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U n iv e rs ity S tu d e n ts ’ P e rc e p tio n o f P e o p le Living w ith H IV /A ID S / 5 3 5
children, and those who became infected from various social categories of PLWHA is chang
blood products were depicted as innocent vic ing (Persson 2005; Persson & Newman, 2008).
tims, whereas drug addicts, homosexuals and At the early stages of the HIV/AIDS epidemic
sex workers were considered as guilty and in the 1980s, gay men with HIV/AIDS were
therefore responsible for their state of affairs. regarded as guilty and responsible for then-
The latter types of PLWHA were deemed to disease, because the infection was regarded as
have taken a chance by being reckless in then- a consequence of a conscious life-style choice
behaviour (Lupton, 1999; Scambler, 2006; (Lupton, 1999; Small, 1993). In later times, ho
Small, 1993). The difference between these mosexuality has become more widely socially
two modes of infection is that in the latter accepted, and according to Lupton (1999)
cases the person is perceived as being respon there was little evidence in the Australian press
sible for the outcome, because the activity is during the mid-1990s that indicated gay men
self-initiated and would have been controlla were depicted as being guiltier than other peo
ble. In the former cases, the infection came ple with HIV/AIDS.
from an external and uncontrollable source, A person living with HTV/AIDS can be
which removes the person’s responsibility seen as a source of infection—an AIDS carri
for the outcome. Thus, the social category er. An AIDS carrier is often described as lack
of PLWHA suggests information about then- ing self-control, of being negligent, or being
life-styles, relative risks for infection, and simply revengeful (Lupton, 1999, 46-48). In
their levels o f personal responsibility (Steins the early 1990s, infected heterosexual males
& Weiner, 1999,488). were often considered to be innocent victims,
Steins and Weiner (1999) systematically whereas infected women who ‘spread the
studied how perceived responsibility and virus’ were not only regarded as guilty, but
personality characteristics influence on the also as a potential threat (Small, 1993, 103).
emotional and behavioural reactions towards Today the guilty parties are often represented
PLWHA. They analysed the association be as black African men with a ‘criminal intent
tween the transmission mode, personality to spread the virus’ through unprotected het
characteristics of the PLWHA, responsibility erosexual relationships (Persson & Newman,
and the perceivers’ emotional (anger or pity) 2008). Furthermore, intravenous drug users
and behavioural (avoidance or willingness and prostitutes can be seen as potentially dan
to care) responses. People tend to be angry gerous sources of infection because of then-
to a person if he or she is held personally presumed irresponsible behaviour and risky
responsible o f a negative event. By contrast, life-styles—for example, the drug addicts
people feel pity if a person is regarded free who might pass the virus to innocent children
from responsibility. It is also suggested that by leaving their contaminated syringes in
these emotional reactions trigger different playgrounds. Stigma, deviance, and negative
behaviours towards the person. Pity increas feelings of blame are dynamically changing
es willingness to care, whereas anger tends social processes (Parker & Aggleton, 2003,
to channel behaviour into to avoidance. 14), and so consequently, the norms of devi
(Steins & Weiner, 1999; see also Cobb & ant behaviour, moral judgments and personal
De Chabert, 2002; Corrigan et al., 2003; He- responsibility may change over time.
garty & Golden, 2008) The perception of dangerousness may
The distinction between the innocent and arouse a sense of fear and lead to social avoid
the guilty has remained in HIV/AIDS discourse ance. The more you fear the illness, the more
since the very beginning, but the evaluation of you try to avoid it and the less you want to
U n iv e rs ity S tu d e n ts ’ P e rc ep tio n o f P e o p le Living w ith H IV /A ID S / 5 3 7
care the sick. By contrast, the more you are The first question pertains to how stu
familiar with the illness and its mechanism, dents perceive different types of PLWHA.
the less you fear infection and you are more The respondents were asked to give their
likely to empathise the victims and be willing opinion about the statement T would feel
to care them (Corrigan et al., 2003; Paxton et uncomfortable in contact with a [type of
al., 2005). If knowledge serves to decrease PLWHA], who has HIV/AIDS.’ The types
fear and avoidance, and increase feelings of we used were ‘child’, ‘bisexual’, ‘homo
pity and the willingness to care for a sick sexual’, ‘haemorrhagic disease patient’,
person, then educating the general public ‘prostitute’, and an ‘intravenous drug user.’
with respect to HIV/AIDS would be likely to The labels imply the manner o f infection,
improve the situation of PLWHA. responsibility and dangerousness as dis
This paper looks to answer the following cussed in the theoretical section of this pa
questions: per. However, we did not specifically assess
1. How do students perceive different the grounds by which students formulate
types of PLWHA? their opinion of comfort or discomfort, and
thus we do not know exactly if they regard
2. How are their feelings of discomfort these types of PLWHA as responsible, inno
related to their fear of infection? cent victims, or threats.
3. How is the fear of infection (and dis The original 5-point Likert scale (agree
comfort) related to their knowledge of strongly, agree, cannot say, disagree, disa
HIV/AIDS, familiarity with PLWHA, gree strongly) was transformed into three
willingness to care for PLWHA, gen options (agree, cannot say, disagree) in order
der, and age? to avoid categories with few observations
(less than 5 %). To find the ranking order of
Methods and procedures the types of PLWHA, we combined all single
Design and setting tables into a 6 x 3 cross-table with six types
o f PLWHA in rows and three response alter
This study used a descriptive research de
natives in columns (Table 1).
sign. The data was obtained from basic degree
The second question focused more close
students (N = 9715) at a Finnish university.
ly on how the perception of different types of
Research permission was obtained from the
PLWHA is associated with the fear o f infec
department of student affairs at the universi
tion. We gauged response by use o f the state
ty. With approximately 15,000 students, this
ment: ‘I would be/was afraid of getting HIV
multidisciplinary university offers teaching in
if I were/was in contact with an HIV positive
more than 100 major subjects. The sample (n
person.’ Previous research suggests that
= 950) was randomly picked from the elec
discomfort and fear are closely associated,
tronic student directory of registered basic
and our data showed that fear had a strong
degree students with no exclusion criteria.
association with the discomfort relating to
Instrument different types of PLWHA. The gamma val
ues of six 3-way tables were: 0.649 (child),
The survey was an adapted version of 0.644 (bisexual), 0.569 (homosexual), 0.509
two North American questionnaires (Chng & (prostitute), 0.518 (haemorrhagic disease
Moore, 1994; Held, 1993) first used in Fin patient) and 0.475 (IV drug user).
land by Muinonen et al. (2002) among early
adolescents.
538 / College Student Journal
Data collection the variance of the table, but were used only
to interpret the results.
A postal survey was conducted. Ques
tionnaires and introduction letters were ‘Knowledge of HIV/AIDS’ was con
sent to students’ home addresses, obtained structed on the basis of modified scales from
Held’s (1993) instrument. The knowledge
from the student register. In the introduction
test about HIV and AIDS consisted of 25
letter was a short description of the study,
and information regarding confidentiality, items (Cronbach’s alpha 0.908) and the max
imum from correct answers was 25 points.
anonymity and voluntary participation. The
For the purposes of analysis, we grouped the
opportunity to contact the researcher by
respondents into four categories from ‘K 1’
phone or email was also given. The ques
(least knowledge) to ‘K 4 ’ (most knowledge).
tionnaires were returned to researchers at the
university in sealed and pre-paid envelopes. ‘Willingness to care’ was measured by the
question ‘are you willing to care for a person
The students had the possibility to return an
empty questionnaire. Return of the question with HIV/AIDS?’ (yes/no). ‘Known a PL
WHA’ was measured by the question ‘have
naire was considered as giving consent to
you ever known a family member, friend or
participate in the study. 950 questionnaires
other close person with HIV/AIDS?’ (yes/
were sent out, with 333 returns (35 %). After
no). Age was categorized into four uneven
removing insufficiently completed question
classes that roughly capture the range o f typ
naires to avoid missing data, the final sample
ical Finnish university students: ‘the young’
size amounted to 282 students.
(<21), ‘the normal age of graduation’ (22-
Analysis 25), ‘mature students’ (26-34), and ‘second
career students’ (>35).
We cross-tabulated the variable of ‘fear of
We used Simple Correspondence Anal
infection’ with the six variables concerning
ysis (SCA) as our statistical tool. SCA
discomfort towards PLWHA types. For cor
searches the latent structure of the data table
respondence analysis, we stacked these six
and transforms it into a few (usually two or
cross-tabulations into one grand cross-tabu
three) interpretable dimensions (axes), and
lation with 18 rows of discomfort and three
presents categories of variables as configura
columns of fear (Table 2). The stacked table
tions of points in geometric plains. SCA fo
shows associations between each type of PL
cuses more on the patterns of the data and is
WHA and fear, without containing informa
less concerned about traditional significance
tion about the interactions between the types
tests (Greenacre, 2007; Le Roux & Rouanet,
of PLWHA (Greenacre, 2007).
2010, 23-65).
We wanted to determine how the fear of in
fection (and discomfort) is associated with the Results
willingness to care for PLWHA, familiarity
Students ’ perceptions o f different types o f
with HIV positive people, and knowledge of
PLWHA
HIV/AIDS, gender and age. Thus we includ
ed ‘willingness to care’, ‘known a PLWHA’ Table 1 presents the relative frequencies of
and ‘knowledge of HIV/AIDS’ in addition to responses to the question concerning whether
‘gender’ and ‘age’ as supplementary variables they would feel comfortable in contact with
in our 1 8 x 3 cross-tabulation. Altogether we different types HIV/AIDS patients. On aver
formed a 32 x 3 cross-tabulation, where the age, about 25 % of respondents find it uncom
supplementary variables did not contribute to fortable to be in contact with a person who
University Students’ Perception of People Living with HIV/AIDS / 539
has H IV /A ID S. The unpleasantness o f types To reveal the ranking order o f the six types
o f PLW H A varies from 47.5 % (T V drug o f H IV /A ID S patients, w e perform ed SCA
u sers’) to 6.4 % ( ‘ch ild ’). M ore than 30 % on Table 1. The results o f the analysis are
o f respondents w ould feel uncom fortable in presented in Figure 1. The total eigenvalue
contact w ith a ‘p rostitute’ or a ‘haem orrhagic (variance) is 0.1417, o f w hich the first axis
disease p atient’ w ho has H IV /A ID S and stu accounts for 90.12 %. T he first dim ension
dents have difficulties to form an opinion in o f the graph clearly opposes ‘disagree’ (con
these cases (17.7 % and 21.3 % respectively). tributes 34.5 % ) on the left side, and ‘ag ree’
(contributes 60.7 %) on the right side. These user, which together contribute 67.9 % of the
two categories are also well represented in the variance in the first dimension.
first axis since their squared cosines are 0.97 The second dimension captures the re
and 0.99 respectively. The types of HIV in maining 9.88 % of the total variance and
fected persons (child, bisexual, homosexual, depicts the opposition between those who
prostitute, haemorrhagic disease patient and cannot formulate their opinion and those
IV drug user) are clearly ordered from left who ‘agree’ with the statement. However, the
(most comfortable) to right (least comfort category of ‘cannot say’ contributes only 3.2
able). The categories of child, bisexual and % of the variance in the second axis. People
homosexual are on the ‘disagree’ side (left) tended to be particularly certain that they do
of the map, whereas prostitute, haemorrhagic not feel comfortable with IV drug users (con
disease patient and IV drug user are on the tributes 46.3 %). On the other hand, 21.3 % of
‘agree’ side (right). The strongest opposition respondents were uncertain about their opin
is between the categories of child and IV drug ion regarding a haemorrhagic disease patient
* Figures are row percentages, that is, row profiles. The average row profile is calculated by first summing
up the column frequencies. Then each summed column frequency is divided by the sum of the average
row total frequency. Due to rounding, percentages do not necessarily round to 100.
U n ive rs ity S tu d e n ts ’ P e rc ep tio n o f P e o p le Living w ith H IV /A ID S / 541
(contributes 33.1 %). There were also quite for 86.2 % o f the total eigenvalue (0.1357),
many ‘cannot say’ answers in the case of a and opposes those who fear the infection
prostitute (17.7 %). (contributes 60.1 %) and those who do not
We should also notice that the category of (contributes 39.7 %). The second dimension
‘cannot say’ is quite well represented in the (eigenvalue 0.0187) and 13.8 % o f the ex
first axis, having a squared cosine of 0.35. plained variance is dominated by those who
Both categories ‘cannot say’ and ‘agree’ are are uncertain about their opinion.
on the right side o f the map, and their distance On average, those who fear infection
in the first axis is 0.36 units. The distance tend to feel discomfort towards all types of
between ‘cannot say’ and ‘disagree’ is 0.48 PLWHA, whereas those who do not fear
units. Therefore, we can conclude that un infection tend to sympathize with PLWHA.
certainty is closer to discomfort rather than In addition, Figure 2 shows that the analysis
comfort with PLWHA. reproduces almost exactly the same rankings
of the types of PLWHA as discovered in the
Fear o f Infection and the Discomfort first correspondence analysis. It is also noted
Table 2 and Figure 2 present the results that those students who are uncertain in their
of the second SCA concerning the fear of assessment of fear, also tend to be uncertain in
getting HIV if in contact with an HIV pos their assessment of the discomfort pleasant
itive person. The first dimension accounts ness of all types ofPLWHA.
542 / College Student Journal
All of the ‘agree’ and ‘disagree’ categories user and homosexual correlated strongly with
concerning the feelings of discomfort towards the second dimension.
the types of PLWHA, except for ‘child’ con
tributed strongly to the first dimension. In Fear o f infection and knowledge o f HIV/
addition, all ‘agree’ and ‘disagree’ categories AIDS, familiarity with PLWHA, willingness
of the discomfort variable are very strongly to care, gender and age
associated with the first dimension. All ‘can Figure 3 shows the location of supple
not say’ categories of types o f PLWHA, ex mentary variables of ‘willingness to care’,
cept ‘prostitute’ are located on the ‘fear’ side ‘known a PLWHA’ and ‘knowledge of HIV/
(right) of the map. Furthermore, ‘child cannot AIDS’, together with an active variable of
say’ (0.91), ‘bisexual cannot say’ (0.77) and ‘Fear of infection.’ Unwillingness to care for
‘homosexual cannot say’ (0.41) correlated PLWHA and the fear of infection are clearly
strongly with the first axis. This means that associated. The categories of ‘will - no’ and
those who were uncertain about their feelings ‘fear - agree’ are located on the right side of
of discomfort towards child, bisexual and ho the map, whereas ‘will - yes’ and ‘fear - dis
mosexual categories tended to fear infection agree’ are located on the opposite side. The
more than average. two categories of the supplementary variable
The second dimension opposes those of ‘willingness to care’ correlate almost com
respondents who were uncertain and those pletely with the first dimension, as they both
who certainly fear or don’t fear infection. Of have squared cosines of 0.95 (Table 3).
the PLWHA types, ‘haemorrhagic disease ‘Known a PLWHA’ and fear of infection
patient’ and ‘homosexual’ have the strongest have an association. If the respondent has
contribution to the second dimension (35.1 % known a HIV positive person, they tended
and 15.8 % respectively). Furthermore, hae to be less than averagely concerned about
morrhagic disease patient, prostitute, IV drug infection. However, only 8.9 % of the sample
Figure 3: Supplementary Variables Willingness to Care (‘Will no’, ‘Will yes’), Known
HIV Positive (‘Known yes’, ‘Known no’), and ‘Knowledge of HIV/AIDS’
(‘K T = least knowledge, ‘K2’, ‘K 3 \ ‘K4’ = most knowledge), and an active Variable o f Fear o f Infection (‘Fear
agree’, ‘Fear cannot say’, ‘Fear disagree’)
Axis 2 - 13 78 %
University Students’ Perception of People Living with HIV/AIDS / 543
knew someone with HIV. It is interesting to getting the virus if in contact with HIV posi
note that this type of familiarity with HIV also tive people. These interpretations of Figure 3
correlates slightly with the second dimension, are supported by the squared cosines present
which indicates that knowing a PLWHA re ed in Table 4.
duces the level of uncertainty in addition to In our final analysis, we show that women
the level of fear (Table 3). and older students tended to fear infection less
The association between knowledge, fear frequently than men and younger students
and uncertainty is illustrated by the spread of (see Figure 4 and Table 4). Because fear and
points of the variable - ‘knowledge of HIV/ discomfort are closely related, it also means
AIDS.’ Figure 3 clearly shows that the points that women and older students tend to feel
indicating the levels of knowledge have an more sympathy towards PLWHA. In addition,
orderly distribution in the first dimension the order of the categories in the second di
from right to left. The more knowledgeable mension shows that there is more uncertainty
a person is, the less afraid they are of getting among the youngest students (<21), whereas
an infection from being in contact with HIV the oldest students most often have a certain
positive people. The most knowledgeable opinion concerning the fear of infection.
categories (K 4 and K 3) are on the left side We cannot analyse the interactions be
o f the map close to the category of ‘Fear - tween supplementary variables in the SCA
disagree.’ The knowledge categories are also of stacked tables. However we performed
clearly ordered in the second dimension. The some separate cross-tabulations and found a
least knowledgeable categories of K 1 and K statistically significant relationship between
2 are located in the upper right part of the map age and gender, in which the men tended to
in the direction of ‘Fear - cannot say.’ Thus, be younger than the women. There were no
ignorance of HIV/AIDS tends to go hand in significant relations between age and the
hand with the uncertainty about the fear of level of knowledge. Instead, there was a veiy
544 / College Student Journal
significant association between age and the significant association between age and a
respondent’s familiarity with an HIV positive willingness to care for an HIV positive person
person (x2 =41,209, df= 3, p = 0.000). No- (X2 =8,129, df= 3, p = 0.043). On average, the
one in the youngest age group was closely oldest age group was more willing to care for
acquainted with a person with AIDS, but a person with H1V/AIDS than the other age
about third of the oldest age group had such groups (83% vs. 63.2%).
an experience. There was also a statistically
Figure 4: Supplementary Variables of Gender (‘Man’, ‘Woman’) and Age (‘-21’, ‘22-25’,
‘26-34’, ‘35-’), and an active Variable of Fear of Infection (‘Fear agree’, ‘Fear cannot
say’, ‘Fear disagree’)
U n ive rs ity S tu d e n ts ’ P e rc ep tio n o f P e o p le Living w ith H IV /A ID S / 5 4 5
Conclusion
Although the perception of PLWHA has
improved over the years, there is still a need
for enlightenment, particularly with to the
most vulnerable groups such as intravenous
drug users, haemorrhagic disease patients and
prostitutes.
U n iversity S tu d e n ts ’ P e rc e p tio n o f P e o p le Living w ith H IV /A ID S / 5 4 7