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Appreciating the New Lease of Life: A Post-Kidney Transplant Experience

A Thesis Presented to

The Faculty of the College of Nursing Graduate Studies

Cebu Normal University

In Partial Fulfillment

Of the Requirements for the Degree

Masters of Science in Nursing

Major in Medical-Surgical Nursing

Clarice Fritz A. Caliwatan

March 2015
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Chapter 1

Introduction

Background and Rationale of the Study

Young adulthood, a phase between the late teens and the mid-thirties

(Potter & Perry, 2007), is a time when systems of the body are at their peak and

prime. It is a period when an individual establishes a relationship with a

significant other and commitment to something (Kozier, Erb, Berman, & Snyder,

2004). It is the high time when the individuals dream and plan.

Despite this said phase of vitality, Jha (2009) pointed out that in Southeast

Asia, the majority of individuals affected by chronic kidney disease are young and

in the most productive years of their lives. Progression of chronic kidney disease

leads to kidney failure wherein the filtering capacity of the kidneys is less than

fifteen percent, thus requiring renal replacement therapy either by dialysis or

kidney transplantation (International Society of Nephrology, 2013).

Kidney transplantation is a surgical procedure that places a healthy kidney

from another person to take over the work of the patients two failed kidneys

(National Institute of Diabetes and Kidney Diseases, 2010). It is a medical

advancement that provides better quality of life to patients with irreversible kidney

failure worldwide (Garcia-Garcia, Harden, & Chapman, 2012). As of 2012 in the

Philippines, 342 patients had a kidney transplant and about a third of these were

young adults aged 18-35 years old (Philippine Renal Disease Registry, 2012).

However, a Norwegian study (Aasebo, Homb-Vesteraas, Hartmann, &

Stavem, 2008) noted that young adults, 18-35 years old, may be more vulnerable
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to chronic diseases than other age groups because of the many important life

events that take place in this period such as education and family building. In

their study, the health-related quality of life (HRQoL) of young adult kidney

recipients was lower than the HRQoL of their counterparts in the general

population even if majority of the young adult kidney recipients were well adapted

in their family and professional lives and were satisfied with their current life

situations. Similarly, being one of the networks that developed innovative

approaches to support young adults with kidney disease in England, East

Midlands Renal Network (2012) recognized that chronic kidney disease can be

particularly troubling for the young adult as this group had issues with denial and

therapy compliance. Furthermore, relatively there are few qualitative studies on

kidney transplantation based in the Philippines, especially taking in consideration

the patients development stage.

This study intended to understand how the young adult kidney transplant

patient perceives his/her experience after having the kidney transplant by

illuminating the meaning of this experience. Understanding the young adults

kidney transplant experience can contribute in provision of effective healthcare to

this particular population.

Objective of the Study

This study aimed to explore and interpret the meanings of the experiences

of young adult patients following kidney transplantation.

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Significance of the Study

This study will help contribute to a deeper understanding of the post-

kidney transplant experiences of young adults. This will benefit the young adult

kidney transplant patients as they gain deeper insight and better self-awareness.

It is also hoped that the young adult post-kidney transplant patients significant

others gain awareness of the meanings of these experiences and be able to

make appropriate responses to it. As for future researchers, this study will help

them generate ideas to make more in-depth studies. Likewise, it is desired that

this study will aid the nurses and other health professionals to reflect and

understand the thoughts, feelings and meanings ascribed by the young adult

kidney transplant patients to their experiences. Optimistically, this in turn will help

in improving the quality of care for these young adult kidney transplant patients.

Finally, the society can benefit from this study as they may utilize the findings of

this study to increase their awareness regarding kidney transplant experience

and thus be able to act upon it appropriately.

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Chapter 2

Review of Related Literature and Studies

Often, organ transplantation is the only hope for end-stage organ failure

such as liver and heart failure, and is the better treatment option for kidney failure

(World Health Organization, 2015). During the past several decades, numerous

studies have been done on transplantation with majority of these have been

quantitative in nature. Meanwhile, qualitative studies are relatively few in the

transplant literature but are equally important as they provide understanding of

peoples behaviors, values and attitudes as well as address unanswered

questions in the transplant field (Tong, Chapman, Israni, Gordon, and Craig,

2013). Review of previous qualitative studies on transplantation will be discussed

in this chapter.

Jonason (1993) in her doctoral dissertation investigated the lived

experience of renal, cardiac, and liver transplant patients through a qualitative,

phenomenological design and triangulation was done using a questionnaire. On

another aspect, Svenaeus (2012) delved into the phenomenological analysis of

how different transplanted organs and tissues such as the kidney, heart, hand

and face relate to identity and selfhood.

Specific to heart transplant experience, Peyrovi, Raiesdana, and Mehrdad

(2014) interviewed heart transplant recipients and analyzed the data according to

Diekelmanns phenomenological guidelines. Still on heart transplantation,

recognizing that little is known about the quality of life of children who had a heart

transplant, Green, McSweeney, Ainley, and Bryant (2007) carried out a focused
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ethnographic study on children by conducting semi-structured interviews with

them. Another ethnographic study was done by Green, Meaux, Huett, and Ainley

(2011), this time on the adolescent age group.

Meanwhile for liver transplant patients, Tayebi and Abedi (2008) chose a

phenomenological approach to study the lived experiences of liver transplant

patients and conducted unstructured interviews. Another qualitative study on liver

transplant experience, Jones (2005) conducted a longitudinal study that

investigated the first year post-transplant recovery of liver transplant recipients by

carrying out semi-structured interviews and utilizing qualitative content analysis

for the interview transcripts.

As for kidney transplantation, there are also a number of qualitative

studies undertaken. Shimazono (2008) contemplated on living related donor

kidney transplantation in the Philippines in the light of anthropological theory of

the gift. He interviewed kidney recipients and focused on those who received

kidneys from a relative. Later on, Shimazono (2013) explored how Filipino

transplant patients uniquely experienced accommodating a transplanted organ in

their bodies and how they reestablished the relationship between the body and

the self. His fieldwork included in-depth interviews, participation of activities in the

patients self-help group and informal communication with the groups members.

On the other hand, Gill (2012) utilized a longitudinal phenomenological

method informed by Heideggerian hermeneutics to explore donor and recipient

experiences of stressors and coping mechanisms associated with live-related

renal transplantation. Whereas, Wiederhold, Langer and Landenberger (2011)

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explored the ambivalent lived experiences and instruction need of patients in the

early period after transplant utilizing Husserls descriptive phenomenology as

they wanted to view the phenomenon the actual way it appears and not how it

appears through prejudice. With regards to the lived experience of renal patients

preparing for and recovering from transplant, Amerena and Wallace (2009)

sought to investigate this using a grounded theory approach.

Concerning emotional issues after kidney transplantation, Baines, Joseph,

and Jindal (2002) gathered written and tape recorded transcripts of interviews

from first cadaver kidney transplant patients during their psychotherapy sessions.

Thematic analysis was done with these transcripts. As for the kidney transplant

patients experience of positive and negative consequences of transplantation

and their adaptive coping strategies, Schipper, Abma, Koops, Bakker,

Sanderman, and Schroevers (2014) studied these utilizing individual interviews

and focus groups.

Pertaining to the weight gain experience after kidney transplantation,

Stanfill, Bloodworth, and Cashion (2012) explored this using a focus group of

kidney transplant patients who had gained significant weight during a 12-month

observational study. These patients first answered a 13-question multiple-choice

survey after which a focus group was conducted. Participants were asked about

their feelings regarding their post-transplant weight gain and strategies they

found helpful in losing weight. Themes were drawn out using Long Table

Approach.
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On the other end of the spectrum of kidney transplant outcome is failure.

Gill and Lowes (2009) in their longitudinal case study explored the patient and

familys experiences of kidney transplant failure. They conducted semi-structured

interviews at different intervals, before the transplant and at 3 and 10 months

after the transplant. Interviews were then transcribed and explored for emerging

themes, theories and categories.

Investigations of kidney transplant experiences of adult patients above 18

years old were done utilizing thematic analysis (Kamran, 2012; Orr, Willis,

Holmes, Britton, & Orr, 2011). Also through thematic analysis, Finnegan-John

and Thomas (2013) studied the psychosocial experience of adult end-stage renal

patients who were on dialysis or transplanted. As for children and adolescents

with end-stage renal disease who were also either on dialysis or transplanted,

their lived experiences were explored utilizing an ethnographic approach

(Nicholas, Picone, & Selkirk, 2011)

To summarize, there is little literature specific to the young adult kidney

transplant experience. Qualitative studies specific to young adults with end-stage

renal disease with different treatment modalities were done. A study focused on

the role of the physical body in influencing gender, peer and intimate

relationships utilizing semi-structured qualitative interviews (Lewis & Arber,

2014). Meanwhile, Murray, Dobbels, Lonsdale, and Harden (2014) conducted a

mixed- methods cross-sectional study on the impact of end-stage kidney disease

on education and employment of young adults in the predialysis, dialysis or

transplant phase. The quantitative part of this study took note of the
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demographics as well as the educational and vocational achievements of the

participants. As for the qualitative part, some participants of this study were

chosen for semi-structured interviews to understand their educational and

vocational experiences.

There is a gap in the literature about the experiences of young adults after

kidney transplantation. No studies in the Philippines were found by the

researcher that focuses on the young adult lived kidney transplant experience.
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Chapter 3

Research Methodology

Research Design

This qualitative study utilized Heideggerian interpretive phenomenology as

this approach is concerned about interpreting and understanding the human

experience and not just describing it, with the goal of entering anothers world

(Polit & Beck, 2008) and it is consistent with the research objective of exploring

the meanings of the experiences of young adults after kidney transplantation.

Specifically, the Interpretative Phenomenological Analysis (IPA) method outlined

by Smith, Flowers, and Larkin (2009) was followed as it provided a systematic

analysis of informants accounts while being committed to exploration of how

people make sense of their major life experiences post-kidney transplantation.

Key Informants

Purposive sampling was employed since selected informants particularly

offer insights to the phenomenon in this study (Smith et al., 2009). Inclusion

criteria were: a young adult 18 to 35 years old, underwent kidney transplantation

and, transplant was within the last five (5) years, regardless of the transplant

outcome.

Informants who were invited to take part of the study are personally known

by the researcher as well as referrals from doctors and colleagues. Sample size

was dependent on data saturation, the point when no new information is obtained

and redundancy is achieved (Polit & Beck, 2008). This was reached after six
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interviews. The following are the informants profiles at the time of the interviews

with their assigned pseudonyms in order to protect their identities:

Andy is a 34-year old male, single with one child, who had a kidney

transplant two years ago. He formerly worked abroad and while being in the

Philippines for his leave, he felt nauseated and had his blood pressure checked

which turned out to be elevated. Later, he was diagnosed with kidney failure

secondary to chronic glomerulonephritis at the age of 28. He was on

hemodialysis and about three years later had a kidney transplant. He

experienced graft rejection about a year after the transplant.

Kate is a 35-year old female, married with one child, who had a kidney

transplant almost two years ago. She busies herself being a wife and a mother

while helping out with her husbands business. She felt ill with fever and

subsequent work up revealed she had kidney failure secondary to chronic

glomerulonephritis at the age of 33. Just a few months on hemodialysis, she was

able to have a kidney transplant. To date, she has good graft functioning and

occasionally having only minor cough and colds.

Rose is a 23-year old female, single, who had a kidney transplant about

six months ago. She is a part-time teacher although she stopped when she was

about to have the transplant. She was diagnosed with systemic lupus

erythematosus (SLE) when she was only twelve years old. From then on, her

kidney function was regularly monitored by her nephrologist. With lupus nephritis,

her kidney function declined and was advised to have a hemodialysis access

placed in her arm when she was twenty-one years old. But she never made use
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of this since she had pre-emptive kidney transplantation done. To date, she has

good graft functioning.

Nick is a 20-year old male, single, and had his kidney transplant two years

ago. He is a college student although he had stopped attending school for a

while when diagnosed with kidney failure and shifted courses after having the

transplant. Just as he finished first year of college, he had symptoms like nausea,

weakness and edema and was soon diagnosed with chronic glomerulonephritis

requiring dialysis. He was on hemodialysis for about a year then had the

transplant. To date, he has good graft functioning although having encountered a

few episodes of infections.

Pam is 29-year old female, single, and had her kidney transplant nine

months ago. She helps in the family business of her boyfriend. At age 26, she

presented with nausea, vomiting and increased blood pressure was later

diagnosed with kidney failure secondary to chronic glomerulonephritis. She was

on hemodialysis for about two years before having the transplant. To date, she

has good graft functioning.

Bea is 28-year old female, and had her kidney transplant two years ago.

She used to work abroad in the medical field but now stays at home. Currently,

she is weighing between seeking a clerical job and venturing into business

instead. She experienced symptoms like nausea and edema while still abroad

and was soon found out to have kidney failure secondary to chronic

glomerulonephritis. She was noted to have congenital small bilateral kidneys.

She tried peritoneal dialysis but because of infection, had shifted to hemodialysis.
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She eventually went back to the Philippines. After four years on dialysis, she

finally underwent kidney transplantation. To date, she has good graft functioning

although having encountered a few episodes of infections.

Research Locale

One-time, face-to-face interviews were conducted; two in the informants'

homes, three in the transplant office, and one in a cafe. Location of the interviews

was dependent on the preference of the informant as advocated by Warren

(2001) as cited in Polit and Beck (2008).

Research Instrument

Narrative accounts were taken using a researcher-made semi-structured

interview guide. In semi-structured interviews, the researcher prepared in

advance a topic guide covering different areas with broad opening questions

(Polit & Beck, 2008). This ensured that the researcher obtained extensive

information required without leading the discussion at the same time this allowed

the informants freedom in their words and expressions. Probing questions based

on what the informants shared were asked along the course of the interviews.

The first part of the interview guide was a brief informants profile while the

second part covers the main inquiry which dealt with prepared questions that

were broad and open-ended. The third part was mainly follow-up questions. The

interview guide was structured both in English and Visayan versions.

Data Gathering Procedure

The researcher after explaining to each informant what the study was, its

purpose and implications, secured written informed consent from each informant.
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The consent form was constructed both in English and Visayan versions. After

which, data collection was done through semi-structured interviews with the

informants in their preferred venues. Each interview lasted from half an hour to

over an hour. With the obtained consent, these interviews were audio-recorded

and note taking was done during the course of the interviews. These interviews

were then transcribed.

Data Analysis

Interpretative phenomenological analysis (Smith et al., 2009) was used for

analyzing the data in this study. Close reading of all the transcripts and listening

to the audio recording from the six informants were done in order for the

researcher to immerse herself in the data. Exploratory comments were made

based on the transcripts as well as reflections and observations about the

interview. These notes were then coded into key words or phrases that captured

their essence, transforming them to emergent themes. A chronological list of

emergent themes was made. As connections between emerging themes were

sought, clusters were made and a descriptive label was given to these clusters,

making them superordinate themes. A theme table was made with superordinate

themes and emergent themes with their relevant short extracts from the

transcript, followed by page numbers for easy retrieval. This process was

repeated as the study moved on to the next cases while remaining open allowing

new themes to emerge with each case. Connections and patterns were searched

for across cases leading to reconfiguring and relabeling of some themes

concluding to the construction of a master table with master themes nesting

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subthemes with their corresponding relevant transcript extracts. Taking the final

themes, the narrative account of the study was then written up.

Role of Investigator

The researcher as the sole investigator of this phenomenological study

personally explored the lived experience of the young adult after kidney

transplantation through actual gathering, interpreting, clustering, and analyzing

the substantial data to cull out recurring themes.

Rigor of the Study

Validity and quality of qualitative research are important considerations

and as such, qualitative research is evaluated in relation to a set of criteria

appropriate for it (Smith et al., 2009). A recent guide by Yardley (2000) for

assessing validity and quality of IPA was recommended by Smith et al. (2009) as

this guide is broad ranging, applicable and accessible. With this guide, four

principles were followed for assessing the quality of this research. These were

(1) sensitivity to context, (2) commitment to rigor, (3) transparency and

coherence and (4) impact and importance.

Sensitivity to context was how the researcher showed sensitivity to

awareness of previous understanding to have linked the particular to the abstract

and to the work of others as well as awareness of the socio-cultural setting of the

interaction. Commitment to rigor entailed prolonged engagement with the topic

while rigor referred to the resulting completeness of saturated data through data

collection and analysis. Meanwhile, transparency and coherence related as to

how the stages of the research process were clearly described in the write-up of
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the study while a good fit was made between the research question and the

methodology undertaken. Reflexivity was considered within the principle of

transparency since for researchers who believed that our experience of the world

was profoundly influenced by our assumptions, intentions and actions, it was

equally important to have openly reflected on how such factors may have had

affected the research study. This reflexivity included disclosure of ones

experiences and motivations which led the researcher to have undertaken the

study or consideration of how the work was influenced by external pressures. At

the time of the study, the researcher, a young adult, was a masteral student and

a transplant coordinator with an interest of kidney transplantation. Prior exposure

was giving bedside care for post-kidney transplant patients. Also, the

researchers father was diagnosed with chronic kidney disease. Lastly, impact

and importance was whether the study presented something that was a novel

and challenging perspective which opened up new ways of understanding a

topic. In addition to the theoretical and practical impact of the study, the study

may also serve some social purpose.

Also, an independent audit wherein the researcher has a paper trail from

the initial documentation to the final report (Smith et al., 2009) was provided. This

included initial notes of the research question, the research proposal, interview

guide, audio tapes, annotated transcripts, tables of themes, draft reports and the

final report. This way, the researcher put herself in a place of someone having to

make sense of the final output and check the coherence. These principles were
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adhered to from the studys conceptualization up to the time the results were

published.

Ethical Consideration

This study adhered to the principle on respect of human dignity and this

covered the right to self-determination, right to full disclosure and confidentiality.

The informants had the right to decide voluntarily to take part in the study and

may refuse to give information and may also withdraw his/her participation any

time of the study without penalty. Informants were explained of the purpose and

benefits in joining this study and were given the chance to ask questions and/or

clarifications. Written informed consent was served by the researcher and signed

directly by the informants before the actual study. Informants were informed that

audio recording and note taking are done during the course of the interview.

Specifically in the informed consent, they were informed that they may

stop the interview anytime they felt doing so without any repercussions. A signed

copy of the consent form was given to the informant and a second copy was

filed. The researcher gave the informants the option of reviewing those data

extracts from their own interviews which will be chosen to appear in any public-

domain document. Audio tapes were transcribed and both tapes and interview

notes were stored safely in a locked cabinet which only the researcher had

access. Recordings were discarded three months after the study. The names of

the informants, the people they refer to and location names have been edited to

preserve confidentiality and anonymity.

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Chapter 4

Results and Discussions

Thematic Analysis

After analysis, emergent themes were identified which were later clustered

around 10 superordinate themes. During this process, a number of themes were

revised or discarded if they did not seem relevant (Smith et al., 2009). After

careful analysis and immersion to the informants narratives, these were

collapsed into three master themes, each with corresponding subthemes.

Thematic Discussion

After thorough analysis, three master themes were identified. These

were: (1) Establishing the new normal, with five subthemes, a New Lease in

Life, Freedom from Debilitating Chronic Kidney Failure, the Burden of Being

Transplanted, Perceived Body Image Post-transplant, and Awareness of the

Transplanted Organ; (2) Coping in the Post-transplant Phase, with two

subthemes, Mechanisms Adapted Post-transplant and Dealing with Adverse

Transplant Outcomes; and (3) Starting Over Again, with three subthemes,

Changed Relationship Dynamics (with family, friends, partner and society),

Getting Back, and Redefining Plans and Goals Post-transplant.

These master themes and their constituent subthemes were explored with

each theme illustrated by verbatim extracts from the transcripts. In presenting the

verbatim extracts, some minor changes have been made to improve readability.

Missing material is indicated by empty brackets and added material for

clarification is presented in square brackets. Dotted lines at the beginning or end

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of an extract indicate that the person was talking prior to or after the extract.

Assigned pseudonyms to informants were used. Since informants were given the

freedom to converse both in English and in vernacular, English translations are

given for vernacular extracts.

Theme 1: Establishing the new normal

The new normal is a previously unfamiliar or atypical situation that has

become standard, usual, or expected (New normal, 2015). Informants

described their new normal as kidney transplantation paved the way for radical

changes from pre-transplant to post-transplant phases. While they felt positive

with these changes, they also narrated challenges and difficulties encountered as

they dealt with their current situations and how they incorporated these changes

in their lives.

A New Lease in Life

Informants saw this as another chance in life as they felt invigorated after

kidney transplantation. Illustrated by the following:

Second life jud. Murag brand new life ba gihatag sa imo (It is really a second
life. It is like a brand new life was given to you) Andy

Para nako murag na-happy ko after the transplant kay for me there is a hope.
Before the transplantation hopeless na jud ko. <tearful> [ ] [Kidney transplant is
like a] New life. (For me, it is like I am happy after the transplant since there is
hope. Before the transplantation, I was really hopeless. <tearful> [ ] [Kidney
transplant is like a] New life.) Kate

...undergoing kidney transplant was a good idea for me to have a new life...
Nick

Dako kaayo [impact of kidney transplantation]. Bale para nako, naay additional
lifespan. Murag na-longer gyud akoang lifespan. Unya bale murag ni-back to
normal na ang function gani sa imong body, ana kaysa compare atong gi-
dialysis (It was huge [impact of kidney transplantation]. For me, there is an
additional lifespan. It is like my lifespan is longer. And then it is like your body got
back to normal functioning, as compared to during dialysis) Pam
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Karon lahi ra. Healthy jud ka. Healthy jud imong paminaw. Lahi ra before [the
transplantation]. (It is really different now. You are really healthy. You really feel
healthy. Unlike before [the transplantation].) Bea

Likewise, many kidney recipients after having recovered from the operation felt

revitalized, reborn and, enjoyed a new lease on life (Shimazono, 2013).

Kidney transplantation boosted the young adults overall health and gave them a

renewed sense of hope for living.

Freedom from Debilitating Chronic Kidney Failure

Informants before having a kidney transplant dealt with symptoms of

chronic kidney failure. Almost all had to have dialysis before the transplant and

except for Rose who had a pre-emptive transplantation which means she had the

transplant before initiating dialysis but still did experience symptoms of chronic

kidney failure. They reported felt freedom from these limitations. Andy described

this like an exhilarating feeling of winning a challenging sport:

makalakaw nako ug dili nako kutusan.. Dili na magsakit ako tiyan dayon. Dili
ko dali malipong. Maka-ihi nako ug regular, normal [ ] Lahi ra jud naka-transplant
ka ug nagpa-dialysis [ ] Unya lakaw-lakaw dili naka kapoyon [ ] Murag imong
feeling nakadaog ka ug extreme sports, kanang Ironman. Murag ingon ana
imong feeling... (I can now walk without catching my breath. My stomach
does not ache easily. I do not get dizzy easily. I can urinate regularly and
normally. [ ] Having the kidney transplant is really different from undergoing
dialysis. [ ] I do not get easily tired walking. [ ] It is like winning in extreme sports,
like Ironman. It feels just like that)

As for Pam, she felt delighted with the resumption of her menstrual cycle and

what it signified. As she narrated:

Pag-month after [the transplant] gi-dugo dayon ko. [ ] Naa pa koy hope na maka-
anak pa ko <laughs> (A month after [the transplant], I had my menstruation
already. [ ] I still have hope, that I can bear a child <laughs>)

Apart from freedom from physical limitations, strict dietary restrictions during

dialysis were also lifted off their shoulders. For example as Bea reported:
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strict kaayo ug diet mag-dialysis ka. Pero pag-after naka-transplant naka,

although naa koy kinahanglan kuanon [to comply] na diet, [ ] so much better siya
karon... (diet was really strict while you are still dialyzing. But after being
transplanted, although there is still a diet [to comply], it is so much better now.)

As for Rose, she related how she is currently off erythropoietin injections and just

has supplementary tablets to fight off anemia:

So nagsige ko ug Recormon [erythropoietin injections] ato bag-o ko gi-transplant,

during transplant and few weeks after the transplant. Pero karon kay kuan
nalang tablets. (So I was on Recormon [erythropoietin injections] before I had the
transplant, during the transplant up until a few weeks after the transplant. But
now, I am just taking tablets.)

Freedom from scheduled dialysis sessions was advantageous as it meant more

time to do individual pursuits:

I was able to resume with my studies [ ] When I was diagnosed that I was having
a renal failure, I had to stop [schooling] because three times a week I have to
undergo a hemodialysis. So I dont have enough time to study. Nick

Dili na hindrance gani ang [ ] maglakaw-lakaw sige kay adto dialysis dayon inig
abot luya [ ] naa nako pirmi didto [at the dialysis center] [ ] dili nako makuan
[spent] ang time... (It is not anymore a hindrance to stroll around unlike before
with dialysis I felt weak upon reaching home [ ] I am always there [at the dialysis
center] [ ] my time is not [spent] there already...) Pam

Benefits to living with a transplanted kidney are linked to increased energy and a

freer lifestyle (Orr et al., 2007). Although, not a cure for kidney failure, kidney

transplantation dramatically improved the symptoms felt by the informants, like a

huge burden was lifted off them.

The Burden of Being Transplanted

Ironically however, as the burden of majority of the symptoms of chronic

kidney failure was lifted off, informants now felt the weight of the things they

needed to observe after the kidney transplant procedure. For example:

after sa transplant [ ] healthy living na gyud ko [ ] magwatch ko sa ako diet [ ]

Daily routine na ni nako. Murag trabaho na ni nako. Obligation na ni nako na
mag-amping (after the transplant [ ] I really observed healthy living [ ] I watch
my diet [ ] It is my daily routine already. It is like my work. It is my obligation to be
careful) Andy
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there is a limitation when it comes to health [ ] there is a limitation nga dili

naka labi na sa pagkaon nga contraindicated [ ] so kinahanglan jud na kanang
i-observe nako (there is a limitation when it comes to health [ ] there is a
limitation that you cannot especially with food that is contraindicated [ ] so I
really need to observe) Kate
Right now I can no longer drink alcoholic beverages and smoke. [ ] I just told
myself that Ive been through that, done that. It was a worth it experience. So
yeah, Im a little bit satisfied with what Ive done and I just let it go. Nick

On the later part of the interview, Andy spoke more about the feeling like being

imprisoned with the reverse isolation precautions he complied with:

Mura kog piniriso diri. Palit rako makaon, tan-aw TV, DVD unya mag-internet.
Ang imo ra advantage sa piniriso siguro makagamit ka ug communication tanan
naa kay internet [ ] naay cellphone. (I felt like a prisoner here. I just buy food,
watch TV, DVD and then surf the internet. Maybe the only advantage over a
prisoner is having access to communications like internet and cellphone) Andy

Some informants also felt the limitations set by their attending physicians who

took up the paternalistic role of a doctor:

Akong nephrologist maoy mas mahigpit kaayo. (It is my nephrologist whos very
strict.) Rose

Si [nephrologist] atoDapat careful gyud kay kanang weak pa kaayo immune

system, ingon ana ba. So mao to nakuan na nga adto lang sa ko sa isa ka room
para makuan [to regain] pa gani ako strength, ingon ana. (It was my
nephrologistYou should really be careful because your immune system is still
weak, like that. So that was why I just stayed in one room [to regain] my
strength, like that.) Pam

Even with a functioning kidney graft, life after transplant is not quite normal as it

was before and this often leads to a life that is very self-regulated to ones own

body (Svenaeus, 2012). Likewise, the informants have placed it upon themselves

to take care especially of their transplanted kidneys. They to do so but there are

times when they fluctuate from readily accepting it to feeling the weight of

complying.

Perceived Body Image Post-transplant

Informants dealt with a variety of physical changes and mostly are

because of improvement of symptoms of chronic kidney failure:

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Di ka makatuo at first nga nibalik na imong lawas sa una. (I could not believe it at
first that I got back my body before) Andy

There is a change. Nakabati nako ug moisture sa akong skin. Nakabati nakog ug

singot unya murag lahi ra jud... (There is a change. I felt moisture in my skin. I
felt perspiration and its really different...) Kate

ni-gain gani ko ug weight ana. Unya na-unoran na, di pareha sauna na kanang
daot kaayo dayon ang [skin] color kay murag grayish ang color. Unya karon ang
skin ok na gani (I gained weight, like that. And then, I bulked a bit unlike
before I was so thin and then the [skin] color was grayish in color. And now, my
skin is okay already) Pam

Most of these changes were welcome and are greatly appreciated by informants

who compared themselves when they did not have the transplant yet. But drug

side effects affecting appearance were considered a nuisance as reported by

female recipients, such as:

After sa transplant nanambok na nuon ko. Maoy di nako ganahan [ ] karon,

falling hair ko. Grabe akong falling hair [ ] Bag-o ra ni siya [stretch marks]
ninggawas. I think siguro pag-gain nako ug weight. Pero grabe jud siya [stretch
marks] kay pula kaayo siya... (After the transplant, I plumped up. That was what I
did not like [ ] now I am having falling hair. My falling hair is really severe [ ]
These [stretch marks] recently appeared. I think maybe when I gained weight.
But they [stretch marks] are so red) Rose

...gaanam siya [hair loss]. Pero naa sad nuoy nanubo pero lahi na strand murag
nipis gani siya. (It [hair loss] is gradual. Although there are hair growths but the
strand is different like it is thinner.) Pam

Single and female recipients were troubled by these side effects as this could

mean loss of physical attraction (Kamran, 2014). The female informants were

more vocal about the undesirable side effects and how these negatively affected

their body image. On another note, two of the informants had surgical closure of

their dialysis access after having the kidney transplant. Informants who had it

done felt positive doing so as they narrated:

Bulky baya na siya dinha. So nidako akong ugat. Ang ugat ron wala na siya. [ ]
Muingon man ang uban, makakita man, Unsa diay iya kuan [arm]? Ngano dako
man kaayo?. Dako man jud to siya kaayo. Maka-bother siya ba. Murag di ka
kaingon na wa na. Na-happy na kaayo ko na wala na. [ ] Ni-decide jud ko [to
have it removed]. (It was bulky. The vein engorged. Now its no longer engorged.
[ ] Others who saw it would say, What is with her [arm]? Why is it big?. It was
 24

really big. It bothered me. It is like you cannot believe it is already gone. I am
really happy that it is no longer there. [ ] I really decided [to have it removed].)
Bea

It [the removal of the previous hemodialysis access] was a boost of self-esteem.

Mesmerized because its [the vein] no longer big. Nick

Although this procedure may have its cardiac benefits, it is still debatable (Unger

& Wissing, 2006). For patients, having a fistula to facilitate treatment for end-

stage renal disease undermined their body image and self-esteem (Finnegan-

John & Thomas, 2013). As for the said informants, its removal improved the

appearance of their affected extremities and in turn enhanced their body image.

Awareness of the Transplanted Organ

Half of the informants described how they felt the presence of the

transplanted organ. They had different ways of acknowledging the presence of

the new organ. Illustrated by the following comments:

Mura siyag mobukol gamay...mura man siyag init bitaw na naay nagflow didto
sulod. (It kind of has a bump...it is kind of warm, like something is flowing inside.)
Andy

...naay feeling na kana bitaw murag ngilo i-touch ang part na gi-operahan. Mura
siyag walay, wala kay ma-feel, murag numb, wala ko kabalo ngano. [ ] Ma-feel
gyud nimo nga naay lahi. Kana gani mo tan-aw ka sa mirror, dili jud siya level
[with the rest of the torso]. Magburot jud ang [transplanted] kidney. (...there is a
feeling like it tingles upon touch where it was operated on. It feels like you do not
feel anything, like it is numb, I do not know why. [ ] You could really feel
something is different. Like, when you look at the mirror, its not level [with the
rest of the torso]. The [transplanted] kidney really protrudes.) Rose

Naa diri naay diri gisud ani. <points to incision line> [ ] inig higda nako side, naa
gyud siya. <shows bulge> [ ] [The transplanted organ seen] As a partner, as a
buddy. (Something was placed inside here. <points to incision line> [ ] when I
turn to sides, its really there <shows bulge> [The transplanted organ is seen as]
As a partner, as buddy.) Pam

Although most recipients became adjusted already to the presence of the new

organ, they always feel the organs presence even many years after the

transplant (Shimazono, 2008). For the above informants, the presence of the
 25

organ is palpable and reminds them that indeed a new kidney was placed inside

them.

Theme 2: Coping in the Post-transplant Phase

Informants spoke about how they dealt with the things they had to face in

the post-transplant phase. Despite the challenges, the informants generally

coped well.

Mechanisms Adapted Post-transplant

Informants had different strategies to cope with the varying stresses they

encounter. Some of these can be gleaned in the following accounts:

Ako gud before sa akong transplant, nag-research nako daan sa internet sa mga
life after transplant ba. (Before I had the transplant, I did internet research
already about life after transplant.) Andy

Kay ako rule man gud sige ka huna-huna ug negative sakyan pud ka sa
pagka-negative pero [if you] think positive mahimo nimo sa tabang sa Ginoo, you
can do it (My rule is that if you always think negative, it will turn out negative
but [if you] think positive you can do it through Gods help, you can do it...) Kate

Every time I have a lab, its not that Im happy but it makes me feel good
cause I will know again the status of my body. Nick

Ang prayers pud nila Oo, naka-help gyud kayo. Dayon ang ilaha sad kanang
moral...bisag moral support lang nako ana. Kanang Kaya na nimo, kaya na
nimo ana. Murag kanang sa kuan sa psychological [support] gani na nimo na
kanang naay daghan nag-love nimo. Dili ka mawagtang ug hope kay naa pa sila,
ana. (Their prayers alsoYes, it really helped me. And also that moraleven
moral support for me, like that. That You can make it, you can do it, like that. It
is like that psychological [support] of you that a lot of people love you. You do not
lose hope because they are there, like that) Pam

Sense of humor was also used to cope with the struggles of life with transplant.

Informants learned to find something amusing to diffuse the seriousness. For

example:

Ni-ana tong tig-cut ug hair, Maam grabe imong falling hair noh, basin mga two
weeks maam [hair will all be gone] <laughs> [ ] Salbahis lage na kuan [hair
dresser]<laughs> Gi-ingnan kog two weeks na lang. Mao to na-worry ko
kinahanglan nako mupalit ug wig ani. <laughs> The one who cut my hair told me,
Maam your hair fall is really severe, maybe in a matter of two weeks maam [hair
will all be gone] <laughs> [ ] She was a mean [hair dresser]<laughs> I was
 26

told it was only a matter of two weeks. That got me worried if I should buy I wig
already. <laughs>) Rose

Ok ra man kay remembrance [the incision line]. <laughs> (It is okay since it is a
remembrance [the incision line] <laughs>) Pam

Kidney transplant patients, despite the wide range of positive and negative

emotions, mainly used adaptive coping strategies to adjust to life after

transplantation (Schipper et al., 2014). Mobilizing different adaptive coping

strategies helps the young adult to effectively cope with the transplant

experience.

Dealing with Adverse Transplant Outcomes

Informants dealt with possible adverse outcomes (e.g. rejection, infection).

Kate and Pam relied on their faith to see them through. As seen in the accounts:

Wala, wala ko naghuna-huna ana. Nobody knows kung kanus-a jud ta. [ ] Naay
mo-ingon na basin 10 years ra tagal but only God knows. Ako lang, hundred
percent I can do it. Silay nakuyawan ako wala. (No, no I am not thinking about
that. Nobody knows when is our time. [ ] Some would say it might just last for 10
years but only God knows. For me, one hundred percent I can do it. They are
anxious but I am not.) Kate

Pray lang gyud ko, ana. Daghan sad ang nag-pray [for her]. Wala lang ni
complicate [transplant outcome] (I just prayed, like that. Many people are
also praying [for her]. It [transplant outcome] did not complicate) Pam

Reliance on belief in God is also evident with heart transplant patients (Peyrovi et

al., 2014) as they face unpredictable outcomes. For the informants, this faith

gives them a stronghold and helps them face uncertainties. On the other hand,

Nick and Bea did express their fear of transplant failure. Nick focused on the

undesirable consequences of a failed transplant and dealing with the changes if

ever that happens while Bea took time letting go of her dialysis access since it

was her safety net in case her transplant failed. The following are their accounts:

Rejectionum, I was scared. [ ] I have to change again. I have to undergo

another hemodialysis I have to stop schooling. I cant go out with my friends the
 27

way I used to right now. Yeah, that will change for me. I hate those changes.
Nick

Naa kay fear sa what if makuan siya, dili siya ma-successful ba. [ ] After the
transplant, siguro it took four to five months usa nako gipakuha [the dialysis
access]. Bahalag naa sa siya [the dialysis access] dinha. (There was fear if it
did not, if it was not successful. [ ] After the transplant, maybe it took four to five
months before I had it [the dialysis access] removed. Never mind if that [the
dialysis access] was still in place there.) Bea

It was Andy who actually dealt with diagnosed rejection a year after the

transplant. He felt the weight of the reality of rejection sink in:

Dili days, months. Siguro two months. Dili nimo madawat dayon Murag dako
ayo na failure sa imong lawas. Ngano naingon ana ka? (It was not just days,
months. Maybe it took two months. You could not accept it right awayIt felt like
a huge failure of your body. Why did you reach this point?) Andy

Even with the improvement of health after the transplantation, kidney transplant

patients fear transplant failure and perceive going back to dialysis as something

worse (Orr et al., 2007; Wiederhold et al., 2011). In the same way, informants

expressed fear of transplant failure and its dreaded repercussions.

Theme 3: Starting Over Again

Informants spoke about how they picked up their lives where they left off.

They grappled with the aspects in their lives that remained and those that

inevitably changed.

Changed Relationship Dynamics

Informants shared how kidney transplantation affected their relationships

with their families, friends, partners and society in general. Most informants felt

they were treated differently because of their transplant status as seen in their

various relationships:

Changed Relationship with Family. Informants described how their roles

in the family shifted and they had to rely on their families after their transplant
 28

procedure. For example, Andy used to be the breadwinner and worked abroad

independently but after being transplanted, his mother wants him close so she

can watch over him:

ako bitaw to gi-ingnan ako mama na nagplan ko na mag-abroad ko balik. Pero

ako mama dili mu-agree didto [a country abroad] kay didto daw ko iyaha [in
another country abroad]] kay para naay kuan makatan-aw ba. (I told my mom
that I planned to go back abroad. But my mom did not agree there [Middle East]
since she wanted me to join her [in another country abroad] so that somebody
can watch over.) Andy

Bea echoed Andys situation since she also used to work and live independently

abroad but had to go home:

...Kay karon nagdepend pa jud ko sa akong sister, sa akong auntie ug tabang
(Right now, I am depending on my sister and aunt to support me) Bea

For Rose, her mother has been protective of her before but more so after the

transplant as some chores were lifted off from her. At one point she did enjoy the

extra attention although recently this abated to normal:

Sila [her brothers] may mas masugoan kaysa ako-a. Sulti-an niya akong mga
igsoon, Bakit si Ate ang pinabitbit mo niyan? Ikaw ang magdala, ingon ana. [ ]
Siguro ato na time, ok ra man kay bag-o pa man [hospital discharge]. Then
karon, ok pa sad. <laughs> Tapulan. Pero dili na kaayo karon hinuon. Normal
naman. (They [her brothers] are given more chores than me. My mother told my
brothers, Why are you letting your elder sister carry that? You will be the one to
carry, like that. [ ] Maybe at that time, it was okay since it was still recent
[hospital discharge]. Then now, it is still okay. <laughs> Lazy. But now it is not the
case already. It is back to normal.)

However, there are times when Rose felt exasperated with the constant

reminders of her mother:

Di man ko ganahan kanang sige ko sulti-an ba Pag-mask or Imong tambal. Di
ko ganahan ingon ana bitaw. Di ko ganahan pirmi i-remind. Ma-annoy, ma-irritate
ko, ma-bad mood ko. (I dont like Im constantly be told Wear your mask or
your medicines. I dont like that. I dont like to be always reminded. Its
annoying, I get irritated, and I get into a bad mood.)

For Kate though, it was more of concerned reminders of her husband and son:
Maka-sense sila [when she is busy]. Labi na karon lang na time kay na busy ko
sa ITR [Income Tax Return]. Maka-sense lang Ayaw pagduko-duko malipong
napud ka, ana lang ba. Murag warningan lang ka ba...(They are able to sense
[when she is busy]. Especially this time when I am busy with the ITR [Income Tax
Return]. Just senseDont bow over work too much, just like that. Like you are
given a word of caution)
 29

Kate keeps communication lines open and even broached the topic of

temporality of her existence but her husband and son remains positive:
Every time ako siya sulti-an what is ginabawal [for her condition], unsay pwede.
Ako siyang [her son] gi-ingnan What if Dong?, akong gi-open sa iyaha
ba,What if Dong, we dont know when is the end of my age [life]?. Ni-ani siya,
Noh? Kinahanglan taas pa kag edad Ma oe. Taas pa kag edad maabtan. Mura
positive lang jud akong pamilya, akong bana ug akong son. (Every time I tell him
what is contraindicated, what is allowed [for her condition]. I tell him [her son]
What if son?, I opened it up to him that What if son, we dont know when is the
end of my age [life]?. He said, Really? You have to live longer Mom. You will
reach an older age. It is like my family is really thinks positive, my husband and
my son.) Kate

The young adults endeavor for independence from ones family of origin is

affected by chronic illness since there is time when they do need to rely on their

families (Walter and McCoyd, 2009). Informants were at a time when they were

fledging on their own but had to go back and seek support from their families due

to their illness condition.

Changed Relationship with Friends. Informants reported a period of

time when interacting with friends were limited because of the reverse isolation

precautions they were under. But later on, interaction resumed when these

precautions were less stringent. For example:

Actually, first time nako [since being transplanted] yesterday nga nakalakaw ko
with my friends. (Actually, it was my first time [since being transplanted]
yesterday that I was able to go out with my friends.) Rose

Karon kay mas ok-ok na. Pero pag-after transplant isolated gyud ko. [ ] Unya
karon bale makagawas-gawas na. Nakasuroy na gani ko [a province], laag-laag
na, ingon ana. Unya maka-mingle na sa mga friends, ingon ana. (Now it is a little
better. But right after the transplant I really felt isolated. [ ] And then now I am
able to go out. I even went to [a province], traveling around, like that. And I am
able to mingle with friends, like that.) Pam

Murag siya [social life] nibalik ana. Hilig man ko makig-chat ug sa facebook bisag
sauna dili ko ganahan ana. Kanang murag mangita gyud ug social life ba... (It
[social life] kind of got back. I like to chat over at facebook even if before I was
not into that. It is like you look for a social life, like that...) Andy

But two informants reported limiting and/or keeping information from their friends

about their transplant status not wanting to be singled-out. As narrated:

 30

Kay wala man gud nako gisulti [friends] nga nag-transplant. Di ko ganahan isulti.
[ ] Ambot lang kay di ko ganahan mo-look depressing, di ko ingon ana na Hala
gi-kuan diay ka, gi-kidney transplant diay ka? Basta kanang ingon ana. Kapoyan
ko anang mo-explain, kanang mga pangutana, ingon ana. (I did not inform
[friends] I had a transplant. I do not want to mention it. [ ] I do not know but I just
do not like to look depressing, I am not like that, Hey, you underwent kidney
transplant? Something like that. I get tired having to explain, those questions,
like that.) Rose

...There are friends that I told already since theyre close to my family and Im
close to their family so they know but the college group of friends are not close to
my family and I intend to keep it a secret from them. Nick

Similarly adolescents, faced the challenge of disclosing to their friends

as some chose not to divulge while some, after weighing the pros and

cons eventually disclosed to select friends. This may leave them

embarrassed being different although those who did tell felt relief

(Nicholas et al., 2011). This decision to tell or not to tell friends is vital

issue for the young adults as they managed their transplant condition

in the context of their social life.

Changed Relationship with Partner. Informants varied in relationship

status. Four are single while two are in a committed relationship (one is married

and the other one is engaged). Those who are not in relationships shared how

the kidney transplantation changed the way they approach being in a

relationship. As follows:

lisod kaayo i-open up sa iyaha [potential partner] ba na kuan...ingon ani ko,

ingon ani nahitabo, ingon ana. Forever ko magtake ug medicine. (It is difficult
to open up to him [potential partner] thatI am like this, this is what happened,
like that. I will be taking medicines forever.) Rose

...but I have to be choosy. [ ] Unlike before I can just make out with a girl but right
now, I cant. [ ] Since Im in an immunosuppressed condition. Nick

Not yet [entertaining suitors] pa jud. Naa man [suitors] but not yet pa jud. Feeling
nako dili pa jud time maskig boyfriend-boyfriend. Di pa ko kuan... Naa pa koy
gikuan na goal para kana siya akong mga needs karon, financial needs. [ ] Once
musulod ka ana ready na. Pero dili pa karon kay dili pa jud pwede. Sa tambal pa
lng jud karon, dili pa jud pwede kay dako pa jud [expenses] siya kaayo. (Not yet
[entertaining suitors] still. There are [suitors] but not yet still. I feel that it is not yet
 31

time even with a boyfriend thing. I am not yet...I still have a goal for my needs
right now, financial needs. [ ] Once you enter that, you should be ready. But not
yet now, it cannot be. With the medications alone for now, it cannot be with the
huge [expenses].) Bea

While those in relationships shared how their relationships helped them through

the transplant experience:

murag siya [boyfriend] gyud ang naghatag nako ug strength gani kay usahay
kanang mura nako mo-give up, ana. (tearful) (he [boyfriend] is like the one who
gave me strength even in the times when I wanted to give up, like that.) (tearful)
Pam

Oo, 100% [husband was there throughout]. My husband and son mao ra jud
naka-face [challenges] even sa pag-consult sa doctor. Kami ra jud. (Yes, 100%
[husband was there throughout]. My husband and son were the only ones to face
[challenges] even with consultations with the doctor. It was just us.) Kate

As observed, single informants had reservations in entering into relationships as

they verbalized concerns and worries. For them, being transplanted is an

important issue to settle before entering a relationship. Renal replacement

therapies (dialysis and kidney transplantation) result to invisible somatic changes

on gendered social identity, making intimate social relationships and parenthood

problematic (Lewis & Arber, 2014). Meanwhile, a positive interaction with the

recipients family and partners improved their coping (Kamran, 2014). This too is

seen with the informants who have established strong relationships that

sustained them throughout the transplant experience.

Changed Relationship with Society. Informants expressed how they try

to blend in despite the considerations they make to protect their

immunocompromised status. Often repeated was wearing a mask to protect

them from respiratory infections. For example:

...Mugawas ko doble ang mask unya dinha ra ko diha magtan-aw tan-aw ra ug

billiard-billiard pero naa rako sa layo (I wear double mask when I go out and
then I only watch billiard games from afar) Andy
 32

So mo-belong ra ko sa in a group of people without wearing [a] mask though

mga tao mahadlok nako kay ma-infection ko daw mga ingon ana. [ ] Ako may
magdala sa akong kaugalingon and then so aware lang sad ko. Every time na
kanang mag-shake hands ko sa mga tao so mag-sanitize lang. [ ] Mo-join man
jud ko sa ilang group. Di ko gusto ba ma-neglect ko. Akoy mo-go with nila. (So I
still belong in a group of people without wearing [a] mask although there are
people who are afraid that I might get an infection, like that. [ ] I am the one who
carries myself and then I just keep myself aware. Every time I shake hands with
people, I just sanitize. [ ] I join with their group. I do not want to be neglected. I
am the one who goes along with them.) Kate

Dili nako makalakaw dali-dali. Ang pinakalagutan nako kanang mask. Mag-mask
ko molakaw. Maulaw ko ba, ingon ana. [ ] Siguro, kuan if naay mo-stare nimo,
ingon ana, mo-stare back sad ko like Unsa man?. Pero usahay ako rang
sagdaan. Siguro katong pagsugod jud, murag mauwaw jud ko. (I cannot go out
easily. The thing I hate the most is the mask. I wear a mask when I go out. I get
embarrassed, like that. [ ] Maybe, if somebody stares at you, like that, I also stare
back like, What about?. But sometimes I let that go. Maybe at the start, I really
felt embarrassed.) Rose

Beas young nieces and nephews shielded their aunt from people prying over
why she wears a mask:

Sometimes ma-awkward sad ko [wearing a mask] kay usahay uban tao [ask],
Naa na siyay sakit?, Makatukod na siya? or Arti kay nag-mask, ingon ana.
Kabati man ka naay mo-ingon, Naa na siyay sakit?, Naa siguroy sakit, ana.
Akong mga pag-umangkon na nuon moingon, Hala oe, transplant baya si
mommy [aunt]. Ah to the rescue ang mga bata. (Sometimes, I feel awkward
[wearing a mask] because some people [ask], Does she have an illness?, Is
she contagious or Snobbish since she wears a mask, like that. I hear them
when they say, Does she have an illness?, Maybe she does have an illness,
like that. Its my nieces and nephews who then tell them Hey, my mommy [aunt]
is transplanted. Ah its the kids to the rescue.) Bea

While for Nick, blending in when he got back to school while still wearing a mask

was not that difficult since it coincided with the practice of some students who

have colds to wear a mask. As he narrated:

I wore a mask at school. In school, if you got colds, you wear a mask. I had a
classmate who also wore a mask during the first few days, he told me gisip-on
siya but after storya-storya, we became friends. He knows I wear a mask
because Im a transplanted patient. (I wore a mask at school. In school if you got
colds, you wear a mask. I had a classmate who also wore a mask during the first
few days, he told me that he had colds but after chatting up with him, we became
friends. He knows I wear a mask because Im a transplant patient.)

Instructions on wearing a face mask depend on the transplant center (National

Kidney Foundation, 2013). Although there are times it was up to them to gauge
 33

the situation if it warrants wearing a mask like being in crowded places or

someone close has active respiratory illness. However this practice hampered

the informants spontaneity in social interactions as it elicited unwanted attention

and gave away their transplant status along with their other treatment regimen.

As observed with adolescent heart transplant patients, they do not want to be

boxed in the label of being a transplant patient as they would rather be defined

by their interests and/or passion (Green et al., 2011). The same with the

informants, they do not want to treated differently by society and be limited by the

label of being transplanted.

Getting Back

Informants shared how they tried to return to their usual routine for a

semblance of normality and sense of accomplishment. Some informants were

able to do so but while some realized some things cannot go back to the way

they were before. As illustrated by the following:

...Planning pa na mubalik ug abroad. Ako lang jud gihuwat na nga mubalik na jud
sa normal akong paminaw ba... (I was planning to go back abroad. I was just
waiting that I felt I am back to normal) Andy

[a] week after the discharge sa hospital able nako mu-work even makahimo
nako sa mga panimalay([a] week after the discharge from the hospital, I was
able to work even do the household chores) Kate

Actually, mag-one week na naa koy work. Home-based, kay mao lage toh maka-
depress siya na wala kay gibuhat sa imong life. Murag feeling nimo wala kay
purpose diri oi. (Actually, it is almost a week since I have work. Home-based,
since it is depressing that you do not engage in something. You feel like you do
not have a purpose being here) Rose

Recently finished first year college and then I was going to resume studies for
second year then I had to transfer after my kidney transplant since my course
requires um healthy so I got to transfer Nick
Trabaho na gyud ko (I am back to work already) Pam

Sad ko [about not going back to her previous career]. [ ] Dili lang siya kuan you
touch other peoples lives [ ] you worked hard on it so its just sad ingon ana. I
have to choose siguro karon. I have to be more kanang careful lang jud ko. (I am
 34

sad [about not going back to her previous career]. [ ] It is not just about... you
touch other peoples live [ ] worked hard on it so its just sad that it has to be that
way. I have to choose now.) Bea

End-stage kidney disease exerts a negative impact on education and

employment for the young adult. There is a need to recognize this issue and

support the young adult (Murray et al., 2014). Resumption of education and work

are very important for the young adult for them to progress on their development

and for them thrive better.

Redefining Plans and Goals Post-transplant

Informants talked about their plans and goals in life, how these were

weighed and revised when they felt they needed to in the post-transplant phase.

As gleaned over the following accounts:

akong gi-look forward na lang makatrabaho ug balik, unsa akong buhaton,

unsa akong priority, ana baUnsaon nako budget akong kwarta kinahanglan sa
tambal ug sa maintenance nako, ana. (what I am simply looking forward is
getting back to work, what I will do, what will be my priority, things like that how
I would budget my money for my medicine and maintenance, like that.) Andy

Its [new college course] not that strenuous as my old course which was Monday
to Saturday. [ ] Its only Monday to Thursday. So its not that tiresome. Nick

mao to plano namo na magpakasal ana pero dili pa karon [ ] weak pa man ko.
[ ] nagtake pa man immunosuppressant na taas-taas pa ang dosage ba. (that
was our plan that we get married but not right now [ ] I am still weak. [ ] I am still
taking immunosuppressants at higher dosage...) Pam

Wala nakoy plans to resume, sa medical [field]. [ ] Gusto unta ko laing field nga
dili medical kay naay mga masakiton. A lot of people advised me na you dont
have to go back to being a nurse jud kay prone jud ka sa infection, labi karon na
wala pa jud gihapon ginaog akong immunosuppressants. [ ] Ang ako lang unta
office lang. pero this time, business sa ko. (I do not have plans to resume in the
medical [field]. [ ] I want another field that is not medical since it carries with it
being with the sick. A lot of people advised me that I dont have to go back to
being a nurse since I would be prone to infection, especially now that my
immunosuppressants are still high. [ ] I would have wanted to do office work only
but this time I will engage in business first.) Bea

Richardson (2002) described resiliency is seen as the process of coping with

stressors, adversity, change, or opportunity in a manner that results in the

 35

identification, fortification, and enrichment of resilient qualities or protective

factors (p. 308). The young adult demonstrates resiliency as he/she faces the

kidney transplant experience. He/she may temporarily experience change, sense

some personal doubt, and experience some disorganization of his/her world

view. In time however, he/she will use reintegrative and coping skills in an

attempt for him/her to learn, develop new skills, and effectively deal with the

kidney transplant experience.

Chapter 5

Summary of Findings, Implications to Nursing and Recommendations

 36

Summary of Findings

The kidney transplant experience of the young adult ultimately altered the

course of their lives albeit mostly for the better as it provided alleviation of chronic

kidney disease. But it is not a quick fix as it also brought new and unique

challenges and problems. Its repercussions are pervasive in every aspect of their

lives. Young adults had to cope with the challenges of post-transplant life on top

of the challenges they faced as young adults. This is a point of struggle as kidney

transplantation consequentially, to a certain degree set back the course of their

lives plans and goals. From simply looking at young adulthood as the high time

to dream and plan, they now have to take things into perspective, recast their

course and integrate the kidney transplant experience in their lives. The results

were found to be consistent with existing literature although these studies were

not age specific or case specific as this study was.

Implications to Nursing

Young adults with a kidney transplant have the same developmental

issues as their counterparts in the general population. However, development

can be disrupted by their treatment modality. A clearer understanding of the lives

and experiences of young adults leads us to plan and provide more grounded

and responsive care.

Recommendations
 37

1. That young adult kidney transplant patients and their significant others

may use the findings of this study to better understand the kidney

transplant experience.

2. That the transplant team members may use the findings of this study to

address relevant issues such body image and resumption of education

and/or work of the young adult. This can be done by appropriate health

teachings and provision of support as these proved to be crucial for the

young adult.

3. That more qualitative research into the phenomenology of kidney

transplant experience may be done in the Philippines. It would be

informative for this study to be repeated with other individuals, potentially

using more homogenous groups with closer age ranges, one type of

diagnosis, same gender and relationship status. A prospective,

longitudinal study could be conducted as to capture better the nature of

the experience. It is acknowledged however, that this would be expensive

and extremely difficult to organize, particularly if a prospective design was

used.

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Appendix A
Informants Consent (English version)
 42

Consent to Participate in Research

Lived experience of Young Adult Kidney Transplant Patients
My name is Clarice Fritz A. Caliwatan, a graduate student at Cebu Normal University College of
Nursing. I would like to invite you to take part in my research study, which attempts to explore the
meanings ascribed by the kidney transplant recipients to their experience of having had a
transplant. This study would like to unfurl perspectives of these young adults, of how they make
sense out of the activities or things happening to them.
This research study is intended for young adult participants who are below 35 years of age, male
or female, who underwent kidney transplantation in the last 5 years.
If you agree to participate in my research, I will conduct an interview with you at a time and
location of your choice. The interview will involve questions about how you are doing after
undergoing kidney transplantation with regards health, family and social life, education and/or
career. It should last about an hour or so. With your permission, I will audiotape and take notes
during the interview. The recording is done to accurately record the information you provide, and
will be used for transcription purposes only. If you agree to being audiotaped but feel
uncomfortable and if you don't wish to continue, you can stop the interview at any time. I expect
to conduct only one interview lasting about one hour or so; however, follow-ups may be needed
for added clarification. I will contact you by person/phone/mail to request this.
There is no direct benefit to you from taking part in this study. It is hoped that the research will
give deeper understanding of young adult patients experiences after undergoing renal
transplantation.
Some of the research questions may make you uncomfortable or upset. You are free to decline
to answer any questions you don't wish to, or to stop the interview at any time.
Your study data will be handled as confidentially as possible. You have the opportunity to review
the transcript for accuracy. If in case the material or context is especially sensitive, you may
choose which data extracts from your interview will appear in any public-domain document. If
results of this study are published or presented, individual names and other personally identifiable
information will not be used. When the research is completed, I will retain these records for up to
three (3) months after the study is over. All recordings and notes will be stored in a locked cabinet
with only the researcher and research assistant have access.
You will not be paid for taking part in this study. Participation in research is completely voluntary.
Whether or not you choose to participate in the research and whether or not you choose to
answer a question or continue participating in the project, there will be no penalty to you.
If you have any questions about this research, please feel free to contact me. You can reach me
through text or call via mobile numbers 09255874637(Sun) and 09399234328 (Smart) or email
me at clarice_caliwatan@yahoo.com.

CONSENT
You will be given a copy of this consent form to keep for your own records.

If you wish to participate in this study, please sign and date below.

_______________________________
Participant's Name (please print)

_______________________________ _______________
Participant's Signature Date

Appendix B
Informants Consent (Visayan version)
 43

Pagtugot na Mosalmot sa Pagdukiduki

Mga Kasinatian sa mga batan-ong hamtong ug pangedadaron nga nakaagi ug Kidney
Transplantation
Ako si Clarice Fritz A. Caliwatan usa ka estudyanteng nagtungha sa masteral program sa Nursing sa
Cebu Normal University. Mang-agda ko kanimo na ikaw mosalmot nining pagdukiduki mahitungod sa
mga kasinati-an sa batan-ong hamtong ug pangedaron na nakaagi ug Kidney Transplantation. Ang
tumong ni-ini kay pag-usisa kung unsa ang mga kahulogan ilang nabatyagan niining eksperyensya,
kung unsa ilang mga panan-aw sa ilang kaagi ug kung unsa ila salabotan sa mga panghitabo sa ilang
kinabuhi.
Kaning pagdukiduki naglangkob sa mga tao nga nag-edad ug 35 anyos pa-ubos, babaye o lalaki, nga
naka-agi ug Kidney Transplantation sulod sa lima katuig na milabay.
Kung mo-uyon ka mo-apil ani nga pagdukiduki mag-interbyu ko sa higayon ug lugar na uyon nimo.
Ang mga pangutana mahitungod sa imong mga kasinati-an isip naka-agi ug Kidney
Transplantation, kung unsa ang epekto niini sa imong panglawas, pamilya, eskwela ug trabaho.
Akong i-rekord ang atong interbyu pamaagi sa audio-recording. Magsulat pud ako samtang
kita mag-estorya. Kaning pag-rekord dakong tabang na ensakto ang pagdetalye sa
impormasyon na imong gihatag kanako. Ug galing maka-bati ka na dili naka komportable sa
interbyu, pwede ra ta mohunong sa interbyu bisan kanus-a. Ako nagpalandong na mubuhat
lang ug usa ka interbyu na molungtad ug usa ka oras o kapin. Apan kung kinahanglan ug sukna
para mutino ug impormasyon mu-kontak ko kanimo para mohangyo niini. Mu-kontak unya ko
nimo sa personal o sa telepono o suwat.
Wala kay direktang benepisyo makuha sa imong pag-apil. Apan nanghinaut ako nga kini nga
pagdukiduki makapalawom sa salabutan sa mga batan-ong hamtong ug pangedaron human sila ni-agi
ug Kidney Transplantation.
Naay mga pangutana posibleng dili ka komportable o makapaguol nimo. Naa kay katungod na dili
motubag niining mga pangutanaa. Pwede pud kang mohunong sa interbyu bisag kanus-a.
Ang mga impormasyon nga imong gidalit ampingan ug tapigan ug maayo. Adunay kay oportunidad na
mosusi kung tukma ba ang pagdetalye sa imong interbyu. Ug galing naay sensitibong parte sa
interbyu, pwede nimo pili-on kung unsa ray ipamantala. Kung ipresentar o imantala ning mga resulta
tanang impormasyon na pwedeng makapaila sa mga nisalmot kubli-on ug dili gamiton. Inig ka human
niining pagdukiduki, tanang rekord itago sa yinawihang kabinet sa sulod sa tulo ka buwan. Ang
nagpasi-una aning pagdukiduki ug ang iyang kaagabay ra ang maka-abli niining kabinet.
Ang pag-apil niining pagdukiduki usa ka boluntaryong lakang. Dili ka bayran sa pag-apil nimo.
Mamahimo kang mo-apil o dili. Pwede pud kang motubag o dili sa mga pangutana o dili mopadayon
sa pag-apil. Walay silot sa dili pagtubag sa mga pangutana o sa dili pagpadayon pag-apil niining
pagdukiduki.
Kung naa kay mga pangutana mahitungod ani nga pagdukiduki mamahimo kang mo-teks o motawag
nako sa Sun-09255874637 ug Smart-09399234328 o pwede pud kamo-e-mail nako sa
clarice_caliwatan@yahoo.com.
Pagtugot na Mosalmot sa Pagdukiduki
Taga-an ka ug kopya niining nga porma sa pagtugot para sa imong kaugalingong rekord.
Kung ganahan ka moapil niining pagdukiduki, palihug ug pirma ug butang ug petsa sa ubos.

_________________________________
Pangalan sa Impormante (palihug sulat)

_________________________________ _______________
Pirma sa Impormante Petsa
Appendix C
 44

Interview Guide (English version)

Interview Guide
Initials: _____
Age/Sex: _____
Civil Status: __________
Diagnosis before kidney transplant was performed:
________________________________________________________________
Date when kidney transplant was performed:
________________________________________________________________

Opening question:
Please tell me about the impact of kidney transplantation in your everyday life?

Interview Schedule:
1. What are the changes in your life since you have been transplanted?

2. Could you please tell me how you feel having undergone kidney
transplantation?

3. What are the effects on your health and quality of life since you have had
kidney transplantation?

Follow-up questions:
1. Tell me more about that.

2. What did you mean with that?

3. How did you think about that?

Appendix D
 45

Interview Guide (Visayan version)

Giya sa Pag-interbyu

Inisyal: _____
Edad/Kinatawhan: _____
EstadongSibil: __________
Balati-an sa wala pa nagpa-kidney transplant:
________________________________________________________________
Petsa kanus-a nagpa-kidney transplant:
________________________________________________________________

Pasi-unang pangutana:
Mamahimo ba nimong maestorya unsay dakong epekto sa kidney transplantation
sa imong adlaw-adlaw na kinabuhi?

Mga ipangutana:
1. Unsay mga kausaban sa imong kinabuhi human sa imong kidney
transplantation?

2. Mamahimo ba nimong maestorya unsa imong gibati sa imong kaagi

human sa kidney transplantation?

3. Unsa man ang mga epekto sa imong kahimsog ug kabaskog human sa

imong kidney transplantation?

Dugang na pangutana:
1. Tug-ani pa unya ko ana.

2. Unsa imong buot ipasabot ato?

3. Unsay imong mahuna-huna niana?

Appendix E

Emergent Themes
Big change in daily routine
after kidney transplantation
Improved physical health
46
Interview One Transcript
Original Transcript Exploratory comments
I: Good evening Sir [informant]
R: Good evening
I: Ako si Clarice. Unya mu-
interview niya ko nimo
regarding sa imong kaagi sa
transplantation.
R: Mmm<nods>
I: So mokuha lang sa ko sa
imong data. So intials lang ako
ibutang?
R: Yes, maam, [initials].
I: Unya age?
R: 33
I: Then male. Then civil
status?
R: Single pa
I: Then diagnosis nimo before
kidney transplantation?
R: Kuan, kaning chronic
glomerulonephritis
I: Ah...so chronic
glomerulonephritis?
R: Oo
I: CGN bale no?
R: CGN o
I: Unya date when kidney
transplant was performed?
R: December..ah.twenty
four? Mga December 20
maam
I: December 20, two
thousand?
R: Eleven
I: Sir [informant], can you
please tell me how about
the impact of kidney
transplantation in your
everyday life?
R: After maam?
I: Oo, kay kumusta man imong
adlaw-adlaw na life? Imong
adlaw-adlaw na activities, ang
impact sa kidney transplant?
R: Kuan after sa kidney Big change in daily routine
transplant. Kuan dako jud after kidney transplantation
kaayo na kausaban sa akong Use of fillers kuan
kuan daily nah kuan routine. Citing manifestations of
Bitaw kay kuan makalakaw improved physical health
nako ug dili nko kutusan. Unya
dili na magsakit ako tiyan
dayon. Then kaning dili ko dali
malipong and then

Recollection of kidney failure
symptoms
Conscious practice of healthy
living
Avoidance of certain drinks
Compliance of dos and donts
47
kanang...ahunsa pa
Kanang maka-ihi nako ug Resumption of urine
kuan regular, normal
I: Oo, sa before diay sa
transplant Sir [informant]?
R: Ah before sa transplant Recollection of kidney failure
tanan kuan na symptom sa symptoms
kidney failure na-experience
nako. Kanang gamay nalang
kaayo ang ihi. Unya dali ka
malipong. Unya dali ka
tugnawon. Unya dali ka
kasukaon. Unya kuan dali-dali
pud ka kuan hilantan. Unya
kanang usahay pud kanang
modagan ang tubig sa imo
baga, mao mag-congestion
ko. Lisod ayo pagginhawa,
mag-ubo ko. Naay kagalkal sa
imong throat.
I: Oo, so what were the
changes in your life ever since
you have been transplanted?
R: Kuan, Kanang after sa Emphasis on healthy living
transplant. Kuan jud healthy
living na gyud ko. Kanang
magwatch ko sa ako diet.
Kanang ah...Bisag kanang Avoidance of alcohol and
mga drinks naglikay ko anang carbonated drinks
alcohol ug carbonated drinks.
Mao jd na ako gilikayan.
Pwede ra ko ug juices pero
kanang moinom ko ug juice,
kuan sad kanang kinahanglan
sundan dayon ug water para
madali siya mawaswas ba.
I: Um Tell me how you think
about that katong mga
changes? Like how did you
feel ba now anang mga
changes you had to do after
sa transplant?
R: Kuan, kanang after sa Compliance of dos and donts
transplant tagaan man ka ug
mga dos and donts nga
kinahanglan nimo buhaton,
kinahanglan nimo kan-on,
unya imo lifestyle ipausab.
Then mao to ako gisunod.
Unya kanang ako nalang pud
sa akong kaugalingon.
Kanang mag-amping lang pud
ko ug kanang bawal. Pareho
anang mga parat kaayo.
I: Sa una ba himarat ba?

Shock upon diagnosis of end-
stage renal disease
48
R: Dili jud. Kay ako man gud Does not prefer salty food
inborn na kuan na sakit unya Claims inborn kidney problem
gagmay ako kidneys Narrates loss of kidney
pagkagamay ba. Pero dili siya function
muhatag ug symptoms not
unless naa nako sa akong
middle age so pareho ani, 30s
dinha na siya mugawas mao
didto nako mga 28 ko. Didto
na nigawas tanan. Sugod
nako kalipong, suka-suka.
Taas diay to ako crea. Pero
before ana nga time, wala jud
ko nakabaw. As in normal ra
jud ko. Pero in the long run
ingka-abot nimo sa middle age
dili na niya makaya ang kuan.
Kanang trabaho sa kidney
mao mu-give up na siya.
I: So how did you feel when
you were able to know ingon
ana na situation as you
mentioned, inborn. Can you
tell me more about kato inborn
na condition nimo?
R: Uhm bale pagkagamay
nako hangtod pagkadako?
I: Oo.
R: Paggamay nako wa jud koy Recalls childhood as having
nabati as in. Kuan, so wa jud no major illness
koy reason na magpacheck-
up. So wala sad jud. Kuan ra
jud hilantan ko maayo ra pud,
kung magkasakit ko ug
kanangunsa may
pinakagrabe nako?
Convulsion man siguro. Mao
ra man ako mahinumduman.
Maayo ra man pud. So wala
jud siyay symptoms na ipakita
ba. So normal, wa jud
koreason magpa-urinalysis
kanang pa-blood test ana wala
jud. Kay kato gani Initial shock upon learning of
pagdiagnose nako nga naa end-stage renal disease
koy renal failure kuan man diagnosis
kanang nahibawan to siya
tungod ra sa akong BP. Ang
blood pressure naabot ug
200/140. Unya nahibong ang
doktora nganu naingon ana
akong BP na wala man kay
sakit sa heart. Mao toy iya
kung gidudahan nay kidney
failure. Iya kong gipa-
urinalysis. Didto na nahibawan

Waiting and preparation for
kidney transplant
Feeling of happiness after
kidney transplantation
Coping through research
Expected kidney transplant to
improve quality of life
Felt the need to be well post-
transplant
49
na nay kuan naay deperensya
akong kidneys. Then mao nato
nagsugod nako ug dialysis.
I: Pila gani ka ka-months sa
dialysis Sir [informant]?
R: Sugod sa pagka-diagnose
nako?
I: Oo, pagka-diagnose nimo
until na-transplant?
R: Kuan kanang 4 years and 8 Length of time in dialysis
months. before kidney transplant
I: Ah so it took time na ma-
transplant.
R: Oo, it took time jud kay It took time for kidney
kuan daghan kaayo kuan gi- transplant since preparations
prepare ang akong for himself and the donor were
kaugalingon ug ang donor. still made.
I: Unya katong after na jud ka
na-transplant Sir, di bah it took
4-years noh sa pagtransplant
jud nimo kato the day itself
natransplant ka, how did you
feel? Atong panahona like
feelings nimo, did you feel
happy?
R: Ai oo kuan [happy] kaayo. Very happy after kidney
<nods> transplant
I: Did you feel confused, did
you feel angry? Any other
feelings nimo atong
panahona?
R: Ako gud before sa akong Did research about
transplant, nag-research nako transplantation
daan sa internet sa mga life
after transplant ba. Sa
Youtube ba kuan jud dako jud Expected kidney transplant to
na improvement sa ilang life improve quality of life
wherein kung magdialysis ka
kay daghan kaayo
complications so ako naglook Looked forward for the
forward na kanang positive na expected good outcomes
akong huna-huna.
Kinahanglan maayo jud ko. Felt the need to be well, to
Kuan kinahanglan kanang get back on his work
mubalik ko sa regular nako na
trabaho. Mu-abroad ko ba ko
balik then kanang mao to
kanang murag happy ang
nasa kuan ba sud sa akong
buot ba nga mao na ni maayo
nako. Mao na ako gihuna-
huna. Kay nakakita naman ko
sa mga tao na gi-transplant
kaysa wala gi-transplant na gi-
dialysis. Mao to happy kaayo

Kidney failure hampered plans
Observed rigorous treatment
regimen
Adherence to new routine as
an obligation
Aversion to dialysis motivates
lifestyle changes
Saw kidney transplant as a
means to resume stalled plans
50
akong pamati na kuan na
maayo nako. Makabalik nako Wanted to go back to his
sa regular life ba. regular life
I: Unsa diay imo regular life
Sir [informant]?
R: Kung pananglitan wala pa Would have wanted to
ko na kuan, wala pa ko continue working abroad had
masakit ug kanang renal kidney failure not happened
failure siguro naa pa ko sa
abroad balik kay sa pag-uli
nako diri emergency man to
akong pagka-uli kay gipapauli
man mi sa company so then
kuan mubalik na unta ko sa
abroad para balik sa trabaho
sa [coffee shop].
I: Oo, then after sa kidney
transplantation Sir. Unsa
naman ang mga activities of
daily living nimo like sa imong
trabaho, like sa day-to-day
nimo na lakaw mga ingon ana.
R: Ahfor mga 0-6 months Very cautious and stayed at
gikan sa transplant kuan home for the first 6 months
amping kaayo. Naa ra sa post kidney transplant
balay <coughs> kanang mag-
amping ka sa imong gikaon, Constant monitoring of his diet
sa imong giinom then and urine output
magmonitor ka sa imong urine
output. Unya magkuan ka,
magbantay jud ka sa tambal Very watchful of his medication
nimo kanang oras mag-inom. regimen
I: How did feel atong mga
pagbantay nimo? Bale katong
imong situation na nagtan-aw
ka sa imong buhaton sa imong
imnon, sa imong kan-on?
R: Kuan ra sad, mura ra pud Thought of new routine as his
gihuna-huna ra pud nako na obligation rationalization?
murag daily routine na ni nako.
Murag trabaho na ni nako.
Obligation na ni nako na mag- Felt obligated to make
amping. Magchange sa akong lifestyle changes as not to go
lifestyle kay kung dili ko mag- back to dialysis.
ingon ana for sure mubalik jud
ko sa dialysis. Mao to Not wanting to go back to
giganahan ra pud ko ng dialysis motivated careful
kanang bantay sa akong behavior
kaugalingon.
I: Were there are there any
feelings na ma-associate nimo
sa bag-o na routine?
R: Kuan kay excited ko sa Felt excited for his future
akong future. Unsa akong
buhaton na. Dili naman gud ko Felt he is not that young, that

Financial considerations
regarding treatment plan
Grieving over unfulfilled plans
51
batan-on unya gawas na he needs to do things
murag na-stall tungod sa
nagkasakit so wala pa koy Felt his illness stalled his
natigom. Ano ba, akong gi- plans
look forward na lang Looked forward to working
makatrabaho ug balik, unsa again
akong buhaton, usa akong Thought about his priorities
priority, ana ba Unsaon and budget for his
nako budget akong kwarta maintenance medications
kinahanglan sa tambal ug sa
maintenance nako, ana.
I: Katong na-mention nimo ang
term na stall, so murag
nahunong. So can you tell me
more about that na experience
na na-stall ka and then what
happened?
R: Kuan diba gipauli ko tungod Recalls being diagnosed with
kay emergency na papauli ESRD
gikan sa gawas. So <coughs>
diri naman ko nadiagnosed na
kuan. Igo ra gud ko ato
nalipong kay taas nasad lage
akong BP. So mao nahibaw-an
na naa oy kuan sakit sa
kidney Then kung wala ato, Ponders on the what ifs, like
kanang siguro naa gihapon ko would he still be working
sa abroad Then naa na abroad or would he have
siguro naa gihapon ko sa started his own family, or
abroad... Then naa na siguro would he bought his own
koy kaugalingon family... Unya housethen
nakapalit na guro ko ug balay.
Mao na typical na plano sa
akong kaugalingon kay atong
time na siyempre nagtrabaho
nako ganahan nako maglain
ba. So mao na akong gihuna-
huna. Kuan na makatigom sa
akong kaugalingon then
makastart ko sa akong life
syempre naa na gud ko sa
midlife nimo unya wala pa kay
natigom. Unya mao to na-stall
siya tungod sa sakit.
Nahunong siya kuan tungod
dili na nako makaya ang kuan
kay mikalit naman ko nalipong,
makuyapan naman kong kalit.
Unya tong nanggawas na
tanang symptoms magsuka
nako malipong ana.
I: So after sa stall sir, what
happened next naman Sir?
R: Sa kidney transplant?
I: Oo.
R: Kuan dili na ka kanang

Back to usual self but not quite
Being able to do what a
regular person can
Limited exposure to outside
world
Shock from impending graft
rejection
Life after kidney transplant as
a second life, brand new life
52
katong feeling ato gud. After Felt big difference after the
kuan man kanang lahi ra jud kidney transplant although not
ba. Dako jud siyag the same as usual self?
deperensya sa kanang regular Havent played basketball like
na lawas pero wala pa lage before since he prefers to take
nako nasuwayi kanang kuan caution from extremes
sa una kusug man ko moduwa
ug basket. Wala pa nako
suwayi ang mga extremes.
Kanang mga buhat pero sa Can do what a regular person
mga regular na kuan sa tao can do
makaya na nako kay wala
naman ko laing complication.
Kidney ra man gud whereas
sa uban kuan diabetes. Kuan
tungod sa diabetes nadaot
ilang kidney. Uban nabun-og He primarily has a kidney
ang kidney, ana ba. Ang ako-a problem not brought about by
kay kuan plain ra jud siya na co-morbidities.
kidney may deperensya.
I: Um, Sir [informant] pwede
ko nimo maestoryahan sa mga
series of events like gikan ka
sa transplant until the months
after and then the years after
and then until the present like
unsa ang mga panghitabo
after ka na kidney transplant.
R: Um, 2011 gi-transplant ko Stayed at home for the first
then after ato naa ra ko sa year post kidney transplant
balay. Then after mag 1 year,
kanang mikalit siyag kuan Over a year, his urine output
kanang kahinay akong urine suddenly decreased.
output bitaw. Unya kanang gi-
urinalysis ko balik ni Doc.
Then didto nahibaw-an nila na Reeled from the shock of
mitaas ako crea. Kanang mura impending graft rejection
jd kog kanang ok ra man
unta akong paminaw unya
nganong mikalit man ning
naingon ani? Kay paspas
kaayo mam.
I: If imong i-symbolize
imohang pagka-transplant. If
ma-compare nimo ug
something or happening
katong sa transplant. Katong
right after sa imong transplant,
mura siyag.
R: Unsa gani to Maam?
I: Katong na-transplant ka ba.
If imo siya i-represent or
symbolize ug something unsa
man siya? Mura siyag?
R: Second life jud. Murag Considers life after kidney
brand new life ba gihatag sa transplant as a second life, a

Acute awareness of the
presence of the transplanted
organ
Bulge at transplant site
Felt warmth at transplant site
Giving up when rejection
happened
Life was useless with the
rejection
Questioning rejection
53
imo ba. Kay kanang pag-after brand new life
sa transplant jud akong bag-
ong kidney. Inig ka ingon ana
ba <touched postoperative Post-op site felt warm upon
site> mo-init man siya. touching it
I: Ma-feel diay nimo siya?
R: O, kanang nga bag-o pa. For the first 6 months, acutely
Siguro mga after 6 months aware of the presence of the
ma-feel gihapon nimo siya. newly transplanted organ.
I: Oh unsa siya when ma-feel
nimo? Can you tell me more
about that? How do you feel
it?
R: Mura siyag mobukol gamay Felt a bulge at transplant site
I: Ah so murag naay bukol
gamay
R: Naa siya diri sa right side Felt it on the right iliac area
I: Until when na nimo na feel
na ingon ana?
R: Mga 3-4 months ma feel pa Felt the warmth at transplant
nimo siya. Unya mura man site for the next 3-4 months
siyag init bitaw, na naay
nagflow didto sulod.
I: So how did you feel touching
it?
R: Oo, kana ingon ana. Demonstrated how he felt the
Ibutang ra nimo imong hands bulge
sa side ma-kuan man nimo
siya kung asa siya dapit kay
mura siyag nagbukol gamay.
I: So when you naabot ka
atong point na rejection. How
did it look like and how did it
feel like for you? Naka-
mention man ka ug nahagba.
R: Kuan as in duol na jud mo- He felt giving up when the
give-up, Maam sa life. Niingon rejection happened.
nako sa akong kaugalingon,
ah sige dili naman nimo
makaya na magpa-ATG Wanted to wait for death since
maghuwat nalang ko. Dili he didnt have money to buy
nalang ko pa-dialysis the strong immunosuppressant
maghuwat nalang ko kanang to try to reverse the rejection
sakit bitaw nako kuan
mugrabe. Unya ang sakit
nalang nako mupatay nako.
Mao nato ako gi-huna-huna. Felt life was useless with the
Ingon ko murag useless rejection
naman gyud akong kinabuhi
kay dapat kuan ok naman unta Questioned why the rejection
ko. Unya ngano naingon ani happened
man?
I: So naka-question ka ato na
panahon?
R: Oo, naka-question jud ug

Not wanting to go back to
dialysis after the rejection
Mother provides support
Early death of father
Early introduction to work
54
grabe kay ni give-up na jud ko
ato. Ni-ingon ana ko Ma, di He didnt want to go back to
nako pa-dialysis. dialysis after the rejection
I: Then how did your mother
react pag-ingon nimo dili naka
pa-dialysis?
R: Kuan, ni-ingon siya... Ako His mother consoled him by
mama kay religious man saying God wouldnt give you
kaayo na siya. Niingon siya na something you cant bear
wala man tay problema na dili Religious belief used to cope
nato makaya. Makaya man jud
na nato. Gihatag na sa Ginoo
nimo kay makaya na imo. Kay
kung wherein sa uban gihatag
ang sakit kuan kay dili na nila
makaya kay ako man na
giingnan akong mama sa una
na Ma, ngano ako man He asked his mother why God
gitagaan ani sa Ginoo na wala give him this burden when he
man jud ko nagbinuang, tried to be good and is
nagsupport ko ninyo. supportive to his family.
Nagtinarong ko. Pwede man
unta kokuan magrolling
hayaw sa akong kaugalingon
kay si [sister] college na gud.
Unya ako Mama, kami ra tulo.
So pwede na kaayo ko
magrolling hayaw after ato
kanang trabaho nako. So mao
to siya, ingon siya gihatag na
sa Giinoo nimo kay kaya na
nimo kay kung sa uban pa dili
na nila kaya.
I: Can you tell me more about
katong 3 nalang mo? You
mentioned your sister, your
mother and imo father Sir
[informant]?
R: Akong father kanang 7 His father died when he was
years old pa ko gi-atake man seven.
sa heart
I: Um so it left na kamo 3
na lang.
R: Mao na, ako kay Since his father died early, he
pagkangan na started to work early. He sold
kinamaguwangan, sayo indian mangoes.
nagtrabaho. 14 years old
nagkuan nako nagtudtud nako
sa kariton sa maninda ug
mangga, Indian mango ba,
kuyog-kuyog.
I: Sa asa man pud na Sir
[informant]?
R: Dinha Sanciangko, He helped out a neighbor who
Sanciangko man mi sa una. sold mangoes since he got

Worked to support his family
Going abroad seen as a
means to
Waited to feel sense of
normalcy before resuming
work
Side effects of medications
55
Kay naa man mi silingan incentives from it.
tiguwang bitaw unya naa
siyay yuta sa Busay, nay mga
mangga. Inig-abot anang
iyang mga mangga. Wala na
siya problema kay iya mga
anak naa na sa States. Unya
mao ra to iya kalingawan.
Unya iya ni pakan-on,
sweldohan mi niya. Duha man
mi kabuok.
I: Sa pamaligya ninyo sa
Indian mango?
R: O, magsyagit-syagit mi sa Hollered to sell mangoes.
una kay siya bugoy man kayo
I: So early pa lang
R: Nakat-on nako.
I: You did mention aobut kato
support. How did you support
your family, your mother, your
sister?
R: Katong nag-abroad ko. Went abroad to support his
Kuan akoy nagbayad sa iyang sister through college as well
tuition sa college. Unya ilang as shoulder household
konsumo sa pagkaon then expenses.
abang sa balay. Kana. Unya
ako mama wala man tarong His mom has irregular income
trabaho kay kuan man siya which is not enough to support
ahente bitaw. Ang ahente sa them.
yuta dugay baya makakwarta.
Unya commission ra ng ila
kung maka-commission ka
karon dako then after pila
napud ka kuan wa napud
halin. Unya lisod baya.
I: Mura siyag sporadic siya.
Naa siya dako makita pero
kung wala pud, tagnihit?
R: Oo, mao to ang sige ko He supported his sister
padala while si [sister] through college.
nagskwela ug college. Pero His mother also went abroad.
siya [mother] naka-abroad
man pud siya.
I: After the transplant were you
able to take on the roles you
did before like katong ni
support ka?
R: Aw wala pa, wala pa man Havent started working after
ko katrabaho. Planning pa na the kidney transplant. Was
mubalik ug abroad. Ako lang planning to resume work but
jud gihuwat na nga mubalik na waited to feel normal
jud sa normal akong paminaw
ba. Naa pa man toy episodes Had episodes of nausea
na malipong ko tungod sa because of the medications
tambal, unya magkurog-kurog.
 56

Mao nay pinakakuan basta Experienced tremors in his

magtransplant ka. Magkurog- hands due to drug side effects.
kurog. Mao na tan-awon na sa
doctor imo kamot ipa-ana
<raises hands> sa air unya
tan-awon nila if mokurug ba
kay ang toxicity sa tambal
dinha nila i-base. Unya mao
ipa-tacro trough.
I: Kato imong plano Sir was
that before the rejection?
His mother wants to watch R: Oo, before the rejection. Had plans to go back abroad
over him Unya kanang ako bitaw to gi- [country abroad] but his mom
ingnan ako mama na kuan na wanted him to join her abroad.
nagplan ko na mag-abroad ko
balik. Pero ako mama dili mu-
agree didto [country abroad]
kay kaning didto daw ko iyaha
[another country abroad] kay
para naay kuan makatan-aw
ba.
I: After the rejection Sir, were
there changes na happen sa
imu life?
Depression over rejection R: After sa rejection? Oo, daku After the rejection, he lost his
jud kaayo kay kanang kuan wa appetite.
nako ganahi mokaon. Sige
lang ko huna-huna sa akong He thought about his problem
problema. Unya kanang unsa and felt depressed.
pa? Basta daghan, halos
tanan imong depression na
mahuna-huna-an nimo.
Kanang usahay mga flashes, Thought of buying a gun to
kanang ma-kuandepression end it all
na siya. Mag-huna-huna ko.
Unsa kaha noh palit na lang
ko pusil. Usa ra ka bala
<chuckles> para walay sakit
ba.
I: There were times naum
depression siya.. You mean
sadness siya er
Despair over what would R: Sadness na maayo pa ba Felt despair if he would still get
happened after rejection ko? Unya kanang naa pa koy well
pag-asa kanang matransplant
balik. Ingon si Doc na pwede Questioned if he could
pa ma-transplant up to 5 times undergo another transplant
pero ang problema kung mu- since it depends on his status
develop ka ug kanang taas na
antibody Maong kuan pud
depende pud sa imong status
kung igdayon nilang check-up
ba.
I: So there were days na you
felt

Grieving over graft failure
Felt blamed by the doctor of
his failure with medication
adherence
Problems encountered with
medication compliance
Felt rebellious when affronted
by his failure in medication
adherence
57
R: Dili days, months. Siguro 2 It took at least 2 months for the
months. Dili nimo madawat depressed state.
dayon maam oe Murag He cant accept the rejection
dako ayo na failure sa imong readily.
lawas. Ngano naingon ana Questioned why he had graft
ka? Ngano kay ang failure
diagnose sa doctor sa ako-a
gyud kay wala nako ma-ayong The failure was brought about
inom akong tambal ba. Ang by non-adherence to
ako pud rason kay kanang naa immunosuppressant regimen
koy tambal para sa akong BP as what was deduced by the
ug sa heart nga inig inom nako doctor.
which is sapang-gabie, His reason for failure to take
makatug ko unya akong meds his medicines since he was
para sa anti-rejection ana siya sleepy after taking his cardiac
makatug ko sa wa nako, inig- medicines so he misses out
kamata nako as in murag taking the due
black-out maam ba. Murag immunosuppressants.
wala na jud ko panimuot. Inig
ka ugma ana inig-mata nako
magwonder ko kung naka-
inom ba ko sa ako meds para
rejection. Dili man sad ka mo-
inom ug kanang sobra kay
mag-kurog-kurog man ka.
I: Katong imong na-mention na
toxicity
R: Katong Prograf nako His brand of
kanang immunosuppressant immunosuppressant
nako ba.
I: Oo, unsa pay gibati nimo
katong gi-mention sa doctor
na tungod adtong sa failure sa
pag-inom sa tambal?
R: Kuan, wala na man Felt nothing much
I: Dili lang gibati sa llawas, but
imong feelings sa pag-ingon
niya?
R: Nigawas dayon pagka- Felt rebellious when affronted
rebellious sa akong utok. Unya by his failure in medication
ay mu-ingon man jud dayon adherence
ng doctor nga kuan tungod
nimo. Dili mu-ingon tungod sa Felt that it was easier for the
tambal amo gihatag kay naa doctor to blame the patient
koy napansin sad ato na Noticed that a lot of
tambal kay daghan man sila immunosuppressant were
na tambal na introduced to him
immunosuppressants nga
kanang ila ikuan sa imoha i-
introduce sa imoha. Kanang-
katong tambala magsige sakit He felt gastric disturbances
ako tiyan then usahay with the immunosuppressants.
malipong ko ug kalit.
I: So naa kay mga side-effects
na sakit sa tiyan ug malipong

Felt that the side-effects made
medication adherence
different
Doubts over medication
regimen
Worry over medication
expenses
58
ka?
R: Oo, magpangutana ko sa Felt side effects
gi-transplant pud lahi man iya Compared himself with other
na tambal ingon siya. Wala kidney transplant patients side
man siyay episode kanang effects
na-experience ingon ana. Oo,
mao ba. Basin sa imo tambal.
Oo, kay kuan grabe kaayo Had side effects from
nag-side effect ba. Kay kuan numerous medications
gud 3 gud na kabuok usahay
ako imnon unya plus 2 pa
kanang gasto bitaw kanang
kapin so total of 5 na daan
para sa immunosuppressant
nako. Mao na ingon ko ang
doctor dili jud muingon nga
kuan ilahang sala. Kay
nahibawan nako ana Akong
nadunggan nako ana kanang
tambala naa pud toy 1 na ga-
reject pud mao pud ng
tambala gigamit. Sa ako ra ng Had doubts regarding his
duda ha. Pero kanang kuan treatment regimen
na-accept naman nako jud na But suddenly accepted that he
basin sa ako jud tong kanang failed in taking the prescribed
mapalya ug inom ug tambal. medications.
I: So karon, na-accept nimo
but before kaang unsay
feelings pa nimo before?
R: Kanang gaduda jud ko sa He still has doubts whether the
tambal nako kanang wala medication regimen suited him
kauyon akong lawas sa tambal since he was often tested for
ba. Sige ra gud mi ato ug test toxicity.
gud unya kuan toxicity sa
lawas bitaw.
I: What did you mean by that?
R: Kuan kanang anha man Clarified that those tests
nila mahibaw-an kung pila ka checked for the appropriate
tabletas ipa-inom sa imoha. dosage
I: Kuhaan ka ug dugo?
R: Oo, kuhaan ug dugo. Unya The blood is extracted and
padala didto sa Manila unya sent to Manila to check if the
kanang didto mahibaw-an dosage is within range.
kung taas ba ang kuan usbon
napud ang dosage ana.
I: Ok, what were your thoughts
about those changes sa
dosage nimo?
R: Usahay pud kanang
makaduda pud. Kay katong Prescribed medications were
tambala maam, grabe very expensive. One tablet is
kamahal maam. Laliman ka P200 and needs to be taken 3-
ang 1 ka tambal is 200 pesos 4 tablets daily.
kapin unya ipa-inom sa akoa
kay 3 o 4.

Placement of new
hemodialysis site after the
rejection
59
I: In a day?
R: Oo, unya dili man ka kapalit Cannot buy medicines by
ana ug 1 ra kabuok piece but by box
kinahanglan box man 10,000
pesos akong buwan.
I: Per month unya kana lang
na tambal?
R: Oo, kana lang na tambal Had combination of drugs and
alone. Unya naa pa to siyay another drug to counteract
ipares ato niya para dili gastric disturbance
magsakit ayo imong tiyan.
Prograf man na kanang tag
200 pesos kanang Myfortic
almost 200 pesos pud, unya
10,000 pesos ang box.
I: Uhm And then after sa
rejection What happened
after pa jud Sir? Did you go
back to dialysis?
R: Oo, kuan nalang balik Had to go back to dialysis and
nalang dialysis then ang kuan placed a new hemodialysis
pa jud gitauran ko ug site site after the rejection since
namatay pa jud. Kani siya the previous site failed already.
<points to site>. Kani na site Had to have another
ubos sa akong right arm. Then hemodialysis site since the
gi-usban pa jud ko nganhi sa new one also failed. If this fails
upper na right arm so mao na again, he would have a site at
ni-last na site nako. Kung his inguinal area.
maguba pa jud ni sa bugan
nako tauran.
I: So kana siya sa right. Naka-
try na ug hemodialysis
access?
R: Kani siya katong sa una The right arm had the previous
katong pre-transplant. hemodialysis site.
I: So dili na kanang sa left
nimo?
R: Dili ni siya pwede kay wala The hemodialysis site at the
na siyay thrill. Wala na siya left arm cant be used already
thrill unya dugay na ni wa since it has no thrill
gigamit sa kuan bun-og na ayo
ang ugat sa maong gibalhin
diri. Gipangitaan, kani kuno One hemodialysis site clotted
nadaot na siya kay gamay as he slept on it. He didnt
kaayo ang ugat diri so mao notice this since he was sleep
nga dali ra nadaot. Nakuan deprived for 3 days.
man nako maam nadat-
ugan nako sa ako ulo sa
pagkatulog kay naadmit ko ato
3 kaadlaw walay tulog ba.
Unya after pagka-4th day na-
nakatulog ko unya nag-ana ko
<shows hunched over
sleeping position> mao nadat-
ugan nako. Gihimo nako

Dealing with anemia after the
rejection
60
tandayanan akong kamot ba.
Pagka-ugma ato nawala na
iyang thrill kana ra. Tagbaw Revival of the site was
gud sila ug revive ani unya attempted but couldnt
delikado man kuno kung ila pa
i-revive. Butangan pa atong
katong nay tambal para kuan
kay naa man koy kuan sa
heart so ma-compromise kuno
ako heart, delikado so wala na
nila suwayi. Nangita nalang
sila ug laing access. Diri Looked for another vein for
<points> dako man ang ugat access
diri taas.
I: Naka-mention ka na
regarding dili ka makatulog.
R: Oo, anemia. Had anemia
I: So, when were those time/s
na dili ka katulog, Sir
[informant]?
R: Hangtod karon <coughs>. Up util present, still has trouble
Excuse maam. Kanang kuan sleeping because of his
anemic ko. Mubo akong anemia
hemoglobin. Kana dili ko
katulog ana.
I: Ang anemia nimo Sir
[informant], when man siya na-
diagnose na siya?
R: Kuan siguro mga 2 months Two months after the rejection,
after atong rejection na nag- he became anemic.
dialysis nako maam.
I: Ah... Naa ba say mga
interventioins gihatag for your
anemia?
R: Oo, iron then iron ferritin Was given supplemental iron
kanang IV iron. Iron ferrifer.
I: Oh, dili pud ko familiar brand
names.
R: I-dilute na siya, inig-human Intravenous iron given after
sa dialysis. dialysis
I: Oh, how did you feel having
additional tambal to treat your
anemia problem?
R: Aw kuan, wala ra man ayo Not shocked by resumption of
ko ma-shock ana maam kay iron supplements since he was
katong kuan sa una katong on it before the transplant
before ko gi-transplant katong
sa dialysis ko, gi-kuan kanang
ga-inom man sad ko ferritin
man sad ko.
I: Before to sa transplant?
R: Oo, uhm
I: So after the rejection, then
you were back sa dialysis you
were given those
 61

R: Oo, kinahanglan ko ug Given erythropoietin and iron

kuan erythropoietin. Unya
kuan iron.
I: Uhm How did you respond
to those interventions like the
iron and the erythropoietin?
R: Kuan, mas maayo akong Felt better after being given
gibati. Kuan mas lively ko. iron and erythropoietin
Kuan himsog na kaayo imo
dugo murag kuan molagsik ka
maam. Modungag imo energy.
Kuan, ma-feel jud nimo adfer
inig-tusok sa imo sa iron right
away. Sa IV man siya.
I: If without the iron, how do
you feel?
R: Luya then kanang dili ka Feels weak and cannot sleep
katug. Makatug ka pero without the iron
mumata dayon ka.
I: How many hours do you
sleep?
R: Kuan kung pananglitan
anemic ko?
I: Oo.
R: Kung makatug ko 1 hour. Sleeps only one hour
I: 1 hour?
R: Oo, then mata na pud then Sleeps only an hour every
makabalik siguro ko ug tug night then sleeps in the
buntag na. Mao usahay morning
buntag ko matulog. Unya Goes out of his home to go the
mugawas ra ko kung padung dialysis
na sa dialysis center. Kanang Doesnt like going out when he
maluya man ko. Dili man ko feels weak
ganahan mugawas.
I: Uhm <looks at informant
who is removing the peanut
dressing on his hemodialysis
site> Imo ng gi-open Sir?
R: Oo, kay kinahanglan man Explains removal of his peanut
na siya tangtangon para dressing to let his site air out
makaginhawa siya.
I: Ah imong dressing bale.
After such time mu-clot naman
pud siya?
R: Oo, pananglitan dili pud na Explains that the dressing
nimo kuha-on maam mopilit sa sticks when not removed
gawas kanang mokugan ba,
maapil siya. Pananglitan kana
inig padung pa sa dialysis
nimo anha pa nimo tang-
tangon, sakit kaayo kay
nikugan na siya sa gauze.
I: So ma-pull back nimo?
R: Oo, unya masamad ug Explains the site bleeds when
balik, usahay modugo. the clot is disrupted
 62

I: Kasuway ka Sir na midugo

siya?
R: Oo, naligo ko napuno ug Tried having the site bleed
dugo akong shower. while taking a shower
I: How did react man pud?
R: Dili naman ko ma-shock Accustomed to bleeding
kay kuan na-experience episodes already
naman nako sa una pud. Ako
lang ana-on <presses>. I-
press lang nako unya naa ra
man pud gauze diri, press-
press lang balik hangtud ma-
ulian siya.
I: So its not shocking
anymore?
R: Dili na <chuckles>. Pero Not shocked anymore, maybe
kung makakita ka ani ikaw, for others
lain na tao, musirit jud ni siya
mura kanang fountain. Ako
lang ana-on <shows how he
presses>. Kani siya ang kusog
kaayo. Ako lang ni ampingan.
Mao na inig-abot nako dialysis
manglili sa ko sa bintana kinsa
mga karaan na available ba.
Kay adto ka sa bag-o ngadto
magsige through and through,
mabun-og imo site, mamatay
niya, simbako.
I: Going back lang Sir, you
mentioned that there was a
point when you didnt want to
continue with dialysis after the
rejection?
R: Oo.
I: What made you go back to
dialysis?
Wanting to live longer for R: Akong mama, then akong His mother and son changed
loved ones son na kuan na mudako siya his mind regarding going back
nakuan wala siya papa. Kay to dialysis after the rejection
kana siya mudako nako unya Wanted to live longer for his
nag-support ra ko niya. Unya son
once mag-estorya mi mu-
ingon man siya na kuan, Pa,
paayo na. Mao na siya
makahilak ko na kuan luoya
aning bataa kay kuan ba
pananglitan mugive-up ko
kanang dili siya ka-experience
sa kuan kana iya mama
broken family na siya daan.
Then ako wala na koy father His father died when he was
six years old pa lang. Dili ko six years old. He doesnt want
ganahan maka-experience sa that to repeat the scenario with
kuan ba. At least man lang this son

Constant communication with
son
63
ma-extend akong kinabuhi
mag-uban mi ug dugay-dugay.
Ana ba, mapa-feel nako niya
ba ang kana bitaw love sa
papa kay once mag-estorya mi
kanang makuan jud nimo sa
iyaha na kinahanglan siya ug
amahan ba. Kay Pa, kanus-a
man ka mu-ari diri?
I: Do you still communicate?
R: Oo, everytime na kuan, naa Talks to his son over the
koy kwarta na kuan dugay phone
man ayo mi magkuan sa
cellphone.
I: Asa diay imo son karon?
R: Liloan sa iya lola
I: So Cebu ra gihapon? His son is in Liloan
R: Oo, Cebu gihapon. Taga-
Lilo-an man ang mother.
I: Unsa gani to inyo set-up sa
imohang son ug mother sa
imong son?
R: Kuan, balik, kana siya ang His son is illegitimate. He is
bata. Siyempre pagkatao ana. with the maternal
Kuan illegitimate man siya so grandmother.
kinahanglan naa jud sa mother
then kuan pinangga pud kaayo
sa iyang lola gud kay kuan
man
I: Lola bale sa side sa babaye.
R: O, kay only daughter man Cant watch over his son
na nila. Only child man na ila
anak so mao na siyay only
apo pud. Mao pinangga kaayo
kay nagpress man unta ko ug
kanang custody, joint custody
at least makuan, ako sad gi-
huna-huna kung ari nako gud
dili nako mabantayan so
makuha ko ug yaya. Ok ra
nako mukuha ug yaya.
I: Dili nimo mabantayan
tungod kay?
R: Tungod sa akong situation. Cant watch over his son
because of his situation
I: Pero before sa imohang
kidney failure naa naman na
siya?
R: 2003 man na siya. Naa na Had his son before he went
siya pero ni-abroad man ko. abroad
I: Ah... so ang reason ana na
time katong sa abroad?
R: O, mao wa jud na nako sa Communicates with his son
ako-a. Mag-sige rako tawag. through phone
Mao kuan kaayo na siya

Need to feel strong for loved
ones
Happiness in sons support
during illness
Taking the time to be with son
after the kidney transplant
64
makadungog siya sa akong
tingog. Pa, kanus-a man ko
nimo anhi-on diri. Manuroy ta,
ingon ana.
I: So during pa na sa abroad
ka?
R: Hangtud karon. Kanang He doesnt want his son to see
mangita gihapon siya nga him sick but his son insists on
kanus-a kuno ko mu-ngari. seeing him
Kumusta naman pa? Kato Doesnt want to be seen as
gani pag-admit nako sa weak?
[hospital] niadto man siya.
Ngano ni-ari man ka? Ingon
siya ganahan man ko kita.
Ingon ko dili ko ganahan dong.
Basin ma-trauma siya, sa
kadaghan sa tubes. Ngano,
ingon ana akong papa oe.
Ngano masakiton man ni. Ok
ra man siya. Cool ra kaayo
siya. Ingon siya Ok ra oe.
I: Wa pa siya kita nimo na na-
admit ka?
R: O, na-admit ko niadto siya. His son visited when he was
admitted.
I: Ah niadto siya?
R: Nasurprise ko niadto siya Surprised by his sons visit
ug kalit. Mao to niingon siya
Ok ra nako oe.
I: How would you want diay
unta na makita ka niya? Naka-
mention man gud ka na naka-
connect nimo.
R: Kuan Katong after sa After kidney transplant, he
akong transplant sige ko adto took his son malling.
sa ilaha. Isuroy nako siya kay
naa man SM Consolacion.
Sige mi panuroy didto Bonding moments with his son
<smiles>, ana. Bonding jud
ug maayo kami ra duha kay
ang kuan ang iya lola mosugot
ra man akong kuha-on. Sa
una dili man na mosugot.
I: Oh... So after your transplant
kay you have the time na mag-
kuyog mo niya?
R: Ang akong plano ato The plan after kidney
maam. Ang plano sa kaong transplant wasfor him to go to
mama na maayo nako kanang Australia with his mother. So
naghuwat nalang ma-ok na he wanted to spend time with
gud ko which is kuhaon ko his son while he was still in the
niya padung sa [abroad]. So Philippines.
kung kuhaon ko niya magka-
buwag na pud mi sa akong
anak. So ako jud gi-siguro na

Disclosure of ones status to
loved ones
Thoughts of dying from illness
Protective of his son dealing
with the concept of death
65
magspend jud ko ug quality
time niya before ko mularga.
Ingon ana. Ako ra man jud Explained to his son his
siya pasabton. Dili nako siya situation since he doesnt like
bakakan. Bati man gud kaayo keeping things from him
magkuan ka. Kanang mag-
tago-tago bitaw ka sa tinuoray
na sitwasyon. Unsay mahitabo
nako simbako. Kanang at least
kahibaw siya ingon ani diay
kuan sa akong papa, ana.
I: Unsa man pud mga
eventualities imohang gihuna-
huna na possible na
mahitabo?
R: Aw... dili man jud na Thoughts of dying from his
mawagtang siguro sa imong illness
kuan sa imong kana labi na
dugay naka nag-dialysis.
Makuan jud na sa imong
huna-huna kuan kanang
makuan bitaw ka ma
makuan ka Basin atakihon
ka ug kalit ana ba. Wa ka
kahibaw mukuan jud na sa
imong huna-huna.
I: Bale ang kamatayon?
R: Oo, ana ba. Naa jud na sa Thought of death is at the back
luyo sa imong huna-huna of his mind
permi.
I: So atakihon ka, and then
unsa man?
R: Mamatay, ana.
I: Um when you talk to your
son regarding that How do
you feel?
R: Nga?
I: Diba na-mention nimo naa
kay thoughts in your mind na
pwede ka atakihon?
R: Awkana siya na part wala Didnt mention the concept of
ko nag-mention ana niya kay death to his son yet because
tan-aw nako bata pa ayo siya he thinks hes too young to
para makasabot ug ingon ana. understand yet.
Mao dili ko ganahan na
kanang makuyawan siya na Wants to keep thought of
kuan Pananglitan ma-admit death to himself
ko makuywan iya na kanang
magkuan iya utok na naa
siyay side na kuan basig
mamatay na akong papa, ana.
Mao dili ko ganahan i-mention
na. Sa akong nalang sa akong
kaugalingon. Kay ako man
nakahibaw sa akong lawas.

Not wanting son to worry over
his diagnosis
Constant communication
between father and son
66
I: So dili ka ganahan ma-
expose o maghuna-huna siya?
R: Dili ko ganahan mag-huna- He doesnt want his son to
huna siya. Gusto ko normal ra worry hes going to die. He
iya life nga kanang everyday wants his son to live normally.
life niya wala siya huna-
hunaon na kuan, kumusta na
kaha to ako papa noh. Kuan
jud na siya maam, caring na
pagkabata.
I: Pila na diay iya edad sir?
R: 10 na maan, kanang His 10 year old son is very
mukuan siya maghuna-huna affectionate.
siya Pa kumusta naman ka?
Mu-ana maam <smiles>
parygon kaayo.
I: So mutext siya? Mu-call?
R: Mutext then ako tawagan Father and son text and call
unya tibuok gabii mag- often. They talk about
estoryaay ra mi <smiles>. computer stuff.
Kuan maam, hilig kaayo ug
computer. Unya kabaw pud ko
gamay sa computer mao taas
ayo mi ug estoryaan.
I: Unsa pud na computer?
Games?
R: PC games mao na iya hilig His son likes PC games.
I: Tigduwa diay siya ana.
R: Maluoy man gud ka ana niy Pities his son who is not with
kay syempre nabiyaan nako his father and mother
then nabiyaan pud siya sa iya
mother. Iya mother naa man
sa states.
I: Was there any other father
figure sa iya life?
R: Naa iya stepfather niya, His son has a stepfather.
bana sa iya mama.
I: Bale naka-remary ang
mother niya?
R: Wala man jud mi nakasal Wasnt married to his girlfriend
sa akong uyab
I: Ah, na-marry ang babaye
and then katong stepfather is
he around?
R: O, tua napud sa states. His ex-girlfriend and husband
are in the states.
I: Ah so silang duha. Its just
the lola ang nag-take care
R: Naa siyay manghod, usa. His son has a half-brother
I: Ah oh Diri sa cebu, iyang
lola ug ikaw ang nabilin bale.
R: Oo.
I: Close niya na relatives bale?
R: Mao ng kuan... Sige ko Always thinking of his son
huna-huna niya ba. Huna-

Wanting to have a second
transplant
Kidney transplant perceived as
better than dialysis
Experienced complications
during dialysis
67
huna kog syempre nag-huna- Wants to save up for a second
huna ko sa akong kaugalingon transplant
mag-amping ko kay kuan
pananglitan makatigom ko
kuan ba ganahan jud ko mag-
second transplant. Mao man
nay plano namo.
I: Kinsa namo?
R: Mama, si [sister] His mother and sister would
want a second transplant.
I: Si [sister] ug imu Mama.
R: Kay kuan maam, sultihan Kidney transplant is totally
lang tika maam sa tinoud different with dialysis
kanang lahi ra jud naka- Dialysis is seen as something
transplant ka ug nagpa- unsure.
dialysis kay anytime sa
dialysis wa ko kahibawo unsa
imong bati-on. Kung unsay
mahitabo nimo, maluya baka
ug kalit, ma-hypo ba ka ug
kalit, mag-chills ba ka ug kalit.
I: Kanus-a pud na mahitabo na
maluya ka, ma-hypo
before,during or after?
R: Usually sa akong case, Has hypotensive episodes, 1
mag-hypo ko kanang 1-hr. hour before dialysis ends
Kuan before mahuman.
Kanang mo-aksyon ug kusog
akong blood flow.
I: Pila pud ka ka-hours imo Usual dialysis times
dialysis?
R: 4-hours. 4-hours man jud
ang normal.
I: So mga 3rd hour?
R: Mao na usahay Asks his nurse to decrease
manghangyo ko sa nurse na blood flow during the last hour.
ubsan akong bloodflow balik
sa 150. Ang normal nako na
blood flow is 220 man, unya
paspas nana siya. Mas nindot
man gud na paspas kay
makuha jud imo crea and
BUN, matang-tang imong mga
toxins ba mao pud kung kaya
ba sa imo lawas, then mao to
nakakuha nako daghan-
daghan 1-2 hours after ana 3rd
hour inig-sulod sa 4th hour
magpa-ubos nako sa blood
flow, mailhan man na nimo
mag-hypo ko kay kuan mag-
singot imo palms.
I: Unsay mahitabo kung mag-
hypo?
R: Magsingot ang palms unya Enumerates symptoms

Felt side effects during
immediate post-transplant
Feeling normal after kidney
transplant
Experienced tremors post-
transplant due to
immunosuppressants
68
mamugnaw ug maayo hasta experienced when
imu tiil, toes nimo. Kana jud hypotension happens
ma-una ug bugnaw. Unya ang
sunod nimo na feeling kuan na
kanang nalipong na then
sunod kuan na imong
peripheral vision mu-dark,
magka-anam-anam hanap
hangtod kuyapan naka kung
dili ka magpahibaw.
Magpahibaw man ko. Mu-
ingon ko sa nurse dili nako kita
nimo <laughs>.
I: Ah so mahitabo na nimo
during dialysis?
R: Oo, during dialysis mag- Experiences chills whenever
hypo. Unya usahay chills labi the dialyser is changed
na kuan kanang bag-o na
kuan, mag-ilis sa dialyser or
hugaw na ang dialyser, ana
chills. Naa kay hilanat, chills
pud.
I: Oh sa transplant pud diay
unsay mga symptoms imu
bati-on pud?
R: Symptoms sa transplant,
after?
I: Oo
R: After transplant jud kanang Immediate post transplant,
naay episode magsuka gamay experienced episodes of
kanang tungod siguro sa nausea and vomiting attributed
tambal ba. And then naa pud to anesthesia and medications
lipong gamay tungod siguro na
sa anesthesia kay mao man
na ang nakuanan.
I: Pero later na, kanang ni-
wear off na ang anesthesia.
Unsa pa man lain, naa ba kay
pamati-on?
R: Wala na. As in normal na After the anesthesia wore off,
gyud kaayo. Normal na gyud he felt normal.
kaayo. Imo breathing, imong Felt no more fluid shifting, the
kuan, imong kanang tiyan dili appetite came back, sleep was
mudako dili mudagan ang better
tubig bisag asa sa imong
lawas. Unya ang gana sa kaon
balik na then tulog ok na
kaayo ang tulog. As in normal
na gyud siya.
I: So para nimo mao ng
normal bale?
R: Aw oo, um Normal as in Felt like normal post kidney
normal. Pero ang kuan lang transplant except for the
magkurog siya <holds up tremors
hands> magkurog ang imong

Experienced increase in
appetite with steroids
Improved physical health
Improved physical health
Tremors are minor drawbacks
compared to the general well-
being post-transplant
Life after kidney transplant as
a second life, brand new life
69
muscle ba. Magkurog gamay.
Mao ra nay deperensya
tungod sa kaisog sa tambal
ba. Naa pa gud kay steroid,
mao ra nah kay kusog na ayo
ka mo kaon. Ganado na kaayo Noted increased appetite, can
ka. Unya lakaw-lakaw dili na tolerate longer walks
ka kapoyon. Mao ng compared with during dialysis
advantage kaayo. Kay kaning wherein a few flights of stairs
dialysis maam, musaka lang and hes catching his breath
anang gamay na hagdanan
kutasan daon ka. Siguro mga
5 or 6-steps.
I: After sa imong transplant
naka-saka naka ug stairs
diay?
R: Asa?
I: After sa transplant maka-
saka naka ug stairs?
R: Kasaka man gani ko ug Was able to go up a steep
Busay galakaw ra mi place post transplant
<laughs>.
I: Ah so after your transplant
bale?
R: Oo ngadto mi kuan,
ang
I: How did you feel na from
hangak to able to do that?
R: Lahi ra jud kaayo maam oe Being able to climb up a steep
<laughs>. Murag imong place felth life winning in an
feeling nakadaog ka ug extreme sports event like
extreme sports. Kanang Ironman
Ironman. Murag ingon ana
imong feeling. Grabe layo
kaayo kay gamay ra nimo sa Great difference in physical
dialysis, hangak dayon ka, strength after kidney transplant
luya dayon ka, dili ka ka-also than being on dialysis
ug bug-at.
I: But if i-compare sa mga
tremors ma feel nimo? Any
discomfort?
R: Aw dili, hinay ra man ang Considers the tremors post
tremors. Dili man nimo transplant, a minor thing
makuan. Naa pa gani mga tao
na normal na mas kusog pa Rationalizes that even normal
nimo ug tremors. Pero kana people experience stronger
siya na tremors mo-tan-aw dili tremors
siya normal. Unya ikaw ga-
kuan ka sa transplant adjust-
son ang kuan.
I: From what Im hearing, more
on the positive bale ang sa
transplant na experience?
R: Oo, puro positibo as in Transplant experience was a
kuan jud mura kag gitagaan ka positive experience. It was like

Redefined plans
Holding on to religious belief
while hoping for another
transplant
Tries to prepare physically and
financially for another
transplant
70
ug new life. New life gyud. given a new life.
I: How about katong na
mention nimo na tawag ani,
new life. So how do you view
your new life?
R: Mao to magkuan, nag-plan With his new life, he wanted to
nako for the future. Kanang plan for his future.
ma-feel lang gyud nako na-ok When he felt okay, he wanted
na jud ko, mu-abroad ko balik to go abroad again, even
then kuan Kanang basin migrate to Australia.
mag-migrate ko ug Australia.
I: Now na youre still waiting
and if I remembering it right.
You mentioned youre trying to
save up for a second
transplant, how do you feel
during this time na nag-wait pa
ka?
R: Kana lang jud, hope lang Putting his faith in God
jud, faith. Kapit lang jud ni
Lord. Unya di jud ka mag- Extra careful, watchful of what
abuso, mu-tan-aw jud ka sa he eats and drinks
imong gi-kaon, unsa imong gi-
inom, ana. Mao gyud nay
pinaka-importante na magtan-
aw ka sa imong gipang-kaon,
gipang-inom. Niya imong
timan-an pila na imong intake.
Kay gamay nalang kaayo
kanang imong output. Mao
gyud na. As in balik napud na Went back to waiting and
waiting nga kanus-a ka preparing for another
magkakwarta na pwede na transplant
magpa-transplant. Kay karon
gud na mas ok-ok ron kay
daghan ug kanang volunteer
karon na donors wherein sa
una nga ang mga tao
ignorante jud ana bale. Wala
jud mo-donate sa imoha. Mas
advantage karon basta naa
kay kwarta. Unya ang kanang
mga tambal na high-tech na
ayo ang tambal. Dili pareho sa
una daghan jud kaayo imong i-
take. Mao to ang uban mag-
moonface, tugkan ug daghan
ayo balahibo.
I: Have you tried?
R: Wala, wala koy side-effect
na ingon ana
I: Did you notice any
difference?
R: Kuan siguro usahay Noticed he plumped up
mabugol ko.

Gained weight post-transplant
Felt happy with regained pre-
transplant weight
Health deteriorated with
rejection
71
I: Unsay bugol?
R: Mu-kuan maam ba, Gained weight post transplant
mutambok na lingin. Mukalit
lang ko lingin na tambok.
I: Asa man pud dapita?
R: Sa lawas lang Had a fuller body
I: The whole?
R: Oo, kanang mudako gamay
I: Dili siya sa tiyan lang ba ron
or sa nawong lang?
R: Dili. Lawas jud siya. Kay Gained weight from increased
kusog naman ko mukaon man appetite
pud. So mura pud siya akong
gi-inom, murag magpundo
didto tanan unya mo-lingin.
I: How did you feel looking at
the mirror na ni bugol?
R: Aw kanang happy kaayo ko Very happy with his fuller body
sa tanan kay pag-before ka since he gained back his pre-
na-diagnose ug kuan naay kidney failure body
kidney failure kuan gud ko gud
siguro mga 80 or 82 kilos, 168
pounds.
I: Ah So before pa jud sa
kidney failure bale?
R: Sa pag-abot nako diri.
I: So 168 lbs bale. During your
dialysis before your transplant
did you have weight changes?
R: Ni-deteriote na akong When his health deteriorated
health unya akong weight with kidney failure, his weight
nigamay pud. Kuan siguro no went down to 65 kilos.
mga 65 kilos.
I: So ni-lose weight jud ka?
R: Lose weight jud. Really lost weight
I: Pag-transplant nimo?
R: Pag-transplant nako nibalik- After the transplant, regained
balik na sad ko mga siguro most of the lost weight.
niabot ko ug mga 77 kilos.
I: Ah Unya katong pag-
rejection na nimo?
R: Pag-rejection, kuan. Pag- Upon graft rejection, the
una ato, mga 2-3 months wa weight did not drop for the first
pa kaayo nako nakuani 2-3 months.
kanang
I: Wala pay change?
R: Oo wala pay changes. No noticeable changes until 4
Unya after 4 months didto na months after the rejection.
tanan mokuan man jud siya Symptoms appeared like
maam. Lahi na kanang nausea, insomnia, decreased
mogawas na tanang urine output, low immunity,
symptoms. Sunod-sunod weight decreased to 60 kilos.
tanan, mag-suka ka kanang
dili naka katug uhmm
mogamay mong output.

Regaining of complexion prior
to kidney failure
72
Mugawas jud siya tanan. Dali
ra ka hilantan. Mao to na
kuan, niabot nako karon, kuan
ko karon kanang 60.4.
I: Kilos bale?
R: Oo.Pero kuan na siya Dry weight is 55 kilos while 60
kanang beyond na na sa kilos is already congested
akong dry weight kay dapat
kuan ra ko 55 ra ko akong dry
weight kay congested naman
ko anang 60.
I: Suwayan daw nato convert
katong 168 lbs divided by 2.2
lbs. So 76 kilos bale ka before
ka na kidney failure.
R: Oo.
I: Pag-kidney failure na jud
then dialysis ninaog to siya ug
mga 60 nalang.
R: Oo
I: And then pag-transplant
balik siya ug 70 kapin 72 ba
to?
R: Oo.
I: And then?
R: Makita jud nimo ang Weight changes are
changes noticeable.
I: And then pag-rejection,
months after
R: Mag 2 or 3 months nibalik Experienced weight loss 2-3
na siya 60 months after the rejection.
<Pause. Patient went to the
restroom for a short while>
I: So how do feel looking at the
mirror everytime you notice
that change?
R: Kuan di ka makatuo at first He cant believe at first that he
nga kuan na nibalik na imong regained the body he had
lawas sa una. Unya kani before. Also the dark
siyang imong ingon ani pigmented areas due to
<points to areas with dark bicarbonate also lighten up.
pigmentation> mupula siya,
kini ingon ani mura man siya
nasunog sa bicarb ba. Kana.
Uhmmkani siya <points to
legs>.
R: Kaning irregular na awom
kana nitunga ra na siya.
I: Bicarb, bicarbonate bale?
Kanang unsa mana sa dialysis
bale?
R: Dialysis. Acid ug bicarb ba. He noticed that people on
Unya usahay after ko mag- dialysis have darker skin.
dialysis mag-init akong lawas
tungod sa acid siguro. Unya

Felt like a prisoner staying at
home
Needs to maintain a safe
distance when interacting
Felt like a prisoner staying at
home
Felt like a drug addict with
numerous medications
Problems encountered in
medication adherence
73
kanang mga itom-itom.
Kasagaran jud ana maam
itom-itom, maam <takes a bite
of his food>?
I: Kaon lang Sir <continues to
eat>.
R: Mao na pagtan-aw nako The effects of transplant are
hala lahi ra gyud diay ang noticeable.
transplant ma-notice jud nimo
I: After sa transplant, ni-
lighten?
R: Mamuti naka ug balik. Wa His skin lightened after the
man gud koy gawas-gawas transplant
kay dili pud ko pwede
magkuan magkanang interact
ug daghang tao ba so naa ra
ko diri balay.
I: How did you feel just being
at home?
R: Murag piniriso. Mugawas Felt like a prisoner staying at
ko doble ang mask unya dinha home
ra ko diha magtan-aw tan-aw When going outside, wears
ra ug billiard-billiard pero naa double masks and watches
rako sa layo kay ang kuan pud from a safe distance.
ang chalk sa billiard. Naa ra sa
luyo. Naa ra sa atbang <points
to where billiard place is>.
I: So can you tell me more
katong murag piniriso?
R: Mura kog piniriso diri. Palit Felt like a prisoner since he
rako makaon, tan-aw TV, DVD ate, watched TV, DVDs and
unya mag-internet. Ang imo ra surfed the internet at home
advantage sa piniriso siguro Only advantage is the use of
makagamit ka ug communication gadgets
communication tanan naa kay
internet. Naa kay kuan
cellphone. Mao na unya
magkuan, magkanang
magbantay ra ka pirmi sa oras Always watchful when the
sa tig-inom nimo sa tambal medicines are due
unya mao na ang kuan.
I: How many meds?
R: Kuan 5 sa, sa para kidneys Numerous maintenance
then sa akong heart ug sa medicines
akong BP is 3.
I: Aw, ubay-ubay pud diay.
R: Mura lage kog adik-adik ba. Felt like a drug addict with the
Usahay ang uban kanang side numerous medicines
effect bitaw... Katugon
kaayo kani lage mura kag
nahubog bitaw. Ana, mao na
akong nakuanan katong mao
na ako gi-blame nga katong
mao sige ko ka-miss sa akong Usually felt sleepy after taking
tambal kay kana naa kay his antihypertensive

Difficulty in finding a partner
because of his diagnosis
Rekindling of sexual aspect
74
tambal para sa BP ug sa heart medications so he failed taking
unya kuan kanang makatug due immunosuppressants
ko. Mao to na wa ko kahibaw if
naka-inom ba ko o wa. Unya
dili man pwde doblehun kuan
kay steroid man ug kanang
katong immunosuppressant.
Mao toy gi-blame sa doctor wa
nako ayoha pag-inom ang
tambal <continues to eat the
banana>.
I: Kaon lang Sir.
R: Di ko mukaon ug whole, Knows his potassium intake
half ra. Mo-taas niya ako recommendations
potassium.
I: Ah gi-allow ra ka sa
saging pud?
R: Oo wa man pud ko gidili Acknowledges that hes
sa ako.a as long as kuanlang advised not to eat raw food
dili lang kinilaw kay bawal man and highly salted food.
jud na sa amo-a ang kinilaw.
Kana pud mga parat kaayo dili
pud ko pwede ana pero
kanang ginagmay lang pwede
ra man.
I: Thank you kaayo sa pag-
share Sir [informant] ha.
R:Ok ra maam Clarice oi
<finishes the banana, goes to
the sink to wash hands,
recorder turned off>.
<Recorder turned on again>
I: Ako siya i-continue?
Regarding diay I forgot
regarding katong karon na off
the record, na-mentionnimo
about katong interview with
the interns and you mentioned
about like the changes sa sex
life, ana. So, before the
transplant and after the
transplant were there changes
sa imohang sa imohang sex
life?
R: Kuan, kanang bale normal Struggles for words
ra ma siya pero kuan siyempre
<chuckles>kanang dili nako Felt its hard to find a partner
makakita ug kanang...kuan when diagnosed with kidney
kanang partner siyempre wala failure.
na gyud as in wala na after
kuan... after sa kanang na
diagnose ka.
I: But how about pag-katong
after sa transplantation?
R: After sa transplantation Felt renewed sexual energy
 75

post-transplant murag maka-ingon ko nga after transplant.

regular siguro ma-feel man Felt stimulated by attractive
nimo kanang kuan bitaw females
kanang siyempre makakita
sexy ana <chuckles> Kuan,
siyempre ma turn-on ka ana
Mga ingon ana. Uhmm.
Pananglitan pareha in aron
luyamurag kuan ah okay
sexy siya <chuckles> murag
luya ra kaayo <chuckles>...
I: And then?
R: Nibalik katong normal Felt the surge of hormones
kanangmuragmurag and reacts to something
aggressive kay ka kanang attractive
murag ang imong testosterone
level murag ni taas ug
maayo... Oi gwapa to ooohhh,
ingon ana <chuckles> Oi,
sexy to oh <chuckles>
I: So motaas gyud diay na siya
because there are other
uhmmm you know patients
sa kanang reports would say
na like sa although sa mga
journals, ana..
R: OoMao sad bitaw na ila Also asked by interns
kuan.ilang gi-question sa ako-
a.
I: So, naa jud diay?
R: Oo, naa jud Maam Felt like the sexual aspect was
Kanang mura jud siya, kept overshadowed during the
kanangMura bitaw siya kidney failure and burst back
kanang nanakuannakulob after the kidney transplant
na dugay. Unya, pag-after sa
transplant mura siya ni burst
niya imong...imong mga
hormone murag nag-katag-
katag murag kuan sige nako
gawas ug suroy-suroy ato
regarding kuan
I: So ang imohang social life
ato sir?
Regained confidence to R: Murag siya nibalik ana. Engaged more in socializing.
socialize post-transplant Hilig man ko makig-chat ug sa Reconnected with
facebook bisag sa una dili ko acquaintances and friends.
ganahan ana. Kanang murag Stammers with enthusiasm
mangita gyud ug social life ba
Oo unsa to mga kuan sa
una nohmga classmate sa
una noh mga babayeng
gwapa kong classmate asa na
kaha ron? ingon ana ba
<chuckles>. Oo, niya kuan
mura gyud siya na kuan

Felt weakness after the
rejection
Felt the support from family
76
Maam.. Kanang mura siyag
na..na..na.. na kuan ba
na..na..natigum sa sulod ba
after sa transplant mura siya ni
burst Na kuan na murag
aggressive na kaayo ka.
I: Pag-sit-in sa rejection sir,
howhow was it?
R: Balik lang pud balik lang After the rejection, went back
pud murag luya kaayo. to feeling weak
Uhm...makakita kanang kuan
kanang movie nga sexy,
kanang mga errotic na mga
kuan na mga movies.Murag
kuan ra normal ra nimo
kanang mura ra nag-tan-aw
nga TVDi na kaayp ka ma-
turn-on, ana pud. Murag
normal ra nimo tanan.
Kanang dili mosakay imong
kuan ba, imong
I: Normal in the sense nah,
unsa man kanang ang
reaction nimo?
R: Oo, wala rah bale kanang Passive reaction to stimulus
kuan gani kanangKanang
passive ra kaayo imo reaction
maam ba.
I: What do mean na passive
siya bale.
R: Oo, ana ra, ana ra...kanang Compared his more lively
kuan ra <shrugs>Ingon reaction during the time when
ana normal gyud ingon ana. his graft was still functioning to
Where in kung katong after sa the passive reaction he had
transplant murag kuan gyud when he had graft rejection
kanangmurag kuan gyud lively
gyud kaayo pirmi.Unya pirmi
ka kuanon na pirmi ka
panington.
I: Before mo-end ta ani nga
interview, how is it your
relationship with your sister
and mother?
R: Aw, akong sister ok ra man Has some squabbles with his
mag-sige lang gyud mi ug sister due to differences in
lalis. Kay kuankanang na principles
man gyuy kuan...naa man
gyuy kuan times nga kuan
lahilahi gyud kuan lahi dili
gyud mag-abot amon
prinsipyo ba. Pero kuan bilib Acknowledges his sisters
ra sad ko ana niya ni-support unwavering support
ra gihapon sa ako-a. Pero
usahay lage kuan gahi pud
ulo. Napagaw tungod sa kuan
 77

nag-inom-inom. Baya call

center dayon unsa may e-call
nimo kung wala na kay tingog
kana usahay pud Akong He avoids conflict with his
mama pud kuan ok ra man mi mother since he understands
sa akong mama kay wala the pressures of being an
problema sa akong mama kay overseas worker.
sige ra man pud ko ug
tando.Kay makasabot man ko
kung unsay kuan niya didto
kay before na siya nagkuan
nag-abroad nag-trabaho wala
man siya trabaho. So kabalo
ko unsay pressure iyang na
kuan didto. Usahay di siya
kahibaw modala sa pressure
ba, ingon siya Ang mga taw
diri grabe kaayo ka kuan ka
strikto ana, ana bisag mag-
hilak siya. Mo-ingon ko kuan
lang My, ipalapos lang sa
pikas dunggan ingon gyud
mga puti ug sa uban ingon
ana mga racist ba.
I: Naka-suway ba sad ka
working with the other
nationality, sir?
R: Everyday. Everyday katong He worked in the [country
kuan mga taw diha sa [country abroad] before, facing different
abroad] tanan tanan tibuok nationalities where he learned
kalibutan naa diha. Unya kato how to deal with them.
pang didto ko sa kuan sa
kampo sa Amerikano didto na
kuan nakat-on ug maayo ug
kuan unsa paprofessional na
mag-kuan trabaho ba. Kay
mga kuan kasagaran gyud
nimo nga kada-adlaw nga
kana ma-interact mga officers
man mga kuan mga army ba,
mga dagko mga top-brass.
Mao to kinahanglan mag-kuan
gyud ka kanang mag-amping
gyud ka unsay imo isulti
I: Oo.
R: Sige maam oe, kay
gipaningot naka kay init ra ba
diri.
I: Ok ra jud sir. Na-ano man
gud to, we werefocused on the
other happenings man pud ba.
I would want man pud na free
flowing ato conversation like
whatever you share, I take on
that. Kay ano man ni siya, may
pagkaflexible man ni siya.
 78

Theres a guide but kung unsa

dagan sa storya nato, dinha ta
mu-base bale.
R: Oo.
I: Sige sir, thank you jud
kaayo.
R: Way problema, anytime
Maam.

Chronological List of Themes Interview One

 79

Big change in daily routine after kidney transplantation

Improved physical health
Recollection of kidney failure symptoms
Conscious practice of healthy living
Avoidance of certain drinks
Compliance of dos and donts
Shock upon diagnosis of end-stage renal disease
Waiting and preparation for kidney transplant
Feeling of happiness after kidney transplantation
Coping through research
Expected kidney transplant to improve quality of life
Felt the need to be well post-transplant
Kidney failure hampered plans
Observed rigorous treatment regimen
Adherence to new routine as an obligation
Aversion to dialysis motivates lifestyle changes
Saw kidney transplant as a means to resume stalled plans
Financial considerations regarding treatment plan
Grieving over unfulfilled plans
Back to usual self but not quite
Being able to do what a regular person can
Limited exposure to outside world
Shock from impending graft rejection
Bulge at transplant site
Felt warmth at transplant site
Not wanting to go back to dialysis after the rejection
Mother provides support
Early death of father
Early introduction to work
Worked to support his family
Going abroad seen as a means to
His mother wants to watch over him
Depression over rejection
Despair over what would happened after rejection
Felt rebellious when affronted by his failure in medication adherence
Felt that the side-effects made medication adherence different
Doubts over medication regimen
Worry over medication expenses
Placement of new hemodialysis site after the rejection
Dealing with anemia after the rejection
Wanting to live longer for loved ones
Constant communication with son
Need to feel strong for loved ones
Happiness in sons support during illness
Taking the time to be with son after the kidney transplant
Disclosure of ones status to loved ones
Thoughts of dying from illness
Protective of his son dealing with the concept of death
Not wanting son to worry over his diagnosis
Constant communication between father and son
Wanting to have a second transplant
Kidney transplant perceived as better than dialysis
Experienced complications during dialysis
Felt side effects during immediate post-transplant
Feeling normal after kidney transplant
Experienced tremors post-transplant due to immunosuppressants
 80

Experienced increase in appetite with steroids

Improved physical health
Tremors are minor drawbacks compared to the general well-being post-transplant
Transplant experience seen as a positive experience
Future plans
Holding on to religious belief while hoping for another transplant
Tries to prepare physically and financially for another transplant
Gained weight post-transplant
Felt happy with regained pre-transplant weight
Health deteriorated with rejection
Regaining of complexion prior to kidney failure
Felt like a prisoner staying at home
Needs to maintain a safe distance when interacting
Felt like a prisoner staying at home
Felt like a drug addict with numerous medications
Problems encountered in medication adherance
Difficulty in finding a partner because of his diagnosis
Rekindling of sexual aspect post-transplant
Regained confidence to socialize post-transplant
Felt weakness after the rejection
Felt the support from family

Theme Table for Interview One


Themes
Establishing the new normal
Big change in daily routine after kidney
transplantation
Conscious practice of healthy living
Avoidance of certain drinks
Compliance of dos and donts
Observed rigorous treatment regimen
Adherence to new routine as an obligation
Back to usual self but not quite
Being able to do what a regular person
can
Limited exposure to outside world
Felt normal after kidney transplant
Felt like a prisoner staying at home
Kidney transplant as a new lease in life
Improved physical health
Feeling of happiness after kidney
transplantation
Life after kidney transplant as a second
life, brand new life
Kidney transplant perceived as better than
dialysis
Perceived body image post-transplant
Gained weight post-transplant
Felt happy with regained pre-transplant
weight
81
Page Key words
1 Kuan after sa kidney transplant. Kuan dako
jud kaayo na kausaban sa akong kuan daily
nah kuan routine.
2 Kuan, Kanang after sa transplant. Kuan jud
healthy living na gyud ko. Kanang
magwatch ko sa ako diet.
2 Naglikay ko anang alcohol ug carbonated
drinks
2 tagaan man ka ug mga dos and
donts.Then mao to ako gisunod
5 for mga 0-6 months gikan sa transplant
kuan amping kaayo
5 Daily routine na ni nako. Murag trabaho na
ni nako. Obligation na ni nako na mag-
amping.
7 After kuan man kanang lahi ra jud ba. Dako
jud siyag deperensya sa kanang regular na
lawas pero wala pa lage nako nasuwayi
kanang kuan sa una kusug man ko
moduwa ug basket.
7 Kanang mga buhat pero sa mga regular na
kuan sa tao makaya na nako kay wala
naman ko laing complication.
7 Um, 2011 gi-transplant ko then after ato naa
ra ko sa balay
23 Normal nagyud kayo
28 Mura kog piniriso diri. Palit rako makaon,
tan-aw TV, DVD unya mag-internet. Ang imo
ra advantage sa piniriso siguro makagamit
ka ug communication tanan naa kay
internet. Naa kay kuan cellphone.
1, 24, Makalakaw nako ug dili nako kutusan...dili
24 na magsakit ako tiyan dayondili ko dali
malipongmaka-ihi na ko ug kuan regular,
normal [ ] Unya lakaw-lakaw dili naka
kapoyon [ ] Murag imong feeling nakadaog
ka ug extreme sports. Kanang Ironman.
Murag ingon ana imong feeling.
4 Ai oo kuan [happy] kaayo.
7-8, Second life jud. Murag brand new life ba
25 gihatag sa imo. [ ] murag jud kag gitagaan
ka ug new life. New life gyud.
22 Lahi ra jud naka-transplant ka ug nagpa-
dialysis
26 Mukalit lang ko lignin na tambok
26 Aw kanang happy kaayo ko sa tanan kay
pag-before ka na-diagnose ug kuan naay

Regaining of complexion prior to kidney
failure
Awareness of the presence of the
transplanted organ
Bulge at transplant site
Felt warmth at transplant site
Socialization and interaction post-
transplant
Needs to wear mask and maintain a safe
distance when interacting
Difficulty in finding a partner because of
his diagnosis
Rekindling of sexual aspect sexual aspect
post-transplant
Regained confidence to socialize post-
transplant
Support system in the post-transplant
phase
Mother provides support
His mother wants to watch over him
Constant communication with son
Happiness in sons support during illness
Taking the time to be with son after the
kidney transplant
Disclosure of ones status to loved ones
Protective of his son dealing with the
concept of death
Not wanting son to worry over his
82
kidney failure kuan gud ko gud siguro mga
80 or 82 kilos, 168 pounds.
27 Kuan di ka makatuo at first nga kuan na
nibalik na imong lawas sa una. Unya kani
siyang imong ingon ani [ ] mupula siya, kini
ingon ani mura man siya nasunog sa bicarb
ba. Kana. Um, kani siya
8 Mobukol gamay
8 mura man siyag init bitaw
28 Mugawas ko doble ang mask unya dinha ra
ko diha magtan-aw tan-aw ra ug billiard-
billiard pero naa rako sa layo
29 Kanang dili nako makakita ug kanang...kuan
kanang partner siyempre wala na gyud as in
wala na after kuan...
29-30 siyempre ma turn-on ka ana
30 Murag siya nibalik ana. Hilig man ko makig-
chat ug sa facebook bisag sa una dili ko
ganahan ana. Kanang murag mangita gyud
ug social life ba.
9 Ako mama kay religious man kaayo na siya.
Niingon siya nawala man tay problem ana
dili nato makaya.
11 ako bitaw to gi-ingnan ako mama na kuan
na nagplan ko na mag-abroad ko balik. Pero
ako mama dili mu-agree didto [country
abroad] kay kaning didto daw ko iyaha
[another country abroad] kay para naay
kuan makatan-aw ba.
18 Every time na kuan naa koy kwarta na kuan
dugay man ayo mi magkuan sa cellphone.
19 Nasurprise ko niadto siya ug kalit. Mao to
niingon siya Ok ra na ko oe.
19 Bonding jud ug maayo kami ra duha kay
ang kuan ang iya lola mosugot ra
manakongkuha-on
20 Dili nako siya bakakan. Bati man gud ka ay
magkuan ka. Kanang mag-tago-tago bitaw
ka sa tinuoray na sitwasyon.
20 Awkana siya na part wala ko nag-mention
ana niya kay tan-aw nako bata pa ayo siya
para makasabot ug ingon ana. Mao dili ko
ganahan na kanang makuyawan siya na
kuan
21 Gusto ko normal ra iya life nga kanang

diagnosis
Constant communication between father
and son
Felt the support from family
Coping with the post-transplant phase
Coping through research
Felt the need to be well post-transplant
Grieving over unfulfilled plans
Need to feel strong for loved ones
Dealing with the treatment regimen
Financial considerations regarding
treatment plan
Side effects of medications
Doubts over medication regimen
Worry over medication expenses
Side effects felt immediate post-transplant
Tremors are minor drawbacks compared
to the general well-being post-transplant
Experienced increase in appetite with
steroids
Difficulty in keeping up with numerous
medications
Felt like a drug addict with numerous
medications
Redefining plans and goals
83
everyday life niya, wala siya huna-hunaon
na kuan, kumusta na kaha to ako papa noh.
21 Mutext then ako tawagan unya tibuok gabii
mag-estoryaay ra mi
32 Pero kuan bilib ra sad ko ana niya ni-
support ra gihapon sa ako-a.
4 Ako gud before sa akong transplant, nag-
research nako daan sa internet sa mga life
after transplant ba.
4 Kinahanglan maayo jud ko
6 Then kung wala ato, kanang siguro naa
gihapon ko sa abroad Then naa na siguro
naa gihapon ko sa abroad... Then naa na
siguro koy kaugalingon family... Unya
nakapalit na guro ko ug balay. Mao na
typical na plano sa akong kaugalingon kay
atong time na siyempre nagtrabaho nako
ganahan nako maglain ba.
19 Ingon ko dili ko ganahan dong. Basin ma-
trauma siya, sa kadaghan sa tubes.
6 Unsaon nako budget akong kwarta
11 Mao na tan-awon na sa doctor imo kamot
ipa-anaif mokurug ba kay ang toxicity sa
tambal dinha nila i-base.
13 Akong nadunggan nako ana kanang
tambala naa pud toy 1 naga-reject pud mao
pud ng tambala gigamit. Sa ako ra ng duda
ha.
13 Kay katong tambala maam, grabe ka mahal
maam.
23 After transplant jud kanang naay episode
magsuka gamay kanang tungod siguro sa
tambal ba.
24 Aw oo, um Normal as in normal. Pero ang
kuan lang magkurog siya. Magkurog ang
imong muscle ba. Magkurog gamay. Mao ra
nay deperensya tungod sa kaisog sa tambal
ba. [ ] Aw dili, hinay ra man ang tremors. Dili
man nimo makuan. Naa pa gani mga tao na
normal na mas kusog pa nimo ug tremors.
24 Naa pa gud kay steroid, mao ra nah kay
kusog na ayo ka mo kaon. Ganado na
kaayo ka.
29 Mao to na wa ko kahibaw if naka-inom ba ko
o wa.
28 Mura lage kog adik-adik ba

Saw kidney transplant as a means to
resume stalled plans
Waited to feel sense of normalcy before
resuming work
His mother wants to watch over him
Future plans
Coming to terms with adverse
transplant outcomes
Shock from impending graft rejection
Giving up when rejection happened
Life was useless with the rejection
Questioning rejection
Not wanting to go back to dialysis after the
rejection
Depression over rejection
Despair over what would happened after
rejection
Grieving over graft failure
Placement of new hemodialysis site after
the rejection
Dealing with anemia after the rejection
Wanting to live longer for loved ones
Thoughts of dying from illness
Holding on to religious belief while hoping
for another transplant
Health deteriorated with rejection
Felt weakness after the rejection
Interview Two Transcript
84
5 Kuan kay excited ko sa akong future. Unsa
akong buhaton na. Dili naman gud ko batan-
on unya gawas na murag na-stall tungod sa
nagkasakit so wala pa koy natigom.
10 Planning pa na mubalik ug abroad. Ako lang
jud gihuwat na nga mubalik na jud sa
normal akong paminaw ba.
11 ako bitaw to gi-ingnan ako mama na
nagplan ko na mag-abroad ko balik. Pero
ako mama dili mu-agree didto kay didto daw
ko iyaha kay para naay kuan makatan-aw
ba.
25 Mao to magkuan, nag-plan nako for the
future. Kanang ma-feel lang gyud nako na-
ok na jud ko, mu-abroad ko balik then
kuan Kanang basin mag-migrate ko ug
Australia.nag-plan nako for the future
7 Kanang ok ra man unta akong paminaw
unya nganong mikalit man ning naingon ani
8 Dili nalang ko pa-dialysis maghuwat nalang
ko kanang sakit bitaw nako kuan mugrabe
8 murag useless naman gyud akong kinabuhi
8 Unya ngano naingon ani man
9 di nako pa-dialysis
11 Depression na siya. Mag-huna-huna ko.
Unsa kaha noh palit nalang ko pusil.
11 Sadness na maayo pa bako?
11 Dili days, months. Siguro 2 months. Dili
nimo madawat dayon Murag dako ayo na
failure sa imong lawas. Ngano naingon ana
ka?
14 Oo, kuan nalang balik nalang dialysis then
ang kuan pa jud gitauran ko ug site namatay
pa jud.
15 Kanang kuan anemic ko
17 Akong mama, then akong son na kuan na
mudako siya nakuan wala siya papa.
20 Thoughts of dying from illness
25 Kana lang jud, hope lang jud, faith. Kapit
lang jud ni Lord.
26 ni-deteriote na akong health unya akong
weight nigamay pud
31 Balik lang pud murag luya kaayo

Emergent Themes
Feeling of normalcy despite
few physical symptoms
85
Original Transcript Exploratory comments
I: Good afternoon Maam
[informant].
R: Good afternoon
I: Ako diay si Clarice, Im a
student at Cebu Normal
University and Im doing this
research regarding the lived
experiences of renal transplant
patients specifically mga
young adults 18-35 years old.
So Maam [informant] mo-
review ko sa imong data
Maam [informant] ha. So
initials lang nimo ako ibutang?
R: Oo. [initials]
I: Then age?
R: 35.
I: And then civil status?
R: Married.
I: Maam [informant]
mangutana lang ko unsay
diagnosis nimo before sa
kidney transplant?
R: Kuan, chronic
glomerulonephritis
I: Uhm, katong chronic
glomerulonephritis. And then
date, when kidney transplant
was performed?
R: June 21, 2012.
I: Ok sa June 21, 2012 Ill
come a little closer Maam. Ok
ra ka sa imo seat Maam
[informant]?
R: Ok ra.
I: So Maam [informant]
mangutana lang ko, what are
the changes in your life after
Since youre been
transplanted?
R: After sa pagtransplant, after Felt normal although with
sa pagtransplant, um, naka- experienced episodes of
feel ko na ok ra man, normal vomiting and dizziness
ra though there is a time na
usahay na mama-stress ko
unya magsuka-suka ma-
expose sa sunlight and then
maglipong-lipong mao na siya
factor kana long distance
travel usa pud na siya
makacause sa ako.
I: So regarding sa suka Maam
C, like diba naa pud

Felt more susceptible to
vomiting post-transplant but
still able to work
Felt like normal although with
certain limitations
Regained hope after the
kidney transplant
Dialysis situation seen as
hopeless
Felt happy that kidney
transplant gave better chances
of survival
86
experiences of nausea and
vomiting before transplantation
like sa renal failure with after
renal transplantation was it the
same or lahi ra siya?
R: Lahi ra siya kay actually Different triggers for vomiting
mag-vomit lang ko during before and after the kidney
magka-fever and then after transplant
transplantation usually less na
ako resistance ba pero we can Felt less resistance to vomiting
able to work. So mao ra ang episodes but still able to work.
good thing na murag normal
lang ba pero there is a Felt like normal although there
kanang there is limitation are limitations in terms of
when it comes to health na health.
there is a kanang there is a
limitation nga dili naka labi
na sa pagkaon nga
contraindicated ingon ana Has to be watchful with what
so kinahanglan jud na kanang she eats
i-observe nako. Usahay murag
naa nakoy control ba kanus-a
kamaluya. Kanus-a sad ka
mag-suka suka, so ma-aware
nako after the transplant so
mao na.
I: So what was the impact of
transplant sa imong kinabuhi
Maam [informant]?
R: Para nako murag na-happy Felt happy with hope kidney
ko after the transplant kay for transplant gave her
me there is a hope. Before the
transplantation hopeless na Emotional when remembering
jud ko. <on the verge of tears> pre-transplant phase
I: Happy with the new hope
that you have? So that day
when na-transplant ka Maam
[informant], how was it
different? Or was it different
from the days you were still
with renal failure?
R: Different jud kay during sa Dialysis situation seen as
dialysis lang. Actually murag hopeless with the chances of
hopeless naka, murag wala survival and financial
na, para nimo wala nay considerations.
recovery cause when you say
mag-dialysis naka so number
one na worry mo-come out
Mo-last pa kaha ko ani? Mo-
last pa ko?, because number
one is the money unya
number two ang
resistance.Maka-survive kaha
ko ani? ing-ana. Pero after Kidney transplant gave her
the transplantation, 100%. Im better chances of survival.
so happy gyud. Maka-observe Very happy after the transplant

Religious belief as a means to
cope
Kidney transplant as new life
Resumption of usual routine
after kidney transplantation
Use of positive thinking to
motivate self
Mask wearing affects
belongingness
Felt neglected by her parents
and siblings
87
ko na kanang though we dili Held on to religious belief to
kita nagkupot sa ato life but cope
there is a hope nga gi-trust, gi-
hatag sa Ginoo because of His
love.
I: So it was like when you have
a new chance?
R: New life. Kidney transplant as new life
I: So you did mention about
work. Uhm How are you
with your work right now na
after na sa transplant?
R: After Im like to be Resumed usual work a week
honest, after my after discharge.
transplantation, a week [after]
able nako mo-work. Unya
week after the discharge sa
hospital able nako mu-work
even makahimo nako sa mga
panimalay. Mao man jud
akong mga kanang sa mga
panimalay though wala sila
nasayod pero murag i-try nako Motivated herself by thinking
na, I can do it, I can do it. positive
Think positive lang. So after a
month, gi-ingnan ko sa doctor
na kinahanglan na I stay-in for
6 months. So mo-belong ra ko More comfortable with non-
sa in a group of people without wearing of mask
wearing mask though mga tao belongingness?
mahadlok nako kay ma-
infection ko daw mga ingon
ana. Pero ni-trust lang ko na,
have faith na, na there is God
who takes care even though
my family <tearful>. Maka-
hilak man ko oi.
I: <leans forward to pat
informant> We can pause if
R: <continues even if teary- Her parents and siblings were
eyed> Even though my family, not there for her, only her
my immediate family, my husband was
parents, my brothers, they
really forget me jud. Nakita
man jud ninyo ang akong
situation when I was in the
hospital. Ako ra ug akong
bana di ba.
I: Yes.
R: So mao to walay nangutana
Are you ok? Ok. Tapos
murag gikalimtan nalang ba sa
akong family. Murag dili
wala ko nasayod unsa ilang
mga reaction kung masakitan

Kidney transplant as new life
Questioning occurrence of
kidney failure
Religious belief as a means to
cope
Shock of kidney failure
diagnosis
88
ba sila nako pero I have to
trust Him ngara na-experience Does not understand her
man gud nako what is a real familys reaction but trusts in
heaven. So this is a second God.
life for me nga kinahanglan ko
forgiveness lang kay though
we have the same God. The
Lord kay nadungog man nako
ang iyang tingog sa Ginoo gi-
observe. Pero during the
transplantation after ni-out
nako na-dispose nako sa
hospital. Happy jud ko sa Happy with the second life
second life gi-extend sa Ginoo God has given her despite she
though akong mga pamilya didnt feel supported by her
mura nalang ni-neglect even family with her medication and
my medication, my financial financial needs.
even of my operation
expenses. I have to trust, trust
lang jud ko. Maybe mao to
nangutana ko unsay cause sa
akong transplantation. Sa Questioned what caused the
akong kidney failure, its not kidney failure like could it have
the result of my work. Before I been caused by her previous
am a chemist. No, wala jud occupation
findings, even when I entered
the hospital with the
laboratories result, all the Previous laboratory work up
results are normal. Thats why didnt reveal the kidney failure
they gave a second option at
another hospital [hospital] and
then they found out that the
creatinine is 0.87 so ang
doctor nagkuramos iya
nawong kay wala jud claro. So
na forward-back napud ko sa
[hospital]. Didto man jud ko na
diagnose as a kidney, chronic
failure so nag-second opinion
ko dinha [hospital] and diri sa
[hospital]. So wa ko kahibaw Trust in a supreme Being
unsa findings though God
gives me this or allows me. So
salig lang ko kay God knows
what is in my heart. So gi-
prove, it is Gods proving, gi-
prove sa ako na He can do it.
I: So without warning to siya?
Na glomerulonephritis came,
wala kay nabati?
R: Wala koy pain. Wala koy Didnt see the kidney failure
pain na-encounter. Even coming
[doctor], he cannot explain the
results. Gi-under observation.
Nikalit lang siy gud ug kupos
ako kidney, wa na ni-work ba.

Recollection of kidney failure
Improved physical health
89
I: So how did feel during those
times na they were still
working up the diagnosis?
R: Maka-feel ko murag mao Hopeless when the diagnosis
jud lage hopeless nako. Na- for kidney failure was still
depress ko, wala na lang ko, worked up
gi-bale wala nalang nako, gi-
enjoy nako ako life with my
family, my husband and kid.
Gi-enjoy ra nako without
kanang worrying kay
sometimes fear can mu-
kuan man gud ng negative
force, makabalaka. So faith
lang jud and think positive,
mao ra juy nakahatag nako
positive sa akong life.
I: Youve mentioned about
your family, your husband and
your kid, so your immediate
family. How about ang family
na gigikanan nimo? Were they
aware of your situation Maam?
R: Aware sila. Aware sila, gi- Recollection of the events
deretso man, silay may una. leading up to the kidney failure
Ni-rest man ko 1 week sa amo
balay and then gi-dretso ko
nila ngadto [hospital]. Wala ko
nisulti sa akong bana kay
ngaka-fever man ko ug two
weeks. Mao to wala na-
release akong mga singot so
far laborartory normal. Siguro
sa dosage lang to sa akong
tambal kay bisag unsa nalang
gipa-take sa akong mama,
[antiflammatory drug], mga
herbal products.
I: Pero after your transplant
Maam. How did you feel sa
katong mga singot nimo? Sa
physical nimo? Was there a
change?
R: There is a change. Felt physical changes her skin
Nakabati nako ug moisture sa retains moisture and her sweat
akong skin. Nakabati nakog ug production is back.
singot unya murag lahi ra jud.
Murag kanang maka pwede Felt she could do things again
naka makabuhat, pwede since she has the strength to
nakamurag naa na jud kay do them already
kusog.
I: Kay, you mentioned diba,
before the 6 months you were
already mingling with the other
people

Being transplanted is not a
hindrance in social interaction
Conscious of preventing
acquiring infection
People around her were
protective of her
Not wanting to be left out
Initiative to approach others
Wants to be proactive
Wants to be there for her
family
90
R: Oo, before bisag though Did not feel limited by the 6
gipagipalikay pa ko ug mga months time advised by the
tao as advised sa doctor pero doctor to avoid the crowd of
mingle ko sa mga tao. Ako people
nalang gi-positive akong huna-
huna. Ako may magdala sa
akong kaugalingon and then
so aware lang sad ko. Every Conscious of hand hygiene
time na kanang mag-shake during encounters
hands ko sa mga tao so mag-
sanitize lang.
I: Did you ever feel na limited
ka adto na di ka-mingle sa
mga tao that time?
R: Wala man. Ai naka-feel ko Did not dwell on the limitations
nga limited pero ang mga tao It was the people around her
sa nalay ni-aware na. Pero who reminded her of the
ako man gud mungot-ngot limitations
man ko nila. Mo-join man jud
ko sa ilang group. Di ko gusto Not wanting to be be left out
ba ma-neglect ko. Akoy mo-
go with nila.
I: So ikaw mo-approach nila?
R: Akoy mo-approach. Bisag Initiated contact with other
in a group akoy mo-approach people
bitaw. Naay mag-cough2x
atubang lang ko kay di ko
gusto maka-offend ko bisag
even magsakay-sakay ko mga
jeep. O pasa-pasa ana, pasa,
mabuhat ra na nako tanan.
I: How about your husband?
How did he feel like a certain,
you cant do things? Like are
you ok? Dili ra ka
makuyawan?
R: Wala man. Ok ra man siya
I: Kay there are times diba ang
other family members bitaw
would be the one murag
protective.
R: Akoy mo-protect. Ako na Wants to be proactive
nuoy mo-protect sa akong
kaugalingon. Buhaton lang
nako ang diha para ila para dili
lang sila kanang ma-ma
unsa ni ma-depress na Kay di
na siya di nako able ba. Wants to be there for her
Akong buhaton even my family family
pagkakaron, so kami ako
husband nagwork-out man jud
mi sa among business, di ko
gusto na siyay mo-work out.
Mo-join jud ko sa kuan. Mao
nga tagaan nako ug kanang

Does not see self as less after
having a kidney transplant
Kidney transplant enables her
to do things unlike with dialysis
Sees time on dialysis as
hopeless and depressing
Dialysis limits time to do work
Feeling normal except for
episodes of nausea
91
ahh value akong
kaugalingon na dili nako i-
down akong kaugalingon Does not want to put down self
though even dili ko after ma- after the transplant
transplant ko, no.
Nagpasalamat ko mi-abot ko
anang na-transplant, able ko. Sees kidney transplant as the
Pero katong dialysis ko way she was able to take one
<trails off> things unlike with dialysis
I: Lahi ra jud?
R: Lahi ra. Ga-sige ra ko ligid. Sees time on dialysis as
Sige na kog hilak. Hopeless. hopeless and depressing
Murag nagpa-abot nalang
kanus-a ang takna.
I: So during those times wala
ka naka-report kaayo sa imo
work? Sa imong business bale
katong panahon na
nagdialysis ka?
R: Limited nalang kay akong Had limited time at work during
time didto naman sa dialysis dialysis since dialysis took
most of her time
I: How many sessions gani ka
ato maam?
R: 3 times, ai 2 times unya on Dialysis per week was 2-3
the way to transplantation kay sessions
3
I: So twice a week before and
nearer sa transplant date kay
three times a week na. Bitaw,
sometimes they would want
the crea to be lowest jud.
Actually not sometimes but
they want the crea lowest just
before the transplantation.
[pause] So what are the
effects on health and quality of
life since you have had
transplant? Sa physically,
emotionally
R: Para nako normal na jud, Felt normal physically except
physically when it comes to for episodes of nausea but
physically, though kita tanan dismisses them as not much
maka-encounter man jud ta ug different with the normal
lipong-lipong pero para nako population
compare to the kuan murag
pareha ra mi kay though naa
mi sa usa ka pamilya. Kami ra
man tulo sa akong husband.
Naa mi sa usa ka pamilya
pareha ra mi ug mubati siya
ug maluya. Maluya maluya
sad ko. Naa sad time maluya,
luya siya. Naa sad time di ko
maluya. Murag normal ra.

Feeling of some resistance to
illness
Sons presence gives her
strength
92
I: So murag dili na siya
differentiated jud na I had
transplant unya ikaw wala?
R: Kay before transplant
magkuan na gale, naay one of
the family members magka-
cough dali, sugod na dayon ko
mag-cough
I: So murag magkapasa-pasa
na?
R: Mag-pasa-pasa. Unya naay Post-transplant, has some
hilantan, hilantan sad ko resistance to illnesses
katong sa dialysis, ga-dialysis
pa ko ato. After ana, karon
wala naman. Though naa sila
gi-ubo, normal ra ko. Dili ko
mo-adapt sa ilang sakit.
I: Kana imong anak pila gani
edad ato niya?
R: Thirteen
I: Thirteen. Kay usahay mga
kids man sad gud murag naay
ubo-ubo mga ingon ana ba.
R: Di man sad.
I: Dili ra.
R: Healthy ra man siya
I: Kay naay times naay kids na
although mas younger pa jud
like mga 6 mga 8 mag-dagan-
dagan sa playground unya
inig-abot si balay mag-ubo-
ubo na. Mapasa na siya sa
other member. But so far with
your kid?
R: Wala man siya
I: How did he take it with the
transplant? Did he know na
what has his mother going
through?
R: Oo, actually kay before ko
na mo-proceed sa kidney
transplantation, siya nikuan
ani, Ako lang ma, out na ma.
Kay gimingaw nako suroy
nimo kuyog SM. Mao ray Knowing her son, needs his
nakadasig nako bah, the value mother, gives her strength
of love, kinahanglan jud sa
anak so though kahibaw siya
nakuan ko pero dili mura gyud
siyag murag nakasabot na Appreciates that her son
siya sa ako ba, sa akong understands her situation
sitwasyon.
I: Oo, bitaw no his a bit young
baya. Naa times dili pa nila
ma-grasp sa situation. Hows

Disclosure of ones status to
loved ones
Felt the positivity of her
husband and son
Need to feel strong for loved
ones
Familys concern over her
health
Still able to travel long
distances
Dwells on the positive side of
things
Recollects previous anxious
thoughts
93
your relationship with son right
now?
R: Ok ra man.
I: Do you get to talk to him?
R: Every time ako siya sulti-an Has constant communication
what is ginabawal, unsay with her son
pwede. Ako siyang gi-ingnan
What if Dong?, akong gi- Opened up to her son about
open sa iyaha ba,What if thoughts of dying
Dong, we dont know when is
the end of my age?. Ni-ani
siya, Noh? Kinahanglan taas
pa kag edad Ma oe. Taas pa
kag edad maabtan. Mura
positive lang jud akong
pamilya, akong bana ug akong
son. Positive ra jud kaayo sila. Felt the positivity of her
Para nila, dili sila ka feel husband and son
naglain ko. Dili man ko
magluya-luya sa ilang Doesnt show weakness when
atubangan. shes with her family
I: Pero maka-sense pud na
sila if ever naay times jud
R: Maka-sense sila. Labi na Her family admonishes her
karon lang na time kay na when shes engrossed with
busy ko sa ITR. Maka-sense work to take it easy
lang Ayaw pagduko-duko
malipong napud ka, ana lang
ba.Murag warningan lang ka
ba. Pero travel-travel na layo Still able to travel long
pwede ra man.[pause] Kay distances
ako rule man gud sige ka Dwells on the positive side of
huna-huna ug negative things
sakayan pud ka sa pagka-
negative pero think positive
mahimo nimo sa tabang sa
Ginoo, you can do it. Kay ma- Rationalized that depression
ingon cause na na-end up may have contributed to her
siguro ko ug kay tungod man illness
sa depression.
I: Depression, during?
R: During, before the Recollects previous anxious
transplantation nahasol ko, na- thoughts
nerbyos ko. Mao to murag
kulang nako ug tulog kay sa
amo man gud naay history.
I: History sa?
R: History sa among pagstay
ba. Previous
I: Pag-stay sa? Asa?
R: Pag-stay sa among
previous na residence
I: Ah. Bale naay, unsa man?
R: Kana bang kapila name
hudlat-hudlaton sa among

Considered anxiety leading to
insomnia caused her kidney
failure
Forgiveness for wrongdoers
Able to travel abroad after the
kidney transplant
94
panimalay. Mao ng murag
nagsige nalang ko ug kuyaw-
kuyawan mao toy naka-cause
I: Kanang hudlat Sorry
kaayo Maam ha, unsa gani ng
hudlat gani?
R: Kana bang naay tawo mo- Recollects experience anxiety
atake, lungkab-lungkabon ka. over persons trespassing their
Dili lang kaduha, thrice jud. home
Kapila naan nahitabo. So mao
to maka-experience ko. Dili Considered anxiety leading to
jud mao toy hinungdan sa insomnia caused her kidney
akong kidney failure. Kay failure
mura naman insomnia.
Another factor, naka-feel ko ug
nerbyos ba. Basin sak-on
nasad mi.
I: Were there ano nadakpan
jud tawo or wala sad?
R: Pero nakita naman nako.
Nakita na nako pero
gipaningkamutan lang.
I: Ah ok
R: Pero gi-forgive nalang nako Forgave already the intruders
as long as gusto nila, gusto
nila kanang tugkaron among
kinabuhi
I: So basically kaila ra jud
R: Diha ra sa sulod
I: So with your trabaho Maam
C. Its so physical, like you
mentioned na traveling ana.
So you got to places na layo
jud siya?
R: Oo, kay after sa akong Travelled abroad after the
transplantation ni-ask ko ni kidney transplantation
[doctor] pwede ba mo-travel
sa Singapore? Ok, after
release, dispose, travel mi
Singapore, Ok.
I: So, sa asa gani to Maam, sa
building o sa contractor. Im
sorry Im not familiar.
R: Sa kanang residence. Sa Worked in building projects
estates na mga project ba
I: Ah ok, so mao diay you need
to go sa kanang asa ang site.
R: Oo, labi na ako ang
proprietor kay immediate na
pangita-on man.
I: So with that uhm did you
experience times na malipong,
murag makalitan lang ka
R: Kato lang one time nag-
meet ta. Mao nato nagpa-

Has times of sickness but
recovery times are normal
Does not dwell on fear of
rejection
Does not feel weak compared
to the general population
Sees herself not surviving with
dialysis
Relationship with husband is
fine
95
check-up ko, nagpa-check-up
ko kang doc. Pero after ato,
wala na man. Since one week,
wala.
I: Were there instances na
naay infection, kanang cough
mga ingon ana?
R: Naka-experience ko Has times of sickness but
[sickness] one time, pero dali recovery times are normal
ra man ang recovery. Like
normal na tao mo-inom lang
kadyot, mga carbocistein ana.
I: How about with rejection?
Was there any time you had
fear of rejection? Just a
thought in your head?
R: No.
I: Like people would ask how
many years would that last?
R: Wala, wala ko naghuna- Does not dwell on fear of
huna ana. Nobody knows rejection
kung kanus-a jud ta. Nasulat
jud na atong mga pangalan
ngadto. When is our age, pero
trust lang, think positive. The
more you think,the more Does not want to over think
opinion with others, wala gyud
na sila nasayod. Even sila
masayod. Think positive.
I: Wala man sila kasuway.
R: Wala man sila nasuyod. Compares herself with the
Pero para nako mas maka- general population and does
ingon ko naluya sila, o mas ok not feel weak
pa man diay ko maka-ana,
maka-compare ko, mas pa
man diay ko.
I: So i-compare sa general
population, you know, tabla ra
ta
R: Oo, tabla ra. Fair ra. Pero
ang nakanindot lang kay
kanang naay chance ug naa
pay hope.
I: Bitaw noh, with your work,
you were able to go work.
R: Kay kung nipadayon ko ug Sees herself not surviving with
dialysis, Im not sure murag I dialysis
cannot survive.
I: Being a wife and a mother
after the transplant Maam,
how was it you relationship
with your husband?
R: Ok ra man, ang relationship Relationship with husband is
fine
I: Was there a time, mura

Unwavering support of her
husband and son
Still feels hurt over her familys
neglect
Does not dwell on the possible
short graft survival
96
siyag, in a way strained or
stressed siya? Mura siyag
adjustment period in your
married life?
R: After the transplantation Love between her and her
mura siyag naka-feel ko, naka- husband is there
sense ko sa akong husband
na kanang [pause] mura siyag
nasakitan ba. Though love,
there is a love sa amo both
pero in response lang sa
akong family, immediate family Her husband was pained by
kay wala daw pakabana. Pero her familys neglect but she
wala nalang ko nag-dwell ana admonishes him not to dwell
kay ako nalay nagpasabot on that
niya though daghan pa siya
maestorya bahin ana pero ako
nalang siya gi-encourage na
ayaw lang pagsulti ana. Kay
tanan naa man tay
experiences kay kita magdala
sa ato life.
I: So he was there through-out
the phases from the dialysis to
the transplantation.
R: Oo, 100%. My husband and Feels the unwavering support
son mao ra jud naka-face of her husband and son
even sa pag-consult sa doctor.
Kami ra jud.
I: Bitaw noh, kabantay ko
kamo jud na tandem.
R: Though masakitan ka Still feels hurt over her familys
sometimes na imo family ni- neglect
visit nimo pero dili kaayo
importante para nila. Ngano
naka-ingon ko ana dili
importante kay busy man sila
sa ilang suroy-suroy. Manuroy
mi Boracay. Ok akong
tubag, ok simple lang.
I: Pila gani mo ka manag-
igsuon Maam?
R: 4
I: Ah 4, kato nasugatan nako,
katong kauban ninyo sa MAB,
imo tong igsoon bale?
R: Sa asa?
I: Katong sa Medical Arts bldg.
Imo ba tong igsuon or kang
sir?
R: Wala na bitaw ko
karemember
I: Its ok Maam
R: Wala naman ko nagmind sa Does not dwell on the possible
negativity. Naay mo-ingon na short graft survival

Belief in ones self
Religious belief as a means to
cope
Religious belief as a means to
cope
Thankful for the presence of
her husband and son
Chronological List of Themes Interview Two
97
basin 10 years ra tagal but
only God knows. Ako lang, Thinks she can do it
hundred percent I can do it.
Silay nakuyawan ako wala.
I: So ang lain tao na nuon ang
nag-worry Maam?
R: Oo, cause only God knows. Leaves it up to God
I trust the Lord.
I: So its your faith in God that
gives you strength?
R: Yes, Siya [God] jud. Ug God and her family pull her
nagpasalamat pud ko naa ako through
husband and son <smiles>
I: Salamat kaayo sa imong
time maam
R: Pasensya dugay ta nagka-
abot kay na-busy jud oi
I: Ok ra maam oe.
Nagpasalamat ko nagkaabot
ra jud ta.
R: Salamat pud sa pagsabot.
Godbless!
 98

Feeling of normalcy despite few physical symptoms

Felt more susceptible to vomiting post-transplant but still able to work
Felt like normal although with certain limitations
Regained hope after the kidney transplant
Dialysis situation seen as hopeless
Felt happy that kidney transplant gave better chances of survival
Religious belief as a means to cope
Kidney transplant as new life
Resumption of usual routine after kidney transplantation
Use of positive thinking to motivate self
Mask wearing affects belongingness
Felt neglected by her parents and siblings
Kidney transplant as new life
Questioning occurrence of kidney failure
Religious belief as a means to cope
Shock of kidney failure diagnosis
Recollection of kidney failure
Improved physical health
Being transplanted is not a hindrance in social interaction
Conscious of preventing acquiring infection
People around her were protective of her
Not wanting to be left out
Initiative to approach others
Wants to be proactive
Wants to be there for her family
Does not see self as less after having a kidney transplant
Kidney transplant enables her to do things unlike with dialysis
Sees time on dialysis as hopeless and depressing
Dialysis limits time to do work
Feeling normal except for episodes of nausea
Feeling of some resistance to illness
Sons presence gives her strength
Disclosure of ones status to loved ones
Felt the positivity of her husband and son
Need to feel strong for loved ones
Familys concern over her health
Still able to travel long distances
Dwells on the positive side of things
Recollects previous anxious thoughts
Considered anxiety leading to insomnia caused her kidney failure
Forgiveness for wrongdoers
Able to travel abroad after the kidney transplant
Has times of sickness but recovery times are normal
Does not dwell on fear of rejection
Does not feel weak compared to the general population
Sees herself not surviving with dialysis
Relationship with husband is fine
Unwavering support of her husband and son
Still feels hurt over her familys neglect
Does not dwell on the possible short graft survival
Belief in ones self
Religious belief as a means to cope
Thankful for the presence of her husband and son

Theme Table for Interview Two


Themes
Establishing the new normal
Feeling of normalcy despite few physical
symptoms
Felt more susceptible to vomiting post-
transplant but still able to work
Feeling like normal although with certain
limitations
Resumption of usual routine after kidney
transplantation
Feeling normal except for episodes of
nausea
Still able to travel long distances
Able to travel abroad after the kidney
transplant
Has times of sickness but recovery times
are normal
Does not feel weak compared to the
general population
Kidney transplant as a new lease in life
Regained hope after the kidney transplant
99
Page Key words
1 After sa pagtransplant, after sa
pagtransplant, um, naka-feel ko na ok ra
man, normal ra though there is a time na
usahay na mama-stress ko unya
magsuka-suka ma-expose sa sunlight and
then maglipong-lipong mao na siya factor
kana long distance travel usa pud na siya
makacause sa ako.
2 Lahi ra siya kay actually mag-vomit lang ko
during magka-fever and then after
transplantation usually less na ako
resistance ba pero we can able to work.
2 So mao ra ang good thing na murag normal
lang ba pero there is a kanang there is
limitation when it comes to health na there is
a kanang there is a limitation nga dili
naka labi na sa pagkaon nga
contraindicated ingon ana So
kinahanglan jud na kanang i-observe nako.
Usahay murag naa nakoy control ba kanus-
a kamaluya. Kanus-a sad ka mag-suka
suka, so ma-aware nako after the transplant
so mao na.
3 After Im like to be honest, after my
transplantation, a week [after] able nako mo-
work. Unya week after the disposal sa
hospital able nako mu-work even makahimo
nako sa mga panimalay.
7 Para nako normal na jud, physically when it
comes to physically, though kita tanan
maka-encounter man jud ta ug lipong-lipong
pero para nako compare to the kuan murag
pareha ra mi kay though naa mi sa usa ka
pamilya.
9 Pero travel-travel na layo pwede ra man.
10 Oo, kay after sa akong transplantation ni-
ask ko ni [doctor] pwede ba mo-travel sa
Singapore? Ok, after release, dispose,
travel mi Singapore, Ok.
11 Naka-experience ko [sickness] one time,
pero dali ra man ang recovery. Like normal
na tao mo-inom lang kadyot, mga
carbocistein ana.
11 Wala man sila nasuyod. Pero para nako
mas maka-ingon ko naluya sila, o mas ok pa
man diay ko maka-ana, maka-compare ko,
mas pa man diay ko.
2 Para nako murag na-happy ko after the

Felt happy that kidney transplant gave
better chances of survival
Kidney transplant as new life
Improved physical health
Kidney transplant enables her to do things
unlike with dialysis
Socialization and interaction post-
transplant
Mask wearing affects belongingness
Being transplanted is not a hindrance in
social interaction
Conscious of preventing acquiring
infection
Not wanting to be left out
Initiative to approach others
Support system in the post-transplant
phase
Felt neglected by her parents and siblings
Sons presence gives her strength
Disclosure of ones status to loved ones
Felt the positivity of her husband and son
Familys concern over her health
Relationship with husband is fine
100
transplant kay for me there is a hope. Before
the transplantation hopeless na jud ko. <on
the verge of tears>
2 Pero after the transplantation, 100% [will
survive]. Im so happy gyud.
3, 4 [Kidney transplant is like a] New life. [ ]
Happy jud ko sa second life gi-extend sa
Ginoo
5 There is a change. Nakabati nako ug
moisture sa akong skin. Nakabati nakog ug
kanang singot unya murag lahi ra jud.
Murag kanang maka pwede naka
makabuhat, pwede nakamurag naa na jud
kay kusog.
7 Nagpasalamat ko mi-abot ko anang na-
transplant, able ko. Pero katong dialysis
ko<trails off>
3 So mo-belong ra ko sa in a group of people
without wearing mask though mga tao
mahadlok nako kay ma-infection ko daw
mga ingon ana.
5-6 gipalikay pa ko ug mga tao as advised sa
doctor pero mingle ko sa mga tao
6 Every time na kanang mag-shake hands ko
sa mga tao so mag-sanitize lang.
6 Mo-join man jud ko sa ilang group. Di ko
gusto ba ma-neglect ko
6 Bisag in a group akoy mo-approach bitaw
3 Even though my family, my immediate
family, my parents, my brothers, they really
forget me jud.
8 Mao ray nakadasig nako bah, the value of
love, kinahanglan jud sa anak
9 Every time ako siya sulti-an what is
ginabawal, unsay pwede. Ako siyang gi-
ingnan What if Dong?, akong gi-open sa
iyaha ba,What if Dong, we dont know when
is the end of my age?. Ni-ani siya, Noh?
Kinahanglan taas pa kag edad Ma oe. Taas
pa kag edad maabtan. Mura positive lang
jud akong pamilya, akong bana ug akong
son.
9 Positive ra jud kayo sila. Para nila, dili sila
ka feel naglain ko
9 Maka-sense sila. Labi na karon lang na time
kay na busy ko sa ITR. Maka-sense lang
Ayaw pagduko-duko malipong na pud ka,
ana lang ba.
11 Ok ra man, ang relationship

Unwavering support of her husband and
son
Still feels hurt over her familys neglect
Coping with the post-transplant phase
Religious belief as a means to cope
Use of positive thinking to motivate self
Wants to be proactive
Wants to be there for her family
Does not see self as less after having a
kidney transplant
Need to feel strong for loved ones
Dwells on the positive side of things
Belief in ones self
Coming to terms with adverse
transplant outcomes
Does not dwell on fear of rejection
Does not dwell on the possible short graft
survival
Interview Three Transcript
101
12 Oo, 100%. My husband and son mao ra jud
naka-face even sa pag-consult sa doctor.
Kami ra jud.
12 Though masakitan ka sometimes na imo
family ni-visit nimo pero dili kayo importante
para nila.
2-3 [ ] dili kita nagkupot sa ato life but there is a
13 hope nga gi-trust, gi-hatag sa Ginoo
because of His love [ ] So salig lang ko kay
God knows what is in my heart. So gi-prove,
it is Gods proving, gi-prove sa ako na He
can do it. [ ] cause only God knows. I trust
the Lord. Yes, Siya [God] jud.
3 I can do it, I can do it. Think positive lang
6 Akoy mo-protect. Ako na nuoy mo-protect
sa akong kaugalingon. Buhaton lang nako
ang diha para ila para dili lang sila kanang
ma-ma unsa ni ma-depress na Kay di na
siya di nako able ba.
6 Buhaton lang nako ang diha para ila para
dili lang sila kanang ma-ma unsa ni ma-
depress
6-7 Mao nga tagaan nako ug kanang ahh
value akong kaugalingon na dili nako i-down
akong kaugalingon
9 Dili man ko magluya-luya sa ilang
atubangan.
9 Kay ako rule man gud sige kahuna-huna ug
negative sakayan pud ka sa pagka-negative
pero think positive mahimo nimo sa tabang
sa Ginoo, you can do it.
13 I can do it. Silay nakuyawan ako wala.
11 Wala, wala ko naghuna-huna ana. Nobody
knows kung kanus-a jud ta. Nasulat jud na
atong mga pangalan ngadto. When is our
age, pero trust lang, think positive. The
more you think,the more opinion with others,
wala gyud na sila nasayod. Even sila
masayod.
12-13 Naay mo-ingon na basin 10 years ra tagal
but only God knows. Think positive.

Emergent Themes
Experiencing sleeping
problems may be caused by
stressing over something
Humor used to cope
Pre-existing lupus condition
led to deterioration of kidney
function
102
Original Transcript Exploratory comments
I: Good afternoon, Im Clarice
Im doing a research regarding
lived experiences of young
adult transplant patients. Mao
ni siya napili nako na topic for
my thesis. Um, how are you
today?
R: Ok lang. Um katugon ko Feels sleepy
gamay.hehehe
I: Dugay ka katulog gabie?
R: Oo, usually karon na Able to sleep late lately but is
these past few days ba, dugay not sure of the reason
kaayo ko katulog. Ambot lang
wa ko kabalo ngano.
I: kanang bag-o ra?
R: Two weeks ago, ana. Maybe thinking of something
Siguro daghan lang ko gihuna- or stressed
huna or stress. Char! Use of expression char to
diffuse seriousness?
I: Kanang ako lang i-review
ha. Akong ibutang sa initials
kay [initials] since Ill be
concealing identities man gud.
Age is
R: 23
I: 23, female. Civil Status?
R: Single
I: Unsa gani imo diagnosis
before the transplant was
performed?
R: Kuan man, actually, lupus Lupus resulted to affecting her
patient ko. So maong kanang. kidney function
I think mao na siya naka
maoy reason na-affected
akong kidneys, ingon ana
gani. Ni taas akong creatinine
so mao to gipa-kidney
transplant.
I: So murag mo-flare siya and
then mo-subside na sad, ana.
R: Ai di, pagkapila na siya ka Kidney function slowly
years nagkataas-nagkataas deteriorated over the years
man akong crea gud. So
ikapila ko gi-biopsy, murag
twice ko na biopsy kay para i-
check ambot unsa to siya.
Then sige pa taas ako ang
crea, continuous iyang
pagtaas mao to gi-advise to sa
akong doctor pa-kidney
transplant na kuno ko.
I: Ok, ang date sa imong
kidney transplant gani?
R: Um 23 October, 2013?

Still newly transplanted
Venturing out early after the
transplant
Staying at home post-
transplant makes her miss her
friends and her work
Chose work that is not that
heavy for her to handle
considering her lupus
condition
Resumed worked to fend off
depression and have a sense
103
I: 23 October 2013. So
relatively bag-o pa jud.
R: Bag-o pa. Wala pa siyay Stil newly transplanted
six
I: So how many months, 11,
12, 1, 2, 3
R: Five months pa then Already going outdoors five
naglakaw na. <laughs> months after the transplant
I: Bitaw, some patients
ganahan sa sila na kanang
after 6 months but there are
come also mo-try na sila ug
regain sa ilang usual na
routine.
R: Kay kuan man gud, murag Staying home makes her feel
laay na kaayo sa balay. Mura sad since she cant see her
kog ma-depress. Unya kanang friends use of word depress
naa ra ko sa balay unya dili ko to mean sad?
kakita sa akong mga friends.
Unya as in for the whole mga
5 months naa ra ka sa balay
diba murag lain siya ug
feeling? Unya wala koy work Has no work since she
kay nag-resign ko para sa ako resigned for her transplant
ang transplant kay nagprocess boredom from stalled
sa papers. Unya mga lab tests activities?
ingon ani. So kinahanglan ko
mo-resign sa akong work. Mao
to sad isa sad sa reason ma-
depress ko ug samot. Mao to
siya.
I: Unsa diay imo work
previously diay?
R: Tungod kay naa man jud Can only work part-time
koy SLE, mao ng weak jud ko. because of her condition
So, akong work is part time ra Worked as an English as
na nag-teach ko ug ESL, secondary language teacher
English as second language.
Nag-teach ko ug ESL, part-
time job ra siya.
I: Unsa na siya, is that the face
to face na ESL or kanang
online?
R: Online and offline siya. Mo-
adto ko sa office bisag online
siya. Didto ra gihapon mi mo-
trabaho.
I: Ah ok mga Koreans? Or
sagul?
R: Kato na job kay Japanese
kay Japaese owned man gud
siya so more on Japanese ang
mga students
R: Actually mag-one week na Recently resumed worked
naa koy work. Home-based, although home-based to fend

of purpose in life
Chose work that is not too
stressful for her post-
transplant state
Felt surge of energy post-
transplant
Surge of energy eventually
died down but overall there is
a feeling of increased energy
Increase in appetite post-
transplant
104
kay mao lage toh maka- off depression? to have a
depress siya na wala kay sense of purpose in life?
gibuhat sa imong life. Murag
feeling nimo wla koy purpose
diri oi. Murag ingon ana. So
mao to nag-apply ko online
pero home-based lang. The
same job lang gihapon lahi na
company.
I: Ah ok. English as secondary
language gihapon. Daghan
bitaw na ron.
R: Oo, para mas convenient Chosen work is not that
siya. Para dili ko ma-stress stressful for her
kay dili nako kinahanglan
molakaw ingon ana.
I: So how was it like, tell me
about the impact of kidney
transplantation in your
everyday life?
R: Umright after gyud sa Felt the surge of energy after
transplant murag taas kaayo the kidney transplant
akong energy. Grabe dili na
murag di jud mahuman akong
energy, murag thee whole
days nag-sige ra ko tindog,
nag-sige ra ko ug bake ug
luto.
I: After na sa discharge bale?
R: Oo, after the discharge jd. Rested after hospital
Siguro mga pila lang ka days. discharge but after felt hyper
Mga 3 days ra ko nag-rest This eventually died down
gamay, ana. And then after although overall she felt she
ato, pila ka weeks...Three has more energy post-
weeks siguro murag hyper jud transplant
ko ba. Pero pagkadugayan
kay lie-low na gamay, gikapoy
napud siguro. Pero karon,
umsiguro mas kusog, mas
daghan nako energy. Kay
compared sa una ba na naa
koy kaningwala pa ko na-
transplant. Pero naa man gud
koy SLE so murag mao jud to
siyay main reason sad siguro
na weak jud ko. Dali ra ko ma-
stress, dali ra kong kapuyon,
ingon ana. Pero after sa
transplant murag mas nitaas Increase in appetite post-
akong energy unya kusog transplant
nako ug kaon. Before ato kay
naay times na diliwala jud
koy gana mo-kaon. Mokalit ko
ug kaniwang then manambok
nasad ko kay mura kog
kasukaon pirmi. I think tungod

Conscious of subsequent
weight gain
Wanting to exercise to lose
weight
Side effect of corticosteroid
her face
105
na siya sa taas na crea.
Kanang mag-sige ka ug
kasuka-on. Mao to siya. After
sa transplant nanambok na Conscious of subsequent
nuon ko. <laughs> Maoy di weight gain
nako ganahan oe. Mao na oe.
Kinahanglan nako mag- Wanting to exercise lose some
exercise para maniwang. weight
<laughs>. Lingin na kaayo
akong nawong kay sa Conscious of her round face
medicine man gud nako dili
pareho sa mga normal na nag-
transplant na walay SLE. Dali With her lupus, prednisone
ra i-reduce ilahang dosage sa dose is not readily reduced
prednisone ako-a kay dugay unlike other post-transplant
jud siya kay SLE unya kidney patients
renal patient.
I: Do you still have a dose of
prednisone karon?
R: Oo, karon kay 12.5 nako
from 20
I: A day?
R: Oo, 12.5 a day. 20 to before
then 15 until 12.5. Pero dili jud
na siya mawala sa ako-a ang
prednisone kay main medicine
man sad nako siya sa SLE.
I: Going back sa SLE, when
were you diagnosed diay?
R: Mga 12 years old ko. So 11 Diagnosed with lupus age 12
years na. Ingon nana
I: So 23 minus 12 years
equals 11.
R: Na-diagnose ko high school Arthritis and butterfly rash
ko. First year high school. were the first manifestations of
Unya, una ato abi nako the lupus
arthritis ra siya na normal.
Arthritis unya bata pa baya ko
ngano naa man koy arthritis
then bata pa kaayo. Unya nag-
butterfly rash unya naay fluids
sa knees unya unsa na,
kanang swell? Akong fingers
then on and off fever ko. Mao
to gidala ko diri sa Cebu.
I: Sa Cebu kay before you
were based sa?
R: Sa Pagadian man jud mi,
Mindanao
I: Zamboanga?
R: Oo, Zamboanga del Sur
I: Actually, I was born in
Zamboanga pero sa City then
after ana ni-migrate napud mi
diri Cebu

No experience of being on
dialysis pre-transplant
Kidney transplantation was
anticipated with the kidney
function deteriorating over the
years
106
R: Zamboanga City?
I: Oo
R: Lahi ra man, lagyo. So
Chavacano ka?
I: I didnt get to learn kay we
left when I was like 4-5 years
old.
R: Ahhh
I: Zamboanga. Karon diri na
jud mo Cebu nagbase or mag-
ulian gihapon
R: Dugay nako wala maka-uli.
Mgamag-three years na.
Naa naman gud mi balay diri
so di na kaayo mi tig-uli. So
wlaa name ulian jud didto. Kay
naa namn pud mi diri tanan.
I: Kay last time nagkita ta ato, I
think imo to father and brother
ang naa adto sa nursing office
siguro to.
R: Katong para sa kidney
donor.
I: Murag nag-inquire ra mo ato
na time. Nangutana lang ko
asa ang patient. I think it was
your father murag ni-approach
at first then dinhi ka dapita
<points directly across>.
During the time nagstart naka-
dialysis ato?
R: Di. Mao sad nay difference Has not been on dialysis
nako sa tanan siguro. Wala before the transplant
jud ko na-dialysis.
I: Pre-emptive diay ng imoha
R: Pre-emptive?
I: Kana gani ano, even before
your crea nisaka jud siya.
Um the doctor who was
checking up on you kay
nagbantay na kanus-a ka
pwede ma-transplant
R: Sige naman sila ug ingon Kidney transplantation was
ana last year the other year anticipated with the kidney
pa siguro sila sige ug sulti-sulti function deteriorating over the
sa ako na basig na naay years
possibility na mag-kidney
transplant jud ka, ana Kay
tungod man jud siya sa akong
lupus ba mao ng nag-sigeg
kataas akong crea.
I: So not even one session of
dialysis?
R: Wala gyud. Wala gyud pero A hemodialysis access was
naa toy um last year, ai the placed in case she needed an

Thankful that she never went
through dialysis
Feels ashamed to be seen
with a prominent central line
catheter
Concern over donors welfare
after the transplant
History of lupus in the family
107
other year, December. Kay ni- emergency dialysis for the
ingon akong doctor na akong rising creatinine
nephrologist ni-ingon siya na
basin makalit ta ug dialysis
kay siguro nikalit taas akong
crea ato. Kinahanglan nako
magpabutang ug access. So
nagpabuhat ko ug access.
Unya wala siya ning. Di ba
kinahanglan mo na
I: Mo-mature siya?
R: Akong veins, unsa ba na? The access never matured but
Ugat. Wala man siya ni- was never used anyway
mature. Pero wala man sad ko
gi-dialysis hinuon wala na jud
siyay gamit. Kung
kinahanglan na jud siya di ba,
diri nman siya sa liog?
I: Oo, IJ na
R: Oo, ingon ana. Pero wala Thankful that she never went
man jud ko naka-abot pud through dialysis
didto na point. May nalang jud.
Kay na di ko ganahn mag- Doesnt like the thought of
dialysis. Mahadlok ko kay being a young adult being
siguro kana bitaw um naa confined in the hospital
ko sa akong stage na kanang
young adult unya di ka
ganahan sige kag didto ug
hospital. Unya di ka unya Afraid to look ugly because of
mo-maot ko<laughs> her condition? laughs to
diffuse seriousness?
I: Naa man mobitay from your
neck with an IJ.
R: Oo, murag mauwaw ko. Feels ashamed to be seen
Ingon ana ba. So mao to with a prominent central line
nahadlok jud ko mag-dialysis catheter
ko. May nalang deresto siyag
transplant. Pero before sa Apprehensive of transplant
transplant nahadlok sa ko nga since her donor will be her
di ko ganahan mag-transplant brother which makes her worry
labaw ng akong donor kay of his well being
akoang igsuon. Kay murag
mahadlok sad for him ba basin
ma-unsa siya, ingon ana. Pero Resigned to the idea that it
mao man jud. has to be her brother
I: Unsa siya, manghod nimo or
maguwang?
R: Manghod nako siya. Kuan Donor is her younger brother
ra jud, one year among gap. by one year
I: But so far, sa inyong
managsuon walay nag-
manifest lain ug lupus?
R: Wala man. Pero ana sila No sibling with lupus
nga akong Naa kuno naay
lupus before nako. Cousin A cousin of her father

Donor doing fine except felt
uneasiness and numbness
over the postoperative site
A feeling of numbness over
the postoperative site
Can feel and see the bump at
the postoperative site
108
daw sa akong Papa. Pero apparently had lupus-like
wala na siya ron. Kanang na- symptoms
diagnose daw to siya kay
college na siya unya wala
Siguro ato na time kay di pa
kaayo known ang lupus na
kuan unya probinsya pa jud
ingon ana. Pero di ko sure
kung lupus ba jud to.
I: Wala bale siya na-officially
na-diagnose? Pero renal to na
problem?
R: Oo.
I: Bitaw pud lupus strikes 20-
30s gani. Murag dili mag-
expect. Kumusta na imong
brother?
R: Okay na man siya. Kanang, Donor brother is doing fine
kusog na siya mukaon sad, except for times when he feels
ingon ana. Pero kusog man uneasy of the healed
jud na siya mukaon. Usahay postoperative site line when it
murag na-uneasy sad siya sa is bumped.
iyang tahi ba nga murag
mahadlok siya ma-igo. Hadlok
siguro na basin maabri niya
gani <laughs>. Pero ok ra man
so far. Pero naay feeling na A feeling of numbness over the
kana bitaw murag ngilo i-touch postoperative site both for the
ang part na gi-operahan. Mura donor and recipient
siyag walay, wala kay ma-feel,
murag numb. Pareho sa ako-a
mura siyag numb, wala ko
kabalo ngano.
I: Sa kaning incision?
R: Oo.
I: Sa right ba ka?
R: Diri ko <points to left>.
Mura siyag numb something
I: During the first few days,
ma-feel ba to nimo. Did you
feel something like bump ba
ron siya?
R: Ma-feel gyud nimo nga Can feel and see the bump at
naay lahi. Kana gani mo tan- the postoperative site
aw ka sa mirror, dili jud siya
level. Magburot jud ang
kidney.
I: Ok, does it even out?
R: Wala, murag ingon ana na
jud siguro siya. Niana akong
doctor sa una na if imo jud
siya i-touch, ma-feel gyud na
siya nimo.
I: Murag naa may space
gibutangan sa kidney dinha

Mask wearing interferes with
wanting to go out due to
hassle and embarrassment felt
Self is different from other
people when wearing a mask
Humor used to cope
Prefers that others didnt know
she had kidney transplant
109
R: Oo. Unya kuan, unsa pa Hates mask wearing
man, difference in everyday Considers it a hassle
life? Dili nako makalakaw dali- Embarrassed wearing a mask
dali. Ang pinakalagutan nako Admonished by doctor and
kanang mask. Mag-mask ko mother to wear mask
molakaw. Maulaw ko ba, ingon
ana. Sige ko kasab-an sa
akong doctor kay ngano di ko
mag-mask. Hasta akong
mama sigeg pangasaba,
maulaw man ko oe. Mao ra di
nalang ko ganahan molakaw
usahay.
I: Were you still advised to
wear mask?
R: Um Di naman kaayo Advised to wear mask in
basta di lang sa mga crowded crowded areas
places. Pareho ani di ra, wala
ra man tao, so ok ra. Kung
mo-adto ko kanang daghan
tao, mask jud.
I: If ever youre wearing a
mask, how do you react with
how people react around you?
R: Siguro, kuan if naay mo- Stares back at people who
stare nimo, ingon ana mo- stare at her while wearing a
stare back sad ko like unsa mask laughter to diffuse
man?. <laughs> Pero usahay seriousness?
ako rang sagdaan. Siguro Sometimes doesnt mind
katong pagsugod jud, murag people staring in the long run
mauwaw jud ko. Ganahan ko Wanted to wear concealing
mag-hoodie unya jacket jud ko clothes as not to attract
ingon ana para di ko kakita ug attention doesnt want the
mga not unless kana kaila scrutiny?
nimo ang nakita nimo. Hala
oe. Basta naa koy makita na
kaila. Ok ra ng wa ko kaila
kay sige lang.
I: Whats the difference sa
kaila ug di kaila?
R: Kay wala man gud nako Prefers that others didnt know
gisulti nga nag-transplant. Ai she had kidney transplant
wala jud nako gipangsulti sa
akong mga kuan ba na nag-
transplant ko. Di ko ganahan
isulti. Pero naa man gud uban
kabalo kay tungod sa akong
papa siguro. Kay ako mga
Iya sad gisulti sa iyang mga
kauban didto unya iyang mga
kauban kay ang mga anak ato
mga classmate ra sad nako sa
una so nakuan-kuan na
storya. Dali ra bya mo-crawl
ang balita, ana. Dali ra kaayo.
So mao to. Para sa ako jud di

Doesnt want to appear weak
Doesnt want the scrutiny over
her having a kidney transplant
Doesnt like dwelling on her
illness which makes her feel
sad
Improved physical health
Feels like living a normal life
Wants to exercise to lose
weight and prevent bone loss
110
ko ganahan ipagsulti-sulti ba.
Ambot lang kay di ko ganahan Doesnt want to appear pitiful
mo-look depressing, di ko just because of she had kidney
ingon ana na Hala gi-kuan transplant
diay ka, gi-kidney transplant
diay ka? Basta kanang ingon
ana. Kapoyan ko anang mo- Does not want to answer
explain, kanang mga questions and having to
pangutana, ingon ana. explain laughter to diffuse
<laughs> seriousness?
I: Did it come to a point na
mangutana sila ana nimo and
then youre having certain
emotions, like youre not in the
mood?
R: Oo. Usahay sad kay Thinks about her chronic
kanang mura ba siyag ma- condition, lupus
flashback gud nimo sa unsay
na happen nimo nga kanang
labaw huna-hunaon nimo na
naa koy sakit, ingon ana. Unya
dili lang jud normal na sakit na
after kidney transplant maayo
naka kay forever man jud ko
na SLE patient so murag um
Siguro para nako mura kog Feels sad if she continually
ma-sad ba na kay sige nako dwells on the thought that
mahuna-huna ba na dili ko shes not healthy
healthy. <laughs> Ingon ani
jud ko forever, ingon ana. Mao
na siya, di ko ganahan kay
makahilak ko. <tearful but
laughs>
I: How do you consider your
health now?
R: Mas better naman [health]. Improved physical health
Ok naman. Wala may
problema. Kanang kusgan ko. Has more energy to do things
Naa nakoy energy mubuhat sa
akong mga kinahanglan
buhaton, maka-work nako
bisag sa balay pa lang karon,
ingon ana. Normal, normal life Feels like living a normal life
ra man.
I: Unsa imo plans? Immediate
plans ba ron or long term
plan?
R: Para karon, first, lose Wants to exercise to lose
weight <laughs>. Exercise jud weight and prevent bone loss
do kay sige ingon akong mga
doctors kay magtingon-tingog
na akong mga bones kay
tungod sa prednisone murag
ma-brittle akong mga bones.
I: Ah ok.

Frustration over weight
fluctuations
Wanting to look good because
shes a girl
Asking validation from family
regarding her appearance
Humor used to cope
Upset over feedback that her
face is round
Efforts in concealing her round
face
Conscious of hair problem
Humor used to cope
Medications could have
caused hair fall
111
R: Then dali ra kaayo mosakit
akong back. Gi-osteoporosis
na siguro ko. <laughs>
I: Taud-taud naman sad imong
steroids noh?
R: Pila na ka years, mga Prolonged corticosteroid use
eleven. Muburot ko unya Does not like the fluctuations
mohiyos, muburot na sad. Naa in weight and appearance
days makalagot jud. Lingin
kaayo akong nawong kay ma-
conscious jud bitaw ko. Ambot
siguro, um babaye ka ba, Wants to look good because
ganahan ka na you look good, shes a girl
ingon ana.
I: Does it bother you when you
look at the mirror?
R: Oo, as in, super. Magsige Bothered when looking at the
ra ko ingon sa akong mama, mirror
Ma oe, lignin ayo akong Often asks her family if her
nawong, lignin ayo akong face is round laughter to
nawong, lignin ayo akong diffuse seriousness?
nawong. Sige ko pangutana
sa kaong manghud, Lingin
gihapon akong nawong?
<laughs>
I: Unsa man pud tubag niya?
R: Oo. <laughs> Usahay sila Gets upset over answers of
na mo-ingon nako. Lingin family members that her face
lage imong nawong ron te. does look round
<laughs>. Hala laina ayo oe. Covers face with hair or
Mao magsige nalang ko ug something
cover sa akong face sa akong
hair or something ana. Pero Problem with falling hair
karon, falling hair ko. Grabe Had to have a short haircut to
akong falling hair, murag um make falling hair not obvious
as in, super. Niani gud tong, laughter to diffuse
napa-haircut nalang ko ug seriousness?
short hair kay di siya. Ni-
ana tong tig-cut ug hair,
Maam grabe imong falling
hair noh, basin mga two
weeks maam <laughs>
I: Gitagaan ka ug taning?
R: Lage, Salbahis lage na Thought about buying a wig to
kuan<laughs> Gi-ingnan address falling hair issue
kog two weeks na lang. Mao
to na-worry ko kinahanglan
nako mupalit ug wig ani.
<laughs>
I: If nagfalling hair ka, kanang
unsay gi-pinpoint na reason sa
mga doctors?
R: Oo, I think sa medicine. Prescribed medications could
Unya, unsa pa, changes pud have caused the falling hair
sa body, unsa ba?

Bothered by stretch marks all
over her body post-transplant
Bothered by persistent easy
bruising
112
I: Asa pud dapit?
R: Kani o, <points to chest>, Noted stretchmarks all over
diri <points to upper arms>. her body
Unya sa akoang tahi, naa
siyay murag ning stretchmark.
Unya akong whole breasts,
puno siya.
I: After na jud na siya sa
transplant?
R: Bag-o ra ni siya ninggawas. Noted stretch marks after the
I think siguro pag-gain nako ug weight gain post-transplant
weight. Pero grabe jud siya
kay pula kaayo siya. Ambot
lang, usually ang stretch
marks kay puti man na di ba?
Or mo-vary?
I: Actually, naay uban reddish,
naa uban mura siyay purplish,
reddish, naa pud uban silvery,
naa sad uban whitish.
Depende ra jud sa lawas sa
tao.
R: Pero daghan naman jud ko Noted stretchmarks to be so
ug stretch marks. I think ambot many and some are reddish
lang tungod siguro sa kaong
tambal siguro. Sensitive kaayo
akong skin. Daghan jud kog
stretch marks jud. Pero kani
siya <points to chest area>.
Maoy red ang uban kay putira
siya. Sa ok-ok lang, di ra man
ma-claro. Pero kani, pula pa
ani <points to upper arm>.
I: katol ba siya?
R: Usahay
I: So during na siya sa weight
fluctuations?
R: After na ni siya sa akong Easily bruises, blood
transplant. Kaning bag-o, mga extraction sites heal slowly
two months ago. Pero kuan
sad, dali ra ko mo-bruise. Like
sa mga extractions nako. Dili Whole leg is with bruises
siya ma-heal. Akong whole leg She thought this would go
puno ug bruises. Dili mawala. away after the kidney
Pero dili ko kabalo ngano. Kay transplant but they didnt
abi nako after nako ma-kidney
transplant, mo-mawala siya,
unsa bay tawag ana?
I: Pero before your transplant
nah jud nay bruises na
mogawas lang?
R: Oo, dili jud siya mawala.
Murag pila na ni ka-years diri.
I: Pero with your activity mga
ingon ana. Ang platelet,

Has less potent medication to
combat anemia
Adapted to drinking water to
help preserve her kidney graft
function
More concerned of her health
and the treatment regimen she
has to follow
Feels good with the effect of
compliance to treatment
regimen
Considers self as an emotional
person and over thinks things
113
bleeding parameters?
R: Kuan, ubos ko ug To correct anemia, before
hemoglobin. So nagsige ko ug transplant had to have
Recormon ato bag-o ko gi- erythropoietin injections but
transplant, during transplant after the transplant is only on
and few weeks after the supplementary tablets
transplant. Pero karon kay
kuan nalang tablets.
I: Wala nakay mga injections?
R: Wala nakoy mga injections
karon
I: So far, nagka-problem ba ka
ug mga infections, rejections
or fear. Like your crea rises?
R: Ah, after sa transplant?
I: Oo, after sa transplant
R: Oo, mahadlok ko basin Afraid that her creatinine might
musaka siya [creatinine]. Mao rise so she drinks a lot of
ng magsige nako ug inom ug water
tubig. Sa una dili man ko tig- Before doesnt like the taste of
inom ug tubig kay lud-an jud water but now likes the taste of
ko ba, ingon ana. Pero karon water and drinks more often
kay may na lang kusog nako
mo-inom ug tubig unya murag
lami-an nako ug tubig. I think Sees change in water drinking
naka-help jud siya na sige ko habit helped maintain her
ug pangihi unya na-maintain creatinine level
jud nako akoang crea ba.
Usually akong crea is 0.3?
0.9? unsa ba na?
I: 0.9 siguro kay ang normal
0.5 to 1.2
R: O.
I: So there was a change sa
pag-inom ug tubig?
R: O, ana. Before wala ra man Isnt that conscious of her
koy paki-alam sa akong health health before but now is more
before kay bisag unsa akong conscious
kaonon. Unya di kaayo ko tig-
inom ug tubig unya dili pa jud
ko religious mo-inom sa kaong
tambal. Unya karon, kay mo- Complies with medication
inom na jud ko ug tambal regimen and feels less tired
<laughs>. Mao to siguro because of it laughter to
kanang ummas nindot diffuse seriousness?
akong feeling. Kanang dili
nako dali ma-stress, makapoy,
ingon ana.
I: What triggers your stress?
R: Kuan man gud siguro ko na Considers self as an emotional
tao, kanang emotional ko na person and over thinks things
tao so I think more on
unhappy akong feeling, ingon
ana or daghan kaayo ko
gihuna-huna. Ako man ang

Reconnecting with friends
after the transplant
Mothers protectiveness post-
transplant
Caregiver stress experienced
by mother
114
type na person na super mo-
think ba. Super mo-analyze ug
mga things mao ng ma-stress
akong utok sa akong mga
emotions. Mao siguro
makapoy ko unya dili ko
katulog, ingon ana. Then
pareho karon sa akong job na
bag-o pa ko murag ganahan
kog buhaton tanan ba. So
magbilar ko ug buhat mga
kinahanglan nako, ingon ana.
Di man gud ko kahibaw mo-
manage sa akong time, unsa
ba? <laughs> Murag ma-
stress ko. Mao ba na siya?
<laughs>
I: Bitaw, murag mo-feedback
man pud na siya. Maghuna-
huna ka ug something, your
body react pud.
R: Unya siguro peer pressure Peer pressure?
char! Peer pressure. <laughs>
Siguro ana.
I: How are you with your
friends? Do you still
communicate?
R: Actually, first time nako Recently bonded with friends
yesterday nga nakalakaw ko over a movie
with my friends. Kay usually Eversince she had the
jud, uban jud nako akong transplant, it has been her
mama kay siya man mohatud mother who drives her around
nako, ingon ana. Kay di man since shes not allowed to
ko kasakay, dili ma ko ka- commute to travel mothers
commute ba, dili pwede. Kato protectiveness?
gahapon kay nakalakaw nako
with my friends. Pero igo ra mi
nag-watch ug movie. Mao to
lingaw ayo ko. Mao na siguro
nakapoy ko karon kay murag
yesterday na-drain akong
energy, ingon ana.
I: Unsa to siya, high school or
college friends?
R: Co-workers nako before
I: Ah ok. How are you with
your mom? Sige man mo
kuyog noh?
R: O, sige mi ug kuyog. Always accompanied by her
Kanang usahay gani kay mother for her medical
makapoyan na siya kay siya appointments
man gud sige drive then layo Feels her mother could be
kaayo. Kay after sa kidney drained with all the driving
transplant sige balik-balik sa since her father is not with
Sotto sa mga check-up, ana- them caregiver stress?

Experiencing mood swings
from taking in all things that
has happened
Humor used to cope
Mother understands the mood
swings but puts a limit to it
Mothers concern intrudes
self-reliance
115
ana unya wala man jud
mokuha. Siya man jud kay
siya man ang naa diri. Wala
man akong papa ba.
I: Ah ok. So imo father is still
in
R: Naa siya Pagadian. Didto
man among business. Didto
man siya nag-work.
I: Ah ok, so mao ra imo mother
jud ang imo kuyog.
R: O, pero naa man jud time Has moments when shes is a
siguro kanang bad mood ko, bad mood and doesnt feel like
ingon ana. Dili ko magstorya, talking
ingon ana. Ingon ana, siguro
ko. Ambot lang sa health ba
na or di ba na sa akong Bad mood could be from
feelings ma-depression tungod feeling depressed over things
sa mga na happen, ingon ana. that happened or could be of
Ambot lang. Stubborn lang jud her stubbornness laughter to
ko. <laughs> diffuse seriousness,
ambivalence?
I: How would your mother
react man pud?
R: Kuan ra sad siya, di lang Her mother understands her
sad siya mokuan. Huwat lang mood swings but also comes
siya makig-storya nasad ko, to a point when her mother
ingon ana. Usahay sad ma- gets irritated and tells her to
feed iya patience noh, masuko understand her also.
sad siya, ingon ana. Sabta
sad ko ingon ana. Kuan,
maglagot man gud ko. Di man She doesnt like her mother
ko ganahan kanang sige ko doting on her to tell her to
sulti-an ba, Pag-mask or wear mask or take your
Imong tambal. Di ko medicines mothers concern
ganahan ingon ana bitaw. Di intrudes self-reliance?
ko ganahan pirmi i-remind.
Ma-annoy, ma-irritate ko, ma-
bad mood ko. Di nako Withdraws from interacting
ganahan makigstorya ug tao. and stays inside her room
Ganahan ra ko naa ra ko sa alone
akong kwarto. Didto ra ko. Ako
ra isa.
I: Whats the difference sa
iyahang pag-deal sa imoha
during sa time sa SLE pa,
wala pa ka na-transplant ug sa
na-transplant naka?
R: The same ok ra. The Mothers doting is basically the
same ra man sila. Dili man jud same as when she had lupus
lahi na, different. Siguro, and after the transplant except
magsige lang siya ug ingon, for additional reminders on
um kana bitaw mga what to do
buhatonon na dapat, mas But to a certain degree, her
sugoon niya akong mga siblings are given more duties

Some chores are lifted off her
post-transplant
Actually enjoying the extra
attention
Recently the extra attention
returned to normal
Maintains role of being an
older sister
Shifted courses to
accommodate her lupus
condition
116
igsoon kaysa ako-a, kana sa at home than her
mga things sa balay, ingon
ana. Sila may mas masugoan
kaysa ako-a. Sulti-an niya
akong mga igsoon. Bakit si
Ate ang pinabitbit mo niyan?
Ikaw ang magdala ingon ana.
Mga heavy things, dili ko pa
kuanon kay mao man lagi daw
kuno. Pero dugay na baya,
ana.
I: How did you feel during
those times na mo-step in siya
to tell your other sisters or
brothers?
R: Wala koy sisters.
I: Aw, brothers diay. Sorry
R: Siguro ato na time, ok ra Actually enjoying the extra
man kay ba-o pa man, ana. attention laughter to diffuse
Then karon, ok pa sad. the seriousness
<laughs> Tapulan.
I: <laughs together> Sige go
on.
R: Pero dili na kaayo karon Recently the extra attention
hinuon. Normal naman. returned to normal
I: With your brothers how did
they react?
R: Wala ra man. Ok ra man Feels the dominant role of the
sila. Buotan ra sila. Ako man older sister
gani sige pangasaba sa ila.
Ate baya, kasaba jud.
I: Ikaw bale ang eldest?
R: Um naa pa koy elder
brother. Pero wala siya diri
nag-work. Unya second ko
unya naa koy duha ka younger
brothers. Kato sunod nako
akong donor. Naa pa mi
youngest.
I: Ni-graduate na ba mo
tanan?
R: Ang youngest namo kay
ummag-third year high
school na siya karong
opening. Sunod nako kay
graduate na siya pero two
year course ra na. Ako
graduate na sad ko.
I: Unsa gani course nimo?
R: Mass com. Mass Took up nursing before but
communication. Una, kay shifted to mass
nursing ko. Unya one year ra communications to
kay during that time sige man accommodate condition
ko adto ug hospital kay
nagkuan ko, kana bitaw
 117

cytoxan kanang outpatient

na
I: IV bag siya?
R: Oo
I: If Im not mistaken its a
chemo drug.
R: O, ana. Good for seven Had rounds of
weeks siguro to, seven chemotherapeutic sessions
sessions. Magsige, afer pila ka
session murag maluya ko.
Unya sa nursing kay Weighed in her options which
kinahanglan bya kanang... course to take
Naghuna-huna ko ba ato na
Hala if mag-nurse ko,
kinahanglan ko mag-duty ug
kanang unsang orasa, ingon
ana. Basin di nako kaya ba.
Mao to ni-shift nalang kko.
Unya dili pud ko ganahan sige
kuyog sa hospital kay adto na
gani ko ug hospital pa-check-
up, adto pa jud ko para mag-
trabaho. <laughs> Kalooy
nalang nako. Walay laing
lugar. <laughs> Dili pud ko
ganahan sige ug wear ug
white. Ganahan ko mag-
fashion. <laughs>
I: Atong point nag-enrol ka ug
nursing, why did you enroll?
R: Siguro kay tungod kuan
kaayo ang nursing booming
kaayo ang nursing before.
Unya nursing pud akong kuya,
mao to. Actually nalibog jud ko
ato, padung nako enroll ba. Ni
adto nako [school] unya
padung nako enroll unya wala
ko kabalo unsa akong kuhaon.
Unsa kaha noh, mag-dentistry,
mag <laughs> Hala oe,
didto nako nagdecide ba. So
mao to nursing nalang kay
nursing man si Kuya, sige
nursing. One year ko ato.
I: Unya after that, ni-shift naka
sa Mass Com.
R: O, unya di man sad ko
maayo ug chemistry, mga
kuan so sige ayaw na lang.
<laughs> Mass com na lang.
I: Ang na-graduatan nimo ang
Mass com?
R: Ni graduate ko ug Mass Graduated course is mass
Comm. communications

Planning to take a post-
graduate course
Schooling postponed to give
way to kidney transplant
preparations
Wanting to continue with her
course once fully recovered
Asking the school for
consideration of case
Wanting to become a teacher
of children
118
I: Naa kay plans using that
course?
R: Kuan man sa like gamit Uses what she learned to
man sad nako karon. Um teach English
communication man sad siya.
Communication man sad
akong trabaho jud mo-teach
ko ug English. Pero nagplan Plans to take a post-graduate
actually nag-enrol nako sa course
[school] ba na? Kanang naa
dira Plaza Independencia?
I: Kanang padung SM?
R: O, kanang unahan SM,
straight dinha. Nag-enrol ko ug
kanang education. Pero kuan
ra siya, good for one year, six
months siguro, kanang every
weekends ra ka mag-study.
I: Ah, you mean kanang DPE?
Diploma for Professional
Education?
R: O, kana. Nag-enrol nako Enrolled in Diploma for
ana. Kaso, kuan man na- Professional Education but
timing man na mag-kidney had to postpone because of
transplant na. Nagplano her kidney transplant
naman sa kidney transplant so procedure
wala na nako napadayon. So
hopefully, after nako na ma-full Wants to continue with her
recovered kay ako to ma-take course once fully recovered
kay nakasugod na baya ko laughter to diffuse
ato. <laughs> seriousness?
I: Ah, so naka-enrol na jud
diay ka?
R: O, ni-enrol nako. Unya fully
paid pa jud ko. Unya ako-a pa
jud tong kwarta. <laughs>
I: Do they honor bisag wala ka
katunga ana?
R: Silbi naghataghopefully Gave a letter to the school
kay wala naman pud nako na asking consideration of her
follow-up. Pero nihatag ko ug case to continue after her
letter kay niingon man sila ra kidney transplant procedure
daw ko ug letter na ako
ipostpone ang pag-start sa
akong course. Mao to, akong
gibutang didto naa koy
medical, churva, ana, ana.
I: Ok, usually one to two
semesters guro na siya.
Depende.
R: Oo, unta lang. Teacher jud. Wants to be a teacher
Ganahan ko mag-childhoood handling children
education.
I: Youve mentioned about sa
recovery. So what are you

Feels fine but still waiting for
the doctors go signal
Feels limited by restrictions by
her nephrologist
Feels liberated by surgeons
go signal to back to her routine
as long as she takes
precautions
Wanting to do yoga as a form
of exercise
Putting off ones plans to
comply with the doctors
advice
Exercises by walking and
jogging
119
waiting for na maka-ingon ka
fully recovered naka?
R: Actually, feeling nako ok Feels fine but still waiting for
nako. Ang ako lang gihulat kay the doctors go signal
akong mga doctors unya.kay
naa man gud silaylike,
duration nga within six months
pa ka na murag normal routine
na nimo, pwede na jud nimo
mabuhat, ana. Akong Feels limited by restrictions by
nephrologist maoy mas her nephrologist
mahigpit kaayo. Higpit jud
kaayo siya, grabe. Ako ang Feels liberated by surgeons
surgeon, mga few months go signal to back to her routine
back nisulti na siya nko, as long as she takes
pwede naka mo-skwela, you precautions
can do whatever you want, -different advice from doctors?
ingon ana. Basta dili lang jud
super crowded na places,
ingon ana. Pero ok naka
mubuhat sa imong kuan.
Ganahan unta ko mag-yoga
kay mao man akoang kanang Wanted to do yoga classes as
form of exercise lang jud. Dili form of exercise
kaayo hago unya relaxing sa
mind, ingon ana. Sus, kay
nangutana ko sa akong doctor
Doc, pwede nako mag-yoga?
unya akong nephrologist,
ingon siya O, pwede naka
mag-yoga. Unya ingon ka
Doc kinahanglan ko mag-
mask inig mag-yoga? Asa But her nephrologist wanted
man diay ka mga-yoga? Sa her to do yoga at home still
balay ra ka mag-yoga. which she doesnt want so she
<laughs> Lain sad ako ra isa put that off
mag-yoga-yoga didto. Hay
nako unya nalang sa. Unya
nalang kay mao to.
I: Ang allowed nimo na
exercise kay?
R: Siguro pinaka ana akong Swimming was advised for her
doctor kay swimming jud. Ang as exercise since its easy on
best kay dili kaayo ko ma her joints
unsa na? Wala kaayo force na
kuan ba. Kay sa una mag- Jogging at times resulted in
jogging, nag-try ko ug jogging sprains
5 minutes. Akong tiil usahay
kay ma-sprain. Unsa nay
tawag ana kanang murag
mapi-ang diri <points to
knees> or sa akong tiil, ana.
Dali ra ko makuan.
I: How about walking?
R: Ok sad ang walking. Hilig Does walking especially in
man ko mag-walking sa mall. malls

Does jogging late to avoid
people looking at her
Hopeful on taking on things
she wants to do
Sadness over not having a
love life
Feels difficulty in finding
somebody to accept her with
her health condition
Humor used to cope
120
As in, hilig ko mag-walking sa
malls. Naa koy paliton sa
grocery, ingon ana. Pero sa
balay man gud, subdivision na
siya. Pwede ra ko maglakaw-
lakaw siguro. Daghan man Can walk and jog but tries to
gud mga lalaki na mag-inom avoid people by doing it late
sa kilid-kilid. Kanang murag di
ko ganahan ba mag-lakaw-
lakaw sa daan. Sa una mag-
jogging ko kay gabii kaayo kay
wala na kaayo tao ba, alas
dose na, mag-jogging ko.
I: Alas dose sa midnight?
R: O, gikan na sa mga 11-12, Does jogging late to avoid
ingon ana. Kay daghan kaayo people looking at her
ug tao unya di ko ganahan
kanang manan-aw. Dili ko
ganahan mga ingon ana.
Daghan kaayo magtan-aw tan-
aw nimo. Unya kana, mao to.
Unya karon kay walking, ok ra
walking.
I: Ang yoga jud ang target
nimo?
R: Ganahan ko mag-yoga
I: Naa nakay yoga mates?
R: People at work Sa una Did yoga with work mates
kay kuan dugay naman gud ko before
wala nag-yoga na.
I: Before nag-yoga na diay ka?
R: Before, two years ago, Tried yoga before but stopped
ingon ana. Nag-yoga ko ato. since it was costly
Na-stop. Mahal man pud.
I: So far right now, you wanna
go back sa imohang education
na course if ever ok na ang go
signal, then yoga?
R: Lage, mao na mga Hopeful on taking on things
ganahan buhaton. Hopefully she wants to do
lage mabuhat na nako.
I: How about social life, love
life?
R: Mao na, I think mao na Depressed over not having a
akong number 1 depression. love life exaggerated use of
Wa koy lovelife. Kay kana depression to connote
bitaw feeling nga um Kana sadness?
bang naay SLE unya murag
lisod mangita ug tao nga Feels its difficult to find
Serious kaayo? <laughs> Nga somebody to accept her with
mo-accept nimo na ingon ana her health condition laughter
ka. Unya lisod kaayo i-open up used to diffuse seriousness?
sa iyaha ba na kuan...ingon
ani ko, ingon ani nahitabo,
ingon ana. Forever ko

Less confidence with presence
of stretch marks and bruises
Frustrated with how she looks
Dating is limited since she
stays at home
Mothers pressuring her to
have a boyfriend
Makes her sad that nobodys
121
magtake ug medicine. Unya
kana pud physically um Concern over physical looks
conscious kaayo ko. Kay with the presence of stretch
babaye baya ko, naa koy marks and bruises feels less
stretch marks diri, unya naa confidence with these?
koy stretch marks dira. Bruise
diri mga ingon ana naAmbot
lang siguro huna-hunaon sa
uban na shallow ra kaayo,
ingon ana. Pero para nako ba, Self-depracating and laughter
murag hala oe, siguro kuan to diffuse seriousness?
kaayo ko, vain? <laughs>
I: It comes to a point na maka-
bother naman nimo?
R: Oo, magtan-aw ka sa mirror Looks at the mirror and is
ba. Hala oe laina oe, ngano frustrated at the reflection
ingon ani man? ingon ana. Di
man sad kaayo ko ka kung Cant date much since she
lovelife man gani di mad sad stays at home
ko ka-hunting. <laughs> Kay
naa ra baya ko sa balay.
Unsaon man nako. Unya nag- Didnt date in college since
school ko sa exclusive girls she attended an exclusive girls
school pag-college. Akong school
highschool kay layo uny di Doesnt want to go back with
naman ko ganahan mobalik sa male acquaintances in high
akong mga highschool kay kita school since she saw them
ka atong mga times na yagit when they were still awkward
kaayo sila so ayaw nalang. stage.
<laughs>
I: Wa ta kahibaw ni-evolve
sila. <laughs>
R: Ayaw nah beh. <smirks> Stays at home so she doesnt
Mao to so wala kay naa ra ko see a lot people.
sa balay. Di manko kakita mga
people.
I: But are you open, if ever
naay chance encounter?
R: Sige, ingon si mama, Answers the question
panguyab na oe. indirectly by telling that her
mother wants her to have a
boyfriend
I: Before, wala diay ka uyab?
R: Naa man ko before. Had boyfriends before who
<laughs> Kahibaw jud to sila. knew of her situation but these
Kay akong mga uyab before, relationships are already over
mga high school. Kaila ra pud
nako sa high school ba. So
kahibaw jud sila kay mga
classmates man pud nako.
Aware sila sa akong situation.
Mao to. Pero wala naman.
I: So si mama na ang nag-
ano?
R: Oo, sige siya ingon Her mother wants her to have

courting at the moment
Thoughts of loneliness keep
her awake
Wanting to achieve things in a
row like a job and a boyfriend
Focused before on her health
and then her work and now
having a boyfriend
Concern over being single at
her age
Enjoying the flirtations she
gets to experience
Chronological List of Themes Interview Three
Experiencing sleeping problems may be caused by stressing over something
Humor used to cope
Pre-existing lupus condition led to deterioration of kidney function
122
Panguyab na oe, ingon ana. a boyfriend but nobodys
Unsaon nako panguyab na wa courting at the moment to the
man gani. Ako nalay point shell have to be the one
manguyab. <laughs> to court laughter to diffuse
Makakuan baya siya oe seriousness
murag maka-sad ba. Mao
siguro na sige nako huna- Acknowledges that maybe
huna ba kanang dili ko katulog those thoughts of loneliness
Hala lonely kaayo ko keeps her awake at night and
<laughs> ana. Kay siguro makes her sad
murag um normal ra jud sa First wanted to have a job and
tao if i-achieve something, when she had a job, now
magita na sad ka lain, ingon wants to have a boyfriend.
ana. Like sa una akong sigeg Wants this month just to pass
ka problemahan kay wala koy by
gibuhat, wala koy trabaho.
Unya nakuha na nako na ba.
Naa nakoy trabaho ron. Lain
nasad na kuan, lovelife. Wala
koy lovelife, mao siguro na
akong gihuna-huna. Pero
ambot lang mo-pass ra ni nga
month.
I: Kani jud na month?
R: Oo. <laughs>
I: Kana diay nga Valentines?
<laughs>
R: Katong Valentines, wala ra Was not affected by
man, ok naman ko. <laughs> Valentines since she was
Murag lahi pa akong gihuna- solely focused on being health
huna ato. Health pa to, health. and then her work
Sige health sa, unya work,
unya karon lovelife naman.
<laughs>
I: Pwede pa siguro nimo i-take
your time.
R: Bata pa siguro ko, unsa Considers her age and being
ba? Twenty-three nako. Hala. still single
<laughs> Single gihapon ko.
I: Basin natauran lang
R: Ok ra sad. Pero may Enjoying the flirtations she
nalang sad, malingaw-lingaw gets to experience laughter
sad ko sa akong pakilig-kilig to diffuse seriousness
sa ba para ma-inspired pud.
<laughs>
I: Ok ra oe. Thank you kaayo
sa imong time, as in. I learned
a lot.
 123

Still newly transplanted

Venturing out early after the transplant
Staying at home post-transplant makes her miss her friends and her work
Chose work that is not that heavy for her to handle considering her lupus condition
Resumed worked to fend off depression and have a sense of purpose in life
Chose work that is not too stressful for her post-transplant state
Felt surge of energy post-transplant
Surge of energy eventually died down but overall there is a feeling of increased energy
Increase in appetite post-transplant
Conscious of subsequent weight gain
Wanting to exercise to lose weight
Side effect of corticosteroid her face
No experience of being on dialysis pre-transplant
Kidney transplantation was anticipated with the kidney function deteriorating over the years
Thankful that she never went through dialysis
Feels ashamed to be seen with a prominent central line catheter
Concern over donors welfare after the transplant
History of lupus in the family
Donor doing fine except felt uneasiness and numbness over the postoperative site
A feeling of numbness over the postoperative site
Can feel and see the bump at the postoperative site
Mask wearing interferes with wanting to go out due to hassle and embarrassment felt
Doesnt like the scrutiny from being seen wearing a mask
Prefers that others didnt know she had kidney transplant
Doesnt want to appear weak
Doesnt want the scrutiny over her having a kidney transplant
Doesnt like dwelling on her illness which makes her feel sad
Improved physical health
Feels like living a normal life
Wants to exercise to lose weight and prevent bone loss
Frustration over weight fluctuations
Wanting to look good because shes a girl
Asking validation from family regarding her appearance
Upset over feedback that her face is round
Efforts in concealing her round face
Problem with falling hair resorted to having a shorter haircut
Thought about buying a wig to address falling hair issue
Medications could have caused hair fall
Bothered by stretch marks all over her body post-transplant
Bothered by persistent easy bruising
Has less medications for anemia
Adapted to drinking water to help preserve her kidney graft function
More concerned of her health and the treatment regimen she has to follow
Feels good with the effect of compliance to treatment regimen
Considers self as an emotional person and over thinks things
Reconnecting with friends after the transplant
Mothers protectiveness post-transplant
Caregiver stress experienced by mother
Experiencing mood swings from taking in all things that has happened
Mother understands the mood swings but puts a limit to it
Mothers concern intrudes self-reliance
Some chores are lifted off her post-transplant
Actually enjoying the extra attention
Recently the extra attention returned to normal
Maintains role of being an older sister
Shifted courses to accommodate herlupus condition
 124

Planning to take a post-graduate course

Schooling postponed to give way to kidney transplant preparations
Wanting to continue with her course once fully recovered
Asking the school for consideration of case
Wanting to becomea teacher of children
Feels fine but still waiting for the doctors go signal
Feels limited by restrictions by her nephrologist
Feels liberated by surgeons go signal to back to her routine as long as she takes precautions
Wanting to do yoga as a form of exercise
Putting off ones plans to comply with the doctors advice
Exercises by walking and jogging
Does jogging late to avoid people looking at her
Hopeful on taking on things she wants to do
Sadness over not having a love life
Feels difficulty in finding somebody to accept her with her health condition
Less confidence with presence of stretch marks and bruises
Frustrated with how she looks
Dating is limited since she stays at home
Mothers pressuring her to have a boyfriend
Makes her sad that nobodys courting at the moment
Thoughts of loneliness keep her awake
Wanting to achieve things in a row like a job and a boyfriend
Focused before on her health and then her work and now having a boyfriend
Concern over being single at her age
Enjoying the flirtations she gets to experience

Theme Table for Interview Three

Themes Page Key words

Establishing the new normal


Feels like living a normal life
Adapted to drinking water to help preserve
her kidney graft function
More concerned of her health and the
treatment regimen she has to follow
Feels good with the effect of compliance
to treatment regimen
Feels fine but still waiting for the doctors
go signal
Feels limited by restrictions by her
nephrologist
Feels liberated by surgeons go signal to
back to her routine as long as she takes
precautions
Putting off ones plans to comply with the
doctors advice
Kidney transplant as a new lease in life
Felt surge of energy post-transplant
Surge of energy eventually died down but
overall there is a feeling of increased
energy
Increase in appetite post-transplant
Improved physical health
Has less medications for anemia
Perceived body image post-transplant
Conscious of subsequent weight gain
Wanting to exercise to lose weight
Wants to exercise to lose weight and
prevent bone loss
Frustration over weight fluctuations
Wanting to look good because shes a girl
125
9 Normal, normal life ra man.
12 Sa una dili man ko tig-inom ug tubig kay lud-
an jud ko ba, ingon ana. Pero karon kay
may na lang kusog nako mo-inom ug tubig
unya murag lami-an nako ug tubig.
12 Before wala ra man koy paki-alam sa akong
health before kay bisag unsa akong kaonon.
12 mas nindot akong feeling. Kanang dili nako
dali ma-stress, makapoy, ingon ana.
18 Actually, feeling nako ok nako. Ang ako lang
gihulat kay akong mga doctors unya.kay
naa man gud silaylike, duration nga
within six months pa ka na murag normal
routine na nimo, pwede na jud nimo
mabuhat, ana.
18 Akong nephrologist maoy mas mahigpit
kaayo.
18 Akoang surgeon, mga few months back
nisulti na siya nkao, pwede naka mo-
skwela, you can do whatever you want,
ingon ana. Basta dili lang jud super crowded
na places, ingon ana.
18 Hay nako unya nalang sa. Unya nalang kay
mao to.
3 Uhmright after gyud sa transplant murag
taas kaayo akong energy.
3 And then after ato, pila ka weeks...Three
weeks siguro murag hyper jud ko ba. Pero
pagkadugayan kay lie-low na gamay,
gikapoy napud siguro.
3 unya kusog nako ug kaon. Before ato kay
naay times na diliwala jud koy gana mo-
kaon.
9 Mas better naman [health]. Ok naman. Wala
may problema. Kanang kusgan ko.
12 So nagsige ko ug Recormon ato bag-o ko
gi-transplant, during transplant and few
weeks after the transplant. Pero karon kay
kuan nalang tablets.
4 After sa transplant nanambok na nuon ko.
Maoy di nako ganahan oe.
4 Kinahanglan nako mag-exercise para
maniwang.
9-10 Para karon, first, lose weight. Exercise jud,
ok nako na kay sige ingon akong mga
doctors kay magtingon-tingog na akong mga
bones kay tungod sa prednisone murag ma-
brittle akong mga bones.
10 Muburot ko unya mohiyos, muburot na sad.
Naa days makalagot jud.
10 Ambot siguro, uhm babaye ka ba,

Asking validation from family regarding
her appearance
Upset over feedback that her face is
round
Efforts in concealing her round face
Conscious of hair problem
Bothered by stretch marks all over her
body post-transplant
Bothered by persistent easy bruising
Less confidence with presence of stretch
marks and bruises
Frustrated with how she looks
Awareness of the presence of the
transplanted organ
A feeling of numbness over the
postoperative site
Can feel and see the bump at the
postoperative site
Socialization and interaction post-
transplant
Venturing out early after the transplant
Staying at home post-transplant makes
her miss her friends and her work
Mask wearing interferes with wanting to
go out due to hassle and embarrassment
felt
Self is different from other people when
wearing a mask
Prefers that others didnt know she had
kidney transplant
Reconnecting with friends after the
transplant
Does jogging late to avoid people looking
at her
Sadness over not having a love life
Feels difficulty in finding somebody to
accept her with her health condition
126
ganahan ka na you look good, ingon ana.
10 Magsige ra ko ingon sa akong mama, Ma
oe, lignin ayo akong nawong, lignin ayo
akong nawong, lignin ayo akong nawong.
Sige ko pangutana sa kaong manghud,
Lingin gihapon akong nawong?
10 Usahay sila na mo-ingon nako. Lingin lage
imong nawong ron te.<laughs>. Hala laina
ayo oe.
10 Mao magsige nalang ko ug cover sa akong
face sa akong hair or something ana.
10 Pero karon, falling hair ko.
11 Bag-o ra ni siya ninggawas. I think siguro
pag-gain nako ug weight. Pero grabe jud
siya kay pula kaayo siya.
11 Pero kuan sad, dali ra ko mo-bruise. Like sa
mga extractions nako. Dili siya ma-heal.
20 Unya kana pud physically uhm conscious
kaayo ko. Kay babaye baya ko, naa koy
stretch marks diri, unya naa koy stretch
marks dira. Bruise diri mga ingon ana na
20 magtan-aw ka sa mirror ba. Hala oe laina
oe, ngano ingon ani man? ingon ana.
7 Pero naay feeling na kana bitaw murag ngilo
i-touch ang part na gi-operahan. Mura siyag
walay, wala kay ma-feel, murag numb.
7 Ma-feel gyud nimo nga naay lahi. Kana gani
mo tan-aw ka sa mirror, dili jud siya level.
Magburot jud ang kidney.
2 Five months pa then naglakaw na.
2 Kay kuan man gud, murag laay na kaayo sa
balay
8 Dili nako makalakaw dali-dali. Ang
pinakalagutan nako kanang mask.
8 Siguro, kuan if naay mo-stare nimo, ingon
ana. Mo-stare back sad ko. Like unsa
man?
8 Ai wala jud nako gipangsulti sa akong mga
kuan ba na nag-transplant ko. Di ko
ganahan isulti.
13 Actually, first time nako yesterday nga
nakalakaw ko with my friends.
19 gikan na sa mga 11-12, ingon ana. Kay
daghan kaayo ug tao unya di ko ganahan
kanang manan-aw.
19 Mao na, I think mao na akong number 1
depression. Wa koy lovelife.
19-20 Kana bang naay SLE unya murag lisod
mangita ug tao nga Serious kaayo?

Dating is limited since she stays at home
Mothers pressuring her to have a
boyfriend
Makes her sad that nobodys courting at
the moment
Thoughts of loneliness keep her awake
Concern over being single at her age
Enjoying the flirtations she gets to
experience
Support system in the post-transplant
phase
Mothers protectiveness post-transplant
Caregiver stress experienced by mother
Mother understands the mood swings but
puts a limit to it
Mothers concern intrudes self-reliance
Some chores are lifted off her post-
transplant
Actually enjoying the extra attention
Recently the extra attention returned to
normal
Maintains role of being an older sister
Coping with the post-transplant phase
Experiencing sleeping problems may be
caused by stressing over something
Humor used to cope
127
<laughs> Nga mo-accept nimo na ingon ana
ka. Unya lisod kaayo i-open up sa iyaha ba
na kuan...ingon ani ko, ingon ani nahitabo,
ingon ana. Forever ko magtake ug
medicine.
20 kung lovelife man gani di mad sad ko ka-
hunting. Kay naa ra baya ko sa balay.
20 Sige, ingon si mama, panguyab na oe.
21 Unsaon nako panguyab na wa man gani.
Ako nalay manguyab
21 Mao siguro na sige nako huna-huna ba
kanang dili ko katulog Hala lonely kaayo
ko ana.
21 Twenty-three nako. Hala. Single gihapon ko
21 Pero may nalang sad, malingaw-lingaw sad
ko sa akong pakilig-kilig sa ba para ma-
inspired pud.
13 Kay usually jud, uban jud nako akong mama
kay siya man mohatud nako, ingon ana. Kay
di man ko kasakay, dili ma ko ka-commute
ba, dili pwede.
13 Kanang usahay gani kay makapoyan na
siya kay siya man gud sige drive then layo
kaayo.
14 Huwat lang siya makig-storya nasad ko,
ingon ana. Usahay sad ma-feed iya
patience noh, masuko sad siya, ingon ana.
Sabta sad ko ingon ana.
14 Di man ko ganahan kanang sige ko sulti-an
ba, Pag-mask or Imong tambal. Di ko
ganahan ingon ana bitaw.
15 Sila may mas masugoan kaysa ako-a. Sulti-
an niya akong mga igsoon. Bakit si Ate ang
pinabitbit mo niyan? Ikaw ang magdala
ingon ana.
15 ok ra man kay ba-o pa man, ana. Then
karon, ok pa sad. Tapulan.
15 Pero dili na kaayo karon hinuon. Normal
naman.
15 Ako man gani sige pangasaba sa ila. Ate
baya, kasaba jud.
1 Daghan lang ko gihuna-huna or stress
1, 8, Char! [ ] mo-stare back sad ko like unsa
10, man? <laughs> [ ] Sige ko pangutana sa
14, kaong manghud, Lingin gihapon akong
19, 20 nawong? <laughs> [ ] Mao to na-worry ko
kinahanglan nako mupalit ug wig ani.
<laughs> [ ] Ambot lang. Stubborn lang jud

Doesnt want to appear weak
Doesnt want the scrutiny over her having
a kidney transplant
Doesnt like dwelling on her illness which
makes her feel sad
Considers self as an emotional person
and over thinks things
Experiencing mood swings from taking in
all things that has happened
Dealing with the treatment regimen
Side effect of corticosteroid her face
Medications could have caused hair fall
Redefining plans and goals
Resumed worked to fend off depression
and have a sense of purpose in life
Chose work that is not too stressful for her
post-transplant state
Planning to take a post-graduate course
Wanting to continue with her course once
fully recovered
Asking the school for consideration of
case
128
ko. <laughs> [ ] Kana bang naay SLE unya
murag lisod mangita ug tao nga Serious
kaayo? <laughs> Ambot lang siguro huna-
hunaon sa uban na shallow ra kaayo, ingon
ana. Pero para nako ba, murag hala oe,
siguro kuan kaayo ko, vain? <laughs>
9 Ambot lang kay di ko ganahan mo-look
depressing, di ko ingon ana na Hala gi-
kuan diay ka, gi-kidney transplant diay ka?
9 Basta kanang ingon ana. Kapoyan ko anang
mo-explain, kanang mga pangutana, ingon
ana.
9 usahay sad kay kanang mura ba siyag ma-
flashback gud nimo sa unsay na happen
nimo nga kananglabaw huna-hunaon
nimo na naa koy sakit, ingon ana.
12-13 Kuan man gud siguro ko na tao, kanang
emotional ko na tao so I think more on
unhappy akong feeling, ingon ana or
daghan kaayo ko gihuna-huna.
14 pero naa man jud time siguro kanang bad
mood ko, ingon ana. Dili ko magstorya,
ingon ana.
4 Lingin na kaayo akong nawong kay sa
medicine man gud nako dili pareho sa mga
normal na nag-transplant na walay SLE.
11 Pero karon, falling hair ko. Grabe akong
falling hair, murag uhm as in, super. Niani
gud tong, napa-haircut nalang ko ug short
hair kay di siya. Ni-ana tong tig-cut ug
hair, Maam grabe imong falling hair noh,
basin mga two weeks maam I think sa
medicine.
3 Actually mag-one week na naa koy work.
Home-based, kay mao lage toh maka-
depress siya na wala kay gibuhat sa imong
life.
3 para mas convenient siya. Para dili ko ma-
stress kay dili nako kinahanglan molakaw
ingon ana.
17 Pero nagplan actually nag-enrol nako
sa [school] ba na? Kanang naa dira Plaza
Independencia?
17 So hopefully, after nako na ma-full
recovered kay ako to ma-take kay
nakasugod na baya ko ato.
17 Pero nihatag ko ug letter kay niingon man
sila ra daw ko ug letter na ako ipostpone
ang pag-start sa akong course. Mao to,
akong gibutang didto naa koy medical,
churva, ana, ana.
 129

Wanting to become a teacher of children 17 Teacher jud. Ganahan ko mag-childhoood

Hopeful on taking on things she wants to
do
Wanting to achieve things in a row like a
job and a boyfriend
Focused before on her health and then
her work and now having a boyfriend
education.
19 Hopefully lage mabuhat na nako.
21 Kay siguro murag uhm normal ra jud sa
tao if i-achieve something, magita na sad ka
lain, ingon ana. Like sa una akong sigeg ka
problemahan kay wala koy gibuhat, wala
koy trabaho. Unya nakuha na nako na ba.
Naa nakoy trabaho ron. Lain nasad na kuan,
lovelife. Wala koy lovelife, mao siguro na
akong gihuna-huna.
21 Murag lahi pa akong gihuna-huna ato.
Health pa to, health. Sige health sa, unya
work, unya karon lovelife naman.

Interview Four Transcript

Emergent Themes Original Transcript Exploratory comments

I: Good morning Im Clarice, a student
at Cebu Normal University. Im
conducting a research regarding renal
 130

transplant patients, specifically young

adults. So thats why Im approaching
you to ask you about your
experiences. Can I get our initials
cause Im gonna put your initials only.
R: [initials]
I: Ok. And then age?
R: 20
I: Then sex, male. Civil status?
R: Single
I: Ok. Unya diagnosis before the
kidney transplant was performed?
R: Chronic Glomerulonephritis
I: Ok. When were you transplanted
gani?
R: March 23, 2012
I: March 23, 2012. Ok. Um, can you
tell me about the impact of kidney
transplantation in your life?
Able to resume his studies R: Um I was able to resume with my Able to resume his studies
studies, although there are because of kidney
Kidney transplant is a limitationsumthere are limitations transplant
good idea for him to have but I kidneyumundergoing Kidney transplant is a
a new life kidney transplant was a good idea for good idea for him to have
me to have a new life. Although there a new life but has its
Having fun with friends are limitations but I still am having fun limitations
with limitations like no with my friends <laughs>. Although Still having fun but cant
drinking and smoking cant drink and smoke anymore. But at smoke and drink anymore
least I do not go back to hemodialysis. Content that hes not on
Prefers kidney transplant dialysis kidney
over dialysis transplant better than
dialysis?
I: You mentioned about resuming
school, um... was there a time you
needed to stop schooling?
Had to stop schooling R: After um When I was diagnosed Had to stop schooling
since dialysis took much that I was having a renal failure, I had because dialysis took
of his time to stop because three times a week I much of his time
have to undergo a hemodialysis. So I
dont have enough time to study.
I: So, it was a problem with the
schedule?
R: Schedule and yeah schedule Problem with his school
and dialysis schedule
I: Um actually you speak any
language, English or vernacular. So
mao to that time naputol to imohang
studies adto noh. What year were you
then gani?
Felt limited with college R: UmRecently finished first year Had to transfer since his
course options college and then I was going to previous course required
resume studies for second year then I him to be healthy not
had to transfer after my kidney healthy enough for a
transplant since my course requires strenuous course?
um healthy so I got to transfer.

Diagnosis of end-stage
renal failure
Used to smoke and drink
with friends during school
breaks
Can no longer drink and
smoke
Rationalized limitations set
for him
131
I: What was your course before?
R: BSAT.
I: BSAT. Unsa ganina?
R: Aircraft technology. His course was aircraft
technology
I: Ah ok. Was it like sa makina, ana?
R: Yes.
I: So aircraft technology. So one year
sa ato na course before you had to
transfer?
R: Yeah. After finished first year. I was Diagnosed with renal
experiencing the symptoms of renal failure after his first year of
failure and after I had my lab results, college
my crea was 33.2 or 22.3?
I: What were the symptoms?
R: Nauseaum I was really tired Always tired, which is not
always. It wasnt me, I was always his usual energetic self
energetic then um edema. First the Had edema
feet then in the face. So my friend Sought consult, diagnosed
doctor told me to go to [hospital]. Then then placed with a dialysis
after the examination, it showed that I access
have renal failure. So I have to
undergo surgery for IJ catheter then
another surgery for fistula.
I: So for your temporary access?
R: Yeah, IJ then fistula. The dialysis access was
first IJ then fistula
I: You did mentioned about limitations,
so before what were the things that
you used to do?
R: Before, I was still in first year Used to smoke and drink
college. I used to go out with my with friends during school
friends. I smoke, I drinka lot. After breaks
umusually during our breaks. My
schedule was Monday to Saturday.
And two is the no I think it was five.
7:30 5:00 was the longest schedule I
had. So it was T-Th-S. But Monday to
Saturday, we always have a break.
After the break, we, after eat, drink
usually it was a longneck.
I: Ah ok. So right now?
R: Right now I can no longer drink Can no longer drink and
alcoholic beverages and smoke. smoke
I: How do feel about that?
R: Um I just told myself that Ive Content with the thought
been through that, done that. It was a that that hes done with
worth it experience. So yeah, Im a the smoking and drinking
little bit satisfied with what Ive done experience and lets go of
and I just let it go. At least um my these
doctor always sayyou know you can His doctor advises him on
no longer drink or smoke or do any things he can no longer do
activities that require you to be more but doesnt limit him with
physical or any contact sports out I interacting with women.
dont limit you when it comes to

Felt a little left out with the
restrictions placed upon
himself
Felt happy that he can still
attract girls
More cautious with
interacting with girls
because of his
immunocompromised
condition
132
women so its alright.
I: Ok. So how do feelyou did
mention about having fun with friends.
So how is it now having fun with
friends?
R: Having fun with friends, umI go Parties with his friends but
out with then at night, we party but I dont join them when they
dont drink or smoke. I just watch them drink or smoke.
drink and smoke. Um But, yeah if Takes delight at the
youre with your barkada, theyre boys thought that he shines
so of course theres gonna be girls, among women
thats the only time I shine. <chuckles>
But with drinking and stuff like that,
wala. A little left-out. Its ok. They Admits to being left out but
understand the situation. consoles himself that his
friends understand his
situation
I: Ah ok. You mentioned about shine.
How do you shine?
R: No, its like I cant, I cantum He may not compete with
compete with that, in that category guys in smoking and
butyou know when theyre drinking drinking but he still gets to
and smoking, I just have to watch attract women.
cause I cant join them in that situation
or category but when comes to women
diha, of course there are no limits
again when it comes to girls. Its not Choosy with women?
that Im not allowed to but I have to be
choosy.
I: Choosy in what sense?
R: Um I have to be vigilant. I have to More cautious with girls
learn that the girl is safe. I cant just Doesnt readily engage in
Unlike before I can just make out with intimate acts like before
a girl but right now, I cant. Um my Advised by his doctor to
doctor said that um when youre practice safe sex because
gonna sleep with someone, even if its of his immunosuppressed
your girlfriend use condom. Even if its condition
your girlfriend. Im not saying so that
you wont get her pregnant but its for
your protection. Since Im in a
immunosuppressed condition.
I: So with that aspect of your life. How
do you feel about your lovelife?
R: Um I dont have a girlfriend so Doesnt have a girlfriend
thats alright. Lovelife muragmaybe
um...theres no difference.
I: Do you want to be in a relationship?
R: Yeah, but as Ive said Im choosy. I Wants to be in a
have to be choosy. relationship but has to be
choosy
I: Was there a point that theres a girl
youre interested in and how did it work
out?
R: Um I dont know with you girls but Gathers information first
with the boys we could just say we like about the girl

Reconciling past and
present plans
Wants to gain financial
independence in the future
Taking on his new course
which is less demanding
Hanging out is a choice
Had an episode of throat
infection
First hospitalization after
the kidney transplant was
when his fistula was
removed
133
that girl, they always gather
information for you so it depends on
the information.
I: Um regardinglets go back to
your studies. Right now youre taking
up?
R: Business administration major in
entrepreneurship
I: So how do you feel now taking up
this course?
R: Um The course is fun. UmEver Considers his new course
since I went to college my passion was fun
to be a pilot. But already in my mind, Really wanted to become
my source of income would be the a pilot and also have his
business. Since my family has a business
business. Um I just gained
experiences from it but I always Wants to start his own
wanted to start my own business. I business apart from his
dont want to inherit anything from familys business wants
them. to be independent?
I: Ok, you said Business Administration
is fun. What makes Business
administration fun?
R: Its not that strenuous as my old New course is not as
course which was Monday to strenuous and tiring as his
Saturday. In San Carlos, its only old course
Monday to Thursday. So its not that
tiresome. You still have time to make
your homework, projects. Although
some teachers can stress you.
I: So with your schedule, that allows
you to..
R: I think its really the motivation. I Hanging out is a choice
mean if you are motivated to go or
hang out with your friends. Of course
youve always giving yourself a reason
not to go with them and give your
friends a reason why you cant go.
Yeah, because, it depends.
I: How about your physical well-being.
How do you feel right now?
R: Right now, I recently had a sore Had an episode of throat
throat. Got checked by the doctor last infection
Friday. He gave me a medication for
that. It was afterum... my first First hospitalization after
hospitalization post-kidney transplant the kidney transplant was
was when I had my fistula removed when his fistula was
and then... but it was out-patient so it removed
was ok. I got hospitalized because I
got sick because of the operation.
I: What was the problem then, you
were hospitalized?
R: I think it was an infection cause Had edema in the arm
grabe kayo edema arm. The cause where the fistula was
was I dont know. Then after that, removed then had severe

Developed sepsis from
sinusitis
Dealt with an infection that
triggered a rejection
episode
Thankful that the rejection
episode was reversed
Rejection episode was not
readily felt
Familiar with medical
terms now
Ambivalence over
laboratory exams
Fear of rejection
134
this year January, I was diagnosed sinusitis
with sinusitis, severe sinusitis, Um
pneumonia. It was really that bad.
They have a term for it like its really
severe. It gets already in your blood. I
dont know.
I: Umsepticemia?
R: Ah, sepsis. Developed sepsis from
sinusitis
I: Sepsis.
R: Yeah sepsis. Because of my
sinusitis.
I: So it spread to your blood?
R: Yeah, it did and it was a rejection. I Dealt with an I nfection
think that was three times already that that triggered a rejection
the cause of rejection was infection. episode
I: What happened during that rejection
episode?
R: Fortunately, my doctor was really Rejection episode was
that good. He saved me three times reversed
already. Thankful for his doctor the
times he was saved from
rejection
I: So how was your urine output during
those times?
R: During those times, it was still Urine output during
normal. But my crea was already, I rejection episodes were
think 1.8. normal but the creatinine
started creeping up
already
I: How much is your usual crea?
R: My usual crea is from 0.9 to 1.1. Usual creatinine is normal
I: With the transplanted kidney?
R: Yeah, I never know any word crea Was not familiar with
before I got diagnosed. Crea, CBC, medical terms before
U/A I dont know those stuff before I
was diagnosed with renal failure.
I: But now?
R: Very familiar. Now very familiar with
medical terms
I: With respect to your knowledge now
with the terms like crea what did you
think about having to deal with those
terms?
R: I didnt feel bad. Um Every time I Somewhat ambivalent with
have a lab, its not that Im happy but it having laboratory exams
makes me feel good cause I will know likes knowing the status of
again the status of my body. his body through his
laboratory exams
I: How did you feel when you heard the
word rejection? When the doctor said
you were in that situation during the
three times you mentioned.
R: Rejectionum, I was scared. But Scared of rejection but
my doctor knows how to handle it well. trusts in his doctor to take

Trusts in his doctor to take
care of him
His doctor shields him
from worry over laboratory
results
Would rather know of his
laboratory results
Scared that rejection will
change him, going back to
dialysis, stopping
schooling, hanging out
with his friends
Ambivalent with dialysis
Considers dialysis
tiresome and boring
135
So he told me, Just dont be scared. care of him
As I said to you before, I will take care
of you. No need to worry. So if there His doctor shields him
are some labs, yeah, he keeps it away from worry over laboratory
from you but he shows me after Im ok results
na. But before, like all those bad labs,
he told the nurses dont show these
even if he requested it.
I: Would you rather know or would you
rather not know?
R: I think, Id rather know but my Would rather know about
doctor said no. Its something he would laboratory results that are
keep for himself before he will show it not good but relents to his
to me until I will get well. After I get doctor who wants to shield
well, he told me everything like yeah, him
all those labs were really bad and he
showed it to me. And then he said na
Dont worry nacause youre ok.
I: If given the chance, not granting you
would want another rejection episode,
if you got the chance to tell the doctor.
Would you want to know right then and
there or would you want it na later
naingnan?
R: No, I would want it right away. By Wants to know his status
the way my doctor told me every time right away but trusts in his
he sees the lab results, like I got sick doctor
before, he said Look, rejection. Yeah,
so I got used to it. Maybe its because I
really trust my doctor well and I know
hes a good doctor.
I: So you were scared during that
time? What were you scared of?
R: Um...I have to change again. I have Scared that rejection will
to undergo another hemodialysis I change him, going back to
have to stop schooling Um I cant go dialysis, stopping
out with my friends the way I used to schooling, hanging out
right now. Um Yeah, that will change with his friends
for me. I hate those changes. Hates those changes
I: You mentioned you dont want to go
back to dialysis, so how was it like
being in dialysis?
R: I wont say its really bad but its Ambivalent with dialysis
really tiresome. Its really tiresome Considers dialysis
because you go there early on the tiresome and boring
morning, you get injected with two big
needles, lie on the bed for four hours
then they take you off then you gonna
go home. If youre gonna do that three
times a week, its really tiresome. Its
boring.
I: How do you handle the boredom
during those times?
R: Umplay, do something with the Surfing the internet during
internet. dialysis
 136

I: Did you notice any patient among

the group that of your age groups?
Concern over being young R: I did ask the nurse before like how asked if there are young
but in dialysis old is he Hes younger than you baya patients in dialysis
I: So how did it feel, knowing there
were patients younger than you?
R: Um I felt relieved since like before Felt not alone when he
I went there, all the batch, you know saw other patients like him
its by batch, so the batch I was in, it
was full of old people and so I saw
young people even younger than me
then I felt was not really alone.
I: So at one point you did feel alone in
your situation?
R: Yeah, when I was in dialysis. My Felt alone that most
batch was full of old people. patients were older than
him
I: How did your friends take it when
you were in dialysis?
Kept his dialysis sessions R: Some of my friends didnt know. It Kept his dialysis sessions
secret was a bit of a secret. secret
I: You didnt tell them?
R: Yeah and some of them know. Only few of his friends
Um my high school friends know but know of his status
my college friends didnt know. It was
really it was a secret.
I: How did you feel havingkeeping
that a secret?
R: I feel fine. Felt fine keeping his
dialysis a secret
I: Did you want to keep it a secret at
that time?
R: Yeah. I did and if they know I was Preferred not telling his
going through its fine with me. friends although he
doesnt mind if his friends
know
I: But you would rather not?
Limits those who know he R: Yeah. There are friends that I told Only selected friends
had kidney transplantation already since theyre close to my know of his dialysis
family and Im close to their family so sessions
they know na but the college group of
friends are not close to my family and I
intend to keep it a secret from them.
I: Now with the kidney transplant do
your friends know that you got
transplanted?
R: Yeah. His friends know of his
kidney transplant
I: Did you volunteer the information or
how did they come to know this?
R: Um no, I did not. But yeah when Information among his
a friend knows, one friend knows this friends spread
then it spreads like that.
I: Does, it make a difference?
R: For them to know?

Friends who knew,
adjusted to him not
drinking
His plans include finishing
his studies, starting his
own business
Also wants to have a
girlfriend since his parents
want him to have one
Pressured to bring a
girlfriend during this
sisters graduation
Expected his parents to
support him through
illness
137
I: For them to know.
R: Umyeah a little bit since when we When his friends know of
hang out, they always drink since they his condition, they
know na Im transplanted, I dont drink. adjusted to him not
Yeah, they were able to adjust to it. drinking
I: So far weve covered sa imohang
friends, lovelife. So right now, do you
have immediate plans, long-term
plans?
R: Planning on making my own Plans to finish his studies
business as soon as possible and and start his own business
finishing my studies. What else? Also wants to have a
Having a girlfriend because my parent girlfriend since his parents
gave me an ultimatum. want him to
I: Ultimatum to?
R: My sisters graduating this 27th. He is expected to bring a
Twenty-seven, graduation nila and girlfriend on the graduation
they told na I have to introduce my of his sister
girlfriend to them which currently I
dont have a girlfriend so stressed out
ko.
I: Na-stress ka sa imong ultimatum?
R: Yes Feels stressed out
I: How do your parents feel going
through the motions of transplant, So
hows your relationship with them?
R: It s ok theres no difference Relationship with his
parents are the same
I: How did they feel when you were
already transplanted? Um ok how
did they feel when you were at dialysis
then you were transplanted.
R: They were looking for ideas when I His family searched for
was in dialsysis. We were not that options when he was still
knowledgeable about transplant so my in dialysis
sisters ex-boyfriend, he was an OJT in
[hospital] so he met a few doctors
there and told my mother there is a
seminar, every Wednesday. I think in
[hospital] about the transplant. So my
mom went there and attended the
seminar. She was introduced to a
doctor, a transplant surgeon.
I: Ok, so your parents were really
looking for ways. How did you feel that
your paretns were doing those things
for you?
R: Its normal, I guess. Its expected Expected his parents to
from them since theyre your parents. support him through
illness
I: Your transplant was done in
[hospital]. So you had to stay there for
a week?
R: One week. One day for preparation Stayed in the hospital for a
 138

then the next day, operation. Then I week

had to stay for five days. Yeah, I was Recalls being catheterized
catheterized.
I: How did you feel seeing your urine
again?
R: Yeah, after the transplant surgery, I Recalls feeling cold after
stayed in a room, I dont know, it was the surgery
so cold there, they put something on
me to keep me warm.
I: Thermal blanket?
R: Yeah, something like that. After, I Felt tired after the surgery
was transferred in a room. I was really
tired. I dont know why so I slept there.
The next morning, first thing in the Had an infected pimple
morning my doctor checked on me which was also operated
then he pulled the blanket cause there on during the transplant
was also an operation on my back.
There was an infection, pus. It was a
pimple before. I kept on scratching and
became infected. He also operated on
it also. Then there was a granada
and then there was a catheter. I didnt
realize that before and then when I
woke up, when they checked on me
Horrified being attached and removed the blanket. I saw a Horrified by the presence
with a catheter and JP granada here, so I was likeits of the catheter and JP
drain in the immediate really creepy but whats more drain
postoperative phase awkward, theres a tube inside my
I: You had to be catheterized.
R: Its awkward, humiliating, it was Felt awkward, humiliated
unnatural. and unnatural with the
presence of gadgets
I: But you saw your own urine?
R: Yeah, for one day, they injected Recalls his fluid
water then I have to urinate it. Then management during his
there was blood. Its not like I have to postoperative phase
urinate since there was the catheter, I
have no control. And I was not allowed
to drink anything. So I was really dried
up. After I get dried, like my tongue is
no longer moist and then they allowed
me to drink.
I: Before your transplant, was there a
time you were no longer urinating or
was there still a bit of urine?
R: Yeah, there was bit of small urine. Still had little urine before
his transplant
I: So from [hospital] you went back
here to cebu already?
R: Yeah.
I: Just one week there?
Compulsory stay within R: One week there then I hade to stay Stayed in the hospital for
the vicinity for his there one month for further check-ups one week then in Manila
postoperative phase then I went back to Cebu. for one month before
going back to Cebu

A different nephrologist for
the post-transplant phase
Feels his attending
physician is very
concerned about his
condition
Check ups are adjusted to
his health needs
Felt that his parents are
more concerned why he
doesnt have a girlfriend
yet
139
I: So now its your nephrologist who
handled you before the transplant till
now?
R: Um pre-transplant, it was a A different nephrologist for
different nephrologist. Post-transplant the post-transplant phase
its a different nephrologist. Because
my nephrologist now is recommended
by my surgeon in Manila.
I: Ah ok. Yeah, you can change nephro
depende sa ila sub-specialty
R: Naa may nephro, nephro, naasad
nephronya specialize sila ug
transplantation, kidney transplant
patients.
I: So how often do you see this doctor?
R: Supposedly after three months pa His nephrologist told him
mi magkita then I got sick. He always not to hesitate consulting
told me, if you get sick dont hesitate him if problems arise
to call. Always check yourself. Lab
results came, after I got my lab tests, Had to se his nephrologist
then it was bad so I went to his office. for a sore throat and
Actually ten na kabuokn aghuwat so I worrying labs
told his secretary Tell him, Im sick, I
have a sore throat then the lab results
are bad. So she made a way for me to
get in the line. It was really important.
But some of the people check-up ra so
ana siya it was really that important.
I: So before how often did you see
your doctor?
R: In a month, four
I: But now that youre well?
R: Sige siya adjust. Um from one Check ups are adjusted to
week to every two weeks, every three to his health needs
weeks, every monthah once a
month. Then it becomes once in two
months. Then it becomes monthly
again if Im sick supposedly it was
once in three months na but I got sick
so I keep on adjusting.
I: Ok. Bitaw if ever theres no problem
dilira kayo frequent. Thank you for
your sharing [informant]. Na-pressure
pa raba ka sa imong deadline.
R: Mao lage. Thinking about bringing a
girlfriend to the graduation
I: So ok ra sa imong parents as long
as your happy with it, ana? Mosulod ka
ug relationship.
R: Sa tinud-anay lang ang parents pa Felt that his parents are
nako kanang sige ingon, Sa kadugay more concerned why he
na nimo sa kalibutan, wala gihapon doesnt have a girlfriend
kay gipa-ilaila na uyab. yet
I: So technically NGSB ka?
 140

Doesnt consider his
female classmates to be
suitable to be a girlfriend
Insists that he isnt worried
that he doesnt have a
girlfriend only his parents
Admits to thinking about
he isnt yet in a
relationship although he
wants to still explore
prednisone caused
pimples before but not
anymore
Still blending in when he
wears a mask
R: Yeah <chuckles>
I: Ah ok, I thought man gud naa before
R: Ah wala. Ganahan na jud sila nga
naa nako uyab kay 20 years old na
baya ko wala pa. So ila ko gi-pressure
na maka-uyab
I: Bitaw naa pa nay chance. How
about your girl classmates?
R: Classmates, bati kaayo ako ng ka-
classmates karon sem, mga bitch, ang
uban dili gwapa, para nako, ang uban
kayunsa tawag ani bitch kaayo ba,
dili pud ko ganahan. Ok ra man sila
pero dili pang-uyab.
I: So, not gf-material?
R: Pwede kauban ra party lang, ayaw
ng uyab.
I: Do you feel, its part of your twenties
you did mentioned na Im 20 wala pa
koy na paila-ila na uyab.
R: Sila may nakuan ana.
I: But ikaw?
R: Ok ra man nako. Pero the point
there is, sulti lang ko murag when I
look at young people and naa na silay
mga uyab, ingon ana Ngano wala
man nako na-experience? Di pud ko
ganahan una nako nauyab mao dayon
nako maasawa, like I still want to play
pa.
I: Ok. Good luck on that. By the why I
forgot to ask did you experience and
side-effects of the days?
R: Prednisone caused me a lot of
pimples and acne. Pero karon wala
naman kaayo ko.
I: Are you still on pred?
R: Pred 10 ko sa una. Karon Pred 5
na. Every other day nana.
I: Ah ok. Mao pud diay dili nako kafeel
ato bugas-bugas. How is your
relationship with your doctor?
R: Ok ra man. My doctor advises me
and said transplant is there for you to
live out life you can still have fun. Two
months after the transplant, he allowed
me to go back to school. Um I wore
a mask at school. In school, if you got
colds, you wear a mask. I had a
classmate who also wore a mask
during the first few days, he told me
gisip-on siya but after storya-storya we
became friends. He knows I wear a
Hes already twenty years
yet he doesnt have a
girlfriend yet
Doesnt consider his
female classmates to be
girlfriend material.
Insists that he isnt worried
that he doesnt have a
girlfriend only his parents
Admits that he does think
why other young people
are in relationships while
he isnt.
Doesnt want to that his
first girlfriend will be the
one hell marry since he
still wants to explore
prednisone caused
pimples before but not
anymore
Lowered dose of
prednisone
His doctor told him to live
out his life and still have
fun
Two months after the
transplant, he was allowed
to go back to school.
Went to school wearing a
mask and was thought of
wearing it because of
colds.
Made friends with a
 141

mask because Im a transplant patient. classmate who also wore

Previous dialysis access
attracted questions
Boost of self-esteem upon
removal of previous
dialysis access
I: So dili ra lingi-on ang mask?
R: Dili ra. What classmates notice is
this burot nga ugat. Some dont know
about dialysis access. Some would
ask questions. But it was removed
eventually.
I: How did it feel after the AV fistula
was removed?
R: It was a boost of self-esteem.
Mesmerized because its no longer
big. <chuckles>
I: Thank you ayo [informant] for
sharing these things.
a mask but for colds.
Mask wearing does not
attract attention
Its the bulge at his dialysis
access that elicits
questions
Feels the boost of esteem
after the previous dialysis
access was removed

Chronological List of Themes Interview Four

Able to resume his studies

Kidney transplant is a good idea for him to have a new life
Having fun with friends with limitations like no drinking and smoking
Prefers kidney transplant over dialysis
Had to stop schooling since dialysis took much of his time
 142

Felt limited with college course options

Diagnosis of end-stage renal failure
Used to smoke and drink with friends during school breaks
Can no longer drink and smoke
Rationalized limitations set for him
Felt a little left out with the restrictions placed upon himself
Felt happy that he can still attract girls
More cautious with interacting with girls because of his immunocompromised condition
Reconciling past and present plans
Wants to gain financial independence in the future
Taking on his new course which is less demanding
Hanging out is a choice
Had an episode of throat infection
First hospitalization after the kidney transplant was when his fistula was removed
Developed sepsis from sinusitis
Dealt with an infection that triggered a rejection episode
Thankful that the rejection episode was reversed
Rejection episode was not readily felt
Familiar with medical terms now
Ambivalence over laboratory exams
Fear of rejection
Trusts in his doctor to take care of him
His doctor shields him from worry over laboratory results
Would rather know of his laboratory results
Scared that rejection will change him, going back to dialysis, stopping schooling, hanging out with
his friends
Ambivalent with dialysis
Considers dialysis tiresome and boring
Concern over being young but in dialysis
Kept his dialysis sessions secret
Limits those who know he had kidney transplantation
Friends who knew, adjusted to him not drinking
His plans include finishing his studies, starting his own business
Also wants to have a girlfriend since his parents want him to have one
Pressured to bring a girlfriend during this sisters graduation
Expected his parents to support him through illness
Horrified being attached with a catheter and JP drain in the immediate postoperative phase
Compulsory stay within the vicinity for his postoperative phase
A different nephrologist for the post-transplant phase
Feels his attending physician is very concerned about his condition
Check ups are adjusted to his health needs
Felt that his parents are more concerned why he doesnt have a girlfriend yet
Doesnt consider his female classmates to be suitable to be a girlfriend
Admits to thinking about he isnt yet in a relationship although he wants to still explore
Prednisone caused pimples before but not anymore
Still blending in when he wears a mask
Previous dialysis access attracted questions
Boost of self-esteem upon removal of previous dialysis access

Theme Table for Interview Four

Themes Page Key words

Establishing the new normal

Freer schedule than during dialysis 1, 4 When I was diagnosed that I was having a
renal failure, I had to stop because three

Having fun with friends with limitations like
no drinking and smoking
Can no longer drink and smoke
Rationalized limitations set for him
Kidney transplant as a new lease in life
Kidney transplant is a good idea for him to
have a new life
Prefers kidney transplant over dialysis
Able to resume his studies
Had to stop schooling since dialysis took
much of his time
Perceived body image post-transplant
Horrified being attached with a catheter
and JP drain in the immediate
postoperative phase
Still blending in when he wears a mask
Boost of self-esteem upon removal of
previous dialysis access
Socialization and interaction post-
transplant
Felt a little left out with the restrictions
placed upon himself
Felt happy that he can still attract girls
More cautious with interacting with girls
because of his immunocompromised
condition
143
times a week I have to undergo a
hemodialysis. So I dont have enough time
to study. [ ] Business administration major in
entrepreneurship
1 Although there are limitations but I still am
having fun with my friends <laughs>.
Although cant drink and smoke anymore.
2-3 Right now I can no longer drink alcoholic
beverages and smoke.
3 I just told myself that Ive been through that,
done that. It was a worth it experience. So
yeah, Im a little bit satisfied with what Ive
done and I just let it go.
1 undergoing kidney transplant was a good
idea for me to have a new life.
1 But at least I do not go back to
hemodialysis.
1 I was able to resume with my studies
1 When I was diagnosed that I was having a
renal failure, I had to stop because three
times a week I have to undergo a
hemodialysis. So I dont have enough time
to study.
9-10 Then there was a granada and then there
was a catheter. I didnt realize that before
and then when I woke up, when they
checked on me and removed the blanket. I
saw a granada here, so I was likeits
really creepy but whats more awkward,
theres a tube inside my
12 I wore a mask at school. In school, if you got
colds, you wear a mask. I had a classmate
who also wore a mask during the first few
days, he told me gisip-on siya but after
storya-storya we became friends. He knows
I wear a mask because Im a transplant
patient.
13 It was a boost of self-esteem. Mesmerized
because its no longer big
3 But with drinking and stuff like that, wala. A
little left-out.
3 Um But, yeah if youre with your barkada,
theyre boys so of course theres gonna be
girls, thats the only time I shine.
3 Unlike before I can just make out with a girl
but right now, I cant. Um my doctor said
that um when youre gonna sleep with
someone, even if its your girlfriend use

Hanging out is a choice
Limits those who know he had kidney
transplantation
Friends who knew, adjusted to him not
drinking
Also wants to have a girlfriend since his
parents want him to have one
Pressured to bring a girlfriend during this
sisters graduation
Doesnt consider his female classmates
suitable to be a girlfriend
Admits to thinking about he isnt yet in a
relationship although he wants to still
explore
Support system in the post-transplant
phase
Expects his parents to support him
through illness
Felt that his parents are more concerned
why he doesnt have a girlfriend yet
Coping with the post-transplant phase
Ambivalence over laboratory exams
Trusts his doctor to take care of him
Would rather know of his laboratory
results
Dealing with the treatment regimen
Prednisone caused pimples before but not
anymore
144
condom. Even if its your girlfriend. Im not
saying so that you wont get her pregnant
but its for your protection. Since Im in a
immunosuppressed condition.
4 I think its really the motivation. I mean if you
are motivated to go or hang out with your
friends. Of course youve always giving
yourself a reason not to go with them and
give your friends a reason why you cant go.
8 There are friends that I told already since
theyre close to my family and Im close to
their family so they know na but the college
group of friends are not close to my family
and I intend to keep it a secret from them.
8 ...since when we hang out, they always
drink since they know na Im transplanted, I
dont drink. Yeah, they were able to adjust to
it.
8 What else? Having a girlfriend because my
parent gave me an ultimatum.
8 Twenty-seven, graduation nila and they told
na I have to introduce my girlfriend to them
which currently I dont have a girlfriend so
stressed out ko.
11 Ok ra man sila pero dili pang-uyab.
12 Pero the point there is, sulti lang ko murag
when I look at young people and naa na
silay mga uyab, ingon ana Ngano wala
man nako na-experience? Di pud ko
ganahan una nako nauyab mao dayon nako
maasawa, like I still want to play pa.
9 They were looking for ideas when I was in
dialsysis Its normal, I guess. Its expected
from them since theyre your parents.
11 Sa tinud-anay lang ang parents pa nako
kanang sige ingon, Sa kadugay na nimo sa
kalibutan, wala gihapon kay gipa-ilaila na
uyab.
6 I didnt feel bad Every time I have a lab,
its not that Im happy but it makes me feel
good cause I will know again the status of
my body.
6 But my doctor knows how to handle it well.
6 Would rather know of his laboratory results
12 Prednisone caused me a lot of pimples and
acne. Pero karon wala naman kaayo ko.
 145

Redefining plans and goals

Felt limited with college course options
Taking on his new course which is less
demanding
Taking on his new course which is less
demanding
Reconciling past and present plans
Wants to gain financial independence
freedom in the
His plans include finishing his studies,
starting his own business
2 Recently finished first year college and then
I was going to resume studies for second
year then I had to transfer after my kidney
transplant since my course requires um
healthy so I got to transfer.
4 Its not that strenuous as my old course
which was Monday to Saturday. [ ] Its only
Monday to Thursday. So its not that
tiresome.
4 Its not that strenuous as my old course
which was Monday to Saturday. In San
Carlos, its only Monday to Thursday. So its
not that tiresome. You still have time to
make your homework, projects. Although
some teachers can stress you.
4 The course is funEver since I went to
college my passion was to be a pilot. But
already in my mind, my source of income
would be the business.
4 I just gained experiences from it but I always
wanted to start my own business. I dont
want to inherit anything from them.
8 Planning on making my own business as
soon as possible and finishing my studies.

Coming to terms with adverse

transplant outcomes
Dealt with an infection that triggered a
rejection episode
Thankful that the rejection was reversed
Rejection episode was not readily felt
Fear of rejection
Scared that rejection will change him,
going back to dialysis, stopping schooling,
hanging out with this friends
5 I think that was three times already that the
cause of rejection was infection.
5 Fortunately, my doctor was really that good.
He saved me three times already.
5 During those times, it was still normal. But
my crea was already, I think 1.8.
6 Rejectionum, I was scared.
7 I have to change again. I have to undergo
another hemodialysis I have to stop
schoolingI cant go out with my friends the
way I used to right now Yeah, that will
change for me. I hate those changes.

Interview Five Transcript

Emergent Themes Original Transcript Exploratory comments

I: Hello good morning Im Clarice.
Unsa gani imo initials Maam?
R: [initials]
I: O cge, [informant]. Ako diay si
 146

Clarice, Im a student of Cebu Normal

University. Im doing this study
regarding the lived experiences of
young adults of renal transplant
patients so thats why approaching
you to ask regarding about your
experience. SoJMPum...pila gani
atong edad?
R: 29
I: 29. Ako ibutang ha29 niya
female. Civil status maam?
R: Single
I: Single. Can you recall what was
your diagnosis before the kidney
transplant was performed?
R: Chronic Kidney Disease
I: Um It when your kidney
transplant last performed maam?
R: July 16, 2013
I: July 16, 2013. Maam did you have
any other conditions sa imong
Chronic Kidney Disease, like
hypertension or diabetes?
R: Hypertension
I: But it was before sa imohang
R: Um...ahh... during na diagnosed
nko.
I: So ang ESRD na ang naka-
cause Kumusta diay ka Maam?
R: Ok naa kaayo after sa kidney
transplant.
I: Naa bay kalahian karon with your
day to day na living?
Dialysis hampered her R: Lisod kaayo pagdialysis kay twice Dialysis was difficult for her
work schedule a week. Unya kanang walaywalay since she cant do much
mahimong trabaho kay work
I: Kay?
R: Schedule nimo early ka mo-adto Had to stop working since
kay ana naaykanang bale second the dialysis took much time
shift ana dayon. Ma-uli gabie nah from travel time to the
dayon ang imong trabaho murag lisod actual sessions.
angkuan ganibale imbis naa pa
ka daghan mahimo kana. Niya, unya
na-undang ko ug trabaho anakay
tungod nasakit man.
I: What was it your work gani before,
Maam?
Worked in a kitchen for R: Ahhsa kuan, baleahh sa Worked in the kitchen
catering business kitchen
I: Oo.
R: Ahhh...tabang-tabang pud ko sa Helped in catering
catering ana. business
I: Ahh... ok. So can please tell me
Um Unsa man jud impact sa kidney
transplantation sa imong life, maam?

Kidney transplantation
could give her a longer
lifespan
Felt normal functioning
was back after her
transplant
Recalls dietary restrictions
in dialysis
Had amenorrhea for one
year and a half
Amenorrhea after ESRD
diagnosis
Felt healthy and strong
again
No need for erythropoietin
injections already
147
R: Dako kaayo. Bale para nako, naay Kidney transplantation
additional lifespan. Murag na longer made a big impact
gyud akoang lifespan. Unya bale Kidney transplant gave her
murag ni-back to normal na ang a longer lifespan
function gani sa imong body, ana Felt her bodys back to
kaysa compare atong gi-dialysis kay normal functioning as
ana maluya ko inig madaghan compared when she felt
imohang water ug luya kaayo. Basta very weak in dialysis
dili pa kanang before mag-adto
padung paka-dialysisumthen
kapoy imong lawas. Unya ang
imohang kaon kay kanang i-monitor
gyud bah kay para dili gani gyud Recalls food intake was
masobrahan kay wala man ihi, dili strictly controlled in dialysis
naman ka kaihi. Dayon wala napud Didnt have menstrual flow
ko ato gi-dugo for one year and half. for one year and a half
I: Kanus gani nagsugod ug kanang
na nagdialysis, maam?
R: Last 2011
I: 2011.
R: Oo.
I: Then starting ato, mao na to siya
nah dili nakadug-on
R: Oo. Bale, 5 months after wala Menstruation stopped a
nako gi-dugo. Ug mga six months few months after being
after. Aw, three months siguro wala diagnosed
nako ato ka-ihi tungod sa dialysis
I: Mga three months to maam, noh?
Ok. So taud-taud sad diay noh
before?
R: Two years kapin.
I: Oo. So what were the changes in
your life since youve been
transplanted, Maam?
R: Sa sugod bale ang ako Felt healthy and strong
kanang... ang healthang meaning again
health gani kay kanang dili nako Doesnt experience
maluya, kanang ahdili nako difficulty in breathing
hanguson kana. Unya kanang Appetite for food came
ningbalik nasad ang kanang bale ni- back
gain gani ko ug weight ana. Unya na- Gained back the lost
unoran na, di pareha sa una na weight before
kanang daot kaayo dayon ang color
kay murag grayish ang color.
I: Um
R: Unya karon ang skin ok na gani. Skin color returned to
Unya daghan pud kaayo injection normal
tungod sa No more injections for
erythropoietin
I: During sa dialysis?
R: Dialysis, Oo... Unya karon dili na Doesnt need injectable
nag-need kuan nalang Aw, hinoun medications only oral
naay medication pero oral. medications
I: Injection for?
R: Erythropoetin.

Normal results in her blood
count already
Felt weak because of
anemia before
Felt like before she had
been diagnosed and
underwent dialysis
Preferred taking her
lifetime medications over
going back to dialysis
Numerous medications but
are already tapered
Blood pressure returned to
normal range
148
I: Ahh, so sa imong anemia bale
nga
R: Oo.
I: So karon, kumusta naman ang sa
CBC nimo, Maam?
R: Normal na siya.Sa una anha ra jud Normal results in her blood
ko kutb sa 10. count already
I: Oo.
R: Then although eleven, in ana ra
gyud dili siya ma-adto sa normal gani.
I: Oo.
R: Maski nag-injection paka twice a
week.
I: Oo.
R: Unya mao to makaluya sad ka kay Felt weak because of
less ang circulation sad sa kuan ba, anemia before
blood
I: So how I did you feel going through
the changes na dili naka maluya wala
na ang hangus?
R: Kanang gaan na. KanangBasta, Felt like before she had
nibalik na siya ba before na ato na been diagnosed and
dialysis or before ko ato na diagnose. underwent dialysis
I: Nalikebefore?
R: Nabalik nasiya. UnyaumAng Laboratories now show
kuan sadmga laboratories ana normal normal results although
kuan na gyud siya. Na-normal na she has to take
gyud siya Pero mao lage mo-take medications for a lifetime
lang sad medication nga lifetime.
<laughs>
I: How did you feel taking those
medications for a lifetime?
R: Ok ra sad kay ko kaysa Preferred taking her
magdialysis.Di nako ganahan mobalik lifetime medications over
ato. <laughs> Bahala mo-inom ko going back to dialysis
lifetime basta dili nako mobalik ato. Doesnt like going back to
<laughs> dialysis
I: So youd rather take?
R: Take, Oo.
I: How many medications are you on
gani karon Maam?
R: Ah, time paBasta more or less Numerous medications but
mga twenty pero before to. Gina- are already tapered
lessen naman ron.
I: Ah.
R: But before mga thirty plus siguro
na medications. Unya nag-anam-
anam siya naa pa man koyfor anti-
hypertensive pero akong kuan ron BP
tag-110, pero hinay-hinayan lang siya
ug kuha kay dili man sad pwede
kaliton.
I: Mao sad.
R: So normal ra jud ang blood Blood pressure returned to
pressure nako. normal range

Experiencing hair loss as a
side effect
Didnt experience R: Na inig-ana nimo <combs through
anticipated side effects
from the
immunosuppressants
Menstruation cycle
resumed one month after
the transplant
Relief in knowing she can
still bear a child with
resumption of her
menstruation cycle
149
I: So hinay-hinay lang sah nila gi
R: Kuha
I: Taper, gi-lower ang mga doses until
mag-agad bale sa whatever
kinahanglan nimo.
R: Ang Catapres nakokaron wala
na.
I: Ooso hinay, usa-usa na
R: Oo, nangatatang na.
I: Maayoand then how do you
feeldo you feel any side-effects sa
katong mga tambal na you taking?
R: Asas of now sa kuanhair loss. Experiencing hair loss as a
side effect
I: Oo.
R: Oo, gaanam siya. <laughs> Pero
naa sad nuoy nanubo pero lahi na
strand murag nipis gani siya.
I: Oo.
R: Pero nanubo. At least naay
nanubo. <laughs> Pero wala jud siya
ingon na daghanmga hair fall gyud.
I: So ma-note jud nimo na naa jud
ano, not the usual?
Anticipated some side
her hair> Walay mga hulog na buhok. effects from the
Inig-kuha sa sudlay ay naa gyud immunosuppressant
siyay makuha.Hair loss. Pero ni
ana si doc ipatan-aw daw niya nako
kung pero, kanang pagbefore taking
mycophenolate kay ana man siya
mokuan kuno ug kana sa mouth
sore mga ana. Pero wala man ko
naka-feel ug naay in ana. At least, Didnt have mouth sores
wala ba noh. <laughs>
I: Oo Lahi man sad gyud ang mga
side-effects na possible na ma-
experience sa mga patient. So naay
uban ingon ani ang
R: Lage Maam.
I: Mas more sila ani nga side-effect
kaysa ani.
R: Oo.
I: So ang imohang nabantayan gyud?
R: Hair loss.
I: Sa hair loss gyud
R: Mao gyud na. <laughs> Katong Menstruation cycle
about sa ako ang menstruation.Pag- resumed one month after
month after gi-dugo dayon ko. the transplant
I: So, how do you feel na na balik
ang imohang menstrual flow?
R: Kanang murag na kuan gani ko Felt relieved that her ability
nga at least kanang dili diay ko... Aw, to reproduce is regained
kanang maka...Naa pa koy plan na since she does have plans
manganak ingon ana baKanang to have a child someday

Wanted to have
preemptive kidney
transplant but had a hard
time looking for a donor
Questioned at that time if
she could still bear children
since her menstruation
stopped
Wanted to do the kidney
transplant to still be able to
bear a child and have her
own family
Wants to have better
immune resistance when
she gets married
150
murag nakuan gani ko Hay
salamat! ba. <laughs> Naa pa koy
hope na maka-anak pa ko kanang
mga ingon ana ba. <laughs>
I: Bitaw noh.
R: Um.. At least murag nibalik siya na
kuan kay, sus unsaon nalang.
<laughs>
I: So you have plans to start a family?
R: Oo. <laughs> Wants to have her own
family
I: So regarding that plan, so how do
you feel kanang with regards ana nga
plan before the transplantWhat
would the thoughts that youre having
during that time?
R: Oo. Before ko na dialysis ang Wanted to have
option namo is transplant. Dayon preemptive kidney
kanang wala man. Sige mi kanang transplant but had a hard
find ug kanang kuan kanang donor time looking for a donor
nako. Dayon wala man gyud hangtod
na-dialysis na lang ko. So mao to
kanang nag-agi ko ato na situation na
nawagtang na dugo. Murag nakuan Questioned at that time if
ko ba,Hala maka-anak pa ba ko she could still bear children
noh? kay wala nako gi-dugo. Unya since her menstruation
mao to ani na situation na nagdialysis stopped
ko ana. Naa pa ba koy hope na?,
ingon ana ba. Dayon, mao to option Wanted to do the kidney
gyud namo nga ma-transplant gyud transplant so that she may
ko ana. Kay kanang at least ba naa be able to bear a child and
na koy family na kanang na sad koy have her own family
makita na anak, ingon ana ba.
<laughs> Dayon mao to pagkaron
bale naa man koy uyab. Oo, niya
kanang bale four years naman mi
ana. Before ko na dialysis, uyab Already had a boyfriend
naman mi daan, one year na. Unya, before being started on
dayon mao to plano namo na dialysis
magpakasal ana pero dili pa karon Plans to get married once
kay la pa man. Aw, weak pa man ko. immunosuppressants are
Aw, kanang sa nagtake pa man lowered and she has better
immunosuppressant na taas-taas pa immune resistance
ang dosage ba.Atleast, inigkasal
kanang murag ma-expose-expose na
gani ka sa mga tao.
I: So a bit lower na imohang dosage
bale that time?
R: Oo.
I: So it was been JulyHapit naka Nearing one year
mo one year bale sa imohang posttransplant
transplant?
R: Oohapit na gyud. <laughs>
I: So that person imong mention na
uyab, he was therebefore the dialysis
 151

and up until now na na-transplant ka?

So can you tell me, how was it, with
your relationship na with the
transplant nimo?
Her boyfriend as a source R: Um...Kuan makaingon ko na Sees her boyfriend as a
of strength murag, blessing gyud kay siya ba. blessing that helped her
Aw, siya gyud ang kanang...Kuan kay through her transplant
iyaha family gani maoy nitabang sad
nako para ma-transplant. Unya
kanang unsa na? Basta kanang He gave her the strength
murag siya gyud ang naghatag nako she need during moments
ug strength gani kay usahay kanang of weakness
mura nako mo-give up, ana. <tearful>
I: Sige lang Maam.
R: Naa gihapon siya. Pirmi gani nga Hes always there for her
mo ana kanang Okra na, ana. and he doesnt lose hope
Kanang wala siya wagtangiug
paglaum, ana.
I: Oo. So when were those time that
you felt, you wanted to give up?
R: Umduring katong dialysis pa ko She wanted to give up
ana. when she was still
undergoing dialysis
I: Oo.
R: Bale almost one year guro, ana.
I: OoSo karon Maam? Di, ano man
gud siya its something pud na lawom
pud na nabati gyud nimo ba and
going through that experience na
frombeing on the dialysis and you
having the transplant Is really
kanang something na dili basta-basta
pud na e-go through pud na
experience So right now is there to
support you?
R: Always. Naa gani siya ron.
<laughs>
I: Thats nice.
R: Oo.
I: Umregarding sa katong na
mention nimo Maam ba na sa
trabaho. Right now, are you able to
go back sa imohang ano, trabaho?
R:Oo. Trabaho na gyud ko. <laughs> Gone back to working
I: How did it feel nana you already
got back to what you what you are
doing before?
Freer schedule than during R: Kanang murag na accomplish Felt accomplished that she
dialysis nako gani ako ang kanang gusto gets to do her work without
Felt accomplished naDili na hindrance gani ang the time demands of
resuming work kanang maglakaw-lakaw sige kay dialysis
adto dialysis dayon inigabot luya, Also shes free from the
ingon ana ba. Kanang naa nako pirmi fatigue she experiences
didto, dili, wala na gani kanang...unsa after dialysis
na dili nako makuan ang time. Aw, dili

Recalls her routine going
to and from dialysis
Considers the benefit of
less clinic visits and costs
after the transplant
Feels the support of her
friends from during the
dialysis up until present
152
na makuhaan ang time sa work nako,
ingon ana.
I: Umm What exactly gani ang
imohang trabaho Maam?You
mentioned sa kitchen, Maam?
R: UmmKanang bale maoy Acts as a manager in the
nagkuan sa mga tao sad ba kitchen, overseeing
kanangmagtudlo ingon ana matters and giving out pay
kanang mao nay buhata kanang slips to staff
Manage-manage mga ingon ana. Oo,
feeling true<laughs>. Dayon ako pud
ang tighatag, tig-kuan sa payslip nila,
tigkwenta sa ilang sweldohan, ingon
ana ba.
I: So karon dili na siya na ma-prolong
ka kay naa pa ka adto-on sa dialysis?
R: Oo One day gyud to ha inig-ari Recalls her routine going to
namo kay sayo biya mi manggikan and from dialysis
kay lage Lilo-an. Unya gikan Lilo-an
padong ngari. Unya dayon mag-
huwat pa niya four hours man diri.
So ma-uli mi mga seven na, ingon
ana.
I: So layo-layo mo noh, ang travel
time pa unya gabieunya
R: Niya magwait pa pud ko diri sa
schedule then two days.
I: Bitaw noh, two days meaning twice
a week?
R: Two days gyud. Takes time.
I:But for now, mo-ari gihapon ka for?
R: Once a month. <laughs> Only goes in for a monthly
check up
I: So dako-dako gyud siya ug
difference noh?
R: Ang bayad pud. <laughs> Considers the difference in
frequency of visits in
dialysis and in transplant
I: Oo. So you mentioned ang family
sa imohang uyab. How about sa
imong family pud? Imong
friendspud How is it with your
relationship with them after the
transplant?
R: Ok, sad Aw, ok kaayo kay akong Feels the support of her
friends. Bale bisag nagdialysis ko ana friends from during the
naa man gihapon mi.. Mag-abot dialysis up until present
gihapon mi ana. Karon sad, mao lang
gihapon. Bale kanang support man
sila Kanang sila may murag Her friends give her
naghatag ug strength nako ba na strength to go on
kanang Ok ra gyud na. Na kanang
push ng push gyud sila ba na dili ka
mo kanang mawagtangan ug hope
ingon ana
 153

I: So they knew na you had already

the transplant?
Friends exercised caution R: Oo. Kanang naa man gani sad sila Her friends were present
in coming to close contact pag-adto pero dili lang sila kaduol. after her transplant
during their visits <laughs> although they didnt go
near because of visitation
limits
I: Aw, oo Visiting ana Maam limited
diba?
R: Oo.
I: Oo. So they were and then they
murag ang
Appreciates the prayers R: Ang prayers pud nila Oo, naka- She felt the support of her
and encouragements given help gyud kayo. Dayon ang ilaha sad friends through their
by her friends kanang moral...bisag moral support prayers and
lang nako ana. Kanang Kaya na encouragements
nimo, kaya na nimo ana. Murag
kanang sa kuan sa psychological
gani na nimo na kanang naay daghan
nag-love nimo. Dili ka mawagtang ug
hope kay naa pa sila, ana. Kanang
murag ang strength nimo mas kusog
na dili kanang dili ka mo give up ana
kay daghan ang murag nag-need pa
nimo, ingon ana ba imoha ma-feel.
I: Para nimo Maam important gyud na
siya?
R: Oo, sa isa ka paient mga ingon Considers moral support
ana. Oo, kailangan gyud na siya. very important
I: Oo. So far Maam, do you have any
need for support during karon na
nahuman na siya. So what kind of
support would you want from them at
this point?
Felt uplifted with the R: Bisag naa lang sila pirmi nga ma- Shes feels uplifted as long
presence of her friends estorya-estorya nako ana. Kanang ok as she feels her friends are
nakaayo ko. Unya dayon just there
kanangmgajokes nila na kanang
makapakatawa kanang murag ma-
uplift sad ka ba ana. Bisag mga ingon
ana lang, ana.
I: But is there any limitation sa
imohang pag-interact sa imohang
circle friends and family karon na
transplant ka?
Resumption of usual R: Karon kay mas ok-ok na. Pero Her interaction with her
interaction with friends pag-after transplant isolated gyud ko. friends are now alright but
Naa rako sa isa ka room. <laughs> immediately after the
Dad-an rako ug food ngadto. Kanang transplant, she felt isolated,
murag ko ug...basta, prisoner. like a prisoner
<laughs>
I: Prisoner. How many weeks pud?
R: Almost four months. Felt like a prisoner for four
months
I: Umm sa first four months nimo?

Felt sad of the temporary
isolation
Able to go outdoorsand
travel already after the
transplant
Stringent interpretation of
isolation precaution during
postoperative phase
154
R: Isolated gyud kaayo. Felt isolated since she
<laughs>Dayon basta wala ko kita didnt see people that time
ug dili ko kakita ug mga tao ato na
time.
I: Oo.
R: Kanang naa ray maghatod nako Her set up includes her
didto. Hatdan ko, ana. Pakan-on ra room and an adjacent
ko didto sa usa ka room, ana. Unya, room where she was given
balesa usa ka room, ako-a room diri, food through a window
sa pikas pwede pasudlan ngadto
pero adto ra sila sa window. <laughs>
Nagtan-aw nako<laughs>, ingon ana.
I: So you felt isolated during nga
time?
R: Oo. Unya, basta kanang nakuan Felt isolated at that time
ko ato na kanang murag gani na since her interaction was
depress ko ato na time kay wala ko limited
makit-an tao dayon kanang wala ko
ka-estorya-estorya. Makaestorya
kanang kuan naa ra sa pikas.
I: Kana room nimo <gestures
locations> unya then naay room naay
connected window?
R: Oo, nganha ra sila diha mosulod. She cried during the time
Unya ako naa man diha isolated. she was isolated but her
Dayon dad-an nako food ana. Dayon friends kept on reminding
basta maghilak ko ato everynight her on looking at the
siguro kay kanangmurag mingaw positive side
ana. Murag ngano naa man ko ngari?
Pero naa gihapon sila nga moana
nako nga Tan-awa ang positive side
ani, atleast wala naka sigeg balik-
balik ngadto nagdialysis, ana. Tan-
awa ang positive, ingon ana. Daghan
kaayo moana nako ba Atleast,
kanang naa pa gihapon sila ba. Unya Content that her friends are
karon bale makagawas-gawas na. still there
Nakasuroy na gani ko [province]. Lately she gets to go
<laughs> Laag-laag na ingon ana. outdoors and even went to
Unya maka-mingle na sa mga [province]
friends, ingon ana. Able to mingle with friends
I: Umm So during those four
months..wasthat suggested? Kinsa
sad diay nag-suggest pud ato na
mag-isolate sa ka sa ano..
R: Si [nephrologist] ok ra kuno siya e- The nephrologist
expose pero kanang dili gyud e- suggestion was interpreted
expose nga kuan ba. Si [nephrologist] that she stays in her room
atoDapat careful gyud kay kanang immediate posttransplant
weak pa kaayo immune system, phase to avoid acquiring
ingon ana ba. So mao to nakuan na infections
nga adto lang sa ko sa isa ka room
para makuan pa gani ako strength, Had laboratory extractions
ingon ana. Dili sad komakuan sa mga home-serviced.
infections mga ana. So maski

Relented that staying in at
home helped her manage
her frequent urination
No stent was placed
Felt unaccustomed to be
able to urinate again after
two years of anuria
Appreciated the feeling of
being able to urinate again
Her rowdy reaction when
her urge to urinate came
back
155
magkuha ug laboratory ato didto ra
ko sa balay. Everyday gyud home
service gyud to. Unya, mao sad Relented that it was for the
masok gyud to nako kay kanang better she stayed at home
every five minutes mangihi so dili sad since she urinated very
ko ka kagawas gyud kay kung often and it would have
mogawas kay balik na sad kay muihi. been hard if she was away
Kanang mas ok sad to nako ba nga from home
magstay ra gyud sa isa ka room.
I: Oo. So was it kanang naay na
place something adto ang stent or..
R: Wala.Mao to ingon ni doc. Mao to The plan to place a stent
ang option ni doc na butangan ug didnt push through
stent kay gamay man akong bladder,
ning-gamay ba. Unya tingali unya
kuno mobuto inigmasudlan gani urine
ana. Mabug-atan siya or unsa. Mao
to iya option ato pero pagtan-aw niya
ng murag ni expand...ma-ano pa balik
dayon wala na lang niya kay ang
laceration or ang mga samad, lain na
sad magheal na pud ana. Kanang
murag additional kuan na sad ba
magpa-heal na pud ka sa ilawom.
Unya naa pud imohang surgery,
ingon ana ba.
I: So imoha ra gyud to own na ano,
ureter ug bladder, wa may gyud stent
na gibutang didto?
R: Oo. Basta pagtang-tang lage sa Recalls her frequent
kanang catheter Magpundo lang ko urination after the catheter
pirmi sa CR. <laughs> Kay matag-ihi was removed
na sad. <laughs> Even matug. Even when asleep she
<laughs> Basta nangurog gyud gets up to urinate
akong unod ato kay kana gani sigeg Felt unaccustomed to be
balik ihi kanang wala paka naanad ba able to urinate again after
kay for two years ana wala kay ihi-ihi. two years of anuria
I: How did it feel nga makakita ka
balik sa imong ihi after two years
wala gyud ka kita sa imo ihi?
R: Kanang.Basta e-feel, e-feel Appreciated the feeling of
nako oe. Naka-ihi na gyud ko. being able to urinate again
<laughs> Ma-feel gyud nako.
<laughs>
I: Unya inigkatan-aw nimo sa bowl?
R: Ay naa gyud lusot ihi. <laughs> Delights in seeing her urine
Kay sus sa una iniglingkod nako wala and having that urge to
gyud mogawas, wala gyud urge na urinate
ma-feel nako, wala gyud to. Pag-after Recalls her immediate
gani transplant, so pagkahuman gyud postoperative reaction of
murag na subside na kanang wanting to urinate even
anesthesia, hala nag-wild kuno ko when placed with a
kay Mangihi ko, mangihi ko bisag catheter already
naa nay catheter ana. Agay! Mangihi
ko, mangihi,Mobangon gyud kuno
 156

ko. <laughs> Unya, bisag dili dapat

pa ba kay naa pay, kanang kuan pa
groggy ko ato na time, mobangon
gyud kuno ko kay mangihi ko.
<laughs> Maam, naa may kuan, naa
man gyuy catheter. Kahii-on kaayo
ko. <laughs>
I: So naay gyud urge that ato, maam?
R: Naa gyud. <laughs> Naa to. First
na-feel gyud, ana. Kahingi-on na
gyud kaayo ko. <laughs>
I: But gipakita ka nila sa imohang
catheter bag na naay sulod?
R: Oo, ai... Nagpiyong man ko ato Does not recall seeing her
nga time <laughs> urine in the collection bag
I: Ah ok. <laughs>
Recalls coming off from R: Gihisgot nga dili, dili nako name Recalls recovering from
disorientation ba. Dili nako name nga ana kanang anesthetic effect and being
something kanang ilahang gi-hisgot, able to correctly identify
ana ko Dili lage kay lain akong herself once the
name. <laughs> Nistorya pa ko sa anesthesia wore off
akong name <laughs> kay ako gi-
correctionan ang anesthesiologist kay
lain man ang iyang gi-tawag nako.
<laughs> Ako siyang gi-correctionan
sa akong name. <laughs> Ingon
dayon siya Ahh, nakamatngon na
diay ni siya kay naka-ila man niya.
<laughs>
I: Mao ba, so murag naa kay gamay
reaction?
R: Oo.
I: That time na
R: After
I: Oo Pero nakahinumdom paka ato
tanan Maam or murag delay lang siya
after na nahimasmasan naka ba, ni
wear-off na gyud ang
R: Oo, mao toy naa feel nako ug Felt disoriented immediate
kanang unsa na naghuna-huna nako postoperative phase
ba na Hala, naa man diay ko sa
kanang kuan operating room ani.
<laughs>Mao tong gi-inject-kan na
sad ko ato ug pain reliever kay ni
subside na lage ang anesthesia, mao
to pagkakuan murag nahuwasan
nako kay angpain nga wala diri wala
didto na. Oo, na feel nako diri sa
I: Sa side
R: Right side.
I: So do you feel any bulge or any
ano?
R: Naa <lifts up her shirt slightly to
show her postoperative site>
I: Naa gyud.
 157

R: Dako man siya.

I: Oo,
Felt a bulge at the right R: Naa gani siya bulge. <palpates the Felt a bulge at the right
side area> side
I: Oo.
R: Unya, dako man siya then ni ana The donated kidney was
si doc na murag 1 kuno kumpara larger than her native
sa akong kidney ang sa donor. Dako kidney
Felt a warm feeling in the ba. Unya basta nice kaayo ba ang Felt a warm feeling in the
area where the new kidney iyang effect kay kanang a day after area where the new kidney
was noh kay ningkuan na siya, ning-warm. was
Her creatinine normalized Kuan, something dayon two days Her creatinine normalized
two days after the after ning-normal na gyud dayon siya. two days after the
operation Paspas kaayo gani iyahang kuan sa operation
iyang creatinine.
I: Pagnormalize sa iyang creatinine?
R: Oo, paspas kaayo. Unya, ni ana si Decrease in creatinine to
doc Dako man gud ang kidney na normal levels was fast
nahatag sa imoha. Mao na siya. since the donated kidney
was big
I: So it was able to kanang
R: Oo, kuan gyud siya sa akong
body.
I: So, how did you looking at the
mirror with the incision site?
R: One line.
I: So do you feel looking that line?
Humor used to adapt to the R: Ok ra man kay remembrance. Considers the incision line
incision line <laughs> Naa diri naay diri gisud ani. as a remembrance
<points to incision line>
I: So whenever you feel the bulge,
unsa ang mahunahunaan nimo or
anything?
Aware of the presence of R: Kuan ra kanangNaa gyud siya. Aware of the presence of
her transplanted organ <laughs> Kay inig-side gani nako, her transplanted organ
when she moves inig higda nako side, naa gyud siya. when she moves
Mag-ana gyud sad siya diri.
<positions herself sideways to show a
small bulge>
I: Does it bother you na naa ang
bulge?
She feels fine with the R: Wala man.Ok ra sa ako. She feels fine with the
bulge. bulge.
I: So murag na-anad naka?
The transplanted organ is R: As a partner, as a buddy. <laughs> The transplanted organ is
like a partner, a buddy like a partner, a buddy
I: Bitaw. Thank you ayo sa pag-share
nimo adto Maam.
Felt strong on the second R: Ten days man ko sa hospital. Sa Wanted to get up on the
postoperative day kidney kuandidto ba. Kidney unit second postoperative day
unsa na? Ten days man ko ato, so since she felt strong
pag-second day ato, basta bangon
gyud ko. Kanang lig-on gyud ko.
I: Pero wala kay gi-contraindicate na
dili ka pwede mo bangon sa ana?

R: Dili pa sad ko pabangonon lage
kay makuan gani ang tahi ingon ana.
Kay ten days pa gud. Nah, nibangon
gyud ko <laughs>. Nah, lihok gyud
Believed that mobilization ko, lihok kay ang kuan baya kanang
would help her heal faster mobilization ba, faster healing ingon
ana. So, ngadto lihok gyud ko.
<laughs>Then niingon si doc na
Kanang anha sa ka kuan ihi, ana.
Kanang kuan, ang ihi nako ato kay
kuan pa man kanang catheter. So,
okay ra ang ihi perokung malibang
Maintaining sense of kolaina sad oe kuanon ka sa nurse
independence dili ko ganahan. Ma-ulaw ko.
<laughs>
I: Unya, naa may perineal care. Sa
part ato?
R: Ako ra.
I: Ikaw ra?
R: Oo, e-wash man nako.So wala.dili
ko magpakuan. <laughs>
I: Ah, ok.Kay usually ang perineal
carepwede ra ba namo e-offer nga
mo-ingon mi Well handle it. Unya,
perineal care ingon ana
R: Mobangon manko.
I: Ah ok.
R: Unya, ako ra manghimasa. Mag-
wash kokay murag ma-ikog, murag
lainan ko oe. <laughs>Nah, mag-
lakaw-lakaw, magpakuan. Eeehhh
<laughs> lainan ko. Bisag babaye
ang mokuan nimo.Lage, pero
kanalangUnsa na kanang katong
gi-ingon ni doc na kanang Dili sa
ingon ana lang sa, iligpit gani... Unsa
ngan ana?
I: Unsa i-bend?
R: Ingon ana lang sa ka before ka
molakaw.
I: Ahh, bale mura imo sa siya i-dangle
before. Imo sa siya ipa-bitay-bitay.
Wanted to walk outright R: Oo, before ka molakaw, ana. Ay,
molakaw na lang ko doc. <laughs>
I: Kay para man gud na dili ka
malipong. Kay naa may uban kay
tungod gikan higda
R: Oo, hypotension.
158
Supposedly not yet to get
up on bed but she insisted
on getting up and moving
around
Believed that mobilization
would help her heal faster
Urinating through a
catheter was alright with
her but she did not want to
defecate be assisted by a
nurse
The thought of being
assisted in defecation was
mortifying for her sense
of independence?
She did perineal care on
her own sense of
independence?
Washed her perineal area
herself, didnt want the
nurse to do it for her
Insists on doing it herself
Doesnt like perineal wash
even if done by female
nurses
Recalls advise to bend her
knee when lying down
Recalls advise to dangle
legs before walking
Felt impatient with dangling
of legs, wanted to walk
outright
Knows that abrupt standing
up causes orthostatic
hypotension

Didnt fear the transplant R: Daghan naman gud nasuwayan
procedure since she
underwent a lot of surgical
procedures before
Didnt have fear of R: Wala. Pray lang gyud ko, ana.
rejection because of
prayers
No major infections
acquired pre-transplant
Meticulously of having
regular checkups
159
I: Oo, orthostatic hypotension.
Nakalimot diay ko pangutana were
there any fears na nasulod sa imong
mind, after the transplant?
R: Wala, maski before the Didnt have fears before
transplant Mura gud nga, Ah, and after the transplant
isuga. <laughs>Gi-ingnan gud ko nga
isuga gud.
I: Any doubts nga?
Didnt fear the transplant
nga operahan.Kay kani <points to left since she underwent a lot
arm>, kani-a na fistula dayon sa of surgical procedures
akoang tiil kay nagUnsa before
ngankanang murag ni-leak gani ako
ang blood vessels?
I: So at that time?
R: Isog nah. <laughs>
I: Sige go, go. Pero after the
transplant like any outcome after the
transplant na
R: Na ni reject mga ana?
I: Oo.
Didnt have fear of rejection
Daghan sad ang nag-pray. Wala lang Felt strong with the prayers
ni complicate, ingon ana.
I: So far, any infection or any
problems encounter?
R: Sa kuan, before ko na transplant, Only had an infection
naa toy mga infection, ingon ana. before the transplant
Kailanga e-clear pa man gyud siya
kay unya niya adto niya inig-
transplant modako niya ba. Unya,
hadlokan sad kaayo doc. Daghan
lage kaayo kinakuan gyud tanan ana,
hasta gyud ako ang teeth gi-patan-aw
gyud, ana. Tanan.
I: Basta mga dental carries dili gyud
na pwede, Oo.
R: Kay aron ma-clear gyud tanan. Had her infection cleared
Unya sa kanang akoang sad OB
dapat clear na tanan. So, mao to..
Unya after na sa transplant kuan ni
taas akoangMurag UTI siya, ingon
ana. Unya, mao to gipa-urine culture
and sensitivity. Unya mao to, ok
naman.
I: So far?
R: Ok na. Kay kinahanglan e-check Enlists herself on regular
man gyud siya every monthman. check up
Unya, maski every month mag-check
ni [transplant coordinator]. Magpa-
check man pud sa [diagnostic center].
<laughs> Kanang murag, naa gyud
kay second thought sad nah kung
sakto ba gyud, ingon ana, sa mga tao
 160

sad didto kuan manNaa man sad

mi murag yearly ana Oo, pag-
march man to so magpa-apil sad ko.
<laughs>
I: Annual physical exam ug kuan
pang-laboratory ninyo?
R: Naa man sad, nag-apil pud ko Double checks her results
<laughs>. Para sigurado <laughs> watchful of her health
I: So you take conscious effort gyud
na mo-check gyud ka
R: Oo, para wala lang gyud chance
ba na maoy hinungdan na reject niya,
ingon ana. Precious. <laughs>
I: Sige, thank you gyud kaayo sa
pagshare.
R: Ok ra. <smiles>

Chronological List of Themes Interview Five

Dialysis hampered her work schedule

Worked in a kitchen for catering business
Kidney transplantation made a big impact
Kidney transplant gave her a longer lifespan
Felt normal functioning was back after her transplant
Recalls dietary restrictions in dialysis
Had amenorrhea for one year and a half
Amenorrhea after ESRD diagnosis
 161

Felt healthy and strong again

No need for erythropoietin injections already
Normal results in her blood count already
Felt weak because of anemia before
Felt like before she had been diagnosed and underwent dialysis
Preferred taking her lifetime medications over going back to dialysis
Numerous medications but are already tapered
Blood pressure returned to normal range
Experiencing hair loss as a side effect
Didnt experience anticipated side effects from the immunosuppressants
Menstruation cycle resumed one month after the transplant
Relief in knowing she can still bear a child with resumption of her menstruation cycle
Wanted to have preemptive kidney transplant but had a hard time looking for a donor
Questioned at that time if she could still bear children since her menstruation stopped
Wanted to do the kidney transplant to still be able to bear a child and have her own family
Wants to have better immune resistance when she gets married
Her boyfriend as a source of strength
Acts as manager in the kitchen
Recalls her routine going to and from dialysis
Considers the benefit of less clinic visits and costs after the transplant
Feels the support of her friends from during the dialysis up until present
Friends exercised caution in coming to close contact during their visits
Appreciates the prayers and encouragements given by her friends
Felt uplifted with the presence of her friends
Resumption of usual interaction with friends
Felt sad of the temporary isolation
Able to go outdoors and travel already after the transplant
Stringent interpretation of isolation precaution during postoperative phase
Relented that staying in at home helped her manage her frequent urination
No stent was placed
Felt unaccustomed to be able to urinate again after two years of anuria
Appreciated the feeling of being able to urinate again
Her rowdy reaction when her urge to urinate came back
Recalls coming off from disorientation
Felt a bulge at the right side
Felt a warm feeling in the area where the new kidney was
Her creatinine normalized two days after the operation
Humor used to adapt to the incision line
Aware of the presence of her transplanted organ when she moves
She feels fine with the bulge.
The transplanted organ is like a partner, a buddy
Felt strong on the second postoperative day
Believed that mobilization would help her heal faster
Sense of independence intact when doing her own perineal care
Wanted to walk outright
Didnt fear the transplant procedure since she underwent a lot of surgical procedures before
Didnt have fear of rejection because of prayers
No major infections acquired pre-transplant
Conscious of having regular check ups
Watchful of her health as she double checks her results
 162

Theme Table for Interview Five

Themes Page Key words

Establishing the new normal

Freer schedule than during dialysis
7 Dili na hindrance gani ang kanang
maglakaw-lakaw sige kay adto dialysis
dayon inigabot luya, ingon ana ba. Kanang
naa nako pirmi didto, dili, wala na gani
kanang...unsa na dili nako makuan ang

Stringent interpretation of isolation
precaution during postoperative phase
Relented that staying in at home helped
her manage her frequent urination
Felt unaccustomed to be able to urinate
again after two years of anuria
Appreciated the feeling of being able to
urinate again
Her rowdy reaction when her urge to
urinate came back
Felt impatient with dangling of legs,
wanted to walk outright
Meticulous of having regular check ups
Kidney transplant as a new lease in life
Kidney transplantation could give her a
longer lifespan
Felt normal functioning was back after her
transplant
Felt healthy and strong again
163
time.
10 Si [nephrologist] ok ra kuno siya e-expose
pero kanang dili gyud e-expose nga kuan
ba. Si [nephrologist] atoDapat careful
gyud kay kanang weak pa kaayo immune
system, ingon ana ba. So mao to nakuan
na nga adto lang sa ko sa isa ka room para
makuan pa gani ako strength, ingon ana.
Dili sad ko makuan sa mga infections mga
ana. So maski magkuha ug laboratory ato
didto ra ko sa balay.
10 Unya, mao sad mas ok gyud to nako kay
kanang every five minutes mangihi so dili
sad ko ka kagawas gyud kay kung
mogawas kay balik na sad kay muihi.
Kanang mas ok sad to nako ba nga
magstay ra gyud sa isa ka room.
10 Basta nangurog gyud akong unod ato kay
kana gani sigeg balik ihi kanang wala paka
naanad ba kay for two years ana wala kay
ihi-ihi.
10 Kanang.Basta e-feel, e-feel nako oe.
Naka-ihi na gyud ko. Ma-feel gyud nako.
11 Pag-after gani transplant, so pagkahuman
gyud murag na subside na kanang
anesthesia, hala nag-wild kuno ko kay
Mangihi ko, mangihi ko bisag naa nay
catheter ana. Agay! Mangihi ko, mangihi,
Mobangon gyud kuno ko. Unya, bisag dili
dapat pa ba kay naa pay, kanang kuan pa
groggy ko ato na time, mobangon gyud
kuno ko kay mangihi ko. Maam, naa may
kuan, naa man gyuy catheter. Kahii-on
kaayo ko.
14 Ay, molakaw na lang ko doc.
15 Kay kinahanglan e-check man gyud siya
every month man. Unya, maski every month
mag-check ni [transplant coordinator].
Magpa-check man pud sa [diagnostic
center].
2 Dako kaayo. Bale para nako, naay
additional lifespan. Murag na longer gyud
akoang lifespan.
2 Unya bale murag ni-back to normal na ang
function gani sa imong body, ana kaysa
compare atong gi-dialysis
2 Sa sugod bale ang ako kanang... ang
healthang meaning health gani kay
kanang dili nako maluya, kanang ahdili
nako hanguson kana. Unya kanang
ningbalik nasad ang kanang bale ni-gain
gani ko ug weight ana. Unya na-unoran nah,

No need for erythropoietin injections
already
Normal results in her blood count already
Felt like before she had been diagnosed
and underwent dialysis
Blood pressure returned to normal range
Menstruation cycle resumed one month
after the transplant
Relief in knowing she can still bear a child
with resumption of her menstruation cycle
Her creatinine normalized two days after
the operation
Awareness of the presence of the
transplanted organ
Felt a bulge at the right side
Felt a warm feeling in the area where the
new kidney was
Aware of the presence of her transplanted
organ when she moves
She feels fine with the bulge.
The transplanted organ is like a partner, a
buddy
Socialization and interaction post-
transplant
Friends exercised caution in coming to
close contact during their visits
Appreciates the prayers and
encouragements given by her friends
Resumption of usual interaction with
friends
Felt sad of the temporary isolation
164
di pareha sa una na kanang daot kaayo
dayon ang color kay murag grayish ang
color.
3 Unya karon dili na nag-need kuan nalang
Aw, hinoun naay medication pero oral.
3 Normal na siya.Sa una anha ra jud ko kutob
sa 10.
3 Kanang gaan na. KanangBasta, nibalik na
siya ba before na ato na dialysis or before
ko ato na diagnose.
4 So normal ra jud ang blood pressure nako.
5 Katong about sa ako ang menstruation.Pag-
month after gi-dugo dayon ko.
5 Aw, kanang maka...Naa pa koy plan na
manganak ingon ana baKanang murag
nakuan gani ko Hay salamat! ba.
<laughs> Naa pa koy hope na maka-anak
pa ko kanang mga ingon ana ba. <laughs>
12 Kuan, something dayon two days after ning-
normal na gyud dayon siya. Paspas kaayo
gani iyahang kuan sa iyang creatinine.
12 Naa gani siya bulge.
12 Unya basta nice kaayo ba ang iyang effect
kay kanang a day after noh kay ningkuan na
siya, ning-warm.
12 Naa diri naay diri gisud ani. <points to
incision line> Naa gyud siya. <laughs> Kay
inig-side gani nako, inig higda nako side,
naa gyud siya. Mag-ana gyud sad siya diri.
12 Wala man.Ok ra sa ako.
12 As a partner, as a buddy.
8 Kanang naa man gani sad sila pag-adto
pero dili lang sila kaduol.
8 Ang prayers pud nila Oo, naka-help gyud
kayo. Dayon ang ilaha sad kanang
moral...bisag moral support lang nako ana.
Kanang Kaya na nimo, kaya na nimo ana.
Murag kanang sa kuan sa psychological
gani na nimo na kanang naay daghan nag-
love nimo. Dili ka mawagtang ug hope kay
naa pa sila, ana.
9 Karon kay mas ok-ok na. Pero pag-after
transplant isolated gyud ko.
9 Unya, basta kanang nakuan ko ato na
kanang murag gani na depress ko ato na
time kay wala ko makit-an tao dayon kanang
wala ko ka-estorya-estorya. Makaestorya
kanang kuan naa ra sa pikas Unya ako

Able to go outdoors and travel already
after the transplant
Support system in the post-transplant
phase
Her boyfriend as a source of strength
Felt uplifted with the presence of her
friends
Coping with the post-transplant phase
Humor used to adapt to the incision line
Felt strong on the second postoperative
day
Believed that mobilization would help her
heal faster
Maintaining sense of independence
Dealing with the treatment regimen
Preferred taking her lifetime medications
over going back to dialysis
Numerous medications but are already
tapered
Experiencing hair loss as a side effect
Didnt experience anticipated side effects
from the immunosuppressants
165
naa man diha isolated. Dayon dad-an nako
food ana. Dayon basta maghilak ko ato
everynight siguro kay kanang murag
mingaw ana. Murag ngano naa man ko
ngari?
9 Unya karon bale makagawas-gawas na.
Nakasuroy na gani ko [province]. Laag-laag
na ingon ana. Unya maka-mingle na sa mga
friends, ingon ana.
6 Kuan makaingon ko namurag, blessing
gyud kay siya ba. Aw, siya gyud ang
kanang...Kuan kay iyaha family gani maoy
nitabang sad nako para ma-transplant. Unya
kanang unsa na? Basta kanang murag siya
gyud ang naghatag nako ug strength gani
kay usahay kanang mura nako mo-give up
ana.
8 Bisag naa lang sila pirmi nga ma-estorya-
estorya nako ana. Kanang ok na kaayo ko.
Unya dayon kanang mga jokes nila na
kanang makapakatawa kanang murag ma-
uplift sad ka ba ana. Bisag mga ingon ana
lang, ana.
12 Ok ra man kay remembrance.
13 Ten days man ko ato, so pag-second day
ato, basta bangon gyud ko. Kanang lig-on
gyud ko
13 Nah, lihok gyud ko, lihok kay ang kuan baya
kanang mobilization ba, faster healing ingon
ana. So, ngadto lihok gyud ko
13 So, okay ra ang ihi pero kung malibang ko
laina sad oe kuanon ka sa nurse dili ko
ganahan. Ma-ulaw ko.
3 Pero mao lage mo-take lang sad medication
nga lifetime. Ok ra sad kay ko kaysa
magdialysis. Di nako ganahan mobalik ato.
Bahala mo-inom ko lifetime basta dili nako
mobalik ato.
3 Ah, time paBasta more or less mga
twenty pero before to. Gina-lessen naman
ron.
4 Pam: gaanam siya [hair loss]. Pero naa sad
nuoy nanubo pero lahi na strand murag
nipis gani siya.
4 Pero ni ana si doc ipatan-aw daw niya nako
kung pero, kanang pagbefore taking
mycophenolate kay ana man siya mokuan
kuno ug kana sa mouthsore mga ana.

Redefining plans and goals
Wants to have better immune resistance
when she gets married
Coming to terms with adverse
transplant outcomes
Didnt have fear of rejection because of
prayers
Emergent Themes
166
Pero wala man ko naka-feel ug naay in ana.
At least, wala ba noh.
5-6 Unya, dayon mao to plano namo na
magpakasal ana pero dili pa karon kay la pa
man. Aw, weak pa man ko. Aw, kanang sa
nagtake pa man immunosuppressant na
taas-taas pa ang dosage ba.At least, inig
kasal kanang murag ma-expose-expose na
gani ka sa mga tao.
14 Wala. Pray lang gyud ko, ana. Daghan sad
ang nag-pray. Wala lang ni complicate
Interview Six Transcript
Original Transcript Exploratory comments
I: Hello Good morning Maam
[informant]. Im Clarice. Im a
student sa Cebu Normal
University. Im doing this
interview sa mga transplanted
na young adult patients to ask
about your live experiences,

Prefers to cook her own meals
Her daily routine in the
province is not that hectic
Feels more normal than in
dialysis since she can do
whatever she wants to do
Limitations she had during
dialysis
167
unsa imo kaagi human sa
imong transplant, bale
nangamusta. Ill start with the
interview. Ill put your initials.
So its?
R: [initials]
I: And then age is?
R: 28
I: Then female, civil status?
R: Single
I: Unya diagnosis before
kidney transplant was
performed?
R: Glomerulonephritis
secondary to small bilateral
kidneys
I: Kanusa-a gani ka na-
transplant Maam [informant]?
R: May 17, 2012
I: Sige. Kamusta naka karon
Maam [informant]? Its been
R: Two years. UmJust Its been two years from her
staying at home unya doing transplant date
normal things like, usually in
the morning I cook breakfast
Mao gihapon na afternoon, Prefers to cook her own meals
dinner cause prefer ko ako juy
mo-cook sa akong diet. And
then wala man kaayo koy Not so much to do in her
gibuhat sa amo kay naa ra ko province
sa probinsya. Sa gawas,
sometimes I go out for Goes out for grocery
groceries. Wala kay ma- shoppping
shoppingan ngadto kaayo.
<laughs> Ang kuan ngadto sa
province kuan ra man
Gaisano, Robinson groceries
ra man. So wala kaayo buhat.
Pero makasuroy naka unlike Can now take leisurely walks
before wa pa ka na-transplant. unlike before in dialysis
Makakuan man ko pagdialysis
pero lahi ra jud karon, mas Feels more normal than in
normal. Maka-ingon ka ug dialysis since she can do
normal basing sa tanan nimo whatever she wants to do
gusto buhaton pwede na nimo
mabuhat.
I: Before the transplant, what
were the things diay na murag
you thought na limited ka to do
or you were limited to do?
R: Mu go-out siguro kay With dialysis, she felt she had
before mura man kog naa koy a hectic schedule
schedule sa dialysis and then Easily felt out of breath in
sa imo sad health lahi ra dali dialysis
ra ka magpunga-punga

Feels different and in better
health
Normal routine involves
cooking, watching television
and reading books
Has not resumed work yet
Will not resume her nursing
career
Stays at home for now
Conscious of her dietary
intake
Accustomed to the diet
restrictions
Adjusted to the increased
water intake post-transplant
168
I: So ginhawa nimo, punga sa
una. Lisod ginhawa?
R: Oo. Karon lahi ra. Healthy Feels different and in better
jud ka. Healthy jud imong health
paminaw. Lahi ra before.
I: So imong normal routine is?
R: Magluto ra. Magluto, Normal routine involves
mangitag TV. Um more on cooking, watching television
read books. And then unsa and reading books
pa? Wala pa koy work kay Has not resumed work yet
ambot naay laing plans pa not yet her time, other plans?
siguro para nako. Dili pa
karon.
I: Did you have any plans to
resume work?
R: Wala nakoy plans to Does not have plans to
resume, sa medical. resume her work in the
medical field
I: So before, imong work
maam kay?
R: I worked as a care assistant Worked as a care assistant,
sa England and then wala ko private nurse and travelling
ka-experience ug work sa nurse in England before
Philippines and then I did
private nursing and travel
nurse. So mao ra.
I: So far now?
R: Wala. Naa ra ko sa balay. Nothing much to do, just her
Mao ra gyuy usual nako usual cooking since she
buhaton. Magsige luto-luto. prefers to cook
Mas mo-prefer ko akoy
magluto.
I: So naa kay gi-follow na diet.
R: DAT gihapon, low-salt Observes low sodium diet
gihapon, low-sodium wala Avoids beverages like
mao ra na. Unya mga softdrinks and alcoholic drinks
softdrinks, di ko tig-inom
softdrinks, alcoholic drinks
pud. Before maka-inom ko
bisag occasionally pero karon
dili, wala na jud.
I: So how do you feel about
that change sa imong diet?
R: Wala ra kay before sa mag- Doesnt mind the diet
dialysis ka, restricted man ka restrictions since shes used to
ug food. So karon, bisag sa it in dialysis
fluid, sa ma-inom na fluid, Complies with drinking plenty
maka-inom ko ug 3-4 liters a of water post-transplant which
day. Mao na akong ma-inom. is different in dialysis wherein
Usahay gani makuwangan ko fluid intake is limited
ug 4 liters. Murag naanad na
akong body ba unlike sa
dialysis pa ko kuan rato ako a
800 ml.
I: In a day?

Feels freer with the dietary
specifications after the
transplant
Rarely gets seriously sick
post-transplant
Still maintains a high dose of
immunosuppressants
Experienced steroid-induced
puffiness of face
Steroid-induced puffiness went
away after the steroid was
tapered
Experienced
immunosuppressant-induced
high blood sugar and
cholesterol levels
169
R: In a day. Karon dili na.
Unya before sad need jud Recalls dietary restrictions in
nimo na ang imong jud diet dialysis
was kuan jud, strict kaayo ug
diet magdialysis ka. Pero pag- Feels freer with the dietary
after naka-transplant naka, specifications after the
although naa koy kinahanglan transplant
kuanun na diet, unlike sa
nagkuan pa ka nagdialysis kay
mas daghan imong mga
restrictions, so much better
siya karon. And labi na sa Does not develop fever easily
lawas kung nagdialysis ka, after the transplant
mag-fever ka ug dali. Karon
dili man. For two years, murag
sa far, ok ra man. Kana lang After the transplant, rarely gets
jud immunosuppressed tungod sick and if she does get sick,
sa imong immunosuppressant its easily managed
pero sa akong part mura gani,
di ba immunosuppressed
dapat magkasakit dayon ko,
sa ako-a ron talagsa ra.
Makaya ra sad bisag wala koy
antibiotics. Pero imnan nako
ug water.
I: Imong immunosuppressant
ron, after two years naa bay
changes?
R: O, naa. Murag before Observed some dose
murag minus lang. Wala pa adjustments with her
jud nakuan ubos. Taas immunosuppressants although
gihapon ang dosage. Myfortic the dosage is still quite high
nako 3 gihapon. Tacro 4, 8 ka
capsules akong gi-take.
I: Katon namention nimo off-
record na side effects kung
muhigda ka?
R: Kung muhigda ko akong Experienced steroid-induced
nawonginstead ang floor puffiness of face
imo makit-an ang nawong
akong makit-an sa kadako
siguro. Mao siguro to effects
sa akong steroids.
I: But after?
R: Nawala na. Pila ka months, After the steroids was tapered,
wala naman. the puffiness also went away
I: How about sa katong mga
immunosuppressants naa ba
sad kay nabati?
R: Wala so far, wala koy...Ai Experienced
kuan kanang after wala man to immunosuppressant-induced
nako na-control akong rice. high blood sugar and
Akong sugar nitaas diay to. cholesterol levels
Cholesterol pud. Ang

Takes an antacid to counteract
that immunosuppressant-
induced gastric upset
Needs to take nerve
supplements to prevent
paresthesias
Kidney transplant brought big
changes as she is able to
return to her normal routine
Dialysis entailed more time
and more medications to
maintain
Blood pressure returned to
normal one month post-
transplant
170
nakakuan atong akong sugar
kay katong Prograf. Kay kuan
man siya murag mutaas imong
sugar, ana.
I: Maka-trigger bitaw siya
R: Mao ra man siguro. Unya Another immunosuppressant
Myfortic. Kanang magsakit shes taking is causing gastric
akong, murag acidic, murag upset
hapdos akong kuto-kuto. Has to take an antacid for that
Motumar ko ug antacid. Mao side effect
ra man akong gi-take. So
karon akong gi-take kay kato
duha ka immunosppressants Takes supplements for nerve
ug multivitamins kanang para function since shes
sa nerves. Kay sometimes experiences a tingling
murag magkurog-kurog sensation
I: Naay mo-tingle?
R: Oo mao ra. Meganerv-E.
I: Asa man pud siya mutingle?
R: Face, sa lower extremities Tingling in her face and lower
extremities
I: Ah ok, can you please tell
me kung unsa ang impact sa
kidney transplantation in your
everyday life?
R: Murag dako siyang Kidney transplant brought big
changes kay nibalik ra ka sa changes as she is able to
imong normal routine jud ba return to her normal routine
sa imong life, unlike before na
wala pa ka na-transplant. Dialysis limited her time
Unya, limited imohang time
kay imong una-hunaon ang 3
times a week na dialysis and Had more medications in
then mas daghan ug dialysis since she had
medicines kay before, hypertension that time
nagdialysis ko, naa koy
hypertension. Then after na-
transplant ko, after a month, Blood pressure returned to
lower na, normal na jud akong normal one month after the
blood pressure. Back to transplant
120/70. Dili na jud siya mo-
130, 140. Wala na jud.
I: So youre off anti-
hypertensives na?
R: Dugay na. One year kapin One year off anti-
na wala na jud koy gi-kuan na hypertensives
medicine kana ra jud sa Takes anti-allergy for her
allergy nako, prone man ko ug allergic rhinitis
allergic rhinitis.
I: Mas mu-suol ba siya karon?
R: Sa katong pag-dialysis
nako
I: Ah, so less karon. Unsay
thoughts nimo having
undergone kidney

Entertained fear of transplant
failure
Apprehension on the operative
day if the donor would pursue
with donation
Experienced certain lapses in
verbalizing thoughts after her
numerous previous operations
Tried peritoneal dialysis
Recalls insertion and removal
of previous dialysis sites
Previous dialysis site served
as safety net in case of
transplant failure
For a time was unaccustomed
171
transplantation?
R: Kuan, naa jud siguro na, Acknowledges her fear that
normal, naay fear. Naa kay the transplant wont succeed
fear sa what if makuan siya,
dili siya ma-successful ba.
Murag kuan ang imong donor Apprehension on the operative
kung mo-donate ba jud nimo? day if the donor would come
What you call that one? through in donation
Usahay naa sa akong utok
pero sa kadaghan sa akong
operation um. <laughs>
I: Times sa, do you mean
rejection?
R: Rejection. <nods> Ako sad Acknowledges fear of rejection
nabantayan sa akong utok Notices her brains sometimes
kuan naa kay gusto isulti dili have a hard time voicing out
kaayo kakuan. Siguro sa her thoughts which she
akong mga gi-agian na attributes to having undergone
operation kay di man lang numerous surgeries already
kana na operation akong
nakuanan gud.
I: So what were the operations
imo naagi-an?
R: Sa katong peritoneal. Peritoneal dialysis
I: Before na siya sa transplant,
naka-agi diay ka ug peritoneal
dialysis?
R: O, kani akong mga Kani Recalls insertion and removal
siya na-infection sad ni. of previous dialysis sites
<points to previous dialysis
sites> Murag twice sad ni
nailisan. And the kini siya sa
England nag-ilis sad mi ani
Ai wa, nowa mi nag-ilis but
nakuan ko ani for three weeks
na-admit ko ani, na-confine ko
ani for three weeks kay nag-
infection siya. And then kini
twice pud, twice mao gi-kuha
na siya, wa na siya na-bulkay
<points to left forearm>.
I: After the transplantation ba
na siya nakuha?
R: After gi-make sure nako na Afraid to remove dialysis site
di ko makuan <laughs> after the kidney transplant
Nahadlok. previous site as safety net?
I: Ahbut after the transplant?
R: After the transplant, siguro Delayed removing dialysis site
it took four to five months usa after the transplant since she
nako gipakuha. Bahalag naa got fear the transplant might
sa siya dinha. <laughs> fail
I: So 4-5 months after
transplant wa pa nimo
gipakuha?
R: Feeling man gud to nako Not used to not having the

to not having the dialysis site
Cautious of antibiotics effect
on the kidney graft
Recalls that arm with dialysis
site felt heavy
Recalls engorged veins in her
dialysis sites
172
mabag-ohan ko. So dugay- dialysis site so it took time for
dugay sad nako ni gipakuha. the removal
Nipuyo jud siya diri. <laughs>
I: When were you advised diay
ipatangtang siya?
R: Actually ingon si Doc after Advised removal of dialysis
two months. site two months after the
transplant
I: Ah, so ni-extend ka?
R: Ni-extend lang ko kay Apprehensive ofantibiotics
hanap pa pud ko kay naa effect on the kidney graft
napud antibiotics so basin
bag-o pa. Maayo ng sa dugay-
dugay. Pero actually kani siya
usa ra ka antibiotic akong gi-
take. Nagsige ra jud ko ug
inom ug tubig. Unya hadlok
pud ko ug antibiotic unya mo-
trigger napud siya. Wala ra so
far.
I: Nagka-episode diay na siya
ug infection?
R: Kini. No.
I: Ah. But was the purpose of
the antibiotic na ni-inom ka?
R: Kuan siguro, pag-opera Had to take antibiotics after
siguro pag-open the removal of the previous
dialysis site
I: Ah sa pagpa-remove na
diay. Kay nag-mention man
gud ka nagtake ka antibiotic
for this one.
R: After na.
I: Bale preventive ra siya bale
pag-open niya.
R: O, ingon siya bag-o pa ka
na-transplant basin siguro ila
lang gipahatag just to make
dili ko mag-infection kay
nagtransplant pa ko bag-o
I: How did it feel na gitangtang
ni siya na fistula?
R: Mura kagKani siya, bug- Recalls that arm with dialysis
at man gud ni siya. Feeling felt heavy before
nako bug-at siya ba
I: Ang arm bale?
R: Ang arm. Kay ni dako man Recalls engorged veins in her
siya diri. Bulkay baya na siya dialysis sites
dinha. So nidako akong ugat.
Ang ugat ron wala na siya.
Dako man kaayo ni diri. Dagko
kaayo akong ngari. <points to
left arm> Actually ni dako ni
siya. Dako kaayo ni siya ngari
hangtud diri. <traces previous

Felt happy with the removal of
the dialysis site
Recalls engorged veins
attracted attention
Noted that the sizes of her
arms are now symmetrical
Conscious of the scars from
previous dialysis sites still
attract attention
173
HD access> Kani bulkay man
ni diri. Pag-remove na, wala
na jud siya. Wa na jud.
I: So how did feel anang
pagkita nimo na wala na jud
siya?
R: Lipay ko <smiles>. Muingon Felt happy that the dialysis site
man ang uban, makakita man, was removed eventually
Unsa diay iya kuan? Ngano
dako man kaayo? Dako man Engorged veins took one
jud to siya kaayo. Maka-bother month for it to fully shrink in
siya ba. Murag di ka kaingon size
na wa na. Na-happy na kaayo
ko na wala na. Ok na jud siya.
Ni-decide jud ko. Pero kanang
mu-take siya ug hapit one
month usa siya, anam-anam
siya kuan.
I: Murag nihiyos?
R: Oo, nihiyos siya.
Nagkaanam-anam siya ug
kahiyos. Mao ni siya <points to
left forearm>. Kana diha. Wala
na gyud.
I: Naa sad diay mutake noice
gyud sa imong arm?
R: Nah, daghan kay dagko Recalls engorged veins
gyud kaayo hasta akong ugat attracted attention
dagko gyud ni kaayo. Dili
pareha diri. Kani ang
nakadako ra sad sa ako-a
dinhi sa pikas. Di ba naa koy
fistula diri. So kini tanan akong
work kani jd siya.
I: Pang-lift nimo.
R: Kay kani siya wala man jud Had the other arm used for
<points to right arm>. Pahulay lifting
man jud nako siya. Kung mu-
liftko murag sakit. Dako sad ni
siya dinhi o <points at
antecubital space>.
I: So karon, niabot ang point
na ni-level na siya?
R: O. Ni-level na siya pareho Noted that the size of her arms
na siya diri. are now symmetrical
I: Karon, maka-attract gihapon
siya ug attention?
R: Aw tungod siguro sa scar. Scars from previous dialysis
Mga scars nako, daghan baya site still attract some attention
ko ug scars. Maka-attract conscious of the previous
gihapon. <laughs> Mga scars scars?
na murag gikuan ug vampire.
Kani ai twice man ni siya gi-
ilisan. <shows right side of her
neck where previous

Recalls having eleven
operations already
Wants to voice out words but
has a difficult time sometimes
Considers administered
anesthesia caused her
difficulty in verbalizing
Eventually remembers what
she wanted to say
Entertained the thought that
she might have Alzheimers
but in the end dismissed it
174
intrajugular catheters were
inserted> Kay nag-infection
man siya at first.
I: Biaw noh duha man diay
siya. Dili diay siya kanang usa
ra.
R: Eleven times siguro ko na- Recalls having eleven
operahan so like gusto ko operations already
musulti kana na word naa sa Wants to voice out words but
imong mind pareho atong has a difficult time sometimes
rejection. Gusto nimo ikuan
pero makalimot.
I: Like naa sa tumoy sa imong
dila?
R: Bisag words sa English, to Has a hard time with
be honest jud, mga English na expressing some English
words na gusto nimo istorya words
dili jud nako mastorya. Siguro The most major operation was
ang pinakuan jud to ato siguro the kidney transplant
ang kidney transplant. Mura She attributes it to the
kagDi ba ingon sila basta anesthesia she had
mag-anesthesia kay murag
naa kay something di ka
kakuan.naakay something
makalimot ka gamay. Not
totally, pero naa jud kay gusto
istorya di jud nimo bah
I: Mu-take time na bale ba?
R: Pero pag-after Ah oh, kana Eventually remembers what
diay. <laughs> she wanted to say
I: Naa kay Aha moment.
R: Oo, kana. <laughs> Mga Entertained the thought that
words na, unsa man ni she might have Alzheimers
makahunahuna ko Alzheimers but in the end dismissed it
na ba kaha koa ani? <laughs>
Di man siguro Alzheimers kay
kung naa koy ganahan
buhaton, mabhuat man
gihapon nako. Kana lang jud
wordspareho atong
rejection. Sa ako jud mind,
rejection jud pero dili nimo
mastorya gani.
I: But before sa dialysis naa
nay episodes na ingonana?
R: Oo. Nikuan lang jud karon. Her niece sometimes asks her
Kay naa gihapon pero dili things which take time for her
kaayo. Karon napansin nako to think over
naa jud koy makalimtan na
words oe. Unsa man ni na
word?, mga iingon ana ba.
Pag-umangkon nako Tita, tita,
unsa English sa kuan? kana
gani ingon nako, Patay, hala,
unsa gani to akong gi-ingon?

Open to her family regarding
her difficulty in verbalizing
Makes an effort to engage in
activities that keeps her mind
alert
Engages in breathing
exercises by the seaside
Initiates getting needed
supplies
Rarely eats processed food
175
Nakalimot jud ko. Karon na
ha. Kani gusto ka moestorya,
Unsa man ni si tita oe.
I: Imong pag-umangkon bale.
R: Oo. Si tita, daghan man Explains to her niece why she
gud operation. <laughs> Mao cant readily recalls at times
na karon, sige ko basa. Sige Makes an effort to engage in
jud ko basa. Di ba kung wa activities that keeps her mind
kuno kay buhaton di ba the alert
time nagdialysis ko wa kaayo
buhaton murag naa ra ka sa
kwarto, mupahuway ka, kapoy
ka. Makalakaw ka Sunday ra
makalakaw. Kapoy kaayo ka
unya wa koy buhaton,
magsige ra ko hinuktok.
People nga left without
buhaton mas prone siya sa
Alzheimers disease, ingon
ana. Pareho anang tigulang na
dili na palihukon imo na lang
pakuanon. Nakabasa ko sa
Readers Digest, di jud dapat
na nimo ikuan. Hangtud kuno
naa siyay pwede mabuhat na
gaan para niya, na pwede diay
siya, dili nimo bawalan, so
unya kung wa sad kay
gibuhat, magbasa-basa jud
kuno ka para dili makuan imo
mind.
I: Unsa mand pud imong hilig
maam?
R: Kasagaran religious man. Likes to read religious
Unya murag everyday naa mi materials and current events
Inquirer, Sunstar, pakayaw na from newspapers
tanan
I: So mga current events and
religious
R: Mao to akong buhat sa Goes to the seaside in the
amo. Unya adto ko sa daplin morning to do some breathing
sa dagat. Duol man mi sa exercises
daplin sa dagat. Inig morning
inhale, exhale ko didto. Goes to the nearby town to do
Kasagaran mag-groceries mi, groceries and stocks up on
layo man kay mag-lantsa pa supplies
20 mins. So twice a week ra.
Magpakuan nalang ug daghan
kaayo water ug unsa pa na
amo gamiton. I-stock na nimo
daan. Unlike sa meat, kay naa
man fresh na market sa inyo,
so pwede ra to. Actually Still eats limited amount of
mukaon man gihapon ko ug canned goods
canned goods pero restricted
gyud siya. Kanang usa ka

Prefers clear soup dishes
Refrains from acidic dishes
Refrains from fried food
Observes a certain diet to
accommodate her co-
morbidities
Wants to promote kidney
transplant to other people who
need it
176
kutsura na corned beef di ko
kahurot ana. Di na jud ko
ganahan. Murag kuan na gyud
ko. Gusto jud ko mga bisaya Prefers vegetable soup,
na utan, tinolang manok, chicken and fish soup without
tinolang isda, nga walay patis, the added condiments
walay toyo. Unya nilat-ang Also likes pork and beef soup
baboy ug baka. Ana nalang as long as its clear soup
ko, mga puti-puti na sabaw. Di
ko ganahan ug paksiw pud. Refrains from eating vinegar
Ganahan ko pero dili kaayo stewed dishes since her
kay musakit ako tiyan. So di stomach aches from its acidity
ko mukaon.
I: Sa suka bale?
R: O, sa suka. Fried ka pirmi, Also refrains from eating fried
sakit pud imu tiyan so murag foods since it also upsets her
dili ra pud siguro.To be honest stomach
ang akong kidney para nako, Feels her kidney function
ok kaayo siya. Naa man gud doing well
koy mga sakit na dili siya Adheres to certain diet not just
connected sa kidney. Naa sa because of her kidney
gastroesophageal refluex, sa transplant but because of her
akong polycystic ovaries. So co-morbidities such as
naa sad koy pamati-on na dili gastroesophageal refluxa and
jud siya connected sa kidney polycystic ovaries
na naa na jud siya nako daan,
before pa ko gi-diagnose na
naa koy kuan kanang renal
failure. So dili siya para lang
jud sa kidney transplant. The
whole jud kidney transplant
imo hisgutan, I will advise
people nga having dialysis to
have a kidney transplant gyud. Wants to encourage people on
Theyum...Kuan ra gyud, dialysis to have a kidney
layo ra gyud ila life, ang ilang transplant since their life would
ma-experience, ang ilang life be totally different since you
changes kung youre are freer to do your routine
undergoing dialysis compared
to nag-kidney transplant ka.
Kay you can still do want you
want to do, like before.
Although actually kung
magdialysis ka, you can work
man pero, syempre
compromise jud ka kay mag-
adjust ka didto, pa-adjust ka
sa imo boss.Pa-adjust ka sa
imo time para sa dialysis.
Tired pa jud ka inig human.
But youre having kidney
transplant, kay ok labi na wala Thinks that kidney transplant is
lang juy rejection. Mukuan ka fine as long as theres no
sa imohang medication, sa rejection and your complying
imong immunosuppressants, your medications
wala man koy problem and

Cautious of acquiring infection,
still wears a mask when
heading outside
Not returning to previous work
that exposes her to infection
Considers other career options
available to her
Feels sad leaving her previous
career to protect her health
post-transplant
177
imo i-first i-check ana sa mga
tao, kana ra man jud crowd. Didnt encounter major
Well ingon si doc na few problems post-transplant
months ra wear ug mask pero She checks out the crowd
wala na nako gi-follow kay when she goes out
until now when I go out gyud, I Advised to wear a mask for
wear mask. Bisag musimba ko just a few months but she
sa amua, I still wear mask. continues to wear a mask
Para lang gyud maka-sure. when she goes out to protect
Anyway, naanad naman sad herself making sure?
ko ana. <laughs> So wala.
Karon maka-work sila kung
unsay gusto na work, maka-
work sila anytime, total time sa
24 hours makakuha na gyud
sila sa normal na kuan pareho
before wala pa sila na-
diagnose kuan ESRD. So
maka-work sila. So ultimately
kidney transplant will make
your life changed gyud
compared to katong gi-dialysis
pa ka.
I: You mentioned about maka-
work, what are your plans
regarding work?
R: Gusto unta ko laing field Considers not returning being
nga dili medical kay naay mga a nurse for the job exposes
masakiton. A lot of people her to various infection and
advised me na you dont have that is difficult with her taking
to go back to being a nurse jud immunosuppressants
kay prone jud ka sa infection,
labi karon na wala pa jud
gihapon ginaog akong
immunosuppressants. Kay
kung kuan, kung laing field Venture another field but that
moskwela napud ka. Ang ako would mean going to school
lang unta office lang. pero this for that
time, business sa ko. Wants to do office work or
have her own business
instead
I: Oh. So either office work or
business. How do you feel
youre not gonna go back to
your field before?
R: Sad ko. Actually kana na Feels sad that she has to
field, sa school di man jud ko leave her nursing career
ganahan ug nursing but when sadness over losing ones
I experienced working as a career before
nurse, murag you love doing
your job. Dili lang siya kuan...
You touch other peroples lives
na makatabang sad ka. So
sad ko nga pila gud to ka
years na gipaghirapan nato
kuan you worked hard on it so

Doesnt want to go back to to choose siguro karon. I have
dialysis
Found a compromise between
her previous career and her
present life
178
its just sad ingon ana. I have Felt she had to choose, her
career or her well-being
to be more kanang careful Felt she has to be more
lang jud ko. Na-experience na careful since she doesnt want
gud to nako two years na to go back on dialysis
dialysis. I dont want to go
back to that position. Sad man Felt sad but thinks its not the
to kuan pero siguro like dili end of the line for somehow
man nganha ko kutob. Right she has found a way to help
now to be honest in our town, people with health problems in
a lot of people, ako may her town compromise on still
nahimog murag doctor ngadto. living out her previous calling
<laughs> They ask me a lot
about, not just family members
like Pwede BP-han si
Mama?, like naa koy extra na
mga medications ako ihatag
nila kung wa may ikapalit ang
mga tao didto. You can give
medicaitons nga kahibaw ka
kadto imong napang-agian
nimo na medications kay
nakakuan ka sa imong mga
doctors. Imo man nimo ma-
apply imong mga learnings sa
pag-work nimo, so na-apply
gihapon nako. Like naa koy
duha ka patients na-stroke
ron, although dili everyday imo
kuanon. Murag wa ka ni-stop
ba. Bisag dili na jud ko mu-
choose na work sa hospital sa
among kuan mahimo gihapon
nimo, like katong naay
nakuyapan. Nagduha-duha ko
kay uwan jud kusog unya
basin mahilantan ko pero
siguro naay calling nimo ba,
maka-ingon ka, dapat kay
walay lain nakahibaw. Imagine
na 30 minutes to 1 hour nato
nakuyapan? Unsaon man
pagkabalik ato ang tiil gud niya
nag-ana ra gyud. <shows
slumped position> Wa jud siya
natarong elevate oe. Kuan, so
makuan na jud nimo
<coughs to clear her throat>
I: Inom lang sa ug tubig
R: Tuk-an ko <goes to the
kitchen>
I: Maam, going back to what
you mentioned na polycystic
ovarian syndrome. How was
that managed after your
transplant?

Kidney transplant took
precedence over management
of her co-morbidity
Needs to consult her doctor if
she plans to be pregnant
179
R: Pila pa ka months after Had to stop her pills for her
transplant. Wala jud si polycystic ovaries after the
[nephrologist] magpa-take ug transplant
pills nako. Wala, gi-stop jud
siya. Pero ingon si doc, pag-
one year three months, you
can take already.
I: So gi-stop lang sa imong
pills to address na kana na
problem?
R: Oo. So set aside sa kay
mao man jud ang pinaka ang
kidneys. But so far akong
gipa-ultrasound, ingon man No problems detected in the
ang doctor polycystic gihapon ultrasound of her ovaries
ka pero walay problem so far. although she has to see her
Walay dagko na cyst, ok ra. gynecologist to report pain in
Pero ang kuan lang siguro her lower abdomen that seem
musakit jud akong tiyan to mimic menstrual pain
tungod siguro sa kana. Wala
man siya. Every month, feeling
nako kana na day gi-regla ko
kay for seven days sakit jud.
Kaayo pero wala siyay blood.
Mao ng akong gikahadlukan
pero ingon ni doc inigbalik
nako adto ko sa OB nako.
I: Ang pills kay maoy mu-
regulate bale?
R: O, i-regulate kay di man jud The pills regulated her
siya irregular cycle
I: Pila na ka months wala ka
gidugo?
R: September last<counts> Didnt have menstruation for
Eight months na. eight months already
I: Eight. So ang gi-prioritize sa
nila ang immunosuppressants
kaysa pills, after na bale.
Bitaw sad noh, kay even with
concerns sa contraceptions
and pregnancy kay i-push
back sa date kanus-a when
magrelations and pregnancy
kay i-adjust pa ang dosages
nimo.
R: Ikuan man na nila, moingon Her OB-gyne doctor advised
man ang OB-gyne na kung her to seek consult if she plans
naa kay plano magpregnant to be pregnant so her
ka just tell us. I-adjust ra man immunosuppressants can be
sad. Nag-pills ko adto nag- adjusted accordingly
dialysis ko.
I: Going back sa imong
namention na mask wearing.
So how did you feel whenever
you wore thee mask and you

Felt awkward with the scrutiny
mask wearing induced
Family protects her from the
scrutiny
Kept open communication with
her family regarding her
condition
Wants to have her own child
someday
Takes into consideration her
transplant status when
considering having her own
child
Not in a relationship at present
Nephrologists paternalistic
role to his patient
are around people?
R: Sometimes ma-awkward
sad ko kay usahay uban tao,
Naa na siyay sakit?,
Makatukod na siya? or Arti
kay nag-mask, ingon ana.
Kabati man ka naay mo-ingon,
Naa na siyay sakit?, Naa
siguroy sakit,ana. <laughs>
Akong mga pag-umangkon na
nuon moingon, Hala oe,
transplant baya si mommy.
<laughs> Ah to the rescue ang
mga bata.
I: To the rescue mga pag-
umangkon.
R: Mao na siya. Unya mu-kiss
dayon Di man gani siya o.
Unya kahibaw napud na sila
na kung naa silay mga sip-on
ubo, distance sila nako na
prone ko ba. Na-explain
naman pud nako. Ni-take ko
ingon ani, kung naa mo-ingon
ana mokuan lang mo nako o
mag-mask mo.
I: Do you tell them or sila na
mo-initiate?
R: Kahibaw na na sila bisag
mga bata pa na sila.
I: Do you plans to have your
own kids pud?
R: Mao juy pinakakuan jud
nako karon. If given the
chance of course. Bahalag
usa basta naa. <laughs> Kay
swerte na siguro ka matagaan.
Para sa ako, pwede wa ko
bawali pero syempre, sa
practical side karon mo-enter
ka ana na kuan, ready ka kay
naa pa kay daghan gikuan. Dili
man lang kana imo present
huna-hunaon. What if? Naa
man ka mga what-ifs so siguro
kung kuan na mu-abot na sa
time. Di pa lang siguro karon.
I: You dont mind me asking is
there somebody you have
plans with to have kids?
R: Wala. Wala pa right now.
<laughs> Si [nephrologist]
man pud ni-ingon Ayaw sa
pag-relation. Siguro two years,
180
Felt awkward wearing the
mask sometimes since people
speculate why she wears a
mask - mask wearing causes
social stigma?
Her nieces and nephews
explains to others that she had
a transplant thats why shes
wearing a mask
She already explained to her
nieces and nephews that if
ever they have active
infections, they should take
precaution and they do so.
The nieces and nephews
understand even in their
young age
Wants to have her own child
someday
Shes not forbidden to have
kids but she thinks about the
practical side of things
She thinks about the what-ifs
so shed postpone it to a later
time when she feels more
ready takes into great
consideration her post-
transplant status before having
her own child
Not in a relationship at present
Her nephrologist advised her
not to enter into relationships
yet

Wants to gain financial stability
before venturing into a
relationship
Financial implications of
treatment regimen
Success of her business is a
factor in settling down
Believes that relationships has
its own given time
Did reconnect with friends
although interrupted by a
calamity in their province
181
three years, wa ta kabalo.
Doc man gud hadlukan
unsahay ba. Mao nikuan lang
sa ko sa unsay advise sa
akong doctors.
I: Have you entertained suitors
ba ron?
R: Not yet pa jud.Naa man but Has some suitors but shes not
not yet pa jud. Feeling nako entertaining them
dili pa jud time
maskigboyfriend-boyfriend. Di
pa ko kuan... Naa pa koy She still has this goal of seting
gikuan na goal para kana siya up her business so she can
akong mga needs karon, finance the huge costs of her
financial needs. Naa koy plan treatment regimen
na business gud. Siguro Wants to be ready if ever she
makakuan nako ana, murag does enter into a relationship
pwede na pero dili pa jud, not
this time pa jud. Once
musulod ka ana ready na.
Pero dili pa karon kay dili pa
jud pwede. Sa tambal pa lng
jud karon, dili pa jud pwede
kay dako pa jud siya kaayo.
I: Ang monthly pud
anagastohan,
saimmunosuppressants mga
pila pud?
R: Mga 40 plus pa karon Presently spends P40,000
plus/month
I: 40 plus
R: Pero dako na kaayo na ug Previously had P83,000/month
kuha. Kay 83 man to first cost
I: Kay dako-dako pa to ang
dosage?
R: O, dako-dako pa ug daghan Her monthly cost lowered over
pa tambal. Nagka-67, hangtud the months since some of the
na 47. So dili na kaayo. Murag doses were lowered or some
kung mokuan na sad mo- medications were discontinued
ubos. And through Gods will Hopes her business does well
ma-successful ako negosyo. since by that time she will be
Siguro kana maka-settle down more prepared to settle down
nako, ana ba. Kay kung and have a relationship
moingon man kag relationship, setting priorities?
dili manMuabot ra man jud Believes that if the relationship
na. Kung imo nasad jud na, is meant to be, then it will
bisag unsaon nimo ingon Dili, happen
dili pwede ingon ana jud na
siya. So di man ka kaingon.
I: Naa ba nagparamdam?
R: Naay mga nagparamdam, She did catch up with some
mga nakaraan na naputol sa former acquaintances through
Yolanda kay wa jud ko the internet but since a
hangtud karon wa koy internet calamity struck their place, that
connection. <laughs> Mag-wifi was put off

Mindful of the needed
precautions when taking her
immunosuppressants
Establishing independence by
planning to finance her
treatment regimen
Felt she needed to do what
normal people do since shes
already transplanted
ka wa gihapon kay di man ka-
connect. Muadto jud ka ug
baybayon baktas ka didto.
Naa baya koy medication na
Mycophenolate, bawal baya
jud magpa-init. Mao diay na
bantayan nimo sa
immunosuppressant prone ka
sa skin cancer. Ang usa kay sa
diabetes. Dili man problema
kay dili ko hilig ug sweets.
I: So later sa mo, pause. Unsa
man pud negosyo nahuna-
huna na gusto nimo sudlan?
R: Piggery. Kay actually didto
sa amo, kusog jud ang piggery
karon. Then nisuway ko usa
kabuok dako jud kaayo imong
ginansya. So palit ka ug 10
kabuok. Kwenta ko after 4
months, maka-earn ka ug 100
plus by that magkatikapuno na
siya. So pwede naka ikaw na
mismo. Dili nakoKay karon
nagdepend pa jud ko sa akong
sister, sa akong auntie ug
tabang. Actually naa koy work
aside from that. Naa jud koy
plan mu-work nga naa lang
sad koy gi-wait sad jud. Wala
pa lay sure pero mu-signal
nako na-ok na.
I: Unsa na siya, office work?
R: Dili. Home-based lang.
After ana naa pa kay income
na wa kay gibuhat, magpa-
kuan ra ka ug tao, so mu-
check ra ka didto dili man
kaayo hasol nimo. Magkuha
lang ka ug duha ka tao,
magpatukod ug ad. Mao na
ako i-business. Ni try man ko
sell ug products pero dili ko
ganahan. Dili pud ko ganahan
anang mupalit ug ATM card
then magpa-interest,
mahadlok o ana. Dili ko
katulog ana. Kani ako negosyo
limpyo man.
I: So naka-explore ka ug
different options?
R: O, bisag naa ra ko sa
house. Syempre naa gihapon
nag huna-huna dili pwede
pirmi nga Transplant na gud
182
There was a weak wifi
connection but meant she had
to expose her self in the sun
which she avoids since shes
taking mycophenolate which
makes her prone to cancer
Also has to watch out for drug-
induced diabetes but does not
consider it a problem since
she is not into sweets
Wants to have a piggery
business since its booming in
their town
Wants to gain financial stability
so that she can finance her
treatment regimen
At present, her sister and aunt
supports her treatment
regimen
Also would like to do another
job
Wants to do a home-based job
aside from her piggery
business
Plans to get people to work in
her piggery while she
oversees them
Tried selling products but
didnt like doing so
Doesnt like venturing in loan
business
Thought of her other options
Didnt want to just stay at
home and do the same routine
Felt that with transplant, shes
 183

ko, normal na gyud. Akong normal

feeling kuan na gyud kaayo.
Why stay diri sa corner sa
balay? Mao ra ni routine nimo
everyday, wake up, cook, eat,
sleep. Murag everyday,
everyday, everyday. Naay Felt that she never totally
time, mao lage to giingon nako abandoned her previous
na ma-nurse na gai ka, naa career as she helps the sick
jud time naay mutawag nimo, people although she takes
adto-a si kuan, mag-mask lang precautions like she wears a
jud ko. Ingon ana siguro mask
nakuan gihapon nako bisag di
ko mu-work as nurse. Kaya ra
man sad diay ingon ana gani.
So ok ra sad. Mao na mosulod
ko ug business kay di pa sad
ko ganahan work. Unya naa There was an offer for her to
man pud ni-offer nako na do a home-based job
Why not na work na youre
just sitting down, 1 to 3 hours
ra? Maka-make money naka?
So siya assistant siya before
ug General pero she is also
working home-based.
I: Naa man mga home-based
pud na encoder, data encoder.
R: Ingon jud siya daghan Wants to do the home-based
options. Breadwinner man siya job
sa family. American man iya
boss. Ako na kuanon? Sige,
sige go ko ana.
I: Naa kay nahuna-huna-an
mga tao kuhaon nimo for your
business?
R: Naa na. Naa mi katabang Already has people in mind to
ngadto. Pwede pud ako in- help out with her piggery
laws na walay gibuhat. Sige business already in the
kamo diha. Naa moy kita. Naa planning stage of business
may percent-percent. Kana na
business. Ang mo-bantay ana
naa silay share. Ilang share
dili sila dehado ana.
I: Either palawog, patubig ug
limpyo?
R: O. Mao ra na. Wa ra nay Piggery business before
problema. Unlike sa anay. helped her parents put them
Hasol ang anay. Di ko mag- through school
anay. Hadlok na ug linog,
mostly mamatay na ila baby.
Naigo man mi ana sa una.
Mao baya nibuhi namo sa una.
Pila gud mi, 4 mi, 2 college ug
2 ka highschool na private
unya college sa Cebu.

Sense of pride being able to
work after undergoing kidney
transplant
Deferred plans considered
more strenuous
Her focus is to protect her
health
184
I: Howdo you feel that youre
open to other options? Your
thoughts and feelings.
R: Siguro happy. Murag maka- Feels happy that she has other
ingon ko murag na-uplift ka. options
Mostly mangutana man ang Able to answer people who
uban, Pwede pa diay ka doubt if transplanted people
katrabaho?,ana ba. O oe. can still work able to
Pwede pa diay ka-ingon maintain independence
ana?, ingon ana ba. Pwede
oe. Syempre ang uban na
kahibaw.
I: But were there moments,
ikaw nakahuna-huna na
Pwede pa ba?, naka-
question ba ka?
R: Sa work siguro nakahuna- Thought about going abroad
huna pud ko not the work na but then thought it might be
maghome-based. Akong gi- strenuous so she preferred
plan ato is kanang magpa- doing business instead
kuan ko sa akong sister. I go
abroad and then di ba ila
schooling didto is different
from ours, ngari man gud, four
year course ngadto dili man.
And then sa hotel, so
reception. Akong auntie
supervisor man sa hotel sa
England. Nakahuna-huna ko
ato pero gamay ra siya then
bug-at pa. Akong thoughts
mao sayon ang money sa
business.
I: If papili-on ka, would you
stay or go abroad?
R: To be honest siguro di pa Does not totally erase plans to
ko ka-ingon kay once mu- go back abroad but if her
boom na siya na business, business does well she prefers
Why not stay here than go to stay
abroad? Malayo pa ka. Mu-
byahi pa ka mao ra ako.
Siguro you go abroad if you Would rather go abroad for
have money suroy-suroy na leisure travel and not for work
lang ka kaysa mag-work
ngadto. Siguro kung tagaan
chance maka-work ngadto.
Ang ako man gud focus karon Her focus is to take care of
is to maintain, dili nako health and not go back to
ganahan mubalik sa time being ill
ingon ana gani.
I: Thank you kaayo sa pag-
share sa imong kaagi
R: Pasesnsya kaayo sa akong
ubo.
I: Ok ra maam. Thank you.
 185

Chronological List of Themes Interview Six

Prefers to cook her own meals

Her daily routine in the province is not that hectic
Feels more normal than in dialysis since she can do whatever she wants to do
Limitations she had during dialysis
Feels different and in better health
Normal routine involves cooking, watching television and reading books
Has not resumed work yet
Will not resume her nursing career
Stays at home for now
Conscious of her dietary intake
 186

Accustomed to the diet restrictions

Adjusted to the increased water intake post-transplant
Feels freer with the dietary specifications after the transplant
Rarely gets seriously sick post-transplant
Still maintains a high dose of immunosuppressants
Experienced steroid-induced puffiness of face
Steroid-induced puffiness went away after the steroid was tapered
Experienced immunosuppressant-induced high blood sugar and cholesterol levels
Takes an antacid to counteract that immunosuppressant-induced gastric upset
Needs to take nerve supplements to prevent paresthesias
Kidney transplant brought big changes as she is able to return to her normal routine
Dialysis entailed more time and more medications to maintain
Blood pressure returned to normal one month post-transplant
Entertained fear of transplant failure and rejection
Apprehension on the operative day if the donor would pursue with donation
Experienced certain lapses in verbalizing thoughts after her numerous previous operations
Tried peritoneal dialysis
Recalls insertion and removal of previous dialysis sites
Previous dialysis site served as safety net in case of transplant failure
For a time was unaccustomed to not having the dialysis site
Cautious of antibiotics effect on the kidney graft
Recalls that arm with dialysis site felt heavy
Recalls engorged veins in her dialysis sites
Felt happy with the removal of the dialysis site
Recalls engorged veins attracted attention
Noted that the sizes of her arms are now symmetrical
Conscious of the scars from previous dialysis sites still attract attention
Recalls having eleven operations already
Wants to voice out words but has a difficult time sometimes
Considers administered anesthesia caused her difficulty in verbalizing
Eventually remembers what she wanted to say
Entertained the thought that she might have Alzheimers but in the end dismissed it
Open to her family regarding her difficulty in verbalizing
Makes an effort to engage in activities that keeps her mind alert
Engages in breathing exercises by the seaside
Initiates getting needed supplies
Rarely eats processed food
Prefers clear soup dishes
Refrains from acidic dishes
Refrains from fried food
Observes a certain diet to accommodate her co-morbidities
Wants to promote kidney transplant to other people who need it
Cautious of acquiring infection, still wears a mask when heading outside
Not returning to previous work that exposes her to infection
Considers other career options available to her
Feels sad leaving her previous career to protect her health post-transplant
Doesnt want to go back to dialysis
Found a compromise between her previous career and her present life
Kidney transplant took precedence over management of her co-morbidity
Needs to consult her doctor if she plans to be pregnant
Felt awkward with the scrutiny mask wearing induced
Family protects her from the scrutiny
Kept open communication with her family regarding her condition
Wants to have her own child someday
Takes into consideration her transplant status when considering having her own child
Nephrologists paternalistic role to his patient
 187

Not actively entertaining suitors

Wants to gain financial stability before venturing into a relationship
Financial implications of treatment regimen
Success of her business is a factor in settling down
Believes that relationships has its own given time
Did reconnect with friends although interrupted by a calamity in their province
Mindful of the needed precautions when taking her immunosuppressants
Establishing independence by planning to finance her treatment regimen
Felt she needed to do what normal people do since shes already transplanted
Sense of pride being able to work after undergoing kidney transplant
Deferred plans considered more strenuous
Her focus is to protect her health

Theme Table for Interview Six

Themes Page Key words

Establishing the new normal

Prefers to cook her own meals
Her daily routine in the province is not that
hectic
1 Just staying at home unya doing normal
things like, usually in the morning I cook
breakfastMao gihapon na afternoon,
dinner cause prefer ko ako juy mo-cook sa
akong diet.
1 And then wala man kaayo koy gibuhat sa
amo kay naa ra ko sa probinsya. Sa gawas,

Feels more normal than in dialysis since
she can do whatever she wants to do
Normal routine involves cooking, watching
television and reading books
Stays at home for now
Conscious of her dietary intake
Accustomed to dietary restrictions
Adjusted to the increased water intake
post-transplant
Kidney transplant brought big changes as
she is able to return to her normal routine
Engages in breathing exercises by the
seaside
Rarely eats processed food
Prefers clear soup dishes
Refrains from acidic dishes
Refrains from fried food
Observes a certain diet to accommodate
her co-morbidities
Cautious of acquiring infection, still wears
masks when heading outside
188
sometimes I go out for groceries. Wala kay
ma-shoppingan ngadto kaayo. <laughs>
Ang kuan ngadto sa province kuan ra man
Gaisano, Robinson groceries ra man. So
wala kaayo buhat.
1-2 Maka-ingon ka ug normal basing sa tanan
nimo gusto buhaton pwede na nimo
mabuhat.
2 Magluto ra. Magluto, mangitag TV. Uhm
more on read books.
2 Wala. Naa ra ko sa balay. Mao ra gyuy
usual nako buhaton.
2 DAT gihapon, low-salt gihapon, low-sodium
wala mao ra na. Unya mga softdrinks, di ko
tig-inom softdrinks, alcoholic drinks pud.
2-3 Wala ra kay before sa mag-dialysis ka,
restricted man ka ug food.
3 So karon, bisag sa fluid, sa ma-inom na
fluid, maka-inom ko ug 3-4 liters a day. Mao
na akong ma-inom. Usahay gani
makuwangan ko ug 4 liters. Murag naanad
na akong body ba unlike sa dialysis pa ko
kuan rato ako a 800 ml.
4 Murag dako siyang changes kay nibalik ra
ka sa imong normal routine jud ba sa imong
life, unlike before na wala pa ka na-
transplant.
9-10 Unya adto ko sa daplin sa dagat. Duol man
mi sa daplin sa dagat. Inig morning inhale,
exhale ko didto.
10 Actually mukaon man gihapon ko ug canned
goods pero restricted gyud siya. Kanang
usa ka kutsura na corned beef di ko kahurot
ana.
10 Gusto jud ko mga bisaya na utan, tinolang
manok, tinolang isda, nga walay patis, walay
toyo. Unya nilat-ang baboy ug baka. Ana
nalang ko, mga puti-puti na sabaw.
10 Di ko ganahan ug paksiw pud. Ganahan ko
pero dili kaayo kay musakit ako tiyan. So di
ko mukaon.
10 Fried ka pirmi, sakit pud imu tiyan so
muragdili ra pud siguro.
10 Naa man gud koy mga sakit na dili siya
connected sa kidney. Naa sa
gastroesophageal refluex, sa akong
polycystic ovaries. So naa sad koy pamati-
on na dili jud siya connected sa kidney na
naa na jud siya nako daan, before pa ko gi-
diagnose na naa koy kuan kanang renal
failure. So dili siya para lang jud sa kidney
transplant.
11 Well ingon si doc na few months ra wear ug
mask pero wala na nako gi-follow kay until
now when I go out gyud, I wear mask. Bisag

Kidney transplant took precedence over
management of her co-morbidity
Needs to consult her doctor if she plans to
be pregnant
Her focus is to protect her health
Kidney transplant as a new lease in life
Feels different and in better health
Feels freer with the dietary specifications
after the transplant
Rarely gets seriously sick post-transplant
Blood pressure returned to normal one
month after the transplant
Wants to promote kidney transplant to
other people who need it
Doesnt want to go back to dialysis
Perceived body image post-transplant
Felt happy with the removal of the dialysis
site
Recalls engorged veins in her dialysis
sites
Felt happy with the removal of the dialysis
site
189
musimba ko sa amua, I still wear mask.
Para lang gyud maka-sure.
13 Wala, gi-stop jud siya. Pero ingon si doc,
pag-one year three months, you can take
already. So set aside sa kay mao man jud
ang pinaka ang kidneys.
14 Ikuan man na nila, moingon man ang OB-
gyne na kung naa kay plano magpregnant
ka just tell us. I-adjust ra man sad.
19 Ang ako man gud focus karon is to maintain,
dili nako ganahan mubalik sa time ingon ana
gani.
2 Karon lahi ra. Healthy jud ka. Healthy jud
imong paminaw. Lahi ra before.
3 strict kaayo ug diet magdialysis ka. Pero
pag-after naka-transplant naka, although
naa koy kinahanglan kuanun na diet, unlike
sa nagkuan pa ka nagdialysis kay mas
daghan imong mga restrictions, so much
better siya karon.
3 For two years, murag sa far, ok ra man.
Kana lang jud immunosuppressed tungod
sa imong immunosuppressant pero sa
akong part mura gani, di ba
immunosuppressed dapat magkasakit
dayon ko, sa ako-a ron talagsa ra. Makaya
ra sad bisag wala koy antibiotics. Pero
imnan nako ug water.
4 Then after na-transplant ko, after a month,
lower na, normal na jud akong blood
pressure. Back to 120/70. Dili na jud siya
mo-130, 140.
10 The whole jud kidney transplant imo
hisgutan, I will advise people nga having
dialysis to have a kidney transplant gyud.
Theyuhm...Kuan ra gyud, layo ra gyud ila
life, ang ilang ma-experience, ang ilang life
changes kung youre undergoing dialysis
compared to nag-kidney transplant ka. Kay
you can still do want you want to do, like
before.
12 Na-experience na gud to nako two years na
dialysis. I dont want to go back to that
position.
6 After the transplant, siguro it took four to five
months usa nako gipakuha. Bahalag naa sa
siya dinha.
7 Bulkay baya na siya dinha. So nidako akong
ugat. Ang ugat ron wala na siya.
7 Muingon man ang uban, makakita man,
Unsa diay iya kuan? Ngano dako man

Noted that the size of her arms are now
symmetrical
Conscious of the scars from previous
dialysis sites still attract attention
Awareness of the presence of the
transplanted organ
Cautious of antibiotics effect on the
kidney graft
Socialization and interaction post-
transplant
Felt awkward with the scrutiny mask
wearing induced
Not in a relationship at present
Nephrologists paternalistic role to his
patient
Wants to gain financial stability before
venturing into a relationship
Believes that relationship has its own
given time
Did reconnect with friends although
interrupted by a calamity in their province
Support system in the post-transplant
phase
Family protects her from scrutiny
Kept open communication with her family
regarding her condition
190
kaayo? Dako man jud to siya kaayo. Maka-
bother siya ba. Murag di ka kaingon na wa
na. Na-happy na kaayo ko na wala na. Ok
na jud siya. Ni-decide jud ko.
7-8 Ni-level na siya pareho na siya diri.
8 Aw tungod siguro sa scar. Mga scars nako,
daghan baya ko ug scars. Maka-attract
gihapon. Mga scars na murag gikuan ug
vampire. Kani ai twice man ni siya gi-ilisan.
Kay nag-infection man siya at first.
6 Nagsige ra jud ko ug inom ug tubig. Unya
hadlok pud ko ug antibiotic unya mo-trigger
napud siya. Wala ra so far.
14 Sometimes ma-awkward sad ko kay usahay
uban tao, Naa na siyay sakit?, Makatukod
na siya? or Arti kay nag-mask, ingon ana.
Kabati man ka naay mo-ingon, Naa na
siyay sakit?, Naa siguroy sakit,ana.
15 Wala. Wala pa right now.
15 Si [nephrologist] man pud ni-ingon Ayaw sa
pag-relation. Siguro two years, three years,
wa ta kabalo. Doc man gud hadlukan
unsahay ba. Mao nikuan lang sa ko sa
unsay advise sa akong doctors.
15 Not yet pa jud.Naa man but not yet pa jud.
Feeling nako dili pa jud time
maskigboyfriend-boyfriend. Di pa ko kuan...
Naa pa koy gikuan na goal para kana siya
akong mga needs karon, financial needs.
16 Kay kung moingon man kag relationship, dili
manMuabot ra man jud na. Kung imo
nasad jud na, bisag unsaon nimo ingon Dili,
dili pwede ingon ana jud na siya. So di man
ka kaingon.
16 Naay mga nagparamdam, mga nakaraan na
naputol sa Yolanda kay wa jud ko hangtud
karon wa koy internet connection.
14 Akong mga pag-umangkon na nuoun
moingon, Hala oe, transplant baya si
mommy. Ah to the rescue ang mga bata.
14 Unya kahibaw napud na sila na kung naa
silay mga sip-on ubo, distance sila nako na
prone ko ba. Na-explain naman pud nako.
Ni-take ko ingon ani, kung naa mo-ingon
ana mokuan lang mo nako o mag-mask mo.

Coping with the post-transplant phase
Thinks that kidney transplant is fine as
long as theres no rejection and good
medication compliance
Felt she needed to do what normal people
do since shes already transplanted
Dealing with the treatment regimen
Still maintains a high dose of
immunosuppressants
Experienced steroid-induced puffiness of
face
Steroid-induced puffiness went away after
the steroid was tapered
Experienced immunosuppressant-induced
high blood sugar and cholesterol levels
Takes an antacid to counteract
immunosuppressant-induced gastric upset
Needs to take nerve supplements to
prevent paresthesia
Financial implications of treatment
regimen
Mindful of the precations she has to take
when taking her immunosuppressants
Redefining plans and goals
Has not resumed work yet
Will not resume her nursing career
Not returning to previous work that
exposes her to infection
191
11 But youre having kidney transplant, kay ok
labi na wala lang juy rejection. Mukuan ka
sa imohang medication, sa imong
immunosuppressants, wala man koy
problem and imo i-first i-check ana sa mga
tao, kana ra man jud crowd.
17 O, bisag naa ra ko sa house. Syempre naa
gihapon nag huna-huna dili pwede pirmi
nga Transplant na gud ko, normal na
gyud. Akong feeling kuan na gyud kaayo.
Why stay diri sa corner sa balay?
3 O, naa. Murag beforemurag minus lang.
Wala pa jud nakuan ubos. Taas gihapon ang
dosage.
3 Kung muhigda ko akong nawonginstead
ang floor imo makit-an ang nawong akong
makit-an sa kadako siguro. Mao siguro to
effects sa akong steroids.
4 Nawala na. Pila ka months, wala naman.
4 Ai kuan kanang after wala man to nako na-
control akong rice. Akong sugar nitaas diay
to. Cholesterol pud. Ang nakakuan atong
akong sugar kay katong Prograf. Kay kuan
man siya murag mutaas imong sugar, ana.
4 Unya Myfortic. Kanang magsakit akong,
murag acidic, murag hapdos akong kuto-
kuto. Motumar ko ug antacid.
4 Ang nakakuan atong akong sugar kay
katong Prograf. Kay kuan man siya murag
mutaas imong sugar, ana.
4 Mga 40 plus pa karondako na kaayo na
ug kuha. Kay 83 man to first O, dako-dako
pa ug daghan pa tambal. Nagka-67,
hangtud na 47. So dili na kaayo. Murag
kung mokuan na sad mo-ubos
16 Naa baya koy medication na
Mycophenolate, bawal baya jud magpa-init.
Mao diay na bantayan nimo sa
immunosuppressant prone ka sa skin
cancer. Ang usa kay sa diabetes. Dili man
problema kay dili ko hilig ug sweets.
2 Wala pa koy work kay ambot naay laing
plans pa siguro para nako. Dili pa karon.
2 Wala nakoy plans to resume, sa medical.
11 Gusto unta ko laing field nga dili medical kay
naay mga masakiton. A lot of people
advised me na you dont have to go back to
being a nurse jud kay prone jud ka sa

Considers other career options available
to her
Feels sad leaving her previous career to
protect her health post-transplant
Found a compromise of her previous
career into her present life
Wants to have her own child someday
Takes into consideration her transplant
status when considering having her own
child
Success of her business in turn will help
her settle down
Establishing independence by planning to
finance her treatment regimen
Sense of pride being able to work after
undergoing kidney transplant
Deferred plans considered more
strenuous
Coming to terms with adverse
transplant outcomes
Entertained fear of transplant failure
Previous dialysis site served as safety net
in case of transplant failure
192
infection, labi karon na wala pa jud gihapon
ginaog akong immunosuppressants.
11 Kay kung kuan, kung laing field moskwela
napud ka. Ang ako lang unta office lang.
pero this time, business sa ko.
11 So sad ko nga pila gud to ka years na
gipaghirapan nato kuan you worked hard on
it so its just sad ingon ana. I have to choose
siguro karon. I have to be more kanang
careful lang jud ko.
11 Sad man to kuan pero siguro like dili man
nganha ko kutob. Right now to be honest in
our town, a lot of people, ako may nahimog
murag doctor ngadto.
14 Mao juy pinakakuan jud nako karon. If given
the chance of course. Bahalag usa basta
naa.
14-15 Para sa ako, pwede wa ko bawali pero
syempre, sa practical side karon mo-enter
ka ana na kuan, ready ka kay naa pa kay
daghan gikuan. Dili man lang kana imo
present huna-hunaon.
15 And through Gods will ma-successful ako
negosyo. Siguro kana maka-settle down
nako, ana ba.
16 So pwede naka ikaw na mismo. Dili nako
Kay karon nagdepend pa jud ko sa akong
sister, sa akong auntie ug tabang. Actually
naa koy work aside from that. Naa jud koy
plan mu-work nga naa lang sad koy gi-wait
sad jud.
18 Siguro happy. Murag maka-ingon ko murag
na-uplift ka. Mostly mangutana man ang
uban, Pwede pa diay ka katrabaho?,ana
ba. O oe.
18 Nakahuna-huna ko ato pero gamay ra siya
then bug-at pa. Akong thoughts mao sayon
ang money sa business.
5 Kuan, naa jud siguro na, normal, naay fear.
Naa kay fear sa what if makuan siya, dili
siya ma-successful ba.
5-6 After gi-make sure nako na di ko makuan
NahadlokAfter the transplant, siguro it
took four to five months usa nako gipakuha.
Bahalag naa sa siya dinha. After gi-make
sure nako na di ko makuan Nahadlok
After the transplant, siguro it took four to five
months usa nako gipakuha. Bahalag naa sa
siya dinha.
193
 194

Appendix F

Master Table of Themes

Master table of themes for the group

Master Superordinate themes Emergent theme
themes
Establishing A New Lease in Life Life after kidney transplant as
the new a second life, brand new life
normal
Regained hope after the
kidney transplant
Kidney transplant as new life
Felt surge of energy post-
transplant
Kidney transplant is a good
idea for him to have a new life
Kidney transplantation could
give her a longer lifespan
Felt normal functioning was
back after her transplant
Feels different and in better
health
Freedom from Improved physical health
Debilitating Chronic
Kidney Failure
Keywords Page no./
transcript
Andy: Second life jud. Murag brand new life ba gihatag 7-8, 25
sa imo. [ ] murag jud kag gitagaan ka ug new life. New
life gyud.
Kate: Para nako murag na-happy ko after the transplant 2
kay for me there is a hope. Before the transplantation
hopeless na jud ko. <tearful>
Kate: [Kidney transplant is like a] New life. [ ] Happy jud 3, 4
ko sa second life gi-extend sa Ginoo
Rose: right after gyud sa transplant murag taas kaayo 3
akong energy.
Nick: undergoing kidney transplant was a good idea for 1
me to have a new life.
Pam: Dako kaayo. Bale para nako, naay additional 2
lifespan. Murag na-longer gyud akoang lifespan.
Pam: Unya bale murag ni-back to normal na ang 2
function gani sa imong body, ana kaysa compare atong
gi-dialysis
Bea: Karon lahi ra. Healthy jud ka. Healthy jud imong 2
paminaw. Lahi ra before.
Andy: makalakaw nako ug dili nako kutusan.. Dili na 1-2, 22, 24
magsakit ako tiyan dayon. Dili ko dali malipong. Maka-ihi
nako ug regular, normal [ ] Lahi ra jud naka-transplant ka
ug nagpa-dialysis [ ] Unya lakaw-lakaw dili naka
kapoyon [ ] Murag imong feeling nakadaog ka ug
extreme sports, kanang Ironman. Murag ingon ana
imong feeling...

Has less medications for
anemia
Able to resume his studies
Had to stop schooling since
dialysis took much of his time
Menstruation cycle resumed
one month after the transplant
Relief in knowing she can still
bear a child with resumption of
her menstruation cycle
Freer schedule than during
dialysis
Feels freer with the dietary
specifications after the
transplant
The Burden of Being Conscious practice of healthy
Transplanted living
Adherence to new routine as
an obligation
Felt like a prisoner staying at
home
Feeling like normal although
with certain limitations
Feels limited by restrictions by
her nephrologist
195
Rose: So nagsige ko ug Recormon [erythropoietin 12
injections] ato bag-o ko gi-transplant, during transplant
and few weeks after the transplant. Pero karon kay kuan
nalang tablets.
Nick: I was able to resume with my studies 1
Nick: When I was diagnosed that I was having a renal 1
failure, I had to stop because three times a week I have
to undergo a hemodialysis. So I dont have enough time
to study.
Pam: Katong about sa ako ang menstruation. Pag- 5
month after gi-dugo dayon ko.
Pam: Naa pa koy hope na maka-anak pa ko kanang 5
mga ingon ana ba. <laughs>
Pam: Dili na hindrance gani ang kanang maglakaw- 7
lakaw sige kay adto dialysis dayon inigabot luya, ingon
ana ba. Kanang naa nako pirmi didto, dili, wala na gani
kanang...unsa na dili nako makuan ang time.
Bea: strict kaayo ug diet mag-dialysis ka. Pero pag-after 3
naka-transplant naka, although naa koy kinahanglan
kuanun na diet, unlike sa nagkuan pa ka nagdialysis kay
mas daghan imong mga restrictions, so much better siya
karon.
Andy: after sa transplant. Kuan jud healthy living na 2
gyud ko. Kanang magwatch ko sa ako diet.
Andy: Daily routine na ni nako. Murag trabaho na ni 5
nako. Obligation na ni nako na mag-amping.
Andy: Mura kog piniriso diri. Palit rako makaon, tan-aw 28
TV, DVD unya mag-internet. Ang imo ra advantage sa
piniriso siguro makagamit ka ug communication tanan
naa kay internet. Naa kay kuan cellphone.
Kate: there is limitation when it comes to health [ ] there 2
is a limitation nga dili naka labi na sa pagkaon nga
contraindicated [ ] so kinahanglan jud na kanang i-
observe nako.
Rose: Akong nephrologist maoy mas mahigpit kaayo. 18

Can no longer drink and
smoke
Rationalized limitations set for
him
Stringent interpretation of
isolation precaution during
postoperative phase
Perceived Body Image Regaining of complexion prior
Post-transplant to kidney failure
Improved physical health
Conscious of subsequent
weight gain
Conscious of hair problem
Bothered by stretch marks all
over her body post-transplant
Boost of self-esteem upon
removal of previous dialysis
access
Felt healthy and strong again
Experiencing hair loss as a
side effect
Recalls engorged veins in her
dialysis sites
Felt happy with the removal of
the dialysis site
196
Nick: Right now I can no longer drink alcoholic 2-3
beverages and smoke.
Nick: I just told myself that Ive been through that, done 3
that. It was a worth it experience. So yeah, Im a little bit
satisfied with what Ive done and I just let it go.
Pam: [nephrologist] atoDapat careful gyud kay 10
kanang weak pa kaayo immune system, ingon ana ba.
So mao to nakuan na nga adto lang sa ko sa isa ka
room para makuan pa gani ako strength, ingon ana.
Andy: di ka makatuo at first nga kuan na nibalik na 27
imong lawas sa una.
Kate: There is a change. Nakabati nako ug moisture sa 5
akong skin. Nakabati nakog ug kanang singot unya
murag lahi ra jud.
Rose: After sa transplant nanambok na nuon ko. Maoy 4
di nako ganahan oe.
Rose: Pero karon, falling hair ko. 10
Rose: Bag-o ra ni siya ninggawas. I think siguro pag- 11
gain nako ug weight. Pero grabe jud siya kay pula kaayo
siya.
Nick: It was a boost of self-esteem. Mesmerized 13
because its no longer big
Pam: ningbalik nasad ang kanang bale ni-gain gani ko 2
ug weight ana. Unya na-unoran na, di pareha sa una na
kanang daot kaayo dayon ang color kay murag grayish
ang color. Unya karon ang skin ok na gani.
Pam: gaanam siya [hair loss]. Pero naa sad nuoy 4
nanubo pero lahi na strand murag nipis gani siya.
Bea: Bulky baya na siya dinha. So nidako akong ugat. 7
Ang ugat ron wala na siya.
Bea: Muingon man ang uban, makakita man, Unsa diay 7
iya kuan? Ngano dako man kaayo? Dako man jud to
siya kaayo. Maka-bother siya ba. Murag di ka kaingon
na wa na. Na-happy na kaayo ko na wala na. Ok na jud
siya. Ni-decide jud ko.

Awareness of the Bulge at transplant site
Transplanted organ Felt warmth at transplant site
A feeling of numbness over
the postoperative site
Can feel and see the bump at
the postoperative site
Aware of the presence of her
transplanted organ when she
moves
The transplanted organ is like
a partner, a buddy
Coping in the Mechanisms Adapted Coping through research
Post- Post-transplant
transplant Dwells on the positive side of
Phase things
Ambivalence over laboratory
exams
Humor used to cope
Humor used to adapt to the
incision line
197
Andy: Mobukol gamay 8
Andy: mura man siyag init bitaw 8
Rose: Pero naay feeling na kana bitaw murag ngilo i- 7
touch ang part na gi-operahan. Mura siyag walay, wala
kay ma-feel, murag numb.
Rose: Ma-feel gyud nimo nga naay lahi. Kana gani mo 7
tan-aw ka sa mirror, dili jud siya level. Magburot jud ang
kidney.
Pam: Naa diri naay diri gisud ani. <points to incision 12
line> Naa gyud siya. <laughs> Kay inig-side gani nako,
inig higda nako side,. naa gyud siya. Mag-ana gyud sad
siya diri.
Pam: As a partner, as a buddy. 12
Andy: Ako gud before sa akong transplant, nag-research 4
nako daan sa internet sa mga life after transplant ba.
Kate: Kay ako rule man gud sige kahuna-huna ug 9
negative sakayan pud ka sa pagka-negative pero think
positive mahimo nimo sa tabang sa Ginoo, you can do it.
Nick: I didnt feel bad Every time I have a lab, its not 6
that Im happy but it makes me feel good cause I will
know again the status of my body.
Rose: Char! [ ] mo-stare back sad ko like unsa man? 1, 8, 10,
<laughs> [ ] Sige ko pangutana sa kaong manghud, 14, 19, 20
Lingin gihapon akong nawong? <laughs> [ ] Mao to na-
worry ko kinahanglan nako mupalit ug wig ani. <laughs>
[ ] Ambot lang. Stubborn lang jud ko. <laughs> [ ] Kana
bang naay SLE unya murag lisod mangita ug tao nga
Serious kaayo? <laughs> Ambot lang siguro huna-
hunaon sa uban na shallow ra kaayo, ingon ana. Pero
para nako ba, murag hala oe, siguro kuan kaayo ko,
vain? <laughs>
Pam: Ok ra man kay remembrance. <laughs> 12

Appreciates the prayers and
encouragements given by her
friends
Dealing with Adverse Grieving over graft failure
Transplant Outcomes
Does not dwell on fear of
rejection
Fear of rejection
Scared that rejection will
change him, going back to
dialysis, stopping schooling,
hanging out with this friends
Didnt have fear of rejection
because of prayers
Entertained fear of transplant
failure
Previous dialysis site served
as safety net in case of
transplant failure
Starting over Changed a. His mother wants to watch
family
again Relationship over him
Dynamics
Familys concern over her
health
198
Pam: Ang prayers pud nila Oo, naka-help gyud kayo. 8
Dayon ang ilaha sad kanang moral...bisag moral support
lang nako ana. Kanang Kaya na nimo, kaya na nimo
ana. Murag kanang sa kuan sa psychological gani na
nimo na kanang naay daghan nag-love nimo. Dili ka
mawagtang ug hope kay naa pa sila, ana.
Andy: Dili days, months. Siguro 2 months. Dili nimo 11
madawat dayon Murag dako ayo na failure sa imong
lawas. Ngano naingon ana ka?
Kate: Wala, wala ko naghuna-huna ana. Nobody knows 11
kung kanus-a jud ta. Nasulat jud na atong mga pangalan
ngadto. When is our age, pero trust lang, think positive.
The more you think,the more opinion with others, wala
gyud na sila nasayod. Even sila masayod.
Nick: Rejectionum, I was scared. 6
Nick: I have to change again. I have to undergo another 7
hemodialysis I have to stop schoolingI cant go out
with my friends the way I used to right now Yeah, that
will change for me. I hate those changes.
Pam: Wala. Pray lang gyud ko, ana. Daghan sad ang 14
nag-pray. Wala lang ni complicate
Bea: Naa kay fear sa what if makuan siya, dili siya ma- 5
successful baRejection.
Bea: After the transplant, siguro it took four to five 5-6
months usa nako gipakuha. Bahalag naa sa siya dinha.
After gi-make sure nako na di ko makuan Nahadlok
After the transplant, siguro it took four to five months usa
nako gipakuha. Bahalag naa sa siya dinha.
Andy: ako bitaw to gi-ingnan ako mama na kuan na 11
nagplan ko na mag-abroad ko balik. Pero ako mama dili
mu-agree didto [country abroad] kay kaning didto daw
ko iyaha [another country abroad] kay para naay kuan
makatan-aw ba.
Kate: Maka-sense sila. Labi na karon lang na time kay 9
na busy ko sa ITR [Income Tax Return]. Maka-sense
lang Ayaw pagduko-duko malipong na pud ka, ana
lang ba.

Disclosure of ones status to
loved ones
Felt the positivity of her
husband and son
Some chores are lifted off her
post-transplant
Actually enjoying the extra
attention
Recently the extra attention
returned to normal
Mothers concern intrudes
self-reliance
Establishing independence by
planning to finance her
treatment regimen
b. Regained confidence to
friends
socialize post-transplant
Reconnecting with friends
after the transplant
Prefers that others didnt know
she had kidney transplant
Doesnt want to appear weak
Limits those who know he had
kidney transplantation
199
Kate: Every time ako siya sulti-an what is ginabawal, 9
unsay pwede. Ako siyang gi-ingnan What if Dong?,
akong gi-open sa iyaha ba,What if Dong, we dont know
when is the end of my age?. Ni-ani siya, Noh?
Kinahanglan taas pa kag edad Ma oe. Taas pa kag edad
maabtan. Mura positive lang jud akong pamilya, akong
bana ug akong son.
Kate: Positive ra jud kayo sila. Para nila, dili sila ka feel 9
naglain ko
Rose: Sila may mas masugoan kaysa ako-a. Sulti-an 15
niya akong mga igsoon. Bakit si Ate ang pinabitbit mo
niyan? Ikaw ang magdala ingon ana.
Rose: ok ra man kay ba-o pa man, ana. Then karon, ok 15
pa sad. Tapulan.
Rose: Pero dili na kaayo karon hinuon. Normal naman. 15
Rose: Di man ko ganahan kanang sige ko sulti-an ba, 14
Pag-mask or Imong tambal. Di ko ganahan ingon ana
bitaw.
Bea: Kay karon nagdepend pa jud ko sa akong sister, sa 16
akong auntie ug tabang.
Andy: Murag siya nibalik ana. Hilig man ko makig-chat 30
ug sa facebook bisag sa una dili ko ganahan ana.
Kanang murag mangita gyud ug social life ba.
Rose: Actually, first time nako yesterday nga nakalakaw 13
ko with my friends.
Rose: Ai wala jud nako gipangsulti sa akong mga kuan 8
ba na nag-transplant ko. Di ko ganahan isulti.
Rose: Ambot lang kay di ko ganahan mo-look 9
depressing, di ko ingon ana na Hala gi-kuan diay ka, gi-
kidney transplant diay ka?
Nick: There are friends that I told already since theyre 8
close to my family and Im close to their family so they
know na but the college group of friends are not close to
my family and I intend to keep it a secret from them.

Resumption of usual
interaction with friends
Able to go outdoors and travel
already after the transplant
c. Unwavering support of her
partner
husband and son
Feels difficulty in finding
somebody to accept her with
her health condition
More cautious with interacting
with girls because of his
immunocompromised
condition
Her boyfriend as a source of
strength
Wants to gain financial
stability before venturing into a
relationship
d. Needs to wear mask and
society
maintain a safe distance when
interacting
Mask wearing affects
belongingness
Mask wearing interferes with
wanting to go out due to
hassle and embarrassment
felt
Self is different from other
people when wearing a mask
Still blending in when he
wears a mask
200
Pam: Karon kay mas ok-ok na. Pero pag-after transplant 9
isolated gyud ko.
Pam: Unya karon bale makagawas-gawas na. 9
Nakasuroy na gani ko [province]. Laag-laag na ingon
ana. Unya maka-mingle na sa mga friends, ingon ana.
Kate: Oo, 100%. My husband and son mao ra jud naka- 12
face even sa pag-consult sa doctor. Kami ra jud.
Rose: lisod kaayo i-open up sa iyaha ba na kuan...ingon 19-20
ani ko, ingon ani nahitabo, ingon ana. Forever ko
magtake ug medicine.
Nick: but I have to be choosy. Unlike before I can just 3
make out with a girl but right now, I cant. [ ] Since Im in
an immunosuppressed condition.
Pam: siya gyud ang naghatag nako ug strength gani kay 6
usahay kanang mura nako mo-give up ana. <tearful>
Bea: Not yet pa jud.Naa man but not yet pa jud. Feeling 15
nako dili pa jud time maskigboyfriend-boyfriend. Di pa ko
kuan... Naa pa koy gikuan na goal para kana siya akong
mga needs karon, financial needs.
Andy: Mugawas ko doble ang mask unya dinha ra ko 28
diha magtan-aw tan-aw ra ug billiard-billiard pero naa
rako sa layo
Kate: So mo-belong ra ko sa in a group of people 3
without wearing mask though mga tao mahadlok nako
kay ma-infection ko daw mga ingon ana.
Rose: Dili nako makalakaw dali-dali. Ang pinakalagutan 8
nako kanang mask.
Rose: Siguro, kuan if naay mo-stare nimo, ingon ana. 8
Mo-stare back sad ko. Like unsa man?
Nick: I wore a mask at school. In school, if you got colds, 12
you wear a mask. I had a classmate who also wore a
mask during the first few days, he told me gisip-on siya
but after storya-storya we became friends. He knows I
wear a mask because Im a transplant patient.

Felt awkward with the scrutiny
mask wearing induced
Family protects her from
scrutiny
Getting back Being able to do what a
regular person can
Waited to feel sense of
normalcy before resuming
work
Resumption of usual routine
after kidney transplantation
Resumed worked to fend off
depression and have a sense
of purpose in life
Felt limited with college
course options
Felt accomplished resuming
work
Feels sad leaving her previous
career to protect her health
post-transplant
Redefining Plans and Financial considerations
Goals Post-transplant regarding treatment plan
Taking on his new course
which is less demanding
201
Bea: Sometimes ma-awkward sad ko kay usahay uban 14
tao, Naa na siyay sakit?, Makatukod na siya? or Arti
kay nag-mask, ingon ana. Kabati man ka naay mo-
ingon, Naa na siyay sakit?, Naa siguroy sakit, ana.
Bea: Akong mga pag-umangkon na nuoun moingon, 14
Hala oe, transplant baya si mommy. Ah to the rescue
ang mga bata.
Andy: Kanang mga buhat pero sa mga regular na kuan 7
sa tao makaya na nako kay wala naman ko laing
complication.
Andy: Planning pa na mubalik ug abroad. Ako lang jud 10
gihuwat na nga mubalik na jud sa normal akong
paminaw ba.
Kate: week after the discharge sa hospital able nako 3
mu-work even makahimo nako sa mga panimalay.
Rose: Actually, mag-one week na naa koy work. Home- 3
based, kay mao lage toh maka-depress siya na wala
kay gibuhat sa imong life. Murag feeling nimo wala kay
purpose diri oi.
Nick: Recently finished first year college and then I was 2
going to resume studies for second year then I had to
transfer after my kidney transplant since my course
requires um healthy so I got to transfer.
Pam: Trabaho na gyud ko. 7
Bea: Sad ko [about not going back to her previous 12
career]. [ ] Dili lang siya kuan you touch other peoples
lives [ ] you worked hard on it so its just sad ingon ana. I
have to choose siguro karon. I have to be more kanang
careful lang jud ko.
Andy: akong gi-look forward na lang makatrabaho ug 6
balik, unsa akong buhaton, unsa akong priority, ana
baUnsaon nako budget akong kwarta kinahanglan sa
tambal ug sa maintenance nako, ana.
Nick: Its not that strenuous as my old course which was 4
Monday to Saturday. [ ] Its only Monday to Thursday. So
its not that tiresome.
 202

Wants to have better immune Pam: mao to plano namo na magpakasal ana pero dili 5-6
resistance when she gets pa karon [ ] weak pa man ko. [ ] nagtake pa man
married immunosuppressant na taas-taas pa ang dosage ba
Will not resume her nursing Bea: Wala nakoy plans to resume, sa medical. 2
career
Not returning to previous work Bea: Gusto unta ko laing field nga dili medical kay naay 11
that exposes her to infection mga masakiton. A lot of people advised me na you dont
have to go back to being a nurse jud kay prone jud ka sa
infection, labi karon na wala pa jud gihapon ginaog
akong immunosuppressants.
Considers other career Bea: Ang ako lang unta office lang. pero this time, 11
options available to her business sa ko.
* Pseudonyms were used accordingly:
Informant 1: Andy
Informant 2: Kate
Informant 3: Rose
Informant 4: Nick
Informant 5: Pam
Informant 6: Bea