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Transformation

Transforming Healthcare
Infrastructure
Dave Cronin
Cooper | dave@cooper.com

It seems likely that we find It is at this level—the level of The first two ideas are mostly
ourselves at an inflection point infrastructure—where these big about what happens outside the
in the evolution of healthcare. opportunities for transformation hospital. These are things that
While the situation has cer- exist. It is not that we do not architects would not traditionally
tainly been brought to a boil know what kinds of patient and worry about when designing hos-
by recent U.S. political events, clinician behaviors and medical pitals. But that kind of thinking
the opportunities for change interventions result in healthy has gotten us into our current
fit into a much larger con- outcomes; it’s that at a systemic predicament, where the current
text; they have the potential level, we are not doing a good built “environment” for provid-
to truly transform the deliv- job facilitating these behaviors ing healthcare is sometimes an
ery of healthcare globally. and driving appropriate inter- impediment to necessary change.
Unlike some, I don’t believe ventions. The right changes If we step back and define a hos-
our current healthcare system here will provide a conduit for pital as the nexus for healthcare
is totally broken. I’ve conducted evolutionary change to cas- in a community, we have a plat-
design research in quite a num- cade throughout the system to form on which we can imagine
ber of clinical settings and have achieve dramatic improvements the ideal infrastructure for keep-
consulted for businesses repre- in the quality and cost of health- ing people healthy as possible in
senting many different aspects care. Which isn’t to say that it a cost-effective way.
of the healthcare industry, also isn’t incredibly important In the May + June 2010 issue of
including provider networks, for medical knowledge to con- interactions, Hugh Dubberly sug-
medical-device manufacturers, tinue to evolve; it’s just that we gested designers ought to help
and even health insurance com- already know enough to dramat- reframe what healthcare is and
panies. I’ve seen magic worked ically drive up quality and drive how it is delivered, as well as to
on regular basis, and from a down costs. reframe what it means for design
historical (and global) perspec- Many of the opportunities to to help. I couldn’t agree more,
tive, the standard of care in the improve our healthcare system and in this spirit, propose recon-
developed world is astoundingly can fit into three big categories: sidering what healthcare infra-
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high. I am in awe of the abilities proactively engaging individu- structure is necessary to better
of doctors, nurses, techs, and als to take better care of them- care for people, how design
other clinicians to consistently selves; providing better inter- should address this new notion
function at a very high level ventional care beyond the walls of infrastructure, and what this
despite the fact they are forced of the hospital; and improving all means for the institution of
to work with archaic infrastruc- care delivery inside hospitals the hospital.
ture in less than ideal environ- through standardization and
ments. (As for the insurance better collaboration between Proactive Engagement
companies, perhaps the best clinicians, patients, and fami- of Individuals
thing to say is they function to lies. All three of these strategies The first huge opportunity for
make money but could be dra- require new infrastructure and healthcare transformation is
matically more successful as perhaps a shift in the definition, around proactively engaging indi-
businesses if they changed their role, and activities that charac- viduals with their own health.
approach to things.) terize the hospital. In case anyone has missed this

34
FEATURE

striking fact, many of the most While this all sounds good So it seems that with even the
common chronic diseases, like in theory, people’s habits are most basic motivators (money),
diabetes, heart disease, and notoriously difficult to change, it’s possible to both reduce costs
cancer, are not only a substan- and psychologists’ and econo- and improve health for a rela-
tial cause of death (70 percent mists’ substantial understand- tively large and diverse popula-
in 2006, according to the U.S. ing of human motivations can tion. The next obvious question
Agency for Healthcare Research seem meager in the face of is what infrastructure is required
and Quality), and a substantial rampant unhealthy behavior in to proactively engage individuals
source of healthcare costs ($500 our society. However, there are to behave in healthier ways on a
billion in the U.S.in 2006), but instances in which these strate- broader basis. [1] Woolf, S. “Will
Prevention Save
they are largely preventable or gies have been clearly shown to Research by behavioral econo-
Money?” AHRQ 2009
controllable by lifestyle choices be highly effective. mists has found that people tend Annual Conference,
Bethesda, Maryland
such as diet and exercise [1]. Like many large compa- to make good decisions where 15 September 2009;
So not only is a person with nies, Safeway’s health insur- action and result are closely tied http://www.ahrq.gov/
about/annualconf09/
diabetes who is able to proactive- ance program is self-funded, together (either through feedback woolf.htm/

ly keep their blood sugar under meaning the employer pays or when consequences are obvi-
control with diet and exercise all health insurance benefits ous), when doing the right thing
more likely to have a “positive (and therefore incurs most of isn’t too difficult, and when a
outcome” (i.e., live a long life, the risk and benefits from all decision is made repeatedly (i.e.,
avoid the nasty complications of cost savings). Starting in 2005, the individual is able to practice).
poorly controlled diabetes like Safeway has offered significantly People also tend to be highly
loss of vision or amputation), discounted premiums for people motivated by making progress
but they are also likely to cost with healthy behavior related toward achieving goals, and by
their health insurance payer a lot to tobacco usage, weight, blood group social dynamics—fitting in
[2] Burd, S. “How
less than someone with poorly pressure, and cholesterol levels. with and impressing (or not dis- Safeway Is Cutting
Health-Care Costs.”
controlled diabetes. Put another During the first four years of the appointing) their friends, family, Wall Street Journal,
way, you can buy an awful lot of program, Safeway kept per capita colleagues, and neighbors [3]. 12 June 2009; http://
online.wsj.com/article/
proactive engagement with the healthcare costs flat, while most It seems then that the start- SB1244768040 
26308603.html/
cost of one ambulance trip to the American companies’ costs ing point for behavior change
hospital followed by even a short increased 38 percent over the is good information, and the
hospital stay. same period [2]. starting point for the supporting
But people without the symp- Safeway CEO Steven Burd infrastructure must be a robust
toms of disease rarely encounter recently described the thinking health record that includes
the healthcare system, and by behind the Healthy Measures a wide range of information,
the time someone faces Type 2 program: “Safeway’s plan capi- including data from clinical
Diabetes or a first heart attack talizes on two key insights... systems (e.g., hospital electronic
he or she has probably devel- The first is that 70 percent of medical records), as well as more
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oped some habits that are pretty all healthcare costs are the personal information about [3] Thaler, R. H. and
Sunstein, C. R. Nudge:
tough to break. So as obvious as direct result of behavior. The things like diet, exercise, and Improving Decisions
this opportunity is, it’s a tricky second insight, which is well health data collected at home About Health, Wealth,
and Happiness.
challenge—how can we educate understood by the providers of (weight, blood sugar, blood pres- New Haven, CT: Yale
University Press, 2008.
and motivate pretty much every- healthcare, is that 74 percent sure). Of course this data must
one to live in a healthy way as of all costs are confined to four be accessible and easily main-
early as possible, and then how chronic conditions (cardiovascu- tainable for patients, their fami-
do we help people make radical lar disease, cancer, diabetes, and lies, and the clinicians (or insti-
adjustments to their behavior if obesity). Furthermore, 80 per- tutions) whom they choose to
either the first round of engage- cent of cardiovascular disease allow to create or consume data
ment didn’t work, or they’re and diabetes is preventable, 60 from the personal health record.
genetically or otherwise predis- percent of cancers are prevent- While there is strong evidence
posed to a chronic disease and able, and more than 90 percent that just tracking personal data
they’ve fallen ill? of obesity is preventable” [2]. can have a significant impact on

35
Transformation

health-related behavior [4], what can help individuals fine-tune which children should receive
is done with and in response to treatment of a disease or condi- a particular vaccine, or using a
the data is critically important. tion or better understand an chart that shows all childhood
The most basic motivator is a undiagnosed problem. While my vaccinations and the ages at
good understanding of the poten- assumption is that mobile- and which children should receive
tial consequences of individuals’ Web-based software interfaces them [5]. While interactive
actions, so interfaces into this will be invaluable in deliver- experiences can provide useful
personal health record must help ing these experiences, we assistance to people struggling
people understand what diseases shouldn’t at all discount the role to understand their medical and
and conditions they are at risk of clinicians—nurses in par- health situations, our overall
for based upon the clinical and ticular—in educating patients healthcare infrastructure must
personally tracked informa- about their diseases and help- better account for the education
[4] Hollis, J. F. et al.
“Weight Loss During the tion. From here various levers ing them establish and track of almost everyone, probably
Intensive Intervention
Phase of the Weight-
are used to help people reduce goals to improve their health. through integration into second-
Loss Maintenance Trial,”
American Journal of
Preventive Medicine 35,
2 (2008):118-126; http://
www.sciencedirect.
com/science/article/
B6VHT-4SXYB9Y-
5/2/475e530280f6bc0f0
29e29dbabb00287/

[5] Kutner, M.,


Greenberg, E., Jin,
Y. and Paulsen, C.
“The Health Literacy
of America’s Adults:
Results from the 2003
National Assessment
of Adult Literacy”
National Center for
Educational Statistics, the likelihood of these unhappy Sadly, for any of this to be ary-school curriculum. (Perhaps
September 2006;
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http://nces.ed.gov/ consequences with capabilities effective, there is considerable this would be an aspect of use-
pubsearch/pubsinfo.
for goal setting and progress work to be done both in translat- fully reimagined “home econom-
asp?pubid=2006483/
tracking, rewards for healthy ing medical (and legal) informa- ics” or “civics” classes.)
behavior, and education about tion for general consumption, Personal-data acquisition is
the potential ramifications of and in educating the public on also a huge field of need and
Photographs by Dan Simpson and Antonio Rosario

unhealthy behaviors tied in to how to comprehend even basic opportunity. Current solutions
various social media to provide medical facts. According to the for tracking personal health
community and support. 2003 National Assessment of data tend to be extremely siloed.
There are also huge oppor- Adult Literacy, fewer than half While mobile devices provide a
tunities to present data in such of American adults were judged great new way of delivering sens-
a way as to help people under- to be proficient in health-literacy ing and monitoring capabilities,
stand correlations between skills to the extent that they and while there are some nicely
their actions, environmental could accomplish tasks like find- designed health-info trackers,
factors, and their health. This ing the correct age range during exercise logs, and food diaries in

36
FEATURE

the iPhone App store, almost all placements instead of product toring for patients with chronic
require a user to actively launch placements and even setting up conditions like congestive heart
the application or interact with a incentive programs where media failure. A number of products
reminder in order capture data. providers are rewarded for driv- exist that walk patients through
These all tend to be plagued with ing healthcare engagement (like the process of collecting vital
the same problem as paper track- paying for clicks in online adver- signs (in the case of conges-
ers—the people who remember tising). This would seem to be a tive heart failure: blood pres-
to use them regularly tend to be small expense in the face of the sure and weight), reminding
people who are already in good cost savings shown by Safeway. them about their care regimen
control of their health. and uploading the vitals to a
The real opportunity lies in Changing the Boundaries central nursing station where
figuring out how to integrate of the Hospital software tools can help nurses
data tracking and education Clearly, as healthcare institu- spot trends that may require
with experiences that people tions continue to reach out in-person intervention. [6] National Center
for Health Statistics,
“National Home and
Hospice Study,”
February 2004.

[7] “Home Health


Monitoring May
Significantly Improve
Blood Pressure Control,
Kaiser Permanente
Study Finds.” PR
Newswire, 21 May 2010;
http://www.prnewswire.
com/news-releases/
home-health-monitor-
ing-may-significantly-
improve-blood-
pressure-control-kaiser-
already find engaging—whether into the community to concern A recent study by Kaiser permanente-study-
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it’s social networking, televi- themselves with proactively Permanente and the American finds-94576164.html/

sion, games, or reading news. motivating healthy behaviors, Heart Association has shown that
The tricky part is figuring out the boundary of the hospital will patients with high blood pressure
how to present these capabili- increasingly no longer be defined using home healthcare monitor-
ties so that they provide enough by physical walls. This trend also ing were 50 percent more likely to
friction to capture people’s extends to interventional and have their blood pressure under
attention, but not so much fric- nursing care. control [7]. This alone represents
tion that they detract from Home healthcare is noth- a dramatic opportunity—hyper-
the overall experience. And ing new, and millions of people tension is a leading predictor for
of course, they should be as in the U.S. alone receive some heart attacks and strokes, both
lightweight to interact with as form of home care [6], but it is of which are highly deadly and
possible. I could even imagine very expensive for patients and expensive to our healthcare sys-
insurers paying to advertise in payers alike to get an in-person tem as a whole (and therefore
media and software—behavior visit for basic healthcare moni- expensive to every one of us).

37
Transformation

So it seems that
with even the most
basic motivators The Mayo Center for
Innovation (CFI) has been work-
great opportunities to mitigate
these problems by allowing
ing on a program to design a patients to access the expertise
(money), it’s possible “patient-centered medical home” at specialized facilities from
that provides a better connec- far away. And not only ought

to both reduce costs tion between patients and their


healthcare providers beyond
our new healthcare infrastruc-
ture better support remote
the in-person visit. According clinician-patient interactions,
and improve health for to the CFI, it is “exploring ways but because of this trend to cen-
to implement unobtrusive sys- tralize specialization, healthcare
a relatively large and tems into a patient’s daily rou-
tine—perhaps a coffeemaker or
providers will also increasingly
need information systems to
refrigerator that records blood support non-collocated col-
diverse population. pressure or glucose levels—with- laboration between clinicians.
out disrupting their busy lives” A common concern about an
[8]. While this certainly points increased reliance on telehealth
in the right direction, it is the tip is that the lack of face time will
Another recent study conducted of the iceberg. Whether it’s in a result in a reduction in quality of
by Kauffman Foundation and coffeemaker, the television, or care. This thinking goes that it
Brookings Institution economist PC-based social media, there is will be even easier for doctors to
Robert E. Litan predicts the U.S. a huge opportunity for designers be less thorough, and they won’t
could save $197 million from to imagine how home healthcare benefit from their well-developed
implementing telehealth systems monitoring and telehealth can senses of observation. The
to help treat chronic ailments like more seamlessly fit into people’s counter-argument to this is that
[8] LaRusso, N.
“Imagine Solutions: diabetes, congestive heart failure, daily lives. by reducing the amount of time
Transforming health
care through a patient- chronic obstructive pulmonary Using technology to provide spent on very routine visits, doc-
focused delivery disease, and chronic skin ulcers. better care beyond the walls of tors will actually free up time to
system.” Naples Daily
News, 20 February Current home health moni- hospitals and doctors’ offices spend with patients whose condi-
2010; http://www.naple-
snews.com/news/2010/
toring products are mostly dis- need not be limited to monitor- tions require their full attention.
feb/20/imagine- mally designed. For example, ing chronic-disease patients. Current payer policies are
solutions-transforming-
health-care/ the Health Buddy, a popular Many routine trips to a doctor’s perhaps the biggest infra-
telehealth device, communicates office might easily be replaced structure challenge when it
to its (mostly elderly, sight- by a videoconference or even an comes to telehealth. As often
impaired, arthritic) users entirely email exchange. This, of course, is the case with many kinds
with small, center-aligned text, would be especially beneficial to of preventive care, currently
which is clearly not as readable, patients in rural settings. telemedicine and remote con-
let alone as engaging, as it could Centralization of specialized sultation and treatment are
[9] Auchincloss, A. H.
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et al “Neighborhood
be. These products also suffer resources seems to generally be not well-covered by Medicare
Resources for Physical from the same issues that plague a good thing in the organiza- or private health insurance
Activity and Healthy
Foods and Incidence many existing solutions around tion of a healthcare system. It’s plans. Remote consultations
of Type 2 Diabetes
proactive engagement: They are more cost-effective and easier between doctor and patient are
Mellitus.” Archives of
Intern Medicine 169, not already integrated into a per- to standardize care (and thereby reimbursable only if conducted
18 (2009):1698-1704;
http://archinte.ama- son’s daily routine. For example, improve quality) to deliver car- over video, and preventative
assn.org/cgi/content/ given the prevalence of television diac care in a single large facil- examination of remote moni-
abstract/169/18/1698/
watching among the chronically ity in a metropolitan area than toring data is not reimburs-
ill, it seems that the cable-TV in a number of small facilities able. It’s clear that both public
box would be a much more use- spread around. However, a huge and private payers could reap
ful platform than a standalone downside to this approach is significant cost savings (and
“medical device,” which is as easy the increase of travel time— care improvements) by better
to ignore as the blood pressure and decrease in access—for compensating physicians and
pump itself. patients. Telehealth provides hospitals for using telemedicine

38
FEATURE

effectively, but are too bogged Changing Care Delivery sub-specialists it is nearly impos-
down in bureaucracy to make Even if we are successfully and sible for a physician to read and
the necessary policy changes. proactively engaging people to retain all the research relevant
While telehealth is largely live more healthily and we are to the patients that they see. For
about extending the impact better able to use telemedicine evidence-based medicine to be
of the healthcare system into to avoid expensive trips to the a reality, it requires that medi-
people’s homes, when we talk hospital, a significant portion of cal decisions be made in light of
about redefining the boundaries medical care will still be deliv- appropriate patient data, which
of the hospital it is also impor- ered in hospitals and doctor’s is viewed in the context of up-
tant to consider how healthcare offices. One of the most signifi- to-date medical research (it also
institutions can have a bigger cant recent changes in health- requires that substantial data
impact in communities, perhaps care is a move to standardize be captured about the treatment
even by bringing these commu- treatment upon what has been and progress of each patient to
nities into the hospital. While scientifically shown to produce feed back into research). Further,
it may be common sense to the best outcomes. It turns out while all this data is absolutely
many of us, a 2009 paper in the that this incredibly reasonable critical to the endeavor, informa-
Archives of Internal Medicine (and surprisingly new) approach tion systems must also be smart
showed a 38 percent lower inci- does in fact tend to improve and help make people smart.
dence of Type 2 Diabetes among patient outcomes while reducing Human bodies and diseases
people who lived in neighbor- cost of care. are incredibly complex, and
hoods with better resources For example, at Intermountain research findings are rarely
[10] Baker, G.R. et
for food and exercise [9]. Healthcare, a Salt Lake City– black and white (and are always al. High Performing
Determining exactly what based system of hospitals and changing). In top form, human Healthcare Systems:
Delivering qual-
should be done as a result of clinics, clinicians adopted prac- judgment (for example, as por- ity by design. Toronto:
Longwoods Publishing,
this data is certainly a ripe tices to more tightly control trayed in Gary Klein’s Sources 2008. For more on
opportunity for design think- the glucose level of patients in of Power or Malcolm Gladwell’s ICH, see Leonhardt, D.
“Making Health Care
ing, and some would reasonably intensive care units (ICUs), which Blink) is capable of things well Better.” New York Times,
3 November 2009;
argue that access to healthy “led to a statistically significant beyond any AI or decision engine
http://www.nytimes.
food and exercise is a civic reduction in the rates of mortal- (or at least one that’s ready for com/2009/11/08/
Magazine/08Health 
good that is best handled at the ity in this patient group.” And by prime time on a hospital floor). care-t.html/
municipal level. That said, if we standardizing care for patients on But the one thing that comput-
truly want to orient our health- ventilators, they ended up reduc- ers do have on even the smartest
care infrastructure in such a ing the average time each patient clinicians is consistency. This
way as to result in better health was on a ventilator by more means that information systems
at a lower cost, perhaps there is than a day. These adjustments must aid in filtering through the
an opportunity for healthcare reduced the rate of ventilator- increasingly voluminous data
institutions to have a hand in associated pneumonia by 10 per- captured about each patient;
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providing these essentials to a cent over two years, shortened help clinicians understand
community. It’s clearly outside the overall length of stay in the relationships between data,
their core expertise now, but ICU, and reduced costs by more observations and protocols, care
as these institutions move in than $3,000 per ICU patient [10]. guidelines, and other standard-
the direction of encouraging (In the name of full disclosure, ized approaches to care; and
healthy behavior, is it really too I’ve should say I’ve worked with ultimately assist in making good
much of a stretch to imagine IHC for the past couple years.) judgments about patient care.
that hospitals could have a hand As obvious as it might sound, Rapidly increasing medical
in providing exercise facilities on a practical level, actually prac- knowledge has resulted in an
and farmers markets full of ticing evidence-based medicine increase in specialization. This
fresh veggies (one of the biggest is harder than it might appear. means that most patients with
drivers of diabetes reduction The rate of new findings in a chronic disease or comor-
on the food side of the above- medical science continues to bidities are treated by teams
mentioned study)? increase, and for all but the sub- of clinicians rather than one

39
Transformation

or two individuals, and our improved staff satisfaction, and where clinicians physically act
healthcare infrastructure must fewer lawsuits [12]. upon patients, we expanded that
also support communication, The infrastructure required definition to include the physi-
collaboration, and workflow here is actually quite similar to cal and virtual environment that
coordination between clini- what we have already discussed provides all kinds of interactions
cians. This means not only more with regard to changing care and experiences that result in
team-oriented physical environ- delivery. Hospital architecture healthier people.
ments, but also better tools for and information systems must Of course there is no shortage
remote collaboration: a way of not only account for communica- of challenges in achieving this
[11] Weber, J. “A SPARC conducting remote “rounds”— tion and collaboration between vision. Medicine is very com-
for Medical Innovation.”
BusinessWeek, 27 complete with videoconferenc- clinicians, but must also include plex, and transitioning to the
October 2005; http://
www.businessweek.
ing, patient video feeds, shared patients and families. They digital age has been slow and not
com/innovate/ viewing of imaging, and medi- should be able to monitor and universally successful. As with
content/oct2005/
id20051027_614500. cal data, all with next-to-zero enter data, to review and discuss everything built on a foundation
htm/
fussing with technology. care plans and specific orders, to of modern information technol-
And as we consider how ask questions and provide sug- ogy, there is a huge potential
infrastructure should support gestions to clinicians, and to be for difficulty for the people
communication and collabora- reminded and encouraged about involved—patients and clinicians
tion, we must not forget patients things like medications and alike. There are legacy systems,
and their families. Recently, physical therapy. policies, and attitudes that
there has been a drive to bet- threaten to unnecessarily slow
ter involve patients and their Conclusion the pace of progress. And at the
families in care decisions. At the There is no way that healthcare end of it all, while digital infra-
[12] Beck, M. “The
Mayo Clinic, the SPARC innova- transformation can be achieved structure will be invaluable to
Family Plan.” Wall Street
Journal, 27 October tion group has been experiment- solely by legislation. While the the productive transformation of
2009; http://online.wsj.
com/article/SB10001424 ing with consulting spaces that necessary changes absolutely healthcare, the most important
05274870447150457444 move the doctor out from behind do require new policies to be interactions will between people.
9572778372770.html/
the big desk, onto equal footing put in place that better align the As former Cleveland Clinic
with the patient in an attempt to interests of healthcare providers Chief Experience Officer, and
engage the patient as a partici- (doctors and hospitals) and pay- patient-centered design pioneer
pant in care rather than a pas- ers (insurance companies and Dr. Bridget Duffy put it, “I think
sive invalid [11]. government) with the health there’s an understanding that as
Similarly, at the St. Louis of people, this alone will not the higher tech we get, the more
Children’s Hospital newborn achieve the cost reductions and high touch we need to get” [13].
intensive care unit, parents quality improvements we seek.
are encouraged to contribute What must be changed is the About the Author 
[13] Duffy, B. “Improving Dave Cronin is a managing
Patient Experience.” observations during rounds, be way individuals interact with the
director at Cooper, where
Video November 8
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2007 Cleveland Clinic;


involved in treatment decisions, healthcare system, and I believe he works with design teams
http://www.icyou.com/ and participate in routine care this change must be driven by and clients to research,
events/3rd-annual-con- understand, imagine, strat-
sumer-centric-health- activities so they’re prepared healthcare institutions.
care-congress/bridget- egize, design, and create all sorts of digital
before taking an infant home. The institution of the hospital products, services, and experiences. He’s
duffy-md-improving-
patient-experience/ Not only does this type of family is ripe for reinvention. By tak- enjoyed working on everything from the
involvement reduce emotional ing a step back and considering kiosks and handheld guides at the Getty
Center to computer-assisted surgery, and
stress, and in fact help coordi- what infrastructure best sup-
has a particular passion for medical- and
nate communication between ports a healthy community, health-related projects. Cronin cowrote
clinicians, but the American we can reframe the idea of the About Face 3: The Essentials of Interaction
Academy of Pediatrics has also hospital in a way that makes it Design, and writes, speaks and teaches on
the subject of interaction design and strate-
found that pediatric care that more effective, both in terms of
gy. Find him on twitter at @davcron.
actively involves parents gener- medicine and economics. What
ally results in shorter hospital if instead of limiting our notion
DOI: 10.1145/1865245.1865254
stays, fewer readmissions, of a hospital to the building © 2010 ACM 1072-5220/10/1100 $10.00

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