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Key Words through the evaluation of the other’, ‘feeling oneself only
Eating disorders ⴢ Embodiment ⴢ Identity ⴢ through objective measures’, ‘feeling extraneous from one’s
Psychopathology ⴢ Questionnaire own body’, and ‘feeling oneself through starvation’. Conclu-
sions: IDEA represents a multidimensional, brief, versatile,
easy-to-perform instrument for clinical evaluation, assessing
Abstract abnormalities in lived corporeality, and of personal identity,
Background: In this paper we tested the hypothesis that which appeared to be specifically associated with the core
persons with eating disorders (EDs) are affected by distur- features of ED psychopathology. The main limitations of the
bances of the way they experience their own body (embodi- study are the cross-sectional design. Also, it is impossible to
ment) and shape their personal identity, assuming that the ascertain whether the domains we assessed are specific
various kinds of anomalies of eating behavior are conse- traits of patients with EDs, or state-related features. To an-
quences thereof. Sampling and Methods: We developed swer this question, a longitudinal study is needed.
and validated a new self-reported questionnaire named Copyright © 2012 S. Karger AG, Basel
IDEA (IDentity and EAting disorders), which was adminis-
tered to 147 ED patients and 187 healthy controls. Test-retest
reliability, internal consistency, psychopathological corre- Introduction
lates, and concurrent validity were evaluated. A factor analy-
sis was performed to verify the distribution of items into sub- Eating disorders (EDs) are severe psychiatric syn-
scales. Results: The questionnaire showed good test-retest dromes that most likely result from, and are sustained by,
reliability, and internal consistency. IDEA scores were spe- sociocultural, psychological and biological factors [1, 2].
cifically associated with ED psychopathology, and they did DSM IV-TR [3] divides EDs into three diagnostic catego-
not show any correlation with sociodemographic and gen- ries: anorexia nervosa, bulimia nervosa and eating disor-
eral clinical variables. Four factors were extracted, which ders not otherwise specified, a heterogeneous category
were related to the following phenomena: ‘feeling oneself considering those EDs that fail to meet the diagnostic cri-
only through the gaze of the other and defining oneself only teria for either anorexia nervosa or bulimia nervosa and
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Materials and Methods – This iterative process resulted in a developed set of 61 sentenc-
es, in such a way that they could be applied to a wide popula-
Data were collected at the Outpatient Clinic for Eating Disor- tion of ED patients including all the principal diagnoses (an-
ders of the Psychiatric Unit of the University of Florence, Italy. orexia nervosa, bulimia nervosa, and binge eating disorder),
regardless of age, sex, familial status, occupation, or education
Development of the Questionnaire level. For each question, the patient is asked to score on a
The Italian version of the questionnaire was developed with 5-point Likert scale (0: do not agree, 4: strongly agree with the
the contributions of several psychiatrists and psychologists, tak- sentence).
ing in consideration the patients’ attitudes toward their lived cor- – Considering that the areas mentioned above were only based
poreality, and the definition of their own identity. on our theoretical model, we effectively verified the structure
The steps for the development of the questionnaire were as fol- of the questionnaire by a an exploratory factor analysis.
lows: – The first version of the questionnaire was administered to a se-
– The generation of a first list of questions was conducted in dif- ries of 221 ED patients being referred for the first time to the
ferent phases, including domain generation, and item genera- Outpatient Clinic for Eating Disorders. Prior to factorization,
tion. To develop domains, experts in ED research and treat- we explored the frequency distribution of each item, and an
ment, together with researchers with a phenomenological item analysis was performed, including difficulty index, and
background, identified areas that were most important and discrimination index. An exploratory factor analysis (with Pro-
impacted ED patients. The theoretical background of the max rotation) was applied, showing that 4 main factors should
questionnaire was an attempt of integrating the phenomeno- be retained. Items that showed a weak unrotated correlation
logical approach of lived corporeality described in the Intro- (r ! 0.30) with all the four factors were excluded. On the basis
duction with the clinical one, based on the cognitive behav- of these initial analyses, the number of items was reduced, and
ioral model. a shorter version of the questionnaire was developed (23 items).
The experts were specifically asked to think about the concept The complete final version of the questionnaire, together with
of lived corporeality, and more specifically the ‘lived-body-for- the scoring system, is reported in the Appendix. The total IDEA
others’, as it applies across a broad range of ED patients. They were score is obtained as the mean of all item scores.
also asked to make use of their familiarity with ED research as
well as their clinical experience. Subjects
The items were conceptually related to different areas: The final version of the questionnaire was evaluated in a series
(1) feeling oneself through the gaze of the other; of ED patients attending the Outpatient Clinic for Eating Disor-
(2) defining oneself through the evaluation of the other; ders of the Psychiatric Unit of the University of Florence between
(3) feeling oneself through objective measures; October 1, 2009, and June 30, 2010, and in a group of healthy con-
(4) feeling extraneous from one’s own body; trol subjects. Patients involved in the development of the IDEA
(5) feeling oneself through starvation; questionnaire did not participate in the present study. Patients
(6) defining one’s identity through one’s own body; were enrolled according to the following inclusion criteria: female
(7) feeling oneself through physical activity and fatigue. gender, age 18–40 years, current DSM-IV diagnosis of anorexia
– Then, items meant to tap each of these content areas were gen- nervosa, bulimia nervosa or binge eating disorder. The diagnoses
erated. The most commonly voiced identity concerns and be- were based on the current symptomatology at referral.
liefs were considered on the basis of the clinical experience, Exclusion criteria were as follows: illiteracy, intellectual dis-
statements identified in the literature as particularly associated ability, comorbid schizophrenia and delusional disorders.
with EDs, and qualitative data on self-beliefs in EDs that had Of the 162 Caucasian cases with an ED consecutively referred,
been routinely and systematically collected in the course of pre- 6 patients refused to participate in the study, and 9 subjects were
vious research in this area. Moreover, this material was inte- excluded from the study because of the following reasons: illit-
grated with transcripts from clinical interviews, and with ED eracy (1), intellectual disability (1), comorbid schizophrenia (1),
patients’ diaries. Diaries are tools commonly used in the context and delusional disorder (6). The final sample was composed by
of the cognitive-behavioral treatment provided at our clinic. Pa- 147 ED subjects.
tients provided their written informed consent to the use of Healthy controls (matched with the clinical sample for age,
their diaries for the present research. All the sentences selected gender and education) were recruited among female students of
by the researchers were reviewed, collected and redistributed to the University of Florence, provided they met the following inclu-
add additional items to each domain of the questionnaire. sion criteria: absence of Axis I mental disorders, evaluated by
– Afterwards, junior psychiatrists read the items and provided means of a structured interview [32], and body mass index (BMI)
feedback regarding which of them were confusing or easily between 18.5 and 25. Of the 190 consecutive healthy controls re-
misinterpreted. Next, patients with a diagnosis of EDs pro- cruited, 3 subjects refused to give their informed consent, so that
vided feedback about the content of the items and directions the final sample group consisted of 187 subjects.
for the instrument. Patients explained, in their own words,
what they believed each item and the directions for the instru- Assessment
ment meant. Items or directions associated with common mis- The IDEA questionnaire was administered together with the
interpretations were revised. After this initial field testing, the clinical assessment at the first day of admission. Sociodemo-
sentences were modified considering the feedback from pa- graphic, psychopathological and clinical data were collected
tients and other physicians. Experienced clinicians examined through a face-to-face interview by two expert psychiatrists (V.R.,
each item for clarity, redundancy, and content validity. G.C.). The diagnosis of Axis I mental disorders was performed by
Internal Consistency
Internal consistency was evaluated using Cronbach’s ␣
method. Results
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Table 1. General characteristics of the sample
Values are reported as mean 8 standard deviation. ANOVA (F) for comparison of means among patients’ diagnoses, and two-
tailed Student’s unpaired t test (t) for comparison of means between patients and healthy controls; * p < 0.05; ** p < 0.01.
EDs = Eating disorders; AN = anorexia nervosa; BN = bulimia nervosa; BED = binge eating disorder; BMI = body mass index; SCL-
90 GSI = symptom checklist (SCL 90-R) global severity index; BDI = Beck depression inventory; STAI = state-trait anxiety inventory;
EDE-Q = eating disorder examination questionnaire.
served among ED diagnoses in terms of clinical variables Table 2. Scores of individual items
(with the exception of BMI). BMI, age, and STAI scores
did not show a normal distribution. Scores of individual Item Eating disorder Healthy controls
patients (n = 147) (n = 187)
items are summarized in table 2. Patients with EDs
showed higher scores for all IDEA items compared with 1 2.0981.46** 0.8581.01
healthy controls, as well as for IDEA total score (mean 8 2 1.6881.34** 1.0181.23
standard deviation: 1.59 8 0.95 vs 0.45 8 0.47; p ! 0.001). 3 1.3381.42** 0.8481.02
4 1.7782.20** 0.3280.61
5 1.9181.51** 0.5080.86
Test-Retest Reliability 6 1.4781.43** 0.1180.38
Intraclass correlation coefficients, 95% confidence in- 7 1.8181.39** 0.6280.85
terval (CI) of IDEA total score were 0.94, 0.90–0.96 for 8 1.6681.43** 0.2980.66
patients with EDs, and 0.91, 0.84–0.95 for healthy con- 9 2.0681.47** 0.5080.89
trols. 10 1.8381.53** 0.4680.80
11 1.5981.48** 0.3980.71
12 0.9381.34** 0.0580.28
Internal Consistency 13 1.8681.56** 0.5580.86
Cronbach’s ␣ value was 0.92 for IDEA total score. A 14 1.3181.39** 0.0580.28
value of 0.80 is considered satisfactory for internal con- 15 1.7281.40** 0.8480.89
sistency [39]. 16 1.5381.45** 0.5280.82
17 0.9081.23** 0.0880.31
18 1.3181.40** 0.3980.72
Clinical Correlates 19 1.7881.49** 0.3680.67
Table 3 reports correlations for IDEA subscales ob- 20 1.4181.40** 0.3480.64
tained from the retained factors. Considering convergent 21 1.8281.40** 0.3480.64
validity, IDEA total score was significantly associated 22 1.8481.55** 0.3080.62
with EDE-Q total score, and with all EDE-Q subscales, 23 1.0981.36** 0.3880.70
and with BDI scores (r = 0.30; p ! 0.05). Considering dis- Values are reported as mean 8 standard deviation.
criminant validity, IDEA total score did not show signif- Two-tailed Student’s unpaired t test (t) for comparison of
icant correlation with sociodemographic and general means between patients and healthy controls; ** p < 0.01.
clinical variables.
IDEA total score 0.24 0.30* 0.17 0.40** 0.34** 0.25* 0.30** 0.36**
GEO 0.12 0.16 0.07 0.33** 0.32** 0.15 0.20 0.31**
OM 0.26 0.30* 0.16 0.32** 0.19 0.30* 0.32** 0.28*
EB 0.29* 0.28* 0.26 0.37** 0.20 0.19 0.36** 0.36**
S 0.15 0.22 0.05 0.32** 0.39** 0.19 0.14 0.22*
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Incremental Validity
According to stepwise logistic regression analysis, at 12
step 1, EDE-Q total score (with age, gender, and BMI ad- 10
justment) predicted ED diagnosis with odds ratio (OR),
95% CI of 7.49, 4.87–11.52 (–2 log-likelihood = 226.27); at 8
Eigenvalue
step 2, with IDEA total score added to the model, EDE-Q
6
total score and IDEA total score predicted ED diagnosis,
respectively, with OR 95% CI of 4.91, 3.12–7.73 and 4.99, 4
2.77–9.00. The difference between the –2 log-likelihood
of the first and the second step (–2 log-likelihood = 2
IDEA total score 1.5680.88 1.6681.04 1.5680.94 0.18 1.5980.95 0.4580.47 15.19**
GEO 1.7981.15 1.5681.16 1.5481.16 0.66 1.6381.15 0.5380.64 10.90**
OM 1.7181.20 2.0581.28 1.9081.27 0.86 1.8981.25 0.4280.63 13.78**
EB 1.1580.88 1.5481.09 1.4481.12 1.82 1.3881.04 0.1780.29 15.01**
S 1.3580.91 1.5481.22 1.3681.19 0.42 1.4181.11 0.6580.60 7.98**
Values are reported as mean 8 standard deviation. ANOVA (F) for comparison of means among patients’ diagnoses, and two-
tailed Student’s unpaired t test (t) for comparison of means between patients and healthy controls; ** p < 0.01.
EDs = Eating disorders AN = anorexia nervosa; BN = bulimia nervosa; BED = binge eating disorder; GEO (factor 1) = ‘feeling one-
self only through the gaze of the other and defining oneself only through the evaluation of the other’; OM (factor 2) = ‘feeling oneself
only through objective measures’; EB (factor 3) = ‘feeling extraneous from one’s own body’; S (factor 4) = ‘feeling oneself only through
starvation’.
factor (VIF). For our current models, the VIF values were In the present study, we decided to administer and test
all below 2, showing that collinearity should not be cause the questionnaire to subjects suffering from anorexia
for concern [40]. nervosa, bulimia nervosa and binge eating disorder. This
choice to include different subtypes of ED is based on the
assumption that patients with EDs share some common
Discussion as well as distinctive psychopathological core dimen-
sions. In particular, it has been pointed out that what is
The IDEA questionnaire, administered to a sample of most striking about the variety of EDs is not what distin-
female patients with EDs referred to an ED clinic and to guishes them, but how much they have in common [42],
a control group, showed a satisfactory test-retest reliabil- so that different clinical configurations may not be de-
ity and internal consistency, and IDEA total score was pendent on differences in core psychopathology.
significantly higher in patients than in controls. As far as Moreover, longitudinal studies indicate that most pa-
convergent validity is concerned, IDEA total scores tients migrate among diagnoses over time [42, 43] with-
showed a significant association with EDE-Q total and out a substantial change in basic psychopathological fea-
subscale scores, suggesting that this new questionnaire is tures [44–46]. Finally, The Eating Disorders Work Group
able to identify some important psychopathological phe- of the American Psychiatric Association has recently pro-
nomena which are closely related to the specific anoma- posed some diagnostic revisions and recommendations
lies of patients with EDs. The BDI scores were found to in order to improve the actual ED classification [47], and
be statistically correlated with IDEA scores, which could binge eating disorder has been formally recognized as a
depend on the frequent mood depression affecting pa- full-blown ED.
tients with EDs [41]. According to our findings, IDEA is a specific tool able
The factor analysis allowed for the identification of to clearly identify some peculiar phenomena in patients
four distinct subscales: ‘feeling oneself through the gaze with EDs. In particular, IDEA total scores are significant-
of the other and defining oneself through the evaluation ly higher in patients with EDs than in controls, whereas
of the other’ (GEO), which contains 9 items, ‘feeling one- no significant difference was observed between the three
self through objective measures’ (OM) with 5 items, ‘feel- diagnostic groups. Furthermore, the incremental validity
ing extraneous from one’s own body’ (EB) with 5 items, analysis, according to Haynes and Lench [37], showed
and ‘feeling oneself through starvation’ (S) with four that adding IDEA questionnaire to the assessment would
items (factors 1, 2, 3, 4, respectively). These subscales sig- improve the identification of patients with EDs. In order
nificantly correlated with each other, as with the items of to improve the clinical utility of this instrument in terms
each factor, suggesting the coherent nature of the ques- of incremental validity, further longitudinal studies
tionnaire and of the different factors that compose it. should provide information about the degree to which
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this new measure leads to the design of more effective tion’) were associated with overvalued thoughts regard-
treatments. ing weight and eating concern, and with dietary restric-
Furthermore, the same profile was obtained when the tion, respectively. According to these patterns of
four different factors were taken into account. It is of note association, some characteristic ED behaviors, such as
that these results were obtained considering the simple starvation and the fixated checking of objective mea-
categorical diagnostic criteria for the three disorders, sures, might be interpreted as an alternative coping strat-
which are based on both behavioral and cognitive crite- egy aimed to feel oneself for those patients who are unable
ria. to feel themselves cenesthetically.
As far as the correlations between IDEA scores and the Finally, some of the constructs which were explored by
specific ED psychopathological dimensions are con- the present questionnaire could conceptually resemble
cerned, we found a significant association between the dimensions assessed by different scales or by previous
IDEA total score and the EDE-Q total and subscale scores. qualitative research. For example, the GEO subscale
Also, the severity of embodiment and identity disorders, (‘feeling oneself through the gaze of the other and defin-
measured by IDEA total score, is positively correlated ing oneself through the evaluation of the other’) shows
with the degree of the ED psychopathology. Moreover, the some similarities with the social-psychological construct
lack of a significant association between IDEA total score ‘public self-consciousness’. Public self-consciousness, as
and the SCL-90 global severity score indicates that the opposed to private self-consciousness, includes all those
IDEA items are able to identify some nuclear feature spe- qualities of the self that are formed in other people’s eyes.
cific for patients with EDs, and are not a generic measure In fact, persons with ED have the tendency to think of
of psychological or psychiatric suffering. These results those aspects of their own self that are matters of public
suggest that the disorders of embodiment and identity as- display rather than to attend to the more covert, hidden
sessed by IDEA could represent a core dimension in the aspects of the self, e.g. one’s privately held beliefs and feel-
onset and maintenance of ED psychopathology. ings [49]. More in general, previous research has shown
According to the cognitive model of the maintenance important relationships between abnormal eating behav-
of EDs [48], the ‘core psychopathology’ of EDs is basi- ior and these persons’ self-construct or identity. Nordbø
cally an overconcern about body shape and weight, such et al. [50] documented that anorectic persons may ex-
that self-worth is judged largely or even exclusively in plain their behavior as a tool for achieving a new identity.
terms of satisfaction with weight and shape. Our results Skarderud [51, 52] showed that to some persons with ED,
showed that this core psychopathology is related to the changing one’s body is a tool to become another. They
dimension of embodiment named ‘lived-body-for-oth- want to change, and changing one’s body serves as both
ers’, confirming that persons with ED experience their a concrete and a symbolic tool for such ambitions. Thus,
own body first and foremost as an object being looked at shaping oneself is a ‘concretized metaphor’, establishing
by another, rather than cenesthetically or from a first- an equivalence between a psychic reality (identity) and a
person perspective. physical one (one’s body shape). As suggested by Surgenor
As far as the subscale scores are concerned, it is to note et al. [53], looking into the different ways persons with ED
that even if the four factors showed a high correlation construe their own self, especially in relation to their dis-
with each other, they had a different pattern of associa- order and therapy, has strategic implications for the ther-
tion with EDE-Q domains. The correlations of each sub- apeutic endeavor. Compared with other measures which
scale’s scores with abnormalities in eating behavior were are referred to constructs related to general beliefs, our
those expected, on the basis of the different dimensions questionnaire was specifically designed for patients with
explored by the questionnaire. In particular the GEO EDs, and our results showed its association with the spe-
subscale (‘feeling oneself through the gaze of the other cific psychological dimensions of these disorders.
and defining oneself through the evaluation of the other’) It is important to note that, given the cross-sectional
was associated with overvalued thoughts regarding body design of our study, we have not been able to establish any
shape. Weight and shape concerns are also associated supposed causal relationships between IDEA scores and
with EB subscale (‘feeling extraneous from one’s own ED behavior. A second limitation of this study is that it is
body’), which represents a measure of the alienation of impossible to ascertain whether the domains we assessed
patients with EDs from their own body and emotions. by means of our questionnaire are specific traits of pa-
OM subscale (‘feeling oneself through objective mea- tients with EDs, or state-related features. To answer these
sures’) and S subscale (‘feeling oneself through starva- questions, a longitudinal study is needed.
Appendix
1. For me it’s very important to see myself through the eyes of the others 0 1 2 3 4
2. Eating according to my own rules is the only way to feel myself 0 1 2 3 4
3. If I could not eat the way I want I would not be myself anymore 0 1 2 3 4
4. Sometimes, the emotions I feel are extraneous to me and scare me 0 1 2 3 4
5. If my measures remain the same over time I feel that I am myself, if not I feel I am getting lost 0 1 2 3 4
6. I see myself fuzzy/hazy, as if I had no boundaries 0 1 2 3 4
7. Sometimes I focalize myself through the gaze of the others 0 1 2 3 4
8. Seeing myself from their point of view makes me feel very anxious 0 1 2 3 4
9. In all this confusion, knowing that my weight is under control reassures me a little bit 0 1 2 3 4
10. Only if I have my weight under control does being looked at by the others make me feel alright 0 1 2 3 4
11. The way I feel depends on the way I feel looked at by the others 0 1 2 3 4
12. The flesh is unimportant; it doesn’t let me feel my bones 0 1 2 3 4
13. I am dependent on the evaluation of the others 0 1 2 3 4
14. I see myself out of focus, I don’t feel myself 0 1 2 3 4
15. Knowing what the others think of me calms me down 0 1 2 3 4
16. Even if I think that the way the others evaluate me is wrong, I can’t do without it 0 1 2 3 4
17. If I follow your dietary prescriptions I cannot recognize myself when I look at myself in the 0 1 2 3 4
mirror; this does not happen if I do things in my own way
18. I can’t stand not to know what the others think of me 0 1 2 3 4
19. Changing my own eating habits scares me to death, as does any other change in my life 0 1 2 3 4
20. The fear of change is an emotion that I can’t tolerate 0 1 2 3 4
21. Having control of my weight means having control of the possible changes that happen in 0 1 2 3 4
my body
22. Having my weight under control makes me feel in control of my emotional states 0 1 2 3 4
23. When I meet someone I can’t stay without knowing what he thinks of me 0 1 2 3 4
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