Voluntary Sector Care

Partnerships

1
Patient care is organised and delivered by a
number of providers:

Primary Care
Community Care
Secondary Care
Local Authority

2
Recognising and utilising the voluntary
sector as another care provider:
Primary Care
Community Care
Secondary Care
Local Authority
Voluntary Sector Care
- providing sickle cell and thalassaemia care
and support services
3
 Activities of the Sickle Cell Society

Health education - Public and patient

education to increase awareness of sickle cell
Training and Development – mentoring,
professional placements, prison officer
training
Health Promotion - Information, advice and
counselling
Outreach Care - Regional care services
Respite Services - Children’s holiday,
Continued….
volunteering support 4
 Activities of the Society
Advocacy Services - lobbying for improved services,
support in accessing services
Welfare Services - Educational and welfare grants
Research and Development – Projects, studies, health
impact workshops and assessments
Referral Service – referring people to screening and
care centres
Expert patient development – scholarships, building
support group networks

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 Sickle Cell Society ‘Services’

Activities/services confirm the contribution to

health and social care by the Society
Activities/services are delivered usually via
community engagement or community
development model (‘bottoms up’)
Society is solely responsible for its own
funding stream and its own sustainability.
Anecdotal evidence of ‘savings’ to NHS from
the services provided by the Society
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Voluntary Sector Care Provider
The Sickle Cell Society and Thalassaemia Society has
major strength in community engagement which is an
important factor in service design and commissioning for
sickle cell and thalassaemia:

NICE (Feb 08) ‘Different levels of community engagement

could directly and indirectly affect health in both the
intermediate and long term’

National Institute for Health and Clinical

Excellence, public health guidance 9, Issue date February 2008

Continued…….
7
 Health Impact
Community Engagement

Some approaches used for consultation with

communities -such as a workshop –may have a
marginal impact on health, but may impact on the
appropriateness, accessibility and uptake of
services.

National Institute for Health and Clinical

Excellence, public health guidance 9, Issue date February 2008

8
 Society and Health Impact

Regional Care Advisers’ outreach programme –

providing advice and advocacy in the home.
Standards for the clinical care of adults with
sickle cell disease in the UK - nationwide
consultation with support groups
Doctors /patients engagement workshop –
working together on issues to improve services
(Appendix 1)

…These examples are having/will possibly have

intermediate and long term positive health
outcomes
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 Other Levers
The momentum for close collaboration with
voluntary sector is also supported by:
Tackling health inequalities: A Programme for
Action (2003)
Local government white paper (2006)-Strong
and prosperous communities
The White Paper: Our Health, Our Care, Our
Say (2006)

10
10
 Society as Care Partner
Good track record of working with NHS
professionals, professional bodies and
organisations:
The NHS Sickle Cell and Thalassaemia
Screening Programme
UK Forum on Haemoglobin Disorders  
Sickle Cell and Thalassaemia Counselling
Centres
Regional Antenatal Teams 
Evidence of activities /services for users  
Continued…..
11
11
 Society as Care Partner

Good/ improving track record of political

lobbying:

An All Party Political Group (APPG) is in and

Sickle Cell Society is working alongside the UK
Thalassaemia Society, the NHS Sickle Cell and
Thalassaemia Screening Programme and MPs to
advance care and awareness of screening.

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12
 Key Driver for
Voluntary Sector Care
The NHS Constitution sets out six principles
‘enduring high-level rules’ governing how the
NHS works:

Principle 6 –’ The NHS is committed to providing

best value for tax payers’ money and the most
effective and fair use of finite resources.’

DH (2008) A Consultation on The NHS Constitution:

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 The Way Forward
Explore applying NICE recommendations to
Sickle Cell and Thalassaemia. Nice recommends
and sets outs prerequisites on four groups who
should take action:

Group A – People involved in planning, design funding

and evaluation of national , regional and local initiatives

Group D – People who commission, plan, design, deliver

and manage community engagement activity

NICE, public health guidance 9,

Continued…….
Issue date February 2008 14
 The Way Forward

Group B – Commissioners and providers in

public sector organisations….and the voluntary
sector who seek to involve communities in
planning, designing, delivering, improving,
managing and the governance of:
- health promotion activities
- activities which aim to address the wider social
determinants of health
- area-based initiatives
NICE, public health guidance 9,
Issue date February 2008

Continued…….
15
 The Way Forward

Group C – Members of community organisations

and groups and community representatives
involved in health promotion, activities to
address the wider social determinants of health
and area based initiatives.

NICE, public health guidance 9,

Issue date February 2008

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 Some Possible Outcomes

Wider collaboration and networking among

stakeholders
Increased involvement of the wider community
in service planning and delivery
Wider and ongoing consultation with patients
and stakeholders
Extension of care providers to include
voluntary care provider for ‘grass roots’ care
services

Cont’d…. 17
17
 Some Possible Outcomes

Opportunity/forum for stakeholders to share

ideas and best practices and audit outcomes
Core funding and resources to support and
sustain the Sickle Cell Society and the
Thalassaemia Society as health care partner
provider
A cost effective ‘bottoms up’ model for
community engagement and community care

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18
A Community Engagement Master-
Lessons for Sickle Cell
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Taking a position within the community
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Connecting with the Community 21
Communicating at the right level 22
I see friends shakin'
hands,

Still Reaching your Target Audience

23
Outreach to get into local communities 24
Are also on the faces

Replicate local efforts nationally

25
sayin' "How do you do?"

Value the importance of relationships

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what a wonderful world

Reaching out to individuals and families

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I watch them grow

Putting individuals and families at the centre

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They'll learn much more

Recognising and valuing teamwork

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Keeping the objectives in sight
30
Achieving the objective 31