antique cemeteries analyzed in the Iberian Peninsula
1559
D

D
D 1560 Dental Indicators, Health and Food Diversity in Spain

Dental Indicators, Health and Food Diversity in Spain, Table 1 Archaeological site (Spanish province) of the
human remains analyzed. Century/age of the remains. Economic predominant activity of the population. Type of rural
settlement as dispersed (dispersed housing) or village (small village)
Site (Province) Century Economy Settlement
La Morterona, Saldana (Palencia) XI Agriculture Dispersed
San Benito el Real (Valladolid) XIVXV Agriculture Village
Muriel de Zapardiel (Valladolid) XIIXIII Agriculture Dispersed
Santo Tome (Zamora) XIIXV Agriculture and commerce Village
Guardo (Palencia) XVIXVIII Agriculture and commerce Dispersed
San Miguel de Escalada (Leon) XIVXVI Agriculture Dispersed
Monasterio de Prado (Valladolid) XIIXVIII Agriculture and commerce Village

Dental Indicators, Health Dental wear Medieval Modern


and Food Diversity in
Spain, Light 33 (38.0 %) 69 (47 %)
Table 2 Percentage, Moderate 38 (43.6 %) 51 (35 %)
number, and dental diseases Intense 16 (18.4 %) 26 (18 %)
in the studied samples Dental calculus Medieval Modern
0 25 (23.4 %) 163 (49.4 %)
1 50 (46.7 %) 95 (28.8 %)
2 16 (14.9 %) 37 (11.2 %)
34 16 (14.9 %) 35 (10.6 %)
Periodontitis Medieval Modern
Males Females Males Females
Present 13 (30.2 %) 7 (21.2 %) 45 (34.9 %) 30 (21.9 %)
Absent 30 (69.8 %) 26 (78.8 %) 84 (65.1 %) 107 (78.1 %)
Periapical abscesses Medieval Modern
Males Females Males Females
Maxillar 2/239 (0.8 %) 2/110 (1.8 %) 10/128 (7.8 %) 5/248 (2.03 %)
Mandible 3/91 (3.3 %) 2/246 (0.8 %) 9/310 (2.9 %)
Enamel hypoplasia Medieval Modern
Males Females Males Females
Present 17 (44.7 %) 10 (30.3 %) 20 (27.8 %) 9 (16.1 %)
Absent 21 (55.3 %) 23 (69.7 %) 52 (72.2 %) 47 (83.9 %)

it in northwest European sites follows Brothwell or lightly affected by attrition was 38 % and 47 %
(1963). The degree of dental wear is classed for Medieval and Modern Age individuals,
into 12 categories; for simplification, in this study respectively (Table 2). Around 44 % and 35 %
these categories have been reduced to three: light pieces were moderately affected in the Medieval
(1, 2, 2+, 3 and 3+), moderate (4 and 4+), and severe and Modern Age samples, respectively, and the
(5, 5+, 5++, 6 and 7). The study was focused on the rest (18 % in both historic periods) exhibited
first molar in each bone (maxilla and mandible). severe degree of dental wear. The difference
A selective pattern of dental wear by location between the two historic periods was not statisti-
(maxilla or mandible) or sex was not revealed cally significant (Chi-square of 1.759; 2 d.f.;
in this study. The proportion of unaffected teeth p-value, 0.415 N.S.) (Table 3).
Dental Indicators, Health and Food Diversity in Spain 1561 D
Dental Indicators, Health and Food Diversity in Spain, Table 3 Chi-square (with Yates correction) and p-value
for comparisons between samples
Dental diseases Chi-square (with Yates correction) p-value
Dental wear medieval vs. modern 1.759 0.415 NS
Dental calculus medieval vs. modern 21.046 0.000103***
Periodontitis Medieval males vs. medieval females 0.387 0.534 NS
Modern males vs. modern females 4.911 0.027*
Medieval males vs. modern males 0.139 0.709 NS
Medieval females vs. modern females 0.007 0.9317 NS D
Periapical abscesses Medieval males vs. medieval females 0.948 0.330 NS
Modern males vs. modern females 0.172 0.678 NS
Medieval females vs. modern females 0.001 0.987 NS
Medieval males vs. modern males 2.563 0.1094 NS
Enamel hypoplasia Medieval males vs. medieval females 1.009 0.315 NS
Modern males vs. modern females 1.841 0.175 NS
Medieval vs. modern 4.603 0.0318*
Significance: NS not significant
*p < 0.05; ***p < 0.001

Dental Indicators, Health


and Food Diversity in
Spain, Fig. 2 Photograph:
mandible with periodontitis
(arrow up marks the
alveolar bone erosion) and
dental calculus (down
arrow)

Dental Calculus Differences in calculus did not exist between


Dental calculus is calcareous salt deposited teeth located in maxillae and those located in
on the teeth surface (Fig. 2), generally in the mandibles; thus, they were gathered together per
margin of the gingiva, produced by continuous individual. Differences between sexes were not
presence of dental plaque and poor oral hygiene observed. A significant change was detected
(Hillson, 1996). This has been directly observed between Medieval and Modern Age incidence
under white light and quantitatively classed of calculus (Table 2), being higher in the
in four degrees, from 0 (calculus absent) to Medieval Age (23.4 % calculus-free teeth versus
four (abnormally abundant calcareous deposits), 49.4 % in the Modern Age; the Chi-square test
following Brothwell (1987). comparing the distribution of calculus between
D 1562 Dental Indicators, Health and Food Diversity in Spain

Dental Indicators, Health


and Food Diversity in
Spain, Fig. 3 Periapical
abscess in a female
mandible from Muriel de
Zapardiel (Valladolid,
Spain)

the two historic periods (Table 3) gives a value


of 21.05 with 3 degrees of freedom, p-value
< 0.0001).

Periodontitis and Periapical abscesses


The periodontitis, a major cause of teeth loss, is
an advanced lesion due to an infectious disease
associated to the accumulation of plaque with
germs under the gingiva (Hillson, 2005). In the
skeletal remains, periodontitis it is characterized
by horizontal reduction of the alveolar bone
(bone loss 3 mm, Figs. 2, 3, 4). Statistical
differences for these dental diseases were not
found between maxilla and mandibles within
individual, neither between adult and mature
individuals within sex; thus, the results were
pooled together for these groups. Periodontitis
affected 2035 % individuals per sample group
(Table 2, Fig. 5) and did not increase significantly
for males or females from the Medieval to the
Modern Age (Table 3). In the Modern Age, Dental Indicators, Health and Food Diversity in
Spain, Fig. 4 Photograph: tooth with enamel hypoplasia
females exhibited lower incidence of this disease
Dental Indicators, Health and Food Diversity in Spain 1563 D
Dental Indicators, Health
Medieval Modern
and Food Diversity in
Spain, Fig. 5 Prevalence

FEMALES
of periodontitis and Abscesses
abscesses in the antique
populations analyzed, per
sex and historic period Periodontitis

Abscesses
MALES D
Periodontitis

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

than males (35 % vs. 22 %, respectively, (King et al., 2005) and is described as horizontal
Chi-square 4.911 with p-value 0.0267). rows of pits or grooves that occur on tooth sur-
Periapical abscesses also result from infection faces (Goodman & Rose, 1991). We have quan-
and further necrosis of the pulp, generally devel- tified LEH as prevalence of the lesion (Fig. 4).
oped from periapical granuloma by accumulation Statistical differences were not found between
of pus which later drains through a channel known adult and mature individuals within sex; thus, the
as fistula. The fistula breaks the bone (maxilla or results were pooled together for age groups.
mandible) and can be recognized in the skeletons Significant differences between sexes did not
by a clear mark (Fig. 3). Poor hygiene is generally occur for LEH in the Medieval or in the Modern
the main cause of initial infections. Age (Chi-square 1.009 with p-value 0.315 and
They were less frequent (0.87.8 % for medi- 1.841 with p-value 0.1749, respectively, not
eval and modern males respectively), and their significant) (Table 3). Similarly, significant
low frequency remained relatively constant differences for occurrence of LEH between
across sexes and historic periods, not exhibiting maxillae and mandibles within historical period
significant differences between sample groups in and sex were not found (p > 0.05 in all cases).
any case (Table 3). The prevalence of this signal of nutritional stress
(Table 3) decreased significantly in the Modern
Linear Enamel Hypoplasia (LEH) Age (22.6 % in average) with respect to the
In contrast, enamel hypoplasia is a defect of enamel Medieval period (mean 38 %; Chi-square of
development originated by illnesses or severe 4.603 with 1 d.f., p-value 0.0319).
malnutrition during the infancy and early childhood
(Goodman & Rose, 1991; King, Humphrey, & Discussion
Hillson, 2005). Temporary disruption of the growth In this entry we have revealed a significant
of the ameloblasts, the cells that form enamel, leads decrease of a signal of nutritional stress, the linear
to decreased secretion of enamel matrix in localized enamel hypoplasia, in north Iberian rural com-
sections of the tooth surface. As a result, less enamel munities after the fifteenth century. This likely
matrix is available for mineralization at those sites reflects an improvement of nutritional health in
once the secretory phase is completed, resulting in a north Iberia after the transition Medieval to
marked decrease in enamel thickness (Aufderheide, Modern Age, which could be attributed to an
Rodriguez-Martin, & Langsjoen, 1998). increased diversity in food resources by intense
This lesion is considered a signal of intercontinental trade that started in the sixteenth
nutritional stress during the teeth formation century. Among the varied resources imported to
D 1564 Dental Indicators, Health and Food Diversity in Spain

the Iberian Peninsula from America, beans pro- nutritional health. These results also emphasize
vided high-quality proteins, maize and potatoes the importance of cultural and social interchanges
high caloric supply, and tomatoes and peppers between geographical regions.
enriched vitamin intake. They surely increased This study, as many others, has been carried
Iberian diet diversity at a population level out on adults (King, et al., 2005; Lukacs &
because they were progressively introduced in Largaespada, 2006); however, the exclusion of
agriculture without substituting local native subadults may bias the interpretation of data.
resources. The results support our initial hypoth- Therefore, the results for enamel hypoplasia
esis and indirectly confirm, at a population level, should be interpreted carefully.
the importance of diet diversity on nutrition.
The dental problem that increased signifi-
cantly in our Modern Age sample was the References
prevalence of calculus, an indicator of poor oral
Armelagos, G. J., Van Gerven, D. P., Martin, D. L., & Huss-
hygiene. Increased prevalence of dental problems
Ashmore, R. (1984). Effects of nutritional change on the
after the transition from the Middle to the Modern skeletal biology of northeast African (Sudanese Nubian)
Age has been generally explained by an increase populations. In J. D. Clark & S. A. Brandt (Eds.), From
of cariogenic carbohydrates. The cariogenic hunters to farmers: The causes and consequences of
food production in Africa (pp. 132146). Los Angeles:
consequences of a diet rich in carbohydrates and
University of California Press.
soft food would be compensated by hygiene (den- Aufderheide, A. C., Rodriguez-Martin, C., &
tal cleaning), but those habits were not usual in Langsjoen, O. (1998). The Cambridge encyclopedia
the Modern Age, when dental care was limited to of human paleopathology. Cambridge, UK/New
York: Cambridge University Press.
herbal remedies, bloodletting, and teeth extrac-
Belcastro, G., Rastelli, E., Mariotti, V., Consiglio, C.,
tion and preventive care was not considered Facchini, F., & Bonfiglioli, B. (2007). Continuity or
(Del Valle & Romero, 2006; Hobkirk, 2005). discontinuity of the life-style in central Italy during the
The results obtained for periodontitis seem to Roman imperial age-early Middle Ages transition:
Diet, health, and behavior. American Journal of Phys-
be sex-biased, males exhibiting higher incidence
ical Anthropology, 132(3), 381394. doi: 10.1002/
than females. This has been also reported for ajpa.20530.
other European regions, generally explained by Brothwell, D. R. (1963). Digging up bones; the excava-
sex-biased access to nutritional resources. Diets tion, treatment and study of human skeletal remains.
London: British Museum (Natural History).
rich in carbohydrates were generally a privilege
Brothwell, D. R. (1987). Desenterrando huesos. La
of young men, while women suffered higher excavacion, tratamiento y estudio de restos del
levels of nutritional and other stress (King et al., esqueleto humano. Mexico City, Mexico: Fondo de
2005). As the indicator of nutritional stress LEH Cultura Economica.
Buikstra, J. E., & Ubelaker, D. H. (1994). Standards for
did not reveal sex-biased differences, an alterna-
data collection from human skeletal remains: Proceed-
tive explanation for differences in periodontitis ings of a seminar at the field museum of natural history.
could be a more careful hygiene in women than in Fayetteville, AR: Arkansas Archeological Survey.
men: white teeth were generally appreciated as Cardoso, H. F. V., & Saunders, S. R. (2008). Two arch
criteria of the ilium for sex determination of immature
a sign of feminine beauty at the epoch, as widely
skeletal remains: A test of their accuracy and an
reported in classic literature of all countries. assessment of intra- and inter-observer error. Forensic
Socioeconomic and cultural transformations Science International, 178(1), 2429. doi: 10.1016/j.
are not always translated into true discontinuity forsciint.2008.01.012.
Del Valle, A., & Romero, M. (2006). Cervantes: Father of
of populations from the point of view of alimenta-
Don Quixote and son of a dentist. Journal of Dental
tion and health status (Belcastro, Rastelli, Mariotti, Research, 85(8), 701704.
Consiglio, Facchini, & Bonfiglioli, 2007). How- Goodman, A. H., & Rose, J. C. (1991). Dental enamel
ever, in the present case the rural populations here hypoplasias as indicators of nutritional status. In M. A.
Kelley & C. S. Larsen (Eds.), Advances in dental
studied seemed to benefit from them, as introduc-
anthropology. New York: Wiley-Liss.
tion of new food resources in a territory was asso- Hillson, S. (1996). Dental anthropology. Cambridge, UK/
ciated with a corresponding improvement in New York: Cambridge University Press.
Deontology 1565 D
Hillson, S. (2005). Teeth (2nd ed.). New York: Cambridge options an agent has in any given situation can be
University Press. ranked in terms of how good their consequences
Hobkirk, J. A. (2005). Prosthodontics: A past with
a future? Journal of the Canadian Dental Association, are overall and (2) what the agent ought to do is
71(5), 326. always a function of how her options are ordered
King, T., Humphrey, L. T., & Hillson, S. (2005). Linear in the evaluative rankings. The simplest forms of
enamel hypoplasias as indicators of systemic physio- consequentialism hold that, in every situation,
logical stress: Evidence from two known age-at-death
and sex populations from postmedieval London. one ought to bring about as much of general
American Journal of Physical Anthropology, 128(3), well-being to the world as possible. Philosophers
547559. who regard their views as deontological deny that D
Larsen, C. S., Crosby, A. W., Griffin, M. C., Hutchinson, (1) and (2) are always the case. However, what
D. L., Ruff, C. B., Russell, K. F., et al. (2002).
A biohistory of health and behavior in the Georgia this denial actually consists of is less clear, and
bight. 1. The agricultural transition and the impact of therefore, it is more controversial what accepting
europeancontact. In J. C. Rose & R. H. Steckel (Eds.), a deontological view consists of.
The backbone of history: Health and nutrition in the
western hemisphere (pp. 406439). Cambridge, UK:
Cambridge University Press.
Lopez, B., Garca-Vazquez, E., & Dopico, E. (2011). Description
Dental indicators suggest health improvement associ-
ated with increased food diversity in modern age Perhaps the most traditional understanding of
Spain. Human Ecology, 39, 527534. doi:10.1007/
s10745-011-9406-y. deontology is that according to deontological
Lukacs, J. R., & Largaespada, L. L. (2006). Explaining sex views there are some act types such as rape,
differences in dental caries prevalence: Saliva, hor- murder, and theft that are always wrong (Bennett,
mones, and life-history etiologies. American 2010, p. 33). Such views clearly deny (1) and
Journal of Human Biology, 18(4), 540555.
doi:10.1002/ajhb.20530. (2) in the previous definition because some
Pindborg, J. J. (1970). Pathology of the dental hard instances of the previous act types can have the
tissues. Copenhagen, Denmark: Munksgaard. best consequences in certain rare circumstances.
Therefore, according to consequentialists, one
ought to act in these ways at least in some cases.
Deontology In contrast, according to the traditional deonto-
logical views, these types of act are not made
Jussi Suikkanen wrong by their consequences but rather by their
Philosophy Department, University of intrinsic nature. These acts, whenever they are
Birmingham, Birmingham, UK done, are wrong in themselves.
The problem with this understanding of
deontology is that it rules out certain interesting
Synonyms contemporary non-consequentialist views as
deontological theories. The so-called particular-
Duty-based ethics; Non-consequentialism ists believe that there are no act types that are
intrinsically wrong (Dancy, 2004). According to
them, whatever act type we take, some acts of that
Definition type are right and others are wrong depending on
the circumstances. Yet, these ethicists too deny
The notion of deontology in its widest sense refers that one ought to always do what has the best
to a whole family of deontological ethical theo- consequences, so in this sense many particularists
ries which are mainly united by their rejection of too hold a deontological view.
consequentialism (see Alexander & Moore, 2007; We must then reject the traditional understand-
Darwall, 2003; Davis, 1991; McNaughton & ing of deontology. More recently, philosophers
Rawling, 2006). Consequentialist ethical theories have attempted to explain the distinction between
have two main features. They hold (1) that the consequentialist and deontological theories in
D 1566 Deontology

two ways. The first, more theoretical way of cases with the agent-neutral forms of consequen-
drawing the distinction was famously introduced tialism about what agents ought to do (Darwall,
by John Rawls (Rawls, 1971, pp. 2233). 2003, pp. 12; McNaughton & Rawling, 2006,
According to Rawls, the distinction is based on p. 424). More simply put, if one thinks that one
a difference in the structure of the theories and ought not to always bring about the best conse-
more specifically on the different order in which quences, impartially evaluated, then one accepts
the central terms of these views are explained. a deontological ethical view.
Consequentialist views begin by constructing an In this framework, three kinds of exceptions
independent notion of the good and then specify to agent-neutral consequentialism have been
which acts are right in terms of that notion. In discussed most thoroughly. Firstly, many
contrast, according to Rawls, deontological views deontologists have defended what are called
hold that the rightness of acts is independent of moral constraints or restrictions (Nozick, 1974,
what is good. These views hold that either there is pp. 2830). This is to say that, at least on some
no connection between goodness and rightness or occasions, we should not harm, kill innocents, or
they attempt to define goodness in terms of lie even if doing so would have the best impartial
rightness. consequences. That is, for example, we are not
This way of drawing the distinction is appeal- allowed to kill an innocent person to prevent
ing, but some worries remain about whether someone else from killing two other innocents.
Rawls account draws the distinction at the right Agent-centered defenses of deontological
place. For example, some clearly consequential- constraints attempt to justify them by emphasiz-
ist views first claim that the best state of affairs is ing how we are responsible as individuals only
such that an impartial spectator ought to prefer it for our own agency. We are only required to see
(Portmore, 2011). They then claim that we, the to it that we do not kill even if this allows others
ordinary situated moral agents, ought to always to kill (Nagel, 1986, ch. 9). In contrast, patient-
do whatever brings about the best state affairs. centered defenses of the constraints attempt to
On Rawls view, such views really ought to argue that it is something about the dignity of
be classified as deontological views because the innocent persons who could potentially
here the deontological notion of ought is prior to become victims that makes it forbidden for us to
goodness in the order of explanation. However, kill them even in the cases in which other lives
the defenders of such views see themselves more could be saved by doing so (Brook, 1991).
as consequentialists than as deontologists. Other types of deontological exceptions to the
The second, more recent way of drawing the requirements of the agent-neutral forms of
distinction is a more practical one. It begins from consequentialism include agent-centered preroga-
agent-neutral versions of consequentialism. These tives or options as they are called (Scheffler, 1982,
theories rank every agents options in terms of how ch. 2) and duties grounded on special relationships
good their consequences are from some impartial (Brink, 2001; Hurka, 1997). The critics of agent-
perspective that does not make a reference to the neutral consequentialism often point out that such
agent whose options are being evaluated. Views forms of consequentialism are objectionably
that rank agents options in terms of the amount of demanding. These views demand that, in every
general well-being, for example, are like this. case, we bring about as much good to the world
Furthermore, these consequentialist views then as possible. In most cases, we can do so by helping
determine what an agent ought to do in terms of the most suffering people of the world instead of
the impartial ranking of her alternatives. In this pursuing our own projects. Some deontologists
way, these agent-neutral forms of consequential- believe that, even if it is right to help the most
ism create the same moral demands for everyone. suffering, it should also be permissible for us to
According to the second contemporary under- pursue our own projects. In this way, they believe
standing of deontology, a view is then deontolog- that, in order to protect our personal integrity,
ical if and only if it disagrees in some concrete morality must leave us more freedom to choose
Deontology 1567 D
from a larger set of options which will not always There are at least three other important
have the best consequences. and active debates about deontology worth
In a similar vein, some deontologists want to bringing up. Firstly, there has been much debate
argue that not only are we allowed to pursue about how the exceptions to consequentialist
our personal projects but also, on some occasions, views could be justified on the basis of alternative
we are required to do so. These philosophers ethical theories. This has led to the development
believe that our special commitments to our loved of sophisticated contemporary versions of
ones, friends, and family ground obligations to virtue ethics, Kantian ethics, contractualism,
sometimes do acts that will not have the best impar- particularism, and so on (see Dancy, 2004; D
tial consequences. For example, as a parent, one Hursthouse, 1999; Korsgaard, 1986; Scanlon,
has an obligation to help ones own child 1998). The defenders of these views have tried
with homework even if the neighbors child might to use the resources of these views to justify, for
benefit more from ones guidance. example, constraints and options.
The resulting view then is that if one is com- Secondly, there has been a lot of work done
mitted to constraints, options, or duties of special recently on middle-level non-consequentialist
relationships, then one accepts a deontological the- ethical principles. Such principles have included
ory. The problem with this way of drawing the the doctrine of double effect and the doctrine of
distinction is that it places some consequentialist doing and allowing (see Foot, 1967; Kamm, 1992;
views in the category of deontological views. Quinn, 1993; Thomson, 1986). Roughly, the
Some consequentialists believe that states of former principle claims that it is permissible to
affairs can be evaluated also in terms of how sometimes cause some harm as a merely foreseen
good they are relative to a given agent (Dreier, side effect even if it would not have been permis-
1993). They then hold that agent ought to do, for sible to bring about that harm intentionally as a
example, what brings about the best state of affairs means to some good outcome. The latter principle,
relative to her. Theories of this type will generate in contrast, holds that harming people is worse
constraints, options, and duties based on special more impermissible than merely allowing the
relationships, and thus, they are in a direct conflict same harm to happen to people. If merely the
with the agent-neutral consequentialist views. So, consequences of ones actions and inactions
if the distinction between consequentialist and mattered, such ethical distinctions could not be
deontological views is drawn in this way, it will drawn. Much of the literature has been focusing
not be a mutually exclusive classification. on how such principles can deal with many tricky
It is also worthwhile to mention that this way thought experiments and how they should be
of drawing the distinction between the conse- developed further as a result of these cases.
quentialist and the deontological ethical theories Finally, there has been a lot of interesting
leads to an interesting discussion about whether work done on the paradoxical nature of the deon-
rule-consequentialism should be understood as a tological constraints (Scheffler, 1982, ch. 4).
consequentialist theory (Hooker, 2000, sec. 4.6). Such constraints forbid to kill an innocent person
Rule-consequentialism is the view that an act is even when by doing so one could prevent other
wrong if and only if it is forbidden by the innocent persons being killed in the very same
principles whose general internalization would way. How could such a constraint be justified
have the best consequences. On the one hand, given that we would gain more of whatever is
this view forbids agents in some situations to act important about not killing the one person
in ways that would maximize value. On the other by saving the other innocent persons from
hand, the rules that determine the moral status of being killed? The last word about how this
individual acts are evaluated by the value of their question should be answered has definitely not
consequences. So, there is a sense in which this been said yet (for interesting early attempts, see
view is not a consequentialist theory and another Darwall, 1986; Kamm, 1992; McNaughton &
sense in which it clearly is. Rawling, 1998).
D 1568 Dependence, Sexual

Cross-References Nagel, T. (1986). The View from Nowhere. Oxford:


Oxford University Press.
Nozick, R. (1974). Anarchy, State, and Utopia. Oxford:
Consequentialism Blackwell.
Ethics Portmore, D. (2011). Commonsense Consequentialism.
Family Quality of Life Oxford: Oxford University Press.
Friendship and Happiness Quinn, W. (1993). Morality and Action. Cambridge, MA:
Cambridge University Press.
Parent-Child Relationship(s) Rawls, J. (1971). A Theory of Justice. Cambridge, MA:
Virtue Ethics Harvard University Press.
Well-being, Philosophical Theories of Scanlon, T. M. (1998). What We Owe to Each Other.
Cambridge, MA: Harvard University Press.
Scheffler, S. (1982). The Rejection of Consequentialism.
Oxford: Oxford University Press.
Thomson, J. J. (1986). Rights, Restitution, and Risk.
References Cambridge, MA: Harvard University Press.

Alexander, L. & Moore, M. (2007). Deontological ethics.


The Stanford encyclopedia of philosophy,
(Fall 2008 Edition), Edward N. Zalta (ed.), URL
http://plato.stanford.edu/archives/fall2008/entries/
ethics-deontological/. Dependence, Sexual
Bennett, C. (2010). What Is This Thing Called Ethics?
London: Routledge.
Brink, D. (2001). Impartiality and Associative Duties. Compulsive Sexual Behavior Inventory
Utilitas, 13, 152172.
Brook, R. (1991). Agency and Morality. Journal of
Philosophy, 88, 190212.
Dancy, J. (2004). Ethics without Principles. Oxford:
Oxford University Press. Depression and Pregnancy
Darwall, S. (1986). Agent-Centered Restrictions From the
Inside Out. Philosophical Studies, 50, 291319.
Darwall, S. (2003). Introduction. In S. Darwall (Ed.),
Angela Bowen
Deontology (pp. 18). Oxford: Blackwell. College of Nursing, University of Saskatchewan,
Davis, N. (1991). Contemporary Deontology. In P. Singer Saskatoon, SK, Canada
(Ed.), A Companion to Ethics (pp. 205218). Oxford:
Blackwell.
Dreier, J. (1993). The Structure of Normative Theories.
The Monist, 76, 2240. Synonyms
Foot, P. (1967). Abortion and the Doctrine of Double
Effect. Oxford Review, 5, 515. Antenatal depression; Antepartum depression;
Hooker, B. (2000). Ideal Code, Real World. Oxford:
Oxford University Press.
Melancholia in pregnancy; Perinatal depression;
Hurka, T. (1997). The Justification of National Partiality. Pregnancy blues; Prenatal depression
In R. McKim & J. McMahan (Eds.). The Morality of
Nationalism (pp. 139157). New York: Oxford Uni-
versity Press.
Hursthouse, R. (1999). On Virtue Ethics. Oxford: Oxford
Definition
University Press.
Kamm, F. (1992). Non-Consequentialism, the Person as Depression during pregnancy is the presence of a
an End-in-Itself, and the Significance of Status. major depressive disorder (MDD) that occurs
Philosophy and Public Affairs, 21, 381389.
Korsgaard, C. (1986). The Right to Lie: Kant on Dealing
during pregnancy.
with Evil. Philosophy and Public Affairs, 15, 325349.
McNaughton, D., & Rawling, P. (1998). On Defending
Deontology. Ratio, 11, 3754. Description
McNaughton, D., & Rawling, P. (2006). Deontology. In
D. Copp (Ed.), The Oxford Handbook of Ethical
Theory (pp. 424458). Oxford: Oxford University While often missed, depression or melancholia
Press. was identified as a problem for pregnant women
Depression and Pregnancy 1569 D
in the 1800s (Brockington, 1996). It affects one in birth) and anesthesia, preterm birth, and sponta-
five pregnancies; however, the prevalence is neous abortion. Infants experience lower Apgar
greater in high-risk populations (Bowen & scores, shorter gestation, smaller head circumfer-
Muhajarine, 2006). Up to 50 % of women can ence, and increased admission to the neonatal
experience some depression symptoms but not intensive care units.
necessarily meet the criteria for major depressive Antenatal depression can affect the
disorder (MDD; Bennett, Einarson, Taddio, attachment between a mother and the fetus
Koren, & Einarson, 2004). (Misri & Kendrick, 2008). It has also been
The symptoms used to diagnose antenatal hypothesized that the attachment to the fetus D
depression are those used to diagnose MDD at can impact the way the woman takes care of
anytime in a persons life (American Psychiatric herself during pregnancy (Misri & Kendrick).
Association, 2000). The DSM-IV specifies that at Women who are depressed or anxious may be
least five of the following symptoms must be less apt to take care of themselves and may engage
present for a period of at least 2 weeks: depressed in activities that are considered risky during preg-
mood, anhedonia (lack of pleasure or interest), nancy, such as alcohol, tobacco, and drug use
sleep disturbances, either insomnia or (Webb, Culhane, Mathew, Bloch, & Goldenberg,
hypersomnia, psychomotor agitation, lack of 2011). Attachment problems can continue after the
energy, feelings of guilt or a lack of self-worth, baby is born; women with depression are more
difficulty concentrating, and lastly suicidal likely to have an avoidant attachment to her
ideation (American Psychiatric Association). In newborn baby or more likely to be anxiously
addition, at least one of those must be from the attached to her child (Bifulco et al., 2004).
first two symptoms, i.e., either depressed mood or There are lifetime effects to the quality of life of
anhedonia. Depression is a complex state, and the entire family. Children are at increased risk of
women are likely to also experience anxiety developmental, cognitive, and motor delays and
symptoms (Bowen, Bowen, Maslany, & social and mental health problems such as anx-
Muhajarine, 2008). Risk factors for antenatal iety, depression, and schizophrenia (Brand &
depression include a history of depression Brennan, 2009). In the first postpartum year,
(whether during another pregnancy or not), paternal depression occurs in between 1.2 % and
anxiety, lack of social support, stress, low 25.5 %. However, if the partner is depressed or
income and education, and belonging to an ethnic severely depressed, paternal depression can occur
minority (Lancaster et al., 2010); however, all up to 50 % of the time in the postpartum. Siblings
women are vulnerable to depression in are also affected; the mother may be less attentive
pregnancy. to the needs of the other children if she is depressed
Depression lessens the quality of life (Zuckerman, Amaro, Bauchner, & Cabral, 1989).
compared to someone without depressive Screening for depression during pregnancy is
symptoms (American Psychiatric Association, easy. For example, the Edinburgh Postnatal
2000). As well as affecting the quality of life of Depression Scale (EPDS) is a simple, free, self-
the woman, antenatal depression can also influ- report tool. The EPDS has been validated in
ence the pregnancy, the fetus, growing child, and different populations and translated into many
family. Antenatal depression is associated with languages, with 87 % sensitivity and 78 %
higher levels of cortisol levels for the mother and specificity (Cox, Holden, & Sagovsky, 1987).
fetus and a number of pregnancy and obstetrical Due to the stigma that persists about mental
complications. For instance, women are more illness and the commonly held belief that preg-
likely to have gestational hypertension, gesta- nancy is a blissful and happy time, women may
tional diabetes, take more sick days from work, not seek treatment (Nonacs & Cohen, 2002).
more visits to their physician, greater psychoso- Medication treatment is controversial. Some
matic complaints, more nausea and vomiting, studies report that antidepressants have a negative
operative deliveries (e.g., cesarean and forceps impact on the fetus (Tuccori et al., 2009),
D 1570 Depression and Pregnancy

while others indicate that the risks for congenital Bowen, A., & Muhajarine, N. (2006). Prevalence of
defects are the same as within the population depressive symptoms in an antenatal outreach program
in Canada. Journal of Obstetric, Gynecologic, and
(Einarson, Choi, Einarson, & Koren, 2009). Neonatal Nursing, 35(4), 492498.
Other treatment includes psychotherapy (Grote Bowen, A., Bowen, R. C., Maslany, G., & Muhajarine, N.
et al., 2009), bright light therapy (Oren et al., (2008). Anxiety in a socially high-risk sample of preg-
2002), mindfulness, and other methods of nant women in Canada. Canadian Journal of Psychi-
atry, 53(7), 435440.
relaxation (Vieten & Astin, 2008). A woman Brand, S. R., & Brennan, P. A. (2009). Impact of antenatal
needs to discuss the risks and the benefits of the and postpartum maternal mental illness: How are the
different treatment options with her physician, children? Clinical Obstetrics and Gynecology, 52(3),
keeping in mind that untreated depression also 441455.
Brockington, I. (1996). Motherhood and mental health.
has potential harmful effects on her baby and Oxford: Oxford University Press.
her family (Yonkers et al., 2009). Cox, J. L., Holden, J. M., & Sagovsky, R. (1987). Detec-
tion of postnatal depression. Development of the 10-
Discussion item Edinburgh postnatal depression scale. The British
Journal of Psychiatry, 150, 782786.
Depression in pregnancy is a common and serious Einarson, A., Choi, J., Einarson, T. R., & Koren, G.
public health problem with far-reaching effects (2009). Incidence of major malformations in infants
to the quality of life of the woman, developing following antidepressant exposure in pregnancy.
child, and her family. Public health policy Canadian Journal of Psychiatry, 54, 242246.
Grote, N. K., Swartz, H. A., Geibel, S. L., Zuckoff, A.,
needs to ensure that there is widespread Houck, P. R., & Frank, E. (2009). A randomized con-
education about the symptoms, implementation trolled trial of culturally relevant, brief interpersonal
of universal screening, and increased access psychotherapy for perinatal depression. Psychiatric
to treatment to promote the quality of life for Services, 60(3), 313321.
Lancaster, C. A., Gold, K. J., Flynn, H. A., Yoo, H.,
women and their families. More qualitative and Marcus, S. M., & Davis, M. M. (2010). Risk factors
quantitative research is needed to understand the depressive symptoms during pregnancy: A systematic
best supports for women who are depressed in review. American Journal of Obstetrics and Gynecol-
pregnancy. ogy, 202(1), 514.
Misri, S., & Kendrick, K. (2008). Perinatal depression,
fetal bonding, and mother-child attachment: A review
of the literature. Current Pediatric Reviews, 4(2),
Cross-References 6670.
Nonacs, R., & Cohen, L. S. (2002). Depression during
pregnancy: Diagnosis and treatment options. The Jour-
Parental Depression and Child Well-Being nal of Clinical Psychiatry, 63, 2430.
Social Support and Depression Among Oren, D. A., Wisner, K. L., Spinelli, M., Epperson, C.,
Adolescent Mothers Peindl, K., Terman, J. S., et al. (2002). An open trial of
morning light therapy for treatment of antepartum
depression. The American Journal of Psychiatry, 159,
666669.
References Tuccori, M., Testi, A., Antonioli, L., Fornai, M.,
Montagnani, S., Ghisu, N., et al. (2009). Safety con-
American Psychiatric Association. (2000). Diagnostic cerns associated with the use of serotonin reuptake
and statistical manual of mental disorders, fourth inhibitors and serotonergic/noradrenergic antidepres-
edition, text revision. Washington, DC: Author. sants during pregnancy: A review. Clinical Therapeu-
Bennett, H. A., Einarson, A., Taddio, A., Koren, G., & tics, 31, 14261453.
Einarson, T. R. (2004). Prevalence of depression dur- Vieten, C., & Astin, J. (2008). Effects of a mindfulness-
ing pregnancy: Systematic review. Obstetrics and based intervention during pregnancy on prenatal stress
Gynecology, 103, 698703. and mood: Results of a pilot study. Archives of
Bifulco, A., Figueiredo, B., Guedeney, N., Gorman, L. L., Womens Mental Health, 11(1), 6774.
Hayes, S., Muzik, M., et al. (2004). Maternal Webb, D. A., Culhane, J. F., Mathew, L., Bloch, J. R., &
attachment style and depression associated with child- Goldenberg, R. L. (2011). Incident smoking
birth: Preliminary results from a European US cross- during pregnancy and the postpartum period in a
cultural study. The British Journal of Psychiatry, 184, low-income urban population. Public Health Reports,
s31s37. 126, 5059.
Depression in Middle Age 1571 D
Yonkers, K. A., Wisner, K. L., Stewart, D. E., Oberlander, Classifications and Definitions
T. F., Dell, D. L., Stotland, N., et al. (2009). The man- Depression: A Clinical Category
agement of depression during pregnancy: A report from
the American psychiatric association and the American Research on depression relies on either the
college of obstetricians and gynecologists. General American Psychiatric Associations Diagnostic
Hospital Psychiatry, 31(5), 403413. and Statistical Manual of Mental Disorders
Zuckerman, B. S., Amaro, H., Bauchner, H., & Cabral, H. (DSM-IV) or the World Health Organizations
(1989). Depression symptoms during pregnancy: Rela-
tionship to poor health behaviors. American Journal of International Classification of Diseases (ICD-10).
Obstetrics and Gynecology, 160(5), 11071111. Despite slight differences in terminology, both
categorical systems agree on the same core symp- D
toms to identify depressive disorders or episodes:
a depressed mood, anhedonia (diminished
Depression Distortion Hypothesis interest in pleasure), feelings of worthlessness
(DDH) or inappropriate guilt, and recurrent thoughts of
death, in combination with weight loss, disturbed
Mothers Reports of Child Outcomes in Those sleep, psychomotor agitation or retardation,
with New-Onset Epilepsy fatigue or loss of energy, reduced libido, a
diminished ability to think or concentrate, and
indecisiveness (Semple & Smyth, 2009, p. 228).
People exhibiting four to five of these symptoms
Depression in Middle Age for more than 2 weeks are considered depressive.
Their social, occupational, and general perfor-
Hilke Brockmann mance is impaired, but no medical disorders,
School of Humanities and Social Sciences, bereavement, or drug and medication misuse
Jacobs University, Bremen, Germany should be involved.

Happiness: A Social Science Concept


Definition Definitions of happiness lack the binding
character, precision, and specificity of a clinical
Depression and Happiness in Middle Age: category, simply because there is no institution-
Related Topics, Separate Literatures alized interest of professional associations or
Research on depression and happiness is boom- political organizations in an obligatory definition.
ing. The topics are obviously related, but the Nevertheless, there is broad consensus among
literatures develop in virtual isolation. Depression happiness researchers on core characteristics of
is the focus of psychiatrists, clinical psycholo- happiness, which, basically, are just the inverse
gists, and public health researchers. Happiness of depressive symptoms. Psychologists define
(or subjective well-being), by contrast, is a happiness as a positive mood and emotion,
subject of social and behavioral scientists. The which together are labelled affect and
mid-age is conspicuously absent in both research represent peoples on-line evaluations of the
streams. Depression researchers focus mainly on events that occur in their lives (Diener, Suh,
incidence rates at young and old age. Happiness Lucas, & Smith, 1999, p. 277). The temporality
researchers assume that the well-being of people of happiness is crucial like in the depression
in their 30s to 50s is unrelated to age and depends literature. Most happiness researchers focus on
mainly on personal, social, and economic long-term mood rather than momentary emotions
categories, not on age. In this entry, I summarize and are particularly interested in cognitive evalu-
the major findings of both literatures and try to ation of peoples life satisfaction. Therefore,
demonstrate how these different insights happiness is often equated with subjective
could contribute to a better understanding of the well-being (SWB), i.e., a persons cognitive and
quality of life particularly during midlife. affective evaluations of his or her life as a whole.
D 1572 Depression in Middle Age

These evaluations include emotional reactions to lower in Japan (22.2 %) and Germany (23 %) than
events as well as cognitive judgements of satisfac- in the USA (30.9 %) or the Netherlands (33.6 %)
tion and fulfillment. (. . .) experiencing high levels (Bromet et al., 2011). Generally, however, women
of pleasant emotions and moods, low levels of are more susceptible to depression than men.
negative emotions and moods, and high life Some experts suspect that the conventional
satisfaction (Diener, Oishi, & Lucas, 2009). focus on mortality rates in epidemiology
Economists (Frey & Stutzer, 2002) and sociolo- understates the real costs of depression. While
gists (Veenhoven, 2008) tend to use happiness and accounting for only 1 % of all deaths, the overall
SWB interchangeably. burden of unipolar depressive disorders, measured
by disability adjusted life years lost (DALY),
is responsible for 65.5 million DALYs (4.3 %
of total DALYs). In Europe, depression is
Description already the single most costly disease (Wittchen
et al., 2011).
Depression and Happiness over the Life A main driver of the depression-related costs
Course is the early onset and an often chronic course of
Depression and happiness are measured with the disease. According to World Mental Health
different scales. In the epidemiological literature, surveys, the average age of onset is 25.7 years in
prevalence rates of depression demonstrate first high-income countries and 24 years in low- to
of all a rise in absolute numbers over cohort middle-income countries (Bromet et al., 2011).
and period time but no linear increase with age. For the USA, data from the replicated National
Happiness trajectories show significant gains and Comorbidity Survey (NCS-R) in 2001 show that
losses across the life course resulting from social 50 % of all cases occur before the age of 30
and economic events. The likelihood of these (Kessler et al., 2005).
events varies with age. Middle-aged people are Remission and recovery, relapse, and
particularly affected. recurrence rates vary across studies. Data from
a general US population survey show that about
Prevalence of Depression 50 % of first episode participants get better, while
According to the World Health Organization 35 % experience a recurrent episode and 15 % of
(WHO), 151.2 million people (2.3 % of the cases with major depressive disorder do not
world population) suffered from unipolar depres- recover at all (Eaton et al., 2008). Hence, an
sive disorders in 2004 (WHO, 2008). Depression early onset is associated with more lifetime
is the fourth most important cause of disability depressive episodes, more psychiatric comorbid-
(Murray & Lopez, 1996) and the most common ity, suicide attempts, and suicidal ideation.
mental disease worldwide. Despite incomplete The earlier people suffer from depression,
prevalence data for many countries, cross-national the more likely they will never marry, will
comparisons suggest that depression is a global have an impaired social and occupational perfor-
phenomenon. But incidence varies greatly across mance, a more negative view of life, and overall
countries, between gender, and over the life a poorer quality of life than those who experience
course. The WHO World Mental Health Survey a first depressive episode after the age of 45
displays an average lifetime prevalence of a major (Zisook et al., 2007). Consequently, the costs of
depressive episode (comparable to unipolar depression accumulate with age. Respondents
depressive disorder) of 28.1 % in high-income with major depression episodes earned on
countries and 19.8 % in low- to middle-income average a third less than median earnings, with
countries. Variance within country groups is high. no significant country differences (Levinson
For instance, lifetime prevalence of depression is et al., 2010).
Depression in Middle Age 1573 D
Relative Happiness Across the Life Course depression incidences. Also, the middle-aged set
Happiness research focuses on averages and the benchmark for the analysis of social status
correlations. The nonresponse rate for happiness and productivity. Consequently, their well-being
questions is remarkable low. Happiness seems to seems to depend on personal, social, and
be a universal phenomenon across the globe, economic categories, not on age.
across social groups, and across the life course.
Findings on happiness and age are mixed. Determinants of Depression
Early studies claim a decrease with age. While multiple biological, individual, and social
Follow-on analyses, by contrast, suggest stability risk factors have been identified as causes of D
or even an increase of happiness with age. depression, an integrated model is still missing.
Easterlin (2006) purports to find a weak curvilin- Some authors focus on genetic influences
ear relationship between age and happiness with as depression often runs in families and is asso-
a peak at the age of 51. However, most ciated with a neurotic personality. Heritability
recent longitudinal, cross-country research show estimates range from 40 % to 70 % (Semple &
a u-shaped or cubic relationship with lowest Smyth, 2009). Recent studies investigate
levels in midlife and very old age (85 years and the impact of single genes like the serotonin
older) (Blanchflower & Oswald, 2008; promoter 5-HTT gene (Caspi et al., 2003). In
Brockmann, 2010). These inconsistencies this perspective, stressful events appear as envi-
probably result from confounding age, period, ronmental triggers for a detrimental gene
and cohort effects and further uncontrolled influ- expression. However, the molecular mechanisms
ences. Yet, a focus on the persistent evaluation of behind gene-environment interactions leading to
ones life satisfaction analyzed with longitudinal depression remain unclear. Nongenetic research
individual level data support broadly the broadly confirms that stressful events like the loss
hypothesis that middle-aged people experience of a relative or unemployment are significantly
lower subjective well-being than younger and or associated with depression. The impact of
older groups. these events varies between an early and
Next to this age effect, cohort and period a late onset of the disease (Korten, Comijs,
influences shape life cycle happiness. Both time Lamers, & Penninx, 2012). By contrast,
variables rarely follow a linear process. Evidence stable environments, a confiding marriage, caring
suggests that the size of a cohort has a significant parents, being less confined by gender roles, and
impact. Also, period effects may reflect external a middle-class background without economic
shocks like a recession. Finally, these timing worries lower the risk of depression. Finally,
variables interact with gender. Younger women depressive episodes are often associated
appear often happier than younger men, while at with other chronic, painful, and severe
older ages men report a higher SWB. Across illnesses like myocardial infarction, Parkinsons,
calendar time, we do not see a linear increase stroke, cancer, or further psychiatric diseases
in happiness. particularly at younger and middle ages
(Kessler et al., 2010).

Determinants of Depression and Happiness, Determinants of (Un-)Happiness


Particularly During Midlife Based on longitudinal and twin studies, psychol-
Middle age is rarely conceptualized as a ogists have promoted a genetically derived
developmental stage. People between 30 and 60 set-point theory for more than 30 years.
are conceived as having reached a mature According to this theory, an adult or middle-
and stable personality with aligned realistic aged set point in happiness is inherited as a
aspirations, significantly lower suicide rates and personality trait or a fixed adaptation capacity.
D 1574 Depression in Middle Age

Only major life events may momentarily depression and happiness in order to precisely
destabilize this individual equilibrium. estimate the future burden of depression and
Recent genetic and social findings undermine ill-being. Given the projected costs, it is a
the static model (Headey, 2010). Epigenetic worthwhile endeavor. Particularly, to spotlight
mechanisms and reprogramming prove the depression of people in their middle ages will
importance of environmental influences on gene comprehend the mental load of those who pay
expression and may be relevant for example to the (health-care) bills in modern welfare states.
explain why certain personality factors increase And it will provide a more accurate advice for
in age. Also, social events like unemployment or public policy intervention to the betterment of
marriage breakups impair peoples happiness future societies.
during midlife. Most research on happiness
focuses on these and other socioeconomic deter-
minants and events like income, social, or marital Cross-References
status which are more important during midlife
than during earlier or later phases of life. Unemployment
Age-related explanations for the decline in hap-
piness among people in their 30s to their 50s are
rare. From a social investment perspective, one References
may claim that life investments in careers or fam-
ilies may turn out to be suboptimal during that Blanchflower, D. G., & Oswald, A. J. (2008). Is well-being
phase of life. First, in our age-stratified societies U-shaped over the life cycle? Social Science &
Medicine, 66(8), 17331749.
most investment decisions are usually made early Brockmann, H. (2010). Why are middle-aged people so
in life and are thus particularly prone to forecasting depressed? Social Indicators Research, 97(1), 2342.
errors. On the other hand, life expectancy is long, Bromet, E., Andrade, L., Hwang, I., Sampson, N., Alonso,
expectations are high, and changes are possible. J., de Girolamo, G., et al. (2011). Cross-national
epidemiology of DSM-IV major depressive episode.
This dilemma may turn many middle-aged people BMC Medicine, 9(90), 116.
into frustrated achievers (Brockmann, 2010). Caspi, A., Sugden, K., Moffitt, T. E., Taylor, A., Craig,
I. W., Harrington, H., et al. (2003). Influence of life
Connecting the Dots stress on depression: Moderation by a polymorphism
in the 5-HTT gene. Science, 301(5631), 386389.
The depression and happiness literatures share the Diener, E., Oishi, S., & Lucas, R. E. (2009). Subjective
object of research and many explanations. The well-being: The science of happiness and life
subjective mental functioning of people seems satisfaction. In C. R. Snyder & S. J. Lopez (Eds.),
determined by genetic traits, by health events, Oxford handbook of positive psychology (2nd ed.,
pp. 187194). Oxford, UK: Oxford University Press.
and particularly during middle ages by socioeco- Diener, E., Suh, E. M., Lucas, R. E., & Smith, H. L.
nomic, marital, and other exogenous stressors. (1999). Subjective well-being: Three decades of
But the different focus on outliers in the depres- progress. Psychological Bulletin, 125(2), 276302.
sion literature and on averages in happiness Easterlin, R. A. (2006). Life cycle happiness and its sources:
Intersections of psychology, economics, and demogra-
research hampered the exchange of results. phy. Journal of Economic Psychology, 27(4), 463482.
An integration of both research foci and meth- Eaton, W. W., Shao, H., Nestadt, G., Lee, B. H., Bienvenu,
odologies could help to better understand why O. J., & Zandi, P. (2008). Population-based study of
people in their middle ages are less happy but first onset and chronicity in major depressive disorder.
Archives of General Psychiatry, 65(5), 513520.
not more depressed. It could shed light on when Frey, B. S., & Stutzer, A. (2002). Happiness and econom-
unhappiness becomes pathological and what ics: How the economy and institutions affect human
conditions make people more resilient and well-being. Princeton, NJ: Princeton University Press.
resistant against a depressive relapse. Refined Headey, B. (2010). The set-point theory of well-being has
serious flaws: On the eve of a scientific revolution?
designs which combine longitudinal population Social Indicators Research, 97(1), 721.
and patient data will be needed to disentangle the Kessler, R. C., Berglund, P., Demler, O., Jin, R.,
different layers and temporal influences on Merikangas, K. R., & Walters, E. E. (2005). Lifetime
Deprivation 1575 D
prevalence and age-of-onset distributions of DSM-IV
disorders in the national comorbidity survey Deprivation
replication. Archives of General Psychiatry,
62, 593602.
Kessler, R. C., Birnbaum, H. G., Shahly, V., Bromet, E., Christopher T. Whelan1 and Brian Nolan2
1
Hwang, I., McLaughlin, K. A., et al. (2010). Age School of Social Policy, Queens University of
differences in the prevalence and co-morbidity of Belfast, Belfast, UK
DSM-IV major depressive episodes: Results from 2
the WHO World Mental Health survey initiative. UCD School of Applied Social Science,
Depression and Anxiety, 27(4), 351364. University College Dublin, Dublin, Ireland
Korten, N. C. M., Comijs, H. C., Lamers, F., & Penninx, D
B. W. J. H. (2012). Early and late onset depression in
young and middle aged adults: Differential symptom-
atology, characteristics and risk factors? Journal of Synonyms
Affective Disorders, 138(3), 259267.
Levinson, D., Lakoma, M., Petukhova, M., Schoenbaum, Denial; Poverty; Privation; Want
M., Zaslavsky, A., Angermeyer, M., et al. (2010).
Associations of serious mental illness with earnings:
Results from the WHO World Mental Health surveys.
The British Journal of Psychiatry, 197(2), 114121. Definition
Murray, C. J., & Lopez, A. D. (1996). Evidence-based
health policy Lessons from the Global Burden of Prevented from possessing or enjoying the neces-
Disease Study. Science, 274(5288), 740743.
Semple, D., & Smyth, R. (2009). Oxford handbook of sities of life leading to a damaging lack of basic
psychiatry. Oxford: Oxford University Press. material and cultural benefits
Veenhoven, R. (2008). Sociological theories of subjective
well-being. In M. Eid & R. J. Larsen (Eds.),
The science of subjective well-being (pp. 4461).
New York: The Guilford Press. Description
WHO. (2008). The global burden of disease. 2004 update.
Geneve: WHO. Deprivation has always been central to the
Wittchen, H. U., Jacobi, F., Rehm, J., Gustavsson, A., conceptualization of poverty and living standards
Svensson, M., Jonsson, B., et al. (2011). The size and
burden of mental disorders and other disorders of the in developing countries, with direct measures
brain in Europe 2010. European Neuropsychophar- of failure to meet basic needs complementing
macology, 21, 655679. income-based measures based on thresholds
Zisook, S., Lesser, I., Stewart, J. W., Wisniewski, S. R., such as the World Banks dollar a day
Balasubramani, G. K., Fava, M., et al. (2007). Effect of
age at onset on the course of major depressive standard. In developed countries direct measures
disorders. The American Journal of Psychiatry, of deprivation are also increasingly being used to
164(10), 15391546. capture living standards, poverty, and social
exclusion. Research on poverty in rich countries
still relies primarily on household income,
and this is also true of official poverty
Depressive Symptoms and Chronic measurement and monitoring for policy-making
Obstructive Pulmonary Disease purposes, but awareness has been increasing of
(COPD) the limitations of income and the role which
nonmonetary measures of deprivation can play.
Psychological Distress and Chronic Most research on poverty takes as a point of
Obstructive Pulmonary Disease (COPD) departure the definition that people are in poverty
when their resources are so seriously below
those commanded by the average individual or
Depressive/Anxiety Disorder family that they are, in effect, excluded from
Measurement ordinary living patterns, customs and activities
(Townsend, 1979). This is echoed in the
Kessler Psychological Distress Scale definition put forward by an influential expert
D 1576 Deprivation

panel in the USA as insufficient resources for using a combination of low income and material
basic living needs, defined appropriately for the deprivation to monitor progress in relation to
United States today (Citro & Michael, 1995). child poverty.
Poverty from this starting point has two core
elements: it is about inability to participate, and Multidimensionality
this inability to participate is attributable to Rather than (or as well as) the more accurate
inadequate resources. While most quantitative identification of the poor, a further argument for
research then employs income to distinguish the the use of nonmonetary indicators is that they
poor, with a great deal of research and debate on can help to capture the multidimensionality of
how best to establish an income cutoff (OECD, poverty and social exclusion. It has long been
2008), nonmonetary indicators of deprivation said that poverty is not just about money, and
have come to be widely seen as a useful the widespread adoption of the terminology of
complement. This was initially from the perspec- social exclusion/inclusion in Europe reflected,
tive that low income could be used to identify the inter alia, the concern that focusing simply on
poor, but did not tell us all we needed to know income misses an important part of the picture.
about what it was like to be poor. Townsends Social exclusion may involve not only poverty as
pioneering research used nonmonetary indicators low income/low financial resources but also
of deprivation both to derive and validate an educational disadvantage, poor health and access
income poverty threshold and to bring out to health services, inadequate housing, and
graphically what it meant to be poor in Britain exclusion from the labor market. This can reflect
at the time in terms of deprivation of everyday the view that conceptually social exclusion
items and activities widely regarded as essential is distinct from and broader than poverty or
(Townsend, 1979). that the underlying notion of poverty that
evokes social concern is itself intrinsically
Identifying the Poor multidimensional (Burchardt, Le Grand, &
As these deprivation indicators have become Piachaud, 2002; Nolan & Whelan, 2011).
more widely available, they have underpinned While a wide range of approaches has been
a more radical critique that reliance on income employed empirically, there has been increasing
actually fails to identify those who are unable to recognition of the desirability of directly
participate in their societies due to lack of measuring and monitoring key dimensions of
resources. This argument was put forward well-being and disadvantage (Boarini & Mira
most emphatically by Ringen who asserted that dErcole, 2006; Bradshaw & Finch, 2003).
income was both an indirect and unreliable The definition of poverty formulated
measure of the underlying concept of poverty by Townsend has also been adopted by
(Ringen, 1988). In a similar vein, Mack and politicians and policy-makers in a European
Lansley (1985) used deprivation indicators Union context. It underpins the EUs Social
directly to identify those experiencing exclusion Inclusion process which since 2000 has at its
in Britain, and subsequent British poverty and core a set of indicators designed to monitor
social exclusion studies (Gordon et al., 2000) progress and support mutual learning that is
have employed a more extensive sets of indica- explicitly and designedly multidimensional
tors. Studies for Ireland (Nolan & Whelan, 1996) (Atkinson, Cantillon, Marlier, & Nolan, 2002).
identified the consistently poor those both on The need for such an approach has become even
low income and reporting deprivation in terms of more salient with the enlargement of the EU
specific basic items as meeting both elements to cover countries with much lower average
of the underlying concept, inability to participate, living standards, sharpening the challenge of ade-
and inadequate financial resources. A similar quately capturing and characterizing exclusion
approach has been applied in some other across the Union (Alber, Fahey, & Saraceno,
countries (Forster, 2005), and the UK is also 2007). The difference from richest to poorest
Deprivation 1577 D
member states in terms of average income per Child Poverty
head is now very much wider than before. Widely Household Income and Wealth
used income poverty thresholds in the more afflu- Poverty
ent member states are higher than the average Social Exclusion
income in the poorest member states. The strik- Unemployment
ingly different picture produced by these at risk Worries (Global Measure)
of poverty indicators compared with average
Gross domestic product (GDP) per head, and
unease with the EU tendency to keep distinct D
References
concerns about the divergence in living standards
across versus within countries, helps to motivate Alber, J., Fahey, T., & Saraceno, C. (2007). Introduction:
interest in moving beyond reliance on relative EU enlargement and quality of life: The context and
income in identifying those at risk of poverty purpose of the book. In J. Alber, T. Fahey, &
C. Saraceno (Eds.), Handbook of quality of life in the
and exclusion.
enlarged European Union. London: Routledge.
Despite widespread interest in a multi- Atkinson, A. B., Cantillon, B., Marlier, E., & Nolan, B.
dimensional perspective, only limited progress (2002). Social indicators: The EU and social
has been made in teasing out how best to apply it inclusion. Oxford: Oxford University Press.
Boarini, R., & Mira dErcole, M. (2006). Measures of
in practice. This state of affairs reflects limitations
material deprivation in OECD countries. OECD
in the information available but also in the con- social employment and migration (Working Papers
ceptual and empirical underpinnings provided by No. 37), Paris: OECD.
existing research. Despite this, when the EU took Bradshaw, J., & Finch, N. (2003). Overlaps in dimensions
of poverty. Journal of Social Policy, 32, 513525.
the very important step of including a poverty
Burchardt, T., Le Grand, J., & And Piachaud, D. (2002).
reduction target among the five headline targets Degrees of exclusion: Developing a dynamic,
it set for 2020 in the high-level strategy adopted in multidimensional measure. In J. Hills, J. Le Grand, &
2010, it framed the target population in terms not D. Piachaud (Eds.), Understanding social exclusion.
Oxford: Oxford University Press.
only of low income but also two other indicators,
Citro, C. F., & And Michael, R. (1995). Measuring
of material deprivation and household joblessness. poverty: A new approach. Washington, DC: National
So a multidimensional perspective and the role Academy Press.
therein of direct measures of material deprivation Forster, M. F. (2005). The European social space
revisited: Comparing poverty in the enlarged
have come center stage in the EUs efforts to
European union. Journal of Comparative Policy
tackle poverty and exclusion. Analysis, 7, 2948.
Gordon, D., Adelman, L., Ashworth, K., Bradshaw, J.,
Outlook Levitas, R., Middleton, S., Pantazis, C., Patsios, D.,
Payne, S., Townsend, P., & Williams, J. (2000).
While multidimensional approaches can be
Poverty and social exclusion in Britain. York, UK:
rooted in influential concepts such as capabilities Joseph Rowntree Foundation.
or economic and social rights, the linkage Grusky, D. B., & Weeden, K. A. (2007). Measuring
from concept through to application has often poverty: The case for a sociological approach. In
N. Kakawani & J. Silber (Eds.), The many dimensions
been weak and implementation rather ad hoc.
of poverty. Basingstoke: Palgrave Macmillan.
There is a pressing need to develop a methodo- Mack, J., & Lansley, S. (1985). Poor Britain. London:
logical platform for analyzing the shape and Allen and Unwin.
form of multidimensional deprivation (Grusky Nolan, B., & Whelan, C. T. (1996). Resources,
deprivation and poverty. Oxford: Clarendon Press.
& Weeden, 2007).
Nolan, B., & Whelan, C. T. (2011). Poverty and depriva-
tion in Europe. Oxford: Oxford University Press.
OECD. (2008). Growing unequal? Income distribution
Cross-References and poverty in OECD countries. Paris: OECD.
Ringen, S. (1988). Direct and indirect measures of
poverty. Journal of Social Policy, 17, 351366.
Basic Needs Townsend, P. (1979). Poverty in the United Kingdom.
Capability Deprivation in the USA Harmondsworth: Penguin.
D 1578 Deprivation and Social Exclusion in Europe

Yitzhaki (1979) and Hey and Lambert (1980)


Deprivation and Social Exclusion in for the absolute case and Chakravarty (1997)
Europe for its relative counterpart. For deprivation in a
multidimensional framework, we refer to
Luna Bellani1 and Conchita DAmbrosio2 Bossert, DAmbrosio, and Peragine (2007).
1
Population and Employment, CEPS/INSTEAD, According to European Union guidelines,
Esch-sur-Alzette, Luxembourg material deprivation refers to a lack of access to
2
Universita di Milano-Bicocca, Milan, Italy material economic resources and focuses on a
subset of the dimensions that may be relevant
for poverty measurement, excluding non-
Synonyms tangible dimensions such as health status or
employment level. As opposed to deprivation,
Absolute individual deprivation in Europe; material deprivation is not based on comparisons
Relative individual deprivation with respect to individuals who are better-off.
Material deprivation is a special case of
multidimensional poverty: a multidimensional
Definition poverty measure takes into consideration all
dimensions of well-being that may be of relevance
Deprivation is the sentiment felt by someone (including nonmaterial attributes such as health
when comparing his or her situation to that of status and political participation), whereas mate-
other individuals who are better-off. Material rial deprivation restricts attention to functioning
deprivation describes the situation of an individ- failures regarding material economic resources
ual who cannot reach a minimum standard of (see, among others, Guio, 2005). According to
material well-being. Social exclusion can EU policy, indices of material deprivation are
be broadly interpreted as the inability of an to be combined with income-based poverty
individual to participate in the basic political, measures and indicators of low employment.
economic, and social activities of the society in Material deprivation and social exclusion are
which he or she lives due to persistence in the key concepts in the European Union. A first
state of material deprivation. explicit reference to social exclusion was made
by the European Commission toward the end of
the second European Poverty program in 1988.
Description A year later, the Council of the European Com-
munities adopted a resolution on combating
Deprivation is the sentiment felt by someone social exclusion. This concept has then gained
when comparing his or her situation to that of a primary role in official documents and in the
other individuals, a reference group, who are bet- political debate in Europe since the Treaty of
ter-off. When considering income as the object of Amsterdam, signed in 1997, in which the Euro-
deprivation, absolute individual deprivation is pean Union included the reduction of social
simply the sum of the gaps between an individ- exclusion among its objectives. The design of
uals income and the incomes of individuals who policies aimed at combating social exclusion is
are richer, while in the relative case, the income at the heart of the Lisbon strategy agreed upon
gaps are normalized by mean income. When the during the European Council in March 2000.
comparison is conducted with respect to poorer The European Commission has more recently
individuals, we obtain the relative satisfaction of reaffirmed the importance of collective responsi-
the person under analysis. A similar reasoning can bility in combating exclusion by designating
be conducted in a multidimensional framework. 2010 as the European Year for Combating Pov-
The seminal papers in the income distribution erty and Social Exclusion. Moreover, during the
literature for measuring income deprivation are European Council of that year, the EU launched
Deprivation and Social Exclusion in Europe 1579 D
its agenda, Europe 2020, which confirms the (2002). Chakravarty and DAmbrosio (2006)
promotion of social inclusion as one of the five and Bossert, DAmbrosio, and Peragine (2007)
key areas of intervention. The five objectives to differ from the previous studies for the use of an
be reached by 2020 are on employment, innova- axiomatic approach to the measurement of the
tion, education, social inclusion, and cli- phenomena. Contributions focusing exclusively
mate/energy. on material deprivation are, among others, Guio
The term social exclusion has its origins in (2005); Guio, Fusco, and Marlier (2009); and
Lenoir (1974), then Secretaire dEtat a lAction Bossert, Chakravarty, and DAmbrosio (2013).
Sociale in the Chirac government, who referred Early comparative studies use a set of D
to the excluded as consisting not only of the poor nonmonetary indicators from the European Com-
but of a wide variety of people, namely, the social munity Household Panel (ECHP).
misfits. The meaning of the term evolved and Examples of the indicators considered in these
expanded in the following years to include all studies are the following: possession of car or
individuals and groups that are wholly or partly van, color TV, VCR, microwave oven, dish-
prevented from participating in their society and washer, telephone; keeping the home adequately
in various aspects of cultural and community life. warm; paying for a weeks holiday away from
The definition of social exclusion has been very home; replacing any worn-out furniture; buying
much debated among social scientists soon after new rather than second-hand clothes; eating meat,
its introduction by policy makers. The debate chicken, or fish every second day, if desired;
revolved around the discussion of the attributes, having friends or family for a drink or meal at
differences, and novelties of it with respect to least once a month; having a bath or shower in the
more traditional concepts such as income pov- house, an indoor flushing toilet, and hot running
erty, multidimensional poverty, and inequality water; items concerned with the accommodation
(see, e.g., Atkinson, 1998; Atkinson et al., 2002; and environment (shortage of space, noise from
Duffy, 1995; Klasen, 2002; Mejer, 2000; Room, neighbors or outside, too dark/not enough light,
1995; Rowntree Foundation, 1998; Sen, 1998). leaky roof, damp walls, floors, foundations); and
Social exclusion is linked to both poverty and inability to pay scheduled mortgage payments,
inequality, but it is not the same as either. It is utility bills, or hire purchase installments during
a relative concept in the sense that an individual the past 12 months.
can be socially excluded only in comparison with These indicators were recommended by
a particular social group at a given place and Eurostat (2000) as the best candidates to meet
time. It is a multidimensional concept that the requirements of (1) reflecting a negative
includes economic, social, and political aspects aspect of a life pattern common to a majority of
of life. It is also a dynamic concept as an individ- the population in the EU, (2) allowing interna-
ual can become socially excluded if his or her tional and intertemporal comparisons, and
socioeconomic condition worsens over time. An (3) expressing a link with income poverty.
agreement has been reached on seeing social Later studies are based on EU Statistics on
exclusion as persistent material deprivation. Income and Living Conditions (EU-SILC),
Different measures of material deprivation which is employed by European Union member
and social exclusion have been proposed in the states and the Commission to monitor national
literature. These measures have also been applied and EU progress toward key objectives for the
to monitor the situation of many countries, espe- social inclusion process and Europe 2020 growth
cially the EU member states. Among these are the strategy.
early approaches proposed by Layte, Matre, The indices of material deprivation are based
Nolan, and Whelan in different years (see, on what Atkinson (2003) refers to as the counting
among others, Layte, Nolan, Whelan, & Matre, approach. The counting measure for an individ-
2001; Whelan, Layte, & Maitre, 2002), and the ual consists of the number of dimensions in which
contributions of Tsakloglou and Papadopoulos a person is deprived, that is, the number of the
D 1580 Deprivation and Social Exclusion in Europe

individual functioning failures. But this measure West and East Germany from 1990 to 2003, they
treats all dimensions symmetrically in the sense found that level and changes in subjective well-
that in the aggregation of an individuals func- being are driven more by the relative satisfaction
tioning failures, the same weight is assigned to an individual derives from his or her position in a
each dimension. Since some of the dimensions society than by income level itself. Addressing
may be more important than others, alternative the multidimensionality aspect of material
counting measures can be obtained by assigning deprivation and social exclusion, Bellani and
different weights to different dimensions and DAmbrosio (2011) provide empirical evidence
then adding these weights for the dimensions in of the link between these concepts and subjective
which functioning failure is observed. These well-being. Results on EU countries over
weights may be assumed to reflect the importance the period 19942001 show that life satisfaction
a policy maker attaches to alternative dimensions decreases with an increase in deprivation and
or the weights may reflect views of the society social exclusion after controlling for individuals
under analysis. The weights may also be equal to income, relative income, and other influential
the proportion of the population which is not factors like marital status, age, and employment.
deprived. (For a discussion of weighting
schemes in EU indicators, see Guio, Fusco, &
Marlier, 2009; Bellani, 2012). References
Social exclusion is then seen as persistence in
the state of material deprivation. The number of Atkinson, A. B. (1998). Social exclusion, poverty and
years in deprivation considered to be socially unemployment. In A. B. Atkinson & J. Hills (Eds.),
Exclusion, employment and opportunity (pp. 120).
excluded varies depending on the contribution.
London: Centre for Analysis of Social Exclusion.
The studies based on ECHP on average agree Atkinson, A. B. (2003). Multidimensional deprivation:
on ranking Greece, Portugal, Spain, and Italy as Contrasting social welfare and counting approaches.
the most materially deprived and socially exclud- Journal of Economic Inequality, 1, 5165.
Atkinson, A. B., Cantillon, B., Marlier, E., & Nolan, B.
ing countries, while Denmark, Belgium, Luxem-
(2002). Social indicators: The EU and social inclu-
bourg, and the Netherlands are at the opposite sion. Oxford: Oxford University Press.
position. When the sample of countries is Bellani, L. (2012). Multidimensional indices of depriva-
enlarged to include also new member states, as tion: the introduction of reference groups weights.
Journal of Economic Inequality. doi:10.1007/s10888-
in EU-SILC, then the most materially deprived
012-9231-6.
and excluding countries are Romania, Bulgaria, Bellani, L., & DAmbrosio, C. (2011). Deprivation, social
Hungary, Latvia, and Poland. exclusion and subjective well-being. Social Indicators
The last decade has also witnessed an increas- Research, 104, 6786.
Bossert, W., Chakravarty, S. R., & DAmbrosio, C.
ing availability of subjective indicators of stan-
(2013). Multidimensional poverty and material depri-
dard of livings, as happiness and satisfaction vation with discrete data, Review of Income and
with life. As a result, a related body of literature Wealth, forthcoming.
has emerged in which the relationship between an Bossert, W., DAmbrosio, C., & Peragine, V. (2007).
Deprivation and social exclusion. Economica, 74,
individuals well-being and satisfaction with own
777803.
life has been analyzed. Many interesting insights Chakravarty, S. R. (1997). Relative deprivation and satis-
about self-reported satisfaction with life and its faction orderings. Keio Economic Studies, 34, 1731.
determinants have been discussed by the sub- Chakravarty, S. R., & DAmbrosio, C. (2006). The mea-
surement of social exclusion. Review of Income and
jective well-being studies. Wealth, 52, 377398.
For income deprivation, DAmbrosio and DAmbrosio, C., & Frick, J. R. (2007). Income satisfac-
Frick (2007) explored the relationship between tion and relative deprivation: An empirical link. Social
self-reported satisfaction with income and relative Indicators Research, 81, 497519.
Duffy, K. (1995). Social exclusion and human dignity in
deprivation as measured by the sum of the gaps
Europe. Strasbourg: Council of Europe.
between the individuals income and the incomes European Council (2000). Presidency conclusions. Lisbon
of all the richer individuals. Analyzing data for European Council of 23 and 24 March 2000.
Derogatis Psychiatric Rating Scale (DPRS) 1581 D
Eurostat. (2000). European social statistics: Income, pov-
erty and social exclusion. Luxembourg: THEME 3, Deriving Self-Worth from Romantic
Population and Social Conditions.
Guio, A.-C. (2005). Material deprivation in the EU. In Relationships
Statistics in focus, population and social conditions,
living conditions and welfare, 21/2005. Luxembourg: Relationship Contingency and Sexual
Eurostat. Satisfaction
Guio, A.-C., Fusco A., & Marlier E. (2009). An EU
approach to material deprivation using EU-SILC and
eurobarometer data, IRISS (Working Paper 200919).
Hey, J. D., & Lambert, P. (1980). Relative deprivation and D
the gini coefficient: Comment. Quarterly Journal of
Economics, 95, 567573.
Klasen, S. (2002). Social exclusion and children in OECD
Derogatis Psychiatric Rating Scale
countries: Some conceptual issues. The School Field, (DPRS)
13, 925.
Layte, R., Nolan, B., Whelan, C. T., & Matre, B. (2001). Ralph L. Piedmont
Persistent and consistent poverty in the 1994 and 1995
waves of the European Community household panel.
Pastoral Counseling Department, Loyola
Review of Income and Wealth, 17, 427450. University Maryland, Columbia, MD, USA
Lenoir, R. (1974). Les exclus: Un francais sur dix
(2nd ed.). Paris: Editions du Seuil,1989.
Mejer, L. (2000). Statistics on social exclusion: The EU
methodological approach. Brussels: Eurostat, Unit E2
Synonyms
Living Conditions.
Room, G. (1995). Beyond the threshold: The measurement Brief derogatis psychiatric rating scale (BDPRS);
and analysis of social exclusion. Bristol: Policy Press. DPRS; Hopkins psychiatric rating scale
Rowntree Foundation. (1998). The report of key indicators
of poverty and social exclusion. Available at www.
parliament.the-stationery-office.co.uk.
Sen, A. K. (1998). Social exclusion and economic mea- Definition
surement. Paper presented at the 25th General Confer-
ence of the International Association for Research in
Income and Wealth, Cambridge, UK.
Known formerly as the Hopkins Psychiatric
Tsakloglou, P., & Papadopoulos, F. (2002). Identifying pop- Rating Scale (Derogatis, Lipman, Rickels,
ulation groups at high risk of social exclusion: Evidence Uhlenhuth, & Covi, 1974), the Derogatis Psychi-
from the ECHP. In R. J. A. Muffels, P. Tsakloglou, & atric Rating Scale (DPRS) is a multi-construct
D. G. Mayes (Eds.), Social exclusion in European wel-
fare states. Cheltenham: Edward Elgar, chapter 6.
psychiatric rating scale that is designed to be
Whelan, C. T., Layte, R., & Maitre, B. (2002). Persistent used by clinicians who are well trained in
deprivation in the European Union. Journal of Applied psychopathology.
Social Science Studies, 122, 3154.
Yitzhaki, S. (1979). Relative deprivation and the gini coef-
ficient. Quarterly Journal of Economics, 93, 321324.
Description

The Derogatis Psychiatric Rating Scale is


Deprivation from Happiness and designed to be used in conjunction with the
Deprivation from Wealth SCL-R-90 and the Brief Symptom Inventory,
which are both client self-report scales. All these
Objective and Subjective Poverty instruments capture the same nine symptom cate-
gories (somatization, obsessive-compulsiveness,
interpersonal sensitivity, depression, anxiety,
hostility, phobic anxiety, paranoid ideation, and
Deprivation Poverty psychoticism) (Derogatis & Savitz, 1999). Clini-
cians can also rate patients on eight additional
Objective and Subjective Deprivation dimensions that are important to accurate clinical
D 1582 Desensitization

assessment but that are not amenable to patient


self-report (sleep disturbance, psychomotor retar- Design of Specific Project to
dation, hysterical behavior, abjection-disinterest, Implement
conceptual dysfunction, disorientation, excite-
ment, and euphoria). There is also a Global Program Planning
Pathology Index. The scale has been used in
numerous clinical studies, and one of its values
is that it provides a context for obtaining clinician
ratings of clinically salient constructs. This infor- Design of Urban Form
mation can be useful in examining the validity of
self-report scores on these dimensions as well Urban Design
as serving as a source of valuable information
in its own right. There is also a brief form of this
instrument, which allows clinicians to provide an
overall evaluation of the client on each of the nine Design, an Overview
primary clinical dimensions.
Luigi Bistagnino and Pier Paolo Peruccio
Department of Architecture and Design,
Cross-References Politecnico di Torino, Turin, Italy

Psychiatric Disorders
Subjective Well-Being, Psychopathology, and Synonyms
Physical Health in Adolescents
Culture; Environmental design; Growth;
Interdisciplinarity; Limit; Planned development;
References Process; Product design; Project design

Derogatis, L. R., & Savitz, K. L. (1999). The SCL-90-R,


brief symptom inventory, and matching clinical rating
scales. In M. E. Maruish (Ed.), The use of psycholog-
Definition
ical testing for treatment planning and outcomes
assessment (2nd ed., pp. 679724). Mahwah, NJ: In the English language the noun design means
Lawrence Erlbaum Associates Publishers. project; it comes from the Latin pro-iacere
Derogatis, L. R., Lipman, R. S., Rickels, K., Uhlenhuth,
(to throw something forward) and implies an
E. H., & Covi, L. (1974). The Hopkins Symptom
Checklist (HSCL): A self-report symptom inventory. activity that embodies the concept of moving
Behavioral Science, 19(1), 115. forward, of the future. Instead the etymology of
the term design (from the Latin designare, a
derivation of signum sign) refers to the concept
of meaning: using a sign to distinguish between
things, in other words to give things meaning.
Desensitization Design means a project for the future but also
an activity that gives things meaning. Design has
Human Adaptation two souls: on the one hand the technical and
functional elements that make design activities
coherent and, on the other, symbolic and linguis-
tic elements.
Deservingness Principle Over the years the word design has taken on
many meanings: today it no longer refers only to
Coping with an Unjust World a product or a communication but also to
Design, an Overview 1583 D
services, strategies, and systems in which world which, on the contrary, is actually
environmental sustainability is becoming finite (because it has limited resources),
increasingly important. It is close to the design interconnected, and increasingly interlinked and
definition provided by the International Council not only as far as the circulation of information is
of Societies of Industrial Design (Icsid): Design concerned (the so-called global village). In one
is a creative activity whose aim is to establish way or another, the choices a designer makes
the multifaceted qualities of objects, processes, have a global fallout; their destiny is to play a
services and their systems in whole life crucial role in society.
cycles. Therefore, design is the central factor In fact, designers have to ask themselves D
of innovative humanisation of technologies and certain key questions: Should we design only
the crucial factor of cultural and economic products or instead focus on designing goods
exchange (http://www.icsid.org/about/about/ and services for mankind? Should we display
articles31.htm). our skills by creating forms or really help
Although design is a young discipline, it is redesign society? Should we express ourselves
becoming a research activity in which more and through hedonistic design or humanistic
more different kinds of professionals are design?
involved designers, economists, cognitive psy- Whatever they decide, designers have to be
chologists, technologists, historians, and aware of the positive or negative effects of what
sociologists; the aim is to create an increasingly they do. Even in the economic world, there is
broad, multifaceted, and comprehensive global the feeling that economic data alone cannot be
vision of design. Indeed, in the last 1520 years, used as the parameter on which to base growth;
design has evolved and severed its ties with the we have to adopt other imponderable factors
concept of industry; in fact, ever since (qualitative or otherwise) such as the quality of
the nineteenth century design has been mainly life, the environment, educational levels, and
considered as industrial design, in other words services, in other words the indexes that reveal
something used by industry or in serial produc- peoples moral rather than material well-being. In
tion. This link between design and production not this kind of situation, industrial design is the key
only led to a sudden increase in the production of to these groundbreaking changes: designers have
all kinds of objects (often useless), but over the a responsibility towards people who ask them to
years it boosted several unhealthy relationships solve real problems, satisfy as yet unfulfilled
between society and the economy: for example, desires, and improve the quality of their lives.
the production and distribution of objects made Sustainability is not a private issue, it is
with toxic materials or the exploitation of a common value shared by the entire community.
nonrenewable resources used to make luxury Nowadays, designers are asked to design and
goods. In the words of Victor Papanek, industrial create ecologically sustainable communities so
design has put murder on a mass-production basis that when political and technologies choices are
(Papanek, 1970). made, they establish a relationship with the
Quite apart from any ethical and moral natural world and even replicate some of its
judgements about this kind of behavior, it is more virtuous processes, rather than entering
nevertheless obvious that the designer is an into conflict with it.
accelerator of events, a force he shares with
the consumer (who has also evolved into the new
and cultured figure of a coproducer); together Description
they are capable of influencing market dynamics
and therefore the production of goods and In recent years the term design has been
services. Nowadays, designers are professionals overexploited in popular magazines, in new-
who work in increasingly international environ- spapers, and on television. We have to move
ments; every day they have to deal with a global beyond the gloss applied by nonspecialist mass
D 1584 Design, an Overview

media which more often than not use the word use, enjoyment and individual or social consump-
design to convey the formal aesthetic values tion of the product (functional, symbolic or
of a product usually associated with a certain cultural factors) and to factors relating to produc-
lifestyle. To do this we have to get a real under- tion (technical-economic, technical-constructive,
standing of this multifaceted discipline which techno-systemic, techno-productive and techno-
involves many fields of knowledge and continu- distributive factors) (Maldonado, 1991).
ally renews its statute by revamping its didactic Undoubtedly, designing only form and coor-
models. For some time now, several decades in dinating and integrating all these factors now
fact, design schools have changed the main tool seem obsolete.
they use to train designers; they no longer employ Today when we design we cannot ignore the
a didactic model focusing primarily on teaching complex relationship between action and reaction
students to design industrial mass-produced in natural and artificial systems. People were
objects one of the most widespread definitions already aware of this in the 1950s when they
used until the 1970s. This trend has become com- realized how complex and difficult design actu-
plex and widespread in the last 10 years not only ally was. The architect Christopher Alexander in
in Italy but also abroad; schools and universities his famous book Notes on the Synthesis of
have increased the courses on offer which now Form (1964) wrote (. . .) these problems have a
include very different and rather unusual design background of needs and activities which is
disciplines: social design, sound design, textile becoming too complex to grasp intuitively
design, food design, web design, fashion design, (Alexander, 1964). Too many variables became
car design, management design, and ecodesign involved and an interdisciplinary approach was
(Margolin, 1989). The latter, in particular, is needed with the input by experts from more than
meta- and transdisciplinary and is omnipresent one field of learning. The process that gradually
in all aspects of a designers work: more than developed and grew during that period helped to
ever before, we need to design products, systems, break down disciplinary barriers and moved in
and services efficiently and in an ecologically the opposite direction to the monodisciplinary
correct manner. and specialist approach of the first half of the
This makes it difficult to define the boundaries nineteenth century, an approach that had been
of this culture and its disciplinary statute adopted to counter the boom in knowledge, espe-
(Simon, 1964), but it is just as difficult to under- cially scientific knowledge.
stand not only which professions are involved in The considerations expressed by Christopher
design but the many, at times unimaginable, ways Alexander and others after him, including
design can be used by the market. Giuseppe Ciribini, and the systemic culture
At the beginning of this entry, we mentioned (Bertalanffy, 1968) of the latter part of the nine-
that design means a project for the future but also teenth century (Norbert Wiener, Ludwig von
an activity that gives things meaning on the one Bertalanffy, and Henri Lefebvre) prompted
hand, the technical and functional elements that many schools to question the systemic value of
make design activities coherent and, on the other, design (Ciribini, 1984). In particular, architec-
symbolic and linguistic elements. These aspects tural projects and design met with the culture of
have been highlighted by many scholars includ- complexity at the Hochschule fur Gestaltung
ing Tomas Maldonado in his famous definition in Ulm thanks to considerations by Tomas
originally adopted by the International Council of Maldonado or Abraham Moles and the introduc-
Societies of Industrial Design (ICSID) in 1961: tion of new design disciplines such as cybernet-
design is an activity that allows one to coordi- ics, systems theory, information theory, semiotics,
nate, integrate and articulate all factors which in and ergonomics.
one way or another participate in the process of Today open industrial systems are designed to
constituting the shape and the product. And more avoid production waste (Maldonado, 1970): in
specifically, it refers both to factors relating to the particular, the need to redirect the profession
Design, an Overview 1585 D
towards a new humanism of design is begin- social, political, economic, and cultural context
ning to catch on. In this kind of design, the a kaleidoscope approach which might involve
physical object disappears, not only metaphori- sophisticated technological products, mechani-
cally, while the methodological process and cal elements, and household appliances for the
metaproject become much more important. home. Naturally these elements have to be
If the demand for design changes over time, considered as part of a complex system/product
then obviously the methodological and didactic which must be designed by all the key
approach must change too. The discipline has players involved in the process (industrialists,
evolved and the message has changed: a how lawmakers, users, etc.). D
to approach based on a conservative attitude
towards problems (and their solution) now
appears anachronistic; today designers are asked Cross-References
what can we do?; in other words, they are asked
to strategically design a scenario that not only Ecological Footprint
focuses on product innovation as an end in itself Innovation Design
but involves developing broader issues which Social Innovation
require the input and expertise of other fields of Social Sustainability
learning (Germak, 2008). These issues necessar- Sustainability
ily include nontraditional economic and indus- Systemic Design
trial models: in fact, when we talk about
production, we do refer not only to industrial
production but also on a par and with the same References
importance to agricultural production. Within
the same territorial context, we need to ensure Alexander, C. (1964). Notes on the synthesis of form.
that agriculture, industry, and the community Cambridge, MA: Harvard University Press.
Bertalanffy, L. (1968). General system theory: Founda-
at large blend harmoniously with the natural sys-
tions, development, applications. New York: George
tem (Capra, 1996, 2002; Bistagnino, 2008): this Braziller.
is the key to a production model of sustainable Bistagnino, L. (2011). Systemic design (2nd ed.). Bra:
growth (Lanzavecchia, 2012). Slow Food. ebook.
Bonsiepe, G. (1975). Teoria e pratica del disegno
This approach to design and production is
industriale: Elementi per una manualistica critica.
undeniably very interesting if we consider how Milano: Feltrinelli.
it affects the territory: not more production but Capra, F. (1996). The web of life. New York: Doubleday-
better production in which the waste products of Anchor Book.
Capra, F. (2002). The hidden connections. Integrating the
a production cycle (output) become a resource
biological, cognitive and social dimensions of life into
(input) for another production process. This is a science of sustainability. New York: Doubleday.
one of the most interesting challenges we need Ciribini, G. (1984). Tecnologia e progetto. Torino: Celid.
to win in order to activate virtuous growth pro- Germak, C. (Ed.). (2008). Uomo al centro del progetto.
Design per un nuovo umanesimo. Torino: Allemandi.
cesses in a territory. One of the many examples
Lanzavecchia, C. (2012). Il fare ecologico (3 ed. by
we could cite is the use of systemic design for Barbero, S., Tamborrini, P.). Milan: Edizione
a trade fair; this kind of event normally has a very Ambiente.
high environmental impact, so design could cre- Maldonado, T. (1970). La speranza progettuale. Torino:
Einaudi.
ate new sustainable consumption scenarios for Maldonado, T. (1991). Disegno industriale: Un riesame.
the waste produced by the trade fair and, where Milano: Feltrinelli.
possible, a correct use of the resources used prior Margolin, V. (1989). Design discourse: History, theory,
to the process. criticism. Chicago: The University of Chicago Press.
Papanek, V. (1970). Design for the real world.
Contemporary designers must focus not only
Cambridge, MA: The MIT Press.
on the design of a single object but on the design Simon, H. (1964). The sciences of the artificial.
of an entire system/product located in a precise Cambridge, MA: The MIT Press.
D 1586 Desire

shown sexual desire to have few reliable cogni-


Desire tive, physiological, or behavioral indicators, and
the conceptualization of sexual desire has ranged
Motivation from a pure biological drive to a more relationally
motivated desire for intimacy.

Desire for Rest Description

Fatigue Masters and Johnsons (1966) model of the sex-


ual response consisted of four stages: excitement
(arousal), plateau, orgasm, and resolution. Partly
as a function of their physiologically based
Desire Fulfillment Theories of research, they did not attempt to account for a
Well-Being
motivational state that would draw individuals
toward sexual stimuli or activity. The addition
Preference Satisfaction Theories
of sexual desire to the model of the sexual
response was introduced by Kaplan (1977) and
Lief (1977), simultaneously. The result was the
Desire Satisfaction Theories of sequential triphasic model of the sexual response
Well-Being (desire, arousal, orgasm) that has dominated the
literature and on which the classification of
Preference Satisfaction Theories sexual dysfunctions in various versions of the
American Psychiatric Associations Diagnostic
and Statistical Manual of Mental Disorders
(DSM) has been based.
Desire, Sexual Since then, the construct of sexual desire has
been a contentious one because of (1) difficulties
Marta Meana1 and Alessandra Lanti2 in its operationalization (Basson, 2003; Meana,
1
Honors College, University of Nevada, 2010), (2) questions about whether it is distin-
Las Vegas, NV, USA guishable from arousal and what the temporal
2
Department of Psychology, University of relationship of desire and arousal is (Everaerd &
Nevada, Las Vegas, NV, USA Laan, 1995; Graham, Sanders, Milhausen, &
McBride, 2004), (3) gender differences in its
experience and expression (Baumeister,
Synonyms Catanese, & Vohs, 2001), (4) its unreliable rela-
tionship to physiological, cognitive, and behav-
Libido; Sexual drive; Sexual interest ioral indices, especially in women (Meana,
2010), and (5) its cultural suppression, again
especially in women (Tolman, 1994). Confronted
Definition with the consistently lower levels of sexual desire
reported by women, sexology has had to contend
Sexual desire generally refers to the motivational with the possibility that traditional ways of defin-
state that is likely to lead one to seek ing desire may have been based on a male analog,
out sexual stimuli and/or activity or be receptive biological model that ignored the myriad psycho-
to sexual stimuli and/or advances from a potential logical, relational, and social contextual variables
sexual partner. The operationalization of desire that may have more of an impact on women than
has, however, been problematic. Research has on men. On the other hand, low male sexual
Desire, Sexual 1587 D
desire is under-investigated as the focus in the appear to be an important aspect of both sexual
literature on male sexuality has been predomi- satisfaction and sexual function, both of which
nantly on erectile difficulties (Meana & Steiner, appear to be highly valued by men and women
in press). The reality is that there are no relevant across the world (Laumann et al., 2006).
norms for levels of sexual desire, and, even if
there were, any level of sexual desire that does
not have accompanying distress is by definition Cross-References
not problematic. A proposal for the redefinition
of desire problems that addresses some of these Dating Couples Sexual Desire Discrepancies D
concerns is currently being considered for the Gender Role Beliefs
fifth edition of the DSM (Brotto, 2010a, b). Mens Health
Regardless of these definitional issues, the Religiosity and Sexual Attitudes
general desire for sexual connection and the qual- Sexual Arousal Disorder
ity of that connection have in fact been tied to Sexual Behaviors Desired Frequency
quality of life and relationship satisfaction. The Sexual Dysfunction(s)
World Health Organization (WHO) and other Sexual Functioning
international entities, such as the World Associ- Sexual Interest/Arousal Disorder (SIAD)
ation for Sexual Health, have moved toward the Sexual Motives and Quality of Life
incorporation of pleasure into definitions of sex- Sexual Satisfaction
ual health (Coleman, 2011). Clearly, sexual Sexual Satisfaction and Gender Differences
desire is an important part of sexual health, as Sexual Satisfaction and Sexual Costs in
pleasure is likely to have a strong link to desire. Women
The relationship between sexual desire to quality Sexual Satisfaction, Self-Esteem, and
of life has been demonstrated repeatedly as stud- Assertiveness
ies show that individuals with hypoactive sexual Womens Health
desire disorder (HSDD) show more quality of life Womens Sexual Satisfaction Predictors
impairment than control populations (e.g., Bid-
dle, West, DAloisio, Wheeler, & Borisov, 2009).
It is important to keep in mind that sexual desire
References
deficits can be comorbid with other mental and
physical health problems, as well as medications Basson, R. (2003). Definitions of womens sexual dys-
used to treat these problems (e.g., major depres- function reconsidered: Advocating expansion and
sion, cardiovascular disease, selective serotonin revision. Journal of Psychosomatic Obstetrics and
Gynecology, 24, 221229.
reuptake inhibitors; Meana, 2012; Rowland,
Baumeister, R. F., Catanese, K., & Vohs, K. (2001). Is
2012). Sexual desire and sexual desire discrepan- there a gender difference in strength of sex drive?
cies in couples have also been tied to relationship Theoretical views, conceptual distinction, and
satisfaction (e.g., Mark, 2012), which has also a review of relevant evidence. Personality and Social
Psychology Review, 5, 242273.
been found to be related to quality of life and
Biddle, A. K., West, S. L., DAloisio, A. A., Wheeler,
well-being (e.g., Rosen & Bachmann, 2008). S. B., & Borisov, N. N. (2009). Hypoactive sexual
In conclusion, sexual desire is a subjective desire disorder in postmenopausal women: Quality of
construct that can only be directly accessed life and health burden. Value in Health, 12, 763772.
Brotto, L. A. (2010a). The DSM criteria for hypoactive
through self-report, with all of the attendant dif- sexual desire disorder in women. Archives of Sexual
ficulties that self-report can have when we are Behavior, 39, 221239.
dealing with a construct as socioculturally loaded Brotto, L. A. (2010b). The DSM criteria for hypoactive
as sexual desire. However, the literature does sexual desire disorder in men. The Journal of Sexual
Medicine, 7, 215230.
consistently link a satisfying sex life and sexual
Coleman, E. (2011). What is sexual health? Articulating a
function to quality of life. Individual and gender sexual health approach for HIV prevention in men who
variations notwithstanding, sexual desire does have sex with men. AIDS and Behavior, 15, 1824.
D 1588 Desire-Fulfillment Theories of Happiness

Everaerd, W., & Laan, E. (1995). Desire for passion:


Energetics of the sexual response. Journal of Sex & Destitution
Marital Therapy, 21, 255263.
Graham, C. A., Sanders, S. A., Milhausen, R. R., &
McBride, K. R. (2004). Turning on and turning off: Poverty, an Overview
A focus group study of the factors that affect womens
sexual arousal. Archives of Sexual Behavior, 33,
527538.
Kaplan, H. S. (1977). Hypoactive sexual desire. Journal of
Sex & Marital Therapy, 3, 39.
Laumann, E. O., Paik, A., Glasser, D. B., Kang, J. H.,
Determinants of Donor Loyalty
Wang, T., Levinson, B., et al. (2006). A cross-national
study of subjective sexual well-being among older Trust, Satisfaction, and Donor Retention
women and men: Findings from the Global Study of
Sexual Attitudes and Behaviors. Archives of Sexual
Behavior, 35, 145161.
Lief, H. I. (1977). Inhibited sexual desire. Medical Aspects
of Human Sexuality, 7, 9495. Determinants of Health
Mark, K. P. (2012). The relative impact of individual
sexual desire and couple desire discrepancies on satis-
Environment and Health
faction in heterosexual couples. Sexual and Relation-
ship Therapy, 27, 133146.
Masters, J., & Johnson, V. (1966). Human sexual
response. Boston: Little Brown.
Meana, M. (2010). Elucidating womens (hetero)sexual
desire: Definitional challenges and content expansion. Determinants of Health, Social
Journal of Sex Research, 47, 104122.
Meana, M. (2012). Sexual dysfunction in women. Cam-
bridge, MA: Hogrefe Press. Health Determinants
Meana, M., & Steiner, E. T. (in press). Hidden disorder/
Hidden desire: Presentations of low sexual desire in
men. In Y. M. Binik, & K. Hall (Eds.) Principles and
practice of sex therapy (5th ed.). New York: Guilford
Press. Determinants of Health-Related
Rosen, R. C., & Bachmann, G. A. (2008). Sexual well- Quality of Life (HRQOL)
being, happiness, and satisfaction in women: The case
for a new conceptual paradigm. Journal of Sex & Duke Severity of Illness Checklist
Marital Therapy, 34, 291297.
Rowland, D. L. (2012). Sexual dysfunction in men. Cam- Duke Social Support and Stress Scale
bridge, MA: Hogrefe Press. (DUSOCS)
Tolman, D. L. (1994). Doing desire: Adolescent girls
struggles for/with sexuality. Gender and Society, 8,
324342.

Determinants of Poverty in Europe

Desire-Fulfillment Theories of Caroline Dewilde


Happiness Department of Sociology, Tilburg University,
Tilburg, The Netherlands
Well-Being and Self-Wants

Synonyms

Despair Exclusion from ordinary living patterns in


Europe; Lifestyle deprivation in Europe; Material
Worries (Global Measure) deprivation in Europe
Determinants of Poverty in Europe 1589 D
Definition poorer Member States and that the top income
quartile in the poorest member states experienced
Starting with the term poverty in the title of more material deprivation compared to the bot-
this entry, it is safe to say that over the past tom income quartile in the richest member states.
decades, most scholars have come to define pov- These developments resulted in the EU putting
erty as a multidimensional phenomenon that forward a material deprivation index based on a
takes on different forms and shapes for different set of items referring to enforced lifestyle
groups in the population. Many authors adhere to deprivation on two dimensions: economic strain
the definition introduced by Peter Townsend and enforced lack of durables (http://epp.eurostat. D
(1979: 31): Individuals, families and groups in ec.europa.eu/portal/page/portal/eurostat/home/).
the population can be said to be in poverty when Furthermore, perhaps induced by the credit crisis
they lack the resources to obtain the type of diet, and the ensuing economic problems, more atten-
participate in the activities and have the living tion is being placed on housing-related problems
conditions and amenities which are customary, or (overcrowding, housing costs, and housing dep-
at least widely encouraged, or approved, in the rivation) (e.g., Rybkowska & Schneider, 2011).
societies to which they belong. They are, in One can thus conclude that the old and unfruitful
effect, excluded from ordinary living patterns, distinction between so-called direct and indirect
customs and activities. Put differently, poverty indicators of poverty (e.g., Ringen, 1988) has been
is a social and relative concept, depending on the overcome by analyzing both more absolute indi-
standards of living in a particular society. This ces of material deprivation and more relative
definition has been, in more or less similar words, resource-based indicators at the same time (e.g.,
accepted by the European Council as early as Dewilde, 2004). From an analytical point of view,
1975 (EUROSTAT, 2010). It, however, took however, it makes more sense to analyze these
several decades for the European Union (EU) to different dimensions alongside each other rather
come to terms with the fact that defining poverty than to devise a catch-all index.
as a multidimensional phenomenon also impli- Concerning the determinants of poverty in
cates measuring the concept accordingly. A large Europe, this entry focuses on so-called institu-
impetus was the enlargement of the EU toward tional determinants. Institutional refers to the
Eastern Europe in 2004 and 2007. Early data on impact of welfare state arrangements on a
poverty and social exclusion based on the EU specific policy domain, for instance, social assis-
Statistics on Income and Living Conditions tance levels or unemployment benefits, on cross-
(EU-SILC) and the European Quality of Life country variations in multidimensional poverty.
Survey (EQLS) showed that the traditional Such institutional effects or macro-level effects
income-based at-risk-of-poverty measure can be separated statistically from between-
(where households are defined as poor when country differences arising from compositional
their equivalized disposable household income effects or from differences in economic affluence.
is lower than 60 % of median income in their Compositional effects arise from differences in
country) was falling short of providing a com- the population composition of individual- or
plete and comprehensible picture of the extent household-related characteristics associated with
and experience of poverty in old and new mem- higher or lower poverty rates, such as age, unem-
ber states (for an overview, see Nolan & Whelan, ployment, or family composition. For instance, in
2010). For instance, while income poverty in both two countries with comparable low unemploy-
Hungary and Sweden stood at 12 % in 2008, ment benefits, the poverty level in country
material deprivation in the former country was A could be higher because the proportion of unem-
much higher (Wolff, 2010). In a similar fashion, ployed is higher than in country B. In this case,
Fahey (2007: 35) showed that what is defined as differences in the national level of poverty cannot
the poverty threshold in the richer Member States be attributed to unemployment regulations but to
would count as an above-average income in the differences in the composition of the population.
D 1590 Determinants of Poverty in Europe

Description imagine several situations leading to a mismatch


between direct and indirect poverty measures.
This entry reviews several studies looking into For instance, for people who are suddenly
the impact of a range of institutional indicators on confronted with a large income drop, it probably
the extent of multidimensional poverty in takes a long time perhaps even years for this to
Europe. Using data from the European Commu- translate into an observable decline of living
nity Household Panel (ECHP) for 2001, Dewilde standards based on indicators such as housing
(2008) and Dewilde & Raeymaeckers (2008) quality or the possession of certain durables. It
estimates multinomial logit models in order to takes a while for most durables to wear out, or
evaluate the impact of welfare state arrangements people might initially draw on their savings or
on the odds of being poor one dimension and on rely on support from family in order to keep up
the odds of experiencing cumulative deprivation the lifestyle to which they are accustomed. On the
(being poor on several life domains). Such an other hand, people who have lived in a situation
approach takes account of the fact that the expe- of cumulative deprivation for a long time, but
rience of poverty for different population groups manage to substantially raise their income at
manifests itself with different degrees of severity a certain point, will probably need several years
on one or more life domains for longer or shorter to noticeably improve their living standards. Pos-
periods of time, resulting in an apparent sible debts can cause severe financial strain for
mismatch between different measures of pov- years afterward, while acquiring higher-quality
erty. This mismatch is apparent, because it can housing requires large investments. This dynamic
result from several processes. relationship between the experience of poverty
A first argument states that resources and on different domains of life has not yet been
needs vary over the life course and are partly researched to its full extent, as one could image
dependent on earlier life-course experiences. that the concept of capabilities (Sen, 1992)
For instance, it has been noted that the elderly (such as health or social capital) moderates the
experience less lifestyle deprivation than relationship between resources (such as income)
expected on the basis of their income (Muffels and outcomes (such as material deprivation).
& Fouarge, 2004). We can relate this to their A final more methodological argument relates to
position on the housing market (in several coun- the way in which income is usually measured.
tries, most elderly are outright owners and can Often, components such as savings, investment
thus get by on a smaller income) but also to the income, nonofficial income, gifts and loans,
fact that older people have better budgeting skills debts, or home production are not taken into
(age effect) or grew up in an era when people had account or not very reliable. Furthermore, from
less material demands (cohort effect). In the same a comparative perspective, income measures
line of reasoning, we can expect young people should take account of price differences between
setting up their own household to be confronted regions and countries, differences in equivalence
with more housing deprivation, a situation which scales, and differential access to social transfers
usually gradually improves over their life course. and services. Finally, the number of income poor
Whether they are really poor or not depends on is not only dependent on the median or mean
their situation on other life domains. A second income but also on the income distribution,
explanation relates to the time dimension: complicating cross-national comparisons.
research shows that the correlation between A first study (Dewilde, 2008) investigates the
income and lifestyle deprivation is stronger the impact of a range of institutional indicators on a
longer people are confronted with financial categorical poverty measure distinguishing the
poverty (Jeandidier & Kop, 1998). Thus, the poor on one domain from the cumulatively
most common income measure, current house- deprived, controlling for both individual-level
hold income, fails to capture longer-term characteristics (to ensure that a so-called institu-
accumulation and erosion of resources. One can tional effect explaining between-country variation
Determinants of Poverty in Europe 1591 D
is not due to compositional differences) and the children. It is thus expected that the chances of
level of economic affluence (to standardize for being multidimensional poor are lower in
between-country differences in multidimensional countries with more childcare and a higher child
poverty arising from overall differences in the benefit package.
standard of living). The domains of poverty are A first general conclusion of this investigation
derived from a latent class model identifying is that economic affluence has a negative and
three domains on which one can be poor: hous- significant impact on the odds of being poor on
ing, financial stress (arrears), and limited financial one life domain and of being cumulatively
resources. This measurement model was validated deprived, compared to not being poor. Thus, as D
as cross-nationally comparable in previous the level of economic welfare increases, less
research (Dewilde, 2004; Dewilde & Vranken, people are touched by poverty, at least in the
2005). The sample of interest in this study is countries under consideration. As expected,
limited to the population under 65 years of age higher unemployment replacement rates lower
in 10 Western-European countries. Institutional the odds of being poor on one or on several life
arrangements which are expected to influence domains. A point for discussion, however,
the odds of being poor on one or more domains concerns the effects of those indicators based on
refer to welfare state arrangements concerning some absolute benefit level, the social assistance
income replacement, the labor market, and sup- benefit level, and the child benefit package.
port for families. Controlling for compositional Although benefit levels are generally higher in
differences between countries and the level of the more elaborate welfare states, it seems that
economic affluence (measured in terms of gross they have not always kept pace with the overall
domestic product per capita), a negative relation- increase of living standards in these societies or,
ship between the extent of income replacement in other words, that benefit levels are lower than
and the risk of poverty is expected. Indicators expected given the level of affluence. Controlling
refer to the OECD unemployment replacement for affluence, the negative and significant effect
rate and the social assistance benefit level for a of these indicators on multidimensional poverty
couple with two children. Given previous litera- fades away and in some instances even reverses
ture on the so-called equality-jobs trade-off to a positive effect. Leaving Ireland, a country
(Esping-Andersen, 1990), it is expected that which has known rapid economic growth, out of
more labor market flexibility increases the risk the analysis, results in insignificant estimates for
of multidimensional poverty. Labor market the social assistance benefit level. This suggests
flexibility is measured by the OECD employment that it may take a while for countries to convert
protection legislation index and by the percentage the benefits of economic growth into increased
of employees on a fixed-term contract. Regarding economic well-being for all population groups
the two measures indicating public support for and more in particular the poor. Excluding Ire-
families with children, the availability of public land, however, does not substantially change our
childcare and the value of the child benefit results concerning the impact of the child benefit
package (taking account of taxes and benefits, package. The value of the child benefit package
housing costs, and services) (Bradshaw & Finch, is hence not proportional to the general level
2002), there are large variations between coun- of affluence, which perhaps reflects the lack of
tries belonging to the same welfare regime, in political attention for family-supportive policies.
particular between those usually assigned to the These results might also suggest that there might
conservative regime cluster. Both measures exist some threshold of affluence above which the
support families with children, either by allowing idea of poverty as a relative concept is replaced
mothers to work and thus make an often vital by more absolute notions of need. This is,
contribution to the household economy or by however, a topic for future research. Controlling
providing financial support and/or cheap services, for economic affluence and other institutional
thereby partly lessening the financial burden of arrangements, the provision of public childcare
D 1592 Determinants of Poverty in Europe

has a negative effect on the chances of being affluence are also taken into account, as they
cumulatively deprived. Finally, more employ- tend to correlate with homeownership rates.
ment protection results in a lower poverty risk. Although there is evidence of a trade-off
The % of employees on a fixed-term contract has between generous pensions and high ownership
an unexpected negative and significant effect on rates, the results show that the original hypothesis
the odds of being poor. This is an interesting needs revision in several ways. First, in line with
result, as at the individual level, labor market the trade-off hypothesis, at the individual level,
flexibility results in an increased likelihood of being a homeowner effectively shields older peo-
being poor on one or on several life domains. ple from different forms of poverty: homeowners
This indicates that certain amounts/certain types have a significantly lower risk of being income
of labor market flexibility do not necessarily poor, of being deprived, and of being cumula-
result in higher poverty levels, especially when tively deprived. Furthermore, the poverty-
having a fixed-term job provides people with reducing effect of homeownership diminishes as
more resources compared to being unemployed. its rate increased; in accordance with Castles
In a second study (Dewilde & Raeymaeckers, findings that in countries with high ownership
2008), ECHP data for 2001 for 10 Western- rates, low-income households are more success-
European countries are used to evaluate the ful in acquiring housing assets. Finally, in line
impact of welfare state arrangements on the pov- with expectations, in countries with more
erty risk of older people (aged 65 years or more). generous pensions, homeowners enjoy a double
Starting point is the idea that housing policies can advantage, which results in a significantly lower
reduce poverty in later life by promoting outright risk of being income poor and of being cumula-
ownership, which provides a hidden source of tively deprived. There are similar indications that
income. Inspired by Kemeny (1981), Castles the stronger the assertion of one policy (e.g.,
(1998: 13) pointed to a possible trade-off between more generous pensions), the greater is the
the extent of homeownership and the generosity poverty-reducing effect of the other (e.g.,
of old-age pensions. In Castless words, by the social housing provision). Thus, in countries
time of retirement, for a large percentage of where both policies are pursued, older people
owners, the process of home purchase is likely have a significantly lower risk of income poverty
to be complete, leaving them with a net benefit (the interaction between pensions provision and
equivalent to the rent they would otherwise have homeownership rate is significant) and a
to pay on the property minus outgoings for main- significantly lower risk of cumulative deprivation
tenance and property taxes. In other words, when (a significant interaction between pensions
individuals own their own homes, they can get by provision and social housing provision).
on smaller pensions. Furthermore, Castles found Both institutional domains housing policy
that in countries with high ownership rates, and pensions provision are again operationalized
lower-income groups were more successful in by means of several indicators, the most important
accumulating housing assets. This study tries to addition to previous research being the inclusion
find out if and how the trade-off between pensions of social housing provision as an important alter-
provision and housing policies affects the preva- native to the encouragement of homeownership.
lence of old-age poverty. Poverty is again defined The literature review made clear that a govern-
as a multidimensional concept and measured in ments housing interventions include both
terms of a variable with four categories: not poor, ownership and social housing policies, so the
income poverty after housing costs, material dep- macro-level indicators refer to both. One indicator
rivation, and the combination of both (cumulative simply measures the size of the ownership sector
deprivation). Again, a range of individual and and is defined as the percentage of respondents
household characteristics are introduced in order aged 65 and over in outright owner-occupation.
to control for compositional differences between The relative importance of social housing for
countries. Country differences in economic older people is measured as the number of
Determinants of Poverty in Europe 1593 D
respondents aged 65 and over in social housing, Cross-References
expressed as a percentage of all older people in
rented accommodation. Likewise, the type and Deprivation and Social Exclusion in Europe
generosity of pension systems is operationalized Social Exclusion
using several indicators. As a first indicator, an Social Inclusion
empirical replacement rate is calculated as the
average pension income for older people (aged 65
and over) as a percentage of average earnings References
among respondents aged 4960 years. The sec- D
Bradshaw, J., & Finch, N. (2002). A comparison of child
ond indicator is specific to the poorest elderly
benefit packages in 22 countries. Leeds: Department
people: the absolute level of the minimum pension for Work and Pensions.
for a single-person household. It is expected that Castles, F. G. (1998). The really big trade-off: Home
generous pension benefits, high homeownership ownership and the welfare state in the New World
and the Old. Acta Politica, 33(1), 519.
rates, and extensive social housing provision all
Dewilde, C. (2004). The multidimensional measurement
have an independent negative effect on old-age of poverty in Belgium and Britain: A categorical
poverty. Additional hypotheses refer to interac- approach. Social Indicators Research, 68(3), 331369.
tions between macro-level indicators and to Dewilde, C. (2008). Individual and institutional determi-
nants of multidimensional poverty: A European com-
cross-level interactions, derived from the idea of
parison. Social Indicators Research, 86(2), 233256.
a trade-off between housing and pension policies. Dewilde, C., & Raeymaeckers, P. (2008). The trade-off
The results also point to several shortcomings between home-ownership and pensions: Individual
of the original trade-off hypothesis. For instance, and institutional determinants of old-age poverty.
Ageing & Society, 28(6), 805830.
when the impact of all institutional indicators is
Dewilde, C., & Vranken, J. (2005). Mesure multidimen-
estimated simultaneously, it is found that the sionelle de la pauvrete au sein de lUnion europeenne:
policy that most reduces the risks of all types of une approche categorielle. Revue belge de securite
old-age poverty is the provision of social sociale, 47(1), 2158.
Esping-Andersen, G. (1990). The three worlds of welfare
housing. While pensions provision and high
capitalism. Cambridge: Polity Press.
homeownership generally reduce poverty, EUROSTAT. (2010). Combating poverty and social
the effects are modest and not (or no longer) exclusion. A statistical portrait of the European
significant. Finally, the encouragement of Union 2010. Luxembourg: Publications Office of the
European Union.
homeownership does not benefit all pensioners.
Fahey, T. (2007). The case for an EU-wide measure of
Even in countries with high ownership rates, poverty. European Sociological Review, 23(1), 3547.
some older people for whatever reason have not Jeandidier, B., & Kop, J. L. (1998). The convergence
managed to acquire their own homes. The results between different measures of poverty in a static ver-
sus dynamic perspective: An empirical illustration in
for cumulative deprivation indicate that this
France (Trans.). In H. J. Andre (Ed.), Empirical
group is not only excluded from the housing poverty research in a comparative perspective
market but also tends to benefit less from pension (pp. 205226). Aldershot: Ashgate.
transfers: as the homeownership rate increases, Kemeny, J. (1981). The myth of home ownership. Private
versus public choices in housing tenure. London:
the poverty-reducing effect of pensions provision
Routledge & Kegan Paul.
becomes significantly weaker. Although this Muffels, R., & Fouarge, D. (2004). The role of European
interaction might arise from a selection effect, welfare states in explaining resources deprivation.
by which the higher the rate of homeownership, Social Indicators Research, 68(3), 299330.
Nolan, B., & Whelan, C. T. (2010). Using non-monetary
the more selected are the older people who do not
deprivation indicators to analyze poverty and social
own their homes, there is no similar effect for exclusion: Lessons from Europe? Journal of Policy
the other types of poverty. This indicates that Analysis and Management, 29(2), 305325.
certain groups of older people face a double Ringen, S. (1988). Direct and indirect measures of
poverty. Journal of Social Policy, 17(3), 351365.
disadvantage, in both housing opportunities and
Rybkowska, A., & Schneider, M. (2011). Housing condi-
pensions. Fortunately, social housing policies tions in Europe in 2009. In EUROSTAT (Ed.), Statistics
might provide the answer for these groups. in focus (Vol. 4). Luxembourg: European Commission.
D 1594 Detroit Area Studies (DAS)

Sen, A. (1992). Inequality reexamined. Oxford: Oxford Freedman with Samuel Eldersveld from the polit-
University Press. ical science department serving as its principal
Townsend, P. (1979). Poverty in the United Kingdom.
A survey of household resources and standards of investigator. The topic was political behavior in
living. Harmondsworth: Penguin. a metropolitan area. As in most of the subse-
Wolff, P. (2010). 17% of EU citizens were at-risk-of- quent years, the 1952 study used survey research,
poverty in 2008. In EUROSTAT (Ed.), Statistics in the relative new and powerful tool for collecting
focus (Vol. 9). Luxembourg: European Commission.
quantitative data that was appropriate for statisti-
cal analysis. Survey research involved the collec-
tion of information from a multistage sample
of Detroit area residents using standardized ques-
Detroit Area Studies (DAS) tionnaires. The questionnaires were typically
administered in the sampled households to the
Robert W. Marans designated respondents by trained interviewers.
Institute for Social Research, University of The Detroit area was defined as the city of
Michigan, Ann Arbor, MI, USA Detroit, the reminder of Wayne County in
which the city is located and two contiguous
counties Oakland and Macomb.
Synonyms
Process
DAS; Survey research practicum As a practicum, graduate students actively
participated in a full year of coursework in-
volving questionnaire design, face-to-face
Definition interviewing, coding of question responses, data
analysis, and writing papers covering different
The Detroit Area Study (DAS) was a practicum in aspects of the survey. Questionnaire design was
survey research at the University of Michigan largely performed during the fall semester with
(UM) from 1952 to 2004. In 1951, Angus interviewing taking place between semesters
Campbell, the first director of UMs relatively (in December). From the beginning of DAS, it
new Survey Research Center (SRC) put forth was recognized that students were unlikely to
the idea of establishing a Training and Research complete all the assigned interviews during the
Laboratory in the Community (i.e., the Detroit semester break; consequently, professional inter-
area). The laboratory would have three explicit viewers from SRC were contracted to contact
purposes: (1) to provide a research facility and conduct interviews in about half of the
through which basic research can be conducted sampled households. The beginning of the sec-
by social scientists at the University of Michigan, ond or winter semester (January) involved an
(2) to provide an agency for training graduate intensive period of coding leaving students little
students of the social sciences in basic research time for data analysis and the writing of a paper
techniques, and (3) to make available social based on that analysis. This labor-intensive set of
science data of value to the Detroit community. student activities persisted until 1988 when DAS
changed from a two-semester to a three-semester
course sequence. The first semester was now
Description devoted to teaching the fundamentals of survey
research and theoretical issues related to topic
DAS was launched in 1951 with the help of a under investigation while the second semester
Ford Foundation grant secured by Ronald Freed- was used to design and pretest the questionnaire
man, a UM professor of sociology and colleague and launch the interview process. Interviewing
of Campbell (Freedman, 1953). The first DAS typically occurred during and after the final
was conducted in 1952 under the direction of exam period with SRC interviewers completing
Detroit Area Studies (DAS) 1595 D
the remainder of the scheduled interviews a number of reasons. First and foremost, continu-
during the summer months. Coding and file ity of topics over the years was largely nonexis-
building were then relegated to the DAS staff, tent. That is, a new faculty investigator, each
enabling students who entered the third and final with his/her own research interests or agenda,
DAS semester to devote more time to data was selected every year to lead DAS. Topics
analysis and writing their papers. varied from political participation to end-of-life
decisions to quality of urban life. Some topics
Evaluation may have piqued the interest of governmental or
DASs initial purpose of providing a research civic leaders but most were not relevant. More- D
facility through which basic research can be over, DAS was not designed to deal with trends.
conducted by social scientists at U-M has clearly Potentially relevant topics were seldom repeated,
been fulfilled. In 2002, DAS published a 50th providing little opportunity to examine changes
anniversary report summarizing its activities. in public attitudes or behaviors about the
The report identified 37 books based on DAS topic. Among the few replicated studies of poten-
data, 64 dissertations, 437 journal articles, tial interest to decision makers were those dealing
conference papers, and book chapters, and nearly with social indicators (Duncan, Schuman, and
1,200 requests for DAS datasets archived Duncan, 1973); changes in child-rearing prac-
by UMs Inter-University Consortium for Politi- tices (Alwin, 1984, 1986), changes in preferences
cal and Social Research (ICPSR, n.d.) (Couper, for racially mixed neighborhoods (Krysan &
Clemens, & Powers, 2002). When taking into Bader, 2007), and changes in the quality of
account the last three studies carried out after community life (Marans & Kweon, 2011).
the report (2002, 2003, and 2004), these figures Furthermore, faculty investigators were not
are undoubtedly higher. Moreover, 75 faculty inclined to identify pressing informational needs
members representing numerous UM depart- of key governmental, corporate, or institutional
ments (predominantly sociology) have served as actors prior to launching their studies. From an
DAS principal investigators over the years. academic perspective, it was not considered a
In terms of training graduate students in social high priority use of ones time, given that Detroit
science research techniques, there is little dispute was 50 miles from UMs Ann Arbor campus.
that DAS has also been successful. Since its Finally, the Detroit area was geographically
inception, over 1,300 students participated in large and consisted of multiple governmental
the DAS practicum gaining hands-on experience jurisdictions representing diverse constituencies.
in all facets of survey research. Many have gone Data of potential value to one governmental unit
on to teach survey research methods at other were unlikely to be of interest to others in the
universities around the world. During the first region.
few decades of the program, enrollments
averaged between 25 and 30 graduated students Content of studies
in each yearly exercise with the dominant The majority of studies undertaken during its 53
number being students from UMs sociology years of operation involved survey research
department where DAS was required of all its around a substantive topic of interest to the
graduate students. In the mid-1990s, the depart- faculty investigator. Most of the studies relied
ment began to offer two alternative methodolog- on face-to-face interviewing although some
ical requirements and the number of students were supplemented with telephone interviewing
participating in DAS decreased despite an or mail questionnaires. Other studies had a
increase in student participation from other uni- methodological focus including split sample
versity departments. experiments in question form or vignette anal-
It is generally agreed that the third objective ysis combining conventional survey techniques
of making available social science data of value with an experimental factorial design in question
to the Detroit community was not reached for content (e.g., Hamilton & Sanders, 1992).
D 1596 Detroit Area Studies (DAS)

The Demise of DAS Despite the educational benefits of a field inter-


To the disappointment of many at UM and view experience offered to DAS students, there
others throughout the world who had participated was growing pressure to shift to other techniques
in DAS, the program ended in 2005; the last DAS for collecting information.
was conducted in 2004, with the final cohort Although no longer in operation, the legacy of
of students completing their work at the end of DAS remains. Throughout the world, there are
the following year. Several interrelated factors large numbers of DAS alumni in leadership
contributed to its demise. positions at universities and in the world of
As noted above, the DAS course sequence was market research. Many have launched educa-
no longer required of all sociology graduate tional and training programs modeled after DAS
students and consequently, the number of which during its existence offered a comprehen-
students enrolling in DAS began to diminish in sive, hands-on approach to learning the theory
the late 1990s. The diminished number of and practice of survey research.
students resulted in fewer student interviews
and added professional interviewer involvement,
the latter increasing the costs of collecting data. Cross-References
While there were increased DAS enrollments of -
students from other university departments Institute for Social Research Michigan
who wanted training in survey research, this Survey Research
increase was not enough to offset the loss of
sociology students. Thus, the number of com-
pleted interviews diminished over the years and References
with it, the potential for conducting complex
analyses. Alwin, D. F. (1984). Trends in parental socialization
values: Detroit, 1958 to 1983. American Journal of
The increasing costs of data collection were Sociology, 90, 359382.
accompanied by an increase in DAS staff salaries Alwin, D. F. (1986). Religion and parental child-rearing
and other operating costs. This occurred orientations: Evidence of a Catholic-Protestant con-
during a period when university budgets were vergence. American Journal of Sociology, 92,
412440.
being strained and despite supplemental DAS
Couper, M. O., Clemens, J., & Powers, K. (2002). Detroit
funding from the sociology department and areas study 19522001: Celebrating 50 years. Ann
SRC, the overall cost of operating DAS far Arbor: University of Michigan.
exceeded expenses. Additional expenditures Duncan, O. D., Schuman, H., & Duncan, B. (1973). Social
change in a metropolitan community. New York: Rus-
also included the funding of modest financial
sell Sage.
incentives needed to ensure the cooperation of Freedman, R. (1953). The Detroit area study: A training
sampled persons. For various reasons, response and research laboratory in the community. American
rates for surveys in general and for surveys in the Journal of Sociology, 59, 3033.
Hamilton, V. L., & Sanders, J. (1992). Everyday justice:
Detroit region had decreased over the years and
Responsibility and the individual in Japan and the
incentives of various kinds have been increas- United States. New Haven: Yale University Press.
ingly used to induce respondent participation. ICPSR. (n.d.). Detroit area studies series. https://
Finally, face-to-face interviewing was becom- www.icpsr.umich.edu/icpsrweb/ICPSR/series/00151.
Accessed 25 February 2013.
ing less cost-effective in terms of increased
Krysan, M., & Bader, M. (2007). Perceiving the metrop-
time necessary to find the sampled household, olis: Seeing the city through a prism of race. Social
enlist the cooperation of the designated respon- Forces, 86(2), 699733.
dent, and conduct the interview. At the same Marans, R. W., & Kweon, B. S. (2011). The quality of life
in metro detroit at the beginning of the millennium. In
time, advances in telephone interviewing proce- R. W. Marans & R. Stimson (Eds.), Investigating
dures were rapidly taking place, promising sig- quality of urban life: Theory, methods, and empirical
nificant cost savings in conducting surveys. research. Dordrecht, NL: Springer.
Developing Countries 1597 D
research into local conceptions of quality of life.
Developing Countries Whether researchers are exploring quality of life
quantitatively or qualitatively, they all share an
Laura Camfield interest in what it means for different people to
Department of International Development, live well or badly in their environment. The
University of East Anglia, Norwich, UK increasing emphasis on the subjective and on
peoples relationships is paralleled by an expan-
sion of measures of objective quality of life to
Synonyms include aspects other than income. This means D
that measures can capture the multidimen-
Emerging and developing economies; Global sionality of poverty and include nontraditional
South; Less developed countries; Majority domains such as agency or shame (Alkire,
world; Relatively poor countries; Third world 2007). This entry focuses on measuring subjec-
tive quality of life in developing countries as this
has lagged behind the measurement of objective
Definition quality of life. It is an ethical priority as it reflects
a growing interest in how people in developing
Every financial year the World Bank uses a mea- countries view themselves, their lives, their
sure of gross national income per capita to define immediate surroundings, and their larger social
countries as low income (<$995), middle income situation. For example, recent research on the role
($996$12,195, subdivided into lower and upper of core affect and the homeostasis of subjective
middle), or high income (>$12,196) http://data. well-being in keeping responses to global life
worldbank.org/about/country-classifications. The satisfaction questions stable and positive may
middle- and low-income countries are labeled provide a fresh perspective on the problem of
developing and include most of the countries in adaptation or false consciousness. Finally,
Africa and Asia (a similar exercise is carried out working in very different environments encour-
using the Human Development Index and clas- ages researchers to reflect on their normative
sifying countries scoring below 0.89 out of 1.00 as assumptions and measurement practices. For
developing). Developing countries contain example, the extent to which quality of life mea-
8385 % of the worlds population (5.7 billion), sures are appropriate technologies (i.e., work
depending on whether income or human devel- equally well in resource-poor environments), the
opment is used as the measure (http://www.prb. challenges of translation, and the ethics of
org/pdf10/10wpds_eng.pdf). research with people who are relatively poor and
powerless.
The main actors in this field are the social
Description indicators movement and health-related
quality of life where cross-cultural assessment
The measurement of subjective quality of life or of individual quality of life is well established
well-being in developing countries is an (Schmidt & Bullinger, 2006). These comprise
expanding area which despite its challenges has people from the following disciplines: economics
the potential to improve international and local (especially development and happiness
understanding of the challenges faced by people economists), psychology (health and social
in these environments and the policies and psychologists), social policy, community devel-
interventions that will support their responses opment, and most recently, development studies.
(Camfield & McGregor, 2009). This expansion Individual quality of life measures are becoming
has become possible through greater sophistication part of development practice as they can assist
in measurement, combined with multidisciplinary needs assessment, planning, monitoring, and
D 1598 Developing Countries

evaluation (Copestake & Camfield, 2010). Comparative Study of Electoral Systems,


Data from these measures could also help devel- Latinobarometer, Afrobarometer, East Asia
opment policymakers and practitioners choose Barometer, AsiaBarometer, Arab Barometer,
between types of intervention and justify these Globalbarometer, and Social Weather Station
decisions in terms of outcomes and the efficiency in Latin America, Asia, and Africa (see http://
of resource allocation (see the 3-Dimensional www.eur.nl/fsw/research/happiness/).
Human Well-being (http://www.ids.ac.uk/down- 2. Global, multiple item, unidimensional, for
load.cfm?objectidEEF7C7D1-9C06-F4AB-57C example, the Satisfaction with Life Scale
B96843B4FA275) and Well-being and Poverty (SWLS, Diener, Emmons, Larsen, & Griffin,
Pathways approaches (www.wellbeingpathways. 1985), which measures satisfaction with life
org)). Although individual quality of life mea- as a whole and has been used in the majority of
sures are relatively new to development studies, developing countries, including Ethiopia,
they have a number of advantages over qualita- Bangladesh, Zambia, Peru, India, Argentina,
tive methods. For example, (a) they do not require Cape Verde, Angola, South Korea, Nepal,
special expertise to use, (b) they are quick to South Africa, Taiwan, various Arabic-
administer and analyze and so take less time speaking countries, China, and Thailand
from the researcher and the respondent (reducing These are primarily used to measure peo-
costs on both sides), (c) they can be combined ples satisfaction with their life as a whole or
with other methods (e.g., as a module in single psychological traits like anxiety.
a household survey), and (d) they may have Although multi-item measures take longer to
more credibility with policymakers than partici- administer, they are thought to have greater
patory methods, despite having the same reliability and validity than single items as
subjective element (White & Pettit, 2005). In they have less variability due to item-
the remainder of the entry, I describe the placement effects or external influences at
types of measure currently used in developing the time of response. For this reason, the fact
countries, discuss some of the challenges, and that the SWLS generally gives lower values
provide some examples of how these challenges for life satisfaction than single items is
have been engaged with. interpreted as a sign that it is less affected
The three main types of measure used in by biases such as global positivity. The pre-
developing countries are: cision of these measures is enhanced by larger
1. Global, single item, unidimensional, for response scales (5, 7, or 11 points, rather than
example, the Global Happiness Question the 3- or 4-point scales used with global single
used in the Barometer surveys of social and items). However, these can prove a problem
political attitudes for translation and interview administration if
These capture peoples happiness and sat- scales with adjectival descriptors are used as
isfaction with their life as a whole, mainly some languages do not have sufficient mea-
using three-, four-, or 10-point scales. They surement words to draft meaningful response
are quick and simple to administer and easy options (this is why the Personal Well-being
both for respondents to understand and Index uses an 11-point End-Defined Response
researchers to analyze; however, they can Scale (010, extremely dissatisfied to
have a high ratio of error variance to true extremely satisfied, with a midpoint labeled
variance. The measures are used to address neither satisfied nor dissatisfied)).
topical issues (e.g., effects of political conflict), 3. Profile, multidimensional, with either
generate longitudinal data sets to explore the overlapping or independent domains, for
effect of processes such as globalization, and example, the World Health Organization
provide accurate data for planning. They are Quality of Life Measure 100 items
included in population surveys such as World (WHOQOL-100, World Health Organization
Values, International Social Survey Program, Quality of Life [WHOQOL], 1995) or the
Developing Countries 1599 D
Personal Well-being Index (PWI, Cummins, observes that the ethnocentricity of assuming
Eckersley, Pallant, van Vugt, & Misajon, that a measure developed in, say, the USA, or
2003), which is often administered alongside England, will be applicable (after adaptation) in
the National Well-being Index pretty much any country or language in the
There are two forms of profile measure: world... is highlighted if one imagines the
(1) overlapping, which explore different aspects chances of a health questionnaire developed
of a complex construct such as social support, and in Bali, Nigeria, or Hong Kong being deemed
(2) independent, which ask the respondents to suitable for use in Newcastle, Newark, or Nice.
judge their quality of life, or another construct, Translation also presents problems as even D
across a range of separate domains and do not where concepts are understood across cultures
attempt to produce a total score. Profile measures they often require more than one word to convey
are usually phrased in terms of satisfaction with their meaning. For example, in Thailand the
specific domains of life, but they can use other best translation of well-being is kin dee, yu
question stems, for example, relating to fre- dee (eat well, live well). A good translation
quency. They may include an element of from the original into the target language is
weighting (e.g., the WHOQOL importance a precondition of successful measure adaptation.
scores), as this increases face validity; However, for this to be possible there needs to be
however, its explanatory value is still debated. a similar concept of, for example, health in both
Alternatively, measures can be entirely individu- cultures that is used in the same way and has the
alized, for example, the Cantril Self-Anchoring same relationship to other values. There should
Striving Scale, which uses person-defined end- also be a comparable system of, for example,
points, or the Global Person Generated Index. health care and medical education, assumptions
The most widely used profile measure within that would not be plausible in Europe, let alone
international health research is the WHOQOL, internationally. For this reason some authors
with over 50 different language versions, and argue that rather than trying to transpose a
within social indicators research the Personal measure from one language to another as closely
Well-being Index, used in over 40 countries. as possible, the inconsistencies, ambiguities, and
Measuring quality of life in any setting is untranslatable expressions identified during
challenging, for example, capturing meaning as translation should be used to reformulate the
well as function and the intangible or social original questionnaire.
aspects of peoples experiences, being explicit Many different forms of equivalence have
about the conceptual foundations of measures been proposed to assess the quality of a
to increase the accuracy of interpretation and translation, but the most comprehensive account
translation (Bowden & Fox-Rushby, 2003), and is given by Herdman, Fox-Rushby, and Badia
managing culturally specific response biases. (1998:331) who makes the following distinc-
However, these challenges are more acute in tions: conceptual (the measure has the same rela-
developing countries when they are compounded tionship to the underlying concept in both
by logistical problems such as low literacy, cultures, evidenced by the choice of domains
respondents unfamiliarity with scales or with and the emphasis placed on different domains),
articulating their inner feelings and experiences, item (estimates the same parameters on the latent
and lack of psychometrically validated translated trait being measured and is equally relevant and
measures or population data. Two further acceptable in both cultures), semantic (achieves
problems, which I discuss in more detail, are a similar effect on respondents who speak
ethnocentricity and translation. Many scales different languages; this should not be
are founded on concepts of quality of life confused with a literal translation, which may
that are normative and culturally specific be meaningless), operational (similar question-
(Christopher, 1999) or use inappropriate or naire format, instructions, mode of administra-
irrelevant reference points. Hunt (1999: 230) tion, and measurement method), measurement
D 1600 Developing Countries

(psychometric properties are equivalent), and local understandings of the good life and should
functional (when an instrument does what it is therefore be preceded by extensive qualitative
supposed to do equally well in two or more and participatory work (Camfield, Crivello, &
cultures). This attention to the different aspects Woodhead, 2008). Thorough pretesting is also
of translation is important and illustrates the important, as there is little point in administering
value of thorough pretesting and piloting of a measure if you are not sure what it is measuring.
adapted measures. The experience of answering irrelevant or badly
There are measures developed or adapted for drafted questions can also visibly reduce the qual-
use in developing countries that address these ity of life of both researcher and respondent! In
challenges by basing the content of their mea- developing countries as in all areas of practice,
sures on extensive qualitative research and carry- the best measures are the ones that are fit for
ing out rigorous pretesting. Examples include the purpose. So while domain-specific or even
KENQOL health-related quality of life measure objective assessments might give a more accurate
(Bowden, Fox-Rushby, Nyandieka, & Wanjau, evaluation of the persons current state, if the
2002), the GPGI individualized measure researcher wanted to know their basis for deci-
(Camfield & Ruta, 2007), and the WeDQoL mea- sion-making or planning (e.g., shall I join this
sure of subjective quality of life, which was new credit and savings group?), they might be
developed by the Well-being in Developing better off using a global assessment. Similarly, if
Countries ESRC Research Group (WeD, www. a policymaker wanted to know about peoples
welldev.org.uk) in Ethiopia, Thailand, Peru, and satisfaction with their health in order to plan or
Bangladesh. WeD based their measure on evaluate an intervention, then a profile measure
a definition of subjective quality of life as arising would be the best choice and could be
from the disjuncture between what people aspire supplemented with a global measure to calculate
to and their evaluation of their ability to achieve what affect their dissatisfaction with their health
those aspirations. This recognizes that the was having on their life as a whole.
goals that people regard as important for their
well-being include material items but also
relationships, personal qualities, and disposi- Cross-References
tions. Measure development involved a review
of existing methods of subjective quality of life Cantril Self-Anchoring Striving scale
used in developing countries and open-ended Core Affect
qualitative research by local fieldworkers in Error Variance
each of the four countries to identify what local Ethics
people regarded as important goals for their Global Person Generated Index
quality of life (Camfield, 2006). The WeDQoL Gross National Product (GNP)
contained two components addressing subjective Happiness
well-being (adaptations of the SWLS and Health-Related Quality of Life
PANAS) and aspirations (WeDQoL-goals) Human Development
and was pretested, piloted, and psychometrically Human Development Index
validated in all four countries (see Woodcock National Well-being Index
et al., 2009 for an account of this process in Personal Well-being Index
Thailand). Positive and Negative Affect Schedule
Developing better measures of quality of life (PANAS)
for people in developing countries is clearly Satisfaction with Life
important as GNP per capita is a fairly weak Satisfaction with Life Scale (SWLS), an
proxy for many of the things commonly associ- Overview
ated with the good life (Kenny, 2005: 209). Social Indicators
However, the measures used need to reflect Well-being
Development 1601 D
References Schmidt, A., Bullinger, M. (2006). Cross-cultural quality
of life assessment approaches and experiences from
Alkire, S. (2007). The missing dimensions of poverty data: the health care field. In I. Gough, & J. A. Mcgregor
Introduction to the special issue. Oxford Development (Eds.), Wellbeing in developing countries: New
Studies, 35(4), 347359. approaches and research strategies. Cambridge:
Bowden, A., & Fox-Rushby, J. A. (2003). A systematic and Cambridge University Press
critical review of the process of translation and adapta- White, S., & Pettit, J. (2005). Participatory approaches
tion of generic health-related quality of life measures in and the measurement of human wellbeing.
Africa, Asia, Eastern Europe, the Middle East, South In M. McGillivray (Ed.), Measuring human wellbeing.
America, Social Science & Medicine, 57(7), 12891306. Oxford: WIDER/Oxford University Press.
WHOQOL Group. (1995). The World Health D
Bowden, A., Fox-Rushby, J. A., Nyandieka, L., &
Wanjau, J. (2002). Methods for pre-testing and Organisation Quality of Life assessment (WHOQOL):
piloting survey questions: Illustrations from the Position paper from the World Health Organisation.
KENQOL survey of HR-QoL. Health Policy and Social Science & Medicine, 41, 14031409.
Planning, 17, 322330. Woodcock, A., Camfield, L., McGregor, J. A., & Martin,
Camfield, L. (2006). Why and how of understanding Sub- F. (2009). Validation of the WeDQoL-Goals-Thailand
jective well-being: Exploratory work by the WeD measure: Culture-specific individualised quality of
group in four developing countries. Well-being in life. Social Indicators Research, 94(1), 135171.
Developing Countries Working Paper 26.
Camfield, L., & McGregor, J. A. (2009). Editorial. Quality
of life and international development policy and prac-
tice. Applied Research in Quality of Life, 4(2), 129134.
Camfield, L., & Ruta, D. (2007). Translation is not Developing Land for Growing
enough: Using the Global Person Generated Index
(GPGI) to assess individual quality of life in Bangla- Gardening
desh, Thailand, and Ethiopia. Quality of Life Research,
16(6), 10391051.
Camfield, L., Crivello, G., & Woodhead, M. (2008). Well-
being research in developing countries: Reviewing the
role of qualitative methods. Social Indicators Research, Development
90(1), 531.
Christopher, J. C. (1999). Situating psychological
wellbeing: Exploring the cultural roots of its theory Craig Talmage
and research. Journal of Counseling and Development, Community Resources and Development,
77, 141152. Arizona State University, Tempe, AZ, USA
Copestake, J., & Camfield, L. (2010). Measuring
multidimensional aspiration gaps: A means to under-
standing cultural aspects of poverty. Development
Policy Review, 28(5), 617633. Synonyms
Cummins, R. A., Eckersley, R., Pallant, J., van Vugt, J., &
Misajon, R. (2003). Developing a national index of Growth; Organizational change; Positive change;
subjective wellbeing: The Australian Unity Wellbeing
Index. Social Indicators Research, 64(2), 159190. Progress
Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S.
(1985). The satisfaction with life scale. Journal of
Personality Assessment, 49(1), 7175. Definition
Herdman, M., Fox-Rushby, J., & Badia, X. (1998).
A model of equivalence in the cultural adaptation of
HRQL instruments: The universalist approach. Qual- An effective change process aimed towards
ity of Life Research, 7, 323355. positive impact that is facilitated through the
Hunt, S. (1999). The researchers tale: A story of virtue efficient use of resources.
lost and regained. Quality of Life Research, 8(7), 556.
In Joyce, C. R. B., OBoyle, C. A., & McGee, H.
(1999). Individual quality of life: Approaches to con-
ceptualization and assessment. Amsterdam/Nether- Description
lands: Harwood Academic.
Kenny, C, (2005). Why are we worried about income?
Nearly Everything that Matters is Converging. World Development is a change process that results from
Development, Elsevier, 33(1), 119. a number of different inputs and spurs a number of
D 1602 Development

different outcomes depending on your research development situations. Any developer, practi-
lens or project scope. Development relies heavily tioner, or researcher must always account for
on the goals of the parties interested in stimulating error.
development. Thus, development is seen as an Additionally, researchers and practitioners
effective process based on the degree to which usually refrain from seeing growth and
goals have been reached (Boulmetis & Dutwin, development as fully synonymous. Blair (1995)
2011, p. 24). commented that growth with regards to economic
The outcome of development is a developed and community development can both improve
entity, which can be a person, place, or object. and harm communities in the long run. Phillips
In order for development to be successful, and Pittman noted the following: Since growth
its inputs (also called resources) need to be does not always equate with a better standard of
used efficiently. Efficiency in terms of program living, a higher order concept of economic devel-
development is seen as the degree to which opment is needed that better reflects the actual
a program or project has been productive in well-being of residents (p. 9). Therefore, much
relationship to its resources (Boulmetis & development research and practice has moved to
Dutwin, 2011, p. 24). focus on sustainable development seen as
The short-term or long-term impact of development that meets the needs of the
development thus depends on the effectiveness present without compromising the ability of
of the development process and the efficient use future generations to meet their own needs
of resources. Impact within program develop- (World Commission, 1987). The initial definition
ment is seen as the degree to which a program above assumes that development spurs positive
or project resulted in changes (Boulmetis & impact; if the impact is not positive, then it should
Dutwin, 2011, p. 24). It is no wonder that not be considered as development.
dictionaries like Collins English Dictionary see Development is expressed in multiple domains.
development as the act or process of growing, An individual seeking to understand development
progressing, or developing. The important would likely find his or her information in the
commonality that the somewhat synonymous following three realms: (1) the development of
words growing, progressing, or developing objects, tools, or other things; (2) the development
share is that they all are active verbs reflecting of organizations, communities, and other groups
change, assumingly positive change. The or institutions; and (3) the development of
short-term or long-term effects are determined individual persons. Notably, these may not be the
strongly by the agendas of the parties interesting only realms of development.
in facilitating development. The science and technology field mainly
Development is defined as a process that is focuses on developing objects, tools, or other
facilitated because often not all variables can things. Many researchers focus on topics such as
be accounted for in the development process; green development, energy development, drug
one cannot simply create development. Inputs development, or software development. All of
can be manipulated, but unforeseen changes these forms of development are aimed at discov-
to these inputs can occur throughout the develop- ering knowledge or tools that will hopefully better
ment process unbeknownst to or out of the humanity. This scientific process of discovery
control of the change agent, the person or entity requires an understanding of how inputs and pro-
facilitating the change (Cummings & Worley, cesses result in expected or unexpected outcomes.
2009). The same situation could occur as well The development of organizations, commu-
to the process itself, and sometimes byproducts nities, and other institutions is another
or unintended consequences or outcomes well-researched field more rooted in the social
may result from even the most well-planned sciences. Organizational development is defined
Development 1603 D
by Cummings and Worley (2009) as a job experiences, relationships, and assessments
systemwide application and transfer of behavior of personality and abilities that help employees
science knowledge to the planned development, prepare for the future (p. 502). All of these
improvement, and reinforcement of the strate- noted items are processes that fit well within the
gies, structures, and processes that lead to orga- present definition of development. Developmen-
nization effectiveness (p. 2). This definition tal experiences in the work place are aimed at
shares many similarities to the presented defini- increasing positive workplace outcomes.
tion of development. Organizational develop- Another description concerns personal devel-
ment based on the goals of the persons opment, which is illustrated well by the work of D
interested in organizational change (i.e., change Rath and Harter (2010). They suggested there
agents) uses knowledge as inputs to plan effective are five elements of well-being that a person
processes that will lead hopefully to short- and should work to develop: (1) career well-being,
long-term positive impact. (2) social well-being, (3) financial well-being,
Community development is another form of (4) physical well-being, and (5) community
institutional or group development. Phillips and well-being. Rath and Harter (2010) provide
Pittman (2009) defined community development readers of their book tangible ways that they can
broadly as: improve these five elements and develop
A process: developing and enhancing the ability their own well-being. The psychological growth
to act collectively, and an outcome: (1) taking of individuals is important and should not be
collective action and (2) the result of that action forgotten as an aspect of development.
for improvement in a community in any or all On a final note but not shown in the above
realms (p. 6)
definition, development can be seen as an ideol-
Their definition takes development a step further ogy. An ideology of development is an ideology
than the understanding of development as a pro- of action. This ideology of action looks to restruc-
cess and includes its outcomes in their definition. ture systems as big as world order or as small
Even still, inputs are used (i.e., knowledge, train- as incremental changes to improve persons, orga-
ing) to work to develop and enhance the ability of nizations, governments, or communities (see
the collective to act to make their community Robinson & Green, 2011).
better. Development thus remains an effective
Another example of development is economic change process aimed towards positive impact
development. Economic development defined that is facilitated through the efficient use
by Phillips and Pittman (2009) is the process of of resources. As mentioned earlier, development
creating wealth through the mobilization of spurs positive impact; if the impact is not
human, financial, capital, physical and natural positive, then it should not be considered as
resources to generate marketable goods and development. Development has the ability to
services (p. 8). Like all development, economic increase the quality of life of persons on individ-
development is a process that requires inputs ual (i.e., professional development), institutional
(i.e., human resources) that result in effective (i.e., community development), and knowledge-
outcomes (i.e., marketable goods and services). seeking levels (i.e., scientific development).
Thirdly, the development of individual Development as a process likely will not decrease
persons is another area in which development is as a topic of interest over time and should con-
illustrated on a personal level. A great deal of tinue to be researched and practiced.
research has gone into professional or employee
development and training (Noe, 2008). Noe Cross-References
(2008) defines development, specifically
employee development, as formal education, Community Participation
D 1604 Development of Social Indicators

References
Developmental Assets
Blair, J. P. (1995). Local economic development: Analysis
and practice. Thousand Oaks, CA: Sage.
Claire Topping
Boulmetis, J., & Dutwin, P. (2011). The ABCs of evalua-
tion: Timeless techniques for program and project Whittington Health, London, UK
managers (3rd ed.). San Francisco: Jossey-Bass.
Cummings, T. G., & Worley, C. G. (2009). Organization
development and change (9th ed.). Mason, OH: South-
Wester CENGAGE Learning.
Synonyms
Development. (n.d.). Collins English dictionary Complete
& unabridged 10th edition. Retrieved April 20, 2012, External and internal assets; Positive youth
from Dictionary.com website: http://dictionary.refer- development; Protective health factors
ence.com/browse/development
Noe, R. A. (2008). Employee training and development
(4th ed.). New York: McGraw-Hill Irwin.
Phillips, R., & Pittman, R. H. (2009). A framework for Definition
community and economic development. In R. Phillips
& R. H. Pittman (Eds.), An introduction to community
A developmental asset is an internal or external
development (pp. 319). New York: Routledge.
Rath, T., & Harter, J. (2010). Well-being: The five resource that assists any child or young person to
essential elements. New York: Gallup Press. achieve health and well-being, i.e., thrive.
Robinson, J. W., Jr., & Green, G. P. (Eds.). (2011). Intro-
duction to community development: Theory, practice,
and service-learning. Thousand Oaks, CA: Sage.
World Commission on Environment and Development. Description
(1987). Our common future. New York: Oxford
University Press. Developmental assets encompass a wide range of
concepts such as relationships, opportunities, and
personal qualities and can be explored at the level
of the individual, family, or community settings
such as schools. The term youth asset is also
Development of Social Indicators sometimes used when referring to older children
and/or adolescents.
History of Social Indicators and Its Evolution Much of the research related to developmental
assets has taken place in North America, with an
emerging evidence base regarding interventions.
Through the systematic collation of survey
Development Studies Website data across several decades, the Search Institute
has identified 40 developmental assets which are
Praxis subdivided into 20 internal and external assets
(Benson, 2006; Scales & Leffert, 1999).
Cross-sectional studies from the Search Insti-
tute indicate that that there is a positive correla-
Development Theory tion between high numbers of assets and positive
behaviors such as leadership, good health,
Marital Adjustment over 25 Years valuing diversity, and succeeding in school. Con-
versely, low numbers of developmental assets
correlate strongly with the increased likelihood
of high-risk behaviors such as problem alcohol
Development, Spiritual use, violence, illicit drug use, and sexual activity.
Within interventional studies based on the
Adolescents and Spirituality Search Institute model, the emphasis is on raising
Developmental Disabilities 1605 D
the overall number of assets available to all chil- adolescence: An assets-based analysis. Health &
dren and young people rather than focusing on Social Care in the Community, 18(2), 189198.
Scales, P. C., & Leffert, N. (1999). Developmental assets:
building individual assets. As such it can be A synthesis of the scientific research on adolescent
aligned with a public health approach with development. Minneapolis, MN: Search Institute.
associated interventions designed to work Sesma, A., Jr., Roehlkepartain, E. C., Benson, P. L., & Van
preventatively across the whole population rather Dulmen, M. (2003). Unique strengths, shared strengths:
Developmental assets among youth of color. Search
than focusing on those with specific needs. There Institute Insights & Evidence, 1(2), 113.
is emerging evidence that while the relationship
between overall numbers of assets and positive D
behaviors holds across ethnic and social groups,
there are also differences (Sesma, Roehlkepartain, Developmental Delays
Benson & Van Dulmen, 2003).
In addition to the specific approach described Developmental Disabilities
above, asset-based frameworks are increasingly
being utilized to explore specific issues within the
public health agenda such as child obesity. For
example, Fenton et al. (2010) investigated the Developmental Disabilities
processes and factors that contribute to the acqui-
sition of body image among young people. Using Anne Wheeler
secondary data analysis of the WHO Health Carolina Institute for Developmental Disabilities,
Behaviour in School-Aged Children Study University of North Carolina at Chapel Hill,
(1115 years old), they found that adolescents Chapel Hill, NC, USA
who self-identified as having a positive body
image were more likely to report ease of talking
with a father figure, feeling intelligent, perceiv- Synonyms
ing that their family were well-off, and a belief
that their teachers were interested in them as Developmental delays; Intellectual disabilities
people. When these findings are compared to
some of the developmental asset categories
provided by the Search Institute, it is interesting Definition
to note that there are some similarities particu-
larly regarding positive family communication, Developmental disability (DD) refers to a diverse
a caring school climate, and high self-esteem. group of chronic conditions that involves physical
and/or mental/cognitive impairment. Individuals
with DD have significant, lifelong limitations in
Cross-References self-sufficiency, learning, language, mobility,
and/or self-care. DD is generally associated with
Adolescent Life Satisfaction Measurement mild to severe intellectual disabilities, onset
Child Participation occurs before the age of 18, and it affects 12 %
Salutogenesis of the western population. Causes for DD vary
widely but include genetic and chromosomal
disorders, autism spectrum disorder, brain injury
References or infection during or prior to birth, extreme
prematurity, poor prenatal nutrition or care, and
Benson, P. L. (2006). All kids are our kids: What commu- severe child abuse. Quality of life for individuals
nities must do to raise caring and responsible children
and adolescents (2nd ed.). San Francisco: Jossey-Bass.
with DD and their families/caregivers has been
Fenton, C., Brooks, F., Spencer, N. H., & Morgan, A. a focus of research aimed at improving the
(2010). Sustaining a positive body image in well-being of individuals with DD.
D 1606 Developmental Disabilities

Description empowerment and self-management, increasing


the persons self-image, and involving the indi-
Prior to the 1960 normalization movement, QoL vidual in all stages of any intervention that is
for individuals with DD was thought of primarily implemented (Brown et al., 2009). However, for
with regard to maintaining physical health and individuals with DD, whose independence with
basic life-sustaining needs. However, with a shift daily activities is often limited by their disability,
in focus toward individual human rights, consideration of ways to improve their overall
there has been an increase in cultural sensitivity QoL is crucial for those providing support
and a promotion of QoL for individuals with (Verdugo & Schalock, 2009). Furthermore, for
DD being multidimensional and requiring individuals with DD, consideration of their
involvement of the individual within their involvement, including choices, and opportuni-
natural communities (Brown, Schalock, & ties for experiencing a variety of options and
Brown, 2009). In 2002 a group of international activities relies significantly on the developmen-
researchers developed a document (Schalock tal context. In other words, it is important to
et al., 2002) to outline core principles related to consider the individuals mental/developmental
the conceptualization, application, and measure- age as well as their chronological age (Brown
ment of QoL for individuals with DD. These et al., 2009). While the amount and degree of
principles provide direction with regard to QoL the ability to be involved in decision-making
(1) as a way to provide reference and guidance for will vary based on the level of impairment, the
improving the well-being of the individual provision of choice appears to be crucial for
with DD and (2) as a way to understand and increasing self-image, motivation, interests and
promote family well-being for parents and other ultimately the QoL of individuals with all levels
caregivers who provide direct care for individuals of DD severity (Brown & Brown, 2009). There-
with DD. Further, QoL as a concept is more fore, there has been an increasing focus on how to
frequently used within policy development as an provide individuals with DD more opportunities
outcome measure for programs and service for choice making in an effort to increase their
provision. QoL. In an effort to provide guidance for service
and support providers who wish to promote
Quality of Life for Individuals with DD choice making for their clients or family members
QoL for individuals with DD does not differ with DD, Brown and Brown (2009) outline a
significantly from the concept of QoL for all four-step strategy for integrating choice into
people across cultural and developmental daily practice. These steps include (1) assessing
contexts, individuals tend to value the same gen- the acceptance of choice in the environment;
eral aspects of life (Brown & Brown, 2003; Keith, (2) determining ways to increase opportunities;
2001). Beyond basic life-sustaining needs such as (3) determining how choice making can increase
food, shelter, and safety, other aspects of QoL skills, initiative, and freedom for the individual;
that are often considered important to many and (4) increasing the skills of the individuals who
people (although the importance of each may support those with DD in order to encourage and
vary significantly by individual) are having a support choice making.
satisfactory job or career, being involved in
hobbies or pursuing specific interests, having sat- Quality of Life for Caregivers
isfying interactions with others, maintaining a The presence of a family member with DD is
certain level of health or fitness, engaging in reli- increasingly recognized as having an impact on
gious or cultural opportunities, and many others the overall QoL of family members, especially
(Brown et al., 2009). Applying QoL for all indi- primary caregivers (Turnbull, Brown, & Turnbull,
viduals generally starts with identifying what is 2004). Research has documented increased stress
most important to the person, allowing and and burden, as well as greater prevalence of
following the individuals choices, encouraging mental health problems among caregivers of
Developmental Disabilities 1607 D
individuals with DD (Bode, Weidner, & Storck, Impact for Policy
2000). However, conceptually, QoL cannot be Increasingly, western cultural and societal con-
considered an absence of stress or mental health texts are emphasizing sensitivity to individuals
problems as these psychosocial constructs do not with DD, which is reflected in public policy that
capture the multidimensional aspects of parent provides that all individuals have a right to lives
child or family-level interactions. Further, focus- of quality. Therefore, enhancement of QoL for
ing on the negative aspects of caregiver burden people with DD is becoming a priority within
captures only one component of the greater programs that serve this population. As a result,
impact of disability on individual family mem- QoL has become an emphasized outcome D
bers or the family as a unit (Summers et al., 2005). measure within the evaluation of programs and
In order to more fully capture the complexity of services designed for individuals with DD
QoL for families affected by DD, Zuna, Turnbull, and their families. Promotion of empirically
and Summers (2009) propose a theoretical model based services to promote QoL has therefore
for use by researchers and service providers in been emphasized with additional focuses on the
conceptualizing and promoting family QoL. This most appropriate ways to measure QoL within
model of four concepts is thought to interact in the the context of program evaluation. Guidelines,
overall QoL of families of individuals with DD. performance indicators, outcome measures, and
These concepts include (1) systemic concepts, other programmatic requirements are more and
which include systems (e.g., healthcare, educa- more frequently being issued by governmental
tion, and legal systems), policies (e.g., educational programs in an effort to promote QoL for
rights), and programs (e.g., early intervention or individuals with DD (Verdugo & Shalock, 2009).
vocational programs); (2) performance concepts,
which include services (e.g., social and health-
related activities) and supports (e.g., information Cross-References
about resources, emotional support from teachers
or other parents); (3) individual-member con- Childhood Diseases and Disabilities
cepts, which include basic demographics (e.g., Disability and Health
age, gender, type of disability), characteristics Down Syndrome
(e.g., challenging behaviors, mental health or Intellectual Disability
health needs of the individual with DD or other
family members), and beliefs (e.g., attributions of
meaning, expectations); and (4) family-unit References
concepts, which include family characteristics
Bode, H., Weidner, K., & Storck, M. (2000). Quality of
(e.g., family income, size of the family) and life in families of children with disabilities. Develop-
family dynamics (e.g., interactions among family mental Medicine and Child Neurology, 42, 354.
members, communication, cohesion). Brown, I., & Brown, R. I. (2003). Quality of life and
Using this theoretical model as a guide, prac- disability: An approach for community practitioners.
London: Jessica Kingsley.
titioners seeking to promote QoL among family Brown, I., & Brown, R. I. (2009). Choice as an aspect of
members of individuals with DD can examine the quality of life for people with intellectual disabilities.
familys understanding of the systemic compo- Journal of Policy and Practice in Intellectual
nents involved in DD policy, explore service and Disabilities, 6, 1017.
Brown, R. I., Schalock, R. L., & Brown, I. (2009). Quality
support resources, and assess the strengths and of life: Its application to persons with intellectual
needs of the individual family members as well as disabilities and their familiesIntroduction and over-
the family as a unit. Evaluation of these areas view. Journal of Policy and Practice in Intellectual
can assist in explaining a lower family QoL and Disabilities, 6, 26.
Keith, K. D. (2001). International quality of life: Current
provide direction for specific interventions to conceptual, measurement and implementation issues.
promote well-being among the individual with International review of Research in Mental Retardation,
DD and their families. 24, 4974.
D 1608 Developmental Disability

Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., characteristics devalued by society, such as peo-
Felce, D., Matikka, L., et al. (2002). Conceptualiza- ple with mental illness, should be characterized
tion, measurement, and application of quality of life
for persons with intellectual disabilities: Report of an as deviant.
international panel of experts. Mental Retardation, 40,
457470.
Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Description
Hoffman, L., Mannan, H., et al. (2005). Conceptualiz-
ing and measuring family quality of life. Journal of
Intellectual Disability Research, 49, 777783. Deviance is related to a variety of problems in
Turnbull, A., Brown, I., & Turnbull, H. R. (2004). Family education, work, marriage, economic circum-
quality of life and people with mental retardation: Inter- stances, and health. It can have profound
national perspectives. Washington, DC: American
Association on Mental Retardation. effects on individuals quality of life through its
Verdugo, M. A., & Schalock, R. L. (2009). Quality of life: influence on education, employment, economic
From concept to future applications in the field of status, family status, and ones health.
intellectual disabilities. Journal of Policy and Practice There is no consensus on the definition of
in Intellectual Disabilities, 6, 6264.
Zuna, N. I., Turnbull, A., & Summers, J. A. (2009). Family deviance. Some consider deviance a violation of
quality of life: Moving from measurement to applica- social norms that attracts others disapproval, such
tion. Journal of Policy and Practice in Intellectual as behaviors that are considered crimes or
Disabilities, 6, 2531. delinquency. Others argue that individuals
with characteristics devalued by society, such as
people with mental illness, should be character-
ized as deviant. Here, I will focus on the first
Developmental Disability definition.
Gottfredson and Hirschi (1990) claim that
Down Syndrome individuals with early propensities toward crime
(e.g., low self-control) tend to persist in behaving
throughout adulthood in ways consistent with this
tendency. According to Gottfredson and Hirschi,
Deviance other than individual differences, the major cause
of low self-control in young people is inept
Kuei-Hsiu Lin parenting in their families. People who lack
Sociology, National Taipei University, self-control tend to be impulsive and will
New Taipei City, Taiwan tend, therefore, to engage in criminal and other
deviant acts.
Committing a crime influences the likelihood
Synonyms that a person will engage in future crimes. For
instance, delinquent and impulsive youths tend to
Antisocial behavior; Conduct disorder; Crime; choose deviant peers and partners and unstable
Criminal behavior; Delinquency; Deviant jobs, and to continue their deviant behavior in
behavior; Problem behavior adulthood. Thus, deviance also persists through
weakening the social and institutional bonds
linking adults to society (e.g., commitments to
Definition education, labor force attachment, and marital
cohesion). With these negative consequences
There is no consensus on the definition of for their deviant behavior, stigmatized and insti-
deviance. Some consider deviance a violation of tutionalized youths are left with few options for a
social norms that attracts others disapproval, such conventional life and are prone to crime and
as behaviors that are considered crimes or delinquency (Hirschi, 1969). For example, arrest
delinquency. Others argue that individuals with and incarceration may cause failure in school,
Deviance 1609 D
unemployment, and weak community Young people labeled deviant become trapped
bonds, which, in turn, contribute to the adult by the consequences of antisocial behaviors.
commission of crimes. Antisocial individuals also have higher risks
The early propensity toward crime can also of poor physical and mental health. The antisocial
lead to criminality through the deviant labeling personality and lifestyle, along with economic
process. A child with impulsiveness tends to have stress, place people at higher risk for poor phys-
problems in conventional settings, such as family ical health, mental illness, and early mortality.
and school; this causes parents and teachers to People with histories of many forms of deviance
discipline and label the child as a troublemaker, tend to engage in high-risk behaviors (e.g., D
which alters the childs views of self and excludes smoking, drinking, drug use, and criminal behav-
him/her from conventional opportunities. At the ior), experience more stress in life (e.g., financial
same time, these processes often result in insecurity and relationship difficulty), and suffer
increased contact with and support from deviant from psychological vulnerability (Moffitt, 1993,
subgroups, which may lead to further deviance 2006a, 2006b).
(Agnew, 2001; Sampson & Laub, 1993). However, negative outcomes for those who
The role of the criminal justice system in the engage in early deviant behaviors are not inevita-
labeling process is especially important. Legal ble (Sampson & Laub, 1993). According to
sanctions can impede educational opportunities. Moffitt (1993), antisocial behavior appears to be
Educational achievement, in turn, influences highly stable and consistent only in a relatively
employment in adulthood. Employers tend to small number of individuals whose antisocial
avoid hiring someone who has a criminal record. behavior is life-course-persistent. A much larger
Thus, blocked educational and employment group of individuals experience an increase in
opportunities weaken the labeled persons social crime during adolescence and then decrease
bonds to society, further increasing the possibility their involvement in late adolescence (Laub &
of subsequent involvement in deviant activity. Sampson, 2003; Sampson & Laub, 1993, 1997,
These problems are then translated into difficulties 2003). For them, adolescence-limited social fac-
in other life domains, such as educational achieve- tors may work to modify the trajectories of crime
ment, employment stability, and family formation and delinquency. Important life events, including
and maintenance (Sampson & Laub, 1997). social bonds and legal sanctions, might modify
The psychiatric labeling (e.g., conduct disor- trajectories in crime and status achievement. The
der and AHDH) has similar influence. On the one amplifying loop is interrupted by the transition to
hand, the labeling and perception of dangerous- adulthood which involves the development of
ness significantly increase others preferences for new commitments to conventional activity, such
social distance. On the other hand, the diagnostic as marriage and jobs. Laub et al. (1998) found
labeling has a negative effect on self-feelings and some high-rate offenders enter into circumstances
might trigger various defensive behaviors that like marriage that provide the potential for infor-
further lead to harmful outcomes (Link, 1987; mal social control. When marital unions are cohe-
Martin, Pescosokido, Sigrun, & Mcleod, 2007). sive, the investment has a significant preventive
In sum, beyond early antisocial propensities, effect on offending (Farrington & West, 1995;
deviance can extend beyond the consequences Laub et al., 1998). What is important is the quality
of the behavior itself (cumulative continuity) of the social bonds, not the mere existence of the
and interactions with others (interactional bonds themselves.
continuity). Thus, the continuity of deviance is The association between crime and social
not only a result of stable individual differences bonds is complicated. It might reflect a selection
in criminal propensity, but a dynamic process process (Gottfredson & Hirschi, 1990) or cumu-
whereby childhood antisocial behavior and lative disadvantages through reciprocal causality.
adolescent delinquency foster adult crime Thus, when investigating the relationship
through the weakening of adult social bonds. between social bonds and crime, researchers
D 1610 Deviant Behavior

need to consider latent traits and interactional Moffitt, T. E. (1993). Life-course-persistent and adoles-
processes (Wright, Caspi, Moffitt, & Silva, 1999). cence-limited antisocial behavior: A developmental
taxonomy. Psychological Review, 100, 674701.
Moffitt, T. E. (2006a). Life-course persistent versus ado-
lescence-limited antisocial behavior. In D. Cicchetti &
Cross-References D. J. Cohen (Eds.), Developmental Psychopathology
(Vol. 3, pp. 570598). New York: Wiley.
Moffitt, T. E. (2006b). A review of research on the taxon-
Adolescent Problem Behavior omy of life-course persistent and adolescence-limited
Adolescent Substance Use offending. In F. T. Cullen, J. P. Wright, & K. Blevins
Education (Eds.), Taking stock: The status of criminological the-
Health ory (pp. 277312). New Brunswick, NJ: Transaction
Publishers.
Health and Violence Sampson, R. J., & Laub, J. H. (1993). Crime in the mak-
Marital Adjustment ing: Pathways and turning points through life. Cam-
Marital Conflict and Health bridge, MA: Harvard University Press.
Parenting Style Sampson, R. J., & Laub, J. H. (1997). A life-course theory
of cumulative disadvantage and the stability of delin-
Parent-Child Relationship(s) quency. In T. P. Thornberry (Ed.), Developmental
Peer Influence(s) theories of crime and delinquency (Advances in crim-
School Experiences inological theory, Vol. 7, pp. 133161). New Bruns-
School Violence wick, NJ: Transaction.
Sampson, R. J., & Laub, J. H. (2003). Life-course
Unemployment desisters? Trajectories of crime among delinquent
Work Stress boys followed to age 70. Criminology, 41(3), 555592.
Wright, B. R. E., Caspi, A., Moffitt, T. E., & Silva, P. A.
(1999). Low self-control, social bonds, and crime:
Social causation, social selection, or both? Criminol-
References ogy, 37, 479514.

Agnew, R. (2001). Building on the foundation of general


strain theory: Specifying the types of strain most likely
to lead to crime and delinquency. Journal of Research
in Crime and Delinquency, 38(4), 319361. Deviant Behavior
Farrington, D. F., & West, D. J. (1995). Effects of mar-
riage, separation and children on offending by adult Deviance
males. In Z. S. Blau & J. Hagan (Eds.), Delinquency
and disrepute in the life course (Current perspectives
on aging and the life cycle, Vol. 4, pp. 249281).
Greenwich, CT: JAI Press.
Gottfredson, M. R., & Hirschi, T. (1990). A general theory DFS-2
of crime. Stanford, CA: Stanford University Press.
Hirschi, T. (1969). Causes of delinquency. Berkeley, CA/
Los Angeles: University of California Press. Flow Scales
Laub, J. H., Nagin, D., & Sampson, R. J. (1998). Trajec-
tories of change in criminal offending: Good marriages
and the desistance process. American Sociological
Review, 63, 225238.
Laub, J. H., & Sampson, R. J. (2003). Shared beginnings, Diabetes Mellitus Type 1
divergent lives: Delinquent boys to age 70. Cam-
bridge, MA: Harvard University Press. Type I Diabetes Mellitus and Quality of Life
Link, B. G. (1987). Understanding labeling effects in the
area of mental disorders: An assessment of the effects
of expectations of rejection. American Sociological
Review, 52, 96112.
Martin, J. K., Pescosokido, B. A., Sigrun, O., & Mcleod, Diagnostic Analysis of Nonverbal
J. D. (2007). The construction of fear: Americans
preferences for social distance from children and ado-
Accuracy (DANVA)
lescents with mental health problems. Journal of
Health and Social Behavior, 48, 5067. Measuring Emotion Recognition Ability
Differential Item Functioning (DIF) 1611 D
(age, gender, race, education, culture) on the
Dialogic Self same level of the latent trait (disease severity,
quality of life) have a different probability of
Independent/Interdependent Self giving a certain response to a particular item.

Description
Dialysis
Differential item functioning (DIF) is a threat to D
Hemodialysis Patients, Quality of Life the validity of a patient-reported outcome (PRO)
instrument. DIF occurs when subjects on the
same level of the latent trait, such as disease
severity, answer differently to the same item
Dichotomous Questions depending on their group memberships (e.g.,
age group, gender, race) (Chang, 2005; Holland
Closed-Ended Question Format & Thayer, 1988). The validity of the instrument is
threatened because the response to the DIF item
is governed by something other than the construct
that the instrument is intended to measure. For
Dichotomous Response Format example, crying spells is one of the symptoms for
patients with depression, but this concept is
Binary Response reported more by women than men with
the same level of depression severity (Teresi
et al., 2009). An item asking about the amount
of crying will likely to underestimate the severity
Differences in Well-Being of Older of men than women who are otherwise equally
Immigrants in Australia depressed. The crying item is said to exhibit DIF
due to gender for assessing depression.
Well-Being Disparities of Immigrant Aged in DIF has been studied in the educational testing
Australia since the 1960s (Berk, 1982) and was usually
referred to as item bias. A test item is biased
when it favors (more easy to answer the item
Differential Item Functioning (DIF) correctly) one group of test takers, but is against
(harder to answer the item correctly) another
Wen-Hung Chen and Dennis Revicki group. The term DIF was later created from the
Center for Health Outcomes Research, United understanding that differentiating behavior of the
BioSource Corporation, Bethesda, MD, USA item did not always arise from a bias situation.
This is almost always the case for items in PRO
instruments. A PRO item usually does not favor
Synonyms a particular group of patients; it is just behaving
like a different item depending on the group
Differential item performance; Item bias memberships.
Group difference on the scale for assessing
a certain latent construct is often confused
Definition with DIF. An item where the average scores are
different between two groups is not evidence of
Differential item functioning refers to the DIF for that item. Two groups of subjects with
situation where members from different groups different distribution on the latent construct
D 1612 Differential Item Functioning (DIF)

are expected to have different average scores. continuous variables. In these cases where
However, subjects with the same level of the there are more than two item responses (i.e.,
latent construct from both groups are expected polytomous item responses), generalized Man-
to answer similarly to the same items regardless tel-Haenszel procedure can be used for DIF
of their group membership. DIF is suspected only detection (Fidalgo & Madeira, 2008; Zwick,
when subjects on the same level of the latent Donoghue, & Grima, 1993).
construct answer differently to the same items. With the advances of item response theory
This is the most important part of the definition of (IRT) in psychometric analysis of items and instru-
DIF. In mathematical terms, DIF can be ment construction, DIF detection methods based
described as a discrepancy between two groups on IRT were also developed. Because IRT consists
of subjects in the conditional probability of a of mathematical models already expressed as
response to an item conditioned on the level of conditional probability of a certain item response
the latent construct. given the latent trait, its application to DIF
Early methods for DIF detection relied on the detection is straightforward. One approach is to
assumption that the percentages of test takers compare the item characteristic curves (ICC)
answer correctly will be different between two between the reference and focal groups (Linn,
groups to an item with DIF. In classical Levine, Hastings, & Wardrop, 1981; Runder,
test theory, this percentage is referred to as item 1977). Alternative to comparing the ICC is to
difficulty and denoted as the p value of an item. compare the item parameters directly (Hambleton
The delta plot (Angoff, 1984; Angoff & Ford, & Swaninathan, 1985; Muthen & Lehman, 1985;
1973) involves the transformation of the p values. Thissen, Steinberg, & Gerrard, 1986), since item
Several methods all involve with construction parameters determine the ICC. A more elaborate
of three-way contingency tables of frequency approach involves a likelihood ratio test between
counts; these include Scheunemans chi-square the item parameters estimated separately for the
(Scheuneman, 1979), Camillis chi-square target items for the reference and focal groups
(Ironson, 1982), and the Mantel-Haenszel proce- versus when these item parameters are constrained
dure (MH D-DIF) (Holland & Thayer, 1988). to be equal (Thissen, Steinberg, & Wainer, 1988).
Generally, for all the DIF detection methods, One of the special features of these IRT-based
groups are first identified based on the group methods is that they do not require computation
membership of particular interest (i.e., age >60 of the level of the latent construct for each
vs. <60, male vs. female, Blacks vs. Whites, high individual and match them into subgroups. While
school graduate vs. some college degree). It is these IRT-based methods were first developed for
customary to refer one group as the reference dichotomous response items, they can be extended
group and the other the focal group. Subjects to polytomous response items which are more
then are divided into subgroups with matching common in health outcome assessments.
criterion between the reference and focal groups. Two methods commonly used for DIF
The criterion used should be the measure of detection for polytomous response items are
the level of the latent construct to be assessed, SIBTEST (Chang, Mazzeo, & Roussos, 1996;
usually the score of the instrument itself. The Shealy & Stout, 1993a, 1993b) and ordinal
percentages of the correct (and incorrect) answers logistic regression (Zumbo, 1999). SIBTEST is
to the item under investigation between the two based on a multidimensional model of DIF that
groups are then compared across the subgroups. formally defines a second latent trait that contrib-
Unlike educational tests, the concept of correct utes to the DIF. Many variations of the SIBTEST
answers does not apply to PRO instruments in methods have been developed since its first intro-
health-care research. For many PRO instruments, duction. The ordinal logistic regression method
Likert-type scales are used, and some may of detecting DIF is a straightforward application
even include numeric rating scale (NRS) of logistic regression modeling. Because an
and visual analogue scale (VAS) which are interaction term of latent trait by groups can be
Differential Item Functioning (DIF) 1613 D
included in the model, the logistic regression References
method can be used to detect the nonuniform
DIF directly. The concept of uniform and Angoff, W. H. (1984). Scales, norms, and
equivalent scores. Princeton, NJ: Educational Testing
nonuniform DIF was first introduced by
Service.
Mellengergh (1982) and was referred to as Angoff, W. H., & Ford, S. F. (1973). Item-race interaction
crossing DIF in SIBTEST (Li & Stout, 1996). on a test of scholastic aptitude. Journal of Educational
Uniform DIF is where the discrepancy between Measurement, 10, 95105.
Berk, R. A. (Ed.). (1982). Handbook of methods
reference and focal groups is constant across the
for detecting test bias. Baltimore: John Hopkins D
range of the latent construct. Whereas with University Press.
nonuniform DIF, the discrepancy between the Chang, C. H. (2005). Item response theory and beyond:
two groups differs depending on the level of the Advanced in patient-reported outcomes measurement.
In W. R. Lenderking & D. A. Revicki (Eds.),
latent construct. More recently, a method based
Advancing health outcomes research methods and
on complex multiple indicators, multiple causes clinical applications (pp. 3755). McLean, VA:
(MIMIC) confirmatory factor analysis model was Degnon Associated.
developed for DIF detection (Finch, 2005). Chang, H., Mazzeo, J., & Roussos, R. (1996). Detect DIF
for polytomously scored items: An adaptation of
The usual treatment of DIF item in education
Shealy-Stouts SIBTEST procedure. Journal of
testing is to remove the item from the test. While Educational Measurement, 33, 333353.
items with DIF are serious problem in education Fidalgo, A. M., & Madeira, J. M. (2008). Generalized
testing, especially if the DIF item biases against Mantel-Haenszel methods for differential item
function detection. Educational and Psychological
a certain group of test takers, the role of DIF in
Measurement, 68(6), 940958.
health outcomes research is less clear. Multiple Finch, H. (2005). The MIMIC model as a method for
factors affect the assessment health-related detecting DIF: Comparison with Mantel-Haenszel,
quality of life and other patient-reported SIBTEST, and the IRT likelihood ratio. Applied
Psychological Measurement, 29(4), 278295.
outcomes. In many cases, differences in item
Hambleton, R. K., & Swaninathan, H. (1985). Item
responses are expected for members of response theory: Principles and applications.
different groups. An item may cover very impor- Hingham, MA: Kluwer.
tant content for assessing a health-related quality Holland, P. W., & Thayer, D. T. (1988). Differential
item performance and the Mantel-Haenszel procedure.
of life or patient-reported outcome, despite
In H. Wainer & H. I. Braun (Eds.), Test validity
different groups of subjects responding to it dif- (pp. 129145). Hillsdale, NJ: LEA.
ferently. In this case, this item should be kept in Ironson, G. H. (1982). Use of chi-square and latent trait
the instrument, but each individuals response approaches for detecting item bias. In R. A. Berk (Ed.),
Handbook of methods for detecting test bias
should be compared within his or her group.
(pp. 117160). Baltimore: John Hopkins University
This required the item to be treated differently Press.
according to the group memberships, e.g., differ- Li, H.-H., & Stout, W. (1996). A new procedure for
ent item scores between male and female. An detection of crossing DIF. Psychometrika,
61, 647677.
ideal assessment of health-related quality of life
Linn, R. L., Levine, M. V., Hastings, C. N., & Wardrop,
or patient-reported outcomes involves tailoring J. L. (1981). An investigation of item bias in a test
the items to the unique characteristics of the of reading comprehension. Applied Psychological
individual for maximum information. This is pos- Measurement, 5, 159173.
Mellenbergh, G. J. (1982). Contingency table models for
sible by using computerized adaptive testing with
assessing item bias. Journal of Educational Statistics,
a large item bank. In this case, items with DIF are 7(2), 105118.
no longer a threat to the validity of the test; they Muthen, B., & Lehman, J. (1985). Multiple group IRT
become asset of the instrument. modeling: Application to item bias analysis. Journal
of Educational Statistics, 10, 133142.
Runder, L. M. (1977, April). An approach to biased
item identification using latent trait measurement
Cross-References theory. Paper presented at the annual meeting of
the American Educational Research Association,
Item Response Theory New York.
D 1614 Differential Item Performance

Scheuneman, J. D. (1979). A new method of assessing bias Definition


in test items. Journal of Educational Measurement,
16, 143152.
Shealy, R., & Stout, W. (1993a). An item response theory Digital competences is the general term used to
model for test bias and differential test functioning. describe or explain the ability (of a citizen,
In P. Holland & H. Wainer (Eds.), Differential item a student, a teacher, etc.) to use information
functioning (pp. 197240). Hillsdale, NJ: Earlbaum. technology (IT) in a specific context.
Shealy, R., & Stout, W. (1993b). A model-based standard-
ization approach that separates true bias/DIF from Usually, when it comes to define, describe, or
group ability differences and detects test bias/DIF as explain this ability of use IT, different denomina-
well as item bias/DTF. Psychometrika, 58, 159194. tions are found in the literature such as digital
Teresi, J. A., Ocepek-Welikson, K., Kleinman, M., competences, digital skills, e-competences or
Eimicke, J. P., Crane, P. K., Jones, R. N., et al.
(2009). Analysis of differential item functioning in e-skills, and twenty-first century skills or compe-
the depression item bank from the Patient Reported tences. These denominations refer to different
Outcome Measurement Information System concepts which are not synonymous (cf.
(PROMIS): An item response theory approach. Description).
Psychology Science Quarterly, 51(2), 148180.
Thissen, D., Steinberg, L., & Gerrard, M. (1986). Beyond
group mean differences: The concept of item bias.
Psychological Bulletin, 99, 118128. Description
Thissen, D., Steinberg, L., & Wainer, H. (1988). Use of
item response theory in the study of group differences
in the trace lines. In H. Wainer & H. I. Braun (Eds.), Today, no one doubts we live in an information or
Test validity (pp. 147168). Hillsdale, NJ: LEA. knowledge society. Information and communica-
Zumbo, B. D. (1999). Functioning (DIF): Logistic regres- tion conveyed by IT are at the core of social,
sion modeling as a unitary framework for binary and economic, and cultural activities of every citizen.
Likert-type (ordinal) item scores. Ottawa, ON: Direc-
torate of Human Resources Research and Evaluation, In this context, IT plays a crucial role in
Department of National Defense. the knowledge economy. Its impact on society
Zwick, R., Donoghue, J. R., & Grima, A. (1993). Assess- concerns both knowledge manipulation and
ment of differential item functioning for performance knowledge creation processes. In this information
tasks. Journal of Educational Measurement,
30, 233251. and knowledge society, digital competences are
required as a sine qua non condition for the quality
of life of every citizen.
The following section sheds light on the dif-
Differential Item Performance ferences between the terms used to describe the
ability to use information technologies (IT) in
Differential Item Functioning (DIF) order to provide a clear definition of digital
competences.

Digital Competence vs. Digital Skill


Digital Competences According to the European Commission (2007),
a competence is a combination of knowledge,
Caroline Rizza skills and attitudes appropriate to the context.
European Commission, Joint Research Centre, Among other possible competences, key
Ispra, Italy competences are those which all individuals
Telecom ParisTech, Paris, France need for personal fulfillment and development,
active citizenship, social inclusion, and
employment. Digital competence is part of the
Synonyms eight key competences for lifelong learning. In
this set of key competences, it is defined as
ICT competences; IT competences follows:
Digital Competences 1615 D
Digital Competences,
Fig. 1 Partition of the Strategic level Functional level Operational level
digital competences in the Teachers
three-level category
proposed by Cerisier et al.
(2008)
Meta-
competences

Digital competences
Transversal D
competences

Instrumental
competences

Learners

Digital competence involves the confident and The instrumental competences cannot be dis-
critical use of Information Society Technology sociated from IT itself. Since the higher-level
(IST) for work, leisure and communication. It
is underpinned by basic skills in IT: the use of competences are of a transversal nature they can
computers to retrieve, assess, store, produce, be mobilized in contexts that are not related to IT.
present and exchange information, and to commu- The framework developed by Cerisier et al.
nicate and participate in collaborative networks via (2008) allows for a better understanding and
the Internet. (p. 7)
explanation of the difficulties some young people
The terms e-competence and e-skill also appear from the Internet generation may have. Their
in the literature. They usually refer (following the strong instrumental competence in using IT can
same differences between digital competence and hide the lack of higher-level competences or, in
digital skill) to the required workforce compe- the case of teachers, the higher-levelcompetences
tences or skills related to IT uses, i.e., a citizens are in place, but they lack the instrumental ones
ability to use IT in the work context. (see Fig. 1).

A Digital Competence Is a Multilevel


Competence What About Twenty-First Century
Perrenoud (1995) defines a competence as Competences?
a high level know-how, requiring the integration of In the context of the OECD/CERI project on New
multiple cognitive resources when it comes to deal Millennium Learners (NML) and on the basis of
with complex situations. (p. 20) a literature review as well as the two international
Based on this definition, Cerisier, Rizza, initiatives Definition and Selection of Competen-
Devauchelle, and Nguyen (2008) show that cies (DeSeCo) program and the Programme
regarding IT uses, we need to consider different for International Student Assessment (PISA),
levels of competence. They distinguish three Ananiadou and Claro (2009) provide a typology
levels of digital competences: of the digital competencies in three different
levels:
Instrumental competences at the operational
level; ICT [information and communication technolo-
Transversal competences at the functional gies] functional [competences], that includes [com-
level; petences] relevant to mastering the use of different
Meta-competences at the strategic level. ICT applications; ICT [competences] for learning,
(pp. 89) which include [competences] that combine both
D 1616 Digital Competences

Digital Competences, Table 1 Partition of the digital competences in the three levels, with a focus on twenty-first
century competences, proposed by Ananiadou and Claro (2009)
Three levels
of competences Objectives Context of mobilization
Level 1. ICT functional For mastering the uses of ICT
competences applications
Level 2. ICT competences for For learning
learning
Level 3. 21st century
competences through 3
dimensions:
Information dimension For accessing, evaluating and Information literacy, research,
organizing information in digital inquiry and media literacy
environment (information as a source)
For modeling and transforming Creativity and innovation, problem
information to create new knowledge solving and decision making
or ideas (information as a product)
Communication For presenting, exchanging, sharing Information and media literacy,
dimension and transmitting ideas, points of view critical thinking and
as well as criticizing them (effective communication skills
communication)
For collaborating and interacting in Collaboration/team working,
virtual groups (collaboration and flexibility and adaptability
virtual interaction)
Ethic & social impact For applying criteria for its responsible Critical thinking, responsibility and
dimension ICT use at personal and social levels, decision making
acknowledging potential risks (social
responsibility)
For supporting and contributing to the Digital citizenship
development of a consciousness about
the challenges in the new digital age;
for being able to reflect upon the
impact of ICT on social life
considering the social, economic and
cultural implications for individuals
and society (social impact)

cognitive abilities or higher-order thinking [com- place the digital competences (from every level)
petences] with functional [competences] for the use in a context of mobilization.
and management of ICT applications; and twenty-
first century [competences] which bring together Cerisier et al. (2008) and Ananiadou and
[competences] considered necessary in the knowl- Claro (2009) consider that higher-level
edge society but where the use of ICT is not competences (i.e. the twenty-first century
a necessary condition. (pp. 78) competences) are not systematically related
The authors focus their analysis of digital with IT uses. Nevertheless, Cerisier et al.
competences on the third level named the (2008) consider that transversal competences
twenty-first century competences. They propose and meta-competences (for learning) are
a description of this level through three catego- higher-level competences, whereas Ananiadou
ries that we synthesize in the Table 1. and Claro (2009) do not consider that ICT com-
As the European Commission (2007), petences for learning are higher-level
Ananiadou and Claro (2009) systematically competences.
Digital Competences 1617 D
The comparison between these two approaches youngsters. They demonstrate the inconsistency
makes it clear that there are similarities among the of the generational approach when it comes to IT
competences classified differently. Thus, the dis- uses, underlining the limitations of the technicist
cussion is no longer about the definition of digital beliefs related to the impact of IT uses, particu-
competence and its contexts of mobilization but larly in learning contexts. Rizza (2006, 2010)
about the relevance of the term twenty-first cen- refers to the paradox of this Internet generation
tury competences. Indeed, the term twenty-first and proposes three levels of the digital divide
century competences presupposes that additional between: the persons having access to IT and
competences are required for using IT since a new those who do not (the haves and the have- D
generation of tools (such as web 2.0) is introduced nots); the persons knowing how to use IT, in
into the society. Authors such as Ananiadou and which context and for what purpose, and those
Claro (2009) consider twenty-first century com- who do not (the knowers and know-nots); as
petences as an additional and higher level of well as the persons able to act in the information
competences. However, does this new generation and knowledge society and those who cannot
of IT really require additional or deeper digital (the doers and do-nots). She argues that the
competences? Or, in other words, are the twenty- digital divide is based on socioeconomic and
first century competences fundamentally differ- cultural inequalities (social inequalities, educa-
ent from the highest levels of digital competences tional inequality, socioeconomic factors, social
(transversal and meta-levels)? capital, cultural capital, socioeconomic status)
that already existed before the introduction of
Are Digital Natives Already Digital IT in society. Also, she rejects the idea of an
Competent? Internet generation able to impose its culture on
Tapscott (1998) was one of the first authors the whole society, to reduce inequalities and
speaking about the impact of IT on the new behavioral differences when it comes to use IT
generation of children. He defines the Internet and to take advantage of all the benefits of the
generation as the generation born from 1977 information and knowledge society. The author
onwards, including all children that have grown highlights the paradox of this generation
up while IT was introduced in the society. unable to reduce the digital divide and places in
According to him, the Internet generation has the center of the debates the role of school and
been shaped by IT and its interactive characteris- educational institutions ( education, educa-
tics. So, through a natural demographic process, tional system) as a vector of social mobility
this generation should impose or should have in this new context.
already imposed its digital culture on the whole
society. Prensky (2001) also argues that IT Discussion
changes the physical structure of the digital When it comes to discussing the impact of IT on
native brains, making them more adapt at society, two opposing points of view must be
effective multitasking. Following these ideas, considered. According to the technicists, IT, by
the also called New Millennium Learners its nature and purposes, should only have a pos-
(OECD, 2010) should already have acquired the itive impact on society, creating social inclusion
digital competences required to use IT optimally spontaneously. Nevertheless, the recurrent ques-
and to benefit from the quality of life it can tions regarding the digital divide and its manifes-
promote. tation in society, despite of the Internet
Nevertheless, this is not always the case since generation who grew up while IT was being
digital competences can be categorized by levels introduced (Tapscott, 1998), undermines the
as it has been shown above. Furthermore, authors technicist approach.
like Bullen, Morgan, and Qayyum (2011) reject By studying the processes of communication
this techno-determinist approach according to supported by IT, Jouet (1993) highlights the need
which IT would have a direct impact on for a double mediation, both technical (because
D 1618 Digital Competences

IT can modify practices) and social (because of Social Inclusion


the ways in which IT is used as well as the Social Inequalities
signification of the practices that are determined Social Mobility
by society). This double mediation is required
for an effective introduction of technology in References
society. Through this double mediation and the
role it assigns to knowledge and know-how, IT Ananiadou, K., & Claro, M. (2009). 21st century skills and
can be a vector of social inclusion or social competences for new millennium learners in OECD
exclusion. In an information and knowledge countries, OECD education (Working Papers, 41),
OECD Publishing. doi: 10.1787/218525261154.
society, digital competences are thus required as Accessed March 16, 2011.
a sine qua non condition for the effective quality Ananiadou, K., & Rizza, C. (2010). ICT in initial teacher
of life of every citizen. training: First findings and conclusions of an OECD
At the political level, the necessity of study. Proceedings of EDULEARN10 Conference.
Valencia: International Association for Technology,
implementing measures and policy to support Education and Development, 56215632.
the acquisition of digital competences by learners Bullen, M., Morgan, T., & Qayyum, A. (2011). Digital
from primary school to higher education has been learners in higher education: Generation is not the
well understood. Numerous initiatives and work- issue. Canadian Journal of Learning & Technology,
37(1).
ing groups are now involved and mobilized to Cerisier, J. F., Rizza, C., Devauchelle, B., & Nguyen, A.
work on this area, such as the digital competences (2008). Former des jeunes a lusage des medias,
working group led by European Schoolnet (2011, Cachan: Cned-Hermes sciences-Lavoisier Editions,
forthcoming) or the Unesco project ICT Compe- Distances et Savoirs, vol. Hors Serie.
European Commission (2007). Key competences for life-
tency Framework for Teachers. Nevertheless, long learning: European reference framework. http://
the reforms of curricula based on the so-called ec.europa.eu/dgs/education_culture/publ/pdf/ll-learn-
twenty-first century competences as well as the ing/keycomp_en.pdf. Accessed March 16, 2011.
implementation of digital competence frame- European Schoolnet (2011, forthcoming). The digital com-
petence working group. http://insight.eun.org/ww/en/
works for learners, are not sufficient. Indeed, on pub/insight/policy/network/new_remit_of_the_digital_
the one hand, teacher competencies are not compe.htm.Accessed March 16, 2011.
always clearly defined and sometimes they do Jouet, J. (1993). Pratiques de communication et figures de
not reflect a clear vision of what teaching and la mediation. Reseaux, 11(60), 99120.
numeriques : heurs et malheurs du brevet informatique et
learning in the knowledge society is all about internet (B2i) en France. Distances et savoirs. Hors-se
and what the role of IT is in this (Ananiadou & rie. http://www.distanceandaccesstoeducation.org/
Rizza, 2010; OECD, 2013; Rizza, 2011). The Results.aspx?searchMode4&criteriaDS. Accessed
necessity of working on the digital-competence- March 16, 2011.
OECD. (2010). Are new millennium learners making the
multiple-dimensions (i.e., from knowledge to grade? Technology use and educational performance
attitudes and from the operational to the higher- in PISA. Paris: Educational Research and Innovation,
levels) is still a stake for policy makers and OECD Publishing.
practitioners. OECD. (2013, forthcoming). ICT in initial teacher train-
ing. OECD Publishing.
Perrenoud, P. (1995). Des savoirs aux competences: De
quoi parle-t-on en parlant de competences ? Pedagogie
Cross-References Collegiale, 9(1), 2024.
Prensky, M. (2001). Digital natives, digital immigrants.
On the horizon. Bradford, West Yorkshire, MCB
Cultural Capital University Press, 9(5).
Digital Divide Rizza, C. (2006). La fracture numerique, paradoxe de la
Education generation Internet. Fracture dans la societe de la
Educational Inequality connaissance. Hermes, 45, 2532.
Rizza, C. (2010). La fracture numerique, paradoxe de la
Educational System generation internet. In Critiques de la societe de
Quality of Life lInformation. Paris: CNRS Editions, Les Essentiels
Social Exclusion dHermes, 3349.
Digital Divide 1619 D
Rizza, C. (2011). ICT and initial teacher education: knowledge society, IT is at the core of social,
National policies. OECD Education (Working Papers, economic, and cultural activities of every citizen.
no. 61), OECD Publishing. http://dx.doi.org/10.1787/
5kg57kjj5hs8-en. In this context, both accessing this technology
Tapscott, D. (1998). Growing up digital: the rise of the net and acquiring the digital competences to use
generation. New York: McGraw-Hill. it in everyday life constitute a sine qua non
condition for the quality of life of every citizen.
Thus, the digital divide relates to the inability
Digital Connectivity Index of some citizens to:
1. Access to IT. D
Public Attitudes Toward the State in 2. Use IT because of their lack of digital
Asia-Pacific Region competences.
The following sections present the two dimen-
sions of the digital divide and discuss the concept:
since its causes are more social than technical, the
Digital Divide digital divide is an educational divide.

Caroline Rizza Information Technology Has Been


European Commission, Joint Research Centre, Transforming Social Practices in the
Ispra, Italy Information and Knowledge Society
Telecom ParisTech, Paris, France The introduction in society of individual and
interactive media such as the Internet constituted
a real information revolution, and it has been
Synonyms completely changing the way of producing,
processing, and storing information and knowl-
Digital gap; Digital exclusion; e-Exclusion edge. IT plays a crucial role in the knowledge
economy. The way organizations and contempo-
rary societies function has been altered, and today
Definition no one doubts we live in an information or knowl-
edge society. Then, information and communica-
The digital divide is a negative consequence of tion conveyed by IT are at the core of the social,
the introduction of information technology (IT) economic and cultural activities of every citizen.
in society. In the information society, the digital Miege (2006) explains that a new form of
divide is a consequence of the economic, cultural, communication called mediated communication
and social inequalities that already existed in prompts a restructuring of society based on the
the industrial society. It combines inequalities at implementation of ITs (connection and transmis-
the level of access to IT (economic capital) and sion of information and knowledge), on the
disparities in terms of knowledge and know-how one hand, and putting individuals and groups of
in using IT (social capital, cultural capital) in individuals in touch with each other through the
a specific context digital competences. circulation of information and knowledge, on the
other hand.
By studying the processes of communication
Description supported by IT, Jouet (1993) highlights the need
for a double mediation; both technical (because
The massive introduction and the pervasiveness IT can modify practices) and social (because of
of IT in society has completely changed the way the ways in which IT is used as well as the
of editing, processing, and storing information as signification of the practices that are determined
well as the way people communicate and interact by society). This double mediation is required
with each other. In the current information and for an effective introduction of technology in
D 1620 Digital Divide

society. Through this double mediation and the and educational inequalities both constitute an
role it assigns to knowledge and know-how, IT obstacle to the use of IT and to the access of
becomes a vector of social inclusion or information on the Internet. In fact, at the inter-
social exclusion. national level between rich and poor countries as
According to Venezky (2000), it is about well as at the national level between privileged
unequal capacity for accessing in and underprivileged populations, economic and
a meaningful sense the resources that the world social inequalities explain disparities regarding
wide web possesses due either to physical the use of IT and the access of information
access limitations or to difficulties in controlling processing or production (Rizza, 2006).
communications mechanisms or to inability to Finally, the OECD (2000) shows that the most
understand what is retrieved (. . .) (p. 66). evident manifestations of the digital divide are
located in the educational systems themselves.
Indeed, OECD (2000) sheds light on the
The First Dimension of the Digital disparities between schools when it comes
Divide: Missing Infrastructures or to their IT infrastructures, the technological equip-
Access to IT ment, and the Internet connection, as well as the
digital competences of teachers. Education
The first level of the digital divide consists in an should provide an equitable access to IT to all
unequal access to IT. Even if many efforts and children and students and an equal level of digital
progresses in terms of access have been accom- literacy independently of their socioeconomic fac-
plished since the 1990s, numerous disparities still tors or socioeconomic status, but this is not the
remain between groups of countries or countries, case. In a digital society, bridging the digital divide
as well as between areas or groups of people in at the educational level is a sine qua non condition
the same country. Then, inequalities of access to to ensure that all citizens acquire the digital com-
IT are still visible: petences required to use IT optimally and to ben-
At the international level between, for instance, efit from the quality of life it can promote.
industrialized and developing countries or
between countries belonging to the same
homogeneous (cultural and socioeconomical) Discussion
area such as those from the European Union.
At the national level between urban and rural The digital divide is another layer in the manifes-
areas or between people from different socio- tation of the socioeconomic and cultural inequal-
economic statuses. ities that already existed in industrial society.
These disparities concern both the access to It combines inequalities at the level of access
infrastructures such as FTTx (Fiber to the . . .) or (economic capital) and disparities in terms of
to IT such as computers or Internet more generally. knowledge and know-how (social capital and
cultural capital). As such, it constitutes a new
The Second Dimension of the Digital Divide: factor of social exclusion. It has been shown that
Missing Digital Competences the digital divide is an educational divide and that
According to Bowie (2000), even if everyone in its causes are more social than technological.
the world could have a free personal computer, The digital divide has two constitutive dimen-
and free Internet access via reliable information sions: missing access to infrastructures and IT as
infrastructures, that would not be enough. The well as missing knowledge and know-how in
technology could not empower those individuals using IT (digital competences). On the basis of
who were illiterate and lacked know-how. Liter- these two dimensions, the information and
acy itself is of strategic importance to individ- knowledge society appears with two facets:
uals, regions and nations in the information One facet comprises the info-rich, who have
society (p. 41). In this context, illiteracy access to ITs and the digital competences
Dimensionality and Measurement Invariance of Satisfaction with Life Scale 1621 D
needed to use them and thus benefit from the Jouet, J. (1993). Pratiques de communication et figures de
quality of life they can promote in a digital la mediation. Reseaux, 11(60), 99120.
Miege, B. (2006). La societe conquise par la communica-
society. tion, tome 1, Logiques sociales. Grenoble: Presses
The other facet is where the info-poor reside. Universitaires de Grenoble.
They do not have access to ITs because of their OECD. (2000). Schooling for tomorrow: Learning to
socioeconomic status, socioeconomic factors, bridge the digital divide. Paris: Educational Research
and Innovation, OECD Publishing.
and educational and social inequalities. Rizza, C. (2006). La fracture numerique, paradoxe de la
They cannot act in a world now governed by generation Internet. Fracture dans la societe de la
the information and knowledge economy. connaissance. Hermes, 45, 2532. D
These info-rich and info-poor become the Venezky, R. L. (2000). The digital divide within
formal school education: Causes and consequences.
info haves and info have-nots of the digital In OECD (Ed.), Schooling for tomorrow: Learning to
society and knowledge economy. bridge the digital divide (pp. 6376). Paris: Educa-
The social mobility of the info-poors tional Research and Innovation, OECD Publishing.
becomes a sine qua non condition of social
inclusion. It has to be supported by education
and educational systems, since the digital gap
may add to the recurrent problems of poor edu- Digital Exclusion
cation and illiteracy and further accentuate the
establishment of social and cultural exchanges Digital Divide
limited to certain geographical regions and
certain groups of the population.
More specifically, in the context of the digital
society, the concept of digital literacy based on Digital Gap
digital competences has to become a priority in
the development of equity policies. Digital Divide

Cross-References
Digital Quality of Life
Cultural Capital
Digital Competences ICTs Role in QoL
Education
Educational Inequality
Educational System
Quality of Life
Social Exclusion Dimensionality and Measurement
Social Inclusion Invariance of Satisfaction with Life
Social Inequalities Scale
Social Mobility
Jocelyne Clench-Aas, Ragnhild Bang Nes and
Leif Edvard Aar
Division of Mental Health, Norwegian Institute
References of Public Health, Oslo, Norway

Bowie, N. A. (2000). The digital divide: Making knowl-


edge available in a digital context. In OECD (Ed.),
Schooling for tomorrow: Learning to bridge the digital
Synonyms
divide (pp. 3750). Paris: Educational Research and
Innovation, OECD Publishing. SWLS
D 1622 Dimensionality and Measurement Invariance of Satisfaction with Life Scale

Definition structure and (ii) measurement invariance


across gender and age. To our knowledge, no
Satisfaction with life is one of several aspects of other study has examined dimensionality or sub-
positive mental health. It is not a direct, verifiable group invariance across a continuous and wide age
experience nor a known personal fact, but a cog- distribution, in a comparatively large community
nitive product that involves a comparative pro- sample (Clench-Aas, Nes, Dalgard, & Aaro, 2011)
cess between the individuals current life
situation and internalized standards, allowing Dimensionality
respondents to use the information they subjec- An important issue concerns the degree to which
tively deem relevant when evaluating their own the five SWLS questions reflect one or more
lives. It is important, when using a scale, that underlying constructs (dimensions). The dimen-
one understands the dimensional structure of the sionality of the scale is not totally resolved. Many
scale, and assure also other aspects of measure- studies have supported a unidimensional model,
ment invariance among subgroups. attesting a single latent factor accounting for
a majority of the variance in life satisfaction
scores (Anaby, Jarus, & Zumbo, 2010; Arrindell,
Description Heesink, & Feij, 1999; Balatsky & Diener, 1993;
Diener et al., 1985; Lewis, Shevlin, Smekal, &
The satisfaction with life scale (SWLS) (Pavot, Dorahy, 1999). Some of these studies were based
Diener, Colvin, & Sandvik, 1991; Diener, on principal component analysis, however, and
Emmons, Larsen, & Griffin, 1985) is perhaps the when there are well-founded hypotheses about
most commonly used measure of life satisfac- dimensionality, confirmatory factor analysis
tion worldwide. The scale consists of five (CFA) is a preferred analytical method. Some
statements and was originally developed to studies claim essential, but not strict unidimen-
circumvent problems inherent in previous scales sionality, as item five shows a weaker association
based on single items or scales based primarily on with the latent variable than the remaining four
domain- or culture-specific items. As people items (Gouveia, Milfont, da Fonseca, & Coelho,
derive their life satisfaction from different 2009; Hultell & Gustavsson, 2008; Oishi, 2006;
sources and vary considerably in their ideas Pavot & Diener, 2008; Slocum-Gori, Zumbo,
about what constitutes a good life, the SWLS Michalos, & Diener, 2009; Wu & Yao, 2006).
measures peoples perception of their life as a Yet other studies support a modified unidimen-
whole, using items that are supposedly free from sional structure (Sachs, 2003). Some studies even
the varying criteria people use when evaluating suggest that a two-factor structure consisting of
their lives. The scale thus reflects a global evalu- strongly correlated present (i.e., items 1-3 give
ative judgment, partly determined by the respon- the status at the moment) and past (i.e., items
dents current mood and immediate context, four and five ask the individual to reflect the
and partly by stable personality factors (Fujita, status over the life course) factors should be con-
Diener, & Sandvik, 1991; Lucas & Fujita, 2000) sidered (Hultell & Gustavsson, 2008; McDonald,
and genetic influences (Stubbe, Posthuma, 1999). Most studies are based on fairly small,
Boomsma, & De Geus, 2005) nonrandom samples, however (see Table 1).
This entry compares results obtained using Altogether three models were tested in the
confirmatory factor analysis (CFA), in a Norwegian study:
Norwegian study to those found internationally. 1. A simple one-factor model
The Norwegian study aimed to examine the 2. A two-factor model including present (first
dimensionality of the SWLS in a large and repre- three items) and past (last two items) factors
sentative sample (N 4,984) and to study the 3. A modified one-factor model nested under
robustness of the scale in different subpopulations. model one allowing the residual terms of
This was done by exploring (i) the dimensional items four and five to be correlated
Dimensionality and Measurement Invariance of Satisfaction with Life Scale 1623 D
Dimensionality and Measurement Invariance of Satisfaction with Life Scale, Table 1 Overview of the literature
examining dimensionality of SWLS
Gender Age
Author Sample characteristics Sample size Male Female Range Average
One-factor models
Anaby et al. (2010) Israeli adults 487 190 297 2760
Arrindell et al. (1999) Dutch young adults 2,800 888 887 1830
Atienza et al. (2003) Spanish junior high students 2,080 1,023 1,057
Balatsky and Diener (1993) Soviet students 116 18.9 D
French-Canadian students 871
Blais et al. (1989) French-Canadian elderly 313
Durak et al. (2010) Turkish university students, 547, 166 20.7,
correctional officers, and elderly and 123 37.2, 68.2
adults (three groups)
Lewis et al. (1999) Czech university students 109 38 71 23.0
Oishi (2006) Chinese and American students 556
Chinese, 442
American
Pons et al. (2000) Spanish junior high students 266 65 65 1115
Spanish elderly 68 65 6091
Shevlin et al. (1998) British undergraduates 258 173 85 1857 20.6 (M)
vs. 22.9
(F)
Swami and Chamorro- Malay community sample 816
Premuzic (2009)
Vaultier et al. (2004) Gr one Questions successively 494 233 261 47.7
administered-French
Gr two Questions scattered 795 334 461 37.1
throughout questionnaire-French
Two-factor or modified one-factor models
Clench-Aas et al. (this study) Norwegian Community sample 4,984 2,369 2,615 1679 46.2 (M),
44.1(F)
Gouveia et al. (2009) Five groups, high school 2,180
students, teachers, undergraduate (21-43)
students, physicians, general (306797)
population from Brazil
Hultell and Gustavsson Swedish student teachers 2,900 453 2,447 28.9
(2008)
Sachs (2003) Hong Kong University students 123 43 80 32
Slocum-Gori et al. (2009) Canadian (BC) adults 410 239 166 1890 46.9
Wu and Yao (2006) University students (Taiwan) 476 207 269

The data essentially supported a single-factor differently across studies. The correlation
solution for the SWLS with 74 % of variance between the two factors indicated in this Norwe-
explained by this single factor. The loadings are gian study was very high (r 0.93), however, and
on the high side compared to some of the similar to previously reported estimates (Hultell
previous studies (Table 2), and there is a tendency & Gustavsson, 2008; Wu & Yao, 2006), indicat-
for the last two items to load on a second, less ing that the two factors could not be easily differ-
important factor reflecting past accomplishments. entiated. A post hoc modification test on the data
This finding is in accordance with several previ- showed gained fit for the single-factor model
ous reports, but the finding has been interpreted when allowing the residual variances for items
D 1624 Dimensionality and Measurement Invariance of Satisfaction with Life Scale

Dimensionality and Measurement Invariance of Satisfaction with Life Scale, Table 2 Overview of the
standardized factor loadings found in the literature of SWLS
Swami
Clench- Clench- Arrindell, Hultell and and
Aas Aas et al. Heesink, Petter Chamorro-
et al. (2011) and Feij Oishi Pavot et al. Gustavsson Premuzic
Author (2011) Submodel (1999) (2006) (1991) (2008) (2009)
Ethnicity Norway Norway Netherlands China USA US US students Sweden Malay/
elderly Chinese
Analysis method1 CFA CFA PCA CFA PCA CFA CFA CFA CFA
In most ways my 0.86 0.86 0.83 0.62 0.84 0.83 0.93 0.93 0.76
life is close to ideal
The conditions of 0.83 0.83 0.79 0.66 0.80 0.89 0.83 0.82 0.67
my life are
excellent
I am satisfied with 0.87 0.87 0.81 0.72 0.85 0.82 0.89 0.94 0.77
my life
So far, I have 0.79 0.78 0.78 0.49 0.67 0.68 0.81 0.75 0.70
gotten the
important things
I want in life
If I could live my 0.73 0.71 0.64 0.38 0.71 0.78 0.81 0.72 0.62
life over, I would
change nothing
1
CFA confirmatory factor analysis, PCA principal component analysis

four and five to be correlated (Fig. 1). This Should the assumption of invariance not hold,
modified single-factor model has an improved comparisons across groups may not be valid, the
fit relative to the baseline model and produced subsequent interpretations may not be meaning-
fit measures identical to the two-factor model. ful, and conclusions incorrect.
The latter is hardly surprising, since two-factor Findings concerning the invariance of the
model and the modified one-factor model are SWLS are somewhat inconsistent. Some studies
equivalent. The single-factor model agrees with have reported the SWLS to be invariant (factor
the theoretical development of the SWLS and loadings, unique variances, factor variance)
measurement processes have been shown to elicit across gender (Shevlin, Brunsden, & Miles,
minor secondary factors for psychological mea- 1998) and age groups (Blais, Vallerand, Pelletier,
sures (Slocum-Gori et al., 2009). Taken together & Briere, 1989; Durak, Senol-Durak, & Gencoz,
these results therefore indicate that a single factor 2010; Siedlecki, Tucker-Drob, Oishi, &
is sufficient to explain the data in this large Salthouse, 2008), whereas other studies have
community sample and, even more importantly, reported sensitivity to either sex (Atienza,
that the SWLS can be regarded as reflecting Balaguer, & Garcia-Merita, 2003) or age (Pons,
a single underlying dimension. Atienza, Balaguer, & Garcia-Merita, 2000).
These inconsistencies may partly be explained
Measurement Invariance by inadequate sample sizes and/or composition
Another unresolved issue concerns the invariance of samples. To explore invariance sufficiently
of the scale. Measurement invariance indicates well, respondents should represent the entire
that the same underlying construct is measured adult life span and both genders. Most studies,
across the relevant comparison groups. however, are based on small to moderately sized
This means that possible group differences (e.g., Pons et al., 2000; Shevlin et al., 1998;
can more validly be interpreted in terms of Tucker, Ozer, Lyubomirsky, & Boehm, 2006) or
group differences in the underlying construct. highly homogenous samples such as Spanish
Dimensionality and Measurement Invariance of Satisfaction with Life Scale 1625 D
Dimensionality and .19
Measurement Invariance
of Satisfaction with Life
Scale, Fig. 1 The best
fitting model, with
Error1 Error2 Error3 Error4 Error5
standardized estimates
based on results of
confirmatory factor
analysis of the five items in
the Satisfaction with Life
Scale. This modified one- D
factor model (correlation So far, I have If I could live
between items four and In most ways The conditions
I am satisfied gotten the my life over,
my life is close of my life are
five) was used for all further with life important things I would change
to ideal excellent
analyses (Norwegian I want in life nothing
Health Interview Survey
2005; N 4,984) .87
.83 .78
.88 .71

Satisfaction with life


CHI SQ=89.4 (DF=4) p=.000
CFI= .995
RMSEA=.065
PGFI=.265

Dimensionality and Measurement Invariance of Satisfaction with Life Scale, Table 3 Unstandardized factor
loadings for all five SWLS items in a one-factor model with correlation between error terms for items four and five, for
the entire sample and for each subgroup by gender and age (Clench-Aas et al., 2011)
Gender Age groups (years)
Entire sample Males Females 1624 2544 4564 65+
SWLS mean score* 26.20 26.17 26.23 26.76 26.29 25.93 27.12
Item 1 1.00 1.00 1.00 1.00 1.00 1.00 1.00
Item 2 0.86 0.87 0.85 0.67 0.85 0.91 0.95
Item 3 0.88 0.90 0.87 0.90 0.87 0.91 0.84
Item 4 0.85 0.88 0.83 0.83 0.86 0.85 0.85
Item 5 0.95 0.97 0.93 0.91 0.97 0.94 0.94
w2(df) 89.4(4) 35.3(4) 61.4(4) 16.6(4) 18.5(4) 72.7(4) 49.3(4)
CFI 0.995 0.996 0.993 0.992 0.998 0.990 0.981
RMSEA 0.065 0.057 0.074 0.071 0.044 0.097 0.129
* means on a range of 535

junior high school students (Atienza et al., 2003), females and gave better fit for the two youngest
Taiwanese (Wu & Yao, 2006) and British age groups than for the two elder age groups
(Shevlin et al., 1998) university students, and as seen in Table 3. Despite the fact that
Swedish student teachers (Hultell & Gustavsson, the last items, perhaps due to their reference
2008) and consequently exhibit both restricted to past accomplishments rather than current
age ranges, biased sex ratios, and limited conditions, appear to involve a somewhat
sociodemographic profiles. different cognitive search, the overall results
In the Norwegian study, the single-factor support a single dimension in all the subgroups
model fitted the data better for males than for investigated.
D 1626 Dimensionality and Measurement Invariance of Satisfaction with Life Scale

Dimensionality and Measurement Invariance of Satisfaction with Life Scale, Table 4 Fit indices for measure-
ment invariance models for men and women and for four age groups: baseline (unconstrained), weak (measurement
weights), strong (measurement intercept), and strict (measurement residual) (Clench-Aas et al., 2011)
Parameter Baseline Weak Strong Strict
Between genders
Chi2(df) 96.7(8) 101.1(12) 125.5(17) 145.0(22)
DChi2(Ddf) 4.4(4) 24.4(5)* 19.5(5)*
CFI 0.995 0.995 0.993 0.992
RMSEA 0.047 0.039 0.036 0.034
Between age groups
Chi2(df) 163.7(18) 244.0(30) 453.3(45) 744.7(59)
DChi2
(Ddf) 80.3(12)* 209.3(15)* 291.3(14)*
CFI 0.991 0.987 0.976 0.959
RMSEA 0.040 0.038 0.043 0.048

Testing of measurement invariance was and residuals) to the baseline model. This suggests
conducted by multigroup CFAs using maximum that the intercepts and residuals may be fixed to
likelihood estimation (Clench-Aas et al., 2011). equality in males and females, thereby supporting
This method employs successive analyses where the assumption of strict invariance across gender.
constraints to the models are added consecutively. Further testing for invariance revealed that the
The baseline model was an unconstrained model, differences between genders were not present at
with one-factor loading constrained to unity. The either the strong or strict levels. This implies
weak (metric) model, nested under the baseline that group means on the latent variable as well
model, constrained the factor loadings to be equal as analyses involving correlations with the
across groups. The strong (scalar) model also latent variable are comparable across gender.
constrained intercepts to equality across compar- This finding confirms the previously described
ison groups and the strict model additionally findings (Hultell & Gustavsson, 2008; Shevlin
constrains the residuals. The fit indices of these et al., 1998; Swami & Chamorro-Premuzic,
analyses are presented in Table 4. 2009; Wu & Yao, 2006), although Atienza
(2003) in Spanish junior high students came to a
Between Genders different conclusion.
No gender differences were observed at the level
of factor loadings, indicating metric or weak Between Age Groups
invariance across gender in the total sample. This People differ in what they require for a satisfying
attests that the latent variable is related to the life and different dimensions of well-being seem
items in similar ways for males and females. to be meaningful to people of varying age.
Further constraints equating the intercepts Different ages and life circumstances may cause
(strong invariance) and the residuals (strict systematic shifts in how people evaluate their life
invariance) resulted in significantly reduced fit situation. Oishi and colleagues (Oishi, Diener,
in terms of the Chi2 test. Analyses based on Suh, & Lucas, 1999) have for example proposed
large samples may result in high Chi2 values, a value as Moderator model which predicts
however, and increased risk for rejecting good that as individuals age, changes in values lead to
models. In the Norwegian study, additional fit changes in the determinants of their life satisfac-
indices were either improved (RMSEA) or fit tion. Ryff (1989) found middle-aged individuals
indices were slightly reduced (CFI) when to stress the importance of self-confidence,
adding further constraints (equating intercepts self-acceptance, job and career issues, and older
Dimensionality and Measurement Invariance of Satisfaction with Life Scale 1627 D
respondents to focus more on health issues. The References
Norwegian study found that the SWLS is sensi-
tive to age at the strong and strict levels indicating Anaby, D., Jarus, T., & Zumbo, B. (2010). Psychometric
evaluation of the Hebrew language version of the
that life satisfaction as measured by the SWLS
satisfaction with life scale. Social Indicators Research,
does not have the same meaning across the 96, 267274.
life span. Arrindell, W. A., Heesink, J., & Feij, J. A. (1999).
The results from the Norwegian study also The Satisfaction With Life Scale (SWLS): appraisal
with 1700 healthy young adults in The
indicated that the underlying construct is not
Netherlands. Personality and Individual Differences, D
fully comparable across the age groups. This 26, 815826.
finding is in accordance with previous reports Atienza, F. L., Balaguer, I., & Garcia-Merita, M. L.
(Hultell & Gustavsson, 2008; Pons et al., 2000) (2003). Satisfaction with life scale: Analysis of facto-
rial invariance across sexes. Personality and Individ-
although others (Blais et al., 1989; Durak et al.,
ual Differences, 35, 12551260.
2010; Gouveia et al., 2009; Siedlecki et al., 2008) Balatsky, G., & Diener, E. (1993). A comparison of the
found invariance among age groups. These stud- well-being of Soviet and American students. Social
ies were based on far more age homogenous Indicators Research, 28, 225243.
Blais, M. R., Vallerand, R. J., Pelletier, L. G., & Briere,
samples (mainly students) and were therefore
N. M. (1989). Lechelle de satisfaction de vie: Valida-
not able to examine invariance across the entire tion Canadienne-Francaise du satisfaction with wife
adult life span. By including respondents from 15 scate [French-Canadian Validation of the Satisfaction
to 79 years, the Norwegian study shows that With Life Scale]. Canadian Journal of Behavioral
Science, 21, 210223.
intercepts and residuals vary across the adult
Clench-Aas, J., Nes, R. B., Dalgard, O. S., & Aaro, L. E.
life span. Manifest and latent SWLS scores are (2011). Dimensionality and measurement invariance
therefore only partially comparable across age in the satisfaction with life scale in Norway. Quality-
groups. This important finding may partly be of-Life Research, 20(8), 13071317.
Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S.
due to different adaptation strategies, cohort
(1985). The satisfaction with life scale. Journal of
effects, socialization practices, age-specific Personality Assessment, 49, 7175.
circumstances influencing interpretations, and Durak, M., Senol-Durak, E., & Gencoz, T. (2010). Psy-
conceptualizations of the items on the SWLS chometric properties of the satisfaction with life scale
among Turkish University students, correctional offi-
(Westerhof, Dittmann-Kohli, & Thissen, 2001).
cers, and elderly adults. Social Indicators Research.
Older individuals have been shown to make more doi:10.1007/s11205-010-9589-4.
global evaluations, to be more present oriented, Fujita, F., Diener, E., & Sandvik, E. (1991). Gender dif-
and to stress interpersonal aspects, whereas ferences in negative affect and well-being: The case
for emotional intensity. Journal of Personality and
younger people focus more on intrapersonal and
Social Psychology, 61, 427434.
specific evaluations (Westerhof et al., 2001). Gouveia, V., Milfont, T., da Fonseca, P., & Coelho, J.
The temporal framing of the items may also (2009). Life satisfaction in Brazil: Testing the psycho-
be important. The SWLS incorporates items metric properties of the satisfaction with life scale
(SWLS) in five Brazilian samples. Social Indicators
referring to both current conditions and past
Research, 90, 267277.
accomplishments and the time perspectives Hultell, D., & Gustavsson, J. P. (2008). A psychometric
are likely to vary across age groups (Pavot & evaluation of the satisfaction with life scale in
Diener, 2008). a Swedish nationwide sample of university students.
Personality and Individual Differences, 44,
10701079.
Conclusions Lewis, C. A., Shevlin, M. E., Smekal, V., & Dorahy, M. J.
(1999). Factor structure and reliability of a Czech
translation of the satisfaction with life scale among
The overall results indicate that the one-factor Czech university students. Studia Psychologica, 41,
latent structure of the SWLS is valid in the 239244.
Norwegian data and that comparing males and Lucas, R. E., & Fujita, F. (2000). Factors influencing the
relation between extraversion and pleasant affect.
females is feasible, whereas some caution must Journal of Personality and Social Psychology, 79,
be exerted when comparing age groups. 10391056.
D 1628 Dimensions and Values of Elderly People, Quality of Life

McDonald, R. P. (1999). Test theory: a unified treatment. Westerhof, G. J., Dittmann-Kohli, F., & Thissen, T.
Mahwah, N.J.: Lawrence Erlbaum Associates. (2001). Beyond life satisfaction: lay conceptions of
Oishi, S. (2006). The concept of life satisfaction across well-being among middle-aged and elderly adults.
cultures: An IRT analysis. Journal of Research in Social Indicators Research, 56, 179203.
Personality, 40, 411423. Wu, C., & Yao, G. (2006). Analysis of factorial invariance
Oishi, S., Diener, E., Suh, E., & Lucas, R. E. (1999). Value across gender in the Taiwan version of the satisfaction
as a moderator in subjective well-being. Journal of with life scale. Personality and Individual Differences,
Personality, 67, 157184. 40, 12591268.
Pavot, W., & Diener, E. (2008). The satisfaction with life
scale and the emerging construct of life satisfaction.
The Journal of Positive Psychology: Dedicated to
Furthering Research and Promoting Good Practice,
3, 137152. Dimensions and Values of Elderly
Pavot, W., Diener, E., Colvin, C. R., & Sandvik, E. (1991). People, Quality of Life
Further validation of the satisfaction with life scale:
Evidence for the cross-method convergence of well-
being measures. Journal of Personality Assessment,
Paula Elosua
57, 149161. University of the Basque Country,
Pons, D., Atienza, F. L., Balaguer, I., & Garcia-Merita, San Sebastian, Spain
M. L. (2000). Satisfaction with life scale: Analysis
of factorial invariance for adolescents and elderly
persons. Perceptual and Motor Skills, 91, 6268.
Ryff, C. D. (1989). In the eye of the beholder: Synonyms
Views of psychological well-being among
middle-aged and older adults. Psychology and Aging, Quality of Life (QOL) 65
4, 195201.
Sachs, J. (2003). Validation of the satisfaction with life
scale in a sample of Hong Kong university students.
Psychologia: An International Journal of Psychology Definition
in the Orient, 46, 225234.
Shevlin, M., Brunsden, V., & Miles, J. N. V. (1998).
Satisfaction with life scale: Analysis of factorial
Quality of life in elderly people has become an
invariance, mean structures and reliability. Personality important multidimensional construct which is
and Individual Differences, 25, 911916. studied from a variety of disciplines and which
Siedlecki, K. L., Tucker-Drob, E. M., Oishi, S., & has significant effects on designing social poli-
Salthouse, T. A. (2008). Life satisfaction across adult-
hood: Different determinants at different ages? The
cies for well-being. Quality of life dimensions
Journal of Positive Psychology, 3, 153164. are determined by demographic, environmental,
Slocum-Gori, S., Zumbo, B., Michalos, A., & Diener, E. political, social, or historical aspects; in elderly,
(2009). A note on the dimensionality of quality-of-life there are especially important factors related to
scales: An illustration with the satisfaction with life
scale (SWLS). Social Indicators Research, 92,
health, environment, or social relationships.
489496.
Stubbe, J. H., Posthuma, D., Boomsma, D. I., & De Geus,
E. J. (2005). Heritability of life satisfaction in adults: Description
A twin-family study. Psychological Medicine, 35(11),
15811588.
Swami, V., & Chamorro-Premuzic, T. (2009). Psychomet- The relevance of quality of life is scientifically
ric evaluation of the Malay satisfaction with life scale. and socially accepted. Scientists assess it from
Social Indicators Research, 92, 2533. a variety of disciplines (psychology, economics,
Tucker, K., Ozer, D., Lyubomirsky, S., & Boehm, J.
(2006). Testing for measurement invariance in the
sociology, biology, or medicine), and policy
satisfaction with life scale: A comparison of Russians makers try to define social policies in order to
and North Americans. Social Indicators Research, 78, improve the quality of life for the elderly. Quality
341360. of life is a dynamic construct (Allison, Locker, &
Vaultier, S., Mullet, E., & Jmel, S. (2004). Assessing the
structural robustness of self-rated satisfaction with
Feine, 1997) which varies among individuals
life: A SEM analysis. Social Indicators Research, 68, and cultures (Carr, Gibson, & Robinson, 2001).
235249. In each stage of the life cycle, it will have
Dimensions and Values of Elderly People, Quality of Life 1629 D
distinctive characteristics. The characteristics of information about the relative importance of
each period are determined by demographic, the factors determining the quality of life. This
political, social, or historical aspects, and with information is doubly important; it is individually
reference to elderly people, there are especially pertinent, and it is socially relevant. The subjec-
important dimensions related to health or tive perspective lets us define individual profiles
social relationships (Bowling & Windsor, 2001; of quality of life by weighting the dimensions
Farquhar, 1995; Fry, 2000). according to the subjective values, and having
Different definitions of quality of life, which group-subjective information enables the design
include more general or specific dimensions, can of services and policies for improving quality D
be found in the literature (see Gill & Feinstein, of life, with emphasis on the most weighted
1994), and different methodological approaches dimensions.
can be followed to assess quality of life (Feeny, Several researchers have analyzed the subjec-
2005; Kind, 2005). For now, there is no single, tive importance or preferences among quality of
universally accepted definition of quality of life dimensions in elderly people by using explor-
life (Lauer, 1999), but the present conception atory and qualitative methodology based on open
recognizes that quality of life is determined by or semi-open interviews. The results are tables
personal/social factors as well as subjective/ based upon frequency that offer information
objective factors. Related to elderly people, the about the subjective relevance of the dimensions
five most cited factors are health (physical, of quality of life (Bowling, 1995; Farquhar, 1995;
psychological), functional autonomy, social Nilsson, Ekman, Ericsson, & Winblad, 1996;
activities, family or social support, and Wilhelmson, Andersson, Waern, & Allebeck,
home and environment (Farquhar, 1995; 2005). These works contribute to defining more
Fernandez-Ballesteros, & Zamarron, 2006; precisely the meaning of quality of life. However,
Gabriel & Bowling, 2004; Wiggings, Higgs, it would be interesting to complete this informa-
Hyde, & Blane, 2004). Those five general tion with quantitatively measured values which
domains are measured with questionnaires help one to understand and analyze the subjective
which cover them to a greater or lesser extent dimensions among groups. In order to get those
by including information about pain, mental ill- subjective values, formal measurement models
ness, cognitive deterioration, levels of functional are needed. In this context, it is possible to
ability, well-being, beliefs, attitudes or emotions, analyze the subjective preferences among quality
societal support, or environmental quality. of life dimensions in elderly people using the
Most researchers accept that in order to assess Thurstonian (Thurstone, 1927) approach in the
quality of life, both subjective and objective infor- Structural Equation Modeling (SEM) framework
mation is necessary. Much work has gone into the (Elosua, 2007; Maydeu-Olivares & Bockenholt,
development of objective measures, but there is 2005). The methodology is significant because
less agreement on how to measure the subjective new perspectives are offered to assess the subjec-
aspects (Ranzijn & Luszez, 2000). The objective tive aspects of quality of life. It is substantively
information contributes to drawing a general pro- noteworthy due to the fact that the results help one
file based on social, medical, or economical indi- understand what aspects of quality of life are
cators of quality of life, but no information is considered to be important by elderly people and
given about well-being or about the relevance of we are able to quantify this subjective importance.
the dimensions of quality of life to well-being. Analyzing data coming from 65QOL (Elosua,
The objective information is, of course, important 2011) which was constructed to assess the quality
since it allows us to know the context and this is of life of elderly people in five dimensions related
the first step towards designing policies to medi- to health, functional autonomy, social and family
ate in those domains which need to be improved. nets, home and environmental conditions, and
But this information has to be completed. social activities, a scale for latent preferences
Subjective assessment of those domains gives us among dimensions of quality of life was defined.
D 1630 Dimensions and Values of Elderly People, Quality of Life

The elderly sample was representative of a with the aspiration to age in place, which has
population of elderly people who live at home been extensively documented in the gerontologi-
and maintain a medium-high level of social activ- cal literature (Gitlin, 2003). It is recognized from
ity. According to the estimated dimension values, the World Health Organization that an important
the quality of life preference latent means could goal in aging healthily is to create environments
be sorted into four groups. The first group would supporting healthy living and well-being, and
be composed of the preferences regarding health. in this sense the role of housing is especially
The second would include personal autonomy. important. Particularly in old age, much time is
The third place was for home and support, spent at home and personal autonomy, which is
and the dimension related to social activities the second dimension in relevance, strongly
was in last place. depends on having an adapted physical environ-
The estimated preference values and the ment. Promoting adequately adapted housing is
order of latent preferences were equivalent for one strategic approach for improving the quality
gender and age; so the quality of life dimension of life by preserving autonomy, identity, and,
values were independent of both factors. therefore, healthy aging.
Although the differences were nonsignificant, In relation to the methodological approach
health, autonomy, support, and home means used, we would like to comment on two aspects.
were slightly higher for females, whereas the The Thurstonian model for the paired compari-
latent mean value for the dimension related sons is an older method for modeling preferences,
to social activities was higher for the male which we used to analyze the subjective values of
subsample. dimensions of quality of life of one elderly sam-
This general order among quality of life ple from a new perspective. (1) The estimation
dimensions is not concordant with the results process is based on the five descriptors of the
reported in several exploratory studies which latent domains. Domain descriptors must be care-
stressed the importance of non-health dimensions fully defined and selected in the preference
in quality of life (Bowling, 1995; Farquhar, 1995; choice task since the validity of the inferences
Wilhelmson, Andersson, Waern, & Allebeck, will depend on how well the descriptors represent
2005). However, from a methodological point the target domains and cover the construct.
of view, the results comparability depends on (2) The estimation of latent preferences was car-
the comparability of the methods, and one needs ried out in the Structural Equation Modeling
to consider the characteristics of the analyzed (SEM) framework. The Thurstonian approach
culture. Regarding the first factor, it is clear that enables us to work with estimated latent variables
by using different ways of gathering data, it is instead of observed variables and to incorporate
possible to find a different order among the covariates to the model in order to explain
dimensions. In the same study, Wilhelmson individual differences. Using paired comparison
et al. (2005) report different results on the same designs, minimal restrictions on the response
sample by using different methods. On the other behavior of a respondent are imposed. Particularly
hand, given the cultural and social factors affect- when differences between choice alternatives are
ing the quality of life, it is not surprising that we small, this method provides more information
can find a different order among dimensions about individual preferences than is obtainable
in different cultures. In assessing cross-cultural using summative scales. In short, the use of this
differences-similarities among quality of life framework would improve the assessment of the
dimensions, it is necessary to use the same preferences by making an interesting link between
methodological instruments and the same formal the observed data and the measurement model.
model. This allows for the incorporation of explanatory
From the dimension values, we would like variables in the model, as well as using a method
to highlight the subjective value given to the for collecting data that provides more information
dimension related to home. This result agrees about individual preferences.
Diminishing Returns 1631 D
Acknowledgments This research was supported through Maydeu-Olivares, A., & Bockenholt, U. (2005). Structural
grants by Ministry of Economy and Competitivity equation modeling of paired comparisons and ranking
(PSI2011-30256) and by University of Basque Country data. Psychological Methods, 10(3), 285304.
(GIU12/32). Nilsson, M., Ekman, S. L., Ericsson, K., & Winblad, B.
(1996). Some characteristics of the quality of life in
old age illustrated by means of Allardts concept.
Scandinavian Journal of Caring Sciences,
Cross-References 10, 116121.
Ranzijn, R., & Luszez, M. (2000). The measurement
Subjective Indicators of Well-being of subjective quality of life of elders. International
Journal of Aging & Human Development, D
50(4), 1934.
Thurstone, L. L. (1927). A law of comparative judgment.
References Psychological Review, 34, 273286.
Wiggings, R. D., Higgs, P. F. D., Hyde, M., & Blane, D. B.
Allison, P. J., Locker, D., & Feine, J. S. (1997). Quality of (2004). Quality of life in the third age: Key predictors
life: A dynamic construct. Social Science and Medi- of the CASP-19 measure. Ageing & Society,
cine, 45, 221230. 24, 693708.
Bowling, A., & Windsor, J. (2001). Towards the good life: Wilhelmson, K., Andersson, C., Waern, M., &
A population survey of dimensions of quality of life. Allebeck, P. (2005). Elderly peoples perspectives on
Journal of Happiness Studies, 2, 5581. quality of life. Ageing & Society, 25, 585600.
Carr, A. J., Gibson, B., & Robinson, P. G. (2001). Mea-
suring quality of life: Is quality of life determined by
expectations or experience? British Medical Journal,
322, 12401243.
Elosua, P. (2007). Assessing vocational interests in Diminishing Marginal Returns
the Basque country using paired comparison design.
Journal of Vocational Behavior, 71(1), 135145.
Elosua, P. (2011). Subjective values of quality of life dimen- Diminishing Returns
sions in elderly people. A SEM preference model
approach. Social Indicators Research, 104, 427437.
Farquhar, M. (1995). Elderly Peoples definitions of quality
of life. Social Science & Medicine, 41(10), 14391446. Diminishing Returns
Feeny, D. (2005). Preference-based measures: Utility and
quality -adjusted life years. In P. Fayers & R. Hays
(Eds.), Assessing quality of life in clinical trials Carme Riera-Prunera
(pp. 405430). UK: Oxford University Press. Econometrics, Statistics and Spanish Economy,
Fernandez-Ballesteros, R., & Zamarron, C. (2006). University of Barcelona, Barcelona, Spain
Cubrecavi. Madrid, Spain: TEA.
Fry, C. L. (2000). Culture, age, and subjective well-being-
health, functionality, and the infrastructure of eldercare
in comparative perspective. Journal of Family Issues, Synonyms
21, 751777.
Gabriel, Z., & Bowling, A. (2004). Quality of life from the
Decreasing returns to scale; Diminishing mar-
perspectives of older people. Ageing & Society, 24(5),
675691. ginal returns; Flowerpot law; Law of diminishing
Gill, T. M., & Feinstein, A. R. (1994). A critical appraisal (marginal) returns
of the quality of quality-of-life measurements. Journal
of the American Medical Association, 272, 619626.
Gitlin, L. N. (2003). Conducting research on home Definition
environments: Lessons learned and new directions.
The Gerontologist, 43(5), 628637.
Kind, P. (2005). Values and valuation in the measurement
With this concept, we are referring to the behav-
of HRQoL. In P. Fayers & R. Hays (Eds.), Assessing ior of production in the short and long run as the
quality of life in clinical trials (pp. 391404). Oxford: quantity of inputs increases. What happens is
Oxford University Press. that beyond a certain point, production fails to
Lauer, G. (1999). Concepts of quality of life in mental
health care. In S. Priebe, J. P. J. Oliver, & W. Kaiser
increase proportionately with added investment,
eds.), Quality of life and mental health care (pp. 118). effort, or skill. More specifically, a production
Petersfield: Wrightson Biomedical. function has decreasing returns to scale if an
D 1632 Diminishing Returns

increase of an equal percentage in all factors of C.E. Ferguson (1969), P. A. Samuelson (1979),
production causes at some point an increase in J. M. Ostroy (1984), J. Silvestre (1987), J. Eatwell
output of a smaller percentage, yielding lower (1987), S. Vassilakis (1987)and R. G. Chambers
per -unit returns. It can also be stated saying that (1988); or more recently, J. M. Buchanan and Y. J.
it refers to a decrease in the marginal quantity of Yoon (1994), G. M. Gelles, Mitchell DW (1996),
output produced as the amount of one input A. Sullivan A and S.M. Sheffrin (2003) and Basu,
increases, while holding the amounts of all other S. (2008). Also Karl Marx developed a version of
factors of production constant. the law of diminishing returns in his theory of the
tendency of the rate of profit to fall, described in
Volume III of Das Kapital.
Description At first, since economists neglected the possi-
bility of technical progress as a means to improve
History production, based on this law, they predicted that
Returns to scale are an old concept. Early econo- a large population expansion would be followed
mists such as Johann Heinrich von Thunen, by a decrease in output per head, thus contribut-
Turgot, West, Thomas Malthus, and David ing to poverty and preventing further increases in
Ricardo were already concerned. Classical econ- population. We can see this possible effect only
omists such as Malthus and Ricardo were worried in stagnant economies, with scarce technical
about the fact that in order to increase output from change throughout a long period of time. How-
agriculture, farmers would have to farm less fer- ever, modern economies facing constant
tile land or farm existing land with more intensive advances are able to surpass this problem and
production methods. In fact, they attributed the succeed in increasing their population and their
successive diminishment of output to the decreas- standard of living at the same time.
ing quality of the inputs. However little attention
was paid to it until Alfred Marshall used this Concept
concept to capture the idea that firms may face Production functions can exhibit increasing, con-
economies and diseconomies of scale (1890). stant, or diminishing returns to scale, depending
Marshall dealt with technical and monetary mainly on the phase and the level of output (Knut
(price in imperfect competition) explanations in Wicksell, 1901, 1902). It is generally assumed that
order to explain why firms may face changing when a firm is producing at a very small scale and
returns to scale. Later on neoclassical economists increases its size, by making more efficient use of
replied them by assuming that each unit of labor resources through division of labor and speciali-
is identical and diminishing returns depend on the zation of skills, it often faces increasing returns.
relation of labor and capital. The discussion However, if a firm is already producing at a very
on the concept of returns to scale in a technical large scale, with high output levels, it will proba-
sense was further analyzed by Knut Wicksell bly face decreasing returns because it is already
(1900, 1901, 1902), J.A. Hobson (1900), quite difficult to manage all resources properly;
P. H. Wicksteed (1910), A. Aftalion (1911), thus, any increase in size will probably introduce
F. Edgeworth (1911), W.E. Johnson (1913); a certain level of inefficiency (Frisch, 1965).
Piero Sraffa (1926), C.W. Cobb and P.H. Douglas The law of diminishing returns is one of the
(1928), John Hicks (1932, 1934, 1936), N. Kaldor most famous laws in economics and it plays
(1934), F. Machlup,(1937) or Allen, R.G. (1938) a central role in economic theory. It is said as
among others. Later on a great variety of first written by Anne Robert Jacques Turgot and
economists have also included this concept in further worked by Thomas Malthus. The law
their studies, such as P.H. Douglas (1948, 1967), states that in all productive processes, when one
R. Frisch (1950), DG. Champernowne (1953), of the factors of production is fixed, successive
N. Kaldor (1955, 1961), K. J. Arrow et al. (1961), additions of another factor will initially lead to
Diminishing Returns 1633 D
Diminishing Returns, 600
Fig. 1 Law of diminishing
returns. # mbainexperience. 500
com TPL
Increasing Diminishing Negative
400
Marginal Marginal Marginal
Returns Returns Returns
300

200
D
100
APL
0
MPL
1 2 3 4 5 6 7 8 9 10 11 12 13
100 Labor

the desired increase in returns and profit up to where A > 0 and 0 < b < 1. Thus,
a certain point. But, beyond that point, new addi-
tions of the input yield progressively smaller FaK; aL AaKb aL1b
returns. What happens is that in the beginning,
as we increase the quantity of one production Aab a1b K b L1b
factor, its marginal return is reduced, and as we aAK b L1b aFK; L: (1b)
keep adding the factor, a point is reached where
eventually the overall average returns start But if the Cobb-Douglas production function has
decreasing. It is important to remark that the its general form
law assumes that at least one factor of production
is fixed and that technology does not change for FK; L AK b Lc (1c)
a certain period of time. Hence, the law of
diminishing returns applies generally to the with 0 < c < 1, then there are decreasing returns
short run, since in the long run the firm is if b + c < 1, since
likely to increase the quantity of all factors
of production as well as to introduce new FaK; aL AaKb aLc Aab ac K b Lc
technology and methods.
abc AK b Lc abc FK; L; (1d)
Formal Definition
The formal definition would be as follows: for which is greater than or less than aF(K, L) as b + c
any constant a greater than 1, is greater or less than 1.
This graph (Fig. 1) depicts the law of
FaK; aL < aFK; L diminishing returns using one input, x. As the
unique input x increases, output (y) increases,
where K and L are factors of production, capital, but at different rates. At low levels of output
and labor, respectively. (around y1), the production function y F (x) is
A formal example with a Cobb-Douglas convex; thus, it exhibits increasing returns to
functional form would look as follows: scale (doubling inputs more than doubles output).
It has decreasing returns to scale when the At high levels of output (around y3), the produc-
sum of the exponents adds up less than one. The tion function y F (x) is concave; thus, it exhibits
function is decreasing returns to scale (doubling inputs less
FK; L AK b L1b (1a) than doubles output).
D 1634 Diminishing Returns

The economic justification for increasing Bottlenecks of critical inputs used in the pro-
returns to scale has to do with the division of duction process.
labor and its specialization as well as with Laws and regulations that hinder a firm as it
new emerging techniques or changes in the old tries to expand output.
technique. Thus, it can be posed that it is just Overworked managers and employees.
capturing the idea of technical progress Overuse of the existing fixed capital stock.
(Allyn A. Young (1928) and Nicholas Kaldor
(1966), and modern neoclassical endogenous
growth theory). However, decreasing returns to Cross-References
scale are more difficult to justify and accept,
especially at a technical level, since every Diminishing Returns
input and aspect in production can always be
replicated; thus, it is not only a question of
changing factor proportions. In this sense, the References
asymmetry of the three types of returns to scale
was explicitly admitted by Alfred Marshall, Aftalion, A. (1911). Les trois notions de la productivite et
the forces which make for Increasing Return les revenues. Revue dEconomie Politique, 25,
145184.
are not of the same order as those that make for
Allen, R. G. D. (1938). Mathematical analysis for econo-
Diminishing Return: and there are undoubtedly mists. New York: St. Martins.
cases in which it is better to emphasize this Arrow, K. J., Chenery, H. B., Minhas, B. S., & Solow,
difference by describing causes rather than R. M. (1961). Capital-labor substitution and economic
efficiency. Review of Economics and Statistics, 43,
results (Marshall, 1890). We can also think of
225250.
the size of production as overstretching itself, Basu, S. (2008). Returns to scale measurement. The new
meaning that in big firms or with a large palgrave dictionary of economics, 2nd ed.
production level, the advantages gained through Buchanan, J. M., & Yoon, Y. J. (Eds.). (1994). The return
to increasing returns. Ann Arbor: the University of
specialization are being outweighed by the
Michigan Press.
disadvantages coming from, for instance, Chambers, R. G. (1988). Applied production analysis:
managerial coordination, among other aspects. A dual approach. Cambridge, UK: Cambridge
In most cases, what economists do is to assume University Press.
Champernowne, D. G. (1953). The production function
a fixed factor or some indivisibilities.
and the theory of capital: A comment. Review of
Economic Studies, 21(1), 112135.
Reasons for Decreasing Returns to Scale Cobb, C. W., & Douglas, P. H. (1928). A theory of
They mainly arise from diseconomies of scale, production. American Economic Review, 18, 139165.
Douglas, P. H. (1948). Are there laws of production?
which basically result in a reduction of
American Economic Review, 38, 141.
productivity: Douglas, P. H. (1967). The Cobb-Douglas production
Lower management efficiency, arising from function once again: Its history, its testing and some
scale expansion. empirical values. Journal of Political Economy, 84(5),
903916.
Inefficient organization of production.
Eatwell, J. (1987). Returns to scale. The New Palgrave:
Exhaustibility of natural resources. A Dictionary of Economics, 4, 165166.
Inefficient control: when the size of the firm Edgeworth, F. Y. (1911). Contributions to the theory
increases efficiently, controlling all depart- of railway rates. The Economic Journal, XXI(83),
346370.
ments may hinder production.
Edgeworth, F. Y. (1911). Contributions to the theory of
The firm is reaching the upper end of its capac- railway rates. II. The Economic Journal, XXI(83),
ity and would require significant investment to 551571. Reprinted in 1925 as The laws of increasing
produce more. and diminishing returns in Papers Relating to Political
Economy, Vol. 1, London: Macmillan: 6199.
Scale effects are reaching an end.
Ferguson, C. E. (1969). The neoclassical theory of
No more specialization is possible to attain. production and distribution. London: Cambridge
Proportion increasing cost. Univ. Press.
Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH) 1635 D
Frisch, R. (1950). Alfred Marshalls theory of value. Wicksell, K. (1902). Till fordelningsproblemet, Ekon
Economic Journal, 64(4), 495524. Tidskrift. [On the problem of distribution] In E. Lindahl
Frisch, R. (1965). Theory of production. Drodrecht, The (Ed.), Knut Wicksell: Selected papers on economic the-
Netherlands: Reidel. ed. ory (1958) (pp. 121130). London: Allen & Unwin.
Gelles, G. M., & Mitchell, D. W. (1996). Returns to scale Wicksteed, P. H. (1910). The common sense of political
and economies of scale: Further observations. Journal economy: including a study of the human basis of
of Economic Education, 27, 259261. economic law (2 volumes). London: Macmillan, 2nd
Hicks, J. (1932). Theory of wages (2nd ed. 1963). London: ed. reprinted in 1933, Robbins, L. (Ed). Clifton, NJ:
Macmillan. Augustus M. Kelley Publishers.
Hicks, J. (1934). Marginal productivity and the principle West, E. (1815). Essay on the application of capital to land.
of variation. Economica, XII(35), 7988. Printed for T. Underwood, 32, Fleet Street; by C. D
Hicks, J. (1936). Mr Keyness theory of employment. The Roworth, Bell Yard, Temple Bar. London: Underwood.
Economic Journal, 46, 238253. Young, A.A. (1928). Increasing returns and economic
Hobson, J. A. (1900). The economics of distribution. progress. Economic Journal, 28.
New York: Macmillan.
Johnson, W. E. (1913). The pure theory of utility curves.
Economic Journal, 23, 483513.
Kaldor, N. (1934). The equilibrium of the firm. The Dipsomania
Economic Journal, 44(173), 6076.
Kaldor, N. (1955). Alternative theories of distribution. Addiction, An Overview
Review of Economic Studies, 23(2), 83100.
Kaldor, N. (1961). Capital accumulation and economic
growth. In F. Lutz & D. Hague (Eds.), The theory of
capital. London: Macmillan.
Kaldor, N. (1966). Causes of the slow rate of economic Direct Rescaling (of the Scale
growth in the UK: An inaugural lecture. London:
Cambridge University Press.
Ratings)
Machlup, F. (1937). On the meaning of marginal product.
In: Augustus M. Kelley, Publishers (Eds.), Explora- Linear Scale Transformation
tions in economics in honor of Frank Taussig.
New York: McGraw-Hill.
Marshall, A. (1890). Principles of economics (First ed.).
London: Macmillan.
Marshall, A. (1920). Principles of economics (Revised Direct Stretching (of the Rating
ed.). London: Macmillan; reprinted by Prometheus Scale)
Books.
Ostroy, J. M. (1984). A reformulation of the
marginal productivity principle. Econometrica, 52(3), Linear Scale Transformation
599630.
Samuelson, P. A. (1979). Paul Douglass measurement of
production functions and marginal productivities.
Journal of Political Economy, 87(5), 923939.
Disabilities of the Arm, Shoulder
Sraffa, P. (1926). The laws of returns under competitive and Hand Questionnaire (DASH)
conditions. The Economic Journal, 36, (144), 535550.
Silvestre, J. (1987). Economies and diseconomies of scale. Felix Angst
The New Palgrave: A Dictionary of Economics, 2,
8084.
Research, Rehabilitation Clinic (RehaClinic),
Sullivan, A., & Sheffrin, S. M. (2003). Economics: Bad Zurzach, Bad Zurzach, Switzerland
Principles in action (p. 157). Upper Saddle River: Schulthess Klinik, Zurich, Switzerland
Pearson Prentice Hall.
Vassilakis, S. (1987). Increasing returns to scale. The New
Palgrave: A Dictionary of Economics, 2, 761764.
Wicksell, K. (1900). Om gransproduktiviteten sasom Synonyms
grundval for den nationalekonomiska fordelningen,
Ekon Tidskrift [Translation: Marginal Productivity as DASH Disabilities of the Shoulder, Arm and
the Basis for Economic Distribution] (1958). New
York: M.E. Sharpe.
Hand questionnaire (30-item full length version);
Wicksell, K. (1901). Lectures on political economy (Two Quick DASH, questionnaire (13-Item short
volumes) (19016). London: Routledge & Kegan Paul. version)
D 1636 Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH)

Definition measurement error of the tool. The most


important concept to measure reliability is
Introduction test-retest reliability, which is most accurately
The DASH is the most important and most widely quantified by the ICC type (2,1), the correlation
used measurement instrument for self-rated out- of two replicates of the same variable. The ICC
come of the upper extremity, that is, the shoulder, varies from 0.00 no reliability to 1.00 perfect
elbow, and hand, that is, wrist and finger joints reliability. Another measure for cross-sectional
(Kennedy, Beaton, Solway, McConnell & reliability is the CA that quantifies the internal
Bombardier, 2011). This entry summarizes the consistency of a scale from 0.00 no to
psychometric properties of the DASH and its 1.00 perfect consistency. It measures the agree-
short form, the QuickDASH focusing on validity. ment of the single items with the composing scale
Since the two most important references used or the extent to which items in a scale are consis-
are recent systematic reviews, this condensate tent with each other. A CA should lie in the range
of DASH data is also a systematic review of 0.700.90; values >0.90 mean that some items
the current world literature (Angst, Schwyzer, composing the scale are of redundant content and
Aeschlimann, Simmen & Goldhahn, 2011; could be omitted (Angst et al., 2009; Streiner &
Kennedy, Beaton, Solway, McConnell & Norman, 2008).
Bombardier, 2011). Where necessary, single
studies were individually reviewed (about 150 Validity
studies). Face and content validity assesses whether the
Validity is the most important psychometric items appear to measure the relevant content and
property of a measurement tool because it proves the desired qualities, especially representative-
whether an instrument measures the content, con- ness, and is usually based on subjective judg-
struct, dimension, and domain or that it is ment. Criterion validity correlates the
intended, supposed, and constructed to measure measure under examination to some other mea-
by its definition, description, and purpose (Katz, sure of the trait of disorder under study, ideally, a
2011; Streiner & Norman, 2008). Validity also gold standard which has been used and accepted
depends on the other two major psychometric in the field. Construct validity compares the
properties, reliability and responsiveness. measurement properties of the instrument to
High levels of reliability and responsiveness are hypothetical constructs based on a mini-theory
necessary, but not sufficient, for high validity that explains relationships among various
(Streiner & Norman, 2008). behaviors and attitudes of the examined persons.
These three most important types of validity
Psychometric Properties belong together and interact. For example, shoul-
The following concepts and definitions are der pain is a subjective perception (content,
extensively described in Streiner and Norman construct); it is impossible to measure it directly
(2008) and summarized in Angst et al. (2011), or objectively (no gold standard: criterion). As
Katz (2011), and Kennedy et al. (2011). surrogate (criterion) for a pain scale, we only can
ask the patient, How much is your shoulder
Reliability pain? (content, face). Pain leads to resting the
Reliability examines whether an instrument mea- shoulder joint, a certain behavior (construct). If
sures the same, if it should measure the same, another instrument also measures pain and is
especially when administered at two time points validated, it serves as criterion. The correlation
(test-retest, intra-rater) or two examiners (inter- of the two pain scales then quantifies construct
rater) and the status under question did not validity. Correlation coefficients vary (in abso-
change. It quantifies stability, reproducibility, lute value) from 0.00 (no agreement, divergent
repeatability, agreement, and precision. High construct) to 1.00 (perfect agreement, convergent
reliability means low (especially random) construct). If pain subsides, the score must
Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH) 1637 D
change (content, construct, responsiveness). view, a measure of longitudinal validity (Angst
Squared correlation coefficients quantify how et al., 2011; Katz, 2011; Kennedy et al., 2011;
much variance of one scale is explained by the Streiner & Norman, 2008). The most important
other scale (Angst et al., 2009). This means that parameters are the ES that is the mean score
correlations of 0.01 to 0.19 are zero to very low difference divided by the groups standard
(0 % 4 % explained variance divergent deviation at baseline and the SRM that is the
construct), 0.200.49 low (4 % 24 %), mean score difference divided by the groups
0.500.69 moderate (25 % 48 %), 0.700.85 standard deviation for the score changes
high (49 % 72 %), and 0.861.00 very high (Streiner & Norman, 2008). Both are (by standard D
(74 % 100 % convergent construct). deviations) standardized parameters of change,
The ability to detect change or to discriminate unit-free, and independent of the scaling used.
(discriminant validity) is part of the content and An ES of 0.200.49 is small, 0.500.79 moderate,
construct validity and also depends on precision and 0.80 large (Angst et al., 2008, 2009, 2012).
and sensitivity of measurement, that is, reliability
and responsiveness. Important parameters are the
MDC95 and the MCID. The MDC95 quantifies Description
the score difference by which two patients have,
with 95 % confidence, different health states. It is a DASH
sort of minimal statistically detectable difference. The DASH was designed to measure physical
In the cross-sectional case, the MDC95 equals disability and symptoms in people with various
1.96*SD*square root(1-CA), where SD is the upper limb disorders by self-rating (Kennedy
baseline standard deviation of the group and 1.96 et al., 2011). It aims to describe different groups
is the z score for 95 % probability (Kennedy et al., of people to compare the impact of upper limb
2011; Streiner & Norman, 2008). SD*square root disorders (discriminative) and to measure change
(1-reliability parameter) is the standard error of over time (responsiveness) (Kennedy et al.,
measurement. For longitudinal measurement, it 2011). It should be relevant to a wide variety
is MDC95 1.96*SD*square root(1-ICC)*square of health care-professions, insurers, and service
root(2), while square root(2)  1.414 (Kennedy providers who wish to understand the full impact
et al., 2011; Streiner & Norman, 2008). of upper-limb disorders (Kennedy et al., 2011).
The MCID is the minimal change of health that Table 1 lists the items and their content of the
can be subjectively perceived by the individual. DASH and the QuickDASH (Angst et al., 2009).
The most accepted concept is the assessment on The DASH has 23 items for function (items 123)
the global health rating, the transition item of which two are about social function (items 22
(Angst et al., 2008, 2009, 2011, 2012; Katz, and 23). They are scored as 1 no difficulty,
2011; Kennedy et al., 2011). The difference of 2 mild difficulty, 3 moderate difficulty,
the mean score differences (effects) between the 4 severe difficulty, and 5 unable to do.
response categories (slightly) better (or worse) Symptoms are assessed by 7 items (items
and unchanged is then equal to the MCID. 2430) scaled as 1 none, 2 mild,
Normal distribution of the scores (content, 3 moderate, 4 severe, and 5 extreme
construct), low floor and ceiling effects (content, (severity). Item 29, difficulty to sleep, also
construct), and properties of the instrument has a symptomatic component. Validity testing
when examined by item-response theories (e.g., of the subscores of symptoms and function is still
Rasch analysis: criterion) are also important to ongoing; thus, data on the total scores are
rate validity. reported in the following. Two optional modules
ask about difficulties regarding the ability to work
Responsiveness (work module) and to perform sports/arts (sports/
Responsiveness quantifies the instruments arts module) by 4 items each. They are used
sensitivity to change of health and is, in this for manual workers and for athletes/musical
D 1638 Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH)

Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH), Table 1 Items and content of the DASH and
the QuickDASH
Item DASH QuickDASH Construct
01 Open a tight/new jar Open a tight/new jar Function
02 Write Function
03 Turn a key Function
04 Prepare a meal Function
05 Push open a heavy door Function
06 Place an object on shelf above head Function
07 Do heavy household chores Do heavy household chores Function
08 Garden or yard work Function
09 Make a bed Function
10 Carry shopping bag or briefcase Carry shopping bag or briefcase Function
11 Carry a heavy object (>10 lbs.) Function
12 Change a light bulb overhead Function
13 Wash or blow-dry your hair Function
14 Wash your back Wash your back Function
15 Put on a pullover/sweater Function
16 Use a knife to cut food Use a knife to cut food Function
17 Recreational activities requiring little effort Function
18 Recreational activities requiring some force Recreational activities requiring some force Function
19 Recreational activities moving the arm freely Function
20 Manage transport needs Function
21 Sexual activities Function
22 Interference with social activities Interference with social activities Function
23 Limitation in work, regular daily activities Limitation in work, regular daily activities Function
24 Pain Pain Symptom
25 Pain when performing a specific activity Symptom
26 Tingling Tingling Symptom
27 Weakness Symptom
28 Stiffness Symptom
29 Difficulty to sleep because of pain Difficulty to sleep Function/symptom
30 Feel less capable, confident, useful Symptom

instrumentalists. Since there is sparse use and number of completed items, namely, for
literature of the two optional modules, review of the subscores of symptoms and function and
them is omitted in the following. for the QuickDASH (Table 1). To be comparable
For patient settings, the 30-item DASH to other instruments, for example, the SF-36
version is mostly used and best tested. To score, or the CS, the scaling is often reversed
the item values are summed up and transformed (100-original score) to obtain 0 worst to
to the original scale from 0 no symptoms/full 100 best (Angst et al., 2011).
function to 100 maximal symptoms/no
function. 90 % completed items are necessary to QuickDASH
determine the score (missing rule). We recom- The QuickDASH was designed to save time and
mend the use of the unweighted mean of the shorten the burden on the respondent (Kennedy
items; for example, the DASH total et al., 2011). It should be as short as possible
score (mean-1)*25 (Angst et al., 2011). The while retaining the necessary measurement
advantage of this method is that it is valid for any properties, that is, it should be as reliable,
Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH) 1639 D
Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH), Table 2 Reliability and precision of
measurement of the DASH and the QuickDASH
Median Range n (studies)
Internal consistency (CA) DASH 0.96 0.890.98 33
QuickDASH 0.91 0.880.94 8
Test-retest reliability (ICC) DASH 0.91 0.770.98 24
QuickDASH 0.92 0.820.94 9
Cross-sectional precision (MDC95) DASH 7.9 3.811.2 23
QuickDASH 12.7 9.015.0 8 D
Longitudinal precision (MDC95) DASH 16.0 3.324.8 22
QuickDASH 17.6 12.324.7 7
Perceivable difference (MCID) DASH 15.0 4.620.9 5
QuickDASH 8.0 8.0 1

valid, and responsive as the full-length content is obvious (Table 1) and meaning is
DASH (Kennedy et al., 2011). Following easy to understand. Missing items are rare with
a modern methodological state of the art, the the exception of item 21 about sexual activity
QuickDASH has been carefully developed by which is often left out. For the same reason,
comparing three concepts. The concept reten- item 21 was not included in the QuickDASH
tion version has been selected as the best (1). It (Angst et al., 2011; Kennedy et al., 2011). How-
has 9 items in the domain of function and 2 items ever, the relatively strict missing rule of 90 %
on symptoms (or 3: item 29, difficulty to sleep completed items produces relatively high propor-
can also be regarded as a symptom), and 11 for tions of missing data (Angst et al., 2011).
the total score (Table 1). The scaling is analogue Several studies reported low floor and ceiling
to that of the DASH (see above). Other short effects (Angst et al., 2011; Kennedy et al., 2011).
versions of the DASH have been described, for This means that the DASH and QuickDASH are
example, the QuickDASH-9 (items) and the M2 able to differentiate well at both ends of the scale,
DASH, but they have not reached importance and that is, among almost healthy and among very
will not be further described in the following severely affected persons (content, construct).
(Angst et al., 2011). Further, several studies reported normally distrib-
uted scores in the patient groups, which allows
Psychometric Properties the use of parametric methods for data analysis
Reliability and statistical tests for comparisons (Angst et al.,
Internal consistency was very high for the DASH 2011; Kennedy et al., 2011).
(median CA, 0.96) and high for the QuickDASH
(0.91) (Table 2) (Angst et al., 2011; Kennedy Criterion Validity There is no gold standard for
et al., 2011). Both questionnaires reached very the assessment of upper limb symptoms and dis-
high levels of test-retest reliability (median ICC, ability (criterion validity). However, the obvi-
0.91 and 0.92). ous content validity of the used items and the
numerous studies of the DASH give it a certain
Validity intrinsic validity (Angst et al., 2011). There are
Face and Content Validity High face and con- numerous (plus/minus well) validated instru-
tent validity were the focus of the development ments that were used for comparison of the con-
stage of the DASH during which researchers, tent and construct of the DASH and serve as
clinicians and patients helped in the selection of surrogate of the criterion (Table 3). The DASH
items and the wording of responses (Kennedy raised some concerns because items 21 (sexual
et al., 2011). The appropriateness of the item activity), 26 (tingling; also in the QuickDASH),
D

Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH), Table 3 Cross-sectional validity (median correlations) of the DASH and QuickDASH total scores
1640

Level DASH DASH DASH DASH QuickDASH


Mixed (n 59) Shoulder (n 54) Elbow (n 23) Hand (n 99) All/mixed (n 37)
0.90 0.90 (n 1) SST 0.91 (n 1) HAT
0.89 0.88 (n 1) HAQ 0.89 (n 1) MHQ
0.87 (n 1) UEFI 0.87 (n 1) PRTEE 0.85 (n 1) MASS07 0.86 (n 1) SPADI
0.86 (n 4) WORC 0.83 (n 1) HFS 0.86 (n 1) HAQ
0.85 (n 1) AIMS2 0.83 (n 1) AUSCAN
0.82 (n 6) PRWE
0.80 0.80 (n 1) VAS function 0.80 (n 2) HAQ 0.80 (n 1) BSHS-B
0.79 0.79 (n 2) VAS function 0.79 (n 1) OSS 0.79 (n 3) VAS function
0.77 (n 1) UEFS 0.77 (n 1) WOSI 0.78 (n 1) PRWE
0.77 (n 1) VAS work 0.77 (n 8) SPADI 0.78 (n 1) WLQ-16
0.76 (n 5) CS 0.76 (n 1) VAS work
0.76 (n 1) VAS function
0.75 (n 1) EQ-5D
0.75 (n 1) SF-12 PCS 0.73 (n 3) pmASES
0.72 (n 3) SF-36 BP 0.73 (n 1) ROM 0.73 (n 1) PEM 0.73 (n 1) SF-36 PCS
0.71 (n 1) GDR 0.72 (n 3) SF-36 PCS 0.72 (n 1) PRFE 0.73 (n 1) GAT
0.70 0.70 (n 7) SF-36 PCS 0.71 (n 2) HAQ 0.71 (n 11) BQ 0.70 (n 1) VAS problem
0.69 0.69 (n 1) VAS problem 0.68 (n 4) PREE 0.69 (n 3) SF-36 PF
0.65 (n 8) SF-36 BP 0.65 (n 1) Croft 0.67 (n 2) SF-36 PCS 0.67 (n 4) VAS pain
0.66 (n 2) SF-36 BP
0.64 (n 3) VAS pain 0.65 (n 3) SF-36 PF 0.65 (n 1) VAS pain 0.65 (n 1) AJC 0.66 (n 1) PREE
0.60 0.62 (n 1) SF-12 PCS 0.62 (n 3) pASES 0.65 (n 2) Flex/Ext 0.64 (n 2) BQ
0.59 0.59 (n 9) SF-36 PF 0.59 (n 1) GWS
0.59 (n 1) MPUT
0.58 (n 1) HUI3 0.58 (n 9) SF-36 PF 0.58 (n 1) Strength
0.57 (n 1) ROM 0.57 (n 1) Custom
0.55 (n 1) Complaints 0.56 (n 2) cASES 0.57 (n 9) SF-36 BP
0.54 (n 1) SFA 0.56 (n 4) SF-36 PCS
Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH)
0.50 0.50 (n 1) AMAIS 0.52 (n 3) VAS pain 0.50 (n 1) SF-36 PF 0.51 (n 1) ROM
0.49 0.48 (n 1) SF-36 BP 0.48 (n 6) Pinch 0.49 (n 3) SF-12 PCS
0.47 (n 2) Rotation 0.47 (n 13) Grip
0.47 (n 1) Tenderness
0.44 (n 2) cmASES 0.44 (n 1) KFT
0.42 (n 1) DAS28 0.43 (n 7) SF-36 MH
0.40 0.40 (n 7) SF-36 MCS 0.40 (n 4) VAS pain 0.40 (n 1) Grip
0.39 0.38 (n 1) Tenderness 0.39 (n 2) Dexterity
0.30 0.37 (n 7) SF-36 MH 0.35 (n 1) SF-36 MH 0.38 (n 5) SF-36 MCS 0.37 (n 3) SF-36 MH
0.29 0.29 (n 1) DAS28
0.25 (n 3) SF-36 MH 0.27 (n 6) ROM 0.26 (n 1) Pinch
0.20 0.24 (n 1) GWDS 0.24 (n 2) ROM 0.21 (n 1) SF-36 MCS
0.19 0.15 (n 1) SF-12 MCS 0.17 (n 2) SF-36 MCS 0.17 (n 1) GWS 0.16 (n 3) SF-12 MCS
0.10 0.12 (n 2) SF-36 MCS
0.09 0.07 (n 1) AJC
0.00 0.05 (n 1) Swelling
Legend: Mixed: several upper extremity joints/regions. All: all study results. n number of study results, bold: if n  3
Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH)
1641
D

D
D 1642 Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH)

and 30 (feel less capable) showed misfit to the pmASES (0.73) and the PREE (0.68) are joint
predicted data by the Rasch model (Angst et al., specific. The most results are available on hand/
2011). The Rasch analysis results of the wrist conditions (n 99). Highly correlated
QuickDASH were somewhat better. Furthermore, were the joint-specific PRWE (0.82) and the
differentiation between the item levels mild ver- joint-specific BQ (0.71). The SF-36 physical
sus moderate versus severe difficulty was not scales attained 0.560.58, mental health 0.43,
possible for all items (Angst et al., 2011). Finally, and the MCS 0.38. Correlation to hand strength
the DASH total score was not able to show unidi- was relatively low (pinch, 0.48; grip, 0.47) as
mensionality and may be influenced by conditions well as to hand pain (VAS, 0.40). Low correlation
of the lower extremity in some settings (Angst showed mobility (ROM, 0.27).
et al., 2011). This results in overall moderate cri- A correlation of 0.27 means that the DASH
terion validity of the DASH and in a moderate to total score explains only 0.272 7.3 % of the
high one for the QuickDASH. variance of the ROM of the wrist and finger
joints divergent construct validity. The same
Construct Validity: Correlations to Other is observed in mental health scales over all cate-
Measures Table 3 condenses all the results of gories (columns of Table 3). Pure assessment of
the DASH manual (Kennedy et al., 2011), espe- pain (VAS) has relatively low representation in
cially all tables and appendices, of the most the DASH total score (shoulder, 27.0 %; hand,
recent review of shoulder instruments (Angst 16.0 % explained variance). The correlations to
et al., 2011) and of two responsiveness studies SF-36 BP are higher than to VAS pain because
of which the unpublished baseline correlations the second SF-36 pain item, that is, one of two,
were calculated from the original data (Angst asks about interference of pain with function.
et al., 2008, 2012). This resulted in a total of For the QuickDASH, high correlations were
n 235 correlation results for the DASH and found to VAS function (0.79), moderate to SF-36
n 37 for the QuickDASH (Angst et al., 2009). PF (0.69), and VAS pain (0.68) reflecting con-
From each report, only one set, if possible, the struct convergence. Lower correlations showed
baseline score correlations were taken to avoid up for SF-12 PCS (0.49), SF-36 MH (0.37), and
publication bias. Given several results (n) for the SF-12 MCS (0.16) corresponding to lower con-
same score, the median of the correlations was vergence and higher divergence.
calculated; if n was an even number, the arith-
metic mean of the two central figures was deter- Construct Validity: Discriminant Validity,
mined. Due to the small number of data, the Precision of Measurement Discriminant con-
results for the QuickDASH were collapsed into struct validity was examined in various settings
one category (last column of Table 3). Correla- (Kennedy et al., 2011). For example, A DASH
tions based on n < 3 studies should be interpreted total score of 518 reflected no symptoms and
with caution since dependency on the study set- disability/very mild severity, 1236 mild, 2344
ting may play a major role. The results obtained moderate, 3355 severe, and 5560 very severe
by n  3 studies are elaborated in the following symptoms and disability depending on the study
(bold in Table 3). setting (data from 4 studies; scale; 0 best,
In shoulder, the DASH correlated highest with 100 worst). The intervals overlap which limits
three joint-specific measures: WORC (0.86), the ability to discriminate. The corresponding
SPADI (0.77), and CS (0.76). The joint-specific scores of the QuickDASH were 1219 for mild,
pASES was lower (0.62). The physical scales of 1928 for moderate, and 3348 for severe
the generic SF-36 showed correlations of 0.72 symptoms (only 1 study). Range of DASH scores
(SF-36 BP and PCS) and 0.65 (SF-36 PF). VAS was 1227 reported for persons able to work, 36
pain correlated at 0.52 and mental health (SF-36 working with restrictions, and 4156 unable to
MH) at 0.25. An analogue rank order was found work (3 studies). The corresponding figures for
in the mixed category and for the elbow; the the QuickDASH were 1028, 2033, and 4953
Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH) 1643 D
(2 studies). Normative data from a US population not available. In all settings, unreported ES were
survey (n 1,706) have been published and calculated for comparison with other studies.
allow comparison to patient data stratified by More responsive than the DASH were joint-
10-year age group and sex (Kennedy et al., specific measures such as the WORC, CS,
2011). The normative mean DASH total scores pASES, SPADI, SST (shoulder), PREE and
were 7.4 for males and 12.0 for females pmASES (elbow), and PRWE (hand) as well as
(0 best). the clinical scales of the cASES, cmASES, ROM,
Precision of measurement influences discrim- and even the SF-36 BP (which asks about pain-
inant construct validity and was calculated from dependent function in one of the two items). Less D
the data of the original studies that were listed in responsive were SF-36 PCS (which also depends
(1, 2, 5) (Table 2). Cross-sectional precision was on the psychosocial SF-36 scales), VAS function
higher for the DASH (median MDC95 7.9 and pain, SF-36 PF (which mainly assesses
score points) than for the QuickDASH (12.7). ambulation), SF-36 MH, and SF-36 MCS.
This means that, for example, if a person reported Strength of shoulder abduction was less, grip
a DASH score of 50.0 points, the persons true strength more responsive than the DASH. These
score lies between 42.1 and 57.9 with 95 % prob- relationships are consistent for the QuickDASH,
ability (score+/MDC95). Longitudinal preci- but data are based on very few comparative stud-
sion was similar for both tools (DASH, median ies and not shown in detail (Angst et al., 2011;
MDC95 16.0; QuickDASH, 18.2) but showed Kennedy et al., 2011).
large variation (DASH). This means that if
a person has a DASH score of 50.0 at baseline Comparison of the DASH and the
and 34.0 at follow-up, one can be confident with QuickDASH The constructs are very similar, at
95 % probability (error, 5 %) that the improve- first sight, especially when looking at the total
ment is real and not due to measurement error. scores (Angst et al., 2009): Construct conver-
The minimal effect perceived by the individ- gence between the QuickDASH and the DASH
ual, the MCID, was 15.0 DASH total score points was very high by median correlation 0.96 (range
as indicated by the authors of the manual as the 0.920.98, n 4 studies) (Angst et al., 2009;
most accurate change when we worked through Angst et al., 2011; Kennedy et al., 2011).
all the findings (1). Calculated by the transition However, stratified analysis in the domains of
method in single studies, this value could be symptoms and function revealed that the con-
replicated but figures showed large variation structs differed (Angst et al., 2009). Compared
(Table 2) (Angst et al., 2011; Kennedy et al., to the full-length DASH, the QuickDASH under-
2011). For the QuickDASH, there is only one estimates symptoms (reported lower symptom
study that reported an MCID of 8.2 (Angst severity) but overestimates disability (reported
et al., 2011; Kennedy et al., 2011). However, if better function) by statistically significant differ-
the MCID is smaller than the longitudinal ences. In the total scores, the sum of symptoms
MDC95, the MDC95 should be taken as MCID and disability, these effects neutralized each
(Angst et al., 2011). other, a mimicry effect that suggests high con-
struct overlap. The QuickDASH showed slightly
Responsiveness Of the large number of studies lower construct convergence to joint-specific
reporting longitudinal DASH data, the most rel- measures, especially in shoulder, that is, joint
evant are five that compared the DASH to at least specificity was lower in some examined strata
three other instruments or scales in Table 4 when compared to the DASH (Angst et al., 2009).
(Angst et al., 2008, 2009, 2011, 2012; Kennedy
et al., 2011). The results of MacDermid 2006 Summary and Conclusions The DASH and, to
should be interpreted with caution because they a slightly lesser extent, the QuickDASH showed
are those of patients who improved on all three very high reliability, a necessary condition for
instruments, but complete, non-stratified data are high validity. High internal consistency points
D 1644 Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH)

Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH), Table 4 Responsiveness (ES) of the DASH
total score compared to 3 other measures
Joint Shoulder Shoulder Shoulder Elbow Hand
Author Angst 2008 MacDermid Fayad 2008 Angst 2012 MacDermid 2000
2006
Intervention Total joint Rotator cuff Proximal humerus fracture, Total joint Distal radius facture,
arthroplasty repair conservative arthroplasty conservative
n (patients) 153 86 46 65 59 (month 3 to 6)
WORC 2.31
CS 2.23
pASES 2.13
SPADI 2.10
cASES 1.87
SST 1.75
PREE 1.50
pmASES 1.32
Grip 0.94
cmASES 0.86
ROM 1.85 (cASES) 1.33 (abduction) 0.81 (cmASES) 0.67
PRWE 0.50
SF-36 BP 1.55 1.41 0.58 0.44
DASH 1.19 1.31 1.24 0.56 0.44
SF-36 PCS 0.71 1.23 0.11 0.40
Strength 0.70 (CS:
abduction)
VAS 0.93
function
SF-36 PF 0.32 0.59 0.07 0.14
VAS pain 0.14
SF-36 MH 0.04 0.12 0.31
SF-36 MCS 0.35 0.14 0.20

to redundancy of some DASH items, a problem the DASH total score that is dominated by items
that is not present in the QuickDASH. Overall, that ask about function (77 %). Construct conver-
there is high face and content validity for both gence to joint-specific scales is especially high on
instruments. Regarding criterion validity, there shoulder and hand, whereby elbow symptoms
are substantial concerns and limitations, espe- and function seems to be captured less by the
cially for the full-length DASH. However, testing DASH. Some construct divergence shows up on
by new methods such as item-response theory the psychosocial scales of the SF-36 but also
is ongoing (Angst et al., 2011; Kennedy et al., partly on ROM, VAS pain, and hand strength
2011). The subscores of symptoms and function measures. These characteristics of convergence
are not yet completely validated. Their use can and divergence are supported by the responsive-
be recommended for the DASH but not for the ness data. Joint-specific measures (WORC, CS,
QuickDASH (Angst et al., 2009, 2011; Kennedy pASES, SPADI, PREE, pmASES, PRWE) are
et al., 2011). more responsive, whereas the generic whole
Construct convergence of the DASH is high body SF-36 is less responsive than the DASH.
for joint-specific instruments, especially those Between responsiveness and joint specificity,
that consist of a high number of functional there was an almost perfect doseresponse rela-
items. This is consistent with the construct of tionship in studies with multiple comparisons
Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH) 1645 D
(Angst et al., 2008, 2009, 2012). Discriminant GWS Gartland and Werley Score
validity of the DASH is moderate to high, HAQ Health Assessment Questionnaire
depending on the setting. The DASH measures HAT Hand Assessment Tool
more precisely than the QuickDASH (MDC95). HFS Hand Function Sort
Data on clinically important differences (MCID) HUI3 Health Utilities Index 3
are sparse for both tools. KFT Keitel Function Test
In conclusion, DASH validity has been tested MASS07 Modernized Activity Subjective
by numerous studies that prove its outstanding Survey
qualities and allow comparison across various MHQ Michigan Hand Questionnaire D
conditions and cultures and to population MPUT Moberg Picking Up Test
norms; 39 adapted language versions are OSS Oxford Shoulder Score
currently available, more are in progress. The PAMTT Performance Accuracy of Manual
DASH is highly reliable, highly valid, and mod- Tracking Task
erately responsive. The DASH is most appropri- pASES American Shoulder and Elbow Surgeons
ate for outcome measurement in conditions questionnaire for the shoulder, patient part
affecting the upper extremity at several locations PEM Patient Evaluation Measure
such as rheumatoid arthritis, polytrauma, or mul- Pinch Pinch strength
tiple sclerosis (Angst et al., 2011). pmASES modified American Shoulder and
Elbow Surgeons questionnaire for the elbow,
patient part
Measures for Comparison PREE Patient-Rated Elbow Evaluation
questionnaire
AIMS2 American Impact Measurement Scale, PRFE Patient-Rated Forearm Evaluation
Version 2 questionnaire
AJC Active Joint Count (fingers) PRTEE Patient-Rated Tennis Elbow
AMAIS American Medical Association Impair- Evaluation questionnaire
ment Score PRWE Patient-Rated Wrist Evaluation
AUSCAN Australian/Canadian Osteoarthritis questionnaire
Hand index ROM Range Of Motion
BQ Brigham Questionnaire Rotation Rotation strength
BSHS-B Burn-Specific Health Scale-Brief SF-12 MCS Short Form 12 Mental Component
cASES American Shoulder and Elbow Surgeons Summary
questionnaire for the shoulder, clinical part SF-12 PCS Short Form 12 Physical Component
Croft Croft Index Summary
cmASES modified American Shoulder and SF-36 BP Short Form 36 Bodily Pain
Elbow Surgeons questionnaire for the elbow, SF-36 MCS Short Form 36 Mental Component
clinical part Summary
Complaints Severity of complaints SF-36 MH Short Form 36 Mental Health
CS Constant Score SF-36 PCS Short Form 36 Physical Component
Custom Custom function score (examiner-based) Summary
DAS28 Disease Activity Score (28-item version) SF-36 PF Short Form 36 Physical Functioning
Dexterity Dexterity of the hand SFA Shoulder Function Assessment
EQ-5D European Quality of Life 5 Dimensions SPADI Shoulder Pain and Disability Index
Flex/Ext Flexion/Extension strength (elbow) SST Simple Shoulder Test
GAT Grip Ability Test Strength Strength of shoulder abduction
GRD Global Disability Rating Swelling Swelling of joints (finger)
Grip Grip strength Tenderness Tenderness of joints (finger)
GWDS Generalized Work Distress Scale UEFI Upper Extremity Function Index
D 1646 Disabilities of the Arm, Shoulder and Hand Questionnaire (DASH)

UEFS Upper Extremity Function Scale Angst, F., Goldhahn, J., Drerup, S., Flury, M., Schwyzer,
VAS Visual Analogue Scale; work: ability to H. K., & Simmen, B. R. (2009). How sharp is
the short QuickDASH? A refined content and
work validity analysis of the quick disabilities of the
WLQ-16 Work Limitations Questionnaire, phys- shoulder, arm and hand (DASH) questionnaire in
ical demands the strata of symptoms and function and
WORC Western Ontario Rotator Cuff index specific joints. Quality of Life Research, 18(8),
10431052.
WOSI Western Ontario Shoulder Instability Angst, F., Goldhahn, J., Drerup, S., Kolling, C.,
index Aeschlimann, A., Simmen, B. R., & Schwyzer, H. K.
(2012). Responsiveness of five outcome measurement
instruments in total elbow arthroplasty. Arthritis Care
& Research (Hoboken), 64(11), 17491755.
Psychometric Measurement Parameters Angst, F., Schwyzer, H. K., Aeschlimann, A., Simmen,
B. R., Goldhahn, J. (2011). Measures of adult shoul-
CA Cronbachs Alpha der function: Disabilities of the Arm, Shoulder, and
ES Effect Size Hand Questionnaire (DASH) and Its Short Version
(QuickDASH), Shoulder Pain and Disability Index
ICC Intraclass Correlation Coefficient (SPADI), American Shoulder and Elbow
MCID Minimal Clinically Important Difference Surgeons (ASES) Society Standardized Shoulder
MDC95 Minimal Detectable Change with 95% Assessment Form, Constant (Murley) Score (CS),
confidence Simple Shoulder Test (SST), Oxford Shoulder
Score (OSS), Shoulder Disability Questionnaire
SRM Standardized Response Mean (SDQ), and Western Ontario Shoulder Instability
Index (WOSI). In: Katz PP. Patient outcomes
in rheumatology, 2011. A review of measures.
Cross-References Arthritis Care & Research (Hoboken), 63(Suppl11),
S174S188.
Fayad, F., Lefevre-Colau, M. M., Gautheron, V.,
Clinimetrics
Fermanian, J., Roren A. (2008). Responsiveness of
Convergent Validity the French version of the Disabilities of the Arm,
Cross-cultural Adaptation Shoulder and Hand questionnaire (F-DASH) in
Disability Index patients with orthopedic and medical shoulder
disorders. Joint Bone Spine, 75(5), 579584.
Divergent Validity
Katz, P. P. (2011). Introduction to special issue: Patient
Effect Size outcomes in rheumatology, 2011. Arthritis Care &
Health-Related Quality of Life Measures Research, 63(S11), S1S3.
Intraclass Correlation Coefficient (ICC) Kennedy, C. A., Beaton, D. E., Solway, S., McConnell, S.,
& Bombardier, C. (2011). The DASH and QuickDASH
Oxford Shoulder Score
outcome measure users manual (3rd Ed.). Toronto,
Physical QOL Ontario: Institute for Work & Health. Retrieved from
Psychometric Analysis http://www.dash.iwh.on.ca.
Quality of Life (QOL) MacDermid, J. C., Drosdowech, D., Faber, K. (2006).
Responsiveness of self-reported scales in patients
Quality of Life Outcomes
recovering from rotator cuff surgery. Journal of
Quality of Life Questionnaire Shoulder & Elbow Surgery, 15(4), 407414.
Short Form 12 Health Survey (SF-12) MacDermid, J. C., Richards, R. S., Donner, A.,
Standard Error of Measurement Bellamy, N., Roth, J. H. (2000). Responsiveness
of the short form-36, disability of the arm,
Transition Questions or Items
shoulder, and hand questionnaire, patient-rated
wrist evaluation, and physical impairment measure-
ments in evaluating recovery after a distal radius
References fracture. Journal of Hand Surgery American, 25(2),
330340.
Angst, F., Goldhahn, J., Drerup, S., Aeschlimann, A., Streiner, D. L., & Norman, G. R. (2008). Reliability,
Schwyzer, H. K., & Simmen, B. R. (2008). Respon- validity, measuring change. In D. L. Streiner, &
siveness of six outcome assessment instruments in G. R. Norman (Eds.), Health measurement scales
total shoulder arthroplasty. Arthritis and Rheumatism, (4th ed.) (pp. 167207, 247274, 277295). Oxford,
59(3), 391398. UK: Oxford University Press.
Disability and Health 1647 D
Description
Disability
Health
Critical Disability Theory The concept of health has evolved over centuries
Workers Compensation and is influenced by cultural, social, political,
psychological, and economic forces. It extends
beyond the presence of biomedical and biological
states (illnesses). Health has medical, social, eco-
Disability and Health nomic, spiritual, and other components, and these D
are shaped by age, sex, social class, scientific and
Darshini Ayton1, Narelle Warren2 and technological developments, and the environ-
Lenore Manderson2 ment (Keleher, MacDougall, & Murphy, 2007;
1
School of Psychology and Psychiatry, Monash Larson, 1999). Over time, many different models
University, Melbourne, VIC, Australia of health have been proposed and utilized. These
2
School of Psychology and Psychiatry, Monash reflect the changing health profiles of populations
University, Caulfield East, VIC, Australia including the epidemiological transition, in which
chronic conditions have become more prevalent
(Omran, 1971); evolving characteristics of dis-
Synonyms ease; and different emerging disciplines which
have challenged notions of health and its determi-
Affliction; Ailments; Handicap; Health defects; nants (Van Leeuwen, Waltner-Toews, Abernathy,
Impairment; Incapacity; Infirmity and health; & Smit, 1999).
Malady; Well-being; Wellness The medical model of health, where health is
defined as the absence of disease or disability
which prevents or hinders an individual from
Definition participating in life activities (Crichton, 1990;
Larson, 1999), is the most widely acknowledged
Health: a state of complete physical, mental, model. Social models of health, in contrast, rec-
and social well-being and not merely the absence ognize social determinants of health and the
of disease or infirmity (World Health Organiza- interplay of the natural and social environments
tion, 1948). in maintaining good health, exposure to risk fac-
Disability is a complex phenomena that tors, disease susceptibility, prognosis, access to
results from interactions between health condi- treatment, and likelihood of death (CSDH 2008;
tions and contextual factors, both external envi- Solar & Irwin, 2010). Experiences of health or
ronmental (including, but not limited to, social illness are profoundly social, influencing per-
norms and expectations, physical or built envi- sonal and social identities, social participation,
ronment, and legal and social structures) and stigmatization and social exclusion, capacity
internal personal factors (including demographic to mobilize resources, and access to diagnosis,
characteristics, personal experiences, personality treatment, support, and care (Allotey, Reidpath,
and disposition, and individual influences on the Kouame, & Cummins, 2003; Manderson &
perception of disability). Disability involves Smith-Morris, 2010). These in turn are shaped
dysfunction at one or more of three levels (a) by available infrastructure and resources.
the body or body part, (b) the whole person, and The social and economic context of health,
(c) the whole person within social context in and the relevance of mental, emotional, spiritual,
one or more of three ways: impairments (in body and social as well as physical factors in determin-
structure or function), activity limitations or dif- ing health status and well-being, is reflected in the
ficulties, and restricted participation in multiple definition of health provided by the World Health
life spheres (World Health Organization, 2002). Organization (WHO) in its earliest documents.
D 1648 Disability and Health

From this foundational idea of health, WHO has life; self-perceptions about health status and its
attended to the prerequisites for health, factors effects; the functional impacts of illness (often an
that encourage a healthy society such as peace, objective measure); and/or satisfaction with
shelter, education, social security, social life. Such validated measures offer subjective,
relations, food, income, the empowerment of and to a lesser extent objective, assessments of
women, a stable ecosystem, sustainable resource peoples life in the context of health, illness,
use, social justice, respect for human rights and the social environment for the purposes of
and equity (World Health Organization, 1997, comparing within and between conditions and
para 5). These prerequisites highlight the conver- groups. Condition- and population-specific
gence of biological, psychological, and social quality of life instruments allow for targeted
factors in shaping the transmission of disease, investigation into the impacts of particular
its treatment and development, and its outcomes diseases on a persons life.
(a biopsychosocial model; Engel, 1977).
In subsequent work, researchers have illus- Disability
trated that disease, well-being, and death are People with physical or mental disability histor-
both social and biological (CSDH 2008; Solar & ically have been seen as functionally atypical and
Irwin, 2010). Diseases are transmitted through the so are also classified as diseased in the medical
interactions of people with their environment and model of health (Amundson, 1992). In this
changes to the environment, as in the short term model, disability is understood as due to func-
occurs with economic development and in the tional limitations arising from a medical condi-
longer term through climate change (World tion, which impact an individuals ability to
Health Organization, 2012). Interactions between participate in his or her expected social roles
humans, vector, and environment shape local (Leiter, 2007). However, this model does not
epidemiologies of disease. For example, while adequately allow for disability as a consequence
schistosomiasis transmission is a water-borne of chronic conditions (Gray & Hendershot,
infection of trematode larvae, with snails as the 2000), the leading cause of disablement globally
vector, the risk of infection reflects how people (World Health Organization, 2005). As a result,
use water in their everyday life: for personal the International Classification of Impairments,
hygiene, domestic duties, recreation, agriculture, Disabilities and Handicaps (ICIDH) was
and animal husbandry (Huang & Manderson, developed in 1980 for trial purposes (Gray &
2005; Watts, Khallaayoune, Bensefia, Laamrani, Hendershot, 2000) and, with the International
& Gryseels, 1998). Similarly, influenza, various Classification of Disease (ICD), facilitates clas-
rotaviruses, and dengue become epidemics across sification of the full extent of disease and disease
continents, not because of the presence of consequences, thus assisting in evaluating
pathogens alone, but because poor infrastructure, health care outcomes (Gray & Hendershot,
poor governance, and overcrowding create the 2000). The constructs of the ICIDH are included
preconditions for infection, and the pathogens below in Fig. 1.
viruses in two cases, the mosquito vector in the The three central constructs impairment,
third are transmitted effectively because of fre- disability, and handicap refer to different
quent air travel. experiences of disease consequences (Gray &
Health conditions impact on peoples lives Hendershot, 2000). Impairment encapsulates
across all domains, and quality of life studies body abnormalities in organ or system function,
seek to capture this. Health-related quality of disabilities highlight the impact of impairment
life measures vary, with a wide range of instru- in relation to the individuals ability to function
ments available. These vary in their purpose, with and undertake activities, and handicap relates
most assessing morbidity and mortality (usually to the resulting disadvantages experienced by an
reported in terms of rates); the impact of an illness individual (Gray & Hendershot, 2000). Criticism
on behaviors, practices, and activities of daily of the ICIDH related to the relative lack of
Disability and Health 1649 D
DISEASE or DISORDER IMPAIRMENT DISABILITY HANDICAP
(intrinsic situation) (exteriorized) (objectified) (socialized)

Disability and Health, Fig. 1 Dimensions of the consequences of disease (ICIDH) (De Kleijn-De Vrankrijker, 2003)

Health condition
(disorder or disease)
D

Body functions & systems Activities Participation

Disability and Health,


Fig. 2 Interactions
between the components of
ICF (De Kleijn-De
Environmental factors Personal factors
Vrankrijker, 2003)

attention to the role of society in producing dis- Life Years), QALY (Quality Adjusted Life
ability led to the development of the International Years), and YLD (Years of Life lost to Disabil-
Classification of Functioning, Disability, and ity). However, many of these do not capture
Health (ICF); this was endorsed by the World the nuances of culture and specifics of setting
Health Assembly in 2001 (Udea & Okawa, (Manderson, 2005). Allotey et al. (2003) demon-
2003; World Health Organization., 2002). strated that while measures indicate little
The ICF avoids terms which hold negative differences between countries, the experience of
connotations, but it also emphasizes the role of paraplegia in Australia is vastly different to
environmental factors which impact on the that in Cameroon in terms of independence,
outcomes of impairment and determine the mobility, self-care, and social participation.
participation of people with various conditions A capabilities approach (Nussbaum, 2005; Sen,
(De Kleijn-De Vrankrijker, 2003). The ICF 1987) offers a way to redress these issues by
describes health and health-related states from differentiating between capability and function
the perspective of the individual and society in and by emphasizing social justice in quality
relation to activities and participation (Fig. 2). of life assessments. In this, quality of life
Quality of life studies related to disability is an considers how people live their lives with the
emergent field of research, although questions of resources economic, financial, socio-cultural,
accuracy and translation of assessment persist. psychological, environmental, and interpersonal
Measures of health are used to assess burden, available to them. As a result, research on
extent, and impact of disability, particularly in quality of life in the context of disability can
the context of chronic disease; identify strategic recognize the universality of disability, so
and priority areas; and assess the impact and ensuring that every human being can experience
effectiveness of health interventions. These mea- a decrement in health and thereby experience
sures include HRQoL (Health-Related Quality of some disability (World Health Organization,
Life) instruments, DALY (Disability Adjusted 2002:3).
D 1650 Disability and Work

References Udea, S., & Okawa, Y. (2003). The subjective dimension of


functioning and disability: What is it and what is it for?
Allotey, P., Reidpath, D., Kouame, A., & Cummins R. Disability and Rehabilitation, 25(1112), 596601.
(2003). The DALY, context and the determinants of Van Leeuwen, J. A., Waltner-Toews, D., Abernathy, T., &
the severity of disease: An exploratory comparison of Smit, B. (1999). Evolving models of human health
paraplegia in Australia and Cameroon. Social Science toward an ecosystem context. Ecosystem Health,
& Medicine, 57(5), 949958. 5(3), 204219.
Amundson, R. (1992). Disability, handicap, and the envi- Watts, S., Khallaayoune, K., Bensefia, R., Laamrani, H.,
ronment. Journal of Social Philosophy, 23(1), 105119. & Gryseels, B. (1998). The study of human behavior
Crichton, A. (1990). Slowly taking control? Australian and schistosomiasis transmission in an irrigated area in
governments and health care provision 17881988. morocco. Social Science & Medicine, 46(6), 755765.
Sydney: Allen & Unwin. World Health Organization. (1948). Preamble to the con-
De Kleijn-De Vrankrijker, M. W. (2003). The long way stitution of the World Health Organization as adopted
from the international classification of impairments, by the International Health Conference. New York;
disabilities and handicaps (ICIDH) to the international Official Records of the World Health Organization,
classification of functioning, disability and health (ICF). no. 2, p. 100.
Disability and Rehabilitation, 25(1112), 561564. World Health Organization, (1997). Jakarta declaration
Engel, G. L. (1977). The need for a new medical model: A on leading health promotion into the 21st Century. The
challenge for biomedicine. Science, 196(4286), 129136. Fourth International Conference on Health Promotion:
Gray, D. B., & Hendershot, G. E. (2000). The ICIDH-2: New players for a new era leading health promotion
Developments for a new era of outcomes research. into the 21st Century. Jakarta: World Health
Archives of Physical Medicine and Rehabilitation, 81 Organization.
(12 Suppl 2), S10S14. World Health Organization. (2002). Towards a common
Huang, Y., & Manderson, L. (2005). The social and eco- language for functioning, disability and health ICF.
nomical context and determinants of schistosomiasis Geneva: World Health Organization.
japonica. Acta Tropica, 96(23), 223231. World Health Organization. (2005). Preventing chronic
Keleher, H. M., MacDougall, C., & Murphy, B. (Eds.). diseases: A vital investment. Geneva: World Health
(2007). Approaching health promotion. Understanding Organization.
health promotion. Melbourne: Oxford University Press. World Health Organization. (2012). Accelerating work to
Larson, J. S. (1999). The conceptualization of health. overcome the global impact of neglected tropical
Medical Care Research and Review, 56(2), 123136. diseases: A roadmap for implementation. Strategic
Leiter, V. (2007). Nobodys just normal, you know: The and technical advisory group for neglected tropical
social creation of developmental disability. Social diseases. Geneva: World Health Organization.
Science & Medicine, 65(8), 16301641.
Manderson, L. (Ed.). (2005). Rethinking wellbeing:
Essays on health, disability and disadvantage. Perth:
Curtin University Press for API Network.
Manderson, L., & Smith-Morris, C. (Eds.). (2010). Disability and Work
Chronic conditions, fluid states: Chronicity and the
anthropology of illness. New Brunswick, NJ: Rutgers Work Limitations
University Press.
CSDH (2008). Closing the gap in a generation: health
equity through action on the social determinants of
health. Final Report of the Commission on Social
Determinants of Health. Geneva, World Health Disability Index
Organization.
Nussbaum, M. C. (2005). Well-being, contracts and capa-
bilities. In L. Manderson (Ed.), Rethinking wellbeing Megan Davidson
(pp. 2744). Perth: API Network. School of Physiotherapy, La Trobe University,
Omran, A. R. (1971). The epidemiologic transition. Bundoora, VIC, Australia
A theory of the epidemiology of population change.
The Milbank Memorial Fund Quarterly, 49(4), 509538.
Sen, A. K. (1987). The standard of living: The tanner
lectures. Cambridge, NY: Cambridge University Synonyms
Press.
Solar, O. & Irwin, A. (2010). A conceptual framework for Disability outcome measure; Disability question-
action on the social determinants of health. Social
Determinants of Health Discussion Paper 2 (Policy naire; Disability scale; Functional index; Func-
and Practice). Geneva; World Health Organization. tional outcome measure; Functional scale
Disability-Free Life Expectancy 1651 D
Definition Karnofsky, D. A., & Burchenal, J. H. (1949). The clinical
evaluation of chemotherapeutic agents against cancer.
In C. M. McLeod (Ed.), Evaluation of chemotherapeu-
A disability index is a scale, instrument, or tic agents. New York: Columbia University Press.
questionnaire to measure disability. Katz, S., Ford, A. B., Moskowitz, R. W., Jackson, B. A., &
Jaffe, M. W. et al. (1963). Studies of illness in the aged.
The index of the ADL: A standardized measure of
biological and psychosocial function. Journal of the
Description American Medical Association, 185, 914919.
Mahoney, F. I., & Barthel, D. W. (1965). Functional
Feinstein, Josephy, and Wells (1986) used the evaluation: the Barthel Index. Maryland State Medical D
term index of functional disability as an Journal, 14, 6165.
Moskowitz, E., & McCann, C. B. (1957). Classification of
umbrella term for instruments that measure func- disability in the chronically ill and aging. Journal of
tional status. An index typically refers to an Chronic Disability, 5, 342346.
instrument with a number of items that are indi-
vidually scored, with the sum of the item scores
yielding the total index score. An instrument Disability Outcome Measure
made up of a number of subscales, such as the
SF-36, is usually referred to as a profile. Disability Index
Early disability indexes include the Cornell
Medical Index (Brodman, Erdmann, Lorge, &
Wolff, 1949), the Pulses Profile (Moskowitz &
McCann, 1957), the Karnofsky Performance Disability Outcomes Measures
Index (Karnofsky & Burchenal, 1949), the
Katz Activities of Daily Living Scale (Katz Functional Disability Scales
et al., 1963), and the Barthel Index (Mahony
& Barthel, 1965). Garratt, Schmidt, Mackintosh,
and Fitzpatrick (2002) mapped the increase in
publication of patient-assessed health outcome Disability Questionnaire
measures from 1990 to 1999 and categorized the
measures as: Disability Index
Disease specific (e.g., Oswestry)
Generic (e.g., SF-36)
Dimension specific (e.g., a depression scale)
Utility (e.g., EuroQol) Disability Scale

Disability Index

References

Brodman, K., Erdmann, A. J., Lorge, I., & Wolff, H. G.


(1949). The Cornell medical index; an adjunct to med- Disability-Adjusted Life Years
ical interview. Journal of the American Medical Asso- (DALY)
ciation, 140, 530534.
Feinstein, A. R., Josephy, B. R., & Wells, C. K. (1986).
Quality-Adjusted Life Expectancy
Scientific and clinical problems in indexes of func-
tional disability. Annals of Internal Medicine, 105,
413420.
Garratt, A., Schmidt, L., Mackintosh, A., & Fitzpatrick, R.
(2002). Quality of life measurement: Bibliographic
study of patient assessed health outcome measures.
Disability-Free Life Expectancy
British Medical Journal, 324, 1417. doi:10.1136/
bmj.324.7351.1417. Healthy Life Expectancy at Birth
D 1652 Disabled Persons

The purported paradox turns on the assump-


Disabled Persons tion that inasmuch as the underlying health con-
dition and impairment are objectively bad, the
Jerome Bickenbach and Sara Rubinelli quality of the lived experience of disability must
Schweizer Paraplegiker-Forschung and reflect this negative value. The disability analysis
University of Lucerne, Nottwil, Switzerland argues that the a priori badness of impairments,
even severe impairments, is nothing more
than stereotypical and potentially discriminatory
Synonyms preconceptions that people without disabilities
(and in particular health-care providers) firmly
Handicapped persons; People with impairments hold. Self-reported quality of life reflects,
on this view, the influence of psychological
processes such as coping and adaptation
Definition (Amundson, 2010; Menzel, Dolan, Richardson,
& Olsen, 2002). By contrast, the error analysis
The modern consensus on the concept of disabil- has tended to focus on the theory of response
ity has moved away from a purely biomedical shift to account for the measurement error
characterization to one in which functional prob- (Schwartz, Andresen, Nosek, & Krahn, 2007).
lems at body level (or Impairments) in interaction Recent studies have seemed to favor the dis-
with the physical, human being, social, and atti- ability and adaptation analysis. For example,
tudinal environment produce disability as an out- while the early clinical literature on spinal cord
come. In this context, quality of life has been seen injury had emphasized the catastrophic impact
to yield a paradox in which people with seem- that the injury has on the victims life, Clayton
ingly high levels of disability reported equally and Shubon (1994), Fuhrer, Rintala, Hart,
high levels of quality of life. Clearman, and Young, (1992), Gerhart et al.
(1994), more recent studies offer evidence of
a post-injury trajectory that results in a return to
Description pre-injury, or higher, quality of life levels
because of psychological adaptation (van
The concept of quality of life applies to persons Leeuwen, Kraaijeveld, Lindeman, & Post,
with disabilities as it does to everyone else, but 2011). Information such as this has led some to
for a combination of reasons, the application of argue that the response shift analysis, at least as it
the notion of quality of life to disability has led applied to disability, should be viewed with cau-
to a controversy, often labeled the disability tion: If people thrive in the face of adversity by
paradox (Albrecht 1994; Albrecht & Devlieger, changing their goals in life, this should not be
1999). The alleged paradox involves a body of seen as a threat to the validity of quality of life
evidence in which people with serious and measurement, nor as untrue change. Instead, it
persistent disabilities report that they experience should be understood as a mechanism by which
a good or excellent quality of life when to most people experience high quality of life in the face
external observers these people seem to live an of adversity (Ubel, Peeters, & Smith, 2010a, b).
undesirable daily existence (Amundson, 2010). Assumptions about the quality of life of
The response to this apparent anomaly has been people with disabilities as defective individuals
diverse but has clustered around two positions: (Silvers, 1994) have also generated a substantial
one grounded in disability analysis in which the literature in bioethics and political theory.
anomaly is explained away in terms of social If impairments intrinsically lower quality of life,
preconceptions about the burden of disability as some insist (McKie, Richardson, Singer, &
and the other arguing that these results involve Kuhse, 1998; Harris, 1987), then, e.g., rationing
a subjective error that needs correction. of scarce medical resources based on
Disabled Persons 1653 D
cost-benefit analysis or formalized by sum- Impairment
mary measures such as QALY or DALY (Nord, Quality Adjusted Life Years (QALY)
2005; Murray, 1996) will argue for allocation Quality of Life
decisions against persons with disabilities, whose Response Shift
quality of life is already compromised by the
impairment (Brock, 2000; Bowling, 1996).
Similar debates over the role of the quality of
life of persons with disabilities have arisen in a References
variety of health-care contexts and practices: D
Albrecht, G. L. (1994). Subjective health assessment. In
the application of quality of life to determine
C. Jenkinson (Ed.), Measuring health and medical
medical futility in medical decision-making outcomes (pp. 726). London: UCL Press.
(Truog, Brett, & Frader, 1992), organ transplanta- Albrecht, G. L., & Devlieger, P. J. (1999). The disability
tion decisions (Brock, 1988), physician-assisted paradox: high quality of life against all odds. Social
Science and Medicine, 48, 977988.
suicide and euthanasia (Bickenbach, 1998;
Amundson, R. (2010). Quality of life, disability, and
Dresser & Robertson, 1989), health-care priority hedonic psychology. Journal for the Theory of Social
setting (Nord, 1993; Hadorn, 1992; Ubel, 2000), Behaviour, 40, 374392.jts.
and potentially discriminatory practices in health- Asch, A. (1987). The treatment of handicapped new-
borns: A question with no simple answers. Disability
care allocation in general (Brock, 1988, 1993).
Studies Quarterly, 7, 1423.
But the quality of life debate has most profoundly Asch, A. (2000). Why I havent changed my mind about
affected beginning of life issues, such as the appli- prenatal diagnosis: Reflections and refinements. In E.
cation of genetic prescreening for selective abor- Parens & A. Asch (Eds.), Prenatal testing and disabil-
ity rights (pp. 234236). Washington, DC: George-
tion of impaired infants (Asch, 1987, 2000; Parens
town University Press.
& Asch, 1999, 2000; Wasserman, Bickenbach, & Asch, A. (2001). Disability, bioethics and human rights.
Wachbroit, 2005), or, more extremely, to justify In G. L. Albrech, K. Seelman, & M. Bury (Eds.),
infanticide of infants with impairment (Kuhse & Handbook of disability studies (pp. 297327).
Thousand Oaks, CA: Sage Publications.
Singer, 1985).
Bickenbach, J. E. (1998). Disability and life-ending deci-
Because research into disability and the socio- sions. In M. P. Battin, R. Rhodes, & A. Silvers (Eds.),
political aspects of living with a disability have Physician assisted suicide: Expanding the debate
been addressed by authors from many disciplines, (pp. 123132). New York: Routledge.
Bowling, A. (1996). Health care rationing: The publics
from medical and rehabilitation services to soci-
debate. British Medical Journal, 312, 670674.
ology, political theory and law, it is understand- Brock, D. W. (1988). Ethical issues in recipient selection
able that the literature linking quality of life with for organ transplantation. In D. Mathieu (Ed.), Organ
disability is complex and often inconsistent in substitution technology: Ethical, legal and public
policy issues (pp. 8699). Boulder, CO/London:
approach and conclusion. Initially, disability
Westview Press.
scholars treated quality of life as just another Brock, D. (1993). Quality of life measures in health care
medical notion that misunderstood the person- and medical ethics. In A. Sen & M. C. Nussbaum
environment interactive nature of disability (Eds.), Quality of life (pp. 95132). New York: Oxford
University Press.
(Asch, 2001). More recently, though, disability
Brock, D. (2000). Health care resource prioritization and
advocates have seen the value of using established discrimination against persons with disabilities. In L.
quality of life measures as indicators that can Francis & A. Silvers (Eds.), Americans with disabil-
further the human rights agenda (Karr, 2011). ities: Implications for individuals and institutions
(pp. 223235). New York: Routledge.
Clayton, K. S., & Shubon, R. A. (1994). Factors associated
with the quality of life of long term spinal cord injured
Cross-References persons. Archives of Physical Medicine and Rehabili-
tation, 75, 633638.
Dresser, R. S., & Robertson, J. A. (1989). Quality of
Adaptation
life and non-treatment decisions for incompetent
Cost-Benefit Analysis patients. Law, Medicine and Health Care, 17,
Disability-Adjusted Life Years (DALY) 234244.
D 1654 Disadvantaged Populations

Fuhrer, M. J., Rintala, D. H., Hart, K. A., Clearman, R., & Ubel, P. A. (2000). Pricing life: Why its time for health
Young, M. E. (1992). Relationship of life satisfaction care rationing. Cambridge, MA: The MIT Press.
to impairment, disability, and handicap among persons Ubel, P. A., & Smith, D. M. (2010). Why should changing
with spinal cord injury living in the community. the bathwater have to harm the baby? Quality of Life
Archives of Physical Medicine and Rehabilitation, Research, 19, 481482.
73, 552557. Ubel, P. A., Peeters, Y., & Smith, D. (2010). Abandoning
Gerhart, K. A., Koziol-McLain, J., Lowenstein, S. R., & the language of response shift: A plea for conceptual
Whiteneck, G. G. (1994). Quality of life following clarity in distinguishing scale recalibration from true
spinal cord injury: Knowledge and attitudes of emer- changes in quality of life. Quality of Life Research, 19,
gency care providers. Annals of Emergency Medicine, 465471.
23, 807812. van Leeuwen, C. M. C., Kraaijeveld, S., Lindeman, E., &
Hadorn, D. (1992). The problem of discrimination in Post, M. W. M. (2011). Associations between psycho-
health care priority setting. Journal of the American logical factors and quality of life ratings in persons
Medical Association, 368, 14541459. with spinal cord injury: A systematic review. Spinal
Harris, J. (1987). QALYfying the value of life. Journal of Cord. doi:10.1038/sc.2011.120.
Medical Ethics, 13, 117123. Wasserman, D., Bickenbach, J., & Wachbroit, R. (Eds.).
Karr, V. (2011). A life of quality: Informing the UN (2005). Quality of life and human difference. New
convention on the rights of persons with disabilities. York: Cambridge University Press.
Journal of Disability Policy Studies, 22, 6782.
Kuhse, H., & Singer, P. (1985). Should the baby live? The
problem of handicapped infants. New York: Oxford
University Press.
McKie, J., Richardson, J., Singer, P., & Kuhse, H. (1998).
The allocation of health care resources. Dartmouth: Disadvantaged Populations
Aldershot, Ashgate.
Menzel, P., Dolan, P., Richardson, J., & Olsen, J. A.
Richard J. Estes
(2002). The role of adaptation to disability and disease
in health state valuation: A preliminary normative School of Social Policy & Practice (SP2),
analysis. Social Science and Medicine, 55, 21492158. University of Pennsylvania, Narberth, PA, USA
Murray, C. J. L. (1996). Rethinking DALYs. In C. J. L.
Murray & A. D. Lopez (Eds.), The global burden of
disease (pp. 198). Cambridge, MA/Geneva: Harvard
School of Public Health and World Health Synonyms
Organization.
Nord, E. (1993). Unjustified use of the quality of well- Heterosexism; Ostracism; Parity of populations
being scale in priority setting in Oregon. Health Pol-
groups; Racism; Sexism; Social caste; Social
icy, 24, 227238.
Nord, E. (2005). Values for health states in QALYs and class; Social stigma; Social vulnerability
DALYs: Desirability versus well-being and worth. In
D. Wasserman, J. Bickenbach, & R. Wachbroit (Eds.),
Quality of life and human difference (pp. 125142).
Cambridge, MA: Cambridge University Press.
Definition
Parens, E., & Asch, A. (1999). The disability rights cri-
tique of prenatal genetic testing: Reflections and rec- Structural inequalities between members of more
ommendations. Hastings Center Report, 29, S1S22. advantaged and more disadvantaged population
Parens, E., & Asch, A. (Eds.). (2000). Prenatal testing and
groups are a central feature of all societies. These
disability rights. Washington, DC: Georgetown Uni-
versity Press. inequalities are deeply rooted in the past and
Schwartz, C. E., Andresen, E. M., Nosek, M. A., & Krahn, have been carried forward into the present.
G. L. (2007). Response shift theory: Important impli- Their persistence severely undermines local,
cations for measuring quality of life in people with
national, and global efforts to promote advances
disability. Archive of Physical Medicine and Rehabil-
itation, 88, 529536. in the quality of life and well-being of people at
Silvers, A. (1994). Defective agents: Equality, difference all levels of social, political, and economic
and the tyranny of the normal. Journal of Social Phi- organization. They also are among the root
losophy, 25, 154175.
causes of many of the civil wars and recurrent
Truog, R. D., Brett, A. S., & Frader, J. (1992). The prob-
lem with futility. New England Journal of Medicine, intraregional conflicts that interfere with national
326, 15601564. and international social progress.
Disadvantaged Populations 1655 D
Description multifaceted, and, typically, require decades,
sometimes centuries, to be accomplished, e.g.,
The terms historically disadvantaged popula- the granting of freedom and, in time, voting rights
tion groups and disadvantaged populations to slaves and other indentured populations in
were coined by the United Nations in 1948 to the United States, the elimination of the
describe the status of population groups that highly oppressive Apartheid system in South
were prevented from participating in some or all Africa, and the granting of voting rights to
aspects of the collective life of individual socie- women.
ties (United Nations, 1948). The majority of the The promotion of increasing levels of quality D
persons included in this concept then, as now, are of life, well-being, and basic human dignity for
children, the elderly, and persons with severe disadvantaged populations has been a central
physical or emotional disabilities who, due to goal of development practitioners and scholars.
age or infirmity, cannot reasonably be expected to Indeed, the vast majority of the earliest quality of
participate fully in the social, political, or eco- life articles, monographs, and books identified
nomic systems of their societies. In time, the elsewhere in this Encyclopedia focus centrally
concept also embraced the poor, women, first on national and global efforts directed at improv-
or indigenous peoples, persons living under ing the living conditions of disadvantaged
slave-like conditions, and other groups of people populations. Even today, this goal remains
who become the targets of discrimination on the a central concern of empirical studies published
basis of race, religion, ethnicity, language, in Social Indicators Research (SIR), the
physical appearance, sexual orientation, social Journal of Happiness Studies (JHS), Child
class, or caste. The concept also includes eco- Indicators Research (CIR), Quality of Life
nomic migrants, political refugees as well as Research (QOLR), and those published in the
persons with untreatable infectious diseases, more recently established Applied Research
such as HIV/AIDS. All of the preceding groups in Quality of Life (ARQOL). The compendium
have become targets of social stigma and social of development-focused scholarly works
exclusion (Galanter, 1984; Havenaar, Geerlings, published by this author in 1998 identified several
Vivian, Collinson, & Robertson, 2008; Horowitz, thousand reports of research published over a 50-
1985; Isaac & Maloughney, 1991; Stewart, 2008; year time period that focused centrally on
Vannhanen, 1999). Though very large as national and global efforts directed at improving
a percent share of each countrys population, the status of disadvantaged populations (Estes,
each of these groups is regarded as disadvan- 1998). Were such an effort undertaken today,
taged populations and, as such, has received con- the number of references included in such
siderable attention in the international quality of a listing likely would be twice as large as those
life, well-being, and level of living literatures. identified in the earlier report.
Given the combined numbers of disadvan- The major efforts taken by the world commu-
taged people found in most societies, the only nity in addressing issues of social justice and
consistently advantaged population group is parity between advantaged and disadvantaged
men between the ages of 25 and 50 years. Histor- population groups can be divided into four
ically, men have been given access to a wide broad categories: (1) initiatives taken at the indi-
range of civil and political freedoms, human vidual level; (2) initiatives undertaken at
rights, and economic opportunities that have the intergroup level; (3) the adoption of public
been denied to other population groups. Thus, policies and other legal protections established at
the major goal of most efforts focused on advanc- the societal or national levels; and, (4) large
ing the status of disadvantaged populations has scale anti-discriminatory efforts initiated by the
been to gain for them parity with the privileges member states of the United Nations and major
already granted to men in the same society. The international nongovernmental organizations
efforts required to achieve this goal are complex, at the global level.
D 1656 Disadvantaged Populations

1. At the individual level, preferential treatment public policies, and regulations that specifi-
is assigned to individual members of disad- cally prohibit discriminatory behavior of
vantaged population groups in gaining access the part of more advantaged population groups
to at least the same quality of education, (e.g., the denial of credit on the basis of race,
health care, employment opportunities, ethnicity, immigrant status, and so on). Most
housing, credit, and other resources granted common in this category of nationally
to members of more advantaged populations. initiated efforts to achieve increased parity
Collectively, these practices often are referred between advantaged and disadvantaged
to as affirmative action which, with all populations are laws that have as their central
other factors being equal, requires public offi- goal: (a) the promotion of economic opportu-
cials, and decision-makers in those organiza- nities that favor disadvantaged populations;
tions that are dependent on public sources for (b) the elimination of separate but equal
their support, to make decisions that favor less practices that deny disadvantaged populations
advantaged population groups (Goga, 2007; from access to quality services available to
Wikipedia, 2013a). These practices are highly more advantaged populations; and (c) laws
controversial, however, especially in societies and regulatory practices that advance the
that have attached numerical quotas to their favorable treatment of disadvantaged
implementation. populations in a broad spectrum of public
2. A second set of approaches for dealing with services, e.g., in gaining access to higher
inequalities brought about as a result of dis- education and public sector employment,
criminatory practices toward disadvantaged the awarding of public sector contracts to
populations occur at the intergroup level. minority-owned businesses, among many
These approaches, typically practiced by other initiatives that are under the direct
police authorities or nongovernmental entities control of governments.
working in the private sector, seek to promote 4. At the international level, a vast array of
voluntary interaction between members of dif- initiatives have been undertaken to promote
ferent advantaged groups engaged in conflict parity between the social haves and the
with one another. Such interventions typically social have-nots. Central to these activities
arise in the course of active intergroup con- has been the promulgation by various inter-
flicts and, thus, the role of the intermediaries is governmental bodies of declarations,
both to reduce the intensity of the conflict and conventions, and other agreements that
promote increased mutual understanding either promote or prohibit certain types of
and tolerance between the groups (e.g., societal behavior toward particular disadvan-
between sexual majority and minority taged population groups. Such decrees from
populations or between members of racial or the United Nations have been numerous
ethnic groups in conflict with one another). and all are based on the seminal Universal
The goal in each of these situations is to Declaration of Human Rights that was
reduce the frequency of future diversity- adopted by the world body in 1948 to redress
related intergroup conflicts through improved intergroup social inequalities that contributed
communication, the promotion of mutual to local conflicts and international wars.
understanding, and, over time, building more The following is a partial list of some of the
harmonious intergroup interactions. The most important declarations, conventions, and
empirical foundations for these approaches agreements on disadvantaged populations
are well established (Smith & Mackie, 2007). adopted by the United Nations since its creation
3. At the societal (and national) level, efforts to following the end of the Second World War
advance the status of disadvantaged (United Nations, 1997; Wikipedia, 2013b).
populations typically have included the pas- Though not all of these documents have been
sage (and subsequent enforcement) of laws, signed or adopted into law by all member states
Disadvantaged Populations 1657 D
of the United Nations, each one does, nonethe- Development (OECD), etc. The quest is espe-
less, have a foundation in national and interna- cially intense among the war-ridden nations of
tional law. Taken together, they also serve as the Africa and the Middle East but, in more quiet
moral foundation on which the United Nations, ways, exist for all countries that are seeking to
national governments, and major international find peaceful means for resolving the complex
nongovernmental organizations advocate on interplay of social, political, and economic factors
behalf of disadvantaged populations throughout that impede the realization of equality for all
the world. members of their societies. In the main, the
Declaration on Human Rights (1948) global interest is in reducing diversity-related D
Convention on the Prevention and Punishment of social conflicts that remain high and will likely
the Crime of Genocide (1951) remain so for the foreseeable future.
Supplementary Convention on the Abolition of
Slavery (1958)
International Convention on the Elimination of Cross-References
All Forms of Racial Discrimination (1965)
International Covenant on Civil and Political Equity
Rights (1966) Social Change
International Covenant on Economic, Social and Social Exclusion
Cultural Rights (1966) Social Progress
International Convention on the Elimination of Vulnerable Populations
All Forms of Racial Discrimination (1969)
Convention on the Elimination of all Forms of
Discrimination Against Women (1979)
United Nations Covenant Against Torture and References
Other Cruel, Inhuman or Degrading Treat-
Estes, R. J. (1998). Resources for social and economic
ment or Punishment (1984)
development: A guide to the scholarly literature.
Declaration on the Right to Development (1986) Philadelphia: University of Pennsylvania School of
Declaration on the Rights of the Child (1989) Social Work. The volume may be downloaded without
Convention on the Protection of the Rights of All cost from: http://www.sp2.upenn.edu/restes/Estes%
20Papers/Resources%20for%20Social%20&%20Econ
Migrant Workers and Members of Their Fam-
omic%20Development_1998.pdf.
ilies (1990) Galanter, M. (1984). Competing equalities: Law and the
Declaration on the Rights of Persons Belonging backward classes in India. New Delhi: Oxford Uni-
to National or Ethnic, Religious and Linguis- versity Press.
Goga, F. (2007). A critique of affirmative action: The
tic Minorities (1992)
concept. Retrieved February 12, 2013, from http://
Declaration on the Protection of All Persons ccms.ukzn.ac.za/index.php?optioncom_content&task
from Enforced Disappearance (1992) view&id683&Itemid86.
Declaration on the Rights of Indigenous People Havenaar, J., Geerlings, M., Vivian, L., Collinson, M., &
Robertson, B. (2008). Common mental health prob-
(2012)
lems in historically disadvantaged urban and rural
Though quite different in each of the worlds communities in South Africa: prevalence and risk fac-
major geopolitical regions, the universal quest tors. Social Psychiatry and Psychiatric Epidemiology,
for increasing equity between the worlds 43, 209215.
Horowitz, D. (1985). Ethnic groups in conflict. Los
advantaged and disadvantaged populations Angeles: University of California Press.
remains a major topic on the social agendas of Isaac, T., & Maloughney, M. S. (1991). Dually disadvan-
most countries and international associations, taged and historically forgotten: Aboriginal women
e.g., the Organization of Asia-Pacific Coopera- and the inherent right of aboriginal self-government.
Hein-on-line. Retrieved February 12, 2013, from
tion (APEC), the Association of Southeast Asian
http://heinonline.org/HOL/LandingPage?collectionjou
Nations (ASEAN), the European Union (EU), rnals&handlehein.journals/manitob21&div29&id
the Organization for Economic Cooperation and &pageline.
D 1658 Disasters

Smith, E. R., & Mackie, D. M. (2007). Social psychology Description


(3rd ed.). London & New York: Psychology Press and
Routledge.
Stewart, F. (Ed.). (2008). Horizontal inequalities and con- Discourse analysis (DA) draws from a diverse
flict: understanding group violence in multiethnic range of intellectual sources including
societies. Hampshire: Macmillan. classical studies of rhetoric, post-structuralism,
United Nations. (1948). The universal declaration of ethnomethodology, speech-act philosophy,
human rights. Retrieved February 13, 2013, from
http://www.un.org/en/documents/udhr/index.shtml. social psychology, and linguistics. However, a
United Nations. (1997). A summary of United Nations central identifying feature of DA is that it
agreements on human rights. Retrieved February 13, concentrates on the way discourse acts on and
2013, from http://www.hrweb.org/legal/undocs.html. creates our reality. In contrast, many non-DA
Vannhanen, T. (1999). Domestic ethnic conflict and ethnic
nepotism: A comparative analysis. Journal of Peace approaches assume a reference theory of
Research, 36, 5573. language where words or symbols are seen as
Wikipedia. (2013a). Affirmative action. Retrieved Febru- labels for separately knowable objects or
ary 13, 2013, from http://en.wikipedia.org/wiki/ concepts and that if appropriately used, the
Affirmative_action.
Wikipedia. (2013b). The United Nations and human words or symbols of language serve only as trans-
rights. Retrieved February 12, 2013, from http:// parent descriptors of reality. There are a great
www.un.org/rights/dpi1774e.htm. variety of approaches within DA, and a useful
way to break them down is to consider how they
use the terms discourse and analysis. While
Disasters such an approach can do some injustice to the
way in which what is considered discourse
Earthquakes may influence analysis, and vice versa, it none-
theless provides a handle on the different DA
approaches.
For linguistics, discourse, simply means any
Disciplinary Matrix piece of language greater than a sentence (Yule,
2006, p. 124). Conversation analysis (CA)
Dominant Social Paradigm concentrates on the detail of language used in
naturally occurring audio-recorded interactions
such as telephone conversations (Sacks, 1995).
Foucault (1972) takes a very broad view of what
Discourse Analysis he counts as discourse, often incorporating not
only text but also other material practices than
Brendan K. ORourke can be viewed as semiotic systems. For Foucault
School of Marketing, Dublin Institute of (1972) a discourse can constitute a whole histor-
Technology, Dublin, Ireland ical way of knowing that defines, for that period,
what can be known about a topic. Discourse has
meant for a variety of researchers a host of sign
Synonyms systems from dance (Nilges, 2000) to architecture
(OToole, 2004) to newspaper design (Kress &
Discourse studies van Leeuwen, 1999).
There is also a variety of ways discourse
analysts engage in analysis. Harre and
Definition Gillet (1994, p. 79) attempt to relate rules of
discourse to a model of brain activity. In
Discourse analysis is a name covering a large contrast Foucaults analysis is much more
variety of approaches toward analyzing various related to analysis of societies and uses his
texts or other systems of signs. methods of archaeology the examination
Discourse Analysis 1659 D
of the historical conditions that make discourses explicitly on discourse and problems of power
possible (Foucault, 1966, p. 31) and geneal- through taking a variety of interdisciplinary
ogy, the tracing of the contingencies by which approaches.
the particular discourse emerges historically Discourse analysis offers a critique of many
(Foucault, 2006, p. 236). Lakoff and Johnson research methods and measures of QOL
(1980) stress the centrality of metaphor in ( quality of life). DA points out that measures
human thinking and talking. Some discourse of QOL whether structured or unstructured
analysts analyze the use of metaphor using the interviews (Antaki & Rapley, 1996; ORourke
tools of corpus linguistics (e.g., Koller, 2005). & Pitt, 2007), structured questionnaires D
Oswick, Kennoy, and Grant (2002) argue that (Houtkoop-Steenstra, 2000), or focus groups
analyzing discourse using tropes of difference, (Puchta & Potter, 2004) are all discursive events
for example, paradox and irony, rather than where activities of participants should not be
those based on similarity, such as metaphor, regarded as an activity that transparently transfers
may be a more creative approach. Billig et al. information to the researcher. Labels such as
(1988) analyze discourse in terms of dilemmas subject and informant can often serve to
by borrowing from the study of rhetoric and hide the active nature of what people are doing
ideology. For others, storytelling is the fun- when they cooperate in research projects (this
damental way that human thought is organized; point is also made by labeling theory). DAs
the narrative approach to analyzing discourse is critique does not necessarily mean abandonment
promoted by many, including Propp (1984), of such research methods but does mean devel-
Fisher (1985), and Gergen (2001). With an oping a more sophisticated understanding of what
attention to the details of language use similar is going on.
to linguists, conversation analysts come from an The various ways of talking about, discussing,
ethnomethodological perspective to analyze lan- and debating QOL are, of course, themselves
guage in interaction with regard to their theories discourse. This makes QOL amenable to dis-
of the generic organizations for conversation course analysis. Indeed subjective aspects of
(Schegloff, 1999, p. 412). Tannen (1984) ana- QOL (see subjective indicators of well-being)
lyzes similar kinds of interaction but seeks to often depend on the construction of a specific
identify different conversational styles of the conception of self and subjectivity that has
participants. Potter and Wetherells (1987) been a major obsession in DA. In particular,
discursive psychological approach identifies Rapley (2003) has taken a Foucauldian approach
interpretative repertoires particular ways of to analyze QOL discourse historically, arguing
speaking that, as they are creatively deployed, that QOL is bound up with the currently powerful
produce accounts, thus moving beyond the need discourses of corporatism. Rapley sees QOL dis-
for psychology to investigate attitude whose courses, from its policy papers to questionnaires,
mysterious substance was thought to lie behind as positioning persons as enterprising selves
particular behaviors. Some combine insights with the power and responsibility to improve
from psychological and sociological perspec- themselves in a manner appropriate to the
tives into a highly theorized frame for the anal- demands of contemporary society. McCann
ysis of discourse. In the case of Laclau and (2004) has critiqued how best places to live
Mouffe (1985), this involves weaving together rankings in the media (see the Best City to raise
concepts from the psychoanalyst Lacan and the a family Readers Digest- and Places Rated
political scientist Gramsci. Wodak and Meyer Almanac for discussions of ranking places)
(2009) provide an insight into a range of differ- have constructed particular discourses of QOL.
ent approaches including Wodaks own Dis- It is important to note that for discourse analysts,
course-Historical Approach and Faircloughs showing the power and constructive effects of
(2010) Critical Discourse Analysis, all of a discourse does not condemn such a discourse.
which take a critical perspective that focuses If a DA critique of a discourse meant its use had
D 1660 Discourse Studies

to be rejected, discourse analysts would Laclau, E., & Mouffe, C. (1985). Hegemony and socialist
have to reject everything knowable including strategy: Towards a radical democratic politics
(W. Moore & P. Cammack, Trans.). London: Verso.
their own work. Rather, when we subject any Lakoff, G., & Johnson, M. (1980). Metaphors we live by.
discourse to analysis, we hopefully reveal more Chicago: University of Chicago.
about that discourse and allow greater apprecia- McCann, E. J. (2004). Best places: Interurban competi-
tion of its effects, good and bad. Though Rapley tion, quality of life and popular media discourse.
Urban Studies, 41(10), 19091929.
(2003, p. 223) judges that in the case of Nilges, L. M. (2000). A nonverbal discourse analysis
using QoL as a formally operationalized and of gender in undergraduate educational
measurable construct, it seems clear that the gymnastics sequences using Laban effort analysis.
problems involved outweigh the putative Journal of Teaching in Physical Education, 19(3),
287310.
benefits. There is no reason in principle that ORourke, B. K., & Pitt, M. (2007). Using the technology
other discourse analysts might not come to a of the confessional as an analytical resource:
different judgment. Indeed Rapley (2003) Four analytical stances towards research interviews
himself sees benefits in using QOL discourse as in discourse analysis (58 paragraphs). Forum
Qualitative Sozialforschung / Forum: Qualitative
a sensitizing concept. Social Research, 8(2), Art. 3. Retrieved from http://
www.qualitative-research.net/index.php/fqs/article/
view/244
OToole, M. (2004). Opera ludentes: The Sydney Opera
References House at work and play. In K. OHalloran (Ed.), Mul-
timodal discourse analysis (pp. 1127). London:
Continuum.
Antaki, C., & Rapley, M. (1996). Quality of Life talk: Oswick, C., Keenoy, T., & Grant, D. (2002). Metaphor
The liberal paradox of psychological testing. Dis- and analogical reasoning in organization theory:
course & Society, 7(3), 293316. Beyond orthodoxy. Academy of Management Review,
Billig, M., Condor, S., Edwards, D., Gane, M., Middleton, 27(2), 294303.
D. J., & Radley, A. R. (1988). Ideological dilemmas: Potter, J., & Wetherell, M. (1987). Discourse and social
A social psychology of everyday thinking. London: psychology: Beyond attitudes and behaviour. London:
Sage. Sage.
Fairclough, N. (2010). Critical discourse analysis: The Propp, V. (1984). Theory and history of folklore
critical study of language (2nd ed.). London: (A. Y. Martin & M. R. P., Trans.). Manchester:
Longman. Manchester University Press.
Fisher, W. R. (1985). The narrative paradigm: In the Puchta, C., & Potter, J. (2004). Focus group practice.
beginning. Journal of Communication, 35(4), 7489. London: Sage.
Foucault, M. (1966). The order of things. London: Rapley, M. (2003). Quality of life research: A critical
Routledge. introduction. London: Sage.
Foucault, M. (1972). The archaeology of knowledge. Sacks, H. (1995). Lectures on conversation (Vol. I & II).
(A. M. Sheridan Smith, Trans.). London: Tavistock. Oxford: Basil Blackwell.
Foucault, M. (2006). History of madness (J. Murphy & Schegloff, E. A. (1999). Discourse, pragmatics, conversa-
J. Khalfa, Trans.). Abingdon: Routledge. tion analysis. Discourse Studies, 1(4), 405435.
Gergen, K. (2001). Self-narration in social life. In M. Tannen, D. (1984). Conversational style: Analyzing talk
Wetherell, S. Taylor, & S. Yates (Eds.), Discourse among friends. Norwood, NJ: Ablex Publishing
theory and practice: A reader (pp. 247260). London: Corporation.
Sage. Wodak, R., & Meyer, M. (Eds.). (2009). Methods of
Harre, R., & Gillet, G. (1994). The discursive mind. Thou- critical discourse analysis (2nd ed.). London: Sage.
sand Oaks: Sage. Yule, G. (2006). The study of language (3rd ed.).
Houtkoop-Steenstra, H. (2000). Interaction and the stan- Cambridge: Cambridge University Press.
dardized survey interview: The living questionnaire.
Cambridge: Cambridge University Press.
Koller, V. (2005). Critical discourse analysis and social
cognition: Evidence from business media discourse.
Discourse & Society, 16(2), 199224.
Kress, G., & van Leeuwen, T. (1999). Front pages: Anal-
ysis of newspaper layout. In A. Bell & P. Garret (Eds.),
Discourse Studies
Approaches to media discourse (pp. 186218).
Oxford: Blackwell. Discourse Analysis
Discrete Choice Analysis 1661 D
Formally, Uij Vij eij , which can be
Discrete Choice Analysis reformulated: Uij Zij b eij , where Zij is a
vector of observed characteristics (depending on
Oscar Marcenaro-Gutierrez attributes of the person, si, and of the alternative,
Departamento de Economa Aplicada xij) and b a vector of coefficients quantifying the
(Estadstica y Econometra), Universidad de impact of changes of the attributes.
Malaga and Fundacion Centro de Estudios If we assume that humans are rational
Andaluces, Malaga, Spain decision makers, the person choice will be the
alternative which maximizes their utility function D
(although modelers only can observe noisy
Synonyms estimates of that utility). Then we can write the
following:
DCA
Yij 1 if Uij Zij b eij > 0
Y1i 0 if Uij Zij b eij < 0
Definition
Thus, the individual i will choose the alter-
In general, DCA is a statistical technique aimed native j (Yij 1) if the unobservable utility
to modeling people firms or any other decision (latent) is positive and will choose a different
maker preferences among a set (two or more) of alternative otherwise. In other words, between
finite exhaustive and mutually exclusive dis- two alternatives (j, k), the probability that any
crete alternatives available to them and to find out random individual will choose alternative j
which variables affect these choices. has the functional form:
     
P Yij 1 H xij ; xij ; si ; b P Uij > Uik
Description PZij b eij > Zik b eik 
P eik  eij > Zij b  Zik b for all j6k
The theoretical basis for DCA was developed by
(McFadden, 1974) who received the Nobel Prize Consequently different distributions of ei for
for this development as a mean to provide a all j generate different specifications of H,
better understanding of human choice i.e., functional forms, and, hence, different
behavior. The main advantage of DCA over discrete choice models (depending on the
other techniques to model people choices behavioral context). In particular if a logistic
(e.g., Conjoint Analysis) is that alternatives do distribution is assumed for the random term (ei),
not need to be characterized by the same attributes. we face a logit model:
Recent work in DCA theory and methods h i
 
relies heavily on the random utility probabilis- P Yij 1 1= 1 ebz ij z ik
tic choice theory (RUT). Specifically this
theory proposes that a person has a utility for However, if the random component of the
each choice alternative that is unobservable individuals utility function is assumed to be
(latent) by the researcher (Uij, utility that indi- distributed as a standard normal, we are specify-
vidual i associates with alternative j), which ing a discrete choice probit model:
comes out from the sum of a nonstochastic     
systematic component (Vij, representing tastes P Yij 1 F b Zij  Zik
of the population, observable) and a random
component (eij, catching unidentified factors Models for binary outcomes are the foundation
that impact choices, independent of Vij). from which more complex models (ordinal and
D 1662 Discrete Choice Analysis

nominal) can be derived, as the latest are equiva- As highlighted by (Train, 2009), only a few
lent to the simultaneous estimation of a series of types of GEV models have been implemented;
binary outcomes. These are nonlinear models; thus, future research is needed to fully exploit
thus, the change in the outcome probability that the potentiality of this family of models within
is associated with a given change in one of the the discrete choice analysis area.
independent variables depends on the level of all Most of the DCA have been implemented,
the independent variables (as opposed to standard built upon design of experiments or formal
Linear Regression Models). data collection methods, to estimate, e.g., the
As a natural extension of the binary logit conditional probability of participating in
model, we find the multinomial logit (MNL), higher education (Fuller, Manski, & Wise,
which models the case when we have more 1982; Marcenaro, Galindo, & Vignoles, 2007),
than two alternatives in our discrete choice choosing between different modes of transport
problem. (Ben-Akiva & Lerman, 1985), or to determine
Aside from the above-mentioned models, which socioeconomic factors may have larger
within the discrete choice family of analysis, we effects on peoples life happiness or
complementary find a wide set of models, e.g., working satisfaction (Ferrer-i-Carbonell &
mixed multinomial logit models, conditional Frijters, 2004).
logit, exploded logit, mixed logit, and general-
ized extreme value (GEV) models (which
include nested logit NL paired combinatorial Cross-References
logit PCL generalized nested logit GNL
and heteroskedastic logit HL). Choice
The standard logit model is a particular case of Data Collection Methods
a more general model: the generalized extreme Decision Making
value models. Specifically the logit model has the Happiness
independence of irrelevant alternatives (IIA) prop- Higher Education
erty, which means that ratio of probabilities of any Linear Regression Model
two alternatives is necessarily the same regardless
of what other alternatives are in the choice set or
what the characteristics of the other alternatives References
are (i.e., proportional substitution across alterna-
tives); however, as noted by (Green & Srinivasan, Ben-Akiva, M., & Lerman, S. (1985). Discrete choice
analysis: Theory and application to travel demand.
1990), this property may not be a realistic
Cambridge, MA: The MIT Press.
assumption in many consumer behavior contexts, Ferrer-i-Carbonell, A., & Frijters, P. (2004). How important
as it implies that the model captures each and every is methodology for the estimates of the determinants of
source of correlation over alternatives into repre- happiness? The Economic Journal, 114, 641659.
Fuller, W. C., Manski, C., & Wise, D. (1982). New
sentative utility. To overcome this when the IIA
evidence on the economic determinants of
does not hold, we may use GEV models (based on post-secondary schooling choices. Journal of Human
a more sophisticated form of the RUT), which Resources, 17(4), 477498.
implies that the unobserved portions of utility for Green, P., & Srinivasan, V. (1990). Conjoint analysis in
marketing: New developments with implications for
all alternatives are jointly distributed as
research and practice. Journal of Marketing, 54(4),
a generalized extreme value (Train, 2009), i.e., 319.
allowing for correlation among the error terms of Lee, B. (1999). Calling patterns and usage of residential
the alternatives. The most popular, among toll service under self-selecting tariffs. Journal of
Regulatory Economics, 16, 4581.
researchers, GEV model is the nested logit (see, Marcenaro, O., Galindo, F., & Vignoles, A. (2007). Who
e.g., Lee, 1999), as it grants a wide set of possible actually goes to university? Empirical Economics, 32,
substitution patterns over alternatives. 333357.
Discriminant Analysis 1663 D
McFadden, D. (1974). Conditional logit analysis of
qualitative choice behavior. In P. Zarembka (Ed.), Discriminant Analysis
Frontiers in econometrics. New York: Academic.
Train, K. E. (2009). Discrete choice methods with
simulation. Cambridge, MA: Cambridge University Ron Johnston
Press. School of Geographical Sciences, University of
Bristol, Bristol, UK

Definition D
Discretionary Time
Discriminant analysis is a form of multivariate
Spare Time prediction of group membership (similar to
multinomial logistic regression analysis), using
latent variables.
In Graph 1, individuals are characterized on
two variables income (the x variable, in 000s
Discretionary Time Indicators per month) and their educational qualifications
(the y variable the higher the value, the better
Time Poverty Thresholds in the USA their qualifications). The goal is to predict

10 PARTY
A
B

8
QUALIFICATIONS

Discriminant Analysis,
Graph 1 An example of a 2
simple discriminant
analysis predicting how
individuals vote by their
income and qualifications
(both on ten-point scales).
0
The diagonal line shows the
discriminant function,
the best linear equation 0 2 4 6 8 10
separating the two groups
of voters INCOME
D 1664 Discriminant Validity

whether they supported party A or B at a recent


election. Discriminant Validity
The prediction method involves fitting a linear
equation that discriminates between membership Anita M. Hubley
of the two parties as well as possible. In this case Measurement, Evaluation, & Research
an equation of the form, Methodology (MERM), Adult Development and
Psychometrics Lab, The University of British
y 10  1:0 x Columbia, Vancouver, BC, Canada

correctly classifies all but one of the individuals


(in the bottom right of the graph). In general, Synonyms
those with poor qualifications and low incomes
tend to support party A whereas those with higher Divergent validity
incomes and/or better qualifications tend to
support party B.
In this example, the two variables x and y are Definition
given. In other examples, however, a substantial
number of variables might be used. The goal Discriminant validity is demonstrated by evidence
then is to find latent variables as in factor that measures of constructs that theoretically
and principal components analysis that are should not be highly related to each other are, in
combinations of the original variables to take fact, not found to be highly correlated to each
the place of the original variables as the discrim- other. Practically speaking, discriminant validity
inators. The output of a discriminant analysis thus coefficients should be noticeably smaller in mag-
comprises: nitude than convergent validity coefficients.
The latent variables, with their loadings;
The scores of the individual observations
on those loadings (which can be graphed if Description
only two latent variables are extracted, as in
Graph 1); Evidence for discriminant validity is provided
The discriminant functions (the equations that when measures of constructs that theoretically
estimate the probability of each observation should not be highly related to each other are, in
being in each of the groups there is one fact, not found to be related to each other. The
less function than the number of groups, term discriminant validity stems from theoreti-
so with only two groups, there is just one cal approaches in validity that focus on the
function); construct (e.g., Cronbach & Meehl, 1955). In the
The centroids (average locations) of each trinitarian approach to validity, convergent and
groups members on the latent variables; and discriminant validities form the evidence for
The predicted group membership for each indi- construct validity (Hubley & Zumbo, 1996).
vidual observation, from which can be derived the The goal of discriminant validity evidence is to
number of correct and incorrect classifications. be able to discriminate between measures of dis-
(For each observation, the probability of it being similar constructs. The term divergent validity
in each group is provided). is sometimes used as a synonym for discriminant
validity and has even been used by some well-
known writers in the measurement field (e.g.,
References Nunnally & Bernstein, 1994) although it is not
the commonly accepted term.
Klecka, W. R. (1980). Discriminant analysis. Beverly While it is often suggested in textbooks that
Hills, CA: Sage. discriminant validity coefficients be low or near
Discriminant Validity 1665 D
zero in magnitude, it is more important that cor- two measures. Alternatively, researchers may
relations with scores on discriminant measures be choose an anxiety measure to provide discrimi-
noticeably lower than correlations with scores on nant validity evidence because it is important to
convergent measures. The sign of the correlation show that correlations are higher between scores
(i.e., negative or positive) simply indicates the on the depression measure and another depres-
relationship between the scores on the two mea- sion measure than with scores on an anxiety
sures. For example, a negative correlation would measure.
be obtained between two depression measures in In the multitrait-multimethod (MTMM)
which high scores on one measure mean greater matrix (Campbell & Fiske, 1959) approach, D
severity of depression but high scores on the other there is one set of correlations that provide con-
measure mean lower severity of depression. It is vergent evidence and two sets of correlations that
not the case that high negative correlations provide discriminant validity evidence. Conver-
between scores on measures provide evidence gent evidence is only provided by monotrait-
for discriminant validity (e.g., Kalfoss, Low, & heteromethod correlations between the same con-
Molzahn, 2008). structs measured using different methods (e.g.,
Interpretation of discriminant validity coeffi- a correlation between a self-report measure of
cients is best made in the presence of convergent depression and an observational measure of
validity coefficients obtained from the same sam- depression). Correlations among the same or sim-
ple. It is useful to think of convergent and dis- ilar constructs measured using the same method
criminant measures as being on a continuum (i.e., monotrait-monomethod correlations such as
(Hubley & Zumbo, 2013). One can then say that between two self-report measures of depression)
correlations between theoretically similar are not acceptable in this approach as evidence of
measures (i.e., convergent validity) should be convergent validity. Discriminant validity is pro-
relatively high, while correlations between the- vided by both heterotrait-heteromethod correla-
oretically dissimilar measures (i.e., discriminant tions and heterotrait-monomethod correlations.
validity) should be relatively low. Heterotrait-heteromethod correlations differ in
Being able to label a measure as convergent or both construct and method (e.g., a correlation
discriminant may be important in some cases between an observational measure of anxiety
(e.g., when examining whether scores on a and a self-report measure of depression) and the-
depression measure are more highly related to oretically would be expected to be the lowest
measures of anxiety or to other measures of correlations because they share neither trait nor
depression), and sometimes it is not (e.g., when method. Heterotrait-monomethod correlations
the general pattern of relationships among a vari- differ in construct but share the same method
ety of measures is more important than the (e.g., a correlation between self-report measures
specific label of convergent or discriminant) of depression and anxiety). What these correla-
(Hubley & Zumbo, 2013). Moreover, in some tions share is method, not construct. Discriminant
contexts, the same measure can be presented as validity evidence is obtained if these correlations
either a convergent measure or a discriminant are considerably lower than those provided in the
measure. For example, in the case of depression convergent validity correlations. Among the dis-
and anxiety, the two syndromes share a number criminant validity coefficients, if the heterotrait-
of symptoms, and so relatively high correlations monomethod correlations are relatively higher
may be expected between scores on measures of than the heterotrait-heteromethod coefficients, it
these two constructs. Thus, if researchers are suggests that measuring different constructs with
examining the validity of inferences made from the same method inflates the size of the correla-
a measure of depression, they may choose an tions and represents a strong methods factor.
anxiety measure to provide convergent validity When conducting a study using discriminant
evidence because, theoretically, we expect rela- measures, it is important to (a) include conver-
tively high correlations between scores on the gent measures for comparison and (b) specify in
D 1666 Discriminant Validity

advance the expected relative magnitude of coef- differ on the construct of interest (Cronbach &
ficients from, or the rank order of, each of the Meehl, 1955). Interestingly, quality of life studies
convergent and discriminant measures, so one is that claim to examine divergent validity tend to
better able to interpret the obtained validity coef- examine discriminant validity as it is described
ficients. It is not appropriate to present a table of here, even if they do not always present the results
validity coefficients and subsequently label mea- clearly or completely (see, e.g., Alvarez, Bados,
sures as convergent or discriminant based simply & Pero, 2010; Byock & Merriman, 1998; Kalfoss
on the magnitude of the obtained coefficients. et al., 2008; Lo et al., 2001; Sharp et al., 1999).
Researchers should know exactly why they are
selecting specific convergent and discriminant
measures. Then, to properly evaluate the obtained Cross-References
validity evidence, researchers need to be able to
specify, in advance, the evidence they would Construct Validity
expect to find to support validity claims. Convergent Validity
Researchers should also be aware of construct- Correlation Coefficient
irrelevant variance (e.g., due to reading level, IQ, Divergent Validity
personality, social desirability) that might influ- Known-Groups Validity
ence scores on a measure, reduce reliability, and Method Effects
potentially lower correlations between measures Multitrait-Multimethod Analysis
and make discriminant validity evidence appear Quality of Life (QOL)
stronger than it is. Reliability
The Standards for Educational and Psycho-
logical Testing (AERA, APA, & NCME, 1999) References
describes five sources of validation evidence.
Discriminant validity evidence has been included Alvarez, I., Bados, A., & Pero, M. (2010). Factorial struc-
under the source titled relations with other vari- ture and validity of the Multicultural Quality of Life
Index. Quality of Life Research: An International
ables. By avoiding the terms convergent and
Journal of Quality of Life Aspects of Treatment, Care
discriminant, the Standards has removed the & Rehabilitation, 19(2), 225229.
emphasis on these terms and the need to identify American Educational Research Association, American
any specific measure or coefficient using these Psychological Association, & National Council on
Measurement in Education. (1999). Standards for edu-
terms.
cational and psychological testing. Washington, DC:
Finally, it is noteworthy that the vast majority American Psychological Association.
of quality of life studies that claim to Arabiat, D., Elliott, B., Draper, P., & Jabery, M. A. (2011).
examine discriminant validity actually provide Cross-cultural validation of the Pediatric Quality of
Life Inventory 4.0 (PedsQL) generic core scale
known-groups validity evidence instead
into Arabic language. Scandinavian Journal of Caring
(see, e.g., Arabiat, Elliott, Draper, & Jabery, Sciences, 25(4), 828833.
2011; Beiske, Baumstarck, Nilsen, & Simeoni, Beiske, A. G., Baumstarck, K., Nilsen, R. M., & Simeoni,
2012; Mezzich, Cohen, Ruiperez, Banzato, & M.-C. (2012). Validation of the Multiple Sclerosis
International Quality of Life (MUSQoL) questionnaire
Zapata-Vega, 2011; Riedel, Spellmann, in Norwegian patients. Acta Neurologica Scandinavica,
Schennach-Wolff, Obermeier, & Musil, 2011; 125(3), 171179.
Skevington & McCrate, 2012). Known-groups Byock, I. R., & Merriman, M. P. (1998). Measuring qual-
validity evidence, which is also included under ity of life for patients with terminal illness: The Mis-
soula-VITAS Quality of Life index. Palliative
the evidence source titled relations with other
Medicine, 12(4), 231244.
variables in the Standards (AERA et al., 1999), Campbell, D. T., & Fiske, D. W. (1959). Convergent and
involves comparing scores on a measure by discriminant validation by the multitrait-multimethod
groups known theoretically or empirically to matrix. Psychological Bulletin, 56, 81105.
Disease-Specific Questionnaire 1667 D
Cronbach, L. J., & Meehl, P. E. (1955). Construct validity
in psychological tests. Psychological Bulletin, 52, Disease-Specific Questionnaire
281302.
Hubley, A. M., & Zumbo, B. D. (1996). A dialectic on
validity: Where we have been and where we are Michele Peters and Helen Crocker
going. The Journal of General Psychology, 123(3), Department of Public Health, University of
207215. Oxford, Oxford, UK
Hubley, A. M., & Zumbo, B. D. (2013). Psychometric
characteristics of assessment procedures: An over-
view. K. F. Geisinger (Ed.), APA handbook of testing
and assessment in psychology (Vol. 1). Washington, Synonyms D
DC: American Psychological Association Press.
Kalfoss, M. H., Low, G., & Molzahn, A. E. (2008). The
suitability of the WHOQOL-BREF for Canadian and Condition-specific measure; Condition-specific
Norwegian older adults. European Journal of Ageing, questionnaire; Disease-specific measure;
5(1), 7789. Patient-reported outcome measure
Lo, R. S. K., Woo, J., Zhoc, K. C. H., Li, C. Y. P., Yeo, W.,
Johnson, P., Mak, Y., & Lee, J. (2001). Cross-cultural
validations of the McGill Quality of Life questionnaire
in Hong Kong Chinese. Palliative Medicine, 15(5), Definition
387397.
Mezzich, J. E., Cohen, N. L., Ruiperez, M. A., Banzato, Disease-specific questionnaires can either be clin-
C. E. M., & Zapata-Vega, M. I. (2011). The multicultural
quality of life index: Presentation and validation. ical measures or experiential measures. They are
Journal of Evaluation in Clinical Practice, 17(2), designed for specific diagnostic groups or patient
357364. populations, and therefore, their advantage is that
Nunnally, J. C., & Bernstein, I. H. (1994). Psychometric they measure aspects that are particularly salient
theory (3rd ed.). New York: McGraw-Hill.
Riedel, M., Spellmann, I., Schennach-Wolff, R., to a specific disease or patient group. Clinical
Obermeier, M.,& Musil, R. (2011). The RSM-scale: measures assess signs, symptoms, and tests,
A pilot study on a new specific scale for self- and whereas experiential measures are a type of
observer-rated quality of life in patients with schizo- patient-reported outcome measure that assess
phrenia. Quality of Life Research: An International
Journal of Quality of Life Aspects of Treatment, Care a range of dimensions of health-related quality
& Rehabilitation, 20(2), 263272. of life such as physical functioning, mental
Sharp, L. K., Knight, S. J., Nadler, R., Albers, M., Moran, functioning, and social functioning.
E., Kuzel, T., Sharifi, R., & Bennett, C. (1999). Quality See also condition-specific measure.
of life in low-income patients with metastatic prostate
cancer: Divergent and convergent validity of three
instruments. Quality of Life Research: An Interna-
tional Journal of Quality of Life Aspects of Treatment, Description
Care & Rehabilitation, 8(5), 461470.
Skevington, S. M., & McCrate, F. M. (2012). Expecting
a good quality of life in health: Assessing people with Disease-specific questionnaires exist for an
diverse diseases and conditions using the WHOQOL- increasingly large variety of diseases. They
BREF. Health Expectations: An International Journal include two types: (1) clinical measures which
of Public Participation in Health Care & Health primarily assess signs, symptoms, and tests and
Policy, 15(1), 4962.
(2) experiential measures, which capture the
impact of a condition on the person affected by
the disease (Atherly, 2006). The measures can
either be completed by clinicians who rate
Disease-Specific Measure patients outcome or health status, or by patients
themselves. The measures described in this entry
Condition-Specific Measure are self-completed experiential measures, i.e.,
Disease-Specific Questionnaire patient-reported outcome measures (PROMs).
D 1668 Disengagement

They are patient-completed instruments in the


form of short questionnaires that typically assess Disengagement
disease-specific health status or quality of life.
Examples of disease-specific questionnaires Social Exclusion
are the Asthma Quality of Life Questionnaire
(AQLQ) and the Parkinsons Disease
Questionnaire (PDQ).
The term disease-specific questionnaire Disengagement Theory of Successful
tends to be used interchangeably with the term Aging
condition-specific measure. Patrick and Deyo
(1989) make a distinction between condition Multidimensional Model of Successful Aging
and disease specific, as not all conditions are
considered diseases. However, all diseases can be
referred to as a condition. Following this
distinction, back pain would be classed as a Dismantling Institutional Care
condition but not a disease, whereas Parkinsons
disease can be considered either as a condition or Deinstitutionalisation Process of Arduin,
as a disease. This means that the features of Quality of Life as Leading Principle
condition-specific and disease-specific measures
are broadly the same and the details of advan-
tages of disease-specific measures, questionnaire
content, development, psychometrics, and their Disparities in Quality of Life of
uses can be referred to in the entry on condition- Foreign-Born Older People in
specific measures. Australia

Well-Being Disparities of Immigrant Aged in


Australia
Cross-References

Asthma Quality of Life Questionnaire


Condition-Specific Measure Disparity
Disease-Specific Measure
Health-Related Quality of Life Dispersion
National Eye Institute Visual Function
Questionnaire
Parkinsons Disease Questionnaire (PDQ-39)
Patient-Reported Outcome Measure Dispersion

Wim Kalmijn
References Erasmus Happiness Research Organization
EHERO, Erasmus University Rotterdam,
Atherly, A. (2006). Condition-specific measures. In Rotterdam, The Netherlands
R. L. Kane (Ed.), Understanding health care outcomes
research (2nd ed., pp. 165183). London: Jones and
Bartlett.
Patrick, D. L., & Deyo, R. A. (1989). Generic and
Synonyms
disease-specific measures in assessing health status
and quality of life. Medical Care, 27(3), S217S232. Disparity; Inequality
Dispersion 1669 D
Definition Happiness Distribution in a Sample and in
a Population
In the context of subjective well-being, disper- Although each researcher in this area is interested
sion is the extent to which the self-perceived in the happiness distribution of the population
quality of life of individuals is different from investigated, information on this can be obtained
that of others who belong to the same collectivity only by measuring happiness in a sample from
of the study. this population at the individual level. One might
be inclined to generalize the happiness distribu-
tion within the sample by simply declaring that it D
Description also applies to the population, but making a clear
distinction between the known distribution of
Assessment of Subjective Well-Being happiness in the sample and the unknown one
Much of the research on quality of life deals with within the population is essential.
subjective well-being, which is often assessed
using surveys. One of the aspects of subjective Happiness Distribution in a Sample
well-being is happiness. The most frequently In practice happiness is usually measured as a
applied method to measure happiness in discrete variable, which can adopt only a rather
cross-national surveys is simply to ask respon- small number of possible values. This number of
dents to report their self-perceived happiness. ratings is chosen by the investigator and more
We will describe and illustrate this measurement than 12 ratings are rarely seen. This type of dis-
procedure as it is applied to happiness. tribution is known as polytomous.If and only if
This is done for readability reasons only; the the scale of measurement can be assumed to be
considerations discussed in this lemma are metric, if necessary by transforming the
equally applicable to the measurement of ratings ( rescaling), the average happiness can
life satisfaction or any other indicator of quality be computed as a measure of the central value of
of life measured in a similar manner to that of the distribution. This is obtained as the weighted
happiness. average of the different ratings, each with the
corresponding observed frequency as its weight.
Distribution of Happiness in Collectivities Various statistics that can be used to charac-
Whenever the focus of happiness research is terize the dispersion in the sample distribution are
placed on the happiness of collectivities evaluated by Kalmijn and Veenhoven in
such as nations, rather than of individuals, (Kalmijn, 2010, pp. 7599; Kalmijn &
happiness can be described only in terms of its Veenhoven, 2005). Some of these candidates
statistical distribution. Such a distribution is appeared to be inadequate, including the Gini
characterized by (1) the values the variable, i.c., coefficient and other statistics that have been
happiness, can adopt, (2) its type, and (3) its developed to quantify income inequality. The
parameters. main reason is that happiness and income are
In most happiness studies, only two character- variables with strongly different properties
istics are considered to be of interest. One is some (Kalmijn, 2010, pp. 4347, pp. 9799).
central value around which the individual ratings Adequate dispersion statistics for happiness
are scattered. The other one quantifies the disper- do not only include the classical standard
sion, disparity, or inequality, which three terms deviation, but also the more obsolete mean pair
are considered to be synonymous in the context of distance, the mean absolute deviation, and
quality of life research. It is a measure of the the interquartile range as alternatives. The
extent to which the individual ratings mutually recommended statistic for the inequality of a
deviate. The focus of this lemma is this second happiness distribution in a sample is the
characteristic. standard deviation s, to be calculated as follows:
D 1670 Displaced Persons

v
u k based on the estimated values of parameters of
uX
st fj rj  m2 the latent population variable, happiness popula-
j1 tion distribution parameters estimation, rather
than on those of the sample distribution.
where: The distributions of both happiness variables
k number of different ratings are linked by a suitable measurement model,
fj observed relative frequency of the j-th rating rj which forms the basis for the conversion of the
m average happiness rating. observational data into estimates of the parame-
ters of the population happiness distribution. The
Happiness Distribution in the Corresponding model of the latter has to be specified by the
Population investigator and each model has its own parame-
It is essential to distinguish between a happiness ters. The mean value and the standard deviation
distribution as it is measured in a sample and its of the population distribution can be estimated on
unknown counterpart in the population. With the basis of the sample data, but there is not
respect to the latter, two different views are necessarily a simple unique relationship between
applied in happiness studies. the corresponding parameters of both distribu-
In the first one, happiness in the population tions. The reason for this is that the mean value
and that in the sample are considered to be two and the standard deviation of a variable do not
variables with basically identical distribution exist as such but are defined only within the
models: the population is the largest possible framework of a specified distribution model of
sample. Both distributions are discrete and the relevant variable.
polytomous, including the same ratings. The
other parameters of the population, the probabil-
ities {pj; j 1(1)k} of the various ratings, are Cross-References
unknown but can be estimated as the
corresponding observed relative frequencies {fj} Gini Coefficient
in the sample. Happiness Population Distribution Parameter
In this approach the sample average value m is Estimates
an unbiased estimator of the population mean Latent Happiness Variable
happiness value, and the sample standard devia- Rescaling
tion s is an estimator of the population standard
deviation s with a bias that can be neglected, at
least for sample sizes > 100. This standard devi- References
ation has a double function: (1) it quantifies the
inequality within the distribution and (2) it acts as Kalmijn, W. M. (2010). Quantification of happiness
inequality, PhD dissertation Erasmus University Rot-
a basis for the precision of the estimation of the
terdam (NL). Available at http://repub.eur.nl/resource/
population mean happiness value as it is one of pub_21777/index.html
the factors of the standard error of the mean. Kalmijn, W. M., & Veenhoven, R. (2005). Measuring
The second approach is based on the view that inequality of happiness in nations. In search for proper
statistics. Journal of Happiness Studies, 6, 357396.
happiness in the sample and that in the population
ISSN 13894978 (Print) 15737780 (Online). doi
are two variables with essentially different distri- 10.1007/s10902-005-8855-7.
bution models. Generally speaking, in this
approach happiness in a population is considered
to be a latent continuous variable with
a continuous cumulative distribution function:
latent happiness variable. Any investigation Displaced Persons
into the relationship between happiness and,
e.g., time or some other correlate should be Refugees, Quality of Life
Distress 1671 D
cognitive appraisal has been reported to affect
Dispositions the way people cope and also their psychological
well-being. In fact, this negative experience is
Habitus related to adverse health outcomes and is conse-
quently negative and dysfunctional (i.e., bad
stress). However, the model assumes that coping
mediates the relationship between the individuals
Disquiet distress experience and psychological well-being.
Whether a threat or harm has initially been D
Anxiety appraised, in order to reduce the demand, some
form of coping action is taken. The model differ-
entiates between problem-focused and emotion-
focused forms of coping. Problem-focused coping
Distress includes problem-solving behaviors that aim
directly to change the stressor, other aspects of
Maria Jose Chambel the environment, or ones own behavior. Emo-
Department of Social and Organizational tion-focused coping refers to attempts to manage
Psychology, University of Lisbon, Lisbon, cognitions or emotions directly. Coping responses
Portugal are influenced by initial appraisals, and threat or
harm appraisals are linked to more emotion-
focused coping (McCrae, 1984). While some
Definition coping research has linked emotion-focused
coping with a decrease in health and well-being,
Distress can be defined as the negative experience the effectiveness of any particular coping strategy
of stress (Lazarus, 1974). depends on its appropriateness (Lazarus &
Folkman, 1984).
Past research has predominantly focused on
Description this negative experience of stress. Consequently,
we are very well documented about its anteced-
We can consider this a problematic term in stress ents, consequences, and actions to prevent, con-
literature because it has been heterogeneously trol, or reduce distress. Although the contextual
defined and imprecisely utilized as being conditions will not be salient for some individuals,
confounded with stress. However, Lazaruss Cog- yet may produce significant responses in others,
nitive Transactional Model of Stress (Lazarus, the literature has underlined different distressors
1974; Lazarus & Folkman, 1984), which included taking the form of physical conditions (e.g., noise,
the appraisal of the individual to understand the vibrations, poor ergonomic conditions), task con-
experience of stress, was distinguished distress. ditions (e.g., workload, monotonous work), role
With regard to this model, the process of stress conditions (e.g., ambiguity, role conflict), inter-
only begins if the individual appraises episodes or personal conditions (e.g., poor relationship with
conditions in the environment, commonly referred peer, supervisor, or clients), work schedules (e.g..
to as either stressors or demands, as both relevant shift work, working long hours), career conditions
and stressful for his/her personal well-being. (e.g., insecurity and poor promotion opportuni-
When these stressors are perceived by the individ- ties), traumatic events (e.g., exposures to disas-
ual to be either harmful or threatening, they are ters), and organizational change (e.g., downsizing,
commonly termed distress. In harm appraisals, acquisitions) (Sonnentag & Frese, 2003).
some loss and damage to the person has already When an individual perceives distressors as a
occurred. Threat involves harm or losses that threat to his or her well-being, he/she experiences
have not yet occurred but are anticipated. This a negative emotional response with physiological,
D 1672 Distress

behavioral, and psychological changes that, in influence individuals to interpret a situation not
turn, may result in negative health consequences as being stressful but as a challenge. Secondary
(Spector & Goh, 2001). In fact, literature has prevention efforts target the individuals
shown physiological responses (e.g., heart rate, response to stress. Exercise, meditation, and
the excretion of hormones), cognitive responses other forms of relaxation and nutrition would all
(e.g., attention, information processing), affective fall under the heading of secondary prevention.
(e.g., motivation, mood), and behavioral (e.g., Actions to teach a person to improve his/her
withdrawal, absence) in response to distressors coping strategies are also included. These
(Kahn & Byosiere, 1991). Furthermore, the health techniques focus on lowering the risk of disease.
consequences are well established. Physical Employee assistance programs are tertiary
strains result from distress, with heart attack, prevention interventions. It consists of getting
stroke, cancer, peptic ulcer, asthma, diabetes, professional help counseling, physical therapy,
hypertension, headache, back pain, and arthritis and medical treatment for symptoms of distress.
among the many diseases and symptoms that have
been found to be caused by distress. Mental health Discussion
can also suffer because distress work situations The focus of appraisal to explain distress has been
are associated with an increased level of depres- the target of important criticism. First, different
sive symptoms, psychosomatic complaints, and authors consider that different work and employ-
burnout (Sonnentag & Frese, 2003). ment conditions affect the health and well-being
These consequences for health and well-being of most workers and researchers have the social
have direct and indirect costs for organizations responsibility to identify and design strategies
(Quick, Quick, Nelson, & Hurrell, 1997). The with the goal to prevent, control, or alleviate
direct costs include participation and member- them (Brief & George, 1991). In fact, in litera-
ship, such as absenteeism and turnover; perfor- ture, the predominant idea is that there is a simple
mance in the job, such as accidents and poor- relationship between certain characteristics,
quality productivity; health-care costs, such as stressors or distressors, and the stressful out-
insurance rates; and compensation awards, such comes. Theoretical models and empirical studies
as court awards for sexual harassment. The indi- frequently consider that exposure to different
rect costs include loss of vitality, communication psychosocial characteristics or to a combination
breakdowns, faulty decision-making, and quality of them entails negative consequences for the
of work relations. individuals health and well-being. Future
The preventive stress management approach research needs to consider whether the distress
is markedly predominated by the prevention and is a result of the stressor or of the individuals
resolution of distress and advocates a three-tiered appraisal of this stressor (Dewe, 2001).
stress prevention model: primary prevention, Secondly, the way individual appraisal
which is intended to reduce, change, or eliminate stressors influence his/her emotional experiences,
stressors; secondary prevention, which is focused which, in turn, influence his or her appraisal
on modifying the individuals response to (McGowan, Gardner, & Fletcher, 2006). Future
stressors; and tertiary prevention, which attempts research needs to consider distress as a dynamic
to heal individual or symptoms of distress (Quick process that involves not only causal effects
et al., 1997). Primary prevention would encom- between stressors, distress, and health and well-
pass a change in job characteristics like job rede- being but also reversed effects (Zapf, Dormann,
sign efforts (e.g., decrease the job demands, & Frese, 1996).
redistributing tasks among peers). Also included Finally, the characteristics of organizations
are changes in individuals, improving their structure, culture, and procedures influence the
strategies for dealing with stressors (e.g., devel- thinking and actions of individuals and conse-
opment of time management competences) or quently influence their appraisals of stressors
promoting a cognitive restructuring attempt to (Harris, 1991). Furthermore, there are multilevel
Distributive Justice 1673 D
relationships between distress and its conse- Lazarus, R. S. (1974). Psychological stress and coping in
quences, as well as contextual influences on the adaptation and illness. International Journal of
Psychiatry in Medicine, 5, 321333.
emergence and development of collective distress Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal
shared by individuals in the same context (Bliese and coping. New York: Springer.
& Jex, 1999). Thus, there is a need to develop McCrae, R. (1984). Situational determinants of coping
research to clarify the influence of contextual responses: Loss, threat and challenge. Journal of
Personality and Social Psychology, 46, 919928.
factors on the process of appraisal and the possi- McGowan, J., Gardner, D., & Fletcher, R. (2006).
bility that a certain context produces uniform Positive and negative affective outcomes of
appraisals and/or consequences (Dewe, 2001). occupational stress. New Zeeland Journal of D
Psychology, 35, 9298.
Quick, J. C., Quick, J. D., Nelson, D. L., & Hurrell, J. J.
(1997). Preventive stress management in organiza-
Cross-References tions. Washington, DC: American Psychological
Association.
Anger Sonnentag, S., & Frese, M. (2003). Stress in organizations.
In W. C. Borman, D. R. Ilgen, R. J. Klimoski (Eds.)
Anxiety and I. B. Weiner (Ed. In Chief), Handbook of
Burnout psychology: Vol. 12. Industrial and organizational
Eustress psychology (pp. 453491). New Jersey: Wiley.
Health Spector, P. E., & Goh, A. (2001). The role of emotions in
the occupational stress process. In P. L. Perrewe, &
Negative Affect D. C. Ganster (Eds.), Research in occupational stress
Stress and well-being: Vol. 1. Exploring theoretical
Stress Reactivity mechanisms and perspectives (pp. 195232). Oxford,
Well-being at Work UK: Elsevier Science.
Zapf, D., Dormann, C., & Frese, M. (1996). Longitudinal
Work Stress studies in organizational stress research: A review of
Workaholism the literature with reference to methodological issues.
Journal of Occupational Health Psychology, 1,
145169.

References

Bliese, P. D., & Jex, S. M. (1999). Incorporating multiple


levels of analysis into occupational stress research. Distress, Sexual
Work and Stress, 13, 16.
Brief, A. P., & George, J. M. (1991). Psychological stress
and the workplace: A brief commentary on Lazarus Sexual Satisfaction and Gender Differences
outlook. In P. L. Perrewe (Ed.), Handbook on job Sexual Satisfaction and Sexual Costs in
stress (Special Issue), Journal of Social Behavior and Women
Personality, 6, 1520.
Dewe, P. J. (2001). Work stress, coping, and well-being:
Implementing strategies to better understand the
relationship. In P. L. Perrewe & D. C. Ganster (Eds.),
Research in occupational stress and well-being: Vol. Distribution-Sensitive Human
1. Exploring theoretical mechanisms and perspectives
(pp. 6395). Oxford, UK: Elsevier Science. Development Index
Harris, J. R. (1991). The utility of the transactional
approach for occupational stress research. In P. L. Human Development Inequality
Perrewe (Ed.), Handbook on job stress (Special
Issue), Journal of Social Behavior and Personality, 6,
2129.
Kahn, R. L., & Byosiere, P. H. (1991). Stress in organiza-
tions. In M. D. Dunnette & L. M. Hough (Eds.), Hand-
book of industrial and organizational psychology
Distributive Justice
(2nd ed., Vol. 1, pp. 571650). Palo Alto, CA:
Consulting Psychologist Press. Progressive Taxation
D 1674 Disturbance Terms

Y
Disturbance Terms

Melanie Revilla
Political and Social Sciences, Universitat
Pompeu Fabra RECSM, Barcelona, Spain

Synonyms

Error terms; Noise 1

Xi
0 1
Definition
Disturbance Terms, Fig. 1 Regression line and data
The disturbance term is an unobserved random points
variable that adds noise to the relationship
between the dependent and independent variables. that different units take for the variables X,Y
together. These points are not exactly on the
line: some are a bit under and some are a bit
Description above. The difference between the point and the
line is what the disturbance terms account for.
Regression analyses (Montgomery, Peck, & Basically, the disturbance term captures
Vining, 2001) are used to study the relationship several elements.
between a dependent (or endogenous) variable First, it captures variables that have been omit-
usually denoted by Y and one or more indepen- ted from the model. These variables may have
dent (or exogenous) variables usually denoted by been omitted for different reasons, in particular:
Xi i 1; . . . ; n. Because the researcher did not think about
Assuming linearity and additivity, the including them: inadvertence, unforeseen
relationship between the dependent variable events that affect Y, etc. No matter how
Y and the n independent variables used to explain many efforts are made to specify well the
it can be described by the following equation: model, there are always unpredictable effects
of some sort that will affect it. The disturbance
Y a b1 X1 b2 X2 . . . bn Xn z (1) term accounts for them.
Because the researcher, even if he/she thought
where a is the intercept, bi is the slope of the ith about including them, could not get a measure
independent variable, and z is the disturbance of them: not measured or not measurable
term. variables.
The disturbance term is an unobserved Because the researcher considered that the
random variable that adds noise to the linear impact of these variables should be so small
relationship between the dependent and indepen- that it was not worth it to include them in the
dent variables. It is added to the regression equa- model.
tion to account, as the name indicates, for all Then, it includes measurement errors. Even if
kinds of potential disturbances that may affect a lot of efforts are made to collect a high-quality
the relationship between the dependent and inde- data, there are always at least some random
pendent variables. errors in the data collected. People are making
In Fig. 1, the line of equation Y a bX is mistakes. Machines used for measuring are not
represented (straight line), as well as the values precise enough. Some errors are always made.
Divergent Validity 1675 D
Sometimes, systematic errors in the measurement terms do not have a constant variance across
are present too. These measurement errors are units, it is said that there is heteroscedasticity.
included in the disturbance term: indeed, they Some linear regression estimation methods
disturb the relationship between the dependent including the ordinary least square do not work
and independent variables. properly when there is substantial heterosce-
Finally, it may also capture the nonlinearities dasticity: they lead to imprecise estimates and
when a linear model is used, but the true relation- misleading standard errors. In this situation, the
ship is not linear. researcher should use the generalized least
In summary, the disturbance terms role in the squares estimators. The same arise if the distur- D
regression equation is to account for the inability bance terms are correlated with each other.
of the researcher to capture all the elements that If the disturbance terms are correlated with the
may determine Y in the real world. It includes all dependent variables, it is said that there is
other factors that influence Y other than the Xi a problem of simultaneous bias. Then the
specified in the model. researcher should use an instrumental variable
The disturbance terms have some properties. approach or simultaneous equation estimators
The assumptions that the researcher makes (e.g., two-stage or three-stage least squares).
about them are crucial steps in the formulation of
the model. Indeed, the method to be used for the
estimation depends on these assumptions. In turn, Cross-References
the estimation procedure chosen determines for
a big part how good the results will be. Heteroscedasticity
Most commonly, the different assumptions Homoscedasticity
made about the disturbance terms are the following: Intercept, Slope in Regression
The disturbance term is normally distributed Measurement Error
with an expected value of 0 and a common Ordinary Least-Squares (OLS) Model
variance of s2 : Ezi  0 and Var zi  s2
The fact that the expected value of the
disturbance term is 0 means that on average, References
the errors balance out.
The fact that the variance is equal across all Montgomery, D. C., Peck, E. A., & Vining, G. G. (2001).
Introduction to linear regression analysis. Hoboken:
the units of the data is called
Wiley.
homoscedasticity.
The disturbance term is not correlated with the
independent variables: Cov Xi ; zi  0
The disturbance terms for all observations
are not correlated with each other: Divergent Validity
   
Cov zi ; zj E zi ; zj 0 for all i,j
However, these assumptions do not always Anita M. Hubley
hold in practice. For instance, if they are Measurement, Evaluation, & Research
measurement error, the expected value of the dis- Methodology (MERM), Adult Development and
turbance terms may be different from 0. In that Psychometrics Lab, The University of British
case, the intercept estimate is going to be biased. Columbia, Vancouver, BC, Canada
Therefore, it is sometimes necessary to release
one (or more) of them. Different procedures
have been developed to deal with these situations. Synonyms
For example, if the assumption of homosce-
dasticity is violated, meaning that the disturbance Discriminant validity
D 1676 Diverse Cultural Differences Effects at Work

Definition Definition

Divergent validity is a less commonly used term [Noun] legal termination of a marriage
to describe evidence that measures of constructs [Verb] to obtain a legal termination of
that theoretically should not be highly related to a marriage
each other are, in fact, not found to be highly
correlated to each other. Practically speaking,
divergent validity coefficients should be notice- Description
ably smaller in magnitude than convergent valid-
ity coefficients. The volume of dissolution of marital unions by
legal divorce is often taken as an indicator of
social disorganization and lack of social cohe-
Description sion which affect the quality of life in a society.
Internationally, Sweden, Finland, and Belarus
See Discriminant validity usually finish at the top of the table with annual
totals of divorces granted often exceeding 50 %
of the total of marriages in the same year.
Cross-References Finishing at the bottom of the table are India
and Sri Lanka where the comparable figure is
Discriminant Validity less than 2 %. Similar results are obtained with
an alternative measure, the rate of divorces
per hundred thousand population, and a more
Diverse Cultural Differences Effects complex measure which expresses the likelihood
at Work of a marriage ever ending in divorce in a
given jurisdiction. All of these measures tend to
Occupational Stress in a Multicultural be quickly out of date and appear well after
Workplace the year in question has expired. Often, the most
up-to-date figures can be found on the
United Nations reference site (http://unstats.un.
Divisions of Household Labor org/unsd/demographic/sconcerns/mar/mar2.htm
in Table 25).
Sharing of Household Responsibilities But much care is necessary in coming to any
conclusion drawn from this type of data
since family breakdown and divorce are separate
Divorce and Suicide in Norway processes. Although many countries publish
divorce statistics, estimates of how many
Social Integration and Suicide in Norway marriages end in divorce, and of the number of
children so affected, these statistical series can
present a misleading picture in that they do not
Divorce, an Overview cover all couples who are separating because
many such couples have never entered into
Craig McKie a formal marriage.
Chilliwack, BC, Canada Among the most important drivers behind
rates of family breakdown and divorce is the
demographic transition. Lives are growing
Synonyms much longer in contrast to those of our ancestors
just a century or two ago. There are many reasons
Divorcement why life expectancy has increased so greatly
Divorce, an Overview 1677 D
across the globe. Early childhood vaccination and in jurisdictions which had only one ground avail-
clean drinking water alone account for a sizeable able, adultery (an at-fault marital offense and
proportion for instance. But one of the conse- violation of the underlying contract) and the
quences of longer lives is that the lifetime of inclusion of money damages to the parents in
marital relationships has also been greatly the claim. The current norm is the no-fault
extended as a by-production of general societal divorce in which marital offenses are deemed
aging. Where marriages in the Middle Ages nonmaterial or irrelevant.
lasted perhaps 1520 years on average before Divorce is the legal dissolution of a marriage
the death of a spouse, now married partners contract whether based on a civil marriage, D
might expect to spend 50 or 60 years together. a religious or cultural marriage, or some civil
In other words, the time at risk has greatly contractual arrangement of rough equivalency.
increased. A divorce decree is itself also a contract
The history of legal divorce is replete with which redefines the continuing obligations of
examples of strained logic and the twisting of the previous partners to each other and to any
facts to fit stated requirements. Perhaps the most children they may have had together. But
famous of these was the divorce of King Henry in Western societies, a progressively smaller
VIII of England (14911547 AD) in a sequential proportion of all couples has such a marriage
serial search for a wife who would bear him an contract or written arrangement or indeed has
heir. The refusal of the Catholic Church in Rome participated in a ritual marriage event of any
to provide him a divorce on his request for these description. When a separation occurs for such
dynastic extension purposes led him to sever unmarried couples, a divorce is unnecessary
ties between England and the Catholic Church. because no contract has been undertaken though
The Catholic Church contended then and con- there may well be other legal processes which
tinues to maintain now that marriage is must be gone through to determine support
a sacrament which was indissoluble and that the obligations. But in many cases now, the end of
two individuals become one in a marriage as an unofficial marital union simply leaves no
it were. Henry was consequently moved to estab- legal or statistical trace at all, either in
lish a new Church of England with himself at its a marriage registry, a divorce registry, or even
head which would in due course accede to in the birth certification of any children born of
his wishes for a divorce. The notion of absolute the union.
marital indissolubility came to the fore in north- A second reason to be wary of comparisons in
ern Europe during this era, now known as the interpreting divorce statistics is that the legal,
Protestant Reformation, when Martin Luther civil, and cultural bases of marriage and divorce
(14831546 AD) asserted that marriage was not differ widely from country to country, even
a sacrament and could therefore be dissolved by region to region within countries, and greatly
civil legal process. This dispute still simmers in from culture to culture. Most, if not all, societies
the twenty-first century as one issue among sev- have rules governing mating, but these rules
eral in which contending claims are made by civil are based on widely differing concepts of the
and religious authorities. It might well be argued nature of marital unions. In some, marriage is an
that the ascendancy of civil authority (and of indissoluble confessional act and thus no divorce
written law) over traditional cultural authority is is possible or available. In others, dissolution may
itself an indicator of development in simply be a matter of individual and/or consen-
a given society. As a matter of long-term trend sual choice. In some, only a civil legal process is
in Western countries, divorce has become involved, while in others, a religious tribunal
increasingly easily available with the passage of must also adjudicate in some fashion to the
time. In decline is the once widespread practice of point of issuing a second and parallel divorce
manufacturing evidence of sexual infidelity to decree. And in a few societies, divorce is only
demonstrate clear grounds for a legal divorce available to males upon their request. Most of
D 1678 Divorcement

these differences originated in the long past his- is a widespread view that effects extend to the
tory of contract law and convention. A marriage subsequent marital experiences of the children of
in early medieval times (and probably in the family breakdown.
millennia which preceded it) was a contract
between fathers for the exchange of a woman
for marriage in return for valuable goods and Cross-References
services. Should such a contract break down,
the situation was somewhat analogous to the Life Expectancy
contemporary winding up of a corporation in Quality of life
bankruptcy. The assets and liabilities had to Social Cohesion
be assessed and sorted out and damages levied.
The right to subsequently remarry was not
guaranteed either. Further Readings
In order to gain insight on the rates of disso-
lution of marriages and marriage-like unions Dave, I., Muller, M., & Rees Jones, S. (2003). Love,
marriage, and family ties in the later middle ages.
today, it is necessary to collect data on relation-
Turnhout, Belgium: Brepols Publishers N.V.
ships based on individual life histories, an expen- Gaffal, M. (2010). Psychosocial and legal perspectives of
sive and difficult task particularly given the marital breakdown: With special emphasis on Spain.
sensitivity of the subject matter, privacy legisla- Heidelberg, Germany: Springer.
Gauthier, A. H. (1999). The state and the family:
tion, and so on. Realistically then, accurate data
A comparative analysis of family policies in industri-
on individual relationship histories can only be alized countries. New York: Oxford University Press.
collected by governments using compulsory Grubbs, J. E. (2002). Women and the law in the Roman
compliance mechanisms, and this seldom now Empire: A sourcebook on marriage, divorce and
widowhood. Oxford, UK: Routledge.
occurs. Another aspect of divorce which has
Holden, L. (2008). Hindu divorce: A legal anthropology.
recently come to the fore as a research question London: Ashgate Publishing.
is now the much more frequent situation in which Maclean, M. (2005). Family law and family values.
the two members of divorcing couples live in Oxford, UK: Hart Publishing.
Oshaughnessy, K. (2009). Gender, state and social power
different countries. Claiming jurisdiction and
in contemporary Indonesia: Divorce and marriage
asserting the supremacy of one countrys laws law. Oxford, UK: Routledge.
over anothers is usually problematic
and a violation of the legal norm of comity in
international matters. The European Union is
currently considering a standardization of family
law to attempt to deal with this type of situation Divorcement
though it is hard to foresee what common system
could be imposed on member countries given the Divorce, an Overview
large differences in legal standards and practices
in use today in the many EU countries.
As far as generalizations about those divorc-
ing can be advanced, it seems to be generally Dizygotic Twin
the case that family breakdown has a range of
unfavorable consequences for the previously Twinship
married and their children. These circumstantial
disadvantages can be made worse by serious legal
disputation over the terms of their divorce if one
is required. Separating couples typically often Doctor-Patient Communication
suffer a substantial and persistent decline in
their standard of living for instance, and there Patient-Physician Communication
Domain Satisfaction 1679 D
of life is arbitrary . . . and depends on the
Document Literacy researchers objective. This pragmatism is
a problem shared with quality of life research in
International Literacy Assessments general (cf. Rapley, 2003, ch. 2). In a review of
articles that specify domains of life, seven were
identified as core (i.e., used most frequently):
Domain Satisfaction material well-being, health, productivity,
intimacy, safety, community, and emotional
Jan Delhey well-being (Cummins, 1996). In practice, most D
School of Humanities and Social Sciences, tried-and-tested instruments include these domain
Jacobs University, Bremen, Germany satisfactions in one form or another. Some sur-
veys additionally touch upon public life domains.
The Australian Unity Well-being Index, for
Synonyms example, includes satisfaction with the national
economic situation, the state of the environment,
Life facet satisfaction social conditions, wealth distribution, health ser-
vices, and family support (Cummins, Eckersley,
Pallant, van Vugt, & Misajon, 2003).
Definition Although there is no theory readily available
for deducing life domains, the ones that typically
A domain satisfaction can be defined as an endur- are selected by researchers resonate quite well
ing appreciation of a particular life aspect. Like with results from exploratory survey research in
life satisfaction ( happiness), domain satisfac- which factor analysis techniques are employed
tions indicate the subjective quality of life as in grouping detailed life concerns into broader
experienced by a given set of individuals. Yet, domains (Flanagan, 1978; Rojas, 2007).
whereas the former denotes a lasting satisfaction A bottom-up study from the United States sorted
with ones life as a whole, domain satisfactions statements of 6,500 critical incidents from an
are evaluations of specific life facets (domains), open-ended survey into 15 domains which were
such as family life, health, and standard of living. presented under five broad headings: physical
Following multiple discrepancies theory and material well-being; relations with other
(Michalos, 1985), a domain satisfaction reflects people; social, community, and civic activities;
the extent to which objective conditions in personal development and fulfillment; and
a particular area of life match peoples respective recreation (Flanagan, 1978).
needs or aspirations. The life domains most often
studied are job satisfaction, health satisfaction, In Which Domains Are People Most Satisfied?
and marital satisfaction. Like overall happi- Three key findings emerge from research
ness, domain satisfaction can hardly be inferred (cf. Bohnke, 2005; Delhey, 2004). First, people
from behavior; hence, researchers rely on self- are not equally happy with each area of life;
reports, typically by using rating scales. Domain hence, they have different experiences within
satisfaction research emerged in the 1940s in the distinct realms of life. With respect to private
United States (Ferriss, 2004). life domains, people tend to be most satisfied
with the very personal realms such as their
home, their family life, and their neighborhood
Description and least satisfied with their financial situation.
Second, people are usually less content with
Life Domains public domains than with private ones, which
As Mariano Rojas (2007, p. 470) put it, the supports the idea that people are happier
enumeration and demarcation of the domains with those areas of life that they can control
D 1680 Domain Satisfaction

(Headey & Wearing, 1992). Alternatively, To Weight or Not to Weight?


self-esteem might cause people to evaluate The fit with life satisfaction is good, but not
the domains close to oneself more positively perfect. One reason might be that life domains
(Cummins, 2003). Third, there are considerable are of differential importance for well-being,
differences between countries in domain satisfac- which would suggest that weighting them prop-
tions, largely similar to those found for overall erly would improve the fit with overall life satis-
happiness. For example, on average western faction. Empirical results are mixed. Angus
Europeans are more satisfied and happy with Campbell, Converse, and Rodgers (1976) and
their lives than are eastern Europeans, and this Mariano Rojas (2007) found no advantage in
gap is reproduced for any life domain (Delhey, using importance ratings as weighting variables
2004). This result may be because national in comparison to the simple additive model in
living conditions are consistently good or bad which each domain satisfaction carries the same
(the state explanation) or because domain weight. In contrast, Chang-ming Hsieh (2003)
satisfactions are an expression of a more general suggests that domain rankings do the trick, yet
public mood (the trait explanation). the improvement achieved is modest at best. In
short, the magic formula for weighting domains
The Fit Between Life Satisfaction and Domain properly has not yet been found, and the majority
Satisfactions of studies still use a simple additive index. Others
Theoretically, it is perfectly possible to have claim that overall life satisfaction is influenced
a happy marriage but still be dissatisfied with not only by a combination of domain satisfactions
life-as-a-whole, or to be satisfied with life-as-a- but by a general positivity disposition as well
whole in spite of an unhappy marriage (Diener, Christine, Scollon, Dzokoto, & Suh,
(Veenhoven, 2007, p. 237). In practice, however, 2000, p. 169). Using student samples from 41
the summation of an individuals satisfaction countries, Ed Diener et al. were able to isolate
scores over various life domains should approxi- this positivity disposition. At the national level,
mate his or her global life happiness. The vari- average positivity predicted life satisfaction bet-
ance in happiness explained by domain ter than a sum score of domain satisfactions did;
satisfactions ranges between 25 % and 55 %, at the individual level, the domain index was the
depending on the sample and the life domains better predictor, but individual positivity had
available. A Swedish study (Fugl-Meyer, a significant impact on happiness as well. In
Branholm, & Fugl-Meyer, 1991) classified adults a nutshell, the whole (overall life satisfaction)
as happy or not happy on the basis of domain seems indeed to be more than the sum of its parts.
satisfactions for three important life facets.
A comparison of this classification with peoples Bottom-Up or Top-Down?
self-reported overall happiness showed that 86 % Implicitly or explicitly, the weighting discussion
of happy respondents and 71 % of not happy assumes that domain satisfactions contribute bot-
respondents were classified correctly. Further tom-up to how much we appreciate life as
evidence for a good fit comes from the United a whole. Others claim that the causal direction
States, where Richard Easterlin and Onnicha actually flows in the opposite direction, top-down
Sawangfa (2007) analyzed the variation of over- from general life satisfaction to domain satisfac-
all happiness with socioeconomic status, the sta- tions. The rationale for top-down processes
bility of happiness over time, the U-bend over the comes from research on dispositional and genetic
life cycle, and differences between cohorts. determinants of attitudes, and on the strong role
When reported satisfaction in four domains that personality traits such as positive and nega-
finances, family life, work, and health was tive affectivity or extroversion and neuroticism
used instead of overall happiness, these general play in subjective well-being (cf. Lance,
patterns were closely predicted by the domain Mallard, & Michalos, 1995). A third possibility
satisfactions. is that life satisfaction and domain satisfactions
Domain Satisfaction 1681 D
influence each other in a bidirectional process. extroversion (Heller, Watson, & Ilies, 2004).
It also has been suggested that the correlations Daniel Heller, David Watson, and Remus Ilies
between life facets and overall happiness are propose a more complicated integrative model
simply spurious due to the effect of personality which allows personality characteristics to influ-
characteristics. ence both domain satisfactions and life satisfaction,
The findings pertaining to this controversy are with domain satisfactions having a bottom-up
diverse, to put it mildly. Australian panel data impact on life satisfaction. The bottom line: despite
(Headey, Veenhoven, & Wearing, 1991) suggest a growing body of research there is no convergence
that the main direction of influence is top-down: toward one of the models; results remain diverse D
three domains (job, standard of living, and lei- and contradictory.
sure) were found to have a top-down relation,
whereas a reciprocal relation was established for Which Life Domains Matter Most?
one domain (marriage) and a spurious correlation Which life facets are actually most important for
for two domains (friendship and health). In con- humans? The so-called testimony approach uses
trast, another study found a bottom-up effect for self-reports and lets respondents either rate or
marriage, a top-down effect for friendship, and rank how important domains are for them person-
a bidirectional relationship for work (Lance, ally. In the classic study The Quality of American
Lautenschlager, Sloan, & Varca, 1989). Both Life (Campbell et al., 1976), 91 % of US Amer-
studies conclude that most likely there is no gen- icans rated health as very important or important,
eral pattern, only domain-specific links. Adding followed by intimacy (89 %), material well-being
even more complexity, it has been suggested that (73 %), and productivity (70 %). This finding has
the causal direction may vary not only by domain been replicated many times.
but also by ethnic group (Moller & Saris, 2001) A typical ranking approach is to let respon-
and by country (Saris, 2001). Recently, there is dents choose from a longer list those domains
growing support for the bidirectional model. which contribute most to their quality of life.
Lance, Mallard, and Michalos (1995) found Across 28 European countries (Delhey, 2004),
bidirectional causation for 8 of 11 domains being in good health is picked by a large
studied. Moreover, all of these bidirectional majority everywhere as one of the three most
cases are asymmetric, with the effect of life important contributors, followed by sufficient
satisfaction on domain satisfactions being income to meet my needs and having family
roughly twice as strong as the reverse effect. members who are there when I need them. This
Likewise, a review of more than 30 studies on ranking demonstrates that no single domain is
the link between job satisfaction and overall life the key to happiness. When asked in a further
satisfaction concluded that the majority of studies question which factor would improve their cur-
support the bidirectional model (Rain, Lane, & rent quality of life, having a higher income
Steiner, 1991). was selected most often in the plurality of
One common problem is that these studies are European countries.
very much data driven: there is no theory available The use of advanced statistics (the correlation/
to explain why domain A is linked bottom-up to life regression approach) is an alternative strategy. In
satisfaction whereas domain B is linked top-down. this approach, the most salient areas of life are
A further problem is the lack of robust results, even discovered indirectly by the researcher. It is
when studying the same population (Scherpenzeel inferred that domains which are highly correlated
& Saris, 1996). Some read this circumstance as with life satisfaction matter a great deal to people
evidence that one or more underlying factors deter- and that domains which have a weak correlation
mine both overall happiness and domain satisfac- do not matter much. In a Mexican sample, five
tions, thus causing spurious relationships between domains strongly correlate with life happiness:
the two. This underlying factor could be general health, economic situation, job, family, and
positivity (Diener et al., 2000) or neuroticism and personal fulfillment, the latter representing a mix
D 1682 Domain Satisfaction

of education and leisure (Rojas, 2007). For Ger- of an agreed-upon set of important life domains.
many, financial situation and health have been It is therefore important that quality of life
found to be most important (Van Praag, Frijters, researchers standardize their research instru-
& Ferrer-I-Carbonell, 2003), though the study in ments in order to strengthen the impact of their
question did not include any domain related to future research.
family or social connectedness. In another Ger-
man study which did, satisfaction with family life
is strongly correlated with life satisfaction and to Cross-References
the same extent as satisfaction with household
income and with standard of living (Bulmahn, Bottom-Up Versus Top-Down Theories of
1996). In France, love life and family life were Life Satisfaction
the strongest predictors (Salvatore & Munoz Household Income, Satisfaction with
Sastre, 2001). Job Satisfaction
A more recent branch of comparative research Life Satisfaction, Concept of
tries to understand whether there are systematic Multiple Discrepancies Theory (MDT)
cross-national differences in domain importance. Satisfaction with Family Relationships
Theoretical guidance comes from Abraham Subjective Indicators of Well-being
Maslows hierarchy of needs as well as from Subjective Well-being (SWB)
Ronald Ingleharts value change theory
(Inglehart, 1997). The latter predicts a greater
weight of nonmaterial concerns, relative to that
References
of materialist concerns, in affluent countries.
Indeed, there is evidence to support this hypoth- Bohnke, P. (2005). Happy, satisfied, belonging subjec-
esis, both from Europe and worldwide. Financial tive well-being and its determinants in Europe. Report
satisfaction has a stronger impact on life happi- for the European Foundation for the Improvement of
Living and Working Conditions. Dublin.
ness in less wealthy east-central Europe, whereas
Bohnke, P., & Kohler, U. (2008). Well-being and inequal-
in Western Europe satisfactions with family life, ity. In S. Immerfall & G. Therborn (Eds.), Handbook
social life, and health are usually more salient of European societies. Social transformations in the
(Bohnke & Kohler, 2008; Delhey, 2004). Inter- 21st century (pp. 629666). New York: Springer.
Brockmann, H., Delhey, J., Welzel, C., & Yuan, H. (2009).
nationally, across 50 countries worldwide there is
The China puzzle: Falling happiness in a booming
a fairly consistent trend toward post-materialist economy. Journal of Happiness Studies, 10, 387405.
happiness as one moves from poor to rich socie- Bulmahn, T. (1996). Determinanten des subjektiven
ties (Delhey, 2010). However, a study on China Wohlbefindens. In W. Zapf & R. Habich (Eds.),
Wohlfahrtsentwicklung im vereinten Deutschland.
reminds us that economic institutions also play
Sozialstruktur, sozialer Wandel und Lebensqualit at
a role. Chinas transition to a capitalist economy (pp. 7996). Berlin: Edition Sigma.
has paved the way for a monetarization of hap- Campbell, A., Converse, P. E., & Rodgers, W. L. (1976).
piness (Brockmann, Delhey, Welzel, & Yuan, The quality of American life. Perceptions, evaluations,
and satisfactions. New York: Russel Sage Foundation.
2009, p. 403) a skyrocketing influence of finan-
Cummins, R. A. (1996). The domains of life satisfaction:
cial satisfaction on general life satisfaction, par- An attempt to order chaos. Social Indicators Research,
ticularly among urban Chinese. 38, 303328.
Cummins, R. A. (2003). Normative life satisfaction:
Measurement issues and a homeostatic model. Social
Indicators Research, 64, 225256.
Conclusion Cummins, R. A., Eckersley, R., Pallant, J., van Vugt, J., &
Misajon, R. (2003). Developing a national index of
Domain satisfactions have a lot to offer for better subjective wellbeing: The Australian unity wellbeing
index. Social Indicators Research, 64, 159190.
understanding overall happiness, in particular
Delhey, J. (2004). Life satisfaction in an enlarged Europe.
from a comparative perspective. One reason this Report for the European Foundation for the Improve-
potential has not been fully unleashed is the lack ment of Living and Working Conditions, Dublin.
Domestic Labor 1683 D
Delhey, J. (2010). From materialist to post-materialist Salvatore, N., & Munoz Sastre, M. T. (2001). Life
happiness? National affluence and determinants of appraisal: Area versus dimension conceptualiza-
life satisfaction in cross-national perspective. Social tions. Social Indicators Research, 53, 229255.
Indicators Research, 97, 6584. Saris, W. E. (2001). What influences subjective well-
Diener, E., Christine, K. N., Scollon, S. O., Dzokoto, V., & being in Russia? Journal of Happiness Studies, 2,
Suh, E. M. (2000). Positivity and the construction of 137146.
life satisfaction judgements: Global happiness is not Scherpenzeel, A., & Saris, W. E. (1996). Causal direction
the sum of its parts. Journal of Happiness Studies, 1, in a model of life satisfaction: The top-down/bottom-
159176. up controversy. Social Indicators Research, 38,
Easterlin, R. A., & Sawangfa, O. (2007). Happiness and 161180.
domain satisfaction: Theory and evidence. In Law and Van Praag, B., Frijters, P., & Ferrer-I-Carbonell, A. D
economics. Working Paper Series. University of (2003). The anatomy of subjective well-being. Journal
Southern California Law School. of Economic Behavior & Organization, 51, 2949.
Ferriss, A. L. (2004). The quality of life concept in Veenhoven, R. (2007). Measures of gross national happi-
sociology. The American Sociologist, 35, 3751. ness. In OECD (Ed.), Measuring and fostering the
Flanagan, J. C. (1978). A research approach to improving progress of societies, (pp. 232253). Paris: OECD
our quality of life. American Psychologist, 33, 138147. Publishing.
Fugl-Meyer, A. R., Branholm, I.-B., & Fugl-Meyer, K. S.
(1991). Happiness and domain-specific life satisfac-
tion in adult northern Swedes. Clinical Rehabilitation,
5, 2533.
Headey, B., & Wearing, A. (1992). Understanding happi- Domain Satisfaction in Romanian-
ness. A theory of subjective well-being. Melbourne: Hungarian Cross-Border Region
Longman Cheshire.
Headey, B., Veenhoven, R., & Wearing, A. (1991).
Top-down versus bottom-up theories of subjective Romanian-Hungarian Cross-Border Region,
well-being. Social Indicators Research, 24, 81100. Personal Well-Being Index
Heller, D., Watson, D., & Ilies, R. (2004). The role of
person versus situation in life satisfaction: A critical
examination. Psychological Bulletin, 130, 574600.
Hsieh, C. (2003). Counting importance: The case of life
satisfaction and relative domain importance. Social Domains of Qol in Older Adults
Indicators Research, 61, 227240.
Inglehart, R. (1997). Modernization and postmoder-
Facets of Quality of Life of Older Adults,
nization. Cultural, economic, and political change in
43 societies. Princeton: Princeton University Press. International View
Lance, C. E., Lautenschlager, G. J., Sloan, C. E., & Varca,
P. E. (1989). A comparison between bottom-up and
top-down, and bidirectional models of relationships
between global and life facet satisfaction. Journal of
Personality, 57, 601624. Domestic Chores
Lance, C. E., Mallard, A. G., & Michalos, A. C. (1995).
Tests of the causal directions of global-life facet satis- Housework Participation Measurement
faction relationships. Social Indicators Research,
34(1), 6992.
Michalos, A. C. (1985). Multiple discrepancies theory
(MDT). Social Indicators Research, 16, 347413.
Moller, V., & Saris, W. E. (2001). The relationship between Domestic Establishment
subjective well-being and domain satisfaction in South
Africa. Social Indicators Research, 55, 97114.
Rain, J. S., Lane, I. M., & Steiner, D. D. (1991). A current Household Composition
look at the job satisfaction/life satisfaction
relationship: Review and future considerations.
Human Relations, 44, 287307.
Rapley, M. (2003). Quality of life. A critical introduction.
London/New Delhi: Sage/Thousand Oaks.
Rojas, M. (2007). Life satisfaction and satisfaction in
Domestic Labor
domains of life: Is it a simple or a simplified relation-
ship? Journal of Happiness Studies, 7, 467497. Housework Participation Measurement
D 1684 Domestic Labor over a Decade

a serious crime (MacLeod, 1980). The redefini-


Domestic Labor over a Decade tion of wife abuse from personal tragedy to social
problem has its origins in the feminist movement
Womens Housework over a Decade in the late 1960s and early 1970s. The feminist
movements rallying cry the personal is
political opened all forms of womens subjuga-
tion to social and political analysis to reveal gen-
Domestic Violence der inequalities and demand reform. Violence
against women emerged as a central concern in
Jane Ursel the early 1970s when grassroots womens orga-
Department of Sociology, University of nizations were the first to establish emergency
Manitoba, MB, Canada shelters for abused women in all of the above
English-speaking countries (these countries
were selected for a variety of reasons including
Synonyms the fact that they all have a background in British
common law).
Family violence; Intimate partner violence; Because the issue of domestic violence
Spouse abuse emerged from the womens movement, initially
it focused exclusively on women who were
victimized by their male partner. However, by
Definition the 1980s, same-sexed couples were identifying
the same dynamics of power, control, and abuse
Domestic violence is defined as acts of physical, occurring in some of their relationships.
emotional, financial, and sexual abuse and They demanded inclusion in the language and
neglect that occur in relationships of intimacy, the design of services for victims of abuse. In
kinship, dependency, or trust among adults. Such the 1990s, the issue of male abuse by female
acts directed toward children would be defined as partners arose, and men who were victimized
child abuse ( Child Maltreatment: Sexual made similar demands. While the prevalence
Abuse; see also Dating Violence) and typically and the severity of abuse of men by female
fall outside of the concept of domestic violence. partners may be significantly different (Tutty,
Critics have observed that such a generic 1999), neither policy makers, service providers,
definition tends to de-gender a crime that is nor affected families would benefit from denying
more often perpetrated upon women by men; its existence. Thus, in many program and policy
for a discussion of this debate, see the entry contexts, the more generic term domestic
Violence Against Women below. The violence is used.
purpose of a broader definition allows inclusion By the 1980s, society was beginning to
of intimate partner relationships among same-sex acknowledge that domestic violence (DV) was
couples ( Same-Sex Partner Violence) and a serious social issue, and some specialized
includes those less frequent incidents of men programs, such as shelters and transition houses,
abused by their intimate female partner. started to receive government funding. In the last
25 years, societies responses to DV followed
a number of trajectories: (a) primary and second-
Description ary prevention, (b) intervention, and (c) domestic
violence death review committees. The category
Until the mid-1980s, wife abuse was perceived of primary prevention includes public education
in most English-speaking countries (North initiatives and school programs that typically
America, Australia, New Zealand, and the United provide two messages: first that interpersonal
Kingdom) as a personal tragedy rather than violence is damaging to all members of the
Domestic Violence 1685 D
family and secondly that it is a crime which will violates the order, they can be prosecuted in a
have serious consequences. Secondary preven- criminal court because they have violated a court
tion typically includes both residential (shelters) order.
and nonresidential counseling programs to assist Despite the expansion of social services and
individuals who have been victimized to avoid justice interventions, all of the jurisdictions cited
future victimization. These programs often above have experienced domestic homicides,
include legal advice, safety planning, and peer often homicide-suicide events (Stark, 2007).
support groups. This was brought dramatically to our attention
Intervention initiatives involve both legal and in North America by the journalist Brian Vallee D
social service programs. Crises social services, who calculated that in the United States, twice as
such as shelters and mobile crisis units, are many women were killed by their partner than all
designed to intervene on behalf of the victim at police officers and soldiers who died in action for
the time of the crisis, offering a range of services the period 20002006. In Canada, in the same
from safe transportation, safe housing, to crisis time period, the ratio was five to one; for every
counseling. Legal interventions typically involve police officer and soldier killed, five women were
criminal justice interventions, including arresting murdered by their partners (Vallee, 2008). Thus,
and charging the accused assailant and prosecut- the final responses we are seeing that emerge in
ing their cases in a criminal court. Since the early jurisdictions around the English-speaking world
1990s, many jurisdictions in North America, are domestic violence death review committees.
Australia, and the United Kingdom have These committees typically are formed under
introduced specialized domestic violence courts the auspices of the coroner or medical examiner
(Holder & Caruana, 2006; Stewart, 2005; Ursel, or the justice department, and they are often but
2000; Worden, 2000). In the United States, there not always legislatively mandated. The commit-
are now over 400 DV courts in operation, and in tee membership typically includes key actors in
Canada six of the ten provinces and one of the intervention process, such as police officers,
the three territories have such courts (Holder & prosecutors, victim service workers, and repre-
Caruana, 2006; Kelly et al., 2008; Ursel, Tutty, sentatives from nongovernmental agencies that
& LeMaistre, 2008). These specialized provide services to victims. The purpose of
courts typically hear all matters in designated these committees is to examine all of the condi-
courtrooms, often with specialized judges or tions surrounding a domestic homicide to learn
magistrates, and they include specialized prose- how they could have been prevented, in the hope
cutors and specialized victim service workers. that future DV homicides can be prevented.
The introduction of specialized courts is often Given this broad range of institutional
associated with an expansion in treatment responses, one might expect that the rate of
programs for offenders, either within the correc- reported domestic violence would decrease;
tional system itself or through increased funding however, this is not yet the case. While this is
to nongovernmental agencies providing offender the long-term goal, it may take us a generation or
treatment programs (Gondolf, 2002). A second more to see the result of these institutional
form of legal intervention occurs in the civil changes. We are clearly seeing changes in
justice system and takes the form of Protection peoples behavior as a result of growing aware-
Orders. Many jurisdictions in North America, ness of the destructiveness of domestic violence
Australia, and the United Kingdom have passed and the availability of support services. However,
civil legislation allowing individuals who are the form this often takes is to see a rise in calls to
fearful for their own safety and the safety the police, a rise in arrests, and an increase in
of their children to apply to have an order of no court cases, as well as an increase in shelter
contact and no communication issued to the per- utilization and attendance in counseling
son they fear (Alexander, 2002; Burton, 2006). programs. We can best appreciate this pattern
In most of these jurisdictions, if the respondent by considering how long families have been
D 1686 Domestic Violence

living with DV in silence, how endemic it is in and their service philosophy if they become
most societies, and how, now for the first time, dependent on government funding. However, in
when people call for help, they have a reasonable this current period of recession, there is greater
expectation of a more sympathetic and more concern about maintaining the government
effective response. Thus, for a generation of support their agencies currently have.
individuals who grew up in homes habituated by Another ongoing debate among feminists and
violence that was endured in silence, if not criminologists is whether engagement of the
condoned, their willingness to call for help and criminal justice system in domestic violence
seek solutions for their partners and themselves cases will do more harm than good (Snider,
should be seen as a major breakthrough. 1991). Critics of the criminal justice system
Increasing calls for help to the police, to point out that it is the poor and the racially
shelters, to friends, and to relatives is, in fact, marginalized who are more likely to be arrested
the pattern we are witnessing today. Seeking an and prosecuted for domestic violence offenses.
exit from interpersonal violence and its damaging Justice reformers and social service providers
intergenerational impact is a critical first step in counter that it is precisely these populations in
social change. Thus, it has been the experience of which victims have few if any sources of help
most jurisdictions that as new programs and other than the formal justice and social service
policies are introduced, greater reporting occurs, system. In Canada, for example, numerous victim
more arrests happen, and the volume of court surveys conducted by government and Aborigi-
cases increases. There are a number of interacting nal organizations alike all demonstrate that
factors that appear to propel this dynamic. First, Aboriginal women are three times more likely
as new programs are introduced and publicized, to be victimized than non-Aboriginal women
peoples awareness increases and they are more (Amnesty International, 2004). In Canadian cities
likely to seek help. For example, almost all juris- with a high population of people of Aboriginal
dictions that introduced specialized DV courts origin, the research reveals that Aboriginals
report an increase in arrests of twofold or more. accused are overrepresented by a factor of 3 in
This results from an interaction effect between the specialized DV courts (Ursel, 2006). In
the public that call the police and police policy addition there are debates about whether govern-
and behavior. Typically, when a specialized court ment should be spending scarce resources on
is introduced, police officials are consulted, and treatment programs for offenders. Are they
often police policy will be revised to ensure that effective? Does this funding divert funding from
when there are reasonable and probable victims program?
grounds that a crime occurred, officers will While the controversies will undoubtedly
charge and/or arrest the accused (Ursel, 2000). continue, these debates are pushing reformers
Thus, changes in one level of the justice system and critics alike to design better responses and
will provoke changes in other levels. This improve justice and social service policies
dynamic is reinforced by increased publicity (Payne, 2006). The one area of consensus today
about the specialized courts and/or rising arrest is that DV is a social not just a personal problem,
rates, resulting in more calls to the police. and we need the resources of society and the
political will of our leaders to prioritize this
Discussion issue for the health and benefit of all future
Within one generation there has been a massive generations. Thus, while the road ahead is
change in social services, justice programs, and difficult and we have many challenges, individ-
public attitudes in the countries included in this uals and legislators acknowledge that the
review, so it is not surprising that these changes problem exists. We all share in the responsibility
occurred amidst much controversy. There has to ensure the most fundamental human right:
been much debate in the past among feminist the right of all individuals to security in their
groups about what will happen to their services own home.
Dominant Social Paradigm 1687 D
Cross-References Ursel, J. (2006). Over policed and under protected:
A question of justice for Aboriginal women. In M. R.
Hampton & N. Gerrard (Eds.), Intimate partner
Partner Violence violence: Reflections on experience, theory, and policy
Violence Against Women (pp. 8099). Toronto, ON: Cormorant Books.
Ursel, J., Tutty, L., & LeMaistre, J. (Eds.). (2008). Whats
law got to do with it: The law, specialized courts and
References domestic violence in Canada. Toronto, ON:
Cormorant Press.
Alexander, R. (2002). Domestic violence in Australia, the Vallee, B. (2008). War on women. Toronto, ON: Key
legal response (3rd ed.). Sydney, Australia: The Porter Books. D
Federation Press. Worden, A. P. (2000). The changing boundaries of the
Amnesty International. (2004). Stolen sisters. Available criminal justice system: Redefining the problem and
online at www.amnesty.ca/resource_centre/reports/ the response in domestic violence. Criminal Justice,
view.php/load=archview&article=1895&c=Resource 2000(2), 215266.
+Centre+Reports
Burton, M. (2006). Judicial monitoring of compliance:
Introducing problem solving approaches to domestic
violence courts in England & Wales. International
Journal of Law Policy & the Family, 20(3), 366378. Domestic Work over a Decade
Gondolf, E. W. (2002). Batterer intervention systems:
Issues, outcomes, and recommendations. Thousand
Womens Housework over a Decade
Oaks, CA: Sage.
Holder, R., & Caruana, J. (2006). Criminal justice
intervention in family violence in the ACT. Report of
the Victims of Crime Coordinator, Canberra, Australia.
https://www.zotero.org/joycekwc/items/itemKey/JFGT
ZC69/tag/Family%20Violence%20Intervention%20
Dominant Current of Opinion
Program%20%28A.C.T.%29. Accessed April 2013
Kelly, L., Westermarland, N., & Regan, L. (2008). Mea- Climate of Opinion
sure for measure: What success might look like in
relation to criminal justice responses to domestic vio-
lence. Report to the London Criminal Justice Board,
London. Dominant Social Paradigm
MacLeod, L. (1980). Wife battering in Canada: The
vicious circle. Ottawa, ON: Canadian Advisory Coun- William Kilbourne
cil on the Status of Women.
Payne, J. (2006). Speciality courts: Current issues and
Department of Marketing, Clemson University,
future prospects (Trends and Issues). Canberra, Aus- Clemson, SC, USA
tralia: Australian Institute of Criminology.
Snider, L. (1991). The potential of the criminal justice
system to promote feminist concerns. In E. Comack
& S. Brickey (Eds.), The social basis of law
Synonyms
(pp. 238260). Halifax: Garamond Press.
Stark, E. (2007). Coercive control: How men entrap women Disciplinary matrix; Ideology; Institutions;
in personal life. New York: Oxford University Press. Worldview
Stewart, J. (2005). Specialist domestic/family violence
courts within the Australian context (Australian Domes-
tic and Family Violence Clearing House,
Issues Paper 10). Retrieved December, 2010, from Definition
http://www.austdvclearinghouse.unsw.edu.au/PDF%20
files/Issuespaper_10.pdf
Tutty, L. (1999). Husband Abuse: An overview of research
The term paradigm was first developed to explain
and perspectives. Family violence prevention unit, the development of science over the centuries. It
Health Canada, Ottawa, Canada. www.hc.gc.ca/nc- was later adapted to explain aspects of society
cn. Accessed April 2013. and how they work to maintain beliefs across
Ursel, J. (2000). Winnipeg family violence court report.
In Family violence in Canada: A statistical profile
time. The term was changed to dominant social
2000. Ottawa, ON: Canadian Centre for Justice Statis- paradigm, and, in this sense, it can be viewed as
tics/Statistics Canada. ideology or cultural institutions.
D 1688 Donation

Description one expects of these QOL dimensions becomes


a function of expectations created by the dimen-
The term dominant social paradigm (DSP) was sion of the DSP within a particular culture.
first used by (Pirages & Ehrlich, 1974) That is, QOL has a context in which it must
who described it as the collection of norms, be examined, and it would be fallacious to define
beliefs, values, habits, and so on that form the an abstract QOL without context. As a simple
world view most commonly held within example, the role of material possessions in
a culture. (Milbrath, 1984) expands this slightly QOL would vary dramatically between the USA
to include the social lens through which individ- and virtually any Middle Eastern country as
uals and groups interpret their social world. would the role of religion generally. Without
(Cotgrove, 1984), however, includes a political context, QOL can be completely ambiguous,
perspective when he argues that it is not neces- and the DSP helps to provide that context.
sarily the majority of individuals within a society
who maintain beliefs within the paradigm that
makes it dominant. Rather, it is held by dominant Cross-References
groups in society whose interest is best served by
maintenance of the DSP. This makes the DSP Consumption
political ideology in that it is used to legitimate Institutions
and justify prevailing institutions that serve the Subjective Well-being
interests of the dominant groups. This also serves Values
to justify social and political action for the dom-
inant groups. Any actions carried on within the
DSP are accepted as legitimate and supported by References
the members of society at large, and they require
no further examination or critique. Thus, the DSP Cotgrove, S. (1984). Catastrophe or cornucopia: The
environment, politics, and the future. New York:
also functions as ideology. (Kuhn, 1996), who
Wiley.
popularized the term paradigm, later preferred Kilbourne, W., & Beckmann, S. (2002). Rationality and
the term disciplinary matrix as the original the reconciliation of the DSP with the NEP. In
use of paradigm was too ambiguous. Others S. Beckmann & E. Madsen (Eds.), Environmental
regulation and rationality: Multidisciplinary perspec-
later criticized the concept of a paradigm arguing
tives. Aarhus, Denmark: Aarhus University Press.
that it contained too many contradictions. These Kuhn, T. (1996). The structure of scientific revolutions.
criticisms notwithstanding, the DSP serves as Chicago: Chicago University Press.
a convenient way to frame discussions of quality Milbrath, L. (1984). Environmentalists: Vanguards for
a new society. Albany: State University of New York
of life (QOL) and other domains such as values, Press.
the environment, and globalization as well. Pirages, D., & Ehrlich, P. (1974). Ark II: Social response
(Kilbourne & Beckmann, 2002) argue that the to environmental imperatives. San Francisco:
DSP consists of three socioeconomic dimensions. Freeman.
These are the political, economic, and technolog-
ical and, within Western industrial societies, the
DSP has been in development since the Enlight- Donation
enment. It is within this framework that QOL can
be examined. How one defines QOL depends, to Prosocial Behavior
a large extent, on the DSP in which they live and
function on a day-to-day basis. The DSP serves as
the background within which the good life is
defined. While QOL is itself ambiguous, some of Dordrecht
its dimensions include economic (role of wealth),
work (technology), and freedom (political). What Drechtsteden
Double-Blind Design 1689 D
beliefs or expectations about treatments.
Double-Blind Design Blinding, that is, keeping all those involved
in the trial unaware of the assigned treatment,
Petros Skapinakis minimizes the risk of information bias. For
Department of Psychiatry, University of Ioannina example, in a meta-analysis of trials that
School of Medicine, Ioannina, Greece compared a statin drug (used to lower cholesterol
levels) to other statin drugs, the investigators
reported that trials with inadequate blinding
Synonyms were more likely to overestimate the results, D
thus favoring the test drug (Bero, Oostvogel,
Double-masked design Bacchetti, & Lee, 2007).
There are other advantages of blinding. In the
case of double blinding, these include (Schulz &
Definition Grimes, 2002):
(a) For the participants: less prone to self-sug-
In experimental studies, subjects are assigned to gestion, more likely to comply with treat-
two or more groups (e.g., the intervention and ments, less likely to take adjunct treatments,
control groups). The term double blind implies and more likely to complete the trial
that both the subjects and the observers do not (b) For the trial investigators: less likely to dif-
know the group the subjects are assigned to and ferentially adjust (e.g., increase) the dose,
therefore whether subjects have received the less likely to withdraw patients from the
intervention or not. trial for noneffectiveness or side effects, and
less likely to differentially administer addi-
tional treatments
Description It is generally accepted that double blinding
is more important in trials that use subjective
A double-blind design is often used in clinical outcomes as their primary outcome. Such
trials, especially randomized controlled trials. trials are commonly carried out in the fields of
The aim of this experimental design is to evaluate psychiatry, pain medicine, and quality of life
the effectiveness of a new treatment compared to research.
the standard treatment, usual care, or no treat- It is possible to assess whether blinding has
ment at all (e.g., a placebo pill). Eligible subjects been successful after the completion of the trial
who agree to participate are randomly allocated by asking both investigators and participants to
to two or more groups, one of which is the control guess the intervention used. It has been shown
group. Subjects are then followed up for that sometimes it is easy to guess the intervention
a specified period of time, and then the outcome if, for example, there is a specific pattern of
is compared between groups. side effects, for example, sleepiness or fatigue,
One of the main aims of blinding is to reduce associated with only one drug.
measurement (or information) bias. This is a type Although it is desirable that all trials should be
of systematic error that can alter the results of blinded, there are interventions that cannot
a trial. For example, researchers who think that be double blinded (e.g., surgical trials) or even
the new treatment is better than the standard single blinded (e.g., psychotherapy trials).
treatment may overestimate the effect of the
new treatment or underestimate the effect of
the standard treatment. In addition, when subjec-
tively measured outcomes are used (e.g., health- Cross-References
related quality of life), the subjects may be
influenced in their judgments according to their Control Groups
D 1690 Double-Masked Design

References body cells attached to group 21; in some, it is


translocated to another chromosome group and
Bero, L., Oostvogel, F., Bacchetti, P., & Lee, K. (2007). parents can be carriers; and in others, it exists in
Factors associated with findings of published trials of
the mosaic form with an extra chromosome in
drug-drug comparisons: Why some statins appear
more efficacious than others. PLoS Medicine, 4(6), some cells/systems and in varying amounts. It
e184. occurs equally in all races, socioeconomic
Schulz, K. F., & Grimes, D. A. (2002). Blinding in groups, and both genders. Risk increases with
randomised trials: Hiding who got what. Lancet, 359,
maternal age, and the reports of incidence vary
696700.
between 1 in 600 and 1 in 1,100 births, depending
on social factors, for example, birth control,
mothers delaying starting a family, and prenatal
Double-Masked Design care and screening.
The common characteristics are intellectual
Double-Blind Design disability (ID) and learning difficulties, physical
differences, increased health risks and medical
problems (e.g., heart, hearing, vision, thyroid and
metabolism, immune deficiency), early aging, and
Doubt Alzheimers disease. Some children have dual
diagnoses such as autism or attention deficit and
Anxiety hyperactive disorder. Around a quarter of adults
have mental health problems (e.g., McGuire &
Chicoine, 2006), the most common being depres-
Down Syndrome sion and/or challenging behavior which is corre-
lated with lower levels of functioning and
Cliff Cunningham1 and Roy I. Brown2,3,4,5 psychopathology in childhood (McCarthy, 2008).
1
Liverpool, Merseyside, UK However, not all people with DS have medical
2
University of Calgary, Calgary, AB, Canada and health problems or major learning difficul-
3
Flinders University, Bedford Park, SA, ties. There is an enormous range of individual
Australia differences in cognitive, social, personality, and
4
University of New England, Madgwick, NSW, physical attributes. For example, both measured
Australia intelligence and height, while on average lower
5
School of Child and Youth Care, University of than the typical population the distribution is
Victoria, Victoria, BC, Canada very wide; some individuals struggle to establish
a simple vocabulary, while others pass school
examinations and attend advanced courses;
Synonyms many lack initiative and have limitations in
incidental learning, while others demonstrate
Down Syndrome: Developmental disability, exceptional creative skills in art, music, and
Intellectual disability; Quality of Life: Life drama and are socially adept and independent;
satisfaction, Well-being some struggle with physical coordination, and
others become athletes (Cunningham, 2006).
Thus, establishing representative samples and
Definition data is difficult, and the literature abounds with
questionable generalizations about the syndrome.
Down Syndrome
Down syndrome (trisomy 21) results from an Quality of Life
extra (or part of) chromosome 21. Over 90 % of Quality of life is a multifaceted and sensitizing
individuals have the extra chromosome in all concept inclusive of all lifes domains material
Down Syndrome 1691 D
well-being, health, productivity, community to a more pervasive social perspective emphasiz-
living, family interaction, emotional well-being ing equal rights and inclusion, the range of
and a wide range of other factors such as intimacy, individual differences, positive expectations
safety, and human rights (e.g., Goode, 1994; and aspirations, and ensuring opportunities for
Parmenter, 1992; Schalock et al., 2002). People individual development. This shift was part of
experience a better QoL when their basic needs general changes in democratic processes
are met, and they have opportunities to pursue and empowering parents and families to effect
achieve goals in major life settings (Brown & societal attitudes and beliefs, and government
Brown, 2003), which themselves are dependent policies through DS Associations and positive D
not only on economic factors but on the perspec- media reporting. Such changes and attitudes are
tives of DS in local communities and the larger well documented in research and testimony, often
society. The principles and concepts of QoL have starting, for example, with parents taking their
been the basis of several tools, now available, children with Down syndrome out and about
which can be used for assessing need and changes and fighting for inclusion (e.g., Gaad, 2006)
and, therefore, setting and auditing policy and actions that involve little cost. As for typical
improving QoL for individuals (Australian Centre individuals, those with Down syndrome benefit
on Quality of Life, 2013; Thompson et al., 2004). from being members of caring and supportive
families in environments that provide opportuni-
ties to learn and engage with others. The majority
Description reside in the family home well into adulthood.
Despite advances, individual and family QoL
The DS population offers the largest numbers of a remains lower on average than for typical
specific chromosomal disorder with a wide range families (Brown, MacAdam-Crisp, Wang et al.,
of variability resulting from the interaction 2006), although generally higher than those with
between typical genetic factors, the additional major behavior challenges such as autism
chromosomal material, and the environment. (Myrbaleck & Von Tetzenner, 2008). Even in
This makes it particularly advantageous for countries where early support and inclusion is
systematic QoL assessment procedures provided for children, aspects of quality of life
(qualitative and quantitative). Furthermore, the do not carry forward into services for many adults
pertinence of current models of QoL, even in who frequently experience a narrow range of
poorly resourced countries, is illustrated in the leisure and employment opportunities and a
changes in lifestyle for people with Down continuing dependence on family caregivers
syndrome and their families. (e.g., Bertoli, Biasini, Calignano et al., 2011;
QoL for individuals with Down syndrome has Thompson, Ward, & Wisehart, 1995) a
improved in line with improvements in the general disappointing outcome after years of improved
standard of living and health care in many coun- education that reflects a lack of planning for
tries. In addition, increasing focus on syndrome- the future and lifespan policies. Furthermore,
specific issues associated with health and medical children and adults with DS living in socially
needs, education, and family support from the first deprived areas generally do not show the
days of life through the lifespan has had a major advances seen in well-resourced families
impact. Life expectancy has also increased and those with duel diagnoses, and challenging
averaging around 20 or so years behind typical behavior often remain unsupported with a lack of
survival rates, and with it challenges for the QoL appropriate intervention. For many years, reports
of individuals and their families, especially par- describe significant numbers of parents not
ents who are themselves aging (Janicki, Zendell, engaging with or dropping out of service support
& DeHaven, 2010; Jokinen & Brown, 2010) . (e.g., early intervention) and parent associations
Improvements typically followed a radical and groups (e.g.. Barlow & Stewart-Brown,
shift away from a dominant medical perspective 2001), highlighting the need for family-focused
D 1692 Down Syndrome

intervention and QoL (e.g., Turnbull, Brown, & society and opportunities for learning personal
Turnbull, 2004). The most consistent demand skills to deal with such issues (Cunningham &
over the years by families has been for respite Glenn, 2004).
care (e.g., Wang & Brown, 2009).
From late childhood, more and more Discussion
individuals with DS become isolated from Accepting a QoL focus implies that governments
peers; friendships falter, and by adulthood, a and statutory and voluntary services lay out pol-
majority reside at home with aging parents and icies in line with the concepts and principles
depend on their family for a social life. Friend- involved (see Schalock et al. (2002). To audit
ship and relationships are critical for QoL and effectiveness and develop policies, measurable
present major challenges for people with ID outcomes and tools are required. These tools
and their carers (e.g., McVilly, Stancliffe, must enable individuals and family members to
Parmenter, & Burton-Smith, 2006). Exception- express their needs and satisfactions, and make
ally, some people with DS do form partnerships choices, which can then be explored and
and marry (Brown, 1996), and, as for most supported, in a structured fashion. As noted
people, friendship and partnerships, occupation, above, several tools are available for measuring
and independence promote self-image and QoL. Also, person-centered planning (PCP)
feelings of self-worth. Overall, policy and (Cambridge & Carnaby, 2005) provides ways of
structures providing opportunities for leisure, managing individual needs and meeting aspira-
meeting others, employment, and choice of tions. Research is supporting the effectiveness of
residence are still a major challenge for most the approach (e.g., Claes, Van Hove, Vandevelde,
societies. Loon, & Scalock, 2010; Emerson, Malam, Davies,
Carr (2008) concluded from a 40-year follow- & Spencer, 2005) and has been adopted in many
up of her London cohort that parents and siblings countries in line with valuing people policies and
generally experienced a reasonable level of evidence-based planning. Like the principles of
adjustment and well-being similar to families the QoL work, the primary philosophy behind
whose adult children had no disabilities. PCP is that systems should be responsive to indi-
However, given the rapid changes in economic vidual needs and not prescriptive.
and social factors within communities, constant
audit of family QoL is needed. Recent changes in
the need for parents to work and the generally
Cross-References
busier lifestyle impact on well-being. When
offspring require high levels of care and supervi- Intellectual Disability (ID)
sion carers are at risk for psychological well-being
Satisfaction
particularly when they also support a disabled
Self-esteem
child (e.g., Bourke et al., 2008). Well-Being
The few studies that have examined self-worth
and satisfaction generally report that most
young adults with DS are content and feel valued
(e.g., Glenn & Cunningham, 2001). The young References
people who fall in the upper half of the intellec-
tual ability levels of the DS population usually Australian Centre on Quality of Life, http://www.deakin.
become aware of DS, and that they have DS, and edu.au/research/acqol/instruments/instrument.php.
Accessed 30 March 2013.
about half of these have greater risk for
Barlow, J., & Stewart-Brown, S. (2001). Understanding
experiencing stigma and mental difficulties. parenting programmes parent views. Primary Health
The challenges for QoL involve changes in Care Research and Development, 2, 1171302.
Down Syndrome 1693 D
Bertoli, M., Biasini, G., Calignano, M. T., Celani, G., the quality of life of people with intellectual disabil-
De Grossi, G., Digilio, M. C., Fermariello, C. C., ities: From theory to practice (pp. 279304). London:
Loffredo, G., Luchino, F., Marchese, A., Mazotti, S., Springer.
Menghi, B., Razzano, C., Tiano, C., Zambon Hobart, A., McCarthy, J. (2008). Behaviour problems and adults
Zampino, G., & Zuccala, G. (2011). Needs and with Down syndrome: Childhood risk factors.
challenges of daily life for people with Down Journal of Intellectual Disability Research, 52,
syndrome residing in the city of Rome. Journal of 877882.
Intellectual Disability Research, 55(8), 802820. McGuire, D., & Chicoine, B. (2006). Mental wellness in
Bourke, J., Ricciardo, B., Bebbingtom, A., Alberti, K., adults with down syndrome: A guide to emotional and
Jacoby, P., Dyke, P., et al. (2008). Physical and mental behavioural strengths and challenges. Bethesda,
health in mothers of children with Down syndrome. USA: Woodbine House. D
The Journal of Pediatrics, 153, 320326. McVilly, K. R., Stancliffe, R. J., Parmenter, T. R., &
Brown, I., & Brown, R. I. (2003). Quality of life and Burton-Smith, R. M. (2006). I Get by with
disability: An approach for community practitioners. a little help from my friends: Adults with
London: Jessica Kingsley Publishers. intellectual disability discuss loneliness. Journal of
Brown, R. I. (1996). Partnership and marriage in Down Applied Research in Intellectual Disabilities, 19,
syndrome. Down Syndrome Research and Practice, 191203.
4(3), 9699. Myrbaleck, E., & Von Tetzenner, S. (2008). The preva-
Brown, R. I., MacAdam-Crisp, J., Wang, M., & Iarocci, G. lence of behaviour problems among people with
(2006). Family quality of life when there is a child intellectual disability living in community settings.
with a developmental disability. Journal of Policy Journal of Mental Health Research in Intellectual
and Practice in Intellectual Disabilities, 3(4), Disabilities, 1(13), 205222.
238246. Parmenter, T. R. (1992). Quality of life of people with
Cambridge, P., & Carnaby, S. (2005). Person centred developmental disabilities. In N. W. Bray (Ed.),
planning and care management with people with International review of research in mental
learning disability. London: Jessica Kingsly retardation (Vol. 18, pp. 247287). New York:
Publishing. Academic Press.
Carr, J. (2008). Families of 40 year olds with Down Schalock, R. L., Brown, I., Brown, R. I., Cummins, R. A.,
syndrome. Journal of Developmental Disabilities, Felce, D., Matika, L., et al. (2002). Conceptualization,
14(2), 3543. measurement and application of quality of life for
Claes, C., Van Hove, G., Vandevelde, S. N., Loon, J., & persons with intellectual disabilities: Report of an
Scalock, R. (2010). Person-centered planning: international panel of experts. Mental Retardation,
Analysis of research effectiveness. Intellectual and 40(6), 457470. Based on a report for and recognized
Developmental Disabilities, 48(6), 432453. by the World Health Organization.
Cunningham, C. C. (2006). Down syndrome: An Thompson, J. R., Bryant, B. R., Campbell, E. M., Craig,
introduction for parents and carers. London: Souvenir E. M., Hughes, C. M., Rotholz, D. A., et al. (2004).
Press. Supports Intensity Scale.. Washington, DC: American
Cunningham, C. C., & Glenn, S. (2004). Self awareness in Association on Mental Retardation.
young adults with Down syndrome. International Thompson, K., Ward, K., & Wisehart, J. (1995). The
Journal of Disabilities, Development and Education, transistion to adulthood for children with Down syn-
51(4), 335361. drome. Disability & Society., 10, 325340.
Gaad, E. (2006). The social and educational impacts of the Turnbull, A. P., Brown, I., & Turnbull, H. R. (2004).
first national Down syndrome group in UAE. Journal Family quality of life. Washington, DC: American
of Research in Special Educational Needs., Association of mental retardation.
6, 134142. Wang, M., & Brown, R. I. (2009). Family quality of life:
Glenn, S., & Cunningham, C. C. (2001). Evaluation of self A framework for policy and social service provisions
by young people with Down syndrome. International to support families of children with disabilities.
Journal of Disability, Development and Education, Journal of Family Social Work, 12(2), 144167.
48, 163177.
Goode, D. A. (Ed.). (1994). Quality of life for persons with
disabilities: International perspectives and issues. Further Reading
Cambridge, MA: Brookline. Brown, I., & Brown, R. I. (2009). Choice as an aspect of
Janicki, M. P., Zendell, A., & DeHaven, K. (2010). Coping quality of life for people with intellectual disabilities.
with dementia and older families of adults with Down Journal of Policy and Practice in Intellectual
syndrome. Dementia, 9(3), 391407. Disabilities., 6(1), 1118.
Jokinen, N., & Brown, R. I. (2010). Family quality of Brown, R. I. (1994). Down syndrome and quality of life:
life and older-aged families of adults with an Some challenges for future practice. Downs
intellectual disability. In R. Kober (Ed.), Enhancing Syndrome Research and Practice, 2(1), 1930.
D 1694 Down Under

Brown, R. I. (1998). The effects of quality of life models


on the development of research and practice in the field Downward Comparison Theory
of Down Syndrome. Down Syndrome Research and
Practice, 5, 3942.
Brown, R. I. (Ed.). (20042008). Adults with Down Relative Deprivation Theory
syndrome series. Portsmouth, UK: Down syndrome Social Comparison Theory
Educational Trust.
Brown, R. I. (2009). Friendship for people with Down
syndrome (parts 1 & 2). Burnaby, BC: Hand in Hand.
Down Syndrome Research Foundation, Summer
13, Fall, 13.
Carr, J. (1995). Downs Syndrome: Children Growing Up. DPRS
Cambridge: Cambridge University Press.
Down Syndrome Education International. http://www.
dseinternational.org Derogatis Psychiatric Rating Scale (DPRS)
Emerson, E., Malam, S., Davies, I., & Spencer, K. (2005).
Adults with learning difficulties in England 2003/2004.
Leeds, UK: UK National Statistics; Health and Social
Care Information Centre.
Hassold, T. J., & Patterson, D. (1999). Down syndrome: DQoL
A promising future together. Chichester, UK:
Wiley-Liss. Dementia Quality of Life Instrument
Matthews, B., Brown, R. I., & Taylor, J. (1999).
Quality of life - ageing and Down syndrome.
DownSyndrome: Research and Practice, 6(3),
111118.
National Down Syndrome Society. http://www.ndss.org/ Drainage Area
index.php?optioncom_content&viewarticle&id240
:recreation-and-friendship-resource-list&catid75:recrea
tion-a-friendship Watershed(s)
Parmenter, T. R. (1996). The utility of quality of life as
a construct for social and health policy development.
In R. Renwick, I. Brown, & M. Nagler (Eds.), Quality
of life in health promotion and rehabilitation
(pp. 89103). New York: Sage. Drainage Basin
Parmenter, T. R. (2004). Family quality of life: Implica-
tions for policy. In A. Turnbull, R. Turnbull, & Watershed(s)
I. Brown (Eds.), Disability and the family: An interna-
tional perspective on family quality of life
(pp. 263296). Washington, DC: American
Association on Mental Retardation.
Pueschell, S. M. (2006). Adults with Down syndrome. Drama
Baltimore: Brookes.

Arts and Quality of Life

Down Under
Drawing
Australia, Quality of Life
Arts and Quality of Life

Downward and Upward Mobility Dread

Occupational Mobility Anxiety


Drechtsteden 1695 D
About 25 % of the inhabitants are not older than
Drechtsteden 23 years old, 56 % are between 23 and 65 years old,
and 16 % are 65 or older. These figures are more or
Jeroen Boelhouwer less the same as the average Netherlands figures.
The Netherlands Institute for Social Research| About one third of the households are
SCP, The Hague, The Netherlands two-xperson households without children, 30 %
are couples with children, and about 30 % are
single-person households. In Drechtsteden the
Synonyms two-person households are a little overrepresented. D
About 80 % of the inhabitants are indigenous,
Dordrecht 12 % are non-Western immigrants, and 8 % are
Western immigrants. This also is about the Dutch
average.
Definition The previous social report was published in
2005 and was called Factsheet Social State of
Dordrecht is a city in the Dutch province South Dordrecht 2005. The factsheet gave insight in
Holland and is located about 65 km south of the participation and life situation of inhabitants
Amsterdam, the capital city of the Netherlands. of Dordrecht.
Dordrecht is part of the conurbation The majority of Dordrechts inhabitants are
Drechtsteden. participating in one way or another and have
adequate social contacts. The percentages that
do volunteer work (more than 40 %) are the
Description same as in the Netherlands as a whole.
A small percentage has inadequate social
Dordrecht has 118.906 inhabitants (1 April 2011) contacts among whom relatively more ethnic
and is part of the conurbation Drechtsteden minorities, elderly, one-person households, and
which has about 280,000 inhabitants (if counted people with a low socioeconomic status.
together, this would be the 9th largest city of the The life situation of Dordrecht is looked at by
Netherlands). means of the life situation index of the Netherlands
In 2009 Dordrecht published a social report Institute for Social Research | SCP. This index
called The State of the Drechtsteden 2008 integrates eight important life domains: health,
(Onderzoekscentrum Drechtsteden, 2009). This housing, participation in sports, social participa-
report was an outcome monitor which was tion, sociocultural leisure activities, ownership of
intended to give policymakers and others insight durable consumer goods, holidays, and mobility
in how much of the policy efforts resulted in the (see life situation index and Boelhouwer, 2010).
desired outcomes. In that way, the monitor gave Dordrechts life situation is better than the
important input for the evaluation of government Dutch average (see the table below).
policy and, if necessary, adjusting it. Between 2003 and 2005 the life situation of
In the report, a number of important life Dordrecht remained more or less the same,
domains are covered: demography, economy though for some groups the situation improved
and employment, accessibility, living environ- (Table 1). This was especially true for the disad-
ment, youth, and education. vantaged groups. The life situation in Dordrecht
The average, standardized, household income was in 2005 a bit better than the Dutch average
is 23,000 euros, and 9 % of the households have an (104 versus 102).
income below the social minimum income. The There are no more recent figures than 2005.
income distribution of Drechtsteden is the same as Since 2008, there have been no comprehensive
the income distribution in the Netherlands. There social monitors, but reports, for instance, on core
are a bit less unemployed people in Drechtsteden. indicators, on integration, and on participation.
D 1696 Drinking Water

Drechtsteden, Dordrecht Dordrecht The Netherlands The Netherlands


Table 1 Life situation 2003 2005 2002 2004
index scores for Dordrecht
and the Netherlands Men 104 104 103 102
Women 101 104 101 101
1824 years old 104 106 107 105
2534 years old 104 104 105 106
3544 years old 106 109 106 106
4554 years old 104 106 105 105
5564 years old 101 105 101 102
6574 years old 94 99 94 96
75 years or older 88 89 77 79
One-person household 93 94 90 93
Couple without child 102 105 102 103
(ren)
Couple with child(ren) 108 107 107 106
Single parent 95 100 97 98
Lower education 85 89 87 84
Lower secondary school 93 96 97 97
Secondary school 100 101 104 100
Higher secondary school 104 105 105 104
Higher education 110 110 109 110
Has a paid job 106 108 107 107
Has no paid job 96 98 93 94
Average overall 103 104 102 102
Source: Factsheet Social State Dordrecht, 2005

References Definition

Boelhouwer, J. (2010). Wellbeing in the Netherlands. The Drinking water is freshwater intended for human
SCP life situation index from 1974. The Netherlands:
consumption through activities such as drinking,
The Hague SCP Publication 201017.
Factsheet Social State Dordrecht 2005. (2006). Sociaal cooking, or bathing. Water is considered to be
Geografisch Bureau. Gemeente Dordrecht: Jade Schiff safe for consumption when there is a low risk of
and Marga Weide. immediate or long-term harm as a result of its
Onderzoekscentrum Drechtsteden. (2009). The State of
use. Drinking water is critical to the assurance of
the Drechtsteden 2008
human health and well-being. Without access to
safe drinking water, life itself cannot exist.

Drinking Water Description

Megan Kot To survive, the average human living in typical


Dalhousie University, Halifax, NS, Canada temperate climates requires three liters of water
per day for basic fluid replacement. As tempera-
ture or level of activity increases, so too does the
Synonyms volume of water one requires (Gleick, 1996).
However, no amount of water is adequate
Potable water for human survival if that water is not safe.
Drinking Water 1697 D
Thus, drinking water is water of a certain quality, point, making it difficult to locate and as a result
one that is capable of preventing the spread of often costly to address (Meays et al., 2004). In
waterborne illness among human populations. other instances, technological barriers (including
cost, or availability of certain technologies) may
Water and Health prohibit the identification and removal of partic-
The importance of safe drinking water to quality ular contaminants (Shannon et al., 2008). While
of life cannot be underestimated. Globally, water- not always the case, contamination of water
borne disease is a major cause of illness and resources may result in an outbreak of waterborne
mortality. Diarrhea is the leading cause of illness illness among human populations. These can D
and death worldwide, and 88 % of diarrheal have a significant impact on quality of life due
deaths are attributable to a lack of access to ade- to associated human and financial costs (Risebro
quate and safe drinking water and sanitation et al., 2007). Interestingly, outbreaks are rarely
facilities (Joint Monitoring Program [JMP], unique in their causes and often occur for very
2012). Although largely regarded as an issue for simple and similar reasons. Complacency (Woo
the developing countries, developed nations too & Vicente, 2003; Summerill, Pollard, & Smith,
experience the consequences of waterborne dis- 2010), a lack of hindsight (Hrudey, 2011), and the
ease. This is despite the presence of increasingly absence of foresight have left many systems
stringent regulations (Hrudey, Hrudey, & Pol- unable to adapt and to implement lessons learned
lard, 2006; Levin et al., 2002; Roberson, 2011). from past outbreaks (Craun, Craun, Calderon,
For example, in the United States and in Canada, & Beach, 2006; Hrudey, Payment, Huck,
it is estimated that one-third of illnesses resulting Gillham, & Hrudey, 2003; Logsdon, Schneider,
in diarrhea may be attributed to drinking & Budd, 2004).
water and that this can occur even when a
drinking water utility is in compliance with appli- Water Treatment
cable water quality regulations (Younes & Bar- The process by which water is altered so that it
tram, 2001). can be considered safe for human consumption is
The role of drinking water in the transmission called water treatment. The World Health Orga-
of disease has not always been understood. nization (WHO) regularly publishes guidance
A defining moment in water research occurred in documents on water contamination, human
1854 with an outbreak of cholera in London, health, and water treatment processes and is rec-
England. Here, a young physician by the name of ognized as a leading authority on water quality
John Snow was able to determine that the majority issues (WHO, 2010). Although the recommenda-
of deaths from cholera were attributable to water tions within these guidance documents are
being drawn from a pump located on Broad Street. nonenforceable, they highlight important trends
The pump was decommissioned, and deaths in the and emerging concerns related to water quality
area sharply decreased. Later investigation would which regulators can then incorporate into their
show the pump had been drawing water from own management framework. Broadly, the WHO
a section of the Thames River located adjacent identifies microbiological contamination, disin-
to an old, leaking cesspool (Paneth, Vinten- fection, chemical, physical, and aesthetic aspects
Johansen, Brody, & Rip, 1998). The approach the most important areas of concern for
used by Dr. Snow to investigate the dispersion of ensuring the safety of any drinking water supply
cholera around the Broad Street pump area would (WHO, 2010).
give rise to the fields of medical geography
and epidemiology (Koch, 2004; McLeod, 2000). Addressing Major Challenges
Research on how water resources become con- It is recognized that smaller communities face
taminated and how such contamination can be some of the greatest challenges in achieving
safety and cost-effectively removed is ongoing. safe drinking water (Brown, 2004; Huck &
In many cases the source of pollution is non- Coffey, 2004) and that globally this presents
D 1698 Drinking Water

a significant problem. Small communities lack Ensuring and maintaining access to a safe sup-
economies of scale, experience a reduction in ply of drinking water remains a considerable chal-
population size due to outmigration, and are lenge worldwide both now, and in the coming
often remotely situated. These factors render decade. A changing climate, population growth
small communities less capable of supplying and demands for water from agriculture and
safe drinking water than larger centers (Jocoy industry, new sources and types of contamination,
2001). To resolve this gap, small communities all pose a significant threat to existing, finite,
require cost-effective solutions to address freshwater resources (Shannon et al., 2008). To
a range of water treatment and delivery chal- address this challenge, innovation, cooperation,
lenges (Jayanty, Ziegler, & Ernest, 2008). Regu- and action, is required.
lators must also be aware of the challenges
stringent regulatory requirements pose within
resource-constrained communities and provide Cross-References
suitable alternatives or assistance so as to avoid
unintended and often undesirable consequences Composite Water Quality Index
(Levin et al., 2002; Riley, Gerba, & Elimelech, Environment and Health
2011; Kot et al., 2011). Rural Life, Quality of
While all drinking water supply systems vary,
there are a number of similarities. Typically
a system consists of a catchment or source area, References
a method of treatment, a distribution system, and
Bartram, J., Corrales, L., Davison, A., Deere, D., Drury,
an end point (the consumer). When source water
D., Gordon, B., et al. (2009). Water safety plan man-
is of a high quality, it is less costly to treat as ual: Step-by-step risk management for drinking-water
fewer contaminants must be removed. As such, suppliers. Geneva: World Health Organization.
source water protection (i.e., preventing contam- Brown, C. E. (2004). Making small water systems strong.
Journal of Contemporary Water Research & Educa-
ination from entering the supply) is viewed as the
tion, 128, 2730.
best method for maintaining water quality and Craun, G. F., Craun, M. F., Calderon, R. L., & Beach, M. J.
ensuring human health (Sylvestre & Rodriguez, (2006). Waterborne outbreaks reported in the United
2008; Timmer, de Loe, & Kreutzwiser, 2007). States. Journal of Water and Health, 04(Suppl 2),
1929.
Because not all source waters can be protected
Gleick, P. H. (1996). Basic water requirements for human
(i.e., if the source is a river) and because the activities: Meeting basic needs. Water International,
potential for contamination exists throughout a 21, 8392.
drinking water supply, a multiple barrier Hrudey, S. E. (2011). Safe drinking water policy for Can-
ada turning hindsight into foresight. Toronto: C.D.
approach is increasingly recognized as the best
Howe Institute, Commentary No. 323.
management approach for water systems of all Hrudey, S. E., Hrudey, E. J., & Pollard, S. J. T. (2006).
sizes (Sinclair and Rizak 2004; Bartram et al., Risk management for assuring safe drinking water.
2009; Plummer et al., 2010). A multiple barrier Environment International, 32(8), 948957.
Hrudey, S. E., Payment, P., Huck, P. M., Gillham, R. W.,
approach to safe drinking water is comprehen-
& Hrudey, E. J. (2003). A fatal waterborne disease
sive, considers risks posed to water supplies from epidemic in Walkerton, Ontario: Comparison with
source to consumer, accounts for present and other waterborne outbreaks in the developed world.
potential threats to quality, establishes multiple Journal of the International Association on Water
Pollution Research, 47(3), 714.
barriers as monitoring points throughout Huck, P. M., & Coffey, B. M. (2004). The importance of
a system, and requires training and certification robustness in drinking-water systems. Journal of Tox-
of drinking water operators, among other factors icology and Environmental Health. Part A, 67(2022),
(IWGDW, 2005; Rizak et al., 2003). Develop- 15811590.
IWGDW. (2005). Guidance for providing safe drinking
ment and maintenance of such an approach, often
water in areas of federal jurisdiction version 1,
referred to as a water safety plan, requires con- Interdepartmental Working Group on Drinking
siderable coordination between stakeholders. Water. August 23.
Dropout Rates 1699 D
Jayanty, S. C., Ziegler, U. M., & Ernest, A. N. (2008). Roberson, J. A. (2011). Whats Next after 40 years of
A rule-based expert system framework for small water drinking water regulations? Environmental Science &
systems: Proof-of-concept. Civil Engineering and Technology, 45(1), 154160.
Environmental Systems, 25(2), 8197. Shannon, M. A., Bohn, P. W., Elimelech, M., Georgiadis,
Jocoy, C. L. (2001). Who gets clean water? Aid allocation J. G., Marinas, B. J., & Mayes, A. M. (2008). Science
to small water systems in Pennsylvania. Journal of the and technology for water purification in the coming
American Water and Wastewater Resources Associa- decades. Nature, 452(7185), 301310.
tion, 36(4), 811821. Sinclair, M., & Rizak, S. (2004). Drinking-water quality
Joint Monitoring Program [JMP]. (2012) WHO/UNICEF management: The Australian framework. Journal of
Joint monitoring program for water supply and sanita- Toxicology and Environmental Health. Part A, 67
tion. Retrieved May 14 at http://www.wssinfo.org/ (2022), 15671579. D
Koch, T. O. M. (2004). The map as intent: Variations on Summerill, C., Pollard, S. J. T., & Smith, J. A. (2010). The
the Theme of John Snow. Cartographica, 39(4), 114. role of organizational culture and leadership in water
Kot, M., Castleden, H., & Gagnon, G. a. (2011). safety plan implementation for improved risk manage-
Unintended consequences of regulating drinking ment. The Science of the Total Environment, 408(20),
water in rural Canadian communities: Examples 43194327.
from Atlantic Canada. Health & Place, 17(5), Sylvestre, B., & Rodriguez, M. J. (2008). Protection strat-
10301037. egies for drinking groundwater sources in small Quebec
Levin, R. B., Epstein, P. R., Ford, T. E., Harrington, W., municipalities. Journal of Environmental Management,
Olson, E., & Reichard, E. G. (2002). U.S. drinking 88(1), 2842.
water challenges in the twenty-first century. Environ- Timmer, D. K., de Loe, R. C., & Kreutzwiser, R. D.
mental Health Perspectives, 110 Suppl (July 2001), (2007). Source water protection in the Annapolis val-
4352. Retrieved May 14 from http://www. ley, Nova Scotia: Lessons for building local capacity.
pubmedcentral.nih.gov/articlerender.fcgi?artid1241 Land Use Policy, 24(1), 187198.
146&toolpmcentrez&rendertypeabstract WHO. (2010) WHO Guidelines for drinking-water qual-
Logsdon, G. S., Schneider, O. D., & Budd, G. C. (2004). ity. Retrieved May 14, 2010, from http://www.who.
Hindsight is 20/20: Using history to avoid waterborne int/water_sanitation_health/dwq/guidelines/en/
disease outbreaks. Journal of American Water Works Woo, D. M., & Vicente, K. J. (2003). Sociotechnical
Association, 96, 6674. systems, risk management, and public health:
McLeod, K. S. (2000). Our sense of snow: The myth of Comparing the north battleford and Walkerton out-
John Snow in medical geography. Social Science & breaks. Reliability Engineering and System Safety,
Medicine, 50(78), 923935. 80, 253269.
Meays, C. L., Broersma, K., Nordin, R., & Mazumder, A. Younes, M., & Bartram, J. (2001). Waterborne health
(2004). Source tracking fecal bacteria in water: risks and the WHO perspective. International Journal
A critical review of current methods. Journal of Envi- of Hygiene and Environmental Health, 204(4),
ronmental Management, 73(1), 7179. 255263.
Paneth, N., Vinten-Johansen, P., Brody, H., & Rip, M.
(1998). A rivalry of foulness: Official and unofficial
investigations of the London cholera epidemic of
1854. American Journal of Public Health, 88(10),
15451553.
Plummer, R., Velaniskis, J., de Grosbois, D., Kreutzwiser,
Drive
R. D., & de Loe, R. (2010). The development of new
environmental policies and processes in response to Motivation
a crisis: The case of the multiple barrier approach for
safe drinking water. Environmental Science and Pol-
icy, 13(6), 535548.
Riley, M. R., Gerba, C. P., & Elimelech, M. (2011).
Biological approaches for addressing the grand chal- Drives
lenge of providing access to clean drinking water.
Journal of Biological Engineering, 5(1), 2.
Need Fulfillment
Risebro, H. L., Doria, M. F., Andersson, Y., Medema, G.,
Osborn, K., Schlosser, O., et al. (2007). Fault tree
analysis of the causes of waterborne outbreaks. Jour-
nal of Water and Health, 5(1), 118.
Rizak, S., Cunliffe, D., Sinclair, M., Vulcano, R., Howard,
J., Hrudey, S., et al. (2003). Drinking water quality
Dropout Rates
management: A holistic approach. Water Science and
Technology, 47(9), 3136. High School Completion Rates
D 1700 Dropping Out

non-health-related aspects of quality of life.


Dropping Out These instruments were built upon the original
version first published by Brogly, Mercier,
Early School Leaving Bruneau, Palepu, and Franco (2003) and based
on the WHO-QOL group definition of quality of
life (Bonomi, Patrick, Bushnell, & Martin, 2000).
A number of the life areas such as drugs, drug
Drug Abuse treatment, harm reduction, and neighborhood
safety were included in the measure as they
Substance Abuse were particularly relevant to the physical and
social reality of drug users lives. This was con-
firmed by focus groups during the development
phase of the instrument (Brogly et al., 2003).
Drug Addiction Each life domain is represented by a 4 4 in.
laminated card with the name of the life area
Substance Abuse printed on the front along with a simple picture
and a description of the life area on the cards
back. Graphic representations of the life domains
Drug User Quality of Life (DUQOL)/ were used to improve the measures accessibility
Injection Drug User Quality of Life to respondents who do not speak English as a first
(IDUQOL) Scale language or have low literacy skills (Palepu,
Hubley, & Russell, 2007).
Anita Palepu
Medicine, St. Pauls Hospital University of Administration
British Columbia, Vancouver, BC, Canada The administration of the scales involves the inter-
viewer showing the respondent each of the 22 life
domain cards and describing each area based on
Synonyms the description on the back of the card. The order
of the life domain cards should be the same with
DUQOL; IDUQOL each interview. The interviewer asks the partici-
pant to provide a satisfaction rating for each area
using a 7-point Likert scale anchored by 1 (very
Definition dissatisfied) and 7 (very satisfied) and illustrated
with seven stylized frowning and smiling faces.
The Injection Drug User Quality of Life The next step involves the participant determining
(IDUQOL) scale measures the unique and indi- if each life domain is currently important to their
vidual circumstances that determine quality of life quality of life (Palepu et al., 2007).
among injection drug users. The Drug User Qual- There are two optional sections. The first sec-
ity of Life (DUQOL) scale is an updated name for tion allows for both the test administrator and the
the IDUQOL given that the measure applies respondent to potentially gain more meaning and
equally well to drug users who do not inject drugs. understanding from this exercise by asking the
respondent about the life areas he/she (a) believes
need to change and (b) is interested in changing,
Description to improve his/her quality of life. This is accom-
plished by going through each of the cards one at
Overview a time. The second section can be used if the
The DUQOL/IDUQOL scales consist of 22 instrument is administered after an intervention
life domains that include both health and to obtain the respondents perspective on the kind
Drug User Quality of Life (DUQOL)/Injection Drug User Quality of Life (IDUQOL) Scale 1701 D
of impact an intervention had on the different life a second session within 68 days to collect test-
domains. Using a three-point response scale retest reliability (Hubley et al., 2005). The actual
card (+ positive change, 0 no change, - score range for the IDUQOL average total score
negative change) placed in front of him/her, was 1.96.7 with a mean value of 4.19 (SD 0.98),
the respondent is asked what kind of impact that and the internal consistency (Cronbach alpha)
the intervention had on each life area (Palepu was 0.88. The test-retest reliability estimate for
et al., 2007). the average total score was 0.78, with correlations
for each domain across the two interviews rang-
Scoring ing from 0.32 to 0.67. D
It may be useful to examine average satisfaction
ratings separately for life areas identified as Validity
important or unimportant by respondents. For criterion-related validity, the IDUQOL was
Three average DUQOL/IDUQOL scores may be correlated with a variety of dichotomously scored
obtained: criterion variables (Hubley et al., 2005). All of
Score 1: Average total score the statistically significant correlations were in
Score 2: Average score for important areas the expected direction; lower IDUQOL scores
Score 3: Average score for unimportant areas were associated with unstable housing, sex trade
All three of these average DUQOL/IDUQOL involvement, borrowing and lending needles,
scores range from 1.00 to 7.00, and the satisfac- daily use of heroin and speed, and overdose in
tion anchors used in the satisfaction rating the previous six months. Convergent validity evi-
(1 very dissatisfied, 2 moderately dissatis- dence was examined by correlating the IDUQOL
fied, 3 slightly dissatisfied, 4 neutral (neither total scores with the Satisfaction with Life Scale
dissatisfied nor satisfied), 5 slightly satisfied, (SWLS) and the Rosenberg Self-Esteem Scale
6 moderately satisfied, and 7 very satisfied) (RSES), and discriminant validity assessed with
can be used to describe these scores qualitatively the Marlowe-Crowne Social Desirability Scale
(Palepu et al., 2007). Short Form X2 (MC X2) (Hubley et al., 2005).
The convergent measures (SWLS, RSES) demon-
Factor Structure strated moderately high correlations with the
The factor structure of the IDUQOL was assessed IDUQOL total score (r 0.59 and 0.54, respec-
through an exploratory factor analysis using prin- tively), whereas the correlation between the
cipal axis factoring on the 21 items of the measure IDUQOL and the discriminant measure (MC
to determine whether essential unidimensionality X2) was in the low to moderate range (r 0.35).
was present and supported the use of a total score In terms of content validity, six subject matter
(Hubley, Russell, & Palepu, 2005). The first fac- experts (SMEs) examined 75 elements of the
tor had an eigenvalue of 6.40 explaining 30.5 % IDUQOL. The content validity index (Lynn,
of the variance in participants responses. The 1986) results showed that all elements (individual
ratio of the first to the second eigenvalue was life areas, names used, and clarity of life area
4.3, which exceeds the strict criterion of a ratio description) were endorsed by a minimum of
greater than 4.0 for evidence of unidimensionality five SMEs. The average deviation mean index
(Hattie, 1984) and supporting the use of a total (Dunlap, Burke, & Smith-Crowe, 2003) revealed
score. Factor loadings ranged from 0.31 to 0.71 acceptable agreement for all 75 elements, but
for all IDUQOL items on a single factor. statistically significant agreement was missed for
just nine elements. The SMEs provided direction
Reliability for the revision of some of the IDUQOL elements,
Reliability was examined through administering which included adding the life domain sense of
the IDUQOL to 250 individuals from the Van- future and revising the description and pictures
couver Injection Drug User Study (VIDUS) and for the life domains for a number of the cards
inviting the first 50 participants to return for (Hubley & Palepu, 2007).
D 1702 Drug User Quality of Life (DUQOL)/Injection Drug User Quality of Life (IDUQOL) Scale

Cross-Cultural Adaptations Health


The IDUQOL/DUQOL has undergone cross- Subjective Well-being
cultural adaptation (Morales-Manrique et al.,
2007) and validation in Spanish (Castillo,
2008). The Spanish IDUQOL was found to have
References
good reliability with a Cronbach alpha of 0.92
and an intraclass correlation coefficient of 0.79. Bonomi, A. E., Patrick, D. L., Bushnell, D. M., & Martin,
Exploratory and confirmatory factor analyses M. (2000). Validation of the United States version of
confirmed the unidimensionality of the construct, the World Health Organization Quality of Life
(WHOQOL) instrument. Journal of Clinical Epidemi-
with an explained variance of 43.8 %. Conver- ology, 53, 112.
gent and criterion-related validity were adequate Brogly, S., Mercier, C., Bruneau, J., Palepu, A., &
with correlation coefficients with the SF-36 and Franco, E. (2003). Towards more effective public
the EQ-5D ranging between 0.34 and 0.61. The health programming for injection drug users:
Development and evaluation of the Injection Drug
Spanish DUQOL was also used to examine the
User Quality of Life Scale. Substance Use & Misuse,
quality of life and life areas that were deemed 38, 965992.
most important to cocaine users in outpatient Castillo, I. I. (2008). Escala de Claidad de Vida en
treatment. They explored the life areas with Ususarios de Drogas Injectadas (IDUQoL):
Valoracion psicometrica de la version espanola.
potential need and interest to change in order to
Adicciones, 20, 281294.
improve their quality of life and examined differ- Dunlap, W. P., Burke, M. J., & Smith-Crowe, K. (2003).
ences by cocaine use intensity and lifetime sever- Accurate test of statistical significance for r WG
ity of addiction to cocaine (Morales-Manrique and average deviation interrater agreement indexes.
Journal of Applied Psychology, 88, 356362.
et al., 2011). This study concluded that consider- Hattie, J. (1984). Methodology review: Assessing unidi-
ation should be given to tailoring treatment pro- mensionality of tests and items. Applied Psychological
grams in order to improve retention and treatment Measurement, 20, 114.
programs by addressing the life areas that are Hubley, A., & Palepu, A. (2007). Injection Drug User
Quality of Life Scale (IDUQOL): Findings form
deemed relevant to the drug users based on their
a content validation study. Health and Quality of Life
intensity of consumption and lifetime severity of Outcomes, 5, 46.
addiction to cocaine. Hubley, A., Russell, L. B., & Palepu, A. (2005). Injection
Drug User Quality of Life scale (IDUQOL):
A validation study. Health and Quality of Life Out-
Discussion
comes, 3, 43.
The IDUQOL/DUQOL measure has initial Lynn, M. R. (1986). Determination and quantification of
content, criterion-related, convergent, and dis- content validity. Nursing Research, 35, 382385.
criminant validity evidence to support it as a Morales-Manrique, C. C., Palepu, A., Castellano-Gomez,
M., Aleixandre-Benavente, R., Valderrama-Zurian,
measure of a construct consistent with quality of
J. C., & Cocaine Group Comunidad Valenciana.
life (Hubley et al., 2005). The measure has (2011). Quality of life, needs and interest
also been improved based on its content valida- among cocaine users: Differences by cocaine use
tion (Hubley & Palepu, 2007). The DUQOL has intensity and lifetime severity of addiction to cocaine.
Substance Use & Misuse, 46, 390397.
been adapted into Spanish (Morales-Manrique
Morales-Manrique, C. C., Valderrama-Zurian, J. C.,
et al., 2007), and some initial validity Castellano-Gomez, M., Aleixandre-Benavente, R.,
evidence for this version has also been provided Palepu, A., & Cocaine Group Comunidad
(Castillo, 2008). Valenciana. (2007). Cross cultural adaptation of
the Injection Drug User Quality of Life
Scale (IDUQOL) in Spanish drug dependent
population, with or without injectable consumption:
Cross-References Drug User Quality of Life Scale - Spanish
(DUQOL-Spanish). Addictive Behaviors, 32,
19131921.
Addiction, An Overview
Palepu, A., Hubley, A. M., & Russell, L. B. (2007). Drug
Education User Quality of Life Scale: Administration and scoring
Family manual. Vancouver, BC: Authors.
Dual-Earner Couples/Dual-Career Couples 1703 D
life. For reviews of research on childrens well-
DSM-IV being, see the articles on Child Well-Being and
Child and Family Well-Being.
Schizophrenia and Satisfaction with Life Scale

Description

Background
Dual Diagnosis A number of studies have shown that women score D
higher than men do on negative measures of
Behavioral Dysfunction subjective well-being, the subjective part of the
quality of life concept. For example,
women experience more depression, anxiety,
and negative affect than men do (Diener, Suh,
Lucas, & Smith, 1999; Lucas & Gohm, 2000;
Dual-Earner Couples/Dual-Career Sigry et al., 2006). Market work has
Couples a stronger association with high well-being than
housework has; the latter may even be detrimen-
Katarina Boye tal to well-being, and studies indicate that part of
Swedish Institute for Social Research (SOFI), the gender difference in well-being can be attrib-
Stockholm University, Stockholm, Sweden uted to the fact that women spend less time on paid
work and more time on housework than men do
(Boye, 2009; Coltrane, 2000; Dennerstein, 1995).
Definition The differences in time use are most pronouned in
male-breadwinner couples, but time-use differ-
The term dual-earner couple refers to ences are of importance to dual-earner couples as
a cohabiting couple where both partners work well. For dual-earner couples, there are substantial
in the labor market. The term dual-career couple gender differences in time use that affect aspects of
refers to a dual-earner couple where both part- quality of life related to market work and to how
ners are pursuing a career, that is, both are com- market work is combined with family and house-
mitted to work and perhaps also to progression at hold responsibilities.
work. The term one-and-a-half-earner couple is Although women still have the main responsi-
sometimes used when one partner works part- bility for work in the household while men do
time to complement the main earners income. more market work, studies from several countries
Although the term dual-earner couples is have shown that womens and mens allocation
gender neutral, it is often used to refer specifi- of time has become more similar over the past
cally to opposite-sex couples in which both the few decades. Women spend more time on paid
woman and the man work in the labor market, work and less time on housework than before,
distinguishing these couples from male- and men spend more time on housework and
breadwinner couples,in which the man works childcare (Bianchi & Milkie, 2010; Gershuny,
in the labor market and the woman is a full- 2000; Gjerdingen, McGovern, Bekker,
time homemaker. Lundberg, & Willemsen, 2001). Changes among
In this entry, the term dual-earner couple women are to a large extent caused by the
will be used most frequently, as this is the more increase in female labor force participation
general term. Furthermore, the entry builds (Gershuny, 2000). Because of these changes, the
mainly on studies of opposite-sex dual-earner division of housework has become more equal,
couples in Western countries and focuses particularly in dual-earner couples. However, this
more on adults than on childrens quality of equalization is mainly a consequence of women
D 1704 Dual-Earner Couples/Dual-Career Couples

spending less time on housework rather than of has repeatedly found small but significant posi-
men spending more time on it. Yet, the decrease tive correlations. Economic resources appear to
in womens housework time has not always been be of importance at least at the lower end of the
large enough to compensate for their increased income scale (Diener et al., 1999; Sigry et al.,
participation in paid work. Some studies indicate 2006). Inasmuch as a dual-earner arrangement
that in dual-earner couples with children, buffers against economic hardship, it improves
women therefore have less leisure time than the quality of life of the household members, for
men have (Bianchi & Milkie, 2010; Gjerdingen example, by lowering depression (Barnett &
et al., 2001). Hyde, 2001). Marital satisfaction is also pro-
moted among both women and men when bread-
Quality of Life in Dual-Earner Couples winning responsibilities are shared more
Women and men in dual-earner couples may equitably (Barnett, 2008). In addition, policy
benefit from having multiple roles, for example, support for female employment has been shown
being a worker in the labor market as well as to reduce the risk of child poverty in single-
a spouse and parent. According to the role expan- as well as two-parent households (Cooke &
sion hypothesis, multiple roles bring privileges Baxter, 2010).
that are not necessarily offset by demands. In contrast to the above-mentioned findings,
The sources of social support increase as the there is also research that points to negative
number of roles increases, and self-confidence effects of the dual-earner arrangement. Much
and self-efficacy are strengthened when an attention has been paid to experiences of work-
individual is productive in multiple contexts. family conflict in recent years. Work-family con-
Having multiple roles also buffers against flict is a concept that implies incompatibility of
distress, as failure in one context can be com- role pressures from family and work, for exam-
pensated for by success and satisfaction in ple, competing demands on time or incompatible
another. Furthermore, the economic situation in behavioral demands, and includes both work-
a dual-earner arrangement brings greater material to-family conflict and family-to-work conflict.
and psychological advantages than a single- Studies show that high demands from either fam-
earner arrangement (Barnett & Hyde, 2001; ily or market work, or both, increase work-family
Sieber, 1974). Empirical studies (many of which conflict. For example, work-family conflict is
have been conducted in the USA) support the role greater among those who spend longer hours on
expansion hypothesis. Results show that people market or family work, those with higher work
with more roles experience less psychological involvement, those experiencing higher work or
distress than do those with fewer roles. Working family stress, and those with a working partner
women experience less depression and psycholog- and among parents (Byron, 2005, see also
ical distress than do housewives, irrespective of McGinnity & Whelan, 2009 for a selection of
whether or not they have children, and fathers who European studies). Hence, work-family conflict
engage extensively in childcare are less is greater among working individuals in dual-
psychologically distressed than other fathers. earner couples than in couples with other bread-
Furthermore, the similarities of the partners winning arrangements. It may be most salient in
daily life experiences in dual-earner couples facil- dual-career couples, where the partners are likely
itate communication and relationship quality to be more involved in their market work and
(Barnett, 2008; Dennerstein, 1995). It should be work longer hours than in other dual-earner
noted that the beneficial effects of any given role couples. Because working women do more
are conditioned on the quality of that role, that is, housework and care work than working men
experiences in the role and the conditions under and in some cases have less free time, it would
which it is performed (ibid.). be reasonable to expect women to experience
The association between economic resources greater work-family conflict than men do. But
and quality of life is quite complex, but research empirical support for gender differences in
Dual-Earner Couples/Dual-Career Couples 1705 D
work-family conflict is weak (Byron, 2005). One labor market participation among both women
plausible explanation is womens part-time and men, experiences of work-family conflict in
work. Many women have already reduced their dual-earner couples may be counterbalanced by
paid working hours to decrease the likelihood of experiences of role expansion.
work-family conflict (Gronlund & Oun, 2010).
The two research strands on role expansion
and work-family conflict are often not fully com- Cross-References
parable as studies of role expansion usually
include people outside the labor market, while Family Quality of Life D
studies of work-family conflict do not. This Gendered Work
aside, they do point to contradictory processes Income Influence on Satisfaction/Happiness
within dual-earner couples. On the one hand, Parental Time and Child Well-being
being active in several roles may be enriching; Womens Employment
on the other hand, it may also be taxing. It is often Womens Well-being
assumed that role expansion and work-family Work-Family Fit
conflict are mutually exclusive and hence that Work-Life Balance
only one of these processes can be present in Work-Life Harmony
dual-earner couples. This does not have to be
the case, as high levels of role expansion as well
as of work-family conflict have been shown to References
coincide. In a study of fifteen European countries,
Barnett, R. C. (2008). On multiple roles: Past, present, and
Gronlund and Oun (2010) found that working
future. In K. Korabik, D. S. Lero, & D. L. Whitehead
men tended to experience role expansion, (Eds.), Handbook of work-family integration.
whereas women who were equally work- Research, theory, and best practices (pp. 7592).
committed tended to experience work-family London: Academic Press.
Barnett, R. C., & Hyde, J. S. (2001). Women, men, work,
conflict as well as role expansion, that is, con-
and family. An expansionist theory. The American
flict-expansion balance. The same gender differ- Psychologist, 56(10), 781796.
ences in these experiences were found across Bianchi, S. M., & Milkie, M. A. (2010). Work and family
European social policy models. In general, research in the first decade of the 21st century. Journal
of Marriage and Family, 72(3), 705725.
though, the experience of conflict-expansion
Boye, K. (2009). Relatively different? How do gender dif-
balance was more common in countries with ferences in well-being depend on paid and unpaid work
dual-earner policies, for example, generous paren- in Europe? Social Indicators Research, 93(3), 509525.
tal leave arrangements and well-developed, Byron, K. (2005). A meta-analytic review of work-family
conflict and its antecedents. Journal of Vocational
state-subsidized childcare systems such as in the
Behavior, 67, 169198.
Scandinavian countries, than in other countries. Coltrane, S. (2000). Research on household labor: Model-
This sheds new light on the results of studies ing and measuring the social embeddedness of routine
that have found high levels of work-family family work. Journal of Marriage and Family, 62,
12081233.
conflict in these countries, particularly among
Cooke, L. P., & Baxter, J. (2010). Families in interna-
women (e.g., Gallie & Russell, 2009; Strandh & tional context: Comparing institutional effects across
Nordenmark, 2006). In the study by Gronlund and Western societies. Journal of Marriage and Family,
Oun, the experience of work-family conflict with- 72, 516536.
Dennerstein, L. (1995). Mental health, work, and gender.
out role expansion was more common where tra- International Journal of Health Services, 25(3),
ditional, gendered working patterns are supported 503509.
by policy, such as in Central European and Med- Diener, E., Suh, E. M., Lucas, R. E., & Smith, H. L.
iterranean countries. There were no large differ- (1999). Subjective well-being: Three decades of
progress. Psychological Bulletin, 125(2), 276302.
ences in experience of role expansion without
Gallie, D., & Russell, H. (2009). Work-family conflict and
work-family conflict between policy models. working conditions in Western Europe. Social Indica-
Consequently, where the state actively supports tors Research, 93(3), 445467.
D 1706 Dual-Factor Model of Subjective Well-Being

Gershuny, J. (2000). Changing times. Work and leisure in detecting the risk of major anxiety and/or
postindustrial society. Oxford, UK: Oxford University depression at a given point in time. It can be
Press.
Gjerdingen, D., McGovern, P., Bekker, M., Lundberg, U., completed by the respondent or by an interviewer.
& Willemsen, T. (2001). Womens work roles and
their impact on health, well-being, and career: Com-
parisons between the United States, Sweden, and the Description
Netherlands. Women & Health, 31(4), 120.
Gronlund, A., & Oun, I. (2010). Rethinking work-family
conflict: Dual-earner policies, role conflict and role The Duke Anxiety-Depression Scale (DUKE-
expansion in Western Europe. Journal of European AD) (Fig. 1) was developed by Parkerson,
Social Policy, 20, 179195. Broadhead, and Tse (1990, 1991) as a 7-question
Lucas, R. E., & Gohm, C. L. (2000). Age and sex differences
in subjective well-being across cultures. In E. Diener & subscale of the 17-question Duke Health Profile
E. M. Suh (Eds.), Culture and subjective well-being (DUKE) to measure the risk of both major anxi-
(pp. 291317). Cambridge, MA/London: MIT Press. ety and major depression within a 1-week time
McGinnity, F. & Whelan, C.T. (Eds.). (2009). Comparing frame. It can be administered by the respondent
work-life conflict in Europe: Evidence from the
European Social Survey [Special issue]. Social or by an interviewer. There are two questions for
Indicators Research, 93(3), 433605. psychological symptoms (nervousness,
Sieber, S. D. (1974). Toward a theory of role accumula- depressed feelings), two for self-esteem (give up
tion. American Sociological Review, 39(4), 567578. too easily, comfortable around people), two for
Sigry, M. J., Michalos, A. C., Ferris, A. L., Easterlin, R. A.,
Patrick, D., & Pavot, W. (2006). The quality-of-life somatic symptoms (sleeping, fatigue), and one
(QOL) research movement: Past, present, and future. for cognition (difficulty concentrating). It is
Social Indicators Research, 76, 343466. user-friendly because of its small number of
Strandh, M., & Nordenmark, M. (2006). The interference brief, easy-to-understand questions, with only
of paid work with household demands in different
social policy contexts: Perceived work-household con- three response options for each question. It can
flict in Sweden, the UK, the Netherlands, Hungary, and be scored immediately by simply adding the
the Czech Republic. The British Journal of Sociology, seven single-digit response scores to see if the
57(4), 597617. risk of anxiety and/or depression is excessive.
Scoring on a scale of 0100 can be done manually
or by computer. Higher scores indicate more risk
Dual-Factor Model of Subjective of anxiety and/or depression.
Well-Being
Reliability
Subjective Well-Being, Psychopathology, and Cronbachs alpha correlations for internal consis-
Physical Health in Adolescents tency in six studies ranged from 0.60 to 0.73
(Parkerson et al., 1999, & unpublished data).

Duke Anxiety-Depression Scale Validity


(DUKE-AD) The Spearman rank-order correlation coefficient
was 0.67 between scores of the DUKE-AD and
George R. Parkerson Jr. the State Anxiety Inventory (SAI) and 0.68
Community and Family Medicine, Duke between scores of the DUKE-AD and the Center
University School of Medicine, Durham, for Epidemiologic Studies Depression Scale
NC, USA (CES-D). The DUKE-AD was an effective brief
screener for both clinical anxiety and depression
as diagnosed by the Diagnostic and Statistical
Definition Manual of Mental Disorders, Revised Third Edi-
tion (DSM-III-R). The predictive accuracy of the
The Duke Anxiety-Depression Scale (DUKE-AD) DUKE-AD in terms of receiver operating char-
is a seven-item self-report questionnaire for acteristic (ROC) curve areas was 72.3 % for
Duke Anxiety-Depression Scale (DUKE-AD) 1707 D

Duke Anxiety-Depression Scale (DUKE-AD), Fig. 1 The Duke Anxiety-Depression Scale (DUKE-AD)

major types of anxiety and 78.3 % for major types change of -8.8
13.3 S.D. (33.9 %), and a stan-
of depression. At a DUKE-AD score cutoff point dard response mean (SRM) of 0.66 (Parkerson,
of >30 on a scale of 0100, sensitivity was et al., unpublished data).
71.4 % and specificity was 59.2 % for major Reliability, validity, and responsiveness data
anxiety and 81.8 % and 63.6 %, respectively, and references are detailed in the Users Guide by
for major depression (Parkerson & Broadhead, Parkerson (2002). Further information is avail-
1997). able on the website http://healthmeasures.mc.
duke.edu.
Responsiveness
Response of the DUKE-AD scores to clinical Discussion
change over time in cardiac rehabilitation patients The DUKE-AD is a very brief 7-question,
showed improvement after treatment, with a base- easy-to-score, screener for the risk of DSM-III-R
line mean score of 26.0
16.2 S.D., a mean score major anxiety and major depression. It compares
D 1708 Duke Health Profile (DUKE)

well with the longer traditional screeners, SAI for (Fig. 1). It is user-friendly because of its small
anxiety and CES-D for depression. number of brief, easy to understand questions,
and because there are only three response options
for each question. The 17 questions on the DUKE
References were selected from the 63 questions on the Duke-
University of North Carolina (Duke-UNC) Health
Parkerson, G. R., Jr. (2002). Users guide for Duke health Profile developed by Parkerson et al. (1981).
measures. Durham, NC: Department of Community
The DUKE questions can be scored sepa-
and Family Medicine, Duke University School of
Medicine. rately, as a variety of scales, or as overall
Parkerson, G. R., Jr., & Broadhead, W. E. (1997). Screen- HRQOL. Six scales measure function, i.e., phys-
ing for anxiety and depression in primary care using ical health, mental health, social health, general
the Duke Anxiety-Depression Scale (DUKE-AD).
health, self-esteem, and perceived health, with
Family Medicine, 29(3), 177181.
Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J. high scores indicating better HRQOL. Five scales
(1990). The Duke Health Profile, a 17-item measure of measure dysfunction, i.e., anxiety, depression,
health and dysfunction. Medical Care, 28, 10561072. anxiety-depression, pain, and disability, with
Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
high scores indicating worse HRQOL. The phys-
(1991). Development of the 17-item Duke Health
Profile. Family Practice, 8, 396401. ical health, mental health, social health,
Parkerson, G. R. Jr., Willke, R. J., & Hays, R. D. (1999). perceived health, and disability scales are
An international comparison of the reliability and independent of each other, because none of their
responsiveness of the Duke Health Profile for measur-
questions are shared. The other scales are not
ing health-related quality of life of patients treated
with alprostadil for erectile dysfunction. Medical independent because they share single or multiple
Care, 37, 5667. questions. Scoring on a scale of 0100 can be
done manually or by computer (Fig. 2).

Reliability
Duke Health Profile (DUKE) Test-retest Spearman rank-order correlations for
temporal stability in three studies for DUKE
George R. Parkerson Jr. multiple-item scales ranged from 0.35 to 0.78,
Community and Family Medicine, Duke and for single-item scales, 0.30 to 0.68
University School of Medicine, Durham, (Parkerson et al., 1990, 1992; Beaton et al.,
NC, USA 1997). Cronbachs alpha correlations for internal
consistency in 10 studies for the multiple-item
scales ranged from 0.39 to 0.80 (Parkerson
Definition et al., 1990, 1992, 1993, 1999, & unpublished
data; Beaton et al., 1997).
The Duke Health Profile (DUKE) is a 17-item
self-report questionnaire for measuring generic Validity
health-related quality of life (HRQOL) during DUKE scores were compared with scores of
a 1-week period of time. It can be completed by other health measures for the same patients in
the respondent or by an interviewer. seven studies and compared between patient
groups having different clinical diagnostic pro-
files and severity of illness in three studies.
Description DUKE scores were used to predict health-related,
clinical, or educational outcomes in 12 studies.
The Duke Health Profile (DUKE) was developed For example, the mean mental health score for
by Parkerson, Broadhead, and Tse (1990, 1991) to primary care patients with known mental health
measure self-reported health-related quality of life disorders was 49.2
25.7 S.D., compared with
(HRQOL) in adults over a 1-week time period 75.7
19.4 S.D. for patients with painful physical
Duke Health Profile (DUKE) 1709 D

Duke Health Profile (DUKE), Fig. 1 Duke Health Profile (DUKE)

problems, and compared with 79.2


18.9 S.D. hemodialysis compared with 67.5
21.0 S.D.
for health maintenance patients (Parkerson et al., for insurance policyholders (Parkerson &
1990). The physical health score was 48.9
Gutman, 1997). The baseline physical health
23.4 S.D. for end-stage renal disease patients on score was 46.7
24.6 S.D. for patients who had
D 1710 Duke Health Profile (DUKE)

Duke Health Profile (DUKE), Fig. 2 Manual scoring for the Duke health profile (DUKE)

at least one referral or hospitalization during 18- scale predicted major anxiety with a sensitivity of
month follow-up, compared with 60.5
22.4 S.D. 71.4 % and specificity of 59.2 % and predicted
for patients with no referrals or hospitalizations major depression with a sensitivity of 81.8 % and
(Parkerson et al., 1995). The anxiety-depression specificity of 63.6 % (Parkerson & Broadhead,
Duke Health Profile (DUKE) 1711 D
1997). Although all of these analyses were done References
for adults, the DUKE has been validated for
adolescents in five studies. Beaton D. E., Hogg-Johnson S., & Bombardier C.
(1997). Evaluating changes in health status:
reliability and responsiveness of five generic
Responsiveness health status measures in worker with musculoskeletal
Response of the DUKE scores to clinical change disorders. Journal of Clinical Epidemiology, 50,
over time has been measured in five studies. For 7993.
example, cardiac rehabilitation patients showed Parkerson, G. R. Jr., & Gutman, R. A. (1997) Perceived
mental health and disablement of primary care and D
improvement after treatment for all scales, with end-stage renal disease patients. International Journal
score changes ranging from +3.5 for perceived of Psychiatric Medicine, 27(1), 3345.
health to +13.0 for physical health, and from Parkerson, G. R. Jr., Broadhead, W. E., & Tse, C.-K. J.
8.3 for anxiety to 11.5 for disability (1995). Health status and severity of illness as pre-
dictors of outcomes in primary care. Medical Care,
(unpublished data). The standard response mean 33, 5366.
(SRM) ranged from 0.12 for perceived health to Parkerson, G. R. Jr., Wilke, R. J., & Hays, R. D. (1999) an
0.76 for general health and from 0.28 for pain to international comparison of the reliability and respon-
0.66 for anxiety-depression (unpublished data). siveness of the Duke Health Profile for measuring
health-related quality of life of patients treated with
When DUKE and MOS 36-Item Short Form alprostadil for erectile dysfunction. Medical Care, 37,
Health Survey (SF-36) scores were compared 5667.
for responsiveness in patients with musculoskel- Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
etal disorders, for physical health, the SRM (1992). Quality of life and functional health of primary
care patients. Journal of Clinical Epidemiology, 45
for DUKE was 0.62 compared with 0.81 for (11), 13031313.
SF-36; for mental health, 0.36 compared with Parkerson, G. R., Jr., Connis, R. T., Broadhead, W. E.,
0.08; and for pain, 0.73 compared with 1.13 Patrick, D. L., Taylor, T. R., & Tse, C.-K.J. (1993).
(Beaton et al., 1997). Disease-specific versus generic measurement of
health-related quality of life in insulin-dependent dia-
Reliability, validity, and responsiveness data betic patients. Medical Care, 31, 629639.
and references are detailed in the users guide by Parkerson, G. R., Jr. (2002). Users guide for Duke health
Parkerson (2002). Further information is available measures. Durham, NC: Department of Community
on the website http://healthmeasures.mc.duke.edu. and Family Medicine, Duke University School of
Medicine.
Parkerson, G. R., Jr., & Broadhead, W. E. (1997). Screen-
Discussion
ing for anxiety and depression in primary care using
The DUKE is user-friendly because each of its 17 the Duke Anxiety-Depression Scale (DUKE-AD).
questions is brief and easy to understand, there Family Medicine, 29(3), 177181.
are only three response options for each question, Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
(1990). The Duke Health Profile, a 17-item measure
it is short enough to be printed on one side of one
of health and dysfunction. Medical Care, 28,
page, it can be self-administered in less than 10561072.
5 minutes, and it can be scored manually. It has Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
been usedutes primarily for research in the clini- (1991). Development of the 17-item Duke Health
Profile. Family Practice, 8, 396401.
cal setting, both as a predictor of health-related
Parkerson, G. R., Jr., Gehlbach, S. H., Wagner, E. H.,
outcomes and as an outcome itself. Its 7-item James, S. A., Clapp, N. E., & Muhlbaier, L. H.
anxiety-depression scale (DUKE-AD) has been (1981). The Duke-UNC Health Profile: An adult health
used as an effective screener for DSM-III-R status instrument for primary care. Medical Care, 19,
806828.
anxiety and depression in primary care. Also,
Parkerson, G. R., Jr., Harrell, F. E., Jr., Hammond, W. E.,
because of its predictive value, the DUKE is & Wang, X.-Q. (2001). Characteristics of adult
being used as one component of an ambulatory primary care patients as predictors of future health
case-mix classification system called the services charges. Medical Care, 39, 11701181.
Parkerson, G. R., Jr., Michener, J. L., Yarnall, K. S. H., &
Duke Case-Mix System (DUMIX) (Parkerson,
Hammond, W. E. (1997). The Duke Case-Mix System
et al., 1997, 2001). The DUKE is available in 17 (DUMIX) for ambulatory health care. Journal of
languages other than American English. Clinical Epidemiology, 50(12), 13851394.
D 1712 Duke Older Americans Resources and Services Instrument

(Fillenbaum, 2005/1988). Administration is usu-


Duke Older Americans Resources ally through face-to-face interview, but informa-
and Services Instrument tion can be also obtained by mail or telephone.
On average, the entire questionnaire takes about
Qiushi Feng 45 min to complete.
Department of Sociology, National University The validity and reliability of Part
of Singapore, Singapore A (Functional Assessment) of OARS has been
evaluated. Content and consensual validity are
guaranteed by the manner of construction. Crite-
Synonyms rion validity (not determined for social resources)
indicated that, for a sample of 49 patients from a
OARS Multidimensional Functional Assessment family medicine clinic, the Spearman rank order
Questionnaire (OMFAQ) correlation ranged from 0.68 to 0.89 (P < 0.001)
and Kendalls tau was 0.62 to 0.82 (P < 0.001)
(Fillenbaum & Smyer, 1981). Test-retest reliabil-
Definition ity was based on the Community Survey Ques-
tionnaire (CSQ), a precursor of which OARS is
The Duke Older Americans Resources and a statistically reduced version, which was admin-
Services (OARS) Instrument is a widely used istered to 30 community residents aged 65 and
measure that assesses the overall functional status over on two occasions (time interval 35 weeks).
of adults (particularly older adults) and the The response rate was as high as 98.5 % with
services they receive. OARS is a multidis- 90.7 % of the responses being identical
ciplinary and multidimensional instrument with (Fillenbaum, 2005/1988). Interrater reliability
a broad range of applications including clinic was based on a sample of 11 experts in diverse
screening and outcome assessment, evaluation geographical areas and yielded intraclass
of treatment and programs, and surveys of health correlation coefficients of 0.82 for social
and health services. In comparison with other resources, 0.78 for economic resources, 0.80 for
comprehensive functional assessments of older mental health, 0.60 for physical health, and 0.87
people, Duke OARS emphasize both function for self-care capacity to all significant at P <
status and use of service; it is therefore particu- 0.001 (Fillenbaum & Smyer, 1981). Intra-rater
larly suited for evaluating the cost-effectiveness reliability was examined for Part A (CSQ ver-
of service programs on the functional status of sion) in 7 raters. The Pearson product moment
older persons. correlations commonly ranged from 0.87 to 1.00
over a time interval of 1218 months
(Fillenbaum, 2005/1998). Although no study
Description was specifically designed to examine the validity
and reliability of Part B, Services Assessment,
OARS was the product of a project to evaluate one study showed good agreement between
alternative institutionalization strategies service use reported by community residents
(Maddox, 1972). While used independently, it and service provision reported by local agencies
also operationalizes the OARS model, which (Comptroller General, 1977).
examines the impact of packages of services on OARS has been used in many substantial sur-
individuals of comparable functional status. veys, including the Canadian Study of Health and
This structured questionnaire has two parts: Aging and the European Study of Adult Well-
Part A focuses on assessment of functional Being (Ferring et al., 2001). It has been translated
status, Part B on services assessment. The into and used in multiple languages, including
structure and content are summarized in Table 1 Afrikaans, Chinese, Dutch, French, German
Duke Older Americans Resources and Services Instrument 1713 D
Duke Older Americans Resources and Services Instrument, Table 1 The sections of Duke OARS
Administrative and demographic information: Subjects address and telephone number, sex, race, age, education;
interviewer and informant data; date, place and time of interview
Part A: Functional assessment: A 6-point scale was used for summarizing each of the five dimensions as below, where
the values range from 1 (level of functioning excellent) to 6 (level of functioning totally impaired)
1. Social resources: Extent and perceived adequacy of social contacts with friends and family; presence of a confidant;
availability of help from friends in time of need
2. Economic resources: Adequacy of income and income resources
3. Mental health: Adequacy of cognitive functioning; presence/absence of psychiatric disorder D
4. Physical health: Indication of superior physical health functioning, of physical health conditions, and of functional
limitations due to physical health problems
5. Self-care capacity: Extent of capacity to do those tasks needed for continued independent living in the community
Part B: Services assessment: Service provider, intensity of utilization, and perceived need for each of 24 non-
overlapping, broadly encompassing generically defined services
1. Transportation 2. Social/recreational
3. Employment 4. Sheltered employment
5. Educational services, employment related 6. Remedial training
7. Mental health 8. Psychotropic drugs
9. Personal care 10. Nursing care
11. Medical services 12. Supportive devices and prostheses
13. Physical therapy 14. Continuous supervision
15. Checking 16. Relocation and placement
17. Homemaker-household 18. Meal preparation
19. Administrative, legal, and protective 20. Systematic multidimensional evaluation
21. Financial assistance 22. Food, groceries
23. Living quarters (housing) 24. Coordination, information, and referral

(for use in Austria), Greek, Italian, Japanese, Cross-References


Malay, Portuguese, and Spanish (Cuban and
Puerto Rican Spanish). The Instrumental Activi- Content Validity
ties of Daily Living section has also been trans- Criterion Validity
lated into Korean and Vietnamese. Some foreign- Intraclass Correlation Coefficient (ICC)
language versions of Duke OARS have been val- Rank-Order Correlation
idated (e.g., McCusker, Bellavance, Cardin, & Reliability
Belzile, 1999; Rodrigues, 2008); however, caution Test-Retest Reliability
is needed when used outside the United States. A
recent study examining the Social Resources sec-
tion of OARS in six European countries indicated
problems with reliability (Burholt et al., 2007). References
For current manual and information on use of
Burholt, V., Windle, G., Ferring, D., Balducci, C.,
the OARS questionnaire, view the website
Fagerstrom, C., Thissen, F., et al. (2007). Reliability
(http://www.geri.duke.edu and click on Services and validity of the Older Americans Resources and
and then on Duke Older Americans Resources Services (OARS) Social Resources Scale in six Euro-
and Services) or contact OARS, Center for the pean countries. The Journal of Gerontology: Social
Science, 62(6), S371S379.
Study of Aging and Human Development, Box
Comptroller General. (1977). The well-being of older
3003, Duke University Medical Center, Durham, people in Cleveland, Ohio. Report to the Congress,
NC 27710, USA. US GAO, HRD-77-70.
D 1714 Duke Religious Index

Ferring, D., Windle, G., Heiss, C., Paulsson, C., Definition


Spazzafumo, L., Borg, C., van der Meer, M., Hoff-
mann, M., & Petit, C. (2001). European Study of
Adult Well-Being (ESAW): Comparative report on The Duke Religious Index (DUREL) is a five-
physical health and functional status. EU 5th item measure of religious involvement, which
Framework Project, Contract number: QLK6-CT- yields three subscales: (1) organizational reli-
2001-00280. gious behavior (1 item), (2) nonorganizational
Fillenbaum, G. G. (2005/1988). Multidimensional func-
tional assessment of older adults: The Duke Older religious behavior (1 item), and (3) intrinsic
Americans Resources and Services procedures. religious motivation (3 items drawn from the
Hillsdale, NJ: Lawrence Erlbaum Associates. Hoges 10-item intrinsic religiosity scale).
Fillenbaum, G. G., & Smyer, M. A. (1981). The develop- Response options are on a 5- or 6-point Likert
ment, validity, and reliability of the OARS
Multidimensional Functional Assessment Question- scale.
naire. Journal of Gerontology, 36(4), 428434. This scale is used worldwide for assessing
Maddox, G. L. (1972). Intervention and outcomes: Notes religiousness in scientific studies. Since DUREL
on designing and implementing an experiment in is a short and easy instrument, it can be used in
health care. International Journal of Epidemiology,
1, 339345. a great variety of studies such as epidemiological
McCusker, J., Bellavance, F., Cardin, S., & Belzile, E. studies and/or clinical trials. A Portuguese
(1999). Validity of an activities of daily living ques- version of DUREL is available and validated.
tionnaire among older patients in the emergency
department. Journal of Clinical Epidemiology, 52,
10231030.
Rodrigues, R. M. (2008). Validation of the European Description
Portuguese version of the Older Americans Resources
and Services instrument. Revista Panamericana de The interface between religiousness/ spirituality
Salud Publica, 23(2), 109115.
(S/R) and health has been extensively investi-
gated in the last decades (Koenig, 2000).
Spirituality is defined by Koenig (Koenig,
McCullough, & Larson, 2001) as a personal
search for understanding final questions about
Duke Religious Index
life, its meaning, its relationships to sacredness
or transcendence that may or may not lead to the
Duke Religious Index in Portuguese
development of religious practices or formation
of religious communities. Religiosity is under-
stood as the extension to which an individual
believes, follows, and practices a religion, and
Duke Religious Index in Portuguese can be organizational (church or temple
attendance) or non organizational (to pray, to
Giancarlo Lucchetti1,2 and Alessandra Lamas read books, to watch religious programs on
Granero Lucchetti1 television).
1
Research Departament of Sao Paulo Medical Studies have shown that those with higher
Spiritist Association, Sao Paulo, Brazil levels of S/R have lower prevalence of depression
2
Department of Neurology, Federal University and anxiety (Koenig, 2009), better quality of
of Sao Paulo, Sao Paulo, Brazil life (Sawatzky, Ratner, & Chiu, 2005),
lower prevalence of cardiologic problems,
and lower mortality (Lucchetti, Lucchetti, &
Synonyms Koenig, 2011).
Religiousness may play a protective role in
Duke religious index; DUREL; Escala de health, preventing health problems or aiding in
religiosidade da universidade de Duke; Indice recovery or adjustment to health problems, and
de religiosidade de Duke; PDUREL may be a factor in coping with chronic conditions
Duke Religious Index in Portuguese 1715 D
and the disability they cause. In other cases, reli- 1. Organizational religious behavior ORA
gion may play a more consoling role and can be (1 item):
mobilized to cope with illness or stress, leading How often do you attend church or other
to associations between measures of religion religious meetings? (English)/Com que
and health (Fitchett, Rybarczyk, DeMarco, & frequencia voce vai a uma igreja, templo ou
Nicholas, 1999). outro encontro religioso? (Portuguese)
In addition, according to surveys carried out in response options are on a 6-point Likert scale
Brazil and worldwide, most patients want their (1. more than once a week, 2. once a week,
doctors and nurses to address their spiritual 3. a few times a month, 4. a few time a year, D
needs. Lucchetti et al. evaluated Brazilian 5. once a year or less, 6. never).
patients and found that more than 87 % of 2. Nonorganizational religious behavior
patients wanted their physicians to ask NORA (1 item):
about their religious beliefs. Nevertheless, only How often do you spend time in private
8.7 % recalled have been asked about their religious activities, such as prayer, meditation,
religion by their doctors (Lucchetti et al., 2011). or Bible study? (English)/Com que frequencia
These results are in line with a study conducted voce dedica o seu tempo a atividades
by McCord et al. in the United States, in which religiosas individuais, como preces, rezas,
83 % of respondents wanted physicians to ask meditacoes, leitura da bblia ou de outros
about spiritual beliefs (McCord et al., 2004). textos religiosos? (Portuguese) response
Within this context, understanding the role of options are on a 6-point Likert scale (1. more
S/R on health-disease process is worth investiga- than once a day, 2. daily, 3. two or more times
tion. Nevertheless, for a correct measurement, we a week, 4. once a week, 5. a few times a month,
need a reliable instrument. 6. rarely or never).
In fact, measuring spirituality in clinical prac- 3. Intrinsic religious motivation intrinsic
tice and research has posed a particular challenge (3 statements): Respondents must mark the
because of the complexity of the elements and extent to which each statement is true or not
definitions involved. As there is no widely true for them.
accepted approach for measuring S/R, a broad In my life, I experience the presence of the
variety of research instruments has emerged Divine (i.e., God) (English)/Em minha vida, eu
(Monod et al., 2011) such as religious coping sinto a presenca de Deus (ou do Esprito Santo)
and spiritual well-being scales. (Portugues).
One of the most famous instruments for that My religious beliefs are what really lie behind
matter is the Duke Religion Index (DUREL). It my whole approach to life (English)/As minhas
was created in 1997 by Koenig, Parkerson, crencas religiosas estao realmente por tras de
and Meador from Duke University (Koenig toda a minha maneira de viver (Portuguese).
Parkerson, & Meador, 1997) and, since then, I try hard to carry my religion over into all
translated and validated for several languages other dealings in life (English)/Eu me esforco
(Koenig & B ussing, 2010). muito para viver a minha religiao em todos os
According to the original authors, DUREL aspectos da vida (Portuguese).
was designed to measure religiosity in Western Response options are on a 5-point Likert scale
religions (such as Christianity, Judaism, and (1. definitely true of me, 2. tends to be true,
Islam) and is less accurate in assessing religious- 3. unsure, 4. tends not to be true, 5. definitely
ness in Eastern religions (such as, Hinduism or not true).
Buddhism) (Koenig & Bussing, 2010). Scoring DUREL (H. G. Koenig & Bussing,
The instrument basically consists on a five- 2010; Yi et al., 2007)
item measure of religious involvement with There is no recommendation of summing all
three subscales (Koenig et al., 1997; Koenig & three subscales into a total overall religiosity
Bussing, 2010; Lucchetti et al., 2012): score, because combining all three subscales in
D 1716 Duke Religious Index in Portuguese

a single analysis could result in subscale scores Spiritual Needs of Those with Chronic
canceling out the effects of each other: Diseases
ORA Reverse score item 1 to obtain fre- Stress
quency of religious attendance subscale score
(scored from 1 to 6, with higher scores indicating
more frequent activity). References
NORA Reverse score item 2 to obtain fre-
quency of private religious activity subscale Fitchett, G., Rybarczyk, B. D., DeMarco, G. A., &
Nicholas, J. J. (1999). The role of religion in medical
score (scored from 1 to 6, with higher scores
rehabilitation outcomes: A longitudinal study.
indicating more frequent activity). Rehabilitation Psychology, 44(4), 333353.
Intrinsic Reverse score items 35 and total to Koenig, H. G. (2000). Religion and medicine I: Historical
obtain intrinsic religiosity subscale score (scored background and reasons for separation. International
Journal of Psychiatry in Medicine, 30(4), 385398.
from 3 to 15, with higher scores indicating greater
Koenig, H. G. (2009). Research on religion, spirituality,
levels of intrinsic religiosity). and mental health: A review. Canadian Journal of
Psychiatry, 54(5), 283291.
Validation into Portuguese Language Koenig, H. G., & B ussing, A. (2010). The duke university
religion index (DUREL): A five-item measure for use
In Brazil, Lucchetti et al. (2012) has validated
in epidemiological studies. Religions, 1(1), 7885.
this instrument for research purposes. The Portu- Koenig, H., McCullough, M., & Larson, D. (2001).
guese version of the Duke Religion Index Handbook of religion and health. New York: Oxford
(PDUREL) was translated and adapted for University Press.
Koenig, H., Parkerson, G. R., Jr., & Meador, K. G. (1997).
administration to 383 individuals from
Religion index for psychiatric research. The American
a population-based study (Lucchetti et al., 2012; Journal of Psychiatry, 154(6), 885886.
Lucchetti & Peres, 2011) of low-income Lucchetti, G., Granero Lucchetti, A. L., Peres, M. F.,
community-dwelling adults. Leao, F. C., Moreira-Almeida, A., & Koenig, H. G.
(2012). Validation of the duke religion index: DUREL
The PDUREL intrinsic subscale and total
(Portuguese Version). Journal of Religion and Health,
scores demonstrated high internal consistency 51(2), 579586.
(alphas ranging from 0.733 for the total scale Lucchetti, G., Lucchetti, A. G. L., Badan-Neto, A. M.,
score to 0.758 for the intrinsic subscale). Corre- Peres, P. T., Peres, M. F. P., Moreira-Almeida, A.,
et al. (2011). Religiousness affects mental health,
lations among the DUREL subscales were
pain and quality of life in older people in an outpatient
also examined for evidence of discriminant rehabilitation setting. Journal of Rehabilitation
validity. Correlations were ranging from 0.36 to Medicine, 43(4), 316322.
0.46, indicating significant overlap between the Lucchetti, G., Lucchetti, A. L. G., & Koenig, H. G. (2011).
Impact of spirituality/religiosity on mortality: Com-
scales without marked redundancy. Therefore,
parison with other health interventions. EXPLORE:
PDUREL is a reliable and valid scale. The Journal of Science and Healing, 7(4), 234238.
This comprehensive but brief measure of reli- Lucchetti, G., & Peres, M. F. P. (2011). The prevalence of
giousness can foster new studies on religiousness migraine and probable migraine in a Brazilian favela:
Results of a community survey. Headache: The
and health by researchers from countries that
Journal of Head and Face Pain, 51(6), 971979.
speak the Portuguese language. McCord, G., Gilchrist, V. J., Grossman, S. D., King, B. D.,
McCormick, K. F., Oprandi, A. M., et al. (2004).
Discussing spirituality with patients: A rational and
ethical approach. Annals of Family Medicine, 2(4),
Cross-References 356361.
Monod, S., Brennan, M., Rochat, E., Martin, E., Rochat,
Anxiety Disorders S., & B ula, C. J. (2011). Instruments measuring spiri-
Measurement Methods tuality in clinical research: A systematic review. Jour-
nal of General Internal Medicine, 26(11), 13451357.
Quality of Life (QOL)
Sawatzky, R., Ratner, P. A., & Chiu, L. (2005). A meta-
Religion/Spiritual Fulfillment, Satisfaction analysis of the relationship between spirituality and qual-
with ity of life. Social Indicators Research, 72(2), 153188.
Duke Severity of Illness Checklist 1717 D
Yi, M., Mrus, J., Mueller, C., Luckhaupt, S., Peterman, A., Description
Puchalski, C., et al. (2007). Self-rated health of
primary care house officers and its relationship to
psychological and spiritual well-being. BMC Medical The Duke Severity of Illness Checklist (DUSOI)
Education, 7(1), 9. (Fig. 1) was developed by Parkerson, Broadhead,
Tse, Hammond, and Yarnall (Parkerson et al.,
1993, 1994, 1995) using clinical judgment to
measure a patients severity of illness (burden of
Duke Severity of Illness Analog Scale illness) during a 1-week time period for all iden-
(DUSOI-A) Duke/World Organization tified health problems, with the following sever- D
of Family Doctors Severity Illness ity parameters for each diagnosis: symptom
Checklist (DUSOI/WONCA) status, complications, prognosis without treat-
ment, and treatability. The DUSOI can be com-
Duke Severity of Illness Checklist pleted by the health-care provider at the time of
the patient encounter or by a clinician medical
record auditor at a later date. Three types of
scores can be calculated: the Diagnosis DUSOI
Duke Severity of Illness Checklist score for the severity of each health problem
separately, the Overall DUSOI score for the com-
George R. Parkerson Jr. bined severity of all health problems, and the
Community and Family Medicine, Comorbidity DUSOI score for the severity of
Duke University School of Medicine, Durham, comorbid health problems other than one speci-
NC, USA fied health problem. Scoring on a scale of 0100
can be done manually or by computer.

Synonyms
Reliability
Burden of illness; Comorbidity; Determinants of
health-related quality of life (HRQOL); Duke For interrater reliability among medical record
Severity of Illness Analog Scale (DUSOI-A) clinician auditors for Overall DUSOI scores in
Duke/World Organization of Family Doctors four studies, the intraclass correlation coefficient
Severity Illness Checklist (DUSOI/WONCA); (ICC) ranged from 0.54 to 0.79 (Parkerson, et al.,
DUSOI; Prognosis; Severity of illness; Symptom 1989, 1993, 1994 & unpublished data). For
level; Treatability of illness interrater reliability between a single auditor
and multiple health-care providers in three
studies, the ICC ranged from 0.57 to 0.77
Definition (Parkerson et al., 1993, 1994 & unpublished
data). For intrarater reliability for the same audi-
The Duke Severity of Illness Checklist (DUSOI) tor in two studies, the Spearman rank-order cor-
is an instrument that uses clinical judgment relation coefficient ranged from 0.68 to 0.89
to measure a patients severity of illness (Parkerson, et al., 1989, 1993).
(burden of illness) for all identified health
problems during a 1-week period of time, using
the following severity parameters for each diag- Validity
nosis: symptom status, complications, prognosis
without treatment, and treatability. It can be Diagnosis DUSOI scores were compared among
completed by a health-care provider or medical patient groups with different diagnostic profiles
record auditor. in seven studies and with different levels of
D 1718 Duke Severity of Illness Checklist

Duke Severity of Illness Checklist, Fig. 1 Duke severity of illness checklist

health-related quality of life (HRQOL) in three Diagnosis DUSOI scores (scale 0100) among
studies. Overall DUSOI scores were used to patients with different diagnoses ranged from
predict future HRQOL in one study and 13.9
10.7 S.D. for menopausal syndrome to
health services utilization in three studies. 69.1
14.5 S.D. for insulin-dependent diabetes
Duke Severity of Illness Checklist 1719 D

Duke Severity of Illness Checklist, Fig. 2 Duke and World Organization of Family Doctors severity of illness
checklist

mellitus (Parkerson et al., 1993). The Overall Discussion


DUSOI score was 74.7
13.9 S.D. for end-stage
renal disease (ESRD) patients on hemodialysis The DUSOI is a brief instrument for assessing
compared with 43.4
18.6 S.D. for primary a patients severity of illness from the providers
care patients (Parkerson & Gutman, 1997a). In perspective by evaluating symptom status, com-
a cross-sectional analysis, Overall DUSOI scores plications, prognosis without treatment, and
explained 15 % of the variance in Duke Health treatability for each of the patients diagnoses.
Profile (DUKE) HRQOL scores (Parkerson et al., Completing the DUSOI requires an average of
1992). In a prospective analysis, the baseline 12 min of provider time or 23 min of medical
Overall DUSOI score was 51.3
18.7 S.D. record auditor time. Two other versions of the
for primary care patients whose 18-month total DUSOI are the Duke Severity of Illness Analog
clinic charges were in the upper tertile, compared Scale (DUSOI-A) (Parkerson et al., 1993), which
with 43.7
17.2 S.D. for other patients, can be used to rate overall severity of illness
with an odds ratio of 1.023 for DUSOI globally on an analog scale, rather than rating
scores predicting the higher charges (Parkerson, each diagnosis separately, and the Duke/World
et al., 1995). Organization of Family Doctors Severity of
Reliabilty and validity data and references are Illness Checklist (DUSOI/WONCA) (Parkerson
detailed in the Users Guide by Parkerson (2002). et al., 1996) (Fig. 2), which is scored immediately
Further information is available on the website by the provider. The DUSOI is available
http://healthmeasures.mc.duke.edu. in American English and German, and the
D 1720 Duke Social Support and Stress Scale (DUSOCS)

DUSOI/WONCA, in American English, German, Parkerson, G. R., Jr., Michener, J. L., Wu, L. R., Finch, J.
French, Dutch, and Norwegian. Because of N., Muhlbaier, L. H., Magruder-Habib, K., et al.
(1989). Associations among family support, family
its predictive value for health outcomes, the stress, and personal functional health status. Journal
DUSOI has been combined with three other of Clinical Epidemiology, 42, 217229.
predictors, i.e., age, gender, and DUKE HRQOL
scores, as an ambulatory case-mix classification
system called the Duke Case-Mix System
(DUMIX) (Parkerson et al., 1997b, 2001). Duke Social Support and Stress Scale
(DUSOCS)

Cross-References George R. Parkerson Jr.


Community and Family Medicine, Duke
Duke Anxiety-Depression Scale (DUKE-AD) University School of Medicine, Durham,
NC, USA
Duke Health Profile (DUKE)

References Synonyms

Parkerson GR Jr. (2002). Users guide for Duke health Determinants of health-related quality of life
measures. Durham NC USA: Department of (HRQOL); Family stress; Family support;
Community and Family Medicine, Duke University Nonfamily support; Nonfamily stress; Perceived
School of Medicine.
Parkerson, G. R., Jr., Bridges-Webb, C., Gervas, J.,
well-being; Personal social network; Social
Hofmans-Okkes, I., Lamberts, H., Froom, J., et al. stress; Social support
(1996). Classification of severity of health problems
in family/general practice: An international field trial.
Family Practice, 13, 303309.
Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
Definition
(1992). Quality of life and functional health of primary
care patients. Journal of Clinical Epidemiology, The Duke Social Support and Stress Scale
45(11), 13031313. (DUSOCS) is a 24-item self-report questionnaire
Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
for measuring social support (12 items) and social
(1993). The Duke severity of illness checklist
(DUSOI) for measurement of severity and comorbid- stress (12 items) at a given point in time. It can be
ity. Journal of Clinical Epidemiology, 46, 379393. completed by the respondent or by an
Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J. interviewer.
(1995). Health status and severity of illness as
predictors of outcomes in primary care. Medical
Care, 33, 5366.
Parkerson, G. R., Jr., & Gutman, R. A. (1997a). Predictors Description
of functional health status of end-stage renal
disease patients. Health Care Financing Review,
The Duke Social Support and Stress Scale
18(4), 3749.
Parkerson, G. R., Jr., Hammond, W. E., & Yarnall, (DUSOCS) was developed by Parkerson et al.,
K. S. H. (1994). Feasibility and potential clinical use- (1989a, 1991). It is a 24-item self-report ques-
fulness of a computerized severity of illness measure. tionnaire for measuring social support (12 items)
Archives of Family Medicine, 3, 968973.
and social stress (12 items) at a given point in
Parkerson, G. R., Jr., Harrell, F. E., Jr., Hammond, W. E.,
& Wang, X.-Q. (2001). Characteristics of adult time (Fig. 1). It can be completed by the respon-
primary care patients as predictors of future health dent or by an interviewer. It is user-friendly
services charges. Medical Care, 39, 11701181. because of its small number of brief, easy-to-
Parkerson, G. R., Jr., Michener, J. L., Yarnall, K. S. H., &
Hammond, W. E. (1997b). The Duke Case-Mix Sys-
understand questions and response options.
tem (DUMIX) for ambulatory health care. Journal of Respondents are asked to rate family members
Clinical Epidemiology, 50(12), 13851394. and nonfamily members on a four-point scale
Duke Social Support and Stress Scale (DUSOCS) 1721 D

Duke Social Support and Stress Scale (DUSOCS), Fig. 1 Duke Social Support and Stress Scale (DUSOCS)

(none, some, a lot, or there is no such wife, husband, or significant other person,
person) for the amount of support and/or stress children or grandchildren, parents or grand-
caused by each relationship. On the questionnaire parents, brothers or sisters, other blood rela-
family members are grouped in six categories: tives, and relatives by marriage. There are
D 1722 Duke Social Support and Stress Scale (DUSOCS)

four categories of nonfamily members: neigh- average DUSOCS family support scores (47.7
bors, coworkers, church members, and versus 54.1) at baseline predicted higher
other friends. Also, the respondent indicates 18-month charges (>$268 versus <$268) with
the type of person who is most supportive and an odds ratio of 1.011, and higher average
the type who is most stressful. DUSOCS family stress scores (25.6 versus 19.0)
Separate scores on a scale of 0100 can be predicted higher charges with an odds ratio
generated for family support, family stress, of 1.018.
nonfamily support, and nonfamily stress. Also, Reliability and validity data and references are
total social support and social stress scores can be detailed in the Users Guide by Parkerson (2002).
derived by combining family and nonfamily Further information is available on the website
scores. Scoring can be done manually or by http://healthmeasures.mc.duke.edu.
computer.
Discussion
Reliability The DUSOCS may be the only validated self-
Test-retest correlations for temporal stability in report questionnaire that measures both social
two studies (Parkerson et al., 1989a, 1992) were support and social stress in the same person at
family support 0.76 and 0.73, nonfamily support the same point in time. It is user-friendly because
0.67 and 0.50, family stress 0.40 and 0.58, and each of its 24 questions is brief and easy to under-
nonfamily stress 0.68 and 0.27. Cronbachs alpha stand, there are only four response options for
correlations for internal consistency in one study each question, it is short enough to be printed on
(Parkerson et al., 1992) were family support 0.71, one side of one page, it can be self-administered
nonfamily support 0.70, family stress 0.69, and in less than five minutes, and it can be scored
nonfamily stress 0.53. manually. It has been used primarily for research
in the clinical setting, both in primary care and
Validity renal dialysis patients.
DUSOCS scores (scale 0100) were compared
with scores of other support and stress measures
for the same patients in three studies (Parkerson
et al., 1989a, 1991, 1992), compared between
References
patient groups having different diagnoses and
Parkerson, G. R., Jr. (2002). Users guide for Duke Health
severity of illness in eight studies (Parkerson Measures. Durham, NC: Department of Community
et al., 1989a, b, 1991, 1992, 1995, 1996, and and Family Medicine, Duke University School of
Parkerson & Gutman, 1997a, b), and used to Medicine.
Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
predict health-care utilization in one study
(1991). Validation of the Duke Social Support and
(Parkerson et al., 1995). For example, in primary Stress Scale using the Duke Health Profile. Family
care patients, DUSOCS family support scores Medicine, 23, 357360.
had Spearman rank-order correlations of +0.43 Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
(1992). Quality of life and functional health of primary
with Family Strengths scores and 0.19 with
care patients. Journal of Clinical Epidemiology,
Family Inventory of Life Events (FILE) scores. 45(11), 13031313.
DUSOCS family stress scores had the expected Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
opposite correlations of 0.44 and +0.45 with the (1995). Perceived family stress as a predictor of
health-related outcomes. Archives of Family Medicine,
same comparison measures. In another study 4, 253260.
(Parkerson & Gutman, 1997a), regression ana- Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C.-K. J.
lyses showed that DUSOCS family stress scores (1996). Anxiety and depression symptom identifica-
explained 4.9 % of the variance in Duke Anxiety- tion using the Duke Health Profile. Journal of Clinical
Epidemiology, 49, 8593.
Depression (DUKE-AD) scores in primary care
Parkerson, G. R., Jr., & Gutman, R. A. (1997a). Predictors
patients, compared with 7.0 % in ESRD patients. of functional health status of end-stage renal disease
In another study (Parkerson et al., 1995), lower patients. Health Care Financing Review, 18(4), 3749.
Durban (South Africa), Quality of Life 1723 D
Parkerson, G. R., Jr., & Gutman, R. A. (1997b). Perceived Description
mental health and disablement of primary care and
end-stage renal disease patients. International Journal
of Psychiatry in Medicine, 27(1), 3345. Research Locale
Parkerson, G. R., Jr., Michener, J. L., Wu, L. R., Finch, J. N., Durban, which is a port city on the east coast of
Muhlbaier, L. H., Magruder-Habib, K., et al. (1989a). South Africa, has a population of approximately
Associations among family support, family stress, and 3.5 million people. The Durban Metropolitan
personal functional health status. Journal of Clinical
Epidemiology, 42, 217229. Area is administered by eThekwini Municipality.
Parkerson, G. R., Jr., Michener, J. L., Wu, L. R., Finch, J. N., It is Africas busiest port and is South Africas
Broadhead, W. E., Muhlbaier, L. H., et al. (1989b). The second largest industrial hub. It provides key D
effect of a telephone family assessment intervention on trade linkages to Johannesburg, which is South
the functional health of patients with elevated family
stress. Medical Care, 27, 680693. Africas largest industrial hub. The major
economic sectors are manufacturing, tourism,
finance, and transport. Durban has a complex
topography which is intersected by 19 rivers
DUQOL that flow to 98 km of coastline.

Drug User Quality of Life (DUQOL)/Injection Background


Drug User Quality of Life (IDUQOL) Scale Measuring quality of life in Durban was first
proposed by the Quality of Life Task Group in
1994 (Wright. C). The Task Group found its
relevance in the mission statement, which at
Duration Models of Survival the time included the following statement to
improve the quality of life for all within
Survival Analysis Durban. Any interventions that the City Council
would make in improving quality of life would
require a clear understanding of what is meant by
quality of life in the context of city service
Durban (South Africa), Quality of Life delivery. It was stated that the quality of life
indicators would need to be clear and to be mea-
Brian OLeary surable and would need to have two components.
Corporate Policy Unit, eThekwini Municipality, The first was to be objective and would be
Durban, South Africa concerned with socioeconomic and physical con-
ditions. The second would be subjective and
would relate to perceptions, feelings, or
Synonyms reactions to prevailing conditions (Wright,
1994. p. 1). The Task Group also made the point
Community perceptions in Durban, South Africa that the report was focused on the areas where the
City Administration had direct influence, which
were the objective measures of quality of life.
Definition It was acknowledged that the subjective measures
were important but it was felt the city had less
Quality of life in Durban survey is concerned influence on the subjective measures.
with general satisfaction with life, quality of In 1994, the population of Durban was
place, and satisfaction with City Council experiencing high levels of poverty and
services. Quality of life information should be unemployment and was located in
seen as a strategic resource for supporting high-density, under-resourced areas. The Task
continued development and the future satisfac- Group therefore recommended that the core
tion of its citizens. indicators should be basic needs and economic
D 1724 Durban (South Africa), Quality of Life

growth indicators. The core indicators would information available to guide policy makers in
monitor two needs: first is the need for adequate the Durban Metropolitan Area Councils. The
shelter, water, sanitation, refuse removal, and objectives were to develop a linear additive
electricity and the second was the need for model of quality of life measures which includes
development so that the disadvantaged obtained the objective and subjective domains. The objec-
the economic capacity to determine their own tive domains were to be supplied by the service
future (Wright, 1994 p. 2). In this context, the departments of the City Council, and the subjec-
Task Group defined quality of life indicators as tive measures would be obtained through
either a proxy or a direct measurement of conducting quantitative and qualitative research.
a particular aspect of development or need The report stressed that the subjective aspects of
(Wright, 1994 p. 2). The indicators were intended quality of life, despite their importance, had pre-
to be measures of outputs and results rather than viously not been adequately researched in the
inputs, and they should allow for regional and context of local government. The institutional
international comparability. It was proposed that arrangements established two committees: the
indicators be developed in the following Project Steering Committee (PSC) and the
categories: Research Advisory Committee (RAC). The Pro-
Socioeconomic ject Steering Committee consisted of staff from
Water and sanitation the Urban Strategy Department, now known as
Electricity and energy the Corporate Policy Unit, and they were to coor-
Shelter/housing dinate, monitor, review, and evaluate the study.
Land use The Research Advisory Committee (RAC) com-
Access/transport prised academics from Tertiary Institutions in the
Education Durban area. Some of the key tasks of the RAC
Health were as follows: to assist in the research design,
Economic and development to ensure that research ethics were adhered to
Environment in the design, to develop validity and reliability
Culture and recreation measures, to refine the indicator list, and to advise
Safety/welfare on time series development. The program had 6
Telecommunications phases as follows: (1) project preparation and
Community involvement the establishment of institutional arrangements;
Finance (2) approval by the 7 Metro Councils, promotion,
The critical starting point was identified as and fundraising; (3) commission and manage-
the setting up of a multidisciplinary task team ment of the survey by the PSC; (4) analysis and
which would reach agreement on the indicators review of results; (5) reporting and information
and to propose a monitoring program (Wright, dissemination; and (6) evaluation.
1994 p. 5). The Quality of Life Task Group Once the RAC and the PSC had drafted the
concluded that quality of life information should quantitative questionnaire, it became apparent
be seen as a strategic resource for supporting that a third committee was required to increase
continued development of the region and the the relevance for the City Council service
future satisfaction of its citizens. delivery departments (OLeary, 2001). This
In February 1998, Allan C. et al. produced group of experts from the service delivery depart-
a document titled Quality of Life Research Pro- ments was called the Technical Working Group
ject Proposal, which outlined the mission, objec- and was comprised of staff from the following
tives, institutional arrangements, and program departments: Economic Development, Health,
required to monitor quality of life indicators. Electricity, Housing, Library Services, Water,
The mission of the project was to undertake Parks, Traffic and Transportation, and Local
continuous triangular longitudinal studies of Councils Planning Departments and the Urban
quality of life indicators, with an aim to make Strategy Department. The refinements that the
Durban (South Africa), Quality of Life 1725 D
TWG made ensured that the questions reflected Measuring Quality of Life
the levels of service provided in Durban. The 7 The 1998 questionnaire included one question
Metro Councils, which have now been consoli- regarding quality of life in the personal
dated into one council, approved of the project well-being section. The question was phrased as
and its budget and recommended that it run for 5 follows: In general how satisfied have you been
years. with your life over the past year? and the
responses were provided in a 5-point Likert
Sample Size scale (very satisfied, satisfied, neither satisfied
The sample size was calculated using the or dissatisfied, dissatisfied, and very dissatisfied). D
following formula (Wegner, 2000. p. 461): This question remained as it was between 1988
n N(pqz2)__ and 2002, during which time correlations
NE2 + (pqz2) between life satisfaction, socioeconomic status,
z level of confidence and services levels were undertaken. These
E precision (sample error) correlations did provide some insight into
p variability the issues that could be used to improve quality
q (1-p) of life. Due to the non-causality of correlations, it
n sample size was decided to include a follow-up question that
N households would probe the reasons for life satisfaction.
The confidence level was set at 95 % and the Hence, the 20002001 and 20012002 ques-
precision level at 3 %, which resulted in tionnaires were amended to include a follow-up
a sample size of 1,200 households. It was decided question which asked what is the main reason
to conduct 30 interviews per sample area, and for your life satisfaction or dissatisfaction?
this meant that there would be 40 primary Responses to these open-ended questions were
sampling units (PSUs). The 40 PSUs were more informative regarding reasons for dis-
stratified and proportionately allocated according satisfaction than for satisfaction with life. These
to the percentage of households in the urban responses still did not provide a detailed under-
core, periphery, and rural areas. The PSUs standing of the quality of life domains and our
were randomly selected within the strata, respondents experience of the domains. The
and within each PSU, the 30 households Detroit Area Study, described by Marans and
were randomly selected as the sample unit Couper (2000), was the source of an expanded
(OLeary, 2007). range of questions regarding the domains of qual-
The 1998 questionnaire had the following ity of life, and, as seen below and in Table 1, these
sections: were used to increase the quality of life domain
Economic household roster questions in the 20022003 survey:
Transport household roster Can you tell me how satisfied or dissatisfied
Biographical information, club membership, you are with these parts of your life?
and household assets The amount of money you have available
Personal well-being to you personally
Migration history The amount of time you have to do the
Public and private transport things you want to do
Household services If married, your marriage or relationship
Housing with your partner
Community services Family life the time you spend and the
Use of facilities things you do with them
Everyday problems Friends
Rates and services payment Standard of living the things you have
Perception of neighborhood and the city like houses, car, and furniture
center Your income and your family income
D 1726 Durban (South Africa), Quality of Life

Durban (South Africa), Quality of Life, Table 1 Satisfaction with domains of quality of life
Very Slightly
satisfied Satisfied satisfied Dissatisfied Very dissatisfied Total
The amount of money available 3.1 17.1 21.1 38.8 20 100
to you personally
The amount of time you have to 11 52.9 23.8 11 1.3 100
do the things you want to do
If married, your marriage or 33.2 51.2 11 3.8 0.8 100
relationship with your partner
Family life the time you spend 27.9 50.7 14.4 6.5 0.5 100
and the things you do with them
Friends the time you spend and 19.4 49.9 24 5.6 1 100
the things you do with them
Standard of living the things you 8.6 31.4 28 21.8 10.2 100
have like houses, cars, furniture
Household income including your 5.2 20.9 24.2 32.7 17 100
income and other family incomes
The way you spend your leisure 11.1 45.1 27.2 12.8 3.7 100
time recreation, relaxation, etc.
Your health in the last year 17.1 47.2 22.6 10.6 2.6 100
Satisfaction with life over the past year 6.9 35.4 37.9 16.5 3.3 100

The way you spend your leisure time life and satisfaction with services surveys in
recreation, relaxation, etc. South African Cities (Palmer Development
Your health in the last year Group, 2010). This review noted that there
In general how satisfied have you been with was a need for a core set of questions so that
your life over the past year? comparative studies could be undertaken and
Using skip instructions the follow-up furthermore recommended that best practice
questions were specifically directed at those methodologies should be used. In response to
who were either satisfied or dissatisfied: this, the Corporate Policy Unit in City Council
If satisfied or very satisfied with life, what is in Durban (eThekwini Municipality) acquired
the main reason for your life satisfaction? the questionnaires from Tshwane, Johannesburg,
If dissatisfied or very dissatisfied with life, and Cape Town. The aim of this was to utilize the
what is the main reason for your life best practices from these four questionnaires to
dissatisfaction? redesign the Durban questionnaire.
At this point, 20022003, in the development This revision of the questionnaire occurred
of the research instrument 5 years had passed, prior to the local government elections in 2011,
which was the original term set down for the which elected a council for a 5-year term.
duration of the project. There had been fairly A position was taken to thoroughly assess the
high interest in the results, however, which led survey instrument prior to the commencement
to funding for the project continuing on an annual of each council term of 5-years. This assessment
basis. would seek to align the instrument with the vision
This instrument design for the quality of life and mission of the City Council as set out in the
domains was used in the annual surveys until Integrated Development Plan, which is a 5-year
20102011, with the exception of 20052006 development plan.
when focus groups were conducted rather The comparative study of the methodologies
than quantitative surveys. used in the quality of life and satisfaction with
The South African Cities Network in 2010 services surveys in South African cities provided
commissioned a comparative study of quality of an ideal opportunity to thoroughly assess the
Durban (South Africa), Quality of Life 1727 D
Durban (South Africa), Quality of Life, Table 2 Life removing a neutral option and replacing it with a
satisfaction reasons slightly satisfied option. The asymmetric scale is
Percent (%) as follows: very satisfied, satisfied, slightly satis-
The time you spend with family 22.1 fied, dissatisfied, and very dissatisfied. As the scale
Marriage/relationship with partner 21.6 of measurement has changed, any analysis of qual-
Health in last year 19.7 ity of life trends should be for the years from
Time available to do things you want 10.4 20022003 to 20102011. The year 20112012
Standard of living 6.4 would become the baseline for a new trend.
The way you spend leisure time 5.7 D
The time you spend with friends 5.6
Quality of Life Results (20112012)
Money available personally 5.1
Respondents who were dissatisfied, including
Household income 3.3
very dissatisfied and dissatisfied, with life totaled
100.0
19.8 %. Table 3 indicates that the domains of
quality of life that were mentioned as being the
reasons for dissatisfaction with life were predom-
inately related to the material aspects of life.
Durban (South Africa), Quality of Life, Table 3 Life Personal finance, household income, and stan-
dissatisfaction reasons
dard of living accounted for 72.2 % of the reasons
Percent (%) given for dissatisfaction. Dissatisfaction with
Money available personally 29.0 health was mentioned by 11.8 %, and dis-
Household income 23.1
satisfaction with social and leisure domains was
Standard of living 20.1
mentioned by 14 %.
Health in last year 11.8
Those that mentioned that they were either
Time available to do things you want 4.1
satisfied or very satisfied totaled 42.3 %.
The way you spend leisure time 3.9
The time you spend with family 3.5
Conversely to the respondents who were dissat-
Marriage/relationship with partner 2.5 isfied, 54.1 % of the satisfied respondents in
The time you spend with friends 1.9 Table 2 mentioned social domains, such as family
100.0 time, marriage/relationship, and time to do the
things that they wanted, as among the main rea-
sons for life satisfaction. Health was mentioned
by 19.7 % of respondents as a reason for life
questionnaire prior to the commencement of satisfaction. It is worth noting that health is the
a new 5-year term of the City Council. The only domain that scored prominently in the
20112012 revision was substantial regarding reasons for satisfaction and dissatisfaction.
the public amenity service-related questions.
The quality of life domain questions remained Conclusion
as they were since 2003, but the personal It is clear from the results that the City Council in
well-being and the economic outlook section Durban (eThekwini Municipality) can deliver
was moved toward the end of the questionnaire. services that will have a positive impact on
The follow-up question regarding the reasons for satisfaction with life. The delivery of basic house-
satisfaction with life changed from an open- hold services, public amenities, infrastructure, and
ended design, and respondents were asked to an investor-friendly environment will improve
choose the three most important domains of living conditions and create the platform for eco-
quality of life that contributed to either life nomic growth and job creation. This will improve
satisfaction or dissatisfaction. the standard of living and improve the finances of
The most important revision was to the households. Investment in the health sector and
Likert scale. The revision was the adoption of ensuring a healthy environment will contribute
an asymmetric scale which had the effect of significantly to increasing satisfaction with life.
D 1728 DUREL

Cross-References
Duties and Obligations
Community QOL measures
Community satisfaction Human Rights
Community well-being Index
Sample

Duty-Based Ethics
References
Deontology
Allan, C., Naidoo, H., Ngcobo, R., & Whitfield, C. (1998).
Quality of life research project proposal. Unpublished
report to The Durban Metro Council. Durban.
Marans, R. W., & Couper, M. (2000). Measuring the
quality of community life: A program for longitudinal Dwelling Size
and comparative international research. Proceedings
of the Second International Conference on Quality of
Andrew Sanderford and Charles T. Koebel
Life in Cities (Vol. 2, pp. 386400). 810 March.
Singapore: University of Singapore. Urban Affairs and Planning, College of
OLeary, B. (2001). Residential quality-of-life and needs Architecture and Urban Studies, Virginia Tech,
assessment research in Durban, South Africa. Fourth Blacksburg, VA, USA
Conference of the International Society for Quality of
Life Studies in Washington, DC.
OLeary, B. (2007). Changes in the quality-of-life of
Durbans People. Social Indicators Research (Vol. Synonyms
81, pp. 357373). Springer, Netherlands.
Palmer Development Group. (2010). Review of quality of
Dwelling unit size; House size; Housing unit size
life and customer satisfaction surveys undertaken by
SACN member cities. Johannesburg: South African
Cities Network.
Wegner, T. (2000). Quantitative methods for marketing Definition
decisions. Cape Town: Juta.
Wright, C. (1994). Report on a proposal for monitoring
Quality of Life indicators for Metropolitan Durban. A description of the physical size of a dwelling
Unpublished Report to the City of Durban. Durban. unit in square feet (or square meters), the number
of bedrooms, or total number of rooms excluding
closets and other storage spaces.

DUREL
Description
Duke Religious Index in Portuguese
A dwelling unit can be a house, an apartment,
a mobile home, a group of rooms, or a single
room that is occupied (or if vacant, is intended
DUSOI for occupancy) (Census, 2007). More specifi-
cally, a dwelling unit is real property (or in
Duke Severity of Illness Checklist the case of a mobile home personal property)
improved with a structure that provides basic
living accommodations, including sleeping
space, bathroom, and cooking facilities (IRS,
Dutch Life Situation Index 2008). Dwelling size describes the dimensions
in square footage (or square meters) or the
SCP Life Situation Index number of bedrooms or non-storage rooms.
Dyadic Satisfaction 1729 D
The measurement seeks to provide a summary Future research should continue to monitor
description of the dwelling unit that can be placed demographic changes in populations and their
in the context of descriptors such as the number of relationship to the current housing stock.
occupants, age of dwelling unit, occupant tenure, This will allow for a more refined projection of
status as rental or owner occupied, household the spatial needs of housing consumers and their
income, and property value to create statistics or abilities to pay. Further, it will be important to link
ratios that can describe the state of the dwelling dwelling size data with energy efficiency and also
unit and its position and value as a part of a transportation research to optimize the methods,
neighborhood or housing market (Census, 2007). systems, and policies that influence energy con- D
National census bureaus and national-level servation and a reduction in vehicle miles traveled
housing departments collect and analyze or other related metrics. Similarly, it will be
dwelling size data according to locations and important to examine the roots of the Great
political subdivisions. Additionally, local tax Recession to understand the influence of home
assessment departments collect dwelling size ownership and growth policies on future housing,
information to provide the basis for property tax land use, transportation, energy, and tax policies.
assessments. Other government departments or
political subdivisions (such as a state or local
jurisdiction) or private firms also use the data to Cross-References
estimate trends within housing markets (national,
state, or local), including their ability to meet Public Policy
the spatial or affordability needs of the popula-
tion proximate to the location of the units (NAR,
2011; Nechayev, 2010). References
Dwelling size is related to a number of quality
of life topics such as unit design and construction Census U. S. (2007). Summary file 1: Technical
documentation.
materials, energy efficiency, land use policy, tax
Edwards, J., & Fuller, T. (1994). Household crowding and
policy, and crowding. Specifically relating to its consequences.
design, quality of life researchers are interested in IRS. (2008). Definition of dwelling unit. Retrieved from
issues of light, ventilation, sanitation, ingress, http://www.irs.gov/publications/p527/ch05.html#en_
US_2012_publink1000219176.
egress, ceiling heights, and overcrowding. There
Koebel, C., & Renneckar, P. (2003). A review of the worst
are broad ranges of acceptable minimums for case housing needs measure: US Dept of Housing and
design items, as most dwelling units in many Urban Development.
countries must meet minimum established build- NAR. (2011). National association of realtors: Research.
Retrieved December 29, 2010, from http://www.real-
ing codes (e.g., Universal Building Code or Inter-
tor.org/research
national Building Code). However, despite basic Nechayev, G. (2010). How much excess housing supply is
design minimums, there is little consensus on the there? CBRE Econometric Advisors: About Real
maximum number of people that may legally (or Estate Weekly. Retrieved from http://www.cbre.com/
EN/research/Pages/econometricadvisors.aspxe
culturally) inhabit a single room of a dwelling unit.
This metric is known as crowding or
overcrowding. Researchers focusing on crowding
in Western Europe and the USA have tended to Dwelling Unit Size
observe that optimal occupancy for a single room
is 1.5 individuals (Koebel & Renneckar, 2003). Dwelling Size
However, outside this area, Edwards et al. have
shown that attitudes about crowding and personal
living space are complicated and difficult to Dyadic Satisfaction
extricate from cultural values and traditions
(Edwards & Fuller, 1994). Relationship Satisfaction
D 1730 Dying While Giving Birth

Description
Dying While Giving Birth
Dyspareunia is a common and often distressing
Maternal Mortality in South Africa type of pain. The estimated prevalence of female
dyspareunia varies widely across studies and
ranges from approximately 14 % to 34 % for
younger women and from 7 % to 45 % for older
Dysfunctional Attitude Scale (DAS) women (as reviewed in van Lankveld et al.,
2010). Up to 20 % of Canadian adolescent
Need for Approval Measures girls may experience chronic dyspareunia, or
dyspareunia that is present for 6 months or more
(Landry & Bergeron, 2009). Dyspareunia in men
has been studied much less and, until recently,
Dyspareunia was considered rare (Binik, 2010; Davis, Binik,
& Carrier, 2009). For this reason, the current
Kelly B. Smith entry focuses on female dyspareunia.
Department of Obstetrics & Gynaecology, Pain associated with dyspareunia can occur
University of British Columbia, Vancouver, BC, near the vaginal opening (i.e., superficial
Canada dyspareunia) and/or in the pelvic/abdominal
region (i.e., deep dyspareunia). Women with
dyspareunia may also experience pain in other
Synonyms areas of the genitals or with activities other
than intercourse, such as tampon insertion or
Pain, sexual gynecological exams. Given that nonsexual
activities may produce pain for women with
dyspareunia, it has been argued that dyspareunia
Definition should be considered a pain condition versus
a sexual dysfunction (e.g., Binik, 2005). Never-
Dyspareunia refers to pain with sexual inter- theless, dyspareunia often has severe sexual
course. Although controversy exists as to whether effects (Basson, 2012), and the new DSM-5 diag-
dyspareunia should be considered a pain disorder nostic category Genito-Pelvic Pain/Penetration
or a sexual dysfunction [see Peer Commentaries Disorder will be classified as a sexual
on Binik (2005)], it is currently classified as dysfunction.
one of two sexual pain disorders in the Sexual Multiple factors can cause dyspareunia, and,
Dysfunction category of the Diagnostic and from a biopsychosocial perspective, the interac-
Statistical Manual of Mental Disorders, 4th tion of physiological, psychological, and social
Edition, Text Revision (DSM-IV-TR; American factors is thought to influence the development
Psychiatric Association [APA], 2000). and maintenance of such pain (Boyer,
Dyspareunia is defined in the DSM-IV-TR as Goldfinger, Thibault-Gagnon, & Pukall, 2011).
recurrent or persistent genital pain associated Dyspareunia can occur in conjunction with
with sexual intercourse that causes marked a number of medical conditions (e.g., endometri-
distress or interpersonal difficulty (APA, 2000, osis, vaginal infections, pelvic inflammatory
p. 556). It has been proposed that dyspareunia be disease [Boyer et al., 2011; van Lankveld et al.,
subsumed in the upcoming DSM-5 under a new 2010]) or can occur in the absence of relevant
diagnostic category, Genito-Pelvic Pain/Penetra- physical findings such as infection; indeed, the
tion Disorder (Binik, 2010), which will include most common cause of superficial dyspareunia
symptoms of pain, pelvic floor muscle tension, among women of reproductive age is provoked
and marked fear of penetration. vestibulodynia (PVD).
Dyspareunia 1731 D
Provoked Vestibulodynia (PVD) examining general relationship adjustment of
PVD, formerly called vulvar vestibulitis women with dyspareunia have yielded mixed
syndrome (VVS), is recurrent genital pain in results, and, among women with PVD, a recent
women that occurs in the absence of an identifi- review suggested that affected women do not
able physical condition or pathology (Moyal- report lower levels of relationship adjustment in
Barracco & Lynch, 2004). The pain of PVD is comparison to controls (Smith & Pukall, 2011).
experienced at the vulvar vestibule (i.e., vaginal With regard to psychological function,
opening) and is triggered by contact or pressure to increased symptoms of depression and anxiety
the area. Vaginal penetration is the most common have been reported by women with dyspareunia D
trigger of PVD-related pain, and PVD is consid- in comparison to controls (Smith et al., 2009). For
ered the most common type of dyspareunia example, one recent study documented that
among women of reproductive age. Central women with a mood or anxiety disorder were
nervous system changes that produce hypersen- four times more likely to develop chronic genital
sitivity to pain are thought to underlie the devel- pain; genital pain was also associated with new or
opment and maintenance of a number of chronic recurrent onset of a mood or anxiety disorder
pain conditions, including PVD (Basson, 2012). (Khandker et al., 2011). Among adolescent
Unfortunately, the lack of visible findings upon girls with chronic dyspareunia, higher levels of
physical examination can contribute to the fact trait anxiety were found in comparison to
that many women with PVD remain undiagnosed nonaffected girls and such anxiety predicted the
after seeking medical consultation (e.g., Harlow presence of pain during intercourse (Landry &
& Gunther Stewart, 2003). Women with PVD Bergeron, 2011).
may also feel dismissed by and frustrated with
their interactions with health care providers, Treatment
with some perceiving that providers view the It is recommended that a multidisciplinary,
pain as psychosomatic (e.g., Sadownik, Seal, & multimodal, individualized approach be used to
Brotto, 2012). manage dyspareunia (van Lankveld et al., 2010),
and various management options, ranging from
Dyspareunia and Quality of Life medical (e.g., vestibular surgery for PVD) to
Dyspareunia is associated with decreased quality psychological (e.g., cognitive behavioral therapy;
of life, including reduced sexual desire, arousal, mindfulness-based interventions) exist. To
and psychological well-being. In comparison to date, most research regarding treatment for
controls, women with dyspareunia report less dyspareunia has focused on PVD and has shown
sexual satisfaction, desire, arousal, and ability to variable rates of efficacy (see Landry, Bergeron,
orgasm (see Smith, Pukall, & Boyer, 2009 for Dupuis, & Desrochers, 2008). New research
a review). All aspects of the sexual response suggests that a mindfulness-based approach is
cycle can be affected in women with dyspareunia, beneficial for improving pain and quality of life
and comorbidity with other sexual dysfunctions among women with PVD (Brotto, Basson,
(e.g., low sexual desire) is common (van Carlson, & Zhu, 2012); such an approach is
Lankveld et al., 2010). Women with dyspareunia currently undergoing further efficacy testing and
may also report more negative and less positive holds much promise in terms of its ability to
feelings about sexual activity compared to address the pain and associated psychological
nonaffected women (e.g., Brauer, ter Kuile, and sexual difficulties.
Laan, & Trimbos, 2009), and qualitative research
suggests that women with dyspareunia feel inad-
equate as sexual partners and ashamed, and do Cross-References
not feel like real women as a result of
experiencing dyspareunia (e.g., Ayling & Ussher, Anxiety
2008; Kaler, 2006). However, controlled studies Anxiety Disorders
D 1732 Dysthymic Disorder

Marital Adjustment Harlow, B. L., & Gunther Stewart, E. (2003).


Mindfulness A population-based assessment of chronic
unexplained vulvar pain: Have we underestimated
Mood the prevalence of vulvodynia? Journal of the American
Pain Medical Womens Association, 58, 8288.
Relationship Satisfaction Kaler, A. (2006). Unreal women: Sex, gender, identity and
Sexual Arousal Disorder the lived experience of vulvar pain. Feminist Review,
82, 5075.
Sexual Dysfunction(s) Khandker, M., Brady, S. S., Vitonis, A. F., MacLehose,
Sexual Functioning R. F., Stewart, E. G., & Harlow, B. L. (2011). The
Sexual Interest/Arousal Disorder (SIAD) influence of depression and anxiety on risk of adult
Sexual Satisfaction onset vulvodynia. Journal of Womens Health, 20,
14451451.
Sexual Satisfaction and Sexual Costs in Landry, T., & Bergeron, S. (2009). How young does
Women vulvo-vaginal pain begin? Prevalence and characteris-
tics of dyspareunia in adolescents. Journal of Sexual
Medicine, 6, 927935.
Landry, T., & Bergeron, S. (2011). Biopsychosocial
factors associated with dyspareunia in a community
References sample of adolescent girls. Archives of Sexual
Behavior, 40, 877889.
American Psychiatric Association. (2000). Diagnostic Landry, T., Bergeron, S., Dupuis, M.-J., & Desrochers, G.
and Statistical Manual of Mental Disorders (4th ed., (2008). The treatment of provoked vestibulodynia:
text revision). Washington, DC: Author. A critical review. Clinical Journal of Pain, 24,
Ayling, K., & Ussher, J. M. (2008). If sex hurts, am I still 155171.
a woman? The subjective experience of vulvodynia in Moyal-Barracco, M., & Lynch, P. J. (2004). 2003 ISSVD
hetero-sexual women. Archives of Sexual Behavior, terminology and classification of vulvodynia:
37, 294304. A historical perspective. Journal of Reproductive
Basson, R. (2012). The recurrent pain and sexual sequelae Medicine, 49, 772777.
of provoked vestibulodynia: A perpetuating cycle. Peer Commentaries on Binik. (2005). Archives of Sexual
Journal of Sexual Medicine, 9, 20772092. Behavior, 34(1), 2361.
Binik, Y. M. (2005). Dyspareunia looks sexy on first but Sadownik, L. A., Seal, B. N., & Brotto, L. A. (2012).
how much pain will it take for it to score? A reply to Provoked vestibulodynia: A qualitative exploration
my critics concerning the DSM classification of of womens experiences. BC Medical Journal, 54,
dyspareunia as a sexual dysfunction. Archives of 2228.
Sexual Behavior, 34, 6367. Smith, K. B., & Pukall, C. F. (2011). A systematic
Binik, Y. M. (2010). The DSM diagnostic criteria for review of relationship adjustment and sexual
dyspareunia. Archives of Sexual Behavior, 39, satisfaction among women with provoked
292303. vestibulodynia (PVD). Journal of Sex Research, 48,
Boyer, S. C., Goldfinger, C., Thibault-Gagnon, S., & 166191.
Pukall, C. F. (2011). Management of female sexual Smith, K. B., Pukall, C. F., & Boyer, S. C. (2009).
pain disorders. In R. Balon (Ed.), Sexual dysfunction: Psychological and relational aspects of dyspareunia.
Beyond the brain-body connection (pp. 83104). New In A. T. Goldstein, C. F. Pukall, & I. Goldstein (Eds.),
York: Karger. Female sexual pain disorders: Evaluation and
Brauer, M., ter Kuile, M. M., Laan, E., & Trimbos, B. management (pp. 208212). Oxford, England:
(2009). Cognitive-affective correlates and predictors Wiley-Blackwell.
of superficial dyspareunia. Journal of Sex & Marital van Lankveld, J. J. D. M., Granot, M., Weijmar Schultz,
Therapy, 35, 124. W. C. M., Binik, Y. M., Wesselmann, U., Pukall, C. F.,
Brotto, L. A., Basson, R., Carlson, M., & Zhu, C. (2012). et al. (2010). Womens sexual pain disorders. Journal
Impact of an integrated mindfulness and of Sexual Medicine, 7, 615631.
cognitive behavioural treatment for provoked
vestibulodynia (IMPROVED): A qualitative study.
Sexual and Relationship Therapy. doi: 10.1080/
14681994.2012.686661. Online ahead of print.
Davis, S. N. P., Binik, Y. M., & Carrier, S. (2009). Sexual
dysfunction and pelvic pain in men: A male sexual
Dysthymic Disorder
pain disorder? Journal of Sex & Marital Therapy, 35,
182205. Mood Disorders and Sexuality

Das könnte Ihnen auch gefallen