Promoting patient-centred healthcare around the world

Facilitating patient advocacy

expertise across borders

Caroline Staffell Membership and Engagement Manager
Taking down barriers: Helping Turkey fight chronic disease Istanbul, Turkey 13 June 2013

Promoting patient-centred healthcare around the world

About IAPO
Unique global alliance of over 200 national, regional and
international groups representing patients

Established in 1999 Crossing borders and diseases

Vision: Patients throughout the world are at the centre

of healthcare

Promoting patient-centred healthcare around the world

IAPOs Mission
IAPOs mission is to help build patient-centred healthcare in worldwide by:
1.

Realizing active partnerships with patients organizations, maximizing their impact through capacity building Advocating internationally with a strong patients voice on relevant aspects of healthcare policy, with the aim of influencing international, regional and national health agendas and policies Building cross-sector alliances and working collaboratively with likeminded medical and health professionals, policy makers, academics, researchers and industry representatives

2.

3.

Capacity Building

Advocacy

Partnerships

Promoting patient-centred healthcare around the world

Patient advocacy in healthcare policymaking

Coordinated alliance one voice

Represent a large constituency

Demonstrate the importance of the patient perspective Build relationships with healthcare policymakers Send communications; invite to meet, phone, respond to consultations - Know what you want to change

Develop alliance with other important stakeholders in healthcare (e.g. health professional associations)

Promoting patient-centred healthcare around the world

Patient advocacy in action: Polish Diabetes Association

Provide patient education on diabetes throughout Poland Wrote a letter to introduce their organization to the new Minister of Health Gained support through local advocates and local politicians Member of healthcare advisory committee at the Ministry of Health Use information from the UN, WHO, IAPO and other patients organizations to support their messages

Represent a large number of people and local associations in Poland Work with the national, cross-disease patients organization

Promoting patient-centred healthcare around the world

Tips to help your organization to stand out:

Demonstrate a mutual aim Show the contribution you can make Highlight your strengths Demonstrate why you are best placed to achieve the mutual aim Work in an alliance Show who you represent and how

Promoting patient-centred healthcare around the world

IAPO Twinning Programme

Twinning offers a framework for two patients organizations to work together on a joint project. The programme provides an opportunity for learning and exchange, to share and develop expertise and best practice models.

The activity undertaken depends on the organizations needs and capacity. Projects fall broadly into three categories: Information exchange; e.g. to deepen understanding on a particular policy issue or area of research

Training; e.g. to further skills in a particular area, such as fundraising, communications, advocacy, policy-formulation, membership, patient education or governance Joint Project; e.g. a joint advocacy campaign, press conference, event or publication

Promoting patient-centred healthcare around the world

Created by patient advocates in Kenya and Uganda in 2011

Patient-led initiative involving ten countries in Africa

Theme: Improve lives through patient-centred healthcare Opportunity for cross-sector collaboration to mark the day Official partners include: World Health Organization Regional Office for
Africa, International Hospital Federation, World Health Professions Alliance, International Federation of Medical Students Associations

Visit: www.patientsolidarityday.org
#PSD 2013 @patientsolday

/patientsolidarityday

Promoting patient-centred healthcare around the world

Contact us
Please visit our website to find out more: www.patientsorganizations.org
If you would like to receive our monthly email newsletter and details of other publications, please send your details to us: International Alliance of Patients Organizations 49-51 East Road London N1 6AH Tel: +44 20 7250 8279 Fax: +44 20 7250 8285 Email: caroline@patientsorganizations.org Website: www.patientsorganizations.org