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A beautifully written and darkly funny journey through the world of the allergic.
Like twelve million other Americans, Sandra Beasley suffers from food allergies. Her allergies—severe and lifelong—include dairy, egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. Add to that mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool, and it’s no wonder Sandra felt she had to live her life as “Allergy Girl.” When butter is deadly and eggs can make your throat swell shut, cupcakes and other treats of childhood are out of the question—and so Sandra’s mother used to warn guests against a toxic, frosting-tinged kiss with “Don’t kill the birthday girl!”
It may seem that such a person is “not really designed to survive,” as one blunt nutritionist declared while visiting Sandra’s fourth-grade class. But Sandra has not only survived, she’s thrived—now an essayist, editor, and award-winning poet, she has learned to navigate a world in which danger can lurk in an unassuming corn chip. Don’t Kill the Birthday Girl is her story.
With candor, wit, and a journalist’s curiosity, Sandra draws on her own experiences while covering the scientific, cultural, and sociological terrain of allergies. She explains exactly what an allergy is, describes surviving a family reunion in heart-of-Texas beef country with her vegetarian sister, delves into how being allergic has affected her romantic relationships, exposes the dark side of Benadryl, explains how parents can work with schools to protect their allergic children, and details how people with allergies should advocate for themselves in a restaurant.
A compelling mix of memoir, cultural history, and science, Don’t Kill the Birthday Girl is mandatory reading for the millions of families navigating the world of allergies—and a not-to-be-missed literary treat for the rest of us.
To read more about Don't Kill the Birthday Girl or Sandra Beasley please visit Crown Publishing Group at www.crownpublishing.com.
Originaltitel
Don't Kill the Birthday Girl by Sandra Beasley - Excerpt
A beautifully written and darkly funny journey through the world of the allergic.
Like twelve million other Americans, Sandra Beasley suffers from food allergies. Her allergies—severe and lifelong—include dairy, egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. Add to that mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool, and it’s no wonder Sandra felt she had to live her life as “Allergy Girl.” When butter is deadly and eggs can make your throat swell shut, cupcakes and other treats of childhood are out of the question—and so Sandra’s mother used to warn guests against a toxic, frosting-tinged kiss with “Don’t kill the birthday girl!”
It may seem that such a person is “not really designed to survive,” as one blunt nutritionist declared while visiting Sandra’s fourth-grade class. But Sandra has not only survived, she’s thrived—now an essayist, editor, and award-winning poet, she has learned to navigate a world in which danger can lurk in an unassuming corn chip. Don’t Kill the Birthday Girl is her story.
With candor, wit, and a journalist’s curiosity, Sandra draws on her own experiences while covering the scientific, cultural, and sociological terrain of allergies. She explains exactly what an allergy is, describes surviving a family reunion in heart-of-Texas beef country with her vegetarian sister, delves into how being allergic has affected her romantic relationships, exposes the dark side of Benadryl, explains how parents can work with schools to protect their allergic children, and details how people with allergies should advocate for themselves in a restaurant.
A compelling mix of memoir, cultural history, and science, Don’t Kill the Birthday Girl is mandatory reading for the millions of families navigating the world of allergies—and a not-to-be-missed literary treat for the rest of us.
To read more about Don't Kill the Birthday Girl or Sandra Beasley please visit Crown Publishing Group at www.crownpublishing.com.
A beautifully written and darkly funny journey through the world of the allergic.
Like twelve million other Americans, Sandra Beasley suffers from food allergies. Her allergies—severe and lifelong—include dairy, egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. Add to that mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool, and it’s no wonder Sandra felt she had to live her life as “Allergy Girl.” When butter is deadly and eggs can make your throat swell shut, cupcakes and other treats of childhood are out of the question—and so Sandra’s mother used to warn guests against a toxic, frosting-tinged kiss with “Don’t kill the birthday girl!”
It may seem that such a person is “not really designed to survive,” as one blunt nutritionist declared while visiting Sandra’s fourth-grade class. But Sandra has not only survived, she’s thrived—now an essayist, editor, and award-winning poet, she has learned to navigate a world in which danger can lurk in an unassuming corn chip. Don’t Kill the Birthday Girl is her story.
With candor, wit, and a journalist’s curiosity, Sandra draws on her own experiences while covering the scientific, cultural, and sociological terrain of allergies. She explains exactly what an allergy is, describes surviving a family reunion in heart-of-Texas beef country with her vegetarian sister, delves into how being allergic has affected her romantic relationships, exposes the dark side of Benadryl, explains how parents can work with schools to protect their allergic children, and details how people with allergies should advocate for themselves in a restaurant.
A compelling mix of memoir, cultural history, and science, Don’t Kill the Birthday Girl is mandatory reading for the millions of families navigating the world of allergies—and a not-to-be-missed literary treat for the rest of us.
To read more about Don't Kill the Birthday Girl or Sandra Beasley please visit Crown Publishing Group at www.crownpublishing.com.
Published in the United States by Crown Publishers, an imprint of the Crown Publishing Group, a division of Random House, Inc., New York. www.crownpublishing.com
Crown and the Crown colophon are registered trademarks of
Random House, Inc.
Library of Congress Cataloging-in-Publication Data
Beasley, Sandra. Don’t kill the birthday girl: tales from an allergic life/by Sandra Beasley. p. cm. 1. Food allergy—United States—Case studies. 2. Beasley, Sandra— Health. 3. Food allergy—Patients—United States—Biography. I. Title. RC596.B425 2011 362.196′9750092—dc22 [B] 2010043724
ISBN 978-0-307-58811-1 eISBN 978-0-307-58813-5
PRIN TED IN THE UNITED STATES OF A MERICA
Book design by Elizabeth Rendfleisch
Jacket design by Gabrielle Bordwin and Jean Traina Jacket photography: Amana Productions Inc./Getty Images (cupcake); Fuse/Getty Images (skull)
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First Edition
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• • • Introduction • • •
T here are only two birthdays that stand out in my memory as
distinct, chronologically certain events. One: my sixteenth birthday, when we watched Ferris Bueller’s Day Off. That was the year my friend Elizabeth, while using the swing anchored to the underside of our second-story deck, pushed off so hard that the whole shebang—girl, swing, unhooked chains—went sail- ing twenty feet out into the woods behind our house. Two: the year I got diagnosed with mononucleosis, too late to cancel an Italian-themed dinner party. So I stood in front of a stove for two hours—achy, glands swollen, stone-cold sober—cooking pasta for two dozen while my friends went through six bottles of wine. That was, undoubtedly, my twenty-fi rst birthday. Beyond that it blends into a murky ur-party. Which years did we go to Chuck E. Cheese’s? When did I get my Rainbow Brite doll? Which years were my father home, and which years had the army sent him off to the War College, Saudi Arabia, Bosnia? There is one constant in my birthday memories. When it came time for a cake, my mother would bring out whatever • 1 •
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Introduction Sandra-friendly sweet she’d designed. Some years it was sunflower-margarine Rice Krispies treats, and some years it was an applesauce-and-cinnamon-raisin bundt cake. I’d get my serving. Then we’d dish out the real dessert of cake or brownies or pie à la mode for everybody else. After singing, after blowing out candles, after presents had been opened, after everyone had eaten, someone would say it: “Now, don’t kill the birthday girl.” Which meant no kisses, no hugs, no touch of a hand or mouth. From that point onward, anyone who touched me ran the risk of giving me hives, or worse. Even today it’s a phrase I repeat as part joke and part prayer. Don’t kill the birthday girl. It’s the same at every holiday. My uncle Jim is notorious for forgetting about my allergies, holding out a dish of ice cream and asking, “Want a bite?” He’s the fun bachelor uncle, the one who rides a motorcycle and would give a litt le girl a windup sewer rat, complete with blinking red eyes, as a Christmas gift . Once upon a time it would fall on my mother to protect me at the end of the night, when the aunts and uncles and cousins were making the rounds for good-byes. Now I step to the side on my own. Everyone understands why I avoid contact. Yet I can’t help but wish it wasn’t their last impression of me before the long drive home. I am allergic to dairy (including goat’s milk), egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. I’m also allergic to mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool. But in particular, I am
• 2 •
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Introduction one of the more than 12 million Americans who has been di- agnosed with food allergies, a figure that includes almost 4 percent of all children. Even with so many of us in the conver- sation, there are huge disconnects in the dialogue. Parents who have never met a food they couldn’t eat struggle to empathize with their child’s allergies. Those crusading for community ac- commodation misguidedly conflate allergies with intolerance and confuse discomfort with anaphylaxis. Advocacy groups focus on youth allergies and largely ignore the complexities faced by those who grow into adulthood, travel, marry, and must figure out how to raise children of their own. There are multiple dimensions of data out there, but no one has set the gyroscope spinning. Allergies are quirky beasts. Unlike many syndromes, they are primarily sorted according to their outside catalysts. (Have you ever heard someone claim to have type-peanut diabetes? Eggplant flu?) Allergies are widespread—and widely misdi- agnosed. There is a whole range of symptoms and degrees of sensitivity, and these symptoms can change for any given in- dividual at any time. For those with allergies like mine, each day requires vigilance in terms of what we do, the company we keep, and where we sit in relation to that bowl of mixed nuts. One person’s comfort food is another person’s enemy. One per- son’s lifesaver is another’s poison. I thought my family’s habit of calling the foods I can eat “Sandra-friendly” was unique, until I saw a book by Emily Hendrix called Sophie-Safe Cooking: A Collection of Family Friendly Recipes That Are Free of Milk, Eggs, Wheat, Soy, Peanuts, Tree Nuts, Fish, and Shellfish. The more I have read, the more I
• 3 •
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Introduction realize a whole culture of catchphrases has emerged in addition to the key medical terminology. “Safe,” “friendly,” “free”: these words come up over and over again in literature about allergies. Don’t kill the birthday girl. Leftover omelet clings to the edge of a breakfast plate. Butter greases the stir-fr y. Walnuts go commando in an otherwise tame brownie. There’s a reason they’re called allergy “attacks”; you never know where a food can be lurking. But those with food allergies aren’t victims. We’re peo- ple who—for better or for worse—experience the world in a slightly different way. This is not a story of how we die. These are the stories of how we live.
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