Beruflich Dokumente
Kultur Dokumente
health behaviours but there is no reason to handicap as a result of being unable to walk
believe that the utilities they would place on after an accident or a stroke. Clearly, in
handicap states would differ systematically rehabilitation the desired goal is that someone
from those of the subjects who did take part. be able to achieve independent mobility (for
Earlier work showed that the utilities given to example learning to walk again). However, if
a sample of health states (defined by the that is not possible, instruction in the use of a
Rosser-Kind disability and distress dimen- wheelchair and a wheelchair-adapted vehicle
sions8) were not appreciably altered by age or can reduce disadvantage. And if that is not
disability.9 In our study, although the relative possible, owning a car and having a spouse
importance of different dimensions differed with the time and inclination to drive it
greatly between individuals, there were no wherever the subject wants to go leaves that
systematic differences with age, sex, health, subject less disadvantaged in terms of mobility
practice, and housing tenure or in comparison than others who do not have these things.
with a group of 14 health professionals. There There is a disadvantage associated with
is no ideal population for determining scale being reliant on aids or another person for
weights; whether more weight should be given help, and this was subsumed under the
to the views of disabled people, professionals, heading of physical independence handicap
or any other group is essentially political and rather than any other dimension. Since many
not technical. basic physiological, domestic, and hygiene
The interviews were probably about as needs must be met somehow for someone to
difficult as it is reasonable to expect lay survive, the level of dependence in these can
subjects to undertake, and the inaccuracy be used to describe physical independence in
introduced as a result of interpolating part general. Economic self sufficiency embraces
utilities for some levels is the price of obtaining both the effects of ill health on the ability to
the opinions of a reasonable number of the lay earn a living and the ability to use wealth to
public. The response rate was no worse than overcome disadvantages associated with ill
that achieved in other similar utility scaling health. These definitions differ slightly from
studies,10 and this study had the virtue of those originally used in the ICIDH (the
having canvassed the opinions of the general requirement for help in any one dimension
public as opposed to the health professionals, was deemed to be a disadvantage in that
students, or patients used in some other dimension) but were required to keep the
studies.7 8 questions mutually exclusive and relatively
The model which initially emerged from the independent for the scaling exercise.
conjoint analysis gave a range of predicted The London handicap scale has practical
scores which included some negative values. uses both in measuring outcomes of clinical
This suggests that despite the attempt to trials entailing comparisons of group mean
anchor the most disadvantaged end of the handicap scores in intervention and placebo
visual analogue scale on the most disadvan- (or control) groups, by using either the overall
taged scenario which could be described by score or the dimension specific scores, and in
the system used, the responses given for observational epidemiology. The scale might
scenarios which were measured clustered also be used to monitor the case mix between
towards the end of the scale and implied the services when comparisons of outcomes are
possibility of combinations which went made using observational methods. Caution
beyond the end of the scale. With combina- must be observed when applying the scale to
tions of very severe disadvantages a simple examine changes in individual patients for
additive linear model may well be inadequate. clinical assessment as the scale does not aim at
However, the absolute values on an interval measuring an individual subject's handicap
scale are arbitrary, and the five scenarios used (which is unique to that person) but uses the
to test the model gave good agreement views of the general population. The scale is
between measured and predicted scores over a therefore meant for comparisons between
reasonable range of severity, so a 0-1 range groups of subjects, although the extent to
was ensured by adjustment of the constant in which handicap scores reflect the true
the model. The negative values cannot be handicap experienced by an individual will be
interpreted as "worse than death" states as determined by the degree of difference
they are in some other scales. It was between the individual and the general
considered that the concept of "disadvantage" population. An initial investigation of the
being associated with death was untenable, construct validity of the scale in stroke and
and so death was not included among the rheumatoid arthritis patients has been
scenarios. undertaken.1
Although the scaling exercise was difficult, Finally, postal administration of question-
the questionnaire completed by patients (or naires is a useful way of collecting data on a
their carers) is very easy to complete, com- large scale, cheaply, and with only indirect
prising just six questions. The questionnaire professional interpretation of a subject's
descriptions emphasise what someone is able experiences. The London handicap scale is
to achieve in everyday life in their normal available from the authors, who would be
physical environment, regardless of the help pleased to help any prospective users.
that might be required in the form of human
help, aids, or adaptations. For example,
mobility is the ability to get from one place to This study was funded in part by REMEDI and The Sandoz
Foundation for Gerontological Research. Dr Jeremy Shindler
another. Someone might have a mobility and Dr Chris Dobbing selected the subjects from their age-sex
Measuring handicap: the London handicap scale 15
registers; Dr Patrick Gompertz and Ms Pandora Pound made 5 Churchill GA. Marketing research: methodological founda-
many helpful comments on the wording of the questionnaire. tions, 3rd ed Chicago: Dryden Press, 1989.
RHH is an MRC health services research training fellow. 6 SPSS. SPSS categories. Chicago: SPSS, 1990.
7 Martin J, Melzer H, Elliot D. The prevalence of disability
among adults. OPCS Social Survey division. London:
HMSO, 1988.
8 Rosser RM, Kind P. A scale of valuations of states of illness:
is there a social consensus? Int _7 Epidemiol 1978;7:
1 McDowell I, Newell C. Measuring health: a guide to rating 347-58.
scales and questionnaires. New York: Oxford University 9 Ebrahim S, Brittis S. Wu A. The valuation of states of ill-
Press, 1987;26. health: the impact of age and disability. Age Ageing
2 Walker SR, Rosser RM. Quality of life: assessment and 1991;20:37-40.
application. Lancaster: MTP Press, 1988. 10 Torrance GW, Boyle MH, Horwood SP. Application of
3 World Health Organisation. International classification of multi-attribute utility theory to measure social prefer-
impairments, disabilities and handicaps. Geneva: WHO, ences for health states. Operations Research 1982;30:
1980. 1043-69.
4 Harwood RH, Jitapunkul S, Dickinson E, Ebrahim S. 11 Harwood RH, Gompertz PH, Ebrahim S. Handicap one
Measuring handicap: motives, methods, and a model. year after a stroke: validity of a new scale. _7 Neurol,
Quality in Health Care 1994;3:53-7. Neurosurg Psychiatry (in press).
16 Hai-vzood, Rogers, Dickinioni, Ebrah/ioo
QUIll; A\11 You get out of the house, but not far away from it. H I
sIR',' MUsi (H You don't go outside, but you can move around from room to room indoors. H -1
ALM1OS1T1 (SiPI I I,: You are confined to a single room, but you can move around in it. H 5
C(NIPOLF1' FIlY: You are confined to a bed or a chair. You cannot move around at all. There is no-one to move sou. H 0
NOI AxAI510 You get on well svith people, see everyone sou xxant to see, and meet ness people. H-
sEIR' 'SIA .11 .: You get on vell With people, but your social life is slightly limited. H-
Qt-1-II' A1LT1: You are fine with people sou know well, but sou feel uncomfortable xxith strangers. H
i'R s\i I H: You are fine with people vou know well but vou have fee friends and little contact with neighbours. H
Dealing with strangers is very hard.
A l.,sio si'l (')\1 1P1''1 1 N': Apart from the people who look after you, you see no-one. You have no friends and no visitors.
( .0 5N1P1 .1-''III1.N' You don't get on with anyone, not even people who look after you.
basic needs.
The Loodoo hanldicap scale questionabicr