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` VISION ʹ high quality, patient-centred equitable
healthcare throughout the EU
` MISSION ʹ to present a strong and united
patients͛ voice 150 MILLION PATIENTS, almost
` 50 members ` GOALS
` Equal Access
` Patient Involvement
` Patients͛ perspective
` Sustainable patient
organisations
` Patient Unity
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` Patients Rights in Cross
Border Healthcare
` Patient Safety
` Pharma Package
` Health Literacy
` eHealth
` Clinical Trials
` Medical Devices
` Health Technology
Assessment
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` Draft Directive on Pharmacovigilance


DIRECT PATIENT REPORTING

` Draft Directive on information to the


General Public on Prescription
Medicines
M RIGHTS OF PATIENTS, HEALTH LITERACY

` New Joint Action on patient safety


and quality of care,
M PATIENT INVOLVEMENT-CORE THEME
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!"

` Reinforcing national patient platforms͛ advocacy and


campaign work using policy advances at EU level
e.g Implementaton of the Animal Testing Directive
e.g Implementation of the Pharmacivigilance Legislation
ʹ Direct Patient reporting
e.g Ensuring provisions of Directive on Patients Rights in
Cross Border Healthcare ( National Contact Points,
Stakeholders involvement in HTA) are upheld
e.g Coordinated work on Health inequalities and
information to patients, health literacy
` Stronger collaboration with Health Stakeholder Allies
At national level ʹ eg Romania

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` èVALUE +͟ on the meaningful


involvement of patients in EU
health projects
` 3 core deliverables widely
distributed, translations
` Landmark conference under
the Swedish Presidency,
Gothenburg December 2010
` EPF representation in major EU
level health Forums,
Consultative Committees and
Working Groups î î in the
last year
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for patients͛ organisations
 î for project coordinators,
leaders and promoters

 
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` In a policy environment
` E.g Innovation Partnership on Healthy
and active ageing
` In a programme environment
` E;g DG RESEARCH
` IMI
` At individual research project
level
` E.g RESPECT
` Capacity building level
` Tools linked to Health Technology
Assesment, Clinical Trials, Structural
Funds, eHealth

  
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` EPF Manifesto è150 Million Reasons to act͟ campaign-
outreach work with/by our members
` EPF - speaker ,chair or moderator in over 50 EU health
meetings each year - ensuring or safeguarding the
patients͛ perspective.
` Active support 120 MEPs- all EP Groupings ʹ close
relationship with key rapporteurs on main health dossiers
` Strong input in European Medicines Agency,
` Alliance building with health professionals, other Health
stakeholders
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` Needs and rights of Older Patients


` Adherence to medicines / concordance
` Personalized Medicines
` Medical Devices
` Non ʹ Discrimination legislation
` Bridging prevention and chronic disease
management, health and social policy
` Youth Strategy
3
  

` Annual General Meeting (Spring) capacity
building and open space for members͛
networking, Brussels

` Regional Advocacy Seminar in Romania ʹ


Focus ʹ collaboration with Health care
Professionals ʹHealth Literacy

` Meeting the needs and rights of older


patients ʹ Polish EU Presidency
Conference ʹ second semester

` Policy Advisory Group and Patient


Evidence Base Workshops
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` New EU Public Health Programme


` 8th Framework Programme on Research
and Development ( health component)
` Cohesion Policy and Structural Funds
` Health in All Policies

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` We all make a î


 
` Our strengths
- our members͛ expertise, experience
innovation and solidarity
- our collective evidence based
perspective
- our commitment to partnership

- îî
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    in
the EU health and social policy
environment