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Abstract
Emergency managers face a variety of challenges when developing
plans for disaster of various types. The needs of any community are
heterogeneous. One type of need that has been neglected historically
are the needs of residents with disabilities or those with special needs.
This paper begins with a review of recent events that have made the
inclusion of residents with disabilities and special needs salient for
emergency managements – including the recent efforts by FEMA to
provide guidance to develop Functional Need Support Services (FNSS)
for evacuee shelter management. We then describe some of the chal-
lenges one should expect in the development and implementation of
FNSS-approaches to emergency management based on our recent re-
search into evacuation hosting.
1
1 Introduction
In February 2011, a federal judge found that the city and county of Los An-
geles had made insufficient effort to accommodate those with special needs.
The class action law suit targeted the city’s emergency plan and its limited
attention to issues of transportation, sheltering, and other services relevant
to emergency management 1 . Judge Consuelo Marshall offered a summary
judgement that the existing plans’ neglect of residents with disabilities repre-
sented a violation of the Americans with Disabilities Act of 1990 (ADA). The
plaintiffs in the case argued that such neglect placed residents with special
needs at greater risk as well as a state of
While the city did conduct an assessment of the shelter sites, it did not
address the DOD’s other recommendations.
1
This material is based upon work supported by the National Science Foundation under
Grant No. (CMMI – 0927576). Any opinions, findings, and conclusions or recommenda-
tions expressed in this material are those of the author(s) and do not necessarily reflect
the views of the National Science Foundation.
2
The city’ response was that the record did not indicate that there was a
policy of active discrimination. The defendant city
This, the city concludes, proves that the city has not excluded people with
disabilities by reason of those disabilities” from the emergency plans.
The judge in the case accepted the plaintiff’s claims and found in favor
of the advocates for the disabled. Moreover, the judge found the evidence
sufficiently convincing to offer summary judgement on the matter. Emer-
gency managers across the country are quite rightly watching this case and
its aftermath closely. There is a sense that LA was not uniquely deficient in
accommodating the needs of residents with special needs. Many other cities,
counties, and states are currently developing plans to better protect the resi-
dents with special needs and watching what legal standards emerge to define
reasonable accommodation. Given the challenge associated with questions
related to including disabled people in emergency management, FEMA has
sought to provide some guidance.
This article looks at a major recent development in the accommodation
of residents with special needs in general population shelters and challenges
to the approach that have emerged during our team’s recent research into
evacuation hosting in communities across the country. Analysis of this FEMA
guidance provides a view into the contemporary strategy for inclusion of
disabled people as well as the challenges that this strategy may face.
3
though the approach provides a view of what the approach may entail for
integration practices generally. We also see the document as a bellwether of
inclusion strategies for a variety of other social service areas. There is noth-
ing inherent to a “functional needs” approach to shelter management that
limits its application to matters of to shelter management or, even, emer-
gency management. Rather, social service administration from a variety of
domain may see in the FNSS an example of what an inclusiveness strategy
may look like.
In this section, we will describe this approach and the guidance it directs
to shelter managers. We will start by laying out the guiding principles of the
FNSS approach to provide context and the elucidates values that motivate
the strategy. We follow this with deeper investigation of two components of
the FNSS guidance document: stakeholder consultation and special services.
4
Management Reform Act (PKEMRA) provide for a set of legal principles that
guide emergency management – including shelter management. The general
principle is one of non-discrimination. This is a case, however, where such a
general principle leaves an unacceptable amount of ambiguity. To clarify the
general principle, the guidance document provides more specific operative
principles (FEMA 2010, 10-11). These include:
• Self-determination • Physical access
• Integration • No charge
The list of operational principles provides some surprisingly strong di-
rections. Based on the belief that the each person with a disability is most
capable of defining his or her own needs, the approach calls for active, specific
accommodation. Shelters are required to make themselves accommodating
places for people with disabilities rather than segregating these people into
separate locations. Shelters (and planners) are required to take all reasonable
steps to ensure this accessibility. In practice, the process of mainstreaming
people with disabilities is not this clear cut – as our review of reports from
the field will illustrate in a later section.
The series of operational principles enunciates some of the dimensions of
accommodation. Most obviously, shelters must allow access to the physi-
cal location. However, access to the physical location is not enough. The
guidance emphasizes the need for accommodation of special needs within
the shelter including communication and all of the diverse services that the
shelter provides. It is in this diversity that the FNSS approach shines. Fol-
lowing on vague pronouncements of inclusiveness and accommodation, the
FNSS approach provides an approach for emergency managers to better un-
derstand the diversity of special needs that exist within their populations.
The focus on the functional needs created by disabilities directs attention to
the specific action and accommodations required to achieve inclusion.
This also provides a heuristic device to categorize needs to simplify their
diversity. Focusing on functional needs transforms characterizations of dis-
abilities into actionable descriptions. Within the FNSS approach, one may
5
focus on how sensory limitations affect a broad range of emergency man-
agement issues. How will alert systems notify people with various sensory
limitations? How will people with cognitive limitations interpret the noti-
fications? Rather than asking emergency managers to understand the wide
variety of conditions related to a variety of impairments, the FNSS focuses
attention on meeting classes of functional needs (each need resulting from a
variety of conditions).
In the next sections, we will discuss two specific elements of the FNSS
to illustrate the guidance offered within the document. These examples are
taken as illustrations and do not represent the entirety of the FNSS guidance
document. These examples, though, are each inherently important while also
providing a sense of what the FNSS calls upon emergency managers to do.
6
within one’s community and examples of the roster of contacts from emer-
gency planning efforts that have taken the lead in integrating organizations
serving residents with disabilities. While vague, the guidance (FEMA 2010,
16) provides general recommendations to coordinate with:
• Agencies and organizations that advocate for the rights of people re-
quiring FNSS
7
The boundaries between these functional categories are not absolute. To
say that one has a sensory disability (e.g. blindness) is not to say that one
does not also have a mobility disability. In fact, specific disabilities may
lead to a variety of special functional needs. Blindness impacts mobility; to
mention just one example.
Within the context of shelter management, the guidance brings attention
to issues that are easy to neglect or ignore when focused exclusively on abled
populations within general population shelters. While mobility and sensory
limitations are subjects familiar to many civil servants, specific challenges to
shelter design and management are likely less familiar. These less obvious
considerations include (4):
8
3 Social Construction and Policy Decision Mak-
ing
The changes in policy guidance for including the interests of disabled shelter
residents are an excellent start but may not have a great deal of impact if
they do not address the underlying causes of the historic marginalization
of persons with disabilities. The social construction theory of policy tools
provides some reason to believe that changes in policy guidance are not likely
to penetrate deep enough into the administrative process that have created
and supported the historical neglect of persons with disabilities.
Social construction theories emphasize that specific policies (from legis-
lation and the choice of policy tools to the implementation process) are the
product of the characteristics attributed to the target populations (Schneider
& Ingram 1993, Schneider & Ingram 1997). Schneider and Ingram focus on
two dimensions distinguishing different target population characterizations.
First, target populations vary in terms of their perceived political power.
Financial analysts, as affluent actors with access to political officials, may
be politically power. By contrast, homeless people may have less access to
political power. Second, target populations vary in their perceived level of
deservingness of public support. The public (and policy makers) consider
military veterans to be deserving of public support. Drug addicts, on the
contrary, come across as undeserving of public support.
The conjunction of these two dimensions creates four categories of target
populations. First, strong and deserving target populations are considered
advantaged. Strong but undeserving target populations are contenders. Weak
but undeserving target populations are deviants. Finally, weak but deserving
target populations are dependents.
Each different type of target populations creates a different environment
for policy formulation and implementation. The case of deviant target pop-
ulations is easy to consider. Imposing costs or using punitive policy tools
on members of this population is likely to be popular with most of the pub-
lic. Proposing a crackdown on drug abusers or sex offenders, for example, is
likely to be popular with the public while these groups are unlikely to mobi-
lize political influence. Such a target population is a “political opportunity”
for policymakers (Schneider & Ingram 1997, 114). Using similar policy tools
or implementation strategies to regulate the behavior of advantaged target
populations, like financial managers, is politically “risky”.
9
The political incentives evoked by target population characteristics pro-
vide the context for policy development and policy implementation. This
fundamental role for the social construction of target population influences
the treatment of members of these groups throughout the policy process –
including the treatment of disabled residents in the implementation of emer-
gency management policies and the inclusion (or exclusion) from emergency
planning operations. Anticipating the impact of the FNSS strategy for emer-
gency management requires a clear understanding the social construction of
residents with disabilities.
Scholars of disability policy have long considered our dialogue about dis-
ability in society to be limited (Oliver 1986). Traditional approaches to dis-
cussing disability have focused on disability as a “personal tragedy” rather
than on the social context of disability (6). This approach ignores the extent
to which the lack of integration of people with disabilities into social life is
not predetermined by biology. Instead, the isolation of disabled people is a
product, also, of social institutions. This critical understanding of disability
requires a shift from an exclusively medical understanding of disability to
one that embraces the social nature of disability.
Research into the the Americans with Disabilities Act of 1990 (ADA) has
identified the social constructions of disability as a key influence on the reac-
tion to disability accommodation in the workplace (Harlan & Robert 1998).
The law requires that employers make “reasonable accommodations” to allow
people with disabilities to work within their organizations. The reactions of
employers to this mandate reveals quite a bit about how our society defines
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and attributes characteristics to people with disabilities. Most notably, in-
terview research into employer attitudes towards disabled employees create
resistance to the implementation of the ADA.
The literature supports the argument that social constructions of the dis-
abled people as a target population for legislation influences policy making
and implementation. In the Schneider and Ingram framework, disabled peo-
ple most closely fit into the dependent category (Schneider & Ingram 1997).
Though there are important limitations. While the research indicates that
disabled populations possess relatively low levels of political power, the issues
of deservingness is somewhat complicated. By and large, the population is
considered deserving of public assistance. However, the use of regulatory au-
thority to support integration through the ADA reveals that there are limits
to this sense of deservingness. While deserving of some minimum level of sup-
port, there is greater resistance to more thorough forms of integration within
the “reasonable accommodation” requirement. This resistance takes the form
of passivity of implementation and growing resentment toward disabled peo-
ple for the extra effort required to accommodate them. The research from
the implementation of the ADA suggests that these deeply held characteri-
zations of disable people may limit the influence that the FNSS approach to
emergency planning will have. Schneider and Ingram anticipate this neglect
and unstable protection from discrimination when they suggest that “depen-
dent” populations are easy to ignore. The issues of dependent populations
are likely to remain low on the political and administration agenda. Then
there is action, it is likely to quite limited, exclusionary (requiring extensive
documentation of eligibility), and particularistic. This makes it easy for pol-
icymakers (be they legislators or executive officials) to announce grandiose
plans to support dependent populations and then ignore or refuse to fund
actual service provision.
The influence of these social constructions are likely to be all the more
acute in an emergency management context. Emergency management (in-
cluding emergency planning and emergency response) face the combination
of limited resources and unlimited demand that Lipsky identifies as defin-
ing street-level bureaucracy (Lipsky 1980). These conditions lead to triage
and queueing behaviors that are likely to continue to marginalize disabled
people. An active emergency event are likely to magnify these processes as
decision-makers tend to fall back on their habits (and sense of normality –
including what a “normal” resident needs) (Weick 1993).
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4 Accounts of Special Needs Accommodation
in Disaster Situations
Over the past two years, we have completed interview of 25 emergency man-
agement officials in communities ranging from Florida to California focusing
specifically on the subject of evacuation ingress and hosting.3 As part of
these semi-structured interviews, we devoted time to issues related to special
needs ingress and sheltering. These interviews revealed perspectives similar
to those expected from the social construction theory of policy development
and implementation.4 In matters of the inclusion of disabled people in emer-
gency planning, we find evidence of social construction emerging in two areas:
(1) the distinctiveness of disabled populations and (2) the expense and de-
mand for inclusion.
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within general population shelters.
The difficulty in this strategy is that there is a tremendous grey area dis-
tinguishing medical needs and non-medical disabilities. The guiding princi-
ples of the FNSS include “equal opportunity”,“equal access”, and“integration”.
These principles work at cross-purposes of the strategy of establishing sep-
arate medical-special needs shelters. The result is a strategy that says to
segregate medical special needs while mainstreaming disability.
This contradiction frustrates many emergency management professionals
as well as advocates (and self-advocates) of disabled people. Shelter man-
agers are asked to integrate people with disabilities to the maximum possible
extent while those with specific needs (medical special needs) require direct
accommodation in specially managed facilities. These medical special needs
shelters involve strict regulation including limitations of who can accompany
an evacuee requiring assistance. This policy, necessary given the dramatically
limited space available within the medical-special needs shelters, commonly
leads to dividing families between separate sheltering facilities.
These sorts of policies accentuate the distinctiveness of disabled persons.
Disabled persons must be screened for whether to send them to medical
special-needs shelters. Those that are included in mainstream shelters must
be accommodated (within the mandate of their being no “one-size-fits-all”
approach) based on their specific functional needs. As a result, emergency
managers must know a great deal about the nature of disabilities and func-
tions needs as well as accommodative technologies and strategies.
Within this environment of contradictions and tensions, emergency man-
agement professionals often report being overwhelmed and under-informed
on the needs of disable people. Some complain that they can’t keep up with
the various functional needs and associated accommodations relevant to their
work. What becomes clear in these statements is that the accommodation of
disabled people is considered an additional responsibility distinguished from
accommodating “normal” residents and evacuees. This distinction between
the service of the “normal” and the “other” residents and evacuees amplifies
the marginalization of disabled populations.
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involved but also because of the greater staffing needs (per shelter resident).
Other emergency management functions, including hazard communication,
raise similar issues.
At its core, this reaction to the expense of functional needs accommoda-
tion emerges from the marginal position of disabled people within the emer-
gency management process. Just as many emergency managers distinguished
the accommodation of disable people from the accommodation of the needs
of “normal”residents, the expense of accommodating the functional needs of
disabled populations is seen as an additional burden rather than a part of the
core mission of emergency management. Instead, some emergency managers
see accommodating functions needs as an additional (and novel) requirement
imposed on them during already lean and demanding times.
The strongest expression of the burden of accommodation of functional
needs comes through in non-verbal communication. In a small number of
interviewees, there is a sense that calls for inclusion of disabled people are
overly demanding. Some emergency managers in our sample argued that the
budgets are currently quite limited and the request to spend more on ac-
commodating functional needs may steal funds from “core” functions. The
implications of such a warning are clear. Accommodating functional needs
is not a core function. It is an admirable goal and a legitimate use of spare
money (the slack remaining after funding “core” operations). However, ac-
commodation is seen as a potential distraction and a sink for funding.
14
changing social constructions is slow but has to begin somewhere. Raising
awareness of the functional needs of disabled people is a vital first step. A
little information on how one can accommodate shelter residents with limited
hearing or sight, for example, can start the slow process of raising awareness.
The greatest contributions of the FNSS guidance are the strong recom-
mendations (and tools) for integrating interest groups that serve people with
disabilities into shelter management. The impact, even as an informational
document, of the FNSS guidance is likely to be quite limited. The document
is static, limited to shelter management, and may easily find its way to a
shelf to be neglected. However, integrating disability service organizations
may build a voice for people with functional needs into the process itself.
This presents the opportunity to start a long-term process of integration and
inclusion. In the end, the pressure must come from within each community
and be present within each emergency management network if it is to be
effective at inducing inclusion. A guidance document from a federal agency
– particularly one that takes great pains to make clear that the document
should not be interpreted as created new responsibilities – will have very
little effect in displacing the complex of social forces that have created and
perpetuated exclusion. Only by building countervailing forces for inclusion
is there likely to be any change. The tools within the FNSS to assist in the
integration of disability service organizations may serve to do just this.
There is a missed opportunity within the document though. In the end,
the key to overcoming the pathologies of the dependent social construction
of people with disabilities is the recognition that disabled people are not
a separate (and atypical or aberrant) social category. Integration of the
interests of people with functions needs into emergency management is not
likely to proceed far as long as they are some “other” group that asserts these
claims. Until inclusion of people with disabilities are part of the “normal”
operations and not some outreach activity to a marginal, separate group
we will not likely see full integration of functional needs. Achieving this
inclusion may require a change in mind-set; but one that is realistic. We
have to recognize that we may all develop functional needs. If anything,
we are all “temporarily abled” (Gerschick 2000). Whether through disease,
accident, or the process of aging, we may all develop functional limitations.
With this understanding, accommodating functional needs involves meeting
the needs of each of us.
It is important to note that the development of a strategy for including
people with disabilities is not unique to emergency management and FEMA.
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While medical and health care organizations have long faced the difficulties
related to providing access to persons with functional needs, many social ser-
vice organizations are only starting to come to grips with this demand. The
FNSS guidance provides a view into one policy domain’s attempt to grapple
with these issues, but may provide a preview of what similar approaches can
or should look like in domains as diverse as education, transportation, hous-
ing, or nutritional support. In the end, all service areas will have to face this
issue. Only time will tell the extent to which other areas adopt an approach
similar to the FNSS.
References
Communitiies Actviely Living Independent and Free, et al. v. City of Los
Angeles, et al. 2011. No. CV 09-0287 CBM (RZx) (C. D. of Cal.).
Harlan, S.L. & P.M. Robert. 1998. “The Social Construction of Disability in
Organizations.” Work and Occupations 25(4):397.
Hughes, B. & K. Paterson. 1997. “The Social Model of Disability and the
Disappearing Body: Towards a Sociology of Impairment.” Disability &
Society 12(3):325–340.
Schneider, A.L. & H. Ingram. 1997. Policy Design for Democracy. University
Press of Kansas.
16
Weick, K.E. 1993. “The Collapse of Sensemaking in Organizations: The
Mann Gulch Disaster.” Administrative Science Quarterly 38(4).
Weiss, Robert S. 1995. Learning from Strangers: The Art and Method of
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