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spirit
Andre’ Gensburger
A lifetime of problems
From the time she was born prematurely, Katie Grace had
always been sick and weak, with episodes of passing out. The
family doctor deferred further testing. “Even in his records, he
wrote: ‘Mother compares child to older sibling’ and that he told
me ‘Not all children are the same,’ ” Kathy said. “When she
passed out, they said it was acid reflux.” The doctor prescribed
Prilosec to reduce stomach acid.
It was only when Katie Grace was 3 and showing slower
development of motor and cognitive skills that there were other
tests, but most showed nothing conclusive. She was assigned a
physical therapist, who thought Katie Grave was having
seizures. However, tests proved negative.
One gastroenterologist noted in a letter to the family doctor that
she had a 1/6 systolic murmur at the base of the heart, but “the
doctor said a lot of children have heart murmurs and grow out of
them,” Kathy reported.
Yet each time Katie Grace would get sick, simple illnesses like a
cold would become complicated and require hospitalization.
In November ’07, the 5-year-old started a preschool readiness
class three days a week to help her catch up. The family began
to notice a serious decline in her ability to stay alert and focused,
and Katie Grace would get irritable and exhibit stress-related
patterns such as thumb-sucking.
“That Thanksgiving, we went into the doctor as we were all sick
and our doctor was gone,” her mom said. Another doctor
diagnosed pneumonia and started antibiotic treatment until a
newly licensed doctor contraindicated the pneumonia diagnosis
due to negative lab tests. Instead, he prescribed a cough syrup to
help her congestion and difficulty breathing while he conducted
more tests.
“Two days later he called – he didn’t want to tell me on the
phone,” Kathy said. “Her heart was so significantly enlarged
that he had called an immunologist and a cardiologist to look at
the results and the imaging.”
An echocardiogram did not show anything, however, based on
the symptoms and the lab work, it was suggested that a hole was
present that needed to be closed – solving all the problems.
Myriad complications