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Effects of creative and social activity on the health and well-being of socially
isolated older people: Outcomes from a multi-method observational study
Article in The Journal of the Royal Society for the Promotion of Health · June 2006
DOI: 10.1177/1466424006064303 · Source: PubMed
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JRSH Copyright © 2006 The Journal of The Royal Society for the Promotion of Health May 2006 Vol 126 No 3
ISSN 1466-4240 DOI: 10.1177/1466424006064303
Effects of creative and social activity on older people RESEARCH 135
May 2006 Vol 126 No 3 The Journal of The Royal Society for the Promotion of Health JRSH
136 RESEARCH Effects of creative and social activity on older people
intervention is individually tailored to suit their own groups if they desire. This has questionnaire with reliability and validity
each participant’s own interests and involved help with finding venues, established in numerous studies.32, 33 It
passions. Activity-based interventions are fundraising, setting up management provides separate scores for physical and
provided, with visits from mentors initially committees, providing contacts for mental well-being. A combined (physical
on a weekly basis, and regular telephone community transport schemes and for and mental) health utility score can also be
contact, which is gradually diminished as appropriate activity providers. derived for use in health economic
participants become more confident and The evaluation focused on those analyses.34
able. A wide range of activities are provided receiving substantial mentoring input Geriatric depression scale (GDS-15): The
including painting, print making, creative (excluding those who received simple Geriatric Depression Scale is a widely used
writing, reminiscence/living history, Tai signposting only). and validated 15-item measure of
Chi, movement/gentle exercise, computing, depression symptoms, designed for older
pottery, exploring sound and music, Measures people.35, 36 It is self-administered, and can
various craft work activities, quilting, falls Qualitative measures be used as a screening tool with 92%
awareness education, singing, hand bells, Semi-structured interviews were developed sensitivity and 89% specificity when
Walk and Talk groups, cookery, book clubs, through consultation with ‘key informants’ evaluated against diagnostic criteria.36 The
and hearing school children read. Around (Upstream staff, other researchers and scale can be used to identify mild
24% of referrals are signposted to existing participants from a prior pilot study).31 depression (scores of 5–10) and severe
community-based activities, with the These were revised as needed to allow depression (11–15).
remainder having activities arranged exploration of emerging themes. Relevant MOS social support survey (MOSSS): The
mainly by Upstream. Most participants extracts from the topic guides are provided Medical Outcomes Study Social Support
attend group activities, although those with in Figure 1. Most were individual Survey (MOSSS)37 is an 18-item self-
severe mobility problems receive interviews, although some participants administered questionnaire, measuring
intervention in their own home (around were interviewed with their carers, and one overall social support and four sub-scale
9%). The mentors always seek to maximise focus group was conducted. Data were concepts (emotional/informational
opportunities for social interaction. collected at different time-points, reflecting support, tangible support, affectionate
The creative aspect of the intervention changes in the Upstream system over an support, positive social interaction). The
aims to maximize ‘stimulation’ (higher 18-month period. Data were collected on MOSSS is not as widely used or well-
cognitive functioning). Tailoring activities processes as well as outcomes. However, validated as the SF12 or GDS-15, but has
to individual abilities and interests is this article is focused only on participant been shown to be sensitive to differences
intended to maximise the level of personal outcomes and factors that mediated these between patients with depression and with
meaningfulness, thereby making activities outcomes. other chronic illnesses.38 Following
more likely to be engaged with and feedback that participants found the
sustained. There is also an explicit Quantitative measures questionnaires repetitive and somewhat
acknowledgement of the need to build self- Short form 12 (version 1): The SF12 is a tedious, it was decided to use only the three
efficacy (confidence about a participant’s widely used, self-administered 12-item ‘positive interaction’ items, and three
ability to conduct activities and to maintain
them as mentoring is withdrawn).
Despite differences in individual Figure 1
intervention pathways, the intervention is Topic guide for participant and carer interviews (main questions with possible
consistent in terms of the training given to prompts in brackets)
mentors and the approach used. The
mentors are trained in the Upstream ethos, What has been your experience of the Upstream Intervention?
mentoring principles and techniques (six (description, evaluation, feelings)
hours over three sessions), working with What are the strengths and weaknesses of Upstream?
elderly clients (five–six sessions with a (any difficulties with access, mobility, other barriers)
clinical psychologist), risk management for Have you noticed any changes in yourself since you became involved in
home visiting, falls awareness and Upstream?
prevention, giving state benefits advice, and (physical and mental health, confidence, feelings)
some basic first aid (as required). This is
Is there anything you feel you can do now that you couldn’t do before you got
augmented by peer development sessions
involved with Upstream?
encouraging the sharing of ideas and
(how does that make you feel)
solutions to problems. At least one
mentor is in attendance at activities Do you think your attitude towards your health and/or happiness has changed
(usually in addition to the activity since you became involved with Upstream?
provider) to facilitate the participants’ What impact, if any, has Upstream had on your social life?
enjoyment. (any new friendships, activities, group memberships)
Upstream encourages participants to What are the key things that make it work/stop it working?
work towards maintaining and sustaining
JRSH The Journal of The Royal Society for the Promotion of Health May 2006 Vol 126 No 3
Effects of creative and social activity on older people RESEARCH 137
additional items selected to represent Participants for quantitative research and assisted completion of questionnaires
aspects which we expected the Upstream All (229) of Upstream participants who if required (appropriate training was
intervention might affect (‘someone to do took up Upstream’s offer of support, and given). Follow-up measures were
things with’; ‘someone to confide in’; and who were not immediately ‘signposted’ to administered 5–6 months and 10–12
‘someone to turn to for suggestions about community-based activities, were invited to months after the first mentor visit. The
personal problems’). complete questionnaires. Upstream administrator provided monthly
reminders to trigger follow-up
Demographic variables Analysis questionnaires. For the qualitative research,
Data were collected on age, gender, Qualitative analysis inspection of an anonymized version of the
perceived financial pressure, and any The qualitative data were taped and Upstream database was used to facilitate
longstanding illnesses. Further transcribed and subjected to qualitative the purposive sampling. Candidates were
demographic data were collected for the content analysis40, 41 by an experienced then approached by letter with a follow-up
first 45 participants about health and social qualitative researcher (LF), who also phone call to arrange appointments. Ethical
services usage, marital status, living conducted the interviews. This involved approval was provided by N&E Devon
arrangements (this was then stopped to extracting concepts and broader themes NHS Local Research Ethics Committee.
reduce questionnaire burden). from the interview transcripts and constant
comparison between emerging themes and RESULTS
Participants the raw data. Some theoretical sampling Qualitative results
Upstream seeks participants ‘from their 50s (selection of participants or new questions The feedback from participants, carers and
onwards, whose lives may have changed or to develop emerging ideas) was used, and health professionals was generally positive,
are about to change in some way (perhaps the data were frequently revisited to with the vast majority speaking highly of
through retirement, moving home, age or crosscheck and develop ideas. Participants’ the quality and appropriateness of
illness), or people with time on their hands, responses were partially validated within activities, and their enjoyment of them. A
or who might, for whatever reason, find it interviews by periodically asking them for wide range of benefits was reported, which
difficult to keep in touch with the local confirmation or refutation of within- could be broadly classed as psychological,
community and would enjoy the interview summaries provided by the social and physical health benefits. Only
opportunity to share their interests, skills interviewer. Participants were also asked to three of the 18 individually interviewed
and enthusiasm with others’ (from discuss themes that were emerging from participants reported no change in their
Upstream’s guidance for referral sources). the ongoing analysis.42 Extensive memos mood or health-related behaviours since
Participation is restricted to people in the and a reflexive diary were kept to monitor they became involved with Upstream.
Mid Devon Primary Care Trust area, with the researcher’s thought processes and to
no mental or physical health problems minimize the subjectivity of the analysis. Psychological and social benefits
which might make them a danger to others Two further qualitative researchers at the Within the data, one of the strongest
or that require special nursing care when Peninsula Medical School were asked to themes was the perception of psychological
attending activities. comment on detailed draft reports and to benefit, which was reported by carers and
Upstream recruits participants through a validate the connection between the health professionals, as well as participants.
community networking approach. This analytic themes and the quotes used to This was tied up to a large extent with
includes approaching health and social ‘ground’ these interpretations.43, 44 Any increased social interaction and the
services staff, churches, voluntary queries about interpretation were resolved perceived quality of these interactions. The
organizations, existing local groups, and the by discussion, with agreement being range of psychological and social benefits is
residential care/assisted accommodation reached in all instances. summarized in Figure 2. The vast majority
sector. Introductory leaflets and posters are of participants reported increased
also distributed through these outlets. Quantitative analysis confidence in engaging in new activities,
Data were entered into SPSS V11.0. Data and in interacting socially with others. (Key
Participants for qualitative research entry was double-checked and range and to quotes: P = Upstream participant; C =
Between July 2003 and December 2004, a outlier analyses used to identify errors. carer; HP = health professional.)
sample39 of Upstream participants were Questionnaires were scored according to ‘P2018: I’m doing something different.
purposively selected to maximise variation the developers’ instructions, with missing I’m achieving something in me old age that
in age, gender, level of mobility and values imputed where 75% or more of I didn’t think I’d be able to do.’
financial status. Where applicable, carers other items in the scale had been The sense of increased optimism, self-
were also invited to take part. This completed. Mean outcome scores were worth and willingness to engage in life
produced individual interviews with 18 compared from baseline to follow-up with evident in the data suggests that the
Upstream participants (11 female, seven separate analyses at 6 and 12 months, using intervention was particularly effective in
male) five carers (three with participant two-sided related samples t-tests. ameliorating depressed mood and
present), and one focus group involving a loneliness. Indeed four participants talked
further eight participants (all female). Four Procedure specifically about Upstream acting like a
health professionals referring into For the quantitative research, Upstream ‘catalyst’ that speeded their recovery from
Upstream were also interviewed. mentors invited participants to take part, depression.
May 2006 Vol 126 No 3 The Journal of The Royal Society for the Promotion of Health JRSH
138 RESEARCH Effects of creative and social activity on older people
‘P3014: What Upstream has done is make of sleep, reduced alcohol consumption, Factors mediating the impact of
me feel that I belong, whereas coming increases in the amount and type of Upstream
down as a stranger . . . I feel more part of exercise, and greater attention to diet. Issues of access and availability of
[this town] now. I really do because I was ‘P3007: Instead of only having an hour at appropriate activities were crucial
dissolving into tears for my old friends, but a time like before, I’ll sleep 5 or 6 hours at a prerequisites for engagement. Transport in
that hasn’t happened now for 4, 5 months, time now. I wake up feeling that much particular was a frequently reported barrier
which is a good thing.’ better.’ preventing people from being able to see
‘P3001: I really do feel I’m that lucky ‘C001: This is a man who would only eat each other or attend activities as much as
that, for whatever reason, the switch has banana sandwiches up until last October. they would like. The appropriateness of the
turned and I’m now doing things I never Now he’s cooking himself proper meals, venue was also important.
dreamed I would be doing before, like and steaming all his vegetables.’ Enjoyment of activities also seemed to be
working at the volunteer bureau. . . . I think Four of the 18 individual interviewees mediated by the extent to which mentors
it [Upstream] accelerated my recovery. . . . provided striking testimonies of stronger, could tailor activities to individual abilities,
Having started to suddenly feel better, ‘transformational’ change, affecting preferences, health status, social skills and
everything I did made me feel it all has a multiple aspects of their lives. These reports confidence. The issue of health/ability also
knock on effect.’ typically included an increased sense of mediated the amount of mentor input
Psychosocial benefits were apparent in meaning in life, increased social and needed, and those with more severe health
the vast majority of cases, with all but two physical activity, and more attention to problems/disabilities required ongoing
participants voicing their enjoyment of the self-care. mentor support.
social interaction. Several participants ‘P3001: I still have osteoporosis, I still ‘P3002: It’s something to do, something
reported calling each other between have collapsed vertebrae . . . I can’t walk I’m interested in. Like participating in that
sessions. more than 40 yards . . . But I’m better now magazine thing was a brilliant idea. I’ve
than I was in 1999 before I was ill . . . I never . . . written anything or put anything
Physical health benefits don’t get agitated about things. I think I’m in words like that in my life! I’m not very
Evidence of improvement in physical much more able to sort loads and loads of good, but I like it and that’s it . . . it’s going
health was not as common, but there were different things . . . Now I’ve woken up to become a hobby soon.’
indications that Upstream had encouraged from the fog it’s like I’m really enjoying my The main factors which mediated the
a number of participants to take better care life as though this is what I’m meant to be maintenance of activities and the
of themselves, and improvements in a doing now.’ derivation of benefits seemed to be
range of health behaviours were reported. ‘HP003: She said, ‘I never go out except building confidence/self-efficacy in the
These included better adherence to to the shops every day because all my individual, and the creation of positive
medication/self-care regimes, better quality friends are dead. My husband’s dead, I social dynamics. A key factor was the ability
JRSH The Journal of The Royal Society for the Promotion of Health May 2006 Vol 126 No 3
Effects of creative and social activity on older people RESEARCH 139
of mentors to empower participants responders (MD = 1.2, t(131) = –2.17, are also likely to be substantially below
(building confidence and self- p < 0.05), but there was no significant UK norms for over-75s.
determination) to (1) try out and succeed difference at 12 months. No significant 53% had clinical depression based on
at engaging in activities, and (2) to be able response/dropout biases were detected their GDS-15 scores (45% mild; 8%
to engage socially in their groups. between 6 months and 12 months in the 6 severe).
‘P2015: If you do something strange or month SF12, GDS-15 or social support
new you’ve got to start at the bottom. It’s scores. Further demographic data from the first
no good trying to go in half way up.’ 45 participants showed high levels of
‘P2012: The fact that somebody was Sample characteristics service usage in the last 3 months (73%
going to come and see me on a regular Of 172 participants providing baseline used the NHS with a mean 2.5 GP visits;
basis because the other thing that I’ve data, 76% were female, and the mean age 53% used social services). Of this early
suffered really with is a fear of was 77 (52 to 96). The baseline health sample, 64% were widowed, 73% lived
abandonment. . . . It makes you feel . . . like status scores are shown in Table 1. A alone and 93% were retired.
somebody’s bothered about you. Yes, quarter (25%) reported having some
somebody cares. I would say it’s things like financial pressures. Participants had poor 6-month follow up
that that give people a bit of purpose, a bit physical and psychological health at The data (Table 3) showed a statistically
of encouragement. . . . Going back to [all baseline, commensurate with high levels of significant increase in SF12 mental
the new things I’ve be doing], I wouldn’t loneliness and social isolation in that: component score (MD = 3.02, 95%CI: 1.01
have the confidence to do half those things to 5.04, p < 0.005). There was also a
a couple of months ago.’ 74% had at least one longstanding statistically significant reduction in
physical health impairment which depressive mood (MD = 0.60, 95%CI: 0.14
Quantitative results limited activities. The most common to 1.05, p < 0.02). However, there was no
Engagement in activities reported problems were significant increase or decline in SF12
Progress was tracked over 6 months for 320 musculoskeletal/mobility problems, physical health, overall health utility, or
participants who had been referred to diabetes and heart disease (inc stroke), social support scores.
Upstream by the end of February 2005. and respiratory illness.
This showed that 255 (80%) had been SF12 health quality of life scores were Individual benefits/clinical
engaged in some kind of activity, with 62 of significantly lower than norms for US meaningfulness
these being directly signposted to over-75s and the general UK population A clinically meaningful change for SF12
community-based activities. Of the 193 (Table 2) for both mental and physical scores is considered to be 2 points,46–48 and
receiving ongoing input from Upstream, health (one-sample t-test, p < 0.001, 60% of participants experienced this level
171 (89%) were still engaged in activities p < 0.01, respectively). As SF12 general of change in mental component score. We
after 6 months. The main reasons for non- population means are better in the UK assumed that a six-point change in mental
engagement were ill-health, or participants for mental health (52.1 vs. 50.0 in the component score (equivalent to a 25
deciding that Upstream was not suited to USA) and similar for physical health percentile shift in population ranking48)
them. (50.9 vs. 50.8),45 Upstream’s population represented strong change, and 30%
Response rates
On 30 September 2005 (the data collection Table 1
cut-off date), Upstream had engaged 229
Baseline health status scores
participants in activities (excluding
signposting). Of these 172 (75%) provided Measure Mean (SD) N
baseline data. At this time, 136 participants
SF12 MCS 47.0 (11.1) 166
were eligible for 6-month follow-up and 72
(53%) provided data (mean follow-up time SF12 PCS 35.3 (11.2) 166
5.5 months). For 12-month follow-up, 93 GDS-15 5.35 (3.42) 169
participants were eligible and 51 (55%) MOSSS (six-item) 1.79 (1.13) 164
provided data (mean follow-up time 12.0
months).
Table 2
Response bias analysis
There were no significant differences Mean SF12 scores for Upstream participants and population norms
between responders and non-responders SF12 Domain Upstream US over-75s UK general population
either at 6 months or at 12 months in
terms of age, financial status, gender or Mental health 46.8* 50.1 52.1
baseline SF12 or social support scores. Physical health 36.4* 38.7 50.9
Non-responders at 6 months had more Note: * Data converted to 1998 Scoring system for comparison purposes
depressive symptoms at baseline than
May 2006 Vol 126 No 3 The Journal of The Royal Society for the Promotion of Health JRSH
140 RESEARCH Effects of creative and social activity on older people
JRSH The Journal of The Royal Society for the Promotion of Health May 2006 Vol 126 No 3
Effects of creative and social activity on older people RESEARCH 141
May 2006 Vol 126 No 3 The Journal of The Royal Society for the Promotion of Health JRSH
142 RESEARCH Effects of creative and social activity on older people
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