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Journal of Intellectual Disability Research doi: 10.1111/jir.12294


399
VOLUME 60 PART 5 pp 399–400 MAY 2016

Editorial

The intersection of autism spectrum disorder and


intellectual disability

Old ideas can sometimes use new buildings. New ideas approaches to study children with ASD and ID; and
must use old buildings. * 3) social context, which in many ways is the ultimate
landscape for studying children with this co-morbid
Such is the gist of this Special Issue of JIDR on disorder. We provide an overview of this Special Issue
autism spectrum disorder (ASD), the first ever for the as follows.
journal. In seeking papers that addressed the Broadening the assessment of ASD. With the now
intersection of both ASD and intellectual disability accepted increase in the prevalence of ASD, researchers
(ID), we were struck by the importance of drawing and professionals are in need of better and briefer
together the best of both fields. We found that instruments for autism screening and assessment. The
autism-specific instruments and traditional thinking Bayley Scales of Infant Development have long been
were not always the most accurate for researching useful for cognitive and language assessment of young
populations with ID. Similarly, traditional thinking typically developing children before age 3; the
about developmental constructs in ID, such as in the instrument is well-known, psychometrically sound and
area of language, could not adequately describe the requires training for its administration. In Assessment of
unique and often uneven profiles in autism. cognition and language in the early diagnosis of autism
It is interesting that ID is a very common spectrum disorder: Usefulness of the Bayley Scales of Infant
co-morbid disorder with ASD, yet the field over the and Toddler Development (3rd Ed.), Montserrat Torras-
last decade or two has paid little attention to this fact Mañá and colleagues evaluated the predictive validity
(Lecavalier, Snow & Norris, 2011), although the of an earlier administered Bayley at age 4 for Spanish
definition of ASD in DSM 5 (APA, 2013) may children who had a confirmed ASD diagnosis. At the
catalyse research in this area. We do know that in a other end of the developmental spectrum, the article by
sample of 13-year-old adolescents with ASD whose Charlotte Mutsaerts and colleagues, Screening for ASD
IQs fell across the spectrum, IQ did not serve as a in adults with ID: Moving toward a standard using the
protective factor for clinically significant behaviour DiBAS-R and the ACL, indicated improved sensitivity
problems or mental health disorders. Yet, same-aged and specificity using two screening instruments for
individuals with ID had three times the risk of more accurate assessment of autism in adults co-
developing mental health disorders over typically morbid with ID.
developing adolescents (Baker & Blacher, 2015). Language processes and outcomes. Four papers in this
While co-morbidity of ASD and ID does not Special Issue focus more specifically on aspects of
characterise all of the papers in this Special Issue, as language, an area of concern especially in early
we had hoped, most of the papers do present either childhood for children with both ASD and ID.
new ideas or utilise new approaches to the study of Assessing and understanding the language profiles of
ASD. children with ASD – with or without ID – have long
Thus, the papers accepted herein reflect three challenged researchers, and Alexandra Key and
broad areas: 1) assessment, where the architecture of colleagues addressed these issues in Consonant
developmental theory holds up; 2) language, where differentiation mediates the discrepancy between nonverbal
researchers grapple with using traditional language and verbal abilities in children with ASD. Two papers
examined effects of early intervention on language
*Johnson, S. (2010). Where Good Ideas Come from: The Natural outcomes. Lauren Hampton and Ann Kaiser
History of Innovation. London: Penguin Publishing Group. reviewed literature in Early intervention effects on

© 2016 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and
John Wiley & Sons Ltd
Journal of Intellectual Disability Research VOLUME 60 PART 5 MAY 2016
400
• Editorial

spoken-language outcomes for children with autism: A secondary analyses of a large national dataset that
systematic review and meta-analysis, and suggest that Latino children with severe limitations (ID) received
more thorough reporting of critical variables affecting fewer targeted autism services than white non-Latino
language intervention studies implemented by children with similarly severe limitations. Azin Taheri
parents and/or therapists in ASD would better move and colleagues, in Examining the social participation of
the field forward. Veronica Rose and colleagues children with intellectual disabilities and autism spectrum
examined the language outcomes of a large cohort of disorder in relations to peers, considered the social
children with ASD in community intervention, context of peers and community activities in a large
comparing definitions for ‘minimally verbal’ in The Canadian sample of children and youth who were
proportion of minimally verbal children with autism typically developing (TD), or who had ID or ASD
spectrum disorder in a community-based early intervention + ID. Although the youth with ID or ASD + ID had
program. Finally, a more nuanced approach to the fewer opportunities for socialisation and fewer friends
study of imitation in children with ASD is provided by than the TD group, those with ASD + ID had
Mikael Heimann and colleagues in Children with significantly fewer school friends than did the ID
autism respond differently to spontaneous, elicited, and group, suggesting that these children may be in the
deferred imitation. greatest need for school-based social skills
Family and social context. In recognition of the intervention.
growing literature pertaining to families of children All in all, this first ever issue of JIDR devoted to
and adults with ASD, the paper by Meghan Burke ASD and ID is but a beginning. We hope that it
and Tamar Heller, Individual, parent, and inspires more work in this area and more cross-
social-environmental correlates of caregiving experiences fertilisation of researchers interested in both ID and
among parents of adults with autism spectrum disorder, ASD.
offers links between findings about the impact of
adults with ASD and public policy. Importantly, Jan Blacher
the findings indicate that future planning for one’s Co-Editor, JIDR Special Issue on ASD
adult offspring is related to one’s current caregiving Connie Kasari
satisfaction, which appears to be more influenced Co-Editor, JIDR Special Issue on ASD
by the target adult’s health and maladaptive
behaviours than the ID. Liezl Schlebusch and
colleagues provide a rich description of family
routines in households with a young child with References
ASD in their paper, South African families raising American Psychiatric Association (2013). Diagnostic and
children with autism spectrum disorder: Relationship statistical manual of mental disorders (5th ed.) Washington,
between family routines, cognitive appraisal, and family DC:Author.
quality of life. They found that the relationship Baker B. L. & Blacher J. (2015) Disruptive behavior
between the family routines and family quality of disorders in adolescents with ASD: comparison to youth
with intellectual disability or typical cognitive
life was partially accounted for by parent appraisal
development. Journal of Mental Health Research in
of the impact of the child with ASD. Intellectual Disabilities 8, 98–116.
Two papers addressed issues of service delivery. Lecavalier L., Snow A. V. & Norris M. (2011) Autism
Sandra Magaña and colleagues, in Functional severity spectrum disorders and intellectual disability. In:
and Latino ethnicity in specialty services for children with International Handbook of Autism and Pervasive
autism spectrum disorder, explored the issue of equity in Developmental Disorders (eds J. L. Matson & P. Sturmey),
pp. 37–51. Springer, NY.
service delivery. Using multivariate linear and logistic
regression models, the authors determined from

© 2016 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and
John Wiley & Sons Ltd

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