BERRY

SYNDROME
A S T O RY O F A M I R A C L E
 Measurents
Heigth: 49 cm
Weight: 2,740 gram Hi.. I am a baby boy,
a third child in Elon
Family

I was born on Thursday at 7

AM, on February 23, 2017
by cesarian section, in
Bandung Adventist Hospital.
Maxx Micah
Indonesia Kaikehage
Elon’s
 This place is nice &
full of love, I like
being here

1ST DAY AT HOME

I am 7 days old, this is a
place of peace. I can
hear music from this
wall. A love music
comes from dad’s heart
beat
MARCH 6,

NICU RSA,
with blue light,
Diagnosed
berry syndrome
Bioglandin IV
MARCH 12
I’m here, in National Cardiovascular
Center, Jakarta. Do you see the love
sign on my cheeck? It’s not for fun, but
the nurse made it so my parents will
be a little bit calm. They were so sad
with my condition
I HAVE FAITH IN GOD.
THERE’S NOTHING MY
GOD CANNOT DO
OPEN HEART SURGERY
High risk;
7 hours
REPAIR:
IAA: INTERRUPTED AORTIC ARC
APW: AORTOPULMONARY WINDOW
AORPA: AORTIC ORIGIN RIGHT PULMONARY ARTERY
PDA: PATENT DUCTUS ARTERIOSUS
TAKING PICTURE IS FORBIDDEN, IN THIS
AREA: ICU (I WAS THERE FOR 3 WEEKS)
Respiratory device +
NO;
My mom take this Infusion, medications
picture without and nutrition were
anyone knew. 19 come through
venous central site
lines were on my neck, some
connected to my drain from my
body surgery site;
peritoneal dialysis
line; urine cath;
artery line
APRIL 15, I WAS MOVED TO
INTERMEDIATE CARE, I FEEL
FREE, ONLY T WO LINES LEFT
NOW, MY MOMMY CAN
CARRY ME ON, I CAN FEEL
HER WARM CHEST, I REALLY
MISS THIS MOMENT
APRIL 19, MY PARENTS WILL TAKE ME TO
BANDUNG ADVENTIST HOSPITAL TODAY, ONE
STEP CLOSER TO HOME
APRIL 20, AT RSA PICU
APRIL 24, I AM NOW 2 MONTHS OLD,
READY TO GO HOME
THIS IS HOW MY
CHEST LOOK ALIKE
I like to sleep in
this position
3 MO, MY STYLE
 DAD’S WORK

4
MONTHS
OLD

BEFORE AFTER
SO HAPPY WITH MY NEW HAIRCUT
6 MO,
TIME TO
HAVE
BANANA
HERE I AM NOW
HAPPY & HEALTHY

TO GOD
BE THE
GLORY
THANKS FOR ALL
YOUR PRAYERS
MAY GOD RICHLY
BLESS YOU