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Ethical principles are useful as a broad guideline for patient care. They should be applied on
an individual basis, with compassion and common sense combined with professional
knowledge and skill. While applying these principles one should communicate well with
patients and carers, taking into consideration their social, religious and cultural background.
Advance Directive
A document that states your wishes about what health care you want or do not want when you
reach a state in which you cannot speak for yourself. Advance directives are very useful in
preventing futile treatment and the associated suffering and indignity, when life comes to a
close.
Advance Care discussions should occur early in a life-limiting illness while the patient has
capacity. Decisions about care cannot be made properly when the patient has severe
symptoms. It is important to document all discussions about care planning and review the
decisions when appropriate. Such discussions should be part of the daily work of all
physicians. End of life discussions should never come as a surprise to patients or families.
Limiting Futile Treatment: the intention is to relieve symptoms and allow a natural death
With modern medicine it is now possible to prolong the dying process. The decision to stop
life prolonging or life sustaining treatment has to be taken on an individual basis, taking into
consideration the biological prospects (prognosis) of the patient.
Patient Story
32 yr old male with advanced colon cancer having undergone palliative surgery and with no
further treatment options. Inpatient at hospice for management of partial bowel obstruction.
Family request that the diagnosis be kept from him. They asked if he could be referred back
to Medical College for an opinion about further surgery.
Ethical dilemmas:
1. Patient autonomy has not been granted as patient not aware of his diagnosis or
prognosis. Family autonomy has been respected. In Indian culture it is the family who
takes the patient for diagnosis and treatment and the family excise their autonomy.
Sometime the patient may not be aware the disease and prognosis. The family usually
collude with the medical team to hide the information from the patient. In such situation,
we have to consider the family, empathise with them and discuss with them “why it is
important to tell the diagnosis and prognosis to the patient”.
2. Before sending the patient to medical college, we have to find out the harm and
beneficence that can be produced with the referral. Usually a patient with advanced
malignant intestinal obstruction, surgical options may not benefit the patient. It may
add more harm to the patient. We should be aware of the disease status and goals of
care before sending the patient for surgical intervention.
3. Management: Family allowed to express their hopes and fears. Family fully informed
of the patient’s very poor prognosis. Patient died before being transferred to Medical
College.
Excellent resource and starting point for palliative care (and other medical) research:
https://www.equator-network.org
The EQUATOR (Enhancing the Quality and Transparency Of health Research) Network is an
international initiative that seeks to improve the reliability and value of published health
research literature by promoting transparent and accurate reporting and wider use of robust
reporting guidelines.