MEMBERSHIP

• Membership to the Hypoparathyroidism

Association is open to hypoparathyroidism Did You Know?
patients and caregivers, including
• H
 ypoparathyroidism is listed
healthcare professionals.
as a “rare disease” by the Office
• Members and non-members are of Rare Diseases (ORD) of the
encouraged to attend the annual National Institutes of Health (NIH)
patient conference which brings • I t is estimated that only about
together the hypoparathyroidism 100,000 Americans are affected
community in an effort to discuss by hypoparathyroidism
scientific advances in the field and offer • Y
 ou are not alone.
guidance on patient concerns. Become a member of the
• Benefits of Full Membership Hypoparathyroidism Association
today and join a community
– Receive discounts to conferences,
seminars and workshops
that offers understanding, www.hypopara.org
insight and support for
– Access to the HypoPARA Forum hypoparathyroidism.
(a secure section of the hypopara.org
website to share your experiences)
and the Member Gallery (a fun way to ABOUT THE
tell your story)
HYPOPARATHYROIDISM
– Receive the quarterly newsletter,
The HypoPARA-Post
ASSOCIATION
– Access to expert webinars and
podcasts
– Receive information about Together we are growing stronger.
enrollment opportunities for clinical P.O. Box 2258 Together we are making
research Idaho Falls, ID 83403
Phone: 866-213-0394 a difference.
JOIN TODAY! E-mail: hpth@hypopara.org
www.hypopara.org
 ABOUT US
• Founded in 1994
• The first non-profit group in the world
to advocate exclusively for hypopara-
thyroidism patients
• More than 3,600 members in 69
countries … and growing!
• A proud member of the National
Organization for Rare Disorders (NORD)
• Directed by a volunteer Board of
Directors and overseen by an expert
Medical Advisory Board
OUR MISSION
•  ducate the public and healthcare
E are at risk for hypocalcemia
professionals about hypoparathyroidism
• Communicate through our quarterly
newsletter, website and social media
platforms
• 
Support patients, their families
and caregivers with information and
emotional support
• 
Fundraise to support hypoparathy-
roidism research
For more information, please visit our
website, www.hypopara.org.
WHAT IS
HYPOPARATHYROIDISM?
Hypoparathyroidism is a rare
disorder that causes lower than
normal levels of calcium in the
blood due to insufficient levels
of parathyroid hormone.
This condition can be inherited,
associated with other disorders,
injury to the neck or it may
result from neck surgery.
People with hypoparathyroidism
(low blood calcium) and other
chemical imbalances that must
be carefully managed to help
reduce the risk of serious short-
and long-term health problems. For more information, please visit our
Hypoparathyroidism affects only
about 100,000 Americans.
WHAT ARE THE SYMPTOMS OF
HYPOPARATHYROIDISM?
The most common outward sign of hypo-
parathyroidism is hypocalcemia (low levels
of calcium in the blood) which can lead to
fatigue, tetany (muscle spasms of the face,
hands, and feet), paresthesia (sensations of
tingling, burning or numbness of the lips,
tongue, fingers and feet), brain fog, mem-
ory loss, depression, muscle weakness,
headache and seizures.
HOW IS HYPOPARATHYROIDISM
TREATED?
There are no approved treatments currently
available. Doctors try to manage the disorder
by keeping blood calcium levels balanced to
reduce symptoms and avoid complications.
website, www.hypopara.org.