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Barbara Riddick
To cite this article: Barbara Riddick (2001) Dyslexia and inclusion: Time for a social model
of disability perspective?, International Studies in Sociology of Education, 11:3, 223-236, DOI:
10.1080/09620210100200078
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word reading task. Interestingly Turkish was radically reformed in the 1920s
to simplify spelling.
Landerl et al (1997) compared the reading of English and German
dyslexic children and found that once they went beyond short high frequency
words that the differences between English and German children were
considerable.
They noted that:
English dyslexic children suffered far more severe impairments in
reading than German dyslexic children ... The differences between the
English and the German dyslexic children were comparatively small for
the short high frequency words. For all other conditions however the
differences were enormous. (p. 328)
All these researchers conclude that dyslexic children can be identified in all
languages but English as one of the most irregular and complex languages
researched to date gives such children considerably more difficulty. Spencer
(2000) argues that we should make English speaking children aware that they
are learning a difficult written language and that any deficiencies lie in the
language rather than in themselves. He suggests that reform of the language
should be considered and that if we do not go down this road we have to
acknowledge that we are seriously disadvantaging dyslexic children by not
doing so. If we make a crude analogy with physical and sensory impairments
this can perhaps be seen as an access issue.
Although the two are inextricably linked the other major issue for all
people with impairments is the attitudes and particularly the prejudices of the
dominant society. In the case of impairments like dyslexia or specific leaning
difficulties these attitudes focus primarily on their literacy skills.
Attitudes to Literacy
West (1991) argues that too often language is treated as a unitary construct
and this leads to the surprise that people express when someone who is
perceived as highly literate is found to be a poor speller. He cites the example
of William Butler Yeats who in West’s opinion was clearly dyslexic. The
editor of Yeats’s memoirs commented:
Handwriting is difficult ... As for spelling and punctuation, Yeats never
mastered those skills. If Yeats’ bad handwriting has one virtue it is that
it disguises his even worse spelling.
The editor also commented on Yeats’s letter of application for the Chair of
English at Trinity College, Dublin:
Unhappily the eager aspirant to a Chair of English contrives to spell the
sought after office ‘proffership’.
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When I was a child I thought I had done something dreadfully bad and
that I was being punished and there was some god or gods playing with
my little life just to torment me. (Dyslexic Student, quoted in Riddick et
al, 1997, p. 65)
The first models or conceptualisations of dyslexia were ‘medical’ ones in that
they were suggested by clinicians such as Hinshelwood (1917), an eye
surgeon working in Glasgow, and Orton (1937), a neurologist working in the
USA. Hinshelwood characterised dyslexia as ‘congenital word blindness’.
Orton maintained, although there were visual difficulties, that the term ‘word
blindness’ was misleading as there was no ‘blindness’ in the conventional
sense of the word but that visual distortions and reversals of letters and words
seemed to be at the route of the problem. These models therefore saw
specific (often inherited) organic impairments as the basis of dyslexia. These
medical models of dyslexia in alliance with educational notions of
remediation formed the basis for some of the early interventions at places like
the ‘Word Blind Institute’ in Copenhagen and the ‘Word Blind Centre’ in
London. From a social model of disability perspective they were operating on
a deficit model of dyslexia with the aim of correcting or lessening these
deficits. Over the last 30 years the focus on visual difficulties as the basis of
dyslexia has been supplanted by the emphasis on language processing
difficulties and more particularly difficulties in ‘phonology’ in other words
processing speech sounds. Although there is still debate over the underlying
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basis of dyslexia these approaches like the older ones still focus on the
apparent underlying deficits or deficiencies that produce dyslexia. This large
body of cognitive research evidence has been important in validating the
construct of dyslexia and providing ‘evidence’ in the face of disbelief and
hostility. It raises interesting questions about what is considered as valid
evidence and the importance of what is considered ‘objective ‘evidence rather
than personal evidence in arguing a case. Such evidence has also been
important in informing the kinds of intervention that will be most effective in
remediating literacy difficulties.
Educational Models
Perhaps because dyslexia was seen as emanating from a medical model, and
was not an obvious impairment like a physical or sensory one, there was
strong scepticism towards it from many educationalists. Tonnessen (1999)
suggests that in the 1950s and 1960s difficulties with reading and writing
were commonly attributed to poor or incomplete education.
Miles & Miles (1990) commenting on attitudes to dyslexia in Britain
note that:
In the 1970’s the reaction of the educational establishment to the concept
of dyslexia was largely hostile and in some quarters it continues to be so,
even though, overall, this hostility is becoming less.
Paradoxically it may have been partly because educationalists in the ’60s and
’70s were uncomfortable with a deficit model that that they were so reluctant
to accept the construct of dyslexia. The unfortunate side effect of this for
many children was that mis-attributions were made about their reading and
writing difficulties which were often put down to lack of intellectual capacity
or lack of motivation or a poor home environment with attendant emotional
difficulties. So for many children a more inaccurate and damning deficit
model was applied that offered little hope of effective support.
From the 1980s onwards an increasing proportion of educationalists in
Britain have moved towards accepting the construct of dyslexia or specific
learning difficulties
Within schools a model of dyslexia prevails which sees underlying
processing difficulties especially in phonology as the root cause (British
Psychological Society, 1999). Various early interventions like reading
recovery aim to improve phonological and other deficiencies. It could be
argued that the considerable body of research emphasising the importance of
phonology to reading and spelling has influenced the National Literacy
Strategy which incorporates systematic phonological teaching within its
framework. Piotrowski & Reason (2000) suggest that the influence of special
education on the National Literacy Strategy (NLS) has been underestimated.
They point out that there are many commonalties between special
programmes and materials for children with dyslexia type difficulties and
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aspects of the NLS framework. The NLS operates under the same tension as
education overall in its desire to attain high literacy standards and high levels
of inclusion. An approach designed to improve all children’s literacy through
balanced and systematic teaching is to be applauded. But it is important that
those children who struggle to attain targets are not made to feel deficient
and demoralised. Smith et al (2001) in a survey of teachers experiences of the
Literacy hour found that whereas it benefitted the majority of children for
those with severe literacy difficulties neither the structure or the learning
objectives of the literacy hour were deemed appropriate. A review of outcome
studies on the NLS (Lingard, 2000) concludes that it has had little impact on
those children with the lowest literacy attainments.
One of the major distinctions that can be made is between what
Goffman (1968 ) terms ‘evident’ and ‘not evident’ disabilities. An evident
disability like a physical or visual impairment is one that is usually obvious to
an onlooker whereas a not evident disability like autism or dyslexia is one that
is not immediately obvious to an onlooker. It may be that labels are
particularly important for non evident disabilities in that they can mediate
between the individual and their cultural context and explain certain
difficulties that they have and thus help to prevent inaccurate or negative
attributions.
Andy, the dyslexic student with probably the severest impairments in
the Riddick et al (1997) study, talked about the problems of having a not
evident disability:
There are times in the library if I had a white stick and a guide dog I
wouldn’t feel so bad. Sometimes I can’t find something and I can’t find
it for looking for it, and everything is blending in to one another ...
Then I go and ask the librarian and on several occasions they have been
really rude and said it is on the shelf all you have to do is look for it.
(p. 38)
A 13-year-old dyslexic boy commented on his frustration at being told by
teachers that he must ‘try harder’ to spell correctly. He pointed out that they
wouldn’t tell the child with partial sight in his class that he must ‘try harder’
to see.
The most common informal label that children and students perceived
they had been given at school was that they were ‘thick’, ‘stupid’, ‘lazy’ or
‘careless’:
They thought I was this idiotic moron.
This student in common with others reported that he internalised this
message or informal label:
I truly thought I was thick and just couldn’t do it.
Like other children and students he reported that an important part of having
a formal label was that it countered the negative view of himself generated by
the informal labelling process:
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Barbara Riddick
Once I got the assessment it was like one of the greatest days of my life,
it was like yes I’m not thick.
Peter a mature student who was not identified until his mid 30s had very
negative experiences at school and strongly objected to the school’s notion
that he was careless and lazy:
I think it’s the person who dismisses it that’s being lazy.
From a social model of disability perspective it appears that it has to be
demonstrated that individuals with dyslexia have a legitimate impairment
before it is possible to consider how cultural practices and norms have added
to the degree of disability.
West (1991) wonders if the move away from apprenticeship training
and the academic nature of nearly all learning has exacerbated the difficulties
that dyslexics face:
While it is good that specific remedial help is now available for those
with learning disabilities we ought not too forget the great advantage of
being able to work and pay one’s own way using one’s strengths, while
one is slowly dealing with areas of weakness and difficulty. (p. 55)
Although there is still debate several authors including West (1991) and
Singleton (1999) are suggesting that dyslexics may have cognitive strengths
as well as weaknesses:
The deficit model of dyslexia is now steadily giving way to one in which
dyslexia is increasingly recognised as a difference in cognition and
learning.(Singleton, 1999, p. 27)
From a disability rights perspective it is important that dyslexia does not bar
individuals from educational and vocational opportunities that they are
otherwise qualified for. The report on Dyslexia in Higher Education (Singleton
1999) found that 7 institutions explicitly stated that they did not admit
students with dyslexia to teacher training courses. In an update to this report
Singleton (2001) found that the situation had not improved and he
highlighted this as an area of particular concern. Feedback from trainee
teachers and would be trainee teachers with dyslexia suggests that many more
departments informally bar them or are reluctant to admit them sometimes
without interviewing them or looking at their pattern of strengths and
weaknesses. This reluctance on the part of departments is partly because of
the governments stringent literacy and numeracy standards for trainee
teachers in all subject areas. Teacher training departments like schools
seemed to be caught between the opposing forces for inclusion and higher
academic standards.
In a recent study by the author (Riddick, 2001) semi-structured
interviews were carried out with seven dyslexic teachers and five dyslexic
trainee teachers. Out of the five trainee teachers, two did not declare their
dyslexia when they applied for training because of previous discrimination.
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The three trainees who did declare their dyslexia, when applying, all
encountered negative attitudes and comments about their dyslexia, “When I
said I’d got dyslexic some places wouldn’t touch me with a barge pole”.
The teachers ranged in experience from one newly qualified teacher to
teachers with over 30 years’ experience. In role they covered primary and
secondary, mainstream and special school and ranged from class teachers to a
head of department and a head teacher. Both the teachers and trainee
teachers were able to describe the effective coping strategies that they used to
overcome any literacy difficulties they had in the classroom. All of them
stressed the importance of planning and preparing ahead with experienced
teachers feeling less need to do this than newly qualified and trainee teachers.
All of them felt on balance that being dyslexic was an advantage to them as a
teacher because it made them more empathic towards children who were
struggling. Those who had been given specific support for their dyslexia felt
they were able to utilise these strategies in supporting children and suggesting
methods of support to their teaching colleagues. The trainee teachers
generally felt that although they coped well on their teaching placements that
they were frightened of being ‘found out’ and would have welcomed more
support on developing their coping strategies. Most teachers and trainee
teachers were selective about who at school they told about their dyslexia,
usually confining it to trusted colleagues because of fear that it would be seen
as incompatible with being a competent teacher:
I feel like I sometimes scraped by because sometimes you cover it up and
nobody knows. (Dyslexic teacher)
Goffman (1968) uses the term ‘passing’ to describe these kind of strategies
where a person tries to hide some aspect of his or her self for which they
think they might be stigmatised.
One trainee who decided to tell her teaching practice school of her
dyslexia was told:
There will be zero tolerance of spelling errors.
An experienced dyslexic teacher commented on the impact the current
emphasis on high literacy standards was having in her school:
Enormous pressure. There are a number of staff where it’s not tolerated.
Teachers were therefore in the contradictory position of feeling their
disability enhanced their teaching performance but might discredit them in
the eyes of the wider educational establishment. In the current climate of
inclusion it seems ironic that many dyslexic teachers and especially trainee
teachers still do not feel fully accepted by the educational establishment when
it could be argued that they have an important role in helping schools to
develop a better understanding of the experiences of children with special
needs. Vogt (1997) argues that tolerance in education is crucial because it
can prevent negative beliefs and attitudes from becoming actions. It was
noted by Bowe et al (1992) that educational policies are an expression of
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values and how they should be implemented. They suggest that a particular
dilemma is how to foster a degree of ‘tolerance without latitude’.
The cognitive impairment model has served us well in developing
effective identification and intervention for individuals with dyslexia.
However there are concerns or limitations to this perspective. Snowling
(2000) in a review of intervention studies noted that even one of the most
successful recent studies reported that 20-25 % of children were still poor
readers at the end of the study. Several studies (Felton & Wood, 1989;
Bruck, 1990; Snowling et al, 1997) have found that underlying impairments
in cognitive skills such as rapid naming, verbal short term memory, and
phonological awareness persist into adulthood for individuals with dyslexia.
This kind of evidence suggests that an approach focused solely on
remediating difficulties will not always be sufficient and that at some point a
social model of disability perspective, which questions current assumptions,
norms and practices in relation to literacy, needs to be included. One of the
experienced teachers with dyslexia whilst upholding the need for high literacy
standards commented:
I mean it’s very political (language and spelling)... very elitist ... and
it’s about power.
The current attempts to improve levels of adult and school literacy are
commendable The issue is how to do this without increasing intolerance
towards those with specific literacy difficulties. A social model of disability
perspective which challenges peoples negative assumptions and mis-
attributions towards children and adults with specific literacy difficulties may
have an important role to play in achieving both high literacy standards and
high tolerance.
Correspondence
Barbara Riddick, School of Education, Hammerton Hall, Gray Road,
Sunderland SR2 8JB, United Kingdom (barbara.riddick@sunderland.ac.uk).
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