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Health Communication

ISSN: 1041-0236 (Print) 1532-7027 (Online) Journal homepage: http://www.tandfonline.com/loi/hhth20

Digital Inclusion & Health Communication: A Rapid


Review of Literature

Kim Borg, Mark Boulet, Liam Smith & Peter Bragge

To cite this article: Kim Borg, Mark Boulet, Liam Smith & Peter Bragge (2018): Digital
Inclusion & Health Communication: A Rapid Review of Literature, Health Communication, DOI:
10.1080/10410236.2018.1485077

To link to this article: https://doi.org/10.1080/10410236.2018.1485077

Published online: 11 Jun 2018.

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HEALTH COMMUNICATION
https://doi.org/10.1080/10410236.2018.1485077

Digital Inclusion & Health Communication: A Rapid Review of Literature


Kim Borg , Mark Boulet , Liam Smith , and Peter Bragge
BehaviourWorks Australia, Monash Sustainable Development Institute, Monash University

ABSTRACT
Information and communication technologies can be a valuable tool for enhancing health communica-
tion. However, not everyone is utilising the wide suite of digital opportunities. This disparity has the
potential to exacerbate existing social and health inequalities, particularly among vulnerable groups
such as those who are in poor health and the elderly. This review aimed to systematically identify the
common barriers to, and facilitators of, digital inclusion. A comprehensive database search yielded 969
citations. Following screening, seven systematic reviews and three non-systematic reviews were identi-
fied. Collectively, the reviews found that physical access continues to be a barrier to digital inclusion.
However, provision of access alone is insufficient, as digital ability and attitude were also potential
barriers. Social support, direct user experience and collaborative learning/design were identified as key
strategies to improve inclusion. These review findings provide guidance for health communication
practitioners in designing and implementing effective programmes in the digital environment.

Information and communication technologies (ICTs) can be Despite this global trend towards increased online connec-
a valuable tool for enhancing health communication. tivity, it is apparent that, even in developed countries,1 there
Previous research has found that the benefits of incorporat- are certain groups, commonly referred to as the ‘digitally
ing ICTs in health communication range from assisting excluded’, who are not utilising the wide suite of available
patients to self-manage their health conditions (Park, digital opportunities (Selwyn & Facer, 2007). The term ‘digital
Burford, Nolan, & Hanlen, 2016), improving health literacy divide’ was initially coined to describe the difference between
(Tennant et al., 2015) and facilitating communication individuals who had, and did not have, physical access to the
between patients and healthcare providers (Prestin, Vieux, Internet and other ICTs (Campos-Castillo, 2015; Rose, Seton,
& Chou, 2015). Social networking has also enabled health Tucker, & van der Zwan, 2014). As increases in availability
communication campaigns to engage with previously and affordability began to close the access divide, researchers
unreachable audiences, further encouraging communicative began focusing more on how people use, and do not use, ICTs
behaviours (Shi, Poorisat, & Salmon, 2018; Yoo, Kim, & Lee, rather than just on whether they have physical access (Pearce
2018). Beyond health, digital services can also yield other & Rice, 2013; van Deursen, van Dijk, & Peter, 2015). To this
benefits for individuals, for businesses, for not-for-profit end, the term ‘digital divide’, is now being replaced with the
organisations and for governments (Koss, Azad, Gurm, & more nuanced ‘digital inclusion’, which acknowledges that ‘. . .
Rosenthal, 2013). the simple binary description of a divide fails to do justice to
In 2005, approximately 18% of households worldwide had the complex reality of various people’s differing access and
Internet access; by 2016 this figure had increased to over 50%, usage of digital technology’ (Warschauer, 2003, p. 44). Digital
and up to 90% in developed countries (International exclusion does not necessarily come from physical access to
Telecommunication Union, 2016). Mobile devices are now ICTs, but rather from what people are able to do and what
the preferred method of connecting—since 2010 the number they want to do with these technologies.
of global mobile broadband subscriptions has exceeded fixed It has been found that individuals who have physical access
(landline) connection subscriptions (Bold & Davidson, 2012). are not using the Internet in ways which could help foster
Within this context, an Internet connection, and the devices social, economic or professional gain (Pearce & Rice, 2013;
that facilitate the connection, are now seen as basic utilities, van Deursen & van Dijk, 2014). For example, van Deursen
much like electricity or water (Walton, Kop, Spriggs, & et al. (2015) found that online activities with ‘productive’
Fitzgerald, 2013). Many organisations offer their services in outcomes (e.g. using search systems, finding online courses
the digital environment, and in some cases these can only be and training, independent learning) were favoured by those
accessed through the Internet. with higher levels of education and with higher incomes;

CONTACT Kim Borg kim.borg@monash.edu BehaviourWorks Australia, Monash Sustainable Development Institute, Monash University, 8 Scenic Boulevard,
Clayton 3800, Victoria, Australia.
1
According to the Central Intelligence Agency (CIA) World Fact Book, developed countries are also known as the First World, high-income or industrialised
countries. They are comprised of market-oriented economies and are primarily democratic nations in the Organization for Economic Cooperation and
Development (OECD) (https://www.cia.gov/library/publications/resources/the-world-factbook/appendix/appendix-b.html).
© 2018 Taylor & Francis Group, LLC
2 K. BORG ET AL.

whereas online activities with comparatively less productive review in establishing a search strategy, setting inclusion and
outcomes (such as ‘surfing’ without a purpose) were more exclusion criteria for literature screening and selection, data
common among people with lower education levels and extraction, quality appraisal and a synthesis of findings.
below-average incomes. The change in focus from physical The rationale for a rapid review of this topic was three-fold.
access to usage has led some researchers to argue that the First, reviews are considered the optimal unit of knowledge
conceptualisation of the digital divide needs rethinking, and translation, because they are the highest ranked form of pub-
can now be defined by skills and ‘meaningful use’ (Strover, lished evidence—therefore review findings are more robust and
2014, p. 117). transferable to practice, compared to primary studies
Generally, those frequently identified as digitally excluded (Grimshaw, Eccles, Lavis, Hill, & Squires, 2012). Second, the
are more likely to be on low incomes, lack tertiary education, rapid review methodology provides best available research in a
live in rural or remote communities, live with disabilities, be short timeframe. While a definitive systematic review is more
from culturally and linguistically diverse backgrounds, be detailed, rapid reviews enable industry, practice and policy
unemployed or be elderly (Australian Bureau of Statistics, bodies to be informed by research evidence sooner. This is of
2014–15; Broadbent & Papadopoulos, 2013; Rose et al., particular importance in the field of digital inclusion, given the
2014). In the context of health communication, this disparity rapid advances in ICTs and their use. Third, reviewing reviews
can often exacerbate existing disadvantages already experi- rather than primary studies enables elucidation of a broad
enced by many of these groups, potentially leading to a cycle range of behavioural interventions, rather than detailed
of health inequality. Bell (2014, p. 514) argues that ‘just as description of a narrower range of interventions. While this
inequalities in health communication can contribute to health does sacrifice depth for breadth, policymakers and practitioners
disparities, health disparities might also drive communication frequently express a need for a broad overview within a parti-
inequalities’. cular field when deliberating upon a range of possible actions.
Using the Internet to manage personal health and well-
being—for example, to seek health-related information, e-mail
healthcare providers or access social media for health pur- Search strategy
poses—has been recognised as not ‘keeping pace’ with the A comprehensive search of peer-reviewed journal publications
increase in Internet penetration (Prestin et al., 2015). This is published from 1 January 2013 until 24 February 2016 was
especially concerning given that many people experiencing undertaken of PsycINFO and Web of Science using the search
digital exclusion also have poor health and would greatly terms ‘digital inclusion’ and ‘digital divide’. The search was
benefit from ‘eHealth’ systems (Robinson et al., 2015). subsequently updated to 6 April 2018.
Meanwhile, those advantaged in society continue to use the
digital environment to further their advantage, thus maintain-
ing the new digital divide (Antoci, Sabatini, & Sodini, 2015; Screening and selection
Robinson et al., 2015; van Deursen & van Dijk, 2015; van Two reviewers independently screened citations against the inclu-
Deursen et al., 2015). sion and exclusion criteria outlined below. Discrepancies were
Given the alignment between those who most stand to resolved through discussion and consultation with a third inde-
benefit from digital health communication services and pendent researcher with experience in rapid review methods.
those who are digitally excluded, a better understanding of
drivers and barriers for utilisation of online services is needed. Inclusion criteria
Such an understanding would assist health communication ● Primary aim:
practitioners in designing and implementing effective pro- ○ Identify barriers and facilitators of digital inclusion
grammes in the digital environment, as well as highlighting (including the digital divide);
gaps and future research needs. Therefore, the purpose of this ○ Evaluate interventions designed to improve digital
review is to systematically identify the common barriers to, inclusion (including those addressing the digital
and facilitators of, digital inclusion with a focus on informing divide).
the design and delivery of online health communication ● Study settings for included studies in review:
services. ○ Developed countries with modern technology and
infrastructure/digital economies;
Method ○ General reviews of digital inclusion/divide.
● Publication type:
This review employed a ‘rapid review’ approach. Rapid ○ Systematic reviews of quantitative or qualitative
reviews are a method of synthesising research where an over- studies;
view of evidence is required in a short time (Wright & Bragge, ○ Non-systematic reviews.
2018). Unlike standard systematic reviews (which can take up
to two years to complete), rapid reviews focus on already Exclusion criteria
synthesised research evidence and, where these are not avail- ● Primary studies;
able, on high-quality or recent primary studies (Khangura, ● Technological innovations that do not target human
Konnyu, Cushman, Grimshaw, & Moher, 2012). Other than uptake of IT, e.g. authentication protocols;
the focus on synthesised (rather than primary) evidence, the ● Reviews of observational studies with no behavioural
rapid review process follows similar protocols to a systematic focus, e.g. Google analytics;
HEALTH COMMUNICATION 3

● Conference abstracts; behavioural barriers (inhibitors) and enablers (facilitators) of


● Dissertation abstracts or book chapters; digital inclusion. Similar thematic approaches have been used
● Discussion/conceptual/protocol papers. in previously published rapid reviews (Bragge et al., 2015;
Wright & Bragge, 2018).
Quality appraisal, data extraction and synthesis
Quality appraisal of the systematic reviews was undertaken by
two reviewers using the AMSTAR, an 11-item tool with well- Results
established validity and reliability that is extensively used to
evaluate systematic reviews; including design, procedure, Screening and selection
reporting and interpretation (Shea,, Grimshaw et al., 2007). The initial search yielded a total of 969 citations and abstracts.
While the AMSTAR was originally developed for use in Following initial screening, 544 citations were excluded, leav-
healthcare research, the evaluation criteria pertain to generally ing 425 for full-text screening. The follow-up search yielded
accepted practices for systematic reviews, including a priori an additional 77 citations and abstracts, of which 13 were
design, duplicate study selection and data extraction; and use included in full-text screening. Following full-text screening,
of a quality appraisal tool to evaluate included primary studies ten reviews were identified, comprising seven systematic
(Shea, Bouter et al., 2007, Shea, Grimshaw et al., 2007, Shea reviews (Abbott, Brown, Evett, & Standen, 2014; Amante,
et al., 2009). Systematic reviews were defined as ‘an overview Hogan, Pagoto, & English, 2014; de Lusignan et al., 2014;
of primary studies which contain an explicit statement of Litt, 2013; Mubarak, 2015; Showell, 2017; Thompson, Reilly,
objectives, materials and methods and has been conducted & Valdez, 2016) and three non-systematic reviews (Litt, 2013;
according to explicit and reproducible methodology’ Satariano, Scharlach, & Lindeman, 2014; Trentham, Sokoloff,
(Greenhalgh, 1997, p. 672). Tsang, & Neysmith, 2015).2
Key details from eligible systematic reviews were extracted
as follows: aim, inclusion criteria, number and type of studies,
date of most recent search and key findings/conclusions.
Quality appraisal of included systematic reviews
While systematic reviews were the primary target for this
rapid review, only a limited number were identified in our Results of AMSTAR quality appraisal of the seven systematic
search. As such, it was decided to include non-systematic reviews are presented in Table 1. All criteria were considered
reviews (descriptive or narrative reviews in which there is of equal importance; however, some articles were rated out of
no explicit systematic search for, or appraisal of, research nine or ten (rather than 11) criteria where an item(s) was not
evidence). Although non-systematic reviews lack the rigour relevant. The methodological quality of the systematic reviews
and methodological approach of a systematic review, they varied, with three of the five satisfying the majority of quality
provide useful discussions of the state of a particular field, appraisal items:
often with a strong theoretical framework that can give useful
insights and context to the findings of systematic reviews. ● One review satisfied nine out of ten applicable review
Synthesis of our rapid review results focused on findings items (de Lusignan et al., 2014);
from the systematic reviews. It is not possible to appraise ● One satisfied six out of nine (Watkins & Xie, 2014);
non-systematic reviews with the AMSTAR because it is not ● One satisfied six out of ten (Amante et al., 2014);
validated for this purpose. ● One satisfied five out of nine (Showell, 2017);
The findings of the included reviews were narratively sum- ● One satisfied four out of nine (Thompson et al., 2016);
marised with a focus on review findings pertaining to and

Table 1. Results of quality appraisal of included systematic reviews.


Abbott Amante de Lusignan Mubarak Showell Thompson Watkins and
Criterion (AMSTAR) Shea et al. (2007) et al. (2014) et al. (2014) et al. (2014) (2015) (2017) et al. (2016) Xie (2014)
1. Was ‘a priori’ design provided? Yes Yes Yes Yes Yes Yes Yes
2. Was there duplicate study selection and data extraction? No No Yes No No No No
3. Was a comprehensive literature search performed? Yes Yes Yes Yes Yes Yes Yes
4. Was the status of publication (i.e., grey literature) used as No Yes Yes Yes Yes Yes Yes
an inclusion criterion?
5. Was a list of studies (included and excluded) provided? No No Yes No No No Yes
6. Were the characteristics of the included studies provided? No Yes Yes No Yes Yes Yes
7. Was the scientific quality of the included studies assessed No Yes Yes No No No No
and documented?
8. Was the scientific quality of the included studies used N/A No No N/A N/A N/A N/A
appropriately in formulating conclusions?
9. Were the methods used to combine the findings of studies N/A N/A N/A N/A N/A N/A N/A
appropriate?
10. Was the likelihood of publication bias assessed? No No Yes No No No No
11. Was the conflict of interest included? Yes Yes Yes No Yes No Yes
TOTAL ‘yes’/TOTAL applicable items 3/9 6/10 9/10 3/9 5/9 4/9 6/9

2
A copy of the data extracted from the included reviews is available from the corresponding author upon request.
4 K. BORG ET AL.

● Two satisfied three out of nine (Abbott et al., 2014; interpretation of findings could be compromised in some
Mubarak, 2015). reviews and findings should be interpreted in this context.
Given that most systematic reviews satisfied at least half of the
All seven systematic reviews clearly stated the research relevant criteria, appraisal results overall indicate that the
question and performed a comprehensive literature search. reviews are a medium level of quality.
The majority of systematic reviews (six out of seven) included
publication status as an inclusion criteria and declared conflict
of interest. Conversely, only one systematic review undertook
Summary of findings of included reviews
duplicate data extraction (i.e. two researchers extracted rele-
vant data from the reviewed studies) and addressed the like- Table 2 provides a summary of the included reviews including
lihood of publication bias. As a result, study selection and population/setting, review type and key recommendations.

Table 2. Summary of included reviews.


Type of
review
(quality, if
Author (year) Objective Population applicable) Author’s recommendations
Abbott et al. (2014) ‘To build on a previous publications and to Individuals who use Systematic ● Assistive technologies should be more
indicate changes in the scope and trends found assistive technologies (3/9) inclusive to accommodate a wide variety
in assistive learning technologies and related (Europe) of users and users should be involved in
research’ [p. 453] future research and development.
Amante et al. (2014) ‘(1) to examine characteristics associated with Patients with diabetes Systematic ● Provide onsite kiosks to access health
enrolment and utilization of portals among (USA) (6/10) information & design portals to be
patients with diabetes and (2) to identify accessed via mobile devices.
barriers and facilitators of electronic patient ● All users need to be taught how to use the
portal enrolment and utilization.’ [p. 784] required technology.
● Patients (and providers) need to trust that
the online portal is secure and believe in
the benefits of using the portal.
de Lusignan et al. ‘. . .to identify and understand: barriers and Health professionals, Systematic ● Further research is required to develop
(2014) facilitators for providing online access to patients, carers and system (9/10) online medical record access which pro-
[patient] records and services for primary care suppliers (USA & Europe) motes self-management and improves
workers; and their association with health.
organisational/IT system issues.’ [p. 1]
Mubarak (2015) ‘To attain a broad and adequate understanding General population Systematic ● Develop policy initiatives aimed to
of the digital divide by critically examining the (3/9) improve ICT skills.
prior research on the subject.’ [p. 74] ● Design more user-friendly ICT tools.
Showell (2017) ‘. . .to bring to the attention of informatics PHR users and non-users, Systematic ● Develop better understanding of the
practitioners the range of issues and associated patients, one study health (5/9) impact of barriers on users to ensure
barriers which might prevent an equitable professionals (USA, UK & more effective use of resources.
approach to PHR implementation.’ [p. 2] The Netherlands) ● Need better appreciation of how barriers
can affect adoption and use and how it
can be countered.
Thompson et al. ‘This review applied a human factors/ Patients, providers, Systematic ● Pay attention to patients, providers and
(2016) ergonomics (HF/E) paradigm to assess caregivers (USA, Canada, (4/9) caregivers when developing new system
individual, work system/unit, organization, and Norway, The Netherlands) models.
external environment factors generating ● Address low health literacy, access to
barriers to patient, provider, and informal unwanted health information, secure
caregiver personal health record (PHR) use.’ [p. messaging, ease of data entry and
218] interoperability.
Watkins and Xie ‘This review evaluates the research design, Older adults (USA, Australia, Systematic ● Develop high-quality theory-based inter-
(2014) methods, and findings of eHealth literacy England & Ireland) (6/9) ventions to better understand effective
interventions for older adults.’ [p. 1] ways of improving eHealth literacy.
Litt (2013) ‘This article reviews the last decade of literature General population Non- ● Further research into Internet skills to
on measurements of everyday users’ basic systematic help users become more knowledgeable,
internet skills, organizing how scholars have develop more relevant policies and more
defined and measured the construct, and then user-friendly programmes and interfaces.
systematically presenting what these past
assessments tell us about internet skills and
their relationship to other factors.’ [p. 612]
Satariano et al. (2014) ‘To review the range of promising Older adults (USA) Non- ● Further multidisciplinary research to
technologies. . . designed to enhance aging in systematic develop and test effective technologies
place; identify challenges for implementation to meet the needs of an aging
of those technologies; and recommend ways to population.
improve access to technologies in older
populations.’ [p. 1373]
Trentham et al. ‘Determining what is known about the use of Senior citizens (Canada & Non- ● Before addressing access and ease of use,
(2015) social media by senior citizens for the purposes USA) systematic there is a need to address perceived
of social advocacy.’ [p. 558] relevance and trustworthiness of social
media.
HEALTH COMMUNICATION 5

The four moderate- to high-quality systematic reviews Discussion


were those by de Lusignan et al. (2014), Watkins and Xie
The reviews varied substantially in their population of focus—
(2014), Amante et al. (2014) and Showell (2017). de
from people with a disability (one study), to patients and/or
Lusignan et al. (2014) focused on studies pertaining to
healthcare providers (four studies), and older adults (three
the provision of patient access to electronic health
studies). Two studies did not specify a population as they
records. Amante et al. (2014) reviewed articles that eval-
were concerned with digital inclusion at a more conceptual
uated characteristics, barriers and facilitators associated
level. Despite these population differences, common barriers
with online portal use among patients with diabetes in
to, and facilitators of, digital inclusion were identified across
the USA. Showell (2017) sought to understand and cate-
the included reviews.
gorise the barriers facing various groups (including
patients, healthcare providers and caregivers) in the use
of personal electronic health records (PHRs). These Barriers to digital inclusion
reviews are of particular relevance in the field of health
communication because, as noted by Amante et al. (2014), The included reviews identified three primary barriers to
electronic health records play an important role in allow- digital inclusion: (1) access; (2) skill and (3) attitude. These
ing patients to access health information and communi- barriers broadly align with the different access categories
cate with healthcare providers. Watkins and Xie (2014) described in van Dijk’s (2005) model of digital technology
reviewed 23 studies involving interventions for older appropriation:
adults to improve their online skills, specifically eHealth
literacy. This was one of the few reviews to specifically (1) Motivational access (motivation to use digital
focus on intervention strategies for improving digital lit- technology);
eracy in the context of health information seeking (these (2) Material or physical access (possession of device(s)
strategies were primarily from the USA with a smaller and Internet connections or permission to use them
number from Australia, England and Ireland). and their contents);
The remaining three systematic reviews were of lower (3) Skills access (possession of digital skills: operational,
methodological quality. Thompson et al. (2016), like informational and strategic) and
Showell (2017), examined barriers to use PHRs. Abbott (4) Usage access (number, diversity and simplicity/com-
et al. (2014) focused specifically on the use of assistive plexity of applications—typically a dependent vari-
technology in providing digital access, primarily among able) (van Dijk, 2005, p. 21).
the disabled and in Europe. One of the more broadly
focused systematic reviews was conducted by Mubarak Van Dijk argued that individuals must overcome each of
(2015), which addressed the concept of the digital divide these access issues in order to cross the digital divide. For
at a general level (not focused on a specific population) example, once they have gained both motivational (attitude
through a critical examination of prior research. and normative pressure) and material (physical) access, indi-
In addition to the systematic reviews, three non-sys- viduals are then faced with the problem of acquiring the
tematic reviews were identified. Of the non-systematic necessary skills to utilise such technology.
reviews, Litt (2013) reviewed 19 studies with a focus on
basic Internet skills among ‘everyday users’ and the rela- Access
tionship between Internet skills and other factors. Physical access was identified as a primary barrier across
Satariano et al. (2014) focused on technology use among several systematic reviews (Abbott et al., 2014; Amante et al.,
older people and Trentham et al. (2015) reviewed social 2014; Mubarak, 2015; Showell, 2017; Thompson et al., 2016)
media use by senior citizens for the purposes of social and one non-systematic review (Satariano et al., 2014). These
advocacy. reviews reflected a range of populations, including individuals
Taken together, these reviews identified three common who use assistive technologies, patients, healthcare providers,
barriers to individuals’ inclusion in the digital environ- caregivers and older adults. Even among the general popula-
ment; access (connection, speed, coverage), skill (ability to tion, these reviews found that there are certain groups who
use ICT hardware and software) and attitude (interest, continue to experience issues with access, such as the elderly,
motivation, trust). In addition, three common elements the disabled and those living in rural communities. The phy-
were identified across the reviews as supporting, or sical-access-related issues these groups face include availabil-
enabling, individuals’ inclusion; social support (e.g. ity of usable devices, access to an adequate (and affordable)
friends, family, carers and service providers), education Internet connection and access to technology which suits their
via collaborative learning or direct experience and inclu- needs (e.g. visual impairment). These reviews demonstrate
sive design (of technology and interventions). These find- that physical access continues to affect vulnerable groups in
ings are discussed in detail below, with some society who would arguably benefit most from engaging with
consideration given to the differences between the reviews ICTs for health-related communication services (such as the
included in this study. The implications for digital inclu- disabled and the elderly). The findings regarding access urge
sion generally, and health communication specifically, are caution to the emerging belief that the ‘access’ divide has
also discussed. narrowed or closed. While it may now be the case for many
6 K. BORG ET AL.

that physical access is no longer an issue, this cannot be Social support


assumed for all groups in society. Amante et al. (2014) found that patients were more likely to
use online portals if they had sufficient social support; that is,
Skills if their family or caregivers knew how to use the relevant
In addition to access, several reviews identified a lack of technology. They argue that, as well as patients, family mem-
relevant digital skills as another potential barrier to use. Skill bers and healthcare providers also need to know how to use
was not limited to technical literacy, it extended to notions of the required technology. Similarly, Thompson et al. (2016)
digital self-efficacy and topic-specific literacy (e.g. health lit- suggested that in order to ensure eHealth systems are used by
eracy). Relevant to health communications, some reviews patients, healthcare providers must actively engage with, and
specifically highlighted limitations in ‘eHealth’ literacy or support known, vulnerable populations. Similarly, Satariano
general health literacy for accessing health information, pri- et al. (2014) argues that end-users, as well as service providers,
marily among patients as well as older adults (Amante et al., family and caregivers, should be involved in researching,
2014; Showell, 2017; Thompson et al., 2016; Watkins & Xie, designing and testing digital technologies and interventions.
2014). Mubarak (2015) argued that while the physical access Several studies identified by de Lusignan et al. (2014) found
gap is narrowing, the ICTs skills ‘divide’ may be widening; that patients wanted the ability to share health records with
something that Litt (2013) calls a ‘second-level digital divide’. family.
The review conducted by Litt (2013) also noted that age and Social support may also be an important avenue for
education generally predicted an individual’s digital skills. The addressing the attitudinal barriers to digital inclusion.
strongest predictor of skill, however, was experience and use Trentham et al. (2015) argue that in order to make social
—indicating that Van Dijk’s appropriation of digital technol- media more inclusive for senior citizens, there is a need to
ogy model (2005) is not strictly linear. For example, those address attitudinal factors of perceived relevance and trust-
with physical access and skills may subsequently lose motiva- worthiness before addressing technical issues of access and
tion because of a negative experience online. ease of use. Increasing older adults’ use of social media plat-
forms could then increase the potential reach of health com-
Attitude munication campaigns. Amante et al. (2014) suggested that
In comparison to access and skill, attitude was less frequently patients and their networks need to be assured that online
described among the reviews as a barrier to digital inclusion. interfaces are secure and be persuaded of their benefits if they
This may reflect the relatively new shift in digital inclusion are to be adopted in the future. If those providing social
research away from physical access towards ‘motivational support to Internet users promoted messaging pertaining to
access’ which, according to van Dijk (2005), is the first step the security and benefits of social media access, this could
towards technology adoption. Amante et al. (2014) found that influence their attitudes through social norming (that is, use
while barriers to portal enrolment among patients were largely of a critical mass to normalise a behaviour).
related to skill and knowledge (i.e. a lack of ability and lack of
awareness), the barriers to portal use were often attitudinal Education
(i.e. a lack of desire and previous negative experiences). Education and experience were also recognised by several
Showell (2017) identified several attitudinal-related barriers reviews as potential mechanisms for addressing digital inclu-
including discomfort with computer use, privacy and confi- sion, particularly as they directly address the skills barrier
dentiality concerns and lack of motivation. In the context of already discussed. The review by Watkins and Xie (2014)
online health portals, Amante et al. (2014), de Lusignan et al. found that interventions which applied collaborative learning
(2014) and Thompson et al. (2016) found that patients as well strategies among older adults (i.e. learning through interac-
as healthcare providers were often concerned about privacy tion with others with commitment to a shared goal) signifi-
and confidentiality. In some cases, if the provider did not see cantly improved participants’ computer and Internet
the benefits of using the online portal, they instructed patients knowledge and skills, self-efficacy and eHealth literacy.
not to use it (Amante et al., 2014). Two of the non-systematic Other reviews highlighted the importance of direct experi-
reviews argued that among older adults a lack of familiarity in ences in relation to digital literacy and willingness to partici-
combination with poor skills can result in high levels of pate, particularly among groups with less exposure to ICTs
anxiety and fear (in addition to low levels of confidence and such as the elderly (Amante et al., 2014; Litt, 2013). For
trust); showing the inter-dependency of barriers to digital example, Litt (2013) found that the more often individuals
inclusion (Satariano et al., 2014; Trentham et al., 2015). reported using the Internet (e.g. how long they have been
These findings imply that attitudinal barriers to digital inclu- using it and how much time they spend on it), the more
sion may be especially acute in the healthcare context, where skilful they became in its use. The collaborative nature of
concerns about privacy are often magnified. the educational interventions highlights the intersection of
this strategy with social support.
Enablers of digital inclusion
Inclusive design
Three key enablers to digital inclusion were also identified A key finding from Abbott et al. (2014) was that end-users of
across the included reviews: (1) social support; (2) education assistive technologies (i.e. technologies that enhance the abil-
via collaborative learning or direct experience and (3) inclu- ity of individuals with disabilities in the completion of day-to-
sive design. day tasks) need to be involved in both their research and
HEALTH COMMUNICATION 7

design. Similarly, Trentham et al. (2015) argued that an inclu- usage of digital technology’ (Warschauer, 2003, p. 44).
sive approach which avoid common assumptions about user- Figure 1 provides a visual synthesis of the review findings,
groups—such as ageist assumptions that senior citizens only highlighting relationships between the barriers and enablers
go online for health information rather than using ICT for and the populations to which the findings relate. While these
other activities such as making appointments or participating connections need to be tested, they suggest potential inter-
in online consultations. This suggestion is supported by ventions to enhance digital health communications.
Satariano et al. (2014, p. p. 1382) who suggested that digital The different barriers identified in this review have some
technologies ‘should be developed from the outset with the parallel with the key elements of van Dijk’s (2005) digital
end user and specific environment in mind’. Of relevance to technology appropriation model, namely ‘Material or phy-
health communications, Thompson et al. (2016) argues that sical access’, ‘Skills access’ and ‘Motivational access’. These
individuals should have a say in what information is included barriers were more likely to affect particular demographic
and when it is available, with additional information available groups, such as those with lower education or income levels,
for patients to assist in understanding complex health infor- the elderly (Amante et al., 2014; Litt, 2013; Showell, 2017;
mation. While Showell (2017) focused on identifying barriers Thompson et al., 2016), those from a non-Caucasian ethni-
(not enablers) of PHR use, they conclude that designers city (de Lusignan et al., 2014; Showell, 2017), and those
should take into account known barriers of particular patient living in rural communities in developed countries
groups when designing and implementing PHRs in the future. (Mubarak, 2015). Digital take-up may therefore look differ-
Design of more user-friendly ICT platforms by services and ent for certain groups based on the particular barriers they
developers, in addition to policy initiatives, can also contribute are facing, and this model may therefore not be universal in
to overcoming issues associated with access and skill (Litt, its applicability. These barriers also suggest that Van Dijk’s
2013). For example, health communications should be designed model is not linear. For example, those with physical access
so that they are compatible with mobile devices, given their may subsequently lose motivation because of a negative
growing popularity and findings that certain groups who are experience online; or new skills might be needed to under-
less likely to use the Internet on a fixed ICT device such as a take more complex and emerging programmes and equip-
desktop computer and are more likely to rely on mobile devices, ment. Different groups may therefore need to be engaged
specifically smartphones (Abbott et al., 2014; Amante et al., ‘where they are at’ with regard to the particular issues they
2014). In relation to eHealth portals, Amante et al. (2014) also are confronting for greater digital inclusion, rather than
suggested that physical advancements such as on-site kiosks at working on the assumption that particular steps need to
healthcare facilities need to enhance access opportunities. be addressed in sequence.

Synthesis of barriers and enablers to digital inclusion Limitations


What was once known as the digital divide, differentiating Rapid reviews are an emerging method of synthesising
those that could physically access the digital environment, and research evidence; however, they lack the depth and
those that could not, is now seen to be something more detailed analysis of a traditional systematic review
complex. Digital inclusion emphasises not just physical access (Khangura et al., 2012). With this in mind, the conclusions
to technology but also productive use of the medium for of rapid reviews have been found to generally align with the
personal and social benefit. This review, in describing the conclusions of full systematic reviews (Watt et al., 2008).
barriers and enablers to digital inclusion, sheds light on the This review also focused on studies from developed coun-
‘more complex reality of various people’s differing access and tries because the work was funded by an Australian-based

Figure 1. Relationships between barriers and enablers of digital inclusion with relevant population groups.
8 K. BORG ET AL.

organisation committed to pursuing digital inclusion activ- Australian Bureau of Statistics. (2014–15). Household use of information
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