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Information Bulletin
CAIL's Final Information Bulletin - 28 March 2018

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this bulletin please click on attached
- Info Bulletin 28.03.18 Plain Text

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 If you would like a print out of any of the information contained within this bulletin or if you
would like CAIL to publish an article for you in the Information Bulletin then please contact
us:

Email: james@cambridgeshirealliance.org.uk
Tel: 0300 111 2301

Content:
(Scroll down or click on the link below to go directly to the information)

CAIL News and Events

Goodbye from CAIL

CAIL's 'Insights' Event - Join us Tomorrow!
Voices4Choices - Library of Lived Experiences
The Model Conversation
Goodbye Messages from the CAIL Staff Team
Goodbye Messages from our Partner Organisations

Consultation

Tell Us About Your Care

News and Information

Adults Committee Decision on Proposed Changes to Cambridgeshire County

Council’s Fairer Contributions Policy
New Community Café
Keep Your Head

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 Workshops, Seminars and Training

LGSS Learning & Development

Events

Pride in Our Carers 2018

Newsletters

Skills for Care

Equality and Diversity Forum
CQC
Alzheimer’s Society
Epilepsy Action
National Survivor User Network
Steel Bones

CAIL News and Events

Goodbye from CAIL:

As you may be aware CAIL is due to cease all operations at the end of March. We have
been running for almost 10 years now and the organisation has gone from strength to
strength. We have evolved to become a voice for people living with disability, older people
and carers in Cambridgeshire. We listened to many individual experiences and we let
people know that they are not alone, that there are people out there with similar
experiences. We have taken what people told us back to the County Council and service
providers to try and affect real change.

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 We are all immensely proud of the work that we have done here at CAIL and would like to
thank our volunteers, our independent members, our partner organisations, Cambridgeshire
County Council, the many, many people that have given us advice and support over the
years and everyone else that has made this incredible journey so rewarding and fulfilling.

We wish you all the very best!

Sincerely
The Entire Staff Team

CAIL's 'Insights' Event - Join us Tomorrow!:

Join us tomorrow for our Insights event! As a pan-

disability charity we have worked with many people
with disabilities and the organisations that provide
support and information. We have learnt of the
range of challenges that people with different
disabilities face.

Insights will be a fun event giving everyone an

opportunity to learn about some of these
challenges, find out about how we can better
support each other and also about the new technologies that are available to help people
live independently for longer.

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 Date: Thursday, 29 March (Tomorrow!!!)
Time: 10am to 3pm
Venue: The Marriott Hotel, Hinchingbrooke Business Park, Kingfisher Way, Huntingdon,
PE29 6FL

For more information please follow this link.

Voices4Choices - Library of Lived Experiences:

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 Over the course of the Voices4Choices project, CAIL have been collecting stories from all
over Cambridgeshire. We have gathered these stories together to be used as a resource
for anybody to look at.

There are two purposes behind this idea. Firstly, this is for people new to or thinking about
applying for Direct Payments to gain a personal insight into the highlights, benefits,
unexpected outcomes, pitfalls and frustrations Secondly, this is a resource for
professionals, academics and researchers to learn from first hand personal experience
what is working well for people using Direct Payments, what is not working so well and what
can be done better.

The Library of Lived Experiences will be launched within the next two weeks, along with the
evaluation of the Voices4Choices project. Additionally CAIL have been talking to other
organisations about maintaining the Library after CAIL's closure.

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 We will email you all when the Library of Lived Experiences officially opens.

The Model Conversation:

The Model Conversation explored the

histories of people with disabilities to inform
the future of everyone. By the end of it the
project leader, Justin Craig, had facilitated in-
depth interviews with 20 people with
disabilities recording their spoken memories
by recruiting and training a team of
volunteers to conduct the interviews.

All of these interviews have been transcribed

and can be found on the CAIL Website by
following this link.

By using the interviews as a basis materials were developed for use by schools and other
organisations as a training and educational resource. These can be found on the CAIL
website by following this link.

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 A short documentary was also made about the project and the people interviewed. The film
is available as a discursive resource designed to generate debate and challenge accepted
views. It can be watch on the CAIL YouTube channel which you can access by following
this link.

Or by checking out the attached video below. For more information on the The Model
Conversation please visit our website:
https://cail.org.uk/the-model-conversation/

The Model Conversation

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 Goodbye Messages from the CAIL Staff Team:

Alena Taylor - Chief Executive Officer:

“I came, I learnt, I leave feeling privileged to have had a small

insight into the lived experiences of each person that I have met.
Thank you all for improving mine, it’s been amazing!”

Paul Simon - You Can Call Me Al

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 Sally Cleghorn - Development Officer:

"Whenever I feel down about the general state of the world a

bracing session at a partnership board always reminds me that
there are good, unselfish people just around the corner. It’s been a
privilege to know you all. Thank you!"

Richard Attenborough - Good-Byee (Oh What a Lovely War)

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 Graham Lewis - Development Officer:

“Learnt so much, laughed so much – have had a blast over the last
4 years getting to know people and seeing them be the driving
force for change”

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 Ella Fitzgerald - Ev'ry Time We Say Goodbye

James Saunders - Voices4Choices Project Leader:

"I've thought long and hard about a goodbye message and there
was only one thing that seemed appropriate to me. So, in the
immortal words of Bill & Ted, 'Be excellent to each other... and,
party on dudes!'"

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 Kiss - God Gave Rock & Roll To You

Matthew Wilson - Finance Officer:

"Having never written for the Information Bulletin before, I shall say
'Hello, Goodby'. It has been a real pleasure supporting CAIL and
the great work they do."

The Beatles - Hello, Goodbye

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 Leisha O'Brien - Project Evaluator:

"Over the past four years I have worked with and for CAIL on lots of
wonderful, varied projects. My passion for service user-led
organisations has grown over this time and I cannot imagine
working in environments where the voice of members are not highly
valued. I have made some fantastic colleagues (in its broadest
sense) along the way. Onwards and upwards is my mantra!"

Queen - Don't Stop Me Now

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 Justin Craig - The Model Conversation Project Leader:

"Out of all the project I have been involved with over the years, The
Model Conversation is the one which I am most pourd. CAIL may
stop, but The Model Conversation will last forever!"

Eric Idle - Always Look On The Bright Side Of Life

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 Dennis Waterman - Official CAIL Band Leader:

"I am very sad to hear that CAIL is closing. They have done a lot of
good work over the years and I am proud to have worked with
them."

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 Dennis Waterman - I Could Be So Good For You

Martin Smith - Technical Support Volunteer:

"I have thoroughly enjoyed volunteering for CAIL since March

2013 and wish everyone involved the best for the future."

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 Pink Floyd - Breathe

David Challis - An Invaluable Volunteer:

"This is farewell from David the volunteer, who's lunch expenses

didn't warrant him a place on the Board of anything!"

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 Queen - Another One Bites the Dust

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 Goodbye Messages from our Partner Organisations:

Cambridgeshire County Council:

"Thank you very much for all help, especially via the Bulletin, in sharing information about
the Council’s activities to a wider audience. It has been much appreciated."

Healthwatch Cambridgeshire and Peterborough:

"At Healthwatch Cambridgeshire, we have worked closely with CAIL since we started back
in 2013, supporting each other to make sure that people’s voices are heard when decisions
are made around local services. As organisations, we both want to get people involved in
making services better, our focus is on health and social care, whilst CAIL have a remit
around all public services that disabled people use, including transport and benefits. We
have really appreciated being able to send non health or care stories and concerns in their
direction, knowing that they would hear what people said and represent them to the right
agency.

We know that they have shared their health and care concerns with us and we’ve done
good work together on things like trying to improve services for people who use
wheelchairs. We are very sad that CAIL is coming to an end, and will miss the staff team,
their expertise and their partnership approach to work."

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 Cam Sight:

"CAIL has been a valuable resource for Cambridgeshire, an independent voice to represent
views of local people. Cam Sight has been proud to sit on two of the partnership boards and
to work closely with the excellent team at CAIL. You will be missed and I hope all the
involved organisations and independent members will be able to carry on the spirit of
collaboration and joint progress that CAIL inspired.

On behalf of all at Cam Sight, thank you for your hard work and our very best wishes for
you moving forward."

VoiceAbility:

"We wish you all the best."

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 CCVS:

"It is with great sadness that we at CCVS are having to write something for the final CAIL
bulletin. Over the years we have been impressed with the work that CAIL have done to
raise awareness about disabilities and to support individuals and their families. Changes to
the welfare state and to benefits along with growing inequality mean that it is more
important that groups like CAIL exist to work with, and speak up for, their members and the
wider community. The closure of CAIL will leave a gap in the blanket of support that small
but vital local charities and community groups provide. If there is any way this phoenix can
raise from the ashes we will be there to help."

GET Group:

"It is a sad loss – a retrograde step that will leave a large hole where genuine
representation of the services user voice has got to with your help. And more and more falls
to GET Group and the CCVS’s with ever less funding."

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 Red2Green:

"Everyone at Red2green are sorry to see the final issue of the Bulletin which we have found
a very useful hub for receiving and disseminating information about disability related issues
and services in Cambridgeshire. You will be sorely missed."

Rowan:

"Thank you very much for sharing our current news and events from Rowan we really
appreciate it. Wishing you all the best!"

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 Cambridge Ethnic Community Forum:

"Thank you for your efforts over the years and best wishes to you all personally with your
future plans."

Consultations:

Tell Us About Your Care:

Disability Rights UK have extended their partnership with the Care Quality Commission
(CQC) to gather feedback from disabled people about their experience of health services
and social care, via CQC's 'Tell Us About Your Care' initiative. The CQC would really like to
hear from disabled (and non-disabled) people on their experience of using any of the
services they regulate, including GP and dentist surgeries; hospitals; services in the home;
etc. A full list of these services can be viewed by follow this link.

You can provide feedback online by following this link.

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 News and Information

Adults Committee Decision on Proposed Changes to Cambridgeshire County Council’s

Fairer Contributions Policy:

At Cambridgeshire County Council’s Adults Committee meeting on 8 March, Councillors

decided not to go ahead with three proposed changes to the Council’s Fairer Contributions
Policy. However, the Committee agreed to go ahead with the fourth proposal to make Direct
Debit the default method of payment.

Although the Committee accepted proposal four to make Direct Debit the default method for
Adult Social Care invoices issued in respect of contributions towards the cost of care and
support, other ways of payment will be available for people who do not have a bank account
or do not want to use Direct Debits.

Councillors made their decision after listening carefully to the feedback and views of those
affected, given as part of the 12 week consultation. Further information on the Committee’s
decision can be found here:

https://www.cambridgeshire.gov.uk/news/adults-committee-make-changes-to-plans-in-
order-to-protect-vulnerable-adults-incomes/

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 New Community Café:

Red2green are very busy working on plans for their new community café adjacent to
Bottisham Village College. Thanks from funding from the big lottery Red2Greens arts and
crafts café will give clients with learning disabilities, and learners on the autistic spectrum,
the chance to learn new skills as they get involved helping out in the kitchen and serving
customers. They will also get the opportunity to share some of their crafting skills with the
customers. Red2Green looks forward to hearing from anyone who might like to join them,
either as a learner or as a volunteer.

For more information please contact:

Julia Rutherford
Tel: 01223 811662
Email: julia.rutherford@red2green.org

Keep Your Head:

Keep Your Head is the new Cambridgeshire & Peterborough Adult Mental Health Website.
The site has been developed by local NHS, voluntary sector and local authority

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 organisations to provide a central hub of high quality information on mental health and
mental health services.

To view the site and for more information please follow this link.

Workshops, Seminars and Training

LGSS Learning & Development

LGSS' new booking system for Social Care Learning and Development (iLearn) is now live.
You can view and book the full offer available from LGSS Learning and Development on
iLearn at: http://lgss.learningpool.com/

Events:

Pride in Our Carers 2018:

Nominations have opened for the Pride in Our Carers Awards 2018.

The awards are for carers of all ages who have contributed to supporting other carers in
their community and makes a difference to someone else’s life. The awards are also for
organisations and individuals who are carer friendly and regularly go above and beyond in
their support for carers. The awards are for everyone in Cambridgeshire, Peterborough and

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 Norfolk.

The winners will be announced at the Pride in Our Carers Awards event during Carers
Week, that runs between 11 June - 17 June. Event Details:

Date: 13 June
Time: 10am - 4pm
Location: Kings Gate Community Church, 2 Staplee Way, Peterborough, PE1 4YT

Carers Trust Cambridgeshire, Peterborough, Norfolk are particularly keen to encourage

everyone to nominate carers for the Awards. You can find out more information and
nominate a care by following this link.

Alternatively you can download and print the nomination form attached - Pride in Our
Carers Nomination Form

The closing date for nominations is 5pm on Monday 16th April 2018.

Newsletters

For all the latest newsletters, bulletins, e-news, magazines and press releases from various
organisation set up to offer advice and support for people with disabilities, older people and
carers, pleases click on the link or the buttons below.

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 Skills for Care:

Skills for Care helps create a better-led, more skilled Button:

and valued adult social care workforce.
22.03.18
22.03.18

Equality and Diversity Forum:

The Equality and Diversity Forum is a national Button:

network of equality and human rights organisations.
28.03.18
28.03.18

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 CQC:

The Care Quality Commission (CQC) monitor, Button:

inspect and regulate health and social care services.
They publish what they find, including ratings to help March
people choose care.

March

Alzheimer’s Society:

Alzheimer’s Society is the UK's leading dementia Button:

support and research charity, here for anyone
affected by any form of dementia in England, Wales March
and Northern Ireland.

March

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 Epilepsy Action:

A community of people committed to a better life for Button:

everyone affected by epilepsy.
March
March

National Survivor User Network:

NSUN network for mental health is an independent, Button:

service-user-led charity that connects people with
experience of mental health issues to give us a March
stronger voice in shaping policy and services.

26.03.18

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 Steel Bones:

Steel Bones are working to connect the amputee Button:

community, create friendships and provide an
extensive proactive support network. March
March

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 CAIL - Facebook CAIL - Twitter CAIL - Website CAIL - YouTube

if you would like CAIL to publish an article for you in the Information
Bulletin then please contact us:

Email: james@cambridgeshirealliance.org.uk
Tel: 0300 111 2301

Copyright © 2018, Cambridgeshire Alliance for Independent Living, All

rights reserved.
Charity no: 1132290

Our mailing address is:

administrator@cambridgeshirealliance.org.uk

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