Beruflich Dokumente
Kultur Dokumente
Volume 7 Issue 4
In this issue
Medical Report P. 2
National Awareness Week events Odds and Ends In the News CSF Website News
P. 3
P. 4
Calendar of Events
P. 5
P. 6-10
P. 11
Useful Information
P. 12
Medical Report
Just a bit of Back Ache? During a recent training session someone remarked that a friend had been lucky to have her colon cancer diagnosed because she hadnt got any symptoms but had just gone to the doctors with a bit of back ache. In fact the friend did have a symptom - backache - but she didnt realise the possible cause. Just about every one of us will have had some back ache at some time or other and being a symptom that is so common maybe we come to regard it almost as normal. The vast majority of back pain will be caused by benign causes such as muscular strain, disc problems or osteoporosis but about 1% of the patients seen in a general practitioners surgery with back pain will have a serious cause. Targeted Therapy is Best
Clearly it is better for patients if the treatment for their cancer can be targeted to their specific cancer rather a blunderbuss approach and so it is with breast cancer. There are already tests that determine treatment options such as the test to see if a particular womens tumour is sensitive to oestrogen. If it is, then
they will be given one of a choice of drugs that suppress oestrogen e.g. Tamoxifen or Arimidex for 5 years, and the converse is that those women whose tumour is not affected by oestrogen are relieved from the necessity of taking these drugs. Now there is a predictive test that allows women to judge whether they should have chemotherapy or not. It is only suitable for women with a slow-growing early-stage cancer, with no more than 3 lymph nodes affected and whose cancers are oestrogen-receptor positive. These women would currently be advised to have chemotherapy as well as an oestrogen suppressant and radiotherapy.
The pain from cancer in the spine is different from most other causes it is usually unremitting, boring in nature and not relieved by rest, in fact it is often worse at night and causes loss of sleep. It is often quite localised to a small area of the spine. Uncommonly the pain is of very The test, Oncotype DX, is a genomic assay sudden onset and is severe because the tumour which takes a sample of RNA from the cancer cells had caused the vertebrae to collapse. and analyses the genes which control the behaviour of the cancer and gives a score as to But I want to stress the importance of not how likely this cancer is to recur within 10 years. ignoring persistent back pain because it might be On the basis of a low, medium or high risk of the first sign of a cancer or of a secondary from a recurrence the patient can then use this known cancer. The vast majority of these cancers knowledge with her oncologist to decide whether will be metastases from a primary cancer or not to have chemotherapy. Although the test elsewhere such as breast, lung, prostate, kidney, itself costs about 2,500 the gain for the woman is ovary or colon. And it is really important to that she may be spared debilitating treatment remember that these metastases can happen which is unlikely to improve her survival. For the many years after the patient (and doctors) think health services the cost of the test will be that the cancer was cured, so everybody who has recouped by the fact that, according to experience ever had a diagnosis of cancer must remain so far, about 25% of women will not need vigilant. The investigation of choice is an MRI scan chemotherapy. There is a good account in The of the spine as x-rays may not detect the lesion. Daily Telegraph, 20th June 2011. And apart from treatment of the cancer in general Dr Sue Murphy the good news is that radiotherapy is usually very effective in reducing the pain even in patients with advanced cancer. (Editors note; On the Telegraph website search for Oncotype DX to easily find this article)
Page 2 Touchlines
CANCER SUPPORT FRANCE NATIONAL AWARENESS WEEK 24TH30TH SEPTEMBER 2011 (Planned events) LANGUEDOCSAVE THE DAY Cancer Support France Languedoc Walk for Life
As part of Cancer Support France Awareness week on a national level, CSF-Languedoc are organising a sponsored walk on Sunday 25 September in Bessilles Park near Montagnac. Participants will have the choice of a 6km or a 13.5km trail to walk or run before a convivial lunch at the park caf or in the picnic area. Do put the date on your diary for a fun day out. Come and join us for the exercise, to walk for someone close to you affected by cancer or simply to support our work. Details for registration will be available shortly. You will be able to register through a dedicated email address and receive your sponsorship form electronically. If you do not wish to be sponsored, a 5 participation fee will be payable on the day (children free).
The opening moments of our June 2010 book sale in Prayssac which raised over 700
SO SAVE THE DAY! SUNDAY, 25th SEPTEMBER ~~~~~~~~~~~~~~~~ DORDOGNE EST & LOT COFFEE MORNING & AFTERNOON TEA INCORPORATING ANOTHER SALE OF ENGLISH BOOKS
To make space for better storage for the constant intake of books, we are holding a grand clearance sale of books in MARGARETs barn in PRAYSSAC on SUNDAY, 25TH SEPTEMBER COMBE BRUNE, 46220 PRAYSSAC 10.0017.00 Contact: Margaret 05 65 22 96 37
E
Email: csfdordognelot@yahoo.com
Volume 7 Issue 4 Page 3
CSF Website
Alex Overton, our tireless Webmaster, is working very hard on upgrading our website and its beginning to look very different to one weve been used too. There is a very modern look to it and the new Donate tab is very prominent. Back issues of Touchlines are there, right up to date with the May edition and I see we now have the HONcode logo displayed: -
This site complies with the HONcode standard for trustworthy health information
The second new feature, the Calendar of Events is one that Id like to make a regular feature Very soon, we will all have our authorisation of. For its first outing, Ive lifted information which will enable us to update our Association pages gleaned from submitted copy for this month. I ourselves. All content will be moderated with hope you think this has some value. All copy should continue to be submitted by 10th of the month preceding publication but Im The new web address is: happy to receive this at any time prior to then. Please continue to send to: www.cancersupportfrance.org csfdordognelot@yahoo.com Thank you.
moderation being carried out by a dedicated group volunteers of whom, Andy Shepherd will be one.
In the News
Theres a lot being written about the outcome for Ex-Pats who have been denied access to the French healthcare system following changes for those under retirement age . The following piece is quoted on : www.thisfrenchlife.com via www.french-property.com France is to relax its rules on the admission of expat early retirees into the French health system. The change of policy has come about after pressure from the European Commission, who consider France is in breach of EU regulations by requiring early retirees to have five years residence before they can obtain health cover. As a result the French Ministry of Health is to issue new guidance on the right of access to the health system. There are many articles being published on this subject including www.connexionfrance.com and www.thefrenchpaper.com so it would be wise to keep pace with them.
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Thursday28th July Near Eauze, Gers Musical picnic lunch with a blind auction
(1st formal function of a new satellite group)
All money raised at this event is being donated to CSF
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SaturdayJuly 16th Gourg CSF Deux Svres will be having a stall At the local Fte/Vide Grenier Contact: Thelma Bell
TO SHOWCASE YOUR EVENT HERE, PLEASE SUBMIT AS PER THE NORMAL COPY DATE TO THE EDITOR
csfdordognelot@yahoo.com
Volume 7 Issue 4 Page 5
We have also have completed the updates and are having a big launch of the new CSF Basse Normandie website this week, it has taken a while to ensure that it had the right atmosphere and information content and we are really pleased with the finished results. To have a look at it please go along to www.csfbassenormandie.com and we would appreciate any feedback good or bad that anyone has to offer! Events coming up are our annual garden Party on July 02nd in Notre Dame du Touchet, we provide the picnic, live music and party atmosphere and you bring a bottle and chair and soak up that atmosphere hopefully on a sun drenched afternoon!! Fingers crossed. Tickets are 10 for adults and 6 for children and if you would like one or more information then please contact Jenny on 02 33 60 27 82 or csfbassenormandie@gmail.com. Of course if anyone would like information about anything concerning the Basse Normandie group or if you need support in any way then please contact us on the above number and e mail and we will be only too pleased to help in any way. Jenny Luck
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One major achievement that I would like to highlight was done by one of our members; Jennie Poate completed a long distance cycle ride in her own words, partly for me and partly to raise money for a good cause. Having been involved in a peripheral way with CSF Basse Normandie this was my chosen cause, along with the memory of my father dying in a horrible protracted way through lung cancer. She cycled the Brest to Nantes canal, 370kms in 5 days in prevailing winds and the opposite way around that the books recommend it is cycled!! At present she has raised a whopping 1,400 and it is still going up.
As this is going to press we have had some much The Duck Day Race was held on 15th May and needed glorious rain!!! raised 1,125 for our funds. Sixty people enjoyed a The CSF Charente Plus team BBQ, played a few family type games, contributed to an auction and watched as 100 yellow plastic ducks moved less than gracefully down the river Charente on a windy afternoon in Vouleme. One or two wayward CSF Deux Svres ducks were forced to swim upstream rather than downstream as a result of the wind, but they got there May and June have been quiet months but we in the end. We still have 100 ducks back in the box! have several new clients and also two new members of Youll see from the photos the small army of chefs for the team. the BBQ and some of the visitors we had for the afternoon. We say a big Thank You to all who helped On the 1st May we attended a Spring Fair at in whatever way they did, we certainly could not do it St. Germaine de Longue Chaume when we were able to without you all. give out many leaflets and talk to people about the work we do. At the end of the afternoon we were surprised and pleased to receive 100 from the organisers from their tea and cake sales so Thank you to Margaret and her team of tea ladies. It was a lovely surprise and very much appreciated. We are now getting ready for an event at Gourg on the 16th July where we hope to have a strong presence in order to once again raise awareness. In the meantime, there is a Concert to be held at Foussais-Payr on the 2nd July, when three choirs will be taking part - The River City Chorale from Sacramento, United States, the Choraline from La Chataigneraie and Musicalement Vtre from Moncoutant. Tickets are available from the Tourist Offices in Fontenay-le-Comte and La Chataigneraie. It should be a really good night and will benefit CSFDeux-Svres, CSF-Vende and All Saints Church in Puy de Serre. We will be there helping with refreshments and once again hoping to raise awareness. Thelma Bell
Volume 7 Issue 4
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CSF Dordogne Est & Lot Summer Foire, Vide Grenier and Book Sale
What a busy month its been for our Public Relations and Events Co-ordinator, Julia Hall who worked extremely hard on organising our summer foire, vide grenier and book sale held on Sunday, June 19th. Local competition was tough as there were several taking place in the vicinity but we did well. With lovely weather and a great guitarist, Graham Bailey, the ambience was very nice. Following on from the very successful Evening with rugby diner in February, this event was hosted once again by Brian and Sandra at Le Chapeau Melon in Souillac. We had 2,500 books on offer which is about half of what we currently have. Our two new Committee Members, Tim and Sue Giles ran an excellent tombola. Also offering a variety of items for sale were a plant stall, a popular local lavender farm, jewellery, cards and gifts sellers, an artist, a reflexologist, as well as clothing rails and some car booters. All-in-all, a very worthwhile day for raising awareness in our lower northern area and funds of just under 700 were raised too. husband and wife team, Susanne and Malcolm Byrne. We are very lucky to have such a willing and dedicated team. Finally, a big thank you to our Area Training Coordinator, Sue Murphy and her co-trainer, Tony Benstead from Dordogne Sud. We are very grateful for them agreeing to come to us; thank you to both of you. Then general feedback from all the participants was the overall professionalism of both Sue and Tony as well as the well-designed Training Programme. A follow-up seminar is being held in July for all of our Active Listeners and Sue Murphy has offered to give a short talk on a specific cancer.
La Ligue
In May, we had a meeting with our local La Ligue association in Cahors. Our host, Dr Gluckler, was an absolutely charming gentleman and, despite some language difficulty, we understood that he was very pleased to meet us at last and at a very early stage of the meeting, he was referring to us as their sister association. We have agreed to share information and events from time-to-time and its good to know that if our clients do encounter difficulties within the French healthcare system, he will be happy to help. Im thankful to Trevor Cartwright in bringing this meeting onto our agenda and to our newly retained Translator, Rachel Worsfold for her initial and thank you letters as well as for making time to attend the meeting to help with translation.
Future Events
Some of the stallholders in the (very warm) conservatory
Training
On the 2nd and 3rd of June, four of our Active Listeners took part in the new Training Programme together with our newest Active Listener, Felicity Freeman who, all have agreed, will make an excellent Listener. My thanks go to our Training and Active Listener Co-ordinator, Elizabeth Holleis and her husband Konrad who provided the venue, excellent food (Konrad is a chef and author our CSF recipe book) Finally. and overnight accommodation for the trainers. Thanks Have a great summer from all at Dordogne Est & Lot must also go to Trevor Cartwright who took part in the training earlier this year. This time, he offered to be Margaret York the client and, I understand, played it well.! Other Active Listeners re-training were Lesley Blackman and
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Like most of us, we are actively preparing for the National Awareness Week and looking forward to once again promoting the valuable work carried out by our dedicated volunteers. We are also in the process of working towards more planned events leading up to the end of this year and into 2012. We will be hosting a First Aid Course in November. Julia is in discussions with a local golf club who have proposed a golf day, possibly in October. Another book sale is planned in Cahors nearer to Christmas.
Well done to everyone involved and all those who sponsored you - I must say I thoroughly enjoyed Only 163 shopping days til Christmas! the morning; so much enthusiasm was infectious! I look forward to next year with an even stronger CSF Well, thats not true really, but we are beginning presence participating! to plan our popular Christmas Fayre in Monteton on November 19th and as a final note, please start saving Tony Benstead for those special gifts and mentioning to any suitable trader that stalls are available. We are preparing an Wonderful news and obviously an inspiration exciting Raffle and our super Greetings cards will be so the rest of us had better start training now! there as well as at Angel Trader venues.
Training
We have supported Dordogne East and Lot by running a training session in their area which was very well received, both as a refresher course for established Active Listeners and new practitioners. The revised materials used by Sue Murphy and Tony Benstead were once again much appreciated and our link with the Lot will continue with a further planned for September. Tony and Sue would like to thank all involved for their active participation and particular thanks to Elizabeth and Konrad for their outstanding hospitality.
Volume 7 Issue 4
Frances Nunn
CSF Gascony
We had an unsteady start to the year with the committee resigning in March for purely local reasons that will not be entered into publicly. An EGM was called for on April 11th, which took place in Mont de Marrast, our operational centre, to elect a new committee, which we did. John Docherty (me) was elected as President, Jayne Ray as Vice President and Bobbie Coe (previous secretary) in
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Gascony (Cont..)
her continuing role as Secretary. Previously elected members were appointed by the new President, with the agreement of the membership, to continue to serve in various roles: - Jude Newton responsible for Special Projects, Gill Miles continuing as Active Listeners and Client co-ordinator and Trainer, Carol Harmer continuing as Resources Officer and Minutes Secretary. donated items and all monies raised going to CSF Gascony.
We have received a number of membership applications as a result of two introductory meetings chaired by Jude Newton and we expect to be arranging an Active Listener course in the autumn. We have high hopes for the success of this satellite as they are a very motivated and active group of people, as indeed they Having settled all issues the new and re- are in the Toulouse satellite. Clearly, we are hoping to organised committee committed themselves to a reach a greater number of potential clients. positive year of growth in both membership and awareness of our services across a broader geographiAs you may have gathered, we are fairly cal area. We have succeeded in this aim, not least due pleased with our success in spreading the word and we to the previous efforts of the then President, Jude hope to reach out even further with the production of Newton, and in her new role as Special Projects co- our new publicity material. ordinator. The Toulouse satellite, as reported previously, is up and running with all members having taken an AL course in April and they are keen to provide support as soon as possible. This satellite group have also been very active, via Jayne Ray, in fund raising and publicity via the Toulouse Womens International Group (TWIG), by arranging for CSF Gascony to be adopted as one of only three nominated charities. True to TWIGs commitment, we are being featured at their Summer Garden Party by way of providing the Raffle, and prizes. The first prize being a 3-5 day break in a log cabin in the U.K. (transferable) and donated very generously by our Treasurer and Secretary, Bobbie Coe, at her holiday park with all proceeds to go to CSF Gascony along with any donations made on the day. The central group at Mont de Marrast is not being left behind as they held a coffee morning Thursday 9th June and plan to have a Spring Walk on 25th June for all-comers, both organised by Paula Whitehouse, which we expect to generate interest anew, perhaps with some new members resulting. Another Well Being Day is scheduled to take place 18th July, is once again being organised by Lynn Kilbey at her home. You might remember this is an event to support and pamper any clients who wish to attend, at no cost to themselves.
One further item worth reporting is that John Docherty has been broadcasting, in his capacity as President of CSF Gascony, as a member of a live English-speaking local radio programme on Radio We are also nominated to receive ALL Festival Lannemezan, for the last couple of months and sponsorship monies being raised from a 240 mile hopes to continue. Broadcasts take place on the first sponsored bike ride in Blairgowrie in the U.K. being Thursday of each month at 14:00. ridden by Mike Abbott, the husband of a TWIG member. Active listeners continue to grow in numbers following a successful course held in April which Whilst all this activity was being generated, all created 7 newly qualified ALs with one re-qualifying at our publicity material was being revamped, also via his own request. Jayne Ray, and is expected to be printed by the end of June. As mentioned earlier, another Active Listener course is expected to be arranged for our new Satellite This will be in time for the first formal function of another Satellite Group which has been established in Group this coming autumn. Good talking to you. the north west of the Gers near Eauze. That function is to be held 28th July in the form of a musical picnic lunch being held at the home of a new member and organised by her with a blind auction of a number of
John Docherty
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Touchlines
News Roundup
Once again I am pleased to report that at CSF The following are digests of recent items from (National) income and expenditure are in line with our the BBC News Health Website: budgeted targets. We can therefore continue to devote our efforts to raising awareness of CSF and supporting http://www.bbc.co.uk/news/health clients and Affiliated Associations, rather than fundraising. The UKs National Council for Health and Clinical Excellence (NICE) has ruled that Everolimus (also Thanks to our Assistant Treasurer, Gary Healey, known as Afinitor) is too expensive for use in the CSF now has a Paypal account operating at National treatment of advanced renal cell carcinoma. Two drugs level. This will enable the Association to receive which have been approved (Sunitinib and Pazopanib) donations and payments for promotional items also increase survival, but are not effective in all cases. electronically and will be especially useful where such Everolimus costs over 200,000 for a course of transactions are in sterling. The account is operated at treatment. (19 April 2011). CSF (National); each Affiliated Association will shortly receive an individual reference code so that items Cancer Research UK is sponsoring a trial of a designated for their eventual receipt can be identified pancreatic cancer vaccine called TeloVac, which is not and forwarded. Further details can be obtained from a cure but may prolong life. Pancreatic cancer has the me. lowest survival rate of all cancers just three in every hundred patients survive for five years or more. The Unfortunately, for personal reasons Gary has trial will involve more than 1,000 patients at 53 UK had to resign from the National Committee and will, hospitals who will receive regular doses of the vaccine therefore, not be able to take over the role of together with chemotherapy. The results will be Treasurer next March. Consequently, we are again compared with treatment by chemotherapy alone. The looking for a willing volunteer. All offers (and vaccine contains small sections of the protein enquiries) to the current incumbent, please! telomerase. This is over-produced by cancer cells, residing on the cell surface; it is hoped that the vaccine Finally, I would like to clarify the position of CSF will stimulate the bodys immune system to recognize regarding the use of the funds which it has raised. As the protein and target the cells (14 April 2011). an association caratatif registered under the loi 1901, CSF may raise funds for its own use in accordance with A European study, reported in the British the objectives specified in its Statutes. This precludes Medical Journal, has found that drinking alcohol over the distribution of such funds to other charities or the recommended limit substantially increases the risk organizations, such as to support cancer research or to of some cancers. The investigation involved eight purchase medical equipment for a hospital. Some countries, including the UK and France, and more than confusion arose recently because CSF members were 360,000 people. (8 April 2011). present (to raise awareness of CSF) at an event from which the organiser sent the proceeds to an animal Andy Shepherd welfare charity. Investigation confirms that at no time Situation Vacant was any money from this event given to CSF, nor was any money transferred from a CSF account to the animal charity. Perhaps it is time to reiterate that CSF is Due to unforeseen circumstances, a vacancy has not a fund-raising organization per se if an occurred for the position of National Treasurer to Association has sufficient funds to continue its prime take over from Andy Shepherd as planned in 2012. task of supporting people affected by cancer, it should not feel driven to keep asking for money. For further information, please contact Andy direct: Andy ShepherdTreasurer, CSF (National) Tel: 05 45 29 08 93 csfmoneybags@gmail.com
Volume 7 Issue 4
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Useful Information
Association Office & Sige Social
Mairie Le Bourg 16350 BENEST Open every Tuesday 10h0012h30 and by appointment National Help-line Tl/fax 05 45 89 30 05
An answerphone service operates outside office hours
Dordogne-Riberac (16s, 24w): Valerie Wareham 05 53 90 62 03 vmwareham@papaval.plus.com Dordogne-Sud (24, 33, 47): Tony Benstead 05 53 54 46 67 csf.dordognesud@gmail.com Gascony (31, 32, 65): John Docherty 05 67 32 18 56. csf.gascony@aliceadsl.fr Languedoc (12,30,34,48): Cat Hartley 04 67 96 12 04 csf.languedoc@gmail.com Lyons (69) Paul Keats lyon.csf@gmail.com 04 78 03 71 16
Useful Contacts
President: Linda Shepherd 05 45 29 08 93 presidentcsf@gmail.com Treasurer: Andy Shepherd 05 45 29 08 93 csfmoneybags@gmail.com Secretary: Jane Thomas seccsf16@gmail.com 05 49 48 99 48
Sud-de-France (09, 11, 66): Hazel Turner 04 68 69 41 45 presidentcsf110966@gmail.com Vende (85): David Martin 02 51 00 92 97 csvpresident@orange.fr
Regional Groups
Basse-Normandie (14, 50,61): Jenny Luck 02 33 60 27 82 jennytluck@hotmail.com Bretagne-Ouest (29 w, 22w): Judith Curl 02 96 45 76 20 Curl_judith@yahoo.co.uk Charente-Plus (16, 17, 86,87) Pat Hyatt 05 45 29 66 24 csf.charenteplus@gmail.com Cur-de-France (03,18, 58): Teresa Cox teresaric@gmail.com 04 70 67 94 87
Donations for the national work of CSF should be sent to the Treasurer, Andy Shepherd, at La Roche, le Bourg 16350 BENEST
Touchlines
Published in January, March, May, July, September and November
Creuse (23): Mike Walsh 05 55 63 98 76 csf.creuse@yahoo.com Deux-Svres (79): June Searchfield 05 49 64 59 96 searchfields.lagroie@orange.fr Dordogne Est/Lot (24E, 46): Margaret York 05 65 22 96 37 csfdordognelot@yahoo.com
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Touchlines