DAFTAR PUSTAKA

Abraham, M., Moretz, J. G. 2012. Implementing patient- and family-centered

care: part I ‒ understanding the challenges. Pediatric Nursing 38(1):44-
47.

Airley, R. (2009). Cancer chemotherapy basic science to the clinic. West Sussex:
Wiley-Blackwell.

American Academy of Pediatrics (2012a). Culturally effective care toolkit:

Medical education. Retreived from http://www.app.org/en-us/professional-
resources/practice-support/patient-management/pages/culturally-effective-
care-toolkit-medical-education.aspx.

American Cancer Society. (2017). https://www.cancer.org/content/dam/cancer-

org/research/cancer-facts-and-statistics/annual-cancer-facts-and
figures/2017/cancer-facts-and-figures-2017.pdf.

Arikunto,S. (2010). Prosedur Penelitian Suatu Pendekatan Praktek. Edisi revisi

V. Jakarta: Rineka Cipta.

Aritonang, M. V. (2008). Pengalaman keluarga dengan anak yang menderita

penyakit kronis. Diakses pada tanggal 20 Maret 2016 dari:
http://respiratory.usu.ac.id/bitstream/123456lontar.ui.ac.id/file?=digital/20
280932-.

Azwar, S. (2012). Sikap manusia, teori dan pengukurannya. Jakarta: Pustaka

pelajar

Baron, R.A. dan Donn Byme. (2003). Psikologi sosial. Jakarta: Erlangga.

Bensinger et al. (2008). Task force report: prevention and management of

mucositis in cancer care. Jornal of the National Comprehensive Cancer
Network. 6(1), 21-22.

Bowden, V.R., Greenberg, C.S. (2014). Children and their families the continuum
of nursing care. Philadelphia: Lippincott Williams & Wilkins.

Budiman dan Riyanto. (2013). Kusioner pengetahuan dan sikap Dalam Penelitian
Kesehatan. Jakarta: Salemba Medika.

Champlain Maternal Newborn Regional Program. (2015). A framework for

putting childbearing families first.
http://www.cmnrp.ca/uploads/documents/FCC_framework_FINAL.pdf.

73
Cecily, L.B., & Linda, A.S. (2002). Buku saku diagnosa keperawatan pediatrik
(ed.3). Jakarta: EGC.

De fretes, fiane. 2012. Hubungan family centered care dengan efek hospitalisasi
Anak Usia 3-6 Tahun. Skripsi Universitas Kristen Satya Wicana.

Dharma, KK. (2011). Metodologi Penelitian Keperawatan: Panduan

Melaksanakan dan Menerapkan Hasil Penelitian. Jakarta: Trans Info
Media.

El-Sawy et al. (2013). Knowledge and home practices of caregivers having

children with leukemia attending national cancer institute Cairo
University. Medical Journal of Cairo University, 81(1), 601-608.

Elsayed, E.M., Mahmoud, F.S. (2012). Outcome of enhancement of maternal

knowledge and practice on health status of their children with cancer.
Journal of American Science, 8(3), 322-333.

Fianza P. I. (2009). Leukemia Limfoblastik Akut Dalam : Buku Ajar Ilmu Penyakit
Dalam Jilid II. Edisi 5. Jakarta: Interna Publishing.

Enskar, K., & Von Essen, L. (2008). Physical problems and psychosocial
functional in children with cancer. Pediatric Nursing.

Friedman et al. (2010). Buku ajar keperawatan keluarga: riset, teori dan praktik.
Jakarta: EGC.

Fouad R. (2013). Family caregivers knowledge and practice of children with

PKU. Master Degree in Nursing Science. Cairo University.

Gibson, F. & Soanes, L. (2008). Cancer in children and young people. West
Sussex: John Wiley & Sons.

Hapsari, H. I. (2012). Pengaruh pendidikan kesehatan tentang efek samping

kemoterapi melalui multimedia terhadap perilaku orang tua dalam
merawat anak leukemia yang sedang kemoterapi. Tesis FIK UI.

Hasan S.H., Hussein K.A., Hashim M.. (2011). Assessment of home care
management for caregiver’s having leukemic adolescent patient in Erbital
City. Kufa Journal of Nursing Science, 2(1):1-2.

Hidayat, AA. (2012). Riset Keperawatan dan Teknik Penulisan Ilmiah. Jakarta :
Salemba Medika.

74
Hockenberry, M.J & Wilson, D. (2011). Nursing care of infant and children, 9th
ed.ed. Elvesier Mosby, St. Louis: Missouri.

Holm, K.E., Patterson, J.M., Gurney, J.G. (2003). Parental involvement and
family centered care in the diagnostic and treatment phases of childhood
cancer: result from a qualitative study. Journal Pediatry Oncology Nursing,
20(6), 301-13

Johnson, B., Abraham, M., Conway, J., Simmons, L., Edgman-Levitan, S.,
Sodomka, P., Ford, D. (2008). Partnering with patients and families to
design a patient-and family-centered health care system: Recomendations
and promising practices. Retrieved from
www.ipfcc.org/pdf/PartneringwithPatientsandFamilies.pdf.

Kaakinen, J.R., Duff, V.G., Coehlo, D.P., Hanson, S.M. (2010). Family Health
Care Nursing. United States of America: F.A Davis Company.

Kemenkes RI. (2013). Riset Kesehatan Dasar. Diunduh pada:

http://www.depkes.go.id/index.php?txtKeyword=obesitas&act=search-
bymap&pgnumber=0&charindex=&strucid=1280&fullcontent=1&C-
ALL=1 Diakses pada 3 Januari 2017.

Levine et al. (2017). Pediatric oncology patient and parents attitudes on early
palliative care integration. Journal Pediatry Oncology Nursing, 3(9),
1214-1220.

Lewis, Dirksen, Heitkemper, & Bucher. (2014). Medical surgical nursing.

Assesment and management of clinical problems (9th edition). St. Louis:
Mosby.

Linton, A. (2012). Introduction to medical-surgical nursing. St. Louis: Mosby.

Markutty, P.V., Rayaroth, P., Soumya, S. (2014). Knowledge and practice of

parents of leukemic children. Journal of International Academy Research
For Multidisciplinary, 2(9),10-13.

Murhayati (2010). Hubungan antara tingkat pengetahuan dan sikap ibu dengan
praktik cara perawatan balita yang menderita ispa pneumonia di wilayah
kerja puskesmas mojolaban I Kabupaten Sukoharjo. Jurnal Kesmadaska,
1(1), 34-39.

National Cancer Institute. (2007). Chemotherapy and you: Support for people
with cancer. Diunduh 20 Maret 2012.

75
Newton, S., Hickey, M., & Marrs, J. (2009). Mosby’s oncology nursing advisor: A
comprehensive guide to clinical practice. Missouri: Mosby Elsevir.

Notoatmodjo, S. (2010). Metodologi penelitian kesehatan. Jakarta: Rineka Cipta.

Notoatmodjo, S. (2012). Promosi kesehatan dan Perilaku Kesehatan. Jakarta :

Rineka cipta.

Nursalam. (2008). Konsep dan penerapan metodologi penelitian ilmu

keperawatan: pedoman skripsi & tesis dan instrumen penelitian
keperawatan. Jakarta: Salemba Medika.

Nursalam. (2008). Manajemen Keperawatan edisi 3. Jakarta: Salemba Medika.

Pashankar, F.D., Season, J.H., McNamara, J., & Pashankar, D.S. (2011). Acute
constipation in children receiving chemotherapy for cancer. Journal
Pediatry Hematology Oncology, 3(7), e300-e303.

Penarrieta, M.I., Barrious, F.F., Gomez, T.G., Martinez, S.P., Gonzales, E.R,
Valle, L.M. (2015). Self management and family support in chronic
diease. Journal of Nursing Education and Practice, 5(11), 73-79.

Obaid, K.B., Ajil, Z.W., Al-Ganmi, A.H. (2014). Mothers Knowledge Concerning
Leukemic Children Undergoing Chemotherapy Treatment in Oncology
Units at Baghdad City. International Journal of Asian, 1(24), 527-542.

Octamina, A. (2015). Hubungan Pengetahuan dan Sikap Orang Tua terhadap

Perawatan Pasien Hemofilia di Provinsi Aceh. Tesis. FK Universitas Syiah
Kuala. 2015.

Reinfjell, T., Lofstad, G.E., Nordahl, H.M., Vikan, A., & Diseth, T.H. (2009).
Children in remission from acute lymphoblastic leukemia: Mental health,
psychosocial adjustment and parental functioning. European Journal of
Cancer Care, 18, 364-370.

Riset Kesehatan Dasar (Riskesdas). (2013). Badan Penelitian dan Pengembangan

Kesehatan Kementerian RI tahun 2013. Diakses: 19 Oktober 2014, dari
http://www.depkes.go.id/resources/download/general/Hasil%20Riskesdas
%20 2013.pdf.

Riyanto A. & Budiman. (2013). Kapita selekta kuesioner pengetahuan dan sikap
dalam penelitian kesehatan. Jakarta: Salemba Medika pp 66-69.

Robbins. (2006). Perilaku Organisasi, Edisi 10. Jakarta: PT Indeks Kelompok

Gramedia.

76
Santrock, J.W. (2007). Perkembangan anak edisi 7, Jilid 2. Jakarta: Penerbit
Erlangga.

Selwood, K. (2008). Oncologic emergencies. In: Gibson F, Soanes L (eds) Cancer

in children and young people. Wiley, London, pp 73-82.

Setiadi. (2013). Konsep dan Praktek Penulisan Riset Keperawatan. Yogyakarta :

Graha Ilmu

Shields, L, et al. (2012). Family-Centere Care for Hospitalised Children Aged 0-

12 years (Review). Cochrane Library, (10),1-59.

Shields, L., Pratt, J., Hunter, J., 2006. Family-centred care: a review of qualitative
studies. Journal of Clinical Nursing 15:1317-1323.

Siagian, S.P. (2008). Manajemen Sumber Daya Manusia. Jakarta: PT. Bumi
Aksara.

Simanjorang, C. (2012). Perbedaan ketahanan hidup 5 Tahun pasien leukemia

limfoblastik akut dan leukemia mieloblastik akut di rumah sakit kanker
Dharmais Jakarta. Tesis. FKM UI.

Sitaresmi, M.N., et al., 2009. Chemotherapy-related side effects in childhood

acute lymphoblastic leukemia in Indonesia: parental perceptions. Journal
Pediatry Oncology Nursing, 26 (4), 198–207.

Smeltzer, S.C., Bare, B.G. (2008). Brunner and Suddarth’s Textbook Of Medical-
Surgical Nursing, ter. Agung. Jakarta: EGC.

Stark, D.P.H., & House, A. (2000). Anxiety in cancer patients. British Journal of
Cancer, 83 (10), 1261-1267.

Sudiharjo. (2005). Asuhan keperawatan keluarga dengan pendekatan keluarga

transkultural. Jakarta: EGC.

Sullivan-Bolyai, S., Knafl KA., Sadler L, et al. (2004). Great expectations: a

position description for parents as caregivers: part II. Pediatr Nurs,
30(1):52-56.

Sullivan-Bolyai, S., Sadler, L., Knafl KA et al. (2003). Great expectations: a

position description for parents as caregivers: part I. Pediatr Nurs,
29(6):457-463.

Supardi & Rustika. (2013). Buku Ajar Metodologi Riset Keperawatan. Jakarta:
Trans Info Media.

77
Supartini, Y. (2004). Buku ajar konsep dasar keperawatan anak. Jakarta: EGC.

Taylor, S.E. (2009) Health psychology. 6th edition. New York : McGraw-Hill
International.

The Leukemia & Lymphoma Society. (2003). Childhood blood cancer facts and
statistics.https://www.lls.org/http%3A/llsorg.prod.acquiasites.com/factsan
dstatistics/facts-and-statistics-overview/facts-andstatistics/childhoodblood-
cancer-facts-and-statistics.

Tomlinson, D., & Kline, N. E. (2010). Pediatric oncology nursing, second edition.
New York: Advanced clinical: Springer.

Videbeck, S.V. (2012). Psychiatric-mental health nursing: Lippincott Williams &

Wilkins.

Wawan A, Dewi M. (2010). Pengeahuan, Sikap dan Perilaku Manusia.

Yogyakarta:Nuha Medika.

Wong, D.L., Hockenberry, M., Wilson, D., Winkelstein, M.L., & Schwartz, P.
(2009). Buku ajar keperawatan pediatrik Wong, 2(6). Alih Bahasa:
Sutarna, A., Juniarti, N., & Kuncara, H.Y. Jakarta: EGC.

Wu, L.M., Chin, C.C., Haase, J.E., & Chen, C.H. (2009). Coping experiences of
adolescents with cancer: A qualitative study. Journal of Advanced
Nursing, 65(11), 2358-2366.

78